2017-21 DIABETES CARE ON THE CENTRAL COAST - Central Coast Local ...
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DIABETES CARE ON THE CENTRAL COAST 2017-21 HUNTER NEW ENGLAND AND CENTRAL COAST An Australian Government Initiative
Acknowledgements Diabetes Advisory Group Diabetes Plan Steering Group 50 participants in diabetes planning day including staff from Central Coast Local Health District, Hunter New England and Central Coast Primary Health Network, Yerin – Eleanor Duncan Aboriginal Health Centre, Diabetes NSW, Wyong Shire, NSW Health and consumers 104 staff who completed surveys regarding diabetes care on the Central Coast Six clients, some with carers for participating in interviews about their care experiences including how care could be improved. Abbreviations ABS Australian Bureau of Statistics ACI Agency for Clinical Innovation AIHW Australian Institute of Health and Welfare CDM Chronic Disease Management CHS Central Coast Community Health Survey CKD Chronic Kidney Disease Diabetes Ad Gp Diabetes Advisory Group ED Emergency Department HEAL Healthy Eating Active Living Int Care Integrated Care LHD Central Coast Local Health District MBS Medicare Benefits Schedule NRT Nicotine Replacement Therapy PHN Hunter New England Central Coast Primary Health Network PHU Public Health Unit RACGP Royal Australian College of General Practitioners SAPHaRI Secure Analytics for Population Health Research and Intelligence Yerin Yerin – Eleanor Duncan Aboriginal Health Centre
Contents Executive Summary 1. Diabetes – A Case for Action 2. Diabetes on the Central Coast 2.1) Diabetes and diabetes risk factors in the Central Coast Community 2.2) Diabetes in Primary Care 2.3) Diabetes Secondary and Tertiary Care 3. Diabetes Service Profile on the Central Coast 3.1) Prevention services 3.2) Primary Care services 3.3) Secondary and Tertiary Care services 4. The Central Coast Approach to Diabetes Care 4.1) Central Coast Diabetes Model of Care 5. Central Coast Diabetes Plan 5.1) Priority Areas 5.2) Actions Diabetes Care on the Central Coast 1
Foreword This is the first Diabetes Plan and The Central Coast Regional The specialist services provided by Model of Care for the Central Coast Leadership Executive the Central Coast Local Health created in partnership between the Implementation Plan to Reduce District are challenged by Central Coast Local Health District, Childhood Obesity and Promote increasing demands for their the Hunter New England Central Healthy Eating and Active Living services, implementing Coast Primary Health Network and reinforces the role of sectors improvements in technology in Eleanor Duncan Aboriginal Health outside health to reduce the rates diabetes care, and the strategic Services, with input from of overweight and obesity among imperative to support generalists consumers. Central Coast residents. to work at the top of their scope of practice – in order to maximise The Central Coast Local Health For people with diabetes, much of health outcomes for all people with District’s previous Diabetes Plans their care occurs in the community diabetes. have guided the development of setting with their family doctor and services for people with diabetes a range of other health Our three organisations are on the Central Coast. These plans professionals. Work continues to committed to working together as have set a strong foundation for ensure person-centred care, care one system to improve the health this new population-based and coordination, and improved health and wellbeing of the Central Coast collaborative approach to literacy and self-management community, and to provide person- diabetes care. happens throughout the social and centred care for people with health care system. This approach diabetes on the Central Coast. We The new Diabetes Plan and Model requires strengthening of look forward to showing how this is of Care are important to address relationships at a local or regional achieved over the next five years. the increasing rate of diabetes on level, with specialists supporting the Central Coast – about 10 per general practitioners and other cent of adults living in the region generalist workers so all people have diabetes, mostly type 2 with diabetes get the care they diabetes. need, when they need it, in a place Dr Andrew Montague that feels safe to them. The Lifestyle related risk factors, Chief Executive Primary Health Network, Yerin – including overweight and obesity, Central Coast Local Health District Eleanor Duncan Aboriginal Health are major contributors to the Centre, the Local Health District, prevalence of type 2 diabetes. The general practitioners and other Central Coast Local Health District’s community-based workers are all Health Promotion Unit and Eleanor stakeholders in this work. Duncan Aboriginal Health Services Richard Nankervis have a range of programs in place Chief Executive Officer in the community to increase Hunter New England and Central physical activity levels, increase Coast Primary Health Network fruit and vegetable consumption and ultimately, reduce levels of overweight and obesity in children and adults. Belinda Field Chief Executive Officer Yerin Aboriginal Health Services 2
Executive Summary Diabetes Care on the Central Coast The guiding principles behind this The vision for diabetes care on the 2017-21 outlines the Central Coast approach are: Central Coast is for the community, Diabetes Model of Care and Central people with diabetes, their families Coast Diabetes Plan to be • Prevention - health promotion and carers, and health professionals implemented over the next five programs to reduce incidence of to work collaboratively to prevent years. risk factors of diabetes and diabetes and achieve better health proactive care to minimise the outcomes for people with diabetes. Diabetes has become one of the impact of diabetes and prevent most challenging problems for complications. The Diabetes Model of Care public health. A global epidemic, • Person-centred care and identifies key responsibilities for the prevalence of diabetes is supporting self-management people and workers in the increasing and affecting on health throughout the life of a person community, primary care, and care systems worldwide. with diabetes and their carer. secondary and tertiary care settings. The Model of Care • Access - diabetes care to be In Australia, the prevalence of promotes person centred care with provided as close to home as types 1 and 2 diabetes has risen particular consideration for high possible. over the last three decades1. The risk groups including Aboriginal number of people with type 2 • Coordination and integration of and Torres Strait Islander people(s). diabetes is growing, most likely due diabetes care across services, to increases in overweight and settings, technology and sectors. The Diabetes Plan consists of 13 obesity rates, poor nutrition, lack of • Equity - with particular priority areas across the physical activity and an ageing consideration for Aboriginal and community, primary care, population – all risk factors for type Torres Strait Islander people and secondary and tertiary settings, 2 diabetes2. other marginalised people at including early detection of higher risk. diabetes, specialist support for On the Central Coast, around 10% primary care, and reducing the • Effectiveness - evidence based of adults live with either type 1 or 2 impact of diabetes among children, care, best practice initiatives. diabetes or high blood glucose3. older Australians, those with • Quality improvement – This rise in prevalence coupled with mental health issues, and measurement of health complications arising from late Aboriginal and Torres Strait behaviours, treatments and detection and suboptimal Islander people. outcomes, and feedback to management of diabetes are providers and the community. placing significant burdens on The Central Coast Local Health primary, secondary and tertiary District, Hunter New England care in the region. To address this Central Coast Primary Health concern, a Central Coast-wide, Network and Yerin – Eleanor whole-of-population and whole-of- Duncan Aboriginal Health Centre. system approach is required. The (in consultation with the local Central Coast Local Health District, community and key service Hunter New England Central Coast providers) are committed to Primary Health Network and Yerin working collaboratively to – Eleanor Duncan Aboriginal Health implement the Central Coast Centre. in consultation with other Diabetes Plan and Model of Care. service providers and consumers have developed a coordinated and integrated approach to diabetes care for the Central Coast. 4
The Central Coast Local Health The Hunter New England Central Yerin – Eleanor Duncan District is committed to: Coast Primary Health Network is Aboriginal Health Centre is committed to: committed to: • providing specialist services aligned to community need, • supporting general practices to • ensuring community • working collaboratively with effectively manage diabetes, engagement to achieve best primary care to support the • working collaboratively with health outcomes for the provision of integrated and secondary and tertiary care, and Aboriginal and Torres Strait effective diabetes care, and Islander community, and • collecting and feeding back data • developing health promotion to general practices to enhance • demonstrating high quality care strategies leading to a decline in the culture of demonstrable for the Aboriginal and Torres new cases of diabetes. improvement in patient care. Strait Islander community in the primary care setting. These are key elements of diabetes care on the Central Coast that will help improve health outcomes for the Central Coast community as a whole, and for people with diabetes. There are more action areas, and more detailed activities to be found in the body of the plan. The partnership between the three organisations provides the forum for monitoring the progress of the plan, and tracking the health outcomes we see for the future. Diabetes Care on the Central Coast 5
1. Diabetes – A Case for Action Diabetes represents one of the The prevalence of type 2 diabetes Risk of type 2 diabetes is greatly most challenging public health increases with age, and is higher in increased if people display a problems of the 21st century4. The the Aboriginal and Torres Strait number of modifiable lifestyle disease and its associated Islander community. According to factors. These include high blood complications contribute the Australian Institute of Health pressure, overweight or obesity, significantly to mortality, morbidity, and Welfare5, in 2014-15 insufficient physical activity, poor poor quality of life of sufferers and self-reported rates of diabetes diet and extra weight carried carers, and the cost of health care3. among 65-74 year olds were three around the waist9. In approximately times as high than for 45-54 years 58% of cases of type 2 diabetes the In Australia, the prevalence of olds. The ageing population in condition can be delayed or diabetes is rising, affecting around NSW is likely to influence these prevented by reducing weight, 1.2 million people in 2014-152. In rates; the population of 65+ increasing physical activity, New South Wales in 2016, 8.9% of years old in the state has increased improving diet and stopping people aged 16+ were told they over the past 20 years from 12% in smoking10. With this in mind, there had diabetes or high blood glucose 1996 to an estimated 15.3% in 2016, is opportunity to promote healthy levels, up from 6.5% in 20023. and is projected to increase even eating and active living across more rapidly6. organisations on the Central Coast Although rises are seen in both to help reduce prevalence of the types 1 and 2 diabetes, type 2 Appropriate management of disease. This is of particular diabetes accounts for 85% of all diabetes is essential. If left relevance on the Central Coast, cases. Cases like these are expected undiagnosed or poorly managed, where around 60% of adults are to rise; within 20 years, the number type 2 diabetes can lead to currently overweight or obese3. of people in Australia living with coronary artery disease, stroke, type 2 diabetes may increase from kidney failure, limb amputation and To help reduce diabetes prevalence an estimated 870,000 in 2014 to blindness2. There are more than and its consequent impact on over 2.5 million2. 4,400 amputations every year as a Australian public health services result of diabetes, of which 85% are and systems, health promotion is preventable if diabetes is detected important. The Diabetes Model of early and managed appropriately7. Care and Diabetes Plan aim to address health promoting Diabetes is a major cause of environments and education chronic kidney disease (CKD). among communities and health People receiving dialysis treatment professionals. for CKD in Australia increased by 3% from 2013 to 20148. If CKD is detected early and managed appropriately, the otherwise inevitable deterioration in kidney function can be reduced by as much as 50% and may even be reversible8. 6
2. Diabetes on the Central Coast 2.1 Diabetes and diabetes risk factors in the Central Coast Community The NSW Population Health Survey (SAPHaRI) found, in the past seven years, the percentage of persons on the Central Coast aged 16+ who were told by a doctor or at hospital that they had diabetes or high blood glucose levels to fluctuate around 9 to 10%3. In 2014, the estimated prevalence of diabetes was 10.9% (7-14.7, 95% CI) and in 2016, it was 9.6% (6.9-12.3, 95% CI). Trend lines from 2002-2016 show an overall increase in diabetes rates on the Central Coast and in NSW, with rates on the Central Coast higher than in NSW. (Figure 1). Figure 1. Diabetes or high blood glucose rates for persons aged 16 years and over, Central Coast Central Coast LHD, NSW, 2002-2016 NSW Linear (Central Coast) Linear (NSW) 12 10 8 PERCENT 6 4 2 0 15 10 12 14 16 05 07 09 11 13 02 04 06 08 03 20 20 20 20 20 20 20 20 20 20 20 20 20 20 20 Source: NSW Population Health Survey YEAR (SAPHaRI). Centre for Epidemiology and Evidence, NSW Ministry of Health Diabetes Care on the Central Coast 7
The Central Coast population has a The Central Coast Community For this report, we refer to the high estimated population Health Survey (CHS) (Miles et al) prevalence of diabetes in Central proportion of 16+ year olds with allows us to compare diabetes Coast adults as being 10%. diabetes lifestyle risk factors. In rates in Gosford and Wyong. The 2016, 30.8% of 16+ year olds on the CHS (2014) estimated that 10.3% of The prevalence of type 2 diabetes Central Coast were overweight, Central Coast adults (18+ years) increases with age, and the number 26.5% were obese, 60.2% did not had reported being told by a of people aged 65+ on the Central do the recommended amount of doctor or at hospital that they had Coast is increasing. The ABS (2016) physical activity, and 20.1% diabetes (approximately 26,000 estimated 20% of the Central Coast smoked3. Over the last 10 years, people), with a slightly higher population was 65+ years old in overweight and obesity rates have proportion of adults estimated with 2015, an increase from 18% in 20106. increased, inadequate physical diabetes in Wyong (10.7%) than in activity rates have levelled and Gosford (9.8%). This has increased current smoker rates have from 7.9% in 2006. The study also decreased. found diabetes lifestyle risk factors higher in Wyong than Gosford (Figure 2). Figure 2. Diabetes and risk factors, persons aged 18 years and over, Gosford, Wyong and Central Coast, 2014 60 Source: Central Coast Local Health District. Central Coast Community Health Survey: 50 Analysis of Telephone Survey 2014. Community Health 40 Survey smoking data inconsistences due to rounding PERCENT 30 20 10 0 diabetes overweight obese inadequate current high blood p.activity smoker pressure Gosford 9.8 34 21.8 45 14.2 28.5 Wyong 10.7 33.1 29.9 49.5 14.5 31.9 Central Coast 10.3 33.8 25.7 46.7 14.7 29.7 8
2.2 Diabetes in Primary Care The Hunter New England Central Coast Primary Health Network (PHN) offers practice support and development to general practices on the Central Coast. This includes use of the practice data extraction and analysis tool PEN/PATCAT. In 2016, 61 (57%) Central Coast practices had data agreements with the PHN to use this tool. For those practices who provide aggregated de-identified clinical data using PEN/PATCAT, quarterly reports are produced and provided to general practices, benchmarking where possible - activity with peer group-comprising general practices in the same remoteness area (as identified by ABS – RA1, 2 etc). The tool also allows for the analysis of data to assist with population This cohort of patients includes Key observations health and services planning. those coded as having diabetes and those indicated by the PEN/ • From this population, 11% of The data following is based on PATCAT tool who are likely to have people have diabetes, which is aggregate data from 51 (48%) diabetes. Those likely to have similar to that estimated for the practices on the Central Coast that diabetes have glycated Central Coast population provided data extracted from PEN/ haemoglobin (HbA1c) >=6.5 or, • For people with diabetes, PATCAT in the 6-month period to HbA1c recorded AND on an anti- the measure of blood sugar the end of February 2017 (for more diabetic medication or, fasting control over the last 3 months, data see Appendix 1). More than blood glucose (FBG) >7. HbA1c, was 7% or less for 56% 95% of the data summarised was of people, >7% for 29% of provided in the January-February people, and was not recorded 2017 period. The data is for active for 15% of people patients 18 years and over only. • For people with diabetes, Active patients are defined by The 31% had high blood pressure. Royal Australian College of General Blood pressure was not recorded Practitioners (RACGP) and includes for 7% of people those patients who have visited a • For people with diabetes, general practice three or more 65% were overweight or obese times within the last two years. and for 25% of people BMI was not available Diabetes Care on the Central Coast 9
Table 1: Summary data provided by General Practices in the Central Coast relating to diabetes, PEN/PATCAT extracts, 6 months to Feb 2017 Gosford Wyong Central Coast Number of general practices 57 50 107 Practices who have provided data 23 28 51 Total active patients 99394 108721 208115 Total patients with diabetes* 10482 12352 22834 Total patients with diabetes (%) 10.5 11.4 11.0 Total patients with Diabetes Type 1 (%) ** 8.4 7.3 7.7 Total patients with Diabetes Type 2 (%) 71.0 76.1 74.4 Total patients with Diabetes Other (%) 20.6 16.5 17.9 Total patients with diabetes, HbA1c > 7 (%) 28.7 29.8 29.3 Total patients with diabetes, HbA1c > 8 (%) 14.0 15.3 14.7 Total patients with diabetes, HbA1c not recorded in last 12 months (%) 16.9 13.1 14.8 Total patients with diabetes, with high blood pressure 29.1 32.7 31.1 (>140 over 90) (%) Total patients with diabetes, blood pressure not recorded (%) 7.0 7.1 7.1 Total patients with diabetes, overweight (%) 21.6 22.1 21.8 Total patients with diabetes, obese (includes morbidly obese) (%) 39.6 46.8 43.5 Total patients with diabetes, BMI not available (%) 27.2 22.7 24.7 Total ATSI patients (%) 2.1 6.1 4.2 Total ATSI patients with diabetes (%) 9.5 7.6 8.5 * Unless otherwise specified, the term ‘patients with diabetes’ in this table refers to the combined group of patients coded as having diabetes and indicated as likely to have diabetes ** Denominator for rates of diabetes types includes patients with both Type 1 and Type 2 diabetes 10
Medicare data Medicare data gives limited ten activities completed over a 12 knowledge of activity due to a month period and a full eye check limited number of diabetes-specific every 24 months for diabetic Medicare Benefits Schedule (MBS) patients which can be claimed item numbers (see Appendix 2 for every 12 months. MBS item details). MBS items 701- 707 can be claimed for health Data in Figure 3 and 4 may indicate assessments for seven specified an increase in service counts and target groups, including patients practitioners performing health aged 40-49 years who are at risk assessments. It may also indicate of developing diabetes as assessed no increase in the number of by the Type 2 Diabetes Risk annual cycles of care being Assessment Tool. MBS item 715 performed and no increase in the can be claimed for health numbers of practitioners assessments for Aboriginal people. performing an annual cycle of care. The diabetes annual cycle includes 2012 2013 Figure 3. Number of Medicare item health assessments and annual diabetes cycle of care, 2014 Central Coast, 2012-15 2015 12,000 10,000 8,000 Service Count 6,000 4,000 2,000 0 701 703 705 707 715 annual cycle of care Source: Australian Government Department Medicare item of Health, Medicare Benefits Schedule Data Diabetes Care on the Central Coast 11
2012 2013 Figure 4. Number of GPs claiming Medicare health assessment and annual cycle of care, 2014 Central Coast, 2012-15 2015 250 200 Number of GPs’ 150 100 50 0 701 703 705 707 715 annual cycle of care Source: Australian Government Department of Health, Medicare Benefits Schedule Data Medicare item 12
2.3 Diabetes in Secondary and Tertiary care Hospitalisations where diabetes is the main cause There were 742 hospitalisations due to diabetes (main reason for admission) among Central Coast residents in 2015-163. This represents a rate of hospitalisation per 100,000 population per year of 225 for males (432 admissions) and 162 for females (310 admissions). The same rates for NSW in 2015-16 were 168 per 100,000 for males and 133 per 100,000 for females. Figure 5 shows the Central Coast rates for persons with diabetes as a principal diagnosis were above the state average. Figure 5. Diabetes as a principal diagnosis, hospitalisations, Central Coast LHD, NSW 2010-11 to 2015-16 250 Central Coast NSW 200 Rate per 100,000 population 150 100 50 0 2010-11 2011-12 2012-13 2013-14 2014-15 2015-16 Source: NSW Combined Admitted Patient Epidemiology Data and ABS population estimates (SAPHaRI). Centre for Epidemiology and Evidence, NSW Ministry of Health. Accessed 4.9.17 Diabetes Care on the Central Coast 13
Amputations due to diabetes From 2012 to 2016, among Central Coast residents and due to diabetes, there were on average, per year: • 11 below knee amputations • 62 toe/foot/ankle amputations, and • 6 above knee amputations. The rates of amputations were about 16%, 16%, and 37% higher than the state average for below knee, toe/foot/ankle, and above knee amputations respectively (though not statistically significantly different, as some of these numbers are relatively small). Figure 6. Amputations due to diabetes, hospitalisations by site of amputation: Below the knee, Comparison by LHD, NSW, 2013-16 5 Rate per 100,000 population 4.5 4 3.5 3 2.5 2 1.5 1 0.5 0 s t ey t ee ey W s ey ey W en d W ey as as ain HD an NS NS dn NS dn dg dn dn dn av Co Co nt gl lL lh Sy Sy Sy Sy bi Sy n En rn rn ou rth al Al oa m er he r rn te rn rn n M nt ru w rth No Sh er es e te te ut Ne Ce ue ur st rth No W es es ra So id Ea M Bl W W er No ar M an h nt w h ut Illa Hu ut pe So So Ne Figure 7. Amputations due to diabetes, hospitalisations by site of amputation: Toe/foot/ ankle, Comparison by LHD, NSW 2013-2016 20 Rate per 100,000 population 18 16 14 12 10 8 6 4 2 0 s t ey t ee ey W s ey ey W en d W ey as as ain HD an NS NS dn NS dn dg dn dn dn av Co Co nt gl lL lh Sy Sy Sy Sy bi Sy n En rn rn ou rth al Al oa m er he r rn te rn rn n M nt ru w rth No Sh er es e te te ut Ne Ce ue ur st rth No W es es ra So id Ea M Bl W W er No ar M an h nt w h ut Illa Hu ut pe So So Ne Source: NSW Combined Admitted Patient Epidemiology Data and ABS population estimates (SAPHaRI). Centre for Epidemiology and Evidence, NSW Ministry of Health. Accessed 4.9.17 14
3. Diabetes Service Profile on the Central Coast 3.1 Prevention services There are many organisations on Healthy Eating Active Living: the Other organisations involved in and the Central Coast that implement health promotion service has a supporting health promotion strategies to address the lifestyle strong commitment to promoting initiatives include PHN, Yerin – risk factors for diabetes and other healthy eating and active living Eleanor Duncan Aboriginal Health chronic diseases. Examples include across the Central Coast Centre, CC Council, NSW implementing health promotion community. There is enhanced Department of Education and policies and practices in the focus on achieving the NSW Communities, Broken Bay Diocese workplace (no smoking worksite Premier’s Priority (2015) of Catholic Education Commission, and Nicotine Replacement Therapy reducing overweight and obesity Association of Independent (NRT) for those attempting to quit, rates in children by 5% over 10 Schools, NSW Ministry of Health, healthy food at staff cafeteria), years. The Central Coast Healthy Office of Preventive Health, Healthy providing structural support for Eating & Active Living (HEAL) Kids Association, CC Primary good health (Council shared Delivery Plan also addresses adult School Principals and teachers, pathways) and running programs overweight and obesity at a local Central Coast School Education that encourage good health level and supports the NSW HEAL Region, early childhood education (exercise classes for older adults). Strategy 2013-2018. Key actions and care services, TAFE NSW, Early include: Childhood Training and Resource The Central Coast Local Health Centre, WorkCover (Gosford), NSW District (LHD) Health Promotion • Develop, implement and Business Chamber (CC), Local Service is a key service using a evaluate a Central Coast HEAL Chambers of Commerce, private population health approach and Delivery Plan that engages and gyms and pools, walking groups, working in partnership with others mobilises relevant stakeholders Cancer Council NSW, Heart to improve the health of the across sectors. Foundation NSW, Diabetes NSW. Central Coast community. • Continue the tailored local delivery of state-wide programs Work led by the Health Promotion and supporting strategies that Service to address chronic disease promote healthy eating and risk factors includes: active living for children and adults, such as Munch and Move, Live Life Well at School, Go4Fun and referral to the Get Healthy Service. • Continue advocacy for health promoting environments by working with planning agencies to ensure population health is prioritised. • Integrate and emphasise physical activity in all appropriate projects. Diabetes Care on the Central Coast 15
3.2 Primary Care services General Practices In 2016 the Central Coast had an estimated population of 333,11912. There were approximately 447 GPs, with a total full service equivalent (37.5 working hours per week) of 281 across 106 general practices (PHN). In 2015, the rate of supply of general practitioners in Australia was 114 per 100,00013 based on full-time equivalent defined as working 40 hours per week. Central Coast has less than the national average of GPs per 100,000 population. In 2016 there were approximately 228 Practice Nurses on the Central Coast working in 73 general practices (PHN). Table 2. General Practice’s in Gosford, Wyong and Central Coast, 2016 Central Gosford Wyong Coast General Practices 54 52 106 GP total 237 210 447 GP full service equivalent 163.5 117.5 281 GP FSE per 100,000 population 94 73.8 Registrar 29 12 41 Source: Estimates from HNECC PHN ChilliDB workforce data, Nov 2016 Note: GP hours are missing from two practices in Gosford and seven in Wyong so number FSE hours and FSE per 100,000 would be higher, provided by HNECC PHN Preliminary GP and Registrar numbers only. Headcounts only, does not account for GPs or Registrars who may work in more than one general practice Allied Health Services Allied Health information was most recently collated by Central Coast Medicare Local in mid-2015 and should be used with caution. Allied Health professionals employed at LHD and Gosford Private Hospital are not included here. Data gives an indication of relative workforces in 2015. Table 3: Allied Health professionals in private practice and service in Gosford, Wyong and Central Coast, 2015 Central Health Professionals /Services Gosford Wyong Coast Podiatrists 41 38 79 Pharmacies 36 37 73 Pharmacists 63 58 121 Diabetes Educators 3 Dietitians 26 Exercise physiologists 29 Source: Information from CC Medicare Local collected in mid-2015 and no longer updated 16
Yerin – Eleanor Duncan Aboriginal Hunter New England Central Coast Primary Health Network Health Centre The PHN is a not-for-profit • PENCAT feedback to practices; Yerin – Eleanor Duncan Aboriginal organisation funded by the summary of practice activity and Health Centre. (Yerin) is a Commonwealth Government to patient outcomes provided to community controlled integrated improve the efficiency and practices to assist with primary health care service located effectiveness of the primary health identifying areas of need at Wyong and Gosford on the NSW care system. • Hunter Alliance Diabetes Central Coast, Darkinyung country. Integration Project; high risk Yerin – Eleanor Duncan Aboriginal The PHN works in collaboration diabetes patients attend a case Health Centre is the only with its partners and stakeholders conference at the GP practice community controlled Aboriginal to deliver better health outcomes. with at least a GP, practice nurse, Health Service on the Central Diabetes management forms part endocrinologist and diabetes Coast. Services provided in relation of this vision. Key initiatives educator in attendance. to diabetes include: currently in place that support Education for GPs and practice diabetes management and care nurses also takes place. Six and • clinical services by GPs, practice coordination include: 12 month outcomes are nurses and Aboriginal health favourable and a similar project practitioners, • HealthPathways; an online is being considered for piloting health information portal for GPs • a Medical Outreach Indigenous on the Central Coast. and other primary health Chronic Disease Program which clinicians comprises of monthly services including a visiting • Patient Info; a website with endocrinologist, diabetes trusted health information likely educator, podiatrist and dietitian, to be helpful for patients with diagnosed conditions • an optometrist visiting one other day a fortnight, • Practice Support and Development; this team provides • an Integrated Team Care service direct support to general that assists clients with chronic practices in areas such as health issues to receive the Practice Management, health care they need, such as Education/Professional organising doctors’ Development, Digital Health, appointments, transport to and Quality Improvement/ from appointments, following up Accreditation, Chronic Disease with clients on their health plan, Management, Preventative etc. Health, Workforce Support, Immunisation, Practice data extraction and analysis • Better health care planning for our region • Practice data analysis; collective de-identified practice data analysed to assist with identifying area needs, service gaps and enhance service provision Diabetes Care on the Central Coast 17
3.3 Secondary and Tertiary Care services Members of the LHD diabetes specialist team include: • 1.5 FTE LHD endocrinologists, approximately 50% of time diabetes related • 7 FTE LHD diabetes educators • 2.2 FTE LHD dieticians diabetes related • 8.2 FTE LHD podiatrists, approximately 90% of time diabetes-related In total there are seven endocrinologists working publicly and/or privately on the Central Coast. Private allied health professionals have been included under Primary Care Services. A summary of LHD services available for diabetes clients is presented in Table 4. Table 4. Diabetes services available for diabetes clients Diabetes services Endo D Ed Diet SW Pod Inpatient services x x x X x Paediatric Outpatient Appointments Paed Endo x x x Paediatric Diabetes Clinic Paed Endo X X x Team T1 Adolescent Insulin Adj and CHO Count x x Paediatric School visits x Antenatal Endocrine Clinic x x x GDM Group X x Antenatal Insulin Stabilisation Program x Young Persons Transition Clinic X X X x Insulin Stabilisation Program x Type 1 Group x x Type 2 Group x x Adult Outpatients Appointments x x x x DM Outpatient Clinic; DEd and Diet x x DM Outpatient Clinic; Diet only x T1 Insulin Pump Clinic x x x x Continuous Glucose Monitoring Service Clinic x x Complications Clinic x x x x Foot Wound Clinic x Diabetes Foot Assessment Clinic x High Risk Foot Clinic x 48 hr follow up x Home Visits x External Education x Staff Diabetes Education x National Aborigines and Islanders Day x x x x x Observance Committee (NAIDOC) 18
Additional diabetes related LHD services Nunyara Aboriginal Health Unit provides a range of health services for Aboriginal and Torres Strait Islander people. The Chronic Care Manager and CNS Chronic Care for Aboriginal People implement the Chronic Care program which includes but is not limited to following up patients who have been admitted to hospital and identified as having one or more chronic disease/s, and coordinating an annual NAIDOC celebration including an extensive health check. The Chronic Care self-management program consists of community voluntary leaders running the Stanford Better Health Management Program at various Central Coast locations for community members with chronic disease/s. Ongoing and Complex Care supports a CNS2 within Diabetes for Chronic Disease Management (CDM). Diabetes is one of five of the targeted diagnostic areas for the selection of CDM patients. These complex patients may be offered case management or coaching within the work of care coordination and complex care. Diabetes Care on the Central Coast 19
4. The Central Coast Approach to Diabetes Care The vision for diabetes care on the The LHD, PHN and Yerin – Eleanor A proposed Diabetes Model of Central Coast is for the community, Duncan Aboriginal Health Centre in Care to be adopted and a Diabetes consumers and health professionals consultation with other service Plan to be implemented over the to work collaboratively to prevent providers and consumers have next five years have been diabetes and achieve better health worked collaboratively to develop a developed. Both the model and outcomes for those with diabetes. coordinated and integrated plan range from diabetes approach to diabetes care. The prevention through to The incidence of diabetes and planning process identified service management of complications in diabetes risk factors is high and gaps and opportunities, and the community through to the increasing. A Central Coast wide, consumer and community needs. tertiary setting. whole-of-population and whole-of- The Australian National Diabetes care approach is required to Strategy 2016-202014 was used as address this concern. a framework to develop this local plan. Other regional, state and international approaches have also been considered15-20. 4.1 Central Coast Diabetes Model of Care The proposed Central Coast The model promotes: Diabetes Model of Care (graphic follows) provides a framework for a • Consumer centred care with • Secondary and tertiary setting; coordinated and integrated particular consideration for diabetes specialists provide care approach to diabetes prevention Aboriginal and Torres Strait and for complex diabetes and and management to achieve better other marginalised people to support to primay care health outcomes for our reduce inequalities in care. providers. community. The model includes • Community setting; prevention • Further development and key elements of care in the and health promotion to implementation of this Model of community, primary care, and improve the health of the whole Care falls within the scope of this secondary and tertiary care community and may focus on plan. settings and acknowledges that identified target groups. • This model acknowledges that care overlaps between settings. • Primary care setting; general there is variability among practice has the central role in practitioners and a need for diabetes identification and some flexibility; some GPs may management. Specialists assist wish to extend their role into with complex diabetes and more complex care, others may provide health professional need greater support for their education updates. Primary patients. Health Network provide regional and practice specific data analysis and support practice development. 20
Diabetes Model of Care Community Setting 1. Prevention and Health Promotion a. Building healthy public policy b. Supportive environments c. Promoting healthy lifestyle d. Partnership and planning with services, organisations, consumers and communities 2. Consumer and community engagement: Across all settings 3. Reduction of health inequalities: Primary Care Setting Target Aboriginal & Torres Strait 4. Primary Care: General health and wellbeing Islander people and other marginalised people 5. Primary Care relating specifically to diabetes: “The Necessary Nine” Secondary & Tertiary a. Screening Care Setting b. Prevention c. Regular reviews / surveillance 7. Complex Care: “The Super Seven” d. Prescribing a. In-patient care e. Insulin b. Insulin pumps f. Patient & carer self-management c. End stage renal education d. High risk foot g. Cardiovascular e. Children/ adolescents h. Housebound / care homes f. Pregnancy i. Outcomes / audit g. Type 1 / rare / complex / unstable 6. Specialist support for Primary Care Adapted from: Leicestershire Clinical Commissioning Groups Diabetes Care on the Central Coast 21
5. Central Coast Diabetes Plan The Central Coast Diabetes Plan Priority Areas (pp 23-40) identifies 13 priority areas across the community, All Settings primary care, secondary and 1 Enhance consumer involvement tertiary settings. 2 Align workforce capacity with community need Priority areas across all settings 3 Further develop and enhance utility of information and include enhanced consumer communication technology involvement, aligning workforce capacity with community need, Community Setting and use of information and 4 Promote healthy eating and active living across the Central Coast communication technology. These Primary Care Setting are essential for coordinated, integrated and best practice 5 Maximise the early detection of diabetes diabetes care. 6 Strengthen primary care management of diabetes and local care pathways Prevention and health promotion priority areas include promoting 7 Implement a consistent approach to patients diabetes education and healthy living and active living in self-management the community. 8 Strengthen and expand specialist support for Primary Care Early detection and optimal 9 Reduce the impact of diabetes among Aboriginal and Torres Strait diabetes management takes place Islander people predominantly in general practice Secondary and Tertiary Care Setting with support from diabetes specialists. Priority actions focus on 10 Further develop and enhance diabetes services to better outcomes early detection, self-management, for people with newly diagnosed or complex diabetes marginalised and priority groups, 11 Reduce the impact of diabetes among Aboriginal and Torres Strait and best practice diabetes Islander people management. 12 Reduce the impact of pre-existing and gestational diabetes in Enhanced services are provided by pregnancy the diabetes specialist team to 13 Reduce the impact of diabetes among children with diabetes, older manage complex diabetes, support Australians, and those with mental health and wellbeing issues general practices to manage complex patients and to provide education updates to health professionals. 22
5.2 Actions All Settings LHD, PHN and Yerin – Eleanor Duncan Aboriginal Health Centre will work collaboratively to provide evidence-based, comprehensive, accessible, efficient and coordinated diabetes prevention and management services for all people on the Central Coast reflective of community need. Key Priority Area 1: Enhance consumer involvement Service Actions Performance Indicators Responsible Timeframe 1.1 Engage existing avenues for Meetings with: consumer involvement in identifying CCLHD Community Diabetes Mar 2017, gaps, health planning and service Engagement Committee Advisory Group ongoing delivery including PHN and LHD Clinical Councils, PHN Central Coast CCLHD Clinical Council Jul 2017 Community Advisory Committee, HNECCPHN Clinical Council Oct 2017 LHD Consumer and Community HNECCPHN Community Aug 2017 Engagement Committee, PHN and Engagement Committee LHD Collaboration Unit GP Panel, Yerin – Eleanor Duncan Aboriginal CC GP Collaboration Unit Ongoing Health Centre’s men’s and women’s – GP Panel groups. Yerin – Eleanor Duncan Aboriginal Ongoing Health Centre’s men’s and women’s groups 1.2 Identify and implement best (a) Consumer(s) on Diabetes Diabetes Jun 2017, ongoing consumer feedback mechanisms for Advisory Group Advisory Group diabetes services and programs (b) ACI Patient Journey LHD Public Oct 2017 including but not limited to: – Diabetes Education Centre Health/Int Care (a) consumers on Diabetes (b) Existing service evaluation/ Ongoing Advisory Group feedback Service managers (b) feedback from people attending in each diabetes services organisation (c) CCLHD survey and report, Oct 2017 (c) survey LHD employees with with recommendations LHD Public diabetes and those with family / Health/Int Care/ friends with diabetes Yerin – Eleanor Duncan Aboriginal Health Centre Diabetes Care on the Central Coast 23
Key Priority Area 2: Align workforce capacity with community need Service Actions Performance Indicators Responsible Timeframe 2.1 Analysis of service use data, Population need identified and LHD Planning/ 2017-18 population health data, best reported Public Health/ practice guidelines to define/ Performance, estimate community need. PHN, Yerin – Eleanor Duncan Aboriginal Health Centre 2.2 Determine workforce capacity, Workforce capacity report LHD Workforce/ 2017-18 and how they relate to the Central Planning/Public Coast population’s needs – across Health, Diabetes LHD, PHN, General Practice and Services, Yerin – Yerin – Eleanor Duncan Aboriginal Eleanor Duncan Health Centre’s range of health Aboriginal Health workers Centre, PHN 2.3 Identify areas of need and Workforce analysis report and Workforce/ 2018 actions required for the Central recommendations Planning/Public Coast health workforce, including Health/Diabetes but not limited to diabetes Services, PHN, education for health workers in Yerin – Eleanor hospital and community settings; Duncan Aboriginal clinical care options for people with Health Centre type 1 and type 2 diabetes, and higher risk populations. Identify the types of skills, and workforce required to deliver the Diabetes Model of Care for the Central Coast population. 2.4 Explore options to increase (a) private providers included (a) PHN, LHD 2018 access to diabetes services in the in HealthPathways community, e.g. community health, (b) roles of private providers (b) PHN community pharmacies, private identified and supported allied health providers. 24
Key Priority Area 3: Further develop and enhance utility of information and communication technology Service Actions Performance Indicators Responsible Timeframe 3.1 Fully utilise existing information Strategies implemented and and communication systems such as activity monitored eMR, CHOC, ComCare, Argus, MHR and PENCAT to deliver better clinical and operational performance and support improved patient outcomes and experience (a) Develop ComCare to receive and (a) ComCare receives electronic (a) External TBA send messages directly from and to faxes. Receiving and sending out provider/LHD primary care via secure messaging Argus messages in development. ComCare (Argus) (b) ComCare to use patient (b) Exists for new patients. (b) Ongoing demographic data from eMR Else manual updates (c) Enable patients notes to be (c) Functionality now in place (c) LHD ComCare/ July 2017 shared between CHOC, ComCare eMR support and eMR teams (d) Investigate the possibility to (d) Assess functionality of Audit 4, (d) LHD Diabetes 2018 enable interface between Audit 4 connectivity services and CHOC, ComCare and eMR (e) eMR referral to Diabetes (e) Feasible. For consideration. (e) LHD ComCare/ Dec 2017 Educator (via ComCare) eMR teams (f) Pilot GPs sending health (f) Feasible. In progress. (f) LHD Int Care 2018 summaries directly to ED (g) Investigate the possibility for the (g) Functional requirements (g) LHD Diabetes 2018/19 Citrix platform to enable software to be determined. services, NSW changes rather than making changes Health State wide to individual computers. service desk (h) Discharge summaries from (h) Update from Obstetrix (h) LHD Dec 2017 maternity to GPs eMaternity (i) Discharge summaries from (i) Update from relevant working (i) LHD eMR team 2019 hospital to residential aged care group facilities (j) Promote use of My Health (j) Request update from PHN (j) PHN 2018 Records (k) SMS to patients for (i) (k) (i) Feasible. (k) LHD ComCare/ k.i) 2018 appointment reminders and (ii) For implementation. eMR teams capacity to respond (k) (ii) Assess feasibility k.ii) 2019 Diabetes Care on the Central Coast 25
Service Actions Performance Indicators Responsible Timeframe 3.2 Investigation and investment Emerging technologies LHD IT, PHN into emerging technologies identified and implemented including but not limited to (a) 3D (a) For review (a) LHD Podiatry 2020 scanning and printing for diabetes wound orthoses, (b) electronic (b) patient portal – not yet (b) LHD ComCare 2020/21 appointment system for patients, available (c) e-referrals (Argus), (d) (c) feasible – review business (c) LHD 2018 telehealth (e) use of apps (f) social model media. Modifications also required (d) feasibility on Central Coast, (d) PHN 2018/19 to better support Model of Care. MBS item nos (e) assess functionality of apps (e) LHD Diabetes 2019 Services 26
Community Setting A population approach is used to prevent people developing type 2 diabetes. Programs are aimed at targeted populations rather than individuals and are delivered in partnership with other services, organisations and communities. Working in partnership ensures that health promotion practices are embedded into other settings, other professionals are up skilled in health promotion and programs are subsequently more sustainable. There is enhanced focus on achieving the NSW Premier’s Priority (2015) of reducing overweight and obesity rates in children by 5% over 10 years. Key Priority Area 4: Promote healthy eating and active living Service Actions Performance Indicators Responsible Timeframe 4.1 With Dept. Premier and Cabinet, Sub-committee had first meeting LHD Health 2017 - 2025 lead on the development of a June 2017. Promotion, Dept. whole-of-government regional Premier and Cross-agency action plan approach to address childhood Cabinet completed and agreed upon at overweight and obesity on the June 2017 meeting. For annual Central Coast. Establish Central progress report to NSW Health. Coast Regional Leadership Executive Sub-committee for cross- agency collaboration on reducing obesity and promoting healthy eating and active living. Develop cross-agency action plan to address childhood overweight and obesity in the region 4.2 Enhanced focus on tailored local LHD Health Ongoing delivery of state-wide programs Promotion reports promoting healthy eating and on each of these active living in early childcare programs settings, schools, community sports, quarterly to NSW workplaces and community settings Health (a) foster healthy habits in children (a) Support provided to, and and young people at school ‘uptake measures’ for 79 primary schools, 29 high schools (b) provide a supportive (b) Measures of capacity for 127 environment for healthy eating, early childhood education and physical activity and reducing small care services screen recreation for children in early childcare settings (c) increase referrals to Get Healthy (c) Annual report provided to LHD Service and Go4Fun for Get Healthy Service (including tailored Type 2 Diabetes Prevention program and Get Healthy in Pregnancy) including number of referrals, weight loss and waist circumference. Target for 2017-18, 383 referrals by Health Professionals; target for 2017-18 Go4Fun to deliver 12 programs Diabetes Care on the Central Coast 27
Service Actions Performance Indicators Responsible Timeframe 4.3 Advocate for health promoting Develop planning strategies LHD Health Ongoing environments and provide for safe walking, cycling, public Promotion/Public submissions to planning agencies transport and chilled water Health Unit and development processes to stations ensure population health is Implement healthier food and prioritised. Promote environments drink policy initiative for staff and LHD 2017, ongoing that support healthy eating and visitors in NSW Health facilities. active living. 28
Primary Care Setting Around one in five adults with diabetes do not know they have the condition21. If left undiagnosed or poorly managed, diabetes can lead to coronary artery disease, stroke, kidney failure, limb amputations and blindness. Early detection and optimal management of diabetes can improve access to necessary care and reduce complications, improving quality of life among people with diabetes and reduce the escalating burden on health resources. General practice has the central role in type 2 diabetes management across the spectrum, from identifying those at risk right through to caring for patients at the end of life2, and is supported by specialty services. Key Priority Area 5: Maximise the early detection of diabetes Service Actions Performance Indicators Responsible Timeframe 5.1 Address risk factors for disease, (c) Annual report provided to LHD LHD Health 2017, ongoing in the whole population and for for Get Healthy Service including Promotion people with diabetes by extended referrals and weight loss and waist promotion of Get Healthy Service circumference. Target for 2017-18, utilisation to health professionals 383 referrals by Health Professionals 5.2 Promote strategies aimed at screening and early detection of people at risk of developing diabetes (a) implementation, evaluation and (a) ‘Over 40? Check Your Risk!’ LHD Health 2017-18 review the diabetes prevention implemented Promotion/Public campaign, ‘Over 40? Check Your Health, PHN, Yerin # hits on Health Promotion Check Risk!’ (a program that includes – Eleanor Duncan Your Risk site education about diabetes risk Aboriginal Health factors and the promotion of # Health Assessments (MBS) via Centre 2018 diabetes screening by GPs) PENCAT/MBS (b) Assess feasibility of trial to Review with recommendations LHD Public undertake BSL on every patient to (b) Brief report on feasibility, 2018-19 Health/Health ED or admitted to hospital, expected outcomes and Promotion including impact for services recommendations providing follow-up and benefits LHD Diabetes Advisory Group Diabetes Care on the Central Coast 29
Key Priority Area 6: Strengthen primary care management and local care pathways Service Actions Performance Indicators Responsible Timeframe 6.1 Build on the Diabetes Model of GP and practice nurse education – Diabetes Advisory May18 ongoing Care (from this plan) to consolidate annual forum Group, PHN roles and responsibilities of primary Range of HealthPathways exist PHN Ongoing care providers, and implement for diabetes care strategies to support primary care Number of times accessed, providers. Including education for unique users general practitioners and practice nurses, use of care guidelines Review of pathways every 2 years PHN Ongoing (HealthPathways), referral pathways Develop mechanisms to monitor PHN/Diabetes 2019-20 and options to access diabetes referrals, specialist feedback and Advisory Group specialist advice and transition GP feedback, appropriateness services. 6.2 Support quality improvement processes in general practice, including mechanisms for primary care providers to use their clinical data to compare with peers and care guidelines. (a) PHN practice support team to (a) Number of practices receiving PHN Annually provide clinical data feedback to clinical feedback report GPs % of GPs/patients achieving care PHN Annually guidelines (b) PHN assisting/ training GPs to (b) Number of practices using PHN Annually use clinical software to generate recall/reminders recalls and reminders, pro-actively Number of practices prioritising PHN Annually manage people with complex issues complex cases 30
Key Priority Area 7: Implement a consistent approach to diabetes education and self-management Service Actions Performance Indicators Responsible Timeframe 7.1 Continue to implement and Number of Stanford program LHD Chronic Care Annually promote the various health self- attendees with diabetes Self Management management and support Get Healthy Service Diabetes – LHD Health Annually programs offered on the Central activity report Promotion Coast including but not limited to the Stanford Better Health LHD Diabetes and Nutrition LHD Diabetes Annually Management program offered by education Services/Nutrition LHD and run by community Services volunteers, Get Healthy Service Other peer support programs, LHD,PHN,Yerin – Annually Diabetes offered by NSW Health, including Diabetes NSW Eleanor Duncan peer support programs run by volunteers and community led Aboriginal Health Diabetes NSW volunteers, Aunty groups Centre, Diabetes Jean’s Chronic Disease Outreach NSW, CC Primary Program run by CCPC, Integrated Care Team Care program run by Yerin – Diabetes Advisory Eleanor Duncan Aboriginal Health Group Centre, and web-based patient education and self-management programs, e.g. patientinfo 7.2 Ensure education is provided to (a) Survey general practices and PHN 2017 patients and their carer (where private allied health providers re applicable) in a form that is roles, perceived needs accessible and relevant to individual (b) Survey community nurses as LHD, PHN 2017 goals. Review the capacity of above community nurses, practice nurses, Aboriginal Health workers/ (c) Incorporate these findings into Diabetes Services, 2018 Practitioners and GPs and what delivery of diabetes education on PHN roles they have in providing and Central Coast reinforcing diabetes education and key messages, including people newly diagnosed and after hours services. Consider redistributing some aspects of diabetes education to different roles. This may assist credentialed diabetes educators taking on expanded roles in diabetes management, e.g. insulin stabilisation. Diabetes Care on the Central Coast 31
Key Priority Area 8: Strengthen and expand specialist support for Primary Care Service Actions Performance Indicators Responsible Timeframe 8.1 Provide education and support (a) Needs assessment of general PHN 2018 for general practice to deliver the practice in relation to ‘Necessary Model of Care. Nine’ functions within the Model of Care (b) Content and locality targeted PHN, LHD, Yerin – 2017-18 and education and specialist support Eleanor Duncan ongoing (diabetes educators, Aboriginal Health endocrinologists) Centre 8.2 Develop mechanisms for GPs to access specialist support for their patients and carers (a) telephone advice for immediate (a) Implementation/promotion LHD, PHN Oct 2017 issues of telephone advice (b) review GP needs for outpatient (b,c) LHD Outpatient clinic options LHD 2018 clinic support in terms of timeliness to be informed by GP needs and nature of consultations as part assessment (10.3) of needs assessment (10.3) (c) incorporate GP needs into types and timing of outpatient clinics (d) GP, endocrinologist, diabetes (d) Trial with 3 practices on LHD, PHN, Yerin – 2018/19 educator shared consultation in the Central Coast (10.1) Eleanor Duncan general practice setting (Hunter Aboriginal Health (e) Monitor appropriateness 2018 model) (10.1) Centre of referrals LHD, PHN 8.3 Develop strategies to support Business case for case PHN 2018 GPs caring for young people with conferencing/telehealth Type 1 diabetes. Involves GP, Service model developed PHN, LHD 2018-19 paediatric endocrinologist, and trialled paediatrician, endocrinologist, diabetes educator, practice nurse. Monitor person, carer, health PHN 2018-19 Consider shared care arrangements, worker experience of care telehealth, case conferencing, integrated care model (13.1) 32
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