12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...

 
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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
TOGETHER TOWARDS TOMORROW

12TH INTERNATIONAL
DONOR REGISTRY CONFERENCE
AND WMDA WORKING GROUP MEETINGS

JUNE 26–30, 2018
MUNICH, GERMANY
www.wmdamunich2018.com
12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
Content

                                                                                      Welcome                          2

                                                                                      General Information              3

                                                                                      Floor Plan                       7

                                                                                      Program Overview

                                                                                         WMDA                          8

                                                                                         ZKRD | IDRC                   10

                                                                                      Scientific Program ZKRD | IDRC   12

                                                                                      Social Events                    18

                                                                                      Company Events                   22

HLA TYPING
                                                                                      Poster Sessions                  24

                                                                                      Supporters                       30

                                                                                      Exhibition Plan                  32

  OPTIMAL PROFILE @ MINIMUM COST

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SERVICE FOR REGISTRIES and
                                                               FO GIST
RESELLER OF LABORATORY SERVICES                                 RE

                                                               at our booth (No. 9)                                         1
ready to use Sample-Collection-Kits available
12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
Welcome                                                                                                                        General Information

                                                                                                                                Local Organizing Committee

    Dear Colleagues and Friends,                                                                                                  ZKRD
    It is a great pleasure for me to welcome you to the 12th International Donor Registry Conference (IDRC) and                 Zentrales Knochenmarkspender-Register für die Bundesrepublik Deutschland
    WMDA Working Group Meetings in Munich. It is a great honor for the German National Bone Marrow Donor                        gemeinnützige Gesellschaft mbH
    Registry (ZKRD) to host this meeting for the second time in Germany after 18 years.                                         Helmholtzstraße 10 | DE - 89081 Ulm
    The conference slogan “Together Towards Tomorrow” reflects the answer of our community to the challenges                    www.zkrd.de
    our field is facing in the light of rapid changes in science, technology and clinical practice. Carefully selected talks
    will stimulate lively discussions on the impact of emerging developments on long-standing structures, processes               Carlheinz Müller      Hans-Peter Eberhard   Joachim Neller   Annette Rasche   Volker Rump    Sonja Schlegel
    and business conditions, and turn this IDRC into a kick-off meeting for shaping our future. The program on the
    following pages will give you an overview of this conference and its main topics. Most renowned international
    speakers will represent the broad range of disciplines involved, including clinical aspects, laboratory practice,           Conference Office                                         Conference Venue
    ethics and registry coordination.
    The location, the “Alte Kongresshalle”, mirrors the conference motto well. Built in 1953 in a retro-futuristic style,       event lab. GmbH                                           Alte Kongresshalle München
    it was at that time the largest hall of its kind. Since then the outstanding venue has been used as a center for
                                                                                                                                Dufourstr. 15 | DE - 04107 Leipzig                        Theresienhöhe 15 | DE - 80339 München
    public and private events and underwent extensive restoration and technical modernization to continue to meet
    the needs of a modern conference center. Its central location amid points of interest in the city center of Munich          Tel.: 0049 341 240596 50
    make it even more attractive. Munich itself offers its visitors an abundance of art, culture and architecture plus a
    lot more activities in its surrounding. We hope you will have the chance to experience some of the city’s
    “Gemütlichkeit” at the various receptions and during your free time.                                                        WMDA-Scientific Committee for IDRC 2018
    We have done our very best to offer you a unique package with an elaborate scientific program complemented
    by attractive social events, so that you will leave full of ideas, energy and motivation to tackle the challenges             Salmah Ahmed                           Dr. Irina Evseeva                     Lydia Foeken
    which lie ahead.                                                                                                            Anthony Nolan                          Anthony Nolan                         WMDA
    The ZKRD extends a warm welcome, and we hope you will enjoy your stay in Munich,                                            London, Great Britain                  London, Great Britain                 Leiden, The Netherlands
    the cosmopolitan city with heart.
                                                                                                                                  Susana Gomez, PhD                      Machteld Oudshoorn, PhD               Matthew Prestegaard
                                                                                                                                Banc de Sang i Teixits                 Leiden University Medical Center      CIBMTR
                                                                                                                                Barcelona, Spain                       and Matchis Foundation                Minneapolis, USA
                                                                                                                                                                       Leiden, The Netherlands

                           Carlheinz Müller
                                                                                                                                  Dr. Nicoletta Sacchi                                                         Prof. Jeff Szer, MD
                           CEO ZKRD, WMDA President                                                                             IBMDR                                                                        The Royal Melbourne Hospital
                                                                                                                                Genoa, Italy                                                                 Melbourne, Australia

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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
General Information

    Local Scientific Committee                                                                                        Speakers

      Prof. Dr. Peter Bader               Prof. Dr. Jürgen Finke               Dr. Johannes Fischer                     Prof. Dr. Nicolaus Kröger              Dr. Neema Mayor, PhD                   Dena Mercer
    University Hospital                 University Hospital                  Institute for Transplantation            University Hospital                    Anthony Nolan                          Canadian Blood Services
    Frankfurt, Germany                  Freiburg, Germany                    Diagnostics and Cell Therapeutics        Hamburg, Germany                       London, Great Britain                  Ottawa, Canada
                                                                             Düsseldorf, Germany
                                                                                                                        Dr. Dr. Carlheinz Müller               Prof. Dr. Effie W. Petersdorf, MD      Matt Prestegaard
                                                                                                                      ZKRD                                   University of Washington               CIBMTR
      Prof. Dr. Nicolaus Kröger           Dr. Dr. Carlheinz Müller             PD Dr. Jannis Mytilineos               Ulm, Germany                           Seattle, United States                 Minneapolis, United States
    University Hospital                 ZKRD                                 Institute for Clinical Transfusion
    Hamburg, Germany                    Ulm, Germany                         Medicine and Immunogenetics                Dr. Dr. Alexander Schmidt              Dr. Rudolf Schwabe                     Dr. Julio Sincero
                                                                             Ulm, Germany                             DKMS                                   Swiss Blood Stem Cells                 Google Inc.
                                                                                                                      Tübingen, Germany                      Bern, Switzerland                      Frankfurt, Germany
      Dr. Dr. Alexander Schmidt           Prof. Dr. Hubert Schrezenmeier
    DKMS                                Institute for Clinical Transfusion                                              Betina Sørensen, MD                    Prof. Jeff Szer, MD                    David Turner, PhD
    Tübingen, Germany                   Medicine and Immunogenetics                                                   Danish Stem Cell Donors                The Royal Melbourne Hospital           Scottish National Blood
                                        Ulm, Germany                                                                  Aarhus, Denmark                        Melbourne, Australia                   Transfusion Service
                                                                                                                                                                                                    Edinburgh, Great Britain
                                                                                                                        Stefaan Van der Spiegel, MD
                                                                                                                      European Commission
    Speakers                                                                                                          Brussels, Belgium

      Prof. Dr. Steffen Augsberg          Jaap Jan Boelens, MD, PhD            Prof. Dr. Dirk Busch
    Giessen University                  University Medical Center Utrecht    Technical University of Munich           Certification                                               WIFI
    Giessen, Germany                    Utrecht, The Netherlands             Munich, Germany
                                                                                                                      Continuing Medical Education (CME) points are               There will be free WiFi on site for the attendants.
       Prof. Dr. Penelope Engel-Hills     Prof. Ritva Halila, MD, PhD          Associate Prof. Jill Hollenbach, PhD   requested from the Bayerische Landesärztekammer.            Access details can be found within your conference
    Cape Peninsula University           University of Helsinki               UCSF Weill Institute                                                                                 materials.
    of Technology                       Helsinki, Finland                    for Neurosciences
    Cape Town, South Africa                                                  San Francisco, United States
                                                                                                                      Combined Ticket for Public Transport
      Prof. Katherine Hsu, MD, PhD        Prof. Dr. Carolyn Hurley             Prof. Dr. Frank Kargl
    Memorial Sloan Kettering            Georgetown University                Ulm University
                                                                                                                      Your conference materials include a ticket for public transportation within the city center of Munich, which can
    Cancer Center                       Medical Center                       Ulm, Germany
                                                                                                                      be obtained at the registration desk of the conference venue.
    New York, United States             Rockville, United States

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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
General Information                                                                                                       Floorplan

    Opening Hours Registration Desk                              Industrial Exhibition                                         Singapore    London
                                                                                                                                                      Bern
    The registration desk will be located on the ground          The industrial exhibition will be located in the foyer
    floor of the Alte Kongresshalle.                             of the Alte Kongresshalle (ground floor).                                                   Paris

    The registration desk will be open as follows:               The exhibition opening hours are as follows:                                                        Sydney

    Tuesday June 26, 2018                  08:00 – 17:30         Thursday June 28, 2018            12:15 – 17:45
                                                                 (Welcome Reception at BMW Welt from 18:30)                                                                             Munich Big Hall
    Wednesday June 27, 2018                07:30 – 17:30
    Thursday June 28, 2018                 07:30 – 17:30         Friday June 29, 2018                    08:00 – 17:00

    Friday June 29, 2018                   08:00 – 17:00         Saturday June 30, 2018                  08:30 – 13:45
                                                                 (end of last Lunch Break)
    Saturday June 30, 2018                 08:30 – 15:30                                                                                   Tokyo
                                                                                                                                                   Oslo
                                                                                                                                                          Dublin
    Poster Exhibition                                                                                                                         Speakers Preview
                                                                                                                                                             Cape Town
    The poster exhibition will be open all-day on the conference days in the foyer of the first floor.                                                       WMDA-Office

    Posters can be mount on poster boards from Tuesday June 26, 2018 at 09:00 until Friday June 29, 2018 at                                                                Ulm
                                                                                                                                                                           LOC
    10:00. Posters must be removed until Saturday June 30, 2018 at 13:45. Left posters will be discarded.
    The following poster sessions are scheduled on Friday June 29, 2018. All presenters should be available for
    discussion and a 3-5 minute presentation during their assigned session.
    Poster Session 1     10:30 – 11:00
    Poster Session 2     15:30 – 16:00                                                                                                                                           Registration desk

                                                                                                                                                                                                     first floor
                                                                                                                                                                                                                   Wardrobe

                                                                                                                                                                                  Entrance

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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
PRELIMINARY PROGRAM WMDA | Tuesday | June 26, 2018                                                                        PRELIMINARY PROGRAM WMDA | Wednesday | June 27, 2018
WMDA Working Group Meetings                                                                                               WMDA Working Group Meetings

time       Room Munich Big Hall                       Room Singapore                        Room London                   time          Room Munich Big Hall                      Room Singapore                       Room London
08:00                                                                                                                     08:00
08:15                                                                                                                     08:15                                                                                         IT Standards
08:30                                                                                                                     08:30                                                                                         Carolyn Hurley
08:45                                                                                                                     08:45     Registries and Cord Blood WG
                                                                                                                                         Annette Rasche, Merry Duffy
09:00         Welcome Session                                                                                             09:00
09:15           Carlheinz Müller                                                                                          09:15                                          Consultation Data Use Agreement         WMDA Standards Committee
09:30                                                                                                                     09:30                                               Rob Hanson/Jorine Koenderman               Dena Mercer
                                                                                                                          09:45
09:45                                               Group European
         How to prepare for WMDA                                                            GRID Task Force               10:00
10:00                                            Medium-Sized Registries                                                                                                 Morning Break | supported by Ontime
10:15
         Qualification/Accreditation?                                                          David Townsley              10:15
                                                         Matti Korhonen
10:30
                 Pam Robinett                                                                                             10:30
                                                                                                                          10:45
10:45                                        Morning Break | supported by Ontime                                                      Medical WG and Workshop                                                      Joint Meeting to define
                                                                                                                          11:00                                               Data Protection Officers
11:00
                                                                                                                          11:15
                                                                                                                                      on SEAR/SPEAR Reporting                                                      Accreditation Pathway
                                                                                                                                                                                       Rob Hanson
11:15                                        EMDIS User and Technical Group                                               11:30
                                                                                                                                                Ann Woolfrey                                                            Carolyn Hurley
11:30                                            Anthony Montague, David Steiner
11:45
         How to prepare for WMDA                                                      Finance, Governance, Audit          11:45

12:00
         Qualification/Accreditation?                                                   & Fundraising Committee            12:00
                 Pam Robinett                                                                 Amy Ronneberg               12:15
12:15                                                     GEMS-ICT                                                        12:30
                                                                                                                                                                                          Lunch
12:30                                             Betina Sørensen/Jaap Dijkman                                            12:45
12:45
                                                                                                                          13:00
13:00
                                                                                                                          13:15
13:15                                                        Lunch
13:30
                                                                                                                          13:30             Ensuring Quality                    Search Coordinators
                                                                                                                          13:45         Bette Braem, Nicoletta Sacchi,                                               S(P)EAR Committee
13:45
                                               Cord Blood Bank Technology                                                 14:00
                                                                                                                                                                                     Workshop
                                                                                                                                        Carolyn Hurley, Dena Mercer,                                                       Jeff Szer
14:00           Data Privacy                                                                                                                                                   Annette Rasche, Irina Evseeva
14:15
                                                       Survey 2017                                                        14:15                Salmah Ahmed
                  Rob Hanson                                                                                              14:30
14:30
                                                   Susana Gomez, Merry Duffy
                                                                                                                          14:45
14:45
          How to implement GRID                                                              WMDA Board                   15:00
15:00                                                 Donor Suitability                      Carlheinz Müller                                                            Afternoon Break | supported by Ontime
15:15
           in your organisation?                                                                                          15:15
                                                         Hung-Sing Yang
15:30
                GRID Task Force                                                                                           15:30    Presentation of Award Winners
                                                                                                                          15:45    World Marrow Donor Day 2017                 Search Coordinators
15:45
                         Afternoon Break | supported by Ontime                                                            16:00                 Lydia Foeken
                                                                                                                                                                               Workshop Continued
16:00
                                                                                                                                                                               Annette Rasche, Irina Evseeva
16:15                                                                                                                     16:15
16:30    Optimising 'Search, Match &                                                                                      16:30
16:45
                  Connect'                           Reviewers of the                                                     16:45            WMDA General
17:00
                 Henny Braund                    Accreditation Programme                                                  17:00
                                                                                                                                         Membership Meeting
                                                         Carolyn Hurley                                                                       Carlheinz Müller
17:15                                                                                                                     17:15
17:30

18:30–                 ZKRD International Reception 25+1 | Max-Joseph-Saal | Residence Munich                             21:00–
21:00                                                                                                                     00:30                                              time:matters Evening Event
                                          more information can be found on page 18
                                                                                     Open          Working      Private   latest update: June 13, 2018
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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
PROGRAM IDRC
12th International Donor Registry Conference

time       Thursday | June 28, 2018               Friday | June 29, 2018        Saturday | June 30, 2018
               Munich Big Hall                       Munich Big Hall                Munich Big Hall
08:30
08:45
09:00    ZKRD ANNUAL CONFERENCE
09:15             (in German)                   CURRENT PERSPECTIVES
09:30                                            IN DONOR SELECTION
09:45
                                                                                 CURRENT HOT TOPICS
10:00
10:15
                  Coffee Break
10:30                                                 Coffee Break                    Coffee Break
10:45                                              Sponsored by Ontime             Sponsored by Ontime
11:00    ZKRD ANNUAL CONFERENCE
11:15             (in German)
11:30                                               INTERNATIONAL               TOWARDS INTEGRATION
11:45                                               SEARCH SYSTEMS              AND STANDARDIZATION

                                                                                                                  All loci. All platforms. All in a single tube.
12:00
12:15
12:30
12:45
                  Lunch Break
                                                                               Lunch Break + Lunch Symposium
13:00                                          Lunch Break + Lunch Symposium
                                                                                   Sponsored by LabCorp
13:15                                            Sponsored by Histogenetics
13:30                                                                                                             AllType™ NGS Assay on the Ion S5™ and
                                                                                                                  Illumina MiSeq® Systems
13:45
14:00
14:15                                                                           RESEARCH OF TODAY –
              OPENING SESSION                                                  ROUTINE OF TOMORROW
14:30
                                          LEGAL AND REGULATORY ISSUES                                             Next generation sequencing is now more convenient than ever.                                        Simple
14:45                                                                                                                                                                                                                 One PCR reaction per sample
15:00                                                                                                             One Lambda’s new AllType NGS assay delivers single tube amplification                               No amplicon pooling
15:15                                                                              CLOSING SESSION                for all eleven Class I and Class II loci, completely removing the need for
                                                                                                                                                                                                                      Fast
15:30            Coffee Break
                                                       Coffee Break
                                                                                                                  amplicon pooling. Samples move directly to library preparation and are
                                                                                                                                                                                                                      Sample prep in a single
15:45         Sponsored by Ontime                                                                                 prepared for sequencing in a single workday.                                                        workday
16:00
                                                                                                                                                                                                                      Results in less than 3 days
16:15
16:30
                                               SHIRLEY NOLAN LECTURE                                                                                                                                                  Flexible
16:45
            ETHICAL CHALLENGES                                                                                    Learn more at go.1lambda.com/ngslab                                                                 Run on your platform of choice
17:00
17:15
17:30          INTERMEZZO
18:30
            WELCOME RECEPTION
              at BMW Welt Munich                 CONFERENCE DINNER
21:00                                               at Augustiner Keller
00:00                                                                                                             Advancing Transplant Diagnostics Since 1984
                                                                                                                  For In Vitro Diagnostic Use (European Union Only). © 2018 Thermo Fisher Scientific Inc.
                                                                                                                  All rights reserved. All trademarks are property of Thermo Fisher Scientific and its subsidiaries
10                                                                                           ZKRD          IDRC   unless otherwise specified. MiSeq® is a registered trademark of Illumina®.                                                           11
12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
Wissenschaftliches Programm | ZKRD                                                                           Scientific Program | IDRC
Donnerstag | 28. Juni 2018 | Munich Big Hall                                                                 Thursday | June 28, 2018 | Munich Big Hall

     08:30–10:00    ZKRD ANNUAL CONFERENCE                                                                      13:30–15:30      OPENING SESSION
                    (in German)                                                                                                  Chair: Nicolaus Kröger (Hamburg, DE)
                    Begrüßung                                                                                   13:30            Welcome
                    Carlheinz Müller (Ulm)
                    Bericht und Aktuelles aus dem ZKRD                                                                           Bavarian Surprise
                    Carlheinz Müller (Ulm)                                                                      14:30            Keynote Lecture
                    GRID Standortbestimmung und Planung                                                                          Cell Engineering - Friend or Foe of Allogeneic Transplantation
                    Joachim Neller (Ulm), Annette Rasche (Ulm)                                                                   Dirk Busch (Munich, DE)

                    IT-Update                                                                                   15:30 — 16:00 Coffee Break
                    Hans-Georg Rist (Ulm), Andrea Timm (Ulm)
                                                                                                                               Sponsored by Ontime
                    Kommunikation im Work-Up-Prozess – Heute und morgen
                    Arnim Kathke (Ulm)
                                                                                                                16:00 — 17:30 ETHICAL CHALLENGES
     10:00–10:30    Kaffeepause                                                                                                Chair: Alexander Schmidt (Tübingen, DE), Suzanna van Walraven (Amsterdam, NL)
                                                                                                                16:00            Are Ethical Principles Global?
     10:30–12:00    ZKRD ANNUAL CONFERENCE                                                                                       Penelope Engel-Hills (Cape Town, ZA)
                    (in German)
                                                                                                                16:30            Patient Welfare or Donor Safety?
                    Die EU Datenschutz Grundverordnung – Einführung und Update                                                   Rudolf Schwabe (Bern, CH)
                    Hans-Peter Eberhard (Ulm)
                                                                                                                17:00            The Principle of the Prohibition of Financial Gain
                    Eigentum des Stammzellproduktes – Rechte, Pflichten, Verantwortung                                           Ritva Halila (Helsinki, FI)
                    Kyrill Makoski (Düsseldorf)
                    Auffällige Befunde – Wann, wie und worüber müssen / sollten Spender informiert werden?      17:30           INTERMEZZO
                    Peter Reinhardt (Ulm)
                                                                                                                                 Bavarian Artistics
     12:00–13:30    Mittagspause / Tagungsende
                                                                                                                18:30 — 21:00 WELCOME RECEPTION
                                                                                                                               at BMW Welt Munich | supported by Histogenetics
                                                                                                                               more information can be found on page 20

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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
Scientific Program | IDRC
Friday | June 29, 2018 | Munich Big Hall

     08:30 — 10:30 CURRENT PERSPECTIVES IN DONOR SELECTION                                   12:30 — 14:00 Lunch Break
                   Chair: Hubert Schrezenmeier (Ulm, DE), Bronwen Shaw (Milwaukee, US)                     Sponsored by Histogenetics
     08:30          HLA 20/20: Current Evidence and Where It Ends
                                                                                             12:45 — 13:45 LUNCH SYMPOSIUM
                    Effie Petersdorf (Seattle, US)
                                                                                                             Going Beyond HLA Typing:
     09:00          The Role of KIR in Donor Selection
                                                                                                             Exploring Complete Sequences of MHC and KIR Haplotypes
                    Katharine Hsu (New York, US)
                                                                                                             Nezih Cereb, Histogenetics
     09:30          Clinical Pathways for the Selection Donor and Stem Cell Source
                    Nicolaus Kröger (Hamburg, DE)                                            14:00 — 15:30 LEGAL AND REGULATORY ISSUES
                    Panel Discussion                                                                       Chair: Lydia Foeken (Leiden, NL), Danny Attias (London, UK)
     10:00
                                                                                             14:00           EU Legislation on Tissues and Cells – State of Play
     10:30 — 11:00 Coffee Break                                                                              Stefaan Van der Spiegel (Brussels, BE)
                   Sponsored by Ontime                                                       14:30           Data Protection out of Control
                                                                                                             Steffen Augsberg (Gießen, DE)
                                                                                             15:00           Digitalisation in Medicine – Big Data or Big Brother?
     10:30 — 11:00 Poster Session 1                                                                          Frank Kargl (Ulm, DE)

     11:00 — 12:30 INTERNATIONAL SEARCH SYSTEMS                                              15:30 — 16:00 Coffee Break
                   Chair: Anthony Montague (Alexandria, AU), Hans-Peter Eberhard (Ulm, DE)
     11:00          Google's Perspective on Searching                                        15:30 — 16:00 Poster Session 2
                    Julio Sincero (Frankfurt, DE)
     11:30          The Future of International Search Systems                               16:00 — 17:00 SHIRLEY NOLAN LECTURE
                    Carlheinz Müller (Ulm, DE): Introduction                                               Chair: Alejandro Madrigal (London, UK)
                    Jeff Szer (Melbourne, AU): The Clinical Perspective                      16:00           Shirley Nolan’s Dream 45 Years Later
                    Betina Sørensen (Aarhus, DK): The Registry Perspective                                   Carolyn Hurley (Rockville, US)
                    Matt Prestegaard (Minneapolis, US): The Technological Perspective
                                                                                             18:30 — 00:00 CONFERENCE DINNER
                                                                                                           at Augustiner Keller
                                                                                                           more information can be found on page 21

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12TH INTERNATIONAL DONOR REGISTRY CONFERENCE - AND WMDA WORKING GROUP MEETINGS - TOGETHER TOWARDS TOMORROW - 12th International Donor Registry ...
Scientific Program | IDRC
Saturday | June 30, 2018 | Munich Big Hall

     09:00 — 10:30 CURRENT HOT TOPICS                                                                            12:30 — 13:45 Lunch Break
                   Chair: Nicoletta Sacchi (Genova, IT), Machteld Oudshorn (Leiden, NL)                                        Sponsored by LabCorp
     09:00           What Do You Expect from a Registry? Minimum Criteria for Our Partners
                                                                                                                 12:45 — 13:30 LUNCH SYMPOSIUM
                     Dena Mercer (Ottawa, CA)
                                                                                                                                 HLA, It’s Not That Complicated (or Is It?)
                     BEST ABSTRACTS
                                                                                                                                 Ruth Koester, LabCorp
     09:30           NOTIFY Library – Sharing the Lessons Learned from Living Donor Reactions
                     Suzanna van Walraven (Amsterdam, NL)
     09:45           Keeping Unrelated Donors in the Race – Determining How Time to Transplant for Urgent        13:45 — 15:30 RESEARCH OF TODAY - ROUTINE OF TOMORROW
                     Patients Impacts Therapy Selection and What Registries Can Do to Remain Competitive                       Chair: Jeff Szer (Melbourne, AU), Steven Marsh (London, UK)
                     with Alternate Therapies                                                                    13:45           Cordblood – Quo Vadis 2025
                     Kristin Naruko (Minneapolis, US)                                                                            Jaap Jan Boelens (Utrecht, NL)
     10:00           Innovative Management of Repeat Cytomegalovirus Testing of Hematopoietic Stem Cell Donors   14:15           The Role of Donor Registries in Ensuring iPS Therapies are Universally Applicable
                     Ying Li (Bristol, GB)                                                                                       David Turner (Edingburgh, UK)
     10:15           An Ethical Challenge – Informing and Counselling Donors about Genetic Findings              14:45           Ethical and Legal Aspects of Whole Genome Sequencing in Diagnostics and Research
                     Thilo Mengling (Cologne, DE)                                                                                Christoph Schickardt (Heidelberg, DE)

     10:30 — 11:00 Coffee Break                                                                                  15:15 — 15:30 CLOSING SESSION
                   Sponsored by Ontime                                                                                           Final Remarks / IDRC 2020 Preview

     11:00 — 12:30 TOWARDS INTEGRATION AND STANDARDIZATION
                   Chair: Joannis Mytilineos (Ulm, DE), Martin Maiers (Minneapolis, US)
     11:00           New Concepts in Race and Ancestry Self-Identification for Hematopoietic Stem Cell Donors
                     Jill Hollenbach (San Francisco, US)
     11:30           Should We Move Towards Full Gene Sequencing?
                     Neema Mayor (London, GB): Yes
                     Carolyn Hurley (Rockville, US): No
     12:00           Donor Typing Profile in the NGS Era
                     Alexander Schmidt (Tübingen, DE)

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Social Events
 ZKRD International Reception 25+1 | Tuesday June 26, 2018 | 18:30 – 21:00

 It has been 25+1 year since the ZKRD, the German National Bone Marrow Donor Registry, was founded in Ulm.
 We would like to invite our international guests to celebrate this anniversary with an international reception in
 the Max Joseph Hall, one of the 130 rooms of the Munich Residence.
 The Residence was once the political and cultural center of former Bavarian dukes, princes and emperors. Built
 in 1385 as a castle located at the outskirts of the city, the rulers enlarged the Residence over the years, making it
 the largest city center castle in Germany. Today it is the largest museum complex of Bavaria, a magnificent palace
 with well-known buildings including the Königsbau, where the Treasury is housed, and ten courtyards of which
 some are used for cultural events like concerts.
 Since the International Reception 25+1 is hosted by the ZKRD, it is free of charge for participants registered to
 the WMDA meetings. In case you wish to add this to your registration, please come to the registration desk.
 We would be happy to welcome you to a “blithesome” Get-Together in royal ambience with colleagues from all
 over the world.

 Getting there from Alte Kongresshalle
    By car
 If you are driving to the Munich Residence (Max Joseph Hall), Parking (with costs) is available in the underground
 car park of the National Theatre (Max-Joseph-Platz).
    By public transport
 From Alte Kongresshalle, station Schwanthalerhöhe, the Munich Residence is a ten-minute journey by U-Bahn
 (underground / subway) on the U 4 (in the direction Arabellapark) and U 5 (in the direction Neuperlach Süd);
 in both cases, alight at Odeonsplatz.
   Address
 Max-Joseph-Saal at Residence Munich | Residenzstraße 1 | 80333 München

 Photos: © Bayerische Schlösserverwaltung | www.residenz-muenchen.de | www.schloesser.bayern.de

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Social Events
 Welcome Reception | Thursday June 28, 2018 | 18:30 – 21:00                                                              Conference Dinner | Friday June 29, 2018 | 18:30 – 00:00

 The BMW Welt is one of the first buildings representing a new generation of communication buildings for the 21st        Our traditional Conference Dinner will take place on Friday June 29, 2018 at the Augustiner Keller, one of the most
 century, where the corporation goes into dialogue with visitors from all over the world – a place to present the        popular meeting places for locals and guests from all over the world who value the charm of Bavarian tradition with
 BMW Group brands – BMW, MINI and Rolls-Royce Motor Cars – as an impressive experience. This means: To see,              its unique atmosphere of a genuine Munich beer garden and pub culture. We welcome you to a Bavarian night with
 feel, hear, smell, taste the brands – in brief: To experience the world of the brands of BMW Group with all senses.     Augustiner Edelstoff beer tapped from wooden barrels, Bavarian delicacies and to live and breathe the tradition of the
 The ticket for our Welcome Reception at the BMW Welt on Thursday June 28, 2018 is included in your registra-            Lagerkeller. Originally, this space was used to store beer and keep it cool in the summer with ice from the Nymphen-
 tion fee. Thus, everyone is invited to join the event.                                                                  burg canal and the ice ponds outside Munich. Sometimes the ice even came by train from the Zugspitze.
                                                                                                                         Tickets for the Conference Dinner can be bought at the registration desk.
                                                                                                                         Price: 75,00 € (incl. food and beverages, 19 % VAT)
 Getting there from Alte Kongresshalle
   Shuttle                                                                                                               Getting there from Alte Kongresshalle
 We offer the possibility to get to the BMW Welt by our shuttle bus.
 Start is at the foyer in the Alte Kongresshalle immediately after the conference. Departure will be at 6:00 pm.             By car
                                                                                                                         If you are driving to the Augustiner-Keller, there are limited number of parking spaces. You can also park in nearby
     By car                                                                                                              streets or in the car park for the new bus station (ZOB) nearby.
 If you are driving to the BMW Welt, Parking (For visitors: 2.00 EUR for the first hour, 2.00 EUR for every additional
 hour, max. 15.00 EUR per day, 15 minutes’ delay permitted) is available in the underground car park of the BWM Welt.       By public transport
                                                                                                                         From Alte Kongresshalle, station Schwanthalerhöhe, the Augustiner-Keller is a ten-minute journey by U-Bahn
    By public transport                                                                                                  (underground / subway) on the U 4 (in the direction Arabellapark) and U 5 (in the direction Neuperlach Süd);
 From Alte Kongresshalle, station Schwanthalerhöhe, the BMW Welt is a thirty-minute journey by U-Bahn (un-               in both cases, alight at Munich Mainstation (Hauptbahnhof).
 derground / subway). First please take the U 3 (in the direction Arabellpark) to Odeonsplatz, than please change
 trains to U 3 (in the direction Moosach); alight at Olympiazentrum.                                                       Address
                                                                                                                         Augustiner Keller | Arnulfstraße 52 | 80335 München
   Address
 BMW Welt Munich | Am Olympiapark 1 | 80809 München                                                                        For public transport timetable information and detailed overview of connections for the Munich Residence,
                                                                                                                         go to the website of the Munich Public Transport Authority at www.mvv-muenchen.de.
                                                                                                                         Including your registration you have a city ticket for the local traffic in Munich. If you have questions don’t
                                                                                                                         hesitate to come to the registration desk.

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Company Events
 Time:matters Evening Event | Wednesday June 27, 2018 | 21:00 – 00:30
                                                                                                                         LabCorp is proud to be attending the
 time:matters invites you to a casual get-together, which everyone is free to join. The evening will take place at the   12th Annual International Donor Registry Conference
 Stiglerie Munich, one of the most beautiful locations in the heart of Munich.
 Enjoy the music, dance and mingle with the other conference attendees. Drinks and appetizers are on us.
 We look forward to welcoming you!
   As the capacity is limited, please RSVP with your personal details (name, first name) for registration to:
 EventMunich2018@time-matters.com.
    Address

                                                                                                                                                                                     Anzeige lab Corp
 Stiglerie Munich | Nymphenburger Str. 3 | 80335 München

 Sponsored Airport Live-Tour | Thursday June 28, 2018 | 09:30 – 12:30

 The logistics expert time:matters invites all congress attendees to an exclusive airport tour. Take a glimpse behind
 the scenes of one of the busiest airports in Europe and be closer than ever to pre-flight preparations.
 A shuttle bus will pick you up from the congress venue (Alte Kongresshalle) and bring you straight to the airport
 and back. We will make sure that you are back on time for lunch and the IDRC.                                           With more than 30 years of expertise, LabCorp is a global provider of high-volume HLA testing by
    As the capacity is limited, please RSVP with your personal details (last name, first name) for registration to:      next-generation sequencing (NGS). LabCorp performs typing of HLA Class I (A, B, C), HLA Class II (DRB1,
 airporttourmuc2018@time-matters.com.
                                                                                                                         DRB3/4/5, DQB1 and DPB1), CCR5, and ABO/Rh.

                                                                                                                                         Additional services from LabCorp include:                            LabCorp offers cost-effective services for:
                                                                                                                                         •   PRA                                                              •   Donor registries
                                                                                                                                         •   Chimerism analysis and cell sorting                              •   Transplant centers
                                                                                                                                         •   KIR genotyping                                                   •   Cord blood banks
                                                                                                                                         •   Biosample processing                                             •   Clinical trials
                                                                                                                                                                                                              •   Research
                                                                                                                                                                                                              •   Drug development

                                                                                                                                                                                                                   Call LabCorp’s HLA team at 800-533-1037 or
                                                                                                                                                                                                                   contact us via email at HLACS@labcorp.com.
22                                                                                                                                                                                                                                                          23
                                                                                                                         ©2018 Laboratory Corporation of America® Holdings. All Rights Reserved. 18954-0618
Poster Sessions
 Poster Groups                                                                       CORD BLOOD: BANKING AND APPLICATION & SELECTION OF DONOR AND STEM CELL SOURCE
                                                                                     P-01-22-2   Efficient and Safe Non-Medical Cord Blood Donor Authorisation in a Public Cord Blood Bank
     Cord Blood: Banking and Application & Selection of Donor and Stem Cell Source               Ulrike Paulus (United Kingdom) et. al.
     Emerging Registries & Donors and Patients: Safety and Ethical Challenges        P-02-27-2   NHS Cord Blood Bank Activity and Patient Outcomes: Trends in the Last 15 Years
     Laboratory: HLA and non-HLA markers, Technology & Other                                     Katalin Balassa (United Kingdom) et. al.
     Donor Recruitment and Retention                                                 P-03-29-2   Comparison of Ex Utero and in Utero Cord Blood Collection Methods, Canadian Blood Services
                                                                                                 Cord Blood Bank
     Registries: Management and Innovative (IT) Solutions
                                                                                                 Karen Mostert (Canada) et. al.
                                                                                     P-04-17-1   A New Registry Lead Initiative Supporting UK Transplant Centres in Selection, Acquisition and
                                                                                                 Provision of Cord Blood Units for Haematopoietic Stem Cell Transplantation
                                                                                                 Laila Roberts (United Kingdom) et. al.
                                                                                     P-05-18-1   Expedited Search Process: Selection, Typing and Transplant (STaT)
                                                                                                 Gretta Stritesky (United States) et. al.
                                                                                     P-06-28-1   British Bone Marrow Registry Activity and Patient Outcomes: Trends in the Last 15 Years
                                                                                                 Katalin Balassa (United Kingdom) et. al.
                                                                                     P-07-35-1   Canadian Patient Search Activity and Allogeneic Product Choice: A OneMatch Year in Review (2017)
                                                                                                 Valerie Greco-Stewart (Canada) et. al.
                                                                                     O-08-45-1   Keeping Unrelated Donors in the Race: Determining How Time to Transplant for Urgent Patients
                                                                                                 Impacts Therapy Selection and What Registries Can Do to Remain Competitive with Alternate
                                                                                                 Therapies
                                                                                                 Kristin Naruko (United States) et. al.
                                                                                     P-09-56-1   Finding the Optimal Time to Request a Work-Up: An Analysis of the Unrelated Search Process in
                                                                                                 the Netherlands
                                                                    ground floor                 Martijn Braakman (Netherlands) et. al.
                                                                                     P-10-58-1   Unrelated Argentine Donors in Hematopoietic Stem Cell (HSC) Transplant from 2008 to 2017.
                                                                                                 Results from the Argentine Registry
                                                                                                 Pablo Galarza (Argentina) et. al.

24                                                                                                                                                                                               25
Poster Sessions
EMERGING REGISTRIES & DONORS AND PATIENTS: SAFETY AND ETHICAL CHALLENGES                                      LABORATORY: HLA AND NON-HLA MARKERS, TECHNOLOGY & OTHER
P-11-11-2   Genebandhu: An Emerging Hematopoietic Stem Cell Registry from India                               P-21-13-1   The Serological Characteristics and Family Genetics of a Novel HLA Allele, HLA-B*13:26
            Vikash Chandra Mishra (India) et. al.                                                                         Xiangmin Nie (China) et. al.
P-12-38-2   A Two-Year Evaluation of the Hematopoietic Stem Cell Transplantation (HSCT) Scenario from the     P-22-30-1   Common and Well-Documented (CWD) Alleles in the Chinese Population
            Brazilian Bone Marrow Donor Registry (REDOME)                                                                 Wu Baohong (China)
            Alexandre José Almada (Brazil) et. al.                                                            P-23-32-1   Prevalent HLA Alleles in the Indian Based Registry „Genebandhu“-Powerful Tool for Matched
P-13-42-2   Extended Typing and Confirmatory Typing from Brazilian Donors to International Patients in 2017               Unrelated Donor (MUD)
            Natiele Silva Tavares (Brazil) et. al.                                                                        Vikash Chandra Mishra (India) et. al.
P-14-48-2   Family and Social Pressure as a Main Factor in Donor Back-out and How to Address It               P-24-39-1   HLA Profile of the Donors in the Macedonian Bone Marrow Donor Registry
            Raghu Rajagopal (India)                                                                                       Aleksandar Petlichkovski (Republic of Macedonia) et. al.
P-15-53-2   CBMDP: Forming a Working Framework for Marrow Donors in Greece                                    P-27-59-1   High Rejection Rate by HLA Matched Donors Identified from the Saudi Stem Cell Donor Registry
            George Vassiliou (Greece) et. al.                                                                             Dunia Jawdat (Saudi Arabia) et. al.
P-16-54-2   Enriching Stem Cell Donor Ethnic Diversity by the Establishment of a National HSCT Donor          P-28-60-1   Contribution of Frequent HLA-A~B~DRB1 Haplotypes to Donor Search Outcome in Croatia
            Registry in Qatar                                                                                             Katarina Stingl Jankovic (Croatia) et. al.
            Afraa Fadul (Qatar) et. al.                                                                       P-29-61-1   Croatian Bone Marrow Donors Registry – HLA Typing Overview
P-17-15-2   Repeat Donors Require Extended Disclosure Principles for the Release of Personal Information–                 Zorana Grubic (Croatia) et. al.
            Case Report                                                                                       O-30-23-1   NOTIFY Library: Sharing the Lessons Learned from Living Donor Reactions
            Daniela Griffiths (Germany) et. al.                                                                           Suzanna Van Walraven (Netherlands) et. al.
P-18-40-2   Survival Rate of an Unrelated Hematopoietic Stem Cell Transplantation Provided by Thai National
            Stem Cell Donor Registry
            Wipawan Phamorn (Thailand) et. al.
P-19-44-2   Optimizing Post-Donation Donor Counselling
            Anja Schönleben (Germany) et. al.
O-20-52-2   An Ethical Challenge: Informing and Counselling Donors About Genetic Findings
            Thilo Mengling (Germany) et. al.

26                                                                                                                                                                                                                    27
Poster Sessions
DONOR RECRUITMENT AND RETENTION                                                                              REGISTRIES: MANAGEMENT AND INNOVATIVE (IT) SOLUTIONS
P-31-12-1   Notes on Efficient Donor Recruitment: Estimation from Haplotype Frequency in the Japanese Po-    P-41-14-2   OptiMaS: Probabilistic and Population Specific HLA Matching Algorithm of the WMDA Search &
            pulation                                                                                                     Match Service
            Satoshi Nishiwaki (Japan) et. al.                                                                            Hans-Peter Eberhard (Germany) et. al.
P-32-24-1   Stem Cell Donation at School                                                                     P-42-16-2   A Council Advisory Group Enhances Communication and Relationships Between Network Mem-
            Bert Elbertse (Netherlands)                                                                                  bers and National Marrow Donor Program (NMDP) /Be the Match Senior Leadership and Board of
P-33-25-1   Donor Attrition: How Low Can We Go? The British Bone Marrow Registry Experience                              Directors (BOD)
            Katalin Balassa (United Kingdom) et. al.                                                                     Kimberly Kasow (United States) et. al.

P-34-33-1   RUN – the Registry of Unmet Needs                                                                P-43-19-2   Confirmatory Typing – Donors Living Abroad
            Martin Maiers (United States) et. al.                                                                        Sabine Schoeffel-Weiss (Germany) et. al.

P-35-43-1   Outcome of Matched Unrelated Donor Search for a Multi-Racial Asian Society, for a Direction in   P-44-20-2   Work-up and Donation – Donors Living Abroad
            Donor Recruitment                                                                                            Sabine Schoeffel-Weiss (Germany) et. al.
            Ashminder Kaur (Singapore) et. al.                                                               P-45-26-2   Conceptual Model of Bone Marrow Donors Registry
P-36-49-1   Setting up Sustainable Allogenic HSCT and Donor Recruitment Programs in Qatar                                Lucie Houdova (Czech Republic) et. al.
            Afraa Mustafa Fadul (Qatar) et. al.                                                              P-46-31-2   Full Speed Ahead: Improving Performance of Hap-E Search, a Probabilistic Matching Algorithm
P-37-50-1   HLA-A, B, C, DRB1 and DQB1 Allele and Haplotype Frequencies in Volunteer Bone Marrow                         Based on Haplotype Frequencies
            Donors from Eastern Region of Saudi Arabia                                                                   Christine Gnahm (Germany) et. al.
            Dunia Jawdat (Saudi Arabia) et. al.                                                              P-47-34-2   OneMatch Operational Improvement Initiative Results in Decreased Time from Verification
P-38-51-1   Donor Recruitment in ISCDP                                                                                   Typing Request to Sample Shipment
            Elham Soltanabadi (Iran) et. al.                                                                             Valerie Greco-Stewart (Canada) et. al.

P-39-55-1   High-Resolution HLA-Haplotype Frequencies of 20,767 Potential Hematopoietic Stem Cell            P-48-36-2   Prometheus Light – Free On-Line Donor Registry Software
            Donors from Saudi Arabia                                                                                     David Steiner (Czech Republic) et. al.
            Jürgen Sauter (Germany) et. al.                                                                  P-49-37-2   Prometheus Search Service
P-40-57-1   HLA-DPB1 Permissive Mismatches Enables the Identification of Optimally HLA-Matched Donors                    David Steiner (Czech Republic) et. al.
            Without Unrealistic Donor Registry Sizes                                                         O-50-41-2   Innovative Management of Repeat Cytomegalovirus Testing of Hematopoietic Stem Cell Donors
            Jürgen Sauter (Germany) et. al.                                                                              Ying Li (United Kingdom) et. al.

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Supporters

WE THANK OUR SPONSORS!

 Platin Sponsor          Sponsors

 Silver Sponsors

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Exhibitors

                                                                                                              GIFT OF LIFE
BOOTH NO.    COMPANY
5            CareDx
9            DKMS Life Science Lab GmbH
8            GenDx
3            Gift of Life Marrow Registry                                                                      is proud to be a sponsor of
13           Hexal AG
2
12
10
             Histogenetics
             Immucor Inc.
             LabCorp
                                                                                                                  IDRC 2018
1            One Lambda Inc.
4            Ontime Onboard Courier GmbH
7            Peli BioThermal Ltd.
6            Beijing ROSE Genomic Corp. Ltd
11           time:matters GmbH
                                                                                                                           Congratulations to
                                                                                                                            WMDA and ZKRD
                                                    Registration desk
                                                                                                                              We look forward to advancing
                                                                                                                              collaboration and partnerships
                        Catering                                                        Catering
                                                                                                                                      within our community.

                                               1           2
                                                                                3
                             Beverages

                                                                                    4
                                                                                        5          Wardrobe
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                                                          10            9                   6
                                              12                            8
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