WE NURTURE OUR CULTURE FOR OUR FUTURE, AND OUR CULTURE NURTURES US - ANTAR
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
WE NURTURE OUR CULTURE FOR OUR FUTURE, AND OUR CULTURE NURTURES US. A report prepared by the Lowitja Institute for the Close the Gap Steering Committee | March 2020 We nurture our culture for our future, and our culture nurtures us. | i
Acknowledgements This report is a collaborative effort of the Close Contents the Gap Campaign Steering Committee. Authors: The Lowitja Institute Foreword...............................................................................................2 Writing and editing team: Janine Mohamed, Executive Summary..............................................................................4 Leonie Wililamson, Phoebe Dent, Josh Power, Amy Coopes, Marie Macinerney Recommendations................................................................................6 Design and Layout: Hyve Design SECTION 1 Printing: IndigiPrint Introduction and Overview 8 Background.............................................................................................................8 Published by: The Close the Gap Campaign Why a theme of culture?.......................................................................................10 Steering Committee Why now?.............................................................................................................12 @ Close the Gap Campaign Steering What are cultural determinants?..........................................................................13 Committee for Indigenous Health Equality, Domains featured in this report............................................................................15 2020 This work is licensed under the Creative SECTION 2 Commons Attribution – NonCommercial Self-determination and Leadership 16 – ShareAlike 2.5 Australia License. To Coalition of Peaks – Collective action towards self-determination.....................18 view a copy of this license, visit: http:// creativecommons.org/licenses/ by-nc- Law Yarn – Wuchopperen Health Service............................................................20 sa/2.5/au or send a letter to Creative Mäwaya Health Justice Program – NAAJA and Miwatj.......................................22 Commons, 171 Second Street, Suite 300, San Francisco,California, 94105, USA. SECTION 3 Copies of this report and more information are Indigenous Beliefs and Knowledge 24 available t download at: www.humanrights.gov. Lowitja Institute: Growing the Aboriginal and au/social_justice/health/ index.html and www. Torres Strait Islander Health Research Workforce...............................................25 antar.org.au/ close-ga Mayi Kuwayu – Understanding the Cultural Determinants of Health..................26 Cover Artwork: Tracks on the Sand, Brendan SECTION 4 30 Ball, Wudjal Wudjal. The painting tells the story of Brendan’s journey to eventually becoming Cultural Expression and Continuity an Elder for Disability Business, and shows NuunaRon – Identity and Belonging Through Cultural Connection.....................31 that not everyone leaves foot prints in their Creating a Culturally Safe Health System to Facilitate Cultural journey, some people leave tracks from their Expression and Wellbeing....................................................................................34 wheelchair. It talks about where he lives now, and how he spends time with community SECTION 5 and Elders, listening and learning about our people and how to stay strong. Eventually he Connection to Country 36 will travel back to the Country of his ancestors Strong Women on Country and Working for our Country....................................37 Aboriginal and Torres Strait to learn more and share knowledge about Islander people should be disability in our culture and how we stay Conclusion..........................................................................................42 aware that this document may contain images or strong, eventually with him taking his place as an Elder and supporting and guiding other Acronyms and Abbreviations..............................................................43 names of people who have passed away. people with disability as they make their own Endnotes.............................................................................................44 tracks in the sand. Close the Gap Campaign Steering Committee Members.................47 We nurture our culture for our future, and our culture nurtures us. | 1
Ganinyi ngarri ingga manjawurrmagi ngindaji Foreword thangani. Thangani The failure over the past 12 years to own lives -- ‘nothing about us, without us’ -- should not gurrijbarra nganggawarra be underestimated. In this report, we again demonstrate close the gaps in Aboriginal and Torres that, through evidence and case studies with a focus on the buga yani u, yulngarrawu. Strait Islander health inequality, and cultural determinants of our health and wellbeing. Binarri yawurrmagi other measures of social and economic Our culture comes from our lore, a very deep and sacred biyirranggu thangani, disadvantage, cannot be justified by more place. The cultural determinants of our health provide many of the remedies for Aboriginal and Torres Strait Islander rhetoric or data in another report. Over Thirrili ngarri warawirragi, health equity and these determinants should be respected, the years we have seen so many of these understood and embraced by all. This report shows us what Thirrili ngarri wilawirragi, gaps and measures ignored, overlooked can be achieved by Aboriginal and Torres Strait Islander people through leadership and self-determination, owning Ganbawirragi ngindaji and disregarded. Aboriginal and Torres our knowledge, continuing our cultures and maintaining thangani, Yarrangi dinyjili. Strait Islander peoples are not deficits connections to Country and kin. Ngindaji thangani jurali nhi, or statistics. These just hide the truth of After ongoing failures, the forthcoming Closing the Gap our lived realities. For us, the harrowing refresh must be backed by real action. Every year since Winyiwunggurragi yarrangi 2010, our reports have called for significant investment, failure to close the gap is felt through not the funding cuts we have suffered. Further investment nhingi thangani. sorry business, the countless funerals of must be directed towards our capability, our strength, our family and friends, the hospital visits and resilience, our cultures. Failure means more preventable Our ancestors that came deaths from diseases that are rare in the developed world, the coronial inquiries that we continue to more shamefully high suicide rates driven by poverty before, created this painfully endure. unheard of in comparable countries. It means more deaths in custody. knowledge. Our voices So many of our losses were and are preventable – that is the Now more than ever is the time to listen to Aboriginal and carry this knowledge to failure and pain we carry. Had governments had the grace Torres Strait Islander ways of knowing, doing and being. to genuinely listen to our voices, to the truth, to solutions As our Countries burned during the 2019-20 summer, give to our children to carry and calls to action, perhaps this, the 11th Close the Gap more than a billion animals perished and sacred sites were Campaign Report, would not be needed. forever. They must learn destroyed. Never before has such devastating impact of the A sensible way of doing business is long overdue as, apart neglect of Country been witnessed by all Australians. Going their knowledge so they from small gains (2 out of 7 targets on track), the attempts forward we must heed the wisdom of Aboriginal and Torres to close the gaps in Aboriginal and Torres Strait Islander life Strait Islander peoples. Our knowledge and cultures must Ms June Oscar AO can stand and speak with be viewed as integral to improving not only the health and expectancy, health and education have failed. However, with Aboriginal and strength. So they can follow a ten-year national shared decision-making agreement now wellbeing of our people but of our nation. No Australian can Torres Strait Islander signed between the Council of Australian Governments and afford further repetition of the mistakes of the past. Social Justice Commissioner and know this wisdom. This the Coalition of Aboriginal and Torres Strait Islander Peak Finally, as Co-Chairs, we would like to thank the wider Organisations, we are entering a new era. Mr Karl Briscoe is our umbilical chord to life. Australian public and the 52 Close the Gap Campaign CEO National Aboriginal and Our Campaign’s first ‘shadow’ report in 2010 asked for a seat members for their contribution to this work and for their This knowledge is from long at this table. The benefits that come from our playing a driving ongoing support and commitment to better health outcomes Torres Strait Islander Health Workers Association ago, listen to our voices. role and having legitimate decision-making power over our for Aboriginal and Torres Strait Islander peoples. Co-Chairs - Close the Gap Campaign 2 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 3
Executive Summary With this report — We nurture our culture for our future, health system and externally As with the 2019 Close the Gap continues to contribute to this Report, we have relied on the and our culture nurtures us — we have sought to reflect trauma. Measures to promote narratives of Aboriginal and Torres the reciprocal and cyclical relationship between culture cultural expression as a health Strait Islander people to provide protective factor and ensure a strengths-based analysis of and wellbeing, whereby nurturing culture keeps us, and the cultural safety of the health Aboriginal and Torres Strait our future generations, healthy and strong. system are two elements that Islander health and wellbeing. can be progressed under this This is in recognition of the hard domain. work, resilience and aspirations of Over the last twelve years, communities through culturally Australia’s First Peoples to keep successive governments have centred processes of decision • Connection to Country their families, communities and failed to deliver the reforms making and delivers solutions Aboriginal and Torres Country strong. needed to close the gap on health that respond to local context. Strait Islander society is outcomes for Aboriginal and Torres interconnected with land, sea However, a strengths-based Strait Islander people. • Indigenous beliefs and and Country. Identity, cultural approach does not overlook the knowledge practices, social systems, relationship of power and inequality At the heart of this report is the Aboriginal and Torres Strait traditions and concepts of on health outcomes and the recognition of Aboriginal and Torres Islander people hold complex spirituality are all drawn from, responsibility of governments in Strait Islander empowerment as and important knowledge and depend upon, connection leading systems reform. The work vital to wellbeing. The featured systems. Embedding to Country. Aboriginal and of communities must be matched case studies have been selected Aboriginal and Torres Strait Torres Strait Islander people by governments through shared to highlight Aboriginal and Torres Islander holistic definitions are uniquely affected by decision-making, equitable (and Strait Islander-driven approaches of health and wellbeing in accelerating climate change and sustained) funding and a cohesive to health policy and program the way we deliver health it is with increasing urgency that policy approach. reform across four domains of the services is critical to improving we must consider connection to cultural determinants: outcomes. Recognising the Country in health and wellbeing expertise of Aboriginal and policy. • Self-determination and Torres Strait Islander people leadership involve practices and communities in health These domains have been selected and processes that incorporate research, policy and program because of pragmatic limitations, not only self-governance and development is key. not as a reflection of importance shared decision-making, but or priority against the remaining also rights to express and • Cultural expression and cultural domains of language, and pass on culture, language, and continuity are great sources family, kinship and community. relationships with Country. of strength and resilience Aboriginal and Torres Strait for Aboriginal and Torres The interconnected relationship Islander Community Controlled Strait Islander people. The of the different domains means Health Organisations and trauma of cultural disruption that they can never truly operate the Coalition of Peaks are and suppression has had a in isolation and we hope that examples of self-determination profound effect on Aboriginal evidence of the importance of the and leadership in action. Self- and Torres Strait Islander remaining domains is also relayed determination and leadership in people’s health and wellbeing. in this report. health and wellbeing empowers Ongoing racism within the 4 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 5
Recommendations Aboriginal and Torres Strait Islander people know the 11. Pursue truth telling as relevant to health system solutions to the issues affecting their lives and they reform and as an important vehicle for resetting For millennia, Aboriginal and Torres must be in the driver’s seat of health reforms and the relationship with Aboriginal and Torres Strait Strait Islander peoples have kept their service delivery for their people. More must be done Islander people. cultures strong to nurture their health to link Aboriginal and Torres Strait Islander ways of 12. Create a culturally safe Australian health care knowing, doing and being with health and wellbeing and wellbeing. system that is responsive to the needs of Aboriginal policies and programs, including to: and Torres Strait Islander peoples. This means To set us on the path for systems reform 6. Put Aboriginal and Torres Strait Islander people building a robust, equitable and transparent health care system where: institutional racism is that supports the cultural determinants in charge of their own data (and decisions) by acknowledged, measured and addressed; cultural recognising and upholding the principles of of health that have been outlined and Indigenous Data Sovereignty. safety training is undertaken regularly and valued as showcased in this Report, we affirm the an important step in closing the gap; and Aboriginal 7. Invest in Aboriginal and Torres Strait Islander led and Torres Strait Islander people are integral and following messages and calls to action: health and wellbeing research, including knowledge valued members of the health workforce. translation and research impact. 8. Recognise and restore Indigenous wellbeing Connection to Country is intertwined with Aboriginal methods and practices, including healing, and Torres Strait Islander health and wellbeing and plant-based medicines and ceremony, through is a cultural determinant of health. While at the When Aboriginal and Torres Strait Islander people Community Controlled Health Organisations as a development of social enterprise. These should frontlines of climate change, Aboriginal and Torres are in control of the decisions that affect their lives, fundamental component of the Australian health be utilised within healthcare service settings Strait Islander peoples also hold unique knowledge they have better health and wellbeing. We call on system. and provided appropriate intellectual property and practices relevant to addressing the climate governments and policy makers to adopt the changes protections. crisis. These solutions stand to benefit both the needed to support Aboriginal and Torres Strait 3. Embed the social and cultural determinants of environment and the health of all Australians. We call Islander self-determination and leadership. They health and wellbeing in the systems undertaking 9. Support and build the Aboriginal and Torres Strait on governments to: include to: reform. This must include investment in First Islander health workforce, including Aboriginal Nations’ (re)building and development to support and Torres Strait Islander Health Workers and 13. Grow and secure the Indigenous rangers and 1. Take swift and comprehensive action to support the shared aspirations and collective decision making. community researchers as important cultural Indigenous Protected Areas programs in line calls by Aboriginal and Torres Strait Islander people brokers. 4. Work together and partner to effect change and with calls made by the Country Needs People for a Voice to Parliament. As has been so eloquently Campaign, including committing to a 10-year ensure the cultural determinants of health are stated in the Uluru Statement from the Heart: funding horizon and supporting a long term embedded across health, and Indigenous affairs Culture is a protective factor for health and wellbeing, more broadly. While we are starting to see the and cultural expression is healing and has health target of 5,000 jobs in Indigenous land and sea “We seek constitutional reforms that will empower results from partnerships across sectors, and with benefits. We must nurture culture to facilitate its management across Australia. our people and to take a rightful place in our own country. When we have power over our destiny our governments, more needs to be done to ensure that expression and continuity for future generations and 14. Act to repair, restore and protect Country from children will flourish. They will walk in two worlds this work is fully funded and implemented. ensure that this expression is valued and respected future harm. This includes local, national and and their culture will be a gift to their country.” by all Australians. This will need governments and international cooperation. While Indigenous caring 5. Develop mutually agreed principles and parameters health systems to: for Country practices are important, they must be This call must be heard. of partnerships and co-design processes, to ensure the legitimacy and sustainability of joint coupled with government actions and regulations. 10. Invest in long term Aboriginal and Torres Strait 2. Support the Coalition of Peaks Priority Reform decision-making arrangements. This must include We all must take responsibility for looking after Islander designed and led place-based initiatives areas for the next Closing the Gap agreement, measures to assess the strength and effectiveness Country. that use cultural expression to enhance health and including investing in community control. This must of partnerships on a regular basis. wellbeing. be reflected by upholding the role of Aboriginal 6 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 7
SECTION 1 INTRODUCTION AND OVERVIEW INTRODUCTION AND OVERVIEW SECTION 1 Introduction and Overview the Gap targets, including to close The 2020 report shows a life the life expectancy gap within a expectancy gap of 8.6 years for generation.2 males and 7.8 years for females In 2005, the then Aboriginal and Torres Strait Islander remains (Figure 1).4 The Indigenous The COAG agreement recognised Social Justice Commissioner Tom Calma called for that overcoming Indigenous burden of disease rate continues to be 2.3 times higher than for Australian governments to commit to achieving equality disadvantage would require a long- non-Indigenous Australians, with term, generational commitment with for Aboriginal and Torres Strait Islander people in health mental and substance use disorder major effort to be directed across (19%), injuries (including suicide) and life expectancy within 25 years. The Close the Gap a range of strategic platforms or (15%), cardiovascular diseases Campaign for Indigenous Health Equality (Close the ‘Building Blocks’ including early (12%), cancer (9%) and respiratory childhood, schooling, health, Gap Campaign) was first convened by Commissioner economic participation, healthy diseases (8%) the leading causes of total disease burden.5 It is clear a Calma in 2006 and the first National Close the Gap Day homes, safe communities, and reset in our approach is needed. was held in 2007. At the heart of the Campaign was the governance and leadership. rights-based approach outlined in the 2005 Report.1 After an ongoing series of changes and the introduction of a seventh Closing the Gap target by Australian Driven by these calls a Close the and life expectancy. Later that governments, in 2018 the Close the Gap Statement of Intent was signed same year the Council of Australian Gap Campaign delivered a ten-year in 2008, as a compact between Governments (COAG), representing review that found: When I think about governments of Australia and all tiers of governments, also the injustices experienced the Aboriginal and Torres Strait agreed to focus on addressing • Governments had failed to Islander peoples, to work together Indigenous disadvantage through coherently implement the Closing by Aboriginal and Torres Strait to achieve equality in health status a commitment to meet six Closing the Gap Strategy, including failure to appropriately fund policy Islander peoples, I sometimes feel commitments and undertake the overwhelmed. A widening gap in life required systemic reform. FIGURE 1: expectancy, soaring rates of incarceration, Life tables for Aboriginal and Torres Strait Islander Australians, 2015–2017 (extract) • Governments had effectively abandoned the Closing the Gap our children taken away from their families 100 Strategy after five years. at 10 times the rate of non-Indigenous 90 80 The review warned that, without a children, our women dying at epidemic 70 reset, the targets would continue to levels from domestic and family violence. measure nothing “but the collective Where do we even start? 60 Years failure of Australian governments to 50 work together and stay the course”.3 40 June Oscar AO 30 Consistent with this prediction, Aboriginal and Torres Strait Islander 20 the 2020 Prime Minister’s Closing Social Justice Commissioner6 10 the Gap Report found that only Source: Australian Bureau of 0 two of the seven targets are on Statistics 2018, Life tables for Aboriginal and Torres Strait track. Despite 12 years of action Islander Australians, 2015– Males Females little progress has been made. The 2017, Cat. no. 3302.0.55.003, whole-of-government Closing the ABS: Canberra. Cited in Gap policy agenda has fallen well Closing the Gap 2020 Indigenous Non-Indigenous short of the mark. 8 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 9
SECTION 1 INTRODUCTION AND OVERVIEW INTRODUCTION AND OVERVIEW SECTION 1 Why a theme of culture? Aboriginal and Torres the emphasis on the social and cultural determinants of health Strait Islander people hold National Aboriginal United Nations Declaration within the National Aboriginal and Health Strategy 1989 on the Rights of Indigenous a culturally centred view Torres Strait Islander Health Plan 2013–2023 (NATSIHP) and the – Definition of health Peoples 2006– Article 24 of health and wellbeing. United Nations Declaration of the This is anchored in ways Rights of Indigenous Peoples. ‘Aboriginal health’ means not 1. Indigenous peoples have the right to their of knowing and being This view of health and wellbeing just the physical well-being traditional medicines and to maintain their health was again reflected back by the of an individual but refers practices, including the conservation of their that have existed and community in the My Life, My Lead to the social, emotional and vital medicinal plants, animals and minerals. continued for tens of national consultations conducted cultural well-being of the Indigenous individuals also have the right to thousands of years, shared by the Australian Government whole Community in which access, without any discrimination, to all social where the submissions and through complex kinship consultations emphasised the each individual is able to and health services. achieve their full potential systems and passed down centrality of culture and recognised 2. Indigenous individuals have an equal right to the that strong connections to culture as a human being, thereby through systems of law, bringing about the total well- enjoyment of the highest attainable standard and family were vital for good of physical and mental health. States shall take ceremony and song. health and wellbeing.7 Yet repeated being of their Community. the necessary steps with a view to achieving governments have failed to It is a whole of life view and Contemporarily this has been progressively the full realization of this right. address the structural and systemic includes the cyclical concept expressed by Aboriginal and discrimination that inhibits our of life-death-life. Torres Strait Islander people in cultures, and to undertake the policy documents such as the reforms needed to truly embrace a 1989 National Aboriginal Health culturally centred approach. Strategy’s definition of health, The 1970s have been described as cultural burning, revival of Birthing foundation for good health and marking the beginning of a ‘cultural on Country practices, and the wellbeing? renaissance’8 of Aboriginal and rebuilding of languages through Torres Strait Islander people. As initiatives such as the Ngunnawal This Report aims to address this oppressive laws of assimilation language revival project being question and to illustrate the and segregation lifted, Indigenous led by the Australian Institute of pathway forward through case writers, artists, musicians and Aboriginal and Torres Strait Islander studies that speak to four domains philosophers emerged. Studies (AIATSIS) and the Living of the cultural determinants of First Language Program through health: In 2020 this resurgence of cultural the Australian Literacy & Numeracy knowledge and practices continues • Self-determination and leadership Foundation (ALNF). to gain momentum. • Indigenous beliefs and Across the country Aboriginal and knowledge Practices that have been hidden, Torres Strait Islander communities or laid dormant, under colonial are leading the way, shaping a • Cultural expression and practices of assimilation are being vision of health and wellbeing continuity revived by Aboriginal and Torres built upon a foundation of culture. Strait Islander peoples who are • Connection to Country. The challenge for health systems working to restore the wellbeing committed to achieving positive It is hoped that by showcasing these of their communities and future change is: how to shift institutions examples we can help articulate generations. Examples include the and thinking beyond embedded Indigenous-led opportunities for Firesticks Alliance, an Indigenous medical models of health towards broader systems reform. led network to re-invigorate a model that puts culture as the 10 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 11
SECTION 1 INTRODUCTION AND OVERVIEW INTRODUCTION AND OVERVIEW SECTION 1 Why now? Aboriginal and Torres Strait Islander communities and organisations What are cultural Cultural Determinants originate from and promote a strength based In the 12 years since the have pushed back on this deficit discourse and called for system determinants? perspective, acknowledging that stronger Close the Gap Statement reforms that support Indigenous of Intent was first ways of knowing, being and In the mid-2000s the WHO connections to culture and country build developed, the debate doing in health policies, programs Commission on Social stronger individual and collective identities, and services—approaches that Determinants of Health on health equality versus centralise self-determination and a sense of self-esteem, resilience, and health equity has grown. respect their voices and choices. helped promote broad improved outcomes across the other health policy understanding This has included critiques of the The challenge of interpreting culture within a framework that can be of the social and economic determinants of health, including education, Closing the Gap strategy’s target- broadly applied to health policy and factors leading to health economic stability and community safety. driven emphasis on statistical programs, and to be measured, deficit (or disadvantage) rather has tested health researchers inequality. Professor Ngiare Brown12 than a culturally centred analysis and policy makers over the last of health and wellbeing.9 Part decade. However, we are beginning While this work played an important of what has driven this deficit to see new ways of knowing role in understanding poor health discourse has been the reliance of and doing emerge to promote outcomes in communities such as governments on what can easily a broader understanding of the First Nations, it was recognised that be tracked within the parameters Professor Ngiare Brown offered Aboriginal and Torres Strait Islander cultural strengths and resilience of the role of culture as a determinant of existing government knowledge a strong understanding of the standards and within a cultural Aboriginal and Torres Strait Islander of health remained largely and statistical resource—rather than cultural determinants of health in context. peoples. unexplored.13 an understanding of the inherent her definition (above). However, for some time there was still a Perhaps the most notable step, so elements of wellbeing as identified For Aboriginal and Torres Strait struggle to articulate how the far, in developing contemporary by Aboriginal and Torres Strait Islander people, the concept of critical elements of culture could be research on the role of Aboriginal Islander people. health has always been understood observed, understood and utilised and Torres Strait Islander culture to be holistic and to encompass to drive improvements in individual and wellbeing was the launch of mental, physical, cultural, and community wellbeing.16 the Mayi Kuwayu National Study of environmental and spiritual health.14 Aboriginal and Torres Strait Islander In 2011, in a collaborative process In 2014, the Lowitja Institute, Wellbeing in 2014. As part of its Social Determinants of Health with the Australian Government, Australia’s national institute for groundbreaking work (featured as Aboriginal and Torres Strait Islander Aboriginal and Torres Strait Islander a case study in Section 3 of this people ensured that the NATSIHP health research, held a roundtable Report), it has identified six main The World Health Organization (WHO) defines the Social Determinants of Health as the conditions in which 2013–2023 placed culture at the to discuss the need to promote domains to describe culture specific people are born, grow, work, live, and age. These circumstances are shaped by the distribution of money, centre of health and wellbeing and a greater understanding and to Aboriginal and Torres Strait power and resources at global, national and local levels. The social determinants of health are mostly spoke to the social determinants appreciation of the relationship Islander peoples in Australia (see responsible for health inequities — the unfair and avoidable differences in health status seen within and between Aboriginal and Torres Strait Table 1):20 of health. So too does the National between countries.10 Examples of areas where cross-sectoral policy action to address the health determinants Strategic Framework for Aboriginal Islander culture and health to policy can be focused include housing, energy, environment, education, transport and social protection. and Torres Strait Islander Peoples’ makers, and to provide evidence to Mental Health and Social and support that need, particularly in the It has been estimated that up to a third (34%) of the gap between Aboriginal and Torres Strait Islander and Emotional Wellbeing 2017–2023, Australian context. other Australians’ health outcomes can be explained by social determinants of health, such as education, which notes that communities employment, housing and income, which all exert a powerful effect on the health and wellbeing of all can be “sources of support and Organisations such as the peoples.11 Australian Indigenous Psychologists resilience that promote social Association (AIPA),17 Australian and emotional wellbeing when More recently the WHO has framed a Health in all Policies approach, that focuses on policy coherence of Indigenous Doctors’ Association community organisation and health across all sectors of government and is an important component of progressing the United Nation’s (AIDA)18 and Yawuru19 have also functioning is culturally informed Sustainable Development Goals. contributed to this work by offering and provides for cultural practice frameworks that define wellbeing by and transmission”.15 12 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 13
SECTION 1 INTRODUCTION AND OVERVIEW INTRODUCTION AND OVERVIEW SECTION 1 Domains and sub domains for describing culture specific to Domains featured in this report Aboriginal and Torres Strait Islander peoples in Australia as identified in the Mayi Kuwayu literature review The domains identified in the Mayi • Self-determination and leadership • Indigenous beliefs and knowledge The six domains are: Kuwayu study have been used to inform • Cultural expression and continuity and frame the cultural determinants of • Connection to Country. Connection to Country Family, kinship and community health discussed in this Report, which is This is not a position on priority or order, rather a SUB-DOMAINS SUB-DOMAINS ordered under four of these domains: pragmatic limitation to the amount of material considered. spiritual connection family and kinship health and traditional foods community living on Country “A child is a gift to the family—that is to the entire land rights and autonomy kinship network: he or she is the living evidence n individual but refers to t that the culture is alive and surviving.” 21 caring for Country e ing of a he s ellb nal Aboriginal H ocia l w e. (Natio l, e ca h-lif ea lth mo ysi “Our country is like our garden – we need to look after it. There h -d eat Stra tio are trees, birds, waterways, fish, mammals and reptiles, and p life teg na e o f y 1 la they are all important. We keep country healthy and country s t th cept 98 9 nd ju on d e cu keeps us healthy.” t f l lc al determinants o in a it i lic io c tu ec n Dhimurru Senior Ranger Fiona Yupunu Marika ' So tion and youth • employ ra is yc lw n lth of ell ea he th be uca rh me alt s and services • l es nt ing ed de em w a and h) lud • t a Indigenous beliefs and knowledge Cultural expression and continuity t ys lan of t en nt s nd inc i ju n it Is m e he m s nd rn go op Stra SUB-DOMAINS SUB-DOMAINS co • a who ily, kinship wa Fam el m tic ve on w dev ommunity e • ohol, c Ind le Co fe vie rres e and spiritual and religious beliefs identity an i rac od ith Aboriginal and To l y nt n c ge know mmunity to C ectio It is a whole-of-li ism dho traditional knowledge cultural practices no ledge d r us ou n Con • hous • early chil traditional healing art and music belief • interacti tobacco and ot Culture in which each i knowledge transmission and continuity s “Having your own voice is very powerful and healing… ing• env [M]usic was great therapy for me – it still is. deter ader and l “Culture is central to identity since it “defines who ty n d res ral It gave me a way to express myself…” Se nati co sio nui we are, how we think, how we communicate, what xp ultu mi sh e lf- Archie Roach AM endnote23 nti i we value and what is important to us.” r o C o ip n h Ind e n ndivi igenous e Steve Larkins22 an m r langu e dru d in ent ag du g an a d l is ep a Indigenous language Self-determination and leadership nd e abl fr st enc e ru ctu y • po to SUB-DOMAINS SUB-DOMAINS ac verty ty re • food securi hie . ity v impacts of language on health cultural safety un et m he rf m i language revitalisation self-determination and wellbeing Co ul ir lp he ote Aboriginal and Torres Strait Islander language leadership. t nti of al a ng education ah lbei s “We need to own our own risk and that any dramatic shift um wel an b otal “The research shows that knowledge of language helps and change in our circumstances for the better of our children eing, thereby bringing about the t Aboriginal and Torres Strait Islander people strengthen their and families can only come from our own determination, cultural identity, integral to health and wellbeing and by our discipline, commitment and leadership, at an individual extension, the health and wellbeing of society as a whole.” and collective level, in driving the change required.” Craig Ritchie, CEO AIATSIS24 Peter Yu, CEO Nyamba Buru Yawuru25 14 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 15
SELF-DETERMINATION AND LEADERSHIP SECTION 2 Self-determination This can occur through many Today ACCHOs continue to be at Despite the innovation and resilience forms, including the operation of the forefront of ensuring needs- evident within their history, ACCHOs Aboriginal and Torres Strait Islander based service delivery reform. and other community controlled and Leadership community controlled organisations, The implementation of Health sectors have long struggled to Indigenous governance practices, Justice Partnerships (see Box make ends meet under inequitable informal community driven reforms Health Justice Partnerships) within and burdensome funding to services and systems, and community controlled settings to frameworks and processes.31 The through partnerships. address the complex intersection significance of community control between health and legal needs is to self-determination, and of self- Formal partnerships, which ensure another example of Aboriginal and determination to wellbeing, is in The right to self-determination is one of the the full involvement of Aboriginal Torres Strait Islander community stark contrast with the funding central principles enshrined by the United and Torres Strait Islander people driven solutions. arrangements, or lack of funding, in shared decision-making, are Nations Declaration on the Rights of Indigenous that so often leaves community needed at national, state, local These community driven responses organisations and Indigenous Peoples, acknowledging the right to self-govern, and regional levels. To effectively raise important questions for policy leadership vulnerable to changes in participate in decisions and exercise control. embed the expertise, ownership makers about what resources are government. and responsibility of Aboriginal needed for communities to build Freedom to exercise one’s own values and and Torres Strait Islander people, the governance structures for The Close the Gap Campaign beliefs, or culture, is also a critical element.26 partnerships require clear participation in high-level decision continues to call for an equitable arrangements which say who making, and how local needs can funding framework to not only ‘Sustainable development’ is a term that has been coined to is making decisions, how those shape higher-level system reforms. sustain, but expand the work of frame an understanding of self-determination as a “process decisions will be made and what community controlled organisations. premised on the notion that evolving indigenous livelihoods, those decisions will be about. food security, community governance, relationships to The Partnership Agreement on homelands and the natural world, and ceremonial life can Closing the Gap, agreed in March be practiced today locally and regionally, thus enabling 2019 and signed by the Australian ACCHOs – A history the transmission of these traditions and practices to future Government, all State and Territory generations”.27 governments and the Australian Effectively implementing the cultural determinants of health Local Government Association, has of self-determination requires the leadership and self-determination of Aboriginal and set a benchmark for partnerships with Aboriginal and Torres Strait and nation rebuilding Torres Strait Islander peoples. It requires a process whereby Islander people. It sets out how “The first Aboriginal community controlled health service was community define their shared aspirations and lead the design governments and Aboriginal and established by the local Aboriginal community in Redfern in July 1971 and delivery of policies and programs accordingly. Torres Strait Islander peak bodies to address the blatant discrimination experienced in mainstream will work together to agree a new services, the ill health and premature deaths of Aboriginal people, As drawn out in work by Dudgeon et. al. on Indigenous national agreement on Closing the and the need for culturally appropriate and accessible health governance for suicide prevention: Gap, including any new Closing the services.” Aboriginal Health & Medical Research Council of NSW Gap targets and implementation “When communities are in control of process, better outcomes Since that first service in Redfern, Aboriginal Community Controlled and monitoring arrangements. Health Organisations (ACCHOs) have pioneered needs-based primary could be expected. And not only because tailored and culturally health care and social justice driven services across Australia. Today adapted mainstream interventions ‘owned’ (by) a community are For Aboriginal and Torres Strait they form a network of over 141 organisations nationwide. likely to be significantly more impactful. But more importantly Islander people control over health … broader design processes under Indigenous governance will and wellbeing has always been From local community driven organisations, they have created an identify and address other deeper, structural problems that could significant.29 It is a matter that has infrastructure of regional, state and national bodies to ensure more united communities and driven effective knowledge creation and translation, program management also be contributing to suicide, or could protect against it.”28 the establishment of community and political advocacy. Importantly, ACCHOs have provided centres for governed services and advocacy Nation rebuilding where Aboriginal and Torres Strait Islander people bodies over many years (see Box across urban, regional and remote communities have been able to ACCHOs). come together and form governance structures to enact shared decision making and deliver outcomes for their communities. 30 16 | We OURnurture VOICES,our OUR culture CHOICES. for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 17
SECTION 2 SELF-DETERMINATION AND LEADERSHIP SELF-DETERMINATION AND LEADERSHIP SECTION 2 Coalition of Peaks – Collective Action Towards Self-determination The Coalition of Peaks is a “The truth is that the existing and Torres Strait Islander people Closing the Gap framework and governments. It is also an representative body made was doomed to fail when it was acknowledgement that Aboriginal up of almost 50 Aboriginal designed without the input of and Torres Strait Islander people Aboriginal and Torres Strait Islander have been silenced on policies and Torres Strait Islander people,” Pat Turner said, on behalf and approaches to close the gap community controlled of the Coalition of Peaks when the in the past and that outcomes for organisations. It is working 2020 Closing the Gap report was Aboriginal and Torres Strait Islander released by the Prime Minster. people are not going to change with governments to “We know what will work best for without their genuine involvement in finalise a new national our communities and the Prime policies and programs. agreement on Closing the Minister even acknowledges in this (latest) report that our voice was This historic partnership has the Gap. This is the first time the missing ingredient from original potential to transform how Closing the Gap policy and programs are PHOTO: Joint Council on Closing the Gap meeting 23 August 2019, Adelaide, South Australia. L–R: Gavin Jennings, David O’Loughlin, John Paterson, Rachel that Aboriginal and Torres framework.” Stephen-Smith, Ben Wyatt, Jamie Lowe, Vicki O’Donnell, Stephen Wade, Trevor Pearce, Cindy Berwick, Don Harwin, Muriel Bamblett, Pat Turner, Ken designed and delivered. Strait Islander people, The Partnership Agreement, Wyatt, Natalie Lewis, Selena Uibo, David Warrener, Katrina Fanning, Cheryl Axleby Knowing that it is vital that other through their peak body formally agreed by COAG and the Aboriginal and Torres Strait Islander Coalition of Peaks in 2019, sets out representatives, will share how they will work together over the organisations and communities formal decision making next ten years on Closing the Gap. have their say on the next phase of Closing the Gap, the Coalition The Coalition of Peaks have controlled services sector to The Coalition of Peaks is are with governments on It sets a new benchmark for of Peaks has led a series of proposed three Priority Reforms to deliver Closing the Gap services now working hard with Australian policies that affect us. partnerships between Aboriginal engagements across Australia, in change the way governments work and programs in agreed priority governments to ensure the order to hear what changes are with Aboriginal and Torres Strait areas. outcomes of the engagements needed to improve the lives of Islander people and accelerate are reflected in the new National Aboriginal and Torres Strait Islander progress on closing the gap. They • Priority Reform 3: Ensuring Agreement on Closing the Gap, The Coalition of Peaks is a case people. are: all mainstream government which is expected to be finalised in agencies and institutions study in self-determination. We Among many contributions was • Priority Reform 1: Developing undertake systemic and mid-2020. have exercised political agency by leading this from a community member in and strengthening structures structural transformation to Pat recognises that the priority Broome: “Rather than ‘closing the to ensure the full involvement contribute to Closing the Gap. reforms are not new, they are “what the way, challenging the possibilities and gap’, governments should ‘open the of Aboriginal and Torres Strait Aboriginal and Torres Strait Islander The Coalition of Peaks reported creating a future of shared decision- gate’ to Aboriginal and Torres Strait Islander peoples in shared overwhelming support for the peoples have been saying for a long Islander people making decisions decision making at the national, time is needed to close the gap making with governments on policies and that affect their lives.” state and local or regional level Priority Reforms during the and we now have a formal structure engagements. One theme that programs that impact on our people and Reflecting on the success of these and embedding their ownership, responsibility and expertise to regularly emerged was that shared in place to put those solutions to governments.” our communities. engagements, Pat Turner notes close the gap. decision-making depends on all “the conversation is different when parties having access to the same Pat Turner, Lead Convener of the Coalition of Peaks, and CEO of Aboriginal and Torres Strait Islander • Priority Reform 2: Building the information. That is leading to the the National Aboriginal Community Controlled Health Organisation organisations lead the conversation formal Aboriginal and Torres development of local data projects (NACCHO) with our people. It leads to better Strait Islander community as a fourth Priority Reform. outcomes.” 18 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 19
SECTION 2 SELF-DETERMINATION AND LEADERSHIP SELF-DETERMINATION AND LEADERSHIP SECTION 2 Law Yarn – Wuchopperen Health Service For Donnella, it was one of many It documented health and wellbeing health, measuring impact in a range examples she has seen in her work impacts that have been profound of areas, from “being heard and at Wuchopperen of where justice for individuals and the community: validated in a culturally capable Nearly two years ago, a group of Elders in northern They weren’t sure how to get justice and health intersect. less exposure to family violence, way” to “addressing racism and when they already had so many reduced anxiety, improved personal and structural social Queensland were struggling with the process of reasons to distrust government. Others, she said, can be in the connection to health services, exclusion”. It concludes: reclaiming wages that had been stolen for decades by stress of having to go to court, improved financial resilience, Doctors at the Aboriginal eyesight issues that limit capacity increased capacity to exercise “This particular (Health Justice the Queensland Government. community controlled Wuchopperen to respond to letters of demand, Partnership) is much more than rights, prevention of homelessness Health Service, which works on sickness that means someone and support for victims of crime and just about ‘delivering legal advice the traditional lands of the Gimuy- cannot work and therefore cannot historic injustice. in a different space’. It reinforces walubarra yidi, Yirrganydji and pay a fine. It can be that people do community control and self- Wuchopperen Health Service Yidinji peoples in and around not know their rights when they live The evaluation looks particularly determination, and also strengthens represents a home for my mob. I knew Cairns, saw that this worry was with poor plumbing, in overcrowded at the cultural determinants of culture.” affecting the Elders’ health. housing, or with other tenancy that, if we were able to put lawyers in that issues that can affect health and They referred the Elders to their space, that was going to shift the narrative in onsite lawyer Donnella Mills, from wellbeing. a way that my people could access health and the community legal service Law Donnella also describes another Right. Donnella is a Torres Strait case where she acted for a justice, in the one place, through community, Islander woman who is now also young pregnant woman who was through culture, through those systems that chair of NACCHO. experiencing family violence and are able to make us feel strong. “All this historic distrust of likely would have lost custody of Health Justice Partnerships her baby because of a range of government had come into play in structural issues affecting her. The impact of intersecting health and legal needs on Aboriginal Donnella Mills a really strong way,” she says of the and Torres Strait Islander people has been well documented within Stolen Wages case. “It was causing However, the health centre worked inquiries and reports such as the Royal Commission into Black high blood pressure and anxiety for with Donnella to keep the woman Deaths in Custody and Ampe Akelyernemane Meke Mekarle: ‘Little the Elders because they didn’t know and her newborn safe and together. Children are Sacred’: Report of the Northern Territory Board of how to navigate all the different Inquiry into the Protection of Aboriginal Children from Sexual Abuse. systems that were involved.” Donnella says this is a powerful example of the way that the health However, the continual growth in rates of Indigenous incarceration, But having a legal centre that is justice partnership is delivering deaths in custody and child removal indicate a failure to enact the type of systems reforms needed. embedded at Wuchopperen through prevention and early intervention a Health Justice Partnership with in culturally safe ways, stopping Health Justice Partnerships place lawyers in health and wellbeing Law Right has opened a new unmet civil and family issues from services to work collaboratively with health care professionals. pathway to justice. escalating into over-representation They recognise the complexity of health and wellbeing, and that of Aboriginal and Torres Strait unaddressed legal needs (such as housing advocacy, unpaid fines “We did week after week of ‘pop up’ Islander children in out of home and family violence) can have a health harming impact. clinics, we would bring busloads of care and prisons “bulging with our old people to the clinic, we would Health Justice Partnerships are built around a social determinant men and women”. approach to health and wellbeing. Embedding these services within help them with the paperwork and the Aboriginal and Torres Strait Islander community controlled sector give them legal advice,” Donnella A formal evaluation of the extends this rights based approach for Aboriginal and Torres Strait says. Wuchopperen Health Justice Islander people and communities by coupling them with culturally Partnership found that every client As well as returning stolen safe care. experienced better health and wages to around 100 clients, the wellbeing as a result of their legal Health Justice Australia, the national centre of excellence in health Elders gained “a sense of being needs being met, and that 86 per justice partnerships, has recorded 17 health justice services empowered and of finally being cent of those clients would not have located in Aboriginal and Torres Strait Islander support settings, heard about these historical accessed legal support if it had not including 15 partnered with Aboriginal Community Controlled Health injustices.” been based at Wuchopperen. Organisations.32 PHOTO: Donella Mills (Project Lawyer, LawRight), Gail Sevallos (Wuchopperen Health Service) 20 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 21
SECTION 2 SELF-DETERMINATION AND LEADERSHIP SELF-DETERMINATION AND LEADERSHIP SECTION 2 Mäwaya Health Justice Program – answer to wellbeing in Aboriginal These are the sorts of issues that communities across Australia. NAAJA and Miwatj staff now work on NAAJA and Miwatj “Most of our mob go to Aboriginal jointly, with health workers learning skills to untangle legal issues, to ask medical services on a regular basis, clients “how’s it all going with your it’s a safe place, a trusted place, housing?” or ‘”anything of concern Child removal Locating lawyers within It is the first collaboration of its kind people know each other,” says for your kids?”, and to then refer between Aboriginal community health services in remote Priscilla, who is an Eastern Arrernte them for quick legal support, whether In 2018, Aboriginal and controlled legal and health services woman from Central Australia. for housing, discrimination, health or Torres Strait Islander East Arnhem Land in Australia. child protection issues. children were 10.2 times “This is the next big thing, it’s communities is promising Previously, lawyers from NAAJA more likely to be living in changing how an Aboriginal Medical What makes the NAAJA/Miwatj to be a ‘game-changer’ for set up their legal support for East Service and an Aboriginal Legal out-of-home care than collaboration even better is the Yolngu people stopping Arnhem Land communities in front Service work,” she says. non-Indigenous children. of the Yirrkala art centre or in the cultural strength the two community Aboriginal and Torres Strait Islander many legal issues from Nhulunbuy town square. But after As with the program at Wuchopperen, controlled services bring to the children represent 37.3 per cent of the total they moved into a health service, the collaboration is important program. out-of-home care population, including escalating into criminal foster care, but only 5.5 per cent of the their ability to engage with clients because it stops many legal issues The intent is to build the collaboration total population of Australian children. and health issues. and with members of the community from escalating into criminal and from a pilot program to a Health Without urgent action, the number of who had previously not accessed health issues. Justice Partnership. A funding Aboriginal and Torres Strait Islander The arrangement has come about legal services was transformed. children in out-of-home care is projected “The biggest issue for our mob is that proposal and evaluation of the to double within the next 10 years. through a pilot Health Justice NAAJA CEO Priscilla Atkins says that they don’t realise they can treat their pilot is currently with the Australian program, called Mäwaya, between Nationally, Aboriginal and Torres Strait having lawyers working regularly as legal problems early, or don’t identify Government for consideration. Islander children are 2.6 times more likely the Darwin-based North Australian to be developmentally delayed at the age Aboriginal Justice Agency (NAAJA) ‘visiting specialists’ in a health service that something is a legal problem that Priscilla says the dynamics are of five33 and the Miwatj Health Aboriginal that is embedded in the community can be easily addressed,” Priscilla very different when Aboriginal Corporation. and in community ways is a huge says. organisations governed by Aboriginal “Yolngu people have also been people with Aboriginal staff are caught up in unfair practices, working together. for example, where people from “We routinely use interpreters, Having a Health remote communities have been sold all staff—Indigenous and non- Incarceration expensive, inappropriate mobile Indigenous—have to have cultural Justice program phone plans that they did not training, we take direction from our Aboriginal and Torres Strait understand and could not afford— Islander people represent means it is health causing huge debts and anxieties.” Aboriginal board and management, and it’s our Aboriginal board and 28 per cent of the total adult working hand in PHOTO: NAAJA and Miwatj staff Children have been taken into care members who ensure we are prison population34 despite delivering co-located services hand with justice. under the Mäwaya Health Justice because of ‘failure to thrive’ when a following cultural protocols in making up 2% of the total Program at Gunyangara Clinic, child actually has a medical issue that community and working respectfully Australian adult population35 The impact on East Arhem Land was not identified by child protection with the Elders in the community,” Aboriginal and Torres Strait Islander she says. health issues is huge L–R: Michaela Vaughan, Gayili Marika, Jordina Rust, workers because they did not use an young people are 17 times more likely to be under youth justice supervision than interpreter when talking with people if we’re addressing Vernon Patullo non-Indigenous young people.36 for whom English is a third or fourth Aboriginal and Torres Strait Islander legal issues at an language. women represent 34 per cent of the prison population37 and more than 80 per cent of early stage. Mäwaya was a name given to this project by Miwatj’s Raypirri Rom Aboriginal women in prison are mothers38 Research on the health and wellbeing (Social and Emotional Wellbeing) workers who are all Yolngu people. Priscilla Atkins, of Aboriginal mothers in prison has It is common when translating Yolngu Matha into English for words to found that intergenerational trauma and CEO, NAAJA have multiple meanings. Mäwaya is a term that can apply to thoughts of the forced removal of their children by respect, money, family, housing, health, harmony and peace. The term government services were the most significant factors affecting the health and reminds Yolngu of their roots, where they come from and who they are. wellbeing of Aboriginal women in prison.39 22 | We nurture our culture for our future, and our culture nurtures us. We nurture our culture for our future, and our culture nurtures us. | 23
You can also read