Victorian HIV strategy 2017-2020 - Living Positive Victoria
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The Department proudly acknowledges Victoria’s Aboriginal community and their rich culture and pays respect to their Elders past and present. We acknowledge Aboriginal people as Australia’s first peoples and as the Traditional Owners and custodians of the land and water on which we rely. We recognise and value the ongoing contribution of Aboriginal people and communities to Victorian life and how this enriches us. We embrace the spirit of reconciliation, working towards the equality of outcomes and ensuring an equal voice.
To receive this publication in an accessible format phone (03) 9096 1790 using the National Relay Service 13 36 77 if required, or email bbvsti.information@dhhs.vic.gov.au. Authorised and published by the Victorian Government, 1 Treasury Place, Melbourne. © State of Victoria, Department of Health and Human Services, June 2017. Except where otherwise indicated, the images in this publication show models and illustrative settings only, and do not necessarily depict actual services, facilities or recipients of services. This publication may contain images of deceased Aboriginal and Torres Strait Islander peoples. Where the term ‘Aboriginal’ is used it refers to both Aboriginal and Torres Strait Islander people. Indigenous is retained when it is part of the title of a report, program or quotation. ISBN 978-0-7311-7261-0 (Print) 978-0-7311-7262-7 (PDF/online) Available at https://www.health.vic.gov.au/sexualhealth Printed by Finsbury Green, Melbourne ii
Contents Minister’s foreword iv Our vision 1 Introduction 3 HIV in Victoria 6 What you told us 8 Prevent10 Test13 Treat14 Stigma and discrimination 17 Victorian HIV strategy 18 Priority focus area 1: Victorians are supported to prevent HIV transmission 20 Priority focus area 2: Victorians with HIV will know their status 23 Priority focus area 3: Victorians with HIV have access to best practice evidence-based treatment and care services, and are supported to achieve an undetectable viral load 24 Priority focus area 4: Victorians and affected communities are empowered to speak up about stigma and discrimination 27 System enabler 1: The Victorian workforce has the skills, knowledge and attitudes needed to deliver best practice HIV prevention, testing, treatment and care 28 System enabler 2: Victoria’s service systems across the continuum of prevention, treatment, care and support are coordinated and integrated, and meet the needs of people living with and affected by HIV 31 System enabler 3: HIV services and outcomes are improved in Victoria by supporting research and evaluation, and improving the quality and completeness of data 32 Next steps: toward 2020 and 2030 34 Victorian HIV strategy 2017–2020 iii
Minister’s foreword I am delighted to release the Victorian HIV strategy 2017–2020. Our vision for people living with To achieve our bold targets we HIV now is that they are able to must build on these successes, lead long and healthy lives and and make prevention tools participate fully in a Victoria like treatment as prevention free from discrimination. and pre-exposure prophylaxis This HIV strategy sets out easily understood and more our pathway to this vision accessible, while sustaining built around four key pillars: and revitalising traditional HIV prevention, testing, treatment, prevention strategies such as and the elimination of stigma condom use and safer injecting and discrimination. practices. We must also continue our efforts to research, For the first time, eliminating We are at a pivotal moment in trial and evaluate advances stigma and discrimination the HIV response. Our research, in testing technology and is now front and centre in policy and service delivery treatment. our approach. The Andrews innovations have created the Labor Government wants to In undertaking these efforts, opportunity, for the first time, make it clear that stigma and we must never lose sight of to virtually eliminate new HIV discrimination experienced what matters most: the health notifications in Victoria. by people living with HIV is and wellbeing of people living Victoria has been at the completely unacceptable. with, affected by, and at risk forefront of pre- and post- of HIV. This is a period of Ongoing consultation with the exposure prophylaxis, treatment hope. Together we have the sector and collaboration with as prevention, the promotion opportunity to create a better affected communities has of risk-reduction practices and future for those living with and informed and strengthened the elimination of stigma and affected by HIV. our approach. Now, in discrimination. Our history partnership with these and of community activism and other stakeholders, we will lead advocacy, in partnership with this charge to reinvigorate and clinicians, researchers and refocus our efforts to achieve governments, has helped our vision. Australia maintain one of the The Hon. Jill Hennessy MP lowest rates of HIV in the world. Minister for Health iv
Our vision By 2020 we aim to virtually eliminate new HIV transmissions. By 2030 Victoria will eliminate stigma and discrimination associated with HIV and achieve the 95-95-95 targets for diagnosis, treatment and viral suppression. Our objectives Victorians are supported Victoria will sustain the virtual to reduce their risk of elimination of HIV transmission contracting HIV. among sex workers and from mother to child. Victorians with HIV know their status. Victoria will sustain low rates of HIV transmission among Victorians with HIV will have both people who inject drugs, access to best practice and also among Aboriginal and treatment and care. Torres Strait Islander people. People living with HIV (PLHIV) With this strategy Victoria and affected communities are will set bold targets to increase free from HIV-related stigma prevention, testing and and discrimination. treatment, and to reduce stigma and discrimination. “Overcoming HIV stigma is our greatest challenge. When people live with fear of disclosing their HIV status, are faced with ignorance and dismissed by their families and communities or have to face unnecessary scrutiny of health care providers then shame overshadows their lives.” Brent Allan Chief Executive Officer Living Positive Victoria Victorian HIV strategy 2017–2020 1
“Victoria has a remarkable opportunity to harness the momentum in HIV science, policy and advocacy to achieve our ambitious goals: eliminating new HIV transmissions by 2020 and improving the lives of people living with HIV.” Associate Professor Edwina Wright The Alfred Hospital and the Burnet Institute 2
Introduction Recent significant advances in science, research and technology make Victoria’s ambitious time-bound HIV targets entirely achievable. The introduction of antiretroviral health services have been to the greater and meaningful therapy in the mid-1990s enabled developed, led and delivered involvement of people living with people with HIV to live longer by affected communities. This HIV. The Greater/Meaningful and healthier lives. Over the world-class response is defined Involvement of People Living past 10 years, the effectiveness by a unique partnership with with HIV/AIDS (GIPA/MIPA) of antiretroviral therapy has community members, clinicians principles underpin this strategy, improved considerably, changing and researchers. The Victorian and are the backbone of the the clinical care needs of people Government is committed to Victorian partnership model. living with HIV. As demand for maintaining and strengthening Achieving the vision outlined inpatient care has declined, this partnership. in this strategy will require the demand for community- This HIV strategy provides Victorian HIV partnership to based care and support has a comprehensive plan for have a holistic understanding grown. With it, new challenges achieving the strategic of the individual within a social associated with ageing and directions for sexual and model of health framework. chronic conditions have reproductive health outlined in People will not be viewed emerged. More recently, new in the Victorian public health solely through the lens of their science has driven significant and wellbeing outcomes HIV status, but understood advances in biomedical framework 2015-2019. This will in the context of their social, prevention and treatment assist in tracking progress environmental, economic and strategies for HIV. and outcomes, and provide cultural status. By partnering HIV continues to disproportionately a transparent approach to with communities, organisations, affect gay and bisexual men. monitoring and reporting. In and the individuals they While it has never been confined addition to the target of the represent, the Government can to a single population or virtual elimination of new better understand and support community, our awareness of HIV transmissions by 2020, the actions necessary to how it affects different people the Victorian Government is improve their collective health. has changed and increased. committed to combination This strategy provides the prevention strategies, In the context of this change, framework and rationale for increased testing rates for all there is an opportunity and a whole-of-system approach sexually transmissible infections responsibility to strengthen to designing, targeting and (STIs), access to treatment, and the current service system evaluating Victoria’s system the promotion of safer sex and to ensure greater integration of HIV care. This system will be harm reduction practices. between mainstream primary sensitive and responsive to the and community care and The Victorian Government changing needs of people living specialist programs. recognises that the experience with and affected by HIV, and of discrimination and stigma will work to ensure a refreshed Victoria’s HIV response has been remains an obstacle to people approach to integration along defined by successes across the seeking important prevention, the continuum of prevention, spectrum of health promotion, treatment, support and care testing, treatment and care. prevention, testing, treatment, services. Victoria is committed workforce development and surveillance. Victorian HIV Victorian HIV strategy 2017–2020 3
Introduction (continued) Importantly, this strategy will also focus on building a clinical What is HIV? HIV prevention and treatment HIV (human immunodeficiency virus) is a virus that infects cells system to coordinate access of the immune system, destroying or impairing their function. to pre-exposure prophylaxis As the infection progresses, the immune system becomes (PrEP), post-exposure weaker and the person is more likely to be affected by other prophylaxis (PEP), testing infections and illnesses. and treatment where people live, through primary and If untreated, HIV infection can progress to AIDS (acquired community care. Undertaking immunodeficiency syndrome). This means the body is unable individual, community and to fight off most infections and illnesses. AIDS usually takes system-level engagement many years to develop. In Australia, because treatment is about the range of available widely available, very few people develop AIDS. combination prevention HIV is most commonly transmitted through sex without a condom activities will renew Victorian or through sharing needles and other injecting equipment. efforts to virtually eliminate new HIV transmissions by 2020 and With the success of antiretroviral therapy, HIV infection is now achieve the 2030 diagnosis, considered a chronic condition rather than a fatal disease, as treatment and undetectable these treatments can effectively manage and suppress it. viral load targets. Importantly, these treatments can effectively reduce the viral load in people living with HIV to undetectable levels, meaning that the risk of transmitting the disease to others is negligible. HIV, wellbeing and the social determinants of health HIV cannot be viewed in isolation. Many people violence, and the ability and autonomy of living with or at higher risk of HIV experience people to manage their own health. All of other conditions and complexities that affect these can affect the ability of people to adopt their ability to manage their HIV, or their risk prevention strategies, test regularly for HIV of contracting it. and other STIs, or adhere to HIV treatments. Prevention, testing, treatment and stigma In supporting them to manage their health, must be viewed in the context of various factors clinicians and community organisations including: gender and gender identity; race, must consider these factors in providing nationality and linguistic identity; disability; comprehensive care to affected people education, employment, income and housing and communities. This requires all sectors status; mental health; and other medical of the HIV response to collaborate on the conditions. An effective HIV response must also development of clear, robust linkage strategies consider personal and contextual factors such and referral pathways, ensuring everyone is as the power dynamics within relationships able to access the care they need. and social groups, family and intimate partner 4
Changing health needs – HIV and ageing Across the developed world, people living with HIV are ageing. With this comes increasing complexity and comorbidities. As this population ages, gaps in service provision become evident, as do opportunities to evolve programs that will enable people to age well with HIV. In 1985 the proportion of people living with HIV in the over-55 age group was 2.6 per cent. By 2000 it was 10.9 per cent, and by 2010 it was 22.3 per cent. It is estimated that by 2020 the number of people living with HIV aged over 55 years in Victoria will be 38.5 per cent. Our efforts should be directed to understanding the long-term health consequences of HIV as the population of people living with HIV ages. Compared with the general population, people living with HIV are at higher risk for diseases associated with the ageing process, including cardiovascular disease, osteoporosis, neurocognitive dysfunction and some cancers. “Visibility is crucial for people living with HIV. Each of us has different needs based on our individual identity and personal experience. We need to support the minorities within the minority – women, Aboriginal and Torres Strait Islander people, and others – to help them live well with HIV.” Bev Greet OAM Co-founder Positive Women Victoria Victorian HIV strategy 2017–2020 5
HIV in Victoria There are more than 7,800 people living with HIV in Victoria. Figure 1: Victoria’s progress Over time, the population of against the 90-90-90 2020 people with HIV in Victoria has Did you know? targets, December 2016 increased for several reasons, including dramatically reduced Melbourne is Australia’s There are more than mortality due to the availability first Fast-Track City 7,800 of highly effective antiretroviral The Victorian Government, therapies, migration of in partnership with the people with HIV to Victoria City of Melbourne, has Victorians living from interstate and overseas, committed to a global with HIV and new transmissions. initiative to fast-track local 90% In Victoria, men who have responses to HIV and AIDS. sex with men – including gay The goal of Fast-Track Cities and bisexual men – is the is to attain the UNAIDS know their status population most affected by 90-90-90 targets: 90 per HIV. There are several known cent of people who are HIV- of these risk behaviours associated positive know their status; 84% are on treatment with HIV transmission. The most commonly reported exposure to HIV in Victoria is 90 per cent of people who are HIV positive are on treatment; and 90 per cent with antiretrovirals condomless anal intercourse of people on HIV treatments without the use of biomedical have an undetectable viral prevention strategies. load (see Figure 1). and 78% Almost one in five notifications Melbourne and Victoria occur among other priority are among the most populations such as women, successful Fast-Track of those on treatment have travellers, Aboriginal Victorians, Cities participants to date. an undetectable viral load young people and people from Along with Amsterdam, culturally and linguistically San Francisco and Denver, diverse communities. Melbourne has already With increased use of PrEP, achieved its diagnosis better understanding of target, and has some of the treatment as prevention highest rates of treatment (TasP), increased community and undetectable viral load awareness and use of risk- in the world. reduction practices, increased migration and mobility between Victoria has been extremely Victoria and high-prevalence successful in sustaining the countries, and different virtual elimination of HIV patterns of drug use, the transmission among sex workers diversity, size and demography and from mother to child. of Victoria’s HIV epidemic is Victoria has also successfully continually changing. sustained a low incidence of HIV in both Aboriginal people and 6 in people who inject drugs.
Victoria’s priority populations As the demographic profile of challenges these populations HIV changes in Victoria we have face when living with or at an urgent challenge, as well as risk of HIV. Both experience an opportunity, to focus our significant disadvantage as efforts on those who are most a result of the intersection of vulnerable and most affected gender and gender identity by HIV. These people include: with other socioeconomic • people living with HIV factors, placing them at greater risk of harm. • gay, bisexual and other men who have sex with men The Government acknowledges • Aboriginal and Torres Strait that HIV can affect anyone, Islander people regardless of whether they • culturally and linguistically belong to a priority population. diverse and refugee Victoria also acknowledges communities that there are specific sub- population groups, such as • people from or who travel international students, people to high-prevalence countries with disability, older people • people who inject drugs living with HIV, people who are • prisoners co-infected with other blood- • sex workers borne viruses (BBVs) and rural • young people and regional residents, who will • transgender and gender require tailored responses. diverse people People living with and affected • women at greater risk of HIV by HIV are central to Victoria’s HIV response. Their experience, The Victorian Government is engagement and participation strongly committed to equality are essential in the development regardless of gender or gender of our programs and policies. identity. Accordingly, this People living with HIV must be the strategy includes both women focus of – and equal partners in and trans and gender diverse – their treatment, care and other people as priority populations decisions that affect their lives. in their own right. This strategy recognises the unique “Our renewed focus on prevention, testing and treatment must be mindful of the diversity of people affected by HIV. Our collective efforts must consider the whole person – not just their risk factors – and how stigma impacts their engagement and wellbeing.” Associate Professor Mark Stoové Head of Public Health Discipline Victorian HIV strategy 2017–2020 7 The Burnet Institute
What you told us The Victorian Government consulted with a wide range of people living with and affected by HIV, as well as the community, health professionals and researchers. These consultations focused on prevention, treatment and care, bringing together participants from a diverse range of backgrounds and organisations. The numerous ideas and comments summarised below reflect the energy and enthusiasm of all involved to be part of a bold new vision for HIV. This invaluable process helped inform Victoria’s strategic response to HIV. ‘Our society is changing and we are slowly gaining equality including naming racism, trans and homophobia. HIV stigma is still very real. We have to work together to ensure no one is left behind.’ ‘Our services should reflect the changes that we are seeing and that they should also be welcoming and safe for all people with or affected by HIV.’ ‘We are at a pivotal point in the epidemic. We have exciting new tools and science driving our ability to eliminate this virus. We must do everything to use these opportunities.’ ‘If we keep doing more of the same, we will get more of the same. It is time to do our work differently, to be bold and innovative and move from merely managing this epidemic to eliminating it.’ “Victoria’s inclusion of women as a priority population is a significant step in addressing the stigma, discrimination, and violence experienced by women living with and at greater risk of HIV. Our strength and resilience will help Victoria end the HIV epidemic.” Christabel Millar Health Promotion Coordinator Positive Women Victoria Board of Directors Living Positive Victoria 8
Overview of consultation findings • There have been significant • Scientific advances mean achievements to date in HIV our services need to change prevention and in challenging to capitalise on these. stigma and discrimination, • Models of care need to be setting a positive precedent collaborative, integrated, for continuing success into coordinated, linked to other the future. services and supports, and • Legislative reform in Australia tailored to the individual/ has introduced a broader population. It was reiterated acceptance, visibility and that empowerment of mainstreaming of lesbian, gay, individuals and peer-led bisexual, transgender and strategies will be critical to intersex (LGBTI) communities. future success. This has affected how • Across all priorities the connected people are importance of targeting to either mainstream or and tailoring to diverse LGBTI communities. populations was emphasised. • Technology and social media Of note, international students, changes are reworking women at greater risk and the way in which people travellers were highlighted as are forming relationships, populations requiring targeted socialising, connecting to and tailored programs. communities and accessing • Community health literacy, health information and sexuality education in schools support. This is most and clinical education present apparent in people under 30 “It’s important for the important opportunities to years of age and presents make real gains across all HIV sector to listen to opportunities for evolving our people from culturally objectives. prevention responses. • There is also a significant and linguistically • There is a shared vision need to continue to address diverse backgrounds. for revitalising primary stigma and discrimination, Understanding them prevention, increasing early detection and facilitating improve workforce capacity, is important to better and undertake further prevention and early and rapid access to targeted research. treatment commencement. treatment of HIV.” The refreshed strategies put • Normalising and increasing Cristian Cortes Garzon forward by participants had testing and integration with Systems Project Officer common elements of multi- STI testing, and introducing Living Positive Victoria sector partnership, community an annual testing day, were collaboration and peer leadership, Co-founder all highlighted, as were all of which set a basis for building LGBTI Latinx and Hispanics innovative peer-led and social collective impact for change. in Australia media approaches. Victorian HIV strategy 2017–2020 9
Prevent In the past five years, new evidence has driven significant advances in biomedical prevention and treatment strategies for HIV. Combination prevention relies can reduce the risk of HIV on the use of new rapid HIV transmission by around 99 testing technologies, biomedical per cent. It is transforming approaches such as PrEP prevention efforts across the and TasP, and community world. This is a game-changing mobilisation and behavioural tool for preventing HIV. strategies all working together Increased awareness of PrEP, to reduce the transmission of TasP and undetectable viral load HIV (Figure 2). Combination has changed how individuals prevention conceives of the role and communities view HIV. of treatments in a new way. In It has prompted important addition to its health benefits for conversations about prevention people living with HIV, treatments and HIV status and had a prevent onward HIV transmission profound impact on HIV stigma. by reducing the virus to undetectable levels. It is essential to retain a central focus on condom use and harm Treatment as prevention (TasP) reduction efforts in preventing is one element of combination transmission. Condoms and “Victoria has a proud prevention. It is a term that harm reduction approaches, like describes the use of antiretroviral history of community needle and syringe programs, therapy to reduce HIV viral load activism, in many ways not only protect against HIV but to undetectable levels, preventing also other BBVs and STIs. We leading the country onward transmission of infection. must incorporate and increase in the HIV response. In this way, treatment is now access to new biomedical tools By breaking down being used as a community-level and approaches. prevention strategy. barriers and forging partnerships across the Improved understanding of TasP Figure 2: Key elements in the and undetectable viral load has fight against HIV sector, as we’ve done resulted in a highly effective with PrEP, Victoria can intervention being added to the Condoms support communities growing suite of HIV prevention to take charge of their strategies. It underlines the importance of developing rapid PrEP own health.” linkage to care models, building Chris Williams, Co-founder the primary care workforce to PEP improve regular screening, and PrEP’d for Change supporting treatment uptake Michael Whelan and adherence. TasP/undetectable Vice Chair PrEP is another highly effective viral load PrEPaccessNOW tool for HIV prevention. Clinical studies have shown that, Harm reduction when taken consistently, PrEP 10
PrEPX study Taking action to prevent HIV PrEPX is a landmark public health research study In addition to well-established launched in 2016 that aims to provide HIV prevention prevention programs, the government medication to 3,800 Victorians at greater risk of HIV. is implementing innovative and bold The plan is to decrease HIV notifications by up to 25 approaches to achieving its prevention per cent over the coming years. The PrEPX study is targets. Victoria’s response supports the a co-designed and co-funded initiative between the development and funding of community- Victorian Government, Alfred Health and the Victorian led campaigns and services that have AIDS Council. The study will reorient the Victorian HIV been able to adapt to rapidly changing testing and treatment model to achieve the target of science and technologies. the virtual elimination of new HIV infections by 2020. Importantly, the design of the study embeds access to PrEP within primary care. This model provides a platform “To improve sexual health for supporting a comprehensive approach to improving sexual health testing and treatment for Victorians at screening among communities higher risk, potentially tripling the annual volume of like trans and gender tests conducted. diverse people, we need to Unique to the PrEPX study is the involvement of a understand the unique number of community pharmacies, which have been and diverse needs of each engaged to dispense PrEP to enrolled participants person. A one-size-fits-all to support accessibility and a familiar model of care. approach will not work.” PrEPX has been implemented across metropolitan Melbourne and rural and regional Victoria. Jeremy Wiggins Co-founder, PASH.tm PrEP guidance for practitioners Project Lead The Victorian guidance on PrEP is now available Victorian AIDS Council online at . It provides medical practitioners with information on PrEP for preventing HIV transmission and supports a high standard of sexual health care when PrEP is prescribed. PEP program The administration of PEP for HIV represents secondary prevention when primary prevention has failed. It involves the use of medication (typically a combination of antiretroviral drugs) within 72 hours to reduce the risk of HIV transmission following a known or possible exposure to infected blood or body fluids. The Victorian PEP program works on a hub-and-spoke model, with Alfred Health as the central hub providing the primary access point. People who need PEP are referred to the closest ‘spoke,’ which includes selected general practitioners such as s100 prescribers, hospital emergency departments or infectious diseases units, and sexual health clinics across metropolitan and regional Victoria. The antiretroviral treatments are funded and distributed by Alfred Health to the PEP providers as required. Victorian HIV strategy 2017–2020 11
PRONTO! PRONTO! is a peer-led, community-based rapid testing service run by the Victorian AIDS Council, in partnership with the Burnet Institute. It facilitates easy “Effective HIV prevention and frequent testing, which is more than providing is critical to helping people condoms and PrEP. know their status and linking People at risk of HIV need them into treatment. information tailored to their PRONTO! has increased its particular needs, provided reach through innovative outreach strategies, and in places and communities expanded its services. It now where they are safe and offers STI screening, and is supported, living free from co-located with Equinox, a stigma and discrimination.” dedicated general practice for trans and gender Simon Ruth diverse people. Chief Executive Officer Victorian AIDS Council 12
Test In recent years, innovative models of HIV testing have emerged from new technologies and service redesign, improving access to and frequency of testing and reducing waiting times for results. To significantly increase HIV testing in populations at greater risk, diversifying testing models and approaches should be central to efforts to remove barriers so more people can test more often. HIV testing is a key HIV remove barriers to testing and Regular testing also provides prevention strategy for priority improve knowledge about the opportunity to test for populations in Victoria and the need for regular testing other STIs and to reinforce Australia. It aims to decrease among health professionals information about prevention the number of people who and the community. messages and options. are unaware of their HIV Behavioural survey data status. A growing body of indicates that fear of stigma evidence suggests that early in health settings, the Melbourne detection of HIV promotes early commencement of antiretroviral inconvenience of some current Sexual Health treatment, before the immune testing models, off-putting Centre Test and clinical testing environments system sustains significant and difficulties in getting Go (TAG) clinic damage. This leads to positive appointments are common Test and Go (TAG) is outcomes such as protection barriers to testing. Home-based Melbourne Sexual Health against opportunistic illnesses, HIV testing could potentially Centre’s innovative non-AIDS conditions such address some of the barriers nurse-led sexual health as cardiovascular disease and may also be useful for testing service for gay and cognitive impairment, people who may otherwise and bisexual men and and overall mortality. Earlier be reluctant to return for other men who have sex detection of an HIV infection test results and/or to access with men. TAG provides depends on increased coverage traditional testing services. a convenient express and frequent testing. Models of care, including service offering 15-minute Testing efforts should focus appointments, with tests specialist outreach and on identifying people with HIV for HIV, syphilis, chlamydia consultancy, counselling and who remained undiagnosed, and gonorrhoea. rapid links into primary care and providing support and must adapt to support these The appointment involves referral pathways to rapid more flexible testing approaches. a short meeting with the linkage to health care. It is By expanding our targeted nurse followed by self- critical to normalise HIV testing sexual health screening and collection of samples and to build a culture of early BBV testing efforts through local for testing. and regular screening for primary and community care priority populations such as services we will decrease the gay men, transgender people, number of people undiagnosed women at greater risk, and and increase early detection of men who have sex with men. new infections. To achieve this we need to Victorian HIV strategy 2017–2020 13
Treat Supporting people to link into care and commit to it is fundamental to HIV treatment and prevention efforts and to improving the health and wellbeing of people living with HIV. Improving the system response to treatment retention in care and adherence to treatment will aid efforts to achieve Victoria’s 95-95-95 goals by 2030. The updating of the specialist care services, Comprehensive coverage and antiretroviral guidelines to the provision of ongoing, access to antiretroviral therapy remove restrictions for initiating patient-centred care in local is essential for increasing the first-line antiretroviral therapy settings and support for self- number of people living with HIV has allowed people to begin management. We also need to who have an undetectable viral treatment immediately after consider the needs of people load. This will improve health diagnosis and achieve viral living with HIV who are ageing outcomes for individuals and suppression quickly. A focus and how HIV services are best strengthen the level of health on rapid linkage to care post integrated into aged care protection in the community. diagnosis is essential for support services. Access to treatment can also be individual and public health. Shortening the time between supported by providing services The requires us to acknowledge diagnosis and treatment and close to where people live. This is the increased health needs of care assessment is essential particularly an issue for those people living with HIV, notably for improving the long-term living in rural and regional the disproportionately high health of people living with Victoria. Strengthening the incidence of mental health HIV. Strong referral pathways capacity of primary health conditions. to HIV treatment assessment, services to provide ongoing HIV Because of the incredible management and peer support care and to provide innovative advances in HIV treatment, HIV are vital to improving individual specialist outreach services are is now considered a treatable and community wellbeing and just some of the ways access is chronic illness rather than reducing the risk of further being improved for Victorians a terminal condition. This is transmission. Amid efforts to living in regional areas, as good news; people with HIV are achieve this goal, we must well as for those living in outer living longer and with much acknowledge that the needs of metropolitan Melbourne. improved health outcomes. We people with HIV will vary. Some need to reframe our services people will be well supported to best support access to by mainstream services, while care, long-term adherence to others may require a more treatments and optimal chronic intensive or specialist response. disease management. Ultimately, the decision to start treatment is up to the individual, This requires improving with information and advice integrated pathways between from their doctor. community, primary and 14
“This is the most important and exciting time in HIV prevention. Getting this right will prevent countless infections. And getting it right means making access to prevention, testing and treatment as easy as possible. We have a real opportunity to show the world how it is done.” Professor Kit Fairley Director Melbourne Sexual Health Centre Victorian HIV strategy 2017–2020 15
“Stigma is its own sort of disease. It injures and paralyses us, preventing us from looking after our own health and wellbeing. As an HIV community, our primary focus must be reducing stigma, and helping people build resilience in order to confront it.” Richard Keane President Living Positive Victoria 16
Stigma and discrimination Stigma and discrimination are the greatest challenges we face in the HIV response. Addressing stigma is remarkably Government is committed to difficult. It is often multifaceted, working in partnership with Repeal of with elements of enacted or affected communities, carers section 19A of external stigma, and internalised and clinicians to improve or perceived stigma. It is the lives of Victorians living the Crimes Act exacerbated by its intersection with or affected by HIV. Their Victoria has worked hard to with other stigmatised experience and participation is remove structural HIV-related characteristics or identities. invaluable in dispelling the fear stigma and discrimination. These include but are not limited and misconceptions that fuel The Victorian Government to gender identity, injection drug stigma and discrimination. recently repealed s 19A of use, sexual orientation, cultural the Crimes Act 1958, an identity, religious affiliation HIV-specific provision that and disability. Involvement imposed severe penalties of people living for intentionally infecting Our efforts to reduce and eliminate stigma must with HIV another person with HIV. This change signifies the acknowledge the intersectionality At the United Nations, Australia government’s commitment of stigmatised identities as has endorsed the principles to advancing the dignity they relate to HIV. The pervasive of the Greater Involvement of and human rights of presence and significant impact People Living with HIV/AIDS people affected by HIV of homophobia, transphobia and (GIPA) and the Meaningful and to counter stigma and biphobia must be acknowledged. Involvement of People Living discrimination. Repeal of We should focus on building and with HIV/AIDS (MIPA). GIPA s 19A removes barriers to supporting resilience among and MIPA have informed testing for HIV, which will those living with and at risk of HIV, Australia’s HIV response support early detection and challenging interpersonal for nearly 20 years, and are and early treatment for and community-level attitudes affirmed in this strategy. individuals, resulting in toward HIV, and diverse genders The greater and meaningful better health outcomes for and sexualities. involvement of people living Victorians and improved All parts of the service system with HIV, and of all affected public health management need to be free from stigma communities, is essential of the epidemic. and discrimination, including to all aspects of the HIV ensuring our services meet response. The Victorian the differing needs of people Government is committed affected by HIV from diverse to working in partnership priority population groups. We with communities, carers must also work in partnership and clinicians to improve to remove barriers across the the lives of Victorians living legal, regulatory, policy and with or affected by HIV. Their social domains. experience and participation The meaningful involvement of is invaluable in dispelling the people living with HIV is critical fear and misconceptions that in achieving this. The Victorian fuel stigma and discrimination. Victorian HIV strategy 2017–2020 17
Victorian HIV strategy By 2020 we aim to virtually eliminate new HIV transmissions. By 2030 we aim to eliminate stigma and discrimination related to HIV and achieve the 95-95-95 targets for diagnosis, treatment and viral load. Priority objectives Victorians with HIV PLHIV and affected Victorians are Victorians with will have access communities are supported to HIV will know to best practice free from HIV- reduce their risk of their status evidence-based related stigma and contracting HIV treatment and care discrimination Priority focus areas Victoria will achieve its objectives through actions that focus on people, communities and the health system. It will act in partnership with researchers, clinicians, community organisations, policy makers, and people living with and affected by HIV. Increase Increase Increase Eliminate stigma prevention testing treatment and discrimination Victoria will sustain the virtual elimination of HIV transmission in people who inject drugs, among sex workers and from mother to child. System enablers Strengthening the Victorian health system will: • ensure the Victorian workforce has the skills, knowledge and attitude needed to deliver best practice HIV prevention, testing, treatment and care • integrate systems and settings to meet the needs of people living with, affected by, or at risk of HIV • improve the quality and completeness of HIV data collection and support research. Priority outcomes for 2030 The proportion of The proportion The proportion The proportion of all people with HIV of all PLHIV who of PLHIV with an people experiencing who are diagnosed are accessing undetectable viral and reporting HIV- will be: appropriate load will be: related stigma and treatment will be: discrimination will be: 95% 95% 95% 0% 18
“The gender inequity experienced by women prevents them from accessing the HIV services they desperately need. If women are to receive effective support in the HIV response, we need to remove the structural and cultural barriers that affect their health outcomes.” Alison Boughey Executive Officer Positive Women Victoria “People from refugee and migrant backgrounds, asylum seekers and international students are all important parts of the solution to achieving the elimination of new transmissions by 2020. HIV prevention and care needs to be accessible and inclusive in order to meet the needs of all priority populations.” Alison Coelho Manager Multicultural Health & Support Service Centre for Culture, Ethnicity & Health Victorian HIV strategy 2017–2020 19
Priority focus area 1: Victorians are supported to prevent HIV transmission Priority actions: What will be Increase knowledge of Increase access to different: HIV prevention biomedical prevention • Victorians know what to • Sustain and refresh HIV • Expand PrEP and PEP access, do to prevent HIV and health promotion strategies particularly in rural and are supported to do so. including implementing regional areas, pending a • Victorians are supported new and innovative social listing on the Pharmaceutical to use harm reduction media strategies. Benefits Scheme (PBS). strategies to reduce • Promote PrEP and PEP • Advocate with the the risk associated access among priority Commonwealth to list PrEP with BBV transmission. populations, and identify and PEP on the PBS to • Health professionals new access points. support universal access. have the knowledge • Provide contemporary • Increase frequency of testing and understanding to prevention programs in a and use of prophylaxis provide contemporary range of settings including medication (PrEP and PEP) prevention advice. schools, community health among priority populations. • There is an overall and services and prisons through • Enhance harm-minimisation ongoing reduction in a collaboration between the and HIV risk-reduction new HIV notifications departments of Health and approaches, working with in Victoria. Human Services, Justice and people who use drugs by • Biomedical prevention Regulation, and Education providing sterile injecting drugs are made and Training. equipment, safe injecting available to enable • Work with Aboriginal and other drug harm Victorians to manage Victorians living with or at reduction education. their health. higher risk of HIV to develop • Increase sexual health testing • Safe sexual and tailored prevention and in priority populations and injecting practices health promotion activities. key communities at higher are practised among • Improve TasP literacy among risk of HIV. priority populations. people living with HIV and • Maintain peer education • Victorians who other priority populations. and outreach efforts for experience greater • Ensure people living with or at sex workers and ensure inequity and who are higher risk of HIV understand non-discriminatory at increased risk of HIV the action required to stop access to regular sexual are the focus of renewed transmission of HIV. health screening. prevention efforts. • Ensure Victorian health professionals have the knowledge to provide current and accurate advice on prevention options. 20
“PrEP has transformed the way people think about HIV risk. It has empowered many in their sex lives while leading major reductions in HIV transmission. Raising PrEP awareness and expanding access will be key to achieving virtual elimination of HIV transmission.” Brian Price Business and Community Services Manager Alfred Health Victorian HIV strategy 2017–2020 21
“Young people’s experiences and understanding of HIV, stigma, and belonging are unique to this generation. If we are to be meaningfully involved in the HIV response of the future, we need appropriate, equitable and responsive ways to engage.” Tim Krulic Health Promotion Officer Living Positive Victoria 22
Priority focus area 2: Victorians with HIV will know their status Priority actions: What will be • Promote and support peer- Increase knowledge of the different: need to test led community-based rapid • Victorians with HIV know HIV testing programs across • Increase awareness among regional and rural Victoria, their sero-status, are priority populations about the targeting key settings, diagnosed early and are benefits of testing regularly locations and populations. supported to do so. for HIV and knowledge about • Victorians at greater • Increase primary-care- how often they should be risk of HIV understand based testing to improve tested, especially among the need for frequent access and normalise regular communities historically regular testing. testing in primary and considered at low risk. community settings. • Regular testing is • Implement a strategy to normalised within • Review and modernise the promote testing every priority populations requirements for training and three months. and is available across competencies for pre- and • Investigate systems for opt-in post-test counselling. community and testing reminders to support primary care settings, • Work with a range of individuals to undertake particularly in areas of providers, including Primary regular testing. high need. Health Networks, to increase • Ensure Victorian health regular and opportunistic • Testing services meet professionals are aware of testing for BBVs and STIs the needs of priority the need for regular testing across primary care and populations. of those at greater risk and community health. • There is high coverage how frequently testing should and frequency of • Coordinate Victorian HIV be offered. HIV testing. programs to support and Increase access to testing strengthen pathways and early diagnosis between testing services and prevention programs, and • Increase access to and adherence to repeat testing. uptake of high-quality, safe and appropriate testing • Explore the potential role services that facilitate early of self-testing in improving diagnosis, and continue to access to testing for reduce structural, social and particular populations. community barriers to testing. • Improve the knowledge of PEP • Advocate with the and HIV risk across relevant Commonwealth to consider health services, including listing both rapid point-of-care primary, community and testing and self-testing on the emergency care providers. Medicare Benefits Schedule. Victorian HIV strategy 2017–2020 23
Priority focus area 3: Victorians with HIV have access to best practice evidence-based treatment and care services, and are supported to achieve an undetectable viral load Priority actions: What will be different: Increase access to early • Improve the service models treatment for older people living • Victorians living with with HIV to ensure access or at greater risk of HIV • Reduce the time between to respectful, inclusive, are aware of the long- diagnosis and treatment high-quality care and term consequences of initiation by streamlining support services. untreated HIV infection and strengthening linkages between testing, treatment • Strengthen the care and know how to access and support. coordination and self- appropriate treatment management models for and support. • Develop early treatment people with more complex • All Victorians diagnosed linkage pathways between needs, aligned with the with HIV are linked into specialist services and Health Independence rapid treatment initiation primary care for people who Program, with clear links to and are supported to stay are newly diagnosed, and services, community networks on treatment. build the capacity of existing and peer support. • People living with HIV community-based clinical receive the treatment, care services to deliver care Improve community and support they need and support. engagement and (including monitoring, • Promote and support understanding viral load testing and continued engagement in • Enhance community-based antiretroviral therapy). care and the benefits of peer support approaches • People living with HIV adherence to treatment. from initial diagnosis through can easily access care • Explore methods to enhance to adherence to treatment. and medications in local partner notification for HIV, • Support independence, primary and community and increase the likelihood resilience and health literacy health settings. of early diagnosis and programs for people living • Treatment services meet treatment of sexual contacts with HIV. the needs of affected of people newly diagnosed. communities through • Promote awareness of the • Increase the use and individual and community a process of co-design effectiveness of shared health benefits of overall and integrated pathways care and outreach models reduction in viral load, with between community, between general practitioners an understanding that not primary and specialist and HIV specialists. all people are able to achieve care services. undetectable levels. 24
“Treatment is our most valuable tool in the HIV response. It enables people living with HIV to take charge of their health and wellbeing, and also ensures a public health benefit by minimising the risk of onward transmission.” rofessor Jenny Hoy P Director Victorian HIV Service Alfred Health Victorian HIV strategy 2017–2020 25
“Working with people living with HIV who are speaking in the community every week of the year, I see how stories of individual experience transform people’s understanding of HIV. The more people are visible in the community, the less stigma there will be now and into the future” Max Niggl Positive Speakers Bureau Coordinator Living Positive Victoria 26
Priority focus area 4: Victorians and affected communities are empowered to speak up about stigma and discrimination Priority actions: What will be Reduce stigma and Increase understanding of different: discrimination stigma and discrimination • People living with HIV • Address organisational • Support affected feel safe to disclose and structural stigma and communities to address their status. discrimination in community stigma and discrimination, • People living with or and healthcare settings for including the use of peer- affected by HIV are people with HIV. based approaches. engaged in all aspects • Work to remove legal, • Develop measures for better of the HIV response. regulatory and systemic understanding the impact of • No person living with barriers to equality of care in stigma and discrimination HIV experiences stigma the health sector for people on people living with HIV or discrimination living with or affected by HIV. and other BBVs. when seeking or using • Support a systematic • Promote better Victorian health and approach to reducing stigma understanding of the impact community services. aligned with the Victorian of stigma and discrimination • Victorians feel confident Government’s equality and the impacts of policy, accessing services for reform agenda. planning and service delivery HIV testing, treatment decisions across all sectors • Incorporate GIPA/MIPA and support, regardless (including the health, housing, principles in all aspects of of their gender, gender education and legal sectors) the Victorian HIV model of identity, cultural on the health of people care, from policy to program identity, ethnicity, age, living with HIV. implementation. sexual orientation, disability status or • Embed awareness of HIV residential location. stigma and discrimination in public health and wellbeing plans across local government authorities. • In collaboration with people with HIV, identify individual, community, systemic and policy barriers in accessing HIV testing, treatment and care and develop evidence- based strategies to address these barriers. Victorian HIV strategy 2017–2020 27
System enabler 1: The Victorian workforce has the skills, knowledge and attitudes needed to deliver best practice HIV prevention, testing, treatment and care Priority actions: What will be • Work with Primary Health Increase knowledge different: among key workforces Networks and community • Primary care providers’ health to strengthen BBV/STI • Ensure high-quality training testing across primary care knowledge of HIV and support to mainstream and community settings. transmission, diagnosis and specialist service and management • Train and provide ongoing providers to support evolving in allied health and support to primary care models of testing, prevention community service clinicians (medical and and treatment. settings is high. nursing) on how to monitor • Ensure workforce and manage the health of • Health professionals development initiatives people with HIV. have the knowledge to support culturally appropriate deliver appropriate and • Explore expanding the model services for priority evidence-based care of workforce support in populations and facilitate that meets the needs of hospital settings, exemplified optimal person-centred care priority populations. by the HIV Health and psychosocial support for • Health professionals Independence Program. each individual. understand the • Ensure training is provided on • In key workforce sectors, impact of stigma and the GIPA/MIPA principles and increase health literacy about discrimination on people that they are implemented HIV, including prevention, living with HIV and by organisations and testing, treatment and risk actively work to eliminate service providers. among priority populations, it from their services. particularly those populations • Improve knowledge of PEP • Victoria’s workforce historically considered at and HIV risk across relevant responds to the broader low risk. health services, including health and psychosocial primary, community and • Develop the skills of the care needs of people emergency care providers. mainstream healthcare living with or at higher workforce to reduce stigma risk of HIV. and discrimination in the health system. • Promote and target s100 prescriber training and accreditation, particularly in areas of high need and for health professionals working with priority populations. 28
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