NSW HIV STRATEGY 2021-2025 - END STIGMA - NSW Government

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NSW HIV STRATEGY 2021-2025 - END STIGMA - NSW Government
NSW
HIV STRATEGY
  2021–2025

     END STIGMA
NSW Ministry of Health
1 Reserve Road
St Leonards NSW 2065
Tel.   (02) 9391 9000
Fax.   (02) 9391 9900
TTY.   (02) 9391 9900
www.health.nsw.gov.au

This work is copyright. It may be reproduced in whole or part for study or training purposes
subject to the inclusion of an acknowledgement of the source. It may not be reproduced for
commercial usage or sale. Reproduction for the purposes other than those indicated above
requires written permission from the NSW Ministry of Health.

© NSW Ministry of Health 2020

SHPN (CPH) 200788

ISBN 978-1-76081-536-3 (print) and 978-1-76081-537-0 (online)

HIV Strategy 2021-2025

Further copies of this document can be downloaded from the NSW Health website
www.health.nsw.gov.au
                                                                             NSW HIV STRATEGY 2021–2025 2
MINISTER’S FOREWORD
New South Wales is recognised as a world                     But not every at-risk population has
leader in responding to HIV. Beginning with                  experienced the same level of success.
our swift response to HIV/AIDS in the 1980s,                 Stigma and discrimination also continue to
we have worked with people living with                       create barriers to accessing PrEP, testing and
and affected by HIV to innovate, to prevent                  treatment.
infections and to care for those living with HIV.
                                                             The new Strategy builds on the momentum
New ways to prevent, test and treat HIV have                 of the previous two strategies, while
led to dramatic reductions in transmission,                  introducing a renewed focus on working with
and notifications are now the lowest since                   sub-populations where change has not been
surveillance began in 1985. Pre-exposure                     as substantial, reducing stigma as a barrier
prophylaxis, or PrEP, has played a pivotal                   to prevention, testing and treatment, and
role in preventing new infections since we                   encouraging ongoing innovation.
implemented EPIC-NSW, one of the world’s
                                                             I am pleased to present the NSW HIV Strategy
largest implementation trials, for rapid roll-out
                                                             2021–2025, which will guide our response
across the state.
                                                             to achieving the virtual elimination of HIV
These innovations mean that the virtual                      transmission in NSW and support everyone
elimination of HIV transmission in NSW, once                 living with HIV.
inconceivable, is now a realistic and achievable
goal.
The partnership between the community,
government, researchers and clinicians has
been critical to our success. Working together,
we have:
                                                             Hon. Brad Hazzard, MP
• met
  	   two of the UNAIDS targets, with 95%                   Minister for Health and Medical Research
  of people living with diagnosed HIV on
  treatment, and 95% of those diagnosed on
  treatment with a suppressed viral load
• seen
  	   a 19% reduction in new HIV notifications
  in NSW residents over the past five years
• sustained
  	        the virtual elimination of HIV
  transmission between mother and child,
  among people who inject drugs, and among
  female sex workers.

                                           NSW HIV STRATEGY 2021–2025 3
NSW HIV STRATEGY 2021 – 2025
Aim
                                                                                                                                     Vision
The virtual elimination of HIV transmission in NSW for all
                                                                                                                                     A NSW where HIV transmission is virtually eliminated. Everyone is free from the risk of contracting
Headline target
                                                                                                                                     HIV. Everyone can access HIV prevention, testing, treatment and care, and can do this without fear of
90% reduction in the rate of preventable HIV infection                                                                               stigma or discrimination. Treatment begins early to improve health and prevent transmission.

Goals
                  1. Prevent                                                2. Test                                                  3. Treat                                                        4. Stigma
                  Prevent HIV transmission by promoting safe                Normalise HIV testing for people at risk.                Start and maintain treatment soon after diagnosis to            Reduce stigma and discrimination as a barrier to prevention,
                  behaviours and by expanding access to condoms,                                                                     maximise health outcomes and prevent transmission.              testing and treatment.
                  PrEP, PEP, and sterile injecting equipment.

Targets           1.i	90% of men who have sex with male casual             2.i	95% of people living with HIV in NSW have           3.i	90% of people newly diagnosed with HIV initiate            4.i	75% reduction in reported experience of stigma or
                       partners report at least one form of HIV                  been diagnosed.                                          treatment within 2 weeks                                        discrimination by people at risk of and living with HIV in
                       prevention.                                                                                                                                                                        NSW healthcare settings.
                                                                            2.ii	Reduce the time between arrival in Australia       3.ii	95% of all people diagnosed with HIV are on treatment
                  1.ii	90% of HIV-negative men who have sex with                 and the first HIV test for all at-risk overseas-         and 95% of people on treatment have an undetectable       4.ii	75% reduction in discriminatory attitudes held towards
                        male casual partners without a condom take                born people.                                             viral load.                                                     people at risk of and living with HIV.
                        PrEP.
                                                                            2.iii	Reduce the time between arrival in Australia      3.iii	75% of people living with HIV in NSW report good
                  1.iii	Reduce sharing of injecting equipment among               and HIV diagnosis for overseas-born MSM,                 quality of life.
                         people who inject drugs.                                  where infection was probably acquired
                                                                                   overseas

Initiatives       1.1 New models of care for PrEP                           2.1 Innovative testing models                            3.1 HIV Support Program                                         4.1 Media engagement
                  1.2 PrEP prescribers expansion                            2.2 Dried blood spot (DBS) testing                       3.2 Antiretroviral resistance surveillance                      4.2 Healthcare worker training
                  1.3 PrEP Guidelines                                       2.3 GPs and primary care workforce                       3.3 Shared care                                                 4.3 Community primary care
                  1.4 GPs and primary care workforce                        2.4 Community mobilisation and health promotion          3.4 Models of care                                              4.4 Health systems
                  1.5 Community mobilisation and health promotion           2.5 Statewide HIV testing campaign                       3.5 Clinic audits                                               4.5 Peer support
                  1.6 Sex worker peer outreach
                                                                            2.6 International students testing                       3.6 Community mobilisation and health promotion                 4.6 Stigma-aware campaigns
                  1.7 Needle and Syringe Program
                                                                            2.7 	People visiting high-prevalence countries
                  1.8 Information and referral                                    campaign
                  1.9 Aboriginal services                                   2.8 HIV contact tracing
                  1.10 Research and surveillance                            2.9 Antenatal screening
                                                                            2.10 Research and surveillance

                                             NSW HIV STRATEGY 2021–2025 4                                                                                                                      NSW HIV STRATEGY 2021–2025 5
CONTENTS
HIV IN NSW                                          7
A RENEWED FOCUS                                    10
THE PROPORTION OF GAY
IDENTIFIED MEN LIVING IN NSW                       13
IMPACT OF COVID-19 IN 2020                         14
PRIORITY POPULATIONS                               15
PRIORITY SETTINGS                                  16
OUR VALUES                                         16
1. PREVENT                                         17
2. TEST                                            22
3. TREAT                                           27
4. STIGMA                                          31
MONITORING AND GOVERNANCE                          34
ABBREVIATIONS                                      36
REFERENCES                                         37

                    NSW HIV STRATEGY 2021–2025 6
HIV IN NSW
Considerable progress has been made towards the                   The proportion of at-risk MSM on PrEP increased
elimination of HIV transmission in NSW. HIV diagnoses             between 2013 and 2019 (Figure 1, orange line).
decreased by 19% in NSW residents over the five                   PrEP roll-out initially occurred through EPIC-NSW,
years 2015–2019, and by 25% among men who have                    one of the world’s largest PrEP implementation
sex with men (MSM) (Figure 1, blue line).                         trials, between 2016 and 2018. The expansion of
                                                                  PrEP availability has only been possible through
                                                                  clinical service redesign and the responsiveness of
                                                                  the NSW health system, nurse-led models, and the
                                                                  partnership between general practitioners (GPs), the
      HIV diagnoses                     19%                       Kirby Institute and ACON peer support workers. Since
      decreased by 19% in                                         its listing on the Pharmaceutical Benefits Scheme in
                                                                  April 2018, PrEP has been dispensed to over 15,000
      NSW residents over the                                      NSW residents.3
      last five years                                             HIV prevention coverage or safe sex is high in NSW,
                                                                  with 79% of men who have sex with male casual
                                                                  partners in 2020 reporting at least one form of
                                                                  effective prevention (such as PrEP, condom use or
This is the lowest rate of HIV notifications in NSW               treatment resulting in undetectable viral load).2
since surveillance began in 1985 and is the result of
investment in a number of effective interventions:                There has been a dramatic reduction in the time from
access to PrEP, earlier treatment and high uptake                 diagnosis to treatment initiation between 2013 and
among people diagnosed with HIV (preventing                       2019 (Figure 1, teal line). In 2019, 88% of people
onward transmission), promoting condoms, and                      diagnosed with HIV had started treatment within six
harm reduction strategies such as the Needle                      weeks, including 44% who started within two weeks
and Syringe Program and the Opioid Treatment                      of diagnosis.3
Program. This has only been possible through
strong partnerships between affected and at-risk
communities, government, clinicians, general practice
and researchers.                                                          The virtual elimination of HIV
Community-led ‘Ending HIV’ campaigns and the                              transmission between mother
redesign of public sexual health services to make                         and child, among people who
testing for HIV and sexually transmissible diseases
(STIs) more accessible have led to high testing
                                                                          inject drugs, and among female
and treatment rates as well as early initiation of                        sex workers, has been sustained
treatment. General practice and primary care have
played a pivotal role in diagnoses and ongoing care.
The HIV Support Program has underpinned rapid
initiation of treatment by supporting doctors. A robust
data and surveillance system, with a focus on contact
tracing and partner notification, has built a foundation
for other interventions.
By 2016, NSW had already met the UNAIDS 90–90–
90 targets for HIV diagnosis, treatment uptake and
viral suppression.1 That same year, NSW rapidly rolled
out PrEP (antiretroviral medication taken by HIV-
negative individuals to prevent HIV infection). PrEP is
now the most common HIV prevention method used
by HIV-negative MSM.2

                                                NSW HIV STRATEGY 2021–2025 7
The virtual elimination of HIV transmission between                                                                        The Needle and Syringe Program (NSP) remains
mother and child,3,27 among people who inject drugs,                                                                       a highly cost-effective public health program6 to
and among female sex workers, has been sustained.4                                                                         prevent the transmission of HIV among people who
The incidence of HIV (new cases) among women in                                                                            inject drugs and the wider community. The expansion
sex work in NSW is among the lowest in the world                                                                           of the NSW Opioid Treatment Program into the
due to highly successful HIV prevention initiatives.                                                                       primary care sector, and the increased involvement of
Among gay and bisexual men who attend sexual                                                                               GPs, non-government organisations and community
health clinics, HIV prevalence among male sex                                                                              pharmacies, have also played a substantial role in
workers is no different to HIV prevalence among gay                                                                        harm minimisation and HIV prevention among people
and bisexual men who report no recent history of sex                                                                       who inject drugs.
work.5

Figure 1: HIV in NSW, 2012 to 2019
Source: Adapted from a figure produced for AVAC Global Advocacy for HIV Prevention and the Friends of the Global Fight
against AIDS, Tuberculosis and Malaria for the 10th IAS Conference on HIV Science, 2019, Mexico City.

                                                                         Outcomes:              Rate of HIV diagnoses in MSM
                                                                         Interventions:         Percentage of at-risk MSM on PrEP
                                                                                                Percent of HIV-positive patients on treatment by 6 weeks

                                                                 15                                                                                                  100
          Crude rate of HIV diagnoses in NSW per 100,000 males

                                                                                                                                                                     80

                                                                 10
                                                                                                                                                                     60

                                                                                                                                                                           Percentage %

                                                                                                                                                                     40
                                                                 5

                                                                                                                                                                     20

                                                                 0                                                                                                   0
                                                                      2012        2013           2014         2015          2016        2017    2018       2019
         New South Wales                                                                  ‘Treat all’
      ‘Virtual elimination’                                                               guidelines
        strategy launched

                                                            ‘Ending HIV’
                                                   campaign launched;                              NSW second HIV
                                             Rapid HIV testing launched                          Strategy launched

                                                                                                             UNAIDS 90–90–90
                                                                                                              targets reached;
                                                                                                                  PrEP roll out

                                                                                                         NSW HIV STRATEGY 2021–2025 8
In 2019, NSW achieved two of the UNAIDS Fast-
      track 95–95–95 targets for HIV diagnosis, treatment
      and viral suppression.1, 7 However, data modelling by
      the Kirby Institute estimates that only 91% of people
      living with HIV in NSW have been diagnosed; in other
      words, 9% of people with HIV do not know they have
      it (Figure 2).

      Figure 2: The NSW HIV diagnosis and care cascade, 2019
      Source: Unpublished analysis using data to December 2019 by the Kirby Institute, UNSW

                                                                                                    95% of people living       95% of people on
                                       91% of people living with                                     with diagnosed HIV         treatment had a
                                        HIV had been diagnosed                                        were on treatment     suppressed viral load
                          12,000

                          10,000
Number of people in NSW

                          8,000

                          6,000

                          4,000

                          2,000

                              0
                                    Living                   Diagnosed                 Retained                      Receiving               Suppressed
                                   with HIV                   with HIV                  in care                      treatment                  virus

                                                                     NSW HIV STRATEGY 2021–2025 9
A RENEWED FOCUS
Substantial improvements have been made in                                                                This Strategy builds on the momentum of the
HIV prevention, testing and treatment in NSW.                                                             previous two by adding to current activities, with new
Unfortunately not all groups have benefited equally                                                       initiatives focusing on:
from these successes. To make new gains the
                                                                                                          • stigma and discrimination
Strategy must:
                                                                                                          •	MSM living in areas of outer Sydney and regional
• address the barriers created by stigma                                                                     NSW with low concentrations of gay-identified men
• adapt, pilot and implement new technologies                                                             •	culturally and linguistically diverse (CALD) and
•	engage sub-populations who have not experienced                                                           recently arrived overseas-born MSM
   the same level of recent success, including a                                                          •	heterosexuals at risk, including CALD people, MSM
   renewed focus on:                                                                                         and women who are sexual partners of MSM
    – preventable infections acquired in NSW and by                                                      • young MSM aged under 25 years
      residents travelling overseas
                                                                                                          • Aboriginal people.
    – connecting overseas-born people who acquired
      HIV abroad with testing and care soon after their                                                   The Strategy also introduces a new headline target,
      arrival in Australia.                                                                               to achieve a 90% reduction in the rate of preventable
                                                                                                          HIV infection as an ambitious target of ‘virtual
                                                                                                          elimination’ (Figure 3).

Figure 3: Rate of new HIV diagnoses per 100,000 people, 2008 to 2019

                                                                                                                                        All diagnoses
                                                                                                                                        Preventable diagnoses

                                                   6
 Crude rate of HIV infections per 100,000 people

                                                   5

                                                   4

                                                   3
                                                                                                                                  90% reduction in
                                                                                                                                  preventable diagnoses
                                                   2

                                                   1

                                                   0
                                                       2008 2009 2010 2011 2012 2013 2014 2015 2016 2017 2018 2019 2020 2021 2022 2023 2024 2025

                                                                                       NSW HIV STRATEGY 2021–2025 10
Stigma and discrimination                                       CALD and recently arrived overseas-
Stigma and discrimination are barriers to prevention,           born MSM
testing, treatment initiation and adherence, and                An emerging priority population identified in this
retention in healthcare settings.8, 9 Healthcare                Strategy is overseas-born MSM, particularly CALD
workers who bring stigmatising assumptions to                   residents and MSM who have lived in Australia for
their work miss opportunities to offer testing for              four years or less. When people are diagnosed with
HIV or suggest prevention options including PrEP.               HIV, test results can indicate roughly how long they
Negative perceptions and experiences of stigma and              have been living with HIV.
discrimination may result in reductions in testing,
treatment engagement and retention in treatment.                Between 2015 and 2019, there was a substantial
                                                                47% decline in late diagnoses (having a CD4+ cell
This Strategy introduces a new group of initiatives
                                                                count of
Young MSM aged under 25 years                                     Aboriginal people
Over the last five years, young MSM aged under 25                 HIV diagnoses among Aboriginal people remained
years have not benefited from the same reduction                  low in NSW between 2015 and 2019,4 but greater
in HIV notifications as older MSM. Young MSM are                  recognition of diverse social and cultural factors
less likely to live in inner Sydney suburbs, which have           which can influence the health and wellness of
high concentrations of gay-identified men; they are               Aboriginal people is required to maintain these low
also less likely to be highly socially engaged with gay           rates.11 While HIV diagnoses are low in NSW, the rates
community.10 This is likely to mean that they are less            of gonorrhoea and chlamydia infections are higher
connected to innovations in prevention. Young MSM                 in Aboriginal people (compared to non-Aboriginal
have lower PrEP use than older MSM, particularly                  people),7 highlighting the need for increased HIV and
those living in suburbs with low concentrations of                STI prevention efforts.
gay-identified men. This Strategy renews a focus on
                                                                  Aboriginal people who inject drugs, including those
campaigns with messaging about condom use, PrEP
                                                                  who are incarcerated, are at greater risk for acquiring
and testing for HIV and STIs that resonates with
                                                                  blood-borne viruses. In 2020, one in five attendees at
young MSM. The Strategy also extends targeting to
                                                                  NSPs identified as Aboriginal.13 This Strategy aims to
those living in outer suburbs and other regions of
                                                                  improve the availability of sterile injecting equipment
NSW.
                                                                  in areas where a high number of Aboriginal people
                                                                  who inject drugs live, and to increase the uptake of
                                                                  PrEP among Aboriginal people at risk.
                                                                  In 2020, the new National Agreement on Closing
                                                                  the Gap to reduce disparities in health and social
                                                                  outcomes was released. This Strategy will ensure
                                                                  that all NSW health services, including sexual
                                                                  health clinics and general practice, are focused on
                                                                  improving the health outcomes of Aboriginal people
                                                                  by providing culturally appropriate services.

                                               NSW HIV STRATEGY 2021–2025 12
THE PROPORTION OF GAY IDENTIFIED MEN LIVING IN NSW
  Figure 4: Outer suburban MSM
  Note: In 2019 a method for estimating the number and proportion of adult males who are gay in each postcode was
  developed.14 Postcodes were categorised into three groups (
IMPACT OF COVID-19 IN 2020
The COVID-19 pandemic has had significant impacts                 The number of units of injecting equipment
on how people interact with the healthcare system.                distributed in April–June 2020 remained stable
It has also amplified issues like mental health, drug-            compared to the same period the year before. NSP
use, isolation and homelessness.                                  services remained open and outreach was enhanced
                                                                  to ensure people could access sterile injecting
The number of HIV tests conducted was 24% lower
                                                                  equipment during the pandemic. The NSW Users
in April–June 2020 than during the same period
                                                                  and AIDS Association (NUAA) expanded their NSP
in 2019. This was due to reduced service capacity,
                                                                  postal service, which included the addition of online
restricted movement and resulting changes to sexual
                                                                  ordering.
behaviour, and altered healthcare-seeking behaviour
due to COVID-19. As restrictions eased throughout                 COVID-19 did not have an effect on HIV treatment
late May and June, overall testing numbers began to               coverage, with 99% of HIV-positive patients seen in
increase and return to the five-year average.3                    public sexual health clinics on treatment in the April–
                                                                  June quarter.3
The number of community-based rapid HIV tests
and HIV dried blood spot (DBS) self-sampling tests                The NSW Government and community partners
also fell during 2020 but remained targeted to MSM,               rapidly re-oriented services and programs in response
people from CALD backgrounds and people who                       to COVID-19, to ensure the ongoing availability
inject drugs who test infrequently or have never                  of HIV prevention, testing and treatment with a
tested previously.3                                               focus on innovative online services and telehealth.
                                                                  Communication messaging promotes HIV testing and
PrEP use declined by 21% in April–June 2020
                                                                  recommencement of PrEP to priority populations.
compared to the previous quarter.3 This was probably
due to lower levels of casual sex activity. Sexual                This Strategy will explore opportunities to increase
activity changed significantly among gay and bisexual             HIV awareness, testing, treatment and care among
men in response to COVID-19 as reported by self-                  international travellers, particularly students who
assessment in the Flux cohort study. Among gay and                are in mandatory hotel quarantine after arrival in
bisexual men in Flux, the proportion reporting any sex            Australia.
with casual partners dropped dramatically from 79%
in 2019, to 9% in early 2020 during the initial period
of lockdown in NSW.15

                                                                          During the COVID-19 pandemic,
                                                                          the number of HIV tests
                                                                          conducted was 24% lower
                                                                          in April-June 2020 compared to the
                                                                          same period in 2019

                                               NSW HIV STRATEGY 2021–2025 14
PRIORITY POPULATIONS
This Strategy prioritises meaningful participation of people living with HIV along with
other priority populations as essential to its development, implementation, monitoring
and evaluation.
People including those with diverse cultural, sexual and gender identities may belong to
more than one priority population.

  People living with HIV                                   Men who have sex with
                                                           men (MSM), including:
                                                           · c ulturally and linguistically
                                                             diverse (CALD)
                                                           · r ecently arrived (four years
                                                             or less) overseas-born
                                                           · u nder 25 years old

  People from or who travel                                Aboriginal people
  to countries with high HIV
  prevalence

  People who inject drugs                                  Sex workers
                                                           and their clients

  People who are in                                        Sexual partners of
  or have recently                                         members of priority
  been in custodial                                        populations
  settings

                                    NSW HIV STRATEGY 2021–2025 15
PRIORITY SETTINGS

                                                            General practices and
                                                             other primary care
                                                              services including
Publicly funded HIV and        Community and                Aboriginal Community           Needle and Syringe
sexual health services         online services            Controlled Health Services        Program outlets

  Antenatal care          Drug and alcohol services          Mental health services      Emergency departments

                                                               Tertiary education
                                                             institutions including
                                                             Technical and Further
                                                               Education (TAFE),
                                                           universities and language
                             Custodial settings                      schools

                                    OUR VALUES
      Equality and equity                                                 Efficiency and value for money

             Diversity                                                           Self-determination

        Harm reduction                                                     Gender-affirming healthcare

     Person-centred care                                                               Innovation

             Respect                                                        Research and development

Collaboration and partnership                                                         Empowerment

                                         NSW HIV STRATEGY 2021–2025 16
1. PREVENT

Prevent HIV transmission by promoting                              This Strategy prioritises the availability of condoms
safe behaviours and by expanding access                            and supports this choice for priority populations
to condoms, PrEP, PEP and sterile                                  and communities, including young MSM and
injecting equipment                                                heterosexuals.

The availability of new prevention strategies means
that virtual elimination of HIV transmission is now
feasible. The elimination of HIV transmission can be                                     of HIV negative gay
achieved through a combination of evidence-based
prevention options, which include:                                              60%      and bisexual men
                                                                                         who had condomless
• using condoms
•	if HIV-negative, using HIV pre-exposure
                                                                                         sex with a male casual
   prophylaxis (PrEP)                                                                    partner take PrEP
•	if HIV-positive, taking HIV treatment effectively to
   achieve undetectable viral load
•	using sterile injecting equipment every time and                HIV pre-exposure prophylaxis (PrEP)
   never sharing                                                   PrEP is now the most commonly used HIV risk
•	if exposed to HIV, using post-exposure prophylaxis              reduction strategy among gay and bisexual men
   (PEP) within 72 hours of exposure                               with their casual male partners in Sydney. In 2020,
                                                                   60% of HIV-negative gay and bisexual men who
This Strategy will include a focus on ensuring there
                                                                   had condomless sex with a casual male partner
are high levels of prevention and extending it to
                                                                   take PrEP.2 PrEP does not protect against other
emerging populations at risk of HIV transmission.
                                                                   STIs, meaning that condom promotion, behavioural
                                                                   prevention, testing and treatment strategies are still
Condoms
                                                                   required.
While PrEP is the most common HIV prevention
method, condoms are the preferred choice for                       Barriers to PrEP use are associated with individual
a significant number of MSM. Condoms are                           and social factors including not being willing
very effective at preventing HIV and sexually                      to take medication to prevent HIV, fear of side
transmissible infections (STIs). In 2020, 22% of gay               effects, having a lower education or income, lack
and bisexual men who had sex with a casual male                    of perceived risk, not being engaged with the gay
partner reported consistent condom use, down from                  community, low health literacy, difficulties with
44% in 2016; this is likely attributed to the rapid                navigating online ordering, and difficulties finding
uptake of PrEP.2                                                   non-judgemental clinical care.16–18 Asian-born men
                                                                   without Medicare access are over-represented
                                                                   among men who are willing to use PrEP but are not
                                                                   doing so.19, 20 People from minority populations and
                       of gay and bisexual                         marginalised groups are also less likely to initiate
                                                                   PrEP.21 Peer-based and community-led services can
                       men use condoms                             be more attractive to some than traditional clinic-
                       every time they have                        based services to members of marginalised groups
         22%           sex with a casual                           such as gay and bisexual men, Asian-born MSM, and
                                                                   transgender and gender-diverse people.22–24
                       partner

                                                NSW HIV STRATEGY 2021–2025 17
There are opportunities to expand access and                       Sterile injecting equipment
encourage use of prevention methods including PrEP.                The NSW NSP provides people who inject drugs with
Tailored marketing, promotion and peer-led initiatives             sterile injecting equipment. The NSP is an evidence-
have resulted in high uptake of PrEP among gay men                 based, cost-effective public health program to prevent
and other MSM in inner Sydney,25 which is a focus in               the transmission of HIV and hepatitis C virus among
this Strategy. PrEP use can be expanded to emerging                people who inject drugs and the wider community.6
sub-populations including at-risk heterosexuals, young             This Strategy will prioritise continuous improvement
MSM, CALD and overseas-born MSM, and MSM living                    in the delivery of NSPs to increase access to sterile
in areas with lower concentrations of gay-identified               needles and syringes and to monitor reach and
men.                                                               coverage. The number of units of injecting equipment
Updated PrEP Guidelines remove barriers to PrEP                    distributed in NSW increased by 17% between 2015 and
access by simplifying the risk criteria and enabling               2019, while the number of NSP outlets increased by
on-demand PrEP use. On-demand or event-driven                      6%, including primary and secondary outlets, dispensing
PrEP use means taking PrEP pills only around the time              machines and pharmacies.
of sex according to the prescribed dosing schedule.                This Strategy aims to reduce sharing of injecting
Additionally, people may choose to use PrEP during                 equipment in NSW. In 2020, 16% of people who
times when their risk behaviour changes, such as                   accessed NSPs reported at least one episode of
during festivals or while travelling to a country with             receptive syringe sharing (i.e. using a syringe that has
high HIV prevalence.                                               been used by another person) in the month prior to data
This Strategy will ensure that all priority populations            collection, down from 20% in 2016. People attending
attending public sexual health services and general                NSPs who reported being prescribed opioid substitution
practices are assessed for PrEP eligibility. PrEP                  therapy were also significantly less likely to report
prescriber availability will be expanded for greater               recent receptive syringe sharing.13
geographical coverage to ensure equitable access                   This Strategy will strengthen links between primary
for at-risk populations. There is an opportunity to                and secondary NSPs including sexual health services
extend PrEP prescribing in drug and alcohol services,              and alcohol and other drug services. The next NSW
by strengthening links between local health district               Hepatitis C Strategy 2021 will focus on developing the
sexual health services and alcohol and other drug                  NSW response and priorities for the NSP over the next
services, specialist stimulant treatment services and              five years.
non-government alcohol and other drug services.
                                                                   Post-exposure prophylaxis (PEP)
Viral load suppression: ‘undetectable viral
                                                                   If a person is or suspects they might have been exposed
load’
                                                                   to HIV (such as after having unprotected sex with
Taking HIV treatment effectively to achieve an                     someone whose HIV status was not known, or having
undetectable viral load (U=U, or undetectable =                    a needle-stick injury), post-exposure prophylaxis (PEP)
untransmissible) means that when HIV viral load is                 within 72 hours of exposure can be prescribed in sexual
below 200 copies/ml of blood measured by a viral load              health clinics and emergency departments, and in
test, an HIV-positive person cannot pass on the virus to           general practices by s100 prescribers. This Strategy
someone else (referred to as ‘treatment as prevention’;            will ensure that PEP is available to those who require it,
or ‘TasP’). In 2020, 95% of people living with HIV are on          and that clients are assessed for transition to PrEP for
treatment, of whom 95% have an undetectable viral                  ongoing HIV prevention.
load.1 This Strategy promotes undetectable viral load
as an effective risk reduction strategy.

                                                                      Targets
                                                                      •	
                                                                        90% of men who have sex with male casual
                     of people living with
          95%        diagnosed HIV are on
                                                                        partners report at least one form of HIV
                                                                        prevention including:
                     treatment, and 95%                                 – condom use
                                                                        – PrEP use
                     have an undetectable                               – undetectable viral load.
                     viral load                                       •	
                                                                        90% of HIV-negative men who have sex with male
                                                                        casual partners without a condom take PrEP.
                                                                      •	
                                                                        Reduce sharing of injecting equipment among
                                                                        people who inject drugs.

                                                NSW HIV STRATEGY 2021–2025 18
Initiatives        Description                                                    Partners
                   Pilot innovative models of care for PrEP to increase access,
                   including telehealth, online assessment and access and
                   peer-led models.
                   Ensure regular comprehensive screening for sexually            Ministry of Health, STIPU, ASHM,
                   transmissible infections for people on PrEP.                   local health districts, Multicultural
1.1
                                                                                  HIV and Hepatitis Service, ACON,
New models of      Trial local initiatives and new technologies, such as          Pozhet, Pharmacy Guild, Kirby
care for PrEP      injectable PrEP, that have the potential to scale-up.          Institute (UNSW) and Centre for Social
                   Deliver culturally tailored models for CALD and overseas-      Research in Health (UNSW)
                   born MSM. Increase access for young MSM
Initiatives        Description                                                                   Partners
                   Deliver education, targeted health promotion, community mobilisation
                   and behavioural prevention interventions, including peer-led initiatives
                   for priority populations and emerging sub-populations, to promote and
                   support the uptake of condoms, PEP, PrEP, screening for STIs and other        Ministry of Health, STIPU,
                   prevention and risk reduction strategies.                                     local health districts,
                                                                                                 ACON, Positive Life,
                   Deliver a community education campaign promoting different options to
                                                                                                 Pozhet, Multicultural HIV
                   take PrEP (daily, on-demand, seasonal).
1.5                                                                                              and Hepatitis Service,
Community          Utilise new and innovative online technologies to deliver prevention          NUAA, Aboriginal
mobilisation and   education messages to priority populations, including micro-targeting         Community Controlled
health promotion   identified groups and geo-location services. Tailor campaigns to better       Health Services,
                   resonate with people with diverse sexual and gender identities.               AH&MRC, tertiary
                                                                                                 education institutes,
                   Build on existing community-led programs to develop online peer
                                                                                                 RACGP, Sex Workers
                   education, increasing the accessibility of prevention programs for regional
                                                                                                 Outreach Project (SWOP)
                   and remote priority populations.
                   Promote condom use through the Play Safe website, Take Blaktion and
                   social media channels.

                   Partner with non-government organisations to provide health education
1.6                information, peer education and outreach to reduce barriers to                Ministry of Health, SWOP,
Sex worker peer    engagement with healthcare services for NSW sex workers.                      ACON, Positive Life NSW,
outreach           Support HIV prevention among gay and bisexual men and support                 local health districts
                   HIV prevention among male sex workers.

                   Invest in harm minimisation strategies to limit HIV transmission via
                   injecting drug use (NSPs, Opioid Treatment Program) which have resulted
                   in the virtual elimination of HIV among people who inject drugs.
                   Continuous improvement in the delivery of the NSP to increase access to
                   sterile needles and syringes and monitor reach and coverage.                  Ministry of Health, NUAA,
                                                                                                 ACON, local health
                   Strengthen links between primary and secondary NSP providers,
1.7                                                                                              districts, Pharmacy Guild,
                   including alcohol and other drug services, opioid treatment program
Needle and                                                                                       non-government alcohol
                   clinics and peer support services such as NUAA.
Syringe Program                                                                                  and other drug services,
                   Support programs and strategies to address stigma and discrimination          private opioid treatment
                   in healthcare settings and support strategies for the education of health     clinics
                   workers, including HETI e-learning modules.
                   Ensure supportive laws and regulations, which are integral to enabling
                   safe practices, protecting people from discrimination and supporting
                   public health.

                   Fund services, including the NSW Sexual Health Infolink (SHIL), which
                   provide culturally specific HIV and sexual health information, referral and
                   support to the NSW general public and clinicians.                             NSW Ministry of Health,
1.8                                                                                              NSW Sexual Health
Information and    SHIL is a specialised, anonymous, confidential nurse-led service using        Infolink, local health
referral           telephone and internet-based technologies. The service works with             districts, Multicultural
                   diverse people and communities at risk and healthcare providers to            HIV and Hepatitis Service
                   support testing, contact tracing, PrEP, PEP and treatment in line with
                   current evidence and guidelines.

                                               NSW HIV STRATEGY 2021–2025 20
Initiatives    Description                                                   Partners
               Strengthen systems, service integration and community
               engagement for HIV prevention, testing, treatment and care
               for Aboriginal people at risk.
               Ensure all NSW healthcare services including sexual health
               clinics and general practice are focused on improving
               the health outcomes of Aboriginal people by providing
               culturally appropriate services.
               To ensure adequate coverage, conduct an audit of the
               number of GP services in areas where there is a significant
               population of Aboriginal people.
               Improve the uptake of PrEP among Aboriginal people.
                                                                             Ministry of Health, Centre for
               Improve the availability of sterile injecting equipment in
                                                                             Aboriginal Health, Aboriginal
1.9            areas where a high number of Aboriginal people who inject
                                                                             Community Controlled Health
Aboriginal     drugs live.
                                                                             Services, local health districts,
services
               Establish formal relationships between publicly funded        RACGP, Justice Health and Mental
               sexual health clinics and Aboriginal Community Controlled     Health Network, AH&MRC, STIPU
               Health Services (ACCHS) to develop programs and support
               blood-borne virus and STI capacity development in the
               ACCHS sector.
               Increase the number of Aboriginal sexual health
               professionals across NSW.
               Create a NSW governance group to drive and monitor
               Aboriginal HIV responses.
               Improve educational pathways with a sexual health
               promotion focus and provide opportunities for Aboriginal
               health workers to develop new skills, including a sexual
               health specialisation.

               Fund the BBV and STI Research, Intervention and Strategic
               Evaluation Program (BRISE) 2020–2024 at the University
               of NSW to undertake policy-relevant research to provide
               evidence and strategic advice that focuses on the
               prevention and diagnosis of infections and on the treatment
               and care of people living with infection.
               Enhance data and behavioural surveillance systems to          Ministry of Health, Kirby Institute
1.10           improve monitoring of the Strategy for priority populations   (UNSW), Centre for Social Research in
Research and   including people with diverse sexual identities and gender    Health (UNSW), local health districts
surveillance   identities. Implement enhancements to the NSW Minimum         and Multicultural HIV and Hepatitis
               Data Set for publicly funded sexual health clinics and the    Service
               Notification form for new HIV diagnoses. These changes
               will enable better monitoring of the needs of people
               attending health services.
               Strengthen systems for timely collection and reporting of
               data to monitor progress, report outcomes and refine or
               scale focus.

                                          NSW HIV STRATEGY 2021–2025 21
2. TEST

Normalise HIV testing for people at risk
Rates of HIV testing have increased each year
since 2012. However, additional focus is required.                                          No recent test for
Despite increases in testing, it is estimated that                                          65% of overseas-
only 91% of people living with HIV in Australia have
been diagnosed.7 In 2019, 56% of Australian-born
                                                                                            born MSM
MSM diagnosed with HIV had not been tested in the                                           diagnosed in 2019
12-months prior to diagnosis, and 20% had evidence
of late diagnoses (i.e., they have had HIV for some
time before being diagnosed). Among overseas-born
MSM, 65% had not had a recent test and 42% had                    Normalisation
late diagnoses.27
                                                                  Interventions that normalise testing include
Late HIV diagnosis leads to increased mortality                   campaigns with messages that resonate with sub-
and morbidity, reduced life expectancy,28,29 and                  populations, comprehensive clinic-based testing,
higher costs to the health system.30 Early diagnosis              peer-led testing models, community-based testing
linked to treatment improves health outcomes and                  models, GP education, and clinical workforce
prevents transmission to others.                                  development. Opportunistic testing across the
                                                                  healthcare system ensures that testing is available
                                                                  regardless of where the patient presents. The rate
                                                                  of testing in MSM has not increased at the same rate
     No recent test                                               as PrEP uptake, even among men who engage in
     for 56% of                                                   higher risk activities.32 This Strategy aims to increase
                                                                  HIV testing frequency among people at risk who are
     Australian-born                                              not taking PrEP, and to monitor testing in people
     MSM diagnosed in                                             on PrEP. Everyone should be offered an HIV test in
     2019                                                         conjunction with STI testing and diagnoses.
                                                                  HIV prevention messages, HIV education programs,
                                                                  and direct offers of HIV testing increase the
                                                                  uptake of testing among recent immigrants.33 The
Availability
                                                                  expansion of peer-led tailored programs beyond
Testing services that are easily accessible                       inner metropolitan areas may reduce barriers to
encourage more frequent testing among people                      testing for Asian MSM who do not have established
at risk. Innovative testing modes, rapid testing and              connections with gay networks by facilitating
express testing clinics in community-based settings               access to culturally acceptable local services.34
have been successful in engaging MSM, particularly                This Strategy aims to increase HIV testing and PrEP
young MSM with high-risk behaviour and a history                  uptake among at-risk international students who
of infrequent testing.27,31 During HIV testing, clients           attend general practices by addressing the cost
should learn about HIV prevention strategies such                 and confidentiality concerns of services.35 Peer-led
as condoms, PrEP and PEP, and how often to test.                  services have been successfully developed and
Services must be convenient and confidential for                  attract younger and Asian-born MSM.24
everyone in NSW, including people with diverse
sexual and gender identities, and people living in
regional and remote areas.

                                               NSW HIV STRATEGY 2021–2025 22
Comprehensive sexual health screening                           Barriers to testing for clinicians can be reduced
HIV testing should be part of comprehensive sexual              through training that addresses consent in line with
health screening in all public health services,                 guidelines and through awareness of the NSW HIV
general practices and other primary care settings.              Support Program, which connects them to local
Comprehensive STI screening should also be offered              specialists who support them in delivering a positive
to people prescribed PrEP. Rapid HIV testing can                diagnosis and quickly linking the patient to care.
increase HIV testing frequency among MSM.36 Rapid               Increased attention to HIV indicator conditions in
HIV testing should be more available and online                 primary healthcare and specialist medical settings
booking expanded to more sites.                                 enables earlier HIV diagnosis.38 HIV testing should
                                                                be undertaken according to the Emergency Care
Innovative testing models                                       Institute’s clinical indicators, irrespective of HIV risk
                                                                factors. Testing is now simpler and previous barriers
Innovations in service design and delivery have made
                                                                such as concerns about managing HIV results and
testing more available. HIV self-testing supplements
                                                                obtaining written informed consent have been
clinic-based testing and increases the frequency of
                                                                removed.
testing among MSM and stigmatised populations
including people who inject drugs.37,38 The Atomo
                                                                Phylogenetics
HIV Self Test was approved by the Therapeutic
Goods Administration in 2018. The NSW HIV dried                 Phylogenetics uses genome sequencing to track
blood spot (DBS) self-sampling test also provides               how a virus evolves and spreads over time and can
an alternative for at-risk people who experience                link, or map related mutations of a virus making it
barriers to testing through conventional services,              easier to trace routes of transmission.
with 46% of people who register having never
previously tested for HIV or tested more than two               This Strategy will explore the use of HIV
years ago.27                                                    phylogenetics to improve understanding in
                                                                transmission patterns and the impact of HIV
Testing barriers                                                infection acquired overseas. The detection and
                                                                characterisation of active transmission clusters
Barriers to testing include low perceived risk of
                                                                will be used to guide interventions such as focused
infection, lack of symptoms, fear of an HIV diagnosis,
                                                                education campaigns, targeted testing, partner
fear of stigma, and not wanting to tell others of a
                                                                notification, and promoting engagement with
positive diagnosis.39–41 Opportunities are missed
                                                                treatment and care.
for HIV diagnoses at medical services despite
clients having symptoms that are indicators for HIV
testing.40–42
                                                                   Targets
                                                                   •	
                                                                     95% of people living with HIV in NSW are
                                                                      diagnosed.
                                                                   •	
                                                                     Reduce the time between arrival in Australia
                                                                     and the first HIV test for all at-risk overseas-
                                                                     born people with the aim of increasing early
                                                                     detection of HIV infection and linking people
                                                                     with care.
                                                                   •	
                                                                     Reduce the time between arrival in Australia
                                                                     and HIV diagnosis for overseas-born MSM, in
                                                                     cases where infection was probably acquired
                                                                     overseas.

                                             NSW HIV STRATEGY 2021–2025 23
Initiatives          Description                                                       Partners
                     Deliver a mix of options to make testing easy and
                     accessible, including encouraging self-testing at
                     community-based rapid testing and comprehensive clinic-
                     based testing.
                     Expand and adapt innovative models including person-              NSW Ministry of Health, STIPU,
                     centred care, culturally tailored, peer-led services to           NSW Sexual Health Infolink, local
                     selected new sites with low concentrations of gay-                health districts, ACON, RACGP,
2.1                  identified men and sites with CALD communities.                   primary health networks, AH&MRC,
Innovative testing                                                                     Aboriginal Community Controlled
                     Pilot new technologies and online models, in collaboration
models                                                                                 Health Services, Kirby Institute
                     with partners and the community.
                                                                                       (UNSW), Centre for Social Research
                     Ensure that HIV and STI testing models are widely available       in Health (UNSW), Positive Life NSW,
                     for Aboriginal people across NSW in a range of Aboriginal         Multicultural HIV and Hepatitis Service
                     Community Controlled Health Services and culturally
                     competent settings.
                     Ensure services meet the needs of people with diverse
                     sexual and gender identities.

                     DBS testing has created a confidential, convenient
                                                                                       Ministry of Health, Sydney Sexual
                     alternative to conventional testing.
                                                                                       Health Centre, NSW State Reference
                     Extend the NSW HIV DBS testing pilot to ensure the self-          Laboratory for HIV, St Vincent’s
2.2                  sampling home test kit is available free to people at risk        Hospital Sydney, NSW Sexual Health
Dried blood spot     until the transition to Therapeutic Goods Administration          Infolink, Multicultural HIV and
(DBS) testing        listing.                                                          Hepatitis Service, Health Protection
                                                                                       NSW, Kirby Institute (UNSW), Centre
                     Expand the number of settings in which DBS is available,
                                                                                       for Social Research in Health (UNSW),
                     including NSPs, drug and alcohol services, mental health
                                                                                       local health districts
                     services and CALD services and events.

                     Deliver workforce development, training and resources
                     to normalise HIV testing in a range of settings, including
                     public healthcare services and primary care.
                     Develop a range of GP engagement models, with behaviour
                     change focus, covering both testing and PrEP prescribing.
                     Deliver more education in a range of clinical settings
                     around consent and indications for HIV testing as set out
                     in the National Testing Guidelines and ensure links are
                     in place for clinicians to provide test results via the HIV       Local health districts, RACGP,
                     Support Program.                                                  STIPU, Ministry of Health, AH&MRC,
2.3                  Deliver targeted communications and education for GPs to          Aboriginal Community Controlled
GPs and primary      normalise HIV testing in a diverse range of patients; support     Health Services, ASHM, RACGP,
care workforce       concurrent testing for HIV and STIs as part of routine care;      primary health networks, Positive Life
                     and deliver culturally appropriate services to CALD and           NSW, Multicultural HIV and Hepatitis
                     Aboriginal people.                                                Service, NSW Sexual Health Infolink

                     Use new education models to train and upskill GPs in using
                     innovative service delivery for patients, including telehealth.
                     Refine and implement testing guidelines, tools and
                     resources to: normalise testing in a range of settings;
                     support concurrent HIV and STI testing; increase testing
                     frequency among people at risk; monitor testing frequency
                     in people on PrEP; and ensure comprehensive STI screening
                     when PrEP is prescribed.

                                                 NSW HIV STRATEGY 2021–2025 24
Initiatives        Description                                                     Partners
2.4                Fund non-government organisations and partners to deliver       Ministry of Health, STIPU, ACON,
Community          community-led culturally appropriate HIV testing campaign       local health districts, Positive Life
mobilisation and   messages targeting priority populations and emerging sub-       NSW, Pozhet, Multicultural HIV and
health promotion   populations.                                                    Hepatitis Service, SWOP

                   Discreet Life is an innovative HIV testing campaign to
                   increase testing among MSM who do not identify as gay.
2.5                Expand the campaign to target CALD and non-gay-                 NSW Ministry of Health, STIPU, local
Statewide HIV      identifying MSM in outer Sydney and in other regions of         health districts, Pozhet, Multicultural
testing campaign   NSW with lower concentrations of gay-identified men.            HIV and Hepatitis Service
                   Develop and deliver innovative campaigns over the life of
                   the Strategy.

                   A range of initiatives are needed to facilitate earlier HIV
                   diagnosis among overseas-born people who have recently
                   arrived in Australia.
                   Promote the international students website ‘hub’ with HIV
                   testing and prevention information.
                   Adapt the NSW Play Safe program peer education toolkit          STIPU, local health districts, tertiary
                   for international students and roll it out to tertiary          education institutions, English
                   education institutions including universities, TAFE and         Australia, ACON, Multicultural HIV and
2.6                language schools.                                               Hepatitis Service, overseas student
International
                   Work with universities to deliver HIV/STI testing, prevention   health insurance providers, Study
students testing
                   and educational resources on campus that are culturally         NSW, ISANA International Education
                   appropriate, accessible and tailored to meet the needs of       Association, international student
                   overseas-born students.                                         agents, Ministry of Health

                   Promote testing through a range of channels including peer
                   education and social media to reduce barriers.
                   Explore opportunities to promote testing and provide
                   HIV awareness information for international students in
                   COVID-19 quarantine settings.

2.7                Maintain investment in campaigns and community
People visiting    education to target heterosexuals and gay men including         Ministry of Health, STIPU, Pozhet,
high-prevalence    CALD people travelling to countries with high HIV               RACGP, Multicultural HIV and
countries          prevalence.                                                     Hepatitis Service, SWOP, local health
campaign           Educate GPs to ensure PrEP is included in travel advice for     districts
                   at-risk individuals.

                   Release a new policy directive for HIV contact tracing to
                   provide guidance to medical practitioners on notifying
                   partners of patients who have been diagnosed with HIV and
2.8                                                                                Ministry of Health, Health Protection
                   information on support services.
HIV contact                                                                        NSW, STIPU, NSW Sexual Health
tracing            Facilitate testing and support for all recent sexual and        Infolink, Positive Life, Pozhet, NUAA,
                   injecting partners of people newly diagnosed with HIV.          RACGP, local health districts
                   Ensure s100 GPs and other services are aware that contact
                   tracing support services are available.

                                               NSW HIV STRATEGY 2021–2025 25
Initiatives    Description                                                     Partners
               Ensure HIV testing for all women is part of routine
               antenatal screening in accordance with Royal Australian
               and New Zealand College of Obstetricians and
2.9            Gynaecologists guidelines and National Clinical Practice
               Guidelines for Pregnancy Care.                                  NSW Ministry of Health, Health
Antenatal
                                                                               Protection NSW, local health districts
screening      Screening at the first antenatal visit provides an
               opportunity for timely detection and treatment of
               undiagnosed HIV, and significantly reduces the risk of
               perinatal transmission.

               New data and surveillance systems are required to better
               understand the changing HIV epidemic.
               Implement a new HIV and STI minimum data set to
               enhance surveillance of priority populations and sub-
               populations in publicly funded sexual health services,
               including data on gender and sexual identity. This will be
               used to understand prevention, testing, treatment needs,        NSW Ministry of Health, Health
               and service gaps.                                               Protection NSW, local health
2.10                                                                           districts, NSW Health Pathology,
Research and   Monitor testing stratified by PrEP use to identify changes in   Health Protection NSW, eHealth,
surveillance   testing rates among those susceptible to HIV.                   Kirby Institute (UNSW), Centre for
               Work with NSW Health Pathology to extend the depth of           Social Research in Health (UNSW),
               testing data available.                                         community

               Support policy-relevant research in priority settings
               including the NSP.
               Improve understanding in transmission patterns and
               the impact of HIV infection acquired overseas using
               technologies including phylogenetics.

                                           NSW HIV STRATEGY 2021–2025 26
3. TREAT

Start and maintain treatment soon after                          Rapid uptake
diagnosis to maximise health outcomes                            Rapid uptake of HIV treatment among people newly
and prevent transmission.                                        diagnosed with HIV is associated with improved
                                                                 health outcomes and reduced transmissions.43 A
Treatment for HIV is effective, and rapid access                 focus of this Strategy is to ensure that rapid uptake
to treatment after a diagnosis improves health                   of HIV treatment continues to increase, by working
outcomes, improves quality of life and prevents                  with community, s100 HIV treatment prescribers,
further transmission.43,44                                       GPs and primary healthcare providers to strengthen
                                                                 HIV systems and models of care and increase
Person-centred care                                              acceptability to patients.
Person-centred treatment strategies include
early referral to treatment and peer-led services                Care and support
supporting people who are newly diagnosed. It also               Primary care support can be strengthened for
includes retaining people living with HIV in care and            people living with HIV, particularly older people, to
maintaining a connection to support and services                 manage their health in general practice. In 2019,
throughout their life, including in aged care.                   there were over 5,000 people aged 50 years and
Approaches must be culturally acceptable and                     over in NSW living with HIV, representing 54% of the
address specific barriers experienced by priority                total number of people diagnosed with HIV in NSW,
populations, including those in regional, rural and              and the number is growing as populations age.*
remote communities and with gender and cultural                  Linking and retaining people living with HIV in care
diversity, and take into account the range of settings           and support throughout their life is critical for
commonly used by priority populations to maximise                achieving the goals of this Strategy. Addressing all
their engagement.                                                aspects of health and wellbeing of people living
                                                                 with HIV is also critical to maximise their health
Medicare eligibility                                             outcomes.
For people not eligible for Medicare, barriers
to testing and treatment should be reduced or
mitigated. Overseas student health insurance cover
provides a rebate of only a small proportion of the
cost of antiretroviral therapy.45 Compassionate
access for treatment is provided to Medicare-
ineligible patients for notifiable conditions under
the Medicare Ineligible and Reciprocal Health
Agreement Policy Directive.
The Ministry of Health will work with the
Australian Government to reduce the impact of
Medicare ineligibility. NSW local health districts
work with Medicare-ineligible patients to access
HIV treatments free of charge. Other strategies
include seeking compassionate access through a
pharmaceutical company, taking part in a clinical
trial or purchasing generic medications through
individual import at lower cost from overseas.

                                                                          *Unpublished analysis using data to December 2019 by the Kirby Institute, UNSW

                                              NSW HIV STRATEGY 2021–2025 27
The NSW HIV Support Program facilitates the
provision of expert advice to clinicians at the critical
time a new HIV diagnosis is made. The Program
streamlines linkage to care and support for people
with newly diagnosed HIV, negotiating health
pathways and rapidly improving access to five key
support services:

                   1                                         2                                     3

                                                                                             Counselling about
                                                                                       prevention of transmission of
                                                                                        HIV to others, including the
     Effective clinical management,                                                    role of treatment in reducing
      including access to treatment              Psychosocial support                     the risk of transmission

                             4                                                             5

                                                                        Linkage to relevant specialist, community
        Support to ensure that all at-risk contacts                       and peer support services with a lived
            are identified and tested for HIV                                       experience of HIV.

While the five key services should be offered to
every person diagnosed with HIV infection at the                      Targets
time of diagnosis, they also have a role across                       •	
                                                                        90% of people newly diagnosed with
the continuum of care, supporting sustained                             HIV initiate treatment within two weeks of
engagement with care providers. Ongoing training                        diagnosis.
and capacity building of the entire workforce
involved in HIV, including primary care and other                     •	
                                                                        95% of all people with diagnosed HIV are on
non-specialists, ensure the key services are                            treatment and 95% of people on treatment
incorporated into everyday clinical practice. Other                     have an undetectable viral load.
practical measures may be required by individual                      •	
                                                                        75% of people living with HIV in NSW report
specialist services and clinicians to bolster retention                 good quality of life.
in care such as automatic recall systems, systems
that identify loss to care, and more intensive support
for clients with specific needs.

                                                NSW HIV STRATEGY 2021–2025 28
Initiatives      Description                                                     Partners
                                                                                 Health Protection NSW, local health
                 Strengthen the HIV Support Program and provide systems          districts, HIV reference laboratories,
                 for linkage to and retention in care, psychosocial support,     Positive Life NSW, Pozhet, ACON,
3.1              partner notification and rapid initiation of treatment.         ASHM, RACGP, STIPU, NSW Sexual
HIV Support
                 The NSW HIV Support Program facilitates the provision           Health Infolink, AIDS Dementia and
Program
                 of expert advice to clinicians at the critical time a new HIV   HIV Psychiatry Service (Adahps),
                 diagnosis is made.                                              Bobby Goldsmith Foundation,
                                                                                 Multicultural HIV and Hepatitis Service

3.2
                 Support rapid treatment initiation by undertaking
Antiretroviral                                                                   Health Protection NSW, HIV reference
                 antiretroviral drug resistance surveillance in NSW, and
resistance                                                                       laboratories, Kirby Institute (UNSW)
                 routinely reporting results.
surveillance

                 Improve shared care arrangements between general
                                                                                 STIPU, Ministry of Health, ASHM,
                 practice, non-HIV specialist providers and HIV specialist
                                                                                 RACGP, Health Protection NSW,
                 providers to meet the evolving needs of people living with
                                                                                 local health districts, primary health
                 HIV.
                                                                                 networks, Sexual Health Counsellors’
                 Develop a statewide shared care model that defines the          Association of NSW, HIV social
3.3
                 roles and responsibilities of general practices, non-HIV        workers, HIV reference laboratories,
Shared care
                 specialist providers and HIV specialist providers.              Positive Life NSW, ACON, Pozhet,
                                                                                 AIDS Dementia and HIV Psychiatry
                 Strengthen referral and communication pathways;
                                                                                 Service (Adahps), Bobby Goldsmith
                 strengthen links with the HIV Support Program; develop
                                                                                 Foundation, Multicultural HIV and
                 electronic information sharing mechanisms; and provide
                                                                                 Hepatitis Service
                 workforce development and training.

                 Strengthen models of care, including telehealth models.
                 Models will deliver access to psychosocial and peer
                 support, and build the capacity of the HIV workforce to
                 support rapid treatment initiation, treatment adherence
                 and retention in care over the long term for all people with
                 HIV.
                 Ensure everyone diagnosed with HIV is offered the
                 opportunity to speak to a trained peer living with HIV.
                                                                                 Local health districts, HIV reference
                 Ensure supports are in place for people who want to             laboratories, STIPU, ASHM, RACGP,
                 commence treatment immediately after diagnosis.                 Positive Life NSW, ACON, Pozhet,
                                                                                 Social Workers in HIV, AIDS Dementia
3.4              Extend the geographical distribution of specialist
                                                                                 and HIV Psychiatry Service (Adahps),
Models of care   psychosocial and peer-led resources.
                                                                                 Sexual Health Counsellors Association
                 Ensure people living with HIV receive person-centred care       of NSW, HIV social workers, Bobby
                 for comorbidities including mental health, by developing        Goldsmith Foundation, Multicultural
                 strong partnerships and links with multidisciplinary            HIV and Hepatitis Service
                 specialist disciplines.
                 Ensure everyone living with HIV has a chronic disease
                 management plan in primary care.
                 Promote interventions that enhance all aspects of
                 health and wellbeing of people living with HIV such as
                 diet, exercise, smoking cessation, and reducing harmful
                 substance use (including alcohol).

                                             NSW HIV STRATEGY 2021–2025 29
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