Type 1 diabetes What you need to know
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
Type 1 diabetes What you need to know The National Diabetes Service Scheme (NDSS) is an initiative of the Australian Government administered by Diabetes Australia. The NDSS Agent in Queensland is Diabetes Australia – Queensland.
Contents A guide Chapter 1 – Diabetes • What is diabetes? • Type 1 diabetes to type 1 • Other types of diabetes Chapter 2 – Lifestyle diabetes • Eating well • Carbohydrates and blood glucose levels • Adding sugar Type 1 Diabetes: What You Need To Know is designed to provide the latest and most useful information for people with • Let’s eat out type 1 diabetes, their family members and carers. Whether you • Exercise have just recently been diagnosed or have been managing • Weight management type 1 diabetes for some time, this booklet provides facts, figures, tips and useful advice to help you live a healthier life. • Alcohol Managing type 1 diabetes is not easy. It is a considerable • Smoking personal challenge and may seem daunting at first. When • Recreational drugs you have mastered the early challenges of managing type 1 diabetes, there is a great ongoing benefit to be had in keeping Chapter 3 – Monitoring and care up to date with the latest knowledge and treatments. This booklet is designed to be helpful to people facing both these • Blood glucose monitoring challenges. • Insulin The booklet is produced by Diabetes Australia – Queensland, • Insulin pumps an organisation dedicated to providing support and education to people with diabetes. It contains resources, information and • Hypoglycaemia advice on how to get the best out of your health care team as • Emergency well as information on a variety of topics such as exercise, living • Sick days and eating well and what to do if it all goes wrong. • Complications Coping with hypos, health emergencies, travel, driving, insulin, discrimination issues and even making decisions on when and • Pregnancy what to eat are all part of coping with type 1 diabetes. • Monitoring The better informed you are, the better prepared you will be for • Your diabetes health care team making the right decisions. If you have had diabetes for some time, this booklet may be a good refresher. It is also a resource Chapter 4 – Living with diabetes you may like to share with family members and friends who want to know more. • Coping Type 1 diabetes affects different people in different ways. • Driving A management plan is very personal and every individual has • Discrimination their own response and different needs to be taken • Insurance Diabetes: What you need to know into account. Diabetes Australia – Queensland is here to guide and support • Travelling you, whether you are taking your first steps, or just the latest of many steps, along the path to maximising your health potential. Chapter 5 – Support If you have any queries or issues you would like to discuss after • Diabetes Australia – Queensland reading this booklet, ring Diabetes Australia – Queensland’s call • NDSS centre on 1300 136 588. You can make this call from anywhere in Queensland for the cost of a local call. • Medicare If you have direct concerns about your treatment or health, • Fact sheets contact your diabetes health care team to discuss the problem. • Websites 2
CHAPTER ONE What is diabetes? Diabetes is the term used to describe a common medical condition in which the body fails to process blood sugar, or glucose, in the normal way. There are three main kinds of diabetes: type 1, type 2 and gestational. This booklet is mainly about type 1 diabetes. More than 123,000 people in Australia have type 1 diabetes and more are being diagnosed all the time. Understanding the different kinds of diabetes can help you understand the symptoms and treatment available. Type 1 diabetes What is ... Insulin - the hormone produced by the pancreas that allows glucose to enter the body’s cells to be used as fuel. Insulin is like a key that unlocks Type 1 diabetes is a life-long • Unquenchable thirst the door to cells allowing glucose to autoimmune disease that usually • Insatiable hunger, often for enter and do its job. occurs in childhood but can occur sweet foods later in life. Type 1 diabetes occurs Glucose - a type of sugar that comes when the immune system damages • Extreme tiredness from carbohydrates in your food. the pancreas and it no longer • Unexplained weight loss Carbohydrates - one of the basic produces insulin. This means there is building blocks of food. Carbohydrates no key to let glucose into the cells so it • Genital itching or regular episodes are energy rich and found in many can provide fuel for the body. of thrush different kinds of food and drink The onset of type 1 diabetes can • Slow healing of cuts and wounds including those that taste sweet be abrupt and the symptoms are such as fizzy drinks, cake, pastry, • Blurred vision obvious. Between 10 and 15 per cent chocolate, lollies, ice-cream, custard, of all cases of diabetes are diagnosed • Mood changes fruit and juice. Carbohydrates are also as type 1 but it is still one of the most found in food that doesn’t necessarily taste sweet such as bread, cereals, common chronic childhood diseases Type 1.5: Latent legumes, milk, yoghurt and starchy and becoming more common in Autoimmune vegetables such as potato, sweet young adults. Diabetes of potato and corn. Adulthood Causes Latent Autoimmune Diabetes of If you have diabetes, your body The cause of type 1 diabetes and Adulthood (LADA) is also called ‘type cannot make proper use of the how to prevent it is still unknown. The 1.5’. LADA is a slow-developing form carbohydrates broken down from most likely explanation is that the body of type 1 diabetes that is sometimes food. The sugar produced from the has an abnormal reaction to the cells mistaken for type 2 diabetes. carbohydrates builds up in the blood triggered by a virus or other infection. as glucose, when it should be inside About 10% of adults diagnosed We do know that it’s more common in Diabetes: What you need to know the cells being used for energy. with type 2 diabetes may have people under 30. The pancreas - A small organ LADA. People with LADA are not near the stomach that normally Symptoms usually overweight but, as with type produces insulin. When you have 1 diabetes, they may have a family The symptoms of type 1 diabetes type 1 diabetes, the pancreas does history of another autoimmune come on suddenly, so the disease is not produce insulin, so you need to disease like coeliac disease. more likely to be diagnosed quickly. replace the hormone every day People with LADA usually progress with insulin injections or via an The main symptoms of on to requiring insulin fairly quickly insulin pump. undiagnosed diabetes include: after being diagnosed with diabetes. • Passing urine more often than usual, especially at night 3
Chapter 1: Diabetes Other types Fact sheets Diabetes Australia – of diabetes Queensland www.diabetesqld.org.au 1300 136 588 Diabetes Australia – National www.diabetesaustralia.com.au websites NDSS Type 2 diabetes • High blood pressure and high blood cholesterol levels www.ndss.com.au 1300 136 588 Type 2 diabetes is the more common form of the disease – 85% to 90% of • Use of some medications, such Queensland Health all people with diabetes have type 2 as steroids www.health.qld.gov.au diabetes. In type 2 diabetes, the body (07) 3234 0111 • Polycystic ovarian syndrome still produces some insulin, although it Australian Indigenous may not produce enough, or it may not work well enough, to keep the blood Gestational HealthInfoNet glucose levels within a healthy range. diabetes (Edith Cowan University) www.healthinfonet.ecu.edu.au/ Diabetes occurs in 3 to 8 per cent of In type 2 diabetes this is called ‘insulin chronic-conditions/diabetes Australian women during pregnancy resistance’. It means the insulin is not and usually goes away after the baby Diabetes Australia – working well, so the pancreas makes is born. Women continue to produce Multilingual Resources more in an attempt to keep up, but insulin normally but the hormones http://www.diabetesaustralia.com. eventually becomes exhausted. In the produced during pregnancy mean au/NDSS-Content/Resources/ meantime, the blood glucose levels their bodies are temporarily less Multilingual begin to rise. responsive to insulin and they cannot Sweet – Diabetes Transition to Type 2 diabetes can occur at any age, maintain normal blood glucose levels. Adult Care Program but is more common among those who This kind of diabetes may require www.sweet.org.au are overweight, carry excess kilograms insulin but can be managed with around the waist and are older than 40. lifestyle changes. Kids Helpline It is a progressive disease managed www.kidshelp.com.au Of the women who develop 1800 551 800 with healthy eating, exercise and gestational diabetes, about 17 per medication. cent go on to develop type 2 diabetes Lifeline The risk factors for type 2 diabetes within 10 years, and up to 50 per cent www.lifeline.org.au include: will develop type 2 diabetes within 13 11 14 30 years. Royal Flying Doctor Service • Increasing age Good management after pregnancy (RFDS) Diabetes: What you need to know • Family history of type 2 diabetes www.flyingdoctor.org.au helps reduce the risk of developing • Excess weight or obesity type 2 diabetes later in life. (Call 000 for emergencies) • Lack of exercise Women most at risk from gestational SANE diabetes are overweight or obese, www.sane.org • Diabetes during pregnancy 1800 18 SANE (7263) have a family history of diabetes, have • Certain ethnic backgrounds – polycystic ovarian syndrome, or have Vision Australia Indigenous Australians and people of Aboriginal or Torres Strait Islander www.visionaustralia.org.au Middle Eastern or Pacific family backgrounds. 1300 847 466 Island descent 4
CHAPTER TWO Lifestyle Some tips on Eat more fibre. Fibre helps control blood glucose levels, cholesterol and healthy eating weight. It also keeps the digestive Choose the right food. Choose a system healthy. Good sources of broad variety of foods from the five fibre can be found in wholegrain food groups: breads, cereals, rice, bread, fruit, vegetables and legumes. pasta, and noodles; fruit, vegetables and legumes; low-fat dairy; lean meat, Try this: People with diabetes are fish, poultry and nuts; and, small • Reduce your intake of saturated the same as everyone else amounts of healthy fats. The Australian fat and trans fats – these are Guide to Healthy Eating is a useful found in whole fat dairy products, when it comes to eating a resource for nutritional advice. fatty meat and butter and in healthy diet. It is important tropical oils such as coconut Watch your portions. Match your for us all to eat a balanced energy intake with your energy output and palm oil. Replace them with diet that is high in fibre, low (physical activity). Eating too much, healthier polyunsaturated and monounsaturated fats found in in saturated fat and contains even of healthy foods, can increase insulin resistance and raise blood oily fish, avocado, vegetable oils, low glycaemic index (low GI) nuts and seeds glucose levels. carbohydrates to provide Eat regularly throughout the day. • Aim for at least two portions of the body with necessary fuel oily fish a week Start your day with breakfast and and micronutrients. There don’t skip meals. Depending on your • Eat two serves of fruit and at least Diabetes: What you need to know is no need for people with insulin regimen, you may need to snack five serves of vegetables a day diabetes to have special or between meals – discuss this with your and include beans and lentils separate meals. If you need dietitian or diabetes educator. • Limit salt intake and replace with help deciding which foods Include carbohydrates at each herbs, spices, onion, chilli and to eat, how much to eat meal. Carbohydrates are nutrients that capsicum are an important fuel source for your and how often to eat, talk body. You need to match your insulin • Avoid or limit alcohol intake (no to an Accredited Practising more than two standard drinks on to the amount of carbohydrate you any one day) Dietitian for advice. have consumed. 5
Chapter 2: Lifestyle Carbohydrates and blood glucose levels Digested carbohydrates are broken To work out the amount of Foods with a low GI raise blood down into glucose – the body’s main carbohydrates you eat, you glucose levels more slowly than source of fuel. Balancing diet, exercise can use: foods with a high GI and provide a and insulin intake will help manage your longer-lasting source of energy so • The carbohydrate ‘exchange’ or blood glucose levels. Regular blood you feel fuller for longer. Eating too ‘serve’ lists (one carbohydrate glucose testing will help you find the much of any carbohydrate will still ‘exchange’ contains 15g of total right balance. raise your blood glucose level. High carbohydrates) GI carbohydrates increase blood How to manage • Food labels glucose levels quickly, which is useful blood glucose • Carbohydrate counters when treating a hypo, but eating levels Why GI matters low GI carbohydrates is generally recommended. Timing The glycaemic index (GI) ranks the You should discuss your plan for Different types of insulin have different effect carbohydrates have on your treating a hypo with your diabetes actions. Each type varies in when it blood glucose levels. health care team. begins to work, reaches its peak and runs out. Good diabetes management Healthy carbohydrate choices is about matching insulin intake with *Italics = lower GI the carbohydrates eaten. If your Wholegrain/wholemeal Burgen® Breads, 9-grain Multigrain®, PerforMAX® carbohydrate meal plan is regular and bread/bread rolls consistent, it is easier to manage blood glucose levels. High fibre breakfast cereals Rolled oats, All-Bran®, Guardian® or untoasted muesli The amount – too little or too much Pasta, rice and grains Basmati, Moolgiri or Doongara, barley, bulgur and If you eat more carbohydrates couscous Diabetes: What you need to know than usual and don’t increase your Legumes Baked beans, kidney beans, chick peas, lentils, physical activity or your insulin, your three bean mix blood glucose level can rise too high Milk products or dairy Low fat milk, soy drinks (calcium fortified), custard (hyperglycaemia). If you don’t eat alternatives and yoghurt enough carbohydrates or skip a meal, your blood glucose level can drop too Vegetables Potatoes, sweet potatoes and sweet corn have low (hypoglycaemia or hypo). There is high levels of carbohydrates no ‘one size fits all’ solution: It depends Fruit Most fruit is low GI – apples, oranges, pears, on your age, body size and physical peaches, bananas. Eating lots of watermelon and activity levels. lychees can increase BGLs quickly. 6
Chapter 2: Lifestyle Sugar A little bit is ok Small amounts of sugar are OK, but high-energy foods like chocolate, cakes and lollies should be limited. Using an alternative sweetener is an option, but read the label carefully because there are two different types of sweeteners (nutritive and non- nutritive sweeteners). Foods that contain an alternative sweetener, such as sugar-free chocolate, can still be high in fat (particularly saturated fat) and should not be eaten in large amounts. Sweetened products can add variety to a low saturated fat, high fibre eating plan. Check the effect of sweeteners on your blood glucose level by testing before eating and again two hours later. You can repeat the test to make sure the results really are due to that specific food. Non-nutritive sweeteners (also known as artificial or intense sweeteners). These are kilojoule-free and do not affect blood glucose levels. They include acesulphame K, alitame, aspartame and sucralose, saccharine, cyclamates and stevia. Heat can change the taste of non- Eating out nutritive sweeteners, so add them after you have finished cooking. Splenda, Equal, Spoonful and neotame are the only ones that can be added during cooking or baking, without affecting the taste. Eating out is one of life’s pleasures and you can still enjoy this experience while looking after your health. Low joule foods and drinks that contain non-nutritive sweeteners (soft Meals chosen should: drinks, cordials and jellies) can add • Be lower in fat (especially saturated fat like butter) variety without raising your blood glucose levels. • Contain breads and cereals (preferably wholegrain), vegetables (including legumes) and fruit Nutritive sweeteners. These include fructose, sorbitol, maltodextrin and • Have low amounts of added sugar xylitol. They are not kilojoule-free, Diabetes: What you need to know have different effects on blood Insulin and eating out glucose levels and may be labelled as You have less control over when your food arrives when you eat out, so to ‘carbohydrate modified’. avoid hypos take your insulin as the meal arrives. Choose meals with enough carbohydrates and ask for extra bread, rice, potato, fruit or fruit juice if you need more. Alternatively, you may need to reduce your dose of insulin. If it’s a special occasion and you are having a bigger meal with more carbohydrates than usual, you may wish to increase your insulin dose before the meal. Discuss this with your diabetes health care team if you are not confident in making this decision for yourself. 7
Chapter 2: Lifestyle Physical activity Checklist to get into action Work out what activity you will do and how long you will do it for Monitor your blood glucose level before, during and after exercise Exercise can help control diabetes and prevent long-term Consider whether complications. Becoming more active does not mean you extra carbohydrates or a reduction in have to sweat it out at the gym – it can be as simple as insulin is needed walking for 30 minutes a day. Find something you enjoy and keep it up. Incidental activity is also a Carry your blood good way to keep active so vacuuming, glucose testing kit, walking up the stairs or stretching at diabetes identification, hypo treatment and your desk all counts. drinks Footwear – is it Insulin and Listen to comfortable and will physical activity your body Regular exercise helps make insulin Keeping your blood glucose level stable it protect your feet more effective, so you may need a during exercise means you have to during the activity? lower dose. Your diabetes health balance insulin and carbohydrates. Diabetes: What you need to know care team can advise you on changes Your blood glucose level will continue to Check your feet that may need to be made to your drop and will trigger a hypo if you after every activity normal regimen. Check your blood don’t restock. and if you develop glucose level before, during, and after Blood glucose levels may rise for a short problems, see a a training session. time after intense exercise. This can be podiatrist You may need to increase your portions due to the amount, type or duration of of carbohydrates, as well as reduce the activity, your blood glucose level Drink plenty of water your insulin dose during the training before the exercise, food intake or the and replace lost fluids period to help prevent hypos. kind of treatment you are using. 8
Chapter 2: Lifestyle Weight management Following a long-term, balanced eating plan and adding regular physical activity into your life are great ways to manage your weight. It is important to get help from your diabetes health care team to work out the combination of treatment, eating plan and activity that best suits your needs and lifestyle. Managing your Being overweight also puts pressure on joints – such as your hips, knees No quick fix weight and back, which makes physical If you are looking to lose weight, don’t It’s not just the scales that reflect activity more difficult. rush to follow the latest fad diet. The your weight – it is also the size of best way to improve your health is to your waist. Health professionals Body Mass Index make small, sustainable changes to your eating behaviour and physical activity. recommend that men have a girth below 94cm and women below (BMI) If you are thinking about using meal 80cm – although different ethnic The best way to determine whether replacement programs, talk to your doctor groups have different recommended you are in a healthy weight range is to first. They are generally low-energy, measurements. measure your BMI. This is calculated by high-protein and low-carbohydrate plans dividing your body weight in kilograms You can work out your true waist that can put stress on your body if not by your height in metres squared. measurement by finding the halfway managed with medical supervision. Your point between your lowest rib and the body is already working hard to control Body Mass Index Weight top of your hip. If you find it difficult to your blood glucose, blood pressure and (BMI) (kg / m2) Status measure yourself, ask for help. cholesterol so it pays to seek the Below 18.50 Underweight right advice. People with a high waist measurement are more likely to have high blood 18.50 – 24.99 Normal There are potential side-effects to pressure, high cholesterol, sleep 25 – 29.99 Overweight using meal replacements, such as apnoea and dementia, as well as hypoglycaemia, and the medications you 30 Obese take may need adjustment. some cancers. It takes time Diabetes: What you need to know 9
Chapter 2: Lifestyle Losing weight is all about having realistic expectations. It takes time component to maintain healthy blood glucose levels. Complementary to put weight on, so it makes sense medicines High blood glucose levels can make Complementary medicines that it will take time to take it off. it difficult for you to gain weight. should complement, Successful long-term weight loss In addition to modifying your food rather than replace involves making practical changes intake, your doctor may recommend conventional treatments. to your lifestyle. Losing 5 to 10 per a temporary or permanent change to They include herbal, cent of your body weight a year until your diabetes traditional, natural and you reach a healthy target weight is medication. alternative preparations. the ideal way to shed those excess kilograms and improve your health. Some Australian standards for people take complementary medicines are designed Start your journey to better health for quality and safety, not effectiveness. supplements by eating regularly through the day – Complementary medicines have risks to increase including breakfast. Don’t skip meals and side-effects just like conventional their nutritional because this slows your metabolism. treatments. Some may interact with each intake. To lose weight you need to use more other or with prescription and over-the- Some supplements are energy (measured in kilojoules) than counter medicines. unsuitable for people with diabetes, you consume. You may need to cut so always discuss any plan to take To minimise any risk when using either back on portion sizes and this may supplements with your dietitian or over-the-counter or complementary require a reduction in insulin dosages. doctor. This is especially important medicines, you need to: If you are looking for more tips if you have problems with kidney on healthy eating, check out The function or diabetes control. • Be honest with your doctor, diabetes Australian Guide to Healthy Eating and educator and dietitian about the the Diabetes Australia fact sheets: Do Practical tips medication you are taking. Don’t stop you need to lose some weight? and for gaining taking prescription medication without first discussing it with your doctor Healthy Eating Guide. weight • Consider the cost Underweight • Eat small frequent meals Diabetes: What you need to know • Remember some can interfere with Being underweight can make it • Add more mono or polyunsaturated prescription medicine difficult to stay healthy. If you have margarine and oil to your food unexplained weight loss, it could mean • Bear in mind that these medications • Add skim milk powder to drinks, something is wrong. have possible risks and side-effects soups and stews Your dietitian can provide you with a • Speak to your pharmacist about • Add grated cheese to cooked foods personal treatment plan to meet your your current medication and any nutritional needs. The plan will include • Snack on small serves of crackers, possible risks associated with adding more protein, fat and energy in your cold meat, nuts and dried fruit complementary medications to your diet while managing the carbohydrate diabetes management 10
Chapter 2: Lifestyle Alcohol Diabetes and drinking alcohol do not go well together but if you follow a few basic rules, there is no reason why you can’t enjoy a couple of drinks. Smoking But remember ... alcohol increases the risk of having low blood glucose (hypo) because it slows the release of glucose from the liver. The risk continues for some time Giving up smoking is one of the most Plan your efforts to get the best results after you stop drinking. positive things you can do for your and get support from your doctor, health. It will reduce the risk of long- pharmacist, friends and family. Tips: The National Health and Medical term diabetes complications. Research Council recommends that Ring Quitline 13 7848 for even healthy men and women consume If you have diabetes, you already have more help. no more than two standard drinks a an increased chance of developing Instead of focusing day and include alcohol free days to heart disease or having a stroke. on the dangers of reduce the risk of harm from alcohol- Smoking also increases the risk of smoking, here are related disease or injury. other diabetes complications. the benefits of You may have tried a few times to give having a smoke- • Don’t drink on an empty stomach up – it can be difficult. free life: • Avoid drinking excessively – the more you drink the greater the hypo risk • Tell your friends you have diabetes and make sure they After 48 hours, the After three to nine know what to do if you have a nicotine has left your months, your coughs, hypo body and your sense of taste and smell are wheezing and breathing • Wear diabetes ID dramatically improved problems will improve • Carry fast-acting glucose and your blood glucose meter in After one year, case of a hypo the risk of a heart • Check your blood glucose before you After eight attack falls to go out and before bed hours, the levels around half that of a smoker • Carry extra snacks in case you go low of bad products in the blood • Eat before and after you go out such as nicotine • You may need a carbohydrate snack and carbon during the night or before bed monoxide are reduced by half • Drink plenty of water to prevent and oxygen dehydration levels return to • Think you have a hangover? Check normal your blood glucose level – you may be Diabetes: What you need to know having a hypo. Treat immediately Within 20 minutes of • If you are sick or can’t take food, have stopping, your blood After three months, a sugary drink and monitor your blood pressure and pulse your circulation will glucose level regularly. You may need to rate return to normal improve and your follow your sick day management plan skin will look better • Never stop taking your insulin. Eat breakfast to help with blood glucose control 11
Chapter 2: Lifestyle Recreational drugs websites NDSS www.ndss.com.au 1300 136 588 Queensland Health www.health.qld.gov.au The most commonly used recreational drug is alcohol. (07) 3234 0111 Other recreational drugs are illegal and dangerous and involve a Find Your 30 Campaign higher degree of risk to your health if you have diabetes. (Eat Well Be Active) www.your30.qld.gov.au Other drugs: Hallucinogenic drugs Know the score include cannabis, LSD and magic GI database www.glycemicindex.com The effect of any drug on the body mushrooms. Hallucinogenic drugs, varies from person to person but Go For 2 & 5 also known as psychedelics, change young people are perhaps more likely www.gofor2and5.com.au the way a person perceives the world. to consider experimenting with illegal Health Insite (Australian and dangerous recreational drugs. Drugs such as cannabis can cause Government Initiative) feelings of hunger and lead to a rise Drug use can cause serious problems www.healthinsite.gov.au/topics/ in blood glucose levels. They can for people with diabetes. Diabetes also cause forgetfulness - including 1800 022 222 Depressants: Also called downers, forgetting to take insulin. include alcohol and sleeping pills. Lighten Up LSD and magic mushrooms can They also include illegal drugs such www.health.qld.gov.au/lightenup cause hallucinations, which can last as heroin, methadone and cannabis. (07) 3246 3399 up to 12 hours, affecting insulin and Downers slow the body down, food intake.. Measure Up Health Campaign clouding thought processes, slowing www.measureup.gov.au the heart rate and breathing. Anyone Stay safe Smart Choices – The Healthy who takes them will feel relaxed and • The risk associated with taking Food and Drink Supply Strategy be more prone to forgetting about illegal drugs is extreme for people for Queensland Schools insulin or testing. with diabetes http://education.qld.gov.au/ Uppers: Also called stimulants, schools/healthy/food-drink- • Some drugs carry heavy penalties include illegal drugs such as speed, strategy.html for possession or supply ecstasy and cocaine. These drugs can make a person more active and Diabetes: What you need to know • If you go clubbing, wear talkative than usual. When the drug diabetes ID wears off, it can cause depression and Fact sheets • Tell your friends about your tiredness. Diabetes Australia – diabetes and how to treat a hypo Uppers can also suppress appetite, Queensland • Have carbohydrates before you go www.diabetesqld.org.au which can cause hypos, especially if out and when you get home 1300 136 588 combined with dancing. • Don’t mix drugs and alcohol Diabetes Australia – National www.diabetesaustralia.com.au 12
CHAPTER THREE Monitoring and Care As you develop strategies Blood glucose and the amount of exercise you do, your diet and other lifestyle factors to help you cope with type monitoring such as travel, stress and illness 1 diabetes, you will find that Measuring and recording your blood • Understand how your lifestyle monitoring your own blood glucose levels is important because it helps us understand how your body choices and treatment can make a glucose levels is a valuable real difference responds to changes in insulin levels, tool that puts you in charge eating patterns, physical activity and • Know immediately if your blood of your self-management other factors. A change in the pattern glucose level is too high or too plan. Your diabetes educator can alert you to possible problems low, so you can make informed will teach you how to check that may need to be discussed with decisions about eating before your diabetes health care team. Diabetes: What you need to know exercise, treating a hypo or seeking your blood glucose levels and Monitoring your blood glucose medical advice if you are sick understand your targets. You levels, recording and reviewing • Know when to seek advice from will need to do a check at least the results will help you to: your health care team about four times a day and extra adjusting your insulin • Become more confident managing checks are needed if you are your diabetes • Improve meals or snack planning sick, change your activity level when you are not achieving your • Better understand the relationship or are experiencing unusual between your blood glucose levels glucose targets symptoms. 13
Chapter 3: Care Storing insulin All insulin needs to be kept below 30°C out of the fridge and ideally between 2 and 6°C in the fridge. Store insulin Insulin you are using in a cool, dry place and away from direct light. Your supply of insulin should be stored in the fridge until needed. Don’t place insulin in, or close to, the Insulin is a hormone produced in the Intermediate-acting insulin freezer compartment. Keep at least one pancreas. Your body uses insulin to vial or cartridge of each type of your move glucose from the bloodstream • Taken once or twice a day insulin in the fridge as a spare. Insulin into cells where it is used as energy. • Peak action – four to 12 hours can be safely carried in your handbag Insulin injections are required because or pocket. your body is not producing insulin. • Lasts up to 24 hours Don’t use insulin if: • Cloudy in appearance – must be Why inject mixed before each injection • Clear insulin has turned cloudy insulin? Mixed insulin or changed colour Insulin is a protein. It can’t be given in • The expiry date has been reached • Combination of intermediate and/ tablet form because stomach acids or rapid-acting insulin or short • Insulin has been frozen or exposed destroy the proteins before the insulin acting insulin to high temperatures can be absorbed. • Taken once, twice or sometimes • Lumps or flakes can be seen Types of insulin three times a day • The vial has been opened for more There are three groups of insulin – • Peak action – one to 12 hours than 28 days animal, human and analogues. Human insulin is not from a living person but • Lasts up to 24 hours is produced synthetically to exactly • Cloudy in appearance – must be match human insulin. Most people use mixed before injecting human insulin and insulin analogues, although a small number of people still Insulin use animal insulin. injections There are five main types The needles used to inject insulin are of insulin: very small because insulin only needs Rapid-acting analogues to be injected under the skin. Once it has been injected, it is carried into • Injected just before food the bloodstream. • Peak action – one to three hours The three main areas for injecting • Lasts three to five hours insulin are the stomach, buttocks and thighs. Your diabetes health care • Clear in appearance team can help you decide which is the best for you. It is important to Disposal Long-acting analogues rotate injection sites, as injecting into of sharps • Injected once or twice a day to the same site can cause a build-up Dispose of syringes and needles in an provide background insulin of lumps under the skin, affecting approved sharps container, which must • These don’t have a peak action absorption of insulin and control of be kept out of the reach of children. time – so no need to take with food blood glucose levels. These containers are available from your pharmacist or Diabetes Australia – • Lasts up to 24 hours The first time you inject can be Queensland. frightening, but as your confidence Diabetes: What you need to know • Clear in appearance When full, sharps containers must be grows it becomes easier. If you are Short-acting insulin worried about your technique you properly disposed of through your local should talk to your diabetes health council. Do not dispose of sharps in • Injected up to 30 minutes before care team. Insulin injection is not anything other than an approved sharps a meal painful if performed properly – pain is container. • Peak action – two to four hours a sign of poor technique. Never share needles, syringes, pens, • Lasts up to eight hours insulin cartridges or bottles because of the risk of contamination and infection. • Clear in appearance 14
Chapter 3: Care Insulin pumps What does an or playing contact sports. It must not be removed for longer than two hours. insulin pump do? Insulin pumps are becoming more An insulin pump is a small, commonly used. computerised device worn outside the body – it looks a little like a pager. The You may pump works like a healthy pancreas delivering tiny, regular doses of insulin consider a pump via a flexible canula that is inserted if you are: under the skin. The canula is changed • Monitoring carbohydrate every three days. intake closely • Ready to learn lots of new Is it for me? information Insulin pumps are not for everyone. • Able to use simple menus such as those on a mobile phone How does it or computer work? • Given the go-ahead from your An insulin pump is programmed diabetes specialist to give a small dose of insulin continuously over 24 hours, depending on the individual’s needs. An extra An insulin pump dose of insulin is programmed when may be for you meals are eaten, or when blood if you: glucose levels are too high. » Have recurrent hypoglycaemic An insulin pump contains only rapid- episodes or have lost the ability acting insulin. No long-acting insulin to sense a hypo is used. • Want increased flexibility for insulin dosing New skills • Are a shift-worker or change You will have to learn new skills when your insulin doses often you first start using a pump – there are a few adjustments to make. • Have unpredictable blood Dosing is different on a pump, as the glucose levels amounts of insulin are often lower than • Have rising blood glucose you used previously. Understanding levels overnight carbohydrates and adjusting your insulin doses for different meals gives • Are planning to start a family you more flexibility, but you will have and want better control before you to work at becoming familiar with the fall pregnant new program. You will need support • Are in a private health from your diabetes health care team to insurance scheme make the most of an insulin pump. Diabetes: What you need to know • Are under 18 years – you can apply for a government subsidy How long do you wear it? To learn more about pumps see the Diabetes Australia - Queensland The insulin pump must be worn all the booklet “I’m considering an time, but can be removed for short insulin pump”. periods when showering, swimming 15
Chapter 3: Care Hypoglycaemia Hypoglycaemia is commonly referred Step 1 to as ‘a hypo’. Generally it occurs Have about 15g of quick-acting What happens when your blood glucose level drops glucose IMMEDIATELY, such as: if a hypo is not below 4mmol/L, although this can vary. It is important to treat a hypo quickly • Six to seven glucose jellybeans OR treated? to stop the blood glucose levels from If not treated quickly, your blood • 100ml sweet soft drink, not ‘diet’ OR glucose level can continue to drop falling even lower. • Three teaspoons sugar or honey OR which may progress to: What causes • 125 to 200ml of fruit juice OR • Loss of co-ordination hypos: • Slurred speech • 100ml of Lucozade • Delaying or missing a meal If you can, re-check your blood • Confusion • Not eating enough carbohydrates for glucose level after 15 minutes to make • Loss of consciousness/fitting a given dose of insulin sure it has risen above 4mmol/L. If the • Unplanned physical activity symptoms don’t go away or if you are still below 4mmol/L, REPEAT Step 1 • More strenuous exercise than usual IMPORTANT: If after repeating Step • Drinking alcohol 1, your blood glucose level still does What are the not rise above 4mmol/L, get help immediately. Your blood glucose level symptoms: could continue to drop and you could • Weakness, trembling or shaking become unconscious. • Sweating Step 2 • Light headedness/headache If your next meal is more than 20 minutes away, you will need • Lack of concentration to eat about 15g of long-acting • Behaviour change carbohydrates. This could be one of • Dizziness the following: Diabetes: What you need to know • Tearfulness/crying • A slice of bread OR • Irritability • A glass of low fat milk or soy milk OR • Numbness around the lips/fingers • A piece of fruit OR • Hunger • Two to three pieces of dried If you feel any of these symptoms, apricots, figs or other dried fruit OR check your blood glucose level. If you are unable to do so, treat as a hypo • 200ml tub natural low-fat yoghurt anyway, just to be sure. The first thing OR to do is make sure you’re safe. • Six small dry biscuits and cheese 16
Chapter 3: Care Emergency What to do if someone with type 1 diabetes becomes drowsy, Hypos can occur while you are asleep. The hypo may wake you up, or you What else unconscious or unable to swallow: may wake later feeling tired, with a should I do? headache or hangover sensation. If • Wear diabetes identification alert • Don’t give any food or drink you are concerned about overnight • Note any hypos you have • Place them on their side, make sure hypos, check your blood glucose their airway is clear between two am and three am when • Make sure your family, friends and hypos are most likely to occur. Keep co-workers know how to recognise • Phone for an ambulance (dial 000) and treat a hypo something sugary beside your bed stating a ‘diabetes emergency’ just in case. You may like to check • Look for the cause of your hypo so • Give an injection of glucagon if your blood glucose level before bed you can try to prevent the situation available and you are trained to do so and if concerned, have a snack before from reoccurring • Wait with the person until the bedtime such as biscuits and milk, half a sandwich, fruit or yoghurt. • Contact your doctor or diabetes ambulance arrives educator if you are having hypos • When conscious, they’ll require Hypoglycaemia often carbohydrates to maintain their blood glucose levels unawareness • Always carry rapid-acting hypo Some people feel no symptoms of a treatment with you Glucagon hypo, or experience symptoms only • Eat carbohydrates if you are Diabetes: What you need to know when the blood glucose level drops drinking alcohol Glucagon is a hormone that raises the very low. This problem is more likely blood glucose levels and is injected in a • Before driving a motor vehicle, test to occur in someone who has had similar way to insulin. your blood glucose level, make diabetes for a number of years or in sure it is above 5mmol/L Using it is recommended to treat severe people who have hypos frequently. If life-threatening hypoglycaemia. There you have hypoglycaemia unawareness • You will eventually recognise your may be times when you can’t treat your you must check your blood glucose own hypo warning signs own severe hypo, so it is important to level more frequently and you should show your family and friends how to discuss the situation with a specialist use your emergency glucagon. or diabetes educator. 17
Diabetes: What you need to know 18 Chapter 3: Care days Sick
Chapter 3: Care Hyperglycaemia (high blood glucose levels) is when the blood glucose 2. Test your blood glucose levels – every two hours at first. If your What are is higher than the desirable range – blood glucose level is more than ketones? usually above 15mmol/L. Most people 15mmol/L over two consecutive When there is too little insulin in the with diabetes have a short-term rise in tests and you have ketones, you body, glucose can’t enter cells to blood glucose readings that lasts need extra insulin – contact provide energy, so the body begins a few hours but falls back to the your doctor. to break down fat and muscle as an target range. alternative source of energy. 3. Test for ketones regularly – use Reasons for high blood either ketone urine test strips This process causes ketones to be glucose readings: or a meter, which allows blood produced. Ketones also need insulin ketones to be checked. Test strips to enter the cells and when there is • Eating extra carbohydrates insufficient insulin the ketones build are available from a pharmacy or • Not enough insulin or the dose through NDSS. up in the blood and are eventually may be too low, or may have passed through the kidneys and 4. Rest – have a friend or relative into the urine. While large quantities been forgotten stay with you or check on you of ketones can be serious, small • Less exercise than usual frequently. Exercise with caution if amounts are not harmful and can your blood glucose level is above also be found in people who do not • Can be temporary during or 15mmol/L. have diabetes. just after vigorous exercise (adrenaline effect) 5. Keep drinking and (if possible) • Measuring the blood glucose too eating – eat or drink carbohydrate- What is soon after a meal – wait two hours containing foods/fluids if your blood ketoacidosis? glucose level is under 15mmol/L. after eating Ketoacidosis is a life-threatening Eat or drink non-carbohydrate condition that can occur when you • Emotion, such as excitement foods if 15mmol/L or above. are ill or have a very high blood or stress glucose level resulting from a lack • Infection or other illness of insulin. The presence of large When do I get amounts of ketones in the blood or • Inaccurate blood glucose levels – clean hands, check expiry date medical help? urine is called ketoacidosis. There are certain times during illness on strips, retest Signs of ketoacidosis include: when your diabetes health care If your blood glucose level is usually professional will need to increase your • Nausea, vomiting and/or well controlled, an occasional higher insulin dose. abdominal pain reading is nothing to worry about. Contact your doctor or diabetes • Deep rapid breathing or However if your readings continue to educator if: breathlessness rise, or are higher than they should be over a period of time, your treatment • You can’t keep food or fluids down • Extreme drowsiness may need to be reviewed. Illness and have persistent vomiting, • A ‘fruity’ odour to the breath or infections generally cause blood diarrhoea and/or abdominal pain glucose levels to rise – take action at The most likely time for developing • Urine ketones are moderate/ ketoacidosis is when a person the first sign of illness. heavy and blood glucose is over is unwell or has an illness due to Have a Sick Day Plan in place. 15mmol/L infection. During periods of illness, Discuss what you will do with your • Blood ketones are more than even if you are not eating, you diabetes health care team. 0.6mmol/L and blood glucose is still need insulin. It is important to over 15mmol/L continue taking your insulin and to do Sick Day Plan more frequent blood glucose testing. When to start: Start even if you feel You should contact the hospital or medical centre immediately when: Ketones are easily detected by a OK but there are ketones in your simple urine test or blood test with blood/urine or your blood glucose • You have deep rapid breathing or certain meters. You should test for level is greater than 15mmol/L for two breathlessness ketones if your blood glucose is high Diabetes: What you need to know consecutive readings within a 2-6 hour • You are extremely drowsy (usually over 15mmol/L) or if you time frame. have any symptoms of ketoacidosis. • You have a ‘fruity’ odour to your Important steps: breath If you discover a high level of ketones 1. Always take your insulin – even and especially if your blood glucose • You are unable to keep fluids down when you are unwell. Seek advice level is high, you should call your from your diabetes health care (See ketoacidosis following.) doctor immediately, or go to your team if you are told to stop. It is nearest emergency department. rare for doses to be reduced – you may need more, not less. 19
Chapter 3: Care Complications High blood glucose levels can cause serious damage to your body over Common Peripheral vascular disease: Damage to the blood vessels in the time but there are things you can do to complications feet means their blood supply is reduce your risk of developing them. If Damage to the large blood vessels limited. This can cause delayed healing blood glucose, cholesterol and blood Heart attacks and stroke: Having from blisters or sores. If sores are not pressure levels are kept within the diabetes increases your risk of properly cared for, they can develop normal range, the risk of damage to developing these problems. People into ulcers and become infected. In your body is reduced. with diabetes may have raised very serious cases, surgery may be cholesterol and blood pressure. A necessary and amputation may Reducing complications family history of heart disease or be required. from diabetes stroke, smoking and being physically Neuropathy: Neuropathy is nerve • Have well-managed diabetes inactive increases your risk. damage caused by high blood glucose Damage to the small blood vessels levels. Nerve damage can lead to pain • Keep your blood glucose, and loss of feeling to the hands and blood pressure and cholesterol Retinopathy: Damage to the retinas feet, called peripheral neuropathy. It at target levels at the back of your eyes, if left commonly affects the nerves in feet but • Regularly test your blood unchecked, can cause blindness. any nerves can be involved including glucose levels Have your eyes examined regularly those that control internal organs. by a qualified optometrist or eye • Remember to see your doctor for all Symptoms include: specialist. If you experience a sudden your recommended screening tests loss of vision, seek advice from an • Tingling • Take all prescribed treatments optometrist immediately. • Numbness Diabetes: What you need to know • Don’t smoke. Call Quitline 13 7848 Nephropathy: High blood glucose levels can damage your kidneys • Burning or pain at rest • Be physically active for at least 30 over time, especially if you have high Avoid foot problems minutes five times a week blood pressure. Keeping your blood • Keep your blood glucose level • Follow a healthy eating plan glucose and blood pressure under well controlled control will help reduce your risk of • Limit your alcohol intake kidney damage. Have an annual • Stop smoking • Lose excess weight urine microalbumin test to check for • Wash feet every day with lukewarm evidence of kidney damage. • Look after your feet and choose water and mild soap footwear that protects your feet 20
Chapter 3: Care • Dry feet well, especially between the toes. Use a soft towel and Sex and diabetes Pregnancy pat gently Sex is an important part of Having a family is a big decision, relationships. Sex can be an energetic especially if you are a woman who has • Keep the skin smooth with creams, exercise, which means there is a diabetes because there are more factors especially on the heels but not chance of having a hypo either during to take into account. Your diabetes between the toes. If the skin is or after sex. health care team can guide you through cracked, seek help to treat your planning and your pregnancy. Make sure you have fast-acting • Keep feet dry – dust with non- Make sure you talk to them BEFORE glucose on hand. You may also want medicated powder before putting getting pregnant. to tell your partner what to expect if on footwear you have a hypo. This could be the Many women who have diabetes go • Check feet daily – at the first sign time to tell them a bit more about on to have healthy pregnancies and of redness, swelling, lasting pain, diabetes as well. healthy babies. You can increase your numbness or tingling, seek chances of delivering a healthy baby by In the longer term, problems while medical advice keeping your blood glucose levels well having sex are more common in controlled before conception and during • Use a mirror if you cannot easily people with diabetes. pregnancy. It is important to have folic reach or see your feet acid before falling pregnant. Sexual • Don’t treat calluses, corns or bunions by yourself complications The first eight weeks are important: Erectile dysfunction (ED) • Persistently high blood glucose • Cut toenails straight across to levels increase the risk of abnormal avoid ingrown nails and use a nail ED or impotence is the inability to development to the baby and file to remove sharp edges. Soak achieve or maintain an erection for complications for the mother. Your your toenails in warm water to sexual intercourse. It is one of the doctor can measure your longer-term soften before you cut them most common sexual problems blood glucose levels using the HbA1c experienced by men. • Don’t let your feet get too hot test. The risks increase if this result or too cold The main causes are tiredness, goes above 7 per cent stress, emotion, alcohol, smoking, (See page 23, for more information.) • Don’t go barefoot recreational drugs, diabetes, certain • Hypos can cause miscarriage early • Cover small cuts with a mild medication, surgery and other in the pregnancy. Ideal control is antiseptic and dressing illnesses. recommended and preparation for There is a wide range of treatments pregnancy should be discussed with Teeth and gum for ED including sex therapy, your diabetes health care team care medication (oral, injection and urethral • Have your eyes checked before you High blood glucose levels can cause suppository) and vacuum therapy. fall pregnant as pregnancy can place tooth decay and gum infection, Less commonly, surgery may extra pressure on the small vessels which can increase your risk of heart be required. in your eyes. If you have advanced disease. Signs to watch out for When starting treatment for erection retinopathy that has not been treated, include a dry mouth, burning tongue, problems it is vital that your diabetes make sure it is treated before you red, sore, swollen or bleeding gums and any other linked conditions such become pregnant and white film on your gums or on the as heart disease are well controlled. inside of your checks or tongue. Your main goals: Having diabetes does not mean you Make sure your dentist knows you will go on to develop ED, but it is » Check your blood glucose levels have diabetes and visit regularly. important to be aware of it in case you more regularly – discuss with your experience problems. health care team If you have a dry mouth, drink water rather than sugar-filled drinks. Female sexual dysfunction (FSD) » Follow diet and exercise guidelines, Sugarless gum can help increase stop smoking and reduce or stop FSD can be caused by physical, saliva production. drinking alcohol emotional and lifestyle factors, medication and diabetes-related » Contact your diabetes health care Diabetes: What you need to know complications. team if you have problems with nausea and vomiting Women experiencing FSD may have problems with desire, arousal, pain » Continue taking folic acid during intercourse and achieving » Test your urine or blood for ketones orgasm. » Have a glucagon kit and make sure Currently there is no medical treatment someone in the household or nearby for FSD, but research is ongoing. knows how to use it Treatments in the form of therapy and aids for lubrication and clitoral » Attend all antenatal clinic stimulation are available. appointments 21
Chapter 3: Care On target Being actively involved in the management of your diabetes means you need to know what tests you should have on a regular basis with your health care team. These tests will help determine how your health is tracking. HbA1c testing This blood test reflects your average blood glucose reading for an eight to 12-week period. You should have this test at least once a year, but you can have the test as frequently There are two types of cholesterol – HDL (the good cholesterol that Foot as every three to six months. It protects against heart disease) and examination provides a snapshot of your diabetes LDL (the bad cholesterol which can Check at least every 6 months for management. damage your heart). changes in sensation, decreased Your HbA1c value should be 7 per circulation and infection. cent or less (this can vary according Triglycerides are another kind of to individual circumstances). The blood fat that increases the risk of heart disease. Triglycerides should be Annual cycle of aim is to get it as low as possible less than 1.5 mmol/L. care (Minimum without causing hypos. At this level, complications are minimised and the requirements) Generally your HDL should be risk of hypos is low. Every six months: greater than 1.0 mmol/L and your For each 1 per cent reduction in LDL should be less than 2.5 mmol/L. • Blood pressure the HbA1c value there is a 20 to These levels are achievable through • Weight 40 per cent reduction in the risk of regular physical activity, weight loss, a healthy diet low in saturated fats • Body mass index complications. and by taking cholesterol-lowering • Waist circumference If your HbA1c is elevated, you may medication. need to increase your physical activity, • Foot care lose weight or adjust your insulin, but Urine Every year: talk to your diabetes health care team before doing this. microalbumin • HbA1c This test detects evidence of kidney • Total cholesterol, LDL cholesterol Blood pressure disease. You should have this test at least once a year. Achieving target and triglycerides monitoring levels for your HbA1c and blood • Kidney check (urine microalbumin Checking your blood pressure and pressure will help prevent and treat test) treating elevated levels reduces your kidney problems. Your doctor may risk of blood vessel damage and prescribe medication if needed. • Medication review kidney disease. • Smoking status Check at least twice a year. Generally Eye examination • Healthy eating plan your blood pressure should be Diabetes puts people at increased 130/80mmHg. Physical activity, weight risk of developing cataracts, • Physical activity loss, stopping smoking and some glaucoma and diabetic retinopathy – Diabetes: What you need to know • Self care education medication can help lower blood a leading cause of blindness. pressure if it’s too high. At least every two years: An eye exam every two years, or more frequently, can identify • Eye examination (more frequently Lipids (blood fat complications early. Keeping your if evidence of disease) levels) HbA1c level on target, controlling Please note that the recommendations These need to be monitored annually blood pressure and being a non- for children and adolescents with because diabetes, when combined smoker can prevent vision loss. type 1 diabetes may vary from those with high lipid levels, place you at listed. Discuss this with your health higher risk of heart attack and stroke. professionals. 22
You can also read