THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand

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THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
The Christchurch Kidney Society (Inc.)
                           Patient Support Group
                        SERVING THE LOCAL RENAL COMMUNITY FOR OVER 40 YEARS

    THE RENAL MESSENGER
IN THIS EDITION:

   Editor’s note

   Cake Stall—Friday 23
    February 2018
   Show your Ability
   Kidney Health NZ
    information
   Acknowledgements

   Trust update

   Exercise Bikes

   Life with Freddie

   Bingo Fundraiser

   Recipe

   Membership
    application
   CKS Contact list

                              Summer 2018
                           This issue has been funded by
             Karen Faalilo, Property Transfer Office
                     www.propertytransferoffice.co.nz
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                   The Renal Messenger                     Page 1

From the Editors Desk...
Dear members and supporters, welcome to 2018, I wish you all a safe
and happy year ahead.
You will see from the front cover that World Kidney Day is on Thursday
8th March this year and this day is shared with International Women’s
Day hence the international logo. There is nothing formal planned for
this day as the Society has planned to “hit the ground running” with
our fundraising efforts to boost our patient support programmes that
continue every day of the year! Kidney Health New Zealand have
provided good information on Pages 5 and 6.
Firstly we kick off with a Cake Stall in the Hospital foyer on Friday 23
February (see pages 2 and 3 for the finer details).
Following that we are holding our “Annual Ethel and Bethel Bingo
Night” on Friday 13th April—many of you will know that this is a
wonderful night of fun and laughter, with prizes thrown in!
We will be selling Entertainment Books again this year, so get in touch
if you would like a copy reserved. The digital version has been gaining
popularity, so all you have to do is purchase via the Entertainment
Book website and nominate the Society as the recipient of the
donation portion of the cost. I am still old school and like to browse
through the book.
Special thanks to Sharon (page 10) for “Life with Freddie” - we love
reading about personal journeys and would love to receive more!
Just before sending this edition to print, I attended the funeral of a
long term member who received a deceased donor kidney later in life
and it was with her for 15 years. The transplant made so many more
things possible for this wonderful kind lady, who left a lasting legacy in
Christchurch. I have a supply of Organ Donation NZ posters and
information in the office if anyone would like some to distribute to
their local library, medical centre, etc, we need to encourage people
to “have that conversation” so more lives are enhanced in this way.
                                                        Jo Houghton
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                    The Renal Messenger            Page 2

                          Dialysis unit

        CAKE STALL
                   Friday 23 FEBRUARY 2018
                               rd

                          9AM TO 12 NOON
                          Hospital foyer

GOODIES TO BE DROPPED OFF AT THE KIDNEY INFORMATION CENTRE,
  LEVEL 1, 230 ANTIGUA STREET, CHRISTCHURCH ON THURSDAY 22
  FEBRUARY OR AT THE HOSPITAL foyer ON THE MORNING OF CAKE
                          STALL, phone 3795529
              (Proceeds to christchurch kidney society inc)
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                          The Renal Messenger                              Page 3

Special thanks to MY FOOD BAG for donating the above Baking Box
for our upcoming cake stall, this will be raffled on the day and Viv or
Lois will be around the HDTC, Acute Dialysis and Ward 14 prior to the
day, so you can ask them about purchasing a raffle ticket.
Also special thanks to HARCOURTS GRENADIER (Beckenham Office)
for coming to the rescue! We had a tentative promise from a large
organisation to help us out with the cake stall but they were unable
to help when they realised the date was set, so we now have the
support of this Harcourts office and we are very excited to see what
goodies they make for us on the day. Of course all of the Committee
members, volunteers and some of the Nephrology Staff and
members of the Society bake, but it is always wonderful to have a
large selection of goodies on offer. Please get in touch if you are
able to help us out too, everything helps!

Disclaimer
While every care is taken to ensure the accuracy of information, views expressed in the
Renal Messenger are not necessarily those of the Society. Articles by non professionals are
intended to interest and inform and are not intended as medical or dietary advice. This
information should come from the medical professionals involved in your care.
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                   The Renal Messenger                Page 4

   3am Ltd is the brain child of David Guest. David is
   an occupational therapist, who has worked in a
   variety of roles in New Zealand for the last 20 years.
   David is passionate about disabled people having
   the supports to live a good life.

              Show your Ability
                Disability Equipment Expo 2018
                      5 MARCH 2018
 PIONEER RECREATION AND SPORTS CENTRE
           FROM 9AM TO 2PM
On display are all kinds of equipment for younger and older disabled
people and older persons care equipment including: Wheelchairs,
shower stools, portable ramps, daily living equipment, disability
information, etc.

              Attend and be in to win an Ipad. Free entry
              www.showyourability.co.nz / 021 240 8622
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                   The Renal Messenger                    Page 5

          Chronic Kidney Disease in New Zealand
What is Chronic Kidney Disease (CKD)?
CKD is a progressive loss in kidney function over a period of months or
years. Each of your kidneys has about a million tiny filters, called
nephrons. If nephrons are damaged, they stop working. For a while,
healthy nephrons can take on the extra work. But if the damage
continues, more and more nephrons shut down. After a certain point,
the nephrons that are left cannot filter your blood well enough to keep
you healthy.
When kidney function falls below a certain point, it is called kidney
failure. Kidney failure affects your whole body, and can make you feel
very ill. Untreated kidney failure can be life-threatening.
The number of people in New Zealand with CKD is currently unknown,
although based on overseas populations an estimate of 7–10% of the
population would seem reasonable. It has also been estimated that one
in three people in the general population are at risk of developing CKD.
The burden of CKD on New Zealand communities is increasing and the
number of people requiring dialysis has almost doubled since 2000; in
2016 there were reported to be 2678 people undergoing dialysis and
1694 people who had a successful kidney transplant.
Approximately half of all people in New Zealand requiring dialysis have
diabetes as a primary cause of their condition.
Most patients with stable CKD can be fully managed in primary care,
particularly patients with stable stage 3 CKD or those patients aged over
75 years with early and stable stage 4 CKD. The most important aspects
of CKD management are:
    Controlling blood pressure; and if the patient has diabetes,
    Controlling blood glucose
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
The Renal Messenger                         Page 6
Summer 2018

Patients with stable CKD (stage 3 – 4) have a five-year cardiovascular risk > 15%,
if they do not have diabetes, which increases to > 20% if diabetes is also
present. These patients need appropriate cardiovascular disease management
and it is important that additional medicines, e.g. statins and aspirin, are
initiated according to cardiovascular guidelines to reduce cardiovascular risk.
Complementary community-based care strategies involving nurse-led teams
have been shown to improve outcomes in patients with moderate CKD who are
at high-risk of progressing to kidney failure
People with end-stage renal disease commonly have a progressive fall in GFR,
marked proteinuria and hypertension. Early recognition and management, and
appropriate referral can prevent end-stage renal disease in some cases and
greatly improve the outcome for others.2
Being able to detect CKD early allows:
     Early protective intervention to reduce progression towards end-stage renal
      disease (CKD stage 5)
     Monitoring and treatment of cardiovascular risk factors to reduce
      cardiovascular disease
     Monitoring and treatment of complications.

Who is at risk of CKD?
  Aged over 60 years
  Hypertension
  Cardiovascular disease
  Diabetes
  Smoking
  Family history of kidney disease
  Māori, Pacific, South Asian origin
  History of Acute Kidney Injury
  Obese

What you should not forget:
  Early chronic kidney disease has no signs or symptoms.
  Chronic kidney disease usually does not go away.
  Kidney disease can be treated. The earlier you know you have it, the better
   your chances of receiving effective treatment.
  Blood and urine tests are used to check for kidney disease.
  Kidney disease can progress to kidney failure.
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018             The Renal Messenger           Page 7

              ACKNOWLEDGEMENT
                AND THANKS TO:

    Special thanks to Karen Faalilo from the Property
     Transfer Office—not only for the continued sponsor-
     ship our newsletters, but also for the wonderful
     Christmas donation made to the Society.
    Rodger Curragh for the donation to the Christmas
     party, along with boxes of biscuits for everyone
     involved in the Christchurch Hospital Nephrology
     Department and the Society.
    $300 from the Murray Wakelin Family Trust—this
     was in addition to funeral donations previously
     received. This was due to the Funeral Celebrant
     requesting his fee to be given to the Society.
    To everyone who puts a little extra with their
     membership subscription, this is definitely not
     expected, but helps the Society enormously.
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                                                Page 8
                            The Renal Messenger

     CKS Graeme Cox Youth Education Trust
              Supporting young people affected by CKD

The Trust has recently assisted Alexander with the purchase of
a computer. This was also supported by the recent Lions Club
Wigram donation. We love getting the photos and feedback
from our recipients, and Alexander’s smile says it all.

   Our thanks to all those who donate to, fundraise for
           and assist in maintaining the Trust.

   If you would like any information on the Trust, require an
   application form, or wish to donate to the Trust, please
   contact the CKS office, 230 Antigua St, Christchurch (Ph
   3795529) or email the trustees via the Society
   c.ks@xtra.co.nz.
THE RENAL MESSENGER The Christchurch Kidney Society (Inc.) Patient Support Group - Kidney Health New Zealand
Summer 2018                The Renal Messenger                  Page 9

    Exercise Bike
      Update
 So are they effective and are there any benefits?
 These bikes are great at simulating a level of exercise similar
 to walking which can improve overall fitness, burn calories,
 improve tone, maintain healthy joints and improve circulation.
 Convenient too, as you can sit anywhere and not only exercise
 your legs, but arms too!
 We have peddlers available now, please contact the CKS
 office—there is no charge, all we ask is that you return the
 peddler to us when no longer in use.

 Contact us if you would like to try one of the Peddlers. Viv
       will gladly run through the process with you

   **************************
                    WHAT IS RECYCLING?
                     Getting on your bike
                            twice!
Summer 2018                   The Renal Messenger                 Page 10

      LIFE WITH FREDDIE
 Just over ten years ago my life changed for the better. I had
 endured 2 years on both kinds of dialysis—not very successfully
 either. I was given the ultimate message that I didn’t want to
 accept—I needed a kidney urgently.
 One day, whilst on the dialysis machine in the Hospital, one of the
 Nephrologists burst in and told the nurses not to let me leave the
 building! A deceased donor kidney had become available, but
 because I had just had lunch I had to wait until later that day. I
 was taken off the machine in due course and placed in Ward 14,
 where I was scanned.
 I remember going down to theatre and Professor Justin Roake was
 there ready. He asked how I felt and I said “scared and happy at
 the same time”.
 I was back on Ward 14 about midnight on a Friday and “Freddie”
 didn’t kick in until the following Wednesday. I named him that,
 as he is my friend.
 Not to say life has been a picnic for me. I have had pneumonia
 twice, CMV twice, and had my gallbladder removed with over 50
 gallstones.
 One major regret I have is that Dad never found out, he would
 have been happy for me.
 I have a wonderful GP and a great team of kidney doctors.
 I guess what I am trying to say is “never give up hope”.

                                       Sharon Maree Skilling

 Special thanks to Sharon for sharing this with us all.    Jo
Summer 2018             The Renal Messenger             Page 11

       2018 FUNDRAISER
ETHEL AND BETHEL BINGO BABES
        -ON SALE NOW-
                   FRIDAY 13 APRIL 2018
                    Doors Open 7pm
Tickets are $25.00 per person (includes supper) with a
limited number available, so be quick!
We will be running a cash bar and providing food. There
will be a raffle, prizes and a very entertaining auction on
the night (including a limited edition signed copy of
“Middle Earth from Script to Screen”).
Venue: Caledonian Society Hall, Wigram
         (5 Michelle Place —off Parkhouse Road)
For further information and ticket bookings, please
contact the CKS Office—c.ks@xtra.co.nz / 3795529
Summer 2018                    The Renal Messenger                              Page 12

        QUICK PAN GLAZED CHICKEN
 Recipe for 4 (Allow 1 chicken breast per person)
 Additional Ingredients:
      2 teaspoons olive oil
      1/4 teaspoon black pepper
      2 Tablespoons balsamic vinegar
      2 Tablespoons honey
      2 teaspoons dried basil
 Preparation:
     Heat olive oil in pan over medium heat. Add chicken and sprinkle
       with pepper.
     Cook chicken for 5 minutes on each side until brown.
     Add balsamic vinegar and cook for one minute—turning chicken
       to coat both sides.
     Add honey and basil. Stir and turn chicken to coat both sides.
     Final cooking time depends on size of chicken breast, check
       regularly.
     Serve with your favourite salad or vegetables.

                                                 Be creative with seasonings.
                                                 If you are on low protein diet,
                                                 decrease to 1/2 chicken breast
                                                 or substitute smaller boneless
                                                 chicken thighs for the breast
                                                 meat.
                                                 Recipe sourced from
                                                 www.davita.com
Summer 2018             The Renal Messenger            Page 13

January 2018 has certainly thrown some hot days at us
here in Christchurch and around NZ. My thoughts have
been with those with fluid restrictions and I found this
site very interesting - http://blogs.davita.com/kidney-
diet-tips/10-tips-to-help-control-fluid-and-thirst/
Summer 2018                         The Renal Messenger                          Page 14

                   MEMBERSHIP APPLICATION
  New Member / Renewal of Membership               (circle which applies)
    I/We, Name: Mr/Mrs/Ms/Dr)
  _______________________________________________________________
  Adress:_________________________________________________________
  _______________________________________________________________
  _______________________________________________________________
  Phone:      (   ) _________________________________________________
  Email:      ______________________________________________________
  (Include your email address if you would like us to keep you informed about
  any events/information for which falls between issues of our newsletter).
  Hereby apply for membership/renewal of membership of the Christchurch Kidney
  Society (Inc.), and enclose an annual subscription and/or donation.
  Membership (includes immediate family)                  $ 15.00 (incl. GST)
  Donation (no GST, no obligation)                        $ ……………………....
                                Total Enclosed:           $ ______________
  If you prefer to pay membership directly to the CKS Inc. bank account:
  Westpac Bank: 03 1591 0025801 000. Please include your name and initials in the
  reference. Please complete and return this form to the society to enable us to
  update our records and correctly receipt your membership with any donation you
  may wish to make.
  Please tick all that apply:
      o New member                  o Dialysis Patient            o Existing member
      o Transplant Patient          o Renal patient               o Supporter
  I/We agree to abide by the rules of The Christchurch Kidney Society.

  Signature: ……………………………………………….
      Please mail this completed form to: CKS, Level 1, 230 Antigua Street,
                   Christchurch. Attn: Membership Secretary
The Christchurch Kidney Society (Inc.)

        Kidney Information Centre
      (open 10am to 1pm weekdays)
        Level 1, 230 Antigua Street
            Christchurch 8011

             Phone: (03) 379 5529
             Email: c.ks@xtra.co.nz

                        CONTACT LIST

Patron:                       Professor John Morton

President:                    Greg Beach                  Ph: (H) 3515401

Vice President:               Lois Russell                Ph: 027 288 8281

Secretary:                    Jo Houghton                 Ph: 0212 860 309

Treasurer:                    Roger Sandford              Ph (W) 366 6254

Committee:
    Noeline Cox                        Ph: (H) 338 9902
    Kathy Tuu’u                        Ph (H) 351 3401
    Sara Ford                          Ph: (H) 980 2073

Nephrology Associates:                 Dr John Irvine / Dr Nick Cross

Field Worker/Membership                Viv Smith          Ph: (W) 379 5529
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