Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020

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Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Thames Valley Strategic
Clinical Network &
Clinical Senate:
The Road to 2020
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Contents

Introduction: What is the Thames Valley Strategic Clinical Network?    4

Partnership wheel                                                      6

1. Commissioning guidance                                              7

2. Cancer network                                                      8

3. Children’s network                                                 14

4. Diabetes network                                                   18

5. End of Life network                                                22

6. Long Term Conditions                                               25

7. Maternity network                                                  28

8. Mental Health, Dementia and Neurology network                      32

9. Stroke network                                                     38

10. Vascular network                                                  40

11. Clinical Senate                                                   42

                                                                           3
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Introduction: What is the Thames
Valley Strategic Clinical Network
and Clinical Senate?

                                            Milton Keynes

                 Banbury

                            Bicester
              Witney                   Aylesbury             Acute Trusts: 4
                         Oxford

                                               High
                                              Wycombe
                   Abingdon

    Swindon
                                                   Slough
                       Newbury    Reading
                                            Bracknall

                                                            GP Practices: 274

      Thames Valley                    Mental Health           Community
       Population:                        Trusts:               Hospitals:
     2.4 million                               2                  18

4
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
The Road to 2020
Cancer                                                   Diabetes
                                                                                4,400
       Reduce                     80%                                          more newly
      smoking                   of cancers                                 diagnosed
                                                                           d           patients
    prevalence to                 staged                                  rreceiving
                                                                            e        structured
      10.8%                                                                       patient
                                                                                education
  (a 30% reduction)
                          Additional                                                       Every GP
                       1,400 people                                      450
                                                                         450
                                                                                      practice in Thames
                                                                    fewer lower
                      surviving
                      s         cancer                                                  Valley meeting
                                                                 limb amputations
                        for 10 years                                                  40% achieving the
                                                                   across Thames
                          or more                                                      three treatment
                                                                       Valley
                                                                                            targets

      Mental Health, Dementia & Neurology                                      Long Term Conditions
                                                                               and End of Life
               5,000                                    100% of
         more people with                         all acute hospitals                                 (LTC) - 80%
          Serious Mental                        in Thames Valley have                                  of patients
            Illness (SMI)                       all-age Mental Health                                 having care &
         receiving physical                        Liaison services in                              support planning
           health checks           90% of         A&E and inpatient                (EoLC) - 10%       consultations
                               individuals with          wards                    increase across
                              dementia to have                                   Thames Valley of
                               patient-centred                                     death in place
                                care & support                                        of usual
                                     plans                                           residence

Stroke
Strok
    ke                                 Maternity                               Children
                 200                                                                          3,000
                 fewer                         1,300                                       more children
                                                                                           m
             strokes
             s       in TV                                                                  seen
                                                                                            s     in MH
                                          more women   n to
                                                          o
                                                                                             services in
                                        be seen by Perinatal
                                                                                           Thames
                                                                                           Th       Valley
         850                               Mental Health
   additional patients                     services in TV
   in TV experiencing                                                                Children
                                                                                    with Eating
 stroke symptoms will                                    Reduce
                                                                                  Disorders seen
  be taken to a HASU                                    stillbirths
                                                                                 within 4 weeks/
 for the first 72 hours                                 by 20%                     1 week for
     of their stay in                                  (4.1 per 1000
                                                                                  urgent cases
         hospital                                          in TV)

                                                                                                                       5
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Partnership wheel

                                                                 He
                                                                   alt
                                                                      hw
                                                                         atc
             tic al

                                                                            h
           ac n
                e
         Pr tio

                                NHS England
       st na

                                 Specialised        Patients
    Be ter
      In

                               Commissioning

                NHS England
               National Clinical                                 Third Sector
                 Leadership

                                                                       Public Health
          NHS England
                                                                      England & Local
        Medical Directorate
                                                                        Authorities
                                         TVSCN &
                                          Senate
           NHS England                                            Academic Health &

                                                                                        inno mia &
                                                                                        Acad
            Assurance                                              Science Network

                                                                                            vatio
                                                                                             e
                                                                                                  n
                Sustainability &
                Transformation                                 Provider Trusts
                     Plans

                                   NHS England      Clinical
                                   GP Forward    Commissioning
                                      View          Groups

                                         Primary Care

6
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Commissioning guidance

Vision
Building on previous iterations of the TVSCN                   The web portal has allowed a more accessible method of
Commissioning Guidance, we created an intuitive,               showing how the priorities would inform and align to
user friendly website version of previous guidance to          the strengthened two year CCG operational planning
commissioners, to ensure a comprehensive capture of            process (September-December 2016) as well as
benchmarking information across the patch, linked to           Sustainability & Transformation Plans (STP).
national and local priorities. The commissioning guidance      Due to the further enhancements to the website we have
not only described ‘what’ commissioners should focus on,       developed stronger partnerships with arm’s length bodies to
but also ‘how’ to go about achieving this. It linked to best   provide commissioners with a more comprehensive offering.
practice guidance, showed quality and financial savings        As a result, the public health interventions relating to individual
where available, and linked directly to reports delivered      clinical networks now provide calculation and scale of challenge
by the networks on current status and recommendations.         and opportunity. Customised data packs are also provided at a
                                                               CCG and practice level to quantify potential gains.

       NEW: Prevention                                                       More in-depth content
       section covering

        Targeted advice       Improved           Healthier
      tackling unhealthy       patient           workplace
          behaviours          pathways
                                                                         • Quantified scale of challenge/opportunity
                                                                           on interventions and redesign
                                                                         • Detailed breakdown of national strategies
                                                                           and priorities
                                                                         • Customised data packs per CCG and
                                                                           practice level

            PPrevention
                   ti                    Screening
                                         S     i
                                                                                                         Dynamic
                                                                           Sessions        Users
                                                                           1,357           916           experience...
                                                                           Pages / Session New Session
                                                                           2.44            67.50%
                                                                                                         Engaged users
                                                                           Avg. Session Duration
                                                                           00:02:27

                                                                           Pageviews
                                                                           3,315
            Assessment                M
                                      Management t
           & Diagnostics              & Treatment

                                                                                                                                7
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Cancer network

Vision
Ensuring optimal provision of diagnosis, treatment, care
and outcomes for all cancer patients in Thames Valley
by increasing early diagnosis, improving outcomes and
providing high quality services.

Why is it needed?
Cancer is the most common cause of premature death
(
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Accurate staging
More accurate staging data allows for quality improvement initiatives to be targeted appropriately. The SCN worked with
clinicians in primary and secondary care settings to ensure accurate recording of cancer staging during Multi-Disciplinary
Team meetings. The network is aiming to have 80% of all cancers staged by the year 2020.

               90
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  Percentage

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                                                                                                                2012                   2013                    2014                   Target
 Percentage of cancer cases with recorded stage at diagnosis
 Source: Public Health England’s National Cancer Intelligence Network: Cancer Analysis System

                                                                                     2014                                          Additional patients for all CCGs

                                                                     % recorded            No of patients                 Achieving                      Achieving                  Achieving
                                                                                             recorded                       70%                            75%                        80%

England                                                                   75.9                   225,016
TVSCN                                                                     69.7                      8,724                       332                           738                     1,282
NHS Aylesbury Vale CCG                                                    66.8                       713                        34                             87                       141
NHS Chiltern CCG                                                          66.3                      1,148                       64                            150                       237
NHS Milton Keynes CCG                                                     65.9                       779                        48                            108                       167
NHS Oxfordshire CCG                                                       77.1                      2,551                          -                               -                    95
NHS Swindon CCG                                                           76.0                       822                           -                               -                    44
NHS Newbury & District CCG                                                67.9                       363                        12                             38                       65
NHS North & West Reading CCG                                              64.2                       314                        28                             53                       77
NHS South Reading CCG                                                     65.8                       256                        16                             36                       55
NHS Wokingham CCG                                                         68.8                       559                        10                             51                       91
NHS Bracknell & Ascot CCG                                                 63.7                       403                        40                             72                       103
NHS Slough CCG                                                            64.5                       321                        28                             53                       77
NHS WAM CCG                                                               63.4                       495                        52                             91                       130

 Average staging completeness across Thames Valley
 2014 data is based on Public Health England’s National Cancer Intelligence Network: Cancer Analysis System

                                                                                                                                                                                                9
Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
Earlier staging
Diagnosing cancer at an early stage dramatically improves a patient’s survival chances. Recording the percentage of
cancers diagnosed at stages 1 and 2 gives a good overview in order to assess improvements in cancer survival rates,
and allows for the appropriate treatment and care of patients.
The percentage of cancers diagnosed early (stages 1 and 2) has been steadily increasing, indicating that cancers
are being diagnosed earlier.

                                                            2014                                                 Year 2020

                                           TV               Range             Best CCG                % of all            % of cancer
                                                                                                      cancers               staged

Early stage 1 & 2                      40%                30-44%                 49%                   60%                     75%

Late stage 3 & 4                       30%                25-33%                 35%                   20%                     25%

Unstaged                               30%                23-37%                 16%                   20%

 Cancer staging targets to the year 2020

In practice, early staging of cancers such as lung, colorectal and ovarian cancers saves lives and money. By staging lung
cancer early, up to 70 years of life for 1,161 lung cancer patients across Thames Valley could be saved.

                                Thames Valley (current)                Thames Valley (using best in England)

               Median          %            Patient     Years of        %           Patient      Years of          Years of    Months of
               survival    diagnosed       numbers        life      diagnosed      numbers         life          life gained   life gained
              (months)      at stage                                 at stage

Stage 1         22.5          19.7              229       429          22.2          258              483

Stage 2         10.9           8.8              102        93          11.8          137              124

Stage 3          6.5          19.3              224       121          18.9          219              119

Stage 4          2.6          52.2              606       131          47.1          547              118

Total                                       1,161         775                       1,161             845            70           844

 Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK
 Years of life saved by diagnosing lung cancer at stages 1 & 2

10
Staging colorectal cancer early could save £800,790.

                                              Thames Valley*                                England

Colorectal            Cost of         No of patients       Current %            Best in          No of aditional             Cost
                   treatment by          in 2014                              England %        patients at stage in       difference
                 stage (including                                                                   scenario                  (£)
                  recurrence) (£)

Stage 1               3,749                 212                17.5               18.6                  14                  51,751

Stage 2               9,812                 339                27.9               44.4                  200               1,962,557

Stage 3               13,977                351                28.9               21.1                  -95               -1,325,663

Stage 4               12,519                312                25.7               15.9                 -119               -1,489,436

                                                                                                                           -800,790
Total                                      1,214               100                100
                                                                                                                            savings

* Thames Valley colorectal cancer including colon and rectal cancers
Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK
Model limitations: Thames Valley colorectal cancers include both colon and rectal cancers; there are no further breakdown details
of colon staging in Thames Valley. This model excludes unknown or not staged cancers and the resulting cost implications.

 Money saved by diagnosing colorectal cancer at stages 1 & 2. Based on Saving Lives, Averting Costs: An analysis of the financial
 implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer. A report prepared for Cancer Research UK
 (September 2014).

And staging ovarian cancer early could save £764,003 across Thames Valley.

                                               Thames Valley                                England

                      Cost of         No of patients       Current %            Best in        No of additional or           Cost
                   treatment by          in 2014                              England %        reduced patients at        difference
                 stage (including                                                               stage in scenario             (£)
                  recurrence) (£)

Stage 1               6,832                  75                33.5               59.6                  59                 399,699

Stage 2               18,840                 12                5.4                9.4                    9                 170,615

Stage 3               23,483                 81                36.2               19.4                  -38                -881,646

Stage 4               15,081                 56                25.0               11.6                  -30                -452,671

                                                                                                                           -764,003
Total                                       224                100                100
                                                                                                                             saving

Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK
Model limitations: This model excludes unknown or not staged cancers and the resulting cost implications.

 Money saved by diagnosing ovarian cancer at stages 1 & 2. Based on Saving Lives, Averting Costs: An analysis of the financial
 implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer. A report prepared for Cancer Research UK
 (September 2014).

                                                                                                                                       11
Reducing smoking
Smoking rates in Great Britain have halved in the last 35 years, declining steadily since the 1970s. Current smoking rates
are at 18.4% of the population, but smoking remains the leading cause of preventable death and disease in England.1
The Thames Valley area has a smoking prevalence of 15.4%, below the national average, and the network is targeting
a further reduced rate of 10.8% by 2021.

    Projection of Thames Valley population in 2021                               2,188,200
    Projection of number of smokers aged >15 years old in Thames                  236,574           Achieving 30% reduction in smoking
    valley population to meet 30% reduction target by 2020                                                  prevalence by 2020
    Total reduction in number of smokers                                          110,720

    Source: QOF 2015/16 for patients aged 15 or over who are recorded as current smokers and ONS population projection

Improving urological cancer services in Thames Valley
In 2013, the Cancer Peer Review process identified that there were serious concerns with the Thames Valley service
configuration for specialist surgery for prostate, bladder and kidney cancer. The peer review team raised specific
concerns with operations being carried out across two locations: Royal Berkshire Hospital (RBH) and Heatherwood
and Wexham Park (HWP) rather than one location as recommended in the Improving Outcomes Guidance (IOG) for
urological cancer. The review also highlighted problematic working relationships within the Berkshire Specialist Urology
Multi-Disciplinary Team (SMDT).2
The Thames Valley SCN established a project to develop a service model for specialist prostate, bladder and kidney
cancer surgery in Thames Valley that was compliant with the targets outlined by the peer review team.
In order to carry this out, the SCN successfully did the following:

                                                            Facilitated mediation
     Developed case for                                                                                    Effectively repatriated
                                                            to improve working
     changing the current                                                                                  radical cystectomy
                                                            relationships within
     service configuration                                                                                 services to RBHT
                                                            the SMDT

     Improved data                                                                                         Developed clinical
     collection, both                                       Appointed impartial                            quality metrics to
     retrospective and                                      external clinical advisor                      measure and assess
     current                                                                                               impact of repatriation

By April 2014, the Berkshire-wide compliant cystectomy                                                                      Pre          Post
service was in place. The SMDT established a working
                                                                               Sample size                                  30             22
environment that operated at a level beyond professional
cordiality and dedication to improvement. Surgeries now                        Average patient age                         65.1          69.6
take place at one location (RBH), and the change has been                      Surgical technique
a success in terms of both collaboration and ensuring                          Open                                        100%          68%
patient care.                                                                  Robotic                                      0%           32%
An audit of pre- and post-repatriation shows the                               Average length of stay                     9.8 days     8.9 days
following results:                                                             30 day mortality                             7%            5%
                                                                               90 day mortality (excluding 30 day)          0%            0%
                                                                               Pre- and post-repatriation audit results

1
  Achieving World-Class Cancer Outcomes: A Strategy for England 2015-2020, http://www.cancerresearchuk.org/sites/default/files/achieving_world-
class_cancer_outcomes_-_a_strategy_for_england_2015-2020.pdf (last accessed 15th December 2016)
2
    Peer Review Visit Report for Royal Berkshire Specialist Urology MDT.

12
The future for the cancer
network
Demand on cancer services is increasing due to the steady
rise of both new diagnoses and the number of patients
who survive. Whilst the workforce has absorbed these
increases so far, service quality has dropped which has
been reflected in the increasing delays in delivering test
results to patients. Across the country, more than a third of
radiologists are aged 50 or over, and around a quarter will
be approaching retirement age in the next ten years.3 The
cancer network is planning to undertake an assessment
of the Thames Valley workforce to understand the current
situation, and develop plans to manage the recruitment
and retention of fully-trained staff.

3
    Guidance Summary: National Reports Focused on Cancer 2014-2015.

                                                                      13
Children’s network

Vision                                                                      Why is it needed?
The aim for Thames Valley is to create an environment                       The impact of mental wellbeing problems in the early years is
where children and young people have the opportunity to                     highlighted by the evidence that 75% of adults with mental
grow up happy, safe and healthy within resilient families.                  ill health will have started to experience issues before the age
Good mental health is a vital part of that. The vision is for               of 18 years old. Despite this evidence, as a health service we
children and young people to grow up resilient, have good                   may be reaching as few as one in four children and young
mental health and if they need help know how to access                      people with problems that could be helped.
high quality, timely services.

      50% of lifetime mental illness (excluding dementia) starts by age 14

                                   Started mental illness                               Not started mental illness

    The onset of lifetime mental illness1

In addition to the ethical and moral reasons for better services, there is also a powerful economic impetus given that
children with serious conduct disorders are twice as likely to leave school without any qualifications, three times more
likely to become a teenage parent, four times more likely to become dependent on drugs and 20 times more likely to end
up in prison; the monetary cost to the health service, the benefits system and the justice system is high.2
The Future in Mind report3 articulates how we need to set about tackling the problems to create a system that brings
together the potential of the internet, schools, social care, the NHS, the voluntary sector, parents, and children and
young people themselves.

1
 Kim-Cohen J, Caspi A, Moffitt TE et al. Prior Juvenile Diagnoses in Adults With Mental Disorder: Developmental Follow-Back of a Prospective-
Longitudinal Cohort. Arch Gen Psychiatry. 2003;60(7):709-717; Kessler RC, Berglund P, Demler O et al. Lifetime Prevalence and Age-of-Onset
Distributions of DSM-IV Disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005;62(6):593-602; Kessler RC, PG Amminger,
Aguilar-Gaxiola S et al. Age of Onset of Mental Disorders: A Review of Recent Literature. Curr Opin Psychiatry. 2007 July; 20(4): 359-364.
2
  Five Year Forward View for Mental Health. https://www.england.nhs.uk/wp-content/uploads/2016/02/Mental-Health-Taskforce-FYFV-final.pdf
(last accessed 16th December 2016)
3
 Future in Mind: Promoting, Protecting and Improving our Children and Young People’s Mental Health and Wellbeing. https://www.gov.uk/government/
uploads/system/uploads/attachment_data/file/414024/Childrens_Mental_Health.pdf (last accessed 16th December 2016)

14
There are five core themes:
• Promoting resilience, prevention and early intervention;
• Improving access to effective support: a system without tiers;
• Care for the most vulnerable;
• Accountability and transparency, and;
• Developing the workforce.

Seeing more children in mental health services
In Thames Valley an additional 3,000 children and young people will be able to access evidence-based treatment by 2020/21.

                                       Estimated             2016/17      2017/18          2018/19         2019/20         2020/21
                                      prevalence *
England                                     711,674           21,000         35,000        49,000           63,000          70,000
Thames Valley                               29,866                881         1,469         2,056           2,644            2,938
NHS Milton Keynes CCG                        3,964                117         195            273              351             390
NHS Aylesbury Vale CCG                       2,456                72          121            169              217             242
NHS Chiltern CCG                             3,824                113         188            263              339             376
NHS Oxfordshire CCG                          7,874                232         387            542              697             774
NHS Bracknell & Ascot CCG                    1,753                52           86            121              155             172
NHS Slough CCG                               2,377                70          117            164              210             234
NHS Windsor, Ascot &                         1,652                49           81            114              146             163
Maidenhead CCG
NHS Wokingham CCG                            1,706                50           84            117              151             168
NHS North & West Reading CCG                 1,231                36           61             85              109             121
NHS South Reading CCG                        1,593                47           78            110              141             157
NHS Newbury & District CCG                   1,437                42           71             99              127             141
* Estimated prevalence of any mental health disorder, aged 5-16 in 2014 (source: PHE Fingertips - Children’s and Young People’s Mental
Health and Wellbeing)

Seeing how the service is working
The SCN is working with the CYP mental health system to understand not only the number of children and young people
being seen, but also if the services are improving.

1. Reduced waiting times
A key priority for the SCN is to ensure that the waiting times for children and young people are reducing, and to understand
where there are common themes; within Thames Valley, this means focusing attention on the number of CYP with autism.

Autism - Waiting                                     Q2 2016-17                                                      Trajectory 2020
times to diagnosis
Waits                         W Berks                     Bucks               Oxon          E Berks       MK
average wait (days)       259                    107                    128                awaiting    awaiting
                                                                                             info        info

Number of patients                    %              %            %                   %
waiting
0 - 4 weeks               171        12.3            34           10    54            10                                 100%
4 - 6 weeks                77         6.4            15           4     22            4
6 - 8 weeks                                          12           3     22            4
8 - 10 weeks              157        13.0            27           8     31            6
10 - 12 weeks                                        23           7     25            5
> 12 weeks                795        66.3        235              68    367           70

                                                                                                                                     15
2. Timely intervention for eating disorder interventions
The aim is for 95% of children and young people with eating disorders to be seen within four weeks, or one week for
urgent cases, and ultimately reduce the number of tier 4 eating disorder admissions. A national minimum data set will
be released in April 2017 and will form the basis on which progress will be monitored and a trajectory agreed.

3. Improving experience
The SCN needs to hear from children and young people and their carers to understand if the experience is improved,
and defining what an improved experience consists of. All CCGs to have in contract with providers a young person’s
forum/ group.

4. Referral to acceptance rates
Improving transparency and accountability across the whole system to ensure children are referred to the right service
at the right time, improving the area’s referral to acceptance rates. This baseline data will be released in the data set.

Improving quality of care during transition
from children to adult services

       Transitioning from children to adult                                                    Outcomes
       services can lead to poor quality of care
       and condition management

                                                                                          Greater collaboration
                                                                                          across Local Authority,
                                                                                           Health & Social Care

       Taking learning from...
                                               TVSCN                                       Guidelines & process
                                            supported                                     ensures safe transition
                                                                                            from paediatric to
                                                                                               adult services

                           with Transition Nursing
                           capacity to implement

       For patients aged
       13-18 to support                                                                     Ensures vulnerable
       readiness for transition                                                            patients stay visible in
       to adult services                                                                        the system

16
Ready Steady Go is a transition tool system, developed           The feedback for the trial has been very positive:
by Southampton Children’s Hospital, and is designed to
encourage collaboration between clinicians, patients,
and parents to establish the patient’s needs and to                   “The RBFT Transition Plan means
communicate these clearly between children and adult
long term condition services (e.g. diabetes, endocrinology,
                                                                      there are clear guidelines to allow
cardiology etc).                                                      us to safely transfer patients from
The transition from children to adult services is currently           paediatric to adult services…I have
not standardised across the country, and young patients               found the Transition Nurse to be a
can fall through the gaps when they become the sole point             very valuable resource.”
of contact for arranging and attending appointments.
                                                                      Epilepsy Clinical Nurse Specialist
Self-management of long term conditions can decline in
the late teens; diabetes management in particular can                 “The RBFT Transition Nurse has
become poor when a young person becomes responsible                   provided a wealth of information,
for managing their own food and medication intake, and
emergency presentations of diabetes increase during this time.        support and advice.”
                                                                      CHC Paediatric Nurse Assessor
The TV SCN funded a three year, two phase project to set
up a transition steering group, publish a transition policy,
                                                                      “The appointment of the RBFT
and implement Ready Steady Go.
                                                                      Transition Nurse has resulted in an
1. Set up a transition steering group                                 explosion of joint working with the
The TV SCN Transition Nurse created a transition steering             Local Authority, health and social
group that began in February 2015 and meets every two
months to map transition pathways, write policy, and ensure
                                                                      care in the west of Berkshire.”
that new specialities are complying with those policies.              Special Educational Needs (SEN) Team Manager

2. Publish a transition policy
The policy was completed in January 2016, published
on the SCN website, and will be used for rolling out the
transition principles across the Thames Valley area.
                                                                 The scheme has reduced instances of missed appointments
                                                                 and encouraged attendance at adult clinics, helped
3. Implement Ready Steady Go
                                                                 vulnerable patients to stay visible in the health and social
The TV SCN Transition Nurse based in RBFT identified             care system, ensured correct and needed diagnostic
60 patients with a long term condition aged 13-18 who            procedures to take place, and ensured adult services had
attended one of eight clinics and worked with them to            a better understanding of patient needs.
implement the Ready Steady Go system.
The progress of the project was measured against a
Commissioning for Quality and Innovation (CQUIN)
                                                                 The future of the network
Indicators:                                                      The network plans to continue its work by creating a
                                                                 system that is transparent, accountable and competent,
 Indicator                          Target      End of Q2        and that always has the child and their family at the centre
                                               audit results     of everything it does.
                                                 (16/17)
                                                                 This system will be run by a resilient and competent
 Patients to have a transition       50%           83%           workforce who not only know how to identify a child’s
 plan in their notes                                             presenting issues but also respond in good time and
                                                                 prevent escalation to crisis services. The staff will know
 Patients to have a                  50%           73%
                                                                 what interventions to use, who to call and how to access
 named transition worker
                                                                 further help when needed, so that a child, with the right
 documented in their notes
                                                                 support can develop the tools and resilience needed for
 CQUIN indicators for the Transition Project                     better mental health and wellbeing, and take these with
                                                                 them into adult life.
                                                                 The system will also be built on good practice examples, and
                                                                 will create learning and development environments that will
                                                                 bring about long-term, sustainable cultural change.

                                                                                                                              17
Diabetes network

Vision                                                               Why is it needed?
To deliver a step-change in diabetes care for the patients of        In Thames Valley just under 1,000 people will die early
Thames Valley through prevention, patient education and              from type 2 diabetes; a disease which has been shown
delivery of diabetes care standards. By 2020, the network            to be preventable in many cases. At present, we have
plans to have every GP practice in the area reaching the             42,000 people with diabetes whose HbA1C (long-term
target of at least 40% of patients achieving the three               blood sugar) isn’t controlled; 30,000 whose cholesterol
treatment targets (controlled blood pressure, controlled             isn’t controlled; and 30,000 whose blood pressure isn’t
cholesterol level, controlled long-term blood sugar level)           controlled. Type 2 diabetes also accounts for 9% of the
on a regular basis.                                                  total NHS spend.
                                                                     The National Diabetes Audit (NDA) is an annual national
                                                                     clinical audit, which measure the effectiveness of diabetes
                                                                     healthcare against NICE Clinical Guidelines and NICE
                                                                     Quality Standards. Thames Valley outperforms the national
                                                                     rate for audit completion, with 94% of TV GP practices
                                                                     completing the audit compared to 81% across England,
                                                                     which means that the data on which the network can
                                                                     base improvements is strong.

                                                                     Three treatment targets
                                                                     By 2020, at least 40% of patients with diabetes in every
                                                                     GP practice in Thames Valley will receive the three
                                                                     treatment targets on a regular basis. Achieving this
                                                                     ambition will mean that 54,343 people in Thames Valley
                                                                     will have their diabetes better controlled, which will
                                                                     improve outcomes and reduce complications.

CCG                                               No of               Average CCG            Percentage of           No of people
                                                 practices           performance %         practices achieving        required to
                                                submitted                                    less than 40%            reach 40%
NHS Aylesbury Vale                                  19                    44.4                       26                   4780
NHS Chiltern                                        34                    44.8                       12                   7724
NHS Oxfordshire                                     68                    38.8                       66                  14195
NHS Milton Keynes                                   24                    38.8                       58                   5562
NHS Bracknell & Ascot                               15                    44.2                       13                   2866
NHS Slough                                          16                    42.6                       31                   5164
NHS Windsor, Ascot & Maidenhead                     16                    42.0                       50                   2859
NHS Wokingham                                       13                    37.8                       62                   3337
NHS North & West Reading                            10                    37.5                       80                   2472
NHS South Reading                                   15                    37.1                       60                   2751
NHS Newbury & District                              10                    34.0                       80                   2633
Total                                                                                                                    54343
Note: For patients
Diabetic structured patient education
By 2020, at least 50% of all newly diagnosed patients with diabetes will receive structured patient education. Based on an
assumption that the Thames Valley diabetes prevalence will grow a further 6% by 2020, with our population size growing
a further 5.4%, we anticipate having over 4,400 newly diagnosed diabetes patients who will require structured patient
education. The network will also monitor patients with prevalent diabetes who are offered structured patient education.

                                                                    2013/2014                                                  2014/2015                                          Additional
                                                                                                                                                                              patients to attend
Area                                                             % of patients                        % of patients                          Number of
                                                                                                                                                                               course to reach
                                                                 who attended                         who attended                         newly diagnosed
                                                                                                                                                                               50% by 2020/21
                                                                   structured                           structured                            patients
                                                                education course                     education course
                                                                   2013/2014                            2014/2015
England                                                                      5.6                                   5.7                               144,352                              75,000
TV SCN                                                                       4.6                                   4.8                                 8,287                               4,400
NHS Milton Keynes                                                            0.5                                   0.5                                 389                                  200
NHS Aylesbury Vale                                                        13.7                                     9.3                                 863                                  460
NHS Chiltern                                                                 6.1                                   3.9                                 1,445                                770
NHS Oxfordshire                                                              5.1                                   4.9                                 1,845                                970
NHS Bracknell & Ascot                                                        0.0                                   1.7                                 470                                  250
NHS Slough                                                                   1.3                                   0.2                                 873                                  470
NHS Windsor, Ascot & Maidenhead                                              1.4                                   2.5                                 518                                  270
NHS Wokingham                                                                4.5                                   5.9                                 461                                  240
NHS North & West Reading                                                     2.0                                   10.4                                461                                  250
NHS South Reading                                                            4.3                                   11.5                                541                                  290
NHS Newbury & District                                                       0.5                                   2.1                                 421                                  230
 2020 target for structured patient education, broken down by CCG. Based on 2013/14 & 2014/15 National Diabetes Audit

              16                                                                                 % of patients who attended structured education course 2013/2014

              14                                                                                 % of patients who attended structured education course 2014/2015

              12

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 Patients attending structured education course, 2013-2015, broken down by CCG. 2013/14 & 2014/15 National Diabetes Audit

                                                                                                                                                                                                          19
Diabetic footcare
By 2020, the network plans for the amputation rate across Thames Valley to match that of the best CCG in England,
which is a rate of 0.6 amputations per 1,000 people with diabetes. This would result in 450 fewer people in TV
undergoing amputation as a result of this improvement. The target is ambitious (over 50% fewer amputations for all
CCGs), but Thames Valley is well placed having established a Good to Great footcare pathway that has been accepted
across the system and is now being rolled out across the area.

                  April 2012 – March 2015    Achieving the best CCG within Thames      Achieving the best CCG within
                                                  Valley (1.3 per 1000 people)         England (0.6 per 1000 people)

                    Rate per     Number of   Number of     Number of   % reduced    Number of     Number of   % reduced
                      1000         cases     cases to be     cases                  cases to be     cases
                     people                   reduced                                reduced

Lowest CCG
                       0.6
in England

Highest CCG
                       4.9
in England

England
                       2.6
average

NHS Aylesbury
                       2.7           74          38           36         51.9           58           16         77.8
Vale CCG

NHS Bracknell
                       1.3           22          0            22          0.0           12           10         53.8
& Ascot CCG

NHS Chiltern
                       2.1           94          36           58         38.1           67           27         71.4
CCG

NHS Milton
                       2.9           101         56           45         55.2           80           21         70.3
Keynes CCG

NHS Newbury
                       2.0           25          9            16         35.0           18            8         70.0
& District CCG

NHS North &
                       1.8           21          6            15         27.8           14            7         66.7
West Reading

NHS
Oxfordshire            1.9           153         48           105        31.6          105           48         68.4
CCG

NHS Slough
                       2.0           53          19           34         35.0           37           16         70.0
CCG

NHS South
                       2.1           30          11           19         38.1           21            9         71.4
Reading CCG

NHS Windsor,
Ascot &
                       1.4           27          2            25          7.1           15           12         57.1
Maidenhead
CCG

NHS
Wokingham              2.0           33          12           21         35.0           23           10         70.0
CCG

TVSCN                                633        236           397        37.3          450           183        71.1

 Amputations per 1,000 people aged 17+ with diabetes
 Source: Diabetes Footcare Profile

20
Thames Valley footcare pathway

                                                         Diagnosis of diabetes

                Manage diabetes and
                                                                                              Book in to have formal foot
               cardiovascular risk as per
                                                    Specific foot related education (A)        examination (C) at surgery
             local policy and initiate care
                                                                                                   within 12 weeks
                   planning process

             Refer for Formal Structured
             Education according to local            Immediate footcare examination
               policy which will include                (B) if a problem is noted
                    footcare advice

                                                       Assign risk status, and follow
                                                           appropriate pathway.
                                                        Give leaflet corresponding
                                                            with contact details

    Thames Valley diabetic footcare pathway

The Thames Valley diabetic footcare pathway has been
successfully integrated into GP IT systems across the area.
                                                                       Diabetes Transformation
The TV footcare best practice work that led to the creation
of the pathway has been recognised by the Vascular All
                                                                       Programme
Party Parliamentary group.1                                            Buckinghamshire CCG developed a Diabetes
                                                                       Transformation Programme which aimed to increase
                                                                       the numbers of uncomplicated patients with diabetes in
                                                                       primary care rather than secondary care. Also implementing
                                                                       the Care and Support planning and the House of Care
                                                                       models, Buckinghamshire developed their work further and
                                                                       created a mentorship programme across practices, set up
                                                                       nurse specialist-led virtual clinics, and has begun work on
                                                                       targeting patients who present at accident and emergency
                                                                       with undiagnosed diabetes, specifically those with active
                                                                       foot ulceration.

                                                                       The future for the network
                                                                       In order to put Thames Valley on the map with regards to
                                                                       quality standards, the network will be focusing on diabetes
                                                                       prevention, treatment standards, footcare and inpatient
                                                                       care and will be supporting each with NHS England
    Reporting to the Vascular All Party Parliamentary group
                                                                       transformation money (available 2017).

1
  http://appgvascular.org.uk/media/events/2016-02-meeting/APPG%20Vascular%20Disease%20Feb%201%20-%20Meeting%20Minutes.pdf
(last accessed 19th December 2016)

                                                                                                                                21
End of Life (EoL) Network

Vision
Our vision is for people at end of life to receive optimal care. We will achieve this by promoting the needs of people
at end of life, to all health and social care providers and by supporting Thames Valley commissioners to be expert
commissioners of End of Life Care (EoLC).
The network aims are to ensure that:
CCGs have robust plans for EoLC based on Ambitions for Palliative
and End of Life Care1
CCGs measure improvements in EoLC:

     Choice in place of care and death                                         Provision of advanced care plans

     Decisions around Do Not Attempt Cardio Pulmonary                          Use of Electronic Palliative Care Coordination Systems
     Resuscitation (DNACPR)                                                    (EPaCCS)

     Provision of 24/7 services                                                Specialist palliative care services

Acute providers engage in the enablers identified in the Transform2 programme:

     Advance Care Planning (ACP)                                               Electronic Palliative Care Coordination Systems (formerly
                                                                               known as end of life care locality registers)

     AMBER care bundle                                                         Rapid Discharge Home

     Priorities of Care from ‘One Chance to Get it Right’*

    *One Chance to Get it Right: Improving People’s Experience of Care in the Last Few Days and Hours of Life.
    https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/323188/One_chance_to_get_it_right.pdf
    (last accessed 20th December 2016)

CCGs integrate EoLC into other work programmes:

     Frail elderly                                                             Urgent and emergency care

     Long term conditions                                                      New models of care

     Out of hospital care                                                      Transforming primary care

     Personalisation                                                           24/7 services

1
    http://endoflifecareambitions.org.uk/ (last accessed 20th December 2016)
2
 Transforming End of Life Care in Acute Hospitals: The Route to Success ‘How To’ Guide (revised December 2015). https://www.england.nhs.uk/wp-
content/uploads/2016/01/transforming-end-of-life-care-acute-hospitals.pdf (last accessed 20th December 2016)
3
    Actions for End of Life Care: 2014-16. https://www.england.nhs.uk/wp-content/uploads/2014/11/actions-eolc.pdf (last accessed 20th December 2016)
4
    Actions for End of Life Care: 2014-16. https://www.england.nhs.uk/wp-content/uploads/2014/11/actions-eolc.pdf (last accessed 20th December 2016)
5
  Dying Without Dignity. http://www.ombudsman.org.uk/reports-and-consultations/reports/health/dying-without-dignity
(last accessed 20th December 2016)
6
 Our Commitment to You for End of Life Care: The Government Response to the Review of Choice in End of Life Care. https://www.gov.uk/government/
uploads/system/uploads/attachment_data/file/536326/choice-response.pdf (last accessed 20th December 2016)

22
CCGs to have local measures to capture patient and                     Previous work has demonstrated the need for a focused
carer experience.                                                      approach on end of life care. In particular, ‘Dying without
                                                                       Dignity’ report5 and the geographical variation in patient
CCGs implement routine reporting at board level to
                                                                       experience of care as evidenced in VOICES surveys and data
monitor progress with service initiatives including local
                                                                       on CHC funding for patients in the last months of life.
measure which capture patient and carer experience.
                                                                       It is recognised that the impact on the wider healthcare
Workforce education in EoLC is available and accessible
                                                                       system is considerable; suboptimal end of life care
for all health and social care staff and offered through
                                                                       contributes to inappropriate health costs due to poor
workshops based on the principle that ‘end of life care
                                                                       care planning, and in addition can contribute to potential
is everybody’s business’.
                                                                       long term morbidity for those important to the patient,
                                                                       i.e. family and carers.
Why is it needed?                                                      The Government’s response to the Choice review6 will
Providing high quality end of life care is an important                require ongoing work in end of life care and the network
priority for the NHS, defined as ‘improving the                        is in a strong position to influence those changes.
effectiveness, safety and experience of care for adults
approaching the end of life and the experience of their
families and carers’.3
                                                                       Key metrics
                                                                       Data is not collected at a local office or SCN level. This is
In 2013, overall quality of care across all services in the last
                                                                       now being driven by the network and will form the metrics
three months of life was rated as outstanding or excellent
                                                                       for future evaluation.
by 43% of respondents,4 highlighting that there is an
opportunity for improvement in 57% of cases.

Leading good End of Life care
   TVSCN End of Life Care Vision - To enable Thames Valley
   commissioners to become expert commissioners of End of Life Care

                                                                     Commissioning Guidance highlightshts
                                                                     national evidence and best practice on the
                                                                     importance and gains of delivering 24/7
                                                                     palliative and end of life care

                                    National data        AWC 2013             Bradford         Bradford City    GSF/Gold Line
                                    England 2013                             District 2013         2013         Year 2013/14
    All deaths in hospital                48.3                 36.0               45.9              50.4             14%
    All deaths at home                    22.4                 20.1               24.5              23.1             41%
    All deaths in care homes              21.6                 33.2               19.0              19.7             22%
    All deaths in hospice                5.5%                  8.8                8.3               4.6              23%

      Bucks CCG                                            East Berks CCG
                                                                                                                   Local
      Specific EOLC workstream in                          Wholesale adoption of guidance
                                                                                                               Generalist
      2 year Operating Plan:                               in 2 year Operating Plan:
      ✓ Incentive Schemes on Place of Death
                                                                                                                 Support
                                                           ✓   24/7 access service
      ✓ Provider Capacity Review                           ✓   Coordination hub
      ✓ Outcome based specification in
                                                                                                                   Local
                                                           ✓   Community integrated team
        development                                        ✓   Provider Capacity Review
                                                                                                               Specialist
      ✓ Patient Experience                                                                                      Support

                                                                                                                                  23
The Network has developed comprehensive guidance
for commissioning and delivering high quality end of
                                                                         The future for the network
life care, which has been made available. The network                    The network is in a prime position to influence and
provides impartial, expert guidance via the Thames Valley                support CCGs to develop and put in place local metrics
Commissioners Forum, and through direct contribution                     for assurance of services, including a focus on patient and
to locality groups. The network leads the Commissioner                   carer experience. There is also a need to collect data about
Forum for CCGs to share their local opportunities and                    specialist palliative care provision in response to the loss of
challenges and explore the possibility of implementing                   national data collection from 2017.
similar innovations. For example, Oxfordshire is now
                                                                         Also, the network is looking to recommend routine
evaluating the possibility of a palliative care coordination
                                                                         implementation of the Voices survey across all CCGs as
service and has implemented an anticipatory prescribing
                                                                         a mechanism for assessing patient experience of quality
initiative for end of life medication aimed at all patients
                                                                         of care, as measured by the carer which would allow for
in last year of life. The analysis of projects such as this can
                                                                         benchmarking and highlighting the areas to be improved.
then be shared with other CCGs.
                                                                         This would also allow evidence to be collated about service
The provision of 24/7 palliative and end of life care is a central       provision which included the patient experience, which has
tenant of comprehensive care with two thirds of all end of               so far been difficult to obtain at CCG level.
life requests for advice and support being out of hours. The
                                                                         The network is in a prime position to influence the
SCN used the Commissioner’s Forum to debate and discuss
                                                                         implementation of the national choice offer in end of life
this, and the commissioning guidance emphasised the clear
                                                                         care, such as the six commitments that the government
benefits of providing such a service. Areas which provide
                                                                         has made to the public to end variation in end of life care
this service drive up the percentage of people dying at home
                                                                         across the health system by 2020.7
from a national average of 23% to 40%.

Successes
There have been a number of service innovations
improving EoL care in Thames Valley, in response to the
EoL focus promoted and maintained by the network,
as described below:
• East Berkshire CCG used the format and principles
  within the network guidance to create the basis for their
  operating plans;
• Advice and guidance on local incentive scheme for EoL
  for Bucks, the Directed Enhanced Services (DES+) which
  has enabled service improvements with better metric
  and reporting for EoLC;
• Berkshire West and East developing service initiatives
  with palliative coordination hubs;
• East Berks recently launched a 24/7 rapid response
  nursing service alongside the hub, hosted by Thames
  Hospice, to deliver a flexible, responsive face-to-face end
  of life service that supports the whole community.
East Berkshire is also looking to launch a local
enhancement scheme to improve end of life care along
similar lines to the Bucks DES+.

7
 Our Commitment to You for End of Life Care: The Government Response to the Review of Choice in End of Life Care. https://www.gov.uk/government/
uploads/system/uploads/attachment_data/file/536326/choice-response.pdf (last accessed 20th December 2016)

24
Long term conditions

Vision
For the population of Thames Valley with long term conditions (LTCs) to experience a person-centred approach in their
care, through CCGs adopting Care and Support Planning (CSP), based on the House of Care framework.

                                                                       Organisational and
                                                                     supporting processes

                 Engaged,                                                                                       Health and care
                 informed                                                                                       professionals
                individuals                                                                                      committed to
                 and carers                                                                                       partnership
                                                                                                                   working

                                                                Person-centred
                                                                coordinated care

                                                                         Commissioning

    The House of Care framework

For this to be truly effective, four aspects require equal
attention which the SCN has been working to achieve in
                                                                              Why is it needed?
different areas of long term condition management:                            There are around 15 million people in England with long
1. Patients are engaged and informed;                                         term conditions; this section of the population has the
                                                                              greatest healthcare needs (50% of all GP appointments
2. Health professionals are committed to partnership
                                                                              and 70% of bed days), and 70% of acute and primary
   working;
                                                                              care budgets are spent on their treatment and care. This
3. Organisational and supporting processes;                                   situation is not expected to change, as the number of
4. Commissioning.                                                             people with three or more long term conditions is set to
                                                                              increase to 2.9 million by 2018.1
By 2020, 80% of patients with a LTC will
experience a Care & Support Planning                                          The NHS will need to adjust to this new demand by
consultation and 60% of patients will be                                      working to introduce more joined up services, develop
                                                                              predictive rather than reactive services, and increase the
confident in managing their own health.
                                                                              amount of emotional and psychological support and
                                                                              information for patients.

1
    https://www.england.nhs.uk/ourwork/ltc-op-eolc/ltc-eolc/house-of-care/ (last accessed 14th December 2016)

                                                                                                                                           25
The Year of Care introduced Care and Support Planning
Care and support planning                                                              training in 2011.3 Since then, the Thames Valley SCN
Care and Support Planning recognises that people who                                   LTC programme, in conjunction with HEETV, has been
live with long term conditions make the majority of the                                working to support CCGs to introduce CSP training to
decisions that affect their lives themselves, spending                                 GP practices and integrated teams across the area. In 14
relatively little time with a health and/or social care                                months, 350 community healthcare practitioners (including
practitioner.2 CSP seeks to transform the brief contact                                practice nurses, family doctors, and community nurses)
that does occur into a meaningful and useful discussion -                              have completed the course. The breakdown of training
enabled by preparation of the patient and with a focus on                              completion is as follows:
looking forward and planning.
                                                                                       Chiltern                                            94%
Over the course of an individual’s lifetime the nature of
                                                                                       Aylesbury Vale                                      84%
these conversations may well change as their health profile
and their needs change. The aim is for CSP to become the                               Berkshire West                                      90%
usual approach to normal care, understood as a continuous
                                                                                       Bracknell & Ascot                                  100%
process - not a one-off event while supporting continuity
and planning to meet the changing needs of people.                                     Berkshire East                                      86%
                                                                                       Note: All areas listed now have coordinators in post

Implementing Care and Support Planning

          Care and Support Planning –
                                                                      Training

                                                                                                        TVSCN has provided Training to
          enabling both the patient &                                                                   386 professionals across 136
          the professional                                                                              GP practices in the region

                                           Prepared
                                                                                                                              Care and
                                                                                                                              Support Planning
                                            Active                                       Banbury
                                                                                                             84%
                                                                                                            Practices
                                                                                                                              – in CCG 2
                                                                                                                              year Operating
                                                                      Penetration

                                                                                                           A lesb
                                                                                                                bur
                                                                                                                  ury
                                                                                                                   ry
                                                                                                           Aylesbury
                                          Informed                                          Oxford                            Plan and STP
                                                                                                                   94%
                                                                                                                  Practices   commitments
                                                                                                                  High
                                                                                                                  Hig
                                                                                                                  Hii h       across region
                                +                                                            90%
                                                                                            Practices
                                                                                                                 Wycombe

                                                                                                                    Slough
                                                                                                               100% Slo
                                                                                                                      ou
                                                                                                                              * 100% Bracknell &
                                                                                                                              Ascot CCG penetration
                                                                                           Newbury
                                                                                           New
                                                                                            ewb
                                                                                            ew bur
                                                                                               bur
                                                                                                uryy    Reading
                                                                                                           diinPractices*
                                                                                                               g              rate – Slough & WAM
                                                                                                                              CCGs in development
                                          Continuity
                                                                      Sustainability

                                        Normal Care
                                                                                                        TVSCN is working to deploy
                                                                                                        coordinators to support
                                       Adaptive Care
                                                                                                        implementation, evaluation
                                                                                                        and ownership at CCG level

2
    Interpersonal Education in Person-centred Care for Long Term Conditions
3
    www.yearofcare.co.uk (last accessed 19th December 2016)

26
The SCN has developed from scratch the LTC programme,          3. Organisational and supporting
combining Care and Support Planning roll-out across
Thames Valley, with expert advice and guidance informing,
                                                               processes
shaping and leading in each area to ensure sustainability      The SCN provides expert input directly to GP practices
and demonstration of impact and effectiveness.                 and teams post-training, and, in addition, mentoring
                                                               support to local CCG care planning coordinators. The
1. Patients are engaged and informed                           majority of CCGs have local coordinators in place to
                                                               support the implementation and evaluation of Care
The LTC programme provided a review and guidance on
                                                               and Support Planning.
patient education; it describes the current situation for
diabetes patient education and sets out the challenges of
a new perspective to help create a shift for diabetes self-
                                                               4. Commissioning
management education. It also provides current thinking        The SCN is advising CCGs on sustainability and evaluation
with regards to modelling and provision of a range of          of CSP. It has assisted in the development of incentive
education provision.                                           schemes, provided guidance on evaluation and measures
                                                               of success, and advised on local sustainability plans.
2. Health professionals are committed
to partnership working                                         The future for the network
The SCN has delivered a programme of training in care          The network will work to realise the potential of the
and support planning for GP practices and integrated care      principles of Care and Support Planning, by targeting the
teams to improve collaboration between patients and            adoption of CSP across all CCGs in Thames Valley and
clinicians. The SCN has achieved the following:                working towards allowing all patients with long term
• Between December 2014 and December 2016, 22                  conditions to have CSP consultations as part of their
  courses have been run, where each course includes an         routine care. As well as benefitting patients, the network
  initial one day training programme, with a follow-up that    wants to enable healthcare practitioners from all settings to
  lasts a day and a half. The courses have provided training   ensure collaborative conversations are delivered as part of
  for 386 healthcare professionals and 136 GP practices;       standard care.
• This equates to over half of all practices having taken
  up the offer of training for some of their staff;
• Four CCGs have over 90% of their practices
  completing training;
• In terms of staff groups, this includes 133 GPs and
  175 nurses who have received training.

                                                                                                                         27
Maternity network

Vision                                                                      Why is it needed?
The SCN vision for maternity services across Thames                         The network is developing maternity services that are safer,
Valley is the provision of excellent, evidence-based care                   more personalised, kinder, professional and more family
for women which will effect a positive, life-changing                       friendly.1 Two important aspects of this are reducing the
experience for women and their families. To do this, the                    number of stillbirths, and increasing access to perinatal
network will bring together people who have influence in                    mental healthcare.
their local area and their professional background who will
                                                                            The Better Births report set out a vision for better postnatal
contribute to solving identified gaps in service provision
                                                                            and perinatal healthcare, to address historic underfunding
and developing equitable and robust perinatal mental
                                                                            and provision in these two vital areas which have a
health services across Thames Valley.
                                                                            significant impact on the life chances and wellbeing of
                                                                            women, babies, and their families.2
                                                                            Reducing stillbirth rates are a key target for maternity
                                                                            services across the country; in November 2014, the
                                                                            Secretary of State for Health announced a new ambition
                                                                            to reduce the rate of stillbirths by 20% by 2020.3

1
  Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp-
content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016)
2
  Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp-
content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016)
3
  https://www.england.nhs.uk/ourwork/futurenhs/mat-transformation/saving-babies/ (last accessed 15th December 2016)

28
Better access to perinatal mental health services
There is a national drive for 30,000 additional women in England to be seen by perinatal mental health services.
This equates to an increase of 1,338 women to be seen in the Thames Valley area.

    Area                         2015 live          2016/2017           2017/2018          2018/2019           2019/2020           2020/2021
                                  births
    England                       664,399               500                 2,000             8,000              20,000              30,000
    TVSCN                          29,638                22                  89                357                 892                1,338
    Milton Keynes                   3,882                 3                  12                 47                 117                 175
    Buckinghamshire                 6,139                 5                  18                 74                 185                 277
    Oxfordshire                     7,893                 6                  24                 95                 238                 356
    Berkshire West                  6,029                 5                  18                 73                 181                 272
    Berkshire East                  5,695                 4                  17                 69                 171                 257

    Targets for additional women to access perinatal mental health services by 2021, separated into CCG areas
    Source: ONS births for England local authorities, 2015

Improving stillbirth rates
An audit into stillbirth in England found that half of all term, singleton, normally-formed antepartum stillbirths had at least
one element of care that required improvement and that may have made a difference to the outcome. The network is
looking to reduce stillbirth rates from 5.2 per 1,000 live births to 4.1 per 1,000 live births in the Thames Valley area.4

    CCG                                                        2014 stillbirths        2014 rate per         20% reduction of stillbirths
                                                                                      1,000 live births       by 2020, per 1,000 births
    England                                                          3,047                  4.6                              3.7
    TVSCN                                                             152                   5.2                              4.1
    NHS Milton Keynes CCG                                              15                   4.0
    NHS Aylesbury Vale CCG                                             7                    3.0
    NHS Chiltern CCG                                                   27                   7.4
    NHS Oxfordshire CCG                                                33                   4.3                  The network will work
                                                                                                               with partners to reduce the
    NHS South Reading CCG                                              13                   6.9
                                                                                                             variation across the geography
    NHS North & West Reading                                           10                   8.3                   to achieve this target.
    NHS Newbury & District CCG                                         6                    4.6
    NHS Wokingham CCG                                                  13                   7.2
    NHS Bracknell & Ascot CCG                                          3                    1.8
    NHS Slough CCG                                                     14                   5.4
    NHS Windsor, Ascot & Maidenhead CCG                                11                   6.8

    Present stillbirth rates in Thames Valley, and target stillbirth rates for 2020
    Based on 2014 ONS still births

Establishing Local Maternity systems
The SCN is bringing together commissioners, providers and partners in designing and delivering maternity care in line
with “Better Births”.

4
 Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp-
content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016)

                                                                                                                                                   29
Providing the care bundle
Saving Babies’ Lives is a care bundle designed to support providers, commissioners and professionals to take action to
reduce stillbirths. The SCN assessed each Trust in its jurisdiction to understand how much progress had been made in
providing the elements of the care bundle:

  Buckinghamshire           Frimley Health            Milton Keynes             Oxfordshire                 Royal Berkshire
     NHS Trust             Foundation Trust          Foundation Trust         Foundation Trust             Foundation Trust
                                         Element 1: Reducing smoking in pregnancy

                          Element 2: Risk assessment and surveillance for fetal growth restriction

                                 Element 3: raising awareness of reduced fetal movement

                                     Element 4: Effective fetal monitoring during labor

 Progress of Trusts in implementing the four elements of the care bundle

Key:    Completed and ongoing

        Partially completed and action plan

The care bundle delivers four elements of care that are recognised as evidence-based and/or best practice:
• Reducing smoking in pregnancy;
• Risk assessment and surveillance for fetal growth restriction;
• Raising awareness of reduced fetal movement;
• Effective fetal monitoring during labour.

Delivering through the Perinatal Mental Health Network
  Taking a lead for the Thames Valley in Perinatal Mental
  Health Awareness & Additional Capacity aims of 2020                         Training
                                                                              Secured funding
                                                                              to deliver regional
                                  Bolstered Regional                          Perinatal Mental
                                  Clinical Leadership                         Health programme
                                  (Nursing & Psychiatry)                      in 2017

       Wide-reaching network                                                    During 2015/2016 – Waiting
       with members from                                      Focus on
                                                           Data & Audit to      Times have improved
       service user, health
                                                           deliver national
       professionals and
                                                              objectives
       organisations

                     Bi-annual events to share                                  Based on Bucks & Oxon service - OHFT 2015 data reported
                                                                                mean wait 5 weeks, median wait 4 weeks.
                     National Thought Leadership
                                                                                2016 data reports mean wait 3 weeks, median wait 2 weeks
                     to more than 250 attendees                                 Source: Perinatal Data 2016 Thames Valley
                     across Thames Valley                                       - NHS Benchmarking Network

30
In January 2015, the SCN published the results of their                    aligns to the national agenda and to the draft perinatal
audit of perinatal mental health services in Thames Valley.                competency framework. It will continue to support further
The report set four key recommendations:                                   rounds of funding applications.
1. Develop training and specialisms in perinatal mental                    The collection of data and audit has been central to
   health across different services;                                       the network. The Thames Valley has developed a self-
2. Commission perinatal mental health services in                          assessment tool to audit against NICE quality standards for
   accordance with NICE guidance;                                          perinatal mental health, including perinatal IAPT (Improving
3. Establish a regional network of professional                            Access to Psychological Therapies), which is being
   stakeholders;                                                           developed across the South of England.
4. Improve data collection relating to perinatal mental
   health by all NHS providers.5                                           The future of the network
In the last 18 months, the SCN has made significant                        The network has clear ideas about the next steps for
progress in all these areas.                                               maternity services.
The Thames Valley SCN Regional Perinatal Mental Health
                                                                           Implementation of a regional maternity
Network was established in June 2015, working to support
the development of equitable access to specialist perinatal                dashboard
mental health services across Thames Valley.                               To provide accessible, high quality and up to date
                                                                           information about the quality and safety of perinatal
There has been significant investment and development
                                                                           mental health services in Thames Valley.
of services in the perinatal locality networks since 2015,
ensuring that the region is working towards the national
commitment of increased access to 30,000 women by
                                                                           A Thames Valley labour line
2020 across England.                                                       A 24/7 phoneline staffed by midwives to provide advice
                                                                           and support to women who think they are in labour.
The regional network has been successful in bringing
to the table a wide range of professionals and services                    Diabetes in pregnancy
from each locality perinatal network and has supported
                                                                           Benchmarking the management of diabetes in pregnancy
working together across Thames Valley with partner and
                                                                           using NICE guidelines, and subsequently directing the SCNs
neighbouring organisations.
                                                                           focus on service development.
It has hosted two conferences with national speakers
delivered to over 250 individuals. The network has recently                Perinatal education
been successful in securing a bid for £100,000 for regional                Developing and implementing a perinatal education
training in perinatal mental health, and has developed a                   programme for specialist perinatal mental health
training plan for 2017 to deliver this to specialist perinatal             professionals across Thames Valley.
leads and to the wider audience working with or likely to
come into contact with women in the perinatal period. This

5
 Thames Valley Children and Maternity SCN Perinatal Mental Health Report (March 2016). http://tvscn.nhs.uk/wp-content/uploads/2016/03/Final-
Thames-Valley-Perinatal-Mental-Health-Network-Report-2016.pdf (last accessed 15th December 2016)

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