Thames Valley Strategic Clinical Network & Clinical Senate: The Road to 2020
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Contents Introduction: What is the Thames Valley Strategic Clinical Network? 4 Partnership wheel 6 1. Commissioning guidance 7 2. Cancer network 8 3. Children’s network 14 4. Diabetes network 18 5. End of Life network 22 6. Long Term Conditions 25 7. Maternity network 28 8. Mental Health, Dementia and Neurology network 32 9. Stroke network 38 10. Vascular network 40 11. Clinical Senate 42 3
Introduction: What is the Thames Valley Strategic Clinical Network and Clinical Senate? Milton Keynes Banbury Bicester Witney Aylesbury Acute Trusts: 4 Oxford High Wycombe Abingdon Swindon Slough Newbury Reading Bracknall GP Practices: 274 Thames Valley Mental Health Community Population: Trusts: Hospitals: 2.4 million 2 18 4
The Road to 2020 Cancer Diabetes 4,400 Reduce 80% more newly smoking of cancers diagnosed d patients prevalence to staged rreceiving e structured 10.8% patient education (a 30% reduction) Additional Every GP 1,400 people 450 450 practice in Thames fewer lower surviving s cancer Valley meeting limb amputations for 10 years 40% achieving the across Thames or more three treatment Valley targets Mental Health, Dementia & Neurology Long Term Conditions and End of Life 5,000 100% of more people with all acute hospitals (LTC) - 80% Serious Mental in Thames Valley have of patients Illness (SMI) all-age Mental Health having care & receiving physical Liaison services in support planning health checks 90% of A&E and inpatient (EoLC) - 10% consultations individuals with wards increase across dementia to have Thames Valley of patient-centred death in place care & support of usual plans residence Stroke Strok ke Maternity Children 200 3,000 fewer 1,300 more children m strokes s in TV seen s in MH more women n to o services in be seen by Perinatal Thames Th Valley 850 Mental Health additional patients services in TV in TV experiencing Children with Eating stroke symptoms will Reduce Disorders seen be taken to a HASU stillbirths within 4 weeks/ for the first 72 hours by 20% 1 week for of their stay in (4.1 per 1000 urgent cases hospital in TV) 5
Partnership wheel He alt hw atc tic al h ac n e Pr tio NHS England st na Specialised Patients Be ter In Commissioning NHS England National Clinical Third Sector Leadership Public Health NHS England England & Local Medical Directorate Authorities TVSCN & Senate NHS England Academic Health & inno mia & Acad Assurance Science Network vatio e n Sustainability & Transformation Provider Trusts Plans NHS England Clinical GP Forward Commissioning View Groups Primary Care 6
Commissioning guidance Vision Building on previous iterations of the TVSCN The web portal has allowed a more accessible method of Commissioning Guidance, we created an intuitive, showing how the priorities would inform and align to user friendly website version of previous guidance to the strengthened two year CCG operational planning commissioners, to ensure a comprehensive capture of process (September-December 2016) as well as benchmarking information across the patch, linked to Sustainability & Transformation Plans (STP). national and local priorities. The commissioning guidance Due to the further enhancements to the website we have not only described ‘what’ commissioners should focus on, developed stronger partnerships with arm’s length bodies to but also ‘how’ to go about achieving this. It linked to best provide commissioners with a more comprehensive offering. practice guidance, showed quality and financial savings As a result, the public health interventions relating to individual where available, and linked directly to reports delivered clinical networks now provide calculation and scale of challenge by the networks on current status and recommendations. and opportunity. Customised data packs are also provided at a CCG and practice level to quantify potential gains. NEW: Prevention More in-depth content section covering Targeted advice Improved Healthier tackling unhealthy patient workplace behaviours pathways • Quantified scale of challenge/opportunity on interventions and redesign • Detailed breakdown of national strategies and priorities • Customised data packs per CCG and practice level PPrevention ti Screening S i Dynamic Sessions Users 1,357 916 experience... Pages / Session New Session 2.44 67.50% Engaged users Avg. Session Duration 00:02:27 Pageviews 3,315 Assessment M Management t & Diagnostics & Treatment 7
Cancer network Vision Ensuring optimal provision of diagnosis, treatment, care and outcomes for all cancer patients in Thames Valley by increasing early diagnosis, improving outcomes and providing high quality services. Why is it needed? Cancer is the most common cause of premature death (
Accurate staging More accurate staging data allows for quality improvement initiatives to be targeted appropriately. The SCN worked with clinicians in primary and secondary care settings to ensure accurate recording of cancer staging during Multi-Disciplinary Team meetings. The network is aiming to have 80% of all cancers staged by the year 2020. 90 80 70 60 Percentage 50 40 30 20 10 0 d G G G G G CG G G G G G an CC CC CC CC CC CC CC CC CC CC tC gl e rn es re n ng g ot gh AM En ric l do in Va hi yn c lte di ou st ad As W ds in Ke ea i Di y Ch Sl Re Sw ur or l& S tR & S NH on sb xf S h NH el S es ry NH O ut le ilt NH kn W bu Ay M So S ac NH w & S S S Br NH Ne NH NH th S r NH S No NH S NH 2012 2013 2014 Target Percentage of cancer cases with recorded stage at diagnosis Source: Public Health England’s National Cancer Intelligence Network: Cancer Analysis System 2014 Additional patients for all CCGs % recorded No of patients Achieving Achieving Achieving recorded 70% 75% 80% England 75.9 225,016 TVSCN 69.7 8,724 332 738 1,282 NHS Aylesbury Vale CCG 66.8 713 34 87 141 NHS Chiltern CCG 66.3 1,148 64 150 237 NHS Milton Keynes CCG 65.9 779 48 108 167 NHS Oxfordshire CCG 77.1 2,551 - - 95 NHS Swindon CCG 76.0 822 - - 44 NHS Newbury & District CCG 67.9 363 12 38 65 NHS North & West Reading CCG 64.2 314 28 53 77 NHS South Reading CCG 65.8 256 16 36 55 NHS Wokingham CCG 68.8 559 10 51 91 NHS Bracknell & Ascot CCG 63.7 403 40 72 103 NHS Slough CCG 64.5 321 28 53 77 NHS WAM CCG 63.4 495 52 91 130 Average staging completeness across Thames Valley 2014 data is based on Public Health England’s National Cancer Intelligence Network: Cancer Analysis System 9
Earlier staging Diagnosing cancer at an early stage dramatically improves a patient’s survival chances. Recording the percentage of cancers diagnosed at stages 1 and 2 gives a good overview in order to assess improvements in cancer survival rates, and allows for the appropriate treatment and care of patients. The percentage of cancers diagnosed early (stages 1 and 2) has been steadily increasing, indicating that cancers are being diagnosed earlier. 2014 Year 2020 TV Range Best CCG % of all % of cancer cancers staged Early stage 1 & 2 40% 30-44% 49% 60% 75% Late stage 3 & 4 30% 25-33% 35% 20% 25% Unstaged 30% 23-37% 16% 20% Cancer staging targets to the year 2020 In practice, early staging of cancers such as lung, colorectal and ovarian cancers saves lives and money. By staging lung cancer early, up to 70 years of life for 1,161 lung cancer patients across Thames Valley could be saved. Thames Valley (current) Thames Valley (using best in England) Median % Patient Years of % Patient Years of Years of Months of survival diagnosed numbers life diagnosed numbers life life gained life gained (months) at stage at stage Stage 1 22.5 19.7 229 429 22.2 258 483 Stage 2 10.9 8.8 102 93 11.8 137 124 Stage 3 6.5 19.3 224 121 18.9 219 119 Stage 4 2.6 52.2 606 131 47.1 547 118 Total 1,161 775 1,161 845 70 844 Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK Years of life saved by diagnosing lung cancer at stages 1 & 2 10
Staging colorectal cancer early could save £800,790. Thames Valley* England Colorectal Cost of No of patients Current % Best in No of aditional Cost treatment by in 2014 England % patients at stage in difference stage (including scenario (£) recurrence) (£) Stage 1 3,749 212 17.5 18.6 14 51,751 Stage 2 9,812 339 27.9 44.4 200 1,962,557 Stage 3 13,977 351 28.9 21.1 -95 -1,325,663 Stage 4 12,519 312 25.7 15.9 -119 -1,489,436 -800,790 Total 1,214 100 100 savings * Thames Valley colorectal cancer including colon and rectal cancers Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK Model limitations: Thames Valley colorectal cancers include both colon and rectal cancers; there are no further breakdown details of colon staging in Thames Valley. This model excludes unknown or not staged cancers and the resulting cost implications. Money saved by diagnosing colorectal cancer at stages 1 & 2. Based on Saving Lives, Averting Costs: An analysis of the financial implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer. A report prepared for Cancer Research UK (September 2014). And staging ovarian cancer early could save £764,003 across Thames Valley. Thames Valley England Cost of No of patients Current % Best in No of additional or Cost treatment by in 2014 England % reduced patients at difference stage (including stage in scenario (£) recurrence) (£) Stage 1 6,832 75 33.5 59.6 59 399,699 Stage 2 18,840 12 5.4 9.4 9 170,615 Stage 3 23,483 81 36.2 19.4 -38 -881,646 Stage 4 15,081 56 25.0 11.6 -30 -452,671 -764,003 Total 224 100 100 saving Note: Data in this table is based on the Saving Lives, Averting Costs report by Cancer Research UK Model limitations: This model excludes unknown or not staged cancers and the resulting cost implications. Money saved by diagnosing ovarian cancer at stages 1 & 2. Based on Saving Lives, Averting Costs: An analysis of the financial implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer. A report prepared for Cancer Research UK (September 2014). 11
Reducing smoking Smoking rates in Great Britain have halved in the last 35 years, declining steadily since the 1970s. Current smoking rates are at 18.4% of the population, but smoking remains the leading cause of preventable death and disease in England.1 The Thames Valley area has a smoking prevalence of 15.4%, below the national average, and the network is targeting a further reduced rate of 10.8% by 2021. Projection of Thames Valley population in 2021 2,188,200 Projection of number of smokers aged >15 years old in Thames 236,574 Achieving 30% reduction in smoking valley population to meet 30% reduction target by 2020 prevalence by 2020 Total reduction in number of smokers 110,720 Source: QOF 2015/16 for patients aged 15 or over who are recorded as current smokers and ONS population projection Improving urological cancer services in Thames Valley In 2013, the Cancer Peer Review process identified that there were serious concerns with the Thames Valley service configuration for specialist surgery for prostate, bladder and kidney cancer. The peer review team raised specific concerns with operations being carried out across two locations: Royal Berkshire Hospital (RBH) and Heatherwood and Wexham Park (HWP) rather than one location as recommended in the Improving Outcomes Guidance (IOG) for urological cancer. The review also highlighted problematic working relationships within the Berkshire Specialist Urology Multi-Disciplinary Team (SMDT).2 The Thames Valley SCN established a project to develop a service model for specialist prostate, bladder and kidney cancer surgery in Thames Valley that was compliant with the targets outlined by the peer review team. In order to carry this out, the SCN successfully did the following: Facilitated mediation Developed case for Effectively repatriated to improve working changing the current radical cystectomy relationships within service configuration services to RBHT the SMDT Improved data Developed clinical collection, both Appointed impartial quality metrics to retrospective and external clinical advisor measure and assess current impact of repatriation By April 2014, the Berkshire-wide compliant cystectomy Pre Post service was in place. The SMDT established a working Sample size 30 22 environment that operated at a level beyond professional cordiality and dedication to improvement. Surgeries now Average patient age 65.1 69.6 take place at one location (RBH), and the change has been Surgical technique a success in terms of both collaboration and ensuring Open 100% 68% patient care. Robotic 0% 32% An audit of pre- and post-repatriation shows the Average length of stay 9.8 days 8.9 days following results: 30 day mortality 7% 5% 90 day mortality (excluding 30 day) 0% 0% Pre- and post-repatriation audit results 1 Achieving World-Class Cancer Outcomes: A Strategy for England 2015-2020, http://www.cancerresearchuk.org/sites/default/files/achieving_world- class_cancer_outcomes_-_a_strategy_for_england_2015-2020.pdf (last accessed 15th December 2016) 2 Peer Review Visit Report for Royal Berkshire Specialist Urology MDT. 12
The future for the cancer network Demand on cancer services is increasing due to the steady rise of both new diagnoses and the number of patients who survive. Whilst the workforce has absorbed these increases so far, service quality has dropped which has been reflected in the increasing delays in delivering test results to patients. Across the country, more than a third of radiologists are aged 50 or over, and around a quarter will be approaching retirement age in the next ten years.3 The cancer network is planning to undertake an assessment of the Thames Valley workforce to understand the current situation, and develop plans to manage the recruitment and retention of fully-trained staff. 3 Guidance Summary: National Reports Focused on Cancer 2014-2015. 13
Children’s network Vision Why is it needed? The aim for Thames Valley is to create an environment The impact of mental wellbeing problems in the early years is where children and young people have the opportunity to highlighted by the evidence that 75% of adults with mental grow up happy, safe and healthy within resilient families. ill health will have started to experience issues before the age Good mental health is a vital part of that. The vision is for of 18 years old. Despite this evidence, as a health service we children and young people to grow up resilient, have good may be reaching as few as one in four children and young mental health and if they need help know how to access people with problems that could be helped. high quality, timely services. 50% of lifetime mental illness (excluding dementia) starts by age 14 Started mental illness Not started mental illness The onset of lifetime mental illness1 In addition to the ethical and moral reasons for better services, there is also a powerful economic impetus given that children with serious conduct disorders are twice as likely to leave school without any qualifications, three times more likely to become a teenage parent, four times more likely to become dependent on drugs and 20 times more likely to end up in prison; the monetary cost to the health service, the benefits system and the justice system is high.2 The Future in Mind report3 articulates how we need to set about tackling the problems to create a system that brings together the potential of the internet, schools, social care, the NHS, the voluntary sector, parents, and children and young people themselves. 1 Kim-Cohen J, Caspi A, Moffitt TE et al. Prior Juvenile Diagnoses in Adults With Mental Disorder: Developmental Follow-Back of a Prospective- Longitudinal Cohort. Arch Gen Psychiatry. 2003;60(7):709-717; Kessler RC, Berglund P, Demler O et al. Lifetime Prevalence and Age-of-Onset Distributions of DSM-IV Disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005;62(6):593-602; Kessler RC, PG Amminger, Aguilar-Gaxiola S et al. Age of Onset of Mental Disorders: A Review of Recent Literature. Curr Opin Psychiatry. 2007 July; 20(4): 359-364. 2 Five Year Forward View for Mental Health. https://www.england.nhs.uk/wp-content/uploads/2016/02/Mental-Health-Taskforce-FYFV-final.pdf (last accessed 16th December 2016) 3 Future in Mind: Promoting, Protecting and Improving our Children and Young People’s Mental Health and Wellbeing. https://www.gov.uk/government/ uploads/system/uploads/attachment_data/file/414024/Childrens_Mental_Health.pdf (last accessed 16th December 2016) 14
There are five core themes: • Promoting resilience, prevention and early intervention; • Improving access to effective support: a system without tiers; • Care for the most vulnerable; • Accountability and transparency, and; • Developing the workforce. Seeing more children in mental health services In Thames Valley an additional 3,000 children and young people will be able to access evidence-based treatment by 2020/21. Estimated 2016/17 2017/18 2018/19 2019/20 2020/21 prevalence * England 711,674 21,000 35,000 49,000 63,000 70,000 Thames Valley 29,866 881 1,469 2,056 2,644 2,938 NHS Milton Keynes CCG 3,964 117 195 273 351 390 NHS Aylesbury Vale CCG 2,456 72 121 169 217 242 NHS Chiltern CCG 3,824 113 188 263 339 376 NHS Oxfordshire CCG 7,874 232 387 542 697 774 NHS Bracknell & Ascot CCG 1,753 52 86 121 155 172 NHS Slough CCG 2,377 70 117 164 210 234 NHS Windsor, Ascot & 1,652 49 81 114 146 163 Maidenhead CCG NHS Wokingham CCG 1,706 50 84 117 151 168 NHS North & West Reading CCG 1,231 36 61 85 109 121 NHS South Reading CCG 1,593 47 78 110 141 157 NHS Newbury & District CCG 1,437 42 71 99 127 141 * Estimated prevalence of any mental health disorder, aged 5-16 in 2014 (source: PHE Fingertips - Children’s and Young People’s Mental Health and Wellbeing) Seeing how the service is working The SCN is working with the CYP mental health system to understand not only the number of children and young people being seen, but also if the services are improving. 1. Reduced waiting times A key priority for the SCN is to ensure that the waiting times for children and young people are reducing, and to understand where there are common themes; within Thames Valley, this means focusing attention on the number of CYP with autism. Autism - Waiting Q2 2016-17 Trajectory 2020 times to diagnosis Waits W Berks Bucks Oxon E Berks MK average wait (days) 259 107 128 awaiting awaiting info info Number of patients % % % % waiting 0 - 4 weeks 171 12.3 34 10 54 10 100% 4 - 6 weeks 77 6.4 15 4 22 4 6 - 8 weeks 12 3 22 4 8 - 10 weeks 157 13.0 27 8 31 6 10 - 12 weeks 23 7 25 5 > 12 weeks 795 66.3 235 68 367 70 15
2. Timely intervention for eating disorder interventions The aim is for 95% of children and young people with eating disorders to be seen within four weeks, or one week for urgent cases, and ultimately reduce the number of tier 4 eating disorder admissions. A national minimum data set will be released in April 2017 and will form the basis on which progress will be monitored and a trajectory agreed. 3. Improving experience The SCN needs to hear from children and young people and their carers to understand if the experience is improved, and defining what an improved experience consists of. All CCGs to have in contract with providers a young person’s forum/ group. 4. Referral to acceptance rates Improving transparency and accountability across the whole system to ensure children are referred to the right service at the right time, improving the area’s referral to acceptance rates. This baseline data will be released in the data set. Improving quality of care during transition from children to adult services Transitioning from children to adult Outcomes services can lead to poor quality of care and condition management Greater collaboration across Local Authority, Health & Social Care Taking learning from... TVSCN Guidelines & process supported ensures safe transition from paediatric to adult services with Transition Nursing capacity to implement For patients aged 13-18 to support Ensures vulnerable readiness for transition patients stay visible in to adult services the system 16
Ready Steady Go is a transition tool system, developed The feedback for the trial has been very positive: by Southampton Children’s Hospital, and is designed to encourage collaboration between clinicians, patients, and parents to establish the patient’s needs and to “The RBFT Transition Plan means communicate these clearly between children and adult long term condition services (e.g. diabetes, endocrinology, there are clear guidelines to allow cardiology etc). us to safely transfer patients from The transition from children to adult services is currently paediatric to adult services…I have not standardised across the country, and young patients found the Transition Nurse to be a can fall through the gaps when they become the sole point very valuable resource.” of contact for arranging and attending appointments. Epilepsy Clinical Nurse Specialist Self-management of long term conditions can decline in the late teens; diabetes management in particular can “The RBFT Transition Nurse has become poor when a young person becomes responsible provided a wealth of information, for managing their own food and medication intake, and emergency presentations of diabetes increase during this time. support and advice.” CHC Paediatric Nurse Assessor The TV SCN funded a three year, two phase project to set up a transition steering group, publish a transition policy, “The appointment of the RBFT and implement Ready Steady Go. Transition Nurse has resulted in an 1. Set up a transition steering group explosion of joint working with the The TV SCN Transition Nurse created a transition steering Local Authority, health and social group that began in February 2015 and meets every two months to map transition pathways, write policy, and ensure care in the west of Berkshire.” that new specialities are complying with those policies. Special Educational Needs (SEN) Team Manager 2. Publish a transition policy The policy was completed in January 2016, published on the SCN website, and will be used for rolling out the transition principles across the Thames Valley area. The scheme has reduced instances of missed appointments and encouraged attendance at adult clinics, helped 3. Implement Ready Steady Go vulnerable patients to stay visible in the health and social The TV SCN Transition Nurse based in RBFT identified care system, ensured correct and needed diagnostic 60 patients with a long term condition aged 13-18 who procedures to take place, and ensured adult services had attended one of eight clinics and worked with them to a better understanding of patient needs. implement the Ready Steady Go system. The progress of the project was measured against a Commissioning for Quality and Innovation (CQUIN) The future of the network Indicators: The network plans to continue its work by creating a system that is transparent, accountable and competent, Indicator Target End of Q2 and that always has the child and their family at the centre audit results of everything it does. (16/17) This system will be run by a resilient and competent Patients to have a transition 50% 83% workforce who not only know how to identify a child’s plan in their notes presenting issues but also respond in good time and prevent escalation to crisis services. The staff will know Patients to have a 50% 73% what interventions to use, who to call and how to access named transition worker further help when needed, so that a child, with the right documented in their notes support can develop the tools and resilience needed for CQUIN indicators for the Transition Project better mental health and wellbeing, and take these with them into adult life. The system will also be built on good practice examples, and will create learning and development environments that will bring about long-term, sustainable cultural change. 17
Diabetes network Vision Why is it needed? To deliver a step-change in diabetes care for the patients of In Thames Valley just under 1,000 people will die early Thames Valley through prevention, patient education and from type 2 diabetes; a disease which has been shown delivery of diabetes care standards. By 2020, the network to be preventable in many cases. At present, we have plans to have every GP practice in the area reaching the 42,000 people with diabetes whose HbA1C (long-term target of at least 40% of patients achieving the three blood sugar) isn’t controlled; 30,000 whose cholesterol treatment targets (controlled blood pressure, controlled isn’t controlled; and 30,000 whose blood pressure isn’t cholesterol level, controlled long-term blood sugar level) controlled. Type 2 diabetes also accounts for 9% of the on a regular basis. total NHS spend. The National Diabetes Audit (NDA) is an annual national clinical audit, which measure the effectiveness of diabetes healthcare against NICE Clinical Guidelines and NICE Quality Standards. Thames Valley outperforms the national rate for audit completion, with 94% of TV GP practices completing the audit compared to 81% across England, which means that the data on which the network can base improvements is strong. Three treatment targets By 2020, at least 40% of patients with diabetes in every GP practice in Thames Valley will receive the three treatment targets on a regular basis. Achieving this ambition will mean that 54,343 people in Thames Valley will have their diabetes better controlled, which will improve outcomes and reduce complications. CCG No of Average CCG Percentage of No of people practices performance % practices achieving required to submitted less than 40% reach 40% NHS Aylesbury Vale 19 44.4 26 4780 NHS Chiltern 34 44.8 12 7724 NHS Oxfordshire 68 38.8 66 14195 NHS Milton Keynes 24 38.8 58 5562 NHS Bracknell & Ascot 15 44.2 13 2866 NHS Slough 16 42.6 31 5164 NHS Windsor, Ascot & Maidenhead 16 42.0 50 2859 NHS Wokingham 13 37.8 62 3337 NHS North & West Reading 10 37.5 80 2472 NHS South Reading 15 37.1 60 2751 NHS Newbury & District 10 34.0 80 2633 Total 54343 Note: For patients
Diabetic structured patient education By 2020, at least 50% of all newly diagnosed patients with diabetes will receive structured patient education. Based on an assumption that the Thames Valley diabetes prevalence will grow a further 6% by 2020, with our population size growing a further 5.4%, we anticipate having over 4,400 newly diagnosed diabetes patients who will require structured patient education. The network will also monitor patients with prevalent diabetes who are offered structured patient education. 2013/2014 2014/2015 Additional patients to attend Area % of patients % of patients Number of course to reach who attended who attended newly diagnosed 50% by 2020/21 structured structured patients education course education course 2013/2014 2014/2015 England 5.6 5.7 144,352 75,000 TV SCN 4.6 4.8 8,287 4,400 NHS Milton Keynes 0.5 0.5 389 200 NHS Aylesbury Vale 13.7 9.3 863 460 NHS Chiltern 6.1 3.9 1,445 770 NHS Oxfordshire 5.1 4.9 1,845 970 NHS Bracknell & Ascot 0.0 1.7 470 250 NHS Slough 1.3 0.2 873 470 NHS Windsor, Ascot & Maidenhead 1.4 2.5 518 270 NHS Wokingham 4.5 5.9 461 240 NHS North & West Reading 2.0 10.4 461 250 NHS South Reading 4.3 11.5 541 290 NHS Newbury & District 0.5 2.1 421 230 2020 target for structured patient education, broken down by CCG. Based on 2013/14 & 2014/15 National Diabetes Audit 16 % of patients who attended structured education course 2013/2014 14 % of patients who attended structured education course 2014/2015 12 10 Percentage 8 6 4 2 0 nd N s le rn re t gh d am g g t co ric e a n in SC Va hi yn e he a ou di As gh st ad ilt ds gl Ke ea Di y TV n Ch Sl En Re in ur or l& de tR & S ok on sb xf S NH ai h l ne es y NH O W ut le ilt M r W bu Ay ck M So S S & NH NH a w & S S S Br ot Ne NH NH NH rth sc S NH ,A S No NH or S ds NH in W S NH Patients attending structured education course, 2013-2015, broken down by CCG. 2013/14 & 2014/15 National Diabetes Audit 19
Diabetic footcare By 2020, the network plans for the amputation rate across Thames Valley to match that of the best CCG in England, which is a rate of 0.6 amputations per 1,000 people with diabetes. This would result in 450 fewer people in TV undergoing amputation as a result of this improvement. The target is ambitious (over 50% fewer amputations for all CCGs), but Thames Valley is well placed having established a Good to Great footcare pathway that has been accepted across the system and is now being rolled out across the area. April 2012 – March 2015 Achieving the best CCG within Thames Achieving the best CCG within Valley (1.3 per 1000 people) England (0.6 per 1000 people) Rate per Number of Number of Number of % reduced Number of Number of % reduced 1000 cases cases to be cases cases to be cases people reduced reduced Lowest CCG 0.6 in England Highest CCG 4.9 in England England 2.6 average NHS Aylesbury 2.7 74 38 36 51.9 58 16 77.8 Vale CCG NHS Bracknell 1.3 22 0 22 0.0 12 10 53.8 & Ascot CCG NHS Chiltern 2.1 94 36 58 38.1 67 27 71.4 CCG NHS Milton 2.9 101 56 45 55.2 80 21 70.3 Keynes CCG NHS Newbury 2.0 25 9 16 35.0 18 8 70.0 & District CCG NHS North & 1.8 21 6 15 27.8 14 7 66.7 West Reading NHS Oxfordshire 1.9 153 48 105 31.6 105 48 68.4 CCG NHS Slough 2.0 53 19 34 35.0 37 16 70.0 CCG NHS South 2.1 30 11 19 38.1 21 9 71.4 Reading CCG NHS Windsor, Ascot & 1.4 27 2 25 7.1 15 12 57.1 Maidenhead CCG NHS Wokingham 2.0 33 12 21 35.0 23 10 70.0 CCG TVSCN 633 236 397 37.3 450 183 71.1 Amputations per 1,000 people aged 17+ with diabetes Source: Diabetes Footcare Profile 20
Thames Valley footcare pathway Diagnosis of diabetes Manage diabetes and Book in to have formal foot cardiovascular risk as per Specific foot related education (A) examination (C) at surgery local policy and initiate care within 12 weeks planning process Refer for Formal Structured Education according to local Immediate footcare examination policy which will include (B) if a problem is noted footcare advice Assign risk status, and follow appropriate pathway. Give leaflet corresponding with contact details Thames Valley diabetic footcare pathway The Thames Valley diabetic footcare pathway has been successfully integrated into GP IT systems across the area. Diabetes Transformation The TV footcare best practice work that led to the creation of the pathway has been recognised by the Vascular All Programme Party Parliamentary group.1 Buckinghamshire CCG developed a Diabetes Transformation Programme which aimed to increase the numbers of uncomplicated patients with diabetes in primary care rather than secondary care. Also implementing the Care and Support planning and the House of Care models, Buckinghamshire developed their work further and created a mentorship programme across practices, set up nurse specialist-led virtual clinics, and has begun work on targeting patients who present at accident and emergency with undiagnosed diabetes, specifically those with active foot ulceration. The future for the network In order to put Thames Valley on the map with regards to quality standards, the network will be focusing on diabetes prevention, treatment standards, footcare and inpatient care and will be supporting each with NHS England Reporting to the Vascular All Party Parliamentary group transformation money (available 2017). 1 http://appgvascular.org.uk/media/events/2016-02-meeting/APPG%20Vascular%20Disease%20Feb%201%20-%20Meeting%20Minutes.pdf (last accessed 19th December 2016) 21
End of Life (EoL) Network Vision Our vision is for people at end of life to receive optimal care. We will achieve this by promoting the needs of people at end of life, to all health and social care providers and by supporting Thames Valley commissioners to be expert commissioners of End of Life Care (EoLC). The network aims are to ensure that: CCGs have robust plans for EoLC based on Ambitions for Palliative and End of Life Care1 CCGs measure improvements in EoLC: Choice in place of care and death Provision of advanced care plans Decisions around Do Not Attempt Cardio Pulmonary Use of Electronic Palliative Care Coordination Systems Resuscitation (DNACPR) (EPaCCS) Provision of 24/7 services Specialist palliative care services Acute providers engage in the enablers identified in the Transform2 programme: Advance Care Planning (ACP) Electronic Palliative Care Coordination Systems (formerly known as end of life care locality registers) AMBER care bundle Rapid Discharge Home Priorities of Care from ‘One Chance to Get it Right’* *One Chance to Get it Right: Improving People’s Experience of Care in the Last Few Days and Hours of Life. https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/323188/One_chance_to_get_it_right.pdf (last accessed 20th December 2016) CCGs integrate EoLC into other work programmes: Frail elderly Urgent and emergency care Long term conditions New models of care Out of hospital care Transforming primary care Personalisation 24/7 services 1 http://endoflifecareambitions.org.uk/ (last accessed 20th December 2016) 2 Transforming End of Life Care in Acute Hospitals: The Route to Success ‘How To’ Guide (revised December 2015). https://www.england.nhs.uk/wp- content/uploads/2016/01/transforming-end-of-life-care-acute-hospitals.pdf (last accessed 20th December 2016) 3 Actions for End of Life Care: 2014-16. https://www.england.nhs.uk/wp-content/uploads/2014/11/actions-eolc.pdf (last accessed 20th December 2016) 4 Actions for End of Life Care: 2014-16. https://www.england.nhs.uk/wp-content/uploads/2014/11/actions-eolc.pdf (last accessed 20th December 2016) 5 Dying Without Dignity. http://www.ombudsman.org.uk/reports-and-consultations/reports/health/dying-without-dignity (last accessed 20th December 2016) 6 Our Commitment to You for End of Life Care: The Government Response to the Review of Choice in End of Life Care. https://www.gov.uk/government/ uploads/system/uploads/attachment_data/file/536326/choice-response.pdf (last accessed 20th December 2016) 22
CCGs to have local measures to capture patient and Previous work has demonstrated the need for a focused carer experience. approach on end of life care. In particular, ‘Dying without Dignity’ report5 and the geographical variation in patient CCGs implement routine reporting at board level to experience of care as evidenced in VOICES surveys and data monitor progress with service initiatives including local on CHC funding for patients in the last months of life. measure which capture patient and carer experience. It is recognised that the impact on the wider healthcare Workforce education in EoLC is available and accessible system is considerable; suboptimal end of life care for all health and social care staff and offered through contributes to inappropriate health costs due to poor workshops based on the principle that ‘end of life care care planning, and in addition can contribute to potential is everybody’s business’. long term morbidity for those important to the patient, i.e. family and carers. Why is it needed? The Government’s response to the Choice review6 will Providing high quality end of life care is an important require ongoing work in end of life care and the network priority for the NHS, defined as ‘improving the is in a strong position to influence those changes. effectiveness, safety and experience of care for adults approaching the end of life and the experience of their families and carers’.3 Key metrics Data is not collected at a local office or SCN level. This is In 2013, overall quality of care across all services in the last now being driven by the network and will form the metrics three months of life was rated as outstanding or excellent for future evaluation. by 43% of respondents,4 highlighting that there is an opportunity for improvement in 57% of cases. Leading good End of Life care TVSCN End of Life Care Vision - To enable Thames Valley commissioners to become expert commissioners of End of Life Care Commissioning Guidance highlightshts national evidence and best practice on the importance and gains of delivering 24/7 palliative and end of life care National data AWC 2013 Bradford Bradford City GSF/Gold Line England 2013 District 2013 2013 Year 2013/14 All deaths in hospital 48.3 36.0 45.9 50.4 14% All deaths at home 22.4 20.1 24.5 23.1 41% All deaths in care homes 21.6 33.2 19.0 19.7 22% All deaths in hospice 5.5% 8.8 8.3 4.6 23% Bucks CCG East Berks CCG Local Specific EOLC workstream in Wholesale adoption of guidance Generalist 2 year Operating Plan: in 2 year Operating Plan: ✓ Incentive Schemes on Place of Death Support ✓ 24/7 access service ✓ Provider Capacity Review ✓ Coordination hub ✓ Outcome based specification in Local ✓ Community integrated team development ✓ Provider Capacity Review Specialist ✓ Patient Experience Support 23
The Network has developed comprehensive guidance for commissioning and delivering high quality end of The future for the network life care, which has been made available. The network The network is in a prime position to influence and provides impartial, expert guidance via the Thames Valley support CCGs to develop and put in place local metrics Commissioners Forum, and through direct contribution for assurance of services, including a focus on patient and to locality groups. The network leads the Commissioner carer experience. There is also a need to collect data about Forum for CCGs to share their local opportunities and specialist palliative care provision in response to the loss of challenges and explore the possibility of implementing national data collection from 2017. similar innovations. For example, Oxfordshire is now Also, the network is looking to recommend routine evaluating the possibility of a palliative care coordination implementation of the Voices survey across all CCGs as service and has implemented an anticipatory prescribing a mechanism for assessing patient experience of quality initiative for end of life medication aimed at all patients of care, as measured by the carer which would allow for in last year of life. The analysis of projects such as this can benchmarking and highlighting the areas to be improved. then be shared with other CCGs. This would also allow evidence to be collated about service The provision of 24/7 palliative and end of life care is a central provision which included the patient experience, which has tenant of comprehensive care with two thirds of all end of so far been difficult to obtain at CCG level. life requests for advice and support being out of hours. The The network is in a prime position to influence the SCN used the Commissioner’s Forum to debate and discuss implementation of the national choice offer in end of life this, and the commissioning guidance emphasised the clear care, such as the six commitments that the government benefits of providing such a service. Areas which provide has made to the public to end variation in end of life care this service drive up the percentage of people dying at home across the health system by 2020.7 from a national average of 23% to 40%. Successes There have been a number of service innovations improving EoL care in Thames Valley, in response to the EoL focus promoted and maintained by the network, as described below: • East Berkshire CCG used the format and principles within the network guidance to create the basis for their operating plans; • Advice and guidance on local incentive scheme for EoL for Bucks, the Directed Enhanced Services (DES+) which has enabled service improvements with better metric and reporting for EoLC; • Berkshire West and East developing service initiatives with palliative coordination hubs; • East Berks recently launched a 24/7 rapid response nursing service alongside the hub, hosted by Thames Hospice, to deliver a flexible, responsive face-to-face end of life service that supports the whole community. East Berkshire is also looking to launch a local enhancement scheme to improve end of life care along similar lines to the Bucks DES+. 7 Our Commitment to You for End of Life Care: The Government Response to the Review of Choice in End of Life Care. https://www.gov.uk/government/ uploads/system/uploads/attachment_data/file/536326/choice-response.pdf (last accessed 20th December 2016) 24
Long term conditions Vision For the population of Thames Valley with long term conditions (LTCs) to experience a person-centred approach in their care, through CCGs adopting Care and Support Planning (CSP), based on the House of Care framework. Organisational and supporting processes Engaged, Health and care informed professionals individuals committed to and carers partnership working Person-centred coordinated care Commissioning The House of Care framework For this to be truly effective, four aspects require equal attention which the SCN has been working to achieve in Why is it needed? different areas of long term condition management: There are around 15 million people in England with long 1. Patients are engaged and informed; term conditions; this section of the population has the greatest healthcare needs (50% of all GP appointments 2. Health professionals are committed to partnership and 70% of bed days), and 70% of acute and primary working; care budgets are spent on their treatment and care. This 3. Organisational and supporting processes; situation is not expected to change, as the number of 4. Commissioning. people with three or more long term conditions is set to increase to 2.9 million by 2018.1 By 2020, 80% of patients with a LTC will experience a Care & Support Planning The NHS will need to adjust to this new demand by consultation and 60% of patients will be working to introduce more joined up services, develop predictive rather than reactive services, and increase the confident in managing their own health. amount of emotional and psychological support and information for patients. 1 https://www.england.nhs.uk/ourwork/ltc-op-eolc/ltc-eolc/house-of-care/ (last accessed 14th December 2016) 25
The Year of Care introduced Care and Support Planning Care and support planning training in 2011.3 Since then, the Thames Valley SCN Care and Support Planning recognises that people who LTC programme, in conjunction with HEETV, has been live with long term conditions make the majority of the working to support CCGs to introduce CSP training to decisions that affect their lives themselves, spending GP practices and integrated teams across the area. In 14 relatively little time with a health and/or social care months, 350 community healthcare practitioners (including practitioner.2 CSP seeks to transform the brief contact practice nurses, family doctors, and community nurses) that does occur into a meaningful and useful discussion - have completed the course. The breakdown of training enabled by preparation of the patient and with a focus on completion is as follows: looking forward and planning. Chiltern 94% Over the course of an individual’s lifetime the nature of Aylesbury Vale 84% these conversations may well change as their health profile and their needs change. The aim is for CSP to become the Berkshire West 90% usual approach to normal care, understood as a continuous Bracknell & Ascot 100% process - not a one-off event while supporting continuity and planning to meet the changing needs of people. Berkshire East 86% Note: All areas listed now have coordinators in post Implementing Care and Support Planning Care and Support Planning – Training TVSCN has provided Training to enabling both the patient & 386 professionals across 136 the professional GP practices in the region Prepared Care and Support Planning Active Banbury 84% Practices – in CCG 2 year Operating Penetration A lesb bur ury ry Aylesbury Informed Oxford Plan and STP 94% Practices commitments High Hig Hii h across region + 90% Practices Wycombe Slough 100% Slo ou * 100% Bracknell & Ascot CCG penetration Newbury New ewb ew bur bur uryy Reading diinPractices* g rate – Slough & WAM CCGs in development Continuity Sustainability Normal Care TVSCN is working to deploy coordinators to support Adaptive Care implementation, evaluation and ownership at CCG level 2 Interpersonal Education in Person-centred Care for Long Term Conditions 3 www.yearofcare.co.uk (last accessed 19th December 2016) 26
The SCN has developed from scratch the LTC programme, 3. Organisational and supporting combining Care and Support Planning roll-out across Thames Valley, with expert advice and guidance informing, processes shaping and leading in each area to ensure sustainability The SCN provides expert input directly to GP practices and demonstration of impact and effectiveness. and teams post-training, and, in addition, mentoring support to local CCG care planning coordinators. The 1. Patients are engaged and informed majority of CCGs have local coordinators in place to support the implementation and evaluation of Care The LTC programme provided a review and guidance on and Support Planning. patient education; it describes the current situation for diabetes patient education and sets out the challenges of a new perspective to help create a shift for diabetes self- 4. Commissioning management education. It also provides current thinking The SCN is advising CCGs on sustainability and evaluation with regards to modelling and provision of a range of of CSP. It has assisted in the development of incentive education provision. schemes, provided guidance on evaluation and measures of success, and advised on local sustainability plans. 2. Health professionals are committed to partnership working The future for the network The SCN has delivered a programme of training in care The network will work to realise the potential of the and support planning for GP practices and integrated care principles of Care and Support Planning, by targeting the teams to improve collaboration between patients and adoption of CSP across all CCGs in Thames Valley and clinicians. The SCN has achieved the following: working towards allowing all patients with long term • Between December 2014 and December 2016, 22 conditions to have CSP consultations as part of their courses have been run, where each course includes an routine care. As well as benefitting patients, the network initial one day training programme, with a follow-up that wants to enable healthcare practitioners from all settings to lasts a day and a half. The courses have provided training ensure collaborative conversations are delivered as part of for 386 healthcare professionals and 136 GP practices; standard care. • This equates to over half of all practices having taken up the offer of training for some of their staff; • Four CCGs have over 90% of their practices completing training; • In terms of staff groups, this includes 133 GPs and 175 nurses who have received training. 27
Maternity network Vision Why is it needed? The SCN vision for maternity services across Thames The network is developing maternity services that are safer, Valley is the provision of excellent, evidence-based care more personalised, kinder, professional and more family for women which will effect a positive, life-changing friendly.1 Two important aspects of this are reducing the experience for women and their families. To do this, the number of stillbirths, and increasing access to perinatal network will bring together people who have influence in mental healthcare. their local area and their professional background who will The Better Births report set out a vision for better postnatal contribute to solving identified gaps in service provision and perinatal healthcare, to address historic underfunding and developing equitable and robust perinatal mental and provision in these two vital areas which have a health services across Thames Valley. significant impact on the life chances and wellbeing of women, babies, and their families.2 Reducing stillbirth rates are a key target for maternity services across the country; in November 2014, the Secretary of State for Health announced a new ambition to reduce the rate of stillbirths by 20% by 2020.3 1 Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp- content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016) 2 Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp- content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016) 3 https://www.england.nhs.uk/ourwork/futurenhs/mat-transformation/saving-babies/ (last accessed 15th December 2016) 28
Better access to perinatal mental health services There is a national drive for 30,000 additional women in England to be seen by perinatal mental health services. This equates to an increase of 1,338 women to be seen in the Thames Valley area. Area 2015 live 2016/2017 2017/2018 2018/2019 2019/2020 2020/2021 births England 664,399 500 2,000 8,000 20,000 30,000 TVSCN 29,638 22 89 357 892 1,338 Milton Keynes 3,882 3 12 47 117 175 Buckinghamshire 6,139 5 18 74 185 277 Oxfordshire 7,893 6 24 95 238 356 Berkshire West 6,029 5 18 73 181 272 Berkshire East 5,695 4 17 69 171 257 Targets for additional women to access perinatal mental health services by 2021, separated into CCG areas Source: ONS births for England local authorities, 2015 Improving stillbirth rates An audit into stillbirth in England found that half of all term, singleton, normally-formed antepartum stillbirths had at least one element of care that required improvement and that may have made a difference to the outcome. The network is looking to reduce stillbirth rates from 5.2 per 1,000 live births to 4.1 per 1,000 live births in the Thames Valley area.4 CCG 2014 stillbirths 2014 rate per 20% reduction of stillbirths 1,000 live births by 2020, per 1,000 births England 3,047 4.6 3.7 TVSCN 152 5.2 4.1 NHS Milton Keynes CCG 15 4.0 NHS Aylesbury Vale CCG 7 3.0 NHS Chiltern CCG 27 7.4 NHS Oxfordshire CCG 33 4.3 The network will work with partners to reduce the NHS South Reading CCG 13 6.9 variation across the geography NHS North & West Reading 10 8.3 to achieve this target. NHS Newbury & District CCG 6 4.6 NHS Wokingham CCG 13 7.2 NHS Bracknell & Ascot CCG 3 1.8 NHS Slough CCG 14 5.4 NHS Windsor, Ascot & Maidenhead CCG 11 6.8 Present stillbirth rates in Thames Valley, and target stillbirth rates for 2020 Based on 2014 ONS still births Establishing Local Maternity systems The SCN is bringing together commissioners, providers and partners in designing and delivering maternity care in line with “Better Births”. 4 Better Births: Improving Outcomes of Maternity Services in England. A Five Year Forward View for Maternity Care. https://www.england.nhs.uk/wp- content/uploads/2016/02/national-maternity-review-report.pdf (last accessed 16th December 2016) 29
Providing the care bundle Saving Babies’ Lives is a care bundle designed to support providers, commissioners and professionals to take action to reduce stillbirths. The SCN assessed each Trust in its jurisdiction to understand how much progress had been made in providing the elements of the care bundle: Buckinghamshire Frimley Health Milton Keynes Oxfordshire Royal Berkshire NHS Trust Foundation Trust Foundation Trust Foundation Trust Foundation Trust Element 1: Reducing smoking in pregnancy Element 2: Risk assessment and surveillance for fetal growth restriction Element 3: raising awareness of reduced fetal movement Element 4: Effective fetal monitoring during labor Progress of Trusts in implementing the four elements of the care bundle Key: Completed and ongoing Partially completed and action plan The care bundle delivers four elements of care that are recognised as evidence-based and/or best practice: • Reducing smoking in pregnancy; • Risk assessment and surveillance for fetal growth restriction; • Raising awareness of reduced fetal movement; • Effective fetal monitoring during labour. Delivering through the Perinatal Mental Health Network Taking a lead for the Thames Valley in Perinatal Mental Health Awareness & Additional Capacity aims of 2020 Training Secured funding to deliver regional Bolstered Regional Perinatal Mental Clinical Leadership Health programme (Nursing & Psychiatry) in 2017 Wide-reaching network During 2015/2016 – Waiting with members from Focus on Data & Audit to Times have improved service user, health deliver national professionals and objectives organisations Bi-annual events to share Based on Bucks & Oxon service - OHFT 2015 data reported mean wait 5 weeks, median wait 4 weeks. National Thought Leadership 2016 data reports mean wait 3 weeks, median wait 2 weeks to more than 250 attendees Source: Perinatal Data 2016 Thames Valley across Thames Valley - NHS Benchmarking Network 30
In January 2015, the SCN published the results of their aligns to the national agenda and to the draft perinatal audit of perinatal mental health services in Thames Valley. competency framework. It will continue to support further The report set four key recommendations: rounds of funding applications. 1. Develop training and specialisms in perinatal mental The collection of data and audit has been central to health across different services; the network. The Thames Valley has developed a self- 2. Commission perinatal mental health services in assessment tool to audit against NICE quality standards for accordance with NICE guidance; perinatal mental health, including perinatal IAPT (Improving 3. Establish a regional network of professional Access to Psychological Therapies), which is being stakeholders; developed across the South of England. 4. Improve data collection relating to perinatal mental health by all NHS providers.5 The future of the network In the last 18 months, the SCN has made significant The network has clear ideas about the next steps for progress in all these areas. maternity services. The Thames Valley SCN Regional Perinatal Mental Health Implementation of a regional maternity Network was established in June 2015, working to support the development of equitable access to specialist perinatal dashboard mental health services across Thames Valley. To provide accessible, high quality and up to date information about the quality and safety of perinatal There has been significant investment and development mental health services in Thames Valley. of services in the perinatal locality networks since 2015, ensuring that the region is working towards the national commitment of increased access to 30,000 women by A Thames Valley labour line 2020 across England. A 24/7 phoneline staffed by midwives to provide advice and support to women who think they are in labour. The regional network has been successful in bringing to the table a wide range of professionals and services Diabetes in pregnancy from each locality perinatal network and has supported Benchmarking the management of diabetes in pregnancy working together across Thames Valley with partner and using NICE guidelines, and subsequently directing the SCNs neighbouring organisations. focus on service development. It has hosted two conferences with national speakers delivered to over 250 individuals. The network has recently Perinatal education been successful in securing a bid for £100,000 for regional Developing and implementing a perinatal education training in perinatal mental health, and has developed a programme for specialist perinatal mental health training plan for 2017 to deliver this to specialist perinatal professionals across Thames Valley. leads and to the wider audience working with or likely to come into contact with women in the perinatal period. This 5 Thames Valley Children and Maternity SCN Perinatal Mental Health Report (March 2016). http://tvscn.nhs.uk/wp-content/uploads/2016/03/Final- Thames-Valley-Perinatal-Mental-Health-Network-Report-2016.pdf (last accessed 15th December 2016) 31
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