SOCEDS: SOLIDARITY-BASED APPROACHES FOR THE CREATION OF COMMON EUROPEAN DATA SPACES - DR PHOTINI VRIKKI - CHARLEMAGNE PRIZE ACADEMY
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SoCEDS: Solidarity-based approaches for the creation of Common European Data Spaces Dr Photini Vrikki FIRST MILESTONE
Introduction SoCEDS * The coronavirus pandemic has revealed the ever-increasing need for data ows within the EU and across sectors for economic and health recovery. Likewise, the European Strategy for Data, has outlined plans to develop an agile EU data economy, including the launch of Common European Data Spaces (CEDS). This rst draft paper looks at the links between CEDS and policy development to o er an understanding of how solidarity-based approaches can advance clear and trustworthy data governance mechanisms. The concept of ‘common data spaces’ has widely been lauded in the EU1 as a progressive alternative to traditional data exchange infrastructures, which have faced heavy criticism in the last decade for their oligopolistic, black-box algorithmic market, controlled by US- and China-based tech giants2. This project argues that current and future EU policy should go beyond legal frameworks, to include solidarity mechanisms in these newly proposed CEDS. Interrogating the social and cultural dimensions of CEDS contributes to a growing body of literature that seeks to re- politicise the collection, storing, processing, and use of data and promotes a transparent policy framework for Europe’s digital sovereignty.3 As the rst part of the project, this document provides a review of the work onto which this study will be based, by assessing and evaluating the solidarity approaches of ve options for data spaces: 1. Data as commons; 2. Bottom-up data trusts; 3. Charitable trusts; 4. Data as public good; and 5. Individual data ownership. This exploration identi es challenges and opportunities for the realisation of CEDS for the EU. The project supports the bene ts of open and shared approaches to data collection, processing, and analysis, proposed by the European Commission, while noting the low levels of sociocultural safeguards in the current digital policy frameworks, namely the Data Governance Act, the Digital Services Act, and the Digital Markets Act. It also highlights how CEDS as a practice, even in the framework of solidarity, if not infused with sociocultural mechanisms, may remain unduly in uenced by the harmful vestiges of marketisation and corporate interests. The study proposes and distinguishes ‘solidary data spaces’ as a speci c policy framework for the European Union and o ers recommendations for a more trustworthy and transparent future for data exchanges. 1 Data sharing in the EU – common European data spaces (new rules) , 2020 [Accessed December 2020] 2Broussard, Meredith. Arti cial unintelligence: How computers misunderstand the world. MIT Press, 2018. Perez, Caroline Criado. Invisible women: Exposing data bias in a world designed for men. Random House, 2019. Vallor, Shannon. Technology and the virtues: A philosophical guide to a future worth wanting. Oxford University Press, 2016. 3 Floridi, Luciano. "The ght for digital sovereignty: What it is, and why it matters, especially for the EU." Philosophy & Technology 33.3 (2020): 369-378. 2 ff fi fi fi ff fi fi fi fl fl fi fi
Table of Contents * SoCEDS 1. The Culture of Solidarity 4 1.1. EU Data Governance 7 1.2. Trust the Process? 9 1.3. A Hard Act to Follow 10 1.4. Solidary Governance 12 2. Common Data Spaces for a Digital Europe 13 2.1. Data as Commons 15 2.2. Data Trusts 17 2.2.1. Bottom-Up Data Trusts 18 2.2.2. Charitable Data Trusts 19 2.3. Data as Public Good 21 2.4. Individual Data Ownership 22 3. Solidary Common European Data Spaces 24 If I were to do it again from scratch, I would start with culture’. Jean Monnet 4 4 This statement is ascribed as a well-known statement by Jean Monnet across many of her European talks. 3
#1 The spectre of alienation is THE CULTURE haunting Europe. Fragmentations between state-members, hostility OF SOLIDARITY between populations, the impact of the COVID—19 crisis, the corrosion of common values, and social polarisation have created new, and expedited already 4
existing, politico-economic tensions and inequalities. I started this section with Jean Monnet’s alleged regret about the beginnings of the EU to stress the current importance of centring our shared cultural values instead of spotlighting the common market—which has arguably been our main concern since the beginnings of the EU. Cultural tensions in the union have been present for more than 20 years, with the President of the European Commission in 2004, José Manuel Durão Barroso, stating that “the EU has reached a stage of its history where its cultural dimension can no longer be ignored”.5 Undoubtedly, the austerity measures that resulted a few years later due to the 2007 economic crisis and our response to the refugee ows revealed even more how much our European culture has been in a state of disillusionment and disintegration. In the words of Pascal Gielen, our “lack of attention towards culture [...] is the main cause of today’s political and economic crises”.6 Right now, investing in culture is more or as important as investing in our health, environmental, and economic prosperity. 5Speech by José Manuel Barroso President of the European Commission “Europe and Culture” Berliner Konferenz für europäische Kulturpolitik, Berlin, 26 November 2004 [Accessed November 2020] 6 Gielen, Pascal. No culture, no Europe: on the foundation of politics. Valiz, 2015, pp.11-12. 5 fl
In the context of this project, I argue that along with the development of CEDS it is also imperative to cultivate and sustain a culture of solidarity for data before focusing on market interests. Solidarity functions as a key principle of European culture, with all the signatories of the Treaty on the European Union expressing their desire “to deepen the solidarity between their peoples while respecting their history, their culture and their traditions” (Preamble, recital 6).7 Solidarity is presented as the sum of EU Member States and their ‘peoples’, but the extent to which such European culture based on solidarity is also inclusive of citizens’ and Member States’ data is far from clear. If we want to shape a European data future that builds an open, trustworthy environment in which citizens are empowered in how they act and interact, and of the data they provide both online and o ine, we need to support a European way to digital transformation8 which enhances our values, our social bene t resonance, data literacy, and techno-cultural coherence. To do that we need to advocate for a cultural solidary paradigm that can aid us in creating a data blueprint that counters any challenges between di erent State Members, cultures, values, and their technology infrastructures. Currently, solidarity seems to be an afterthought not a primary responsibility for the evolution of these new data infrastructures. Yet, these new data infrastructures we will shape, will shape us in return. By deploying solidarity principles from the outset, we can guarantee that CEDS will be trustworthy and bene cial to all. Developing solidarity from the perspective of the citizens and not primarily of the EU market, will be crucial to the development of the next stages of CEDS. This will be particularly important for the ‘data altruism’ concept used in the Data Governance Act9 to describe “data that is made available without reward for purely non-commercial usage that bene ts communities or society at large” (Chapter IV & Article 2, 10). With the objective “to create the right conditions for individuals and companies to trust that when they share their data, it will be handled by trusted organisations based on EU values and principles”, solidarity becomes a requirement not just a proposal. Clearly ‘data altruism’ seems to be premised on inter-state collaboration within the EU, but we need genuine and practical solidarity towards State Member facing particular issues with digital infrastructure and data processing, including national policies and data literacy, if we want CEDS to be bene cial to the European society as a whole, with no exceptions. 7 Consolidated version on the Treaty on European Union’. (09-05-2008). Online PDF. 05-05-04-2013. (C115/28) [Accessed January 2021] 8 Shaping Europe’s digital future [Accessed November 2020] 9Regulation of the European Parliament and of the Council on European data governance (Data Governance Act) COM(2020) 767 nal 2020/0340(COD) [Accessed December 2020] 6 fi fi ff ffl fi fi fi
1.1. EU Data Governance In November 2020, the European Commission published their plans for a Data Governance Act (DGA)10 which will aim “to foster the availability of data for use by increasing trust in data intermediaries and by strengthening data-sharing mechanisms across the EU”. At its core, the SoCEDS * Act is highly intricate and puts forward several policy mechanisms for succeeding in establishing this anticipated European-wide progress through data. The shortcomings of the Act are mostly found at its outer layers. Its prime focus, as I mentioned in the previous section, is on data markets and commercial rights. By prioritising the economy, the DGA neglects to incorporate the cultural and social dimensions of these European-wide changes. By xating on the importance of the markets the Commission fails to engage with the growing numbers of people who oppose the concentration of power onto commerce and the rising disillusionment with digital solutions and technology determinism.11 In fact, mistrust in technology and public institutions has been ampli ed in the past decade precisely because of the ways in which technology has been consolidating power into ever fewer hands while public institutions turn the blind eye.12 Setting the market, and in extension the economy, at the centre of the Data Governance Act (DGA), the Commission sets itself susceptible to intensifying the Union’s economic fragmentations and to scrape even more the thin ice onto which State Members such as Greece, Poland, Hungary walk on when it comes to their relationship with the EU. Despite its obvious innovative approaches to data-sharing e.g., the re-use of sensitive public sector data, the Data Governance Act oundered in demonstrating how these developments will serve all State Members equally. Undoubtedly, the DGA is the groundwork of contemporary and much needed policy mechanisms for data exchange. It’s a negotiated, multi-stakeholder act of binding data governance and should be considered as a progressive move toward European and international digital frameworks. The Act can build collaborations between local, national, and digital actors and advance access to publicly held data, clarify the line of data ownership from service level to the market, and estimate liability types. It also proposes the ‘best interests of the rights holder’ responsibilities for institutions that act as brokers for public data, assigns consent for some digital rights, and o ers individuals the control of their data privacy and sharing for commercial purposes. These are some of the positive and innovation-led propositions that will bene t direct accountability parameters and allow for a steady and reliable market transformation for data. But beyond the analysis of these policies, which is not the focus of this project, we need to consider the social impact of this innovation. The wider population in the EU is increasingly distrusting digital platforms and data systems because of their monopolistic and black-box nature, not because they recognise the limited extent to which their commercial rights are carried out within these structures.13 Reading through the Data Governance Act, the Commission repeatedly calls for “data altruism” a practice which describes the way in which established organisations will engage with “data voluntarily made 10 Ibid. 11Goodwin, Ian, and Steve Spittle. “The European Union and the Information Society: Discourse, Power and Policy.” New Media & Society, vol. 4, no. 2, June 2002, pp. 225–249 12 Hicks, Mar. Programmed inequality: How Britain discarded women technologists and lost its edge in computing. MIT Press, 2017 1320th Annual Edelman Trust Barometer, Special Report: Trust in Technology [Accessed September 2020] 7 fi fi ff fi fl fi fi
available by individuals or companies for the common good” and which as I described earlier, asks individuals and businesses to share their data freely and with no reward. Highlighting the signi cance of data exchange, the Commission shows its commitment to realising the power and value of data. In this context, the Act also epitomises and puts in use previous data policy frameworks, such as the categorisation of ‘personal’ and ‘non-personal’ data, anonymisation as a privacy protection, and the use of consent forms. Many of these mechanisms have failed to get the trust of the public in the past e.g., the deployment of GDPR, yet the Act insists on implementing them in this new movement toward trustworthy continental data sharing. This new Act cannot mask issues that have been present in data governance before (e.g., inconsistencies in national and European legislation we faced with the deployment of GDPR), and which have previously forged alienating sentiments across EU members and their citizens. It is indeed cynical or even unrealistic to ask of State Members and their communities to incorporate in their already stretched, fragile, and very uniquely culturally speci c processes, data sharing processes that are not clearly bene cial to them. And here, we arrive at the three vulnerabilities of the conception of CEDS: 1. social bene ts resonance; 2. data literacy; and 3. techno-cultural coherence. For CEDS to result in social bene t resonance we need to ensure that all State Members receive the same degree of bene ts from data exchange. To reach equal data bene ts, however, we also need to advance data literacy to increase awareness of this scheme’s importance for both citizens and businesses. This is particularly the case with Member States that struggle with digital divides and lack knowledge, infrastructure or resources to even begin the processes of data sharing.14 Techno-cultural coherence then becomes crucial because we need to develop this new infrastructure through shared cultural dimensions across State Members, that will hopefully in turn lead us to trust this new data infrastructure. In the absence of cultural coherence, no common spaces will ever be achieved. Social bene ts and cultural coherence are often taken as granted in the European Union, as something that organically sources from the union. In e orts of this scale, however, we need to return back to the foundations and do the work that brings us socially and culturally together. As this project will argue, clarifying the conditions onto which these new data infrastructures of CEDS will be constructed onto, is critical to the success of Europe’s digital transformation. Explaining the relationships between the di erent stakeholders of CEDS and between EU citizens, businesses and CEDS will also advance participation, all of which are essential to the development of this ambitious European-wide spaces. 14 Selwyn, Neil. "Reconsidering political and popular understandings of the digital divide." New media & Society 6.3 (2004): 341-362. 8 fi fi fi ff fi fi fi fi ff fi
1.2. Trust the Process? The European Union has been fundamentally a geopolitical union. With its over 447 million people15, it is currently acting as a big consumer market for data and new technology. With the implementation of regulations such as the GDPR in 2018, which has indeed brought to SoCEDS * light several data breaches, the EU imposed to a certain degree its control on the ways in which data is collected, shared, and processed. To some extent this brought some protection while at the same time it has failed to regulate Big Tech’s behaviour beyond enforcing judgements and processing nes linked to data. Lessons learned from the implementation of the GDPR regulations vary from inconsistent national enforcement, the slow but steady deployment of data protection o cers, to a sti ing of journalism and an undermining of the work of civil society. In Hungary, Romania, and Slovakia, free press and investigative journalism have come under attack, while in Poland NGOs have been targeted after one provided searchable access to public data contained in the Polish National Court Register.16 In this light, indeed the Commission is a leader in the deployment of digital policies, digital rights, and the digital market but at the same time it is obvious that we are still at the edge of a policy precipice. CEDS will be built against the backdrop of policies and frameworks that have been not just problematic and ambiguous, but also not enforced. There is no obvious reason the EU lags behind in enforcing data regulations, but one of the most signi cant insights that appeared in the 2020 Digital Services Act (DSA) and the Digital Markets Act (DMA), comes down to the Big Tech company’s size. In these Acts, platforms are not seen as trustworthy regarding how they provide information, but they are instead considered adversarial. The plan is to audit them and have them accountable to their actions or inactions. China has also escalated its e orts to curb Jack Ma’s tech empire, ordering at the beginning of 2021, an investigation into allegations of “monopolistic practices” by Ma’s online retail giant, Alibaba, and demanded his nancial technology company Ant Group to scale back its operations.17 In the USA, the government’s focus is on managing the digital market through antitrust regulation, which mentions breaking companies apart,18 e.g. Facebook Messenger and WhatsApp, Nest and Google Home; all of which merged in two separate consolidated companies in recent years. These government actions have caused direct reactions by Big Tech, with Facebook and Alphabet Google agreeing in December 2020, to “cooperate and assist one another” if they ever faced an investigation into their online advertising practices.15 Chinese, USA, and European proposals seem to agree that the problem is ‘trust’, but there are major di erences in the ways in which they enforce the regulations they have put in place. 15 EUROSTAT. Population on 1st January by age, sex and type of projection [Accessed February 2021] 16AccessNow. Two years Under the EU GDPR: An Implementation Progress Report, State of Play, Analysis, and Recommendations May 2020 [Accessed May 2020] 17Davidson, Helen, The Guardian, China targets Alibaba with anti-monopoly investigation [Access December 2020] 18O’Neil, Cathy, Bloomberg, Breaking Up Facebook would be Fine [Access December 2020] 9 fi fi fi ff ff fi ffi fl
1.3. A Hard Act to Follow With the proposal of the DGA, DSA, and DMA, the European Commission has asserted their ambition to be at the forefront of digital regulation and digital market development, setting in motion not only national but also international mechanisms for similar regulations. The DGA SoCEDS * places contextual liability to data use by demanding local registration for data intermediaries, and importantly, by appointing duciary duties. These duciary duties propose that the EU will place trust, con dence, and reliance on local registrars to exercise discretion or expertise in acting on behalf of the EU. This law structure is unique in many European members’ legal contexts, and embryonic in the Commission itself, yet it can be used as the foundation for data exchange mechanisms and augment the e orts to nationalise and commercialise data exchange. Yet, the DGA prioritises data exchange over the provision of clear and transparent data rights for European citizens; establishing in this way trust through bureaucratic processes, which will not automatically add to the trustworthy and transparent structuring of that system. In extension, this will unlock a private market for enforcing the Act’s policies, but it comes short of giving the same signi cance to the protection of people’s rights in those same data exchanges that will be accommodated and the cultivation of shared feelings of solidarity and coherence through the European population. More importantly the DGA, does not meaningfully address or recognise the importance of cultural, social, or political instance that are not included in their de nition of data as “any digital representation of acts, facts or information and any compilation of the same, including in the form of sound, visual or audiovisual recording.” By focusing on the issue of ‘underutilising the data’ available to the EU, the Commission fails to grasp or mention the equal importance of the fair use of this data in the context of digital solidarity or equity between member states, accountability structures or even public participation in the proposed infrastructures. Alike GDPR, DGA misconstrues the importance of data exchange with the danger of the mishandling of these data management systems. The issue here is that plans for handling any con icts between data solidarity, data rights and commercialised data use are not mentioned or implied. For instance, if citizens are required to participate in CEDS in order to have access to other rights, this will automatically bring up or intensify inequalities and injustices that currently exist between populations, State Members, and techno-cultures. We can already see this happening in the ways in which the COVID—19 crisis is being handled, with discussions about digital vaccine passports and shared database across Europe.19 This performative approach to data governance and the permeating insistence of the sector on ‘bias’ and ‘ethics’ guidelines20 on the one hand has led to criticism from both sides of the sociopolitical spectrum; and on the other hand, has led to the realisation that these regulations can only be applied and eventually deployed to only a portion of the State Members’ infrastructures and data systems. Certainly, this is one of the 19 Illa con rma que habrá un registro de quienes rechacen la vacuna que se compartirá "con otros socios europeos” [Accessed December 2020] 20 Ethics guidelines for trustworthy AI, European Commission [Accessed June 2020] 10 fi fi fi fi fi fi ff fl fi
aims of DGA—to kick-start the development of these frameworks—but there is no transparency in regard to the investment needed to cover the costs of any issues that may arise nationally or continentally. Here it is essential to acknowledge the reasonable limitations of all policy frameworks, especially one that is working with unknown parameters. The DGA has created a world- leading basis onto which further sophisticated and technocratic legal and digital architectures can be founded upon as we move into a more digital decade. What is left to see is rst, how national institutions of each member state and their markets will respond to these policies and moves; and second, what kind of impact this will have on the rising mistrust on governments, data, and technology. 11 fi
1.4. Solidary Governance SoCEDS The DGA proposes that “Companies and data subjects should be able to trust that the re-use * of certain categories of protected data, which are held by the public sector, will take place in a manner that respects their rights and interests” (preamble, para. 14). This claim is inherently awed, as it assumes that all member states are adept in adjudicating the issues that may arise from a growing market dependent on data exchange. Unequivocally, the issue here is that each State Member has di erent interests and concerns that can often be con icting or competitive with each other. In these circumstances we need to consider whether the court system and laws are the appropriate way to establish these relationships. A solidarity approach that will elevate citizen participation and trust may be a more coherent and trusted approach than regulations and laws. In paragraph 15, where the conditions for future adequacy for third-party countries are put forward, The weight of the Act falls rst on the Commission states: “The existence of e ective legal remedies building a market infrastructure for data holders, public sector while access or securing digital bodies or data sharing providers in cohesion or a solidary culture the third country concerned is of between the members and EU particular importance in the context citizens comes as an afterthought of the transfer of non-personal data to that third country. Such safeguards should therefore include the availability of enforceable rights and of e ective legal remedies.” The authors have obviously thought of the expansion of this act into further countries without considering whether all EU state members are prepared or willing to be part of this new market. The weight of the Act falls rst on building a market infrastructure while access or securing digital cohesion or a solidary culture between the members and EU citizens comes as an afterthought. Ultimately, the vulnerability of the DGA can be summarised to its potential to collapse under the weight of balancing commercial interests with public resistance and distrust. From where the DGA stands now, solidarity, transparency, and fairness are of less importance. This can only embolden and sustain the already uneven and fragmented systems in the EU, which will be further enhanced by the impact of Brexit18 and struggles to adequately transfer data from Britain to the EU. 12 fl ff fi ff fi ff fl
#2 COMMON DATA SPACES FOR A DIGITAL EUROPE 13
Common Data Spaces can contribute to the digital progress of the EU. CEDS will be able to manage the ways in which data will be exchanged, how it can be accessed, and by whom. With the current legal frameworks proposed in the DGA, the aim is to empower data users, citizens and data institutions while holding entities such as stakeholders and intermediaries legally responsible for data exchanges. Data insights may allow for evidence-based decisions and policies to be developed across the continent and respond to health care emergencies, such as future pandemics, or to make Europe more environmentally friendly, and help our ageing population live more comfortably. Research across the spectrum in the EU, from health, to social life and public services, can bene t heavily by bigger and more diverse data. Advanced research can also be steered by this wider availability of data. CEDS can provide the means to combine and explore the wider value of our data, regardless if it is personal, corporate, or public data and provide a secure and safe storage space for processing this data. Here I explore the solidary conditions that can make their governance more transparent and trustworthy across Europe by interrogating the dimensions of current and conceptualised data spaces. As the previous sections have argued, in order to deploy data spaces, we need sound data strategies and solidary data governance. The obstacles hindering their realisation go beyond the legal parameters and bleed into the cultural and technical values and data literacy of European citizens. In the popular consciousness, ‘data sharing’ is usually construed as sharing one’s data with private companies, such as Google, Apple, Facebook, and as return gaining access to their digital services. However, the data exchanges envisioned by the European Commission for CEDS refer to spaces a ording the sharing of data that is considered closed, between speci c people/intermediaries/companies, but no digital service will be o ered as a return—at least not instantly. As a matter of fact, CEDS can eventually become a signi cant resource for sharing data between member states in the EU and beyond, but they rst have to create the right conditions for individuals and companies to trust that when they share, their data will be handled based on shared cultural values and technical principles that bene t everyone. This project hence also aims to inform this aspect of CEDS by exploring the di erent solidary approaches we can deploy in their governance to make them more appealing to citizens. Some of the challenges to build trust through solidarity—of which I have referred to at the start of this paper—are obvious e.g., the impact of COVID—19 and the cultural fragmentations in the union. Yet the opportunity to build these data bonds between Member States and their peoples is invaluable to the data future of Europe. In this section I explore solidary approaches to data spaces by interrogating: 1. Data as commons; 2. Bottom-up data trusts; 3. Charitable trusts; 4. Data as public good; and 5. Individual data ownership. In what follows I give an overview of these di erent approaches to data in an attempt to identify the strengths and weaknesses of current options and concepts and uncover any solidary traits that may bene t this European e ort. To kickstart this discussion, I begin from the ‘commons’ as a valued approach to solidary data governance. 14 ff fi fi fi ff fi ff fi ff fi ff
2.1. Data as Commons The concept of ‘data as commons’ relies entirely on work by Elinor Ostrom, who throughout her life has explored the ways that people organise themselves to manage common resources such as land and forests.21 Ostrom never talked about ‘data’ per se but I borrow SoCEDS * her work on collective forms of ownership to discuss the opportunities presented in exploring this option for CEDS. More speci cally, the sustainable design of governance that is crucial to commons’ survival and which require a collaboration between several actors, many of which may be competitors, is a good parallel to data exchange spaces.22 Keeping these forms of collaboration in a working order demands trust, a sense of community, and reciprocity.23 Hence, adapting her work, we can think of data as commons—and as a resource like groundwater basins—so as to move away of the concept of data as private property, or the property of big corporations and instead as a resource that can have collective ownership. Conceiving data as commons o ers us a way to imagine how citizens in small or large groups on local, national, or even European level, can govern their own data beyond the control of the state and market needs. The governance of these commons should be enveloped in Ostrom’s principles for governance for commons: 1. De ne clear group boundaries: Commons necessitate exclusion. This exclusion ensures that the bene ts sourcing from the participants’ contributions will only bene t them, and not those with no contribution.24 These clear boundaries between insiders and outsiders provides clear limits within which we can de ne the resource, who can and who can’t use it. When boundaries are established, what is also concurrently secured are clear rules for using and contributing to the commons. 2. Fit the governance rules of commons to local conditions and needs: Governance’s design is adjusted and formed on the local conditions of its participants, which should organically strengthen the secure and fair use of the resource. The resulted certainty on the use and governance of the resource can also introduce collective action when necessary, for the protection of the commons and beyond them.25 3. Guarantee that those a ected by the rules can participate in modifying them: Contributors to the commons should be able to participate in the rule-making and rule- modi cation processes, and the commons have to be constantly audited so as to ensure compliance with their rules and boundaries. 4. Develop a responsibility system for monitoring community members’ ‘behaviour’: Each member needs to make sure that the commons are used to everyone’s bene t and in just means. 21 Elinor Ostrom, Governing the Commons, Cambridge MA: Cambridge University Press, 1990. 22Frischmann, Brett M., Michael J. Madison, and Katherine Jo Strandburg, eds. Governing knowledge commons. Oxford University Press, 2014, p. 477. 23Ostrom, Elinor, and Charlotte Hess. "Private and common property rights." Encyclopedia of Law and Economics. Edward Elgar Publishing Limited, 2007, p.43. 24 Ostrom, 1990, p.91 25Ostrom, Elinor, and Michael Cox. "Moving beyond panaceas: a multi-tiered diagnostic approach for social-ecological analysis." Environmental Conservation (2010): 451-463. 15 fi fi fi fi ff ff fi fi fi
5. Use graduated sanctions for rule violators: Sanctions have to be graded from soft to more severe to ensure that unconscious violations are not equally sanctioned as intentional ones. 6. Con ict resolution should be mediated through a low-cost con ict resolution plan. The interpretation of the rules may be di erent for each member, therefore a judicial body (even if it is informal) can help in resolving con icts and avoid the elite taking over the control of the commons. 7. Ensure the rules of the commons are respected by outside authorities: For the commons to remain sustainable, outside authorities should respect and recognise their governance mechanisms. 8. Build responsibility for governance in multilevel tiers from the lowest level up to the entire interconnected resource: Complex common resources require governance mechanisms that are multi-levelled, e.g. on local, regional, and national, so as to successfully manage the multiple interconnected components of the resource.26 Obviously CEDS, have many di erences in their current governance structures with the notion of ‘data as commons’. First and foremost, CEDS have to exist nested in the web of States and markets, which are partly against the practices that make commons what they are—i.e. sharing, opening, trusting. This is usually due to what Garrett Hardin coined as ‘the tragedy of the commons’27, suggesting that collective property is doomed to fail, because it will inevitably be abused by users. Similarly, often the commons are seen and linked as the basis for communism.28 Ostrom’s concept of ‘the commons’ was not necessarily anti-State or anti- market, but she insisted that the more power people had to make decisions that impacted their lives, the better those decisions would be. Thinking then beyond Ostrom’s conceptualisation of commons, which demonstrate “how local property can be successfully managed by local commons without any regulation by central authorities or privatisation”29, we can make two solidary take-aways from ‘data as commons’ for the bene t of CEDS: 1. To deploy transparency in the processes of shared value creation between the di erent participants, and respect any competition and commercial interests between them; and 2. To recognise that CEDS will be embedded in already existing state, social and cultural structures with their own communities, rules, and complexities. These communities may not be data commons per se but CEDS may be impacting their governance and structures. European markets and states have an important role to play in realising common data spaces and the dichotomy between market/state is unhelpful for thinking about their governance. I now move to exploring ‘data trusts’ as data spaces that in the past decade have been popularised in the elds of technology and policy to describe the legal mechanisms that assign stewards or trustees to manage the data or data rights of their bene ciaries, i.e., individuals, governments, private and public companies. 26 Ostrom, 1990, p.101. 27 Hardin, Garrett. "The tragedy of the commons." Journal of Natural Resources Policy Research 1.3 (2009): 243-253. 28 Hardt, Michael. "The common in communism." Rethinking Marxism 22.3 (2010): 346-356. 29 Ostrom’s talk in 2009 upon receiving her Nobel price, Nobel.org. 16 fl fi ff ff fl fl fi fi ff
2.2. Data Trusts Similar to the ways in which we use the term ‘land trusts’, the use of the concept ‘data trusts’ in this section describes the means of maintaining and mediating how data is collected, handled, and used. A data trust is established when an individual or a group entrust their data * SoCEDS assets and/or data rights to a trustee. The trustee can be an individual or an institution (e.g., a university, a government body, or a private company) who hold the data and govern it to the bene t of the individual, the group or other bene ciaries, such as the wider society.30 Similar to how a lawyer has a duciary responsibility toward their clients, the trustee has a responsibility toward their bene ciaries. At the same time, it is prohibited for a trustee to pro t from the trust or have any con ict of interest that relates to the data or the rights of the data that is in their trusteeship. In their updated 2020 de nition, the Open Data Institute de nes ‘a data trust’ as an entity that “provides independent, duciary stewardship of data”.31 Earlier work by Edwards32, McDonald and Porcaro33 have helped de ne data trusts as negotiated spaces of data exchange in which data stewardship sets the legal conditions under which one can collect, maintain, share and more importantly, access data. The use of data trusts is often talked about as people’s opportunity to have a say in how their data is collected, accessed, and used by others. In practice, however, they are not just mechanisms that allow us to protect our data privacy, but also extend into promoting and accommodating the bene cial use of data across society. Data trusts are responsible to control who collects data, who can access the data, who can use the data and subsequently, the future of this data, their archiving processes and who can access and distribute data once it is collected. If an interested party given access to the data fails or refuses to comply with the terms and conditions of the trust, the trustee can revoke access to that party. By separating the bene ciary from the trustee, any decision-making is o -loaded from the bene ciary and is placed on the trust and concurrently empowers the bene ciary with more control over their data and their data rights. A data trust that merges data from multiple sources or bene ciaries, opens the door to a trustee’s power to mediate for the bene t of the collective, rather for the individual. Yet, it is my conviction that discussing data trusts in just legal terms, limits both the work we have ahead of us with CEDS and their possibilities for solidary governance mechanisms. Legal frameworks, such as work by Hildebrandt34, are undoubtedly important but they are beyond the focus of this project. Hence, this project moves from data trusts as law instruments (despite their absence from many legal European jurisdictions and adequate standardisation processes), to seeing data trusts as spaces that hold social responsibility and trustworthiness as a duty. This brings me to versions of data trusts that are more open and solidary, such as ‘bottom-up’ data trusts. 30Ruhaak, Anouk, RSA, Data Trusts: What are they and how do they work? [Accessed July 2020] 31 Data Trusts in 2020, ODI [Accessed March 2020] 32Edwards, Lilian. "Reconstructing consumer privacy protection on‐line: a modest proposal." International Review of Law, Computers & Technology 18.3 (2004): 313-344. 33McDonal, Sean and Porcaro, Keith, The Civic Trust [Accessed April 2018] 34 Hildebrandt, Mireille. "Law as Information in the Era of Data‐driven Agency." The Modern Law Review 79.1 (2016): 1-30. 17 fi fi fi fi ff fl fi fi fi fi fi fi fi fi fi fi fi
2.2.1. Bottom-up Data Trusts According to Sylvie Delacroix and Neil Lawrence,35 ‘bottom-up data trusts’ can return the power that sources from aggregated data to the individual “whereby data subjects choose to pool the rights they have over their personal data within the legal framework of the trust” SoCEDS * (p.240). In such a data ecosystem, multiple private and public funded trusts will be available to the individuals to choose and alternate between, based on their social or economic interests and needs. Delacroix and Lawrence suggest that a bottom-up designing of data trusts may “reverse the power imbalance that currently exists between individuals and the corporations that use their data for their bene t”36. This ‘shop around’ adaptability of data trusts can be sustained through four conditions: 1. The requirements for entry must be limited—this will encourage the creation of new trusts. 2. Every individual’s data must be secure. 3. An individual’s personal data must be portable between di erent computer systems. This will give the trustees power to exercise portability rights on the individual’s behalf, which would include the ability to share the trust’s data with other data trusts, as well as other public and private sector entities that conform with the policies of the trust. 4. An individual’s data must be erasable from any particular system. The idea behind bottom-up data trusts is to build an ecosystem with multiple data trusts, with each governed by di erent frameworks, that would empower the individual to choose the data governance that ts their own values and privacy concerns. The writers, however, recognise several limitations and challenges of such a data trust ecosystem that range from the level of data management required of individuals, as they assess their participation in di erent trusts suited to di erent purposes; and the viability of the market for the trusts, since the proposed model depends on the trusts attracting big numbers of individuals to establish negotiating power; to data portability rights and trustees’ ability to cover costs of any damages caused. These help us envision some of the challenges we may come across in the deployment of EDCS. Indeed, perhaps the biggest relevant challenge we may face in Europe is the urgency for public awareness campaigns for the bene ts of data exchange— while also clearly informing the public about the risks and challenges inherent in data sharing. Clearly, the need for data literacy is crucial to the implementation of EDCS if we want to encourage people to handover their data. 35 Delacroix, Sylvie, and Neil D. Lawrence. "Bottom-up data Trusts: disturbing the ‘one size ts all’ approach to data governance." International Data Privacy Law 9.4 (2019): 236-252. 36 Ibid., p.240. 18 ff ff fi ff fi fi ff fi
2.2.2. Charitable Data Trusts Winicko and Winicko formed the idea of the ‘charitable data trust’ for healthcare data with the scope to help health research advance through data structures that are more open and accessible.37 A charitable trust inclusive of biobanks and health data, would be formed by a * SoCEDS trust agreement under which the participants would “formally expresses a wish to transfer his or her property interest in the tissue to the trust”38. By donating their data to the trust, the donor automatically appoints the recipient as trustee of the data, who then gains legal duciary duties to keep or use the data for the bene t of the bene ciary. Winicko & Winicko suggest that in the case of a genetic biobanking the general public can act as the bene ciary of the charitable trust. Extending this to a wider charitable trust, society may be considered the bene ciary of the trust. In their conceptualisation, a charitable trust has the following characteristics: 1. Permission is necessary for the data to be considered part of the trust, but they intentionally do not mention this as an informed-consent process; informed consent would require going back to the participant every time the data was used for a di erent reason/research and that would limit the success of the trust. In their own words “Without knowing what research will be done, one can only speculate on the risks and bene ts. For this reason, it might be better in this context to talk about ‘permission’ for research uses of patient data”.39 2. A donors committee and a group or population committee has to be set up to ensure that the interests of the participants are directly taken into consideration in managing the collection. 3. An institutional review board (IRB) has to approve any follow up research/use of data. Hence, even if individuals give permission to the trust to use their data, it can only be used multiple times if the IRB approves it. This process can be skipped if the participants are regularly informed on where their data is being used. 4. Individuals have ‘an absolute right’ to withdraw anytime they want. Withdrawing permission of one’s data, prevents the charity form using the data in the future. 5. Any commercial arrangements that source from the data are on full disclosure and the participant’s con dential data has to be protected by encrypting all identifying information. Notably, a charitable trust can protect the rights of its participants by serving the interest of the bene ciary and ‘the general public’. By empowering the participants through the donors committee and a group/population committee, participants can have a direct impact on the governance of the charitable trust. At the same time, as a charity, the primary goal of the trust is the maximisation of the data use for the bene ciaries of the trust, not pro t, as is with private data trusts. Yet, similar to the ‘absolute right’ to withdraw your data from the trust is 37 Winicko , David E., and Richard N. Winicko . "The charitable trust as a model for genomic biobanks." (2003): 1180-1184. 38 Ibid. p.1180. 39 Ibid. p.1182. 19 fi fi ff ff fi fi ff fi ff fi fi fi fi ff ff fi ff
problematic. What if the trustee refuses someone’s request to withdraw their data because it goes against the interests of the bene ciaries—which may include the wider society? What comes rst? The society’s interests or the individual’s right to withdraw? And where do we draw the line? Additional issues can be observed in the encryption of data. Studies have shown that full anonymisation of data is impossible. In fact, Rocher et al.40 suggest that “even heavily sampled anonymised datasets are unlikely to satisfy the modern standards for anonymisation set forth by GDPR and seriously challenge the technical and legal adequacy of the de-identi cation release-and-forget model.” Admittedly, these are issues data trusts face across the governance spectrum and which CEDS may also need to tackle. In the context of charitable trusts then, CEDS can borrow participants’ empowerment governance mechanisms. Establishing a donors committee and a group or population committee, will involve citizens in the governance of the spaces and boost the public’s awareness and involvement with them. At the same time, what becomes apparent at the same time, is that the common European consent form the Commission will develop for data altruism to allow the collection of data across Member States, needs to also inform participants about the limitations and exibilities of CEDS. A simple consent form, despite the altruism clause, may not cover every aspect of data exchange and the rights of the individual. 40Rocher, Luc, Julien M. Hendrickx, and Yves-Alexandre De Montjoye. "Estimating the success of re-identi cations in incomplete datasets using generative models." Nature Communications 10.1 (2019): 1-9. 20 fi fi fi fl fi
2.3. Data as Public Good The concept of “data as a public good” has been discussed broadly in response to the massive deployment of data analytics by technology companies whose digital services we use every day and whose users range from a few millions (e.g., Twitter, Baidu) to billions of SoCEDS * users (e.g. Google, Facebook). Current work suggests that considering data as a public good is a twofold process: First, is to consider data as a good that can aid international organisations to advance social good and social impact. The second focuses on how data should be formally labelled as a public good, for its potential to crash health inequalities and poverty.41 However, Purtova42 points out that there is a distinction between considering knowledge as a public good and claiming digital data as equally public. Nonetheless the notion of data as a public good has already been appropriated by private companies and public institutions to describe the freedom of choice individuals may have to surrender their data. Strikingly, the World Economic Forum is already using the term ‘personal data ecosystem’ to describe the ways in which digital data depicts there is a distinction between the interaction between individuals and rms and considering knowledge as a how personal data can be analysed to produce commercial value.43 public good, and claiming digital data as equally public Discussing data as a public good is valuable for the assessment of who controls data and to ascertain who holds the power for data production and data outputs. Indeed, in the EU’s plans for CEDS is to make speci c corporate datasets available and that has the potential to redistribute some of the control to individuals, intermediaries, and organisations. But what can also happen in this case is individuals surrendering all their data in order to participate in the decision-making processes while corporations limiting the data they share while at the same time bene tting from the availability of data from individuals. Despite the value of considering data as a public good, power imbalances and corporate in uence in the decision-making processes have to be carefully evaluated so as to secure not just equal data control between individuals-intermediaries-corporations-EU, but also to ensure that the current institutional proposal for CEDS audits is to be handled by independent bodies. Current proposals in the DSA, for independent auditing of digital services and platforms does not go far enough. The solidary approach of seeing data as a public good, pushes us to consider the need to create a public sector audit regime so as to avoid the take-over of CEDS by private entities. 41Taylor, Linnet. "The ethics of big data as a public good: which public? Whose good?." Philosophical Transactions of the Royal Society A: Mathematical, Physical and Engineering Sciences 374.2083 (2016): 20160126. 42 Purtova, Nadezhda. "The illusion of personal data as no one's property." Law, Innovation and Technology 7.1 (2015): 83-111. 43World Economic Forum. 2014 Rethinking personal data: trust and context in user-centred data ecosystems. Geneva, Switzerland: World Economic Forum. [Accessed November 2015] 21 fi fi fi fl
2.4. Individual Data Ownership SoCEDS Privacy policies such as GRPR that have emerged in the past ve years have strived to hand individuals the right to decide how to share their data and how much of it. However, in order to exercise such rights, we need to be given the freedom to do so. Our dependence on * technology companies and social media have substantially diminished any notion of consent to our data being used by technology companies. Consent is a hollow signi er when the supposed freedom to choose which and how your data will be used by such companies is translated as the binary option of exclusion or inclusion in their platforms. The unspoken agreement between big tech and users is that in order to access “free” internet exists and the social service platforms they provide us with, we need to give up the data we generate to them. This is the delusion of the data-driven world, where the society and its communities are part of a feudal system of nancial gains that only bene ts technology companies. At the same time, in the EU the enforcement of these privacy policies is inadequate, as we have seen with the deployment of GDPR, relying primarily on complaints instead on proactive audits. If the EU does not knuckle down to the latent power imbalances between users and digital services, we will remain un t to protect or exercise our digital rights. This worry has led researchers and policy makers to jump-start debates on alternative models33 of data exchanges, data economic models, and data privacy. One of the debates focuses on the concept of “individual data ownership”44 or the concept of a “personal data market”.45 In Lanier’s conceptualisation of a humanistic information economy, participants gain “economic dignity” by being compensated based on their a personal data market would contributions to the web’s gigantic translate into a system in which the information assemblages, which are rich can a ord privacy, while the today referred to as ‘big data’. For example, if your supermarket shopping less fortunate will have to surrender data is statistically analysed to identify a their their data rights and privacy consumer’s need for a product, you should receive royalties for the use of your data in the happenstance of that shopper actually buying the product. In an economy supported by nano-payments users would be nancially supported through the di erent forms of data they produce, input, or surrender online. According to Srnicek, however, a personal data market would translate into a system in which the rich can a ord privacy, while the less fortunate will have to surrender their data rights and privacy. According to him, being paid individually for your data is a clear neoliberal strategy that is doomed to fail because of the inequalities and power structures it will perpetuate and produce. 44 Lanier, Jaron. Who owns the future?. Simon and Schuster, 2014. 45 Srnicek, Nick. Platform capitalism. John Wiley & Sons, 2017. 22 fi ff fi ff fi ff fi fi fi
In his book Who owns the future? Lanier put forward a type of a data economy that functions on the assumption that “information is people in disguise, and people ought to be paid for value they contribute that can be sent or stored on a digital network.” Following this principle, information outweighs the undoubtedly problematic approach to data as “the new oil”, i.e. an in nite resource to be exploited, and instead proposes an approach through which the data is indistinguishably connected to the people who produce or supply them. In this context, this form of economic transparency is consistent with personal privacy: assigning a value to personal data, automatically protects it too. Yet, ‘individual ownership’ indeed succumbs to the neoliberal notion of individualism. An economy of individuals in which we simply sell our online data—and therefore commercialising our online experiences—may have a completely negative impact on our freedoms and our privacy per se. The constant surveillance and tracking structures that such an approach would demand would create massive consequences that would render the governance of such a system, practically and more importantly socially, marketed. 23 fi
#3 SOLIDARY EUROPEAN COMMON DATA SPACES 24
CEDS will expect organisations to surrender some of the control they hold over their data, similar to how land trusts authorise trustees to control their assets. As this paper has discussed, currently data spaces around the world work in a number of ways, with some of them surrendering limited control on their assets or sharing other elements of stewarding, such as legal or technical settings. The Commission aims to create a single market for data, where data from public bodies, business, and citizens can be used safely and fairly for the common good. This initiative aims for common European data spaces to: 1. Make better use of publicly held data for research for the common good. 2. Support voluntary data sharing by individuals. 3. Set up structures to enable key organisations to share data. In this section, I took these three parameters set by the Commission as the approach to review and explore the lessons learned from spaces that consider data as commons; bottom- up data trusts; charitable trusts; data as public good; and individual data ownership to envision the limits, exibility and opportunities for more solidary CEDS. In summary the primary recommendations that have risen from the review are as follow: 1. These spaces need to account transparency and trust in the collection, management and use of data. 2. There is an urgency for public awareness campaigns related to the bene ts of data exchange; information campaigns informing the public about the risks and challenges inherent in data sharing; and data literacy needs across State Members. 3. The common European consent form the Commission will develop for data altruism, to allow the collection of data across Member States, needs to also inform participants about the limitations and exibilities of CEDS. This should also include any intricacies related to the withdrawal process and data anonymisation/ pseudonymisation. 4. The governance needs to be participatory in nature, i.e., engage public, private, and civic stakeholders. This can happen with a citizens’ committee, a group committee, or population committee. 5. A public sector audit regime for CEDS may ensure that they serve both the public and the data economy. The European Commission has expressed their intent to increasing access to data to boost the digital market and have indeed provided some assurances for social impact and to mitigate any harms that may arise from data exchanges. What the EU aims to do with common data spaces shares characteristics with the idea of data trusts, speci cally persuading small and big corporations to put their data in a trust that would be managed by a third-party trustee (an organisation, an institution, or a local agent). For example, an organisation34 such as TRUSTS35 (Trusted Secure Data Sharing Space), is a EU-funded programme that functions as a data trust. Currently, the large corporate in uence in the set- up of data trusts underlines the high interest of big tech in data exchange and sharing. Yet, large-scale, corporate-controlled data sharing does not often centre public interest, and as 25 fl fl fl fi fi
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