Scaling up an early childhood development programme through a national multisectoral approach to social protection: lessons from Chile Crece Contigo
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MAKING MULTISECTORAL COLLABORATION WORK Scaling up an early childhood development BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. programme through a national multisectoral approach to social protection: lessons from Chile Crece Contigo Helia Molina Milman and colleagues describe how intersectoral collaboration between health, social protection, and education sectors enabled Chile Grows with You (Chile Crece Contigo) to help all children reach their full developmental potential A n estimated 250 million children Chile, a high income country with a made child development a priority for her aged under 5 (about 43%) in low population of 17.6 million, has made government in 2006.11 and middle income countries are substantial progress in reducing infant, The resulting initiative, Chile Grows at risk of not reaching their devel- child, and maternal mortality in the past with You (Chile Crece Contigo, ChCC), is opmental potential. 1 Poverty, 40 years through considerable investments a comprehensive protection system for undernutrition, lack of effective medical in public health, the development of a children from the prenatal period to 4 care, and adverse childhood experiences highly functional health system, and years, taking advantage of every encounter can all have long term effects on brain various social policies.2-5 However, these between children and health services and development and cognition. Many of these overall improvements mask high levels of providing coordinated services across adverse consequences can be avoided by inequality linked to socioeconomic status different public sectors.12 interventions to prevent or manage devel- and education. 6 7 The second national Although existing evidence identifies opmental problems at an early age.1 quality of life survey in 2005 found that interventions that can improve early 30% of Chilean children under 5 did childhood development, much less KEY MESSAGES not reach their expected development is known about how to translate this milestones, with the poorest quintile knowledge into sustainable large scale • C hile Grows with You (Chile Crece at highest risk of developmental delay programmes requiring collaboration and Contigo, ChCC) introduced a new (box 1). 9 Drawing on these findings coordination across sectors.13 We aimed model of practice and fostered emer- and recognising the increasing global to identify the factors that facilitated a gent behaviour in child develop- evidence of the importance of childhood national scale-up of ChCC, 10 years after ment through political will, evidence development to economic and social implementation began. Evaluation was informed advocacy, consensus based progress, Michelle Bachelet, a paediatrician led and coordinated by a working group policy development, and use of exist- and the first woman president of Chile, with representation from the Ministry of ing functional systems • Health, social, and education teams Box 1: Tracking early childhood development in Chile—the importance of equity coordinated by the municipality are responsible for monitoring the devel- • National quality of life survey assesses early childhood development using standard opment of children and coordinating measures on a sample of mothers and children aged 7 to 59 months the provision of services targeted to • A validated development assessment tool is used to measure cognitive, motor, language, each child and their family social, and emotional progress compared with expected milestones for the child’s age8 • Formation of a non-sectoral coordi- • Chile uses the terms developmental lag and delay to describe the degree of developmental nating body—the Ministry of Social risk: Development—improved manage- •Developmental lag is defined as children who achieve a normal overall developmental ment of social networks and promo- test score based on expected milestones for their age but are behind in a developmental tion of social development policies, sub-area while direct transfer funding agree- •Developmental delay is defined as children who do not achieve a normal overall ments promoted local accountability developmental test score for their age and are therefore behind expected developmental and quality milestones in more than one area (reflecting a more serious developmental gap) • Institutionalisation of ChCC by Law • In 2006, 16.4% of all children under 5 had a developmental lag and 13.5% had a 20 379 in 2009, guaranteed consist- developmental delay, with a total of 30% having either a lag or a delay. Children in the poorest ent and increasing budget allocations, quintile were 12.8% more likely to have a developmental lag or delay. Other disparities were systematic collection and use of data found by sex and area of residence9 for programme management, and • Longitudinal studies show that children from lower income families have poorer development coordination of health, education, of cognitive skills than those from wealthier groups, a disparity which emerges early in life and social services and continues after the age of 610 the bmj | BMJ 2018;363:k4513 | doi: 10.1136/bmj.k4513 1
MAKING MULTISECTORAL COLLABORATION WORK Social Development and the University Box 2: Timeline of programme and policy inputs for the introduction and scale-up of ChCC of Santiago, Chile, using a modified BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. multistakeholder dialogue approach 2005-06 (supplementary file 1 on bmj.com). Our • Pre-investment studies primary objective was to summarise the • Presidential Advisory Council for the Reform of Child Policies formed progress towards implementation of • Recommendations for early childhood development programme developed after ChCC, investigating how cross sectoral consultations collaboration and coordination were • Creation of Chile Grows with You (ChCC) managed to provide integrated child 2007-08 development care on a national scale. • ChCC implemented in 159 municipalities • ChCC extended to all communes in 345 municipalities ChCC: policy development • Development of training and communication materials begins ChCC aims to help all children reach their full potential for development, regardless 2009-10 of their socioeconomic status. It seeks to • Law 20 379 institutionalising ChCC for the protection of children is approved, with a support children and families through- designated budget line out early development, from conception • Implementation of the newborn support programme parental skills workshops, Nobody is to entry into preschool at age 4, through Perfect universal and targeted support services.14 • Implementation and refinement of the ChCC electronic database and tracking system The programme is based on rights and sex 2011-13 equity approaches, building on the scien- • New postnatal parental leave (up to 6 months) tific evidence regarding the importance of • Workshops for promotion of motor and language development started the first years of life, including gestation, 2014-17 for comprehensive human development. • Expansion of ChCC to children up to age 9 with the Integrated Learning Support Programme It also recognises that inequities between • Pilot of the Children’s Mental Health Programme the poorest and wealthiest quintiles of chil- dren influence development considerably and need to be tackled to improve develop- Law 20 379 was enacted, institutionalising and education through resource transfer mental outcomes.10 15 ChCC and providing a permanent line agreements, and to municipalities through In 2006, President Bachelet established for it in the national public budget. 16 direct transfer agreements. Ministries the Presidential Advisory Council for Child Development of the newborn support and implement services as part of the ChCC Policy Reform. The council consisted of parenting skills programmes began in portfolio through existing networks and external experts from different fields and 2008, with full implementation in 2009. systems. Direct transfer agreements with holding different political views. Experts The development, testing, and introduction municipalities support activities such as reviewed international evidence and local of the electronic monitoring database hiring and training staff and providing data11 and conducted 46 hearings with began in 2009 and 2010 (box 2). supplies for services. Transfer agreements national and international experts in the also specify technical standards that field, civil society, multilateral and bilateral Structure, management, and financing must be met by institutions, which make organisations, academic institutions, and The ministries of health, education, and fund transfer agreements an important other relevant organisations, both public social development are responsible for mechanism for managing the quality of and private. Members of the council held hearings in the 13 regional capitals with administration and management of ChCC services. local organisations and individuals to (box 3). The Ministry of Social Develop- Institutions receiving funds are required discuss child health, education, and ment is responsible for coordinating and to report monthly expenditures and to development. Issues discussed included managing the system at national, regional, specify how resources were allocated resources needed for childbirth, improving and communal levels; it is represented in within the framework of the agreements housing and social services, access to each region through the regional secretar- signed. Hence a system of continuous education, and services for indigenous ies of social development. Coordination accountability and feedback is established, groups. Over 7000 comments were solicited takes place across ministries and services linked with funding availability. Use of from children, using a website which at the same level (horizontal coordination) the electronic ChCC database allows the encouraged expression of opinions about and across different levels of government progress of children along the continuum how to improve community resources from national to commune level (vertical of care to be tracked using key indicators; for learning and development, such coordination). problem areas can then be identified as the availability of green space and ChCC is financed entirely by the public and managed (see the monitoring and educational and health services. Its final sector, with agreements governing the evaluation section below). Routine national recommendations were reviewed by an transfer of funds to sectoral ministries, and regional supervision to municipalities interagency technical team in June 2006 local governments (municipalities), and allows feedback in both directions. and developed into ChCC.11 private stakeholders. A ChCC budget Strengths can be identified and built on; C h C C w a s i m p l e m e n te d i n 1 5 9 line was established for the Ministry of weaknesses can be identified and managed municipalities in Chile in 2007; the next Social Development in the budget law collaboratively. year it was extended to the remaining of the Chilean public sector. Resources The basic communal networks of ChCC, 186 municipalities. In September 2009, are allocated to the ministries of health consisting of health and education teams 2 doi: 10.1136/bmj.k4513 | BMJ 2018;363:k4513 | the bmj
MAKING MULTISECTORAL COLLABORATION WORK Box 3: Ensuring that ChCC reaches children at highest risk in Chile: expanding coverage of ChCC was 1 987 755, with the number of health, education, and social services children under developmental observation BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. in the public health system reaching 646 Guaranteed healthcare services for all 692 in 2017.28 • The public health system is used by around 80% of the population and is free for lower By 2017, 94% of women registered in income groups. Services are provided by the National Health Service System (SNSS) through the public system received the newborn a national network of hospitals and primary care centres linked with family health community support package at birth and 94% received centres and rural health posts, based on a family and community health plan17 postnatal counselling, with significant Free education increases in the number of comprehensive • Early education from 0 to 4 years is financed by both public and private bodies. ChCC home visits for vulnerable pregnant women guarantees by law that children from the lowest two wealth quintiles can access education and children; improvements in prenatal, free of charge, beginning with nursery care. At age 5 years, children attend kindergarten, the delivery, and postnatal practices; and first mandatory educational level, and have free access to public schools. increasing rates of preschool education Social protection attendance (table 1). 29 30 In 2017, all • The social household registry is used to assign vulnerability ratings to households and so registered children diagnosed with a deficit determine whether they qualify for benefits under the social protection system. By July 2017, in psychomotor development were referred the registry had ratings data of about 73% of the national population18 to stimulation rooms, with 75% of those • The social protection system includes psychosocial support for extremely poor families completing treatment discharged without through the Security and Opportunities programme, preferential access to existing social deficits.28 programmes, and guaranteed access to subsidies or cash transfers provided by the state.19 The targeted ChCC programme is ChCC is part of the social protection system, therefore allowing all those in need to receive provided for caregivers, families, and benefits children entering the public health system, representing about 80% of the population. and coordinated by the municipality, about the child’s development, activate the The remaining 20% of the population are responsible for routine provision of necessary services, and make intersectoral obtains health services from private preventive and curative services. Expanded referrals. The second major component providers through private insurance or networks include stakeholders from other consists of periodic evaluations to assess occupational coverage. Other mechanisms municipal departments or local services the effectiveness of programme services are in place to ensure that those in lower that target children and their families. or activities. To date, more than 30 stud- income groups have access to care without Communal networks are therefore ies have been undertaken on ChCC, with high cost barriers to care (fig 1, box 3).20 21 responsible for coordinating cross sectoral different methodologies and approaches, The core of the ChCC targeted approach is services based on local resources available, including both qualitative and quantita- the Biopsychosocial Development Support geography, and any cultural factors needed tive user satisfaction, impact, and process Programme, which includes health checks to ensure services meet the needs of studies.6 26 during pregnancy, care during labour and children and families. birth, child health checks, screening for Summary of progress and timely treatment of developmental Implementation Between 2007 and 2017, annual budget- delays, care for hospitalised children, and ChCC provides a public education pro- ary allocations for ChCC increased progres- child mental health using standardised gramme on early child development for all sively, rising from $7.8m in 2007 to $13.9m tools (fig 2).22 For example, evidence based families, caregivers, and providers using in 2008, and reaching $81m in 2017.27 interventions at birth include provision of a a website, social media platforms, a radio During this period, the number of pregnant birth companion of choice, immediate skin- show, and print material (fig 1). women admitted to prenatal care under to-skin contact between mother and baby, Monitoring, accountability, and learning Regions where children and families live Programme support for administration and management of ChCC implementation: From the outset, the coordinating ministry • Initiatives for Children fund • Municipal strengthening programme developed a monitoring and evaluation plan for ChCC with two main components. All children in Chile • Education programme: to inform, educate and raise public awareness about child care, The first is an electronic database of all respectful parenting and early child development. Resources include website, radio series (Growing Together), social media networks, stimulation materials, DVDs, pregnant women and all children enter- pamphlets, and a free child health telephone hotline ing the health system. This allows track- Children in public health system (81%) ing of developmental assessments, core • Biopsychosocial Development Support Programme: development screening, management and follow-up delivered through routine health system contacts during health interventions received, and progress pregnancy, childbirth, wellbeing and health child check-ups. Core interventions included in facility services benefits list across sectors. Clinic health workers enter • Newborn support programme: supports for hospitalised newborns • Child mental health support programme data directly on to the database at each Vulnerable children (60%) consultation. Data are managed centrally • Home visits by health teams by the Ministry of Social Development. Key • Comprehensive care for children with delays through interventions to support child development programme performance indicators are used to track • Preferential access for families and children to public and social protection programmes completeness of reporting and outcomes • Free nursery and day care centres • Family allowance for children classified with developmen- • Technical aids for children with disabilities tal delays. This system is used by staff in Children in public schools (36%) health, education, and social protection • Comprehensive learning support programme sectors to access and update information Fig 1 | Services provided by ChCC. Adapted from the Ministry of Social Development, Chile14 the bmj | BMJ 2018;363:k4513 | doi: 10.1136/bmj.k4513 3
MAKING MULTISECTORAL COLLABORATION WORK Pregnancy Birth 0 to 4 years of age BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. 1 2 3 4 5 Strengthening Personalised Developmental Strengthening child’s Care for children prenatal care in care of hospitalised overall in vulnerable development birth process children development situations Primary healthcare Hospitals Primary healthcare • Strengthening • Personalised birth care • Comprehensive • Strengthening of • Strengthening prenatal care newborn care children’s health interventions for children • Comprehensive checks for overall in vulnerable situations, • Development of health care in puerperium • Comprehensive development or with deficits in plan with family approach care for hospitalised development children • Educative interventions • Education for pregnant supporting upbringing woman and her partner or companion Fig 2 | Biopsychosocial support programme: services offered across the life cycle by ChCC Ministry of Social Development, Chile14 and early and exclusive breastfeeding— for vulnerability to be identified at any delay in older children. Evaluations of all associated with improved outcomes contact with health, education, and social the biopsychosocial programme and the for both mother and baby.23 The ChCC services and referred across sectors. For Nobody is Perfect parenting education programme updated facility policies, example, the health sector may identify programme have shown them to be effective changed work environments, and developmental delays requiring home at improving several measures of child supported staff training and supervision visits; preschool nurseries may identify development and parenting practice. 32 33 to move towards consistent adoption of developmental problems requiring Services targeting children with key practices. Screening for developmental screening or a housing problem related developmental delays have been shown delay is done using a national test applied to poverty that requires support by the to be cost effective.34 Of the beneficiaries, at each health check. 22 Standardised municipality. 73% describe ChCC as being fundamental screening also includes assessing Between 2006 and 2016/17, the to their personal experience of pregnancy maternal and family risk factors, such as proportion of children under 5 with and parenting, suggesting high levels of low education, substance misuse, and developmental delay declined nationally satisfaction.35 depression. Targeted services are provided from 14% to 10%. Considerable variation Persistent developmental delays in for children with developmental delays, was noted between age categories, with younger age groups noted in the most recent including stimulation rooms, home visits, the most dramatic falls in developmental population based survey raised questions playgroups, and other services (box 4). delay noted in children aged 2 (from 11.6% about the coverage of interventions Nobody is Perfect is a group education to 6.2%) and aged 3 (from 25.1% to 11.4%) delivered around delivery and very early in workshop for parents, mothers, and (fig 3).31 In contrast, increasing proportions life, especially for high risk groups. A review caregivers with children aged 0 to 5.25 It of children aged 7-11 months and 12-23 of these data by wealth quintile and for other promotes positive parenting skills, mutual months were assessed with developmental higher risk categories is now required to support by participants, prevention delay. Data are not yet available by wealth determine whether these groups are being of child abuse and maltreatment, and quintile. These results are consistent with disproportionately missed by the system. In co-responsibility in parenting using early intervention reducing developmental addition, the quality of early developmental hands-on practice. Training of primary care staff for all screening and programme Box 4: Services provided for children assessed with psychomotor, cognitive, social, or components of ChCC is done by national communication delay and municipal facilitators using materials and job aids based on national standards. • Primary services offered: stimulation rooms, home visiting, and a mobile stimulation Additional services are provided for service. Stimulation rooms can operate at health centres or community based spaces. One families with fewer resources or at greater municipality can have one or more of each of the service modalities, depending on demand. risk: these include financial support, • Average duration of initial treatment: the average number of initial sessions is 6 with an free nursery and preschool places, and average duration of 45 minutes. At the end of the initial sessions, further treatment may be preferential access to public programmes. recommended or a referral made for further assessment and management Vulnerable families have access to free infant • Staffing: most of the staff working with children are nursery educators or teachers, phono or toddler care for children under 2, and audiologists, occupational therapists, kinesiologists, or other professionals with formal preschool places for children aged between 2 qualifications in child development and 3. Such families represent around 60% of • Technical guidelines: guidelines for staff teams providing services to children been the population; vulnerability criteria include developed and are used nationally for staff orientation and training24 teen mothers and those with postpartum • Equipment and materials: materials include a wall mirror, rubber mats, tulle or coloured depression, substance misuse, lack of family gauze handkerchief mobiles, tunnels, balls of different sizes and textures, recorded music, support, and low levels of education. books for children under 5, didactic toys with stimulation objectives (such as wooden blocks, The ChCC network should allow rattles, musical instruments, dolls, food, animals), tables suitable for children, access ramps, children and families with risk factors and other relevant materials tailored to the culture or targeted area of delay 4 doi: 10.1136/bmj.k4513 | BMJ 2018;363:k4513 | the bmj
MAKING MULTISECTORAL COLLABORATION WORK Table 1 | Key ChCC country indicators, 2007-18* BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. Indicator 2006-10 2011-14 2015-18 Total public expenditure—ChCC ($m, 2017) 7.809 (2007) 72.715 (2012) 80.989 (2017) Prenatal care Home visits: pregnant women with psychosocial risk (total number) 13 310 (2007) 88 103 (2012) 72 547 (2017) Prenatal care with spouse, family member, or significant other (% of prenatal visits) 18 (2008) 30 (2014) 34 (2017) Delivery and early postpartum care Birth companion (% deliveries) — 59 (2012) 67 (2017) Skin-to-skin contact for at least 30 minutes (% deliveries) — 52 (2010) 76 (2017) Exclusive breastfeeding for 6 months (% infants
MAKING MULTISECTORAL COLLABORATION WORK Table 2 | Current strategies and emerging challenges for ChCC BMJ: first published as 10.1136/bmj.k4513 on 7 December 2018. Downloaded from http://www.bmj.com/ on 17 March 2021 by guest. Protected by copyright. Aim Current strategies under ChCC Emerging challenges Improving routine systems to support • Use of existing public health system provides a gateway to • Harmonise registration and monitoring system of ChCC intersectoral services services with other government data systems to allow data sharing • Multisectoral coverage by the social protection system • Strengthen efficiency and timeliness of fund transfers for • Management by the Ministry of Social Development and fund local activities, hiring staff, and meeting goals transfer agreements for quality and accountability • Close gaps in the social protection system to ensure • Integrated electronic monitoring and evaluation system families receive housing, employment, mental health, or substance misuse treatment when required Adapting to evolving problems • Routine monitoring of biological and psychosocial risks of the Recognise and adapt the developmental approach to demo- family and child graphic and social changes including: • Early intervention through the health system based on identified • Child mental health needs • Children with disabilities • Intersectoral links to foster appropriate care based on needs • Indigenous people • Links with social protection services to ensure wider social • Obese and overweight children problems, such as employment and housing, are tackled • Children and families of new immigrants • Children raised in lesbian, gay, bisexual, and transgender families and transgender children Improving parenting skills • Nobody is Perfect parental education training offered to all • Violence and maltreatment of children is believed to be mothers and families has been shown to improve general parenting widespread in Chile; more data are needed to allow better skills management • Better integrate interventions to promote caring and sensi- tive care across sectors Reaching core populations better • Access to care and education through routine prenatal, delivery, • Improve access to services (eg, by changing locations and and postnatal contacts opening times) • Home visits to families and children identified as high risk, using • Better use of social media for follow-up and reinforcement intersectoral links of skills or education • Many materials and web based links used for communication and • Develop mechanisms to hear children’s views to improve education services and communication Expanding the target population • ChCC is focused on the prenatal period and on children aged 0-4 • Local movement to expand ChCC to include children aged years, the period of highest risk for development 5-9 through the education sector • Development of a formal policy promoting the rights of all children from birth to 18 years is under review allocations guaranteed by law (table 1); data sharing. Some high risk groups do structure allows continuous feedback at effective coordination both at national not always receive social services such as local level to tackle gaps and problems. level by the Ministry of Social Develop- housing, employment assistance, or men- ChCC instituted a phased transition to a ment and at local level by motivated tal health services when required, and gaps new model of practice and fostered emer- health and education teams with experi- need to be closed. Access to public services gent behaviour in this area through strong ence in implementing maternal and child can be improved in some areas by changing political will, evidence informed advocacy, health programmes, who have up-skilled the location and opening times of clinics consensus based policy development, and to gain further developmental skills and and offices and by better promotion of care use of existing functional systems. Inter- competencies; collection and use of data using social media platforms. Finally, new connectedness within this network allowed for programme management and intersec- and emerging problems and demographic progressive cultural change, which placed toral coordination using the programme shifts in the country will require ChCC to value on the principles of equity, coordi- monitoring system; regular evaluation of adapt the range and type of services pro- nation, and recognition that development programme components and use of data vided. These include management of child- needed attention. All of these features con- for improving services; and increasing hood mental health problems, disabilities, tributed to better uptake and effectiveness. focus on developing and implementing and obesity, and the problems of new immi- quality standards, which are used for both grants and indigenous populations. In the We thank the key informants who answered in-depth questions about child development programming, tracking progress and providing incentives. longer term there is a movement to expand participants in the case study expert review meeting, Quality standards led to the creation of a ChCC services to older children aged 5-9. and Jeanet Leguas and Vanesa Hernández of ChCC benefits list for the biopsychosocial support (Ministry of Social Development) for their support in collating key informant responses to questionnaires. programme implemented by the Ministry Conclusions of Health. ChCC has features of a complex adaptive Contributors and sources:HM conceptualised the system in which positive and negative case study. CC, AT, and PV conducted field interviews and collected data and reports of the programme. Limitations feedback loops have a central role in the CC, AT, and PV conducted the data synthesis. HM, JM, ChCC must evolve in line with Chile’s development and implementation of the CC, AT, and PV drafted the manuscript. All authors changing health context and adapt to oper- programme.36 Features include communal reviewed and commented on the manuscript before finalisation. HM is the guarantor. ational challenges to improve its efficiency networks with multiple formal and infor- and effectiveness. Several challenges have mal connections between sectors to foster Competing interests: The authors have read and been identified for the next phase of imple- coordination of services and adaptation understood BMJ policy on declaration of interests and declare: AT was the national coordinator for ChCC mentation (table 2). ChCC systems need to local needs. Local budgetary authority during the period the case study was conducted; strengthening in some areas, including allows resources to be allocated in accord- HM, CC, and PV have previously worked for the ChCC improving the efficiency and timeliness of ance with local priorities. Feedback loops programme at national level. WHO Partnership for Maternal, Newborn and Child Health provided support fund transfers to municipalities and better are used in the research and evaluation for the work for this article. The views expressed are integration of the monitoring system with system to monitor and improve opera- those of the authors and do not necessarily represent other government data systems to allow tions. The intersectoral and participatory the views, decisions, or policies of WHO. 6 doi: 10.1136/bmj.k4513 | BMJ 2018;363:k4513 | the bmj
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