Returning to fitness after a heart attack - A patient's guide
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A patient’s guide Returning to fitness after a heart attack A patient’s guide 1
A patient’s guide Returning to fitness after a heart attack Please remember that in an The first few days and weeks emergency you should ring following your discharge from 999. Papworth Hospital can be confusing and worrying for you Don’t forget to drop your and your family. This leaflet will discharge letter into your GP help you to understand what surgery straight away so that has happened to your heart. they are informed of your It gives you an idea of what to recent illness. expect over the next few weeks and also helps you to think If you feel unwell, follow the about your recovery and how advice on page 6 under the to get the best from life after section ‘What happens if you your heart attack (myocardial get more chest pain after going infarction) and the stent home?’ procedure. If you still feel unwell, call an You may still have some ambulance. If you need to visit questions and concerns after your GP or go to your local you have read this leaflet. hospital, please remember to Papworth Hospital has an take with you the complete advice line, which you may discharge pack that you were telephone between 9.00am and given when you left Papworth 4.30pm Monday to Friday. Hospital. If we are unable to answer You should make an personally, leave your details appointment to see your GP on an answer machine and we in the first week following will contact you as soon as we your discharge from Papworth can. The advice line number is Hospital, in order check your 01480 364468. progress and review your medicines. For advice at other times, please ring NHS Direct on 111. 1
A patient’s guide Cardiac rehabilitation The rehabilitation staff will Whilst you were in hospital help you to continue with your you will have received some recovery. They will help you information about cardiac to identify any relevant risk rehabilitation. Your details factors for heart disease, to will have been passed on to a enable you to adopt a healthy specialist cardiac rehabilitation lifestyle and to get the most team who will contact you in out of your procedure. You can the next few days after you follow a programme that is have gone home. suitable for your own level of ability. Some people choose to go to a local cardiac rehabilitation If you have any additional programme and others prefer queries please telephone to return to Papworth Hospital. the Rehabilitation Team for On the inside back page you information and advice (see will find the contact details page16). for the cardiac rehabilitation teams. You will be given some What is coronary artery information about the choices disease? that are available to you. The heart is a muscular organ which pumps blood around the Research studies have shown body. In order to do this work that people who attend effectively it needs a good cardiac rehabilitation after a supply of blood and oxygen heart attack are able to do itself. The heart receives its more, feel more confident and blood supply through blood lead a healthier lifestyle than vessels called coronary arteries. those who do not attend. It is possible to improve how well Over time (usually many years) your heart works and to reduce the coronary arteries can your risk of having another become narrowed by deposits cardiac event. called plaques. The plaques contain fat and cholesterol. They occur within the wall of the artery. 2
A patient’s guide • Excess alcohol • Prolonged stress Risk factors you can’t change: • Age • Family history • Gender • Your ethnic origin • Diabetes (but you can improve it!) Risk factors for coronary artery disease What is angina? Risk factors are things that Angina is a term used to we know make it more likely describe pain or heaviness in that you will develop coronary the chest, arm, shoulders or artery disease. Some risk factors jaw. Sometimes the pain can are related to your lifestyle, occur elsewhere. It occurs if the so you can work towards heart muscle is not receiving changing them. Others are not enough oxygen because there possible to change, but your is a narrowing in one of the chances of having another arteries taking blood and cardiac event can be reduced oxygen to the heart muscle. If greatly by following a healthier the artery relaxes and widens lifestyle. again, the blood will get through the narrowed artery The cardiac rehabilitation staff and the pain is relieved. will help you to recognise your own risk factors and to make Many people are given a sensible plans to change them. Glyceryl Trinitrate (GTN) spray to use if they get angina, Risk factors you can change: which acts quickly to relax and • Smoking widen the artery. Angina pain • Obesity is usually relieved by rest and • High cholesterol level GTN within a few minutes. • High blood pressure It does not cause permanent • Lack of exercise damage to your heart. 3
A patient’s guide Signs of angina pain How to use your GTN spray Heaviness or pressure around GTN is a drug that acts very the chest. This may happen quickly to widen the coronary after increased activity. arteries, and to relieve the effects of angina. • Heavy, aching pain in the back, shoulders, arms or jaw. Follow the guidelines below: • Feeling unusually breathless • Always sit down and try to after walking a short distance rest and relax. • Waking up at night feeling • Spray the GTN once, under very short of breath. your tongue. • Thumping or palpitations • Rest for five minutes. in the chest, especially if it • If the pain has not gone, makes you feel dizzy or light- repeat the GTN spray under headed. your tongue. If you have any of these • Rest for five minutes. feelings, you should rest. • If the pain has not gone, repeat the GTN spray under If you have pain follow the your tongue. guidelines opposite for using GTN. If at anytime you think you are having a heart attack or if you still have chest pain after 15 minutes, call 999 for an ambulance. If your pain is relieved completely by the GTN spray, you should rest for 10 minutes before you carry on. You should make an appointment to see your GP if you have not had angina before or if your angina feels worse or is more frequent. 4
A patient’s guide Fatty deposits Blood clot Artery blockage Damaged heart muscle What is a heart attack? The pain caused by a heart A heart attack occurs if you attack is not relieved by develop a blood clot in one of rest and Glyceryl Trinitrate the coronary arteries (blood (GTN). The sooner you receive vessels) that take blood and treatment to re-open the oxygen to the heart muscle. blocked artery, the sooner The blood clot usually occurs the blood flow is restored to in an area within a coronary the affected part of the heart artery that is already narrowed muscle. If this is done very by fatty deposits. This means quickly, less heart muscle will that the blood vessel is be damaged, which increases completely blocked. Part of the your chance of a full recovery. heart muscle is starved of blood and oxygen, which often causes With good care, information severe chest pain, like the pain and planning, you may even that led to you coming into lead a healthier life than you hospital. had before. Some people feel very sick and sweaty, and often appear very ill. 5
A patient’s guide This removes the blood clot that may have been causing your heart attack and re- establishes blood flow to the affected area of heart muscle. This should relieve your pain immediately. What happens to the stent after it is fitted? The stent sits tightly against the wall of your artery. After a few weeks or months, your artery wall will grow to cover the metal mesh, so your artery will be held open permanently. However, until this happens it Coronary artery stent is very important that you do your best to look after your What is a coronary stent? stent, and your artery. You will A stent is a small metal tube be given some tablets (aspirin made of open meshwork. It is and clopidogrel) to prevent placed through the narrowed further blood clots from or blocked part of your forming within the stent and coronary artery that is causing elsewhere in your arteries. You your severe angina or heart should take these tablets as attack. directed by your doctor. The stent is inserted into the What happens if you have artery via a balloon. When the chest pain after going home? balloon is inflated, the stent It is common for people to widens to fit perfectly within experience further pain in your artery and the fatty their chest in the first few days deposits are squashed back and weeks following a stent against the wall of the artery. procedure. 6
A patient’s guide This is because your artery has Medication suffered some trauma and Most people take several bruising, first from the blood tablets following a heart clot, and then from the stent attack. You may have been being fitted. You can have given some of these medicines episodes of pain or discomfort before. as the stent settles into place. Some of the medicines are This pain is usually quite only recommended for a short different from that of angina. period of time. Others are It is felt quite locally in the recommended for life because chest, and is often described they will help you to remain as sharp or stabbing. This type as fit as possible in the long- of pain may be relieved by term, and to avoid any further paracetamol. problems with your heart. It is also very common to be Remember to order your repeat more aware of your heart beat, prescriptions in good time especially at night, and you and do not stop taking any may feel more tired than usual. medicines without discussing it These feelings are usually a with your doctor first. normal part of getting over a heart attack, and should reduce Some people occasionally over a couple of weeks. experience side-effects from certain medicines but there Some people may experience are almost always alternatives further angina. This is because available so let your doctor you may have other narrowings know if you are having within other coronary arteries problems. He or she can work that were not treated at the with you to find a medicine time of the emergency care. that suits you better. Very occasionally there may be further problems with the You should make an stented artery, and this will appointment to see your GP require rapid treatment. within one week of leaving Papworth Hospital, as it is 7
A patient’s guide important for you to have your stent. Taking clopidogrel and medicines reviewed and to aspirin will reduce the risk of a make sure that you are taking further heart attack. the most appropriate doses. Warfarin ►Aspirin You may already be taking This is called an anti-platelet warfarin in which case your drug. It helps to prevent consultant will probably platelets in your blood from want you to take aspirin and sticking together and forming clopidogrel in addition to this. small clots. It is very important You will be advised about any to prevent clots forming extra monitoring needed for around the new stent. your warfarin levels. Aspirin is taken once daily, Statin (eg simvastatin) after some food to help protect This medicine will help to your stomach. Tell your GP if reduce your cholesterol you get indigestion after taking together with a healthy low fat aspirin. Another medicine may diet. This is very important to be prescribed to counteract help control further build up this. You will need to take of fatty areas (plaques) which aspirin lifelong. restrict blood flow in your coronary arteries. Clopidogrel This is another anti-platelet It is very important for you to drug and works together with know what your cholesterol aspirin to give the best possible level is - ask your GP for the cover. This may be prescribed numbers. This will help you to for either one month or 12 monitor your own progress. months, depending on the type As cholesterol is produced of stent used. overnight in your body this medicine will work best when It is very important that you taken at night. You must avoid continue taking this drug as eating grapefruit or drinking prescribed to prevent small grapefruit juice as this can alter clots forming around your the level of statin which may be 8
A patient’s guide dangerous. If you experience Some people develop an any new muscle aches or irritating cough. If you do, tenderness, please consult your then do not stop taking this GP. You will need to take this medicine but consult your medicine lifelong. GP who will prescribe an alternative. Beta Blockers (eg atenolol or bisoprolol) ►GTN (Glyceryl Trinitrate) This medicine will slow your Use of GTN has been described heart rate, keeping it in a on page 4. Always keep your regular rhythm and at a safe GTN with you in your pocket level which will protect your or bag. You can buy GTN spray heart. This will also help your or tablets over the counter at heart to pump blood around a pharmacy in an emergency. your body more efficiently. Always read the instructions Your blood pressure will also and expiry dates. be reduced. These effects will reduce your risk of having a Additional medicines further heart attack. You may be prescribed other drugs in addition to these. ►ACE Inhibitors (angiotensin- For further information ask converting enzyme inhibitor eg your pharmacist or GP. Please ramipril) read the patient information This medicine is used to leaflets inside your medicines reduce the workload for your packet for a complete list of heart by reducing your blood side effects and information. pressure. It is easier then for Additional information can your heart muscle to pump be found in the British Heart blood around your body. It Foundation booklet 17. will also protect your heart. ‘Medicines for the Heart’. The dose of this medicine will be increased gradually by It is safe to take any your GP. This will give you the supplementary alternative best possible benefit from the medicines? medicine long-term so do not If you are considering taking be concerned. any supplementary alternative 9
A patient’s guide medicines then consult your You should rest the arm/leg for pharmacist before doing so as a couple of days after you go they may interact with your home and you should elevate medicines prescribed by the GP. the leg when you are sitting. Follow the advice below about It is a good idea to keep a copy resuming activity gradually. of your prescription with you at all times. You may have a shower at home, or a tepid bath, but for Going home the first week do not sit in a You will be discharged home hot bath. after a few days. This can be worrying for some people but You may get some mild pain remember that you will not from the wrist/groin area. be allowed home until your This should be relieved by doctors have assessed that Paracetamol. It is unusual you are in a safe and stable to experience severe pain. If condition. your arm/leg becomes very painful, hot to the touch or you You will need to care for your develop a swelling that feels wrist/groin wound, as well as to like an egg in the wrist/groin, think about your recovery from you should contact your GP or the heart attack. go to your local hospital. Care of your wound Remember to take all your It is normal to have bruising discharge information from around the wrist/groin in the Papworth Hospital with you. area where the tubes were inserted in order to carry out Getting back to normal activity your stent procedure. This is The following guidelines are because a lot of drugs were suitable for most people who used to thin the blood during are making a straightforward the procedure. The bruising recovery. They are not hard and may look quite extensive but fast rules. Do not push yourself will fade over the next couple faster than the guidelines. of weeks. Listen to your body and do not 10
A patient’s guide worry if you feel you are not 88 No heavy work such as progressing fast enough. vacuuming, making beds, hanging out washing or Things you should not do for lifting. four weeks: 88 No driving, and limit • Drive the car (this is a DVLA journeys as a passenger to directive). Your doctor will one or two local trips. advise you if you may drive sooner. Week 2 • Travel long distances - even 33 Walk for 10 minutes on as a passenger. the flat such as short trips • Ride your bike. to local shops or walks • Heavy lifting or other heavy outdoors. physical activity. 33 Light housework such as • Vacuuming. making beds, washing up • Any DIY. and preparing simple meals. • Any sporting activity other 33 Gradually increase your than walking. daily activities as you feel • Mow the lawn or cut hedges. able, but still incorporate a rest during the daytime. What you can do: Week 1 Weeks 3-4 33 Increase your walking to 20 33 Potter around the house, sit minutes a day. or stroll in the garden if the weather is warm. 33 Light housework, such as tidying and dusting, 33 If you go outside, do not hanging out washing, but walk up any hills. rest after 20 minutes. 33 You may make light snacks, 33 Some light gardening, such coffee and tea etc. as easy weeding or planting 33 You may peel vegetables out. Bend from your knees sitting at a table. rather than from the waist. 33 Make time for a nap after 33 Short social outings. lunch and rest when your body tells you to. 11
A patient’s guide Weeks 5-6 Travelling and transport 33 Visit your GP to ask about It is wise to stay fairly close to resuming driving. Inform home for the first couple of your insurance company weeks. If possible try to avoid that you have had a heart going out and about on your attack. own. Use familiar routes when 33 Increase your daily walking going out. You can increase to 30 minutes if you feel your journeys as your recovery able. continues. 33 General housework, If you have a mobile phone including ironing and take it with you! vacuuming, but rest after 30-40 minutes. Travelling by car 33 Moderate garden work, It is a DVLA rule that you may such as lawn mowing, not drive for four weeks after a weeding and light hoeing, heart attack. Very occasionally, but rest after 30 minutes. some people are allowed to drive sooner than this. Do not 33 Normal social activities. do so unless your doctor has 88 Still no heavy lifting. told you that you may. Remember to take you GTN • You must check with your with you at all times. GP before starting to drive again. Make sure you are warmly • You must inform your dressed and avoid cold winds. insurance company that you Avoid going out in very hot or have had a heart attack, but very cold weather. you do not need to inform the DVLA. • Begin with short, familiar journeys. • If you ever develop chest pains when you are driving, you should stop. Follow the guidelines for use of 12
A patient’s guide GTN. Contact your GP or • Always carry your medicines Consultant when you arrive in your hand luggage. back home and discuss • Drink plenty of water during further driving. the flight, and avoid alcohol If you hold a PSV or LGV licence until you arrive at your you must not drive for three destination. months. You must inform the DVLA that you have had a Planning holidays heart attack and they will ask Inform the travel agent when you to take a special cardiac you book a holiday that you exercise test before they re- have had a heart attack. You issue your licence. will need effective travel insurance. The British Heart Travelling by aeroplane Foundation gives good advice Following a heart attack you about travel and car insurance may travel short distances by companies via their website or air (ie less than three hours) by telephone. from about 10 days after your discharge from hospital. The most stressful part of a holiday is often travelling so Ask your doctor or Cardiac make sure you allow plenty Rehabilitation specialist for of time. Do not lift heavy advice about when you may suitcases. fly, but you should take short journeys by air (i.e. less than Always make sure you have a three hours) initially. Airline good supply of your medicines, companies vary, so check with and keep them in your hand the airline and insurance luggage. Take a separate list conditions before you book. of your medication names and You will need to wait longer doses with you. for long-distance fights. • Inform the airline when you book your tickets. • Make sure you have effective travel insurance. 13
A patient’s guide Sex your future lifestyle. This is best Many people are anxious about done by attending your Cardiac resuming sexual activity. If you Rehabilitation programme. are worried, try to increase your confidence by being close Talk to your employer as and intimate with your partner. many are sympathetic and will arrange for you to return part- Generally if you can time at first. This can help you comfortably climb two flights to avoid becoming too tired of stairs, you can resume and having to travel in the sex. Do not force yourself to rush hour. If you have been ‘perform’ and make sure your doing heavy manual work, room is warm and comfortable. see whether you can return to Try to relax and let your lighter duties at first. partner take a more active role at first. If you are self-employed, seek advice from the local Citizen’s You should not use Viagra, or Advice Bureau. any similar tablet such as Cialis or Levitra, if you are also using Why should you attend GTN spray or any other form of a cardiac rehabilitation nitrate tablets. programme? The cardiac rehabilitation Returning to work programme will help you and Most people return to their your family to: usual job after a heart attack, and this can help you feel • Gain more understanding you are getting back to about your heart condition. normal. Your doctor will give • Gain support from specially you guidance about when trained staff. to return, but most people • Meet other people with normally take at least six weeks similar problems and off work. concerns to yourself. You can use this time to recover • Learn to make choices about and to put plans in place for improving your lifestyle. 14
A patient’s guide • Improve your health and fitness. • Above all, boost your confidence and allow you to feel that you can get on with the rest of your life! The nurses at Papworth Hospital will refer you to the Rehabilitation staff at your local hospital. You will find their telephone number on the next page. They will contact you to book an appointment to discuss your progress in more detail. 15
A patient’s guide Useful contacts Papworth Hospital Advice Line 01480 364468 British Heart Foundation Heart Information Line 08450 708070 www.bhf.org.uk The British Cardiac Patients Association 01949 837070 www.bcpa.co.uk NHS Smoking Helpline 0800 169 0 169 www.givingupsmoking.co.uk NHS Direct 111 www.nhsdirect.nhs.uk DVLA 0870 240 0009 www.dvla.gov.uk Cardiac Rehabilitation Contact details within your area Addenbrooke’s Hospital............................................ 01223 216985 Bedford Hospital........................................................ 01234 792618 Doddington Community Hospital............................. 01354 644232 Princess Alexandra Hospital...................................... 01279 827548 James Paget Hospital................................................. 01493 452547 Norfolk and Norwich University Hospital................. 01603 286513 Papworth Hospital..................................................... 01480 364429 Peterborough District Hospital .. ............................... 01733 874804 QEII Hospital King’s Lynn........................................... 01553 613867 Suffolk Rehabilitation Services.................................. 01473 275211 West Suffolk Hospital................................................ 01284 713611 Ipswich Hospital......................................................... 01473 702073 16
A patient’s guide Papworth Hospital NHS Foundation Trust Papworth Everard, Cambridge, CB23 3RE Tel: 01480 830541 Fax: 01480 831315 www.papworthhospital.nhs.uk A member of Cambridge University Health Partners Papworth Hospital is a smokefree site Follow us on Keep in touch with Papworth Hospital and receive a quarterly newsletter. Join our membership free of charge at www.papworthmembership.com Tel: 01480 364240 Author ID: Cardiac Rehabilitation Nurse Large print copies and Department: Cardiac Rehabilitation Reprinted: June 2014 alternative language Review due: June 2017 versions of this leaflet Version: 4 Leaflet number: PI 103 can be made available © Papworth Hospital NHS Foundation Trust on request.
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