Returning to fitness after a heart attack - A patient's guide

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A patient’s guide

                 Returning to
                fitness after a
                  heart attack
                     A patient’s guide

                                         1
A patient’s guide

Returning to fitness after a
heart attack                           Please remember that in an
The first few days and weeks           emergency you should ring
following your discharge from          999.
Papworth Hospital can be
confusing and worrying for you       Don’t forget to drop your
and your family. This leaflet will   discharge letter into your GP
help you to understand what          surgery straight away so that
has happened to your heart.          they are informed of your
It gives you an idea of what to      recent illness.
expect over the next few weeks
and also helps you to think          If you feel unwell, follow the
about your recovery and how          advice on page 6 under the
to get the best from life after      section ‘What happens if you
your heart attack (myocardial        get more chest pain after going
infarction) and the stent            home?’
procedure.
                                     If you still feel unwell, call an
You may still have some              ambulance. If you need to visit
questions and concerns after         your GP or go to your local
you have read this leaflet.          hospital, please remember to
Papworth Hospital has an             take with you the complete
advice line, which you may           discharge pack that you were
telephone between 9.00am and         given when you left Papworth
4.30pm Monday to Friday.             Hospital.

If we are unable to answer           You should make an
personally, leave your details       appointment to see your GP
on an answer machine and we          in the first week following
will contact you as soon as we       your discharge from Papworth
can. The advice line number is       Hospital, in order check your
01480 364468.                        progress and review your
                                     medicines.
For advice at other times,
please ring NHS Direct on 111.

                                                                         1
A patient’s guide

    Cardiac rehabilitation                The rehabilitation staff will
    Whilst you were in hospital           help you to continue with your
    you will have received some           recovery. They will help you
    information about cardiac             to identify any relevant risk
    rehabilitation. Your details          factors for heart disease, to
    will have been passed on to a         enable you to adopt a healthy
    specialist cardiac rehabilitation     lifestyle and to get the most
    team who will contact you in          out of your procedure. You can
    the next few days after you           follow a programme that is
    have gone home.                       suitable for your own level of
                                          ability.
    Some people choose to go to
    a local cardiac rehabilitation        If you have any additional
    programme and others prefer           queries please telephone
    to return to Papworth Hospital.       the Rehabilitation Team for
    On the inside back page you           information and advice (see
    will find the contact details         page16).
    for the cardiac rehabilitation
    teams. You will be given some         What is coronary artery
    information about the choices         disease?
    that are available to you.            The heart is a muscular organ
                                          which pumps blood around the
    Research studies have shown           body. In order to do this work
    that people who attend                effectively it needs a good
    cardiac rehabilitation after a        supply of blood and oxygen
    heart attack are able to do           itself. The heart receives its
    more, feel more confident and         blood supply through blood
    lead a healthier lifestyle than       vessels called coronary arteries.
    those who do not attend. It is
    possible to improve how well          Over time (usually many years)
    your heart works and to reduce        the coronary arteries can
    your risk of having another           become narrowed by deposits
    cardiac event.                        called plaques. The plaques
                                          contain fat and cholesterol.
                                          They occur within the wall of
                                          the artery.

2
A patient’s guide

                                        • Excess alcohol
                                        • Prolonged stress

                                        Risk factors you can’t change:
                                        •   Age
                                        •   Family history
                                        •   Gender
                                        •   Your ethnic origin
                                        •   Diabetes (but you can
                                            improve it!)
Risk factors for coronary artery
disease                                 What is angina?
Risk factors are things that            Angina is a term used to
we know make it more likely             describe pain or heaviness in
that you will develop coronary          the chest, arm, shoulders or
artery disease. Some risk factors       jaw. Sometimes the pain can
are related to your lifestyle,          occur elsewhere. It occurs if the
so you can work towards                 heart muscle is not receiving
changing them. Others are not           enough oxygen because there
possible to change, but your            is a narrowing in one of the
chances of having another               arteries taking blood and
cardiac event can be reduced            oxygen to the heart muscle. If
greatly by following a healthier        the artery relaxes and widens
lifestyle.                              again, the blood will get
                                        through the narrowed artery
The cardiac rehabilitation staff        and the pain is relieved.
will help you to recognise your
own risk factors and to make            Many people are given a
sensible plans to change them.          Glyceryl Trinitrate (GTN) spray
                                        to use if they get angina,
Risk factors you can change:            which acts quickly to relax and
•   Smoking                             widen the artery. Angina pain
•   Obesity                             is usually relieved by rest and
•   High cholesterol level              GTN within a few minutes.
•   High blood pressure                 It does not cause permanent
•   Lack of exercise                    damage to your heart.

                                                                            3
A patient’s guide

    Signs of angina pain                  How to use your GTN spray
    Heaviness or pressure around          GTN is a drug that acts very
    the chest. This may happen            quickly to widen the coronary
    after increased activity.             arteries, and to relieve the
                                          effects of angina.
    • Heavy, aching pain in the
      back, shoulders, arms or jaw.       Follow the guidelines below:
    • Feeling unusually breathless        • Always sit down and try to
      after walking a short distance        rest and relax.
    • Waking up at night feeling          • Spray the GTN once, under
      very short of breath.                 your tongue.
    • Thumping or palpitations            • Rest for five minutes.
      in the chest, especially if it      • If the pain has not gone,
      makes you feel dizzy or light-        repeat the GTN spray under
      headed.                               your tongue.
    If you have any of these              • Rest for five minutes.
    feelings, you should rest.            • If the pain has not gone,
                                            repeat the GTN spray under
    If you have pain follow the
                                            your tongue.
    guidelines opposite for using
    GTN.                                  If at anytime you think you
                                          are having a heart attack or if
                                          you still have chest pain after
                                          15 minutes, call 999 for an
                                          ambulance.
                                          If your pain is relieved
                                          completely by the GTN spray,
                                          you should rest for 10 minutes
                                          before you carry on.
                                          You should make an
                                          appointment to see your GP
                                          if you have not had angina
                                          before or if your angina feels
                                          worse or is more frequent.

4
A patient’s guide

                            Fatty deposits

                                 Blood clot

                                        Artery blockage

                                        Damaged heart muscle

What is a heart attack?              The pain caused by a heart
A heart attack occurs if you         attack is not relieved by
develop a blood clot in one of       rest and Glyceryl Trinitrate
the coronary arteries (blood         (GTN). The sooner you receive
vessels) that take blood and         treatment to re-open the
oxygen to the heart muscle.          blocked artery, the sooner
The blood clot usually occurs        the blood flow is restored to
in an area within a coronary         the affected part of the heart
artery that is already narrowed      muscle. If this is done very
by fatty deposits. This means        quickly, less heart muscle will
that the blood vessel is             be damaged, which increases
completely blocked. Part of the      your chance of a full recovery.
heart muscle is starved of blood
and oxygen, which often causes       With good care, information
severe chest pain, like the pain     and planning, you may even
that led to you coming into          lead a healthier life than you
hospital.                            had before.

Some people feel very sick and
sweaty, and often appear very
ill.

                                                                       5
A patient’s guide

                                         This removes the blood clot
                                         that may have been causing
                                         your heart attack and re-
                                         establishes blood flow to the
                                         affected area of heart muscle.
                                         This should relieve your pain
                                         immediately.

                                         What happens to the stent
                                         after it is fitted?
                                         The stent sits tightly against the
                                         wall of your artery. After a few
                                         weeks or months, your artery
                                         wall will grow to cover the
                                         metal mesh, so your artery will
                                         be held open permanently.

                                         However, until this happens it
    Coronary artery stent
                                         is very important that you do
                                         your best to look after your
    What is a coronary stent?            stent, and your artery. You will
    A stent is a small metal tube        be given some tablets (aspirin
    made of open meshwork. It is         and clopidogrel) to prevent
    placed through the narrowed          further blood clots from
    or blocked part of your              forming within the stent and
    coronary artery that is causing      elsewhere in your arteries. You
    your severe angina or heart          should take these tablets as
    attack.                              directed by your doctor.

    The stent is inserted into the       What happens if you have
    artery via a balloon. When the       chest pain after going home?
    balloon is inflated, the stent       It is common for people to
    widens to fit perfectly within       experience further pain in
    your artery and the fatty            their chest in the first few days
    deposits are squashed back           and weeks following a stent
    against the wall of the artery.      procedure.

6
A patient’s guide

This is because your artery has      Medication
suffered some trauma and             Most people take several
bruising, first from the blood       tablets following a heart
clot, and then from the stent        attack. You may have been
being fitted. You can have           given some of these medicines
episodes of pain or discomfort       before.
as the stent settles into place.
                                     Some of the medicines are
This pain is usually quite           only recommended for a short
different from that of angina.       period of time. Others are
It is felt quite locally in the      recommended for life because
chest, and is often described        they will help you to remain
as sharp or stabbing. This type      as fit as possible in the long-
of pain may be relieved by           term, and to avoid any further
paracetamol.                         problems with your heart.

It is also very common to be         Remember to order your repeat
more aware of your heart beat,       prescriptions in good time
especially at night, and you         and do not stop taking any
may feel more tired than usual.      medicines without discussing it
These feelings are usually a         with your doctor first.
normal part of getting over a
heart attack, and should reduce      Some people occasionally
over a couple of weeks.              experience side-effects from
                                     certain medicines but there
Some people may experience           are almost always alternatives
further angina. This is because      available so let your doctor
you may have other narrowings        know if you are having
within other coronary arteries       problems. He or she can work
that were not treated at the         with you to find a medicine
time of the emergency care.          that suits you better.
Very occasionally there may
be further problems with the         You should make an
stented artery, and this will        appointment to see your GP
require rapid treatment.             within one week of leaving
                                     Papworth Hospital, as it is

                                                                       7
A patient’s guide

    important for you to have your         stent. Taking clopidogrel and
    medicines reviewed and to              aspirin will reduce the risk of a
    make sure that you are taking          further heart attack.
    the most appropriate doses.
                                           Warfarin
    ►Aspirin                               You may already be taking
     This is called an anti-platelet       warfarin in which case your
     drug. It helps to prevent             consultant will probably
     platelets in your blood from          want you to take aspirin and
     sticking together and forming         clopidogrel in addition to this.
     small clots. It is very important     You will be advised about any
     to prevent clots forming              extra monitoring needed for
     around the new stent.                 your warfarin levels.

    Aspirin is taken once daily,           Statin (eg simvastatin)
    after some food to help protect        This medicine will help to
    your stomach. Tell your GP if          reduce your cholesterol
    you get indigestion after taking       together with a healthy low fat
    aspirin. Another medicine may          diet. This is very important to
    be prescribed to counteract            help control further build up
    this. You will need to take            of fatty areas (plaques) which
    aspirin lifelong.                      restrict blood flow in your
                                           coronary arteries.
    Clopidogrel
    This is another anti-platelet          It is very important for you to
    drug and works together with           know what your cholesterol
    aspirin to give the best possible      level is - ask your GP for the
    cover. This may be prescribed          numbers. This will help you to
    for either one month or 12             monitor your own progress.
    months, depending on the type          As cholesterol is produced
    of stent used.                         overnight in your body this
                                           medicine will work best when
    It is very important that you          taken at night. You must avoid
    continue taking this drug as           eating grapefruit or drinking
    prescribed to prevent small            grapefruit juice as this can alter
    clots forming around your              the level of statin which may be

8
A patient’s guide

dangerous. If you experience         Some people develop an
any new muscle aches or              irritating cough. If you do,
tenderness, please consult your      then do not stop taking this
GP. You will need to take this       medicine but consult your
medicine lifelong.                   GP who will prescribe an
                                     alternative.
Beta Blockers (eg atenolol or
bisoprolol)                          ►GTN (Glyceryl Trinitrate)
This medicine will slow your          Use of GTN has been described
heart rate, keeping it in a           on page 4. Always keep your
regular rhythm and at a safe          GTN with you in your pocket
level which will protect your         or bag. You can buy GTN spray
heart. This will also help your       or tablets over the counter at
heart to pump blood around            a pharmacy in an emergency.
your body more efficiently.           Always read the instructions
Your blood pressure will also         and expiry dates.
be reduced. These effects will
reduce your risk of having a         Additional medicines
further heart attack.                You may be prescribed other
                                     drugs in addition to these.
►ACE Inhibitors (angiotensin-        For further information ask
 converting enzyme inhibitor eg      your pharmacist or GP. Please
 ramipril)                           read the patient information
 This medicine is used to            leaflets inside your medicines
 reduce the workload for your        packet for a complete list of
 heart by reducing your blood        side effects and information.
 pressure. It is easier then for     Additional information can
 your heart muscle to pump           be found in the British Heart
 blood around your body. It          Foundation booklet 17.
 will also protect your heart.       ‘Medicines for the Heart’.
 The dose of this medicine will
 be increased gradually by           It is safe to take any
 your GP. This will give you the     supplementary alternative
 best possible benefit from the      medicines?
 medicine long-term so do not        If you are considering taking
 be concerned.                       any supplementary alternative

                                                                       9
A patient’s guide

     medicines then consult your         You should rest the arm/leg for
     pharmacist before doing so as       a couple of days after you go
     they may interact with your         home and you should elevate
     medicines prescribed by the GP.     the leg when you are sitting.
                                         Follow the advice below about
     It is a good idea to keep a copy    resuming activity gradually.
     of your prescription with you
     at all times.                       You may have a shower at
                                         home, or a tepid bath, but for
     Going home                          the first week do not sit in a
     You will be discharged home         hot bath.
     after a few days. This can be
     worrying for some people but        You may get some mild pain
     remember that you will not          from the wrist/groin area.
     be allowed home until your          This should be relieved by
     doctors have assessed that          Paracetamol. It is unusual
     you are in a safe and stable        to experience severe pain. If
     condition.                          your arm/leg becomes very
                                         painful, hot to the touch or you
     You will need to care for your      develop a swelling that feels
     wrist/groin wound, as well as to    like an egg in the wrist/groin,
     think about your recovery from      you should contact your GP or
     the heart attack.                   go to your local hospital.

     Care of your wound                  Remember to take all your
     It is normal to have bruising       discharge information from
     around the wrist/groin in the       Papworth Hospital with you.
     area where the tubes were
     inserted in order to carry out      Getting back to normal activity
     your stent procedure. This is       The following guidelines are
     because a lot of drugs were         suitable for most people who
     used to thin the blood during       are making a straightforward
     the procedure. The bruising         recovery. They are not hard and
     may look quite extensive but        fast rules. Do not push yourself
     will fade over the next couple      faster than the guidelines.
     of weeks.                           Listen to your body and do not

10
A patient’s guide

worry if you feel you are not        88 No heavy work such as
progressing fast enough.                vacuuming, making beds,
                                        hanging out washing or
Things you should not do for            lifting.
four weeks:
                                     88 No driving, and limit
• Drive the car (this is a DVLA
                                        journeys as a passenger to
  directive). Your doctor will
                                        one or two local trips.
  advise you if you may drive
  sooner.
                                     Week 2
• Travel long distances - even       33 Walk for 10 minutes on
  as a passenger.                       the flat such as short trips
• Ride your bike.                       to local shops or walks
• Heavy lifting or other heavy          outdoors.
  physical activity.                 33 Light housework such as
• Vacuuming.                            making beds, washing up
• Any DIY.                              and preparing simple meals.
• Any sporting activity other        33 Gradually increase your
  than walking.                         daily activities as you feel
• Mow the lawn or cut hedges.           able, but still incorporate a
                                        rest during the daytime.
What you can do:
Week 1                               Weeks 3-4
                                     33 Increase your walking to 20
33 Potter around the house, sit
                                        minutes a day.
   or stroll in the garden if the
   weather is warm.                  33 Light housework, such
                                        as tidying and dusting,
33 If you go outside, do not
                                        hanging out washing, but
   walk up any hills.
                                        rest after 20 minutes.
33 You may make light snacks,
                                     33 Some light gardening, such
   coffee and tea etc.
                                        as easy weeding or planting
33 You may peel vegetables              out. Bend from your knees
   sitting at a table.                  rather than from the waist.
33 Make time for a nap after         33 Short social outings.
   lunch and rest when your
   body tells you to.
                                                                        11
A patient’s guide

     Weeks 5-6                               Travelling and transport
     33 Visit your GP to ask about           It is wise to stay fairly close to
        resuming driving. Inform             home for the first couple of
        your insurance company               weeks. If possible try to avoid
        that you have had a heart            going out and about on your
        attack.                              own. Use familiar routes when
     33 Increase your daily walking          going out. You can increase
        to 30 minutes if you feel            your journeys as your recovery
        able.                                continues.

     33 General housework,                   If you have a mobile phone
        including ironing and                take it with you!
        vacuuming, but rest after
        30-40 minutes.                       Travelling by car
     33 Moderate garden work,                It is a DVLA rule that you may
        such as lawn mowing,                 not drive for four weeks after a
        weeding and light hoeing,            heart attack. Very occasionally,
        but rest after 30 minutes.           some people are allowed to
                                             drive sooner than this. Do not
     33 Normal social activities.            do so unless your doctor has
     88 Still no heavy lifting.              told you that you may.

     Remember to take you GTN                • You must check with your
     with you at all times.                    GP before starting to drive
                                               again.
     Make sure you are warmly                • You must inform your
     dressed and avoid cold winds.             insurance company that you
     Avoid going out in very hot or            have had a heart attack, but
     very cold weather.                        you do not need to inform
                                               the DVLA.
                                             • Begin with short, familiar
                                               journeys.
                                             • If you ever develop chest
                                               pains when you are driving,
                                               you should stop. Follow
                                               the guidelines for use of
12
A patient’s guide

  GTN. Contact your GP or            • Always carry your medicines
  Consultant when you arrive           in your hand luggage.
  back home and discuss              • Drink plenty of water during
  further driving.                     the flight, and avoid alcohol
If you hold a PSV or LGV licence       until you arrive at your
you must not drive for three           destination.
months. You must inform the
DVLA that you have had a             Planning holidays
heart attack and they will ask       Inform the travel agent when
you to take a special cardiac        you book a holiday that you
exercise test before they re-        have had a heart attack. You
issue your licence.                  will need effective travel
                                     insurance. The British Heart
Travelling by aeroplane              Foundation gives good advice
Following a heart attack you         about travel and car insurance
may travel short distances by        companies via their website or
air (ie less than three hours)       by telephone.
from about 10 days after your
discharge from hospital.             The most stressful part of a
                                     holiday is often travelling so
Ask your doctor or Cardiac           make sure you allow plenty
Rehabilitation specialist for        of time. Do not lift heavy
advice about when you may            suitcases.
fly, but you should take short
journeys by air (i.e. less than      Always make sure you have a
three hours) initially. Airline      good supply of your medicines,
companies vary, so check with        and keep them in your hand
the airline and insurance            luggage. Take a separate list
conditions before you book.          of your medication names and
You will need to wait longer         doses with you.
for long-distance fights.
• Inform the airline when you
  book your tickets.
• Make sure you have effective
  travel insurance.

                                                                       13
A patient’s guide

     Sex                                  your future lifestyle. This is best
     Many people are anxious about        done by attending your Cardiac
     resuming sexual activity. If you     Rehabilitation programme.
     are worried, try to increase
     your confidence by being close       Talk to your employer as
     and intimate with your partner.      many are sympathetic and will
                                          arrange for you to return part-
     Generally if you can                 time at first. This can help you
     comfortably climb two flights        to avoid becoming too tired
     of stairs, you can resume            and having to travel in the
     sex. Do not force yourself to        rush hour. If you have been
     ‘perform’ and make sure your         doing heavy manual work,
     room is warm and comfortable.        see whether you can return to
     Try to relax and let your            lighter duties at first.
     partner take a more active role
     at first.                            If you are self-employed, seek
                                          advice from the local Citizen’s
     You should not use Viagra, or        Advice Bureau.
     any similar tablet such as Cialis
     or Levitra, if you are also using    Why should you attend
     GTN spray or any other form of       a cardiac rehabilitation
     nitrate tablets.                     programme?
                                          The cardiac rehabilitation
     Returning to work                    programme will help you and
     Most people return to their          your family to:
     usual job after a heart attack,
     and this can help you feel           • Gain more understanding
     you are getting back to                about your heart condition.
     normal. Your doctor will give        • Gain support from specially
     you guidance about when                trained staff.
     to return, but most people           • Meet other people with
     normally take at least six weeks       similar problems and
     off work.                              concerns to yourself.
     You can use this time to recover     • Learn to make choices about
     and to put plans in place for          improving your lifestyle.

14
A patient’s guide

• Improve your health and
  fitness.
• Above all, boost your
  confidence and allow you to
  feel that you can get on with
  the rest of your life!

The nurses at Papworth
Hospital will refer you to the
Rehabilitation staff at your
local hospital. You will find
their telephone number on the
next page.

They will contact you to book
an appointment to discuss your
progress in more detail.

                                             15
A patient’s guide

     Useful contacts
     Papworth Hospital Advice Line
     01480 364468
     British Heart Foundation Heart Information Line
     08450 708070
     www.bhf.org.uk
     The British Cardiac Patients Association
     01949 837070
     www.bcpa.co.uk
     NHS Smoking Helpline
     0800 169 0 169
     www.givingupsmoking.co.uk
     NHS Direct
     111
     www.nhsdirect.nhs.uk
     DVLA
     0870 240 0009
     www.dvla.gov.uk

     Cardiac Rehabilitation Contact details within your area
     Addenbrooke’s Hospital............................................ 01223 216985
     Bedford Hospital........................................................ 01234 792618
     Doddington Community Hospital............................. 01354 644232
     Princess Alexandra Hospital...................................... 01279 827548
     James Paget Hospital................................................. 01493 452547
     Norfolk and Norwich University Hospital................. 01603 286513
     Papworth Hospital..................................................... 01480 364429
     Peterborough District Hospital .. ............................... 01733 874804
     QEII Hospital King’s Lynn........................................... 01553 613867
     Suffolk Rehabilitation Services.................................. 01473 275211
     West Suffolk Hospital................................................ 01284 713611
     Ipswich Hospital......................................................... 01473 702073

16
A patient’s guide
Papworth Hospital NHS Foundation   Trust
Papworth Everard, Cambridge, CB23 3RE
Tel: 01480 830541
Fax: 01480 831315
www.papworthhospital.nhs.uk
A member of Cambridge University Health Partners

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Tel: 01480 364240

Author ID:        Cardiac Rehabilitation Nurse     Large print copies and
Department:       Cardiac Rehabilitation
Reprinted:        June 2014                          alternative language
Review due:       June 2017                        versions of this leaflet
Version:          4
Leaflet number:   PI 103                           can be made available
© Papworth Hospital NHS Foundation Trust                       on request.
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