Raising special Kids 2018-2019 RepoR t to the Community
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Raising special Kids 2 0 1 8 - 2 0 1 9 R e p o R t to t h e C o m m u n i t y
Raising Special Kids Mission
Strengthening families and systems of care to
improve the lives of children with disabilities.
Statewide with offices in Northern, Southern and Central Arizona
Board Members
Fiscal year July 1, 2018 – June 30, 2019
Letter from the Board President
Jennifer Kupiszewski, President
Kile & Kupiszewski Law Firm
We are proud to present the 2018-2019 Annual Report. On behalf of Raising
Karin Smith Vice President
Heinfeld Meech & Co., P.C.
Special Kids Board of Directors, Staff and Families, we express our gratitude to all
Karen Barr, Secretary
of you for supporting our mission of strengthening families to become effective
Raising Arizona Kids Magazine advocates for children with disabilities.
Trish Robinson Treasurer
Association for Supportive Child Care
This report is created, and this letter is written, as a retrospective and, as such,
Paula Banahan
celebrates our achievements and highlights the incredible work of our exceptional
Arizona Heart Foundation team in 2018-2019. As you read through this report, unlike other years and given the unimaginable
Katie Barclay Penkoff events that have passed in the first half of 2020, it may be hard to recall a time when parents and
American Institutes for Research families gathered together in conference centers and training rooms sitting shoulder to shoulder
Tom Batson engaged in learning and discussion about advocating for their child who has a disability. It may be
Wells Fargo Advisors
hard to imagine large community events where parents and families of children who have disabilities
Barbara Brent
National Association of State could network and connect with professionals and providers of disability related services, and with
Directors of Developmental each other.
Disabilities Programs
Kelly Carbone Without a doubt, the 2020 Raising Special Kids Annual Report will look much different as, just in a
The Menta Group few short months, the organization has made sweeping changes to how it supports Arizona’s parents
Michael Chapnek and family members in response to the COVID-19 public health crisis. At the time of this writing,
Bank of America
in a time fraught with social and economic uncertainty, the organization is in discussion of how and
Charles Douglass
The Rainmaker Institute when to re-open our physical offices in a way that ensures safety, but allows for in-person contact, as
Tonya Gray it was in 2018-2019.
Arizona State University
ASU Alumni Association We hope you, your family and your loved ones are safe and healthy, and we hope that you enjoy
Helen Holden reading about the accomplishments in 2018-2019. Especially dear to me is the story of the Lee Family,
Spencer Fane Attorneys featured in this annual report. From its beginning in 1979 until today Raising Special Kids has been
Mallory Lee about the kids, all kids, and Mallory Lee beautifully illustrates this truth in the telling of her family’s
Parent
story in 2019.
Dr. Lynda Mills
Tolleson Elementary School District For 40 years Raising Special Kids has been there: for the Lee family, for your family, and mine. For
Sharon Moyer all our children, here’s to a bright future full of promise and potential. The annual report gives us
ASU Alumni Law
a chance to thank all of our partners, including our individual donors, and our many community
Jill Nico
Gateway Community College
collaborators we work with in Arizona. The list of RSK supporters gets longer and longer each year,
Maya Rao
and for that, we say thank you. We simply could not do the work we do without you.
Department of Economic Security
Alan Tinsley
Jennifer Kupiszewski, President
Parent Board of Directors
What’s Inside - Table of Contents
3 Programs & Services 4 Financials & Demographics 5 Celebrations
Learn more about the programs Learn more about the financial 40th Anniversary Celebration and
and services offered to families health of Raising Special Kids Thank You to the CareScape Golf
and professionals Classic Sponsors
6-7 Donors & Supporters 8 Boards & Councils
Special Day for Kids and First Learn more about the boards
Annual Uncommon Event for and councils served by Raising
2 Extraordinary Kids Special Kids staff
Mallory Lee Family Story
Mallory reached out to her friend who works at Raising
Special Kids to see what advice she could offer.
Quickly, she was guided on how to get Skylar evaluated by the
Arizona Early Intervention Program and it wasn’t long before
Skylar began receiving weekly early intervention services.
Before the end of that school year, she began attending
developmental preschool. Strengthening families and systems of care to improve the lives of children with disabilities.
With a smile in her voice, Mallory recalls, “She began Strengthening families and systems of care to improve the lives of children with disabilities.
2017 Highlights
developing this independence. She really enjoyed the
10,589
Strengthening families families
and systems of carewith
of children to improve thereceived
disabilities lives of children
trainingwith
and disabilities.
structure of school and things just started progressing.” 2017 Highlights
information and individual assistance; an average of 882 each month.
Once Skylar started communicating, Mallory started to see 10,589 families
Strengthening families and of children
systems of carewith disabilities
to improve the received trainingwith
lives of children anddisabilities.
2017 Highlights
information and individual assistance; an average of 882 each month.
a decline in her challenging behavior and tantrums. By the “If Skylar hadn’t started building habits of learning through her
10,589 Programs & disabilities
families of children with Services received training and
time Skylar entered Kindergarten, she was placed in a general experiences with
information and earlyassistance;
2017
individual intervention
Highlights
an average and preschool,
of 882 each month.she would
education classroom and received daily speech therapy. 10,589not be ofenjoying
Programs
families thedisabilities
&
children with success
Services she istraining
received now!” and
Connections with a trained Parent Mentor skilled at providing
information and individual assistance; an average of 882 each month.
information and support.
This year, Skylar is in first grade. Mallory said, “It really is Programs & Services
Connections with a trained Parent Mentor skilled at providing
this crazy change. She loves reading and writing and all ProgramsPrograms
and Services
information and support.
& Services
Connections with a trained Parent Mentor skilled at providing
things ‘school.’ We don’t have any of those behavioral issues information and support.
Accurate, authoritative information related to your child’s disability
we had when she was having communication challenges. Connections
or special health
Connections with a trained
withcondition.
a trained Parentskilled
Parent Mentor Mentor skilled
at providing at
Considering the change, she shared, “If Skylar hadn’t started providing
information
Accurate, information
and support.
authoritative and related
information support.
to your child’s disability
or special health condition.
building habits of learning through her experiences with early Accurate,
Accurate, authoritative
authoritative information
information related
related to your to your
child’s disability
intervention and preschool, she would not be enjoying the or special health condition.
child’seducation
Special disability or specialtraining,
consultations, health condition.
and problem-resolution
Accurate,
services. authoritative information related to your child’s disability
success she is now!”
Special
or special
Special education
health
education consultations,
condition.
consultations, training,
training, and and
problem-resolution
problem-resolution
services. services.
Special education consultations, training, and problem-resolution
Education
services.
Education andand coaching
coaching for parents
for parents tomost
to learn the learn the most
effective
effective methods in managing challenging behavior.
Special
methods education
in consultations,
managing challengingtraining, and
behavior problem-resolution
services.
Education and coaching for parents to learn the most effective
methods in managing challenging behavior
Education and coaching for parents to learn the most effective
Who We Serve Programs for#rsksymposium
methods in managing Parentsbehavior
challenging and Families
70% of who we serve are families with disabilities and special health care needs. Education and coaching for parents to learn the most effective
Parent-to-Parent support has always been the heart of
#rsksymposium
methods in managing challenging behavior
Raising Special Kids. Each year, more than 300 families
30% of who we serve are professionals in health, education, and social services. #rsksymposium
in Arizona are connected with veteran “mentor”
18,019 families received information, training, and individual assistance.
parents who have#rsksymposium
walked a similar path, and who
91% of parents said they received information to address a critical need understand the challenges of raising a child with a
related to their child’s education.
disability or special health care need. Raising Special
381 parents were matched with a Parent Mentor. Kids provides training and consultation in special
84% of parents matched with a Parent Mentor said it improved their ability education to families, schools, teachers,
to advocate for their child’s needs, services, and care. and other professionals. 3
Programs and Services continued
Programs and Services for Professionals 4,022 parents attended training and conferences.
Programs for resident physicians in pediatrics and family 3,421 professionals attended training and conferences.
practice relay information about parents’ perspective 93% of educational professionals reported being better
on issues relating to medical services. Parent Panels and prepared to work with families
staff-led workshops are available to students in education, 47 pediatric and family practice physicians completed training
medical, oral health and social service fields. and home visits.
89% of physicians reported training improved ability to
communicate with families
Fiscal Year 2018-2019 Financials
Where Does Revenue Come From? Program Expenditures
Grants and contracts . . . . . . . . . . . . . . . . . . . . . . $1,493,844
$731,166 Family Support Services
Donations. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $284,368
Training and Education for
$596,225 Families and the Professionals
who serve them
$63,270 Fundraising
$232,671 Management and General
$99,716 General Program Expenses
8
31
7
1
7
6
5
2
Children Demographics
1
5
1
10 6
3 3
8 1
3
11 47
4
29 4 39
31 1 3
11
1% 1%
1 1
1%
3%
3% 6% 1%
8% 4%4% 8%
11% 3%
3%
11%
Disability 10%
Ages 31% Ethnicity 39%
1%
31% 5% 47%
29% 1%
2% 5% 7%
6%
7%
1%
Age Disability Ethnicity
0-5 years – 31% ADD – 8% Hearing Impairment/Deaf – 1%
1 African American – 6%
6-11 years – 29% Autism – 31% Intellectual & Cognitive – 5% Asian/Pacific Islander – 3%
Cerebral Palsy – 7% Multiple Disabilities – 1% Bi-Racial – 1%
12-14 years – 11%
Deaf/Blind – 1% Other Health Impairment – 10% Caucasian – 47%
15-18 years – 21% 1
Developmental – 7% Orthopedic Impairment – 3%
1
Hispanic/Latino – 39%
19+ years – 8% Down Syndrome – 6% Specific Learning Disability – 3%
Native American – 3%
Behavioral Health – 5% Speech/Language – 4%
Other – 1%
Epilepsy – 2% Suspected/Undiagnosed – 4%
Gifted –
Raising Special Kids 40th Anniversary Celebration
In 2019, Raising Special Kids celebrated
40 years of service. Carescape and
Mitch Owens and Marcy DeChandt
were honored with a “Lifetime Giving
Award” in recognition of their generous
contributions to ensure families of
children with disabilities can get the help
they need.
Thank You 40th Anniversary
Celebration Sponsors
Ability 360
Banahan Communications
Hope Group
Joyce Millard Hoie Family
Kile & Kupiszewski Law Firm
The Living Room
Phoenix Children’s Hospital Orthopedics
Raising Arizona Kids
Southwest Human Development
The Menta Group
Murrell Family
Scottsdale Rotary Club
Tiffany Family
Julie Banahan sharing her story. Raising Special Kids past Executive Directors, United Healthcare
Mary Slaughter, Betsy Trombino, and Joyce Millard Hoie
CareScape’s 2018 Dandelion Golf Classic Thank You 2018 Dandelion
Golf Classic Sponsors
Gold Sponsors - $2500
Heinfeld Meech
Kile and Kupiszewski Law Firm
Silver Sponsors - $1,500
1GPA
Truly Nolen
American Fire Sales & Equipment
Sales and Service Corp.
Hadges Family Charitable Fund
Integrity Outsource
Hole Sponsors - $500
ASU Alumni Association
Batson Group of Wells Fargo Advisors
Perkins Coie
Banahan Communications
Producer Hub
Helen and Jerry Holden
Brent/Lensink Family
Drawing by Matthew French
The Rainmaker Institute
Lunch Sponsor - $500
Sechler Morgan CPAs PLLC
Christopher Tiffany accepts check
for $56,000 from Mitch Owens Beverage Sponsor - $500
Hadges Family Charitable Fund 5Thank you to our 2018-2019 Donors
Your generosity helps us serve thousands of families each year.
$500 - $999 Tracy Bame
Allysa Adams Christopher and Paulina Tiffany
Anita Kadikar Katie Barclay Penkoff
William Corry Mark and Janna Murrell
Cari Morris Louise and Phillip Murphy
Christopher Makrias Sonia Carver
Donald and Danielle Needham Tonya Gray
Dr. Daniel Davidson Barbara Brent
Dr. Emily and Nick Andrisevic Christina Hudson and Craig Prichard
Dr.Vaughn Perkins III Dan Kammrath
Ellen Wilson Jan and Bill Cawthorne
$10,000 - $75,000 Emily McCune Machelle and Craig Martin
Renaissance Charitable Evangeline and Patrick Buckley
Foundation, Inc./In honor of the Gayle Nobel $250 - $499
Resslar Family Heather Prouty Phil Pangrazio
Carescape, Inc. Janet Moeur Sandy Bawden
$2,500 -$9,999 Jenine and Jason Slocum Aleta Speier
Jennifer Roberts Alisha Mihoda
The CHA-07C Foundation Trust/
Jo Ann and Gordon Watkins Amy and Kevin Bonner
Chapman Automotive Group, LLC
Joseph Hansen Andrew and Dr. Jodi Carter
The Hannah B Foundation - Brad
Kathy McDonald Anthony and Marti Baio
Perkinson
Kerstin Ziesmer Bob Colabianchi
Phoenix Children’s Hospital Lisa and Jon Soeby Cherie Wright
Karen Barr Lisa Davis Christopher Gentis
Lawrence O’Neill Marc and Susan Voirol Jane Rucker
Donna and Denis Wienhoff Marcee and David Kahan Jody and Bob Brigham
$1,000 - $2,499 Marianne and Rich Langner John and Maureen Mills
JDM Route 66 Classic, Greg and Mark Ruggiero John and Michele Quinn
Becky Childs Matthew and Rebecca Barr John and Amy Guzek
Jennifer and Steve Kupiszewski Megan Pitas Julie Lazzara
Melissa and Dr. Judson Karlen Kelly Carbone
Chuck and Donna Riser
Michael and Nancy Maser Kim Updegraff
Rebecca and Isabella Parisi
Molly and John West Lauren Daniels
John Hoie and Joyce Millard Hoie
Nagaratnam Murugaiah and Vijaya Leticia Barrera
Alan and Michelle Tinsley
Thannimalai Madelyn Harper
Lisa and Matt D’Alesio Nicole Madera Margaret Corcoran
Paula and James Banahan Peter and Erika LeBlanc Marilyn and Kirk Peda
Suzy and Tim Noren Raghu Rudra Mary Resslar
Karin Smith Randi Dando Mary Slaughter
Kathleen Ybarra Regan and Rigoberto Lopez Pam and Mark Remsey
Laura Alger Sally and Richard Compton Paul Metz
Sharon Moyer Susie and Nate Hastings Peter and Sharon Flanagan-Hyde
Tequa Salehi-Rad Polly Thomas
Terry Cole Rene Bartos
Special Day for Special Kids
A fun day for families of children with
disabilities and special health care needs
held at McCormick-Stillman Railroad Park
sponsored by Scottsdale Sunrise rotary Club –
co-sponsored by Raising Special Kids.
61,846
Hours
Total 1,846 hours would
equal over $47,000
Donated
Rodrigo and Claudia Jaramillo Leslie and Jim Cole James Beal Cheryl Klein
Ross Robb Leslie Williams Jean Richmond-Bowman Chuck and Nancy Smith
Stephanie Lynch Manda and Matthew Chatelain Jill and Michael Walker Dolores Rios
Sue Koudelka Marilyn Coffman Jodi Feuerhelm Dr. Raun Melmed
Tanya and Daniel Gulchak Mary Neil John Skelton James and Chris Speros
Terry Manning Michael Tucker Joy and Terry Tiffany Jess Carrasco
Trish Robinson Sarah Boroson Juliet Tiffany-Morales Kathy Gray-Mangerson
Troy and Lisa Stockstad Shoshana Mayden Kara and James Swierz Laura and Chris Ames
William and Ellen Leibow Thomas and Pamela Halpern Karen Bannon Marianne and Kenneth Kennedy
William and Megan Froelich Tom and Ann Timmer Kate Dulaney Mark Elson
William Weiss Vickie and Steve French Kimberly Wright Matt Aud
Karl and Elizabeth Freeburg Patty Olson Kristopher Stathakis Melissa Kovacs
Eugene Huang Nilda Townsend Lizbeth Leeson Robert Allen
Medtronic Marisue Garganta Mallory Lee Shauna Mattson
Claudia Weiss Michael and Kari Sanderfer Maureen Casey Shirley Bentle
Kristen and Steven Roles Michaelene and Steuart Barlow Megan Davis Dey Trudy Billy
Chaya Ryan Amanda Manning and Dylan Rybinski Michael and Kelly Randall Boris Najac
Juan Valdez Neil Wintle Michelle and Arvid Faudskar Marj and Jane Dalen
Patrick Budge Andrew Evans Michelle Carr Nancy Kiernan
Joseph Errante Jenny and Collin Gibbons Pat Gottfried Francisca Morquecho
Nancy Gunderson Julie Alvarado Ramya Kumar Ahmet Cekirdek
Paul Tiffany Andrew Norelli Ronald Dalton Connor Minto
Rebecca Theunissen Chellappan Narayanan and Vinodh Rosemary and Brad Johnson Dana Fredericks
Michael Woodard Naranyanan Sarah Anderson Dick Kowalski
Elsie and Victor Badger Narasinga and Shobha Rao Scott and Stephanie Nelson Jacqueline Guerra
Jill and Jonathan Nico Alan and Ellen Rothbart Scott Sherman Leslie Tjarks
Joann Niese Alfonso and Heather Perez Shari Capra and Neil Wake Margaret Mills
John and Michelle Bartlett Alice Villarreal Shirley and Jerry D Gerk Michael Lachenauer
Joseph Osiecki Andrea Piering Stephen Snyder Nannette and Ched Salasek
Art Kesh and Allison Dibble Steve LaMagna Ramona Napier
$100 - $249 Betsy and John Trombino Steven and Jane Carter Tonya Hall
Patricia Winner and Tom Snidecor BIll Mager Suzanne Olea-Turney Vicky and James Rozich
Esmeralda Vasquez Bob Dekruyff Tanjela Sims Virna Valenzuela
Edith Barrera Carolyn Sostrom Todd Liolios Terra Garcia
Fred and Anna Burgmann Carrie Bruce Nancy Campbell
to $99
Anne Updike David Permuy Freda Mills
Great American Title Agency
Bob and Shannon Goldwater Dean and Janice Dinner Laurie Shook
Ellen Rutemiller
Bonnie and John Carroll Dr. Robin Blitz Rachel Hanzuk
Mark Bazill
Corinne and Ronald Newbold Dr Mary Allare Juan and Angelica Lara
David and Kristie Amator
Dr. Lynda Mills Drs Marlene and Richard Greyson
Adam Brooks
Frymet Hare The Fahrenheit Group, LLC
Amy Seiter
Gary and Amy Heinfeld George Chonczynski
Bonnie Bazill-Davis
Kathryn Tiffany and Justin Santos Gregg Kerns
Charlene Littrell
Keith Aspinall Greg Lechowski
First Annual Uncommon Event for Extraordinary Kids
Sierra Vista fun day for children with disabilities
and special health care needs and their families
sponsored by the San Pedro and Sierra Vista
Kiwanis Clubs – co-sponsored by Raising
Special Kids.
7Raising Special Kids
19 Board Members
27 Staff Members
27Advisory Council Members
250 Parent Leaders
Boards and Councils Served by Raising Special Kids Staff
Arizona Autism Coalition Cochise County Networking Coalition
5025 E. Washington St., #204
Phoenix, AZ 85034 Arizona Community of Practice on Transition Comprehensive Systems Task Force
800-237-3007 Arizona Department of Education Community of Practice on Cultural and Linguistic
• Arizona Community of Practice on Transition (AZCoPT) Competence on Developmental Disabilities
raisingspecialkids.org
• Cochise County Community of Practice on Transition Early Childhood Personnel Center (ECPC)
info@raisingspecialkids.org • East Vally CoPT
First Things First, Early Childhood Comprehensive
• Flagstaff CoPT
System Task Force
• Mohave county CoPT
STATEWIDE SERVICES • Pima County CoPT Institute for Human Development - Community
• Tuba City CoPT Advisory Council
Central Arizona • Education Advisory Committee Interagency Coordinating Council (ICC)
602-242-4366 • Local Community of Practice on Transition
• Special Education Advisory Panel (SEAP) Maricopa County Family Support Alliance
Northern Arizona • State Inclusion Coalition Mohave County Special Needs Advisory Coalition
928-444-8834 (SNAC)
Arizona Disability Advocacy Coalition
Southern Arizona Parent 2 Parent USA
Arizona Division of Developmental Disabilities (DDD)
520-441-4007 • Advisory Council Phoenix Children’s Hospital
• Arizona Developmental Disabilities Planning Council • Family Advisory Council
• Employment First Pima County Community of Practice on Transition
• National Core Indicators Steering Committee
Pima County Family Support Alliance
Arizona Early Intervention Program
Shift Project Governing Board
• ICC Interagency Coordinating Council
• Early Childhood Personnel Center (ECPC) Southern Arizona Special Education Directors’ Group
Arizona Health Care Cost Containment System Southern Arizona Transition Consortium
(AHCCCS)
• Arizona Long Term Care Services (ALTCS)
Advisory Council
• Autism Spectrum Disorders Advisory Committee
• Autism Spectrum Disorder Crisis Workgroup MeetingYou can also read
