Privacy & Confidentiality 2021
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Privacy & Confidentiality “Privacy” is the fundamental right to control information about ourselves (including the collection, use and disclosure of and access to that information) “Confidentiality” is an obligation to protect personal health information, to maintain its secrecy and not misuse or wrongfully disclose it
Personal Health Information Act (PHIA) • “Need to Know” and “Minimum Amount” • Governs PHI collection, use, disclosure, retention and destruction in health care • Balance of 2 objectives: patient privacy rights and information needs of custodians to provide, support and manage health care • Provides a set of rules for “custodians” and their “agents”
Personal Health Information (PHI) 4 Any identifying (directly or indirectly) information about an individual (recorded and unrecorded) if the information relates to: • Physical or mental health, including health history • Application, assessment, eligibility and provision of health care and identification of health care provider • Payments or eligibility for health care • Donation of any body part, bodily substance or the testing or examination • Registration information, including health-card # • Identifies an individual's substitute decision- maker NS PHIA
Disclosing PHI Disclosures Disclosures Disclosures Where Requiring Express Requiring Implied no Consent is Consent Knowledgeable Required Consent To a 3rd Party (Lawyer, To another healthcare When there is a Insurance Company, provider who is also Warrant or Subpoena Police) caring for the patient. Except for location To other healthcare Mandatory Reporting and general condition professionals caring (ok without consent for the patient unless patient objects) to Family and Friends (as long as the patient has capacity) Research To a SDM when the Research where an patient lacks capacity. REB Waiver of Consent is Obtained
Photography and Patients-What does CMPA Say? Patients' photographs or videos should be treated as their personal health information. This is especially so if these depict sensitive or private parts of the body or include items that could identify the patient, such as a birthmark, a ring, the face, or a unique anatomical feature. A patient's implied consent is sufficient when you are collecting, using or disclosing an individual's personal health information to provide health care within the circle of care, for example to monitor disease, for surveillance of nevi, etc. However, a patient's express consent must generally be obtained when you share his or her personal information for purposes other than providing health care…..Given the recent strengthening of Canadian privacy legislation, it would be wise to obtain the patient's express consent at the time the photographs or videos are shot. What should be included in the informed consent discussion for the use of photographs and video for educational purposes? •the reasons for taking the photographs or video •what will be photographed or recorded, for example, what anatomy or aspect of the disease •whether the patient will be identifiable •the possible purposes or applications •who may be authorized to access the photographs or video, and in what context •the patient's right to refuse, withdraw, or modify consent Patients should not feel pressured and the discussion should be documented in the patient's medical record. https://www.cmpa-acpm.ca/en/advice-publications/browse- articles/2011/using-clinical-photography-and-video-for-educational-purposes
Knowledgeable Implied Consent Knowledgeable Implied Consent is established by sharing our Information Practices with our clients. When collecting, using, or disclosing information based on Knowledgeable Implied Consent make sure that you place yourself in the position of the patient and ask: Would this person reasonably expect to have that information collected, used, or disclosed in that manner under those circumstances?
PHIA - Safeguards • NSHA is the Custodian of all patient data that is generated from patient care at NSHA facilities. • As custodian NSHA is ultimately accountable to the patient for safeguarding information from breach.
PHIA - Safeguards Safeguards are in place to protect personal health information from: • Theft or loss • Unauthorized access to or use, disclosure, copying or modification of the information
PHIA Safeguards- Paper PHI • Paper based PHI should only leave the premises in locked bags • Be careful with patient lists and notes, we have had numerous breaches of lists found on the street or in the cafeteria • Ensure that paper PHI is disposed of properly in locked shred bins.
PHIA Safeguards - Electronics • Do not use a personal device to capture PHI • If you have an NSHA issued personal device and it is lost or stolen notify the help desk so it may be remotely wiped. • Devices must remain in a secure location when off premises. • Patient consent is required for photos or videos, this must be documented express consent. • Photograph and videos are considered PHI under PHIA if taken for patient care purposes, other photos or videos taken as an agent of NSHA (or other public body) may be considered subject to release under FOIPOP.
PHIA-Safeguards – E-mail • Personal E-mail should never be used to communicate about patients. Always use your nshealth e-mail address. • If sending to an e-mail outside of the nshealth network you must use the secure e-mail system – SEND. • PHI must not be included in the subject line. • Communicate the minimum amount of information needed. • Immediately delete emails containing PHI from the mailbox when the information is no longer required and once the email has been stored in the legal health record.
What does CMPA Say about e-communication? Communication via email and messaging Despite their pervasiveness and convenience, email and texting are often the least secure communication tools…..The risks of interception or errors in sending email, texts, or instant messages can be significant. For these reasons, some privacy commissioners have indicated that using unencrypted email and texting with personal health information should be avoided…… Despite any disclaimer physicians may include in the message, they remain responsible for protecting patient health information and preventing unauthorized access. Privacy legislation generally requires that custodians adopt safeguards to protect the personal health information under their control……. Physicians considering using unsecured or unencrypted email or messaging should do so only for information that does not include identifiable personal health information. https://www.cmpa-acpm.ca/en/advice-publications/browse- articles/2013/using-electronic-communications-protecting-privacy
Don’t Get Reeled in by Phishing Scams 9 Signs of a Phishing Scam 1 Generic salutation 2 Spelling & grammar errors 3 Asks you to click a link to reset 4 your password Requests personal information 5 High urgency or threats 6 Fake addresses or web links 7 Asks you to enter account information 8 Lacks contact information 9 Rewards that seem too good to be true If you suspect a phishing scam, do not click on any links or open attachments. Forward the email immediately to reportphishing@nshealth.ca and delete the email.
PHIA – Patient Rights • Provides a right of access to a patient’s PHI or to get copies • PHIA confers a right for patient to request a correction of their record if patient believes their record is not accurate, complete or up to date • PHIA allows for request of a “Record of User Activity” – a list of people who have looked at patient’s health information on an electronic system • PHIA allows patients to revoke consent (even implied) for the collection, use, or disclosure of their PHI. Revocations cannot be retroactive.
Auditing of Electronic Systems Records of User Activity • RUA is a record of who accessed PHI of an individual or a period of time. • Audits show the date and time of access, who accessed the record, and what was accessed. Fairwarning Auditing • May be requested by a manager or run as a regular random report sent to Privacy Officer • Follow up is done by Privacy and the Leadership when an audit shows questionable access
Self Look Up – Why an Issue? • Breach of NSHA policies and procedures • Not a Need to know for their role • Clinicians not supposed to treat themselves (Fundamental Responsibilities #20, CMA Code of Ethics). • Staff/physicians need to follow the same process as everyone else in province • Not appropriate use of organization resources • When investigated, many who looked up own records also inappropriately accessed records of other individuals (family, co-workers, acquaintances)
What Access is Authorized? • Having access to, using, or disclosing the minimal amount of information that is needed to know to perform your role.
What is unauthorized? • Accessing information or more information than you need to know to perform your role • Accessing information that is not permitted by legislation or policies & procedures, i.e. Self or family look-ups Sharing your sign-on information with others in order to access the medical record or using someone else’s sign-on Asking someone to look up patient information if it is not part of their role.
When can I look up a record?? • The only time it is appropriate is if you are caring for that patient and the information is required for that episode of care. • As part of a research study, following the approved e-health process (i.e. through a study queue) • Approved (or requested) safety or quality reviews • As needed for educational purposes • ALWAYS only access the minimum amount of information required for the task at hand.
What does CMPA say about Privacy and E-Health Records? Patients whose privacy has been compromised may suffer discrimination, stigmatization, and economic or psychological harm….Additional stress is particularly detrimental to patients who are already vulnerable due to health problems…..Most importantly, patients whose privacy is breached might lose trust or confidence in the health system. A survey of Canadian patients confirms that privacy concerns may influence how and when they connect with the health system. Patients concerned about privacy may refrain from seeking tests or treatment, engage in multiple doctoring, or withhold or falsify information, all of which have serious implications for those attempting to treat or provide care. 2 Since doctors are expected to reasonably protect patient health information, privacy breaches may also have negative consequences for physicians. These can include patient complaints to a privacy commissioner, medical regulatory authority (College) investigations, possible sanctions by both, as well as lawsuits. https://www.cmpa-acpm.ca/en/advice-publications/browse-articles/2013/managing-access-to-electronic-health-records
Privacy Breaches Privacy Breach – an incident where PHI entrusted to you/organization is lost, stolen, or subject to unauthorized access, use, disclosure, copying, or modification. All breaches must be reported in the SIMS system or to Privacy for investigation Breaches can be nonintentional or intentional
Non-intentional Breaches • Misdirected faxes, emails and mail • Mis-labelling documents • Losing a list or notes from rounds • Sending text messages or taking photos containing PHI without consent of the patient • Leaving documents around/ visible to public • Losing an electronic device containing PHI • Conversations about patients in public places, hallways, or in rooms without closing the door.
Intentional Breaches •Social media postings about patients •Accessing records of friends, co-workers, family if you are not treating them (with or without permission) •Sharing your login name password / using someone else’s password •Asking someone to look up information when it is not part of their job •Identity theft or fraud or using PHI for personal gain
Resources CMPA Electronic Records Handbook https://www.cmpa-acpm.ca/static-assets/pdf/advice-and- publications/handbooks/com_electronic_records_handbook-e.pdf CMPA Article Regarding Accessing E-Health Records https://www.cmpa-acpm.ca/en/advice-publications/browse- articles/2013/managing-access-to-electronic-health-records CMPA Article Regarding Photos and Videos https://www.cmpa-acpm.ca/en/advice-publications/browse- articles/2011/using-clinical-photography-and-video-for-educational-purposes CMPA Article Regarding Privacy and e-Communications https://www.cmpa-acpm.ca/en/advice-publications/browse- articles/2013/using-electronic-communications-protecting-privacy
Your Central Zone Contacts Angela Currie– Central Zone Privacy Officer (902) 464-3150 Angela.Currie@nshealth.ca Karen Hornberger Provincial Director of Privacy (902) 473-2674 Karen.hornberger@nshealth.ca Or e-mail Privacy@nshealth.ca
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