Our Choices Our Voices - Australian Human Rights Commission
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Our Choices Our Voices A report prepared by the Lowitja Institute for the Close the Gap Steering Committee | March 2019 OUR VOICES, OUR CHOICES. | i
Contents Acknowledgements This report is a collaborative effort of the Close the Gap Campaign Steering Committee. Funding for the report was provided Foreword...............................................................................................1 by Oxfam Australia. Authors: The Lowitja Institute Introduction...........................................................................................2 Consulting team: Mary Guthrie, Tahlia Eastman, Leila Smith, Romlie Mokak PRIORITY THEME 1 Editors: Mary Guthrie, Targeted, Needs-based Primary Health Care 6 Tahlia Eastman, Romlie Mokak Birthing on Country Project ...................................................................................7 Cristina Lochert, Fiona Walls Institute for Urban Indigenous Health – Inner City Referral Service......................9 Design and Layout: Hyve Design Family Wellbeing Empowerment Program for Young Aboriginal Men.................11 Printing: Indigi-Print Published by: The Close the Gap PRIORITY THEME 2 Campaign Steering Committee Responsive Health Care System 13 @ Close the Gap Campaign Steering Committee for Northern Territory Aboriginal Health Academy Project........................................14 Indigenous Health Equality, 2019 Health System Reform – Winnunga Prison Health Service.................................16 This work is licensed under the Anaemia Prevention Program, Katherine East, Northern Territory......................18 Creative Commons Attribution – NonCommercial – ShareAlike IndigiLez Leadership and Support Group............................................................20 2.5 Australia License. To view a copy of this license, visit: http:// PRIORITY THEME 3 22 creativecommons.org/licenses/ by-nc-sa/2.5/au or send a letter to Good Housing for Good Health Creative Commons, 171 Second Yawuru Home Ownership Program......................................................................24 Street, Suite 300, San Francisco, California, 94105, USA. Torres Strait Island Regional Council....................................................................26 Copies of this report and more Mununjali Housing and Development Company Ltd...........................................27 information are available to download at: www.humanrights. gov.au/social_justice/health/ Endnotes.............................................................................................28 index.html and www.antar.org.au/ close-gap Acronyms and Abbreviations..............................................................32 Cover Photo: Smoking Ceremony, Welcoming Waminda Goodjaga’s on Yuin Country. L–R; Gemmah Floyd, Elizabeth Luland, Patricia De Vries and their babies. Photo by Jerusha Sutton Photography; courtesy Waminda South Coast Women’s Health and Welfare Aboriginal Corporation. Aboriginal and Torres Strait Islander people should be aware that this document may contain images or names of people who have since passed away. ii | OUR VOICES, OUR CHOICES.
Foreword It is of great concern to us, the Close the Gap Campaign—as indeed it should be to the Australian nation—that the target to close the gap in life expectancy between Aboriginal and Torres Strait Islander people and non-Indigenous people by 2031 is, in 2019, widening rather than closing.1 In his Closing the Gap Report 2019 to Parliament, the Prime Minister acknowledged that this target is not on track.2 In the past, we have provided a ‘Shadow Report’ including a ten-year review published in 2018. The review assessed the most significant national effort to date to improve Aboriginal and Torres Strait Islander health—the 2008 Council of Australian Governments’ (COAG) Closing the Gap Strategy—with its target to achieve life expectancy equality by 2030.3 In 2019, the Campaign is taking a different approach to its report. After identifying what we believe are urgent priority themes for addressing the health gap, this year we are highlighting stories that illustrate success from Aboriginal and Torres Strait Islander perspectives. The report addresses the following three priority themes: • Targeted, needs-based primary health care • Responsive health care system • Good housing for good health. The stories profiled in this report demonstrate that when Aboriginal and Torres Ms June Oscar AO Strait Islander people are involved in the design of the services they need, we Aboriginal and are far more likely to achieve success. These stories illustrate that ‘our choice Torres Strait Islander and our voice’ are vital if we are to make gains and start to close the gap. Social Justice Commissioner The Campaign welcomes the announcement in December 20184 that Mr Rod Little governments will work in true partnership with Aboriginal and Torres Strait Co-Chair Islander peoples, and their appropriate organisations and representatives. National Congress of This is a critical time for the government to work hand-in-hand with us on Australia’s First Peoples solutions, to ensure we turn this gap around and do not allow it to widen any further. Co-chairs - Close the Gap Finally, as Co-Chairs, we sincerely thank the almost fifty Close the Gap Campaign Campaign members for their contribution to this work. We could not do what we do without the enduring support and commitment to better health outcomes from our membership. OUR VOICES, OUR CHOICES. | 1
Introduction To address the widening life expectancy gap between Aboriginal and Torres Strait Islander people and non- Indigenous Australians, we have identified three priority areas that must be addressed. We have illustrated what success looks like in these areas, from varying Aboriginal and Torres Strait Islander perspectives, via stories that highlight Aboriginal and Torres Strait Islander voices and leadership. The three areas of focus for this The overriding principle throughout year’s report are: the stories is that the success of these initiatives is based on • Targeted, needs-based community governance and primary health care leadership, which is imperative • Responsive health care system to the success and longevity of the programs. The stories also • Good housing for good health. highlight the importance of cultural FIGURE 1: Gap between Indigenous and non-Indigenous life expectancy5 Gap between indigenous Gap between indigenous and non-indigenous Males and non-indigenous Females 10.2 2001-2005 9.6 10.2 2006-2010 10 10.8 10.6 2011-2015 2 | OUR VOICES, OUR CHOICES.
determinants of health such as health and wellbeing. Overcrowded strength, resilience, identity and and unhealthy housing is a major importantly—self-determination. factor in the spread of diseases and a strong contributing factor to Aboriginal Community Controlled poor health, especially in young Organisations (ACCOs) are an children. Again, as recommended in essential success component of the our ten-year review, the Campaign provision of holistic, affordable and sees it as vitally important to have appropriate primary health care for a national, overarching health Aboriginal and Torres Strait Islander infrastructure and housing plan to people. ACCOs have a proven track address this need. record in delivering effective and cost-efficient primary health care. The Campaign welcomed the 2018 We, the Campaign, continue to Council of Australian Governments urge investment in targeted, needs- (COAG) decision to establish formal based comprehensive primary partnership arrangements between health care. This is essential in COAG and Aboriginal and Torres addressing the unacceptable health Strait Islander peoples through disparities between Aboriginal and their peak bodies on Closing the Torres Strait Islander and non- Gap.6 We support the work of the Indigenous Australians. We strongly Aboriginal and Torres Strait Islander support increased investment in peak bodies in their negotiations ACCOs to increase the quality and with governments on the details accessibility of culturally sensitive of the partnership. This will be an and appropriate health care where it historic agreement and, if we get it is needed most. right, Aboriginal and Torres Strait Islander people will have shared We call for governments to commit decision-making in the design, to an Australian health care system implementation, monitoring and that is responsive to the needs of review of Closing the Gap policies Aboriginal and Torres Strait Islander and programs for the first time. peoples. This means building a robust, equitable and transparent The establishment of a Joint COAG health care system where and Aboriginal Torres Strait Islander institutional racism is acknowledged Council on Closing the Gap7 has and addressed; where cultural the potential to be a significant safety training is recognised milestone in the relationship and valued as an important step between governments and in closing the gap; and where Aboriginal and Torres Strait Islander Aboriginal and Torres Strait Islander peoples and is a much-needed step people are integrated in to health to make the necessary gains to professions across workforce. close the gap. Health and housing are inextricably There are many Aboriginal and linked. It has long been understood Torres Strait Islander individuals that housing is a significant and organisations whose everyday determinant of Aboriginal and work is improving health outcomes. Torres Strait Islander peoples’ OUR VOICES, OUR CHOICES. | 3
We urge governments to take peoples and communities, including advantage of this important our young people. source of leadership, expertise, Importantly, the stories also reflect guidance and networks, and to the principles of the United Nations recognise how these valuable Declaration on the Rights of qualities contribute towards the Indigenous Peoples. They affirm the success of programs included in unique contribution that Aboriginal this report and beyond. and Torres Strait Islander peoples This report draws on Aboriginal make to the diversity and richness and Torres Strait Islander-designed of civilisations and cultures and and led initiatives. The stories promote cultural diversity and demonstrate enormous diversity in understanding. the way Aboriginal and Torres Strait The Campaign’s work is grounded Islander peoples are making things in a human rights approach to work in our communities, tailored health. We are committed to for local aspirations and goals. harmonious relations—based on It is important to note that what partnership, engagement and works well in one community may cooperation—between states and not replicate in other communities. Indigenous peoples, as well as However, the principle of self- mechanisms to support this at determination must apply, and national and international levels. acknowledge that Aboriginal and Torres Strait Islander peoples Working in genuine partnership know what works for our own means that governments and lives, families and communities. agencies must understand that Success in this context means that Aboriginal and Torres Strait Aboriginal and Torres Strait Islander Islander peoples have a deep peoples have created, designed and and long-standing appreciation implemented our own solutions, in of the issues and the solutions our voice and choices. related to our health and wellbeing. Governments have been attempting The stories featured in this report to resolve these issues, broadly, were obtained through a referral and for decades, and more specifically a highly engaged interview process; through the 2008 Closing the Gap they highlight programs at various targets. Aboriginal and Torres stages of implementation. Strait Islander people witness the Throughout the interviews, we constant turnover in governments heard repeatedly that insecure and agency arrangements, and the and insufficient funding is a consequent changes in policy and significant limitation to longer-term program approaches – not always success. This confirms what the for the better. Funding cuts and Campaign has always identified: freezes have a debilitating effect on that funding limitations, especially effective delivery of programs and where funds are not directed to services. services delivered and designed by It is critically important that Aboriginal and Torres Strait Islander governments commit to this matter people, compromise the health, beyond rhetoric. This can be wellbeing, and the lives of our 4 | OUR VOICES, OUR CHOICES.
achieved through closer alignment supporting Aboriginal and Torres between words and actions. Strait Islander led initiatives and a Aboriginal and Torres Strait Islander commitment to working in genuine people can lead this process, with partnership, governments can genuine support from governments. address this critical health policy challenge for a population of 3 The Campaign remains committed per cent of Australia’s citizens. We to addressing health outcomes for believe it is a matter of significant Aboriginal and Torres Strait Islander urgency for the Australian nation. people. We are optimistic that, by The position and the work of the Close the Gap Campaign is underpinned by the following principles: The Campaign is underpinned by a human rights approach The Campaign believes that self-determination is a defining factor in improving health outcomes, and that this should be reflected in all efforts to close the gap The Campaign reaffirms the recommendations of the 2018 Close the Gap Ten-Year Review to reset the future approach to the Federal Government’s Closing the Gap strategy. The Campaign fully supports The Uluru Statement from the Heart (Uluru Statement), which resulted from wide and meaningful dialogues across Aboriginal and Torres Strait Islander communities in Australia The Campaign is committed to empowering Aboriginal and Torres Strait Islander voices, including calling for an Indigenous representative voice to Parliament as recommended in the Uluru Statement OUR VOICES, OUR CHOICES. | 5
PRIORITY THEME 1 Targeted, Needs-based Primary Health Care Aboriginal and Torres Strait Islander people have a right to access the health care we need, in the location we choose. Yet, the life expectancy gap is widening, not closing8 and health and wellbeing statistics are alarming. For example, the data pointing to suicide rates,9 a burden of disease at 2.3 times that of the non-Indigenous population,10 and chronic disease such as diabetes,11 continue to be of serious concern to the Campaign. We stand by the recommendations made in the ten-year review and we remain committed to working with all governments to achieve health equity for Aboriginal and Torres Strait Islander peoples. Aboriginal community controlled organisations are an essential component of the provision of holistic, affordable and appropriate primary health care to Aboriginal and Torres Strait Islander peoples. ACCOs provide holistic and comprehensive services, both designed and led — by the community — for the community. Services and programs include treatment and management, prevention and health promotion, as well as addressing the social and cultural determinants of health. The stories that follow are representative of and designed for local need. They are not always transferrable between communities; however, some elements could be applied across the country, and internationally. For example, the Institute for Urban Indigenous Health (IUIH) Inner City Referral Service could be seen as a potential model for cities and towns, adapted as needed for individual settings. Throughout this report, each story shares a common strength in leadership, initiation and design by Aboriginal and Torres Strait Islander peoples and incorporate our voices and choices. The programs reflect the diversity of ACCOs measures of success and echo the need for community control, with each story highlighting how these measures have influenced the success of their respective programs. 6 | OUR VOICES, OUR CHOICES.
TARGETED, NEEDS-BASED PRIMARY HEALTH CARE PRIORITY THEME 1 Birthing on Country Project The Birthing on Country While there is a long history of Aboriginal and Torres Strait Islander A metaphor Project provides Aboriginal led birthing programs, the Birthing for the best and Torres Strait Islander on Country Project is currently women access to culturally piloting two programs in Australia: start in life. and clinically safe, inclusive • South East Queensland in Birthing on Country collaboration with Indigenous Workshop Report 201212 care that incorporates Urban Health Institute and cultural birthing traditions Aboriginal and Torres Strait within mainstream Islander Community Health Services Brisbane, and maternity services.13 • Nowra, New South Wales, It was established by the Congress alongside Waminda South Coast of Aboriginal and Torres Strait Women’s Health and Welfare Islander Nurses and Midwives Aboriginal Corporation. PHOTO: Smoking Ceremony; Welcoming (CATSINaM), the Australian College Waminda Goodjaga’s on Yuin Country Mum The Birthing on Country Project for Midwives (ACM), and members and Bub; Elizabeth Luland & Nat McLeod; develops the Aboriginal and photo by Jerusha Sutton Photography; of the University of Sydney and Torres Strait Islander workforce by courtesy Waminda South Coast Women’s University of Queensland. Health and Welfare Aboriginal Corporation OUR VOICES, OUR CHOICES. | 7
PRIORITY THEME 1 TARGETED, NEEDS-BASED PRIMARY HEALTH CARE offering a culturally safe workplace pregnancy. She also said that treated like a woman expecting with opportunities for growth.14 having her second child using the a baby, and not a person with an Aboriginal and Torres Strait Islander program was much easier, feeling illness’. Health Workers in support roles confident knowing she had full have options to upskill at the first support from the Aboriginal and A common thread shared by Aboriginal and Torres Strait Islander Torres Strait Islander midwives participants was that the success Birthing Centre in Nowra — set to and health workers: ‘The Birthing of the birthing programs was due commence construction in 2020. Program is built on a background of to the leadership and ongoing understanding – the Aboriginal and development by Aboriginal and ‘I’m aware of Aboriginal and Torres Torres Strait Islander midwives and Torres Strait Islander people. Strait Islander health workers who health workers understood my family Program stakeholders felt that one of have enrolled in a Bachelor of background and became my friends the main barriers of non-Indigenous Midwifery since there is a guarantee during the process.’ led birthing programs was that they that identified roles for Aboriginal operate out of a mainstream hospital and Torres Strait Islander people will Accessible birthing programs or health service, making the be available with the new Birthing increases the likelihood of process less culturally safe. Centre opening in Nowra’ said Aboriginal and Torres Strait Cherisse Buzzacott, an Aboriginal Islander women who were once The opening of the Nowra midwife working with the ACM. cautious, didn’t feel comfortable, Aboriginal Birthing Centre is set to Cherisse also commented that or refused to present at be ground-breaking. It will create working for communities that are mainstream services, to now opportunities for Aboriginal and driven and passionate fires her up. access complete care and feel Torres Strait Islander mothers to ‘It has been fulfilling to see how the culturally safe knowing that this experience holistic care outside program has progressed in the past program nurtures individual needs mainstream services; it will expand 12 months, with the community in from the beginning of pregnancy the Aboriginal and Torres Strait Nowra independently coming up to the end. Islander workforce; and will utilise with ideas to ensure the program the skills and leadership found in launches successfully.’ Hayley Longbottom used the Mums Aboriginal community controlled and Bubs Birthing Program run by health services. The experience and Karina Hogan, who participated Waminda and told us how ‘knowing hopes of participants and workers, in the Birthing in Our Community that when I was to become a mum voiced by Karina, is that the Birthing Program in Queensland, said that again, my experiences from my on Country project ‘is the bridge to the program made her feel prepared previous children was going to be giving babies the best start in life’. about what to expect for her first different. I was comfortable, I was FIGURE 2: Maternal and infant health outcomes of women in a Birthing on Country Program compared to Aboriginal and Torres Strait Islander women nationally, ANC = antenatal care, graph taken from Birthing on Country case study.15 100 Aboriginal and Torres Strait 90 Islander women nationally 2013 80 Birthing on Country women 2013 70 Percentage 60 50 40 30 20 10 0 ANC in 5+ ANC Visits Casarean Low birth Preterm Neonatal 1st Trimester (babies
TARGETED, NEEDS-BASED PRIMARY HEALTH CARE PRIORITY THEME 1 Institute for Urban Indigenous Health – Inner City Referral Service The Institute for Urban empathy. He said he ‘loves being Indigenous Health’s (IUIH) able to work with mob who may It works because its require extra support initially but Inner City Referral Service who grow to be able to advocate for (ICRS) is an outreach themselves and seek appropriate supports and services as need run for Mob service that supports arises. Seeing someone who has by Mob. Aboriginal and Torres Strait never had a place of their own obtain and maintain their own housing and Randall Frazer, Team Leader Islander people who have linking someone who hasn’t received alcohol, tobacco and other any support for their health issues drug and/or mental health with the appropriate continuing care is very rewarding’. and/or chronic health As with many Aboriginal and issues, living within a five- Torres Strait Islander services, lack kilometre radius of the of secure funding is a barrier to Brisbane GPO. sustainable service delivery. With extra funds and certainty of funding, The program utilises a number ICRS could more effectively meet of approaches – intensive case community needs. Other barriers to management, assertive outreach greater success include the inability to provide brokerage and co- FIGURE 3: and strengths-based, community Homelessness, Queensland, 2016 Census16 and family focused practice. Randall ordination with other agencies and Frazer, a Bidjara man, Team Leader services, and a coherent strategy of with the ICRS, said that ‘we have service provision across all levels. Homelessness Queensland a network of twenty Aboriginal These would assist to address community-controlled clinics and the needs of the community more other services that we can link mob consistently. into through our system of care Randall noted that ICRS is often 21% which opens the door to medical, the only service to break through allied health, dental and other health to people who do not or cannot services. We can also link our mob access other services. ICRS have to broader social services supports, successfully housed Elders back on 79% including housing’. their own country at times of terminal Resilience and dedication to working illness, supported young women to with Aboriginal and Torres Strait access domestic violence services Islander communities are strong and obtain their own housing in a Aboriginal and/or themes of the ICRS. Randall believes safe environment, and linked people Torres Strait Islander people that the program works because experiencing severe mental illness to of the respect, compassion and appropriate specialised care. Non-Indigenous people OUR VOICES, OUR CHOICES. | 9
PRIORITY THEME 1 TARGETED, NEEDS-BASED PRIMARY HEALTH CARE “Tony” (not his real name) is a consumption. ICRS also provides Aboriginal and Torres Strait Islander 33-year-old Aboriginal man who was guidance with paying rent and bills, people in Queensland comprise 4.9 removed from his single mother’s and with the support of ICRS, he per cent of population, and 21 per care and had suffered physical has had not returned to prison. He cent of the total homeless population and emotional abuse at the hands successfully maintains a tenancy, in Queensland.17 Nationally, of carers. As a teenager he was he regularly accesses physical Aboriginal and Torres Strait Islander sent to an institution where he was and mental health services and is people made up 20 per cent sexually and physically abused. He connected back into the Brisbane of the total national population spent his entire adult life either in Aboriginal community. experiencing homelessness.18 prison or homeless in the inner-city area. He didn’t have the necessary Randall said that skills or ability to self-regulate his ‘we respect the human rights and emotions and was at risk of being the self-determination of our Mob excluded from the support agency and value their autonomy to make that referred him to ICRS at the start their own decisions and live the lives of the year. they want to live. We intentionally With the support of the ICRS, “Tony” challenge structures, systems achieved his first tenancy. He now and organisations by encouraging attends weekly sessions at his compassion, empathy and local Aboriginal Health Service to respect for our Mob and the manage with physical conditions ways they should be supported and past traumas. ICRS also referred by these structures, systems and him to outpatient counselling for organisations; and by supporting his substance use issues at a our Mob on their pathways to major hospital, and to positive transforming their lives – whether social inclusion activities such as that be from the street or park to a Men’s Group that have resulted places where they feel strong, safe in a significant reduction in alcohol and empowered to live their lives.’ FIGURE 4: Aboriginal and Torres Strait Islander homelessness, National19 120.0 Aboriginal and/or Non-Indigenous Torres Strait Islander 100.0 Rate per 10,000 80.0 60.0 40.0 20.0 0.0 NSW VIC QLD SA WA NT ACT AUSTRALIA 10 | OUR VOICES, OUR CHOICES.
TARGETED, NEEDS-BASED PRIMARY HEALTH CARE PRIORITY THEME 1 Family Wellbeing Empowerment Program for Young Aboriginal Men Central Coast Primary Funded by the Primary Health Care in New South Wales Network (PHN), the FWB program Without the program, male is an avenue of support for young has been facilitating a men in the area who may not have Family Wellbeing Program expressed their vulnerability to a doctor, an Aboriginal Medical youth on the (FWB) as an Aboriginal Service, or a counsellor. It is Central Coast and Youth Social and would fall apart. beneficial that the people running the program understand the different Emotional Wellbeing situations young men present, and Anthony Freeman – Program project since 2012.20 the vulnerable and occasionally Participant reluctant nature in which some The FWB program was originally young men may attend the program. developed in 1993 by the Aboriginal Nigel expressed how he genuinely Employment Development Branch relates to the young men – he shares of the South Australian Department his personal experiences with them of Education, Training and and says, ‘I’m vulnerable, and the Employment. Over the last 21 years, same as they are, I share my full story the FWB program has continued and from the highs to the lows – they spread with little formal support and don’t teach that in schools’. is now nationally active across most states and territories, along with Some of the topics discussed in the some international uptake.21 program are around trauma-informed practice and psychological tools, Aboriginal Family Wellbeing and aside from the experience Nigel Coordinator Nigel Millgate has brings to the program, there are been running the program since its Elders and community members to inception. He has seen more than call for support, offering knowledge 200 Aboriginal young men aged and guidance for the young men. between 13 and 18 participate across eighteen programs. ‘I love One of the program’s first this project, I’ve watered it and participants, Anthony Freeman, nurtured it from the beginning’ shared his story about the impact Nigel remarked as he explained the program has had on his life. the empowerment, teachings and Anthony said he was ‘sceptical development that weave through the about the program initially, that going program, and how these learnings somewhere to talk about feelings support young men who have often wasn’t really for him.’ After only a experienced ‘a lack of positive male short time under the mentorship role models in their lives’. of Nigel and others, Anthony was OUR VOICES, OUR CHOICES. | 11
PRIORITY THEME 1 TARGETED, NEEDS-BASED PRIMARY HEALTH CARE so deeply engaged in the program parents and kids who might not that he didn’t want to leave, and he have the capacity or means to get hasn’t. Seven years later, Anthony to the program any other way. This remains a mentor for the program. has helped with participation and retention. ‘As a 25-year-old man talking to a 14-year-old knowing he’ll understand It is evident that people working the emotional power and understand and participating in the program are that different ages don’t matter, this passionate about nurturing young will always be the first and last step – men in the community by providing it’s our foundation’ said Anthony. ongoing support and encouraging them to become emotionally ‘It is fundamental that the intelligent and proud young men. program is community driven As one of the first participants, and supported’ said Nigel. He Anthony advocates for the program believes community engagement wholeheartedly saying — ‘this is with the program is imperative to where I learned how to express my the program’s success, though emotions, now let’s show the boys expresses deep concern around the what we can do’. way in which uncertain government funding affects the program’s long and short-term security. Highly skilled staff members have ceased working for the program due to insecure funding. Another challenge for the program initially was transport, though the FWB program has since coordinated buses to relieve pressure from 12 | OUR VOICES, OUR CHOICES.
PRIORITY THEME 2 Responsive Health Care System Australia has a fundamental responsibility to its First Peoples to structure and resource its health care system to be culturally safe, well-trained and responsive to the needs of Aboriginal and Torres Strait Islander peoples. As a wealthy nation,22 Australia has no defence for not delivering on this fundamental right. To deliver, Australia needs to grow the Aboriginal and Torres Strait Islander health workforce, equip the broader health workforce with the right training to deliver culturally safe health care, and invest in the greater development of ACCOs satellite and outreach services. Institutional racism in hospitals and health services continues to be a crucial barrier to effective health service provision. Comprehensive health workforce development and training strategies such as cultural safety training are essential as is the growth of an Aboriginal and Torres Strait Islander health care workforce.23 The Campaign welcomes Australia’s Health Ministers’ 2018 commitment to the development of an Aboriginal and Torres Strait Islander-led, National Aboriginal and Torres Strait Islander Health and Medical Workforce Plan.24 The National Aboriginal and Torres Strait Islander Health Plan (2013– 2023)25 and its Implementation Plan26 were developed to improve the Australian health care system through meaningful engagement with Aboriginal and Torres Strait Islander people and organisations. However, the Campaign reiterates Recommendation 5 of our ten-year review – that the Government renew its commitment to both Plans and undertake a comprehensive costing of the Implementation Plan to ensure it is properly resourced. The Health Care and Social Assistance sector — covering areas such as health services, aged and child care — was the largest employing industry of Aboriginal and Torres Strait Islander peoples in the 2006, 2011 and 2016 censuses.27 This sector is also projected to remain the area of greatest employment growth for the next five years, with the Government estimating over 250,000 additional jobs.28 This offers an important opportunity to support the Aboriginal and Torres Strait Islander workforce across a range of sectors to help close the gap in health outcomes. OUR VOICES, OUR CHOICES. | 13
PRIORITY THEME 2 AUSTRALIAN HEALTH CARE SYSTEM Northern Territory Aboriginal Health Academy Project It offers Indigenous Allied Health and increase high school retention to Year 12. Australia (IAHA), working in more than Rikki Fisher has been involved partnership with Aboriginal the standard Medical Services Alliance with the Academy since its commencement and thinks that it has pathway into Northern Territory been successful ‘due to the people allied health. involved, the support the program (AMSANT), has developed has been getting from families and Rikki Fisher, IAHA Director an innovative project to the community and people seeing and Academy mentor increase the number of the value and believing in what the program is about’. young Aboriginal and ‘I think it’s been a really Torres Strait Islander well-designed process, with people completing Year commitment from families and 12 and entering the health communities.’ Rikki said, ‘but it also needs funding commitment that workforce. aligns with the values and integrity of the program. We wouldn’t want it to The Northern Territory Aboriginal be vulnerable to a lack of support or Health Academy project (the governments funding cycles.’ Academy) was designed over four years with Northern Territory (NT) Students are supported to achieve students, families, community and a Certificate II in Health Support key stakeholders. Services and a Certificate III in Allied Health Assistant qualifications The Academy is taking a new while working in a School Based approach to education and training. Traineeship or a VET in schools’ This is a community-led learning pathway with a local employer. model focused on re-shaping They attend one day a week for and re-designing the way training theory and one day with their is delivered to Aboriginal and employer on placement. Employers Torres Strait Islander high school are encouraged to participate from students. The Academy model diverse organisations including centres on ensuring that training the public, NGO and community- and education is delivered in a way controlled sectors in primary that embeds culture, while having healthcare, rehabilitation and therapy, a holistic approach to health with disability, aged care, wellbeing Aboriginal and Torres Strait Islander services and oral health. Providing health and wellbeing at its centre. a broader experience for students, FIGURE 5: It works collaboratively across across sectors is important to ensure Students in the Academy designed their own logo, representing their different health disciplines and organisational that future workforce needs are met, cultures and identities as well as the structures such as health, education, particularly where specific needs are collective group. training and employment to improve identified, such as disability services. 14 | OUR VOICES, OUR CHOICES.
AUSTRALIAN HEALTH CARE SYSTEM PRIORITY THEME 2 Twenty-five Aboriginal students from IAHA and AMSANT support learning, the way in which they learn, five Darwin high schools enrolled in the Academy through leading, and the environment in which they the first intake, with the first cohort facilitating, coordinating and feel both safe and included. The due to complete their Certificate III in collaborating with students and Academy is located on the Charles Allied Health Assistance in December stakeholders; developing new ways Darwin University campus where 2019. of delivering mainstream courses to students engage in a tertiary setting, our young people, focused on their gaining confidence and feeling IAHA and AMSANT are driving aspirations, goals and needs, as well comfortable in attaining further the project with IAHA and other as employment opportunities in their educational goals. partner organisation and their region. members actively participating as The Northern Territory Aboriginal role models, guest speakers and The model assists in assessing Health Academy model could mentors. These Aboriginal and/or and demonstrating the success potentially transfer to other Torres Strait Islander members are of education and training communities where the community, health professionals and support outcomes where social, cultural families and young people identify workers who volunteer their time and environmental determinants that it would meet their needs. This to share their experiences, skills are addressed with wraparound model provides opportunities for and knowledge with students supports. Also, by embedding Aboriginal and Torres Strait Islander through practical and interactive culturally safe and responsive high school students to consider, activities that promote the diverse practices brought together explore and pursue a career in opportunities within the health and led by local students, health. The delivery and coordination workforce. Cultural mentors are families, community and partner of the Academy model can be actively engaged with the students, organisations. The Academy contextualised to communities’ attending and hosting classes, promotes educational achievement aspirations through working in functions and presentations on and leadership with students partnership with key Aboriginal and building cultural capabilities. actively setting the direction for their Torres Strait Islander stakeholders. 0.4% 0.4 per cent of the allied health professionals Progress is on track registered under the National Registration and to halve the gap Accreditation Scheme (NRAS) in 2017 identified as in Year 12 attainment Aboriginal and Torres Strait Islander. by 2020. Data limitations mean it is not currently possible to obtain a While this is only a target to precise count of the total allied health workforce in Australia, or halve the gap, it is progress a profile of the Aboriginal and Torres Strait Islander allied health nonetheless, which present workforce – registered and self-regulated – in Australia, or a potential to attract students profile of the Aboriginal and Torres Strait Islander allied health into the Aboriginal and Torres workforce. Nonetheless, it is clear from available data that allied Strait Islander health and health continues to have among the lowest representation of medical workforce. There is a Indigenous professionals. Allied health professionals are also significant take up of a health among the least well distributed health professions, meaning degree by Aboriginal and people health professions with the largest gap between Indigenous Torres Strait Islander people and non-Indigenous professionals.29 studying at university.30 OUR VOICES, OUR CHOICES. | 15
PRIORITY THEME 2 AUSTRALIAN HEALTH CARE SYSTEM Health System Reform – Winnunga Prison Health Service Institutional Winnunga Nimmityjah Ms Julie Tongs has been the CEO at Winnunga for the past 21 years. Aboriginal Health and racism can be She said that ‘while Canberra is Community Services considered to be a wealthy city, an everyday (Winnunga) provides a behind the affluence there are people issue for many who struggle with poverty; who range of medical and don’t have stable housing, perhaps Aboriginal and social health services in don’t even have mobile phones, and can find themselves in a destructive the Canberra region and Torres Strait cycle.’ has provided outreach Islander people. corrections health services Winnunga provides Aboriginal and Torres Strait Islander support staff, Julie Tongs, to surrounding districts in as well as support around child CEO, Winnunga Nimmityjah protection issues. Winnunga staff Aboriginal Health and Goulburn and Cooma for provide court attendance support Community Services many years. for detainees, via a hotline from AMC to Winnunga. This means that When the Alexander Maconochie detainees can have a free phone call Centre (AMC) prison and remand to access staff at Winnunga and feel centre was established in Canberra safer and better supported to have ACT in 2008, it was a natural access to families (who often are transition for Winnunga to provide also clients of Winnunga). services to Aboriginal and Torres Strait Islander detainees, though After the death of an Aboriginal man services were never enough to in custody in 2015, a formal inquiry meet needs. As of June 2017, the found that the broader treatment incarceration rate for Aboriginal of the detainee was deficient, and Torres Strait Islander people marred by a series of failings accounted for 27.6 per cent of the involving corrections, police, and total prison population.31 health authorities. Winnunga has NATIONALLY ACT 27.6% As of June 2017, nationally, 22.4% In June 2017, in the ACT, Aboriginal Aboriginal and Torres Strait Islander and Torres Strait Islander people people accounted for 27.6 per cent accounted for 22.4 per cent of the of the total prison population.34 total prisoner population. 35 The proportion of Aboriginal and Torres Strait Islander prisoners in the ACT, over the ten-year period 2008-2018, has more than doubled 10.1 per cent to 22.4 per cent as of June 2017.36 16 | OUR VOICES, OUR CHOICES.
AUSTRALIAN HEALTH CARE SYSTEM PRIORITY THEME 2 been advocating for better prison counselling; there will continue to health services, including mental health services for a very long time, be Aboriginal support staff in there, health and drug and alcohol particularly following the death of and they will know when people are services, but that detainees have this man. That inquiry found there going to court and be in court with access to a multi-disciplinary was a need to reform the relationship them… Doctors are now available social health team. between justice and health teams as needed, and the program will be operating at the jail and introduce supported by four nurses including Winnunga is hopeful that this service the Winnunga Prison Health mental health, who can commence will support the AMC to be a human Service.32 their day at 6.30am, to be available rights compliant detention centre. for detainees going to court.’ That comliance will go some way to In 2018, the ACT Government helping detainees overcome a cycle announced a 24/7 holistic model of A flexible arrangement has been of illness and hence be rehabilitated care would be led by Winnunga for made with a local pharmacy which rather than come out of prison worse all detainees in AMC.33 can deliver to the AMC. As the than when they entered. Winnunga model roles out detainees Julie explained: ‘this model will mean will also have access to a dentist, that Winnunga will have an ongoing audiologist and optometrist. This presence at the AMC. Aboriginal social health, wrap-around service and Torres Strait Islander staff will be approach means not only that there as support staff. There will be a detainees have better access to psychologist to provide one-on-one PHOTO: Mural outside Winnunga Nimmityjah Aboriginal Health and Community Services, Canberra. Reproduced with permission from Winnunga. OUR VOICES, OUR CHOICES. | 17
PRIORITY THEME 2 AUSTRALIAN HEALTH CARE SYSTEM Anaemia Prevention Program, Katherine East, Northern Territory Kids are much Anaemia is a critical public significant significantly higher than in Community A. health issue in Australia more active and The Anaemia Prevention Program for Aboriginal and Torres show interest Strait Islander people. It is implemented in Community A is the only anaemia prevention program in learning and a complex, multifaceted in the NT. While it did not prevent doing work. anaemia in all participant children condition and one of the (as there are other causes of Katrina Mitchell, most serious global public anaemia, such as infection), health problems.37 anaemia was less prevalent and Aboriginal Health started later in children on the Practitioner prevention program, than those Worldwide, pregnant women who were not. and children have the highest anaemia rates and are the major Research has found that a groups targeted for screening and prevention program needs to be intervention programs. started early in life, before the age of three months, with education An Anaemia Prevention Program has and an iron dose that is provided been running in three communities consistently by a dedicated serviced by Sunrise Health in East Aboriginal Health Practitioner Katherine region in the Northern with intimate knowledge of the Territory (NT). An evaluation of this community and the local social program was conducted by the determinant issues that hinder Menzies School of Health Research parents and primary health care in 2016, supported by the Lowitja services from providing the care Institute.38 required to prevent an anaemic Research for this program found episode. that there were marked differences An integral component of the in the delivery of health services success of the Prevention between Community A (~350 Program has been the people), B (~1000 people) and C engagement of an Aboriginal (~300 people). Community B and Health Practitioner, Ms Katrina C did not have a dedicated person Mitchell, practicing at Sunrise responsible for anaemia and thus Health Service. Katrina is a local opportunistically screen and treat young mother and has close children attending the primary connections with other mothers health care service in accordance within the community She knows with the CARPA manual.39 Anaemia what’s happening with families in rates in Community B and C were the community, and as a local can 18 | OUR VOICES, OUR CHOICES.
AUSTRALIAN HEALTH CARE SYSTEM PRIORITY THEME 2 explain the program, and encourage outcome in the health service and mothers to attend the clinic. the whole wellbeing for all the kids in the community.’ Katrina says: ‘As an Aboriginal health practitioner my first job was Ms Raelene Brunette, an monitoring for the yearly full child Aboriginal researcher working health check, immunisation and the on the evaluation said: ‘One of anaemia iron program for the under the key findings in the program 5 kids. I get lots of good positive being successful was due to the feedback from the child health commitment from the Community coordinator, teachers and mum’s, Health Centre local staff whom aunts and other extended family held strong connections within members.’ the community and who were well respected by their people. Health ‘Because of the program, the and education go hand-in-hand, you coordinator and teachers notice cannot have one without the other a big difference in the kids who in order to create change. This is had low haemoglobin counts. All very much so with Aboriginal Health the kids are much more active and Practitioners who have a challenging show interest in learning and doing and rewarding job at the frontline of work. As a young Aboriginal person primary health care. working and delivering the Anaemia Program, sometimes it’s difficult We cannot achieve success in and frustrating but also its good improving good health outcomes for being patient and supportive. I am our people without Aboriginal Health committed to achieving a positive practitioner’s involvement”. PHOTO: Ms Katrina Mitchell, Aboriginal Health Practitioner, Sunrise Health, Anaemia Prevention Program OUR VOICES, OUR CHOICES. | 19
PRIORITY THEME 2 AUSTRALIAN HEALTH CARE SYSTEM IndigiLez Leadership and Support Group As Indigenous IndigiLez Leadership aiming to create a culturally safe, healing space for Aboriginal and and Support Group lesbians we Torres Strait Islander women was founded in 2008 by to discuss identity, gender and are a minority Rebecca Johnson and sexuality, safely among peers.40 within a Tanya Quakawoot. Both Rebecca has worked at local, state minority within and national levels to advocate founders volunteer their for Aboriginal and Torres Strait time and funds to offer a minority, Islander LGBTIQ women, including through Tekwabi Giz — a national support for Aboriginal we’re black, and Torres Strait Islander collaboration of Aboriginal and Torres Strait Islander representatives we’re women lesbian, gay, bisexual, from across each state and territory and we identify transgender, intersex and around Australia.41 as lesbian or queer (LGBTIQ) women ‘It’s important to provide a space for women to develop pride where possible. being same as Aboriginal and Torres Strait Islander women as well as a deadly sex attracted As part of the work with IndigiLez, and proud LGBTIQ+ women’, the group has held a series of women. Rainbow Dreaming Retreats at Rebecca explained. She feels this is fundamental because ‘building Nungeena Aboriginal Women’s self-esteem provides opportunities Rebecca Johnson, Corporation in Queensland, each for women to feel empowered and Co-Founder of IndigiLez es Strait Islander d Torr LG l an BT Iw ina rigina l and T orres St ir g f Abo rait el lb o n o Isl b o i r Aborigina fo an l and at ety de ei saf Tor nt rA r ng al res r ltu Isl fo e LG an es an u nd T orres Strait Islan fc ch al a de ep rp BT n dh igi ro de o or gr rr ear Ip n Ab am rL NOTE: The rainbow represents tio ate eal s GB eo ta what is needed: there are s d Res ar an en TI Gre ple ow minimal to no facts about th d em i peo gt nit Aboriginal and Torres Strait din iat Impl Islander LGBTIQ people. ple ives Fun FIGURE 6: Recommendations to enhance the health and wellbeing of Aboriginal and Torres Strait Islander LGBTI people 20 | OUR VOICES, OUR CHOICES.
AUSTRALIAN HEALTH CARE SYSTEM PRIORITY THEME 2 educated in areas of sexual health, general health, and social and emotional wellbeing’ which may otherwise not be addressed if the space is unsafe. High on the list of priorities for IndigiLez is to find resources to fund research that investigates holistic concepts of social and emotional wellbeing (SEWB) and cultural safety for Aboriginal and Torres Strait LBGTIQ women. Rebecca and the team want to know what the most appropriate and effective ways are, to create a safe care pathway for Aboriginal and Torres Strait Islander LGBTIQ mob. These questions inform a larger discussion around co design of frameworks and strategies for Aboriginal and Torres Strait Islander LGBTIQ people being seen by mainstream health services, Aboriginal Medical Services (AMSs), PHOTO: L–R: Belinda Ott, Taz and Primary Health Networks Clay & Chantel Keegan (PHNs). ‘Would a mainstream health service or AMS understand the use of a binder by a person who of Aboriginal and Torres Strait is transitioning?’ Rebecca asks, Islander LGBTIQ women and among a range of other questions communities. Success so far has and concerns about understanding been demonstrated by witnessing the particular health and SEWB women expressing pride in their needs, and visibility of Aboriginal sexuality, gender, cultural identity and Torres Strait Islander LGBTIQ and overall sense of feeling valued. people. IndigiLez would like to IndigiLez co-designs programs with see questions like this reflected Aboriginal and Torres Strait Islander in reports that directly impact LGBTIQ women, which means the community. Simply including that ‘mob saw themselves in the Aboriginal and Torres Strait Islander programs, recognising that when LGBTIQ people in health strategies we work together that it increases is ‘not good enough’ said Rebecca, social inclusion and service access,’ who wants to see Aboriginal and Rebecca said. According to her, Torres Strait Islander LGBTIQ women mobilising all that IndigiLez aims included in governmental targets and to achieve is about recognising not seen as a sub-category in the the importance of ongoing overall strategies. funding in this space, investing in research and listening to what the Ultimately, IndigiLez will continue LGBTIQ+ community needs are, by to focus on strategies that aim to acknowledging that ‘being part of optimise the health and wellbeing the conversation is the prevention’. OUR VOICES, OUR CHOICES. | 21
PRIORITY THEME 3 Good Housing for Good Health As a campaign, we have long recognised housing as a determinant of health,42 and we call on all governments to invest in housing to ensure that Aboriginal and Torres Strait Islander people have the best chance of healthy and safe lives. The linkage between affordable and appropriate housing and health outcomes must be recognised in the Closing the Gap Refresh strategy. It is clear that we will never achieve good health outcomes while people live in poor quality, overcrowded housing which can have profoundly adverse impacts on Aboriginal and Torres Strait Islander health outcomes.43 We note COAG’s commitment in December 2018 to secure appropriate, affordable housing as a pathway to better lives, and the housing draft target under the Government Refresh process. While this is a commendable goal, the Campaign reiterates Recommendation 6 of our ten-year review44 for an overarching health infrastructure and housing plan be developed, costed and implemented as a matter of urgency. The approach could be in the form of a ‘good housing for good health’ strategy to improve home health and safety for Aboriginal and Torres Strait Islander people, including the ‘Housing for Health’ program45 to eliminate third world diseases. Again, we welcome COAG’s commitment to work in true partnership with Aboriginal and Torres Strait Islander peoples. We are committed to working with Commonwealth and state and territory governments to ensure that remote, regional and urban housing supply is responsive towards improving the health of Aboriginal and Torres Strait Islander peoples. The housing stories reflect the strength in community led and community-controlled programs, and while there is nuance in how this is presented, each program is equally committed towards Aboriginal and Torres Strait Islander people driving the process forward, using our own voice and choices. Living on 22 | OUR VOICES, OUR CHOICES.
GOOD HOUSING FOR GOOD HEALTH PRIORITY THEME 3 Country was seen to be an important aspect for people we spoke to about housing, while for some people, being close to family was the most important even if that meant living off Country. Most importantly, all Australians should have the protections that good housing offers for good health. 20% In the 2016 Census, 20 per cent of the homelessness population in Australia were Aboriginal and Torres Strait Islander people.46 Across all States and Territories, Aboriginal and Torres Strait Islander households were between 1.7 and 2.4 times more likely than other households to live in rented dwellings.47 In the 2016 Census, almost one fifth of persons living in Aboriginal and Torres Strait Islander households (18 per cent) lived in dwellings that required one or more additional bedrooms. Overcrowding was worse in non-urban areas (28 per cent) than in urban areas with (16 per cent).48 OUR VOICES, OUR CHOICES. | 23
PRIORITY THEME 3 GOOD HOUSING FOR GOOD HEALTH Yawuru Home Ownership Program Home There is a large disparity in program is consistent with this objective and supports Yawuru home ownership between is home. individuals to be empowered home Aboriginal and Torres owners. Naomi Appleby, Strait Islander people The YHOP program is a first for home owner and the non-Indigenous Australia. It allows Yawuru first home owners to enter the housing population.49 The Yawuru market, in a partnership with NBY, Home Ownership Program by purchasing housing and land was established in 2015 packages in a Yawuru-developed housing area. In order to meet to address this issue for Keystart’s minimum standard Yawuru people in Broome. criteria, NBY can retain up to 50 per cent equity in the house and land Nyamba Buru Yawuru Ltd (NBY) is package. a not for profit company owned by Naomi Appleby is a home owner the Yawuru Native Title Owners in under the YHOP program. Yawuru the Broome region. NBY partnered made 50 per cent of the funds with the Kimberley Development available, and Naomi repays the Commission and State Government shared mortgage with Yawuru. Now mortgage lender Keystart to develop three years into the arrangement, the Yawuru Home Ownership Project she plans to, eventually, own her (YHOP). YHOP made eight new home outright. Naomi believes homes available to local Yawuru the program provides a very families through a shared-equity affordable option for home purchase arrangement. ownership and excellent options Following the recognition of Yawuru for anyone seeking a home – Native Title and the establishment single parents, young families, of the Yawuru Native Title Holders and older people. Aboriginal Corporation (PBC) in For some people, YHOP has meant 2008, the Yawuru community achieving accessible housing highlighted housing as a key priority. finance, when previous attempts To deliver on this area of concern, have failed. The program offers NBY has a number of programs to financial counselling for the home assist Yawuru people to improve owners so they can become good their quality of life through improved money managers and learn about housing conditions. The YHOP 24 | OUR VOICES, OUR CHOICES.
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