News summer 2021 - St Leonard's Hospice
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news
summer 2021
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As Director of Clinical Services, Jenny partnering with York Hospital’s patients and families with their expert
Brandom is our new Deputy Chief specialist community palliative care insight. Our wider therapy teams are
Executive at St Leonard’s Hospice. team, enabled us to rapidly respond to also continuing to provide tailored
Formerly working in the Nursing and patient and family needs. At the same rehabilitation to patients.
Quality team as Deputy Executive time, our Single Point of Coordination
Nurse at NHS Vale of York Clinical Service was born – a service that None of this would be possible
Commissioning Group, Jenny was only continues to grow. The team now without the continued generosity
six months into her role at the Hospice manages an average of 50 calls a day. from you, our supporters. On behalf
when COVID-19 hit. She is responsible of our clinical teams, patients and
as Registered Manager for ensuring that I am so proud of how services have families, thank you. We have never
we maintain our outstanding care. Now, worked together and were so flexible, needed you more as we look to
as we move out of the pandemic, she supporting each other to respond the future, growing our services
is very much focused on how we can to the challenge of ensuring we to give even more people
provide care to more people, in line with remain responsive to patient and access to our care.
the Hospice’s strategic direction. family needs. We cared for more
patients, both in the Hospice and in We are continuing to work
“Friday 27 March 2020 is a day that our community, than we have ever as one Hospice to support
is etched in my mind. It was the day done before, keeping our services our patients and
when we were expected to lead the safe whilst knowing COVID-19 was families and I am
COVID-19 response, as the local affecting us all both personally immensely grateful
leading end of life care provider in and professionally. to everyone for
the community. The first wave was their ongoing
imminent and we quickly had to think The pandemic has certainly fuelled commitment.’’
on our feet and innovate. It was clear our ambition to provide more care to
we had to think differently as an more people. Helen Galloway and Ally
increasing number of patients wanted Skelton, as Matrons, will support the
to receive St Leonard’s care leadership of this ambition across all Contents
at home, so they could remain with clinical services. Profile on our Outreach Matron.................. 4 Meet our new social worker, John...........18
their families. Graham is diving right in............................ 6 Supporting development..........................19
Our bereavement team is continuing FAMCARE report........................................ 8 Smoothie operator!..................................20
Bringing end of life care specialists to respond to the needs of the local Rainbow of Ribbons, Alistair’s story........10 A lasting legacy........................................ 21
from across the community together, population and our family therapy and Every life matters......................................12 Midnight Walk.......................................... 22
with our Hospice@Home team spiritual care teams are supporting St Leonard’s Lottery turns 18!.................14 Calendar of events....................................23
Meet our new Trustee...............................16 Retail volunteer.........................................24
2 3
Ally Skelton is a familiar face at requiring palliative and end of
St Leonard’s. She has worked at the life care.
Hospice for six years, most recently
as Hospice@Home Senior Sister. She My aims and ambitions over the
has now taken on the pivotal new role next 12 months include working
of Outreach Matron, responsible for closely with the Director of Clinical
the Hospice@Home, Single Point of Services and the clinical teams
Coordination, Complex Care, Family to effectively plan and influence
Care, Bereavement Support and Day delivery of the Hospice strategy,
Care services. supporting our recovery from the
COVID-19 pandemic. I plan to review
“The role was created as a result the lessons learnt over the previous
of experiencing the unprecedented 12 months and engage with key
challenges we faced in response to partners to ensure the continuation
the pandemic. My key focus is to and development of safe and
ensure that St Leonard’s Hospice effective care delivery.
remains and grows as lead provider
of end of life care across the Vale Another important part of this
of York, with emphasis on meeting role for me is to support staff with
the needs of our diverse local their wellbeing and development,
community. acting as a senior point of contact
to support with mentoring and
We want to reach as many people coaching.
as possible, ensuring patient
experience and safety is of the I am really proud to work for
highest quality. St Leonard’s Hospice, which
leads the way as an outstanding
My role will require working closely organisation. I am privileged to be
with local partners to understand part of the team. The Hospice’s
the challenges and needs of patients care and commitment to the
and families across the community, community is both admirable and
This picture of Ally was taken in 2020
in order to influence the experience distinguished.”
of as many people as possible
4 5
Graham has set himself a swim challenge with breast cancer, which had spread to
this summer in memory of his late wife, her bones. She was given various
Jane. She was cared for by the treatments, including a drug trial which
Hospice@Home team before she died Graham feels extended her life.
at home, with Graham by her side, in
August 2020, aged 52 - 20 years and 9 Hospice@Home became involved in
days after the couple first met. Jane’s care when Graham could no
longer cope caring for her alone.
Graham stopped swimming in 2017,
when Jane became ill, but has decided “They were a fantastic support,
to return to the pool - albeit this time an providing the vital link between the
8ft pool in his garden - to raise funds various services including the district
for St Leonard’s. He aims to swim one nurses and the hospital. I could always
hour non-stop tethered to a bungee rope, rely on the Hospice@Home team as
which will enable him to swim in his they are such specialists in dealing with
newly purchased garden pool. people with a terminal illness.
This is quite a challenge for Graham, They were always there for me and
who confesses to not being a confident nothing was too much trouble.
swimmer. “I’ve done sponsored runs but I remember them contacting the
never anything water-based, so this is a hospital team on my behalf and
real challenge for me,” he says. advising me on how to put an extra
pain relief patch on Jane’s arm when
Graham was keen to raise money for the she needed it.”
Hospice as a thank you to all the team
who helped him look after Jane after her The Hospice@Home team were involved
wish to remain at home. in Jane’s care for two months but as
Graham explains, “it is the intensity,
Jane first became ill on Christmas Day not the time that is relevant – one day
2017. “She was in so much pain I had to feels like a month when you are in this
call an ambulance. We thought she was situation. I can’t thank them enough.”
having a heart attack but it turned out to
be fractured ribs,” Graham remembers. We wish Graham lots of luck in his
In February 2018, Jane was diagnosed summer challenge!
6 7
Our care is amazing! Doctor’s attention
“All the staff were excellent, they
gave care and consideration...
to patient’s friendly attention and a chat
Each year, the Association for Palliative Medicine publishes its FAMCARE Report. symptoms which was much appreciated.”
This looks at how satisfied bereaved relatives are with UK hospices’ in-patient
services. We wanted to share with you the percentage of relatives who were very
satisfied with our services last year, with St Leonard’s scoring well above the national
77%
average in the majority of categories. Availability of
“The Hospice is a the team
Patient’s comfort The way the patient’s wonderful place... to the family
83% 73%
condition and likely “...eternally grateful thank you for your
for the superb kind work.”
“The care given at progress was explained
service you gave.”
this awful time was by the team
wonderful.”
73% “Both the
Emotional Hospice@Home
“We, as a family, were “Lovely place. The team support team and
kindly treated...a perfect were outstanding in their given to
The way the team respected In-patient Unit were
end to a long life.” care and consideration...
the patient’s dignity great empathy and
the patient outstanding in
70%
every respect.”
90%
understanding... going
the extra mile.”
“As a famliy we were
very impressed. Keep “We were
up the good work!” very happy “...an oasis of calm... “My husband could
“The team were
to know that treated with the not have had better
excellent...the supprt
“Excellent there are utmost dignity and care and attention if
they gave to me and
communication places in York respect. I felt secure he’d been royalty...
my girls was also
Speed symptoms with all the staff... like this.” and valued...” staff were excellent
excellent.”
cannot thank the and very helpful.”
were treated team enough.”
67% “I can’t express how
Information about
wonderful the care
Practical of my husband and managing patient’s “Well done to all the
How effectively
56%
symptoms team, receptionists,
“The nursing staff assistance the consideration the team
were lovely. The cleaners, gardeners,
provided given to myself and
carers, kitchen staff managed the
Hospice room clean my family was...very patient’s
and comfortable.”
by the team and doctors all doing
experienced and
60% a great job.” symptoms
77%
special angels...”
8 9
“We are all joined together by good as possible was done, and Easingwold Market Place, Selby Abbey
invisible threads. Some stay strong, Jenny was looked after just as plus brand new locations; Helmsley
some weaken, some get knotted and much as Alistair. I remember we Walled Garden, Museum Gardens, All
twisted and others break.” were both offered hand massages Saints’ Church, Pavement, York and
- bliss - as I, too, spent most of the St Martin’s Church, Coney Street, York.
Each year, Jean dedicates a ribbon for last month with them, as did many
our Rainbow of Ribbons in memory others of his family. There is still time to dedicate a ribbon to
of her son, Alistair Douglas Carr, who remember or celebrate someone special.
was cared for by the Hospice before his Jenny and I bade him farewell in the You can do this at any of the seven
death in 2013. company of two night staff nurses locations, via our website or by calling
on April 1 2013. A man of delicious the fundraising team on 01904 777 777.
Jean and her husband, Ken, live in wit had the last word and chose his
Wales and have been unable to travel to passing day with care.
York in recent years to see the rainbows. In loving memory of Alistair Douglas Carr. The Rainbow of Ribbons in Museum
Instead, each year they receive a red 28/1/1970 - 1/4/2013 Members of the team have Gardens on the railings behind St Olave’s
ribbon to dedicate to Alistair. responded to my letters and helped Church, near the old bowling green.
me to watch the online Light up
“The Rainbow of Ribbons has kept Alistair was cared for in the Hospice a Life service - this is all part of
our bright red thread to Alistair in December 2012 before spending the care and ethos that is spread
intact, which has meant that we have Christmas at home with his wife, Jenny, throughout the Hospice and beyond.
not lost that connection to him.” where Jean and Ken joined them. It brings so much comfort. We miss
said Jean. In January 2013, Alistair and Jenny our visits and the quiet moments in
returned to St Leonard’s where Alistair the Sanctuary, but our red ribbon
Alistair’s family chose a red ribbon spent most of the next three months. shows we are still part of the St
because of his love of Barnsley Football Jenny stayed with Alistair throughout Leonard’s family and they are
Club - red and white being their team this time and a bed was brought into his certainly part
colours - and because; room so that she could be comfortable of ours.”
“Alistair was always the spark of at night.
light that lit up any gathering he was Our seven vibrant rainbows are now
part of, whether with family, with his Jean added: shining across the region, all filled with
many friends and colleagues or with “Everything that could be done to personal dedications to close friends
folk he had just met.” make their last weeks together as and family. They are at the Hospice,
10 11
Our care is not just limited to the between the palliative care and the any of his appointments. Malcolm arranged to change the locks, as
Hospice and people’s homes; we are homelessness sectors in the region. She became so weak that he was unable Malcolm had lost his keys, and
passionate about giving everyone in our is currently delivering training to other to get out of bed and his mental organised a deep clean of the flat
community access to our excellent care service providers working with people health deteriorated as he prepared to provide safe living environment
and support. We are currently working experiencing homelessness. She is himself to die, alone, in his flat. for when he returned. He was
with national charity, Changing Lives, to helping them to recognise deterioration However, through assertive outreach transferred to the Hospice for
initiate a ground-breaking palliative and and the support available for people with instigated by the drug and alcohol symptom management and support
end of life care project for homeless or advanced ill health. Here she shares team, Malcolm was supported to with his complex social issues. He
vulnerably housed people. a story of how she is supporting a go into hospital. They were shocked was assessed by our team and it
vulnerable patient with housing. at the conditions that Malcolm had was felt that he could not safely
Homelessness is a term to describe been living in. return to his upstairs property due to
people who are rough sleeping, “Malcolm (name changed for reduced mobility.
living in a hostel, supported living confidentiality) is 57 years old. He Malcolm was in the hospital for four
accommodation, sofa surfing has recently been diagnosed with months. Before being discharged the I supported Malcolm to apply for
or experiencing other difficult cancer, hepatitis B and chronic housing management officer rehousing. His application was
circumstances. An abstract from the obstructive pulmonary disease. contested by housing registration,
Hospice UK conference 2021 shared that Malcolm is a care leaver and has as they had a hospital assessment
people experiencing homelessness have a history of substance misuse, that stated Malcolm was able to
the worst health outcomes in society, rough sleeping and mental health walk up two flights of stairs with
with the least access to services. People problems. He moved into his no assistance. Unfortunately, this
living in such circumstances often have council property from a hostel 20 has become the main barrier to
complex physical and mental health years ago. As Malcolm’s physical getting Malcolm rehoused. I am
needs. Many die 30 years before the health problems began, he found continuing to pursue a suitable
general population because they do not it harder to maintain his living tenancy for Malcolm who, after
have access to good care. environment. The only consistent over four months in a healthcare
support Malcolm had was from environment, just wants to get
Charlotte is our Complex Care his work in the drug and alcohol home safely. I strongly believe that
Coordinator and her role is to reduce the team (which I now realise is not if housing and health services could
inequalities in access to palliative care uncommon). When the drug and work collaboratively with people
for people experiencing homelessness. alcohol team were concerned that experiencing homelessness, this
Part of her remit is to upskill staff and he had cancer, they referred him to would facilitate a more holistic
facilitate a closer working relationship the hospital but he did not attend approach with better outcomes.”
12 13
This summer, the St Leonard’s Lottery The family all felt the Hospice gave open and the greeting was always the Every lottery number entered into the
is 18! Since 2003, the lottery has raised Mary a sense of peace, knowing that her same, delivered with such warmth weekly draw plays a part in someone’s
more than £6 million for the Hospice. loved ones didn’t need to worry about and welcome. It was a small thing but story, whether it is a patient receiving
It is a much-needed income stream to her care. it meant so much to me. complementary therapy, a relative being
help us continue to provide our high- supported by our social workers, or a
quality care to our community. Lesley adds: I remember, after Mary died, having child making a memory box for their
“She felt so spoilt and pampered, to go and collect her belongings. The loved one.
The family of the late Mary Rowsby which I don’t think is something she nurse was so kind and gentle. It made
play our lottery to thank the Hospice for had really ever experienced before. a very difficult moment incredibly For more information on how to play
how we cared for Mary before her death This was one of the best things about easy.” visit stleonardshospice.org.uk
from oesophageal cancer in June 2018. the Hospice for me, to see how happy
Mary’s husband, Brian, and her niece, Mary was. I could tell she felt special.
Lesley, both enter the weekly draw.
As a relative, one of the most
“It is our way of helping to keep the
important things about the Hospice
doors open for all who may need
was the knowledge that I could visit
St Leonard’s,” said Lesley.
at any time. The door was always
Mary with her husband, Brian, and two granddaughters. Our Hospice@Home nurses would like to thank all
those who have supported St Leonard’s Lottery over the years,
who together have raised vital funds for the Hospice.
14 15
We are very lucky especially with my background in between stakeholders that work She also was part of ‘Team Nat’ who
to be supported healthcare. It was obvious to me to for patients. tackled the UK Three Peaks Challenge in
by an exceptional reach out to see how I could best I am not afraid to challenge memory of Natalie, helping to raise more
Board of Trustees volunteer.” organisational and cultural than £30,000 for the Hospice.
who volunteer boundaries to help organisations
their time and She originally started working with the innovate and ensure they are fit for Khushbu is now excited to be taking on
expertise for free. Hospice in January 2021, as a co-opted the future.” her fresh challenge as a St Leonard’s
Our Trustees come from a wide range of member of the Service Development Trustee.
backgrounds. Not only do they provide Committee, before being appointed as a Married with one child and a baby on the “It’s amazing! I am so honoured to
the Hospice with strategic leadership, Board member last month. way, Khushbu enjoys painting and board be on the Board of such a fantastic
but they also ensure we are providing games in her spare time. She is also a organisation. It’s a great feeling
the best possible care and developing Originally Indian, born and raised in keen SCUBA diver. As with her work, she knowing I will be helping make
our services to meet the growing needs Spain, Khushbu has lived in the UK is not afraid to take on new challenges in decisions to support the future
of our community. for the past 16 years. She graduated her personal life. She once signed up for growth of the Hospice, giving
from Kings College, London, with a the Paris Marathon, only giving herself even more people the opportunity
We are delighted to welcome Khushbu BSc (hons) in Medical Biochemistry three months to train for it having to access its amazing care
Goulden to the Board. Khushbu, who and then went on to get her Masters never run before! She ran to support and support.”
lives in York, has very close links to in International Health Management an education charity for girls in India.
St Leonard’s. Her sister in law, Natalie, at Imperial College, London. She also
was cared for by the Hospice in 2018. took a Postgraduate Diploma in Health
She was only 30 years old when Economics at York University.
she died.
She has gone on to gain a wealth
Khushbu said: of experience in both the public and
“I’d never had first-hand experience private healthcare sectors, working at
of a Hospice so I was struck by how organisations including the World Health
amazing the care was. Everything Organisation, NHS, National Institute
they did for Nat was incredible, even for Health and Care Excellence and
allowing her sister’s dog to come for KPMG, where she was a management
a visit. consultant. Khushbu currently works
in a commercial role at GSK, the
When my job brought me to York in pharmaceutical company.
the summer of 2020, I really wanted “I am passionate about healthcare
to give back to the Hospice, and see myself as a future bridge Team Nat tackling
the Three Peaks Challenge
16 17
Meet our new social Supporting
development
worker, John
As a Hospice we pride ourselves in
supporting development, in particular
John joined the Hospice be involved in their care. He helping people who want to advance
as a social worker in May helps patients document their careers in the organisation or Where does your
2021. He is part of the
social work, bereavement
this so GPs, medical teams,
friends and family know
helping those who want to pursue
careers in health and social care get
money go?
support and spiritual care what their wishes are. He on-the-job experience. Every donation helps support the
team at the Hospice. The also helps people with Hospice, and the services we provide
team does vital work with lasting powers of attorney, Casey (16) is the youngest colleague for terminally ill people and those with
patients and families, a simple Will, or support to to join the St Leonard’s Hospice life-limiting illnesses, from bereavement
helping them to look get legal advice. team. She is currently studying health support for families to our In-patient
at what their practical, and social care and has joined our Unit and Hospice@Home service.
psychological and John has worked as a housekeeping team as a bank worker
emotional needs are. palliative care social worker to assist her studies.
£25
for 22 years. He joins the
An important part of John’s work is St Leonard’s team from St Catherine’s “I thought it would be good to see helps give local
helping people to talk about how their Hospice in Scarborough and decided what health and social care is like families the gift of
illness is affecting them and assist to make the move after the COVID-19 in real life, not just on paper. It has comfort, dignity and time together
them in adjusting to the changes illness pandemic prompted changes in how allowed me to see what it is really through our Hospice@Home service.
brings, and normalising these changes. social and health care services engage like to work somewhere like this and
He says: “What we do here is make
it OK to be upset. You can never take
away the pain of the loss of somebody,
with local communities.
He adds: “When this role came up, it
put the class theory to life. Coming
to work at the Hospice has definitely
been a growth experience for me.
£50
helps our bereavement
support service provide
the listening ear so needed by those
but you can make it better than it could felt like a good opportunity to be part It was hard at first as it was all new grieving the death of a loved one.
have been. We help patients to have of my local community. I’m really and quite emotional, but I have
£100
conversations with loved ones and give enjoying it so far. Working with a multi- found it really insightful and helpful
them a place to feel safe to be upset, disciplinary team, you have physios, to my studies. helps patients
helping them to talk about how they’re doctors, nurses, occupational therapists, The support the stay pain free,
feeling and what’s important to them.” spiritual care. There is such a breadth housekeeping team and supported by experts in relieving
of knowledge at your disposal. It feels has given me has stress and anxiety though patient care.
Another part of John’s role is Advanced like you can address so many needs and been amazing.
Care Planning. This includes helping worries that people have. It is great to Everyone has
people to decide what sort of care they work with, and learn from them, and be helped me Donate now at
want in the future and who they want to able to collaborate – I love it!” settle in. ” stleonardshospice.org.uk/donate/
18 19Smoothie operator! A lasting legacy
These are not your average smoothies,
these are St Leonard’s Hospice Recently, we were overwhelmed and We recently created a special sunflower
smoothies, specially created for our humbled to hear of a very generous garden at the Hospice as thank you to
patients by our catering manager, legacy left to St Leonard’s by a patient. supporters who have left a gift to
Joanne. St Leonard’s in their Wills.
We are sure that many gifts in Wills are
As part of Nutrition and Hydration Week, prompted by the care provided by our Local legacy pledgers, Roy and Liz, our
Joanne used our Project ECHO learning dedicated teams, but we don’t often housekeeper, were the first to plant
programme to share with other care know the reason why. It is therefore their sunflower seeds during National
providers across the region how she really special to have just a small insight Gardening Week.
turns both savoury and sweet meals into into the story behind the donation.
smoothies to help patients enjoy the food If you would like to find out
Why not give this smoothie
they like. Our benefactor received a lot of help more about gifts in Wills please visit
recipe a try?
and support from all the Hospice teams. www.stleonardshospice.org.uk or email
From cottage pie, fish and chips, to fruits This included help with ‘Advanced legacies@stleonardshospice.nhs.uk for
St Leonard’s Triple Berry Smoothie
of the forest, she makes smoothies to Care Planning’ – that is making his an information pack.
2 Servings
suit every patient’s taste. future wishes and
Prep time: 5 minutes
Total time: 5 minutes preferences, such
Food intake and enjoyment can be a as his funeral
challenge for patients in palliative care but Ingredients: plans, known and
Joanne has found that using smoothies • 1 banana documented. He was a
has enabled many patients to enjoy the • Large handful strawberries quiet man who had led
food they like, with many progressing • Large handful frozen blackberries, a quiet life, living and
from not eating at all to enjoying solid plus more for garnish working in York. He
food, dependant on their illness. • Large handful frozen raspberries enjoyed being cared
• 1/4 cup almond milk for by St Leonard’s
She said: “It is really nice when a • 1/2 cup Greek yoghurt and appreciated the
patient or family member tells us that
Directions phone calls which kept
they weren’t eating but, after trying
1. In a blender, combine all ingredients him in touch during
the smoothies, now they are - it is
and blend until smooth. lockdown. Most of
really rewarding knowing you made
2. Divide between two cups and top all he particularly
a difference. You can’t change the
with blackberries, if desired. enjoyed the delicious
illness but you can adapt and do what
food provided by our
you can to enable patients to enjoy
Enjoy! talented kitchen staff.
their food again.”
20 21Our Midnight Walk was Calendar of events
certainly one ‘L’ of night for the
400 walkers who took part, July
hitting the streets of York in an Rainbow of Ribbons
amazing array of ‘L’ themed A colourful display of ribbons
fancy dress costumes! celebrating and remembering
loved ones.
Leprechauns Ladybirds
August
1 York
10K
York Knavesmire, places still
available.
27 to 30 Balloon
Fiesta
York Knavesmire.
September
18 Challenge
Walk
Haworth and the beautiful
Mother and daughter, Chez and
countryside.
Rochelle, who are both foster carers,
took part in memory of fellow foster
carer, Lynne, who was cared for by October
St Leonard’s. Ladybirds Sarah and Rachel donned
“It’s been a horrible year and this is their costumes in memory of their friend 17 Yorkshire Marathon
University of York, places still
not the sort of thing we do normally Kathleen, who died in the Hospice in
available.
but it’s a night out for us and it’s August 2019.
great fun.” “St Leonard’s made everything
easier and Kathleen more November
Liverpool shirts comfortable. She was called the
dessert lady as she liked the 6 St
Leonard’s Ball
York Racecourse
puddings! The facilities are brilliant.
I just miss her.” 28 Christmas
Fair – York RI
Liverpool fans Julie, and her son Charlie,
A huge
thank you to For more information about
did the walk in memory of Julie’s partner these, and other events,
and Charlie’s dad, Andy, who died in the everyone who
please visit:
Hospice in April 2019. took part. www.stleonardshospice.org.uk
22 23...part of the community...
Sophie outside our Fossgate shop.
With over 500 volunteers in over 21 for St Leonard’s in December 2019 as
different roles throughout the Hospice, part of her Silver Duke of Edinburgh
including catering, retail, bereavement Award at the age of 15. She has now
and our Board of Trustees. We couldn’t moved on to her Gold Award and has
carry out the important work we do become an integral member of our team.
without their talent and commitment.
Sophie loves buying preloved clothes
We welcome volunteers of all ages and for college and finds lots of books to
from all walks of life. support her English and History A-level
courses. She said:
Meet Sophie, a volunteer at our “I really like being part of the thriving
Fossgate shop. She started volunteering community down Fossgate.”
To find out more about volunteer opportunities at St Leonard’s visit:
stleonardshospice.org.uk/work-with-us/volunteering-at-st-leonards/
For Office use only
01904 708553 @SLHYork
www.facebook.com/
stleonardshospice.org.uk stleonardshospiceyork
185 Tadcaster Road, stleonardshospice
York YO24 1GL
St. Leonard’s Hospice, York is a registered charity, no. 509294 and a company limited by guarantee,
registered in England and Wales, no. 01451533You can also read
