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LIFE AFTER LOCKDOWN: Family Carers Ireland's Proposals for Budget 2021 - Family Carers Ireland Market Square, Tullamore, Co. Offaly 1800 240724 | ...
LIFE AFTER LOCKDOWN:
Family Carers Ireland’s
Proposals for Budget 2021

Family Carers Ireland
Market Square, Tullamore, Co. Offaly
1800 240724 | www.familycarers.ie
LIFE AFTER LOCKDOWN: Family Carers Ireland's Proposals for Budget 2021 - Family Carers Ireland Market Square, Tullamore, Co. Offaly 1800 240724 | ...
Family Carers Ireland’s
PROPOSALS FOR BUDGET 2021

Department of Employment Affairs and Social Protection

           RECOGNISE FAMILY CARERS AS UNIQUE WITHIN
           THE SOCIAL WELFARE SYSTEM
      1.   Begin the phased restoration of the Carer’s Allowance income disregard to ensure that those on
           an average industrial income can qualify.
      2.   Recognise the costs associated with caring in the deductions allowable for Carer’s Allowance
           and assess income on its net rather than gross value
      3.   Increase the €20,000 disregard to €50,000 in the Capital Formula.
      4.   Increase the Carer’s Support Grant from €1,700 to €2,000.
      5.   Extend eligibility for Carer’s Benefit to include people who are self-employed.
      6.   Extend eligibility for Domiciliary Care Allowance to children residing in hospital.
      7.   Develop a pension solution for family carers that recognises their important work (commitment
           contained in the Programme for Government (inc PfG hereafter)).

Department of Health

           SUPPORT PEOPLE TO BE CARED
           FOR AT HOME
     8.  Deliver a ‘Carers Guarantee’ to provide a basket of services to carers across the
         country (inc PfG).
     9. Increase homecare hours and introduce a Statutory Homecare Scheme (inc PfG) that will
         include an entitlement to 20 days respite each year and a Carer Needs Assessment for
         fulltime carers.
     10. Extend the Carer GP Visit Card to carers in receipt of the Carer’s Support Grant (inc PfG).
     11. Introduce the long-awaited Transport Support Scheme.
     12. Extend the NTPF to abolish waiting lists for essential therapies for children with a disability
         (inc PfG)1.

Department of Finance

           REFORM THE SYSTEM OF TAX RELIEFS AND
           CREDITS AVAILABLE TO FAMILY CARERS
     13.   Resumption of disability services including respite following lockdown.
     14.   Review and update of the National Carers Strategy (PfG).
     15.   Increase in the Dependent Relative Tax Credit in line with the Incapacitated Child Tax Credit.
     16.   Extend eligibility for the Home Carer Tax Credit to include single working carers.
     17.   Allow carers to claim tax relief on the cost of employing a care worker while also claiming the
           Dependent Relative/Incapacitated Child tax credit.

1
 The Programme for Government commitment refers only to extending the NTPF to secure timely assessment for both child and adult psychological
services.

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

INTRODUCTION

Family carers are the                     The year 2020 will undoubtedly         health system, a prohibition
                                          be remembered as the time that         on evictions, a rent freeze and
backbone of care                          COVID-19 brought the world to          the mobilisation of community
provision in Ireland.                     a standstill. As well as the tragic    services to support those who
                                          loss of life, businesses, schools,     were most vulnerable to the virus
They deserve support                      creches and workplaces closed          are all to be commended. As we
and recognition                           and life as we had known it            emerge from this crisis and enter
                                          changed beyond recognition.            life after lockdown, Government’s
from Government.                          At its peak, over one million          response to this ‘new normal’ will
(Programme for                            people in Ireland relied on social     be of equal importance.
Government, 2020)                         welfare, dragging the economy
                                          from near full employment to
                                                                                 Family carers have long been
                                          an unemployment rate of 28%,
                                                                                 lauded as the backbone of care
                                          giving rise to the largest monthly
                                                                                 provision in Ireland; an essential
                                          unemployment increase in the
                                                                                 yet hidden pillar in our healthcare
                                          State’s history.
                                                                                 system. However, during COVID
                                                                                 they became much more. They
                                          For Ireland’s 355,000+ family          became the great protectors of
                                          carers, the withdrawal of              society. They not only stayed
                                          supports such as homecare,             at home themselves during the
                                          respite, personal assistance           crisis but enabled older people,
                                          hours and residential care forced      people with a disability, the sick
                                          many carers to care alone,             and terminally ill to stay at home
                                          around the clock and without the       as well. When services shut down
                                          support of extended family or          they stepped up, continuing to
                                          friends. Parents of children with      care around the clock to ensure
                                          a disability lost the routine and      their loved one stayed at home
                                          relief of school, day services and     and out of hospital, facing
                                          essential therapies placing the        unprecedented levels of risk to
                                          child at serious risk of regression.   themselves in order to protect
                                          Older carers and those with            us all. Carers have played a more
                                          underlying health conditions were      significant role in suppressing
                                          expected to cocoon; isolated and       the coronavirus than most and
                                          reliant on others. Even carers         their essential contribution to
                                          who were coping relatively             the national healthcare response
                                          well prior to the pandemic now         should be acknowledged and
                                          find themselves mentally and           applauded.
                                          physically drained and struggling
                                          to maintain their caring role.
                                                                                 Family Carers Ireland welcomes
                                                                                 the commitments made for
                                          The State’s response to the            family carers in the Programme
                                          COVID crisis is to be applauded.       for Government and is calling on
                                          Government’s swift action              the newly-elected Government
                                          and raft of supports including         to use Budget 2021 as a first
                                          the introduction of a wage             step towards honouring these
                                          subsidy scheme, an enhanced            commitments and delivering on
                                          unemployment payment, a                a number of other critical policy
                                          temporary end to our two-tier          areas.

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

                       RECOGNISE FAMILY CARERS AS
                       UNIQUE WITHIN THE SOCIAL
                       WELFARE SYSTEM

Department of Employment Affairs and Social Protection

Family carers are unique within the social welfare system on a number of grounds:

     (i) carers are the only recipients of social welfare required to work full-time for their payment – at least
         35 hours per week – and receive just €16 more than the basic social welfare rate for doing so;
     (ii) in undertaking this work, they save the State billions of euro that would otherwise have to be met by
          the exchequer – this means that they cannot be subject to normal requirements in regard to activation
          measures;
     (iii) the State is consistently adding to the cost (withdrawal of certain health services and supports) and
           burden of care (e.g. reporting requirements under the Assisted Decision-making (Capacity) Act 2015);
     (iv) providing this care brings with it significant personal costs, including financial, health and wellbeing
          costs as well as longer term consequences to their pension entitlement; and
     (v) carers bear additional costs associated with their caregiving role that are not compensated for by
         the State, as is the case with other welfare recipients who receive travel allowances and material and
         training grants, for example.

While the Review of Carer’s                           and supports. A family carer          is paid at a maximum rate of
Allowance 2019 refers to the                          looking after their own child with    €219 per week, they have no
Carer’s Allowance means test                          profound needs only receives a        employment rights, their payment
being the most generous in                            maximum rate of €219 per week         will be stopped if they are sick
the social welfare system (p3,                        (only 51% of all carers receive       and cannot provide replacement
p11, p15, p30, p35, p37), this                        the maximum rate)2 and access         care and must work a minimum
presupposes that it should only                       to services for their child(ren) is   35 hours per week - many carers
be benchmarked against income                         subordinate to children in foster     in fact provide round the clock
support for people of working                         care.                                 care.
age which is arguably not the
correct categorisation given the
                                                      By way of another comparison,
considerations set out above.
                                                      a person on a Community

                                                                                                   79%
                                                      Employment scheme receives
An Irish citizen fostering a child                    a minimum payment of €225
receives a minimum of €352                            per week, enjoys statutory
per week (not means tested or                         employment rights including                  of carers receiving
taxable), with weekly payments                        the right to annual leave and                Carer’s Allowance
of more than double this available                    public holidays and must work                find it difficult to
to those fostering children with                      just 19.5 hours per week as part             make ends meet3.
complex care needs. Foster                            of their activation programme.
parents are also afforded priority                    For a person in receipt of Carer’s
access to relevant State services                     Allowance their weekly payment

2
    DEASP ‘Review of Carer’s Allowance 2019’.
3
    Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland.

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

1.
Begin the phased                                    of how considerable their caring        current rate of Carer’s Allowance
restoration of the Carer’s                          responsibilities are. These are         of €219 is €1.50 less than it was
                                                    families who typically have higher      in 2009, despite a 6.9 percent
Allowance income
                                                    than average household costs due        increase in the Consumer Price
disregard to ensure that
                                                    to caring and where very often one      Index (CPI) during this period. This
those on an average                                 member has had to give up work to       means that the equalised value
industrial income can                               provide care.                           of Carer’s Allowance at the rate
qualify.                                                                                    paid in 2009 of €220.50 is €236 in
                                                                                            20205.
Despite the many plaudits                           Despite increasing steadily during
recognising their immense                           the period 2000 to 2008, the
contribution, genuine full-time                     income disregard for Carer’s
family carers of people with
                                                                                              THE WEEKLY
                                                    Allowance has remained stagnant
complex needs continue to be                        for the last 12 years, meaning
denied Carer’s Allowance due                        Government has failed to achieve
to the means test. These are by                     the commitment set out in Towards         RATE OF CARER’S
no means wealthy families. Only
households with a gross total
                                                    2016 to expand the income                 ALLOWANCE IS
                                                                                              LESS NOW
                                                    disregard for Carer’s Allowance so
income of less than €37,500 per                     that those on average industrial
year will qualify for a full Carers                 incomes can qualify (p.55). Average
Allowance. Those with a gross                       earnings in Quarter 1, 2020 were          THAN IT WAS IN

                                                                                              2009
household income of between                         €8014 while the income disregard
€37,500 and €62,000 qualify for a                   for Carer’s Allowance remains at
much-reduced rate. Any household                    €332.50/€665 (couple). The failure
with a gross income above                           to ensure that the income disregard
€62,000 including savings and                       kept pace with average earnings is
assets are not eligible, regardless                 compounded by the fact that the

    CARER’S ALLOWANCE INCOME DISREGARD
    2000 – 2020

     Budget          2000      2001       2002      2003    2004    2005      2006   2006     2007     2008       2008/2020

     Income Disregard

     Single          €95        €158      €191      €210    €250    €270      €270   €290     €320     €332.50
                                                                                                                   No change
     Couple          €190       €317      €382      €420    €500    €540      €540   €580     €640     €665

     Increase                                                    + 350%                                                0%

4
    CSO July 2020.
5
    CSO Consumer Price Index Inflation Calculator

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

2.
Recognise the costs                                based on their gross income, but                   costs, education expenses, and an
associated with caring in                          are struggling to make ends meet                   allowance ranging from €38 to €78
                                                   when living expenses and the                       for each dependent child.
the deductions allowable
                                                   cost of care are deducted. The
for Carer’s Allowance and                          deductions currently allowed are
assess income on its net                           limited to a €332.50/€665 weekly
rather than gross value.                           income disregard, PRSI, union

                                                                                                                     21%
Because the assessment of                          dues, superannuation and travel
means for Carer’s Allowance is                     expenses6. Family Carers Ireland
applied to gross rather than net                   argues that the means test should
income and does not consider                       be applied to net rather than gross                               of carers have cut
mortgage repayments, dependent                     income in line with the assessment                                back on essentials
children, college fees, Fair Deal                  applied to Carer’s Benefit7 and                                   such as groceries
contributions, medical costs, etc.,                should include deductions similar                                 or heat to make
the assessment does not reflect                    to those allowed in the financial                                 ends meet8.
the reality faced by many caring                   assessment for a Medical Card
families. These families may appear                including mortgage repayments,
relatively financially comfortable                 childcare costs, nursing home

3.
                                                                                                                  The Joint
Increase the €20,000                               are being penalised by virtue of
                                                                                                           Committee on Health
disregard to €50,000 in                            the capital formula applied to
the Capital Formula.                               savings and assets in the means                       RECOMMENDED IN 2019
                                                   assessment for Carer’s Allowance.                       that family carers be
Because the State makes no                         Family Carers Ireland is calling for
provision for the future care
                                                                                                               provided with
                                                   the capital formula – which has not
needs of children and adults with                  changed since 2005 - applied to                         ADEQUATE SUPPORT
significant care needs, families                   Carer’s Allowance to be increased                          TO INCENTIVISE
have to do so. It is not uncommon                  from €20,000 to €50,000 in line                           INFORMAL CARE
for carers, particularly the parents               with the Disability Allowance where
of a child with a disability, to go                the first €50,000 of capital is
                                                                                                          including re-examining
without in order to save money                     disregarded.                                           eligibility to for Carer’s
towards their child’s future care                                                                               Allowance9.
needs. In doing so, these carers

CAPITAL FORMULA

                  Carer’s Allowance (Current)                                   Carer’s Allowance (Proposed – same as DA)

    Capital                          Weekly means                         Capital                              Weekly means
    First €20,000                    Nil                                  First €50,000                        Nil

    Next €10,000                     €1 per €1,000                        Next €10,000                         €1 per €1,000

    Next €10,000                     €2 per €1,000                        Next €10,000                         €2 per €1,000

    Balance (over €40K)              €4 per €1,000                        Balance (over €70K)                  €4 per €1,000

6
  Travel is applied at a standard rate of €15 but can be increased where appropriate.
7
  With Carer’s Benefit the €332.50 a carer is allowed to earn is based on net income after income tax, USC, PRSI, superannuation, pension levy, union
dues, subscriptions to Friendly Societies and health insurance premiums are deducted.
8
  Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland.
9
  Joint Committee on Health (2019): Report on the Provision on Homecare Services.
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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

4.
Increase the Carer’s                              of family carers. While the Grant                 need of full-time care, the Grant is
Support Grant from                                can be used as the carer chooses,                 the only financial recognition of the
                                                  for many it goes towards the cost                 care they provide. Family Carers
€1,700 to €2,000.
                                                  associated with caring or towards                 Ireland is calling for the Grant to
The annual Carer’s Support Grant                  paying household bills. For some                  be increased to €2,000 in Budget
is an important payment that                      23,15710 full-time carers of people               2021.
recognises the unique contribution                who are medically assessed as in

5.
Extend eligibility 		                             and extend eligibility for social                 to find themselves with caring
for Carer’s Benefit to 		                         welfare supports to people who                    responsibilities and therefore need
                                                  are self-employed, Family Carers                  the assurance of having a financial
include people who
                                                  Ireland is calling for eligibility to             support available to them should
are self-employed.                                Carer’s Benefit to be extended                    they need to take time away from
In line with Government’s stated                  to people who are self-employed                   work to provide care.
aim to create a supportive                        or paying a Class S stamp.
environment for entrepreneurship                  These people are equally likely

6.
Give sick children living                         the Domiciliary Care Allowance                    Carer’s Allowance. Family Carers
in hospital access to                             because they do not satisfy the                   Ireland understands that steps have
                                                  requirement that they ‘live at                    been taken to resolve this anomaly
the Domiciliary Care
                                                  home’. As a consequence, their                    but urge that efforts be expedited
Allowance.                                        parents, many of whom are forced                  to ensure these families are not
Some of Ireland’s sickest                         to give up their employment to stay               forced to suffer further financial
children are denied access to                     with them in hospital, are denied                 hardship.

7.
Develop a pension solution                        to warrant a State Pension, the                   situations. Indeed, Family Carers
for family carers that                            hurt and insult is immense. While                 Ireland has encountered a number
                                                  the Total Contributions Approach                  of cases where a mother had given
recognises their important
                                                  to the calculation of the State                   up her career to care for a disabled
work (inc. PfG).
                                                  Pension Contributory, due to come                 child and in the almost 50 years of
It is long accepted that family                   into effect in 2021, includes the                 active caring that followed neither
carers, the vast majority women,                  welcome introduction of up to                     qualified for a Carer’s Allowance
are most at risk of falling into                  20 years of credits for periods of                or any type of pension due to their
a ‘pension gap’ whereby they                      caregiving, this is only granted                  husband’s modest income. While
don’t qualify for a State Pension                 where the carer has a minimum                     we acknowledge the challenges
Contributory due to extended                      of 520 paid contributions. For                    associated with rectifying this
periods out of the workforce to                   some carers, particularly those                   anomaly, none are insurmountable
provide care or for a State Pension               with a child who has a disability or              and we urge the department to
Non-Contributory due to its                       illness, remaining in the workforce               consider the introduction of a
modest means-test. The number of                  to secure the 520 contributions is                safety net Carer’s Pension for the
carers affected by this anomaly is                simply not possible. These carers                 small number of carers affected.
relatively small. However, for those              are further penalised when they

                                                                                                                     55% of
who have devoted their lives to                   also don’t qualify for the State
caring but are told at pension age                Pension Non-Contributory often
that their years of hard work and                 due to their partners income or
                                                                                                                     carers have given
personal sacrifice is not enough                  land that is owned in farming
                                                                                                                     up work to care11.

10
   114,000 carers received the Grant in June 2020. A total of 90,771 carers receive the Grant automatically because they receive either Carer’s
Allowance or Carer’s Benefit. This means that 23,157 carers who receive the Grant as a stand-alone payment. Please note additional Carer Support
Grants will be paid in respect of 2020 up until Dec 2021 therefore the figure of 113,928 will increase.
11
   Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland.

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

                RECOGNISE FAMILY CARERS AS
                UNIQUE WITHIN THE SOCIAL
                WELFARE SYSTEM

Department of Health

8.
Deliver a ‘Carers                          respite, homecare and training.       respite; intensive one-to-one
Guarantee’ to provide 		                   Inconsistent funding, based on        support for carers in crisis; a suite
                                           historical funding arrangements,      of training programmes ranging
a basket of services to
                                           means that access to these            from basic care skills workshops
carers across the country
                                           supports is currently subject to a    to QQI accredited ‘Caring with
(inc. PfG).                                postcode lottery whereby where        Confidence’ training; targeted
Family Carers Ireland welcomes             a person lives, rather than what      support groups and networks
the Programme for Government               they need, will determine if they     and access to information and
commitment to deliver a Carer’s            can access a service or not. Family   advocacy clinics in local community
Guarantee and is calling for               Carers Ireland’s ‘Carers Guarantee’   centres, primary care centres and
€3.2m in funding to be made                proposal sets out how, for an         hospitals. If Government fails to
available in Budget 2021 to begin          additional €3.2m in annual funding,   ensure the uniform delivery of
implementation. Now more than              we will guarantee the delivery of     supports across the country, even
ever as we emerge from the                 a core basket of services to carers   more carers will reach crisis point,
COVID pandemic, carers must be             across the country regardless of      bringing the sustainability of their
given a guarantee of access to a           where they live. These services       caring role into question.
core basket of supports including          will include: access to emergency

CARERS GUARANTEE OF SUPPORTS                                                              Eliminate postcode
                                                                                          lottery of supports
                                                                                          for carers

   For additional €3.2m pa Family Carers can access core supports locally Including:

   Emergency                 Individual                  Training           Networking            Information
    Respite                   Support                                                             & Advocacy
                                                     Basic care skills,     Peer support
      Cover for               One to one             more specialised        meetings &               Advice,
    major family              support for            training - end of      clinics, shared         information
   events, medical             families in            life, life limiting    experiences           on rights and
     treatment,                 distress                 conditions,                               entitlements,
     surgery etc                or crisis                challenging                               support with
                                                          behaviour                                   appeals

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

9.
Increase homecare hours                              return home or stay at home if                          pandemic some 8,000 people were
and introduce a Statutory                            appropriate care was available.                         on a waiting list. In light of this
                                                     It also makes economic sense.                           increased demand, Family Carers
Homecare Scheme (inc
                                                     According to the ESRI a 10%                             Ireland along with the 22 members
PfG) that will include an                            increase in per capita homecare                         of the Homecare Coalition is calling
entitlement to 20 days                               supply could lead to 40,000 fewer                       for an additional €123 million for
respite each year and a                              inpatients beds each year12.                            homecare supports in Budget 2021
Carer Needs Assessment                                                                                       in an effort to begin to meet actual
for fulltime carers.                                 With hospitals and nursing homes
                                                                                                             demand for the scheme. We are
                                                                                                             also calling for the establishment
Government’s commitment to                           required to operate at reduced
                                                                                                             of an integrated statutory scheme
increase homecare hours and                          capacity due to social distancing
                                                                                                             for the provision of home and long-
introduce a Statutory Homecare                       rules and anecdotal evidence of
                                                                                                             term care that will include the right
Scheme is welcome. However, the                      people delaying admission to long-
                                                                                                             to a Carer Needs Assessment and
COVID pandemic has brought                           term care and even removing a
                                                                                                             20 days respite each year for all
into sharp focus the urgency of                      loved one from nursing home care
                                                                                                             full-time family carers in line with
both. Immediate measures are                         due to concerns about COVID-19,
                                                                                                             the annual leave entitlement of
needed to address the consistent                     there will be a commensurate
                                                                                                             paid workers. We are also seeking
underfunding and resource led                        and considerable increase in
                                                                                                             assurances that the scheme will be
nature of homecare which is                          the number of people needing
                                                                                                             launched in 2021 as committed to
leaving thousands of people                          homecare. This will only add to the
                                                                                                             in Sláintecare.
stuck in hospital or forced into                     already overburdened homecare
nursing homes when they could                        service, where prior to the

10.
Extend the Carer GP Visit                            its method of delivery means that                       who are rightly not means tested.
Card to carers in receipt of                         it only reaches a proportion of                         In order to reach a greater number
                                                     carers. It also imposes a means test                    of full-time carers and in keeping
the Carer’s Support Grant
                                                     on carers’ access to the GP Visit                       with Government’s own policy of
(inc. PfG).
                                                     Card by virtue of the means test                        universal access, the GP Visit Card
The introduction of GP Visit Cards                   applied to Carer’s Allowance. This is                   should be made available to all
for carers in receipt of Carer’s                     entirely at odds with Government’s                      carers in receipt of the non-means
Allowance and Carer’s Benefit                        plan for the universal roll-out of                      tested Carer’s Support Grant,
in 2018 was a welcome first step                     free GP care and counter to the                         estimated to reach an additional
in recognising the health and                        universal access afforded to the                        23,157 carers.
wellbeing needs of carers. However,                  over 70s and children under 6 years

11.
Introduce the long-awaited                           has led to the illogical situation                      intellectual disability or cognitive
Transport Support Scheme.                            whereby those who received a                            impairment. This prioritises the
                                                     Mobility Allowance prior to 2013                        transport needs of people with
Family Carers Ireland is                             have been allowed to keep it                            physical disabilities over those with
disappointed that the Programme                      while others now equally in need                        an intellectual/cognitive disability
for Government makes no mention                      are locked out. It also means                           which we believe could be subject
of the introduction of the long-                     that the only transport support                         to legal challenge.
awaited Transport Support Scheme,                    available to families is the Disabled                   The HSEs Framework for the
which has been promised since                        Drivers and Disabled Passengers                         Resumption of Adult Disability Day
2013 when both the Mobility                          Scheme, which is available only                         Services states that approximately
Allowance and Motorised Transport                    to those with severe physical                           8,000 adults with a disability
Schemes were withdrawn on the                        disabilities, with absolutely no                        are provided with transport to
grounds of age discrimination. The                   support available to those with an                      access their day service. However,
failure to replace these schemes

12
   An Analysis of the Effects on Irish Hospital Care of the Supply of Care Inside and Outside the Hospital
https://www.esri.ie/system/files/publications/RS91.pdf

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

the report goes on to state that                the withdrawal of transport to day               introduced to help people with a
following the reduced resumption                services and public health advice                disability meet the additional costs
of services post COVID ‘families of             to avoid public transport, it is now             of accessing services.
services users should be asked to               more imperative than ever that
provide this transport’ (p.15). Given           the Transport Support Scheme is

12.
Extend the NTPF to                              which is measured in years rather                additional funding for the National
abolish waiting lists for                       than months, in accessing these                  Treatment Purchase Fund (NTPF)
                                                essential supports mean that                     to enable it to be extended to
essential health therapies
                                                many of Ireland’s most vulnerable                include clearing the waiting lists
for children with a
                                                children are being denied the                    for paediatric interventions and
disability (PfG)13.                             early intervention support that is               essential therapies by treating
Before COVID, almost 215,000                    critical to their development and                these children through the private
children were on a waiting lists                placing them at serious risk of                  system. Children, particularly those
for essential health care services              regression. While we acknowledge                 with disabilities, have been most
including hospital treatment,                   the Programme for Government                     severely affected by the blanket
speech and language, occupational               commitment to address waiting                    withdrawal of services during the
therapy, physiotherapy and                      times for the Assessment of Need                 COVID crisis. Every effort must
psychology with significant                     legislated for in the Disability                 now be made to ensure the long-
variation in waiting times across               Act 2005, we are sceptical that                  term impacts of the withdrawal of
the country14. This figure is likely            this can be achieved through                     services are minimised.
to increase substantially following             the public system alone. Rather
the lifting of lockdown. The delay,             Family Carers Ireland is calling for

13.
Resumption of disability                        are also deeply concerned that                   provided, people with a disability
services and respite                            respite care, which was already                  and their families must be given
                                                wholly inadequate prior to the                   a cash payment towards meeting
following lockdown.
                                                pandemic, will be virtually non-                 transport costs, as happened
Even before the COVID crisis,                   existent, as social distancing means             prior to 2013 with the Mobility
many carers already experienced                 that the already inadequate respite              Allowance. Where residential
difficulty accessing supports such              provision will be even further                   respite is limited alternative models
as disability services, homecare                curtailed. Notwithstanding the very              of respite should be considered
or respite15. During lockdown, this             real challenges that COVID and the               including supported hotel stays, in-
became even worse as services                   subsequent public health guidance                home respite, host family respite,
were withdrawn and carers were                  present to service providers, the                day break services or summer/
without the support of extended                 COVID crisis should not be used                  weekend camps. We cannot allow
family and friends. As we emerge                as a reason to rationalise services,             people with a disability and their
from lockdown, many carers                      but rather as an opportunity to                  families to suffer further as a result
are feeling exhausted, burnt                    improve them. Where residential or               of COVID-19.
out, isolated and now gravely                   centre-based services are no longer
concerned that the supports and                 available, in-home alternatives
services they relied on before                  should be considered but only
the pandemic will not return.                   where they meet the needs of
The publication of the HSEs                     the service user and their family.
‘Resumption of Adult Disability Day             In a similar way to how creches
Services Framework’ appears to                  and childminding facilities have
reinforce this fear by stating that             reopened using play-pods, social
‘service capacity will be reduced’              pods could be considered for
(page 4) and ‘service users will                adults with a disability who enjoy
receive a reduced quantum of                    peer and social support. Where
service supports’ (page 5). We                  service-based transport cannot be

13
   The Programme for Government commitment refers only to extending the NTPF to secure timely assessment for both child and adult
psychological services.
14
   Figures released through a series of Parliamentary Questions raised by Deputy Stephen Donnelly in December 2019.
15
   State of Caring (2020): Family Carers Ireland.

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

14.
Review and update of the                   too would the level of investment    changes have taken place since the
National Carers Strategy                   allocated to the strategy. The       strategy was published in 2012 that
                                           strategy itself also contains the    now render many of the actions
(inc PfG).
                                           commitment ‘that the strategy        obsolete as they are assigned to a
Ireland’s first National Carers’           would be reviewed on a periodic      department which no longer exists
Strategy, published in 2012,               basis to allow departments to        in that guise. Given the period of
signalled Government’s                     propose additional actions as        significant health reform that we
commitment to respecting carers            our economic position improves’      are now in the midst of, including
as key care partners and to                (National Carers’ Strategy, p.2).    the implementation of Sláintecare
responding to their needs across a         An agreement was reached in          and the creation of a statutory
number of policy areas. At the time        2019 between Family Carers           homecare scheme (both of which
of its publication while the country       Ireland and the Department of        are predicated on the provision of
was in the midst of the economic           Health that the actions contained    care in the home) it is critical that a
crisis, Government warned of the           in the strategy have largely been    refreshed National Carers Strategy
need to be pragmatic in terms              exhausted and that no further        and action plan for the period 2020
of the limited financial resources         annual progress reports would        – 2023 is developed alongside
available but promised that as             be produced. It is also the case     ringfenced funding for its delivery.
Ireland’s economy improved, so             that very significant departmental

            “We will review and update the National Carers Strategy”.
                                     - Programme for Government 2020

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

                REFORM THE SYSTEM OF
                TAX RELIEFS AND CREDITS
                FOR CARERS

Department of Finance

While Family Carers Ireland welcomes the doubling of the Home Carer Tax Credit since 2016, and the
Programme for Government commitment to continue to increase it, we are concerned that the Home Carer Tax
Credit appears to be the only care-related tax relief considered by Government in Budget announcements. By
focusing on this only, Revenue are failing to address the many anomalies that exist within the suite of tax reliefs
available to carers. For example, current arrangements wrongly deny any meaningful tax relief to single carers
or those caring for a relative other than a child. An Incapacitated Child Tax Credit of €3,300 is available to the
parents/guardian of a child, including an adult child, who is permanently incapacitated, either physically or
mentally. However, the only tax relief available to a single person caring for their mother or another non-child
relative is the Dependent Relative Tax Credit of just €70. Equally frustrating is the fact that the Home Carer Tax
Credit of €1,600 is only available to married couples or those who are jointly assessed for tax, meaning single
carers cannot avail of it. While Family Carers Ireland welcomes the commitment to increase the Home Carer Tax
Credit, this in itself is not enough to address a number of anomalies within the current tax system. Specifically,
we are calling for:

15.
Increase in the Dependent                  relative (i.e. parent, sibling, aunt,   tax reliefs for parent carers, we
Relative Tax Credit in line                etc.) and that available to the         feel equally strongly that such tax
                                           parents of a disabled child or          relief should be available to all
with the Incapacitated
                                           adult child of €3,300 through the       fulltime carers, regardless of their
Child Tax Credit.                          Incapacitated Child Tax Credit          relationship to the cared for person.
The disparity between the €70              must be urgently addressed. While
Dependent Relative Tax Credit              Family Carers Ireland unequivocally
available to carers of a ‘non-child’       endorses a generous system of

16.
Extension of eligibility for               important support for working           to support a greater number of
the Home Carer Tax Credit                  carer families. The fact that it is     genuine carers. Family Carers
                                           available only to married or jointly    Ireland is calling for the Home
to include single working
                                           assessed couples, where one             Carer Tax Credit to be made
carers.                                    partner works outside the home          available to single carers who work
The Home Carer Tax Credit of               and the other works predominantly       part-time while also caring for a
€1,600 has doubled in value since          in the home caring for a dependent      dependent person.
2015 making it an increasingly             person, undermines its potential

                                                                                                                     12
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

17.
Allow carers to claim                      prevents carers from claiming both        claimed the Dependent Relative
tax relief on the cost of                  the Dependent Relative Tax Credit         Tax Credit of just €70.
                                           and/or the Incapacitated Child Tax
employing a care worker
                                           Credit while availing of Tax Relief
while also claiming the                    on the Cost of Employing a Home
Dependent Relative/                        Carer. It is particularly concerning
Incapacitated Child tax                    that a carer could potentially lose
credit.                                    out on thousands of euros of tax
                                           relief on employing a home carer
There appears to be little rationale
                                           simply because they had also
for the current stipulation which

PROGRAMME FOR GOVERNMENT COMMITMENTS FOR FAMILY CARERS

      Social Protection                    Health                     Children/Disability              Revenue

  - Develop a pension            - Update the National           - Increase home support &       Increase the Home
    solution for family            Carers Strategy                 PA hours                      Carer Tax Credit
    carers that recognises
                                 - Establish a commission        - Reduce waiting times for
    their important
                                   to examine the care             assessment of need under
    contribution
                                   and support of older            the Disability Act 2005
                                   people
                                                                 - Introduce personalised
  - Protect core social          - Introduce a ‘Carers             budgets for people with
    welfare rates                  Guarantee’ that will            disabilities
                                   provide a basket of
                                                                 - Further intensive
                                   services to carers
                                                                   transitional support
  - Recognise the                  across the country
                                                                   packages for children/
    importance of ancillary
                                 - Increase homecare               young people with
    benefits and eligibility
                                                                   complex support needs
    criteria                     - Introduce a Statutory
                                   Homecare Scheme               - Expand adult day services
                                                                   for people with a physical,
                                 - Extend eligibility for
  - Improve outcomes                                               sensory or intellectual
                                   GP Visit Card to carers
    for those with caring                                          disability or autism
                                   receiving Carer’s
    responsibilities
                                   Support Grant                 - Increase residential and
                                                                   emergency residential
                                 - Champion a whole-of-
                                                                   places
                                   life approach to care
                                                                 - End the inappropriate
                                 - Cap parking charge at
                                                                   placement of young
                                   all public hospitals
                                                                   people to nursing homes
                                 - Support Dialogue
                                                                 - Integrate access to mental
                                   Forum with voluntary
                                                                   health supports as part of
                                   organisations to
                                                                   disability service
                                   build a stronger
                                   working relationship          - Reform the Mental Health
                                   between the State and           Act 2001
                                   voluntary healthcare
                                                                 - Extend the remit of
                                   sector
                                                                   the National Treatment
                                                                   Purchase Fund to secure
                                                                   timely assessment for
                                                                   both child and adult
                                                                   psychological services

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Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021

Family Carers Ireland
Market Square, Tullamore, Co. Offaly
1800 240724 | www.familycarers.ie
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