LIFE AFTER LOCKDOWN: Family Carers Ireland's Proposals for Budget 2021 - Family Carers Ireland Market Square, Tullamore, Co. Offaly 1800 240724 | ...
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LIFE AFTER LOCKDOWN: Family Carers Ireland’s Proposals for Budget 2021 Family Carers Ireland Market Square, Tullamore, Co. Offaly 1800 240724 | www.familycarers.ie
Family Carers Ireland’s PROPOSALS FOR BUDGET 2021 Department of Employment Affairs and Social Protection RECOGNISE FAMILY CARERS AS UNIQUE WITHIN THE SOCIAL WELFARE SYSTEM 1. Begin the phased restoration of the Carer’s Allowance income disregard to ensure that those on an average industrial income can qualify. 2. Recognise the costs associated with caring in the deductions allowable for Carer’s Allowance and assess income on its net rather than gross value 3. Increase the €20,000 disregard to €50,000 in the Capital Formula. 4. Increase the Carer’s Support Grant from €1,700 to €2,000. 5. Extend eligibility for Carer’s Benefit to include people who are self-employed. 6. Extend eligibility for Domiciliary Care Allowance to children residing in hospital. 7. Develop a pension solution for family carers that recognises their important work (commitment contained in the Programme for Government (inc PfG hereafter)). Department of Health SUPPORT PEOPLE TO BE CARED FOR AT HOME 8. Deliver a ‘Carers Guarantee’ to provide a basket of services to carers across the country (inc PfG). 9. Increase homecare hours and introduce a Statutory Homecare Scheme (inc PfG) that will include an entitlement to 20 days respite each year and a Carer Needs Assessment for fulltime carers. 10. Extend the Carer GP Visit Card to carers in receipt of the Carer’s Support Grant (inc PfG). 11. Introduce the long-awaited Transport Support Scheme. 12. Extend the NTPF to abolish waiting lists for essential therapies for children with a disability (inc PfG)1. Department of Finance REFORM THE SYSTEM OF TAX RELIEFS AND CREDITS AVAILABLE TO FAMILY CARERS 13. Resumption of disability services including respite following lockdown. 14. Review and update of the National Carers Strategy (PfG). 15. Increase in the Dependent Relative Tax Credit in line with the Incapacitated Child Tax Credit. 16. Extend eligibility for the Home Carer Tax Credit to include single working carers. 17. Allow carers to claim tax relief on the cost of employing a care worker while also claiming the Dependent Relative/Incapacitated Child tax credit. 1 The Programme for Government commitment refers only to extending the NTPF to secure timely assessment for both child and adult psychological services. 2
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 INTRODUCTION Family carers are the The year 2020 will undoubtedly health system, a prohibition be remembered as the time that on evictions, a rent freeze and backbone of care COVID-19 brought the world to the mobilisation of community provision in Ireland. a standstill. As well as the tragic services to support those who loss of life, businesses, schools, were most vulnerable to the virus They deserve support creches and workplaces closed are all to be commended. As we and recognition and life as we had known it emerge from this crisis and enter changed beyond recognition. life after lockdown, Government’s from Government. At its peak, over one million response to this ‘new normal’ will (Programme for people in Ireland relied on social be of equal importance. Government, 2020) welfare, dragging the economy from near full employment to Family carers have long been an unemployment rate of 28%, lauded as the backbone of care giving rise to the largest monthly provision in Ireland; an essential unemployment increase in the yet hidden pillar in our healthcare State’s history. system. However, during COVID they became much more. They For Ireland’s 355,000+ family became the great protectors of carers, the withdrawal of society. They not only stayed supports such as homecare, at home themselves during the respite, personal assistance crisis but enabled older people, hours and residential care forced people with a disability, the sick many carers to care alone, and terminally ill to stay at home around the clock and without the as well. When services shut down support of extended family or they stepped up, continuing to friends. Parents of children with care around the clock to ensure a disability lost the routine and their loved one stayed at home relief of school, day services and and out of hospital, facing essential therapies placing the unprecedented levels of risk to child at serious risk of regression. themselves in order to protect Older carers and those with us all. Carers have played a more underlying health conditions were significant role in suppressing expected to cocoon; isolated and the coronavirus than most and reliant on others. Even carers their essential contribution to who were coping relatively the national healthcare response well prior to the pandemic now should be acknowledged and find themselves mentally and applauded. physically drained and struggling to maintain their caring role. Family Carers Ireland welcomes the commitments made for The State’s response to the family carers in the Programme COVID crisis is to be applauded. for Government and is calling on Government’s swift action the newly-elected Government and raft of supports including to use Budget 2021 as a first the introduction of a wage step towards honouring these subsidy scheme, an enhanced commitments and delivering on unemployment payment, a a number of other critical policy temporary end to our two-tier areas. 3
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 RECOGNISE FAMILY CARERS AS UNIQUE WITHIN THE SOCIAL WELFARE SYSTEM Department of Employment Affairs and Social Protection Family carers are unique within the social welfare system on a number of grounds: (i) carers are the only recipients of social welfare required to work full-time for their payment – at least 35 hours per week – and receive just €16 more than the basic social welfare rate for doing so; (ii) in undertaking this work, they save the State billions of euro that would otherwise have to be met by the exchequer – this means that they cannot be subject to normal requirements in regard to activation measures; (iii) the State is consistently adding to the cost (withdrawal of certain health services and supports) and burden of care (e.g. reporting requirements under the Assisted Decision-making (Capacity) Act 2015); (iv) providing this care brings with it significant personal costs, including financial, health and wellbeing costs as well as longer term consequences to their pension entitlement; and (v) carers bear additional costs associated with their caregiving role that are not compensated for by the State, as is the case with other welfare recipients who receive travel allowances and material and training grants, for example. While the Review of Carer’s and supports. A family carer is paid at a maximum rate of Allowance 2019 refers to the looking after their own child with €219 per week, they have no Carer’s Allowance means test profound needs only receives a employment rights, their payment being the most generous in maximum rate of €219 per week will be stopped if they are sick the social welfare system (p3, (only 51% of all carers receive and cannot provide replacement p11, p15, p30, p35, p37), this the maximum rate)2 and access care and must work a minimum presupposes that it should only to services for their child(ren) is 35 hours per week - many carers be benchmarked against income subordinate to children in foster in fact provide round the clock support for people of working care. care. age which is arguably not the correct categorisation given the By way of another comparison, considerations set out above. a person on a Community 79% Employment scheme receives An Irish citizen fostering a child a minimum payment of €225 receives a minimum of €352 per week, enjoys statutory per week (not means tested or employment rights including of carers receiving taxable), with weekly payments the right to annual leave and Carer’s Allowance of more than double this available public holidays and must work find it difficult to to those fostering children with just 19.5 hours per week as part make ends meet3. complex care needs. Foster of their activation programme. parents are also afforded priority For a person in receipt of Carer’s access to relevant State services Allowance their weekly payment 2 DEASP ‘Review of Carer’s Allowance 2019’. 3 Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland. 4
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 1. Begin the phased of how considerable their caring current rate of Carer’s Allowance restoration of the Carer’s responsibilities are. These are of €219 is €1.50 less than it was families who typically have higher in 2009, despite a 6.9 percent Allowance income than average household costs due increase in the Consumer Price disregard to ensure that to caring and where very often one Index (CPI) during this period. This those on an average member has had to give up work to means that the equalised value industrial income can provide care. of Carer’s Allowance at the rate qualify. paid in 2009 of €220.50 is €236 in 20205. Despite the many plaudits Despite increasing steadily during recognising their immense the period 2000 to 2008, the contribution, genuine full-time income disregard for Carer’s family carers of people with THE WEEKLY Allowance has remained stagnant complex needs continue to be for the last 12 years, meaning denied Carer’s Allowance due Government has failed to achieve to the means test. These are by the commitment set out in Towards RATE OF CARER’S no means wealthy families. Only households with a gross total 2016 to expand the income ALLOWANCE IS LESS NOW disregard for Carer’s Allowance so income of less than €37,500 per that those on average industrial year will qualify for a full Carers incomes can qualify (p.55). Average Allowance. Those with a gross earnings in Quarter 1, 2020 were THAN IT WAS IN 2009 household income of between €8014 while the income disregard €37,500 and €62,000 qualify for a for Carer’s Allowance remains at much-reduced rate. Any household €332.50/€665 (couple). The failure with a gross income above to ensure that the income disregard €62,000 including savings and kept pace with average earnings is assets are not eligible, regardless compounded by the fact that the CARER’S ALLOWANCE INCOME DISREGARD 2000 – 2020 Budget 2000 2001 2002 2003 2004 2005 2006 2006 2007 2008 2008/2020 Income Disregard Single €95 €158 €191 €210 €250 €270 €270 €290 €320 €332.50 No change Couple €190 €317 €382 €420 €500 €540 €540 €580 €640 €665 Increase + 350% 0% 4 CSO July 2020. 5 CSO Consumer Price Index Inflation Calculator 5
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 2. Recognise the costs based on their gross income, but costs, education expenses, and an associated with caring in are struggling to make ends meet allowance ranging from €38 to €78 when living expenses and the for each dependent child. the deductions allowable cost of care are deducted. The for Carer’s Allowance and deductions currently allowed are assess income on its net limited to a €332.50/€665 weekly rather than gross value. income disregard, PRSI, union 21% Because the assessment of dues, superannuation and travel means for Carer’s Allowance is expenses6. Family Carers Ireland applied to gross rather than net argues that the means test should income and does not consider be applied to net rather than gross of carers have cut mortgage repayments, dependent income in line with the assessment back on essentials children, college fees, Fair Deal applied to Carer’s Benefit7 and such as groceries contributions, medical costs, etc., should include deductions similar or heat to make the assessment does not reflect to those allowed in the financial ends meet8. the reality faced by many caring assessment for a Medical Card families. These families may appear including mortgage repayments, relatively financially comfortable childcare costs, nursing home 3. The Joint Increase the €20,000 are being penalised by virtue of Committee on Health disregard to €50,000 in the capital formula applied to the Capital Formula. savings and assets in the means RECOMMENDED IN 2019 assessment for Carer’s Allowance. that family carers be Because the State makes no Family Carers Ireland is calling for provision for the future care provided with the capital formula – which has not needs of children and adults with changed since 2005 - applied to ADEQUATE SUPPORT significant care needs, families Carer’s Allowance to be increased TO INCENTIVISE have to do so. It is not uncommon from €20,000 to €50,000 in line INFORMAL CARE for carers, particularly the parents with the Disability Allowance where of a child with a disability, to go the first €50,000 of capital is including re-examining without in order to save money disregarded. eligibility to for Carer’s towards their child’s future care Allowance9. needs. In doing so, these carers CAPITAL FORMULA Carer’s Allowance (Current) Carer’s Allowance (Proposed – same as DA) Capital Weekly means Capital Weekly means First €20,000 Nil First €50,000 Nil Next €10,000 €1 per €1,000 Next €10,000 €1 per €1,000 Next €10,000 €2 per €1,000 Next €10,000 €2 per €1,000 Balance (over €40K) €4 per €1,000 Balance (over €70K) €4 per €1,000 6 Travel is applied at a standard rate of €15 but can be increased where appropriate. 7 With Carer’s Benefit the €332.50 a carer is allowed to earn is based on net income after income tax, USC, PRSI, superannuation, pension levy, union dues, subscriptions to Friendly Societies and health insurance premiums are deducted. 8 Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland. 9 Joint Committee on Health (2019): Report on the Provision on Homecare Services. 6
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 4. Increase the Carer’s of family carers. While the Grant need of full-time care, the Grant is Support Grant from can be used as the carer chooses, the only financial recognition of the for many it goes towards the cost care they provide. Family Carers €1,700 to €2,000. associated with caring or towards Ireland is calling for the Grant to The annual Carer’s Support Grant paying household bills. For some be increased to €2,000 in Budget is an important payment that 23,15710 full-time carers of people 2021. recognises the unique contribution who are medically assessed as in 5. Extend eligibility and extend eligibility for social to find themselves with caring for Carer’s Benefit to welfare supports to people who responsibilities and therefore need are self-employed, Family Carers the assurance of having a financial include people who Ireland is calling for eligibility to support available to them should are self-employed. Carer’s Benefit to be extended they need to take time away from In line with Government’s stated to people who are self-employed work to provide care. aim to create a supportive or paying a Class S stamp. environment for entrepreneurship These people are equally likely 6. Give sick children living the Domiciliary Care Allowance Carer’s Allowance. Family Carers in hospital access to because they do not satisfy the Ireland understands that steps have requirement that they ‘live at been taken to resolve this anomaly the Domiciliary Care home’. As a consequence, their but urge that efforts be expedited Allowance. parents, many of whom are forced to ensure these families are not Some of Ireland’s sickest to give up their employment to stay forced to suffer further financial children are denied access to with them in hospital, are denied hardship. 7. Develop a pension solution to warrant a State Pension, the situations. Indeed, Family Carers for family carers that hurt and insult is immense. While Ireland has encountered a number the Total Contributions Approach of cases where a mother had given recognises their important to the calculation of the State up her career to care for a disabled work (inc. PfG). Pension Contributory, due to come child and in the almost 50 years of It is long accepted that family into effect in 2021, includes the active caring that followed neither carers, the vast majority women, welcome introduction of up to qualified for a Carer’s Allowance are most at risk of falling into 20 years of credits for periods of or any type of pension due to their a ‘pension gap’ whereby they caregiving, this is only granted husband’s modest income. While don’t qualify for a State Pension where the carer has a minimum we acknowledge the challenges Contributory due to extended of 520 paid contributions. For associated with rectifying this periods out of the workforce to some carers, particularly those anomaly, none are insurmountable provide care or for a State Pension with a child who has a disability or and we urge the department to Non-Contributory due to its illness, remaining in the workforce consider the introduction of a modest means-test. The number of to secure the 520 contributions is safety net Carer’s Pension for the carers affected by this anomaly is simply not possible. These carers small number of carers affected. relatively small. However, for those are further penalised when they 55% of who have devoted their lives to also don’t qualify for the State caring but are told at pension age Pension Non-Contributory often that their years of hard work and due to their partners income or carers have given personal sacrifice is not enough land that is owned in farming up work to care11. 10 114,000 carers received the Grant in June 2020. A total of 90,771 carers receive the Grant automatically because they receive either Carer’s Allowance or Carer’s Benefit. This means that 23,157 carers who receive the Grant as a stand-alone payment. Please note additional Carer Support Grants will be paid in respect of 2020 up until Dec 2021 therefore the figure of 113,928 will increase. 11 Family Carers Ireland (2020) State of Caring 2020. Dublin: Family Carers Ireland. 7
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 RECOGNISE FAMILY CARERS AS UNIQUE WITHIN THE SOCIAL WELFARE SYSTEM Department of Health 8. Deliver a ‘Carers respite, homecare and training. respite; intensive one-to-one Guarantee’ to provide Inconsistent funding, based on support for carers in crisis; a suite historical funding arrangements, of training programmes ranging a basket of services to means that access to these from basic care skills workshops carers across the country supports is currently subject to a to QQI accredited ‘Caring with (inc. PfG). postcode lottery whereby where Confidence’ training; targeted Family Carers Ireland welcomes a person lives, rather than what support groups and networks the Programme for Government they need, will determine if they and access to information and commitment to deliver a Carer’s can access a service or not. Family advocacy clinics in local community Guarantee and is calling for Carers Ireland’s ‘Carers Guarantee’ centres, primary care centres and €3.2m in funding to be made proposal sets out how, for an hospitals. If Government fails to available in Budget 2021 to begin additional €3.2m in annual funding, ensure the uniform delivery of implementation. Now more than we will guarantee the delivery of supports across the country, even ever as we emerge from the a core basket of services to carers more carers will reach crisis point, COVID pandemic, carers must be across the country regardless of bringing the sustainability of their given a guarantee of access to a where they live. These services caring role into question. core basket of supports including will include: access to emergency CARERS GUARANTEE OF SUPPORTS Eliminate postcode lottery of supports for carers For additional €3.2m pa Family Carers can access core supports locally Including: Emergency Individual Training Networking Information Respite Support & Advocacy Basic care skills, Peer support Cover for One to one more specialised meetings & Advice, major family support for training - end of clinics, shared information events, medical families in life, life limiting experiences on rights and treatment, distress conditions, entitlements, surgery etc or crisis challenging support with behaviour appeals 8
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 9. Increase homecare hours return home or stay at home if pandemic some 8,000 people were and introduce a Statutory appropriate care was available. on a waiting list. In light of this It also makes economic sense. increased demand, Family Carers Homecare Scheme (inc According to the ESRI a 10% Ireland along with the 22 members PfG) that will include an increase in per capita homecare of the Homecare Coalition is calling entitlement to 20 days supply could lead to 40,000 fewer for an additional €123 million for respite each year and a inpatients beds each year12. homecare supports in Budget 2021 Carer Needs Assessment in an effort to begin to meet actual for fulltime carers. With hospitals and nursing homes demand for the scheme. We are also calling for the establishment Government’s commitment to required to operate at reduced of an integrated statutory scheme increase homecare hours and capacity due to social distancing for the provision of home and long- introduce a Statutory Homecare rules and anecdotal evidence of term care that will include the right Scheme is welcome. However, the people delaying admission to long- to a Carer Needs Assessment and COVID pandemic has brought term care and even removing a 20 days respite each year for all into sharp focus the urgency of loved one from nursing home care full-time family carers in line with both. Immediate measures are due to concerns about COVID-19, the annual leave entitlement of needed to address the consistent there will be a commensurate paid workers. We are also seeking underfunding and resource led and considerable increase in assurances that the scheme will be nature of homecare which is the number of people needing launched in 2021 as committed to leaving thousands of people homecare. This will only add to the in Sláintecare. stuck in hospital or forced into already overburdened homecare nursing homes when they could service, where prior to the 10. Extend the Carer GP Visit its method of delivery means that who are rightly not means tested. Card to carers in receipt of it only reaches a proportion of In order to reach a greater number carers. It also imposes a means test of full-time carers and in keeping the Carer’s Support Grant on carers’ access to the GP Visit with Government’s own policy of (inc. PfG). Card by virtue of the means test universal access, the GP Visit Card The introduction of GP Visit Cards applied to Carer’s Allowance. This is should be made available to all for carers in receipt of Carer’s entirely at odds with Government’s carers in receipt of the non-means Allowance and Carer’s Benefit plan for the universal roll-out of tested Carer’s Support Grant, in 2018 was a welcome first step free GP care and counter to the estimated to reach an additional in recognising the health and universal access afforded to the 23,157 carers. wellbeing needs of carers. However, over 70s and children under 6 years 11. Introduce the long-awaited has led to the illogical situation intellectual disability or cognitive Transport Support Scheme. whereby those who received a impairment. This prioritises the Mobility Allowance prior to 2013 transport needs of people with Family Carers Ireland is have been allowed to keep it physical disabilities over those with disappointed that the Programme while others now equally in need an intellectual/cognitive disability for Government makes no mention are locked out. It also means which we believe could be subject of the introduction of the long- that the only transport support to legal challenge. awaited Transport Support Scheme, available to families is the Disabled The HSEs Framework for the which has been promised since Drivers and Disabled Passengers Resumption of Adult Disability Day 2013 when both the Mobility Scheme, which is available only Services states that approximately Allowance and Motorised Transport to those with severe physical 8,000 adults with a disability Schemes were withdrawn on the disabilities, with absolutely no are provided with transport to grounds of age discrimination. The support available to those with an access their day service. However, failure to replace these schemes 12 An Analysis of the Effects on Irish Hospital Care of the Supply of Care Inside and Outside the Hospital https://www.esri.ie/system/files/publications/RS91.pdf 9
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 the report goes on to state that the withdrawal of transport to day introduced to help people with a following the reduced resumption services and public health advice disability meet the additional costs of services post COVID ‘families of to avoid public transport, it is now of accessing services. services users should be asked to more imperative than ever that provide this transport’ (p.15). Given the Transport Support Scheme is 12. Extend the NTPF to which is measured in years rather additional funding for the National abolish waiting lists for than months, in accessing these Treatment Purchase Fund (NTPF) essential supports mean that to enable it to be extended to essential health therapies many of Ireland’s most vulnerable include clearing the waiting lists for children with a children are being denied the for paediatric interventions and disability (PfG)13. early intervention support that is essential therapies by treating Before COVID, almost 215,000 critical to their development and these children through the private children were on a waiting lists placing them at serious risk of system. Children, particularly those for essential health care services regression. While we acknowledge with disabilities, have been most including hospital treatment, the Programme for Government severely affected by the blanket speech and language, occupational commitment to address waiting withdrawal of services during the therapy, physiotherapy and times for the Assessment of Need COVID crisis. Every effort must psychology with significant legislated for in the Disability now be made to ensure the long- variation in waiting times across Act 2005, we are sceptical that term impacts of the withdrawal of the country14. This figure is likely this can be achieved through services are minimised. to increase substantially following the public system alone. Rather the lifting of lockdown. The delay, Family Carers Ireland is calling for 13. Resumption of disability are also deeply concerned that provided, people with a disability services and respite respite care, which was already and their families must be given wholly inadequate prior to the a cash payment towards meeting following lockdown. pandemic, will be virtually non- transport costs, as happened Even before the COVID crisis, existent, as social distancing means prior to 2013 with the Mobility many carers already experienced that the already inadequate respite Allowance. Where residential difficulty accessing supports such provision will be even further respite is limited alternative models as disability services, homecare curtailed. Notwithstanding the very of respite should be considered or respite15. During lockdown, this real challenges that COVID and the including supported hotel stays, in- became even worse as services subsequent public health guidance home respite, host family respite, were withdrawn and carers were present to service providers, the day break services or summer/ without the support of extended COVID crisis should not be used weekend camps. We cannot allow family and friends. As we emerge as a reason to rationalise services, people with a disability and their from lockdown, many carers but rather as an opportunity to families to suffer further as a result are feeling exhausted, burnt improve them. Where residential or of COVID-19. out, isolated and now gravely centre-based services are no longer concerned that the supports and available, in-home alternatives services they relied on before should be considered but only the pandemic will not return. where they meet the needs of The publication of the HSEs the service user and their family. ‘Resumption of Adult Disability Day In a similar way to how creches Services Framework’ appears to and childminding facilities have reinforce this fear by stating that reopened using play-pods, social ‘service capacity will be reduced’ pods could be considered for (page 4) and ‘service users will adults with a disability who enjoy receive a reduced quantum of peer and social support. Where service supports’ (page 5). We service-based transport cannot be 13 The Programme for Government commitment refers only to extending the NTPF to secure timely assessment for both child and adult psychological services. 14 Figures released through a series of Parliamentary Questions raised by Deputy Stephen Donnelly in December 2019. 15 State of Caring (2020): Family Carers Ireland. 10
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 14. Review and update of the too would the level of investment changes have taken place since the National Carers Strategy allocated to the strategy. The strategy was published in 2012 that strategy itself also contains the now render many of the actions (inc PfG). commitment ‘that the strategy obsolete as they are assigned to a Ireland’s first National Carers’ would be reviewed on a periodic department which no longer exists Strategy, published in 2012, basis to allow departments to in that guise. Given the period of signalled Government’s propose additional actions as significant health reform that we commitment to respecting carers our economic position improves’ are now in the midst of, including as key care partners and to (National Carers’ Strategy, p.2). the implementation of Sláintecare responding to their needs across a An agreement was reached in and the creation of a statutory number of policy areas. At the time 2019 between Family Carers homecare scheme (both of which of its publication while the country Ireland and the Department of are predicated on the provision of was in the midst of the economic Health that the actions contained care in the home) it is critical that a crisis, Government warned of the in the strategy have largely been refreshed National Carers Strategy need to be pragmatic in terms exhausted and that no further and action plan for the period 2020 of the limited financial resources annual progress reports would – 2023 is developed alongside available but promised that as be produced. It is also the case ringfenced funding for its delivery. Ireland’s economy improved, so that very significant departmental “We will review and update the National Carers Strategy”. - Programme for Government 2020 11
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 REFORM THE SYSTEM OF TAX RELIEFS AND CREDITS FOR CARERS Department of Finance While Family Carers Ireland welcomes the doubling of the Home Carer Tax Credit since 2016, and the Programme for Government commitment to continue to increase it, we are concerned that the Home Carer Tax Credit appears to be the only care-related tax relief considered by Government in Budget announcements. By focusing on this only, Revenue are failing to address the many anomalies that exist within the suite of tax reliefs available to carers. For example, current arrangements wrongly deny any meaningful tax relief to single carers or those caring for a relative other than a child. An Incapacitated Child Tax Credit of €3,300 is available to the parents/guardian of a child, including an adult child, who is permanently incapacitated, either physically or mentally. However, the only tax relief available to a single person caring for their mother or another non-child relative is the Dependent Relative Tax Credit of just €70. Equally frustrating is the fact that the Home Carer Tax Credit of €1,600 is only available to married couples or those who are jointly assessed for tax, meaning single carers cannot avail of it. While Family Carers Ireland welcomes the commitment to increase the Home Carer Tax Credit, this in itself is not enough to address a number of anomalies within the current tax system. Specifically, we are calling for: 15. Increase in the Dependent relative (i.e. parent, sibling, aunt, tax reliefs for parent carers, we Relative Tax Credit in line etc.) and that available to the feel equally strongly that such tax parents of a disabled child or relief should be available to all with the Incapacitated adult child of €3,300 through the fulltime carers, regardless of their Child Tax Credit. Incapacitated Child Tax Credit relationship to the cared for person. The disparity between the €70 must be urgently addressed. While Dependent Relative Tax Credit Family Carers Ireland unequivocally available to carers of a ‘non-child’ endorses a generous system of 16. Extension of eligibility for important support for working to support a greater number of the Home Carer Tax Credit carer families. The fact that it is genuine carers. Family Carers available only to married or jointly Ireland is calling for the Home to include single working assessed couples, where one Carer Tax Credit to be made carers. partner works outside the home available to single carers who work The Home Carer Tax Credit of and the other works predominantly part-time while also caring for a €1,600 has doubled in value since in the home caring for a dependent dependent person. 2015 making it an increasingly person, undermines its potential 12
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 17. Allow carers to claim prevents carers from claiming both claimed the Dependent Relative tax relief on the cost of the Dependent Relative Tax Credit Tax Credit of just €70. and/or the Incapacitated Child Tax employing a care worker Credit while availing of Tax Relief while also claiming the on the Cost of Employing a Home Dependent Relative/ Carer. It is particularly concerning Incapacitated Child tax that a carer could potentially lose credit. out on thousands of euros of tax relief on employing a home carer There appears to be little rationale simply because they had also for the current stipulation which PROGRAMME FOR GOVERNMENT COMMITMENTS FOR FAMILY CARERS Social Protection Health Children/Disability Revenue - Develop a pension - Update the National - Increase home support & Increase the Home solution for family Carers Strategy PA hours Carer Tax Credit carers that recognises - Establish a commission - Reduce waiting times for their important to examine the care assessment of need under contribution and support of older the Disability Act 2005 people - Introduce personalised - Protect core social - Introduce a ‘Carers budgets for people with welfare rates Guarantee’ that will disabilities provide a basket of - Further intensive services to carers transitional support - Recognise the across the country packages for children/ importance of ancillary - Increase homecare young people with benefits and eligibility complex support needs criteria - Introduce a Statutory Homecare Scheme - Expand adult day services for people with a physical, - Extend eligibility for - Improve outcomes sensory or intellectual GP Visit Card to carers for those with caring disability or autism receiving Carer’s responsibilities Support Grant - Increase residential and emergency residential - Champion a whole-of- places life approach to care - End the inappropriate - Cap parking charge at placement of young all public hospitals people to nursing homes - Support Dialogue - Integrate access to mental Forum with voluntary health supports as part of organisations to disability service build a stronger working relationship - Reform the Mental Health between the State and Act 2001 voluntary healthcare - Extend the remit of sector the National Treatment Purchase Fund to secure timely assessment for both child and adult psychological services 13
Life After Lockdown | Family Carers Ireland’s Proposals for Budget 2021 Family Carers Ireland Market Square, Tullamore, Co. Offaly 1800 240724 | www.familycarers.ie
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