"It's Like Going through an Earthquake": Anthropological Perspectives on Depression among Latino Immigrants
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J Immigrant Minority Health (2007) 9:17–28 DOI 10.1007/s10903-006-9011-0 ORIGINAL PAPER “It’s Like Going through an Earthquake”: Anthropological Perspectives on Depression among Latino Immigrants Igda E. Martı́nez Pincay · Peter J. Guarnaccia Published online: 28 September 2006 C Springer Science+Business Media, LLC 2006 Abstract Depression is one of the most prevalent mental Introduction illnesses in the community and is responsible for a signifi- cant amount of disability. According to epidemiological and Depression is one of the most prevalent mental illnesses in primary care studies, Latinos suffer from depression at high the community and is responsible for a significant amount rates. This paper examines in depth Latinos’ conceptions of of disability. The quote above describes how one Latino depression and their attitudes towards and expectations of immigrant who participated in our focus groups described the mental health treatment. The aim of this paper is to summa- immigration process. At the same time, the quote can be read rize several qualitative studies examining Latinos’ cultural as a graphic description of how devastating and disabling understandings of mental health in general and depression in depression can be and links the losses of immigration to the particular, as well as to obtain information about the barriers depression experience. to care that this community experienced. The results are a According to epidemiological and primary care studies, compilation of findings from four different research projects Latinos suffer from depression at high rates [1–4]. How- in New Jersey and New York that examined diverse Latinos’ ever, recent studies have demonstrated the importance of conceptions of mental health, treatment and barriers to care. distinguishing between Latino immigrants and those Lati- nos born in the U.S. While immigrant Latinos experience Keywords Depression . Latinos . Immigration . Barriers lower rates of depression than their U.S.-born compatriots to care . Attitudes towards treatment and than non-Hispanic Whites, they are also less likely to seek mental health services when they are depressed [5]. Es como perder su techo, perder todo, es como cuando We chose to study depression not only due to its preva- uno ha pasado por un terremoto y perdió todo. . . es lence in the community, but also because there are clear, como una acumulación de pérdidas. [It’s like losing the well-developed treatment guidelines for both therapeutic and roof over your head, losing everything, it’s as if one had medication interventions for depression. Yet studies consis- gone through an earthquake and lost everything. . . it’s tently show that Latinos have very low rates of use of mental an accumulation of losses.] health services [6–13]. Immigrants are even less likely to use mental health services than U.S. born Latinos. When Latinos do seek help for mental health problems, they are I. E. Martı́nez Pincay () Graduate School of Applied and Professional Psychology, more likely to do so in the general medical sector than in Rutgers University, 152 Frelinghuysen Road, specialty mental health services. Piscataway, NJ 08854-8085, USA There are a wide range of barriers to seeking mental e-mail: igda martinez@hotmail.com health care that have been identified in the Latino men- P. J. Guarnaccia tal health literature [7, 9, 10, 12, 13]. These barriers can Institute for Health, Health Care Policy, and Aging Research, be organized into several dimensions: barriers in the ser- Rutgers University, vice system, community-level barriers, barriers in the social New Brunswick, NJ, USA networks of people in the community, and person-centered barriers. The most important system level barriers include Springer
18 J Immigrant Minority Health (2007) 9:17–28 lack of health insurance, language barriers, immigration to care that this community experienced. The results pre- status, discrimination from the system and lack of infor- sented in this paper are a compilation of findings from four mation about services (especially in Spanish). Community different research projects in New Jersey and New York that centered barriers include the stigma of mental illness and were carried out to examine diverse Latinos’ conceptions of the density of family and other support networks. Person- mental health, treatment and barriers to care. centered barriers include lack of recognition of mental health problems, stigma of mental illness, and a self-reliant attitude. Methods Few studies have gone beyond identifying and confirming in correlational analyses this same set of barriers. They have We chose focus groups as the method of data gathering be- not delineated the dimensions of these barriers nor have they cause it is an excellent qualitative methodology for exploring looked at how Latinos in the community assess these barriers. group ideas about an issue and eliciting the perspectives of Cooper and colleagues [14] report on one of the most com- people in the community [16]. We were bolstered in our prehensive analyses of multi-ethnic patients’ perceptions of approach by a paper on the needs of people with psychotic the acceptability of treatment for depression. Using data from disorders that took a similar perspective in a cross-national three NIMH quality improvement interventions to improve study of psychiatric services users’ needs for care [17]. In or- the quality of depression care, they compared the attitudes der to get beyond the same list of issues and barriers already of African-Americans, Hispanics and Whites towards de- identified in the Latino mental health literature, we felt that pression treatment. Their sample consisted of 829 patients, it was important to more fully discuss with a diverse group of whom 73 were Hispanic. The investigators used a highly of Latinos their understandings of depression and their as- structured interview to assess attitudes towards depression sessments of different treatment alternatives. By conducting care. They found that Hispanics, like African Americans, multiple focus groups in different sites with diverse Latino expressed lower acceptance of anti-depressant medication populations, we could identify cultural diversity and cross- than Whites and more acceptance than Blacks of counsel- cultural similarities among Latinos. Each study was designed ing services. They also found that Hispanics and African separately and therefore not designed to parallel each other. Americans were more likely to see medications as addictive In this paper we are integrating the findings across the four and less likely to see them as effective compared to Whites. studies. While Cooper and colleagues [14] argue that there is a need to understand attitudes and social norms towards treatment Focus group participants in more depth than can be captured using categorical re- sponses on a structured questionnaire, their study relies on Focus group participants were recruited from various sites just such responses. Even so, their research represents one of for the multiple studies. All were community samples re- the few studies to compare African American, Hispanic and cruited through a range of community mental health and White attitudes towards treatment in the same study using social service agencies as well as community resources such the same methods. Also, while their study is comparative, as churches and day care centers. Overall there were 94 par- it only includes 73 undifferentiated Hispanics (across three ticipants in 12 different groups throughout New Jersey and different interventions) representing less than 10% of the New York City. This is a larger sample than the number of total sample. The study was also limited because all of the Hispanics in three national quality improvement interven- Hispanics spoke English and were insured, limiting the di- tions [14]. The focus groups consisted of a diverse group of versity of the Hispanic sample and likely excluding most Latinos in terms of country of origin, time in U.S., age, and recent immigrants. education (please see Table 1). This paper, along with the companion paper by Cabassa A total of 12 focus groups are included in this paper. and colleagues [15], examines in more depth Latinos’ con- Five of the focus groups (40 participants, total) were from ceptions of depression and their attitudes towards and expec- Study 1 and were held within New Jersey to assess concep- tations of mental health treatment. The combined papers pro- tions of mental health, treatment and barriers to care. These vide a fuller comparison among Latinos from diverse parts focus groups consisted primarily of females (72%). Two of the United States. The papers provide richer understand- groups were held with Puerto Ricans (37.5%) and Domini- ings of the concerns Latinos express about mental health cans (7.5%), 2 groups were held with Mexicans (currenly treatment; insights that can inform both future research and says 1), and one group was held with Cubans (22.5%). The clinical treatment. The aim of this paper is to summarize groups were also varied in terms of urban/rural community several qualitative studies examining Latinos’ cultural un- settings. The participants in these groups ranged in age from derstandings of mental health in general and depression in 20 to over 60 and had been in the United States anywhere particular, as well as to obtain information about the barriers from less than one year to over 20 years. These participants Springer
J Immigrant Minority Health (2007) 9:17–28 19 Table 1 Demographics Study 1 (NJ): 5 FG Study 2 (NY): 3 FG Study 3 (NJ): 2 FG Study 4 (NJ): 2 FG N 40 22 14 18 Gender (% female) 72 68 90 94 Age range 20–60 Over 65 24–64 28–71 Country of Origin (%) Diverse Latino Groups Diverse Latino Groups Puerto Rico 37.5 50 No majority From any One group No majority From any One group Dominican Republic 7.5 50 Mexico 32.5 Cuba 22.5 Time in U.S. Range
20 J Immigrant Minority Health (2007) 9:17–28 Analysis of the focus groups ticipants linked mental health to staying away from “vices,” particularly not abusing alcohol or drugs. In addition, one of All of the focus groups were transcribed for review and the key roles of the family is to protect and nurture children analysis. After debriefing each focus group and comparing and one of the major challenges for immigrants is to pro- general notes, each transcript was read over several times and tect and support their children in the complex and difficult a basic content analysis was performed by each member of transition to moving to the United States. Families fear that the research team. Each coder created a list of major themes their children will not be safe in the urban centers in the that arose in the groups and these lists were compared in U.S. where many immigrants live and that they will become team meetings. Consensus on key themes from the coding American too quickly. was obtained through discussion and elaboration on each Para mi la buena vida es conservar las amistades y creer coder’s conceptualization of the construct being discussed in en Dios, alejarnos de vicios y mantener nuestros hijos the focus group. Based on the content analyses and on the fuera de peligro. [For me, a good life is maintaining specific transcripts, the principal investigators identified key friendships and believing in God, staying away from themes that emerged from the focus groups. Finally, quota- vices and keeping our children out of danger.] tions from the transcripts were selected to better illustrate the core themes. Mental health is intimately tied to spirituality; to believing in and seeking God’s protection in life. Results What is depression? What is mental health? We then turned our attention to asking participants to de- scribe or recognize depression, depending on the approach In most of the focus groups, we decided it was impor- of the focus group. We were struck that in all the groups and tant to understand how participants conceptualized mental across Latino ethnicities, depression was widely recognized health before we discussed mental illness. Throughout the among Latinos as a mental health problem. Participants in the focus groups, participants defined mental health as being focus groups recognized both emotional and somatic aspects dependent on the quality and quantity of social relation- of depression. ships and supports available to an individual. Mental health was described as being able to live a “good life” [una vida Cuando una persona esta triste, esta nostálgica, se pone buena]; to be able to function in and contribute to soci- a llorar fácilmente, esta muy cansada y no sabe por que, ety. There was also a strong emphasis on being able to no tiene ganas de hacer nada. Uno no tiene amigos, no live a “tranquil life” [una vida tranquila]. To better under- tiene familia, ni nada. Le hace falta más la familia. stand these concepts, we asked them what made up a good [When a person is sad, is nostalgic, s/he cries easily, life. feels very tired and doesn’t know why, s/he has no desire to do anything. One doesn’t have friends, doesn’t Para mi una buena vida serı́a llevar una vida de tran- have family or anything. When you feel like this, you quilidad, sentirse con un poco de salud, que es lo princi- miss your family even more.] pal, y. . . sentirse para mi bienestar con su familia unida y vivir tranquilo. [A good life would be living a tranquil Uno ha perdido su identidad. Es una persona adolorida, life, being in good health, that’s the most important . . . que está triste, está enojada. No se quiere ni peinar, no to feel a sense of well-being about my family’s unity se quiere ni bañar. Esa persona no es la que era un and to live peacefully]. mes antes. [One has lost one’s identity. It is a person in great pain, who is sad, who is angry. One doesn’t want In many of the comments, ideas about the centrality of to comb one’s hair nor bathe. This person isn’t the same social relationships, especially family relations, emerged as as the person s/he was a month earlier.] keys to mental health. These descriptions are very representative of how Latinos Para mi la buena vida serı́a una buena unión familiar across our focus groups discussed depression. Many of the y poder compartir con los demás cualquier necesidad elements could come right out of a standard diagnostic man- que haya. [For me a good life would be to have good ual, as they describe affective, behavioral and interpersonal family unity and to be able to share with others whatever aspects of depression. necessity there might be.] Related to the intense sociality of Latinos, being alone Other important aspects of mental health included being or isolated from others was seen as very damaging to one’s in control of one’s emotions and not being aggressive. Par- mental health. Participants tended to view isolation as a cause Springer
J Immigrant Minority Health (2007) 9:17–28 21 for depression, rather than the loneliness being the result of participants would say they worked one job to support depression. their family here and the second to support family back home. La soledad también. La soledad hace mucho daño. Por eso uno debe compartir con otras personas porque una Barriers to seeking help sola en la casa es triste. [Loneliness, too. Loneliness is very harmful. That is why one should share with other Participants were very articulate about the barriers they con- people, because being home alone is sad.] fronted when seeking help. Focus group participants were In addition to being a response to social isolation, depres- asked what barriers they encountered when seeking help; sion was seen as resulting from social stressors and losses, based on their responses we created a list of the most com- such as: the death of a family member, the loss of a job monly mentioned barriers: stigma of mental illness, prob- and financial stresses, and traumatic events like those of lems with health insurance or financial concerns, transporta- September 11, 2001. tion to and from mental health providing agencies, their own immigration status and fear of being discovered, lack of . . . son momentos emocionales de estrés porque le he knowledge of where to go for help, language and other cul- puesto caso a esas dos muertes tan queridas; se fue mi tural barriers, the relative “coldness” of providers, and a lack mamá y mi esposo junto y de repente que yo no esperaba of understanding of what mental health treatment involves. que fueran a morir. . . . Y no me encontraba con ello, It was as if they had read the research literature on barriers y nunca se me habı́a muerto una persona que fuera de to mental health services for Latinos and were providing us mi familia. . . Ya yo estoy en una mejor etapa pero al a summary of that research! principio si me dió diabetes, me dió depresión. [They are emotional and stressful moments because I focused [Nosotros] inmigramos, y nos encontramos con muchas on those two deaths of my loved ones. My mother and barreras como el idioma, no tenemos papeles, no ten- my husband died at the same time. They were sudden emos información de muchas cosas, no sabemos cuales and unexpected deaths. No one from my family had son nuestros derechos. . . la vida aquı́ es muy difı́cil. ever died before. . . . Now I’m in a better place, but at Estamos muy aisladas aquı́. [We immigrate here and first, I suffered from diabetes and depression.] find ourselves with many barriers: such as language, we don’t have papers, we don’t have information about Interestingly, participants, particularly those who were older, many things, we don’t know what our rights are . . . Life connected depression to diabetes. here is very difficult. We are very isolated here.] We were struck with the consistency across Latinos in how they viewed depression. The next definition, however, Nosotros como Hispanos no tenemos donde recur- is culturally specific to the groups we did with Mexican rir. Y cuando no hablamos inglés es otro obstáculo American immigrants. Mexican immigrants were intensely grandı́simo. [As Hispanics we don’t have anywhere to aware of the difficult jobs available to them, particularly if turn to. And when we don’t speak English it is another they were undocumented. In a state like New Jersey, with a huge obstacle.] high cost of living, it was common for men (and women) to Tiene miedo a lo que va a pasar, a lo desconocido. . . . work more than one job to make ends meet. Both men and ¿Que van a preguntar, que va a pasar? Tiene miedo women discussed the stresses produced by these work situa- a discutir, a investigar . . . [One is afraid of what will tions. They saw depression as intimately tied to alcohol use. happen, of the unknown. . . . What are they going to Women also saw this cycle as including domestic violence ask, what’s going to happen? One is afraid, to discuss, directed at them. to investigate. . .] [Los hombres] se deprimen, ellos buscan el alcohol The major stigma of seeking mental health services is the para escaparse y no deprimirse. Tienen que hacerse a fear that they will be considered crazy (loco) or might really cargo de la familia acá y también mandarle dinero a la be crazy if they need these services. One poignant example familia allá. Conseguir trabajo aquı́ es difı́cil. [Men get in the groups was a woman who was in treatment for her depressed. They seek out alcohol to escape and not get depression. She recounted that when she came back from depressed. They are responsible for their family here therapy, she overheard her neighbors on the next stoop saying and also have to send money to their family there, and to each other, “Ay, aqui viene la loca.” [Oh, here comes the finding work here is difficult.] crazy woman.] At the same time participants recognized the unjustness of such assumptions and the need for educational This quote also highlights the pressure on immigrants interventions in the Latino community to combat the stigma here to support family in their home countries. Some of mental illness. Springer
22 J Immigrant Minority Health (2007) 9:17–28 En la cultura Hispana, piensan que ir a ver a un that one should seek help if the problem grows to be out of psicólogo es cosa de locos. Es la parte de ignoran- one’s control. In addition, many participants felt they would cia, saber entender y saber donde pedir ayuda. [In the try remedies already known to them before going to mental Hispanic culture, they think that going to a psycholo- health services. gist is only for people who are really crazy. It’s due in Nosotros los Hispanos, nos hemos acostumbrado en los part to ignorance, not being able to understand and not remedios caseros. . . la medicina en realidad no es muy knowing where to go for help.] receptiva. [We Hispanics have become accustomed to This next quote illustrates not only the insurance and fi- using home remedies . . . in reality, medications are not nancial problems Latinos face in getting mental health care, very well received by the Hispanic community.] but the lack of sensitivity of public mental health services in Participants preferred to seek out a “talking cure” first if dealing with these issues. they were to go to mental health services. Participants indi- Nunca la cojı́ la conserjerı́a porque yo dije, pero si cated a need to “unburden oneself” [desahogarse] and thus ellos me la están ofreciendo y yo fui y yo me presenté. thought talking to a professional would be most beneficial. Pero me dijeron, “No, el seguro de su esposo no cubre Participants reported strong negative reactions towards med- eso. Necesita $250 de down.” [I never received the ications; medications are only for people who are severely counseling. They were offering me the counseling and mentally ill. To most participants, medications are seen as a I went and presented myself. But then they said, “No, last resort and then only as a temporary solution until one your husband’s insurance doesn’t cover this; we need a gains control of oneself; though others believed that if one $250 down payment.] reached the point of needing medications, then it would be necessary for life. While this list of barriers is very similar to those identi- fied in mental health services research, these quotes make Como último recurso, siempre se trata de buscar ayuda the barriers more real, palpable, and provide a sense of profesional, pero a veces de necesidad usas medica- the texture of how they are experienced in the Latino mentos a pesar de la ayuda, algo que se usa siempre, community. no por un dı́a. [As a last resort, we always try to seek professional help. But sometimes out of necessity one Attitudes toward treatment uses medications in spite of the counseling. If it gets to the point that you need medicine, it is medicine that When asked how they felt that depression should be treated, you use always, not just for one day.] the focus group participants generally agreed that depression Many expressed a fear of potential side effects and the is a consequence of difficult life circumstances, and therefore addictive potential of psychiatric medications. The fear of not always an illness. This is one of the key reasons why addiction to psychiatric medications is very strong. Members Latinos do not often seek mental health services right away. of the community tended to use models of sleeping pills and Given the myriad stresses in the lives of Latino immigrants, coffee to understand medicines; in these models people need it is not difficult to find reasonable explanations for why one more and more sleeping pills or coffee over time to have an might be deeply sad, feel lost and disoriented, experience life effect, and it is difficult to stop taking the pills or drinking as overburdening, be tired all the time, and express a sense the coffee. of hopelessness about the future. To decide that the feelings and bodily experiences that are often associated with the challenges of being a Latino immigrant in the U.S. have Attitudes towards providers gone on too long and are too disabling so that mental health treatment might be indicated is a difficult process. Often Most focus group members explained that they seek help the social networks that would help make that decision are from primary care providers because they are not aware of disrupted by the immigration process itself, and those family mental health as a specialty service. Language barriers and members who are here are often also working long hours and cultural clashes in understanding the style of mental health may not be aware or be able to be sensitive to the problems treatment in the United States are also an issue. Participants a person is facing. explained that providers need to be accessible, need to build Latinos often expressed a strong value for trying to deal trust [confianza] with their clients, and need to treat peo- with problems on one’s own [hay que poner de su parte] be- ple with respect [respeto]. Participants clearly needed more fore seeking professional help. This value is a further reason orientation to how psychotherapy is often carried out in the why a delay in seeking help is the norm, not the exception. U.S. Their expectations were in line with the strong emphasis At the same time, participants expressed the strong opinion on sociality in Latino culture; that if I unburden myself and Springer
J Immigrant Minority Health (2007) 9:17–28 23 share my emotions with you, I will get a warm and emotional Discussion response in turn. One participant shared one experience of going to a ther- This paper, along with the paper by Cabassa and colleagues apist: [15], provides rich context to the growing quantitative studies concerning different ethnic groups’ attitudes towards mental Yo he ido a unos cuantos psicoterapias. . . yo fui a uno health treatment generally and depression care more specif- que se sentaba y me decı́a “habla” y parecı́a que le ically. The first important finding is that Latinos recognize estaba hablando a una pared. Pero el de ahora habla, and label depression clearly. It is not tenable to argue that da sus opiniones, se ve que esta interesado en cono- Latinos do not recognize depression and do not have terms cerme a mi. El trata de obtener mi confianza y ası́ for it. Many of the descriptions of depression from our focus me hace sentir más cómoda. . . [I’ve gone to several group participants clearly mirrored the symptoms of depres- psychotherapists. . . I went to one who sat down and sion incorporated in DSM-IV. Their descriptions integrated said “talk” and it felt like I was talking to a wall. emotional and physical symptoms of depression, not priori- But the one I see now talks, gives his opinions, I can tizing the psychological over the somatic, as DSM-IV does. tell that he is interested in getting to know me. He Participants’ descriptions of depression also included social tries to obtain my trust and thus makes me feel more dimensions of the experience, especially isolation or loneli- comfortable. . .] ness. In this sense, depression is a sociosomatic experience Lo que pasó es que yo llegaba y el me escucha y está con among Latinos [19, 20]. This tight linking of depression to el reloj. Y yo le estoy platicando todo lo que yo siento, life’s problems, what Finkler [21] describes as “life’s le- lo que pasó, todo. Y el me dice, “Bueno te espero en sions,” means that many Latinos do not initially see depres- la próxima cita.” Era todo lo que me decı́a. [everyone sion as an illness, but rather as a consequence of the many laughs] Yo ya no voy. Yo no tengo tiempo para perder disruptions caused by the immigration process and chal- ası́. [What happened is that I arrived [at therapy] and lenges that Latino immigrants face in surviving in the U.S. he listened to me and he was looking at his watch. And Latinos do see the experiences associated with depression as I was telling him everything I felt, everything that had serious and needing help, but not necessarily mental health happened. And he said, “I’ll wait for you at our next care. appointment.” That was all he said. [everyone laughs] That Latinos may emphasize the more somatic aspects of I don’t go anymore. I don’t have time to waste like depression when seeking help in primary care can be seen that.] as more a strategic decision than a lack of awareness or in- sight into the emotional components of depression. Their In reaction to comments such as this one, the conversation own and providers’ expectations that you come to the clinic turned to what community members expect from therapy. with physical symptoms shape how they report their prob- One person described how the first session should be: lems. The stigma in the community against mental health La primera sesión debe ser individual para que se re- problems also leads Latinos to defend against the possibil- cobre su autoestima, se siente confianza. Ya después, ity that they may be labeled as “crazy’ because they are buscar una terapia en grupo será lo último, ya cuando seeking mental health services. In their home countries, par- una persona está superando su depresión. [The first ticularly in rural areas, the paucity of mental health services session should be individual so that the person can re- also means that people are not used to and are not familiar cover his/her self esteem, can feel confidence and trust. with mental health treatment. Social and emotional prob- Then later, seeking group therapy would be the last lems are more likely dealt with in the family, church and thing, when one is in the process of overcoming one’s alternative medical sectors in Latinos’ home countries. All depression.] of these factors combine to influence Latinos’ presentation of self when they come to primary care and even mental health Overall, many could identify the benefits of talk therapies services. and why they can be helpful. Latinos, even fairly recent immigrants, are painfully aware Porque uno se desahoga. Si uno platica, uno llora y of the many barriers they face to getting primary care and llora y llora y hay alguien que le escucha a uno, y mental health services for depression. In our focus groups, uno saca todo, pues saca todo y desahoga el alma. they listed many of the factors that have been regularly iden- Uno necesita llorar. [Because one unburdens oneself. tified in the services literature: lack of insurance, costs of If one talks, then cries and cries and cries and there is treatment and medications, lack of Spanish-speaking staff, someone who can listen and one gets it all out, well one stigma, concerns about immigration status, and many others. gets it all out, and unburdens one’s soul. One needs to What comes through as different in the focus groups from cry.] reading the research literature is that these factors are all Springer
24 J Immigrant Minority Health (2007) 9:17–28 intertwined and connected to the particular circumstances Limitations and life experiences of Latino immigrants. That is, these are not a series of separate factors to be put into a regres- This study involved a series of focus groups composed of sion model to identify the “most important” barriers to care. community members in various heavily populated Hispanic Rather, all of these factors come together in the lives of Latino areas of New York and New Jersey. While our sample was immigrants as a result of their social and economic positions larger than in many other studies, it was not random, but was in the U.S. From the perspective of Latino immigrants, all based on convenience samples from a range of communities the factors stem from the same sets of issues—the kinds of and service and community agencies. It reflects the diversity work and wages they can find in the U.S., the uncertain- of Latinos in the Northeast, but not in other parts of the coun- ties produced by their immigration status, the discrimination try. In addition, our sample consisted primarily of females, they experience because of who they are and how they speak, so the content herein might not accurately reflect the Latino the multiple demands of supporting family here and family male sample though some gender differences were noted in there, and the separation from supportive social networks. the group discussions. This oversampling could be due to While the confluence of all these factors seem overwhelm- various factors including the higher prevalence of depres- ing, it is also important to remember that research indicates sion among women, the fact that women are more likely to that immigrants as a group have better mental health than seek services than men, and that the samples were recruited U.S.-born Latinos [5]. But for those Latino immigrants who from community social service or community health agen- do develop depression, both the sources of the depression cies. Future studies should work to include more men in their and the barriers to care are multiply determined. samples. Several studies have now found that Latinos are more It is important to note that despite the different method- supportive of psychotherapeutic interventions than other mi- ologies across the focus groups, the themes that arose across norities and less receptive to medications than European groups were strikingly similar. Experiences in the service (currently says that) Americans. Our focus groups further system are also reflective of services in New York and New elucidate these findings and provide meaning to them within Jersey, which are uneven in their efforts to develop service Latino cultural frameworks. The preference for psychother- adaptations to meet the needs of the rapidly growing and apy results from several factors. The cultural idea of the value diversifying Latino community in these areas. of “unburdening oneself” [desahogarse] as an important as- pect of maintaining emotional health makes psychotherapy Improving care for depression seem attractive [20]. The idea that depression is a result of stressors in the social world also means that social inter- With regards to therapies, especially psychotherapies, the re- ventions make sense to Latinos. Building more supportive sults of this study clearly emphasize that therapists need to social relationships fills a need for Latino immigrants who orient Latino patients to the process of mental health treat- have often lost those relationships in the process of immigra- ment. Latinos are not aware of the professional codes of tion. To the extent that therapy provides a context for sharing conduct that govern relationships between therapists and emotions and for building new supportive relationships, it consumers. The interpersonal models that Latinos bring to fits with Latinos’ conceptions of depression and how to cope therapy are based on traditional models of relationships with it. among family and friends. Building the therapeutic alliance Medications, on the other hand, are less congruent with is especially important when working with Latinos. It should Latinos’ models of depression. Medications signal that the include an orientation towards the treatment in general as person’s problems are a disorder, not a problem in living, and well as an explanation of specific treatment approaches, the open the person to community stigmatization as someone therapeutic model and the goals for treatment. The more who is loco. Medications also signal long term disability and the Latino client can be involved in this process, the more an inability to care for oneself. That these assumptions about confianza is built between the therapist and client. medication do not fit with the medical model make them no Psychoeducation about medication is also critically im- less influential in the community. Medications also pose the portant. Addressing issues of the negative side effects and threat of addiction. In part this arises from community mod- consequences of medication is essential. Having the therapist els of other substances that are addictive like caffeine in cof- or doctor explain the difference between everyday models of fee, nicotine in cigarettes, and older anxiolytics. Awareness the addictiveness of some substances and how antidepres- of the difference in addictive potential and side effective pro- sants actually work and that the medicine can be stopped files of the newer anti-depressants are limited in the Latino may help people to more readily accept the medicines as a community. The challenge is to provide psychoeducation form of treatment. Providing consumers with realistic esti- about anti-depressants in the Latino community without ap- mates of how long it will take for the medications to produce pearing to be overly promoting medications for depression. therapeutic effects and what the likely course of treatment is Springer
J Immigrant Minority Health (2007) 9:17–28 25 will also help to prevent misconceptions and patient drop- it. But to resolve a problem, you have to take off the “pre” out. Recent research has shown that depression treatment and take care of it (that is become occupied in finding the in primary care combining therapy and medications is par- solutions to the problem)!]. ticularly effective for Latinos both in the U.S. and in Latin America [22, 23]. Needs for community intervention APPENDIX A: Focus group guide concerning mental health and mental health services (Studies 1 and 2) Based on the barriers to help seeking described in the vari- ous focus groups, several culturally competent intervention 1. Para Uds, que es salud emocional o salud mental? programs are necessary to make mental health services ac- [For you, what is emotional or mental health?] cessible to the Latino community. For example, there is a r Como saben Uds. que una persona es sana mental- need for programs to help new Latino immigrants adjust to life in the U.S., this could help to prevent the onset of mente? depression. In addition, programs to reduce the stigma of [How do you know when someone is mentally healthy?] r Que debe hacer una persona para mantener su salud mental illness and mental health care in the Latino com- munity would significantly increase help seeking behaviors. emocional? More psychoeducation about mental health and its treatment [What should someone do to maintain their emotional would encourage the Latino community to be psychologi- health?] cally savvy; this could help community members to be their 2. Que tipos de problemas (enfermedades) de salud mental own advocates for appropriate treatments. Finally, there is a hay? need for more public information in Spanish about where to [What types of mental health problems (illensses) are get mental health help and how to access such care. These there?] kinds of interventions are supported both by our findings and Como saben Uds. que una persona tiene un problema (una those of Cabassa and colleagues [15] in a different context enfermedad) de salud mental? with a different mix of Latinos. [How do you know when someone has a mental health problem (illness)?] Clinical and research implication 3. Cuales son las reacciones de gente en la comunidad acerca Based on the findings presented in this paper, one can see that de personas con problemas de salud mental? community members echo ideas set forth by cross-cultural [How do people in the community react to people with mental health practitioners about how to more effectively mental health problems?] serve the Latino community. Mental health providers work- 4. Que debe hacer una persona que padece de un problema ing with Latino clients should learn to address the con- de salud mental? cerns expressed by these community members—including [What should someone do if they suffer from a mental the stigma of mental illness, the fear of both the unknown health problem?] structure of therapy and the unknown effects of psychotropic r Que tratamientos conocen Uds. para problemas (enfer- medications—in short, professionals need to become cultur- medades) de salud mental? ally competent. In addition, researchers can learn to adapt [What treatments do you know for mental health prob- their research strategies to the cultural values and norms lems (illnesses)?] within the population they wish to study. For example, we r Cuales de esos tratamientos piensan Uds. son mas efec- used the focus group method, where you gather around a tivos? table, usually with some refreshments, and talk about things [Which of these treatments do you think are most that are important to you, a style that is culturally acceptable effective?] within the Latino community and emphasizes values such as r Que puede hacer la familia de una persona con un prob- personalismo. lema de salud mental? We end this paper with a call to action for the mental [What can the family of a person with a mental health health fields to become more involved in reaching out, ed- problem do for them?] ucating, and helping the Latino community. As one focus group participant so aptly phrased it, “Qué hace uno cuando 5. Que problemas encuentran personas con problemas de hay un problema? Se preocupa. Pero para resolver hay que salud mental en buscar ayuda? quitarle el ‘pre’ y ocuparse!” [What do you do when you [What problems do people with mental health problems have a problem? You worry and become preoccupied with encounter in seeking help?] Springer
26 J Immigrant Minority Health (2007) 9:17–28 r Que problemas tiene en identificar servicios apropri- [What type of help does Marta need?] adas? Los doctores piensan que Marta está deprimida. Al pre- [What problems do they have in identifying appropriate guntarle si considera que ha necesitado ayuda profesional services?] r Que problemas tienen en usar estos servicios? para algún problema emocional, dice que no. [The doctors think that Marta is depressed. When they ask [What problems do they have in using those services?] her if she thinks she needs professional help for an emotional problem, she says no.] Focus group questions about educational campaign r ¿Qué esta ocurriendo con Marta que a pesar de lo mal que A nosotros, nos interesa desarollar un programa para educar se siente, no reconoce que tiene un problema emocional? a la comunidad Latina acerca de la salud mental. [What is happening with Marta, that although she feels [We would like to develop a program to educate the Latino really ill, she does not recognize that she has an emotional community about mental health.] problem?] r ¿Por qué personas como Marta se deprimen? 1. Que medios de comunicacion serian mejores para ese pro- [Why do people like Marta get depressed?] grama de educacion? (radio, television, periodicos, etc.) r Qué otras razones contribuyen a que personas como Marta [What forms of communication would work best for se depriman? the educational program? (radio, television, newspapers, [What are some other reasons why people like Marta might etc.)] become depressed?] 2. Utilizaria Ud. un numero 800 para informacion acerca de r Cuándo debe uno buscar ayuda para la depresión? donde encontrar servicios de salud mental? [When should one seek help for depression?] [Would you use an 800 number for information about how r ¿Qué tipo de ayuda debe buscar Marta para su depresión? to find mental health services?] [What type of help should Marta seek for her depression?] 3. Que mensajes deberiamos presentar acerca de salud men- tal en la comunidad Latina? (Informacion acerca de en- A pesar de que se siente mal con problemas fı́sicos y fermedades, estigma, recursos o tratamientos, etc.) psicológicos y que el doctor le ha dicho que esta deprim- [What messages should we present about mental health ida, Marta no busca ni ha entrado en tratamiento para la in the Latino community? (Information about illnesses, depresión. stigma, resources, treatments, etc.)] [In spite of how badly she feels due to her physical and psychological problems, and that the doctor has told her she Appendix B: Vignette on recognizing depression and is depressed, Marta does not seek nor enter treatment for attitudes towards treatment (Study 4) depression.] r Qué razones podrı́a tener Marta para no buscar ayuda? Voy a comenzar por hablarles de un paciente, una mujer que [What reasons might Marta have for not seeking help?] llamaremos Marta, de 38 años, divorciada con 2 hijos de 11 y 13 años. Marta expresa que durante el último año se ha Luego de pasar otro año en que los perı́odos de depresión sentido muy triste. Indica que se le hace difı́cil dormir, tiene han ido aumentando, Marta ha pensado en algunas ocasiones poco apetito, llora a menudo, y no puede realizar sus tareas. en buscar ayuda, pero no lo ha hecho. Ella ha tenido que visitar al médico para dolores de cabeza, [During another year in which her periods of depression estomacales y de los músculos. have increased, Marta has thought about seeking help on [I am going to begin by telling you about a patient, a some occasions, but still has not gone.] woman we will call Marta, who is 38 years old, divorced and r ¿Qué se podrı́a hacer para que alguien como Marta busque has two children who are 11 and 13 years old. Marta says that la ayuda que necesita? during the past year she has felt very sad. She has had trouble [What could be done so that someone like Marta would sleeping, had little appetite, cries often and cannot get her seek the help she needs?] tasks done. She has had to visit her doctor for headaches and pains in her stomach and muscles.] Marta decide que desea recibir ayuda profesional pero se ha encontrado con muchos problemas en conseguir r ¿Qué piensan Uds. que esta pasando con Marta? tratamiento. [What do you think is going on with Marta?] [Marta decides that she would like professional help, but STOP HERE AND DISCUSS AFTER EACH QUES- she encounters many barriers in obtaining treatment.] TION r ¿Qué tipo de ayuda necesita (Marta)? r ¿Cuáles problemas consideran ustedes que hacen difı́cil que las personas consiguen tratamiento? Springer
J Immigrant Minority Health (2007) 9:17–28 27 [What types of problems do you think make it hard for r ¿De quienes prefieren Uds. recibir tratamiento? people to access treatment?] [From whom would you prefer to receive treatment?] r ¿Qué recomendaciones tienen para resolver estos proble- r ¿Hay otro comentario que Uds. quieren hacer acerca de mas? este asunto? [What recommendations do you have for solving those [Is there anything else that you would like to say about problems?] this topic?] Si Marta decide buscar ayuda, [If Marta did decide to seek treatment,] References r ¿Cómo reaccionarı́a su familia? sus amigos? [How would her family react? Her friends?] 1. Moscicki EK, Rae D, Regier DA, Locke BZ: The Hispanic Health r ¿Deberı́a Marta contarle a sus compañeros de trabajo que and Nutrition Examination Survey: Depression among Mexican- está buscando ayuda por un problema emocional? ¿Por Americans, Cuban-Americans, Puerto Ricans: In Gaviria M, Arana JD, editors. Health and Behavior: Research Agenda for Hispanics. qué?, ¿Por qué no? Chicago: University of Chicago at Illinois; 1987 [Should Marta tell her colleagues at work that she is seek- 2. Kessler R, McGonagle KA, Zhao S, Nelson CD, Hughes M, ing help for an emotional problem? Why should she or Eshleman S, Wittchen HU, Kendler KS: Lifetime and 12-month shouldn’t she?] prevalence of DSM-III-R psychiatric disorders in the United States. Results from the national comorbidity survey. Arch Gen Psychiatry Ya Marta ha decidido buscar ayuda. Ella ha oı́do hablar 1994; 51:9–19 de varios tratamientos para la depresión. 3. Chung H, Teresi J, Guarnaccia P, Meyers BS, Holmes D, Bobrowitz T, Eimicke JP, Ferran E: Depressive Symptoms and Psychiatric [Now Marta has decided to seek help. She has heard of Distress in Low Income Asian and Latino Primary Care Patients: various treatments for depression.] Prevalence and Recognition. Comm Ment Health J 2003; 39:33– r ¿De qué tratamientos han oı́do hablar Uds.? 46 4. Minsky S, Vega W, Miskimen T, Gara M, Escobar J: Diagnos- [What treatments (for depression) have you heard of?] tic patterns in Latino, African American and European American psychiatric patients. Arch Gen Psychiatry 2003; 60:637–644 Hay varias alternativas para tratar la depresión. ¿Qué cosas 5. Vega WA, Kolody B, Aguilar-Gaxiola S, Alderate E, Catalano R, positivas (buenas) o negativas (malas) le ven ustedes a cada Carveo-Anduaga J: Lifetime prevalence of DSM-III-R psychiatric tratamiento que mencionaba antes?: disorders among urban and rural Mexican Americans in California. Arch Gen Psychiatry 1998; 55:771–778 [There are various alternatives for treating depression. 6. Briones DF, Heller PL, Chalfant HP, Roberts AE, Aguirre- What positive (good) and negative (bad) things have you Hauchbaum SF, Farr WF Jr: Socioeconomic status, ethnicity, psy- heard about each of the treatments you mentioned above:] chological distress, and readiness to utilize a mental health facility. REVIEW EACH TREATMENT MENTIONED ABOVE Am J Psychiatry 1990; 147:1333–1340 7. Hough RL, Landsverk JA, Karno M, Burnam MA, Timbers DM, Qué cosas positivas (buenas) o negativas (malas) le ven Escobar JI, Regier DA: Utilization of health and mental health ustedes a: services by Los Angeles Mexican Americans and non-Hispanic [What positive (good) and negative (bad) things do you whites. Arc Gen Psychiatry 1987; 44:702–709 see with:] 8. Wells KB, Hough RL, Golding JM, Burnam MA, Karno M: Which Mexican-Americans underutilize health services? Am J Psychiatry r ¿tomar pastillas por seis meses? 1987; 144:918–922 9. Pescosolido BA, Wright ER, Alegria M, Vera M: Social networks [taking pills for six months?] r ¿reunirse en grupo con un profesional de ayuda una vez and patterns of use among the poor with mental health problems in Puerto Rico. Med Care 1998; 36:1057–1072 semanal por tres meses? 10. Vega WA, Kolody B, Aguilar-Gaxiola S, Catalano R: Gaps in ser- [going to a weekly therapy group with a professional for vice utilization by Mexican Americans with mental health prob- lems. Am J Psychiatry 1999; 156:928–934 three months?] 11. Peifer K, Hu T, Vega W: Help seeking by persons of Mexican origin Marta empezó pero no terminó el tratamiento. [Marta with functional impairments. Psych Services 2000; 51:1293–1298 12. Vega WA, Alegria M: Latino mental health and treatment in the began but did not finish treatment.] United States: In Aguirre Molina M, Molina C, Zambrana R, r ¿Porque personas como Marta no terminan sus tratamien- editors. Health Issues in the Latino Community. San Francisco: Jossey-Bass, 2001:179–208 tos? 13. U.S. Department of Health and Human Services: Mental Health: [Why do people like Marta terminate their treatment?] Culture, Race, and Ethnicity—A Supplement to Mental Health: A r ¿Donde prefieren Uds. recibir tratamiento para la de- Report of the Surgeon General. Rockville, MD: U.S. Department of Health and Human Services, Public Health Services, Office of presión? the Surgeon General, 2001 [Where would you prefer to receive treatment for your 14. Cooper LA, Gonzales JJ, Gallo JJ, Rost KM, Meredith LS, depression?] Rubenstein LV, Wang NY, Ford DE: The acceptability of treatment Springer
28 J Immigrant Minority Health (2007) 9:17–28 for depression among African-American, Hispanic and White pri- 20. Jenkins J, Cofresi N: The sociosomatic course of depression mary care patients. Med Care 2003; 41:479–489 and trauma: A cultural analysis of suffering and resilience in 15. Cabassa L, Lester R, Zayas LH: “It’s like being in a labyrinth:” the life of a Puerto Rican woman. Psychosom Med 60:439– Hispanic immigrants’ perceptions of depression and atti- 447. tudes towards treatment. J Immigrant Minority Health, DOI: 21. Finkler K: Physicians at Work, Patients in Pain: Biomedical Prac- 10.1007/s10903-006-9011-0 (this issue). tice and Patient Response in Mexico. Boulder, CO: Westview Press; 16. Morgan DL, Krueger RA: The Focus Group Kit. Thousand Oaks, 1991 CA: Sage Publications; 1998 22. Miranda J, Duan N, Sherbourne C, Schoenbaum M, Lagomasino I, 17. Wagner LC, King M: Existential needs of people with psy- Jackson-Triche M, Wells KB: Improving care for minorities: Can chotic disorders in Porto Alegre, Brasil. British J Psychiatry 2005; quality improvement interventions improve care and outcomes for 184:141–145 depressed minorities? Results of a randomized, controlled trial. 18. Berkman CS, Guarnaccia PJ, Diaz N, Badger LW, Kennedy GJ: Health Serv Res 2003; 38:613–630. Concepts of mental health and mental illness in older Hispanics. J 23. Araya R, Graciela R, Fritsch R, Gaete J, Rojas M, Simon G, Peters Immigrant Refugee Serv 2005; 3:59–85 TJ: Treating depression in primary care in low-income women 19. Kleinman A: Social Origins of Distress and Disease: Depression, in Santiago, Chile: A randomised controlled trial. Lancet 2003; Neurasthenia and Pain in Modern China. New Haven: Yale Uni- 361:995–1000 versity Press; 1986 Springer
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