"It's Like Going through an Earthquake": Anthropological Perspectives on Depression among Latino Immigrants

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J Immigrant Minority Health (2007) 9:17–28
DOI 10.1007/s10903-006-9011-0

 ORIGINAL PAPER

“It’s Like Going through an Earthquake”: Anthropological
Perspectives on Depression among Latino Immigrants
Igda E. Martı́nez Pincay · Peter J. Guarnaccia

Published online: 28 September 2006
C Springer Science+Business Media, LLC 2006

Abstract Depression is one of the most prevalent mental           Introduction
illnesses in the community and is responsible for a signifi-
cant amount of disability. According to epidemiological and       Depression is one of the most prevalent mental illnesses in
primary care studies, Latinos suffer from depression at high      the community and is responsible for a significant amount
rates. This paper examines in depth Latinos’ conceptions of       of disability. The quote above describes how one Latino
depression and their attitudes towards and expectations of        immigrant who participated in our focus groups described the
mental health treatment. The aim of this paper is to summa-       immigration process. At the same time, the quote can be read
rize several qualitative studies examining Latinos’ cultural      as a graphic description of how devastating and disabling
understandings of mental health in general and depression in      depression can be and links the losses of immigration to the
particular, as well as to obtain information about the barriers   depression experience.
to care that this community experienced. The results are a           According to epidemiological and primary care studies,
compilation of findings from four different research projects     Latinos suffer from depression at high rates [1–4]. How-
in New Jersey and New York that examined diverse Latinos’         ever, recent studies have demonstrated the importance of
conceptions of mental health, treatment and barriers to care.     distinguishing between Latino immigrants and those Lati-
                                                                  nos born in the U.S. While immigrant Latinos experience
Keywords Depression . Latinos . Immigration . Barriers            lower rates of depression than their U.S.-born compatriots
to care . Attitudes towards treatment                             and than non-Hispanic Whites, they are also less likely to
                                                                  seek mental health services when they are depressed [5].
  Es como perder su techo, perder todo, es como cuando               We chose to study depression not only due to its preva-
  uno ha pasado por un terremoto y perdió todo. . . es           lence in the community, but also because there are clear,
  como una acumulación de pérdidas. [It’s like losing the       well-developed treatment guidelines for both therapeutic and
  roof over your head, losing everything, it’s as if one had      medication interventions for depression. Yet studies consis-
  gone through an earthquake and lost everything. . . it’s        tently show that Latinos have very low rates of use of mental
  an accumulation of losses.]                                     health services [6–13]. Immigrants are even less likely to
                                                                  use mental health services than U.S. born Latinos. When
                                                                  Latinos do seek help for mental health problems, they are
I. E. Martı́nez Pincay ()
Graduate School of Applied and Professional Psychology,           more likely to do so in the general medical sector than in
Rutgers University, 152 Frelinghuysen Road,                       specialty mental health services.
Piscataway, NJ 08854-8085, USA                                       There are a wide range of barriers to seeking mental
e-mail: igda martinez@hotmail.com
                                                                  health care that have been identified in the Latino men-
P. J. Guarnaccia                                                  tal health literature [7, 9, 10, 12, 13]. These barriers can
Institute for Health, Health Care Policy, and Aging Research,     be organized into several dimensions: barriers in the ser-
Rutgers University,                                               vice system, community-level barriers, barriers in the social
New Brunswick, NJ, USA
                                                                  networks of people in the community, and person-centered
                                                                  barriers. The most important system level barriers include

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18                                                                                      J Immigrant Minority Health (2007) 9:17–28

lack of health insurance, language barriers, immigration          to care that this community experienced. The results pre-
status, discrimination from the system and lack of infor-         sented in this paper are a compilation of findings from four
mation about services (especially in Spanish). Community          different research projects in New Jersey and New York that
centered barriers include the stigma of mental illness and        were carried out to examine diverse Latinos’ conceptions of
the density of family and other support networks. Person-         mental health, treatment and barriers to care.
centered barriers include lack of recognition of mental
health problems, stigma of mental illness, and a self-reliant
attitude.                                                         Methods
    Few studies have gone beyond identifying and confirming
in correlational analyses this same set of barriers. They have    We chose focus groups as the method of data gathering be-
not delineated the dimensions of these barriers nor have they     cause it is an excellent qualitative methodology for exploring
looked at how Latinos in the community assess these barriers.     group ideas about an issue and eliciting the perspectives of
Cooper and colleagues [14] report on one of the most com-         people in the community [16]. We were bolstered in our
prehensive analyses of multi-ethnic patients’ perceptions of      approach by a paper on the needs of people with psychotic
the acceptability of treatment for depression. Using data from    disorders that took a similar perspective in a cross-national
three NIMH quality improvement interventions to improve           study of psychiatric services users’ needs for care [17]. In or-
the quality of depression care, they compared the attitudes       der to get beyond the same list of issues and barriers already
of African-Americans, Hispanics and Whites towards de-            identified in the Latino mental health literature, we felt that
pression treatment. Their sample consisted of 829 patients,       it was important to more fully discuss with a diverse group
of whom 73 were Hispanic. The investigators used a highly         of Latinos their understandings of depression and their as-
structured interview to assess attitudes towards depression       sessments of different treatment alternatives. By conducting
care. They found that Hispanics, like African Americans,          multiple focus groups in different sites with diverse Latino
expressed lower acceptance of anti-depressant medication          populations, we could identify cultural diversity and cross-
than Whites and more acceptance than Blacks of counsel-           cultural similarities among Latinos. Each study was designed
ing services. They also found that Hispanics and African          separately and therefore not designed to parallel each other.
Americans were more likely to see medications as addictive        In this paper we are integrating the findings across the four
and less likely to see them as effective compared to Whites.      studies.
While Cooper and colleagues [14] argue that there is a need
to understand attitudes and social norms towards treatment        Focus group participants
in more depth than can be captured using categorical re-
sponses on a structured questionnaire, their study relies on      Focus group participants were recruited from various sites
just such responses. Even so, their research represents one of    for the multiple studies. All were community samples re-
the few studies to compare African American, Hispanic and         cruited through a range of community mental health and
White attitudes towards treatment in the same study using         social service agencies as well as community resources such
the same methods. Also, while their study is comparative,         as churches and day care centers. Overall there were 94 par-
it only includes 73 undifferentiated Hispanics (across three      ticipants in 12 different groups throughout New Jersey and
different interventions) representing less than 10% of the        New York City. This is a larger sample than the number of
total sample. The study was also limited because all of the       Hispanics in three national quality improvement interven-
Hispanics spoke English and were insured, limiting the di-        tions [14]. The focus groups consisted of a diverse group of
versity of the Hispanic sample and likely excluding most          Latinos in terms of country of origin, time in U.S., age, and
recent immigrants.                                                education (please see Table 1).
    This paper, along with the companion paper by Cabassa            A total of 12 focus groups are included in this paper.
and colleagues [15], examines in more depth Latinos’ con-         Five of the focus groups (40 participants, total) were from
ceptions of depression and their attitudes towards and expec-     Study 1 and were held within New Jersey to assess concep-
tations of mental health treatment. The combined papers pro-      tions of mental health, treatment and barriers to care. These
vide a fuller comparison among Latinos from diverse parts         focus groups consisted primarily of females (72%). Two
of the United States. The papers provide richer understand-       groups were held with Puerto Ricans (37.5%) and Domini-
ings of the concerns Latinos express about mental health          cans (7.5%), 2 groups were held with Mexicans (currenly
treatment; insights that can inform both future research and      says 1), and one group was held with Cubans (22.5%). The
clinical treatment. The aim of this paper is to summarize         groups were also varied in terms of urban/rural community
several qualitative studies examining Latinos’ cultural un-       settings. The participants in these groups ranged in age from
derstandings of mental health in general and depression in        20 to over 60 and had been in the United States anywhere
particular, as well as to obtain information about the barriers   from less than one year to over 20 years. These participants

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Table 1   Demographics

                         Study 1 (NJ): 5 FG   Study 2 (NY): 3 FG   Study 3 (NJ): 2 FG               Study 4 (NJ): 2 FG

N                        40                   22                   14                               18
Gender (% female)        72                   68                   90                               94
Age range                20–60                Over 65              24–64                            28–71
Country of Origin (%)                                              Diverse Latino Groups            Diverse Latino Groups
  Puerto Rico            37.5                 50                   No majority From any One group   No majority From any One group
  Dominican Republic      7.5                 50
  Mexico                 32.5
  Cuba                   22.5
Time in U.S. Range
20                                                                                        J Immigrant Minority Health (2007) 9:17–28

Analysis of the focus groups                                       ticipants linked mental health to staying away from “vices,”
                                                                   particularly not abusing alcohol or drugs. In addition, one of
All of the focus groups were transcribed for review and            the key roles of the family is to protect and nurture children
analysis. After debriefing each focus group and comparing          and one of the major challenges for immigrants is to pro-
general notes, each transcript was read over several times and     tect and support their children in the complex and difficult
a basic content analysis was performed by each member of           transition to moving to the United States. Families fear that
the research team. Each coder created a list of major themes       their children will not be safe in the urban centers in the
that arose in the groups and these lists were compared in          U.S. where many immigrants live and that they will become
team meetings. Consensus on key themes from the coding             American too quickly.
was obtained through discussion and elaboration on each
                                                                     Para mi la buena vida es conservar las amistades y creer
coder’s conceptualization of the construct being discussed in
                                                                     en Dios, alejarnos de vicios y mantener nuestros hijos
the focus group. Based on the content analyses and on the
                                                                     fuera de peligro. [For me, a good life is maintaining
specific transcripts, the principal investigators identified key
                                                                     friendships and believing in God, staying away from
themes that emerged from the focus groups. Finally, quota-
                                                                     vices and keeping our children out of danger.]
tions from the transcripts were selected to better illustrate
the core themes.                                                      Mental health is intimately tied to spirituality; to believing
                                                                   in and seeking God’s protection in life.

Results                                                            What is depression?

What is mental health?                                             We then turned our attention to asking participants to de-
                                                                   scribe or recognize depression, depending on the approach
In most of the focus groups, we decided it was impor-              of the focus group. We were struck that in all the groups and
tant to understand how participants conceptualized mental          across Latino ethnicities, depression was widely recognized
health before we discussed mental illness. Throughout the          among Latinos as a mental health problem. Participants in the
focus groups, participants defined mental health as being          focus groups recognized both emotional and somatic aspects
dependent on the quality and quantity of social relation-          of depression.
ships and supports available to an individual. Mental health
was described as being able to live a “good life” [una vida          Cuando una persona esta triste, esta nostálgica, se pone
buena]; to be able to function in and contribute to soci-            a llorar fácilmente, esta muy cansada y no sabe por que,
ety. There was also a strong emphasis on being able to               no tiene ganas de hacer nada. Uno no tiene amigos, no
live a “tranquil life” [una vida tranquila]. To better under-        tiene familia, ni nada. Le hace falta más la familia.
stand these concepts, we asked them what made up a good              [When a person is sad, is nostalgic, s/he cries easily,
life.                                                                feels very tired and doesn’t know why, s/he has no
                                                                     desire to do anything. One doesn’t have friends, doesn’t
     Para mi una buena vida serı́a llevar una vida de tran-          have family or anything. When you feel like this, you
     quilidad, sentirse con un poco de salud, que es lo princi-      miss your family even more.]
     pal, y. . . sentirse para mi bienestar con su familia unida
     y vivir tranquilo. [A good life would be living a tranquil      Uno ha perdido su identidad. Es una persona adolorida,
     life, being in good health, that’s the most important . . .     que está triste, está enojada. No se quiere ni peinar, no
     to feel a sense of well-being about my family’s unity           se quiere ni bañar. Esa persona no es la que era un
     and to live peacefully].                                        mes antes. [One has lost one’s identity. It is a person in
                                                                     great pain, who is sad, who is angry. One doesn’t want
   In many of the comments, ideas about the centrality of            to comb one’s hair nor bathe. This person isn’t the same
social relationships, especially family relations, emerged as        as the person s/he was a month earlier.]
keys to mental health.
                                                                      These descriptions are very representative of how Latinos
     Para mi la buena vida serı́a una buena unión familiar        across our focus groups discussed depression. Many of the
     y poder compartir con los demás cualquier necesidad          elements could come right out of a standard diagnostic man-
     que haya. [For me a good life would be to have good           ual, as they describe affective, behavioral and interpersonal
     family unity and to be able to share with others whatever     aspects of depression.
     necessity there might be.]                                       Related to the intense sociality of Latinos, being alone
   Other important aspects of mental health included being         or isolated from others was seen as very damaging to one’s
in control of one’s emotions and not being aggressive. Par-        mental health. Participants tended to view isolation as a cause

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for depression, rather than the loneliness being the result of      participants would say they worked one job to support
depression.                                                         their family here and the second to support family back
                                                                    home.
  La soledad también. La soledad hace mucho daño. Por
  eso uno debe compartir con otras personas porque una
                                                                  Barriers to seeking help
  sola en la casa es triste. [Loneliness, too. Loneliness is
  very harmful. That is why one should share with other
                                                                  Participants were very articulate about the barriers they con-
  people, because being home alone is sad.]
                                                                  fronted when seeking help. Focus group participants were
   In addition to being a response to social isolation, depres-   asked what barriers they encountered when seeking help;
sion was seen as resulting from social stressors and losses,      based on their responses we created a list of the most com-
such as: the death of a family member, the loss of a job          monly mentioned barriers: stigma of mental illness, prob-
and financial stresses, and traumatic events like those of        lems with health insurance or financial concerns, transporta-
September 11, 2001.                                               tion to and from mental health providing agencies, their own
                                                                  immigration status and fear of being discovered, lack of
  . . . son momentos emocionales de estrés porque le he
                                                                  knowledge of where to go for help, language and other cul-
  puesto caso a esas dos muertes tan queridas; se fue mi
                                                                  tural barriers, the relative “coldness” of providers, and a lack
  mamá y mi esposo junto y de repente que yo no esperaba
                                                                  of understanding of what mental health treatment involves.
  que fueran a morir. . . . Y no me encontraba con ello,
                                                                  It was as if they had read the research literature on barriers
  y nunca se me habı́a muerto una persona que fuera de
                                                                  to mental health services for Latinos and were providing us
  mi familia. . . Ya yo estoy en una mejor etapa pero al
                                                                  a summary of that research!
  principio si me dió diabetes, me dió depresión. [They
  are emotional and stressful moments because I focused             [Nosotros] inmigramos, y nos encontramos con muchas
  on those two deaths of my loved ones. My mother and               barreras como el idioma, no tenemos papeles, no ten-
  my husband died at the same time. They were sudden                emos información de muchas cosas, no sabemos cuales
  and unexpected deaths. No one from my family had                  son nuestros derechos. . . la vida aquı́ es muy difı́cil.
  ever died before. . . . Now I’m in a better place, but at         Estamos muy aisladas aquı́. [We immigrate here and
  first, I suffered from diabetes and depression.]                  find ourselves with many barriers: such as language,
                                                                    we don’t have papers, we don’t have information about
Interestingly, participants, particularly those who were older,
                                                                    many things, we don’t know what our rights are . . . Life
connected depression to diabetes.
                                                                    here is very difficult. We are very isolated here.]
   We were struck with the consistency across Latinos in
how they viewed depression. The next definition, however,           Nosotros como Hispanos no tenemos donde recur-
is culturally specific to the groups we did with Mexican            rir. Y cuando no hablamos inglés es otro obstáculo
American immigrants. Mexican immigrants were intensely              grandı́simo. [As Hispanics we don’t have anywhere to
aware of the difficult jobs available to them, particularly if      turn to. And when we don’t speak English it is another
they were undocumented. In a state like New Jersey, with a          huge obstacle.]
high cost of living, it was common for men (and women) to
                                                                    Tiene miedo a lo que va a pasar, a lo desconocido. . . .
work more than one job to make ends meet. Both men and
                                                                    ¿Que van a preguntar, que va a pasar? Tiene miedo
women discussed the stresses produced by these work situa-
                                                                    a discutir, a investigar . . . [One is afraid of what will
tions. They saw depression as intimately tied to alcohol use.
                                                                    happen, of the unknown. . . . What are they going to
Women also saw this cycle as including domestic violence
                                                                    ask, what’s going to happen? One is afraid, to discuss,
directed at them.
                                                                    to investigate. . .]
  [Los hombres] se deprimen, ellos buscan el alcohol                 The major stigma of seeking mental health services is the
  para escaparse y no deprimirse. Tienen que hacerse a            fear that they will be considered crazy (loco) or might really
  cargo de la familia acá y también mandarle dinero a la        be crazy if they need these services. One poignant example
  familia allá. Conseguir trabajo aquı́ es difı́cil. [Men get    in the groups was a woman who was in treatment for her
  depressed. They seek out alcohol to escape and not get          depression. She recounted that when she came back from
  depressed. They are responsible for their family here           therapy, she overheard her neighbors on the next stoop saying
  and also have to send money to their family there, and          to each other, “Ay, aqui viene la loca.” [Oh, here comes the
  finding work here is difficult.]                                crazy woman.] At the same time participants recognized the
                                                                  unjustness of such assumptions and the need for educational
  This quote also highlights the pressure on immigrants           interventions in the Latino community to combat the stigma
  here to support family in their home countries. Some            of mental illness.

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22                                                                                      J Immigrant Minority Health (2007) 9:17–28

     En la cultura Hispana, piensan que ir a ver a un             that one should seek help if the problem grows to be out of
     psicólogo es cosa de locos. Es la parte de ignoran-         one’s control. In addition, many participants felt they would
     cia, saber entender y saber donde pedir ayuda. [In the       try remedies already known to them before going to mental
     Hispanic culture, they think that going to a psycholo-       health services.
     gist is only for people who are really crazy. It’s due in
                                                                    Nosotros los Hispanos, nos hemos acostumbrado en los
     part to ignorance, not being able to understand and not
                                                                    remedios caseros. . . la medicina en realidad no es muy
     knowing where to go for help.]
                                                                    receptiva. [We Hispanics have become accustomed to
   This next quote illustrates not only the insurance and fi-       using home remedies . . . in reality, medications are not
nancial problems Latinos face in getting mental health care,        very well received by the Hispanic community.]
but the lack of sensitivity of public mental health services in
                                                                     Participants preferred to seek out a “talking cure” first if
dealing with these issues.
                                                                  they were to go to mental health services. Participants indi-
     Nunca la cojı́ la conserjerı́a porque yo dije, pero si       cated a need to “unburden oneself” [desahogarse] and thus
     ellos me la están ofreciendo y yo fui y yo me presenté.    thought talking to a professional would be most beneficial.
     Pero me dijeron, “No, el seguro de su esposo no cubre        Participants reported strong negative reactions towards med-
     eso. Necesita $250 de down.” [I never received the           ications; medications are only for people who are severely
     counseling. They were offering me the counseling and         mentally ill. To most participants, medications are seen as a
     I went and presented myself. But then they said, “No,        last resort and then only as a temporary solution until one
     your husband’s insurance doesn’t cover this; we need a       gains control of oneself; though others believed that if one
     $250 down payment.]                                          reached the point of needing medications, then it would be
                                                                  necessary for life.
   While this list of barriers is very similar to those identi-
fied in mental health services research, these quotes make          Como último recurso, siempre se trata de buscar ayuda
the barriers more real, palpable, and provide a sense of            profesional, pero a veces de necesidad usas medica-
the texture of how they are experienced in the Latino               mentos a pesar de la ayuda, algo que se usa siempre,
community.                                                          no por un dı́a. [As a last resort, we always try to seek
                                                                    professional help. But sometimes out of necessity one
Attitudes toward treatment                                          uses medications in spite of the counseling. If it gets
                                                                    to the point that you need medicine, it is medicine that
When asked how they felt that depression should be treated,         you use always, not just for one day.]
the focus group participants generally agreed that depression
                                                                     Many expressed a fear of potential side effects and the
is a consequence of difficult life circumstances, and therefore
                                                                  addictive potential of psychiatric medications. The fear of
not always an illness. This is one of the key reasons why
                                                                  addiction to psychiatric medications is very strong. Members
Latinos do not often seek mental health services right away.
                                                                  of the community tended to use models of sleeping pills and
Given the myriad stresses in the lives of Latino immigrants,
                                                                  coffee to understand medicines; in these models people need
it is not difficult to find reasonable explanations for why one
                                                                  more and more sleeping pills or coffee over time to have an
might be deeply sad, feel lost and disoriented, experience life
                                                                  effect, and it is difficult to stop taking the pills or drinking
as overburdening, be tired all the time, and express a sense
                                                                  the coffee.
of hopelessness about the future. To decide that the feelings
and bodily experiences that are often associated with the
challenges of being a Latino immigrant in the U.S. have           Attitudes towards providers
gone on too long and are too disabling so that mental health
treatment might be indicated is a difficult process. Often        Most focus group members explained that they seek help
the social networks that would help make that decision are        from primary care providers because they are not aware of
disrupted by the immigration process itself, and those family     mental health as a specialty service. Language barriers and
members who are here are often also working long hours and        cultural clashes in understanding the style of mental health
may not be aware or be able to be sensitive to the problems       treatment in the United States are also an issue. Participants
a person is facing.                                               explained that providers need to be accessible, need to build
    Latinos often expressed a strong value for trying to deal     trust [confianza] with their clients, and need to treat peo-
with problems on one’s own [hay que poner de su parte] be-        ple with respect [respeto]. Participants clearly needed more
fore seeking professional help. This value is a further reason    orientation to how psychotherapy is often carried out in the
why a delay in seeking help is the norm, not the exception.       U.S. Their expectations were in line with the strong emphasis
At the same time, participants expressed the strong opinion       on sociality in Latino culture; that if I unburden myself and

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share my emotions with you, I will get a warm and emotional     Discussion
response in turn.
   One participant shared one experience of going to a ther-    This paper, along with the paper by Cabassa and colleagues
apist:                                                          [15], provides rich context to the growing quantitative studies
                                                                concerning different ethnic groups’ attitudes towards mental
  Yo he ido a unos cuantos psicoterapias. . . yo fui a uno
                                                                health treatment generally and depression care more specif-
  que se sentaba y me decı́a “habla” y parecı́a que le
                                                                ically. The first important finding is that Latinos recognize
  estaba hablando a una pared. Pero el de ahora habla,
                                                                and label depression clearly. It is not tenable to argue that
  da sus opiniones, se ve que esta interesado en cono-
                                                                Latinos do not recognize depression and do not have terms
  cerme a mi. El trata de obtener mi confianza y ası́
                                                                for it. Many of the descriptions of depression from our focus
  me hace sentir más cómoda. . . [I’ve gone to several
                                                                group participants clearly mirrored the symptoms of depres-
  psychotherapists. . . I went to one who sat down and
                                                                sion incorporated in DSM-IV. Their descriptions integrated
  said “talk” and it felt like I was talking to a wall.
                                                                emotional and physical symptoms of depression, not priori-
  But the one I see now talks, gives his opinions, I can
                                                                tizing the psychological over the somatic, as DSM-IV does.
  tell that he is interested in getting to know me. He
                                                                Participants’ descriptions of depression also included social
  tries to obtain my trust and thus makes me feel more
                                                                dimensions of the experience, especially isolation or loneli-
  comfortable. . .]
                                                                ness. In this sense, depression is a sociosomatic experience
  Lo que pasó es que yo llegaba y el me escucha y está con    among Latinos [19, 20]. This tight linking of depression to
  el reloj. Y yo le estoy platicando todo lo que yo siento,     life’s problems, what Finkler [21] describes as “life’s le-
  lo que pasó, todo. Y el me dice, “Bueno te espero en         sions,” means that many Latinos do not initially see depres-
  la próxima cita.” Era todo lo que me decı́a. [everyone       sion as an illness, but rather as a consequence of the many
  laughs] Yo ya no voy. Yo no tengo tiempo para perder          disruptions caused by the immigration process and chal-
  ası́. [What happened is that I arrived [at therapy] and       lenges that Latino immigrants face in surviving in the U.S.
  he listened to me and he was looking at his watch. And        Latinos do see the experiences associated with depression as
  I was telling him everything I felt, everything that had      serious and needing help, but not necessarily mental health
  happened. And he said, “I’ll wait for you at our next         care.
  appointment.” That was all he said. [everyone laughs]             That Latinos may emphasize the more somatic aspects of
  I don’t go anymore. I don’t have time to waste like           depression when seeking help in primary care can be seen
  that.]                                                        as more a strategic decision than a lack of awareness or in-
                                                                sight into the emotional components of depression. Their
   In reaction to comments such as this one, the conversation
                                                                own and providers’ expectations that you come to the clinic
turned to what community members expect from therapy.
                                                                with physical symptoms shape how they report their prob-
One person described how the first session should be:
                                                                lems. The stigma in the community against mental health
  La primera sesión debe ser individual para que se re-        problems also leads Latinos to defend against the possibil-
  cobre su autoestima, se siente confianza. Ya después,        ity that they may be labeled as “crazy’ because they are
  buscar una terapia en grupo será lo último, ya cuando       seeking mental health services. In their home countries, par-
  una persona está superando su depresión. [The first         ticularly in rural areas, the paucity of mental health services
  session should be individual so that the person can re-       also means that people are not used to and are not familiar
  cover his/her self esteem, can feel confidence and trust.     with mental health treatment. Social and emotional prob-
  Then later, seeking group therapy would be the last           lems are more likely dealt with in the family, church and
  thing, when one is in the process of overcoming one’s         alternative medical sectors in Latinos’ home countries. All
  depression.]                                                  of these factors combine to influence Latinos’ presentation of
                                                                self when they come to primary care and even mental health
  Overall, many could identify the benefits of talk therapies
                                                                services.
and why they can be helpful.
                                                                    Latinos, even fairly recent immigrants, are painfully aware
  Porque uno se desahoga. Si uno platica, uno llora y           of the many barriers they face to getting primary care and
  llora y llora y hay alguien que le escucha a uno, y           mental health services for depression. In our focus groups,
  uno saca todo, pues saca todo y desahoga el alma.             they listed many of the factors that have been regularly iden-
  Uno necesita llorar. [Because one unburdens oneself.          tified in the services literature: lack of insurance, costs of
  If one talks, then cries and cries and cries and there is     treatment and medications, lack of Spanish-speaking staff,
  someone who can listen and one gets it all out, well one      stigma, concerns about immigration status, and many others.
  gets it all out, and unburdens one’s soul. One needs to       What comes through as different in the focus groups from
  cry.]                                                         reading the research literature is that these factors are all

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24                                                                                        J Immigrant Minority Health (2007) 9:17–28

intertwined and connected to the particular circumstances           Limitations
and life experiences of Latino immigrants. That is, these
are not a series of separate factors to be put into a regres-       This study involved a series of focus groups composed of
sion model to identify the “most important” barriers to care.       community members in various heavily populated Hispanic
Rather, all of these factors come together in the lives of Latino   areas of New York and New Jersey. While our sample was
immigrants as a result of their social and economic positions       larger than in many other studies, it was not random, but was
in the U.S. From the perspective of Latino immigrants, all          based on convenience samples from a range of communities
the factors stem from the same sets of issues—the kinds of          and service and community agencies. It reflects the diversity
work and wages they can find in the U.S., the uncertain-            of Latinos in the Northeast, but not in other parts of the coun-
ties produced by their immigration status, the discrimination       try. In addition, our sample consisted primarily of females,
they experience because of who they are and how they speak,         so the content herein might not accurately reflect the Latino
the multiple demands of supporting family here and family           male sample though some gender differences were noted in
there, and the separation from supportive social networks.          the group discussions. This oversampling could be due to
While the confluence of all these factors seem overwhelm-           various factors including the higher prevalence of depres-
ing, it is also important to remember that research indicates       sion among women, the fact that women are more likely to
that immigrants as a group have better mental health than           seek services than men, and that the samples were recruited
U.S.-born Latinos [5]. But for those Latino immigrants who          from community social service or community health agen-
do develop depression, both the sources of the depression           cies. Future studies should work to include more men in their
and the barriers to care are multiply determined.                   samples.
    Several studies have now found that Latinos are more               It is important to note that despite the different method-
supportive of psychotherapeutic interventions than other mi-        ologies across the focus groups, the themes that arose across
norities and less receptive to medications than European            groups were strikingly similar. Experiences in the service
(currently says that) Americans. Our focus groups further           system are also reflective of services in New York and New
elucidate these findings and provide meaning to them within         Jersey, which are uneven in their efforts to develop service
Latino cultural frameworks. The preference for psychother-          adaptations to meet the needs of the rapidly growing and
apy results from several factors. The cultural idea of the value    diversifying Latino community in these areas.
of “unburdening oneself” [desahogarse] as an important as-
pect of maintaining emotional health makes psychotherapy            Improving care for depression
seem attractive [20]. The idea that depression is a result of
stressors in the social world also means that social inter-         With regards to therapies, especially psychotherapies, the re-
ventions make sense to Latinos. Building more supportive            sults of this study clearly emphasize that therapists need to
social relationships fills a need for Latino immigrants who         orient Latino patients to the process of mental health treat-
have often lost those relationships in the process of immigra-      ment. Latinos are not aware of the professional codes of
tion. To the extent that therapy provides a context for sharing     conduct that govern relationships between therapists and
emotions and for building new supportive relationships, it          consumers. The interpersonal models that Latinos bring to
fits with Latinos’ conceptions of depression and how to cope        therapy are based on traditional models of relationships
with it.                                                            among family and friends. Building the therapeutic alliance
    Medications, on the other hand, are less congruent with         is especially important when working with Latinos. It should
Latinos’ models of depression. Medications signal that the          include an orientation towards the treatment in general as
person’s problems are a disorder, not a problem in living, and      well as an explanation of specific treatment approaches, the
open the person to community stigmatization as someone              therapeutic model and the goals for treatment. The more
who is loco. Medications also signal long term disability and       the Latino client can be involved in this process, the more
an inability to care for oneself. That these assumptions about      confianza is built between the therapist and client.
medication do not fit with the medical model make them no               Psychoeducation about medication is also critically im-
less influential in the community. Medications also pose the        portant. Addressing issues of the negative side effects and
threat of addiction. In part this arises from community mod-        consequences of medication is essential. Having the therapist
els of other substances that are addictive like caffeine in cof-    or doctor explain the difference between everyday models of
fee, nicotine in cigarettes, and older anxiolytics. Awareness       the addictiveness of some substances and how antidepres-
of the difference in addictive potential and side effective pro-    sants actually work and that the medicine can be stopped
files of the newer anti-depressants are limited in the Latino       may help people to more readily accept the medicines as a
community. The challenge is to provide psychoeducation              form of treatment. Providing consumers with realistic esti-
about anti-depressants in the Latino community without ap-          mates of how long it will take for the medications to produce
pearing to be overly promoting medications for depression.          therapeutic effects and what the likely course of treatment is

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J Immigrant Minority Health (2007) 9:17–28                                                                                  25

will also help to prevent misconceptions and patient drop-         it. But to resolve a problem, you have to take off the “pre”
out. Recent research has shown that depression treatment           and take care of it (that is become occupied in finding the
in primary care combining therapy and medications is par-          solutions to the problem)!].
ticularly effective for Latinos both in the U.S. and in Latin
America [22, 23].

Needs for community intervention                                   APPENDIX A: Focus group guide concerning mental
                                                                   health and mental health services (Studies 1 and 2)
Based on the barriers to help seeking described in the vari-
ous focus groups, several culturally competent intervention        1. Para Uds, que es salud emocional o salud mental?
programs are necessary to make mental health services ac-            [For you, what is emotional or mental health?]
cessible to the Latino community. For example, there is a             r Como saben Uds. que una persona es sana mental-
need for programs to help new Latino immigrants adjust
to life in the U.S., this could help to prevent the onset of            mente?
depression. In addition, programs to reduce the stigma of               [How do you know when someone is mentally healthy?]
                                                                      r Que debe hacer una persona para mantener su salud
mental illness and mental health care in the Latino com-
munity would significantly increase help seeking behaviors.             emocional?
More psychoeducation about mental health and its treatment               [What should someone do to maintain their emotional
would encourage the Latino community to be psychologi-                  health?]
cally savvy; this could help community members to be their         2. Que tipos de problemas (enfermedades) de salud mental
own advocates for appropriate treatments. Finally, there is a         hay?
need for more public information in Spanish about where to            [What types of mental health problems (illensses) are
get mental health help and how to access such care. These             there?]
kinds of interventions are supported both by our findings and         Como saben Uds. que una persona tiene un problema (una
those of Cabassa and colleagues [15] in a different context           enfermedad) de salud mental?
with a different mix of Latinos.                                       [How do you know when someone has a mental health
                                                                      problem (illness)?]
Clinical and research implication
                                                                   3. Cuales son las reacciones de gente en la comunidad acerca
Based on the findings presented in this paper, one can see that       de personas con problemas de salud mental?
community members echo ideas set forth by cross-cultural              [How do people in the community react to people with
mental health practitioners about how to more effectively             mental health problems?]
serve the Latino community. Mental health providers work-          4. Que debe hacer una persona que padece de un problema
ing with Latino clients should learn to address the con-              de salud mental?
cerns expressed by these community members—including                  [What should someone do if they suffer from a mental
the stigma of mental illness, the fear of both the unknown            health problem?]
structure of therapy and the unknown effects of psychotropic          r Que tratamientos conocen Uds. para problemas (enfer-
medications—in short, professionals need to become cultur-              medades) de salud mental?
ally competent. In addition, researchers can learn to adapt              [What treatments do you know for mental health prob-
their research strategies to the cultural values and norms              lems (illnesses)?]
within the population they wish to study. For example, we             r Cuales de esos tratamientos piensan Uds. son mas efec-
used the focus group method, where you gather around a                  tivos?
table, usually with some refreshments, and talk about things             [Which of these treatments do you think are most
that are important to you, a style that is culturally acceptable        effective?]
within the Latino community and emphasizes values such as             r Que puede hacer la familia de una persona con un prob-
personalismo.                                                           lema de salud mental?
   We end this paper with a call to action for the mental                [What can the family of a person with a mental health
health fields to become more involved in reaching out, ed-              problem do for them?]
ucating, and helping the Latino community. As one focus
group participant so aptly phrased it, “Qué hace uno cuando       5. Que problemas encuentran personas con problemas de
hay un problema? Se preocupa. Pero para resolver hay que              salud mental en buscar ayuda?
quitarle el ‘pre’ y ocuparse!” [What do you do when you                [What problems do people with mental health problems
have a problem? You worry and become preoccupied with                 encounter in seeking help?]

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26                                                                                       J Immigrant Minority Health (2007) 9:17–28

      r Que problemas tiene en identificar servicios apropri-        [What type of help does Marta need?]
        adas?
                                                                      Los doctores piensan que Marta está deprimida. Al pre-
        [What problems do they have in identifying appropriate
                                                                   guntarle si considera que ha necesitado ayuda profesional
        services?]
      r Que problemas tienen en usar estos servicios?              para algún problema emocional, dice que no.
                                                                      [The doctors think that Marta is depressed. When they ask
        [What problems do they have in using those services?]
                                                                   her if she thinks she needs professional help for an emotional
                                                                   problem, she says no.]
Focus group questions about educational campaign
                                                                   r ¿Qué esta ocurriendo con Marta que a pesar de lo mal que
A nosotros, nos interesa desarollar un programa para educar          se siente, no reconoce que tiene un problema emocional?
a la comunidad Latina acerca de la salud mental.                      [What is happening with Marta, that although she feels
    [We would like to develop a program to educate the Latino        really ill, she does not recognize that she has an emotional
community about mental health.]                                      problem?]
                                                                   r ¿Por qué personas como Marta se deprimen?
1. Que medios de comunicacion serian mejores para ese pro-
                                                                       [Why do people like Marta get depressed?]
   grama de educacion? (radio, television, periodicos, etc.)       r Qué otras razones contribuyen a que personas como Marta
    [What forms of communication would work best for
                                                                     se depriman?
   the educational program? (radio, television, newspapers,
                                                                     [What are some other reasons why people like Marta might
   etc.)]
                                                                     become depressed?]
2. Utilizaria Ud. un numero 800 para informacion acerca de         r Cuándo debe uno buscar ayuda para la depresión?
   donde encontrar servicios de salud mental?
                                                                       [When should one seek help for depression?]
   [Would you use an 800 number for information about how          r ¿Qué tipo de ayuda debe buscar Marta para su depresión?
   to find mental health services?]
                                                                      [What type of help should Marta seek for her depression?]
3. Que mensajes deberiamos presentar acerca de salud men-
   tal en la comunidad Latina? (Informacion acerca de en-             A pesar de que se siente mal con problemas fı́sicos y
   fermedades, estigma, recursos o tratamientos, etc.)             psicológicos y que el doctor le ha dicho que esta deprim-
   [What messages should we present about mental health            ida, Marta no busca ni ha entrado en tratamiento para la
   in the Latino community? (Information about illnesses,          depresión.
   stigma, resources, treatments, etc.)]                               [In spite of how badly she feels due to her physical and
                                                                   psychological problems, and that the doctor has told her she
Appendix B: Vignette on recognizing depression and                 is depressed, Marta does not seek nor enter treatment for
attitudes towards treatment (Study 4)                              depression.]
                                                                   r Qué razones podrı́a tener Marta para no buscar ayuda?
Voy a comenzar por hablarles de un paciente, una mujer que           [What reasons might Marta have for not seeking help?]
llamaremos Marta, de 38 años, divorciada con 2 hijos de 11
y 13 años. Marta expresa que durante el último año se ha           Luego de pasar otro año en que los perı́odos de depresión
sentido muy triste. Indica que se le hace difı́cil dormir, tiene   han ido aumentando, Marta ha pensado en algunas ocasiones
poco apetito, llora a menudo, y no puede realizar sus tareas.      en buscar ayuda, pero no lo ha hecho.
Ella ha tenido que visitar al médico para dolores de cabeza,         [During another year in which her periods of depression
estomacales y de los músculos.                                    have increased, Marta has thought about seeking help on
    [I am going to begin by telling you about a patient, a         some occasions, but still has not gone.]
woman we will call Marta, who is 38 years old, divorced and        r ¿Qué se podrı́a hacer para que alguien como Marta busque
has two children who are 11 and 13 years old. Marta says that        la ayuda que necesita?
during the past year she has felt very sad. She has had trouble      [What could be done so that someone like Marta would
sleeping, had little appetite, cries often and cannot get her        seek the help she needs?]
tasks done. She has had to visit her doctor for headaches and
pains in her stomach and muscles.]                                    Marta decide que desea recibir ayuda profesional pero
                                                                   se ha encontrado con muchos problemas en conseguir
r ¿Qué piensan Uds. que esta pasando con Marta?                   tratamiento.
 [What do you think is going on with Marta?]                          [Marta decides that she would like professional help, but
 STOP HERE AND DISCUSS AFTER EACH QUES-                            she encounters many barriers in obtaining treatment.]
 TION
r ¿Qué tipo de ayuda necesita (Marta)?                            r ¿Cuáles problemas consideran ustedes que hacen difı́cil
                                                                     que las personas consiguen tratamiento?

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J Immigrant Minority Health (2007) 9:17–28                                                                                                  27

  [What types of problems do you think make it hard for             r ¿De quienes prefieren Uds. recibir tratamiento?
  people to access treatment?]                                        [From whom would you prefer to receive treatment?]
r ¿Qué recomendaciones tienen para resolver estos proble-          r ¿Hay otro comentario que Uds. quieren hacer acerca de
  mas?                                                                este asunto?
  [What recommendations do you have for solving those                  [Is there anything else that you would like to say about
  problems?]                                                          this topic?]
   Si Marta decide buscar ayuda, [If Marta did decide to seek
treatment,]
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