INCREASING VACCINE UPTAKE IN DIVERSE COMMUNITIES - A Working Guide for Health Care CEOs
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INCREASING VACCINE UPTAKE IN DIVERSE COMMUNITIES A Working Guide for Health Care CEOs MARCH 1, 2021 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 1
About this This working guide will be made available to the public as a PDF on a webpage with commenting functionality. New versions will be released to Working Guide respond to feedback received and to the emergence of additional data and best practices. The Roundtable This document was developed by Fellows on the Roundtable on Community Health and Advancing Health Equity, with support from Health Evolution staff on Community and Benjamin Bolnick and with significant input from both the Work Group Health and on Building Scalable Models and Community Partnerships to Address Social Determinants of Health and the Work Group on Leveraging Data to Improve Advancing Health Equity. Co-Chairs for the Roundtable and Work Groups include: Health Equity Mandy Cohen, MD, Secretary, North Carrie Byington, EVP, University of Carolina Dept. of Health and Human California Health; Services; Please note that the views in Laurie Zephyrin, MD, VP, Delivery this document represent the Pat Geraghty, President & CEO, System Reform, The Commonwealth GuideWell & Florida Blue; Fund; collective views of the Fellows and researchers and do not Rod Hochman, MD, President & Stephen Mette, CEO, University represent the individual views CEO, Providence; of Arkansas for Medical Sciences of any specific Fellow or Medical Center; Wright Lassiter, III, President & organization within the Forum CEO, Henry Ford Health System; Felicia Norwood, EVP & President, or of Health Evolution. Chair-Elect of AHA; Government Business Division, Anthem, Inc. Mark Smith, MD, Founding President & Former CEO, California Health Care Foundation; The Roundtable on Community Health and Advancing Health Equity supports partnerships between payer, provider and life sciences companies that can improve community health and advance health equity among racial groups and vulnerable populations. The goal of this Roundtable is to accelerate adoption of new models for improving the health of a community and promoting health equity for and among local populations. About the The Health Evolution Forum is a collaboration among over 200 CEOs and other executives of payer, provider, and life science organizations and other Health Evolution industry thought leaders designed to bring about near-term impact across Forum the health care industry. The Forum is organized into Roundtables and Work Groups that make industry recommendations on specific topics. Underwritten by Insight. Innovation. Transformation.
THE ISSUE Although data around vaccine distribution in America is sorely limited and scattered,1 one pattern is becoming increasingly clear – those who have been affected by COVID-19 the most are getting vaccinated the least. Based on early data from 26 states, Black and Hispanic Americans are getting vaccinated at approximately half and one-third the rate of white Americans respectively (see Figure 1 below).2,3 This is true even after controlling for the demographic makeup of health care workers, who were first in line to receive the vaccine.2 Meanwhile, Black, Indigenous, and (other) people of color (“BIPOC”) are contracting COVID-19 at nearly twice the rate, being hospitalized for COVID-19 at nearly four times the rate, and dying from COVID-19 at nearly three times the rate as white Americans (see Figure 2 below).4 CONTENTS 01 The Issue 05 10 Steps 06 Part I: Creating an Action Plan 10 Part II: Increasing Confidence 22 Part III: Increasing Accessibility 26 Top Resources 27 References HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 1
Figure 1. Vaccinations as a Share of Total Population by Race/Ethnicity3 LOCATION WHITE BLACK HISPANIC RATIOS OF VACCINATION RATES 1.0x Total 2.0x (26 states) 10% 5% 3% 3.3x 4.0x Pennsylvania 8% 2% 2% 4.0x 3.2x North Dakota 19% 6% 7% 2.7x 3.0x Arizona 12% 4% 3% 4.0x 3.0x Wisconsin 12% 4% 3% 4.0x 2.6x Indiana 13% 5% 3% 4.3x White-to-Black Vaccination Ratio White-to-Hispanic Vaccination Ratio Based on data from KFF analysis. Vaccination data for Pennsylvania excludes Philadelphia. Figure 2. COVID-19 Cases, Hospitalizations, and Deaths, by Race/Ethnicity5 Rate ratios compared to White, Non-Hispanic persons CASES HOSPITALIZATION DEATH American Indian or Alaska Native, Non-Hispanic persons 1.8x 4.0x 2.6x Asian, Non-Hispanic persons 0.6x 1.2x 1.1x Black or African American, Non-Hispanic persons 1.4x 3.7x 2.8x Hispanic or Latino persons 1.7x 4.1x 2.8x CDC, Nov. 2020 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 2
Disparities in vaccine uptake stem from both lower confidence in and less access to the COVID-19 vaccination. First, many individuals in diverse communities are less confident than white Americans in the vaccine, with 43% of Black adults and 37% of Hispanic adults stating they would “wait and see” how it is working for others before getting it (see Figure 3 below).6, 7 Although the roots of this low confidence vary by community and individual, it often stems from distrust of a medical system which has historically mistreated and neglected BIPOC Americans.8, 9, 10, 11, 12, 13, 14 Second, vaccine distribution is commonly done in ways that are less accessible to BIPOC Americans in both obvious ways (e.g., distribution sites are placed farther from BIPOC communities), and more subtle ways (e.g., accessing the vaccine requires an individual to have resources— time, transportation, computer and Internet access, knowledge of how to get vaccinated, etc.—that are not equitably distributed by race and ethnicity).2 Figure 3. Young Adults, Black Adults Most Likely to Want to “Wait and See” Percent within each group who say, when an FDA-approved vaccine for COVID-19 is available to them for free, they would wait and see how it is working for other people: Age 18-29 43% Black adults 43% Hispanic adults 37% Urban residents 37% Republicans 33% Independents 33% Total 31% Essential workers (non-health) 31% Suburban residents 29% Health care workers 28% Rural residents 27% Democrats 26% White adults 26% Ages 65 and older 21% Source: KFF COVID-19 Vaccine Monitor (conducted Jan 11-18, 2021). See topline for full question wording. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 3
Health care CEOs are in a unique position to increase confidence in, and accessibility to, the COVID-19 vaccine because: The very mission of health care organizations is to promote healthier communities; Health care organizations often have more access to resources, data, and expertise than government and community organizations; Many health care organizations also have access to the vaccines and/or trained vaccinators needed to support critical community vaccination efforts; Health care professionals are often seen as trusted voices in their communities; and Finally, health care organizations are often among the largest employers in their communities, providing an opportunity to have an outsize impact in the vaccination efforts. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 4
10 STEPS HEALTH CARE CEOS CAN TAKE Fixing the deep inequities embedded in the health care system is beyond the scope of this guide, but CEOs can take the following 10 steps to increase vaccine confidence and accessibility in the diverse communities they serve: PART I: Creating an Action Plan Step 1: Empower a Task Force to Provide Oversight Step 2: Coordinate with Community Organizations and Local Government Step 3: Conduct a Rapid Root Cause Diagnostic PART II: Increasing Confidence Step 4: Identify and Train Trusted Messengers Step 5: Be Transparent About Vaccine, Allocation, and Distribution Step 6: Create Personal Messaging Step 7: Use Evidence-Based Messaging Step 8: Communicate Through Multiple Touchpoints Consistently PART III: Increasing Accessibility Step 9: Make Signups as Accessible as Possible Step 10: Distribute the Vaccines in Local Places HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 5
PART I: CREATING AN ACTION PLAN Step 1: Empower a Task Force to Provide Oversight A : For those who have not already done so, set up an oversight committee or leverage an existing task force. This task force should be customized to the organization’s circumstances (e.g., whether playing a direct role in vaccine distribution and administration; whether a national, regional, or local organization; etc.).15 Ensure that those on the oversight committee are demographically diverse and representative of the community that the health care organization serves,15 ideally with some community member representation.16 B : Set goals, collect race and ethnicity data, and develop a dashboard to monitor progress.17 One health system in the Southeast pledged up front to allocate vaccines in line with the racial and ethnic makeup of its patient population. This served as a forcing function for the organization to consider in advance what steps it needed to take in order to reach diverse communities. To address potential tradeoffs between efficiency and equitable vaccine distribution, organizations might consider setting goals that phase in over time. Regardless, data should be collected throughout the process on race, ethnicity, gender, ZIP code, and occupation.17 This data can then be used to determine which groups and ZIP codes need more direct interventions. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 6
Step 2: Coordinate with Community Organizations and Local Government A : Coordinate with public, private, and community organizations to bring in any expertise, resources, or capabilities needed to accomplish the goals set by the task force.18 Resources might include an accessible location, security, vaccines, tents, trailers, signage, fencing, restrooms, vendors, website infrastructure, power cables, laptops, Wi-Fi, staffing, storage, documentation, etc.19 For example, local health departments can put out calls for health care professionals to come volunteer at vaccination stations; local sports teams can provide the space and technology;19 and churches can provide accessible, trusted spaces for vaccine distribution, as they are doing in Philadelphia.20 Partners that bring strong cultural competence with the communities being served or targeted should also be identified. 58,000 CASE EXAMPLE: One particularly compelling multi- vaccines in organization partnership occurred between UC San Diego 2 weeks Health, San Diego County, and the San Diego Padres, who worked to stand up a large-scale vaccination site in five days that facilitated the vaccination of 58,000 community members in its first two weeks of operations.19 B : Partner with local and state government. Partner with local health departments to identify ZIP codes that are hardest hit by COVID-19 and that have the least access to vaccination sites. Check to see if the state government has specific goals around equitable vaccine distribution.21 Advocate for local government to use evidence-based messaging and evidence-based methods for making the vaccine more accessible, as outlined in the COVID-19 Vaccine Toolkit for Mayors.16 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 7
Step 3: Conduct a Rapid Root Cause Diagnostic Do not skip Step 3, as tempting as it may be to jump right into the next steps. As will be seen throughout this guide, this step provides a critical foundation for the remaining steps. A : Review national resources and research to provide context for vaccine concerns, especially of underserved populations. For example, the KFF COVID-19 Vaccine Monitor Dashboard has up-to-date data on numbers and trends regarding COVID-19 cases, vaccine confidence, and vaccine distribution (for more, see the Top Resources list).22 KFF’s research highlights how Black and Hispanic adults who indicated that they would like to “wait and see” before taking the vaccine are “very concerned” about the long-term effects of the vaccine, the potential for side effects, and overall safety and effectiveness. Figure 4. Concerns about Vaccines for Black Adults, Hispanic Adults, and White Adults (KFF)23 Among those who want to “wait and see” how the COVID-19 vaccine is working for others, percent who say they are very concerned about each of the following: 65% The long-term effects of the COVID-19 57% vaccines are unknown 46% 55% You might experience serious side 47% effects from the COVID-19 vaccine 34% 47% The COVID-19 vaccines are not as 44% safe as they are said to be 28% 46% The COVID-19 vaccines are not as 41% Black adults effective as they are said to be 19% Hispanic adults 31% White adults They might get COVID-19 from the vaccine 32% 13% NOTE: Among those who have not been vaccinated against COVID-19 SOURCE: KFF COVID-19 Vaccine Monitor (conducted Jan 11-18, 2021). See topline for full question wording. 26% HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 21% 8
Conversations should be ongoing, occurring at regular, frequent intervals, because the community’s concerns may change rapidly. B : Bring in local community representatives and organizations to learn what concerns specific communities have around the vaccine.6 Have open discussions with multiple local leaders who have an ear to the ground to learn about concerns of specific populations in the community. These conversations should be ongoing, occurring at regular, frequent intervals, because the community’s concerns may change rapidly. For example, in Dayton, Ohio, these one-hour discussions happen every week.16 Time and resources permitting, consider also having these conversations with local community members, in addition to the community leaders.15, 24, 25, 26, 27 All these discussions should include topics such as: l How has COVID-19 impacted the social and economic fabric of the community? l What specific questions do community members have about the vaccine? l What conceptions and misconceptions do community members have about the vaccine? l Which populations in the community have lower confidence in the vaccine? l How do these community members feel about the health care system and accessing health care? l How do these community members best access information (e.g., newspapers, emails, flyers, word-of-mouth, social media, church announcements, etc.)? l Who do these community members trust and listen to most regarding health information? l What language barriers exist in the community? l What are the biggest barriers for community members to access the vaccine (e.g., lack of information, transportation, Internet access/savviness, childcare, time off)? HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 9
PART II: INCREASING CONFIDENCE Step 4: Identify and Train Trusted Messengers A : Locate and partner with trusted messengers.28, 27, 16, 6 The information around COVID-19 and COVID-19 vaccines is confusing, and a certain level of trust is needed for an individual or community to believe a source of information.27 Although community messaging should be planned in collaboration with local health departments,29 public health authorities should generally not be used as the trusted messengers in working with BIPOC communities because Black, Hispanic, and low-income communities tend to have lower trust in them when it comes to vaccine recommendations.30 B : Start with own health care organization employees. It is reasonable to anticipate that all employees within the organization will field questions (and have questions of their own), so it is important to equip them with up-to-date information on vaccine efficacy and availability. Those who are naturally in direct contact with enrollees and patients should receive materials and training on having non-judgmental conversations with those who have low confidence in the vaccine. Finally, since the most trusted source of health information for diverse communities is usually from family and friends working in the health care industry, and health care professionals of the same race as the message recipient are generally trusted,16 identify employees who are willing to be part of a proactive campaign in their community.16 The Ad Council has produced a useful COVID-19 Vaccine Education Toolkit with videos, FAQs, and social media copy specifically for health care professionals.31 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 10
C : Reach out to additional trusted messengers including family and friends, local pharmacists, faith leaders, other community-based, non- governmental leaders who represent the people of the community,27, 16, 6, 32, 33, 34 micro or local “influencers,”33 popular figures,13 and national “influencers.”33, 13 Generally, the more local the messenger, the more trustworthy (see Figure 5 below). As one person put it, “The vice president matters, but it matters more that your barber got it.”35 In practice, health care organizations should use the term “trusted messenger” rather than “influencer” because “influencer” has the connotation of being manipulative. Government messengers are usually seen as the least trustworthy, because minority groups have historically been mistreated by the government.13, 36 Adult children are often the most trusted messenger for their parents – many elderly parents are getting vaccinated only because their children are encouraging them to do so.37 As such, consider Tik Tok, Instagram, and Facebook marketing campaigns targeting millennials and Generation Z to convince their parents to get the vaccine. Work with local news media, which is generally seen as being the most trustworthy and in touch with the community.16 Figure 5. Concentric Circles of Trust Being a health care professional helps at all levels Family & Local/Micro National Influencers Friends (Best) Influencers (Next Best) /Celebrities (Least Effective) SOURCE: HEF, Feb 2021 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 11
If people feel like their concerns are be being downplayed, unheard, or unaddressed, they are less likely to listen to messaging about getting vaccinated. D : Equip trusted messengers to address the concerns of their communities.28, 16, 38 , 27, 39, 33, 16, 29 Train and work with the trusted messengers in a variety of ongoing ways to continuously promote the messages of safe vaccine uptake. For great examples of how to equip trusted messengers, see the REAL TALK Case Example below, or the sample conversations on pages 9-10 of the COVID-19 Vaccine Communication Handbook.40 Establish forums for members of the community to have their questions answered in nonjudgmental ways by, and to have conversations with, these trusted messengers.38, 41 These conversations should utilize active listening16, 40 and should be supportive, reflective, non-judgmental, and without the intent to convince them to take the vaccine.41 If people feel like their concerns are be being downplayed, unheard, or unaddressed, they are less likely to listen to messaging about getting vaccinated.16, 40 Help the messengers access multiple platforms (social media, WhatsApp, etc.) so that their messages can “go viral” and be distributed within communities, families, and friend groups.27, 39, 33, 32 Personal anecdotes from trusted messengers are often the most persuasive.32 Share their stories.32 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 12
SURVEY Myth Buster What to FAQ Expect? CASE EXAMPLE: Jefferson’s REAL TALK Campaign. After conducting a survey of its health care professionals and measuring uptake of the COVID-19 vaccine in the first two days of its availability, Jefferson Health noticed that there were stark differences by race and ethnicity. In response, it developed a “REAL TALK” campaign—first among its own workforce and then in the broader community—to have candid conversations with individuals about their concerns. As part of the campaign, it developed three documents—one on what to expect after getting the vaccine, one with myth busters, and one with answers to frequently asked questions—and held 30-minute training sessions with more than 130 trusted messengers. The trainings focused on helping those trusted messengers know how to have conversations about vaccinations in an understanding, non-threatening manner, rather than on convincing or persuading others to get the vaccine. Those speaking with trusted messengers were most likely to decide to take the vaccine if they felt that their concerns were acknowledged and that they had a chance to ask questions. Vaccine uptake increased dramatically in response to the REAL TALK Campaign, particularly among employees. E : Encourage those with low confidence in the vaccine to reach out to a pharmacist or primary care physician for more information on the vaccine’s development and their perspective on its effectiveness. Many people have developed trusted relationships with their pharmacists and primary care doctors and value their counsel. Look for opportunities to elevate pharmacists’ voices in the conversation and encourage them to direct patients to vaccine distribution sites. It may be useful to prepare materials for major pharmacies to hand out so patients have another resource to learn more about the logistics of getting a vaccine (e.g., vaccine distribution center hours, what patients need to bring, how to make an appointment, etc.). HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 13
Step 5: Be Transparent About Vaccine, Allocation, and Distribution A : Create and distribute clear information about the vaccine. Many people in the community may simply not know much about the vaccine – how it was created, how it works, the cause of the side effects, the efficacy, etc.14 Where possible, leverage materials already created for this purpose by respected organizations, but be sure to customize based on language, literacy levels, local community concerns, the best way to reach community members (e.g. mail vs. email vs. social media vs. door-to-door canvassing), and local eligibility and administration logistics. Regularly and transparently share easy-to-digest, data- driven updates on how vaccine distribution is going.16 B : Be sure to note that the vaccine is free. Not everyone knows that the vaccine is being distributed free of charge, regardless of insurance status, and so there are many who are concerned about cost.16 In particular, undocumented immigrants and communities are concerned about becoming a “public charge” and vulnerable to deportation.16 C : Be upfront about who is getting a vaccine, in what order, and why.15, 27, 16 Many are concerned about the vaccine allocation and distribution, and so be clear and simple in messaging about who has access to the vaccine, where, and when.15 Some health systems have been careful to pair the message that the individual has reserved “a spot in line” with a clarification that the exact vaccine timing is uncertain and updates will be forthcoming.16 D : Make this information available in as many formats and places as possible to reach as many community members as possible. Ensure that this information – particularly the information about when and how individuals can access the vaccine – is available on the platforms and media most used by local community members. Create an easily accessible medium through which community members can voice their concerns and have their concerns addressed.27 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 14
Step 6: Create Personal Messaging A : Ensure that vaccine messages are personally relevant to the target audience.27, 42, 43 Each community is different, with diverse experiences, resources, beliefs, and values that must be considered in health communications.27, 44, 32 Different narratives will resonate with different communities.27, 45, 46 It is important to avoid over-generalization of groups, and to be sensitive to diverse perspectives and needs within communities. Communications that are not tailored to the community may be ineffective and even backfire.27, 47, 6, 48, 49, 26 B : Promote the experiences of those who look like those in target communities. Emphasize images of people who are of the same race and ethnicity as those in target communities - working in the lab on the vaccine,38 getting the vaccine,38 and administering the vaccine.50 Work to promote the expressed vaccine trial and vaccine uptake experiences of those who are of the same race as those in the community; share their social media posts.38 C : Get feedback on the messaging. Elicit feedback, formal and informal, on messaging, to see if it is resonating with community members.33, 13, 16 Find out if they easily understood the message, if it influenced them to change their behavior, whether they shared the message, what parts of the message were most impactful, what part should have been left out, and what was missing.51, 16 D : Go beyond digital. Digital messaging alone will not go very far in increasing confidence in the vaccine as many of the people with low confidence in the vaccine are also not using digital technologies.41, 33 If people in targeted communities have limited access to the Internet or do not engage heavily with online or digital media, consider conference calls.33 Many people who have low confidence in the vaccine need their concerns to be physically heard by a trusted person in a supportive, non-judgmental context (see the Case Example above).41 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 15
When discussing the vaccine development, focus on the large number of people already vaccinated, and on the large number of people in the clinical trials, because people are afraid of being the guinea pig. Step 7: Use Evidence-Based Messaging A : Keep message simple, clear, and actionable.40 It is best to focus on one clear point at a time, with as few words as possible.40 Have links and other information available for those who want to learn more. Be specific with action-oriented messaging, and pair action-oriented messages with a clear way to carry out that action (e.g., if encouraging people to sign up for the vaccine, also provide the links, phone numbers, and address where they can sign up).40, 52 Keep action items clear and on top.40 B : Emphasize the specific people researching, taking, and benefitting from the vaccine. When discussing the vaccine development, focus on the large number of people already vaccinated, and on the large number of people in the clinical trials, because people are afraid of being the guinea pig.16 When discussing the vaccine development, talk about the individual people (the individual scientists, experts, and researchers), not the organizations or companies, who developed the vaccine.43 Feature doctors and nurses getting the vaccine and encourage people to talk to their health care provider about any concerns.16 Highlight how getting the vaccine will keep the individual’s family and loved ones safe.16, 43 Emphasize that getting vaccinated will get things back to normal faster, allowing the individual to return to the activities they love.16, 43 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 16
C : Avoid shaming. Do not minimize voiced concerns, shame people for having low confidence in the vaccine,38, 42 or tell them that getting the vaccine is the “right” thing to do.43 Doing so will show a lack of understanding of the roots of peoples’ lack of confidence in the vaccine and deepen the divide between the community and the medical system.43 Use empathic language and avoid judgmental language.43 Avoid using the term “vaccine hesitancy,” which is taken in a demeaning fashion, and instead use the term “low vaccine confidence.”41 D : Be visual and emotional. Be visual and simple with vaccine efficacy data16 – even one powerful graph or infographic can make all the difference.38 Try and use images instead of text whenever possible, as people remember them more, like them more, and are more influenced to take action.16 And do not stick just to facts, as information campaigns do not always increase confidence in the vaccine for many people.41, 53 Shared stories and images can go a long way.53, 16 When showing photos and pictures, make sure the people in them represent those in the community.16 E : Know the specific audience. Which exact language and messaging to use depends on the political, racial, and ethnic makeup of the community – for precise language for different communities, see the de Beaumont Foundation’s Language of COVID-19 Vaccine Acceptance,43 which is broken down by race54 and by political party.55 Insights on precise language to use can also be found in KFF’s “Wait and See” Survey Analysis by race (Table 5) and by political affiliation (Table 2).23 Make the reference group as specific as possible when inviting people to join the larger group in getting the vaccine (e.g., “Join your fellow members of City Church Philadelphia in getting the vaccine…”).16 However, avoid using a city (e.g., “Join other Philadelphians in getting the vaccine…”) as a reference group, as many feel negatively towards their city and their city’s responses to COVID-19.16 Use local facts and figures when marketing the vaccine, as these are perceived as more relevant and impactful.40 For precise language for different communities see the de Beaumont Foundation’s Language of Covid-19 Vaccine Acceptance. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 17
When discussing the vaccine development, focus on how rigorous the trials were under the FDA’s scrutiny. F : Focus on vaccine safety. When discussing the vaccine development, avoid discussing the speed at which the vaccines were developed as this makes people nervous,16 and instead focus on how rigorous the trials were under the FDA’s scrutiny.43 If people ask about the speed, discuss how the safety measures that are always in place for vaccines were still in place for the COVID-19 vaccine. Explain that the vaccine was able to be developed so quickly because the vaccine production steps, which are usually done in a staggered, sequential way, were done simultaneously at huge expense. Repeat the word “every:” “every study, every phase, and every trial was reviewed by the FDA…”43 Although the main focus should be on the benefits of the getting vaccinated (i.e., keeping your loved ones safe), if discussing the harms of not getting vaccinated, emphasize the high rates of the lingering, long-term complications from COVID-19 – brain fog, difficulty breathing, extreme fatigue, and depression.38 Do not try to downplay the side effects of the vaccine, as people are scared about potential long-term, currently unknown side effects.16, 43 When addressing the immediate side effects, emphasize the limited nature of the immediate side effects.16, 43 When addressing the potential long-term side effects, emphasize how long-term side effects in vaccines across the board are generally seen within the first six months,16, 43 and that researchers have already been monitoring those in the vaccine trials for almost a year. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 18
G : Use certain words while avoiding others.43, 41, 56, 16, 40 USE AVOID America’s leading medical experts America’s leading health experts Research Discover/create/invent/study Medical researchers Drug companies Damage from lockdowns Inability to travel easily and safely A transparent, rigorous process The money spent on the trials Safety Security Pharmaceutical companies Drug companies Your family Your community or country A return to normal Predictability The benefits from taking it The consequences from not taking it Globally Internationally/around the world Advanced/ground-breaking Historic Vaccination Injection/inoculation/shot Taking the vaccine will help keep you and your family safe (except Taking the vaccine is the right thing to do (except for for the Latinx community, where these are reversed) the Latinx community, where these are reversed) America’s leading experts The world’s leading experts Skeptical/concerned about the vaccine Misled/confused about the vaccine The benefits of taking it The consequences of not taking it Low vaccine confidence Vaccine hesitancy The vaccine is effective in 95% of cases The vaccine is ineffective in 5% of cases If you don’t get the vaccine, you fail to take advantage of a If you get a vaccine, you reduce your risk of getting 95% chance of preventing COVID-19 COVID-19 by 95% Taking the vaccine will protect your loved ones Taking the vaccine will protect you Call the Vaccination Information Line to book an appointment (a Get the COVID-19 vaccine (too vague) specific action) 3 million people have been vaccinated in the US from 3 thousand people in your ZIP code have been vaccinated (local) COVID-19 (not local enough) 3 in 4 say they will get the vaccine (emphasize the prosocial 1 in 4 say they won’t get the vaccine (best not to behavior) mention the antisocial behavior) A vaccine authorized by FDA based on clinical testing Operation Warp Speed; Emergency Use Authorization Public Health Government Medical experts and doctors Scientists “I can see that you need your COVID-19 vaccine today/You are due “What do you think about getting the COVID-19 for your second COVID-19 vaccine” vaccine today?” Find more evidence-based guidance on what communications work best from the Poverty Action Lab57 and U.S. Digital Response.58 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 19
To impact people’s behavior, messaging must be ongoing. Messages repeated over time are received as more credible. Step 8: Communicate Through Multiple Touchpoints Consistently A : Connect with community members through multiple touchpoints consistently over time.42, 27 To impact people’s behavior, messaging must be ongoing.27 Messages repeated over time are received as more credible.16 The messaging should come from multiple trusted messengers, across multiple relevant media.27 The messaging should also be updated to the current concerns of the community, rather than static. B : Promote factual information continuously to counter specific viral misinformation. Misinformation is one of the largest contributors to low vaccine confidence.59 , 60, 61 The misinformation spread both intentionally and unintentionally is exacerbated by both the novelty of COVID-19 and the public’s widespread reliance on social media for information.62, 63 Following Steps 1-7 is one important way to counter misinformation.27, 64, 56 Make sure to tailor messaging to directly counter the specific pieces of misinformation circulating in the community.27 This requires staying in touch with the community’s concerns, including through close monitoring of social media to stay on top of misinformation circulating in the community.64, 40 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 20
Consider “prebunking” misinformation by proactively warning people that they may be misled, and providing the factual information that is counter to the misleading information they may hear.40 However, be very careful when discussing misinformation, as discussing misinformation, even in the context of actively dispelling it, may backfire and cause people to believe the misinformation.56 Therefore, try to focus mostly on the facts, rather than discussing the myths. Make these facts simple, few in number, and visual.56 If choosing to address myths, each myth must be proceeded by both the factual information and explicit warnings about the myth, and each myth must be followed by an explanation of why the myth is false, and a reiteration of the factual information.56, 40 For an easy-to-use visual guide to this process, see pages 14-18 the COVID-19 Vaccine Communication Handbook.40 C : Promote trustworthy sources. Trustworthy sources include those that share or report on the evidence put forth by public health experts. Encourage these sources to be active on social media, and make sure health care leaders, other employees within health care organizations, and trusted community messengers are promoting their content (e.g., “retweeting” or “sharing”).65 The COVID-19 Vaccine Communication Handbook offers an easy-to-use visual guide to address misinformation. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 21
PART III: INCREASING ACCESSIBILITY Step 9: Make Signups as Accessible as Possible A : Coordinate with the community to centralize vaccine appointment signups.66 People are understandably very confused about where they can get a vaccine, as each vaccine distributor has its own sign up. Centralizing a signup takes away the frustration of going from provider to provider to try to find where vaccines are available. Coordinate with government officials and technology vendors to ensure interoperability between systems where possible. This clarity saves both the patient from shopping around for an appointment and the organization from fielding as many questions about vaccine availability. B : Utilize multiple mediums for signing up. It may be the case that many people in the community do not have access to, or comfort with, the Internet. Make sure there are multiple ways individuals in the community can both (a) learn about when and where they can access the vaccine, and (b) sign up for a vaccine appointment. Create telephone hotlines, in-person information booths, text messaging hotlines, door-to-door canvasing campaigns, etc.67 C : Be proactive in addressing barriers. Barriers to signing up that may appear insignificant on the surface may in fact feel insurmountable to many in the community. Target high-need communities by ZIP code and address the signup barriers that are unique to that location. Proactively call, text, and visit those who are eligible to sign up for a vaccine appointment in order to sign them up. Send teams of people into the community with tablets to sign up individuals.67 Send those with vaccine appointments email, text message,68 and/ or phone call reminders, depending on how people are best reached in the community.56 Consider forming a working partnership with community partners with boots on the ground to make this happen. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 22
Do not overpromise – you do not want to tell someone they have a vaccine available and then have to turn them away. D : Consider notifying patients that they have an appointment to take the vaccine, rather than just telling them that they can sign up, but only after vaccine supply is more predictable. Telling a patient that they have an appointment that they can cancel or re-schedule rather than just telling them that they can sign up for an appointment can improve overall vaccination rates.69, 68 However, do not overpromise to avoid having to tell someone they have a vaccine available and then turn them away. E : Consider carefully providing financial incentives for getting vaccinated. Incentives such as gift cards or cash compensation have been shown to increase uptake rates, including a study at Swarthmore College where a $30 incentive doubled flu vaccination rates from 9% to 19%.70, 69 However, it is critical to get feedback on this method before implementing it. Many people in diverse communities may feel as if they are being treated as guinea pigs16 based on historical events.8, 9, 10, 11, 12, 13 Offering incentives or fast tracking a particular group may only exacerbate this sentiment,14 so tread carefully. In a particular community, it may be the case that financial incentives are trusted when they come from employers, but not from the health care system. One method that has worked is employers giving their employees paid time (e.g., two hours of pay), stipends, and free transportation to go and get vaccinated.71 Consider implementing these types of programs among health care employees, and work with local businesses to implement such programs for their employees.69 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 23
Step 10: Distribute the Vaccines in Local Places A : Distribute the vaccines in places that are safe, familiar, and convenient to those in diverse communities.15, 27 Partner with community-trusted organizations to set up distribution sites in safe, familiar, and convenient locations.15 These places could include local pharmacies,72 community centers, places of worship, schools, parks, COVID-19 testing centers, etc.13 COVID-19 testing centers in particular are often well-suited for this purpose because they already have the general infrastructure in place including check-in staff, adequate space and tents, etc. For those with access to their health care provider, their health care provider is often their most trusted distributor of the vaccine.43 However, due to the widespread mistrust of the health care system, especially amongst communities of color, first verify whether this is true in each community. B : Those giving the vaccine should be representative of the community.73 To the extent possible, have those giving the vaccines be representative of the community in terms of race, immigration status, religion, sexual identity, socioeconomic background, and disability.73 Past studies have shown that Black men were significantly more likely to agree to preventive lab work, screenings, and the flu shot when seen by a Black physician.50 Not only will this make those getting the vaccine more confident in getting the vaccine, but they will be more likely to share their experience about getting vaccinated from someone they can relate to with their friends and family. C : Bundle the vaccines with other services community members are already accessing.15, 27 If logistically feasible, try to deliver vaccines to people in their homes when community health nurses visit to deliver other preventative health services.74 But even outside the home, make vaccines available in locations that people are already going to in order to receive other services such as food assistance.15 Not only will this increase uptake, but it can reassure community members that health care organizations are thinking about their overall wellbeing, not just getting them vaccinated.15 HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 24
Many people in the community will want the vaccine, either now or in the future, but will face barriers in accessing it. D : Bridge the specific barriers to access faced by the community. Many people in the community will want the vaccine, either now or in the future, but will face barriers in accessing it. These barriers can include lack of information about when and where to access the vaccine, lack of transportation to and from the vaccine, lack of Internet access to sign up for the vaccine, lack of childcare, lack of time off, or something else. If transportation and childcare are significant barriers to members of community accessing the vaccine, consider setting up transportation or childcare services or partnerships with organizations who can provide these services. You may even want to set up mobile vaccination vans to bring the vaccine directly to someone’s block or workplace.75, 76 Door-to-door outreach for vaccination signup67 and administration is also a model that has been successful for populations with limited transportation and technology access, often with help from a local organization that has expertise and resources in such door-to-door outreach. E : Consider restricting access to certain vaccine distribution sites by ZIP code. Even when vaccine distribution centers are set up locally in minority communities, those living within the community are still often being left behind because those who are more tech-savvy and have more resources are shopping for early vaccine appointments online and driving in to get vaccinated, leaving the local community around the distribution site still unvaccinated.35 If this is a problem in a particular community, consider limiting vaccinations at particular sites to those who are from specific ZIP codes, and request that individuals bring a piece of mail with the relevant ZIP code. HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 25
TOP RESOURCES Tracking and Background Information 1. KFF’s COVID-19 Vaccine Monitor Dashboard (ongoing tracking and analysis of public’s attitudes and experiences with COVID-19 vaccinations) 2. KFF’s “What Do We Know About Those Who Want to “Wait and See” Before Getting a COVID-19 Vaccine?” (detailed analysis of survey of people who expressed low confidence in the vaccine) Communication Guides 3. Ad Council’s COVID-19 Vaccine Education Toolkit (videos, FAQs, and social media copy for health care professionals) 4. de Beaumont’s Language that Works to Improve Vaccine Acceptance (infographic on language to use and presentation on findings on hesitancy and messaging for different racial, ethnic, age, and political affiliations) 5. SciBeh’s COVID-19 Vaccine Communication Handbook: A practical guide for improving vaccine communication and fighting misinformation (detailed research on public health strategies for addressing low vaccine confidence) 6. COVID-19 Vaccine Toolkit For Mayors: Public Engagement and Communications (useful guide for coordinating efforts with local government and for advocating for evidence-based approaches by local government) Select Case Examples 7. Jefferson REAL TALK Campaign (public-facing website with training session links and one-pagers for trusted messengers) 8. UC San Diego Health, San Diego County, and the San Diego Padres Partnership (article about a successful multisector effort to launch a large vaccine site on a very short time frame) HEALTH EVOLUTION | Increasing Vaccine Uptake in Diverse Communities 26
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