Helping caregivers to stay resilient - A journey of love Building resilience in caregiving - Singapore Hospice Council
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DECEMBER 2021 – FEBRUARY 2022 • MCI (P) 062/10/2021
A journey of love
Building resilience
in caregiving
Helping
caregivers
to stay
resilient
PLUS
Key Findings
from Caregiver
Survey
1
THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022
CHIEF EXECUTIVE’S NOTE
Members’ Contacts Contents
Alexandra Hospital
378 Alexandra Road, S(159964)
T: 6472 2000 F: 6379 4339
www.ah.com.sg
AH_Enquiries@nuhs.edu.sg
Assisi Hospice
832 Thomson Road, S(574627)
T: 6832 2650 F: 6253 5312
The Palliative Care Centre
for Excellence in Research
and Education (PalC)
PalC c/o Dover Park Hospice
10 Jalan Tan Tock Seng, S(308436)
T: 6500 7269
www.palc.org.sg
enquiries@palc.org.sg become so enmeshed in your role
“
It’s so important, as a caregiver, not to
www.assisihospice.org.sg Ren Ci Hospital
assisi@assisihospice.org.sg
Buddhist Compassion Relief
71 Irrawaddy Road, S(329562)
T: 6385 0288 F: 6358 0900
www.renci.org.sg
that you lose yourself.”
Tzu Chi Foundation (Singapore) renci@renci.org.sg
DANA REEVE
16
9 Elias Road, S(519937)
T: 6582 9958 F: 6582 9952 Sengkang General Hospital
www.tzuchi.org.sg/en 110 Sengkang East Way, S(544886)
T: 6930 6000
Changi General Hospital www.skh.com.sg
2 Simei Street 3, S(529889)
T: 6788 8833 F: 6788 0933 Singapore Cancer Society ne may ponder: what is the by the palliative care team can provide the
www.cgh.com.sg
Dover Park Hospice
10 Jalan Tan Tock Seng, S(308436)
15 Enggor Street, #04-01,
Realty Centre, S(079716)
T: 1800 727 3333
www.singaporecancersociety.org.sg
2 Members’ Contacts
O job description of a dedicated
caregiver? Ironically, this
position does not have a
synergy as the family transits their loved ones
into the quality end-of-life journey because
the palliative care team will:
T: 6500 7272 F: 6258 9007 hospice@singaporecancersociety.org.sg 3 Chief Executive’s Note defined role and responsibilities as you will
www.doverpark.org.sg
info@doverpark.org.sg Singapore General Hospital need to wear multiple hats, from being a
HCA Hospice Care
Department of Internal Medicine,
The Academia, Level 4, 4 SHC Caregiver Survey: soulmate, to a nurse, driver, cook or even
the key “someone” who addresses the
1 review the terminally ill
care programme
705 Serangoon Road, Block A #03-01 20 College Road, S(169856) Effectiveness of SHC
@Kwong Wai Shiu Hospital, S(328127) T: 6222 3322 demands and desires of the person who is
T: 6251 2561 F: 6291 1076 www.sgh.com.sg Caregiving Material terminally ill.
www.hca.org.sg sghfeedback@sgh.com.sg
contactus@hcahospicecare.org.sg
SingHealth Community Hospitals
Resources Often, caregiving activities cannot be
planned in advance as the execution
2 listen to your thoughts
Khoo Teck Puat Hospital (Bright Vision Hospital,
90 Yishun Central, S(768828) Outram Community Hospital, 5 A journey of love and expectations remain unpredictable.
T: 6555 8000 F: 6602 3700 Sengkang Community Hospital) Therefore, as a dedicated caregiver you will
www.ktph.com.sg
KK Women’s and
10 Hospital Boulevard, S(168582)
T: 6970 3000
www.singhealth.com.sg/SCH
8 Building resilience need to find the right support to remain
positive at all times.
3 map these needs by introducing
the most desirable approach
Children’s Hospital in caregiving Oddly, most caregivers prefer to handle
100 Bukit Timah Road, S(229899) St. Andrew’s Community Hospital
T: 6225 5554 F: 6293 7933 8 Simei Street 3, S(529895) all care activities single-handedly and
10 Nurturing the spirit
www.kkh.com.sg
Lien Centre for Palliative Care
T: 6586 1000
www.sach.org.sg
general@sach.org.sg
extend relentless care for their loved ones,
hence neglecting their own well-being. 4 identify the mitigating measures to the
challenges, strike a balance to allow
you and your loved ones to feel better
Duke-NUS 12 Grief and Bereavement This often results in one feeling weary and
Medical School Singapore St Joseph’s Home burnt out or even lamenting “if only I could
8 College Road 36 Jurong West St 24, S(648141) Conference 2021
Level 4, S(169857) T: 6268 0482 F: 6268 4787 have done more”.
5
T: 6601 2034 / 6601 7424 [Education] www.stjh.org.sg Most will avoid thinking that the whole recommend appropriate respite care
T: 6601 5113 [Research] general@stjh.org.sg 14 Caregiving in a time period was gruelling, especially over the options for you and your family
www.duke-nus.edu.sg/lcpc
St Luke’s Hospital of COVID-19 long haul. However, it is necessary to pay
Metta Hospice Care 2 Bukit Batok Street 11, S(659674) attention to your own mental, physical
32 Simei Street 1, T: 6563 2281 F: 6561 8205
Metta Building, S(529950) www.slh.org.sg 16 The resilient love and spiritual needs, and discuss with the Remember, you are not alone.
T: 6580 4695 F: 6787 7542 referral@stluke.org.sg multidisciplinary palliative care team who The support group is always there to provide
www.metta.org.sg
hhospice@metta.org.sg Tan Tock Seng Hospital will take your needs into consideration, spiritual and emotional support or even the
11 Jalan Tan Tock Seng, S(308433)
18 Trusting each other to care and provide a pillar of support that you training intervention to allow you to better
MWS Home Care & Home Hospice T: 6256 6011
need to care for the patient. function as a caregiver.
2 Kallang Avenue, www.ttsh.com.sg
CT Hub #08-14, S(339407) 20 Come what may These are key and essential steps that To the palliative care team, your well-being
T: 6435 0270 F: 6435 0274 Tsao Foundation can lessen the load as this dedicated matters as much as the patients’.
www.mws.sg/centre-location/ 298 Tiong Bahru Road
mws-home-care-home-hospice/ Central Plaza, #15-01/06, S(168730) 21 Leaving no one behind integrated team can then look into
MWShh@mws.sg T: 6593 9500 F: 6593 9505 overall needs and introduce appropriate
www.tsaofoundation.org
National Cancer info@tsaofoundation.org intervention and support for you to Ms Evelyn Leong
Centre Singapore
24 SHC Resources maintain you and your loved ones’ well- Chief Executive
11 Hospital Crescent, S(169610) Woodlands Health Campus for caregivers / being. The holistic care approach offered Singapore Hospice Council
T: 6436 8000 F: 6225 6283 9 Maxwell Road,
www.nccs.com.sg MND Complex Annex A, Upcoming events
#03-01A, S(069112)
Ng Teng Fong General Hospital T: 6681 5999
1 Jurong East Street 21, S(609606) www.whc.sg
T: 6716 2000 F: 6716 5500
www.ntfgh.com.sg
enquiries@juronghealth.com.sg
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SHC CAREGIVER FOCUS GROUP COMPLETE
THE LAST
HOME
MILECARE
Effectiveness of
Singapore Hospice Council (SHC)
Caregiving Material Resources:
Key Findings
PERIOD OBJECTIVES
Jan - Mar 2021 • To understand the types of SHC caregiving materials that
are currently available and accessed by caregivers
• To evaluate the usefulness and relevance of SHC
caregiving materials
SURVEY TOOL • To identify gaps and unmet needs of caregivers
• To gather perspectives on
Discussion,
the best platform and
phone interviews, medium of engagement
online for caregivers
Caricature of the
late Madam Chin
Tin Tew drawn by
Ryan Choy He
Rong during SACH
Palliative Care Ward
KEY FINDINGS Grandparents’ and
Parents’ Day 2019
• Caregivers wish their general awareness and education
of what it takes to be a caregiver begin earlier than at
the point of diagnosis or onset of illness
• SHC materials have been found to be useful A journey I
was first introduced to
palliative care when
St. Andrew’s Community
• More can be done to make SHC resources
of love
Hospital (SACH) set up its
PARTICIPANTS available and easily accessible to support their
Palliative Care Ward in 2015. Then, I
would avoid the ward as facing death
46 caregiving journey e.g.
website to be organised along
caregiving journey
The special bond with her
mother-in-law enabled a
denotes sorrow. Palliative care addresses
the needs of patients with life-limiting
illnesses. The SACH Multidisciplinary
Palliative Care Team comprising doctors,
nurses, therapists, pharmacists, medical
various media formats to be used: daughter-in-law to walk the last social workers and pastoral care workers,
podcasts, mobile applications, stretch with her without regrets. journeys with patients and their families
throughout their stay, and aims to
chatbot, tutorial videos maintain the best possible quality of life
bite-sized and practical information for patients and support their loved ones
by encouraging them to live life to the
fullest, to “Celebrate Life” and “Cherish
Moments” together.
For the latest updates on SHC’s caregiver resources, visit https://singaporehospice.org.sg
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COMPLETE
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Below: Mei Mei
and her family
With professional
advice, guidance and
support from the
SACH Palliative Care
Team, Mei Mei’s family
encouraged Madam
Mei Mei has been
supporting the work
of SACH Palliative
Chin to live her life to
Care Ward with festive
cookies and mooncakes
from her aunt’s bakery,
Garden Pastry and
the fullest.
Cake Pte Ltd!
Over the years, through interactions assistance with showering and drainage I was very touched that she treated me like
with patients and their loved ones, of her urinary catheter every few hours her own daughter. Mama often told me that
palliative care now denotes a journey of throughout the day. At that time, my I should just let her go as she felt that it was
love. One such heartwarming journey was children were nine, 17 and 18 years old. tiring for me to take care of her.”
that of See Mei Mei and her late mother- I had quit my part-time job to take care Justin Tan, Associate Chaplain of the
in-law, Madam Chin Tin Tew, whom she of Mama. Every day, I would cook for her Palliative Ward shared, “Mei Mei is a
affectionately addressed as “Mama”. and shower her. When I stayed overnight superstar daughter-in-law. I had witnessed
Smiling sweetly at the memory, with Mama to take care of her and do heart-wrenching moments of the late
COMMUNITY HOSPITAL PHOTOS ST. ANDREW’S COMMUNITY HOSPITAL/UNSPLASH,
48-year-old Mei Mei shared, “I got to hourly drainage of her urinary catheter, Madam Chin and her hugging in tears when
know my husband through my mother- my husband took care of our youngest Madam Chin was in pain. She is one of the
in-law at the age of 18. When I got kid. Eight months later, Mama’s condition few daughters-in-law I know who loves
married at the age of 25, my mother worsened and she was admitted to Changi WORDS PEH LAY KOON, CORPORATE COMMUNICATIONS, ST. ANDREW’S and treats her mother-in-law like her own
advised me to love my mother-in-law as General Hospital (CGH). In view of Mama’s mother. Mei Mei cared for Madam Chin
my own. Having lost my own father at need for professional medical care, doctors tirelessly day and night in the hospital and
the age of 30 years old, I also treated my from CGH advised us to admit her to often brought home-cooked meals for her.
father-in-law as my own father.” SACH Palliative Care Ward. At that time, I Mei Mei’s Advice Madam Chin told me that Mei Mei is the
Relishing the memories, Mei Mei struggled with the decision. I loved Mama FOR CAREGIVERS dream daughter every mother-in-law would
GARDEN PASTRY AND CAKE PTE LTD, SEE MEI MEI
recalled, “Mama and Papa were very cute very much and wanted to bring her home love and even advised me to find a wife with
and loved us very much. When Mama so that I could take care of her. After 1. Do our best in caring for our loved ones, especially our her attributes!”
and Papa were in good health, we enjoyed speaking with the care team, I relented as parents. We are where we are because of them. With professional advice, guidance and
going to the beach every weekend as a admitting her to SACH Palliative Care Ward 2. Forgive and forget. support from the SACH Palliative Care Team,
family. I loved learning to cook traditional was the best care plan for her.” Mei Mei’s family encouraged Madam Chin
3. Set aside time for yourself.
dishes such as yam abacus seeds from With her voice cracking, Mei Mei said, to live her life to the fullest. “Mama loved
4. Seek professional help. Palliative care teams provide good
them. It was a joy cooking for our family “It pained my heart when Mama suffered. festivities and the many that the care team
support and advice for patients and caregivers. Besides
as they would eat everything I cook.” We would often end up hugging each other organised had brought Mama and my family
In a softened tone, Mei Mei expressed, and tearing together. Mama was a very
caring for patients, the care team helps family members much joy,” said Mei Mei. “She even had a
“In 2018, Mama was diagnosed with strong and independent lady who did not cope with distressing moments and prepares the family for caricature drawn of her at SACH. I treasured
cancer. She was 74 years old. The like to trouble others for assistance. I felt the loss of their loved ones. every moment with Mama. I was with
sudden news shocked us and broke gratified when she allowed me to attend to Mama when she took her last breath. My
our hearts. She became weaker, needed her personal hygiene and toileting needs. love for her remains etched in my heart.”
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GROWING
COMPLETE
THROUGH
HOMECAREGIVING
CARE
Left: Be open to the Practise deep breathing exercises
support from your
family and friends; Regular breathing exercises have a calming
Opposite (top-bottom): effect, release tension and aid relaxation.
Yoga and meditation
can relieve stress and One simple breathing exercise is to breathe
ease anxiety; eat well to in slowly through the nose for five seconds,
maintain good health
holding it for a further five seconds before
exhaling through the mouth for two to three
overwhelming over time. Research times as long. There are many other exercises
studies have shown that self-care such as yoga and meditation that are useful
and the ability to garner positive in relieving stress and eases anxiety.
experiences from caregiving are
important in helping caregivers Join a support group
remain mentally healthy and Knowing that you are not alone
resilient. This form of resilience on your caregiving journey can
enables them to not only adapt to be immensely comforting. In addition to
challenging situations, but to grow providing encouragement and validation,
from it. one can also draw on the experience of
Here are some tips to build your others for problem-solving strategies.
resilience to prevent the buildup of Moreover, with Whatsapp and Telegram,
stress and burnout. support is a mere chat away, without the
necessity of leaving home.
Prioritise your health
I have seen a caregiver losing weight Manage your expectations
as she diligently cared for her Be kind to yourself; there is no ‘perfect’
Building
husband due to his cancer relapse. caregiver. Learn to appreciate your own
It is easy to overlook the basic needs efforts. Focus on what you are able to
of eating well and getting sufficient provide, and start with small steps in
sleep. A lack of these can lead to establishing a daily routine. If you enjoy
resilience fatigue and compromise your own
immunity. It is therefore crucial to
take care of yourself before you can
writing, start a Gratitude Journal both as
a way to express your emotions and
self-affirm your efforts and the
as psychological, emotional, social
and spiritual support. CGH also
in caregiving
care for others. small achievements of the day. has a community palliative care
collaboration with St. Andrew’s
Schedule regular breaks The hospital palliative Community Hospital, known as
Call it a time-out, a respite or simply and home hospice teams the Violet Programme (VIP), which
PHOTOS ANDREA PIACQUADIO (PEXELS)/JARED RICE (UNSPLASH)/ POLINA TANKILEVITCH (PEXELS)
take some moments to sip a cup can be indispensable in provides end-of-life care for non-
Caregivers play an immensely vital role of tea, listen to music, or catch up providing the information cancer patients residing in the eastern
WORDS CHARMAINE TAY, SENIOR MEDICAL SOCIAL WORKER, CHANGI GENERAL HOSPITAL
on your favourite K-drama. These needed to facilitate part of Singapore.
in the lives of their loved ones. Self-care
regular breaks where you set aside understanding, as well In caring for patients and
is important to build physical and time for yourself are necessary to as allay concerns and caregivers, the medical social workers
help you rest and recharge. You may fears of patients and at CGH help in care planning and
mental stamina for the long haul.
also wish to find time to pursue your their caregivers. CGH’s navigating through healthcare and
own interests or hobbies. Exercising Palliative Care Service social services, government grants and
is also a good way to release stress supports patients with applications. We guide you in practical
and enhance your well-being. debilitating conditions or matters from Advanced Care Planning
terminal diagnoses through and Lasting Power of Attorney, to
or most, the act of looking after their loved ones. And Seek and accept help our medical care, and pain discussions on last rites. We also
F caregiving in itself is
rewarding and one
that is a testament to
there is a tendency for many to
inadvertently neglect their own
well-being in doing so. Whenever
Be open to the support from your
family and friends, and ask them
for help when you need it. It is also
management treatments, as well provide emotional and familial
support, as well as connect you to
the relevant agencies for assistance.
the strong bonds that underlie the I ask the caregivers how they useful to suggest specific things Caregivers can also reach out to social
relationship. As a Medical Social are coping, or how they have for them to do, such as getting the service agencies such as Singapore
Worker at Changi General Hospital
(CGH), I have been privileged to meet
been caring for themselves, the
response I get is often a shrug and
groceries, preparing a meal, or
even getting them to look after the
If one does not take care of one’s Cancer Society, Dementia Singapore,
and Caregiver Alliance Limited, which
caregivers from different walks of resigned smile. patient for a short period while
life, who have demonstrated how Indeed the physical and you get some rest or run errands. health and fortify one’s well-being, can render services catered to a
variety of needs and patient profiles.
caring for a loved one can be a emotional demands of the A caregiver once shared with me Instead of shouldering the entire
deeply fulfilling experience.
Yet one thing appears fairly
caregiving role can be exhausting.
If one does not take care of one’s
how grateful she was when her
neighbours offered to bring meals
the challenges can easily become scope of responsibilities, don’t be
afraid to reach out. A little help can
consistent: caregivers take on health and fortify one’s well- for her children and accompany go a long way in empowering your
the majority of responsibilities in being, the challenges can become them to school. overwhelming over time. caregiving experience.
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KEEPING SPIRITS UP
“
By journeying with caregivers through both happy and
painful times, I hope they will eventually find answers
and peace, before their loved ones pass on.”
From opposite page: HCA
Spiritual Counsellor Irene
Lee (left) shares a trusting
relationship with Juliana;
As her mother’s primary
caregiver, Juliana dutifully
attends to all of her needs
on a daily basis.
Caregivers often struggle with anticipatory
grief, compounded by the mental and physical
toll of caring for their loved ones. Existential
questions also often arise: “Why does this have
to happen to my loved one? Where will they go
after they die?”
There are no clear answers to these difficult
questions, but Irene believes that caregivers
eventually arrive at their own conclusions. “Life
is a mystery and I don’t have the answers to
everything,” Irene said. “But by journeying with
caregivers through both happy and painful
times, I hope they will eventually find answers
and peace, before their loved ones pass on.”
Irene often works hand-in-hand with HCA’s
Nurturing the spirit
Over the course of the next few sessions, doctors, nurses, medical social workers and art
Juliana started to find peace within herself, therapists. Patients and caregivers are usually
which enabled her to cope better with referred to her by the nurse, doctor or medical
her daily challenges. Apart from spiritual social worker in charge, according to the needs
support, Irene also gently guided Juliana of the case.
Spiritual counselling plays a key role in building the through the conundrums she faced. When Irene recounted an elderly lady who
resilience of caregivers, as they grapple with the physical Juliana fretted over her brother who was envisioned going to a beautiful landscape of
living overseas and unable to see and expansive grasslands and blue skies after her
and emotional toll of caring for their loved ones. spend time with their mother, Irene guided passing. The patient also spoke about how
her in finding a workaround. Eventually, peace, love and joy were important to her. With
Juliana worked out that she could tap on the help of HCA Senior Art Therapist Gracia Lim,
or caregiver Juliana, life had BUILDING BRIDGES technology and connect her brother with they worked on a painting of nature, with the
F
been an endless cycle of On Irene’s first visit, Juliana was reticent, as their mother through video calls. words “peace”, “love” and “joy” written on it.
responsibilities — caring for she had no prior experiences with spiritual “Initially, Juliana was very anxious and “Her daughter framed the painting and
her ailing mother and elderly counsellors. Sensing her hesitation, Irene stressed from caregiving. Now, she is placed it on the wall opposite her mother’s bed,”
WORDS & PHOTOS HCA HOSPICE CARE
father; attending to her children’s needs patiently devoted time to getting to know relaxed and expressive about her journey Irene said. “It made the patient smile, whenever
and managing the demands of work. Juliana better. Through Irene’s various in looking after her mother,” Irene said. she looked at it.”
Physically and emotionally worn out, guiding questions and gentle prompts, Juliana The process of creating the artpiece helped
Juliana was finding it increasingly difficult eventually opened up about the worries that BEYOND RELIGION the elderly lady arrive at her own after-death
to keep up with the daily grind of life. At had been weighing heavily on her mind. Most people have a common misperception conclusion and also brought comfort to
her wits’ end, she voiced her concerns to “I viewed the first session with Irene, that spiritual care is necessarily rooted her daughter.
her mother’s primary care nurse at as an epiphany with a higher power,” in religion. “Spiritual care is more about Irene’s role as a guiding pillar of support
HCA Hospice Care (HCA), who quickly Juliana shared. “I eventually recognised the bringing hope to patients and caregivers, helps caregivers find that element of
arranged for HCA Spiritual Counsellor importance of leaving all my worries and and helping them realise there is love and peace, steadying them as they navigate the
Irene Lee to pay her a visit. concerns in life to my faith.” peace,” Irene shared. uncertainties of illness and dying.
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COMPLETE
SHC GBC
HOME
2021CARE
Grief and Bereavement Photo moment with the Guest-of-Honour.
From left to right: (1st row) Guest-of-
Honour Director of Aged Care Services,
Ageing Planning Office, Ministry of Health
Conference 2021
Mr Titus Lee; SHC Chairperson Dr Patricia
Neo; SHC Chief Executive Ms Evelyn
Leong; (2nd row) Chairperson of the GBC
Organising Committee Ms Chee Wai Yee;
GBC Organising Committee Member
Associate Professor Lee Geok Ling; GBC
Organising Committee Member Ms Candice
“Tapestries of Grief” weaves a compassionate network of Tan; (3rd row) GBC Organising Committee
Member Dr Gilbert Fan.
support for the grieved and bereaved.
rom 20 to 24 September, saw the need to improve grief literacy
F the first virtual Grief and
Bereavement Conference 2021
organised by the Singapore
among their staff and to better support
their clients on the bereavement journey.
Indeed, as SHC Chairperson Dr Patricia
Hospice Council (SHC) saw over 250 Neo mentioned in her closing remarks:
participants coming together to share, “As services and bereavement practices
Day 1: Keynote address by
learn and explore the building of more continue to evolve, there is much Professor Margaret Stroebe,
compassionate communities and informed opportunity for all of us to be constantly Utrecht University, University of
Groningen, The Netherlands
practices to support the bereaved. appraised of the landscape changes and
Participants included health and social harness opportunities of learning from one
care practitioners, academics, faith leaders, another to ensure good bereavement care
educators, counsellors, therapists, service across the continuum.”
providers of death-related services and
many more.
Themed “Tapestries of Grief”, the
conference represented the unique
and universal nature of individual and Pledge
collective grief. The main conference
offered three workshop tracks on As our collective expressions
Healthcare, Practice, and Community, weave a tapestry of grief
with a total of seven overseas and 18 We honour individual experiences
local speakers, as well as 14 abstract oral as authentic and unique Day 3: Keynote address by
presenters providing insightful sharing Yet there are common elements, intertwined Associate Professor Lauren J
Breen, Curtin University, Australia
and discussion. There were also two like shadows of grey and glimmers of light
pre-conference workshops “Grief and Bonding us as one humanity.
Bereavement 101” and “Masterclass” to
better equip professionals of various We embrace all colour threads of stories
expertise with the tools they need. on love and life
Leading to the conference was With presence, without judgement
the Tapestries of Grief community We are committed to build a safe sanctuary
engagement project organised by Grief To cradle the sacred narratives
Matters, which featured virtual talks, that each of us embodies.
WORDS & PHOTOS SINGAPORE HOSPICE COUNCIL
experiential workshops, and a community
art exhibition to improve grief literacy The common yarn of loss and longing binds
in the community. Using quotes from us as we knit our hearts as one
the bereaved and helping professionals Stitching together cherished memories;
who participated in the community art celebrating life, with courage
project, a pledge was co-created by SHC and compassion
and Grief Matters for individuals to show We pledge to always remain
their support in making Singapore a more open and inclusive
bereaved-friendly community. To shape and be shaped by the
In the post-conference evaluation, bereavement journey.
when asked how they would apply what All smiles with workshop leader Professor
Robert Neimeyer, Portland Institute for Loss
they have learnt to the workplace, it was and Transition, USA and participants of the
heartening that multiple participants pre-conference Masterclass workshop.
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COMMUNITY OF SUPPORT
Right: DPHCares
bulletin board;
Opposite page:
A Dover Park
Hospice caregiver
and her late mother
Caregiving Dover Park Hospice
in a time of Perspective
Head of Social Work and Psychosocial Services Martha Ng
COVID-19
shared, “The caregiving journey is one that is shrouded with
various challenges and can be very demanding and stressful.
Many caregivers often face issues relating to the lack of
self-care as they adjust to the demands of caregiving. These
Dover Park Hospice Medical Social stressors unfortunately have been exacerbated by the current
pandemic — caregivers are more socially isolated and are
Worker Michelle Lau and Music
faced with more uncertainties and fears. As such, it is even
Therapist Camellia Soon talk about more pertinent to provide more support for the caregivers to
the Hospice’s new initiative DPHCares, Everyday Stress empower them in providing care for their loved ones.”
which aims to support caregivers Busters
FOR THE BUSY CAREGIVER
virtually during the pandemic with
No time to exercise? facilitate caregivers in expressing their emotions,
stress-relieving tips.
Try standing up whenever you can, even while watching discover a sense of belonging on their caregiving
TV or folding laundry. Use common household items journey and enhance their coping methods
in caregiving.
as weights. You can swing a water bottle or carry a
What are the stressors to caregivers brought
backpack of books.
about by COVID-19? How does it benefit the caregivers?
The current COVID-19 pandemic has brought Take a break or rejuvenate with DPHCares utilises the messaging platform
additional layers of stressors in terms of social your favourite food Telegram to empower caregivers with caregiving
isolation and complexity in navigating resources and self-care tips on a weekly basis. A DPHCares
Set aside time to indulge in your favourite
for caregivers of terminally ill patients. On top of bulletin board with psycho-educational
food or drink, or add some spices or
their overwhelming caregiving duties, caregivers materials is placed in the Hospice’s visitor
seasoning to your food for extra flavour!
find the COVID-19 restrictions challenging as they
could not gather in support groups like they used Food can nourish your mind and body, while providing
waiting area for caregivers to read when they
are waiting to enter the wards to visit their loved Caregivers also face issues
to in the past and this contributes to a sense of you with the energy needed for the next thing you do. ones. It also serves as a two-way communication
loneliness on their caregiving journey.
Often, caregivers also face issues such as
Be in touch with your senses
channel for caregivers who may not be
technologically savvy to share their thoughts
such as dedicating personal
Observe things around you such as clouds, plants, a
dedicating personal time to take care of their
own well-being as they adjust to the demands of picture, or even other people. Notice the scents and
smells around you — the aroma of coffee, the scent of
on Post-it notes on the board. Caregivers of our
patients will also receive a personalised comfort time to take care of their own
caregiving. This contributes to a more sedentary care kit from their social worker. The kit includes
lifestyle, lack of self-care and having insufficient
rest. Caregivers are also more socially isolated
your food, and the fragrance of fresh flowers. donation in-kind essential items such as eye
masks, sanitisers and other self-care items,
well-being as they adjust to
due to the inability to go out and socialise as
Relax with music which serves as a reminder for caregivers to
a result of looking after their loved ones. This
further worsens their mental well-being which
Listening to calming music can help to reduce stress
levels, while listening to upbeat tunes can lift your mood
take care and have time for themselves. the demands of caregiving.
could lead to caregiver burnout. while you do your chores. What music suits you today?
WORDS & PHOTOS DOVER PARK HOSPICE
What is DPHCares? Reflect while on the go
Started in June 2021, DPHCares is a caregiver When taking a break, consider reading some articles Reflection from a caregiver
support initiative by the Dover Park Hospice and subsequently, taking a moment to pause and reflect
Social Work and Psychosocial Services team “There are times when we don’t feel okay too. The fear, despair and feeling of hopelessness because you think that you
between your errands.
that aims to provide caregivers of end-of-life are not doing enough or well enough for your loved one. And that is when it is most crucial to realise that your loved one
patients a safe and therapeutic space to share Connect with a friend for five minutes is not alone, because you are there to help; and you are not alone, because there are other caregivers who are in this with
their experiences, challenges and inspiration Catch up with an old friend, join an online support you. This thought afforded me much relief and confidence, even in the darkest of times — and I pray that it gives
stories on their caregiving journey. It comprises or religious group, or simply have a casual chat with you comfort in knowing that you are not alone. Thank you Dover Park Hospice for helping to make it all better.”
Personalised Comfort Care Kits, DPHCares a neighbour. - Mr Victor, caregiver of a patient with advanced dementia
Telegram Support Group and Caregivers Bulletin
Board. This multi-modality space helps to
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THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022 THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022
COMPLETE
FULLY IN THE
HOME
MOMENT
CARE
My experience over the years meeting some
The resilient love caregivers has shown me how the power of
A senior staff nurse shares encounters of love can manifest in different ways. It keeps one
courageous caregivers who kept on going
even as the going got rough. persevering no matter the circumstances.
have been a senior staff nurse Some of the complaints that the caregivers
I at Singapore Cancer Society
(SCS) Hospice Care Service for
nine amazing years, during
have are lack of sleep, no appetite or just
exhaustion. I would always encourage them
to take turns caring for the patient with
which I’ve seen how wonderful caregivers other family members to ensure that they
are in caring for their loved ones impacted get adequate rest and recuperate. This will
by cancer. A full-time housewife managing prevent burnout for the caregivers.
three schooling kids while caring for her The SCS Hospice Care team facilitates
sick husband; a 16-year-old daughter who online applications through the Agency for
quits school to care for her sick mother; Integrated Care portal. For families who
and a husband who stopped working to face financial concerns and are not able to
care for his wife with multiple cancers for engage a private nurse to relieve caregivers,
many years — the list goes on. they can tap on the SCS Living Well Fund
The caregivers are always grateful that helps needy families in providing end-
whenever I visit them to help manage the of-life care. SCS‘ medical social workers will
pain symptoms of the patients. I disagree identify cases that are eligible for the Living
with some who often say that our work Well Fund, and apply for other financial aids
is not easy. Being a caregiver 24/7 is to assist family members.
significantly more tedious than being a Caregivers who lack family support
nurse who makes short visits lasting a may engage a home personal caregiver
couple of hours at a time. or home-based respite caregivers.
I have wondered many times how This service relieves caregivers
the caregivers manage this and these for anywhere from one hour to
are the few words that come to 10 hours a day.
mind: love, gratitude, respect. Support from the family and
Caregivers often tell me: “My wife peers are even more important for
needs me most now”, “He has been a caregiver. The responsibility that
a good husband to me”, “I would do comes with caring for sick ones
anything for my mother”. may pose limits to a caregiver‘s
Being there for their loved ones is social life. Therefore it is also
PHOTO SINGAPORE CANCER SOCIETY /PIXABAY
what keeps them strong. Seeing their crucial for relatives, friends and
loved ones getting better quality of even colleagues to offer help in
life for as long as possible is what times of need. Even a phone call
WORDS SSN SUHAILA KEMALUDHEEN
gives them courage. The smile on from friends provides an outlet for
the faces of their loved ones give caregivers to relieve their stress.
them the hope to continue despite My experience over the years
the challenges they face. It is meeting some caregivers has
definitely not an easy journey shown me how the power of love
for caregivers, especially can manifest in different ways. It
when some patients keeps one persevering no matter the
are symptomatic and circumstances. That has been the
require the attention motivation for me to continue in this
of their caregivers role. What an unbelievable journey
all the time. it has proven to be!
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FOUNDATION FOR TRUST
Trusting each
other to care “
I have learned that good
communication skills can help
(Photos taken before
COVID-19): Senior
Nurse Theviya with
her palliative care
team colleagues
Taking care of palliative patients can be a
challenge for caregivers, but with the help of a
trusted care team, the experience can be one filled
to make the patients’ journey
with peace and dignity instead of being an ordeal. easier and improves the rapport
between nurses and families.”
PROVIDING FOR THEIR NEEDS
As a palliative nurse, Theviya
provides holistic care for patients
encompassing their psychosocial,
physical, cultural and spiritual
needs. Often, Theviya will work
with caregivers in order to
understand the patients’ needs
so that they can live comfortably
h, my daughters are THE STRUGGLE As dutiful daughters, they them less quality time with and training to allay their during their last days.
“O here!” cried Madam C
(not her real name),
jovially. Sitting on her
Their mother was everything
to them and so were they to
her. Their bond was beyond a
would visit their mother
religiously and would return
home at night to rest. Seeing their
their mother.
Despite the care team’s explanation,
Madam C’s daughters — due to
stress, and help them with
decision-making for her needs,”
said Theviya.
“I have learned that good
communication skills can help to
make the patients’ journey easier
bed, she extended her arms to her mother-daughter relationship — cheerful mother reminded them caregiver stress — refused to accept With each passing day, the and improve the rapport between
SENIOR NURSE, SENGKANG COMMUNITY HOSPITAL
children for an embrace. A long hug she was their best friend whom of the days when she was healthy. the reasons until her third daughter rapport between Madam C’s family nurses and families,” shared
ensued between the four of them they often confided in whenever But little did they know that experienced it herself during one of and the care team became stronger. Theviya. Theviya also advises
WORDS & PHOTOS THEVIYA PARAMA SEWAI,
before they exchanged kisses on they needed a listening ear. Madam C would be confused and the nights she stayed late. Madam C’s family was also able the care team to engage with
each other’s cheeks. When Madam C was admitted agitated at times during the night She struggled to keep her mother to control her agitation and the caregivers in all planning of
It was only yesterday that Madam for palliative care due to breast because of her condition. calm and had to request for sometimes would spend time with patients’ daily activities.
C saw her daughters, yet she has cancer, everything changed. It To help her with the pain, assistance from the nurses. With her the nurses listening to her stories. Confidence also plays a part
already missed them. was hard for the family to piece the care team had to prescribe daughter’s permission, medication But within six months, the stories especially when managing
From a distance, Senior Staff everything together after their medication which made her was given to Madam C so that she sadly ended. caregivers who are facing a lot
Nurse Theviya Parama Sewai mother’s diagnosis. However, drowsy and less communicative could rest. As bitter as it was, Madam C’s of stress in caring for their loved
watched the heartwarming scene they continued to put up a during the day. This did not “Through the experience, the care daughters accepted the fact that ones. “Being confident reassures
unfolding in the heart of the strong front to care for their go down well with her family, team once again communicated to their mother was gone and were caregivers that nurses are doing
busy palliative ward at Sengkang mother with the remaining time who were apprehensive of this Madam C’s family on her condition happy that she passed away the best for our patients and makes
Community Hospital (SKCH). they had. approach which would leave and provided them with guidance without much suffering. them feel safe!” said Theviya.
18 19
THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022 THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022TIPS FOR RESILIENCE WORLD HOSPICE & PALLIATIVE CARE DAY
Come what may Leave no one behind
Here are 10 tips to help caregivers carry on caring. Singapore Hospice Council celebrates World Hospice and Palliative Care
Day (WHPCD) by honouring the palliative care professionals.
andemic or endemic, tenacious group, the caregiving and respite. With this in
P lockdown or restricted
measures, caregivers
journey can be long and arduous
or sudden and swift. Whichever
mind, Tsao Foundation
counsellors and social ingapore Hospice Council The top five winners of SHC’s first TikTok
do not really care.
When you have had to confront
scarier C-words from cancer and
route their journey takes, we can
learn from their positive attitude
— roll with the punches and say,
workers would like to
offer formal and informal
caregivers to seniors some
S (SHC) collaborated with
South West Community
Development Council
Dance Competition were also announced.
During the show, SHC’s new online
interactive role-playing game The Living
chronic illnesses to cognitive “come what may”. facts, tips and resources to (SWCDC) to organise a 45-minute virtual Game was launched. The game aims
disability, COVID-19 is just another Yet even the most resilient tackle their next road bump concert on 9 October. Live-streamed to educate youths and young adults
item on the list. For this agile and can do with some reminders in the caregiving journey: on SHC’s Facebook, it showcased SHC’s on palliative care and end-of-life care
community engagement and public planning so that they can support those
education efforts within the South-West they love, to live well and eventually
community and the seven palliative care leave well. Play the game on
service providers serving the residents. game.singaporehospice.org.sg now!
1. You’re not alone: We’ve witnessed about 33% dialect – they feel a sense of security and
increase in seniors with poorer mental health will confide in you more.
in the last year. Assure seniors in your charge 6. Go digital: Digital content and
it is normal to be anxious during this period. communications flourished during this
2. Don’t let seniors feel lonely in a crowded pandemic, and we urge more seniors as well
room: Some seniors living with their families as caregivers to embrace this new way of
have told us they are often forgotten in staying connected to community resources.
the hecticness of the new work-from-home 7. Sync mind, body and soul: When the
WORDS RYP YONG, CORPORATE COMMUNICATIONS MANAGER, COMMUNITY RELATIONS,
and home-based learning arrangements. external environment is stressful, our bodies 1
Else, they are reprimanded for being may have acclimatised but our emotions
“problematic” when they wanted to go out. have not yet caught up. Being aware of
2
3. Some care and companionship can go a long this and giving it time will help.
way: When seniors exhibit anxiety, “I can’t 8. Give phone counselling a try: A warm voice
sleep; I don’t have appetite”, do not brush can do wonders and be just as effective
them off but offer to accompany them to the as face-to-face counselling during these
family doctor or community clinic. trying times.
4. Remind them that they are resilient: 9. Lean in on your village: Keep exchanging
Remind or assure seniors they have survived notes with your community partners to work
3
tougher times and have it in them till today. through tough cases and share interventions.
5. Use a common language of love: When we 10. Call counselling and coaching hotlines:
Greetings from emcee Cheryl Yao, a volunteer with SHC J
connect through the seniors’ preferred These helplines are just a call away. Call 1
TSAO FOUNDATION
2 SHC Vice Chairman Dr Chong Poh Heng welcomed
everyone tuning in
language – be it Mandarin, Malay, Tamil or them for critical cases or if you need help. 3 Guest-of-Honour Mayor of South West District Ms Low
Yen Ling, saluted all palliative care professionals and staff as
well as caregivers for their commitment and dedication and
thanked them for their contributions ❤
4 Dr Chong Poh Heng and Mayor Low Yen Ling launched 4
SHC’s first online game, The Living Game, with a high five!
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THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022 THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022WORLD HOSPICE & PALLIATIVE CARE DAY
Competition
Congratulations to the top five winners of
SHC’s TikTok Competition!
6
5
5 A first look at Johan, the main character of the first
episode of The Living Game J
6 7 SHC’s community engagement efforts with SWCDC
residents began in 2018. Today, there are seven SHC
member organisations that actively provide hospice and
palliative care in the district: HCA Hospice Care, MWS
Home Care & Home Hospice, Ng Teng Fong General
Hospital, St Joseph’s Home, St Luke’s Hospital, Singapore 7
Cancer Society and Tzu Chi Foundation (Singapore).
9
8
THE JUDGES
10
8 Daniel Ong, winner of SHC’s 2019 Voices of My HeART
Songwriting Competition, sang an original song specially written
for WHPCD titled “Leave No One Behind” Kudos to the creative TikTok entries!
9 Tan Yu Qing and Tan Yu Lin from the band TLQ and third-
prize winner of SHC’s 2019 Voices of My HeART Songwriting Introducing the judges (from left): Secretary
Competition sang their song “只要我们不放弃” (As Long As We of the Healthy & Active Lifestyle Functional
Don’t Give Up) Committee, SWCDC Mr Walter Lee,
10 A big “thank you” from SHC staff and volunteers to all
Dr Chong Poh Heng and SHC Chief
healthcare workers, caregivers, volunteers, donors, partners who Executive Ms Evelyn Leong
have contributed greatly to the availability of palliative care! ❤
11 11 Closing the event, the band TLQ sang their original song
“Stronger Together” dedicated to all palliative care professionals
22 23
THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022 THE HOSPICE LINK • DECEMBER 2021 – FEBRUARY 2022ANNOUNCEMENT
SHC Resources For Caregivers
Singapore Hospice Council is committed to supporting and empowering caregivers.
Looking after patients with There may be times
life-threatening illnesses can when caregivers are
take a toll on caregivers. To required to administer
better support caregivers, the medication for their
Singapore Hospice Council patients. For easy reference,
(SHC) has developed resource caregivers can refer to
booklets titled Caring for step-by-step infographics on
Yourself After a Death, Nutrition administering rectal enema
in Advanced Illnesses and and subcutaneous injection,
Understanding the Final Hours. applying transdermal
These are available in four fentanyl patch and giving
languages – English, Mandarin, suppositories. These are
Malay and Tamil. available in seven languages
Caregivers may also consider – English, Mandarin, Malay,
inpatient hospice care to better Tamil, Burmese, Indonesian
suit their loved ones’ needs. and Tagalog.
To allow caregivers to make
more informed choices, an These resources are free to
information sheet on inpatient download and can be shared with
hospice service providers your loved ones and community.
in Singapore is available For more information, visit
in English. https://singaporehospice.org.sg/caregiver
EDITORIAL COMMITTEE Upcoming Event
Editor Christina Wee
Associate Editor Anne Loh NOVEMBER -
DECEMBER 2021
Alexandra Hospital Yvonne Lee SACH Palliative Care
Assisi Hospice Angela Yeo Fundraising Run 2021
Buddhist Compassion Relief Kwek Jingyi Palliative Care Team
Tzu Chi Foundation (Singapore)
member of the
Changi General Hospital Rasidah bte Alias
Dover Park Hospice Jenny Goo St. Andrew’s
HCA Hospice Care Toh Wei Shi Community Hospital
Khoo Teck Puat Hospital Tricia Tan (SACH) Palliative Ward Justin Tan
Lien Centre for Palliative Care Tang Swee Noi leads this fundraising initiative in
Metta Hospice Care Cecilia Soh
support of SACH Palliative Work.
MWS Home Care & Home Hospice Michelle Aw Yong
Ren Ci Hospital Chia Ying Mei Join them on this 1,000km
The Palliative Care Centre for Tan Li Kuan Journey of Love by scanning
Excellence in Research and Education the QR code and contributing
Sengkang General Hospital Farah Rahman towards the cause.
Singapore Cancer Society Kumudha Panneerchelvam Contact: laykoon_peh@sach.org.sg
Singapore General Hospital Mavis Law
Singapore Hospice Council Sheena Koong
SingHealth Community Hospitals Muhammad Azhar bin
Abdul Rahim JANUARY - MARCH 2022
St Andrew’s Community Hospital Peh Lay Koon SHC “Live Well. Leave Well.” Professional Series
St Joseph’s Home Shereen Ng @ The Public Libraries
St Luke’s Hospital Chua Hwee Leng Date: 24 January, 28 February, 28 March
Tan Tock Seng Hospital Candice Tan
Venue: Online via Zoom
Tsao Foundation Ryp Yong
This series will be held monthly till December 2022.
Design Christian Subrata Stay tuned for more details! Visit singaporehospice.org.sg
Printer Yung Shung Printrade Pte Ltd for the latest updates.
1 Lorong 2 Toa Payoh #07-00, Braddell House, S (319637) Quotation or reproduction of content without the prior written
T: 6538 2231 • E: secretariat@singaporehospice.org.sg permission of the Singapore Hospice Council is prohibited.
www.singaporehospice.org.sg Movement for the Intellectually Disabled of Singapore (MINDS)
students assisted with the mailing process of this issue.
24
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