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Special Needs Primary Care We understand the complexities of raising a child with special healthcare needs. Our Special Needs Primary Care is are proud to provide children with special healthcare needs, and their siblings, outstanding family-centered healthcare. As Your Medical Home, we will: • Take care of your child when he or she is sick • Help you plan your child’s care and set goals for their care • Discuss any testing or treatment that your child needs • Coordinate care with you and other care providers • Partner with you to help you live well and stay well Two Locations in Hamilton, NJ and Mountainside, NJ Click here to learn more.
Assistance Securing a COVID Vaccine Appointment The Arc of New Jersey is pleased to let you know about a group of women who are volunteering their time to help secure a COVID vaccine appointment for NJ individuals with intellectual and developmental disabilities (I/DD) age 16 and older and seniors. The Vaccine Matchmaker program has over 300 volunteers located throughout New Jersey, working around the clock to secure vaccine appointments for those in need. It is important to note that the Vaccine Matchmaker volunteers will ask for only the basic information necessary to secure an appointment (name, DOB, email, phone and address). They will never charge a fee or ask for any insurance information, Social Security numbers, or credit card numbers. Here is a link to their website and the signup form. Please share this information with others with disabilities or senior citizens in New Jersey who are in need of assistance securing a COVID-19 vaccine appointment. If anyone needs special accommodations to be vaccinated, please communicate that need to the Vaccine Matchmaker www.wgirls.org. Please share this with others who may also be interested.
Arc of NJ Webinars HOW Series: Housing 101 Creating a Culture of Inclusion: Bullying Prevention Strategies • When: Wednesday, May 5th • Time: 5 to 7 pm • When: Friday, June 18, 2021 Adults with intellectual and developmental disabilities (I/DD) can • Time: 1:00 PM - 2:00 PM EDT live in a variety of places in the community. It’s important to Presented by the NJ Self-Advocacy Project and NJ Statewide determine the level of support needed by the person with I/DD Self-Advocacy Network, this interactive webinar will focus on when exploring the housing options available in your community. strategies for identifying and addressing bullying in school One size does not fit all, so it’s never too early to get started on and beyond. After attending this webinar, participants will be understanding the different housing options. This workshop will able to identify different forms of bullying and its prevalence give an overview of the housing options available to people with as well as specific ways to help students and adults with I/DD and what to keep in mind when identifying the best fit for the disabilities effectively respond to bullying in-person or person. online. We will review case examples to spur discussion and Contact Info share techniques for creating a bully-free culture in your Planning For Adult Life classroom, day program, and family home. helpdesk@planningforadultlife.org Registration (gotowebinar.com) 732-828-0972
Arc of NJ Webinars VIRTUAL College Tour: The Garden State Pathways (GSP) WEBINAR: Special Education in New Jersey Program at Camden County College Charter Schools Thursday, May 6, 2021 6:00 pm7:00 pm Wednesday, May 12, 2021 1:00 pm2:00 pm Contact Info Join The Arc of New Jersey Family Institute for a VIRTUAL tour of The Michael Pearson Garden State Pathways Program at Camden County College. The mpearson@arcnj.org Garden State Pathways (GSP) Program is a post-secondary, 732-246-4897 transitional program sponsored by Camden County College in Blackwood, and designed for students with intellectual/cognitive Register Here disabilities. The program serves students eighteen years of age or older who are eligible for or received IDEA funding and are interested in learning a work-related skill, as well as enhancing their independence with life skills. ZOOM With Us: What's in your IEP and Register Here How Do You Plan for Transition Thursday, May 20, 2021 6:00 pm7:00 pm Contact Info: Lisa Ford lford@arcnj.org 732.828.2022 The Arc of New Jersey Family Institute as we discuss the IEP process, federal and state laws that regulate special education services, and discuss what your student’s IEP Transition Plan may include Contact Info: Lisa Ford lford@arcnj.org 732.828.2022 Register Here
Planning For Adult Life HOW SERIES: Yes, Your Child Can Work! Working Toward Employment For People With I/DD Wednesday, May 26, 2021 5:00 pm7:00 pm Register Here ZOOM will email link Yes, Your Child Can Work! Working Toward Employment For People With I/DD For many people, a job is something that helps define who they are. It give us a meaningful place to go everyday, a way to explore our interests, a means of earning money, and a way to be a part of our community. This workshop will discuss different employment options available to individuals with intellectual and developmental disabilities and hands—on tools for preparing students for employment. Contact Info Planning For Adult Life helpdesk@planningforadultlife.org 732-828-0972
Planning For Adult Life HOW SERIES: Planning For Transition: Why It Is Vital For Your Student’s Future Thursday, May 6, 2021 6:30 pm7:30 pm Zoom link will be emailed Register Here Planning For Transition: Why It Is Vital For Your Student’s Future The transition planning process includes evaluating the student’s skills, abilities, strengths, challenges, and preferences to envision their life after leaving school. Planning involves setting goals for the student to strive toward and identifying the need for supports. Carrying out the transition plan can begin and should be a part of the student’s Individualized Educational Plan (IEP). Students and families must be actively involved in the transition planning process as early as possible and keep it moving forward. This presentation discusses the importance of planning, the steps necessary to plan, and provides hands–on tools to put a plan in place. Contact Info Planning For Adult Life helpdesk@planningforadultlife.org 732-828-0972
Planning For Adult Life SSI and Medicaid Tuesday, May 11, 2021 7:00 pm8:00 pm ZOOM link will be emailed Register Here SSI and Medicaid: How To Apply And Why You Need To Do So There are many different ways to initiate the Medicaid eligibility process and so it is important to make sure you have all of the necessary information. This workshop will help parents and caregivers understand how to access health care services for their loved one with I/DD from the current health care system. Contact Info Planning For Adult Life helpdesk@planningforadultlife.org 732-828-0972
2021 SPAN Parent Leadership &Advocacy Virtual Conference We invite you to join us on Tuesday, May 11 and Thursday, May 13, 2021, from 1 p.m. to 4:30 p.m., for our 2021 Biannual SPAN Parent Leadership & Advocacy Virtual Conference: SPEAK UP! TAKE ACTION CREATE CHANGE! Improving Systems for Families. A conference for and about meaningful Parent Leadership across education, health, mental health, family support, human services, and child welfare systems. Register Here
Please Join Us For A Virtual Open House Special Education Virtual Open House: May 11 Do you have questions about IEP meetings, student evaluations, compensatory education, transition services, and the dispute resolution process to your child's special education needs? Join the Special Education Team from Disability Rights New Jersey on Tuesday, May 11 at 3pm for an hour-long virtual Open House to learn about special education during the COVID-19 pandemic. Two of Disability Rights NJ’s experienced special education experts will be available to answer questions regarding various topics under the Individuals with Disabilities Education Act and Section 504 of the Rehabilitation Act during the COVID-19 pandemic. Register for Open House Disability Rights New Jersey | DRNJ.org 210 S. Broad Street, 3rd Floor Trenton, New Jersey 08608 1.800.922.7233 (in NJ only) 1.609.292.9742 (Voice) 1.609.777.0187 (Fax) 1.609.633.7106 (TTY)
How the Stimulus Payments Impact Benefits & Upcoming Deadlines to Spend the Funds Wednesday, May 5, 12pm to 1pm Please join staff from Disability Rights New Jersey as we host a Lunch and Learn webinar on How the Stimulus Payments Impact Benefits & Upcoming Deadlines to Spend the Funds. We will discuss issues for people with disabilities regarding COVID stimulus payments from the federal government, including: • Who is entitled to receive stimulus payments • How stimulus payments impact Medicaid/SSI • Deadlines for spending the stimulus What you can do if you have a Representative Payee and did not receive your stimulus payments Register for Stimulus Webinar Disability Rights New Jersey | DRNJ.org 210 S. Broad Street, 3rd Floor Trenton, New Jersey 08608 1.800.922.7233 (in NJ only) 1.609.292.9742 (Voice) 1.609.777.0187 (Fax) 1.609.633.7106 (TTY)
SELF-DIRECTED SERVICES IN NJ AND THE ROLE OF THE SUPPORTS BROKER We are proud to share that The Collaborative for Citizen Directed Supports assisted in developing this new resource from The Boggs's Center on Developmental Disabilities for Self-Directed Services and Supports Brokerage! Understanding Self-Directed Services in New Jersey and the Role of the Supports Broker serves as a guide for people with disabilities, families, Support Coordinators, and Supports Brokerage providers interested in learning more about Self-Direction in New Jersey and the role of the Supports Broker in supported self-direction. Available in English and Spanish. Access New Resource
Spring 2021 Program Beginning April/May Monday Yoga, Dance and Movement 4:00-4:45 PM for Ages 4-7 5:00-5:45 PM for Ages 8-12 6:00-6:45 PM for Ages 12+ Spring Session: Wednesdays, May 3 through June 28 @Summit Community Center – Benson Room $75 for 8 week session Click here to register for yoga/dance classes Wednesday Social Skills - Let's Talk and Game **START DELAYED UNTIL NEXT WEEK** 4:00-4:50 PM for Ages 6-10 5:00-5:50 PM for Ages 10-12 Spring Session: April 28 through June 16 @Summit Community Center – Benson Room $75 for 8 week session Click here to register for game club
Spring 2021 Program Beginning April/May Wednesday Social Skills - Let's Talk and Game **START DELAYED UNTIL NEXT WEEK** 4:00-4:50 PM for Ages 6-10 5:00-5:50 PM for Ages 10-12 Spring Session: April 28 through June 16 @Summit Community Center – Benson Room $75 for 8 week session Click here to register for Social Skills Tuesday Baseball Tuesdays, April 27 through June 15 6:00-7:00 for ages 6-10 7:00-8:00 for ages 10+ Held at Wilson Baseball Field $80 per participant Click here to register for Baseball Thursday Multi Sports Thursdays, April 22 through June 17 o 5:30-6:15- Grades 1-5 o 6:30-7:15- Grades 6-8 o 7:30-8:15- High School & Up $80 per participant Held at Summit Community Center, 100 Morris Ave Click here to register for Multi Sports
Curious About VIANJ? Supporting People with Disabilities and Their Families Since 2007 Curious About VIANJ? Learn all about us by scanning our new QR code with your smart phone!
Self Direction 101 YOU are invited to join us in learning about self-directing services and supports with Easterseals & Public Partnerships Group (PPL) on May 4th at 6:30 PM Topics discussed: Overview of Self Direction Personal Preference Program (PPP) DDD program’s eligibility and program overview Register
SAVE THE DATE! Values Into Action NJ has collaborated with Camden Partnership for Children, Monmouth Cares, Ocean Partnership for Children and Partnership for Children of Essex to bring the First Annual statewide NJ Youth Transition Conference to the communities of New Jersey in service of youth with disabilities, their caregivers and the professionals who serve them! Vendor Village is NOW OPEN! If you provide services and supports to youth and/or adults with disabilities and want to be featured in the Conference's virtual resources, contact us for more info. www.njyouthtransition.life
Epilepsy & Neuromodulation Register for Our Upcoming Webinar on Wednesday, May 5th at 12noon Epilepsy and Neuromodulation **This webinar is being offered FREE of charge** In this informative webinar, Atom Sarkar, M.D., will present on the topic of epilepsy and neuromodulation. Objectives include the concept of medically refractory epilepsy, approaches to help identify epileptic focus, and surgical techniques towards seizure mitigation. After registering, you will receive a confirmation email containing information about joining the webinar. Register
Registration Open for Camp FantasTIC You're invited to Camp FantasTIC - a Virtual Family Retreat! It will be a fun-filled day of creative arts, games, parent and mentor sessions, entertainment and a variety of activities for the whole family. Cost of $30 per family includes entertainment and workshops, one t-shirt, and a "camp kit" box filled with everything you will need for the fun. (Additional t-shirts are available when you register for $10 each.) REGISTER NOW
Nature Connection for Children's Mental Health Over the last couple of generations, children have become increasingly disconnected from nature, with worrisome implications for their physical and mental health, cognitive development and educational outcomes. In this webinar we will take a deeper dive into how nature supports children's mental wellbeing including strengthened self-esteem and confidence, enhanced positive emotion and reduced negative emotion, stress reduction, restoration, social benefits, and resilience. We will share tips for getting the most out of nature activities to promote children's mental health. May 26, 2021 Presented by Cathy Jordan, Ph.D. Register Here
We're Recruiting! Children’s Specialized Hospital's Research Center strives to advance Participation in this study will include 2-3 visits to the pediatric rehabilitation by initiating and supporting evidence-based following Kessler Foundation locations: studies that explore innovative interventions, technologies and approaches to specialized care for children and adolescents. See below • 120 Eagle Rock Ave, Suite 100, East Hanover, NJ 07936 for details on one of our current studies. • 1199 Pleasant Valley Way, West Orange, NJ 07052 Study: Characterizing Action-Control in Healthy Children For more information, please contact: This research study aims to understand how healthy children control Dr. Joman Y. Natsheh their behavior and choose their actions. It involves completing paper- Principal Investigator and-pencil measures, computer-based games, and brain magnetic 973-391-7858, jnatsheh@kesslerfoundation.org resonance imaging (MRI). No contrast/dyes or injections will be used in the study. Results from this branch of the study will be compared to Michael Dacanay patterns of learning in children with ADHD to characterize any learning Research Assistant deficits in this population. 973-324-8453, mdacanay@kesslerfoundation.org Who's Eligible? Participants will be compensated for their time and children • Healthy children with no prior medical diagnoses. who complete the MRI scan are eligible to receive a copy of • Children between the ages of 6 and 10. the images and a certificate of completion. • Must be able to speak English well. • Ability to play a computer- based game. • Capable of undergoing an MRI scan (there will be a training session to make sure the child is able to undergo the actual MRI About Our Research Center scan).
Law & Disability Conference For more Information
NJCTS Leadership Academy New Dates for Virtual Academy: August 6 - 7, 2021 The NJCTS Tim Howard Leadership Academy is designed to develop self-leadership, advocacy skills, and resilience in teens with Tourette Syndrome and its associated disorders. Of course, we are hoping to be able to once again meet in person, but in the meantime we are planning a spectacular virtual event. We encourage all of you to join us to connect with others in the TS community. Eligible participants are entering sophomore, junior or senior year of high school in the Fall of 2021 or will have completed senior year of high school by June 2021. No application is required. Registration is coming soon, but if you would like to be one of the first to sign up, fill out the form below to be notified. Virtual Leadership Academy Interest Form (google.com) NJ Center for Tourette Syndrome and Associated Disorders 50 Division Street, Suite 205 / Somerville, NJ, 08876 www.njcts.org / info@njcts.org / 908.575.7350
Support Groups Click below for more information on any of the following support groups available to families. • New Dad Support Groups • Moms Connection • Weekly Parents Group Parenting Through the Pandemic; Creating Work/Life Balance at Home Through the Pandemic
ESNJ Prescription Assistance Fund The goal of ESNJ is to support you on your epilepsy journey by ensuring that you have continued access to treatment and care. Through our Medication Assistance Program we has funds available for people with epilepsy who are temporarily unable to afford the purchase of their anti epileptic medication. This fund is available one time, once a year. The is a limit to the amount allowed. For more information, email info@epilepsynj.org.
NJ Mental Health Cares
Register Ready Help emergency responders plan for and support your family members who have disabilities or access and functional needs Register today— in the event of a disaster be ready for tomorrow! If you or a family member has a physical, developmental, cognitive or behavioral impairment, language barrier, or transportation challenge that may make it difficult to safely shelter in place or evacuate in a disaster, please register. Register at: www.registerready.nj.gov or call 211 within NJ or 877-652-1148 toll free Free Secure and confidential Voluntary Protective of your privacy Update your information at least annually. In a life threatening situation, don’t wait for help — call 9 1 1
Brain Injury Alliance NJ Virtual Support Group Brain injury support groups allow persons with brain injuries and their family members to meet others in similar situations. They gain valuable emotional support, form friendships, obtain information, and discuss a variety of brain injury topics. There are 20 Alliance-affiliated support groups in New Jersey, serving 17 counties. The Alliance monitors the activities of these groups, the qualifications of their leaders, and provides information on a regular basis. Virtual Support Group Sessions for Survivors and Caregivers Virtual support groups for survivors are every other Wednesday at 11:00am Click here to learn more.
Patient & Family Portal In our Portal, you can… • Get secure access to refill prescriptions and review medications any time • View upcoming appointments and review past medical and therapy needs • View, print, and share patient records at a moment’s notice • Have 24/7 access so you can pay bills when it’s most convenient for you Not signed up yet? Email PortalHelpDesk@childrens-specialized.org to receive your access code. Already signed up? Access the portal at my.childrens-specialized.org
Activity Connection Registration for Summer Programs is now open! The Activity Connection programs at Children’s Specialized Hospital include therapeutic recreation, sports, and social activities for children and young adults with special health care needs. The programs provide opportunities to make new friends, develop new skills, participate in physical activities, and enjoy new experiences. All programs are led by Children’s Specialized Hospital’s therapists, certified program instructors, coaches, and trained volunteers who provide age-appropriate and safe activities in an inclusive and fun environment. Click here to learn more, browse programs, and register. For questions, call Activity Connection at (908) 301-5548.
Providing Respite: Supporting People & Families Across the Lifespan In partnership with the NJ Lifespan Respite Program, The Boggs Center on Developmental Disabilities at Rutgers University has published Providing Respite: Supporting People and Families Across the Lifespan. This booklet offers an overview of respite and highlights the positive impact that respite makes in the lives of people with disabilities, seniors, and their families. To access, click here.
Schedule a Virtual Telehealth Visit What are benefits of receiving services through this platform? • Quick access to your child's initial evaluations • Eliminates any delay in beginning a beneficial treatment plan • Provides an opportunity to meet and begin to develop a relationship with your provider allowing them to get to know you and your child • Your child will be seen in the comfort of their natural home environment • Doxy.me link allows for easy access using your smartphone, computer, or tablet What can I use for my child's virtual visit? Call 888-244-5373 to request an appointment.
Getting Ready For Your Virtual Telehealth Visit
Preparandos Para Su Vicita Virtual de Telesalud
Stay Informed on COVID-19: Disability Rights NJ Stay Informed at DRNJ-COVID.org Dedicated to providing resources during the coronavirus pandemic, this new site shares valuable information and the actions we've taken to protect and advocate for people with disabilities, along with important resources from our partners to help you navigate this crisis.
Fun Activities To Do at Home With Your Child Fun Activities Movement, Exercise & Outdoor Play • Play cards, go fish, war, solitaire, memory. • Play hide and go seek. • Take turns reading to each other. • Workout together. • Have a spa night. • Write down exercises on separate pieces of paper and put them in a box, shake it and • Look through old photo albums together. pull one out at a time. Do what it says! 10 jumping jacks, jog in place, do a somersault, • Watch your child's favorite television show or movie together. 10 sit ups, 10 touch your toes, 10 arm circles, 10 lunges, walk sideways, make up your • Do a puzzle. own! • Play a board game. • Play hop-scotch. • Sit outside and look at the stars or clouds. • Ride bikes. • Eat meals together. • Play Simon-says • Help your child send an email to a grandparent, aunt, or uncle. • Take a walk in the woods collect acorns, pretty rocks, & leaves. • Help your child write a letter to a friend or relative. • Rake leaves together. • Go bird watching. Try to identify the birds you find. • Play tag. • Play a video game together. • Wash your car together. • Pull out a box of toys they haven't played with for a while. • Teach your child how to ride a bike. • Plant seeds from something you've eaten, such as an apple or watermelon. • Learn a new dance, Chicken Dance, Electric Slide, The Hustle, The Macarena dance • Play I-Spy, hot or cold, mother may I, red light/green light. • Help your child practice a sport they enjoy. Have a catch. • Sing Karaoke. • Draw on the sidewalk with sidewalk chalk. • Teach your dog tricks. • Have a picnic outside. • Let your child teach you about something they know or do well. • Have a dance party.
The Center on Nutrition & Disability If you have been impacted by the pandemic and are in need of food, the Center on Nutrition and Disability is here to connect you to your local food resources. Call 609-802-6605 to learn more. Or, text FOOD to 877-877 and you will receive a message with local sites to receive free summer meals. No paperwork to fill out. No income requirements.
Helpful Links & Resources National Information Center for Children and Youth with Disabilities https://www.parentcenterhub.org/nichcy-gone/ National Organization for Rare Disorders www.rarediseases.org New Jersey Department of Human Services www.state.nj.us/humanservices New Jersey Developmental Disabilities Council www.njcdd.org New Jersey Protection and Advocacy www.drnj.org Catastrophic Illness in Children Relief Fund (CICRF) https://www.state.nj.us/humanservices/cicrf/home/
Managing Your Child’s Behavior Virtual Workshop This seven-week parent workshop was developed by the pediatric psychotherapists at Children’s Specialized Hospital to help parents of children ages 2-10 years learn how to manage their behavior. The course will cover: • Causes of misbehavior • Setting limits and dealing with tantrums • Managing sibling conflicts • Developing and implementing behavioral systems • Parent stress management, self-care, and support system This program is free, bur registration is required. For more information, including how to register, click here and search for “Managing Your Child’s Behavior”
Navigating the Journey Tuesday, April 6, 2021 6:30pm to 8:00pm EDT The Parent Panel: An Empowering Discussion for Caregivers and Advocates of Individuals with Special Health Care Needs Tuesday, April 13, 2021 6:30pm to 8:00pm EDT Navigating Special Education Tuesday, April 20, 2021 6:30pm to 8:00pm EDT Overview of Autism Spectrum Disorder Diagnosis Thursday, May 6, 2021 6:30pm to 8:00pm EDT Ask the Therapists: Psychologist, Speech, and Occupational Therapists Questions? Contact Sandra at 908-301-5944 or sjohnson@childrens-specialized.org
Navigating the Journey Jueves, 15 de Abrilde 2021, de 6:30p.m. a 8:00p.m., hora de verano del este Diálogo de los padres: Vamos a tener una charla con otros padres Martes, 27 de Abrilde 2021, de 6:30p.m.a 8:00p.m., hora de verano del este Una Descripción General del Trastorno del Espectro Autista Jueves13de Mayode 2021, de 6:30p.m.a 8:00p.m., hora de verano del este Consulte a los terapeutas: Psicólogos, terapeutas del habla y terapeutas ocupacionales Jueves 27 de Mayode 2021, de 6:30p.m.a 8:00p.m., hora de verano del este Derechos Basicos En Educacion Especial Comuníquese con Sandra llamando al 908-301-5944 o enviando un correo electrónico a sjohnson@childrens-specialized.org
Need Help Getting Vaccinated? Get Help with Vaccinations The Brain Injury Alliance of New Jersey has secured a volunteer to help people affected by brain injury sign up and schedule COVID-19 vaccine appointments. If you would like assistance in securing a vaccine, please contact us at 732-783-6172.
International Summer STEM & STEAM Camps Small Classes in Science, Technology, Engineering, Robotics, Arts, Math, Business, Minecraft and more! Registration Open for In-Person and Virtual Summer Camp 2021 VIRTUAL CAMP IN-PERSON CAMP Campers between the ages of 3-15 learn STEAM from home. Campers between the ages of 3-15 learn STEAM at camp while observing Covid-19 safety protocols. All classes are weekly, Monday to Friday, June 21, 2021 to August 20, 2021. NJ Locations in Chatham, Paramus, Princeton, Short Hills, Summit and Somerset. Enroll your child for one week or multiple weeks. All classes are weekly, Monday to Friday, June 28, 2021 to August 20, 2021. 3 class periods a day: 9 AM, 1:30 PM, 6 PM EST. Families can enroll for one week or multiple weeks, with full-day or half-day Always a live instructor to guide students and interactions! options. Come join us for a positive and nurturing summer camp experience! Enroll now at International Ivy or call 908-899-1338 for more information. Always Live Instructors, Small Classes, Many STEAM options. Offering STEM programs for kids across North Jersey, Central Jersey and South Jersey. In-person summer camps also available in Delaware and Maryland. Kids will learn, explore, and have a fun summer camp experience!
Values in Action New Jersey Our Values Our Values Into Action NJ Team is at your service and always dedicated to your support! Values into Action NJ provides Support Coordination in service for people with disabilities aged 21+ and their families, across the state of New Jersey. Using a person-directed, family-centered approach, we structure our services to assist individuals through the process of self-direction and empower them to remain in charge of their plans (and their lives). www.ValuesIntoActionNJ.org
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