FAMILIES FIRST SPRING/SUMMER 2022 - Inside: Rainbow Trust Children's Charity
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
FAMILIES
FIRST
SPRING/SUMMER 2022
Inside:
Celebrating Family Support A week in
35 years of Worker Ema the life of
supporting helps James’ a Family
families family to deal Support
with complex Worker
needs
Dear Contents
Supporter From the Chief Executive 2
A huge thank you to all the
generous organisations, Our Impact 3
volunteers and people What parents and
like you that enable us to carers say 3
continue providing expert
support to families with a What the children say 3
life-threatened child.
Family Support Worker
I also want to give my heartfelt Shelly helped Teissy’s
thanks to the newspaper the i for family in their grief 4
choosing us for their Christmas
appeal. Thanks to this partnership Family Support Worker
and the generosity of the i readers Ema supports James’ family
we raised a phenomenal £146,000 We know our support is more
critical than ever: in January we as they deal with his
from an initial target of £75,000.
This could provide support for 82 asked families we support about complex needs 6
families for an entire year – a truly their situation and in particular the
impact of the COVID-19 pandemic. Your support really matters 8
amazing result.
58% of parents said their mental
health was worse or much worse A week in the life of a
This year we are marking 35 years
of care – you can read more about than before the pandemic, 30% Family Support Worker 9
how the charity began on page 11. said that Rainbow Trust is their only
source of professional practical and Fundraising Heroes 10
Our vision is that every family emotional support, and a further
in the UK who has a child with a 20% said they only have one other Bernadette Cleary OBE:
life-threatening illness receives source of professional support. Founding Inspiration 11
the support they need. It has long
been a strategic priority for us to Our snapshot audit at the end Ways to Fundraise 11
grow our care services to reach of 2021 asked families to rate
more families, both in the regions our service provision and 92% Celebrating 35 years of
where we already support and in of the families we support rated supporting families 12
new areas. our overall service as good or
excellent. Families face enormous
We have been extremely fortunate strain when living with childhood
illness and this makes the practical Rainbow Trust Family Support
to secure funding to establish care
and emotional support that Family Workers help families practically
teams in two new locations; one
Support Workers deliver critical for and emotionally as they navigate
in Liverpool to expand coverage
families in crisis. the challenges of living with
in the North West and into Wales;
childhood illness. To many of us,
and one in Reading to boost care
Thank you for all you do to help family means everything so when
provision in the South. When the
families with a seriously ill child. serious illness affects a child, and
teams are in place later this year,
family life is turned upside down,
it will take the total number of
Best wishes this tailored and expert support
care team locations across the
enables families to make the most
country to eight, enhancing our
of their time together.
face-to-face support with capacity
for up to 160 additional families
per year. This, along with our new STAY IN TOUCH
virtual support service, provides Zillah Bingley, Chief Executive Call us: 01372 363438
the opportunity to significantly Email us:
increase our reach supporting supportercare@rainbowtrust.org.uk
families in need across the UK. Visit us: rainbowtrust.org.uk
You can check our Privacy Policy at
rainbowtrust.org.uk/
cookieandprivacypolicy
Cover photo: Jack is one and has complex heart and Follow us:
breathing difficulties. Between the age of seven weeks
and nine months old he was in hospital. Jack and his
family were supported by Family Support Worker Monica Head Office address: Cassini Court,
from the North East Care team until they moved to a Randalls Way, Leatherhead,
new location. They are now supported by Family Support Surrey KT22 7TW
Worker Sophie from the North West Care team. Registered Charity No. 1070532.
2 FAMILIES FIRST
OUR IMPACT 2020/2021
OUR SUPPORT IN NUMBERS
New families Total families Total hours 449
1,075 17,481
supported
409
families who felt
better able to
cope had their
cases closed
Hours of Hours of
parental support Hours of hospital Hours of
or respite transport support home support
1,687 1,279 512 5,333 Figures from Our Impact,
covering July 2020 to June
2021. You can download
a full copy and watch
Hours of our impact video here:
Hours of Hours of rainbowtrust.org.uk/
virtual Hours of support for
telephone sibling support the sick child our-impact
support
1,822 1,583
support
5,337 1,194
WHAT PARENTS WHAT THE
AND CARERS SAY CHILDREN SAY
“ I love the support my family has received since
my boys were born. I cannot fault the service as it has
allowed me to visit my son in hospital as well as having
If I had a magic wand I would…
be better and be home in my own
room - then fly to Disneyland with all
the relationship with the Family Support Worker when my family and get fat eating lots of
I can rant or cry if I need to and it really does help delicious food
so much. If I’m ever stressed or anxious, I always feel turn my house into a pirate ship
better after talking it through with my Family Support
Worker on our way to the hospital - I don’t think I
“ have a million puppies
and one horse
would have been able to cope without Rainbow Trust.
just eat a sweetie at school to make
“
you learn all your education and can
My Family Support Worker’s help to me has been just stay and play with your friends
massive, especially when I’m feeling low, unsure and
magic up a bunny that can walk and
stressed. Her presence is calming and gives the children eat everything
support to grow within themselves. The help and
“
support to go and do ‘normal’ activities that by myself I
change my Family Support
Worker into a frog and
wouldn’t be able to do.
she can eat flies
be able to eat everything I want and
“
have a pink and purple shoe with
My Family Support Worker is the best person to
glitter following me everywhere
make all of us happy with ideas and lots of support for
“
our family. She is loving, caring, kind and has lots of skills
79% of siblings who responded to
regarding children and professional family support.
our audit selected
‘My Family Support Worker helps
When asked how much of a difference Rainbow Trust me spend more time with other
made to their lives 92% rated the positive difference children or people outside of the
as eight, nine or 10 out of 10. family’.
FAMILY MEANS EVERYTHING 3
FAMILY SUPPORT WORKER
SHELLY HELPED TEISSY’S
FAMILY IN THEIR GRIEF
Teissy tells us about the death of her daughter
Ki Ki and the support her son Kingston needed
“
Ki Ki, Kingston’s little sister,
was born in October 2015.
Aged almost three years
she became really unwell
in 2018. She was diagnosed
We didn’t know how long
Ki Ki would live. On top of the
devastating news and having to
learn how to look after Ki Ki being
so ill, we decided to also focus
on making her life the best it
Rainbow Trust Family Support
Worker Shelly started supporting
our whole family, but focusing on
Kingston. As my partner Adam and
I spent more and more time with
Ki Ki we had less time with
with Leigh’s disease (a could possibly be and on creating Kingston, who was just six. He
progressive neurological memories for us all. needed one-to-one time, moments
when he could be himself and also
disorder) and a severe
We wanted to make memories have fun.
type of scoliosis in so we went on different holidays
February 2019. to enjoy as a family and Ki Ki’s Shelly would spend time with
personality shone through, she was Kingston to provide an outlet;
Whilst Ki Ki was seriously ill in a real social butterfly. in their sessions he was able to
hospital and we had this terrible express how he was feeling and
diagnosis, the hospital team The diagnosis and situation voice his worries and concerns.
referred us to Rainbow Trust. changed us all. We started to see a real difference
in him. It was evident that Shelly’s
support was very beneficial for him
and made him feel special.
Shelly also took Kingston out with
other siblings of very ill children.
This helped him understand that he
wasn’t alone and also helped him
make new friends.
Shelly made us all feel at ease.
She is very inviting and
conversations happen naturally
with her. I didn’t mind telling her
how I was feeling. I didn’t mind
sharing thoughts or feelings that I
would not even tell my family.
There was a unique difference
from other organisations that
provided some support: Shelly
knew the whole family and what
we were all going through. Other
organisations didn’t understand
the whole situation. With Shelly
it was different, she understood
everything that we were going
Kingston and Ki Ki in Disneyland
Scoliosis is the deviation of the normal curvature of the spine.
4 FAMILIES FIRST
Adam, Ki Ki, Kingston and Teissy Kingston painting a rock in memory of Ki Ki
enjoying a special family moment and one for his little sister Khailani
through. She really cared. only shared it with Shelly.
Very quickly Shelly became our While looking after Ki Ki Adam
constant and stable support. and I had a good routine. All this
disappeared when Ki Ki died. xxxxxxxx
It pains me to say that in March Adam was very angry, very upset. I
2020, two weeks before the dealt with it in a different way. I felt
country went into the first national sad and depressed. I was mad at
lockdown, Ki Ki sadly died. Adam for shutting me out. Shelly
also helped with these feelings.
For us, things became very Shelly explained that there’s no
different. Relationships with people right or wrong way to grieve. His
changed. On a normal school run, way of grieving was just as valid
people would avoid me, look away as mine.
and pretend they hadn’t seen me.
18 months after Ki Ki died I gave
People felt uncomfortable as they birth to my daughter Khailani. She
didn’t know how to react to me. is 14 weeks old and Kingston is
They didn’t want to ask ‘Are you all really good with her but, as he has
right?’ because of course I wasn’t gone through the trauma of losing
all right and I will never be. Nothing Ki Ki, he also worries about Khailani. Ki Ki and her favourite doll, who
will ever be the same. had a nasal tube like her
Shelly’s help felt like someone from
Rainbow Trust was the only outside our family cares and wants
organisation that supported us to help us get through this really Leigh’s disease is a disorder
throughout; Kingston’s school difficult time, when we did not that affects the central
offered some bereavement support know how to deal with it all. nervous system (brain,
but it wasn’t constant and it only spinal cord and optic nerve)
lasted for a couple of weeks. Losing a child is the worst deteriorating movement,
Kingston and Ki Ki were just 14
months apart and were very
close, they had a really good
and special bond.
“
experience a parent can go through
and Shelly helped me to start
accepting my loss and to grieve.
Shelly gave Kingston the space he
needed to learn to live with the pain
of losing his little sister.
posture and mental abilities.
Some signs may be poor
sucking ability, the loss of
head control, loss of motor
skills and seizures. Some
children may have a period
Ki Ki’s death had a big impact on of normal development
Kingston. He started having night before being affected by this
terrors, was unable to sleep and disease. It is a progressive
was having a really difficult time. disorder that usually happens
Kingston is so considerate that in early childhood and life
he didn’t want to talk to us about expectancy is two or three
what was happening with him and years after diagnosis.
how he was feeling as he didn’t
want to upset us. He didn’t want rainbowtrust.org.uk
to worry us so he kept it all in and /donate-magazine
FAMILY MEANS EVERYTHING 5
FAMILY SUPPORT WORKER EMA
SUPPORTS JAMES’ FAMILY AS THEY
DEAL WITH HIS COMPLEX NEEDS
Nothing prepares parents to deal with childhood illness
so Ema is helping to improve the family’s quality of life
During a pre-eclampsia
examination at 28 weeks,
when Danielle was
pregnant with her second
child James, the doctors
discovered that the baby’s
heart beat kept dropping to
a dangerous level, unable
to bring it back up. Danielle
had to be induced, which
meant James was born 12
weeks prematurely.
James was in hospital for the first
four months of his life. When he
was finally discharged, he needed
home oxygen treatment and to be
fed through a tube as his breathing
is compromised due to suffering
chronic lung disease.
Since birth James has had complex
needs and requires looking after
24 hours a day. James is non-
verbal, has low muscle tone and
is unable to eat or drink anything.
Nothing prepares a parent for Danielle, James and Ema enjoying the sunshine
this. Danielle says: “The world
stopped when James was born being in and out of hospital. Ema “Ema has made our life easier as
as we weren’t expecting a child has been helping them to have fun we have been able to do things
with such complex needs. He despite the day-to-day difficulties as a family. She has made our
weighed just 1lb 4oz. James had they face. These play sessions daughter feel special.
a bleed on his brain at three days also provide an opportunity to
old which has caused cerebral give emotional support to both “James prefers to play on his own,
palsy, developmental delay, visual children. For Bella monthly one- but he is also building his social
impairment, hydrocephalous* and to-one sessions give her focused skills with Ema and will sometimes
many other conditions.” “me” time. These sessions have choose to play with her, he has
boosted both children’s confidence started to initiate play.”
Danielle and her husband Chris and social skills.
heard about Rainbow Trust Ema also helps to improve the
through their Community Nurse, “Bella enjoys it when Ema comes family’s overall quality of life by
and they have now been receiving over to see her, as she finds it hard providing much needed emotional
support from Family Support to build relationships with other support for Danielle at home
Worker Ema for nearly three years. people. She has been diagnosed and over the phone. Danielle was
Ema met James when he was with autism, and without Ema’s diagnosed with Post Traumatic
eight months old. Her support was help we wouldn’t have spotted Stress Disorder (PTSD) due to
originally mainly for James and the signs and pushed for an the trauma of James’ birth, the
his now nine-year-old sister Bella, assessment and support at school, difficult first few days of his life
who found it hard with James which she now has. and his numerous conditions. With
* A build-up of fluid in the brain.
6 FAMILIES FIRST
James’ sister, Bella, proudly shows Ema plays with James, helping James in an incubator in hospital
biscuits baked with Ema increase his social skills
both counselling and Ema’s help had to undergo two brain
Danielle has started to overcome surgeries. The seriousness of the
her PTSD. Ema’s emotional support operations was made clear to
has focused on helping Danielle to Danielle and Chris when they were
have more confidence in general told that if anything went wrong
and specifically around looking James could end up paralysed or
Family means
after James, empower her to share could have a stroke. everything.
more responsibilities with her
husband, Chris, and to allow herself Ema picked them up from home Having a child with complex
more time to heal emotionally. at 6am and dropped them off at needs is tough on parents;
the hospital at 7:30am for the first the everyday workload may
Over the last three years, James operation. Two weeks later James feel relentless and the whole
has been in and out of hospital. was in pain again and the local family may feel isolated. The
This, together with the numerous hospital sent him in an ambulance, experience could become
medical appointments, presents on a ventilator, to John Radcliffe emotionally and physically
many challenges for the whole hospital as an emergency. There draining. Rainbow Trust Family
family. As the family waits for a was so much equipment that there Support Workers like Ema help
mobility vehicle Ema provides was no room for Danielle in the the whole family, tailoring the
transport so they don’t have to ambulance. She was told to make support to each family member,
worry about booking and paying her own way – so Danielle called in the hope that we can make
for taxis, traffic jams and delays Ema, who was able to help and life a little easier, giving them
and can just focus on James. took her immediately. Fortunately, time to focus on what matters
the second operation went well the most to them.
As James’ brain is so fragile a and James went home later to
fall on a hard floor could be very continue his recovery.
dangerous so Ema helped the Help families and sponsor a
family to secure funds to lay carpet “Rainbow Trust makes you realise Family Support Worker like
throughout the whole house. that you’re not alone and that Ema today. Your sponsorship
there are many other families who will enable families who have
At the end of 2021 James started are in the same situation. The a child with a life-threatening
passing out, losing control of his Family Support Workers can guide illness to make the most of time
limbs and body and, as he is non- you to a more positive outcome in together because family means
verbal, he was pressing the back your life. everything.
“
of his head with the palms of his
hands. Unable to express what was
rainbowtrust.org.uk/
happening to him this showed he Ema has gone sponsor-us
above and beyond to
was having pain and discomfort.
This was due to a cyst on his brain.
The cyst was causing a blockage
and fluid was accumulating, help us. Ema is our own“
increasing pressure in his brain. Nanny McPhee!
Because of this, James recently
FAMILY MEANS EVERYTHING 7
YOUR SUPPORT
REALLY MATTERS
Your support helps change lives
Some of the children and families you have
helped us support during the past months.
Rachael and Thomas’ Family Support Worker
brother suffers from a Ema and Max had a painting
degenerative condition. session together. Max’s twin
Family Support Worker sister has a narrowing of the
Sophie took them on an airway above her trachea and
alpaca walk along the has a tracheostomy.
Keswick hills for a very
different support session.
Sonny, 15, who has Duchenne
Muscular Dystrophy, enjoyed
Musa, four, has recovered carving and decorating his
from a brain tumour but is ‘three-faced’ pumpkin with his
still under treatment. Musa Vanessa, who has sickle Family Support Manager Family Support Worker Georgia.
had a hospital appointment cell anaemia, having fun Sean went to see Mia, seven,
so Family Support Worker with her siblings and Family and Maisie, nine, and baked
Monica took his siblings Eisa Support Worker Sabrina at a lovely cake. Mia had an
and Nooriya to soft play. the beach. acquired brain injury that
lead to cerebral palsy and
complex health needs.
Marrveen, eight, at the
park with Family Support
Worker Sarah. His brother
Raynnav, three, has a serious
condition that affects his
development.
It is only thanks to your generosity
and support that we can help
families with a seriously ill child
The families we support face difficult and
challenging circumstances whilst they care for
their life-threatened child.
Family Support Workers tailor the support they
provide to each family. From key practical and
emotional support to the parents to giving the
ill child and brothers and sisters a break with
Family Support Worker outdoor activities and fun, playing, doing arts
Henry, seven, has been Sarah has supported Amelie’s and crafts, reading and providing a safe space
learning to lip read with family for over six years doing to talk. These sessions give the parents some
Family Support Worker school pick ups and holiday respite and help the children to have some
Mandy. Henry lost his hearing support for her and her three normality, at the same time as they improve their
due to his Mitchell syndrome, siblings. Amelie’s brother, wellbeing and increase their self-esteem.
a progressive disorder. Mason, 17, has a brain tumour.
Thank you for all your support.
8 FAMILIES FIRST
A WEEK IN THE LIFE OF A
FAMILY SUPPORT WORKER
Georgia is a Rainbow Trust Family Support Worker in the
Southampton Care team and shares a typical week with us
By Georgia Cooper Some names have been changed.
MONDAY: told me all about his day, and how diagnosed with a serious heart
excited he was that he got to see condition. His mum asked me
I was in Bournemouth today
me today. At home, we played lots if I could take him to watch the
visiting Tony and his family. Tony
of board games together and his new Spider Man movie so that he
is 14 years old and has Sanfilippo
mum and dad joined us for some could have some fun whilst she
Syndrome, a progressive disorder
of them, which he seemed to got on with some jobs around the
which means that he has very little
really enjoy. I spent time with his house. We spent a few hours at the
mobility, is non-verbal and his mum
mum, and she showed me some cinema, then we walked around
is his full time carer. I collected
photos and videos of Teddy and town to browse in some shops. We
Tony’s sister Amelia, nine, from
his brother that she had captured chatted about all the new Marvel
school and walked her home, we
over the last week which made her films that are coming out soon.
chatted about how her day was
beam with pride. On the drive home Ben said that
and all the amazing things she has
he really enjoyed spending time
been learning about.
WEDNESDAY: with me today and that he cannot
wait for my next visit. His mum
Once home, I was able to talk Neonatal care has been especially
was very appreciative and said
with their mum about how the difficult during the pandemic for
that it allowed her to have some
whole family had been since my parents of premature or seriously ill
time to herself to do things that
last visit. Today’s session with babies. Visiting can be complicated
she wouldn’t have been able to do
Amelia was more of a sensory by the distance that parents may
while looking after Ben.
experience, where we made some need to travel to see a seriously ill
slime together – which she really baby. Short and infrequent visits
enjoyed – and then we played with can create a barrier to caring and FRIDAY:
her Lego. bonding activities which can assist
On Fridays we have a team
in a baby’s development.
meeting in our Southampton
Sibling support is a really
We support many parents with office, where we all come together
important part of our service. It
seriously ill babies, and today I and share any latest information
can play a vital preventative role,
drove to Salisbury to collect a within the team and Rainbow Trust.
helping children to learn coping
mum from her home and took We also get the opportunity to
mechanisms, find an outlet for their
her to Princess Anne Hospital in share how our week has been, talk
strong feelings and worries, build
Southampton so that she could about the families that we have
a support network – as well as
see her baby, who was born been able to support during that
having some much needed fun. My
prematurely at 27 weeks. week and exchange ideas on how
visits with Amelia are very much
to improve or address anything
play and craft-based and allow Currently she can only see her
that may seem difficult.
her to talk openly to me about any baby twice a week, as travelling
worries that she may be feeling to and from the hospital is
regarding school or her brother difficult without support. On
Tony, in a safe space while doing the way there I provided some
the things that she loves. emotional support, I listened to Family Support Workers
her talk through her concerns like Georgia help families
TUESDAY: as well as the positives with a seriously or terminally ill
surrounding her baby and home child practically and emotionally.
Today I was invited to a school
life. Once I had dropped her It’s only thanks to your donations
in Southampton that Teddy, five,
off, it allowed her to have a that we can give life-threatened
attends to be presented with a
few much-needed hours with children and their families this
cheque. The school had raised
her baby. I then collected her expert support for as long as
money for Rainbow Trust over
from the hospital and drove they need it. Sponsor a Family
Christmas and wanted to donate
her back home to Salisbury, Support Worker like Georgia
it to a charity that supports Teddy
where we chatted more today. rainbowtrust.org.uk/
and his family through his cancer
about her baby’s progress. sponsor-us
diagnosis. I met the head teacher
and spoke about what we could
do to work together to continue to THURSDAY:
support the family.
I drove to Fleet this morning
Afterwards, I collected Teddy and to visit Ben, who is 12 years
drove him home from school. He old and has been
FAMILY MEANS EVERYTHING 9
FUNDRAISING THE i CHRISTMAS
CHARITY APPEAL
HEROES Our heartfelt thanks to the i and
its generous readers that helped
raise over £146,000 with the i’s 2021
Christmas Appeal. When we first knew
we had been selected for the appeal
we thought £75,000 would be an
impressive amount, so to have nearly
doubled it is truly brilliant.
This is enough for Rainbow Trust to
provide support to 82 families across
the UK for a year to help them cope
with the emotions and practicalities of
having a seriously ill child. Thank you.
The St Cuthbert’s Society
Denise did a 10 mile walk at Durham University raised
St James Group Ltd, part throughout Durham in £1,000 over two weeks of
of the Berkeley Group, did December (it was only 3 fundraising activities that Coffee shop Bob & Berts in
a Santa relay run along the degrees) and raised £967. included a bingo night, pub Lancaster raised over £1,038
Thames river in London in quiz, silent disco, karaoke during December by asking for
December raising over £1,200. and ice bucket challenge. charity donations at the tills.
l l o u r a m a zing
To a s
Hook with Warsash C of E Academy’s Head Teacher Sarah
supporter isers
and fundra
Willoughby hands a cheque for £410.05. The money was V Cars Chippenham
raised as Teddy is being supported by Family Support donated a generous
y o u !
£1,000.
k
Worker Georgia.
tha n
London’s West One Shopping Centre staff raised £1,287 by Reed’s School in Surrey held a Fun Santa Run in
holding a ‘One Great Day’ bucket collection. December and raised £1,108.
10 FAMILIES FIRSTBERNADETTE CLEARY OBE:
FOUNDING INSPIRATION
35 years later we keep going strong
In the autumn of 1981 a neighbour Word got around about how
came to Bernadette’s door and Bernadette had supported Rachel
asked if she could help a young and Maureen and she started
girl who had come home to die. It travelling round the country helping
was a tragic case. Rachel had been other families in a similar situation.
diagnosed with cancer when she Our new virtual support
was six, successfully treated and Bernadette is married to Dennis service consists of play
then, when she was 12 years old, and they have three children. As sessions which start after
the cancer returned. When Rachel’s well as that they have fostered over a support pack is delivered
father, an accountant who had 50 children. Bernadette set up to the family. Each pack
been happily married to Maureen Rainbow Trust in 1986, working
contains a puppet, paper, art
for 18 years, heard the news that from a shed at the bottom of the
materials and play dough, toys
his only child was dying he went to garden. She and Dennis personally
to relieve anxiety and boost
work one day and never returned funded all of her travel to families
concentration, and an emotions
home, leaving Maureen, a teaching with a seriously ill child while friends
journal. With this, the children
assistant, to cope alone. pitched in with coffee mornings.
can be creative and play at the
same time as they understand
When Bernadette met Maureen Bernadette’s vision was to make
their worries and emotions.
and her daughter they were in a the movement bigger, to be able to
Virtual sessions enable children
terrible state. Rachel had checked reach more seriously ill children and
out of the hospital, against her their families. to have one to one support and
doctors’ wishes to die at home. Her parents to have some respite
local GP refused to treat her, she 35 years on, and supporting over or some time to look after their
had no pain relief drugs and when 1,000 families each year, we are other children.
Bernadette first saw Rachel she expanding our reach with two
was in excruciating pain. brand new teams, one in Liverpool
and the other in Reading. We have
Bernadette’s first action was to continued to innovate and now
wait a whole day in hospital to see also provide virtual support,
Rachel’s consultant who was so allowing us to work with families
shocked by the situation that he where we may not have a care
made his first ever home visit to team on the ground.
give Rachel pain-controlling drugs.
Here’s looking forward to the next
Bernadette was there to help and 35 years.
support them, comforting both Read more about the expansion A virtual support pack costs
and consoling Maureen when at rainbowtrust.org.uk/news £60 and is sent to the family
Rachel died.
draise
free of charge
to f u n
Ways Skydive 35 Do the Distance
We are looking for 35 Challenge yourself and
brave people to sign up take on this virtual
and jump for us between challenge by running,
6 and 12 June 2022. walking, cycling or
swimming the distance
SKY 35
Help us to celebrate our Liverpool
from Liverpool to
35th year and tick off the Reading to help us reach
experience of a lifetime. more families in these
DIVE Imagine the rush as
you free fall at 125mph
new areas – an impressive
180 miles.
from 10,000 feet above
the ground, all whilst Do something amazing
raising vital funds to help Reading and go to
Rainbow Trust reach rainbowtrust.org.uk/
35 jumps for even more families with a events
35 years of care seriously ill child in 2022
and beyond.
FAMILY MEANS EVERYTHING 11We start
It’s About Time strategy
delivering a
launched to support future
new online
expansion plans to reach
care service
more families in need
faced with
COVID 19
restrictions 2019
2021 2020 2018
We confirm future plans We establish our first We publish Hidden
to open new care teams formal partnership with a Savings showing that
in Liverpool and Reading hospice (Shooting Star our service saves the
Children’s Hospice) to jointly health and social
deliver support to families care system at least
Our pilot for £2 million each year
West London Care specialist neonatal
Team launched care begins
2010 2014
2009 2012 2016
To focus all resources on We start to We launch a specialist support
family support, we close support families service for children with serious
Rainbow House in Central London heart conditions
and Rainbow Fernstone
2007
We contribute to the government’s
2008
Better Care, Better Lives, the
2012
The economic impact of Rainbow Trust’s support is
independent review of palliative first national strategy for children's quantified for the first time by York Health Economics
care services for children and palliative care is published Consortium; we help public services save money
young people in England
Rainbow
We start to Fernstone in
Greater Manchester Essex Care support families Hexham
Team launched Team launched in Cumbria officially opens
2004 2001 1998 1996
20
2006 2003 2000 1996
2006 Founder The government's Rainbow Trust We start to
Bernadette Cleary programme for children joins the digital age support families
awarded OBE and children's services in the North East
Every Child Matters is
published
First care team Rainbow Trust Patron,
We employed our first set up in George Michael, pledges
dedicated fundraiser Southampton half of all royalties from
1987 1990
hit single Don’t Let the
Sun Go Down on Me to us
10
1986 £
1990 1991 1996
Rainbow Trust Children’s Alan Titchmarsh OBE
Charity registered by opens Rainbow House
Bernadette Cleary
YES! I would like to help life-threatened children and their families today Registered Charity No.10
Title Name Surname
Address
Postcode
I would like to receive emails: Please call me on:
£15 £25 Other:
Please send your donation to:
I enclose my cheque made payable to Rainbow Trust Children’s Charity or Rainbow Trust Children’s Charity, Cassini Court,
Please charge my: Visa MasterCard Maestro Amex Randalls Way, Leatherhead, Surrey KT22 7TW
T: 01372 220083 E: supportercare@rainbowtrust.org.uk
Name on card:
rainbowtrust.org.uk/donate-magazine
Card No:
Security Code: Issue No: Start Date: / Expiry Date: /
Please tick, sign and date here to boost your donation by
25p of Gift Aid for every £1 you donate, at no cost to you. Sign: Date: / /
I want to Gift Aid this donation and any donations I make in the future or have made in the past four years to Rainbow Trust Children’s Charity. I am a UK
taxpayer and understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all of my donations in that tax year it is my
responsibility to pay any difference.
Friends and supporters of Rainbow Trust like to receive information and appeals from us. Your support is vital, and we really want to stay in
touch but please tick this box if you don’t want to receive this information by post.You can also read
