ELDERUPDATE AMERICANS MONTH CONNECT, CREATE, CONTRIBUTE - FLORIDA SENIOR DAY - Florida Department of Elder Affairs
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E L D E R A F FA I R S .O R G
ELDERUPDATE
MAY/JUNE 2019 NEWS BROUGHT TO YOU BY THE DEPARTMENT OF ELDER AFFAIRS VOL. 30, NO. 3
CELEBRATING OLDER
AMERICANS MONTH CONNECT, CREATE, CONTRIBUTE
Richard Prudom at the Florida Department of Elder communities support and celebrate you and your family live and live
Secretary Affairs as we work to help them age their diversity. well. Follow us on Facebook and
Florida with dignity, respect, and indepen- Twitter for more updates on our pro-
Department dence. We are striving to make Flor- This year’s theme, Connect, Create, grams, projects, and goals. We want
of Elder Affairs ida an Age-Friendly state full of Liv- Contribute, encourages older adults to inspire you to create through art,
able Communities where we all can and their communities to: social media, or even an oral his-
Each year, more older adults are live and live well, and we take the tory project with your family, and
choosing Florida as their home. We opportunity this month to celebrate • Connect with friends, family, and we hope that you will continue to
are proud to have more than five and and recognize those residents who local services and resources. contribute to your communities and
a half million older residents, as well make our state so great. our great state.
as the highest population percentage • Create through activities that
of 65+ in the nation. These numbers As volunteers, employees, employers, promote learning, health, and Communities that support and rec-
may not sound that high to you, but educators, mentors, advocates, par- personal enrichment. ognize older adults are stronger. I
they really are impressive. In fact, our ents, and grandparents, older Florid- invite you to join DOEA in strength-
senior population outnumbers the ians offer insight and experience that • Contribute time, talent, and life ening our communities this May and
senior population of 20 other states benefit the entire community. That’s experience to benefit others. throughout the year.
combined, as well as the TOTAL why Older Americans Month (OAM)
POPULATION of Alaska, Delaware, has been recognizing the contribu- The Florida Department of Elder Visit our Department website at
North Dakota, Rhode Island, South tions of this growing population for Affairs will celebrate OAM by pro- elderaffairs.org, as well as the official
Dakota, Vermont, and Wyoming. more than 50 years. moting ways that Floridians of all OAM website at acl.gov/oam/2019/
ages can take part in helping our older-americans-month-2019, for
All projections tell us that our popu- Led by the U.S. Administration for communities thrive. We encour- ideas and inspiration and to learn
lation of older Floridians will con- Community Living (ACL) each May, age you to connect with us and more about how we are working to
tinue to grow – by more than 38% OAM provides resources to help your local Area Agencies on Aging make Florida an Age-Friendly State.
in fact – over the next decade. Our older Americans stay healthy and or Councils on Aging to learn more
seniors drive what we do every day independent, and resources to help about the resources available to help
May/June 2019 A LOOK INSIDE
News From Our Local PSAs Memory Disorders
Planning and Service Area 3....................................... 3 Alzheimer’s Disease Clinical Trial Research................ 14
Homeownership Governor DeSantis's Key Alzheimer’s Initiatives........ 14
Reverse Mortgage Relief Still Available for Seniors..... 4 Transportation
What You Should Know About P.A.C.E Financing........ 4 The Keys to Achieve Safe Mobility for Life..................15
Guardianship Emergency Preparedness for Your Vehicle.................15
When You Should Choose a Professional Guardian..... 5 Health and Wellness
Long-Term Care Ombudsman Nutrition Resources Available to Seniors.................. 16
A Conversation with Frank Charles.............................. 6 CACFP Week 2019 | March 18-22................................17
LTCOP Volunteers Needed in the Panhandle............... 9 The Public Health Needs of Older Floridians...............17
SHINE Senior Athletes
When to Provide My Social Security Number?.......... 10 Couple Takes the Road to National Senior Games.....20
Dear Judy....................................................................11 Elder Abuse Prevention Awareness
Florida Senior Day 2019 World Elder Abuse Awareness Day............................ 24
FLORIDA
Florida Senior Day Forum and Reception ................. 12 The Power to Prevent Abuse Is in Your Hands........... 24
Another Successful Florida Senior Day...................... 13
SENIOR DAY
MORE ON PAGE 12
2 LETTER FROM THE EDITOR MAY/JUNE 2019
Elder Update
ELDER UPDATE
(USPS 403-710/ISSN 1060-4545)
LETTER FROM THE OLDER
AMERICANS
Elder Update is a bimonthly
publication mailed in state to
Florida residents at no cost to
EDITOR-IN-CHIEF MONTH
Allison Burtoft, Editor-in-Chief CONNECT, CREATE, CONTRIB UTE MAY 2019
recipients. Out of state, Elder
Update may be accessed at
elderaffairs.org. 2019 is shaping up to be a busy year based, compassionate care. The event Program. We are so thankful for our
at the Florida Department of Elder brought together more than 50 vol- volunteers, as they allow us to con-
Ron DeSantis
Governor Affairs (DOEA). This year began unteers, who delivered hot meals and tinue to provide services to seniors
with focuses on Alzheimers’ initia- snacks while visiting with Tallahas- throughout the state.
Richard Prudom tives and creating Livable Commu- see seniors.
Secretary
nities. Through these efforts, we This May, we celebrate Older Ameri-
Ashley Chambers are developing ways to better serve On March 27, over 1,000 seniors cans Month with our partners at the
Communications Director our 5.5 million seniors in Florida. In celebrated Florida Senior Day in Administration for Community Liv-
Allison Burtoft addition to these key initiatives, the the State Capitol Courtyard. Guests ing. This is our opportunity to thank
Editor-in-Chief Department participated in many enjoyed entertainment from senior older Americans for their contribu-
Liz Jameson events and continued to provide groups and local performing groups tions. We encourage seniors to stay
Editor resources to elders throughout the throughout the day. The day also engaged, as older adults play an
Haven Capone state. included free breakfast, lunch, and a important role in keeping our com-
Layout Editor & Graphic Design special noon program with speakers munities diverse. The 2019 theme
Elder Update welcomes At the end of February, DOEA and leaders from across the country. encourages seniors to stay involved
submissions from readers. kicked off March for Meals month in their communities by keeping in
However, due to the volume of by participating in Elder Care Ser- Following Senior Day, we celebrated mind these three concepts: Connect,
submissions, acknowledgements vices’ Big Wheels Deliver Meals our many volunteers during Flori- Create, and Contribute.
cannot be mailed. Articles Program. Several leaders represented da Volunteer Month in April. The
selected for publication must the Department, including Secretary Department had the opportunity to We are lucky to serve such an incred-
provide accurate information
to Florida’s elders about Richard Prudom. Big Wheels Deliver thank our many volunteers includ- ible senior population, and we are
aging-related programs and Meals supports Elder Care Services’ ing those from our SHINE program thankful to celebrate these moments
services and complement the mission to promote community- and the Long-term Care Ombudsman with you.
Department’s mission. The
SUDOKU 5 2 4 7
editor reserves the right to edit
submitted material.
Department of Elder Affairs
4040 Esplanade Way
Tallahassee, Florida 32399-7000
Phone: 850-414-2000
There is only one valid solution to each Sudoku
puzzle. When you start a game of Sudoku, some
9 1
TDD: 850-414-2001
POSTMASTER:
blocks will be pre-filled for you. You cannot
change these numbers in the course of the game.
Each column must contain all of the numbers 1
7 2 6 9 4 5
Send address changes to:
Elder Update
Department of Elder Affairs
through 9, and no two numbers in the same col-
umn of a Sudoku puzzle can be the same. Each
row must contain all of the numbers 1 through 9,
9 6 4 3
4040 Esplanade Way
Tallahassee, Florida 32399-7000 and no two numbers in the same row of a Sudoku
puzzle can be the same. Each block must contain
Periodicals postage paid at all of the numbers 1 through 9, and no two num-
Tallahassee, Florida, and
additional offices.
In accordance with United States
bers in the same block of a Sudoku puzzle can be
the same. Good luck! 3 7 6 1
Postal Service regulations, the Florida
Department of Elder Affairs publishes
and distributes five regular issues and
Solution found on page 22.
www.brainbashers.com
2 9 7 5 6 4
8 2
one special edition of Elder Update Sudoku Puzzle © Kevin Stone
each year. To view Elder Update’s 2018
Statement of Ownership form, please
4 3 2 5
email your request to information@
elderaffairs.org or call 850-414-2000.
MAY/JUNE 2019
Elder Update PLANNING AND SERVICE AREAS 3
PSA 3
Florida is divided into 11 Planning and Service
SPECIAL THANKS Areas (PSAs). Each PSA is made up of several
Elder Update staff is deeply gratified counties that receive services through an Area
by the many generous donations given Agency on Aging (AAA) centrally located in
recently by our readers. Your generosity the PSA. AAAs contract with the Department
and kindness are truly appreciated, and of Elder Affairs to provide services locally that
your donations will be used to ensure
the continued production of Elder News From Our best meet the needs of elders.
Local Planning
Update. PSA 3 includes Alachua, Bradford, Citrus,
Columbia, Dixie, Gilcrist, Hamilton, Hernando,
• Mrs. Rose Webberly Lafayette, Lake, Levy, Marion, Putnam, Sumter,
and Service Areas
• Ms. Julia DeCicco Suwanee, and Union counties and is served by
Elder Options.
• Ms. Juanita Prinz
Kathy Dorminey Caregiver Lunch and Learn Series
• Ms. Elizabeth Helms Elder Options In response to expressed needs from community
members, Elder Options has launched a series
Abuse Later in Life Grant focusing on providing family caregivers with
Elder Options was awarded the Abuse Later in opportunities for socialization while gaining infor-
Life grant by the Office on Women’s Health. The mation and skills to better address the needs of the
grant provides funds to employ a full time Elder persons to whom they give care and to care for
Abuse Prevention Coordinator who will work with themselves.
the Senior Advocacy Network of North Central
Florida to address elder abuse as part of a commu- T-Care Assessment Tool (Pilot)
nity-wide effort partnering with legal profession- Caregivers experience a great deal of stress. This
als, first-responders, health professionals, and other impacts their health and general sense of well-
concerned community members. being. The right tools can go a long way in reduc-
ing that stress and improving their quality of life.
Dementia Care & Cure We are excited to partner with TCARE® to pro-
Initiative/Aging vide comprehensive assessments that will identify
Friendly Communities
THIS JULY:
the needed resources to help caregivers take care of
Elder Options is working their loved ones and themselves as well.
with a community coali-
tion to focus on develop-
Elder Update's Special Edition ing the greater Gaines-
Disaster Preparedness Guide ville area as an aging and
dementia friendly community.
Our annual Disaster Preparedness Guide We are inviting businesses to participate in demen-
is coming to Elder Update subscrib- tia training and to become designated “dementia
ers in July 2019. Stay tuned for facts and friendly” businesses. The Alachua County Fire
information on how best to prepare for Rescue is currently providing dementia training to
disasters that affect our home state. Our all their first responders.
Disaster Preparedness Guide includes
safety tips for hurricanes and other natural 38 Years of Service to Area Agency on Aging
disasters. The Florida Department of Elder Mr. Charles Miller, Board President, was recog-
Affairs works with the Florida Department nized at the March 6, 2019, Board of Directors
of Emergency Management and FEMA to meeting for 38 years of service to seniors, caregiv-
best prepare Florida citizens for all cir- ers, and persons living with disabilities through
cumstances. We encourage you to take the Area Agency on Aging, Elder Options, serving
every opportunity to get ready for hurri- PSA 3. Elder Options is honored by his caring and
cane season, which begins on June 1, and commitment.
read our Disaster Preparedness Guide
upon its release to ensure you have the Pictured Right: Kristin Griffis
resources you need for natural disasters. presenting an award to Charles
Miller for his 38 years of service.
4 HOMEOWNERSHIP MAY/JUNE 2019
Elder Update
Applications for Reverse Mortgage
Relief Close at the End of June Senior Homeowner Alert:
What You Should Know About P.A.C.E. Financing
Taylore Maxey
Florida Housing Finance Corporation Ellen Cheek, Esq. and they can make P.A.C.E. sound very appeal-
Florida Senior Legal Helpline ing. For example, they may say that the govern-
The Florida Housing Finance Corporation is ment wants you to exchange your old appliance
announcing that the Elderly Mortgage Assistance What Is P.A.C.E. Financing? for a more efficient model. They may also say
Program (ELMORE) will close the program to new P.A.C.E. stands for “Property Assessed Clean that you don’t have to pay anything now. But
applications on June 30, 2019. Energy.” It is a program authorized by Florida remember: these improvements are NOT FREE
statute which provides an option for financing and the cost to you will be on your property tax
Do you owe your reverse mortgage lender/ser- an energy-saving home improvement like a high bill.
vicer money for taxes, insurance, and/or associa- efficiency air conditioner or ENERGY STAR
tion dues? Are you facing the threat of foreclosure? windows and doors, for example. P.A.C.E. is Participating contractors may also say that you
There is a program that could help! ELMORE actually a fairly complicated program, but there will be entitled to an income tax refund or credit.
is designed to provide up to $50,000 to eligible are a few simple points that can help a homeown- But that is only the case for a “qualified improve-
seniors with reverse mortgages or assistance with er understand what a P.A.C.E. home improve- ment” AND only if you pay income taxes. If you
property taxes, insurance policies, and association ment involves and what a homeowner should do not pay income taxes, you will not get a credit
dues and other property charges. If you qualify for know before committing to a P.A.C.E. financing or refund. Even those who do should talk to a tax
assistance, you could also receive help with up to agreement. professional for additional information.
12 months of future property charges.
These improvements are NOT FREE. The cost of Finally, a contractor may tell you that the new
The ELMORE program is open and accepting the improvement is added to your property tax appliance/improvement will pay for itself in util-
applications until June 30, 2019. Now is the time bill, even if you do not usually have to pay prop- ity bill savings. That is not always the case and is
to apply. To assist seniors in applying for the erty taxes. There is no exemption, like the home- certainly not guaranteed. Furthermore, having a
ELMORE Program, Florida Housing Finance stead exemption, for this obligation. This is the P.A.C.E. lien on your property may impact your
Corporation has established a partnership with “Property Assessed” part of “Property Assessed ability to refinance or sell your property.
the Florida Department of Elder Affairs (DOEA) Clean Energy.” Payments must be made to the
and National Foundation of Debt Management Tax Collector each year until the debt is paid, As with any home improvement, protect yourself!
(NFDM), a certified reverse mortgage counselor. sometimes for as many as 20 years. It’s important to be very wary of home improve-
ment contractors who come door-to-door. You
The NFDM counselors are available to assist Eligibility for P.A.C.E. financing depends upon should always ask for their Home Solicitation
seniors in completing the Florida ELMORE appli- several factors that focus on the property. For Permit and their Contractor’s License Number.
cation. They will be happy to answer questions example, the property taxes and mortgage, if any, You may call the Florida Department of Business
about the program and explain the requirements. must be current. The property cannot be in fore- and Professional Regulation (1-850-487-1395) for
This service is FREE-OF-CHARGE and seniors closure, nor be the subject of a recorded involun- licensing information. Do not sign a document
will not be asked to pay for any services. tary lien such as a construction lien. on a tablet or other device if you cannot see the
whole document or you haven’t read/understood
Please call 1-800-601-3534 to talk with an But, unlike with a conventional loan/financing, it, and never sign your name on a tablet or other
ELMORE counselor who can answer any questions there is no consideration of your income or assets. device or a piece of paper that is blank.
and let you know the steps that need to be taken to That means that if your property meets the above
get you qualified. The line is open Monday-Friday, requirements (no liens or unpaid taxes or mort- Remember that the business wants YOUR busi-
9:00 a.m. - 7:00 p.m. gage arrears, etc.), your financing will likely be ness; take your time in making a decision on any
approved without consideration of your ability improvement to your home. In addition to check-
There will be ELMORE events throughout the to pay the new property tax assessments. If you ing up on the contractor’s licensing information,
state where you can meet with a counselor to assist have a mortgage, you must consider whether you tell them you need time to consider whether you
you with the application. Call our toll-free line to have the ability to pay an increased monthly pay- can afford an increased property tax assessment
find out if an event will be in your area to set up an ment because your escrow will go up to accom- or an increased escrow amount.
appointment for a face-to-face meeting. modate the increased property taxes. YOU must
decide whether you can afford to make these For advice or more information about P.A.C.E.
For a complete description, terms of assistance, payments. financing, you may call The Florida Senior Legal
and eligibility criteria for the ELMORE program, Helpline (1-888-895-7873) which provides free
visit floridaelmore.org. Home improvement contractors who participate legal advice for eligible Florida seniors.
in P.A.C.E. programs often come door-to-door,
MAY/JUNE 2019
Elder Update GUARDIANSHIP 5
WHEN YOU SHOULD CHOOSE
A PROFESSIONAL GUARDIAN
Al Rothstein »» Court may require bonding and
Florida State background investigation (crim-
Guardianship Association inal and credit)
If you become involved in helping Professional
a loved one during the guardian- • Any guardian who receives/has
ship process, it is important to know received compensation for ser-
the difference between the types of vices to two or more non-related
guardians. Guardianship is a legal individuals under guardianship
proceeding in the circuit courts in
which someone is appointed to exer- • Training:
cise the legal rights of an incapaci-
tated person. »» Complete 40 hours of training
and successfully pass compe-
There are family members who tency exam
sometimes take the role, as well as 3. A family member may be finan- ber capable of making sure he
professional guardians. »» Complete 16 hours of continu- cially exploiting the ward and doesn’t fall victim again.
ing education every two years isn’t complying with reporting
While many family members can requirements. 8. A guardian’s responsibilities,
be excellent guardians with proper »» Obtain a blanket bond of at least including the accounting and
training, sometimes they are not the $50,000 4. A ward’s mental illness may be reporting to the court, can sim-
best choice. A neutral, experienced so severe and his behavior so ply be too intimidating for a
properly-trained professional guard- »» Register with the Office of Pub- offensive that: family member.
ian has many advantages. lic and Professional Guardians
»» His older siblings can’t handle 9. The family member may have
TYPES OF GUARDIANS »» Undergo credit and criminal him or his affairs. He is verbally filed for bankruptcy in the past
Some of the differences in profes- background checks abusive to them and they cannot seven years, so they cannot get
sional and family guardians are as maintain a relationship. bonded.
follows: The following top 10 situations, com-
piled by members of the Florida State »» It becomes a situation in which 10. If a family member has commit-
Non-professional/Family Guardianship Association (FSGA), family members are no longer ted a federal crime, they would
• Any guardian who has rendered show when it is not a good idea to trained enough to assist. be disqualified to serve as a
services to less than three persons have a family member as the guard- guardian.
ian of a loved one: 5. If the ward’s children were
• Training: abandoned by the ward during a There are many devoted family mem-
»» Satisfactorily complete eight 1. If the adult children cannot divorce. Their relationship may ber guardians, and sometimes that is
hours of training agree on who should be the be so tarnished that they don’t what the ward prefers. But we must
guardian. This can cause dis- want the responsibility of man- all recognize that sometimes it’s just
»» May not have been convicted ruption and ongoing controver- aging the ward’s affairs. not in the ward’s best interest.
of felony, judicially determined sy, which results in inconsistent
to have committed abuse, aban- care for the ward, the person 6. If the ward’s siblings are out of If you have questions about the
donment, neglect, or certain under guardianship. state and have seldom visited, guardianship process, please
other offenses and their parents are deceased, don’t hesitate to contact us at
2. A family member may be dis- or if the ward is estranged from floridaguardians.com. We are here
»» May not be in employ of per- ruptive in a negative way to family members who later come to uphold the highest standards of
son, agency, government, or health care providers and staff out of the woodwork because guardianship in Florida so that our
corporation giving service to at the nursing facility where the they see a financial benefit. most vulnerable citizens get the
proposed person ward is staying, if they don’t proper care they deserve.
agree with the facility’s care. 7. If the ward lost money to scam-
»» Be represented by attorney mers and has no family mem-
6 LONG-TERM CARE OMBUDSMAN MAY/JUNE 2019
Elder Update
VOLUNTEER
SPOTLIGHT { A Conversation With Frank Charles,
Long-Term Care Ombudsman
Angelique Witmer Frank became an ombudsman in middle of the night and on holidays
Long-Term Care Florida nine years ago after serving such as Christmas Eve to address
Ombudsman Program long-term care residents of New York residents’ concerns.
for seven years. He became inspired
“If you want to make the most out to help long-term care residents after “When you sign up for this job, you
of visiting residents, visit the dining his wife passed away. During her owe it to the people to do what you
room. Mealtime is what many resi- final years, Frank served first as her can for them,” says Frank.
dents look forward to, but sometimes full-time caregiver and, later, when
it may be all a resident looks forward she moved into long-term care, as Sometimes, a resident council may
to. If residents are sitting in the din- her strongest advocate. Following her experience changes which can
ing room for half an hour straight in death, Frank worked through grief lead to its dissolution. For example,
silence, I am concerned. That’s no by helping other long-term care resi- after a resident council president
kind of life. Some residents don’t dents as a volunteer ombudsman. announced their resignation, no one
come out of their rooms until meal- volunteered to take on the respon-
time with nothing to do in between,” “I wasn’t in a mood to do a lot of sibility of presiding over council
says Frank Charles, volunteer socializing after my wife’s death. meetings.
ombudsman with the Florida Long- The Ombudsman Program was great
Term Care Ombudsman Program. for me. I put a lot into it and got even “I informed the residents that with-
more back. I thought of any number out a president, the council meetings
To help residents feel comfortable of things to do as a volunteer and would be led by facility staff. The
speaking with him, Frank avoids chose to do something that, at the meetings are designed for residents PICTURED ABOVE:
closed-ended questions that sound end of the day, I could come home to have privacy to address concerns.
like a script. and know I’d done something good If staff are leading meetings, resi-
JUNE PINARD AND
for someone,” says Frank. dents will not have access to private FRANK CHARLES.
“I ask open questions like, ‘I hear discussion,” stated Frank.
the food here is exceptional. What For Frank, his most important contri- residents’ rights concerning resident
do you think?’ A great way to start bution to residents is in making sure Frank gauges the level of respect councils.”
a conversation with a resident is by they know he is there for them and facility staff show residents by
asking, ‘What are the three things working to earn their trust and confi- whether resident councils receive Frank often provides education to
you like most about this place?’” says dence. His primary way of doing this support. He has seen examples of residents and staff about residents’
Frank. is by attending resident council meet- unsupportive facility staff at meet- rights. He diplomatically negotiates
ings. Resident councils are created ings he has attended. Once, uninvit- on behalf of residents using skills
Another way to learn about what resi- by and for residents to be an instru- ed staff members continuously inter- and techniques he developed over the
dents want and need is to visit in the ment of self-advocacy. Frank makes rupted a closed meeting. On another years as a sales director. He teaches
afternoon on weekends, when fami- a point to attend any meeting he is occasion, staff insisted upon taking new volunteers to approach every
lies and friends are more likely to invited to. the meeting minutes. Once, Frank situation with the same gentle kind-
visit. helped residents reset a meeting ness he uses to obtain positive results
“The resident council meeting is one room strewn with chairs, tables, and for residents.
“Family members will tell you a lot. of the most important tools to gather items from previous activities.
Always figure that what a resident information on how to help,” says “It doesn’t help to go into conversa-
or their loved one tells you is right. Frank. “Many residents are in wheelchairs tion with a puffed up chest like you
Don’t dismiss them because they’re and have limited mobility. They just scored a touchdown. Kindness
older or may have dementia,” says Frank frequently visits residents to should not have to move tables and opens possibilities. There’s not many
Frank. ensure they recognize him and is chairs and clean up a room,” Frank directions you can go with confronta-
happy to provide his personal num- says. “Staff need more education on tion except for more confrontation,”
ber to them. He accepts calls in the says Frank.
MAY/JUNE 2019
Elder Update LONG-TERM CARE OMBUDSMAN 7
Recently, he put gentle kindness into action by lars from the facility, following the state’s require-
facilitating a way for residents at multiple facili- ment for long-term care facilities to have back-up
ties to obtain a state issued I.D. without having to generators. Frank advocated for all residents and
withstand long lines or worry about transportation. was able to negotiate an agreement with the facility
Frank learned from one resident about difficul- to provide refunds to any residents who had paid
ties using banking services without a state I.D. He a fee.
researched to determine whether other residents
were experiencing similar trouble, as elders in “Frank is the nicest guy,” says North Central
long-term care may have turned in their driver’s Ombudsman Lori Berndt. “He daily inspires me
licenses. with his hard work and persistence to help resi-
dents. He is an amazing role model and gladly
Frank discovered many residents had experienced takes on any challenge.”
similar problems. He began contacting local coun-
ty resources and arranging for groups of residents As for Frank, age is just a number and no excuse
to receive identification cards without having to for inactivity. When he’s not visiting with residents
wait in lines. He negotiated with facility staff to or working with other volunteers, he is likely play-
arrange for groups of residents to be transported by
bus and also distributed necessary forms to facili-
ing bridge or gin rummy at weekly matches. Be a voice for those
ties for residents to fill out ahead of time with staff “I think I’m alright; however, some of the guys I unable or afraid to speak
assistance. play with think they are fantastic!” Frank exclaims.
for themselves.
“As an ombudsman, I have to be thinking all the Recently, Frank walked out in the middle of Apply today to become a state-certified
time, outside of the box – not just what’s on paper,” rummy playoffs to attend a resident council volunteer long-term care ombudsman.
says Frank. meeting. Meal and mileage reimbursement included.
“No specific training, instruction, or experience
prepared Frank for such a great advocacy,” said
“I had an opportunity to win some money in the
playoffs, but I needed to know what was going on 1-888-831-0404
State Ombudsman Michael Milliken. “He single- with some residents who weren’t able to have pri- ombudsman.myflorida.com
handedly worked out a solution for many residents vate meetings or hold votes,” explains Frank.
at multiple facilities that can be applied in other
areas of the state for the benefit of all residents.” Frank doesn’t anticipate retiring from ombudsman
duties any time soon.
Frank hopes for more volunteers like himself who
are willing to spend time with residents and advo- “I share a car, but if I had my own, I’d be volunteer-
those who will need long-term care in the future.
cate for their rights. ing even more. Money couldn’t pay me enough for
According to the Department of Health and Human
what I get out of helping long-term care residents.
Services, today’s 65 year olds have an estimated 70
“As a salesperson, I had to make calls and show This program is great for long-term care residents
percent chance of needing long-term care at some
up to get results. I apply this strategy to advocating and it’s great for me. It gives me exercise and
point. Of all current 65 year olds, about 20 percent
for residents. I show up to get results. I’m 88. If I keeps me mentally alert and sharp. I hope I never
will need long-term care for more than five years.1
can do it, others can, too,” says Frank, who also have to retire from this work. Because I’m 88, I
hopes for increased protections for long-term care know I will – I can’t go on forever. But, I’ll do it as
“It is our honor to highlight Frank,” says State
residents through legislative change. long as I can, the best I can,” he said.
Ombudsman Michael Milliken. “There are only
so many special people, and Frank is one of them.”
“Existing policies need to be weighted more in the Each May, the nation observes Older Americans
interest of residents,” warns Frank. “Facility staff Month to recognize the key role older adults play
sometimes don’t thoroughly review documents in the vitality of our neighborhoods, networks, and 1 U.S. Department of Health and Human Ser-
with residents and their families who may not lives. Most volunteers with the Florida Long-Term vices. How Much Care Will You Need? Accessed
know what they’re signing.” Care Ombudsman Program are older adults. Vol- 3/18/2019. longtermcare.acl.gov/the-basics/how-
unteer ombudsmen are passionate about improving much-care-will-you-need.html
Frank gives an example of residents at one facility the quality of care and quality of life for people
who each were billed a fee of several hundred dol- currently living in long-term care settings and
8 LONG-TERM CARE OMBUDSMAN MAY/JUNE 2019
Elder Update
Local Council The dedicated volunteers of the Florida Long-Term Care Ombudsman Program were asked to share
local stories highlighting how a resident was helped by their work. The stories, submitted from all
over the state, are bound together by residents who have a better quality of life and increased quality
SUCCESS STORIES of care due, in part, to the dedicated efforts of volunteer ombudsmen.
WITHLACOOCHEE council for residents. The ombudsman arranged a
A facility prohibited two romantically involved meeting between the facility owner and residents
residents from spending time together, sharing after learning the administrator did not believe
a room, or even touching without staff supervi- residents wanted a resident council. At the meeting,
sion. The administrator did not think one of the residents voiced their concerns to the owner. After-
residents possessed the ability to consent. The local wards, a staff member was designated to assist resi-
ombudsman attended a care plan meeting with dents in forming their new resident council. Many
facility staff, both residents, and the residents’ fam- residents attended the first meeting and voted for
ilies to advocate for the residents’ rights to be in officers to lead the council. South Dade & the Keys Council. (Pictured
a consensual adult relationship. The ombudsman Above) Left to right: Estela Gallo, Carol
suggested a physician evaluate the ability of the res- Stanley, Iliana Hernandez, Alicia Salinas,
ident to consent. Later, a physician determined the Phyllis Ehrlich, Alina Rodriguez, Rosa Suarez.
resident was capable of giving consent. Staff then
agreed to respect the residents’ privacy, intimate SOUTH CENTRAL
relationship, and need for physical contact. An elder involved in a car accident during a hur-
ricane was placed in the first available facility far
from their home due to the emergency situation.
After the storm, the resident received no assistance
from staff to transfer to a facility closer to their
home. The resident also had difficulty traveling
to search for a new facility. The local ombudsman
Palm Beach Council. (Pictured Above) Back:
advocated on behalf of the resident, which led to
Fakhry Boulos, Margaret Riccardi, Sheila
the resident soon being able to move into a facility
Mitchell, Marty Weissman, Howard Feuer,
closer to their family and friends.
Joan Elsner, Patrick Cannan. Middle: Flo
Lippman, Dan Insdorf, Bru Heron, Joel
Levinson, Ken Gordon. Front: Jane Wechsler,
Joann Farrell, Jeffrey Novick, Anita Yanuck.
Withlacoochee Council. (Pictured Above)
Back: Winston Sherman, Don Hankey, SOUTH DADE
Frank Charles, Emmie Pearson, Marilyn & THE KEYS
McCabe, Marcy Kelly, Vincent Campano, A resident received a discharge notice after making
Phylis Berger, Donna Bragg, Terry complaints. The resident did not want to leave their
Delia. Middle: Janet Bostrom, Marie home and was concerned the facility was evicting
Brand, Sandy Price, Linda Harmon. Front: them in retaliation for making complaints. The
Margie Chu, Elaine Drediame, Don Ruths, facility owner told the local ombudsman that the South Central Council. (Pictured Above)
Chaya Gil, June Pinard, Mary Nichols. discharge notice was given to the resident before Left to Right: Doris Thews, Owen Bailey,
the resident made any complaint. The ombudsman Wanda Harrison, Terre Anne Lindstamer,
PALM BEACH discovered dated records showing the discharge Lillian Bahamonde, Donna Holden, Lee
Residents who wanted to form a resident council was issued after a complaint investigation began. Earls, Samantha Kotz, Linette Geisel.
asked the local ombudsman for assistance. The The ombudsman notified the licensing agency,
ombudsman informed the administrator that a which resulted in the facility having to rescind the
“resident committee” organized and operated by the discharge notice and allow the resident to continue
facility for administrative purposes was not a true living at the facility.
EDITOR’S NOTE We will continue to highlight the successes of the Long-Term Care Ombudsman Program
throughout upcoming issues in the series titled Local Council Success Stories.
MAY/JUNE 2019
Elder Update LONG-TERM CARE OMBUDSMAN 9
LONG-TERM CARE OMBUDSMAN PROGRAM
VOLUNTEERS NEEDED IN THE PANHANDLE
Nancy King Hurricane Michael displaced most volunteer
Panhandle District Ombudsman Manager ombudsmen in Bay and the surrounding counties,
Long-Term Care Ombudsman Program creating a shortage of long-term care advocates
in the area. Last year, volunteers addressed over
Volunteers are a unique and dedicated group of 170 complaints in the area with 105 of those in Bay
people who come from all walks of life to work County alone. With over 3,300 long-term care beds
together for the greater good. In the aftermath of in close to 50 long-term care facilities throughout
Hurricane Michael, volunteers have spent countless the area, the volunteer shortage is already affecting
hours helping with ongoing recovery and cleanup residents.
efforts. Despite these efforts, one vulnerable group
of Floridians is at risk of being overlooked and The Long-Term Care Ombudsman Program has
underrepresented. immediate openings for volunteer positions in
Bay and surrounding counties. An ideal candi-
People living in long-term care facilities such as date is patient, compassionate, has good listen-
nursing homes, assisted living facilities, and adult ing skills, and possesses a genuine concern for
family care homes rely upon volunteers with the long-term care residents’ well-being. Advocating
Florida Long-Term Care Ombudsman Program to for long-term care residents requires professional
advocate for their health, safety, welfare, and rights. training, provided by the state. Meal and mileage
They may feel alone, isolated, and without a say in reimbursements are available for training and vol-
their daily care. Unfortunately, many of them do unteer hours. Long-term care advocacy is well-
not have anyone to look out for their best interests. suited to those who can make a commitment of at
Nearly 60 percent of long-term care residents do least one year and are able to devote at least a few
not receive visits from family and friends. Addi- hours a week to checking on residents’ well-being.
tionally, many frail elders in long-term care may The work is often challenging but the rewards are
be unwilling or unable to speak up for themselves. immense.
Even though retaliation against a resident is pro-
hibited by Florida law and subject to penalty, some As one volunteer ombudsman puts it, “I enjoy the
long-term care residents and their families are smiles, handshakes, and interaction with residents.
afraid of what will happen to them if they make a Our long-term care residents need someone who is
complaint. genuinely concerned about them…my father once
told me that if you don’t do something to help other
Volunteers with the program, called ombudsmen, human beings, you might as well not be here. I religious organizations and at community events
become state-certified to handle complex long- enjoy making people happy and staying productive about long-term care resident advocacy and resi-
term care issues and stand up for residents’ rights. in my retirement. My reward is in helping people.” dents’ rights.
Ombudsmen identify, investigate, and resolve
complaints made by or on behalf of long-term To become an advocate for long-term care resi- Anyone concerned about the quality of life and
care residents and assess living conditions at each dents in Bay and surrounding counties, call the care in a Florida long-term care facility may con-
long-term care facility. They advocate on behalf of Panhandle District Office at 1-850-921-4703. For tact the district office number listed above or the
residents and make recommendations to facility more information and to view training materials, state hotline at 1-888-831-0404. All calls are con-
administrators for changes that will improve resi- visit ombudsman.myflorida.com. Ombudsmen fidential, and callers may remain anonymous. All
dents’ quality of life. are also available to give presentations to civic and services are free.
The Florida Long-Term Care Ombudsman Program, admin- The Department of Elder Affairs supports the authority of the
istratively housed at the Florida Department of Elder Affairs, Office of the State Long-Term Care Ombudsman Program to
seeks to improve the quality of life and care for all Florida long- independently advocate for the health, safety, welfare, and rights
term care residents. of long-term care residents. Consequently, the views and opin-
ions expressed by the Office may not represent the official policy
Like us on Facebook or visit us at ombudsman.myflorida.com. or position of the Department of Elder Affairs or its employees.
10 SHINE MAY/JUNE 2019
Elder Update
When Am I
Required to
Provide My Social
Security Number?
SHINE
Senior Medicare Patrol (SMP)
Who has the right to request your Social Security
number? Federal law mandates that state Depart-
ments of Motor Vehicles, tax authorities, welfare
offices, and other governmental agencies request
your Social Security number (SSN) as proof that
you are who you claim to be. However, the Privacy
Act of 1974 requires that government agencies at
the local, state, and federal level disclose to each
person whether submitting your Social Security
number is required, details on the use of this infor-
mation, and what law or authority requires its use.
• Insurance companies; they do not provide services without your SSN,
Please note that this Act stipulates that no one can I go to another provider. That is my personal
deny you a government service or benefit for fail- • The three main credit reporting agencies: choice. If this is a provider who is requiring your
ing to provide your SSN unless federal law spe- TransUnion, Equifax, and Experian; and SSN and you want to use them, I would ask them
cifically requires it. You aren’t legally required to multiple questions like: How will they use this
provide your SSN to businesses unless one of the • Any company that sells products or provides information? How is the information safeguarded
following is true: services that require notification to the IRS, (both electronically and physically)? Where is the
including investment advisors; banks; real information stored (both electronically and physi-
• You’ll be engaging in a transaction that requires estate purchases; financial transactions over cally)? How long will they retain this information?
notification to the Internal Revenue Service, or $10,000 (such as automobile purchases) and Are staff trained on how to protect this informa-
other financial transactions. tion? How do they ensure this information is pro-
• You’re initiating a financial transaction subject tected from misuse by employees, etc.?
to federal Customer Identification Program It’s important to remember that once a company
rules. has your Social Security number, there are few Unless I am applying for a loan, credit card, or
restrictions on what they can do with it. Therefore, other transaction that requires my Social Securi-
If you refuse to provide your SSN, companies may you will want to share this information only when ty number BY LAW, I refuse to provide it (unless
choose not to do business with you, but there’s no necessary or required by law. Being very care- they can answer the questions above to my satis-
law that prevents them from asking for it. These ful about sharing your SSN or any other personal faction). And as the article says above, the business
are some examples of businesses that require a information is a recommended way to help deter may choose not to do business with me.
Social Security number for legitimate purposes: identity theft.
Source: identityhawk.com/Who-Can-Lawfully-
• Credit card companies, lenders, and any other Essentially, if providers are requiring your SSN, Request-My-Social-Security-Number
companies receiving a credit application from the only real reason they would need it is for col-
you; lections purposes. Personally, I always refuse. IfMAY/JUNE 2019
Elder Update SHINE 11
DEAR Your Questions Answered
JUDY: by a SHINE Counselor
VOLUNTEERING WITH THE SHINE PROGRAM
Dear Judy, support the Florida Department of »» Monthly Part D Drug Plan
I am retiring and looking for a vol- Elder Affairs by providing free and premiums
unteer organization that helps people. unbiased health insurance counseling
A friend mentioned the SHINE Pro- through a dedicated network of vol- »» Co-pays for prescriptions
gram. Can you tell me about SHINE unteers, empowering Florida seniors
and who to contact? Can my wife to make informed health care choices. »» Monthly Part B premiums
volunteer with me?
SHINE volunteer counselors can do »» Co-pays for Medicare services
Thank you, the following: and visits
Mr. Peters
• Help you understand your Medi- »» Medicare deductibles. JUDY ARCHEY
Dear Mr. Peters, care benefits;
Thank you so much for inquiring SHINE volunteer counselors also Judy Archey is the Area Coordi-
about the SHINE Program. It is a • Help you choose the Medicare deliver educational presentations in nator for Putnam, Alachua, Brad-
program that I have proudly volun- Prescription Drug plan that best the community and distribute promo- ford, and Union counties. She
teered for during the past 10 years. fits your needs; tional materials. also serves as a statewide train-
Yes, your wife can volunteer with er for the Department of Elder
you. • Help you choose a Medicare SHINE volunteers receive profes- Affairs’ SHINE Program.
Advantage Plan if you choose to sional training from the Department
Each state has a SHIP (State Health receive your Medicare benefits of Elder Affairs and the local Aging If you have a question you would
Insurance Assistance Program) this way; and Disability Resource Center. Vol- like answered in our new Dear
which is an independent program unteering with SHINE provides an Judy column, please send an
funded by federal agencies and is not • Answer your questions about opportunity to learn new skills, meet email to information@elderaf-
affiliated with the insurance indus- Medigap, long-term care insur- new people, and gain knowledge fairs.org. You may also send a
try. In Florida, the SHIP Program ance policies, and other health about Medicare. Volunteers expe- question by regular mail to:
is called SHINE (Serving Health insurance programs for seniors rience the pride of being part of an
Insurance Needs of Elders). The and individuals with disabilities; award-winning team and the person- Elder Update: Dear Judy
SHINE Program provides Medicare al fulfillment of helping others. Florida Department
and health insurance counseling and • Assist you with your Medicare of Elder Affairs
information from an unbiased source. claims and appeals and other To begin volunteering with SHINE, 4040 Esplanade Way
It also participates in the SMP Medicare issues; and you will need to complete an online Tallahassee, FL 32399-7000
(Senior Medicare Patrol) Program application, participate in SHINE
which empowers seniors to prevent • Assist you with applying for the training, and agree to uphold the
Medicare fraud. MIPPA (Medicare Improvements integrity of the SHINE Program. tation located on the website. Call
for Patients and Providers Act) You can complete an online volun- SHINE at 1-800-96-ELDER (1-800-
SHINE’s services are available to Program if you qualify. Benefits teer application at floridashine.org 963-5337) if you would like to apply
Medicare beneficiaries, their fami- are available for qualified Medi- by clicking the "Join Our Team" link in person or if you have additional
lies, and caregivers. The mission of care beneficiaries to help save at the top of the page. You will also questions regarding the onboarding
the Florida SHINE Program is to money on the following: need to complete the Online Orien- process.
SHINE
provides free, unbiased health insurance counseling and information to elders and their caregivers. Through a statewide network of
trained SHINE counselors, individuals with Medicare-related questions and issues can receive personal and confidential assistance.
Through the SHINE/SMP (Senior Medicare Patrol) Program, SHINE counselors support the SMP mission to empower and assist
Medicare beneficiaries, their families, and caregivers to prevent, detect, and report health care fraud, errors, and abuse through outreach,
counseling, and education. For more information, you may visit our website at FLORIDASHINE.ORG.12 FLORIDA SENIOR DAY MAY/JUNE 2019
Elder Update
State Leaders Engage
in Discussion at Florida
Senior Day Events
Allison Burtoft Johnson, and Area Agency on Aging
Editor-in-Chief, Elder Update President Kristen Griffis. The forum
was moderated by Ann Barrett, the
The Florida Department of Elder Director of the Claude Pepper Center.
Affairs and United Way hosted
a Senior Day Forum and Dinner The speakers discussed current chal-
on Tuesday, March 26. The forum lenges in the elder care industry and
included a meeting of profession- what their organizations and depart-
als in the elder care service industry ments are doing to overcome these
and allowed for leaders to engage in challenges. Subjects ranged from
discussions on new goals and share questions about the Senior Protec-
ideas on opportunities to move tion Team to how Area Agencies
forward. on Aging are meeting the needs of
their local elders. Secretary Prudom
Industry professionals were seated discussed the Department of Elder The forum was followed by a seated PICTURED ABOVE: U.S.
around the Champions Club at Flor- Affairs’ goals for Florida to become dinner, which welcomed over 50 ASSISTANT SECRETARY ON
ida State University to ask questions an age-friendly state. seniors to join leaders from through-
AGING LANCE ROBERTSON
and listen to the panelists' answers. out the state. Secretary Richard Pru-
The panel of speakers included Jeff Johnson of AARP explained dom served as the Master of Ceremo- AND DOEA SECRETARY
Department of Elder Affairs Sec- how Florida is preparing for future nies and welcomed guests joining RICHARD PRUDOM
retary Richard Prudom, Statewide increases in our aging population, the dinner. Following Secretary Pru- The Senior Day forum and dinner
Prosecutor and leader of the Senior and Danny Burgess of FDVA dis- dom’s introduction, U.S. Assistant was a great opportunity for discus-
Protection Team in the Office of the cussed how we can better meet the Secretary on Aging Lance Robertson sion and allowed leaders from across
Attorney General Nick Cox, Execu- needs of the 800,000 veterans in shared his goals for the aging popula- the state to kick-start goals, share
tive Director of Florida Department Florida. tion with the audience and discussed ideas, and look for ways to best serve
of Veterans’ Affairs Danny Burgess, specific challenges and opportunities the citizens of Florida.
Statewide President of AARP Jeff for growth.
Pictured Above, Left: U.S. Assistant Secretary on Aging Lance Robertson speaks at the Senior Day Dinner
Pictured Above, Right: Panelists answer questions from elder care industry professionals at the Senior Day ForumMAY/JUNE 2019
Elder Update FLORIDA SENIOR DAY 13
Another Successful
Florida Senior Day
Allison Burtoft mation, and take the opportunity to
Editor-in-Chief, Elder Update speak with exhibitors at each booth
before and during performances.
On March 27, the Florida Depart-
ment of Elder Affairs and United Guests were entertained as perform-
Way of Florida hosted the annual ers showed their skills with dance
Senior Day event. More than one and music sets. Sharon Fox kicked
thousand seniors gathered from off the show with a saxophone ser-
throughout the state to enjoy a day enade, easing the audience into the 1
in the Florida Capitol Courtyard and morning. Later, the Alachua Cha
to let their voices be heard. Seniors Chas showed their moves to the audi-
arrived at the event beginning at 10 ence. The Miami Gardens Super
a.m. and were welcomed with bags Soul Steppers kept the crowd enter-
and other items from the Depart- tained with an Aretha Franklin trib-
ment of Elder Affairs. The day was ute. Just before noon, Harmony, Jake
kicked off with a complimentary Gaither Mature Adults Dance Group,
breakfast, free health screenings, Dazzling Diamonds, and the Sophis- 2
and exhibitors distributing informa- ticated Gents kept the energy levels
tion on resources available to people high with fun step-dance routines to
throughout the state. Visitors also upbeat music.
enjoyed a free lunch, entertain-
ment from performers throughout As guests enjoyed their complimen-
the state, and a noon program with tary lunch, performances broke for
guest speakers. the mid-day special program. Ted 3 4
Granger from United Way began the
Throughout the event, guests were program by thanking partners and
welcomed by exhibitors sharing sponsors for their involvement in
information on their organizations Senior Day. He introduced Depart-
and causes. Exhibitors included mul- ment of Elder Affairs Secretary
tiple state agencies, sponsors such as Richard Prudom, who spoke to the
Humana and Feeding Florida, and audience about the importance of
other educational resources to elders Senior Day and his goals for advoca-
including Scent Evidence K9, which cy for the needs of elders. Secretary
uses scent-tracking K9s to find miss- Prudom welcomed U.S. Assistant
ing persons. Visitors were invited to Secretary for Aging Lance Robert-
ask questions, request more infor-
CONTINUED ON PAGE 17 6
1 Ladies from the Jake Gaither
Community Center
5 Three Members of the
Alachua Cha Chas Dancing
for the Senior Day Audience
2 Department of Elder Affairs
Meal Team Volunteers Smile
For a Photo
6 An Attendee Warms Herself
With Blankets and Hot Coffee
3 FarmShare Distributing Fresh
Produce to Attendees
7 Department of Elder Affairs
Secretary Richard Prudom
Chats With Senior Step-Dancers
4 A Sophisticated Gent Smiles
During His Performance
After Their Performance
5 714 MEMORY DISORDERS MAY/JUNE 2019
Elder Update
Why We All Should Care Governor DeSantis Highlights Key Alzheimer’s Initiatives
About Alzheimer’s Disease Governor’s Press Office
Clinical Trial Research On March 14, 2019, Governor Ron DeSantis high-
lighted key initiatives aimed at supporting Florid- Department
Dr. Jean Fils, MD ians living with Alzheimer’s and their caretakers. of Elder Affairs
Dr. Thea Moore, Pharm D Speaking at the Evening of Hope fundraiser hosted Secretary
USF Memory Disorders Clinic by the Alzheimer’s Association in Palm Beach, Richard Prudom
the Governor outlined the measures taken by his and Governor
Progressive forgetfulness, confusion, difficulty administration. Ron DeSantis.
keeping up with daily functions, and the most
likely diagnosis is? You’ve got it. Alzheimer’s “Floridians living with Alzheimer’s deserve our
disease (AD) dementia. support and as long as I’m Governor, they can
count on it,” said Governor Ron DeSantis. “I’m
With over half a million Floridians living with proud to announce our administration has taken based approaches to treatment and prevention of
AD, we are becoming experts in this condition important steps to ensure our state assists these Alzheimer's, dementia and cognitive decline. The
that is devastating for the individual suffering individuals in getting the care they deserve and Federal BOLD Act, signed in 2018, authorizes $20
from it, as well as for the person’s family and prioritizes the advancement of research needed for million annually over 5 years ($100 million total)
friends. More devastating is the fact that there this disease.” that would establish Alzheimer’s Public Health
is no cure, and the current treatment options Centers of Excellence to promote Alzheimer’s dis-
are not great. Medical research has always “Our administration is committed to working dili- ease and caregiving interventions as well to edu-
facilitated how the science of medicine advanc- gently to improve the lives of Floridians living with cate the public about the disease.
es the knowledge about diseases and finds Alzheimer’s,” said Lieutenant Governor Jeanette
treatment or a cure. Nuñez, who has been a prominent leader on health
care throughout her time in the Florida House of
Representatives and now through her work in the
3 Challenged institutions that house Florida
Memory Disorder Clinics to provide matching
funding to the clinics to allow for an increase in
Different types of research studies vary accord-
ing to their goals, yet each type is essential in administration. “As the number of Floridians with the number of individuals they serve with evalua-
the fight against AD. Clinical trial research, this disease continues to grow, our state must take tion and diagnostic testing for dementia. Currently,
also referred to as clinical studies, is the type bold steps to find innovative solutions aimed at the State of Florida has designated and funded 16
of research that aims at determining whether assisting these residents.” Memory Disorder Clinics (MDCs) which are estab-
a proposed treatment or cure is safe or really lished at medical schools, teaching hospitals and
works. The search for new treatments or a cure “I’m extremely grateful that Governor DeSantis is similar institutions. Each receives $222,801 in gen-
for AD needs to continue. For that purpose, demonstrating strong leadership to take Alzheim- eral revenue annually.
volunteer participants are needed at different er’s research and awareness to the next level,” said
stages of such research. Healthy individuals,
as well as individuals with AD, may partici-
Richard Prudom, Secretary of the Florida Depart-
ment of Elder Affairs. “This issue affects millions
of Floridians, not just those living with dementia,
4 Challenged local communities, which have
not already done so, to expand the Dementia
Care and Cure Initiative in their areas. Currently
pate in research. Volunteer participants work
with researchers throughout a series of well- but the caregivers and families affected as well. We all but three Areas Agencies for Aging (AAA) are
planned and monitored steps until completion look forward to working with the Governor and our engaged in the Dementia Care and Cure Initiative
of the clinical study. Potential risks versus ben- sister agencies to make a difference in the lives of (DCCI). In August 2015, the Department of Elder
efits are taken into account in the planning and Florida families.” Affairs announced the Dementia Care and Cure
throughout the course of the clinical study by Initiative to engage communities across the state
all parties involved, from pharmaceutical spon- Since taking office, Governor Ron DeSantis has: to be more dementia friendly, promote better care
sor to site participant and volunteer. for Floridians affected by dementia, and support
Since so many are affected by AD in one way 1 Directed the Department of Health to add
Alzheimer's and related dementias as a priority
research efforts to find a cure.
or another, the research to find better treatment
options or a cure serves everyone’s interest.
in the State Health Improvement Plan. Alzheimer’s
is the sixth leading cause of death in Florida, and
yet it is not directly addressed by the SHIP.
5 Released the Bold Vision for a Brighter Future
Budget which included funding to help those
with this disease. The budget contained $3 million
While some do not participate due to the poten-
tial risks a new treatment may pose, many want in funding to support the Alzheimer’s Disease Ini-
to be part of the solution, seeing the benefits
from personal to global. 2 Directed the Department of Health to apply
to be a Center of Excellence pursuant to the
Federal BOLD Act, in order to position Florida
tiative. This funding also serves similar memory
disorders as well as their families. The supportive
services include counseling, consumable medical
CONTINUED ON PAGE 22 to pursue and receive federal grants for evidence- supplies and respite for caregiver relief.You can also read
