EASTERN CAPE STATE OF HEALTH - SEPTEMBER 2021 - Ritshidze
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ANALYSE THE DATA GATHER GENERATE EVIDENCE SOLUTIONS RITSHIDZE CYCLE OF COMMUNITY-LED MONITORING 1 QU R TE A AR RT ENGAGE mb er Jan QU ER ADVOCATE DUTY ce u ar FOR y 2 BEARERS De CHANGE –M – er arc b Octo h MONITOR Ritshidze IMPLEMENTATION quarterly & IF NO monitoring cycle CHANGES.. Jul y e –S un te ep –J mb ril Ap QU er 3 DEVELOPING ER AR ER RT A T 4 QU THE REPORT The Eastern Cape Province State of Health Report has been developed using data from Ritshidze and outlines community priorities for improving HIV, TB and other health services in the province. Ritshidze is a community-led monitoring system developed by organisations representing people living with HIV including the Treatment Action Campaign (TAC), the National Association of People Living with HIV (NAPWA), Positive Action Campaign, Positive Women’s Network (PWN) and the South African Network of Religious Leaders Living with and affected by HIV/AIDS (SANERELA+). Community-led clinic monitoring is a systematic collection populations) and healthcare providers (facility managers, of data at the site of service delivery by community adherence club facilitators, pharmacists). All Ritshidze’s members that is compiled, analysed and then used data collection tools, our data dashboard, and all raw data by community organisations to generate solutions to are available through our website: www.ritshidze.org.za problems found during data collection. In Ritshidze, people living with HIV are empowered to monitor services provided at clinics, identify challenges, generate solutions ABOUT THE DATA IN THIS REPORT that respond to the evidence collected, and make sure the solutions are implemented by duty bearers. Data in this report was collected in two data Giving communities the ability to monitor the quality-of- collection periods: April to June 2021 (quarter service provision and highlight performance problems 3) and August and September 2021 (quarter 4). is an indispensable strategy for improving HIV and TB + Interviews took place with 44 Facility Managers service delivery across South Africa. Through Ritshidze we have begun to more systematically document the + Observations took place at 45 facilities failures in quality HIV service delivery as well as gaps in + Interviews took place with 1210 patients terms of implementation of a May 2019 circular issued + 75% (902) identified as people living with HIV by the National Department of Health (appendix 1). + 64% (786) identified as female Ritshidze monitoring takes place on a quarterly basis + 19% (237) identified as under 25 years of age. at 400 clinics and community healthcare centres across 27 districts in 8 provinces in South Africa — including All data are available at: data.ritshidze.org.za. We are 49 facilities across Eastern Cape: 14 in OR Tambo, 11 in currently analysing the data and generating solutions, Buffalo City, 9 in Alfred Nzo, 6 in Amathole, 5 in Nelson after which we will be feeding back the results of data Mandela Bay, and 4 in Chris Hani. We collect data collected and recommended solutions to duty bearers through observations, as well as through interviews with at facility and district levels. healthcare users (patients, adherence club members, key 2 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
PROVINCE AND SITE NAME IMPLEMENTING PARTNER DISTRICT Amadiba Clinic Maternal, Adolscent and Child Health (MatCH) Imizizi Clinic Maternal, Adolscent and Child Health (MatCH) Alfred Nzo District Isikelo Clinic Maternal, Adolscent and Child Health (MatCH) Municipality Maluti CHC Maternal, Adolscent and Child Health (MatCH) Matatiele Community Clinic Maternal, Adolscent and Child Health (MatCH) Mount Ayliff Gateway Clinic Maternal, Adolscent and Child Health (MatCH) Mount Frere Gateway Clinic Maternal, Adolscent and Child Health (MatCH) St Patrick’s Gateway Clinic Maternal, Adolscent and Child Health (MatCH) Tabankulu CHC Maternal, Adolscent and Child Health (MatCH) Butterworth Gateway Clinic TB/HIV Care Amathole District Idutywa Village CHC TB/HIV Care Municipality Nozuko Clinic TB/HIV Care Nqamakwe CHC TB/HIV Care Willowvale CHC TB/HIV Care Xhora CHC TB/HIV Care Central Clinic (East London) Kheth’Impilo Duncan Village CHC Kheth’Impilo Buffalo City Metropolitan Empilweni Gompo CHC Kheth’Impilo Fezeka NU 3 Clinic Kheth’Impilo Municipality Gompo C Jabavu Clinic Kheth’Impilo Greenfields Clinic Kheth’Impilo EASTERN CAPE PROVINCE Grey Gateway Clinic Kheth’Impilo Luyolo NU 9 Clinic Kheth’Impilo Nontyatyambo CHC Kheth’Impilo Philani NU 1 Clinic Kheth’Impilo Zanempilo Clinic (East London) Kheth’Impilo Ngcobo CHC TB/HIV Care Municipality Chris Hani District Nomzamo CHC TB/HIV Care Philani Clinic (Queenstown) TB/HIV Care Tembelihle Clinic TB/HIV Care Gustaye L’Amour Clinic n/a Nelson Mandela Letitia Bam Clinic n/a Metropolitan Municipality Motherwell CHC n/a Nomangesi Jayiya Clinic n/a Rosedale Clinic n/a Soweto Clinic n/a Civic Centre Clinic (Mthatha) TB/HIV Care Flagstaff Clinic TB/HIV Care Holy Cross Gateway Clinic TB/HIV Care Oliver Tambo District Municipality Lusikisiki Village Clinic (Qaukeni) TB/HIV Care Mhlakulo CHC TB/HIV Care Mqanduli CHC TB/HIV Care Mthatha Gateway Clinic TB/HIV Care Ngangelizwe CHC TB/HIV Care Ntapane Clinic TB/HIV Care Port St Johns CHC TB/HIV Care Qumbu CHC TB/HIV Care St Elizabeth’s Gateway Clinic TB/HIV Care Stanford Terrace Clinic TB/HIV Care Tsolo Clinic TB/HIV Care RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 3
ALFRED JOE GQABI NZO OR TAMBO CHRIS HANI AMATHOLE SARAH BAARTMAN BUFFALO CITY NELSON MANDELA BAY INTRODUCTION In Eastern Cape: + 91% PLHIV know their status + 72% PLHIV who know their status on treatment + 88% PLHIV on treatment are virally suppressed Severe overcrowding and clinics that are too small to service their growing number of patients are just the start of problems for the Eastern Cape — a province that remains one of the poorest in the country. Add to this are challenges of improving road access and general amenities to some of most remote parts of South Africa. It makes the problem of attracting and retaining nurses and doctors to these far-flung regions a tall ask. Over and over Ritshidze is hearing complaints about poor staff people on treatment to have suppressed viral loads. attitudes and unprofessional conduct by nurses. While nurses Yet in the Eastern Cape, while 91% of people living with may be burdened with their own challenges, and are in some HIV know their status, only 72% of those people are on HIV cases overworked and overwhelmed by their patient load treatment, out of which 88% are virally suppressed1. This and shortage of support, their attitudes and work behaviour translates to just 66% of all people living with HIV receiving remain one of the easiest targets to shift if the Department ARVs in the province and only 58% of all people living with of Health can commit to bringing their employees to order. HIV being virally suppressed. The failure to make sufficient These problems seem insurmountable but there are targets progress towards the 95-95-95 targets, most especially that the province can and must improve on. Improving keeping enough people on treatment, can be directly the quality of services provided in public clinics is vital linked back to the crisis in our clinics in the Eastern Cape. to ensuring enough people are accessing HIV and TB Recognising this important gap, in 2019 the National prevention services, are getting tested, and are starting Department of Health announced a circular proposing and staying on treatment. It is key to achieving the UNAIDS a series of policy changes designed to remove barriers new scaled up 95-95-95 targets that now aim for 95% of to care and support accountability of healthcare people living with HIV knowing their HIV status; 95% of workers (see Appendix 1). Yet two years later, this people who know their status on treatment; and 95% of directive has not been enacted by many facilities. 1. N ational Department of Health. Presentation made at the National Comprehensive Care, Management, and Treatment (CCMT) Quarterly Program Performance Reviews Technical Working Group Meeting: “HIV/AIDs and STI Catch Up PlansFY 21/22 (April 2021 – March 2022)” RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 5
NOMANGESI CLINIC COVID-19 has worsened healthcare in the province. In 2020, as province. The report focuses on the following critical themes: with other provinces, there was a decline in the overall number long waiting times and staff shortages; infrastructure; of visits to health facilities in the Eastern Cape compared to ART collection and continuity; treatment and viral load previous years, a result of the COVID-19 pandemic, and fewer treatment literacy; the implementation of index testing HIV tests were carried out in the province2. Similar is true for to find people living with HIV; stockouts and shortages TB, with a decline in the number of GeneXpert tests carried of medicines; accessibility of health services for key out3. Fewer people getting tested for HIV and TB will lead populations; TB infection control; and accountability. to an increase in the number of people with undiagnosed HIV or TB, and add to those not yet initiated on treatment. Facility Manager: Have you had any of the following issues at Ritshidze observations and data collected from interviews with your clinic beacuse of the COVID-19 crisis? patients and staff highlighted challenges due to COVID-19 Total Responses: 44 in the preceding three months including: longer waiting times, less staff working than usual, increased stockouts, lack of personal protective equipment (PPE), and a lack of safety precautions at some facilities including no physical distancing, a lack of availability of water/soap or sanitizer at the clinic, and at times screening protocols not being followed. A reduction in the overall provincial health budget due to costs associated with the COVID-19 pandemic — together with budget cuts from PEPFAR and an end to additional surge funding that aimed to maximise progress towards the 95-95-95 targets — is only worsening this crisis. The Eastern Cape State of Health report takes a detailed look at the challenges people living with HIV face in the Is the clinic faced with any of the following issues becasue of Have you had any of the following issues getting healthcare the COVID-19 crisis? because of COVID-19 crisis? Total Responses: 52 Total Responses: 1207 2. P illay, Y., Pienaar, S., Barron, P., & Zondi, T. 2021 May 17. Impact of COVID-19 on routine primary healthcare services in South Africa. South African Medical Journal. Available at: http://www.samj.org.za/index.php/samj/article/view/13303 3. Ibid 6 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
NOZUKO CLINIC 1. Staffing 89% of facility managers say their facilities don’t + By December 2022, the Eastern Cape have enough staff Department of Health should employ an additional 10% of nurses (including professional Only 29% of patients say there are always enough staff at facilities nurses, enrolled nurses and enrolled nurse assistants) in Buffalo City, OR Tambo, Amathole, Chris Hani, and Alfred Nzo. 133 vacancies reported across 28 sites monitored + The Eastern Cape Department of Health should produce annual reports on the numbers of Recommendations: healthcare workers (divided into sub-groups such as CHWs, professional nurses, and GPs) + Understaffed clinics mean healthcare workers are employed in each district and the numbers overburdened. This leads to longer waiting times, of people and size of areas covered by these limited time to attend to patients, and at times, bad healthcare workers. These reports should also attitudes. These factors directly contribute to PLHIV include year-on-year comparisons (from at least starting and staying on treatment and can be linked 2020) of the number of filled posts in all districts to the province only attaining 72% of PLHIV who and the cost of these posts to the government. know their status on treatment. + By March 2022, the Eastern Cape Department of Health should fill 80% of vacancies in the province, Data collected in Eastern Cape reveal significant and fill the remaining 20% by September 2022. staff shortages that are undermining the quality of + By March 2022, the Eastern Cape Department of services provided at clinics. Ensuring access to quality Health should ensure that all CHWs have reliable healthcare services and ensuring everyone living transportation as required to find PLHIV who have with HIV and TB gets access to medicines and care missed appointments or interrupted treatment, depends mainly on having enough qualified and or to find people with TB and their contacts, that committed staff. These shortages, including a high is currently only available at 5 out of 43 sites number of vacancies, lead to longer waiting times monitored with CHWs. and increased pressure on the few staff in place. + By March 2022, District Support Partners (DSPs) Ensuring that 80% of vacancies at facilities are filled should ensure all PEPFAR supported sites have by March 2022 must be a priority in this province. at least one male nurse and one male counsellor in place, leading to a greater uptake of services The majority (89%) of Facility Managers do not have by men (39% of sites monitored reported no male enough clinical and non-clinical staff at the facility nurses, counsellors or healthcare workers). to meet the needs of patients. Data from patients + By March 2022, DSPs should ensure all PEPFAR are closely aligned: just 29% of patients interviewed supported sites have at least one male clinic day report that there are always enough staff at the facility. per week or Men’s Corners (ensuring male staff are Considerable variation is observed across districts: on duty) integrated into service delivery to provide with 16% of patients in Buffalo City reporting there services specific to the needs of men. are always enough staff at the facility, followed by + By December 2022, the Eastern Cape Department Chris Hani (19%), Nelson Mandela Bay (19%), Alfred of Health should employ an additional 10% of Nzo (32%), OR Tambo (34%), and Amathole (37%). pharmacists and assistant pharmacists in Alfred Nzo. The facilities with the lowest ranking for staffing according to patients are shown in the table. RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 7
Facility manager: Does the facility have enough staff? Are there enough staff at the facility? Total Responses: 44 Total Responses: 1207 Worst performing sites by patient responses for “Are there enough staff at the facility?” (August to September 2021) According to Facility Managers, the most commonly In terms of impact of COVID-19, staff at 18% of understaffed cadres were professional nurses, enrolled facilities monitored complained of working with nurses, cleaners, doctors, enrolled nurse assistants, and fewer staff operating because of the pandemic assistant pharmacists. This varied across districts: and 11% of patients interviewed also stated + High professional nurse shortages were reported there were less staff working than usual. in Buffalo City (64% of sites - n=7), OR Tambo (64% of sites - n=9), Amathole (83% of sites - n=5), and Alfred Nzo (89% of sites 0 n=89%). High doctor shortages Which cadres are understaffed? were reported at Alfred Nzo (78% of sites - n=7). Total Responses: 43 + High enrolled nurse shortages were reported in Chris Hani (100% of sites - n=4), Amathole (50% of sites - n=3), and Alfred Nzo (78% of sites - n=7). + High enrolled nurse assistant shortages were reported in Chris Hani (50% of sites - n=2) and Amathole (50% of sites - n=3). + High pharmacist and assistant pharmacist shortages were reported in Alfred Nzo with 5 sites (56%) reporting shortages of both cadres. + High cleaner shortages were reported in OR Tambo (64% of sites - n=9), Chris Hani (100% of sites - n=4), Amathole (50% of sites - n=6) and Alfred Nzo (56% of sites - n=5). 8 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
Which cadres are understaffed according to Facility Managers (August to September 2021) Which Cadres are Understaffed? Professional nurse General assistant Adherence club Linkage officers Lay counselors Lab technician Security guard Enrolled nurse Enrolled nurse Data capturer pharmacist Pharmacist facilitators Assistant assistant Cleaner Doctor District Facility Amadiba Clinic Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Imizizi Clinic Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Isikelo Clinic Yes Yes Yes Yes Yes Maluti CHC Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Alfred Nzo Matatiele Community Clinic Yes Yes Yes Yes Mount Ayliff Gateway Clinic Yes Yes Yes Yes Yes Yes Yes Yes Yes Mount Frere Gateway Clinic Yes Yes Yes Yes St Patrick’s Gateway Clinic Yes Yes Yes Yes Yes Yes Yes Tabankulu CHC Yes Yes Yes Yes Butterworth Gateway Clinic Yes Yes Yes Idutywa Village CHC Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Amathole Nozuko Clinic Yes Yes Yes Yes Yes Yes Yes Yes Yes Nqamakwe CHC Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Xhora CHC Yes Yes Yes Yes Yes Yes Duncan Village CHC Yes Yes Yes Yes Yes Yes Yes Yes Empilweni Gompo CHC Yes Yes Yes Gompo C Jabavu Clinic Yes Yes Yes Greenfields Clinic Yes Yes Yes Buffalo City Grey Gateway Clinic Yes Yes Yes Yes Yes Yes Yes Luyolo NU 9 Clinic Yes Yes Yes Nontyatyambo CHC Yes Yes Yes Yes Philani NU Yes Clinic Yes Yes Yes Yes Zanempilo Clinic (East London) Yes Ngcobo CHC Yes Yes Yes Yes Yes Yes Chris Hani Nomzamo CHC Yes Yes Yes Philani Clinic (Queenstown) Yes Yes Yes Yes Yes Yes Tembelihle Clinic Yes Yes Yes Nelson Mandela Bay Motherwell CHC Yes Yes Yes Yes Yes Yes Civic Centre Clinic (Mthatha) Yes Yes Yes Flagstaff Clinic Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Holy Cross Gateway Clinic Yes Yes Yes Lusikisiki Village Clinic (Qaukeni) Yes Yes Yes Yes Mhlakulo CHC Yes Mqanduli CHC Yes Yes Yes OR Tambo Mthatha Gateway Clinic Yes Yes Ngangelizwe CHC Yes Yes Yes Yes Yes Yes Yes Yes Ntapane Clinic Yes Port St Johns CHC Yes Yes Yes Yes Qumbu CHC Yes Yes Yes Yes St Elizabeth’s Gateway Clinic Yes Yes Yes Yes Yes Yes Tsolo Clinic Yes Yes Yes RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 9
MOUNT FRERE GATEWAY CLINIC DUNCAN VILLAGE CHC Facilities in the Eastern Cape (as well as KwaZulu-Natal) Cadres with vacancies are performing worst at filling open vacancies, with both Total Responses: 40 provinces reported the highest proportion of vacancies across all provinces. The numerous open positions that are not being filled create gaps in capacity to deliver quality services. According to Facility Managers, the most commonly understaffed cadres were professional nurses (23 vacancies), cleaners (17 vacancies), enrolled nurses (14 vacancies), assistant pharmacists (13 vacancies), and doctors (12 vacancies). This challenge is worsened as staff retire and are not replaced. Vacancies reported by Facility Managers across districts (August to September 2021) What is clear, is that both Facility Managers and patients large portion of CHW work is performed outside of the agree — there is a major gap between the staffing facility, these findings reveal an important barrier to the needed to ensure high quality services and the staff efficacy of the CHW programme in the province. Further present each day in the clinics in much of the province, challenges include there not being enough CHWs (raised compounded by COVID-19 and unfilled posts. by Facility Managers at 17 sites), not enough phones (raised by Facility Managers at 12 sites), safety issues for CHWs working in the community (raised by Facility Managers at COMMUNITY HEALTHCARE WORKERS (CHWS) 10 sites), and the fact that patients give wrong numbers CHWs are recognised as an integral health human and addresses (raised by Facility Managers at 40 sites). resource, playing a role in the HIV/AIDS, TB, and most recently, COVID-19 response. 96% of facilities visited by Roles CHWs perform Ritshidze reported CHWs based at the clinic. However, Total Responses: 41 Mount Ayliff Gateway Clinic and Tabankulu CHC both in Alfred Nzo reported no CHWs. Defaulter tracing (95% of sites), TB contact tracing (80% of sites), HIV testing and counselling (61% of sites) and Treatment Literacy (56% of sites) are the most common roles played by the CHWs. Despite the presence of CHWs, there are significant challenges to get what is needed from CHWs to help improve people’s health. The majority of Facility Managers (77%) said that CHWs at their facility do not have access to transport to work outside of facilities. Of the Facility Managers reporting that transport was available, just five said that the transport was reliable. Given that a 10 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
MOUNT AYLIFF GATEWAY CLINIC NOMZAMO CHC COMMUNITY HEALTHCARE WORKERS ROLE IN ACHIEVING 90-90-90 IN ESHOWE, KWA-ZULU NATAL In Eshowe, MSF provided HIV testing and linkage to care through community-based support (through patient supporters and community health workers), resulting in Eshowe being able successfully to achieve the 90-90-90 targets (95-95-95) a year ahead of the UNAIDS deadline. Critical to this was the ability to use mobile sites and community-based support on farms and in deep rural communities. Although over time the HIV+ yield of the CHW testing programme decreased, early on it was very high. The CHWs also helped to “normalise” HIV testing and treatment as they became a fixture of normal community health services. Finally, when a HIV+ case was detected, they were able to follow up to try to ensure that the individual had been linked to HIV treatment services. Following the achievement of the 90-90-90 targets, MSF started handing over activities related to HIV to the Department of Health, remaining focused only on TB. The aim being to show how lessons learned from its HIV bending-the-curves strategy and innovative strategies can be put in place to ensure TB cascade strengthening. The following objectives were set to support the achievement of the aim of: 1) enhancing TB Prevention; 2) finding the missing cases; and 3) improving treatment outcomes. The project has worked closely with CHWs from the area in facilitating the implementation of community based sites (called Luyanda sites) which aim at bringing screening services closer to the people. These sites are minded by CHWs from SHINE and provide services such as TB, HIV, STI, NCD screening and family planning. A referral system has been established to provide linkage of care for patients that need to be seen at facilities. Support is also provided by the mobile clinic nurse who visits the site for nonurgent cases and provides needed resources. The sites are also ear-marked to be used as CCMDD pick up points. MALE HEALTHCARE WORKERS and child health and systematic under-funding of men’s services compared to women. About 30% of HIV transmission The proportion of men who know their HIV status and occurs amongst stable partners and the HIV positive partner are accessing ART is much lower compared to women in amongst sero-discordant couples is more commonly South Africa. While men only account for a third of new male than female. This together with growing evidence infections, they account for more than half of the HIV related that ART reduces HIV mortality and morbidity more so if deaths, pointing to a major challenge in men’s uptake of treatment is started early and potential benefits of viral load HIV treatment services. This is not unique to South Africa. suppression in reducing transmission, make men a critical Research in many African countries has shown that HIV- target population to reduce HIV incidence and mortality. positive men are less likely to initiate ART, and those who do are more likely to present to clinics later, more ill and Positively Ritshidze data shows that 61% of facilities have poorer retention and worse clinical outcomes. reported having male nurses, counsellors, and/or healthcare workers at the facility. PEPFAR should ensure Explanations put forward for men’s low attendance and that there is at least one male nurse or counsellor at each poor outcomes include notions of masculinity that are site to support male uptake of services. Only 27% of at odds with illness and ‘good patient’ behaviour, public facilities said they had male outreach services and 9% of health systems that are historically built around maternal facilities said they had no male specific services at all. What services are available for men according to Facility Managers per district (April to June 2021) RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 11
NOMANGESI CLINIC 2. Waiting Times Long waiting times are a major challenge in the Eastern 4:41 hours was the average reported waiting time by patients (including time before the facility opened) Cape, where public healthcare users often spend hours at each visit to the clinic. This simply does not work well for most people — particularly working people and 4:31 hours was the average reported waiting those in school. Having people living with HIV spend an time by patients after the facility opened extended time at a clinic, simply to collect ART refills, increases the risk of that person disengaging from care. 124 was the average number of patients waiting to receive clinical services In the Eastern Cape public healthcare users reported that they spent an average of 4.41 hours waiting in the 40% of patients felt unsafe or very unsafe waiting for clinic to open facility (including time before the facility opens) as well as an average of 4.31 hours waiting after the facility opens. 58% of facilities had a filing system The average was seven hours or more at 3 facilities, six or observed in bad condition more hours at 6 facilities, five hours or more at 16 facilities, and four hours or more at 29 facilities. This is a very long Recommendations: time to spend at a facility in which patients are usually only seen for a very short consultation. There is some + Early mornings, feeling unsafe outside the clinic, variation between clinics and districts (as outlined in and long waiting times cause people to dread the table) but waiting times are long across the board. clinic days or even stop going. This directly impacts our ability to reach 95% of PLHIV on treatment. + By end November 2021, ensure a functional IT IS POSSIBLE TO DO BETTER! filing system in Ntapane Clinic, St Elizabeth’s Gateway Clinic, Nozuko Clinic, Civic Centre At Tembelihle Clinic and Ntapane Clinic the waiting time Clinic (Mthatha), Isikelo Clinic, Amadiba was under 3 hours. Clinic, Imizizi Clinic, St Patrick’s Gateway Clinic, Motherwell CHC, Maluti CHC. + By March 2022, extend facility opening hours Average Time Patients Patients Spend at the Spend at the Facility Number of Facilities (as per the NDoH circular from 5am to 7pm Facility (including on Monday to Friday). People living with before it opens) (after it opens) Average Time HIV should be able to use these extended opening times to pick up their medication. Assessed + By March 2022, open the grounds of clinics by 5am to ensure safety of patients waiting District to access services in the early mornings. Chris Hani 4 3:22 3:05 + By March 2022, implement functional appointment systems at 100% of sites and Alfred Nzo 9 3:41 3:39 ensure that patients are aware of them. Amathole 6 4:46 4:46 + By March 2022, the Eastern Cape Department of Buffalo City 11 5:05 4:47 Health and District Support Partners (DSPs) should work together to reduce the burden on facilities OR Tambo 14 5:14 5:03 by getting at least 60% PLHIV out of the clinic and Nelson Mandela Bay 1 7:25 6:19 into external pick up points or adherence clubs. Eastern Cape 45 4:41 4:31 12 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
KOKSTAD CLINIC MOUNT AYLIFF GATEWAY CLINIC Facilities with waiting times over 4 hours (August to September 2021) Ritshidze Community Monitors completed 45 facility the information was collected by the Ritshidze team observations in quarter 4, finding that on average around 10am). At the 16 clinics shown in the table 128 patients were observed waiting for services below, more than 100 patients were observed waiting (the number of patients ranged from 15-500 and to be seen at around 10am at each facility. Facilities with 100 or more patients waiting to be seen (August to September 2021) Patients begin queuing early in the morning in an attempt usually open at 7am, they generally only start seeing to get seen more quickly — often so they can make it to patients at 8am, yet at some clinics patients start arriving work or to take care of their children. While the clinics at 5am, even before sunrise, in hopes of being seen early. RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 13
GREENFIELDS CLINIC Facilities with the earliest patient arrival times (August to September 2021) Meanwhile, while they were pushed to arrive early, reported filing systems to be in a bad condition in 58% of sites patients felt unsafe. Of 471 people who arrived before monitored. Messy and disorganised filing systems increase the facility opened, 40% reported feeling “very unsafe” the delays to healthcare users being attended to, and increase or “unsafe” while waiting for the facility to be open. the burden on already overstretched healthcare workers. How safe is the facility to wait before it opens? Are the queues at the facility long? Total Responses: 471 Total Responses: 1204 Patients interviewed are clear on the problem. 65% of Other reasons given for long queues patients interviewed in the province believe the queues at Total Responses: 779 the facility are long. This varied across districts: Chris Hani (33%), Amathole (54%), Buffalo City (66%), OR Tambo (75%), Alfred Nzo (77%), Nelson Mandela Bay (100%). The most frequent reason provided by patients for the long queues is that “there are too many patients to serve” (57%), “there is not enough staff” (54%), and that “staff take long breaks” (34%). The challenge of long waiting times is further compounded by poor filing systems. 32% of Ritshidze respondents think that the queues are long because “it takes too long to find files, the filing system is messy or files get lost”. Ritshidze observations 14 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
What is observed in bad condition in filing systems (August to September 2021) What is in bad condition? Please select all that apply: There are too stored where Files are lost, access them patients can are stored is few people where files missing or misplaced The space The filing too small system is Files are looking for files messy District Facility Amadiba Clinic Yes Yes Imizizi Clinic Yes Yes Yes Alfred Nzo Isikelo Clinic Yes Yes Maluti CHC Yes Yes Yes Yes St Patrick’s Gateway Clinic Yes Yes Yes Butterworth Gateway Clinic Yes Amathole Nozuko Clinic Yes Yes Nqamakwe CHC Yes Xhora CHC Yes Central Clinic (East London) Yes Duncan Village CHC Yes Greenfields Clinic Yes Buffalo City Luyolo NU 9 Clinic Yes Philani NU Yes Clinic Yes Zanempilo Clinic (East London) Yes Nelson Mandela Bay Motherwell CHC Yes Yes Yes Civic Centre Clinic (Mthatha) Yes Yes Holy Cross Gateway Clinic Yes Mhlakulo CHC Yes Mqanduli CHC Yes Mthatha Gateway Clinic Yes OR Tambo Ntapane Clinic Yes Yes Port St Johns CHC Yes Stanford Terrace Clinic Yes St Elizabeth’s Gateway Clinic Yes Yes Tsolo Clinic Yes Functional appointment systems, if used effectively, have appointment system at the facility, however the majority the potential to reduce waiting times in facilities. Only (96%) of those people thought they were functional. 82% of healthcare users we spoke to were aware of an Less than 90% of patients aware of an appointment system (August to September 2021) RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 15
NOZUKO CLINIC 3. Infrastructure and clinic conditions 52% of clinics in to address these infrastructural issues including bad condition building new facilities, building temporary structures, as well as decanting more PLHIV out of the facility to 86% of clinics need some additional space external pick up points or community based adherence clubs (plus longer ARV supplies). 57% of clinics do not have enough room in the waiting area According to observations by Ritshidze, 56% of clinics 80% of clinic toilets in monitored in Eastern Cape are in bad condition: bad condition 70% in Buffalo City, 56% in Alfred Nzo, 50% in Chris Hani, and 43% in OR Tambo. The most commonly Only 6% of patients reported that facilities are dirty or very dirty provided reasons for the bad condition are: old buildings that need renovation (14), broken or cracked 25 clinics reported being understaffed on cleaners roof (6), and no running water at the facility (4). 17 clinics had cleaner vacancies Concerns with the condition of the toilets Total Responses: 24 Recommendations: + By October 2021, all patients should be consulted in private rooms. Facing privacy violations such as being consulted, tested, or counselled in the same room as someone else can lead to PLHIV disengaging from care. + By March 2022, the Eastern Cape Department of Health should fill all cleaner vacancies to ensure clean facilities and toilets. + By December 2022, the Eastern Cape Department of Health should employ an additional 15% of cleaners in OR Tambo, Chris Hani, Amathole and Alfred Nzo. + By December 2022, where there are small waiting areas that lead to overcrowding (putting patients and staff IT IS POSSIBLE TO DO BETTER! at risk of TB infection at the clinic) the Eastern Cape All facilities in Amathole were found to be in Department of Health must implement strategies a good condition! 16 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
Facilities observed to be in a bad condition (August to September 2021) Out of 44 facilities assessed, 86% of the Facility Managers 25 sites, has a profound effect on the TB infection control we spoke to reported needing more space to meet at the site level (this report will develop in a detailed patient needs, with 50% Chris Hani sites, 85% in OR manner in all aspects of this issue later in the document). Tambo, 90% in Buffalo City and 100% in Amathole. Waiting space for patients, HIV testing/counselling space, rooms for medical care, space for filing, and What do you need more space for? space for data capturers were the most common Total Responses: 38 things Facility Managers needed extra space for. Inadequate space impacts patients in multiple ways. Lack of space for HIV counselling and testing can mean PLHIV are consulted, tested, or counselled in the same room as someone else (as reported at Lusikisiki Village Clinic, Amadiba Clinic, Port St Johns CHC, Ntapane Clinic, Imizizi Clinic, Isikelo Clinic.). This lack of privacy and confidentiality can lead to individuals disengaging from care. Small waiting areas can also lead to overcrowding and even before COVID-19, patients have been forced to wait outside in long queues at certain clinics. The lack of appropriate space for patients to wait, as reported at Facility Manager responses on “what do you need more space for” by district (April to June 2021) On overall clinic cleanliness, the Eastern Cape is clinics were “very clean” or “clean”. Only 6% of patients performing well compared to other provinces, only reported that facilities were “very dirty” or “dirty”. second to KwaZulu-Natal. 77% of patients reported that RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 17
EMPILWENI CLINIC MOUNT AYLIFF GATEWAY CLINIC How clean is the facility? Total Responses: 1206 IT IS POSSIBLE TO DO BETTER! These 23 clinics are reported as clean by patients, with zero reports by any patients of being dirty: Tembelihle Clinic, Willowvale CHC, Nontyatyambo CHC, Idutywa Village CHC, Nqamakwe CHC, Motherwell CHC, Luyolo NU 9 Clinic, Civic Centre Clinic (Mthatha), Xhora CHC, Ntapane Clinic, Empilweni Gompo CHC, Duncan Village CHC, Fezeka NU 3 Clinic, Central Clinic (East London), Philani Clinic (Queenstown), Grey Gateway Clinic, Ngcobo CHC, Ngangelizwe CHC, Lusikisiki Village Clinic (Qaukeni), Flagstaff Clinic, Gompo C Jabavu Clinic, St Elizabeth’s Gateway Clinic and Holy Cross Gateway Clinic. Worst performing facilities on “How Clean is the Facility?” (August to September 2021) However, toilets are often found in a bad condition. Concerns with the condition of the toilets 80% of Ritshidze observations found that toilets Total Responses: 40 were in bad condition, with variation amongst districts: Chris Hani (50%), Amathole (50%), OR Tambo (79%), Alfred Nzo (89%), Buffalo City (100%). No soap, no toilet paper, dirty toilets, no light and no water were the most significant concerns. 18 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
CENTRAL CLINIC 4. ART Collection 4a. Multi-month dispensing should be made to support patients with suppressed viral loads to receive extended refills and/or enrollment in a repeat prescription strategy. Implementing this SOP 21% of PLHIV received one month is vital to supporting improved long term adherence. supply of ARVs Ritshidze data reveals that 61% of PLHIV reported 61% of PLHIV received two months receiving 2 month ART refills. Just 15% of PLHIV reported supply of ARVs 3 month ART refills, which is low as the country aims to move towards longer multi month dispensing. 15% of PLHIV received three months supply of ARVs However, 21% of PLHIV still reported refills of 1 month — which is very problematic considering that South Recommendations: Africa’s national policy standard is for two months. It is also worrying during the period of COVID-19 when + Unnecessary trips to the clinic just to collect an ARV refills should be longer to ensure PLHIV can make refill adds both a burden on PLHIV and to the already fewer trips to the clinic. The table below outlines overwhelmed clinic and healthcare worker staff. This the facilities with the highest reports of 1 month inefficiency can also contribute to PLHIV disengaging supply, many of which are in OR Tambo. This should from care directly impacting the province’s attainment be looked into to assess whether this is an issue of 95% of PLHIV on treatment. Extending treatment related to sufficient stock, or other clinical reasons. refills, also known as providing “multi-month dispensing” or MMD, is one strategy to reduce Further, while 97% of Ritshidze respondents in the Eastern unnecessary burdens and support both PLHIV and the Cape still received refills of less than 3 months, only health system to be more efficient. 25% of PEPFAR supported clients in other countries had + From September 2021, the Eastern Cape Department refills of less than three months. Between October and of Health should retain the government gazetted December 2020 in 21 PEPFAR supported countries, 22% 12 month ART scripting & implement the March 2020 of PLHIV received 6 month ART refills and 53% received revised Standard Operating Procedures (SOPs) on 3-5 months of ART. This is compared to only 15% of Eastern repeat prescription collection strategies with fidelity. Cape PLHIV reporting a 3 month ART refill and 3% of the + By October 2021, the Eastern Cape Department PLHIV interviewed reported receiving 6 months supply. of Health and DSPs should ensure that no PLHIV ever receives less than 2 months supply of ARVs (as reported by nearly half of respondents), as per Length of HIV medicine refill? national policy standards. Total Responses: 901 + By March 2022, the Eastern Cape Department of Health and DSPs should extend and implement ARV refills to at least 3 month supply for all eligible PLHIV. + By December 2022, the Eastern Cape Department of Health and DSPs should extend and implement ARV refills to 6 month supply for all eligible PLHIV. The revised National Adherence Guidelines Standard Operating Procedures (SOPs) note that time constraints represent a challenge to many patients and that efforts RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 19
PHILANI CLINIC NOMANGESI CLINIC Lastly, only 61% of Facility Managers said they were giving that will allow for longer refills. While we recognise that 12 month scripts for stable PLHIV, a practice outlined in a progress is being made, there is still a way to go to get government gazette on 12 month ART scripting in 2020 to longer multi-month dispensing for all stable PLHIV. Facilities with 5 or more reports of 1 month supply (August to September 2021) 20 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
4b. Repeat prescription A total of 100% of facilities reported having Internal Pick up Points (PuPs) available and 91% had External strategies PuPs available to decant stable PLHIV to. In order to be effective, repeat prescription collection 87.4% of PLHIV think Internal PuPs strategies should make ARV collection quicker, easier and make ARV collection quicker more satisfactory for PLHIV. Out of 199 PLHIV interviewed using Internal PuPs, 87.4% thought they made ARV collection 100% of PLHIV think External PuPs make ARV collection quicker quicker. Out of 91 PLHIV interviewed using External Pick PuPs, 100% thought they made ARV collection quicker. The 54% of PLHIV would like to collect majority of PLHIV were either satisfied or very satisfied with ARVs closer to their home both Internal and External PuPs. Given the high satisfaction rates, it is important to ensure that as many stable PLHIV Recommendations: as possible are enrolled in a repeat prescription strategy. + Long waiting times and frequent trips to the clinic In terms of adherence clubs, there was low awareness of place an unnecessary burden on PLHIV, health clubs. 63% of PLHIV not already in an adherence club we facilities and healthcare workers. This directly spoke to were not aware of any clubs at the facility. However impacts the province’s ability to reach 95% of PLHIV this varied across the districts — Chris Hani (79%), Amathole on treatment and 95% of PLHIV virally suppressed. (57%), OR Tambo (43%), Alfred Nzo (13%), Buffalo City (5%). + By October 2021, the Eastern Cape Department of Health and DSPs should discuss strategies with Ritshidze and the PLHIV Sector on ways to maintain adherence clubs safely during On a scale of 1 to 5, how satisfied are you with the COVID-19 (including options for making clubs internal pick up point you use? If 1 is VERY UNSATISFIED, smaller in size, meeting outside etc.) and 5 is VERY SATISFIED Total Responses: 199 + By March 2022, the Eastern Cape Department of Health and DSPs should ensure that 60% of all PLHIV in the province are using a repeat prescription collection strategy (at least 25% of those PLHIV should be accessing treatment from an external pick up point and at least 20% from an Adherence Club). + By March 2022, DSPs should ensure all facilities are registered on the CCMDD programme (789 facilities in July 2021). + By March 2022, DSPs and the Eastern Cape Department of Health should establish at least two external pick up points at each site in order to provide greater access to refills closer to home and at more convenient locations to PLHIV. On a scale of 1 to 5, how satisfied are you with + By March 2022, the Eastern Cape Department the external pick up point you use? If 1 is VERY of Health and DSPs should scale up facility UNSATISFIED, and 5 is VERY SATISFIED and community based adherence clubs Total Responses: 91 so that there are clubs available at all facilities and that 20% of eligible PLHIV are voluntarily decanted into this model. Repeat prescription collection strategies should simplify and adapt HIV services across the cascade, in ways that both serve the needs of PLHIV better and reduce unnecessary burdens on the health system. These should be much simpler and quicker systems than waiting in long clinic queues. Most of the PLHIV we interviewed used either an internal pick up point (22%), external pick up point (10%) or collected at the facility through standard medicine dispensing (63%). However, currently at some sites (including Empilweni Gompo CHC, Gompo C Jabavu Clinic, Greenfields Clinic, Where do you collect ARVs? Nontyatyambo CHC, Philani NU 1 Clinic, Zanempilo Clinic Total Responses: 900 (East London), Ngcobo CHC, Tembelihle Clinic, Civic Centre Clinic (Mthatha), Mhlakulo CHC, Mqanduli CHC, Ntapane Clinic, Tsolo Clinic) have been reportedly suspended due to the COVID-19 pandemic. We maintain that functional adherence clubs play an important role in providing adequate treatment literacy information to ensure PLHIV stay on treatment and should not be removed in light of COVID-19. Rather the department and district support partner should develop strategies for restarting suspended clubs, while maintaining the safety of club members during the pandemic. RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 21
PHILANI CLINIC More than half of PLHIV who were surveyed (54%) Would patients like to collect ARVs closer to home? said that they would like to collect ARVs closer to Total Responses: 902 their home if it were possible. This points towards the fact that facilities should be working towards enrolling many more PLHIV out of the facility standard dispensing or Internal PuPs, and into External PuPs or community adherence clubs closer to home. COMMUNITY STORY When Cecilia fell pregnant in 2016 with her third child she also received the news that she had been diagnosed with HIV. Her local clinic, Matatiele Clinic, started her on ARVs and for the first few months she adjusted to her medication and to life with a newborn baby. Five months after the birth of her daughter Cecilia decided to take up a job offer in Johannesburg. Intending to continue with her ARVs she checked in at a local clinic in the city. She had to be “started from scratch”, she says through an isiXhosa translator. But she put up with the hassles and the retesting process and carried on with treatment. It was about six months later however, that she was suddenly retrenched. Without an income she decided to move back home to the Eastern Cape and did so within days of losing her job. “It was short notice so I didn’t have enough time to go to the clinic to ask for a transfer letter. But when I got back home and went to the Matatiele Clinic they said they wouldn’t help me because I couldn’t show them a transfer letter – even though they knew me from before I went to Joburg,” she says. Frustrated Cecilia stopped trying to get medication. Three months later she fell ill and had to be admitted to hospital. The doctors picked up that she had defaulted and initiated the process to have her ARVs restarted at Matatiele Clinic. That resumed for a time. In 2020 though she had to take her child to the clinic; she says she was deeply anxious and desperate. But she was also wary because she had lost two children and didn’t believe the nurses gave those children the help they needed. This time though, the nurses didn’t even attend to her child, telling Cecilia that she was in the wrong clinic under demarcations set up under COVID-19 restrictions. She ended up going to the Maluti Clinic that cost her additional taxi fare and more stress and anxiety being delayed to get her child help. “Even today my child is not well. The doctors say she is underweight for her age and they have given her supplements but she is weak,” she says. Cecilia hasn’t returned to Matatiele Clinic in months following that episode. As a result she has defaulted on treatment once again. It’s been nine months since she was last on her ARVs. “The service there is drastically deteriorating. When I used to go there you would see the people doing registration are just playing on their computers and phones; the nurses move up and down but nobody is coordinating and the managers, they are there just to warm their seats – nobody cares,” she says. Cecilia knows that returning for treatment after an extended break will just invite being shouted at and being given a dressing down – in front of everyone. “It’s too much, I don’t want to go back,” she says. 22 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
5. ART continuity Only 64% of patients thought that disengaging from care) including by investigating the staff were always all allegations and taking disciplinary action where friendly and professional appropriate. As per the Patients’ Rights Charter, “everyone has the right to complain about health care PLHIV at 24 facilities say they are sent to the back of the queue if they miss an appointment services and to have such complaints investigated and to receive a full response on such investigation”. + From October 2021, the Eastern Cape Department PLHIV at 25 they miss an appointment facilities say they are shouted at if of Health should accelerate implementation of the 2020 Standard Operating Procedures on National Adherence Guidelines including by issuing a circular PLHIV at 36 they miss an appointment facilities say they are welcomed back if that highlights that patients who return from a treatment interruption but have not missed a dose be screened for immediate access to a repeat prescription collection strategy, and acknowledge it is Recommendations: normal to miss appointments and/or have treatment + PLHIV lead complicated lives and may miss interruptions, and support and empower patients to appointments and even miss taking some pills. When improve retention after re-engagement as per the 2020 they do, meeting them with support when they return Standard Operating Procedures. to the clinic helps ensure long term adherence. But + By December 2021, the National Department of Health PLHIV who return to the clinic and are treated badly, should withdraw the measure that PLHIV who miss or who fear they will be, will often not come back. appointments should be sent to the back of the queue, Often staff do not treat people properly due to stress, and work with Ritshidze, the PLHIV Sector and MSF to exhaustion, and burn out as a result of the malfunction develop strategies to support implementation. in the health system including, lack of time, tools, equipment or medicines. This directly impacts our ability to reach the 2nd and 3rd 95 targets. People living with HIV lead complicated lives and may well miss + By October 2021, the Eastern Cape Department of appointments and even miss taking some pills. When they do, Health should implement with fidelity the 2020 Standard meeting them with support when they return to the clinic helps Operating Procedures on National Adherence Guidelines ensure long term adherence. But people living with HIV who including by issuing a circular that calls on all staff in the return to the clinic and are treated badly, or who fear they will facility to be welcoming, and acknowledge it is normal to be, will often not come back — even if that means stopping miss appointments and/or have treatment interruptions, treatment altogether. This poor treatment and unwelcoming and support and empower patients to improve environment is a significant reason for people living with retention after re-engagement as per the 2020 Standard HIV to disengage from care. This is particularly problematic Operating Procedures. for key populations (discussed in section 9 of this report). + From October 2021, the Eastern Cape Department of Staff attitude remains a major barrier. Across facilities, out Health should address all issues of poor staff attitude of 1207 patient responses, only 64% of patients thought (that contribute to PLHIV stopping treatment or that the staff were always friendly and professional. Worst performing sites: “Are the staff friendly and professional?” (August to September 2021) Many people we spoke to had never missed a visit to next time they came to the facility. Only 52 PLHIV collect ARVs. Out of the 279 PLHIV who had missed reported that staff will provide counseling on adherence appointments, 119 said that staff were welcoming if you return to the clinic. 80 PLHIV said that if you when they came to collect ARVs if they had previously miss an appointment to collect ARVs you are sent missed a visit. 44 said that staff shouted at them the to the back of the queue next time you come in. RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 23
NOZUKO CLINIC PHILANI CLINIC When a patient misses a visit, what happens the next IT IS POSSIBLE TO DO BETTER! time the patients comes to collect ARVs? Total Responses: 566 11 facilities were reported as welcoming and had no reports of PLHIV being reprimanded or sent to the back of the queue: Central Clinic (East London), Butterworth Gateway Clinic, Tabankulu CHC, Tembelihle Clinic, Greenfields Clinic, Xhora CHC, Nomzamo CHC, Ntapane Clinic, Fezeka NU 3 Clinic, Mhlakulo CHC, Philani Clinic (Queenstown). 24 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
When a patient misses a visit, what happens the next time the patients comes to collect ARVs? Staff Counsel Staff Reprimand Staff Send you to Staff are you on District Facility You Back of Queue Welcoming Back Adherence Amadiba Clinic 1 12 Imizizi Clinic 3 3 7 Isikelo Clinic 2 6 1 Maluti CHC 2 6 4 Alfred Nzo Matatiele Community Clinic 1 4 1 Mount Ayliff Gateway Clinic 1 1 Mount Frere Gateway Clinic 1 1 4 St Patrick’s Gateway Clinic 5 5 2 3 Tabankulu CHC 1 Butterworth Gateway Clinic 5 Idutywa Village CHC 1 2 Amathole Nozuko Clinic 1 1 2 1 Nqamakwe CHC 1 6 1 Willowvale CHC 2 2 2 Xhora CHC 2 Central Clinic (East London) 1 1 Duncan Village CHC 1 1 2 Empilweni Gompo CHC 3 1 Fezeka NU 3 Clinic 1 2 Gompo C Jabavu Clinic 4 3 2 Buffalo City Greenfields Clinic 1 1 Grey Gateway Clinic 3 1 Luyolo NU 9 Clinic 2 1 2 Nontyatyambo CHC 1 2 Philani NU 1 Clinic 2 2 Zanempilo Clinic (East London) 2 2 2 Nomzamo CHC 2 1 Chris Hani Ngcobo CHC 1 2 Philani Clinic (Queenstown) 2 5 Tembelihle Clinic 2 2 Nelson Mandela Bay Motherwell CHC 1 7 1 Civic Centre Clinic (Mthatha) 2 2 3 Flagstaff Clinic 1 5 Holy Cross Gateway Clinic 1 5 Lusikisiki Village Clinic (Qaukeni) 4 Mhlakulo CHC 4 1 Mthatha Gateway Clinic 2 1 2 1 OR Tambo Mqanduli CHC 1 4 2 Ngangelizwe CHC 7 3 4 Ntapane Clinic 8 3 Port St Johns CHC 1 12 Qumbu CHC 1 1 11 6 Stanford Terrace Clinic 5 2 1 St Elizabeth’s Gateway Clinic 5 1 Tsolo Clinic 2 3 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 25
PHILANI CLINIC It is critical that PLHIV who interrupt treatment are times staff call out patients’ names at the gate for their supported to re-engage in care. It is essential to support treatment. Further 12.6% of PLHIV feel that the facilities this reengagement by reducing or removing health system do not keep their status private and confidential. barriers to being retained in care. The revised National Adherence Guidelines SOPs include a new SOP, “SOP 9 Do patients feel this facility keep people’s HIV status Re-engagement in care”. The guiding principles of this SOP confidential and private? describe how staff should be friendly and welcoming and Total Responses: 900 acknowledge the challenge for life-long adherence. A lack of confidentiality and privacy are other factors that can impact life-long adherence. The most commonly- observed privacy violation was more than one person being consulted or counselled in the same room, in 6 facilities. Less common were PLHIV being separated from other chronic patients (in 3 facilities) and security guards checking patients’ medicines when they leave (in 3 facilities). Furthermore we receive complaints that in certain facilities PLHIV receive treatment in separate dispensaries and at Facilities with the most observed privacy violations (August to September 2021) 26 RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021
6. Treatment + Viral Load Literacy Only 92% of PLHIV we spoke to had gotten a viral load test in 95% of PLHIV had a viral load test in the last year the last year, with only 81.4% of participants living with HIV reporting that they knew their viral load. Only 70.6% agreed 79% of PLHIV said that a healthcare provider with the statement; “having an undetectable viral load means had explained the results the treatment is working well”. Further just 67.2% agreed with the statement “having an undetectable viral load means 78% agreed that having an undetectable viral load means treatment is working well a person is not infectious.” Only 80.8% of them said that a healthcare provider had explained the results of the viral load 66% agreed that having an undetectable viral test results. The districts that performed worst were, Alfred Nzo load means a person is not infectious where only 66% of PLHIV said a healthcare worker explained the results, followed by OR Tambo (75%) and Amathole (77%). Recommendations: + Treatment literacy improves linkage and retention Treatment literacy: do patients understand viral load rates as people understand the importance of starting and their health? and remaining on treatment effectively, directly Total Responses: 902 contributing to reaching the 95-95-95 targets. + From October 2021, the Eastern Cape Department of Health and DSPs should ensure that all healthcare workers (including CHWs) provide accurate and easily understandable information on treatment adherence and the importance of an undetectable viral load when talking to PLHIV, through consultations, counselling, outreach, and health talks at clinics. + From October 2021, the Eastern Cape Department of Health and DSPs should ensure that viral load test results are properly explained to all PLHIV in a timely manner. + In COP22, PEPFAR should fund an expansion of PLHIV- Treatment literacy: do patients understand viral load led treatment literacy efforts across all provinces, and transmission? including the Eastern Cape through training, education Total Responses: 900 and localised social mobilisation campaigns. Treatment literacy improves linkage and retention rates as people understand the importance of starting and remaining on treatment effectively. By becoming as informed as possible, people living with HIV are empowered to take control of their own health and sex lives. However, Ritshidze monitoring revealed major gaps in knowledge about what an undetectable viral load test means. Worst performing facilities on knowing that an undetectable viral load means treatment is working well (August to September 2021) RITSHIDZE EASTERN CAPE – STATE OF HEALTH – SEPTEMBER 2021 27
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