Development and Reliability of the Autism Work Skills Questionnaire (AWSQ)

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BRIEF REPORT
       Development and Reliability of the Autism Work Skills
       Questionnaire (AWSQ)

                                                                 Eynat Gal, Anat Ben Meir, Noomi Katz

       MeSH TERMS                                                OBJECTIVE. The Autism Work Skills Questionnaire (AWSQ), a new, comprehensive self-report assessment of
        autistic disorder                                       a person’s vocational profile, was developed to help produce a good person–job match. This preliminary study
                                                                 was aimed at developing the questionnaire and determining its content validity and internal consistency.
        employment
                                                                 METHOD. Forty-six adults with high-functioning autism spectrum disorder (HFASD), ages 18–39, were
        questionnaires
                                                                 interviewed with the questionnaire. A two-phase study was conducted: (1) constructing the questionnaire and
        self-report
                                                                 determining its content validity and (2) ascertaining internal consistency reliability.
        vocational guidance
                                                                 RESULTS. We found that the AWSQ had initial content validity and moderate to high internal consistency
                                                                 reliability (Cronbach’s a 5 .64–.90).
                                                                 CONCLUSION. The AWSQ can be a useful clinical and research tool in occupational therapy for evaluating
                                                                 work skills of adults with HFASD. Further studies with larger samples and including both typically developing
                                                                 individuals and individuals with HFASD are required to further support the questionnaire’s reliability and
                                                                 validity.

                                                                 Gal, E., Ben Meir, A., & Katz, N. (2013). Brief Report—Development and reliability of the Autism Work Skills Questionnaire
                                                                        (AWSQ). American Journal of Occupational Therapy, 67, e1–e5. http://dx.doi.org/10.5014/ajot.2013.005066

                                                                 A   utism spectrum disorder (ASD) is
       Eynat Gal, PhD, OTR, is Director, Developmental                                                                          employed in jobs that do not meet their
       Disabilities Department, Department of Occupational           typically diagnosed in early childhood                     abilities and preferences (Muller, Schuler,
       Therapy, University of Haifa, Mount Carmel, Haifa 31905
                                                                 and has a lifelong course. Despite the                         Burton, & Yates, 2003). Current surveys in
       Israel; eynatgal@gmail.com
                                                                 development of improved methods of                             the United States and United Kingdom in-
       Anat Ben Meir, MSc, OTR, is Occupational Therapy          assessment and treatment, the long-term                        dicate that 90% of adults with ASD > age
       Supervisor, Education Department, Ariel, Israel, and      prognosis is grim. Most people with ASD                        22 cannot gain or maintain competitive
       Graduate, School of Occupational Therapy, Hebrew
                                                                 and high-functioning autism spectrum                           employment (Seltzer et al., 2003). In the
       University in Jerusalem, Israel.
                                                                 disorders (HFASD) have difficulty par-                         United Kingdom, only 2% at the low end
       Noomi Katz, PhD, OTR, is Director, Research Institute     ticipating in everyday life occupations.                       and 12% at the high end of the autism
       for Health and Medical Professions, Ono Academic          The International Classification of Func-                      spectrum work in full-time paid jobs
       College, Kiryat Ono, Israel.                              tioning, Disability and Health (World                          (National Autistic Society, 2010).
                                                                 Health Organization [WHO], 2001) states                              By definition, people with HFASD
                                                                 that one’s ability to work is significant                      have difficulties in social and communi-
                                                                 for one’s health and well-being. However,                      cation skills and a restricted repertoire of
                                                                 although approximately 20%–25% of                              activities and interests. The disabilities of
                                                                 people with ASD have average and above-                        people with HFASD may affect complex
                                                                 average intelligence, are capable of work-                     interactions such as those needed in the
                                                                 ing in competitive employment (Howlin,                         various stages of finding and retaining
                                                                 Alcock, & Burkin, 2005), and can work                          a job. The social, communication, and
                                                                 successfully in community businesses (Capo,                    behavioral differences that people with
                                                                 2001), people with HFASD face substantial                      HFASD present may therefore hinder their
                                                                 difficulty finding and retaining paid em-                      professional success even if they have excellent
                                                                 ployment (Barnard, Harvard, Potter, &                          technical and vocational skills. Other barriers
                                                                 Prior, 2001; Hagner & Cooney, 2005). As                        to employment for this population are en-
                                                                 a result, many are not employed or are                         vironmental, namely employers’ ignorance

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of the characteristics of autism and of po-      nesses of adults with HFASD, and to assess        identified through this process included
       tential adaptations to improve the accessi-      its internal consistency reliability.             117 items that were formulated with clear
       bility of people with ASD to the world of                                                          and understandable terminology, encom-
       work.                                                                                              passing the main strengths and weaknesses
                                                        Method
             However, people with HFASD often                                                             of people with ASD that could potentially
       possess qualities such as a high level of        Research Design                                   affect their vocational success. These items
       math and computer skills and memory                                                                were divided into six domains that relate to
       skills that may be of benefit for work.          The study was performed in two phases:            the ability to work.
       Many of these people have other traits           (1) construction of the questionnaire and               For each item, the participants with
       that employers may find advantageous,            determination of its content validity and         HFASD were asked to rate their perfor-
       such as honesty, reliability, and persis-        (2) determination of the internal consis-         mance on a 5-point Likert scale ranging
       tence (Mawhood & Howlin, 1999). Re-              tency reliability of the questionnaire’s          from 5 (very high) to 1 (very low); higher
       search aimed at determining the needs            domains. Approval for the study was ob-           scores indicated better performance. Some
       and strategies that may benefit people           tained from the ethics committee of the           items were worded for reverse coding.
       with ASD has suggested that they require         Israeli Ministry of Welfare, Ministry of                Next, content validity was assessed on
       vocational supports that differ from those       Education, and the Hebrew University.             the basis of the experts’ evaluation of the
       recommended for people with other types          Participants and their parents or guardians       AWSQ items (Benson & Clark, 1982).
       of developmental disabilities, mental retarda-   signed the informed consent forms.                The original 117-item questionnaire was
       tion, or both (Muller et al., 2003).                Phase 1: Construction of the Question-         reviewed by two expert consultants and
             It is often possible to make the           naire and Determination of Content Val-           three vocational rehabilitation specialists
       working environment accessible to people         idity. The AWSQ was developed specifically        experienced in working with people with
       with special needs, but the needs of those       to assess adults with HFASD who have              ASD. They were asked to evaluate whether
       with HFASD are unique to each in-                completed high school as well as adults who       these 117 items would provide the in-
       dividual and must be identified by reports       are ready to begin their vocational life, are     formation needed to assess work readiness
       of caregivers, the person with HFASD             already working, or have worked in the past.      and abilities and then to rate the clarity of
       himself or herself, or both. However, vo-        Its purpose is to form the basis of an            each item. They further assessed, through
       cational support services for people with        individual’s vocational profile, hence fa-        a table of specifications, whether each
       ASD rarely exist; services that have been        cilitating a good person–job match. The           remaining item related to one of the six
       implemented mainly support the needs of          questionnaire addresses personal and edu-         domains previously identified. After the
       lower functioning workers in protected           cational data, employment history, work           specialists’ input, and to shorten the ques-
       employment environments (Inge, Dymond,           habits and styles, independence in work and       tionnaire, 39 of the questions that were
       & Wehman, 1996) and in work site coach-          studying, work-related strengths and weak-        identified as unclear or too complicated,
       ing, supplemented by training by means           nesses, previous obstacles to work, preferred     repetitive of other questions, or irrelevant
       of mock-ups of job-related situations            physical and social environment, routine          to assessing work-related abilities were
       (Lattimore, Parsons, & Reid, 2006).              daily activities, interpersonal skills, and fu-   omitted. The remaining 78 questions con-
             Considering the degree to which            ture goals.                                       stituted the final version of the questionnaire.
       therapists are involved in evaluating and              The first phase of AWSQ construc-                 To define the relatedness of each item
       planning vocational intervention, a valid        tion began with the selection of the              to a domain, the agreement between the
       and reliable assessment tool can be in-          questionnaire items by the authors, all of        specialists was divided into three levels: full
       strumental in guiding clinicians’ decisions      whom are experts in the area of ASD,              agreement (i.e., percentage of items in
       as to what kind of job placement could           rehabilitation assessment, or both and have       a domain on which all people agreed),
       match the needs of people with HFASD             >20 yr of clinical and research experience.       partial agreement (i.e., percentage of items
       (Baker, 2005; Bliss & Edmonds, 2008).            They deliberated over what data were              in a domain on which 3–4 people agreed),
       Thus, the information provided by an ap-         needed to assess work-related strengths and       and poor agreement (i.e., percentage of
       propriate assessment tool may serve as the       weaknesses in people with HFASD; in               items in a domain on which
obtained in the table of specifications until      HFASD ages 18–39 yr (mean age 5 25.32           moderate, ranging from .65 to .69, which
       an agreement was reached as to which do-           yr, standard deviation 5 6.24) participated     may indicate more variable responses to the
       main it best reflected.                            in the study. All participants had at least     more subjective items. No items were de-
             Next, in a secondary qualitative pilot       10–12 yr of education.                          leted because this would not have improved
       evaluation process, 3 people with HFASD                  Participants were recruited from Beit     the level of reliability (see Table 1). The
       and 3 of their parents were asked to re-           Ekstein centers, which provide housing,         AWSQ was originally developed in Hebrew
       spond to the 78 questionnaire items with           employment, and educational services            and underwent a standardized translation
       respect to themselves or their children.           for people with special needs. All partic-      process into English after validation.
       According to the feedback obtained in the          ipants were in transition from an educa-
       1-hr-long interviews, the items were easy          tional setting to employment or had been
       to understand, and the questionnaire re-           employed in the past and needed a job.
                                                                                                          Discussion
       flected its prescribed objective and pro-          Participants with known serious ill-            The development of the AWSQ is a first
       vided a thorough profile of the participants’      nesses, injuries, physical disabilities, or     step in addressing an urgent need to en-
       work-related strengths and weaknesses.             intellectual disability were excluded from      hance the ability of therapists and edu-
             After this process, the final product        the study.                                      cators to assess work-related skills to assist
       contained nine subscales, of which three                                                           people with HFASD in finding jobs that
       address personal and educational data and          Procedure and Data Analysis                     meet their needs. The AWSQ derives from
       information regarding the person’s work-                                                           the perception of participation as an in-
                                                          The AWSQ was completed during in-
       related past and present. The remaining six                                                        dicator of function and health, also reflected
                                                          dividual interviews with the participants
       subscales focus on work-related skills and                                                         by the ability to engage in appropriate
                                                          by the second author (Anat Ben Meir),
       consider the following six domains: work                                                           vocations (WHO, 2001). Moreover, re-
                                                          an experienced clinician with intensive
       habits, working style, independence in                                                             liable and valid assessments that specifi-
                                                          experience working with people with
       work and studying, sensory responses and                                                           cally relate to the work-related strengths
                                                          ASD. After data collection, descriptive
       needs, routine daily activities, and in-                                                           and weaknesses of those with HFASD are
                                                          statistics (means, standard deviations) of
       terpersonal skills. The number of items in                                                         lacking. This study established the AWSQ’s
                                                          all domains of the AWSQ were calcu-
       each domain vary; thus, the means of the                                                           content validity by expert qualitative evalu-
                                                          lated, and Cronbach’s a coefficient was
       scores in each of these six domains consti-                                                        ation, and internal consistency reliabilities of
                                                          used for internal consistency reliability of
       tute the final scores (Table 1).                                                                   the six work-related questionnaire domain
                                                          the domain scales.
          Phase 2: Internal Consistency Reliability.                                                      subscales were found to range from moderate
       After the AWSQ was constructed, we ex-                                                             to high (Cronbach’s as 5 .65–.90). Thus, the
       amined the internal consistency reliability
                                                          Results                                         study results suggest that the AWSQ reliably
       of the questionnaire’s domains.                    Internal consistency reliability of the ques-   informs therapists about vocationally related
                                                          tionnaire domains ranged from moderate          issues for people with HFASD in the various
       Participants                                       to high (Cronbach’s as 5 .65–.90), rep-         work domains (work habits, working style,
       The study sample consisted of a conve-             resenting acceptable levels. The domains        independence in work and studying, sensory
       nience sample of adults who had pre-               with the highest reliability values were        responses and needs, routine daily activities,
       viously been diagnosed with HFASD                  work habits (a 5 .89), routine daily ac-        and interpersonal skills).
       according to DSM–IV–TR criteria. Their             tivities (a 5 .90), and independence in              The questionnaire domains with the
       diagnosis was validated for this study with        work and studying (a 5 .79). These do-          highest reliability values were work habits,
       the Social Communication Questionnaire             mains seem to be clearer and more objec-        routine daily activities, and independence
       (Berument, Rutter, Lord, Pickles, & Bailey,        tive to the participants, resulting in higher   in work and studying, indicating that most
       1999; Rutter, Bailey, & Lord, 2003).               internal consistency between the items.         of those items do reflect the respective
       Forty-six people (36 men, 10 women) with           The a values of the other domains were          domain. Indeed, the domains of work

       Table 1. Autism Work Skills Questionnaire: Subscales, Example Items, Number of Items and Range of Scores, Means and Standard
       Deviations, and Cronbach’s a
       Domain                                           Example Item                     Items in Each Domain (Range)      M (SD)        Cronbach’s a
       Work habits                    Follows directions regarding work assignments              12 (12–60)               4.31 (0.50)         .89
       Working style                  Easily adjusts to changes at work (e.g., changes           10 (10–50)               3.36 (0.58)         .65
                                        in job assignment or environment)
       Independence in work           Can learn a new subject by self from written               10 (10–50)               3.34 (0.86)         .79
         and studying                   material
       Sensory responses and needs    Bothered by artificial lighting?                           13 (13–65)               3.56 (0.63)         .68
       Routine daily activities       Fits clothing to the work requirements                     14 (14–70)               3.98 (0.78)         .90
       Interpersonal skills           Likes to cooperate with colleagues at work                 19 (19–95)               3.94 (0.40)         .69

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habits, routine daily activities, and in-           abilities (e.g., follow safety rules at work) and   construct validity are recommended to dem-
       dependence in work and studying, which              their preferences (e.g., has to work in silence).   onstrate its usefulness as a clinical tool.
       describe a person’s behavior, were shown                  Indeed, this study’s results may sug-
       to be easier to respond to and received more        gest that people with HFASD are able
                                                                                                               Implications for Occupational
       consistent responses than sensory needs             to report their performance and prefer-
       or interpersonal skills. However, expert            ences in relation to others (e.g., interper-
                                                                                                               Therapy Practice
       content validity of sensory needs or in-            sonal skills) with only moderate reliability.       The results of this study have the fol-
       terpersonal skills suggests high agreement          However, the high reliability of AWSQ               lowing implications for occupational ther-
       regarding the domains that their items re-          domains that relate to a more objective             apy practice:
       flect. These two domains, which relate to           self-description (e.g., work habits), based         • The AWSQ provides guidelines and
       one’s relationship with self and others, re-        on interviews with people with HFASD,                  information on domains, abilities, and
       quire a stronger sense of self-awareness.           may suggest that adolescents and adults                difficulties of persons with HFASD.
       Therefore, one may assume that the mod-             with HFASD are able to report such skills           • When using assessments that examine
       erate internal reliability of these domains         and abilities in a very reliable way. This             vocational skills of people with HFASD,
       may reflect the difficulty people with              finding supports recent trends in health               therapists need to consider self-report by
       HFASD have in responding to items that              care that have resulted in emphasizing                 the person with HFASD in addition to
       require comparing themselves with others            people’s self-reporting of their experi-               the report of a parent or guardian or
       and with social norms in a highly reliable          ences, health care, and needs (Cremeens                a therapist when interpreting results.
       matter, in contrast to more objective re-           et al., 2006). The self-report method of
       porting about themselves. This assumption           gathering information also ensures that
       needs to be further studied because it may be       information about subjective experiences
                                                                                                               Conclusion
       that the lower correlations indeed indicate         and internal feelings is not overlooked and,        The AWSQ, a self-report questionnaire
       lower reliability; therefore, this portion of the   in most cases, can be reported by the people        for people with HFASD, was found to be
       questionnaire requires further studies.             concerned, in addition to their parents’ or         easy to use, comprehensive, and reliable.
             Caregiver reports have long repre-            caregivers’ reports or clinical observations.       This study represents the first stage in the
       sented the major source of information                                                                  development of a comprehensive inter-
       about children and adults with ASD. Some                                                                vention program to assist in adapting vo-
       advantages of using reports from caregivers
                                                           Limitations and Future Research                     cational placements for people with
       are their familiarity with the child, their         This initial study serves as a pilot only           HFASD. The information that this tool
       ability to comprehend the questions, and            because the number of participants was              provides may be useful in deciding what
       their extensive observations of the fre-            small. For the AWSQ to be appropriate for           kind of job placement may meet the
       quency and timing of behaviors (Grills &            distribution to the broad occupational              specific person’s needs and what kind of
       Ollendick, 2002; Hanna & Rodger, 2002;              therapy audience, it would be prudent to            environment and support will meet his
       Rogers, Hepburn, & Wehner, 2003). Pa-               further establish the questionnaire’s val-          or her needs as a worker. The results
       rents’ and caregivers’ reports are also used        idity by examining it with a larger pop-            strengthen the contention that adolescents
       to avoid potential problems that some-              ulation of people with ASD as well as with          and adults with HFASD are capable of re-
       times arise when children and adults with           other clinical and typically developing             porting their own abilities and needs. s
       disabilities are the information providers,         populations. Ongoing studies focus on (1)
       such as misunderstanding of questions be-           collecting data from a group of typically
       cause of low cognitive levels, a tendency to        developing people matched on age, gender,           Acknowledgment
       be influenced by situational factors, and           and education with people with HFASD to             We thank all the participants who took
       barriers encountered because of deficien-           establish the AWSQ’s construct validity             part in this study, as well as the facilities,
       cies in language development and abilities          and (2) a 9-mo follow-up of a group of              especially the Beit Eckstein organization
       (Cremeens, Eiser, & Blades, 2006; Grills            people with HFASD who were placed in                that enabled us to collect data.
       & Ollendick, 2002). Some of these barriers          jobs according to the AWSQ results and
       may apply specifically to people with ASD,          assessment of their work behavior and sat-
       including those who are high functioning,           isfaction compared with those of a control          References
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