COVID-19 SURVEYS (BC AND CANADA) - BC AHSN
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COVID-19 SURVEYS (BC AND CANADA) The following list is an inventory of surveys being conducted in British Columbia to understand how the COVID-19 pandemic is impacting citizens’ physical and mental well-being. The purpose is to support connection, coordination and collaboration in information and data collection during and after the COVID-19 pandemic, and to serve as a central source of information on survey data to support monitoring and decision-making. Included projects are by BC health sector organizations and public or private institutions and organizations with a presence in Canada that are including individual British Columbians, BC health organizations or BC health care providers as part of their survey sample. Policy makers and researchers are invited to add to this list by contacting Hlthresearch@gov.bc.ca. Last updated: September 21, 2020 – Surveys are listed by lead organization then organized alphabetically by theme. Surveys are dated by the month they are updated or added to this list. BC Provincial Government Universities cont’d Firms Conducting Market/Social Research BC Centre for Disease Control University of Montreal Abacus BC Patient Centred Measurement University of Saskatchewan DART/maru Fraser Health Authority Université de Sherbrooke Ipsos Canada Provincial Health Services Authority University of Toronto Leger Vancouver Coastal Health Authority University of Victoria McKinsey & Company Federal Government York University Nanos Research Statistics Canada Research Co Municipal Government Not-for-profit Organizations Human Resources Firms City of Vancouver Angus Reid Institute Morneau Shepell Universities Association for Canadian Studies (ACS) Robert Half Carleton University Canadian Organization for Rare Disorders Sunlife Financial Dalhousie University (CORD) Kwantlen Polytechnic University Canadian Mental Health Association Montreal Behavioural Medicine Centre Canadian Teachers’ Federation (CIUSSS-NIM / UQAM / Concordia) Canadian Women’s Foundation Royal Roads University Centre de recherche du CHUM Ryerson University Centre for Addiction and Mental Health Simon Fraser University (CAMH) University of Alberta Conference Board of Canada University of British Columbia Mental Health Commission of Canada University of British Columbia – Okanagan Mental Health Research Canada University of the Fraser Valley ParticipACTION University of Manitoba The Vanier Institute of the Family Back to top 1
BC PROVINCIAL GOVERNMENT BC CENTRE FOR DISEASE CONTROL Survey Name: BCCDC COVID-19 Misinformation and Stigma Survey Contact: Emily Rempel Description: As the BCCDC is aiming to be the source of truth for information in BC during the COVID-19 response, it is (emily.rempel@bccdc.ca), Katie Fenn essential we understand the level and impact of misinformation locally to develop proactive solutions. The survey gives us (katie.fenn@phsa.ca) or Harlan Pruden an opportunity to reflect on our different publics’ needs and assess our communication strategy while responding to an (harlan.pruden@bccdc.ca ongoing crisis. Themes: Knowledge of COVID-19 (prevention, treatment and transmission), behaviour change due to COVID-19 (healthy Added in May 2020 and harmful coping behaviours), communication preferences (where and why do different publics in BC access information sources), stigma (discrimination and racism due to COVID-19). Data collection: April 14, 2020 – April 19, 2020 (n=3,073) ID: 1 Website information (i.e. survey, reports, analysis): not available Survey Name: BC COVID-19 SPEAK: Your story, our future Contact: Jat Sandhu (jat.sandhu@bccdc.ca) Description: The COVID-19 population health survey is one of three planned initiatives to strengthen capabilities for heightened surveillance and coordinated pandemic response activities to guide and inform ongoing public health measures. The survey provides a means for understanding public risk perceptions, acceptability, effectiveness and harms Added in May 2020 of measures that can help inform public health prevention goals and provide engagement to support ongoing public trust and adherence with maintaining social distancing measures. The other planned initiatives which will be informed by the population health survey relate to a serological survey to assess the extent of COVID-19 infection in the general population, and then a sentinel surveillance program to provide earlier indication of community transmission. Themes: Public health response; the survey includes questions to guide public health decision making with regard to testing strategies, management of cases and contacts, measures targeted at the individual and community level, broader policy considerations and equity. Data collection: May 12 to May 31, 2020 Website information (i.e. survey, reports, analysis): http://www.bccdc.ca/health-info/diseases-conditions/covid-19/covid- 19-survey ID: 2 Back to top 2
BC PATIENT CENTRED MEASUREMENT Survey Name: COVID-19 patient experience module Contact: Lena Cuthbertson Description: The COVID-19 patient experience module leverages BC’s provincial Continuity Across Transitions (CAT) survey. (lcuthbertson@providencehealth.bc.ca Patients who visited one of 102 EDs or were discharged following an inpatient stay at one of 78 acute care hospitals are or randomly sampled from the 1st to 15th and 16th to end of each month. Experiences pre/during/post the COVID-19 info.bcpcm@providencehealth.bc.ca) pandemic are being captured. Themes: COVID-19 as reason for ED visit/hospitalization, experiences with Virtual Health visits, confidence in steps taken Added in May 2020 to prevent contracting COVID-19 in ED/hospital, awareness of importance of hand hygiene, communication due to reduced family presence, keeping babies/new mothers safe in hospital & post discharge; sources of information about COVID-19; confidence in having care needs met in ED/hospital during pandemic; opinions of people working in healthcare; social connectedness during pandemic; overall life satisfaction; helpfulness of online resources for stress/anxiety/ depression related to pandemic. Data collection: Random sample of ED visits/hospital discharges for CAT survey since October 2019; for CAT+COVID-19 module starting March 1 (2% sampling ratio = 1 of every 50 ED visits). Website information (i.e. survey, reports, analysis): Unweighted results available via an online reporting platform (the ID: 3 DART); weighted, linkable data available to analysts and researchers via Healthideas and PopDataBC. FRASER HEALTH AUTHORITY Survey Name: The lived experiences of Canadian Critical Care Nurses providing direct patient care during the COVID-19 Information compiled from the BC pandemic Inventory of COVID-19 Research. Accessed June 4, 2020. Description: A collaboration between Fraser Health Authority, UBC and the University of Ottawa, this survey and interview study is to examine the experiences of critical care nurses caring for COVID-19 patients. Themes: Health care workers, experiences of critical care nurses Data collection: Survey and interviews; study population – health care workers Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/lived-experiences-canadian-critical-care-nurses-providing-direct- ID: 28 patient-care-during-covid Back to top 3
PROVINCIAL HEALTH SERVICES AUTHORITY Survey Name: COVID-19 – What Families Think and Do Information compiled from the BC Inventory of COVID-19 Research. Description: Led by the BC Children’s Hospital, the objective of this study is to assess parental attitudes towards COVID-19, Accessed June 4, 2020. to understand the reasons they decided to come to the Emergency Department and to learn about their attitudes about vaccination during a time of a global pandemic. The BC Children’s Hospital is collaborating with the Department of Emergency Medicine Mary Bridge Children's Hospital, Tacoma, Washington, Emergency Medicine Seattle Children's Hospital, Seattle, Washington, and Emergency Medicine Doernbecher Children's Hospital, Portland, Oregon. Themes: Emergency medicine, parental attitudes, vaccinations Data collection: Online standardized questionnaire to all families coming to the Emergency Department at participating sites. Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/what-families-think-and-do-survey-families-visiting-pediatric- ID: 29 emergency-department Survey Name: Ortho COVID-19 Survey: Impact of COVID-19 on Pediatric Orthopedic Surgery Practice Information compiled from the BC Inventory of COVID-19 Research. Description: A collaboration between the BC Children’s Hospital Research Institute and UBC, the primary purpose of this study is to investigate the impacts of Coronavirus (COVID-19) on pediatric orthopaedic practice across the globe. Data will Accessed June 4, 2020. be collected anonymously and/or be de-identified. Themes: Pediatric orthopaedic surgery practice Data collection: International online survey of pediatric orthopaedic surgeons ID: 30 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ Survey Name: Rapid Evidence Study of a Provincial Population Based Cohort for Gender and Sex Information compiled from the BC Description: In the COVID-19 RESPPONSE study, experts at the Women's Health Research Institute in collaboration with Inventory of COVID-19 Research. UBC, SFU, BC Women’s Hospital and the Vaccine Evaluation Center will use existing research cohorts to rapidly enroll Accessed July 14, 2020. ~7000 adult British Columbians of diverse sexes, genders, ages, and locations to understand how common is COVID-19, and what are its effects on psychological and economic aspects of people's lives. Participants will complete online surveys about psychological and socioeconomic factors to help us understand the effects of public health recommendations due to COVID-19. This study will provide the first Canadian estimates of COVID-19 infection collated by sex and gender to aid in informing public health decisions. Themes: Rate of infection, immunity, psychological impacts, economic impacts Back to top 4
Data collection: ~7000 adult British Columbians of diverse sexes, genders, ages, and locations; online surveys; saliva collection for active COVID-19 infection; finger prick blood test for COVID-19 antibodies; antibody positive participants will be invited to a longitudinal cohort to determine levels and presence of antibodies over time, and to monitor the ongoing impacts of COVID-19; a random subset (n=450) will also send a hair sample to assess hair cortisol as a biomarker of chronic stress, and will provide a second hair sample at a second time point to look at changes in stress. Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ ID: 66 Provincial Health Services Authority cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: BC Children’s Hospital Research Institute Survey: Impact of COVID-19 pandemic on research at BC Children’s Accessed June 4, 2020. Hospital Research Institute Description: A collaboration between the BC Children’s Hospital Research Institute and UBC, the primary purpose of this survey study is to investigate the impacts of Coronavirus (COVID-19) on research activities, training, personnel, and funding at the BC Children's Hospital Research Institute (BCCHR). Themes: Research activities at BC Children’s Hospital Research Institute ID: 31 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ VANCOUVER COASTAL HEALTH AUTHORITY Survey Name: Brain Wellness Program Feedback Survey Study Information compiled from the BC Inventory of COVID-19 Research. Description: The purpose of this study is to advance our understanding of the effects of wellness and potential lifestyle modifiers such as physical activity, mindfulness, and social connection on the quality of life and overall health of a geriatric Accessed July 14, 2020. population. We aim to do this by assessing the impact of wellness and lifestyle programs, barriers and facilitators of participation, as well as the advantages and disadvantages of the current virtual delivery format to inform and improve future program offerings. We also aim to understand the effects of COVID-19 on participation in wellness and lifestyle activities. By exploring the similarities and differences among a group of individuals who participate in wellness and lifestyle programs, insight will be gained into the role and benefits of these programs. Themes: Aging, geriatric population, wellness, wellness and lifestyle programs Data collection: Feedback survey on participants in wellness and lifestyle activities Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ ID: 67 Survey Name: A study of patients’ perspectives on the impact of COVID-19 on the care and support for British Columbians Contact: Prabjit Barn living with asthma and COPD (prabjit.barn@vch.ca) Description: Changes to health care, as well as other strategies, such as physical distancing, may be affecting the way that British Columbians with asthma and chronic obstructive respiratory disease (COPD) are receiving care and support. This Added in August 2020 Back to top 5
study, which is being undertaken by Legacy for Airway Health at the Vancouver Coastal Health Research Institute, aims to understand the impacts of the COVID-19 pandemic on the health and well-being of this populations, using an online survey and interviews. The information from this study can support the development of strategies to provide the best care possible for BC patients with asthma and COPD, as well as other lung conditions during the current and future pandemics. Themes: Asthma, COPD, care and support, mental and emotional well-being, social impacts, impacts on finances, work, and education Data collection: We aim to recruit 500 participants to complete a one-time online survey, followed by 50 interviews among ID: 110 a sub-sample of this population. We aim to disseminate the survey by late September and conduct interviews in January 2021. Website information (i.e. survey, reports, analysis): The survey is still being developed. Vancouver Coastal Health Authority cont’d Contact: Serena Bertoli-Haley Survey Name: COVID Community Follow-Up (Serena.Bertoli-Haley@vch.ca) or Emilie Gladstone Description: This survey will be given to patients who are discharged from a hospital encounter for COVID (from either a (Emilie.Gladstone@vch.ca) COVID unit or ICU) and receive subsequent community follow-up for 7 weeks post-discharge. This is a program-led survey, for use in ongoing QI. Themes: Community follow-up, patients’ experience with their follow-up encounters (was the care respectful of their Added in May 2020 preferences, did they receive all the info they needed, did their regular provider seem up to date, etc.) as well as how they are doing at home after 7 weeks. ID: 4 Data collection: Online or paper survey, mid-May, ongoing (population is small) Website information (i.e. survey, reports, analysis): TBD Survey Name: Engage-COVID-19 Information compiled from the BC Inventory of COVID-19 Research. Description: BC Centre for Excellence in HIV/AIDS is leading the Engage-COVID-19 Study to rapidly respond to current and pressing knowledge gaps concerning the COVID-19 pandemic among GBM in Canada; to understand COVID-19 risks, Accessed July 14, 2020. vulnerabilities, and prevention strategies as well as the impacts of COVID-19 on health service access and different levels of HIV/STI risk across provinces. This study will be embedded within the Engage Cohort Study, which is the only study with comparable biobehavioural data on HIV/STI prevalence and risk behaviours for GBM in Canada. Themes: Gay and bisexual men, occurrence of COVID-19, immunity, prevention strategies, impact on access to health care Data collection: Baseline data collection completed with 1842 GBM enrolled in the Engage Cohort Study (565 in Vancouver, 388 in Toronto, and 889 in Montreal); estimate recruiting 1695-1768 participants; in-depth survey; SARS-CoV-2 antibody testing; sub-sample of 90 participants for qualitative interviews ID: 68 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ Back to top 6
Vancouver Coastal Health Authority cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: Clinicians’ quality of life and moral injury during the COVID-19 pandemic Accessed June 4, 2020. Description: A collaboration between Providence Health Care and UBC, the objective of this study is to recruit frontline clinicians caring for patients with COVID-19, and their spouses/partners. We will administer a questionnaire to capture data on quality of life and moral injury during the COVID-19 pandemic. The findings of this study will allow for targeted mental health and wellness interventions for clinicians caring for patients with COVID-19, and their spouses/partners. Themes: Health care workers, clinicians and spouses/partners, quality of life, moral injury, mental health and wellness Data collection: Questionnaire; participants include frontline clinicians caring for patients with COVID-19 and their spouses/partners. Website information (i.e. survey, reports, analysis): ID: 32 • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/covid-19-survey-clinicians-quality-life-and-moral-injury-during-covid- 19-pandemic Survey Name: COVID-19 pandemic workforce redesign: impact of working from home policies Information compiled from the BC Description: The COVID-19 pandemic has resulted in a sudden transition to working from home (WFH) due to the Inventory of COVID-19 Research. implementation of social distancing measures for COVID-19 containment. Workers in clinical and research settings face Accessed July 14, 2020. unique challenges as their work is not naturally geared towards remote work. We will investigate the impact of COVID-19- related WFH policies on these workers using an online survey and evaluate their adjustment to the new working environment by determining their self-perceived productivity and well-being, as well as anxieties and coping strategies used during this stressful time. Our results may inform future WFH approaches and strategies to ensure business continuity in the face of other disruptions, such as natural disasters. Themes: Health care workers, working from home, productivity, well-being, anxiety, coping strategies Data collection: Online survey ID: 69 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ Survey Name: TEC4Home BP Information compiled from the BC Inventory of COVID-19 Research. Description: Led by Providence Health Care, in collaboration with UBC and Vancouver Coastal Health, the objective of this survey is to assess how sub-specialists at Vancouver General Hospital and St. Paul's Hospital are managing patients with Accessed July 14, 2020. hypertension during the COVID-19 pandemic. In a time of COVID-19 with restricted physical access to patients with chronic medical conditions, there is a significant increase in the use of video and phone to communicate with patients. There is uncertainty about how doctors are measuring BP and assessing cardiovascular risk. Home BP devices are one potential solution. Sharing of home BP readings with the physicians is problematic, as is assessment of biophysical measures Back to top 7
normally assessed to evaluate cardiovascular risk, and hypertension. It is possible that some solutions have been tested and found to be effective by patients and physicians. Themes: Hypertension patients, chronic conditions, virtual health Data collection: Survey of sub-specialists at Vancouver General Hospital and St. Paul’s Hospital ID: 70 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ Vancouver Coastal Health Authority cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: Evaluation of rapid redesign and resource deployment in Long-Term Care during COVID-19 Accessed August 10, 2020. Description: Led by the Louis Brier Home and Hospital in collaboration with UBC, this study will track outcomes from these rapid changes to resident care delivery in response to COVID-19. How have these changes affected (a) the quality and safety of care delivery and (b) staff, residents and their families? Researchers will use a variety of methods, including statistical analyses of administrative and survey data and interviews. Key stakeholders (leadership, staff, Family and Resident Councils) will be represented on a steering committee who will be involved in all phases of the research. The goal is to produce evidence based LTC practices and policies for pandemic management as soon as possible. Themes: Long-term care, resident care Data collection: Data collection methods include survey data and interviews Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ ID: 111 • https://covid19.research.ubc.ca/research/evaluation-rapid-redesign-and-resource-deployment-long-term-care- during-covid-19 Survey Name: A telephone survey on understanding, adherence, and barriers to self-isolation Information compiled from the BC Inventory of COVID-19 Research. Description: A collaboration between Providence Health Care and Vancouver Coastal Health Authority, most people self- Accessed June 4, 2020. isolating will face challenges doing so properly: getting food or medicines, being separated from loved ones, and walking their dog, to name a few. In this project, the research team will call people discharged from emergency departments to find out about their successes in isolating, their difficulties, and their opinion of the advice they received from emergency departments and health authorities. The results of the survey will help health officials provide better support and information to those self-isolating, thus helping to better control the current and any future pandemics. Themes: Self-isolation, advice from emergency departments and health authorities Data collection: Telephone survey; people discharged from emergency departments Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ ID: 33 Back to top 8
Vancouver Coastal Health Authority cont’d Contact: Serena Bertoli-Haley (Serena.Bertoli-Haley@vch.ca) or Survey Name: Experience with Elective Surgery Claire Snyman (patient partner) Description: To contact patients whose elective surgeries are resumed starting in mid-May. Will have a pre-op component, (claire@twosteps.ca) and a follow-up once the patient has been discharged home. Pilot in a few surgical services at VGH. Themes: Surgical services, elective surgery, patients’ experience with their follow-up encounters (was the care respectful of their preferences, did they receive all the info they needed, did their regular provider seem up to date, etc.) as well as Added in May 2020 how they are doing at home after 7 weeks. Data collection: TBD; hoping to start with elective surgeries being rebooked after cancellation for COVID ID: 5 Website information (i.e. survey, reports, analysis): TBD Survey Name: Patient Experience with Virtual Health Encounters Contact: Serena Bertoli-Haley (Serena.Bertoli-Haley@vch.ca) or Description: This survey will be sent to clients who had any virtual encounters with VCH providers/teams since the start of Tanya Tang (Tanya.Tang@vch.ca) service restrictions due to COVID response. The survey results will inform an evaluation of Virtual Health as a viable technology for ongoing use in community encounters, alongside a staff and provider experience survey about working remotely. The initiative is being led by our HR department. Added in May 2020 Themes: Virtual health, ease of booking appointments, experience with provider interaction over virtual modality (listening, involving, encouraging questions), perception of safety, overall experience with virtual modality, likelihood to recommend, likelihood to use in the future as an alternative to face-to-face encounters, whether patient received enough pertinent COVID info from VCH. Data collection: TBD; estimate mid-May Website information (i.e. survey, reports, analysis): TBD ID: 6 Survey Name: Experience with use of Virtual Health to Connect with Family Contact: Serena Bertoli-Haley (Serena.Bertoli-Haley@vch.ca) Description: Unlike the first survey, which is for virtual clinical encounters, this survey would be given to patients on COVID units who use hospital-provided devices to video-chat with friends and family who cannot visit in person. This is only a concept at this time. Added in May 2020 Themes: Virtual health; whether the video call benefited the patient re: staying connected to loved ones, reducing sense of isolation; was it easy to use, was the audio-video quality acceptable, were staff helpful in setting it up. Data collection: In planning ID: 7 Website information (i.e. survey, reports, analysis): TBD Back to top 9
Vancouver Coastal Health Authority cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: DEEC COVID Survey: Assessing the impact of COVID-19 pandemic on access to vision care Accessed July 14, 2020. Description: Conducted by the Downtown Eastside Eye Clinic (DEEC), the purpose of this study is to examine how the pandemic has affected access to vision care for the patients of Vancouver's Downtown Eastside. Data will be stored on secure UBC server (Redcap). Data will be anonymized and reported in aggregate fashion as percentages. Descriptive statistics will be applied for data analysis. We anticipate minimal risk to participants; their responses will not impact care. Themes: Vision care, eye care, vulnerable populations Data collection: Survey of clinic patients and regular referrers of the clinic with 8-9 questions in electronic format that should take approximately 5 minutes to complete; patients will complete survey on a computer at the clinic after their appointment; clinicians will complete survey from a link that'll be emailed to them. Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ ID: 71 FEDERAL GOVERNMENT STATISTICS CANADA Survey Name: The Canadian Perspectives Survey Series Information compiled from Statistics Canada website. Accessed May 1, Description: A new Canadian Perspectives Survey Series (CPSS), for which a panel of Canadians have agreed to complete a number of short online surveys. The COVID-19 pandemic is currently disrupting the lives and habits of all Canadians. It is 2020. Updated August 11, 2020. therefore necessary to quickly gather information to help understand its impacts on the physical and mental health of individuals, as well as on their social and employment circumstances. The CPSS is a probabilistic panel based on the Labour Force Survey and is therefore representative of the general population. Themes: Series 3 – contact tracing app, resuming economic and social activities during COVID-19, taking precautions, wearing a mask, hand washing, returning to work, fear of COVID-19 related stigmatization; Series 2 – mental health, physical distancing, social interaction, consumption of alcohol and junk food; Series 1 – impacts of COVID-19, health- related concerns, family-related concerns, social concerns, precautions taken by Canadians, violence in the home, physical distancing, time on internet and TV, alcohol consumption, junk food consumption, sources of information Data collection: January 15, 2020 – March 15, 2021; ongoing series of about six short online surveys (every 2 months). Website information (i.e. survey, reports, analysis): • Main page – https://www.statcan.gc.ca/eng/covid19 • Results are released in a series of articles that can be sourced here (or by clicking on “All COVID-19 releases” in the link above) – https://www150.statcan.gc.ca/n1/en/subjects/society_and_community/coronavirus ID: 8 • Definitions, data sources and methods – https://www.statcan.gc.ca/eng/survey/household/5311 Back to top 10
Statistics Canada cont’d Information compiled from Statistics Canada website. Accessed and Survey Name: Impacts of COVID-19 on Canadians: Data Collection Series updated September 21, 2020. Description: Crowdsourcing questionnaires to collect data on the current economic and social situation, as well as on people's physical and mental health, to effectively assess the needs of communities and implement suitable support measures during and after the pandemic. In order to implement this survey rapidly, it will be conducted online only, and responding is voluntary for anyone within Canada. Themes: Various – childcare, learning at home, Indigenous people, immigrant population, gender differences, disability, economic accounts, health, income and expenditure accounts, mental health and well-being, impacts on post-secondary students, experiences of discrimination. Data collection: April 3, 2020, ongoing (April 19 to May 1 – Postsecondary students; April 24 to May 9 – Your mental health; May 12 to May 25 – Perceptions of Safety; May 26 to June 8 – Trust in Others; June 9 to June 22 – Parenting During the Pandemic; June 23 to July 6 – Living with Long-term Conditions and Disabilities; August 4 to August 17 – Experiences of Discrimination). Website information (i.e. survey, reports, analysis): • Main page – https://www.statcan.gc.ca/eng/covid19 • Results are released in a series of articles that can be sourced from here (or by clicking on “All COVID-19 releases” ID: 9 in the link above) – https://www150.statcan.gc.ca/n1/en/subjects/society_and_community/coronavirus • Definitions, data sources and methods – https://www.statcan.gc.ca/eng/survey/household/5323 MUNICIPAL GOVERNMENT CITY OF VANCOUVER Survey Name: COVID-19 Pulse Survey #2 Information compiled from City of Vancouver website. Accessed August 6, Description: To understand the ongoing impacts of COVID-19 on Vancouver residents and businesses, their thoughts about the City, and “restarting” Vancouver. By repeating the survey more than once, we’ll be able to tune into how attitudes and 2020. behaviours of the Vancouver public are changing over time. Themes: Challenges, impact on relationships, mental and physical health, the City’s response to the pandemic, other themes Data collection: Online survey every three weeks; currently the 2nd survey; Vancouver residents and businesses Website information (i.e. survey, reports, analysis): • Link to Survey: https://www.talkvancouver.com/S.aspx?r=it2yG5Ak8D4cX8dS1xi6tg&s=610 ID: 112 Back to top 11
UNIVERSITIES CARLETON UNIVERSITY Survey Name: Living with a Pandemic: Canadians Anxious about the Current Risk and Future Course of COVID-19 Information compiled from Carleton University website. Accessed August Description: A project of the School of Journalism and Communication at Carleton University and supported by Abacus Data, the survey asked Canadians about their views on a range of issues as restrictions on daily activities continue to ease. 10, 2020. A first phase of the survey was conducted in early May, with a comprehensive report on the results of both phases to follow. Themes: Wearing a mask, return to normal activities, working from home, vaccination, second wave, public health interventions, mobile phone alerts, COVID Alert app, public health officials, infection in young people Data collection: July 6 to July 10, 2020; n=2,000; random sample from a set of partner panels based on the Lucid exchange platform Website information (i.e. survey, reports, analysis): https://newsroom.carleton.ca/2020/living-with-a-pandemic- ID: 113 canadians-anxious-about-the-current-risk-and-future-course-of-covid-19/ DALHOUSIE UNIVERSITY Survey Name: Cross-Canada survey on how Canadians are coping with the COVID-19 outbreak Information compiled from Dalhousie University website. Accessed May 4, Description: In partnership with Angus Reid, Dalhousie University is releasing results of a cross-Canada survey on how Canadians are coping with the COVID-19 outbreak. 2020. Themes: Food, grocery shopping, food provisions compared with food provisions before the outbreak, concern for outbreak, concern for health risks when going to a food service facility. Data collection: March 13-15, 2020; n=1,014 Canadians Website information (i.e. survey, reports, analysis): https://www.dal.ca/sites/agri-food/research/grocery-shopping-during- ID: 10 the-covid-19-pandemic.html Survey Name: Socio-Cultural Implications of COVID-19: Educating, Engaging & Empowering the Public Information compiled from Government of Canada website. Description: This study proposes to develop a national knowledge translation (KT) campaign to enhance public knowledge, understand public perceptions and develop targeted interventions to close identified public knowledge gaps. This will be Accessed July 15, 2020. achieved in three phases: 1) Focus groups with member of the public from 5 provinces; 2) National survey with 1000 members of the public across Canada; 3) A national knowledge translation (KT) campaign. This study will target the Canadian public with the ultimate goal to educate, empower and engage members of the public to be informed stewards of their health knowledge in relation to the current outbreaking by strengthening public understanding of the impact of Back to top 12
COVID-19 on individuals and communities and providing evidence informed interventions to inform social and public health responses. Themes: Public health, communications, education, public perceptions, public health measures Data collection: Focus groups of members of the public from 5 provinces; survey with 1000 members of the public across Canada Website information (i.e. survey, reports, analysis): https://www.canada.ca/en/institutes-health- research/news/2020/03/government-of-canada-funds-49-additional-covid-19-research-projects-details-of-the-funded- ID: 72 projects.html Dalhousie University cont’d Information compiled from Government of Canada website. Survey Name: Understanding the effects of public health outbreak control policies and implementation on individuals and Accessed July 15, 2020. communities: a path to improving COVID-19 policy effectiveness Description: This project will examine the cultural dimensions of the COVID-19 epidemic such as examining how individuals and communities understand and react to the disease, studying the response of public health, and exploring how public health policy affects individuals and communities. While public health policies are required to control an infectious disease outbreak, these policies can adversely affect individuals and communities. Healthcare providers are both involved in administering the policy but also put at grave risk in caring for patients. This will be a multiprovince, multicountry study in Canada (BC, Ontario, NS), Bangladesh, and China (Guangdong). Themes: Public health, perceptions of public health policy makers, the media, communities, healthcare workers, patients and their caregivers, and the general public Data collection: Quantitative methods (surveys) and qualitative methods (document review, key informant interviews, focus groups) Website information (i.e. survey, reports, analysis): https://www.canada.ca/en/institutes-health- ID: 73 research/news/2020/03/government-of-canada-funds-49-additional-covid-19-research-projects-details-of-the-funded- projects.html KWANTLEN POLYTECHNIC UNIVERSITY Survey Name: Inter-Provincial Survey: From Food Access, Concerns and Perceptions During the COVID-19 Pandemic 2020 Information compiled from Kwantlen Polytechnic website. Accessed July 16, Description: The Institute for Sustainable Food Systems at KPU has partnered with universities across Canada to conduct a 2020. survey on food access, concerns and food system perceptions during the COVID-19 pandemic. The survey aims to advance understanding of food access, purchasing and consumption behaviour, as well as the food-related perceptions and concerns of Canadian consumers during the pandemic. We hope to provide evidence of the impacts of a pandemic, from a consumer’s perspective, on one of the basic human needs – food. This study will contribute to the ongoing discussion on the importance and urgency of transitioning into a more reliable and resilient regional food system. Back to top 13
Themes: Food, food access, food system Data collection: 15-minute online survey Website information (i.e. survey, reports, analysis): • https://www.kpu.ca/isfs/covid19-consumer-survey ID: 74 • British Columbia – Take the Survey – https://www.surveymonkey.ca/r/food_during_C19 MONTREAL BEHAVIOURAL MEDICINE CENTRE (CIUSSS-NIM / UQAM / CONCORDIA) Survey Name: iCARE Study (Survey 3) Information compiled from Montreal Behavioural Medicine Centre website. Description: Launched March 27, 2020, the International Assessment of COVID-19 related Attitudes, Concerns, Responses Accessed July 13, 2020. and Impacts in Relation to Public Health Policies (iCARE) study: Can we optimise strategies to flatten the COVID-19 infection curve? Understanding people’s concerns about COVID-19, their perceptions, beliefs, and attitudes about public health policies, and how they impact what people are (and are not) willing to do will be important for informing policy strategy and how they are communicated, to ensure the best health and economic outcomes. Data will be analyzed to understand what government policies are (and are not) influencing behaviour and outcomes, and in whom these policies are most or least effective. This will allow us to inform governments on the efficacy of policy measures on both people’s behaviour, and on key health and quality of life outcomes. Themes: The iCARE study will capture key data on people’s awareness, attitudes, and behaviours as they relate to the COVID-19 policies, as well as, the impacts that COVID-19 is having on people’s physical and mental health, financial situation, and quality of life. Data collection: International multi-wave cross-sectional observational cohort study; monthly waves from May to December 2020; n=200,000-250,000 people total around the world; 25,000-30,000 per wave Website information (i.e. survey, reports, analysis): • Home page – https://mbmc-cmcm.ca/covid19/ ID: 75 • Wave 1 results – https://mbmc-cmcm.ca/covid19/stats-wave1/ Back to top 14
ROYAL ROADS UNIVERSITY Survey Name: Inoculating Against an Infodemic: Microlearning Interventions to Address CoV Misinformation Information compiled from Government of Canada website. Description: The effort uses a design thinking approach to (1) examine digital misinformation flows pertaining to the Accessed July 15, 2020. outbreak; (2) develop, test, and improve educational interventions to reduce the spread of online misinformation. The outcomes of the project will be: (1) the creation of effective COVID-19 educational interventions; (2) the provision of health-related information recommendations and resources to guide non-profits and other community groups who wish to educate the public; (3) the development of increased individual and community capacity to identify the differences between trustworthy and untrustworthy information on the virus; and (4) the mitigation of misinformation related to COVID-19 educational interventions in a variety of cultural contexts. We will test and improve these interventions based on empirical data from a variety of sources including focus groups, surveys, social media and field research. Instruments, data, and resources will be shared on an interactive website with licenses that allow others to reuse them for free. Themes: Public health, communications, education, misinformation Data collection: Focus groups, surveys Website information (i.e. survey, reports, analysis): https://www.canada.ca/en/institutes-health- research/news/2020/03/government-of-canada-funds-49-additional-covid-19-research-projects-details-of-the-funded- ID: 76 projects.html RYERSON UNIVERSITY Survey Name: PROTECH – Pandemic Rapid-response Optimization to Enhance Community-resilience and Health Information compiled from Government of Canada website. Description: In response to the potential negative impacts of COVID-19 on Chinese communities, our team proposes a Accessed July 15, 2020. cutting edge model – Pandemic Rapid-response Optimization to Enhance Community-resilience and Health (PROTECH) that consists of three interrelated components: (1) online resource hub that provides accurate and timely information on COVID-19, and practical ways to cope with fear and anxiety, (2) online group training with live video meeting to reduce stigma/stress and promote resilience among affected groups (individuals tested positive, healthcare providers experiencing stress or burnout, community leaders), and (3) a framework that sustains the first two components and aligns people, processes, and resources together. The study will examine the effectiveness of PROTECH in reducing stress and stigma, and promoting collective resilience, or how to best support the affected group to keep well despite the challenges. The PROTECH model can be adapted for future pandemic outbreaks in Canada and abroad. Themes: Chinese Canadian communities, resiliency Data collection: Focus groups, surveys Website information (i.e. survey, reports, analysis): https://www.canada.ca/en/institutes-health- research/news/2020/03/government-of-canada-funds-49-additional-covid-19-research-projects-details-of-the-funded- ID: 77 projects.html Back to top 15
SIMON FRASER UNIVERSITY Survey Name: COVID-19 Survey, Current Experiences and Planning for the Future: Impact of COVID19 on Health, Well-being Contact: Dr. Gloria Gutman and Advanced Care Planning Among LGBT, Chinese, South Asian and General Population Older Canadians (gutman@sfu.ca) Description: Exploring COVID-19-related stressors, issues regarding health care access and advance care planning of majority and minority group Canadians aged 55+. Added September 2020 Themes: Older adults; minority populations: LGBT and Chinese and South Asian (Canada’s two largest visible minorities) Data collection: Online survey ID: 118 Website information: https://www.surveymonkey.com/r/covidacpsurvey) UNIVERSITY OF ALBERTA Survey Name: Chinese and non-Chinese Canadians Response to the 2019 Novel Coronavirus (COVID-19): Interrelations Information compiled from the between Risk, Perception, Discrimination, and Preventative Health Actions (Study 3 focus: wearing a face mask) University of Alberta website. Accessed July 13, 2020. Description: Supported by a federal grant through the federal government’s Rapid Research Funding Opportunity, this study looks at differences in perceptions of masks between Asian and non-Asian Canadians. North Americans haven’t experienced severe respiratory epidemics since the so-called Spanish flu, whereas in Japan and China they have had more serious epidemics. In Asia, masks are worn for everything from preventing the cold air from hurting people’s faces to protection from pollutants or allergens. Those societies have had a lot more practice and time to develop etiquette and social behaviour about things like wearing a face mask, whereas North America is a bit behind the curve. Themes: Wearing a mask Data collection: Focus groups and surveys of Canadians from across the country Website information (i.e. survey, reports, analysis): https://www.folio.ca/public-acceptance-of-protective-masks-growing- ID: 78 in-canada/ UNIVERSITY OF BRITISH COLUMBIA Survey Name: Unified Cancer: Understanding the experiences of individuals with cancer Information compiled from the BC Description: A collaboration with BC Cancer. The overall objective of this study is to understand the impacts of the COVID- Inventory of COVID-19 Research. 19 pandemic on patients undergoing active treatment for cancer. We will have an international online survey to Accessed June 4, 2020. investigate patients' perspectives of the impacts of the pandemic regarding cancer treatment; mental health and psychosocial factors; and activities of daily living and their structural changes to their overall healthcare treatments as well as ways to seeking health information. Back to top 16
Themes: Cancer patients, cancer treatment, mental health, psychosocial factors, activities of daily living, changes in treatment ID: 34 Data collection: International online survey (https://www.unifiedcovid.com/) Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ University of British Columbia cont’d Information compiled from the BC Survey Name: The Northern Pediatric Wellness (NPW) Survey Inventory of COVID-19 Research. Accessed July 14, 2020. Description: In collaboration with the Northern Health Authority, the project will involve conducting virtual surveys of caregivers in the region with children 19 years of age and under and living with them about how various aspects of child wellness have changed due to COVID-19 physical distancing measures. We will survey various child wellness aspects including diet, exercise, sleep hygiene, home safety, mental wellness, and screen time. The purpose of the project is to identify how the physical distancing measures have impacted children's lives. This could allow for identification of specific areas of child wellness and further appropriate resource allocation and advocacy efforts. Themes: Children, child wellness, parents, caregivers, pediatric, social distancing Data collection: Online survey of parents and caregivers of children 19 years of age and under and living with them, in the Northern Health Authority region Website information (i.e. survey, reports, analysis): ID: 79 • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/npw-survey-northern-pediatric-wellness-npw-survey Survey Name: COVID and Sped: Parents of Children in Special Education Coping with COVID-19 Information compiled from the BC Inventory of COVID-19 Research. Description: The purpose of this study is to survey parents or guardians of children with special needs about their experiences during COVID-19, especially with K-12 schools being closed. We are interested in finding out the coping Accessed July 14, 2020. strategies they are using, how much support they are receiving from the schools during this time, and what additional supports they might benefit from. Themes: Children, children with special needs, education/schools Data collection: Survey of parents or guardians of children with special needs Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ ID: 80 • https://covid19.research.ubc.ca/research/covid-and-sped-parents-children-special-education-coping-covid-19 Back to top 17
University of British Columbia cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: Rapid research in the CHILD Cohort to inform Canada’s response to the COVID-19 pandemic Accessed July 14, 2020. Description: We will study the direct effects of coronavirus infection and the indirect effects of the COVID-19 pandemic in the existing CHILD Cohort Study. Most recently, children provided detailed health data and blood samples in 2018-2020 (just before the pandemic), providing a unique opportunity to study how children's pre-pandemic health and immune status influences the risk and outcome of coronavirus infection. This study will help us understand how Canadian families are being affected - both directly through infection and indirectly through pandemic management policies. Our research will provide important real-time data to Public Health authorities about coronavirus infection, symptoms, transmission and immunity in 12,000 Canadians to inform Canada's COVID-19 response. Themes: Children, parents, families, symptoms, rates of infection, transmission, immunity, physical health, mental health, behaviours and emotions Data collection: report COVID-19 symptoms using a text messaging system, provide a few drops of blood for COVID-19 antibody testing using a simple at-home collection kit, surveys about their physical and mental health, behaviours and emotions; participants are 3500 families in BC, Alberta, Manitoba and Ontario = 12,000 Canadians (CHILD children, siblings, parents) followed since before the CHILD children were born in 2008-2010 Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ ID: 81 Survey Name: Understanding the impact of COVID-19 on Parents Caring for Children and Youth with Medical Complexity Information compiled from the BC Inventory of COVID-19 Research. Description: For the first time in living memory, there is a global pandemic - COVID-19 that affects the entire population. Within this context, the vulnerability of certain groups is amplified, including children and youth with medical complexity. Accessed August 10, 2020. In this study, underpinned by the theoretical perspective of intersectionality, I will conduct an interpretive policy analysis examining parents' experiencing of caring for a child with medical complexity at this time. Findings from this study will generate a contextualized account of families' experiences, which can help inform policies and related supports. Themes: Children, youth, medical complexity Data collection: Surveys and semi-structured interviews Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/understanding-impact-covid-19-parents-caring-children-and-youth- medical-complexity ID: 114 Survey Name: Face masks: Exploring social norms during the COVID-19 pandemic Information compiled from the BC Inventory of COVID-19 Research. Description: Our hypothesis is that changes in social norms regarding the use of face masks will be one of the decisive Accessed June 4, 2020. factors for the widespread adoption of this new habit. This method will allow us to closely monitor changes in the Back to top 18
adoption of new behavior - a novel and rare opportunity that can provide key insights into how social norms shift pertaining to specific behaviors. Themes: Face masks, social norms Data collection: Online survey aimed at citizens worldwide; distributed three times throughout April and June 2020 Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ • https://covid19.research.ubc.ca/research/face-masks-exploring-social-norms-during-covid-19-pandemic ID: 35 University of British Columbia cont’d Information compiled from the BC Inventory of COVID-19 Research. Survey Name: International Corona Cooking Survey Accessed June 4, 2020. Description: To collect the Canadian version of an international survey with Charlotte Debacker at the University of Antwerp. The aim of the survey is to explore how the COVID-19 crisis has impacted the ways in which people engage with food and food-related media. The goal of the work is to uncover perceived shifts in cooking habits and skills, as well as food media and endorser preferences and motivations. Themes: Food and nutrition, cooking habits, cooking skills, food-related media Data collection: International survey research project being led by the UAntwerp (https://coronacookingsurvey.com/) Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ ID: 36 • https://covid19.research.ubc.ca/research/covid19-food-survey-international-corona-cooking-survey Survey Name: The Impact of COVID-19 on Psychological Health and Safety of British Columbia Nurses Information compiled from the BC Description: In 2016 the BC Health Authorities agreed to institute a Psychological Health and Safety Standard with 13 Inventory of COVID-19 Research. factors related to safe working environments. In December 2019, we conducted a survey study to establish the baseline of Accessed July 14, 2020. these 13 factors from nurses' perspectives and their impact on nurses' psychological health and safety. In March 2020, a global pandemic occurred. The new study will conduct a follow up survey to identify how nurses' psychological health and safety has changed after the pandemic and to examine the impact of the pandemic on nurses' psychological health and safety. Analyses will be conducted at multiple levels including health authority, healthcare sector and geographical areas. Themes: Health care workers, nurses, psychological health, safety Data collection: Follow-up survey, nurses Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ ID: 82 Back to top 19
• https://covid19.research.ubc.ca/research/impact-covid-19-psychological-health-and-safety-british-columbia- nurses-follow-survey-study University of British Columbia cont’d Information compiled from the BC Survey Name: Health and Safety of Health Workers in COVID-19: An International Survey Inventory of COVID-19 Research. Accessed June 4, 2020. Description: The World Health Organization (WHO) assembled an Ad Hoc Expert Panel from across the globe, which, in turn, working with the WHO International Labour Office and International Commission on Occupational Health, has launched an online survey to identify and characterize the most common occupational risks threatening the health and safety of health workers as well as the measures for their prevention in the context of the ongoing pandemic of the Coronavirus Infectious Disease (COVID-19). This survey is interested in the health and safety of all health workers - all people engaged in the promotion, protection or improvement of the health of the population. This includes health workers involved in direct patient care, both formal and informal, in public and private facilities, including traditional medicine, as well as other assisting and supporting staff, including administration, management, ambulance drivers, public health workers, community health workers, and others. The results will be used to inform action at all levels for improving the protection of health and safety of health workers in the ongoing response to COVID-19. A collaboration with the World Health Organization, International Commission on Occupational Health, International Labour Organization, and institutions in Germany, Italy, China, Egypt, South Africa, the UK, the US and others. Themes: Health care workers, occupational health, health and safety of health workers Data collection: International online survey; health workers, managers, and practitioners providing services for protecting ID: 37 the health and safety of workers in health facilities Website information (i.e. survey, reports, analysis): https://bcahsn.ca/covid-19-response/inventory/ Survey Name: Health Care Providers Survey on Safe Supply; Perceptions and Attitudes of Health Information compiled from the BC Inventory of COVID-19 Research. Description: The current COVID-19 pandemic has increased risk of overdose and decreased access to healthcare for people Accessed July 14, 2020. who use drugs (PWUD). In response, interim clinical guidelines have been created for assessing those at risk for these harms and provision of a safe supply of medications that replace substances (https://www.bccsu.ca/wp- content/uploads/2020/05/Risk-Mitigation-in-the-Context-of-Dual-Public-Health-Emergencies-v1.6.pdf). The purpose of our project is to distribute an online survey to currently practising health care providers in British Columbia to understand their perspectives and attitudes towards these guidelines. Themes: Health care workers, people who use drugs, clinical guidelines, safe supply, social distancing, self-isolation Data collection: Online survey to currently practising health care providers in BC Website information (i.e. survey, reports, analysis): • https://bcahsn.ca/covid-19-response/inventory/ ID: 83 Back to top 20
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