Connecting for Health - Strategy for inclusive engagement, involvement and partnerships 2019-2021
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Connecting for Health Strategy for inclusive engagement, involvement and partnerships 2019–2021 A Putting People First Initiative of Metro North Hospital and Health Service Effective: 01/2019 Review: 12/2021
Contributors We acknowledge and thank the Community Board Advisory Group (CBAG) for its leadership in shaping our engagement agenda since 2013. We are grateful for the involvement of many consumers and staff who have collaborated to improve healthcare in Metro North. For more information and opportunities please visit: https://metronorth.health.qld.gov.au/get- involved Published by the State of Queensland (Metro North Hospital and Health Service), December 2018 This document is licensed under a Creative Commons Attribution 3.0 Australia licence. To view a copy of this licence, visit creativecommons.org/licenses/by/3.0/au © State of Queensland (Metro North Hospital and Health Service) 2018 You are free to copy, communicate and adapt the work, as long as you attribute the State of Queensland (Metro North Hospital and Health Service). For more information, contact: Metro North Engage, Metro North Hospital and Health Service, RBWH, Block 7 Level 14, Herston QLD 4029, email metronorthengage@health.qld.gov.au, phone 3647 9512 for Metro North Engage. An electronic version of this document is available at https://metronorth.health.qld.gov.au/get-involved Disclaimer: The content presented in this publication is distributed by the Queensland Government as an information source only. The State of Queensland makes no statements, representations or warranties about the accuracy, completeness or reliability of any information contained in this publication. The State of Queensland disclaims all responsibility and all liability (including without limitation for liability in negligence) for all expenses, losses, damages and costs you might incur as a result of the information being inaccurate or incomplete in any way, and for any reason reliance was placed on such information.
Contents Glossary....................................................................................................4 Foreword ..................................................................................................5 Our services..............................................................................................5 Introduction..............................................................................................6 Purpose of Connecting for Health..............................................................7 Priority areas.............................................................................................7 What we will do and how we will measure success.....................................8 Critical success factors............................................................................12 In delivering Connecting for Health we will focus upon: ...........................12 Issues and risks.......................................................................................12 Benefits of engagement...........................................................................13 What does Connecting for Health mean for consumers?...........................14 Who is responsible for ensuring we deliver on Connecting for Health?...... 15 Directorate responsibilities......................................................................15 Review and reporting...............................................................................15 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 3
Glossary Person, family and community-centred care – healthcare that is respectful of and responsive to individual choices, preferences, beliefs, values and needs of people who access or who need to access care1. Patient – a person who is accessing health services. The term “patient” can be interchanged with “client”, “consumer” or “resident” depending upon the context. Carer – an individual who provides, in a non-contractual and unpaid capacity, ongoing care or assistance to another person who, because of disability, frailty, chronic illness or pain, requires assistance with everyday tasks. Community – groups of people with diverse characteristics who are connected through common location, attitudes, cultures and languages, ethnicities or interests. Individuals can be members of multiple communities at once. It describes the population of the area serviced by an organisation, a cultural group or a group of people who all experience a particular health condition3 . Community partner – an organisation or representative of an organisation with whom Metro North partners to deliver connected care for individuals, families and communities. Consumer – a person who is accessing or may need access to health services including their family and carers. Some consumers may become involved in health service planning, design or delivery based on an experience they have had, others may represent the interests of a group of consumers or they may represent someone from their support network such as a family member, carer or friend. How each person defines him or herself in their interaction with Metro North will vary according to factors such as age, gender, sexuality, cultural background, health needs and familiarity with the health system. Consumer feedback – gives us insights into the patient experience. It includes our processes for managing and responding to complaints, compliments and suggestions in a timely, sensitive and effective manner and for improving services. Co-design – joint creation of healthcare allowing consumers to be involved from conception phase of an initiative to detailed planning, design, delivery and review. Digital transformation – Metro North has mapped out a digital transformation process from 2018 through to 2032. This will allow us to access the opportunities offered by digital innovation from real-time data and analytics through to precision medicine. Directorate – refers to each of the following within Metro North: Royal Brisbane and Women’s Hospital; The Prince Charles Hospital; Redcliffe Hospital; Caboolture/Kilcoy Hospitals; Community and Oral Health; and Mental Health Services; Clinical Support. Health advocacy Individual advocacy - the act of representing the consumer, supporting the consumer to represent his or her own interests and ensuring people are empowered to voice their perspectives. This can include self, citizen, parent, family/group or peer advocacy. Systemic advocacy - to introduce, influence or produce positive long-term changes to attitudes, systems, policies and procedures, to remove barriers, address discriminatory practices and to ensure the collective rights and interests of health consumers are attained and upheld4. National Disability Insurance Scheme (NDIS) – is the new way of providing support for Australians with disability, their families and carers. The NDIS will provide Australians under the age of 65 who have a permanent and significant disability with the reasonable and necessary supports they need to live an ordinary life. As an insurance scheme, the NDIS takes a lifetime approach, investing in people with disability early to improve their outcomes later in life. The NDIS will help people with disability to achieve their goals. This may include funded supports to facilitate greater independence, community involvement, employment and improved wellbeing. It is designed to give people with disability choice and control over how, when and where their supports are provided. Health Alliance – is an approach to tackling health and health care problems in Brisbane North that transcends the mandate of any one organisation or part of the health sector, and that can’t be fixed by existing approaches. The focus of the Health Alliance to 2020 is on improving the health and wellbeing of three population groups – older people; people who frequently attend emergency departments, children in Caboolture. Health literacy – enabling people to access and navigate health services, make well informed decisions and take action to manage their health and wellbeing. It includes helping people, find, understand and apply a range of information to be active participants in decisions about healthcare and treatment. Patient experience – information from a patient on their healthcare experience. We seek to understand how patients experienced the healthcare that they accessed and identifies what we are doing well that we need to continue as well as what we need to stop doing and what we could do better. Patient experience measures can be quantitative (using scoring methodology) and qualitative (descriptions of experience). Both are equally valuable for service improvements. Standard 2: Partnering with Consumers – the aim of this Standard is to ensure that health services are responsive to patient, carer and consumer input and needs. It is one of eight standards in the second edition of National Safety and Quality in Health Service Standards (November 2017). Value-based healthcare - focuses upon empowerment, shared decision-making, understanding what matters to patients and delivering high quality care to optimise benefits. Value-based healthcare incorporates: • better patient experiences and outcomes • more efficient care • improved health professional experiences in delivering care. Values in Action – a Metro North initiative that makes our values of respect, integrity, compassion, high performance and teamwork more than words. 4 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
Our services Metro North Hospital and Health Service is Australia’s largest and most diverse public hospital and health service. We provide care to a catchment of more than one million people in the northern Brisbane region. The Health Needs Assessment 2 describes the diversity within the communities we serve and guides our engagement processes. Our 18,500 staff work across five hospitals, 14 community and residential care centres, 15 mental health centres and 27 public dental health facilities. Our diverse health services include surgery, cancer care, maternity, trauma, medicine, mental health and more than 30 specialisation areas such as heart and lung transplantation and burns. Foreword Healthcare is about people. To provide excellent care, we must ensure we’re asking and listening to what people want from their healthcare. Metro North has a focus on value- based healthcare which means we need to know what matters most to people. Connecting for Health provides a framework for ensuring the people we serve are at the forefront of our minds when we’re Maroochydore designing and delivering care. The Strategy will assist us to build on our strengths by involving consumers in the planning and delivery of high quality healthcare. It acknowledges the invaluable Caloundra role of patients, carers and families as members of the healthcare team to improve the health journey and provide connected integrated care. Kilcoy Glass House Mountains Hospital Connecting for Health demonstrates our Woodford commitment to integrating consumer and community involvement in every aspect of the health journey and highlights the value of that involvement through better patient experiences and outcomes. We have Caboolture Hospital Bongaree achieved a great deal together and through Connecting for Health we will continue to be responsive to emerging needs within our community. Deception Bay Dayboro Thank you to the consumers and community partners who have helped us reach Redcliffe this point of maturity in consumer and Hospital community engagement and contributing to our goal to become Australia’s biggest, best and nicest health service. The Prince Charles Hospital Lutwyche Royal Brisbane and Women’s Hospital Dr Robert Stable AM Chair Metro North Hospital and Health Board Mr Shaun Drummond Chief Executive Metro North Hospital and Health Service Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 5
Introduction Connecting for Health Strategy 2019–21 (Connecting for Health) describes our long-term commitment to engage consumers and communities in continually improving high quality healthcare. We will engage, involve and partner with a diversity of people in a respectful, compassionate and collaborative way. We have demonstrated many service Connecting for Health requires improvements through consumer commitment from our leaders and community involvement. Our and involves: engagement highlights and outcomes • our entire workforce are documented in our Annual Progress Report for Connecting for Health. • our extended workforce including volunteers, students Our engagement methods are and contractors numerous and varied - focus groups, online surveys, discovery interviews, • people who access or may need workforce education, committee access to our services “In the future, even membership, project working groups, • families or carers more so than now, the community expos, selection/judging panels, health journey mapping and • communities consumer will be central many more. We have also continuously • organisations with whom we partner to the delivery of equitable, reviewed and evaluated how we engage to deliver care. to ensure the way we do this is always effective and efficient relevant and meaningful. Factors likely to influence engagement health care planning and activities over the next three This second edition of Connecting for years include: the delivery of connected Health will focus on strengthening consumer and community • responding to increasing and and integrated care.” engagement and further recognition changing demand as well as of its contribution to improving patient evolving community expectations of – Professor Mary-Louise Fleming, Board member and sponsor for consumer experiences, person-centred care health services and community engagement and outcomes. • the increasing population and Our values of compassion, respect, changing profile of diversity within integrity, high performance and Metro North’s catchment teamwork guide the way we behave • rapidly changing technologies and work with each other to deliver care with our communities. • renewal of infrastructure Connecting for Health is guided • significant Commonwealth policy by Metro North Strategic Plan and reform across Aged Care and supported by several other strategies Disability which includes the including Putting People First Strategy, National Disability Insurance Safety and Quality Strategy; Clinician Scheme (NDIS) Engagement Strategy; Health Service • the shift in how we measure Strategy; Research Strategy; and Digital success of services to focus on the Metro North Strategy. value of care in relation to patient experience and outcomes rather than the volume of care we provide. RESPECT • INTEGRITY • COMPASSION • HIGH PERFORMANCE • TEAMWORK 6 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
Purpose of Connecting for Health Connecting for Health sets a clear direction and course of action to empower consumers to be actively involved in their care and to embed consumer and community involvement in shaping our services. Include Priority areas diversity Connecting for Health priority areas Build for action will focus on the impact and outcomes of engagement to: culture Person 1. Build a culture of person, family and family community-centred care 2. Include a diversity of people community- and voices centred 3. Improve experiences and outcomes care for people who access or need access to our services Improve 4. Collaborate for a connected care experience and health journey for individuals, families and communities. Collaborate “I have been part of the Metro North journey in consumer and community engagement since joining the Community Board Advisory Group in 2013. Metro North has authentically sought advice to ensure consumers have a voice in improving the health system. Embedding consumer perspectives in all aspects of the service has added value to individuals, families, health services and health systems. It is critical that this Strategy is genuine, truly engages and delivers for consumers. The journey is always ongoing.” – Rachelle Foreman Chair Community Board Advisory Group Director, Support & Care, Heart Foundation Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 7
What we will do and how we will measure success 1. Build a culture of person, family and community-centred care What we will do What we will measure • support consumers to co-design services and improvements in care • leadership roles are recruited for engagement capability and • enable purposeful engagement through flexible practices and tools that values in action facilitate choice in how and when to engage • engagement activities and their • build shared leadership skills amongst our workforce, consumers and outcomes are documented and communities to encourage a culture of partnerships and inclusion shared through multiple and • close the loop through actions that address improvements informed by varied mechanisms such as data feedback and lived experience repository and reporting, case studies, journal publications • be recognised as a leader for outcomes co-designed with consumers and presentations. and community. “This role as a consumer with the hospital gives us an important role in the community to create understanding of the hospital system, its navigation, how to make yourself heard and appreciate the responsibility and stressors of an ever-increasing population to tend.” – Margaret, consumer 8 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
2. Include a diversity of people and voices What we will do What we will measure • deliberate and targeted engagement to improve our connection and The proportion of: partnership with diverse groups with equity of access, care we provide and • new health literacy initiatives support to live well in the community. Our focus will be on: involving workforce, - people who require advocates for decision-making and consumers, carers, family communication and community - Aboriginal and Torres Strait Islander people • focused events and engagement activities that - people living with disabilities provide authentic ways to - people who experience social disadvantage living on low incomes engage diverse populations. - culturally and linguistically diverse communities (established and new and emerging) - people experiencing domestic and family violence - people who are homeless or vulnerably housed “People are learning - people living with mental illness and passionate about - people experiencing substance use issues getting involved.” - Lesbian, Gay, Bi, Trans, Intersexual and Queer/ Questioning (LGBTIQ) – Cody, consumer - older people, particularly those who may be frail or near end of life - rural or remote communities. • build workforce capability to engage with, activate, understand and respond to a diversity of people and perspectives • recognise, understand and seek to minimise barriers that some people experience when accessing health services and information by improving health literacy across the sector • support choice in healthcare by empowering patients and their carers/ families as active partners in their healthcare. “To me cultural diversity means empowerment, it’s a conversation which needs to be had. It’s about us learning from each other so we can grow not only as a service provider but more importantly as a community. It’s important to break stereotypes so let’s throw out the labels, ask questions and engage people and we will learn more than we ever imagined. – David Yohan Metro North Cultural Diversity Coordinator Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 9
3. Improve experiences and outcomes for people who access or need access to our services What we will do What we will measure • create environments where • increase in patient experiences and consumer feedback captured and people feel confident that improvements implemented at service and system level providing feedback will result • co-designed activities that are documented or published in actions • feedback from engagement events and activities that is monitored and • monitor and respond to patient shared across Metro North to increase consistency in improving care for experiences and opportunities diverse populations. for improvement at service and system level • use flexible approaches to monitor patient experiences for people from diverse populations who may be less likely to provide feedback • co-design action plans in “One of the things I love about being involved as a collaboration with consumers in consumer is that I can help make it easier for people, response to patient experiences so that my experiences, my lived experiences, can to improve healthcare be learnt from, and that processes that can be quite • build capability for health scary and new for people going through them, can literacy within our workforce, and for consumers, families actually be done better, explained better, and with and communities people feeling they have more control...” • evaluate consumer – Belinda, carer and community engagement activities. 10 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
4. Collaborate for a connected care experience and health journey for individuals, families and communities What we will do What we will measure • innovate new health pathways through partnerships to create sustainable • new, integrated health improvements for a connected care experience pathways that are co-designed with consumers • partner across the sector to engage consumers in the Health Alliance priorities • system reforms introduced by the Health Alliance that • embed consumer and community engagement in: have been co-designed with - new services and models of care community partners, consumers - redesigning settings and environments of care and community - research • formal partnerships - innovation (e.g. Memorandums of Understanding) with community - value-based healthcare organisations and their - health literacy outcomes are collated as case - digital transformation studies, journal publications and presented at conferences - NDIS and forums. • collaborate with community partners for a coordinated approach to community health literacy. “Communication and networking is critical – across consumers, community organisations and Metro North, as the commonality is patients… We’re all working towards the same goal.” – Gary, consumer Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 11
Critical success factors In delivering Connecting for Health we will focus upon: Organisational culture and capability: • putting our values into action • monitoring and evaluating person, family and community-centred outcomes for healthcare • an organisational culture that is open about its processes and performance and works closely with consumers and community organisations • drivers and leaders of engagement at the executive-level and “from the ground-up” • collecting and sharing examples of successful engagement and lessons learned • improving reach and inclusiveness of engagement, focusing on who is not engaged and how to connect with them • ensuring engagement is authentic and is an ongoing process and not a compliance exercise • understanding that engagement requires lead-in time and good planning with resources and time dedicated to building trusting relationships. Skilled, caring and engaging workforce: • investing in a skilled and empathetic workforce with the ability to build trust and relationships • a mindset of care and respect that values and empowers consumers as active partners in their health and wellbeing • developing a workforce that has a strong appreciation for diversity including culture and languages and the need to ensure both are accommodated in delivery of inclusive services • investing in volunteers to bring their perspective. Consumer and community capacity and relationships: • connecting with Health Consumers Queensland for support • enabling consumers to develop knowledge, skills and experience that allows them to participate as partners to advocate for themselves and for others • extending existing communication channels and platforms to connect and activate our workforce to link to our communities. Issues and risks By Connecting for Health, we aim to prevent or minimise the following issues and risks: • at the point of care – compromising high quality, safe services and treatment when consumers and their carers are not engaged as active partners in their health • at the service level – service design that does not consider local consumer and community experiences and needs resulting in misallocation of resources • at the system level – poor sector capacity to work together to support consumers and communities in Metro North • at a sector level - a disjointed health care system that is fragmented and poorly coordinated with inconsistent services that are difficult to navigate • at a population level – widening disparities in health outcomes particularly for those with the highest burden of disease and risk factors. 12 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
Benefits of engagement By involving consumers and communities, we expect the following benefits: • removing the balance of power between healthcare consumers and healthcare professionals through generating mutual respect that results from a shared understanding of perspectives and enables collaborative decision-making • understanding trends in consumer- directed care as well as diversity in choices depending upon a person’s values and beliefs • greater opportunities for people who have first-hand experience as consumers to contribute directly to the design of healthcare and innovative solutions to complex issues • holistic care that is respectful of and responsive to a range of personal needs, preferences and circumstances including cultural, spiritual, social, community and familial • an engaged and supported workforce that values respect, compassion and empathy to build trusting relationships with diverse consumers and communities • informed consumers who understand the changes required and see themselves as active participants and partners in making change • a culture of working together across organisational boundaries to achieve greater efficiencies and improve the connectedness of services for consumers and community • enhanced public confidence in the public health system and better use of government funding. Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 13
What does Connecting for Health mean for consumers? 1. Build a culture of person, family and community 3. Improve experiences and outcomes for people who centred-care access or need access to our services As a consumer I can expect: As a consumer I can expect: • to be supported to participate meaningfully • to easily be able to provide feedback about my experiences • to see how consumer experiences are shaping services and improvements • to be confident that there are processes in place to respond to my feedback and to learn from my • to have the opportunity to work collectively and experiences in the understanding that healthcare is a collaboratively on health service design, review and shared responsibility delivery • my rights and the options available to me are • a skilled, respectful, empathic and capable workforce explained in a way that I can understand, retain and that works collaboratively, constructively and can act upon with the confidence that I am making transparently with consumers as partners and decision- the best decision for myself makers in the design and delivery of healthcare • to be invited and supported to participate in the • Metro North to have strong and trusting relationships design, review or delivery of health services with consumers who represent a broad range of community perspectives • to have the opportunity to engage in the manner that I choose suited to my interests and experiences • Metro North to be a recognised leader in consumer and community engagement and provide many and varied • to hear how my feedback made a difference in opportunities for involvement. Metro North. 2. Include a diversity of people and voices 4. Collaborate for a connected care experience and health journey for individuals, families As a consumer I can expect: and communities • that I, my family and community are integral to my As a consumer I can expect: healthcare journey and decision-making • to feel empowered and respected and for my • to experience connected services regardless of whether preferences, beliefs and experiences to be considered I am receiving care in the hospital, at home, or in the community • to feel empowered as an active participant in my own health and wellbeing • to be provided reliable, accessible health information that I can understand and act upon • health professionals who listen to and respect what matters to me • to have a greater understanding of the health system and support services that are available to me • my family to be involved as much as I want them to be • to be able to return to my community with the • when I am unable to advocate or speak for myself, opportunity to link up with other consumers or peer other independent health advocates are engaged to be networks and social support services. my voice • Metro North to be an inclusive service that aims to facilitate engagement regardless of language, gender, sexuality, culture, age, caring responsibilities, social or financial circumstances, mental health, physical or intellectual ability. 14 Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021
Directorate responsibilities Each directorate has an executive sponsor to oversee the implementation of Connecting for Health. The sponsor has responsibility for ensuring appropriate governance, direction, resourcing and support are in place as well as adherence to Metro North procedures for a consistent approach. Directorates are required to report progress on each priority area for consumer and community engagement annually. Directorates are responsible for monitoring compliance with the National Safety and Quality Health Service Standards. Who is responsible for ensuring we Review and deliver on Connecting for Health? reporting Realisation of Connecting for Health is a shared responsibility involving Connecting for Health will be reviewed the Metro North Board, executives, staff, volunteers, students, annually. As part of this process we will consumers and community partners. monitor progress and report on each priority area. As healthcare providers we all play a critical role in fostering a culture that values consumer and community participation to collaborate and shape the healthcare The Metro North Executive and Board we deliver. will monitor progress and make recommendations for advancement All staff have responsibilities for engaging consumers and communities. in collaboration with consumers Engagement can occur at the point of care, in service planning, design, delivery and community. or system level changes. We rely upon the participation of a diversity of consumers, carers and community who are partners in making change. Metro North leadership responsibilities Board and Executive sponsors oversee progress towards Connecting for Health. References These sponsors have responsibility for ensuring appropriate governance, direction, resourcing and support at a system level to enable and achieve the 1 Health Needs Assessment, Brisbane priority areas for action. North PHN Metro North Hospital and Health Service 2016/17 The Board and Metro North Senior Executive Team are responsible for monitoring progress and compliance with the Hospital and Health Boards Act 2011. 2 Australian Commission on Safety and Quality in Health Care, Fact Sheet Compliance with Standard 2 for Partnering with Consumers in the National Safety Partnering with Consumers Standard 2 and Quality Health Service Standards is overseen by Metro North Executive Safety and Quality Committee. 3 Health Consumers Queensland, Consumer and Community Engagement Framework, February 2017 4 Health Issues Centre, Victoria Connecting for Health: Strategy for inclusive engagement, involvement and partnerships 2019–2021 15
Metro North Hospital and Health Service www.health.qld.gov.au/metronorth
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