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Children’s Medical Foundation Report of the Conference on CMF NICU Network April 26 & 27, 2009 in Shanghai, China CONTENTS 1. Executive Summary P. 1 2. Conference Program P. 3 3. Presentation Summaries P. 5 4. Expectations of CMF to NICU Network P. 8 5. Group Discussion Summaries P. 9 6. Inauguration Ceremony P.13 7. List of Participants P.15 Sponsor: Zeshan Foundation
Conference Report – CMF NICU Network 1. Executive Summary Background of CMF NICU program The Children’s Medical Foundation was established in 1995 as a non-governmental organization in Hong Kong with tax-reduction status. Its mission was to develop and implement sustainable solutions in health care for children in Asia, in particular for children in underprivileged situations. Through the establishment of collaborative partnerships and institutional linkages, CMF provides resources towards capacity building initiatives, bringing accessible healthcare to rural communities and strengthening community health and primary care in Asia. Since 2001, CMF has been working with our hospital partners to establish Neonatal Intensive Care Units at hospitals in underprivileged cities in attempt to reduce neonatal mortality rates and to improve the service level of neonatal care. As one of the core programs of CMF, the Neonatal Intensive Care Unit (NICU) program sponsors the establishment of an NICU in local hospitals where none exist. We also provide training for the doctors and nurses of these hospitals in order to enhance the level of pediatric treatment and lower the neonatal mortality rate. In 2009, the target of 20 NICUs was reached. CMF has taken this opportunity to assess the effectiveness of our NICU program and to provide more useful data for future program development. CMF, hence, invited Prof. Emily CHAN and Dr. Kevin HUNG from the School of Public Health, Chinese University of Hong Kong to conduct this evaluation. Conference on CMF NICU Network The Conference on CMF NICU Network of Fudan University), Advisor from CMF’s was held to bring together the China Medical Advisory Board (CMAB) representatives of CMF established and representative of our sponsoring NICUs with the following two key organization and 2 CMF staff. purposes: (1) To form the CMF NICU Network; and (2) To discuss and conclude the results of NICU evaluation. Forty-one participants took part in this conference. They included representatives of 13 established NICUs and 7 new NICUs, Directors and Heads of neonatology of our partner hospitals in Shanghai (SCMC and Children’s Hospital Shanghai, CHINA * April 26 – 27, 2009 1
Conference Report – CMF NICU Network Summary of Contents Three papers were presented to all the participants at the first part of the conference to set an equal platform for discussion. Three speakers, prominent in Neonatology, covered the following topics: o Current challenges in the Neonatal Care Service in China – Prof. CHEN Chao, Director of Neonatology, Children’s Hospital of Fudan University o Training needs for improving neonatal care in underprivileged areas – Dr. SUN Jianhua, Director of Neonatology, Shanghai Children’s Medical Centre o Development of Neonatal Resuscitation Program (NRP) in China - Prof. WANG Huishan, National Centre for Women & Children’s Health The conference was also addressed by Prof. GUI Yonghao, Vice-president of Fudan University, President of Division of Pediatrics, Chinese Medical Association and also CMF CMAB Advisor, who shared his views on the roles and functions of NICU in underprivileged areas in China and also the proposed function of NICU network. After the presentations, participants (1) Functions of NICU Network were divided into 4 groups to discuss o Training two topics with specific questions: o Standardization o Transferal system o Other expectations (2) Impacts and further development of NICU o Pros and cons brought by the NICU o Problems encountered and possible solutions o Key neonatal problems in the district o Suggestions to improve these problems The CMF NICU Network was formed during the conference. Each participant showed a picture with a story, which encouraged his or her commitment in improving neonatal care in China, to all other participants and guests. In addition, participants had the opportunity to get to know each other better through the networking dinner. At the dinner, apart from the speeches delivered by Professor LIU Jinfen, Director of Shanghai Children’s Medical Centre and Professor HUANG Guoying, President of Children’s Hospital of Fudan University, every NICU representative presented the background and characteristics of his or her own NICU to others. The top three presentations were awarded a souvenir from CMF. Shanghai, CHINA * April 26 – 27, 2009 2
Conference Report – CMF NICU Network 2. Conference Program (1) Purpose: To build a support network among established NICUs in an effort to raise the level of neonatology in China. (2) Date & place: April 26 & 27, 2009 in Shanghai (3) Program: 26/4 (Sun) First Session 2:00-2:10p.m. Welcome & Introduction CMF Staff 2:10-2:20p.m. Briefing on CMF & NICU Program CMF Staff 2:20-2:50p.m. Current Challenges in the Neonatal Prof. CHEN Chao, Director Care Service in China of Neonatology, Children’s Hospital of Fudan University 2:50-3:20p.m. Training Needs for Improving Dr. SUN Jianhua, Director Neonatal Care in Underprivileged of Neonatology, Shanghai Areas Children’s Medical Centre 3:20-3:40p.m. Development of Neonatal Prof. WANG Huishan, Resuscitation Program (NRP) in National Centre for Women China & Children’s Health 3:40-4:00p.m. Tea Break 4:00-4:05p.m. Introduction of NICU Network CMF Staff 4:05-4:45p.m. Group Discussion 4 Group Leaders (1) Training (2) Policies and Standardization (3) Transferal System (4) Other Expectations 4:45-5:30p.m. Report Back (by representative of Chaired by Prof. CHEN each group) Chao, Deputy Chairperson, Committee on Neonatology, China Medical Association 5:30-5:40p.m. Expectations of CMF to NICU Prof. GUI Yonghao, CMAB Network Advisor, CMF 5:40-6:00p.m. Inauguration Ceremony Shanghai, CHINA * April 26 – 27, 2009 3
Conference Report – CMF NICU Network Networking Dinner 6:30-6:35p.m. Welcome Prof. GUI Yonghao, CMAB Advisor, CMF 6:35-6:40p.m. Speech by Guest Prof. LIU Jinfen, Director of Shanghai Children’s Medical Centre 6:40-6:45p.m. Speech by Guest Prof. HUANG Guoying, President, Children’s Hospital of Fudan University 6:45-7:10p.m. Introduction of each NICU (1) 7 NICU representatives 7:10-7:30p.m. Dinner 7:30-7:50p.m. Introduction of each NICU (2) 6 NICU representatives 7:50-8:15p.m. Dinner 8:15-8:40p.m. Introduction of each NICU (3) 6 NICU representatives 9:00p.m. End of Dinner 27/4 (Mon) Second Session 9:00-9:10a.m. Conclusion of first session CMF Staff 9:10-9:30a.m. Highlight of Key Findings from the CMF Staff Evaluation of NICU Program 9:30-10:20a.m. Group Discussion 4 Group Leaders (1) Pros & Cons brought by NICU Program (2) Problems Encountered and Possible Solutions (3) Key Neonatal Problems in the District (4) Suggestions to Improve these Problems 10:20-10:40a.m. Tea Break 10:40-11:35a.m. Report Back (by representative of Chaired by Prof. CHEN each group) Chao, Deputy Chairperson, Committee on Neonatology, China Medical Association 11:35-12:00noon Q&A and Conclusion of Conference Prof. CHEN Chao, Deputy Chairperson, Committee on Neonatology, China Medical Association 12:00noon End of Meeting Shanghai, CHINA * April 26 – 27, 2009 4
Conference Report – CMF NICU Network 3. Presentation Summaries A. Current Challenges in the Neonatal Care Service in China - Prof. CHEN Chao, Director of Neonatology, Children’s Hospital, Fudan University Prof. CHEN presented this topic from 5 aspects: 1. Developmental stages of neonatology in China 2. Challenges ahead o The national neonatal mortality rate of 1.25% is still high o Only 0.3-0.4% of neonatal mortality rate in developed countries 3. Professional issues o Asphyxia o Breathing problems o Brain damage o Infections o Prematurity o Congenital anomalies 4. Current challenges o Increase in birth rate o Imbalance of resources and development of neonatal care: too poor in west region and villages o Mobile population o Obviously insufficient NICU facilities o Insufficient no. of professional staff and training for staff 5. Facing the new challenges, we could: o Develop clinical settings with different levels o Establish NICUs at hospitals where none exists o Provide more specific and effective training to relevant professional B. Training Needs for Improving Neonatal Care in Underprivileged Areas - Dr. SUN Jianhua, Director of Neonatology Department, Shanghai Children’s Medical Centre This paper was presented by Prof. SUN and she covered the following areas regarding training needs: 1. Training needs of NICU program o Lack of trained neonatal professionals in the fields Shanghai, CHINA * April 26 – 27, 2009 5
Conference Report – CMF NICU Network o Most of the neonatologists do not know how to apply what they have learnt or do not have chance to apply what they have learnt o Training aims: identify high-risk fetus and neonates; train up who are suitable to work in NICU; equip them up with knowledge and skills in transferring high-risk neonates to tertiary hospitals. 2. Insight from completed programs o Training should be specially designed for 4 groups of medical professionals: One for NICU-in- charge One for nursing supervisor One for doctor One for nurse 3. Follow up work after training o Submission of training plan: The trained fellows are requested to provide training plan (including training targets, training contents, format and assessment methods) to the training institute o Regular reporting: The trained fellows are requested to provide regular working and training reports (3 months to 6 months) o Follow up and evaluation: The training institute (SCMC or Children’s Hospital of Fudan University) will follow up with the newly established NICU to assess its development and write up a follow up report C. Development of Neonatal Resuscitation Problem (NRP) in China - Prof. WANG Huishan, Director, Child Health Care, National Centre for Women & Children’s Health Prof. WANG told the participants about the Neonatal Resuscitation Program (NRP) implemented by her organization in cooperation with the Johnson and Johnson. This was a five-year project started in 2004 with the objectives to: (1) Ensure the presence of an NRP trained professional at every hospital delivery; (2) Conduct of NRP training in 600 cities within 5 years; and (3) Lower the percentage of neonatal asphyxia & the percentage of disabilities. In 2004-2007, they have provided 383 classes to 26,028 persons. They have also provided equipments to the hospitals. According to the data Shanghai, CHINA * April 26 – 27, 2009 6
Conference Report – CMF NICU Network collected from 80 hospitals, there was a decrease in the percentage of neonatal asphyxia and the percentage of neonatal death of asphyxia on the spots of delivery. The course has also encouraged the provincial government: to formulate the annual NRP training plan; to set up the expert technical support team on NRP in each province; to solicit resources to develop and implement NRP training; and to develop the system of certification of NRP. Apart from the positive feedback of the course, some problems of the program were also noticed. It was found that the substandard quality of some trainers would adversely affect the quality of training. Some trainees could not fully grasp what they learned and therefore there was room for improvement regarding the quality of training. For some of the trainees, the knowledge and skills could not be well applied to the daily rescue work. In order to have a better impact for the future development of NRP, it was suggested that: o Use the county-or-above hospitals as the base for NRP o Enhance the training and management of NRP within hospitals o Facilitate the co-operation of different departments within the hospital The team to be developed in the hospital should comprise: management level of hospital; neonatologist or pediatrician; obstetrician; birth attendant; midwife; and anesthetist. The responsibilities of this expert team include: o Provide training, re-training and assessment of relevant knowledge and skills; o Assess relevant equipment and drugs; o Organize and coordinate a conference to study different cases (AKA a case conference) o Assess clinical history of neonatal asphyxia death; and o Collect any related data. Shanghai, CHINA * April 26 – 27, 2009 7
Conference Report – CMF NICU Network 4. CMF’s Expectations for the CMF NICU Network Professor GUI Yonghao, the advisor of China Medical Advisory Board, representing the CMF to present the expectations towards NICU Network to all participants. He mentioned that through the network, we could: o Disseminate the use of international definitions of perinatal and neonatal conditions; o Introduce the concepts of efficacy, cost-effectiveness, risk factors, case management, holistic single patient approach; o Promote evidence-based policies of care and cost-effective interventions, multidisciplinary collaboration, communication and counseling; o Improve clinical data recording and epidemiological data collection and evaluation; and o Discuss public health issues relevant to neonatal care and how to strengthen the health system, and family and community practices. Based on the strengths of CMF and the current linkages, it was hoped that this network could: o Effectively liaise the established NICUs, the training institutes, CMF and other relevant organizations; o Share information and useful resources; and o Gradually develop a scientific and systematic NICU model. Possible work plan for CMF NICU Network: o Conduct annual or bi-annual meeting to share working experiences or to discuss specific topics o Invite international experts to share experiences o Form a team of experts to provide consultation to members within the network o Set up a data collection model and develop a standardized service criteria o Organize study tours to Hong Kong or other countries for exchange and learning Shanghai, CHINA * April 26 – 27, 2009 8
Conference Report – CMF NICU Network 5. Discussion Summaries Participants were divided into 4 groups for two facilitated discussion sessions during the conference. Four NICU doctors from the Children’s Hospital of Fudan University had kindly taken up the role of group leaders for each group. After each round of discussion, one participant represented the group to present the discussion summaries to all conference participants. In the first discussion session, participants had focused their discussion on “The Functions of the NICU Network” with focus on the following specific areas: o Training o Standardization o Transferral system o Other expectations Training: Standardize the retraining Secondary training Specialized training Develop training course for different posts in NICUs (e.g. for doctors, for nurses, for obstetricians and so on) Assessment Teaching and research Conduct on-line training On-line training and on-spot training Develop training plans Exchange of clinical cases within network Professional exchange through regular annual meetings Exchange of national or international information Distance learning Standardization: Develop a 3-level standard for NICUs in China based on demand, hospital conditions, resources and expertise Standardization of clinical work Differences in different locations should be taken into consideration while building up the standard for NICU Clear obligations and responsibilities Support from the leaders/ management of hospitals Standardization of NICU needs some “sub-standard” Shanghai, CHINA * April 26 – 27, 2009 9
Conference Report – CMF NICU Network Transferal System: Cooperation between the hospitals of upper and lower level Transferal of high-risk pregnant women Difficulties in transferal up to tertiary hospitals Setting up of transferal center to facilitate the communication Lack of transferal equipment Setting up of the regional transferal network Provision of transferal equipment, record of transferal files and cases, sharing of data and information regarding transferal of cases Other expectations towards the Network: Running cost of NICU Research opportunities among network members Develop a comprehensive network and extend the influence of the network Develop and promote best practices Consistent standard for each NICU Publicize the network and let more people know of the Network Provision of support to transferal system in different regions Organize “distance-expert-consultation” to discuss the complicated cases Organize study tours to Hong Kong or other countries for exchange and learning During the second discussion session, participants discussed the impact of CMF’s NICU program and the further development of their NICUs under the following discussion topics: o Pros and cons brought by NICU o Problems encountered and possible solutions o Key neonatal problems in the district o Suggestions to improve these problems Pros and cons brought by the NICU: Pros: ♦ Upgrade of technical skills and equipment ♦ Improve management capability ♦ Standardization of work ♦ Arouse the interest of and support from hospital leaders ♦ Strengthen clinical capability and rescue ability of medical professionals Shanghai, CHINA * April 26 – 27, 2009 10
Conference Report – CMF NICU Network ♦ Strengthen communication and exchange (scientific development, clinical research and teaching) between tertiary hospitals and other city hospitals ♦ Provision of equipment could directly improve the capability of saving lives ♦ Build up a team of high quality staff through training ♦ Confidence of staff increased ♦ Upgrade in service standard and quality ♦ Lowering of the neonatal mortality rate ♦ Good economic effect for the hospital ♦ Upgrade of the brand image of the hospital in the region ♦ Newly established NICU stimulates top management to further invest in neonatal care Cons: ♦ Working life becomes very busy after setting up the NICU ♦ Very stressful working environment in NICU ♦ High risk clinical work ♦ Not much communication and exchange within hospital ♦ Not enough resources to upgrade and operate equipment ♦ Insufficient equipment ♦ Disability caused by the treatment in NICU ♦ Increase in debt in NICU Problems encountered and possible solutions after setting up of NICU: Affordability of patients and their families Standardization and data base are very important in developing the NICU Insufficient input, insufficient manpower Management standard needs to be enhanced Not enough support from top management of the hospitals Strengthen the publicity of NICU and encourage more participation from the leaders of hospitals The mortality rate and the rescue success rate would be affected by the cases given-up Economic level in the district, debt to the NICU due to given-up cases and being unable to pay the hospital bill – is it possible to set up a “foundation” to help solve these cases? Despite successful rescue by the NICU, some newborns live with disease and disability; suggestion to develop rehabilitation services to address this need Not enough clinical skills – more training? Problems in both soft and hard ware – solicit more support from the top management of the hospitals and provide more training to the staff Shanghai, CHINA * April 26 – 27, 2009 11
Conference Report – CMF NICU Network Key neonatal problems in the district: Asphyxia Prematurity Congenital anomalies No pediatrician in the delivery room Some patients are unable to afford the NICU fee Transferal system – no transferal equipment; no connection with the tertiary hospitals and no where to transfer No good understanding about NICU for those non-NICU-professional Low level of trust between patients and medical professionals Prognosis of congenital anomalies and asphyxia and the affordability of parents No resuscitation training for county or village level medical units The standard for neonatal care is not high and may cause some misdiagnosis or mistreatment Suggestions to improve the problems: Need to develop a 3-level standard for NICUs in China based on demand, hospital conditions, resources and expertise Need to also develop a 3-level transferal system – for county, prefecture city and provincial city Offer regular retraining for trainers in the hospital, especially for those using ventilators Standardization of diagnosis and management of NICU should be further actualized Health education to the public Establishment of rehabilitation centre Regularly report to the hospital’s leaders to make them better understand the importance of NICU Shanghai, CHINA * April 26 – 27, 2009 12
Conference Report – CMF NICU Network 6. Inauguration Ceremony Representatives from each NICU were requested to bring a photo which could tell other participants a story regarding his or her experience in neonatal care service or NICU services. During the inauguration ceremony, representatives shared their photo and story. Here are some of the stories and photos: “These twins were born prematurely with very low birth weight. They needed respiration equipment to support their fragile lives. Thanks to the donated ventilator from CMF, we could save their lives by using the ventilator. They were saved and now growing up healthily.” – Dr. CHEN Yanxiang from Yichuan No. 1 People’s Hospital in Ningxia (NICU est. in 2003) critical conditions was sent in from the city maternal and children’s hospital in the afternoon. This transfer-in neonate was unable to breathe by herself. They were fortunate to be saved because we have two ventilators in our NICU (one donated by CMF and another one was added by our hospital later on). We were thankful to CMF not only for their “On the 25th of February in 2009, donation but also the facilitation effect there was one preterm neonate of its donation.” – Dr. CAO Yuntao using the ventilator in our NICU. from Affiliated Hospital of Zunyi However, another neonate with Medical College (NICU est. in 2007) Shanghai, CHINA * April 26 – 27, 2009 13
Conference Report – CMF NICU Network “I would like to share this case of the his follow up at 1 year old. We were smallest kids saved by our hospital so glad that he is now a very healthy to you. His mother carried two 3-year old boy.” (Dr. LIU Ling from babies during her pregnancy. Yet, Guiyang Maternal and Children’s both of them were born in their 27 Hospital (NICU est. in 2009) weeks and the first one was found dead right after birth. The live one weight 900 grams and he had gone through a very tough period in our neonatal unit. We suspected he had cerebral palsy when he was 3 months old. Fortunately, after systematic therapy and rehabilitation training, his development was found totally normal when he was 1 year old. This picture was taken during Shanghai, CHINA * April 26 – 27, 2009 14
Conference Report – CMF NICU Network 7. List of participants 1 儿童医健基金会中国医健顾问委员会委员桂永浩教授 Professor GUI Yonghao 2 上海复旦大学儿科医院院长黄国英教授 Professor HUANG Guoying 3 上海儿科医学中心院长刘锦纷教授 Professor LIU Jinfen 4 上海儿科医学中心新生儿科科主任孙建华教授 Professor SUN Jianhua 5 上海儿科医学中心副院长王伟医生 Dr. WANG Wei 6 上海儿科医学中心科教部主任金燕樑医生 Dr. JIN Yinliang 7 中华医学会儿科分会新生儿组副组长陈超教授 Professor CHEN Chao 8 上海复旦大学儿科医院新生儿科副主任曹云医生 Professor CAO Yun 9 上海复旦大学儿科医院社会发展部主任罗伟奋主任 Ms. LUO Weifen 10 上海复旦大学儿科医院社会发展部刘玉楣女士 Ms. LIU Yumei 11 择善基金会项目主任唐悦文女士 Ms. Nora TONG 12 中国疾病预防控制中心妇幼保健中心副主任王临虹教授 Professor WANG Linhong 13 中国疾病预防控制中心妇幼保健中心儿童卫生保健部主任王惠珊主任 Professor WANG Huishan 13 上海复旦大学儿科医院小组组长王谨医生 Dr. WANG Jin 14 上海复旦大学儿科医院小组组长刘江勤医生 Dr. LIU Jiangqin 15 上海复旦大学儿科医院小组组长张澜医生 Dr. ZHANG Lan 16 上海复旦大学儿科医院小组组长朱丽医生 Dr. ZHU Li 17 儿童医健基金会项目总监陈淑茵女士 Ms. Yan CHAN 18 儿童医健基金会项目经理黄咏仪女士 Ms. Winnie WONG 19 浙江龙游县妇幼保健院金智敏儿科主任 Dr. JIN Zhimin 20 浙江富阳市妇幼保健院王陈裕儿科副主任 Dr. WANG Chenyu 21 浙江江山市妇幼保健院姜双英主任 Dr. JIANG Shuangying 22 浙江海宁市妇幼保健院沈鹏院长 Dr. SHEN Peng 23 浙江永康市妇幼保健院朱东波院长 Dr. ZHU Dongbo 24 浙江永康市妇幼保健院程可萍 NICU 主任 Dr. CHENG Keping 25 四川雅安市人民医院邹永蓉儿科副主任 Dr. ZOU Yongrong 26 宁夏银川市第一人民医院陈彦香儿科主任 Dr. CHEN Yanxiang 27 内蒙古妇幼保健院富景春院长 Dr. FU Jingchun 28 内蒙古妇幼保健院王红云主任 Dr. WANG Hongyun 29 贵州遵义医学院附属医院曹云涛新生儿科主任 Dr. CAO Yuntao 30 广西柳州市人民医院杨彤副主任 Dr. YANG Tong 31 新疆石河子大学医学院第一附属医院谷强副主任 Dr. GU Qiang 32 四川达州市第二人民医院李竹徽主任 Dr. LI Zhuhui 33 湖南衡阳市中心医院祝平照新生儿科医生 Dr. ZHU Pingzhao 34 陕西延安大学附属医院刘世平新生儿科主任 Dr. LIU Shiping 35 贵州贵阳市妇幼保健院刘玲新生儿科副主任 Dr. LIU Ling 36 江西上饶市人民医院吴启勇新生儿科负责人 Dr. WU Qiyong 37 广西右江民族医学院附属医院潘红飞教授 Dr. PANG Hongfei 38 西藏拉萨市人民医院邱全芳主任 Dr. QIU Quanfang 39 四川绵阳市中心医院余静儿科主任 Dr. YU Jing 40 四川绵阳市中心医院管利荣副主任 Dr. LI Rong 41 四川绵阳市中心医院魏丽蓉主管护师 Dr. WEI Lirong Shanghai, CHINA * April 26 – 27, 2009 15
Conference Report – CMF NICU Network Children’s Medical Foundation 78/F., The Centre, Queen’s Road Central, Central, Hong Kong Tel: (852) 2877-4118 Fax: (852) 2525-0511 E-mail: develop@cmf.org.hk Website: http://www.cmf.org.hk Shanghai, CHINA * April 26 – 27, 2009 16
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