CARERS HANDBOOK - Norfolk County Council
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CARERS HANDBOOK 2019-2020 Are you looking after someone in your family or a friend? We’re here to support you, 7 days a week. Call us 0800 083 1148 Text us 07537 417850 Live Email us info@carersmatternorfolk.org.uk Live Chat Chat Visit www.carersmatternorfolk.org.uk
CONTENTS Carers Matter Norfolk is here to help you while you care for a member WHO WE ARE YOUR HEALTH AND WELLBEING of your family or a friend. You may not consider yourself a ‘carer’; you are simply a husband, a wife, a son, a daughter, brother, sister, relation, 8 You and the Care Act 32 Looking after yourself friend or neighbour who is looking after someone you care for. 8 The Carer’s Assessment 36 Taking a break Recognising that you are a ‘carer’ and that you sometimes need help 9 Your rights 38 Seeking work and support is an important step. Getting information, advice and support 11 Have your say 40 Juggling caring and work at an early stage can enable you to continue caring with confidence and help prevent crisis. PRACTICAL HELP WITH CARING PLANNING AHEAD Being a carer can be both challenging and rewarding. For some it might 14 Coming home 42 Looking after be the difficulty of navigating the broad range of health and care services. someone’s affairs 14 Receiving help around the home For others it’s the chance to develop a rare bond with someone. Caring can 44 Dealing with end-of-life make some people feel invisible and anonymous. This is why, no matter what, 16 Home safety and security 46 Coping with bereavement we want to make sure that you feel you have a voice. 17 Using wheelchairs and medical and household aids The intention of this handbook is to assist you in many of the situations you YOUNG CARERS AND FAMILIES 19 Getting out and about might find yourself in as a carer. It was developed by carers, for carers, but it’s 50 How do you get help not meant to replace the immediate human support you may need. 22 Handling emergencies 54 Handy numbers Whether you have a question about funding or have something to say about MONEY MATTERS local policies and resources, whether you’d like to provide assistance to other USEFUL CONTACTS carers or if you just need to talk to someone about yourself, we want to make 24 Finding local grants sure you feel heard. That’s really what this booklet is for, a quick guide to and support and how to give feedback finding someone who will listen and help. 25 Funding for care services on this handbook 26 Understanding benefits 56 Emergencies Our handbook provides all the information you need, from information to help you in your caring role, from how to get help around the home, 29 Receiving housing benefits 56 Local Councils to understanding your rights and explaining benefits with handy numbers 30 Saving and managing money 56 National Carer Support Services to help you get in touch with organisations quickly in an emergency. 57 Physical and Mental Disabilities/ Remember our friendly team are here to support you, 7 days a week. Difficulties Save our advice line number 0800 083 1148 in your phone contacts. 57 Older People 58 General 2 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 3
WHO WE ARE Carers Matter Norfolk is the the people you care for and your Community Support Carers Self-Help Hub county-wide support service for wider family. You can access free one-to-one The Carers Self-Help Hub is a free unpaid carers, offering support support in your home, the online platform for carers which that is personalised to meet what Advisors are trained to provide community or a place of your choice brings you online learning all in one matters to you. Carers are involved listening and emotional support, from local Carer Connectors who will inclusive place. This has been in designing and shaping the and many have personal experience personalise support around what created so that you can best service. We put you firmly at the of caring. Call free from landline matters to you. We can help you to manage the practical and emotional heart of everything we do. telephones or mobiles or chat to understand and navigate local aspects of caring in addition to your an advisor online on the website services, support you to access own health and wellbeing. There are Carers Matter Norfolk is funded www.carersmatternorfolk.org.uk entitlements, assessments or grants, courses and learning on the Self- by Norfolk County Council and help you with benefits, housing and Help Hub which will meet the needs Norfolk’s five NHS Clinical “Fantastic support from adaptations or assist you to speak of all carers, whether you are an Commissioning Groups and up for yourself in accessing services adult or a young person and provides the following services: the Advice Line, they were and support. whoever you are caring for. Advice Line so understanding.” Counselling There are many different topics Open 7 days a week, the Carers which the Carers Self-Help Hub You can access free telephone Matter Norfolk Advice Line provides covers, and you will be able to counselling to support you with free, independent and confidential access these free and helpful emotional issues around caring; this information, advice and guidance resources with ease. A few of the can include managing stress or on a wide range of caring-related subjects which you can learn about coping with loneliness. Counselling topics and issues affecting you, through the Hub include Caring can be accessed via telephone, Skype, Facetime, Twitter and Facebook. Basics, Mental Health, Dementia, Emotional Wellbeing, Managing Behaviour, First Aid, Nutrition & Diet, “I was drained mentally Carers Rights and much, much more. and emotionally. Speaking Once on the Self-Help Hub you will to a counsellor has helped be able to browse the site at your me so much.” leisure and choose to learn about whatever suits you. It is important to remember that the Self-Help Hub is Education & Training as much about your own personal We can support you to care with wellbeing as it is for learning about confidence through education & your caring role. With this in mind, training. You could attend one of you can find resources which fit with our day or half-day events or access your own individual needs all in one resources online that can help you online space at no cost. develop skills and knowledge www.CarersSelfHelpHub.org around caring. 4 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 5
WHO WE ARE For a more personalised way to The Pod has been created to Young Carers & Families navigate the Self-Help Hub there is give carers the space to chat, Carers Matter Norfolk works to the option to register which will allow communicate and ask questions a whole family approach; young you to save your favourite resources at any time of day throughout the carers and their families can and receive email notifications of week. This means that carers can get access specific information, advice Carers Voice new resources when they are added. peer to peer support and receive help & guidance online and in the from professionally trained Carer Carers Voice Norfolk and Waveney community through their local is an independent charity The Self-Help Hub has been designed Advisors and health practitioners Carer Connector. See the website representing carers in Norfolk and and developed by Carers Matters at a time which suits them. for further information. Waveney. It works to ensure that Norfolk in order to bring online www.carersmatternorfolk.org.uk the voice of carers is heard and learning to carers throughout Norfolk With The Pod you can immediately in the most convenient way possible. access professional advice (through If there is a Young Carer in your listened to in the design and private messenger), watch self-help family, or you know a young person delivery of support and services. The Pod videos and publicly communicate under the age of 19 who is regularly Carers Voice is at the heart of The Pod is a supportive online with other carers. In addition, you looking after a parent, grandparent community which has been will be able to easily find events, the Carers Matter Norfolk Service or sibling who cannot manage ensuring that the services carers developed as an app for carers groups and activities. without their support, we’re here to to share advice and information receive reflect their needs and help. We offer tailored support for interests. carers are also able in a convenient way from their own On the Pod you will be able to the whole family, addressing the to have their say in policies and home. This platform can enable receive support without having practical and emotional needs of decisions that affect them and carers to build a large network of to leave the person you are caring the young carer, the person they are the people they care for. friends and receive online support. for or worry about the time of day. caring for and other family members. In app format this social platform gives you complete ease of access As an equal partner within Carers to instant help and support. As an Matter Norfolk, Carers Voice ensures online community you will be able that carers are able to be involved to connect with others who have at every level of provision and that shared experiences and engage "I could not have coped the service is pro-active in providing with professional help. without my Carer what carers need. Connector. They have been Within Carers Matter Norfolk, Carers Whether you’re a carer, family member, friend or professional, wonderful and have been Voice administers a small grants The Pod is for you at any time. to meetings and the fund for local support groups for carers. The decision on allocating hospital with me, and funds lies with local carers who sit helped me to come to on the panel. This forms part of the terms with him needing wider support offer for groups which 24 hour permanent care. includes a publicity pack and help with ensuring the sustainability of They have been such a help” the groups across Norfolk. www.carersvoice.org 6 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 7
YOU AND THE CARE ACT THE CARER’S ASSESSMENT Some people may be able to receive After the assessment YOUR RIGHTS The Care Act helps to improve a Carer’s Allowance from the Once complete, NCC will decide We understand the pressure of people’s independence and Department for Work & Pensions for whether you need their support. caring for someone and want to wellbeing. A Carer’s Assessment caring, but this is different and does To be eligible, the impact of caring make sure that you feel supported. is about you and your wellbeing. require a means test. If you’re has to have (or be likely to have) a Besides the right to a Norfolk County Norfolk County Council (NCC) will eligible to receive services to support significant effect on your wellbeing. Council Carer’s Assessment, you have discuss with you the different your role as a carer, you’ll receive access to services from voluntary ways caring affects your life and these free of charge. If you are found to be eligible for organisations and other explores ways in which you can support, NCC will agree a Support independent providers. You also If you can’t attend Plan with you. carry on with what’s important have other rights covered by the law. for you and your family. Norfolk County Council (NCC) realise that some people can’t take part This may include support in The Care Act (2014) It should cover your caring role, your directly in the assessment. If that’s accessing the services in your community, arranging for breaks The Care Act came into effect in feelings about caring, your physical, the case for you, NCC will make sure April 2015 and made widespread mental and emotional health, and you have a friend or family member from caring on a regular or one-off basis, equipment to make caring changes to adult social care in the effect caring has on your work, who can help and stand in for you. England. Importantly for you, as leisure, education, wider family and If you don’t have anyone who can easier, or leisure activities to reduce stress. a carer, it gives you the same rights relationships. It also gives you the help, and you have no other way to assessment and support as the chance to find out more about of attending, the Council may find Even if you aren’t eligible, NCC will person or people you’re caring for. support services, emergency help, an independent advocate. provide you with information on This means that your rights are breaks, and financial help to support where you can find support within recognised as equally important. your wellbeing and to help you your community. continue caring. For more information on the Care “I found the advice line To request a carers assessment, Act, visit our website, or head to the You can ask NCC to carry out a very helpful. The lady please contact NCC first, or head to government’s webpage using the Carer’s Assessment at any time. the Norfolk County Council website. links below. However, we recommend that you I spoke to really contact Carers Matter Norfolk first to understood my situation Norfolk County Council Carers Matter Norfolk find out more about the assessment and was interested and T: 0344 800 8020 T: 0800 083 1148 and to discuss your needs. www.norfolk.gov.uk/carers www.carersmatternorfolk.org.uk/ able to talk through information-advice/your-rights/ –––––– The purpose of the assessment options and provide care-act is not to judge the care that you helpful information. KNOW YOUR provide. The council might ask you Government webpage about the impact the cost of caring It was fantastic to have www.gov.uk/government/ is having on your finances but won’t someone to listen to me.” publications/care-act-2014-part-1- RIGHTS! carry out a financial means test. factsheets/care-act-factsheets –––––– 8 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 9
YOU AND THE CARE ACT HAVE YOUR SAY For a brief overview, some of the Equality Act 2010 Your right to complain After the County Council has principles covered in the Care Act Some carers and/or the people There may be times when you need completed its investigations, your (2014) are: they care for may experience or want to make a complaint about Local Government Ombudsman discrimination or harassment the services you’ve received. The NHS can investigate complaints on the • Wellbeing because of their age, disability, and local government organisations way cases were handled. • Assessment for local authority caring role, or for any other number have complaints procedures if you’re support An advocate can also support of reasons, such as race, gender, unable to resolve the problem you in finding out about your rights • Eligibility for funded services or sexual orientation. Because this directly with the worker involved. and help you to resolve issues. can affect your ability to work, get • Financial schemes and support POhWER works with Equal Lives and For more details on your rights and involved in leisure activities, or use Age UK Norfolk to provide the NHS complaints services, call one of our • Information and advice from services that should be available Complaints Service in Norfolk. advisors or head to our website. local authorities for everyone, the Equality Act aims to help you and the person under Local Government and • Preventing further needs, rather POhWER your care: Social Care Ombudsman than allowing situations to reach T: 0300 456 2370 • In the workplace TEXT: 81025 (text the word 'powher' T: 0300 061 0614 a crisis point with your name and number) T: 0800 083 1148 • Diversity in the range of quality • When shopping for goods www.lgo.org.uk E: pohwer@pohwer.net care you can choose from and services www.pohwer.net/norfolk Your right to be heard • Personalised care and support • In education plan for you and the person under Patient Advice and Liaison Services • With housing (PALS) your care • When using facilities like public Each healthcare service has • Continuity in support if you or the transport, taxis, cafes, cinemas, advice and liaison officers that can person you care for chooses to restaurants etc explain procedures to you, provide move home confidential advice and support, as For more information on the well as act as your point of contact • Transition, meaning better Equality Act, you can contact us. and help resolve problems. planning for young people Citizens Advice Bureau has also (including young carers) during To find your local PALS officer, either produced a brochure on the Equality their transition between Children’s visit the NHS website www.nhs.uk Act and how it affects you as a carer. and Adult’s services (search for PALS) or contact our You can download the brochure on The Citizens Advice Bureau Equality our website. Advice Line 0800 083 1148. Act Brochure: www.carersmatternorfolk.org.uk/ www.carersmatternorfolk.org.uk/ information-advice/your-rights/ wp-content/uploads/2018/02/ equality-act-2010/ Equality-Act-2010.pdf 10 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 11
HAVE YOUR SAY Visit www.CarersMatterNorfolk.org.uk where carers share their experiences As a carer, you are an ‘expert’ through Family Voice Norfolk is the parent your lived experience of caring and carer forum for Norfolk. It represents you should be able to have a say in the views of families with children services, policies and decisions that and young people with special affect you and the people that you educational needs and/or care for. We call this the ‘Carers Voice’. disabilities (SEND) to decision- Carers Voice Norfolk & Waveney is a makers and service providers in partner in Carers Matter Norfolk education, health and social care. ensuring our services involve carers at every level. Carers Voice ensure all It is funded by the Department for carers in Norfolk and Waveney can Education, the local authority and the have a real say on the local services NHS via Clinical Commissioning and support they receive. Groups (CCGs), but it operates completely independently. E: info@carersvoice.org Representatives of Family Voice are all www.carersvoice.org parent carers of 0–25-year-olds with SEND. They attend meetings at which all of these bodies make decisions that affect families, to ensure that There is a Healthwatch in every area money is spent in the most useful and of England. Healthwatch supports cost effective way to benefit parent local communities to find out what carers and the children and young people like about services and what people they care for. could be changed and improved. Family Voice Norfolk Healthwatch then shares these T: 07950 302937 opinions with authorities in order to E: membership@familyvoice.org.uk make change happen. In addition, www.familyvoice.org.uk Healthwatch can also help people find out useful information about the services available to them. Healthwatch Norfolk T: 0808 168 9669 E: enquiries@healthwatchnorfolk. co.uk www.healthwatchnorfolk.co.uk 12 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 13
PRACTICAL HELP WITH CARING COMING HOME ADDITIONAL SUPPORT RECEIVING HELP AROUND Continence clinic The Norfolk First Support Service Provides help with practical tasks THE HOME If one of your household tasks provides support and reablement in and to regain independence. Keeping on top of household tasks involves help with continence issues a person’s own home. This service is can be a pressure when you’re for a person who is 18 or older, you provided by Norfolk County Council The British Red Cross caring for someone. If you think might find a continence clinic at a (NCC) and it it helps people (aged 18 T: 01603 426361 you might need help, please call hospital or community health centre and over) stay in hospital or after a www.redcross.org.uk our Advice Line so we can try to put near you. If you wish to contact stay in hospital. you in touch with the right support. them, you can do so directly, Offers support for older people without a referral from your GP. Norfolk First Support will discuss going into hospital and coming Meal delivery services with you and the person needing home. To find your nearest health centre, Norfolk County Council operates the support about how much care is Trusted Trader website, where you head to the community health and The Royal Voluntary Service care website. needed and whether they are can find information on private T: 0330 555 0310 eligible for support from Norfolk companies in Norfolk, as well as www.royalvoluntaryservice.org.uk Norfolk Community Health and Care First Support. voluntary organisations and even www.norfolkcommunityhealth pubs and cafes that provide meal andcare.nhs.uk Providing up to 6 weeks of free delivery services. These can include support, the service helps individuals freshly cooked hot or cold meals, or regain the skills and confidence frozen meals that you can reheat as they need to remain independent and when you want them. in their home. Trusted Trader If the team feels someone needs www.norfolk.gov.uk/trustedtrader longer-term support, Norfolk First Support will assist with onward Norfolk County Council referrals, advice, and information. T: 0344 800 8020 To find out more, you can contact E: information@norfolk.gov.uk us, or you can talk to the staff on the hospital ward or contact NCC. The Norfolk Community Directory can provide details of lunch clubs Norfolk County Council and day centres in your area. T: 0344 800 8020 E: information@norfolk.gov.uk Lunch clubs and day centres www.norfolk.gov.uk/stayathome T: 0344 800 8020 www.communitydirectory.norfolk. gov.uk 14 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 15
PRACTICAL HELP WITH CARING HOME SAFETY AND SECURITY ADDITIONAL RESOURCES USING WHEELCHAIRS AND Key safe When you’re caring for someone, Offers a wide range of information MEDICAL AND HOUSEHOLD If you or the person under your it’s important to make sure your material and guidance. AIDS care has multiple visitors but have home environment is safe. We can Equipment to help with caring difficulty in getting to the door help you find the right people to Age UK Norfolk to let them in, a simple means When it comes to support for assist with essential repairs, or T: 0300 500 1217 of support is a key safe, which is mobility and independence, your GP assess your home for fall risks. www.ageuknorfolk.org.uk a combination-code protected or any other healthcare professional can have the person under your care secure box, used for keeping a Help if someone suffers from falls Offers free fire safety checks. spare key outside the main door. assessed for what walking or medical If the person under your care has Fire Safety: aids they might need. If they have a had two falls in the last six months The Supra C500 key safe is police Norfolk Fire and Rescue Service permanent or long-term physical approved, and there are a number or a single fall that has led to injury T: 0300 123 1669 disability, you can also ask Norfolk or being admitted to hospital, the of organisations in Norfolk that www.norfolk.gov.uk/safety/norfolk- County Council for an assessment, provide key safes. Costs and Norfolk Community Health and Care fire-and-rescue-service to include occupational therapy. (NCH&C) Falls Service provides a conditions may apply, and we Falls Workbook as well as a home- Handy person services and care As part of that assessment, you can recommend that you contact discuss any equipment you think you your home insurance provider based assessment to identify the and repair agencies factors and risks, which may might need to help you as a carer. for further advice. For help and advice on repairing and contribute to this person’s falls. adapting homes. You can find these To find a local key safe supplier, The purpose of the assessment Norfolk County Council through your local district council, T: 0344 800 8020 you can call Norfolk County Council, is to develop a personalised action and you can find your local district or email them for more information. plan to help the person improve www.adultsocialcare.norfolk.gov.uk council number in the Useful www.norfolk.gov.uk/stayathome Alternatively, you can head to the their confidence, balance, strength Contacts section of this handbook, Norfolk county council Keysafes and stamina. page 56. web page. While this service is provided for Norfolk County Council people who are 65 years or over, T: 0344 800 8020 you, your GP, or any other health E: information@norfolk.gov.uk professional can refer under 65s to www.norfolk.gov.uk/keysafes therapy or nursing for assessment. NCHC Falls Service T: 01553 668 673 www.norfolkcommunityhealth andcare.nhs.uk 16 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 17
PRACTICAL HELP WITH CARING Assistive Technology Able to lend mobility aids, including GETTING OUT AND ABOUT ADDITIONAL RESOURCES If the person under your care is an wheelchairs, on a short-term basis, Whether it’s attending important Driving Miss Daisy adult over the age of 18, and lives and provide details on where to find hospital appointments, getting the T: 0333 014 6211 in their own home, Norfolk County their local centres. shopping in or enjoying some Council has an Assistive Technology much-needed leisure time, find out Travel passes for bus travel The British Red Cross team that can carry out a free how you can get help with travel The Disabled Travel Pass entitles T: 01603 426361 assessment to see whether the and transport. permanently disabled people, or those www.redcross.org.uk person under your care would benefit with a disability lasting at least 12 from such assistance. Able to lend mobility aids, including The Community Transport Scheme months and who meet the eligibility wheelchairs, on a short-term basis. Some carers don’t have access criteria, to travel for free on all off peak Assistive Technology refers to a to a car or any other means of bus services, as well as at any time on range of equipment and electronic Norfolk Coastal Centre for transportation. If that’s the case weekends and bank holidays. There gadgets that can help people feel Independent Life with you, and you can’t use or access are no travel period restrictions, safer and more secure, and to live T: 01493 663 626 normal public transport, you may however, on anyone who is registered more independently at home. E: nccfil@redcross.org.uk be eligible for a Community as blind or partially-sighted. You may be provided with Transport scheme. Depending on equipment free of charge, Offers free, impartial advice and If the person under your care can’t the scheme’s criteria, you could use although this is not guaranteed. information on the use of daily living travel alone, they can apply for a it to go shopping, enjoy leisure equipment for the public. companion enhancement, so that Norfolk County Council activities or to attend hospital or GP appointments. In addition to the you or whoever travels with them T: 0344 800 8020 DLF (Disabled Living Foundation) Community Transport schemes can do so for free, as long as the E: information@norfolk.gov.uk T: 0300 999 0004 (Transport Plus), there are 4Flexibus journey starts in Norfolk. To be www.norfolk.gov.uk/ www.dlf.org.uk/living-made-easy services that run a Ring and Ride eligible for a companion pass, the assistivetechnology person under your care must be A free website where you can post service in rural areas. adverts to buy or sell equipment. unable to walk to a bus stop or get ADDITIONAL RESOURCES You can view your options or contact on or off a bus without assistance. If you’re not eligible for support Disabled Gear Norfolk County Council at: www.disabledgear.com Norfolk County Council from Norfolk County Council, Norfolk County Council T: 0344 800 8020 you can contact the following T: 0344 800 8020 E: information@norfolk.gov.uk services directly. information@norfolk.gov.uk maps. www.norfolk.gov.uk/ Mobility aids. Contact for advice norfolk.gov.uk/find your transport concessionarytravel and to purchase equipment. “There are some really www.norfolk.gov.uk/community transport n-able useful resources in Norfolk, T: 01603 894 120 a quick phonecall can help E: n-able@ncsgrp.co.uk you find out more.” www.n-able.org.uk 18 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 19
PRACTICAL HELP WITH CARING ERS Hospital Transport service. Vehicle Tax ADDITIONAL RESOURCES Toilet keys allow access to toilets Free transport to and from hospital The person you’re looking after Information on public transport adapted for people with disabilities. for patients living in Norfolk, can may be entitled to free, or half-price journeys throughout Norfolk. Contact The R.A.D.A.R Key Company be for regular visits or one off vehicle tax if their mobility is directly for more information. appointments. Subject to eligibility affected and they are claiming National Express Assisted Travel Helpline RADAR NKS National Key Scheme (not available to patients in certain payments and allowances. T: 0371 781 8181 T: 01395 222588 Gt Yarmouth & Waveney). Vehicle Tax Information E: DPTH@nationalexpress.com www.radarkeys.org T: 0333 240 499 T: 0300 790 6802 www.nationalexpress.com This website includes a range of www.gov.uk/vehicle-tax Parking Traveline information about accessible places Railcards and travel discounts www.traveline.info in the city. The Blue Badge Scheme is a disabled parking permit that allows people If the person under your care is The Norwich Access Group who are registered blind, or those eligible, the Disabled Persons Loans manual and powered wheelchairs and scooters. www.norwichaccessgroup.org.uk with severe mobility issues, who Railcard gives both them and their would otherwise be unable to access adult companion 1/3 off most rail There is a charge for the service. Provides information on accessible the shops or facilities that a Blue fares throughout Great Britain. The Shopmobility Scheme walks and places to visit in Norfolk Badge would allow them to visit. Norwich Shopmobility and in the East of England. New eligibility criteria for those with Disabled Persons Railcard Office T: 0345 605 0525 T: 01603 753 350 Accessible Countryside for Everyone hidden disabilities was implemented E: norwichshopmobility@gmail.com on the 30th of August 2019. E: disability@raildeliverygroup.com www.accessiblecountryside.org.uk/ www.disabledpersons-railcard.co.uk West Norfolk Community Transport norfolk For further details and to check if T: 01553 770 310 this could apply to you or the person Greater Anglia can provide information on assisted travel. E: shopmobility@wnct.co.uk you care for, please visit the website below. You can apply using the web Great Yarmouth Broadland Mobility Greater Anglia link below or by contacting Norfolk T: 0800 1510 255 T: 0800 028 2878 County Council. T: 01493 330 455 E: assistedtravel@greateranglia.co.uk www.greateranglia.co.uk www.broadlandmobility.co.uk If you would like support to complete your application, you can contact the Beactive Carers Matter Advice Line on Norwich – T: 01603 666 803 0800 083 1148 who can assist. Great Yarmouth – T: 01493 444 348 Diss – T: 01379 643 962 Norfolk County Council www.beactivemobility.co.uk T: 0344 800 8020 www.norfolk.gov.uk/bluebadge 20 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 21
PRACTICAL HELP WITH CARING HANDLING EMERGENCIES Once complete, you’ll be sent your Non-emergency support in the fridge, and with a special Being prepared for an emergency carer’s emergency card, which you Norfolk Swift Response sticker to tell emergency services means that, should something should then always carry with you. (Swifts/Night Owls) provide a where to find it, you can help them unexpected happen to you, or the The card will clearly state that 24-hour, 365 day a year service respond properly if you are taken ill person you care for, you know you’re a carer and that you have which provides help, support, and or have an accident. For more exactly what to do. someone relying on you to keep reassurance if you or the person information, ask your GP or them well and safe. under your care have an urgent, pharmacy, or call Lions Club The carer’s emergency card unplanned need at home. This could International. In the case of an emergency Norfolk County Council provides be because they had a fall, or if their The card will also show your Message in a bottle a free carer’s emergency card to all carer is suddenly taken into hospital emergency plan number. In the case T: 0845 833 9502 carers in the county. The card clearly and they need help with personal of an emergency, you, or someone E: enquiries@lionsclubs.co.uk states that the person carrying it is care, meal preparation etc. on your behalf, should ring NCC’s www.lionsclubs.org/en a carer and that someone is relying on them to keep them safe and well telephone number and give them There are four teams of two people Community Alarm and provides the NCC’s 24-hour your emergency card number. This working in the Swifts/Night Owls There is also a new Buddy Button emergency helpline number, will allow the Council to quickly across Norfolk at any point in time. becoming available you can wear. 0344 800 8020. reach your named emergency In an emergency, the alarm activates contacts. Carers Matter Norfolk can Swifts/Night Owls will attend a person who has fallen, if requested, your home phone line to call for help. If someone carrying a carer’s support you to develop your own There is a charge for this service. emergency card is taken ill or emergency plan; contact our Advice if the person has not suffered an involved in an accident, they or the Line 0800 083 1148 or speak to your injury or has any medical symptoms Breckland and Norwich - emergency services can ring the local Carer Connector. that have been exacerbated by the Wellbeing Lifeline helpline and the council will use the fall. The team work in pairs and T: 01323 644 422 information in the carer’s emergency Finally, if after the emergency there carry special lifting equipment to plan, such as details about the is no one to look after the person in help make moving people as safe Broadland – Centra Pulse support they provide and emergency your care, NCC will make sure that as possible. T: 0300 333 6511 contact details, to ensure the person they remain safe until alternative arrangements can be made. This Norfolk County Council Great Yarmouth – Yare Care they care for isn’t put at risk. Swift Response service is available to young carers T: 01493 330 369 and young adult carers alike. T: 0344 800 8020 – Select option 1 Getting your carer’s emergency card www.norfolk.gov.uk/care-support- West Norfolk – Care Line To get a card you’ll first need to To contact the emergency helpline, and-health/care-and-support/ T: 01553 616 200 – Select option 6 complete the online form on the receive your carer's emergency card, urgent-help/ NCC website. If you’re unable to fill or to find out more, contact Norfolk North Norfolk – Care Line in the online form, you can call them County Council. T: 01553 616 200 – Select option 6 on their helpline or ask the Carers ADDITIONAL SUPPORT Matter Advice Line to help you Norfolk County Council Message in a bottle South Norfolk – Contact Care complete the form. T: 0344 800 8020 By putting your (and the person Lifeline Alarms TEXT: 0344 800 8011 under your care’s) important T: 0800 917 4680 www.norfolk.gov.uk/carers information in an empty bottle 22 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 23
MONEY MATTERS FINDING LOCAL GRANTS The Norfolk Millennium Trust Disabled Facilities Grant FUNDING FOR CARE SERVICES AND SUPPORT for Carers This is a maximum grant of £30,000 Norfolk County Council can provide Our advisors are always on hand The Norfolk Millennium Trust for that may be available to you from funded services to support you and to help you access grants and other Carers is administered by the Norfolk your local council if you need to the person you care for if you’re support. We may be able to award Community Foundation and gives adapt your home to the needs found to be eligible for support you a small grant if you’re part of out grants to unpaid carers to of a disabled person. under the Care Act. a carers’ group or are thinking provide them and their loved ones of starting one up. a better quality of life. You may want to improve access If you are eligible the Council will to rooms and facilities by installing agree a Support Plan with you. Funded by Norfolk County Council, The Millennium Trust grant is ramps, put in a stairlift, a downstairs This may include support to access this grant aims to improve the for practical items like washing bathroom, or adapt heating or the services in your community, support services available to carers machines and wheelchairs, as lighting. The amount awarded arranging for breaks from caring across Norfolk. The carers’ group well as for short breaks and leisure depends on your household income on a regular or one-off basis, must be for carers over the age of 16, activities which relieve the 24/7 and savings, and your local council equipment to make caring easier, caring for people over the age of 18, pressures of caring. will normally want to assess the or leisure activities to reduce stress. and more than half the group have disabled person’s needs. to be current carers. The group also Norfolk Millennium Trust for Carers To find out whether you, or they, has to offer spaces for new carers T: 01603 623 958 For more details, you can find your are eligible, you can find more and provide them a break. E: grants@norfolkfoundation.com local council’s contact details in the details in the Carer’s Assessment www.wecareappeal.co.uk Useful Contacts section, page 56. section of this booklet, page 8, or To find out more, call us on our you can call Norfolk County Council. Advice Line 0800 083 1148 or visit The Rank Group and Carers Trust our website www.carersmatter This is another great source of Norfolk County Council norfolk.org.uk support for adult carers offering T: 0344 800 8020 a range of grants for equipment or www.norfolk.gov.uk/payingforcare “With help from Carers care-taking skills, and to help take care of the carers’ wellbeing. Matter Norfolk to access You can pick up or download a To find out more, or to apply, a grant, I could take copy of Norfolk County Council’s contact the Carers Trust. ‘Your Guide to Care and Support a weekend away with for Adults’, which has the contact Carers Trust my husband. It wasn’t details to a range of care services T: 0300 772 9600 much but it helped me from which you can choose. carers.org/article/grants- feel less worn out.” availablecarers-trust Norfolk County Council T: 0344 800 8020 Gloria from Kings Lynn, TEXT: 0344 800 8011 caring for her mother who www.norfolk.gov.uk/careservices has dementia 24 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 25
MONEY MATTERS UNDERSTANDING BENEFITS • You earn no more than £123 a week You may also be able to claim other Carer's Credit As a carer, you and the person you after deductions (i.e. tax, cost of benefits, such as an income-related If you don’t qualify for Carer’s care for can access financial replacement care, and 50% of what benefit or Pension Credit. If you’re Allowance, but you’re caring for support. Claiming these benefits you pay into your pension) pension age and on a low income, someone for at least 20 hours a can be confusing though and you might also be able to claim the week, you may still qualify for Carer’s Carer’s Allowance is not based on Carers Premium of Pension Credit. some benefits can affect others. Credit, as your income, savings, or you or your partner’s income and Our advisors can inform you on investments won’t affect eligibility capital. However, there’s a cap on If you’re claiming benefits such as which benefits are available to you, for this benefit. Carer’s Credit helps how much you can earn from work Maternity Allowance, Contributory how to claim, and can guide you with gaps in your National Insurance and still be entitled to Carer’s ESA or a state pension you might through the application process. record. Your State Pension is based Allowance, and this is currently set at not be eligible for Carer's Allowance, on your National Insurance record, If you’re interested in this assistance, £123 per week after deductions. If you but you should still apply. This is and if you’re eligible for Carer’s call us on our advice line, or head to need to pay for care to allow you to because these other benefits may Credit, you can get credits to help our website to find out more. continue working, you can include be paid at a higher rate than Carer's fill these gaps. This means that you these costs in your deductions. Allowance and you will be paid can take on caring responsibilities Carer’s Allowance whichever is the highest. The person you are caring for must without affecting your State Pension. This is one of the main benefits receive one of the following benefits: You should also be aware that available to you as a carer. If you’re To get Carer’s Credit you must be: claiming Carer’s Allowance may caring for someone at least 35 hours • Personal Independence Payment affect the benefits that the person • Aged 16 or over, and under State a week, you may be eligible for a (PIP) daily living component you’re caring for might be receiving, Pension age £66.15 a week Carers Allowance, • The middle or highest care rate so you should always check with provided all of the following apply: • Looking after one or more people of Disability Living Allowance (DLA) an advisor before applying. for at least 20 hours a week • You’re 16 or over Our advisors can help you apply. • Attendance Allowance Contact by phone or visit our The person you’re looking after must • You spend at least 35 hours a week • Constant Attendance Allowance website for more details. caring for someone get one of the following: at or above the normal maximum • You have been in England, Scotland rate with an Industrial Injuries To apply for Carer's Allowance, go • The middle or highest care rate or Wales for at least 2 of the last Disablement Benefit, or basic to www.gov.uk or call 0800 731 0297 of Disability Living Allowance (DLA) 3 years (full day) rate with a War to request a claim pack. • Attendance Allowance Disablement Pension • You normally live in England, • Constant Attendance Allowance Scotland or Wales, or you live • Armed Forces Independence Payment (AFIP) • The standard or enhanced abroad as a member of the Personal Independence Payment armed forces (PIP) daily living component • You’re not in full-time education • Armed Forces Independence or studying for 21 hours a week Payment (AFIP) or more 26 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 27
MONEY MATTERS If the person you’re caring for To be eligible, this child will need Getting the PIP doesn’t reduce other The State Retirement Pension doesn’t get one of these benefits, to meet all of these requirements. benefits, and may even increase The amount of state pension you you may still be able to get Carer’s To find out more, call the Disability them. The rate will depend on how receive depends on your National Credit. Just fill in the ‘Care Certificate’ Living Allowance helpline or head the person’s condition affects them, Insurance contributions and how part of the application form and get to the government website. rather than on the condition itself, many years you have paid. a health or social care professional and so the person you care for will to sign it. Disability Living Allowance helpline need to have an assessment to work To find out more, call the Pension T: 0800 121 4600 out the proper level of help for them. Service at 0800 731 7898 or go to You don’t need to apply for Carer’s www.gov.uk The award will then be regularly www.gov.uk/state-pension/overview Credit if you get Carer’s Allowance reassessed to make sure the person – you’ll automatically get the credits. Attendance Allowance you’re caring for is getting the right RECEIVING HOUSING You can also still get Carer’s Credit This is a benefit for people of amount of support. even if you have breaks from caring pension age or over who need help BENEFITS (up to 12 weeks in a row). A break is looking after themselves because To find out more, or to apply, If you receive a low income, there are any time you spend less than 35 of a long-term illness or disability, call 0800 917 2222 or go to a number of schemes in place to help hours a week caring for the other which can be either physical and/or www.gov.uk/pip with paying your rent or mortgage. person. An example of a break is mental. The Attendance Allowance if you take a short holiday, or the helps with the extra costs of this Universal Credit Housing Benefit person you look after goes into care, and the disability has to be A monthly payment that has started It’s best to contact your district hospital. Just make sure to keep severe enough for the person to be to replace income and work-related council. You can find their contact the Carer’s Allowance Unit updated unable to care for themselves, or for benefits. If you or the person you’re details in the Useful Contacts if you have a break in caring of more someone to need to supervise them caring for are already receiving tax section of this handbook, page 56. than 12 weeks in a row. for their safety in their daily tasks. credits, you won’t need to do anything. Just make sure that you New claims for help to pay your Disability Living Allowance (DLA) To find out more, or to apply, call continue to claim any benefits you’re rent must be made through Disability Living Allowance (DLA) 0800 731 0122 or go to www.gov.uk entitled to and report any changes Universal Credit unless you are is a benefit paid to a disabled child in circumstances. in supported accommodation Personal Independence Payment such as supported living. or a child with a long term health condition or illness, ranging (PIP) To apply, go to www.gov/apply- This is paid to a person aged 16 up universal-credit. For help and Discretionary Housing Payment between £23.20 and £148.85 a week depending on the level of help the to pension age who is disabled or support call 0800 328 5644 You can also talk to your local district child needs. The aim of the benefit has a long-term health condition council if you need help paying any is to help with the extra costs of (physical or mental), and can be rent that is not covered by Housing looking after a child who: spent however this person chooses. Benefit or Universal Credit. Persons of pension age or over will • Is under the age of 16 need to claim Attendance Allowance, • Has difficulties walking or needs and it’s worth noting that the PIP much more looking after than a is slowly replacing the Disability child of the same age who doesn’t Living Allowance. have a disability 28 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 29
MONEY MATTERS Council Tax Disability Reducation SAVING AND MANAGING Winter Fuel Payment ADDITIONAL RESOURCES Scheme MONEY You could also get between £100 The Government’s Money You can apply for this if you have There are now a number of trusts and £300 tax-free to help pay your Advice Service to accommodate or adapt your that can assist you if you’re heating bills if you were born on or T: 0800 138 7777 property for a person with a disability. struggling with your utility bills before 5 November 1954. To find www.moneyadviceservice.org.uk (gas, electricity and water). out more, contact the Winter Fuel Discount Scheme Payment Centre on 0800 731 0160. Gives credit and access to Where there is only one person living For more information, contact your a range of financial services. in the property you can apply for a utility provider or contact Norfolk’s 25% discount. There may be other Citizens Advice Bureau. Eastern Savings and Loans conditions when the 25% reduction Credit Union Norfolk’s Citizens Advice Bureau T: 0333 600 0690 may apply please contact your local T: 03444 111 444 E: office@esclu.co.uk district council for more information. E: public@ncab.org.uk Cold Weather Payment www.eslcu.co.uk Council Tax Reduction Scheme If you’re already receiving certain Warm Homes Discount Scheme Advice on personal budgets and This has replaced Council Tax Benefit benefits, you may be entitled to a welfare benefits. You may be able to get £140 off and each local council operates its cold weather payment. You don’t your electricity bill if you’re either own scheme to reduce your council need to apply for this, as you’ll get Equal lives receiving Pension Credit (Guarantee tax liability based on low income. it automatically if you are eligible. T: 01508 491 210 Credit element) or on a low income. Please contact your local district E: info@equallives.org.uk To qualify, the bill has to be in your council for more information. www.equallives.org.uk name and your electricity supplier Support for Mortgage Interest (SMI) has to be part of the scheme. Free, confidential, and Visit www.gov.uk/the-warm-home- impartial advice. Receive help towards interest discount-scheme or contact your payments on your mortgage or Norfolk’s Citizens’ Advice Bureau electricity supplier directly. on loans if you have had to make T: 03444 111 444 certain repairs or improvements www.ncab.org.uk to your home. It’s paid to you as a loan, which you’ll need to repay Anyone living in Norfolk can apply. (with interest) when you sell or WARM MOVE UP TO £140 transfer ownership of your home. Norwich Credit Union For eligibility details, visit the www.gov.uk website. DISCOUNT T: 01603 764904 www.norwichcreditunion.org.uk 30 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 31
YOUR HEALTH AND WELLBEING LOOKING AFTER YOURSELF It’s important you let your GP know Flu Jabs Medicine Disposal Like you, many of our advisors have that you’re a carer and to find out This service is free of charge and If you have medicines in your home personal experience in caring for how they may be able to support usually runs from October. Flu that are no longer needed return other people, so we understand the you with such things as more vaccination is funded by the NHS them to the pharmacy so that they mental, emotional, and sometimes suitable appointment times, the flu to help carers stay well over the can be safely disposed of. Check even physical toll that caring for jab, health checks, carers’ groups, winter season. You may be asked your medicine cabinet regularly for someone can take on you. By calling or a referral to other sources of to sign a declaration to say that medicines which are out-of-date or our Advice Line on 0800 083 1148, information and support. you are a carer. no longer needed and never put we can guide you through the them in the bin or down the toilet. whole range of solutions and PHARMACIES Healthy Living support available to you, whether Many local pharmacies now offer The Norfolk Medicines Support Pharmacies in Norfolk offer much Service you’re looking for social groups to more than just medicines. They can a range of healthy living services; make friends, are thinking of taking also help you to look after yourself, from one-to-one support for quitting For helping people over 18 years up an activity, or anything else. make a lifestyle change, or advise smoking to emergency contraception old with a GP and who are confused you on other services available both or NHS Health Checks. Ask a member or finding it otherwise difficult All of our advisors are trained to of your pharmacy team or visit to manage their medication provide emotional support, so they within the pharmacy and from other local providers. www.norfolkslivingwell.org.uk particularly when it is important to know how to listen, and may help comply with the dosage. Ask your you feel less isolated. If you’re an Medication Self-Care pharmacist for a referral. adult and do have emotional issues If you, or someone you look after, is around caring, we can offer you free Your pharmacist will always be able Safeguarding to give expert advice on how to use feeling under the weather ask your counselling by phone, Skype, pharmacist first. They can give you We all have the right to a life free Facetime, Twitter, or Facebook. medication and discuss any issues and solutions if you or the person advice about many common minor from abuse and harm. Everyone you care for is having any difficulties. illnesses, such as diarrhoea, coughs, should feel they are safe, able to If this is a service you’re interested headache, travel health advice or They also offer a review of any new make their own decisions and be in, you can discuss it with one of sore throats. They can also advise medication that may be prescribed. respected and listened to. our advisors on the Norfolk Carers which medicines can be taken Matter Advice Line, and they’ll be together or when you may need When these rights are abused, some able to make a referral. Medicines Usage Reviews to see your GP. of us are less able to stand up for This is an opportunity to sit down in our rights and protect ourselves. If you’re in training or at college, or if private with the pharmacist and Your pharmacy may also offer home you’re thinking of taking up training discuss what you or the person you delivery, prescription management, Abuse can be physical, sexual or or returning to college, you can also care for are taking and ensure that Electronic Prescription Service (EPS) psychological (such as threats of talk to your Student Services for they or you are getting the and more. If you have any questions harm or abandonment). It also information on their student support maximum benefit from the about medications, staying well, includes modern slavery, self- or wellbeing team. This team can give medicines. The person you care for or services available from your neglect and financial scamming you advice or support in combining must be present if you are discussing pharmacy ask your local (theft and fraud). your caring role with your studies. their medication and you can pharmacy team. accompany them. 32 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 33
YOUR HEALTH AND WELLBEING If you or someone you know might be SANE An online, Facebook-based, peer suffering abuse, contact us straight T: 0300 304 7000 support group for family carers Following this call I was away. You can remain anonymous if www.sane.org.uk across the UK. able to take a step back you wish, but please give us as much and take care of me!!! Then information as you can. If it's an 24 hour emotional support to Chill4us emergency, call the Police on 999. anybody experiencing distress, Carers/groups/chill4uscarers I was able to re-evaluate You are not alone. We can help. despair, or suicidal feelings. the situation and place You can also talk to someone A listening service and chat room. Norfolk County Council face to face if needed. The helpline is available on Monday boundaries in place. I T: 0344 800 8020 and Tuesday, 10am - 4pm while the arranged some reflexology www.adultsocialcare.norfolk.gov.uk The Samaritans webchat forum is available 24-hours for myself and took a six T: 116 123 a day. Norfolk Safeguarding Adults Board E: jo@samaritans.org day break. I think, from this www.norfolksafeguardingadults www.samaritans.org Carers UK experience, and the board.info T: 0808 808 7777 situation remains the A free, 24-hour, confidential national www.carersuk.org/forum Norfolk Safeguarding Children Board helpline for people over the age of same, I realise www.norfolklscb.org 55, offering information, friendship, Details of hundreds of services the complexity of caring... and advice. that can help you to make positive Thanks so much for the National Domestic Violence Helpline changes to your lifestyle, from Fresupport I received, very e T: 0808 2000 247 (24 hours) The Silver Line Who are we? quitting smoking to losing weight. andal grateful indeed.” www.nationaldomesticviolence T: 0800 470 8090 Loc helpline.org.uk www.thesilverline.org.ukNorfolk’s Living Well is provided byNorfolk’s Living Well Service Norfolk County Council. www.norfolk.gov.uk/care-support- A range of support for Health people and-health/health-and-wellbeing ADDITIONAL RESOURCES with common mental injuries, health services don’t just treat illness and and they can also help you to make healthy The Counselling Directory can emotional issues. It’s free that you can avoid preventable A partnership aimed at improving forsoanyone choices help you find a local counsellor aged 16 and over, and illnesses you can and diseases in the future. refer and increasing opportunities for the To findto people of Norfolk out bemore about physically or therapist. yourself or be referredIfby you’re yourreadyGP, to make positive changes to your Norfolk’s Living Well, visit or any other health or lifestyle, socialthere are hundreds of venues all over active. They have activities to suit Norfolk ready to support you. The Counselling Directory care professional. every levelwww.norfolkslivingwell.org.uk in order to encourage Local services for a healthier, T: 0333 325 2500 Norfolk’s Living Well gives you all the everyone toor participate call 0344 in sport 800 8029* and happier you E: info@counsellingdirectory.org.uk Wellbeing Norfolk andinformation Waveneyyou need to find the one physical activity, and to support www.counselling-directory.org.uk T: 0300 123 1503 that’s right for you. people of all ages to lead healthy Provides details on self-help www.wellbeingnands.co.ukSupporting healthy and active lifestyles. and support groups for diseases A national out-of-hours mental Scan here to visit our website communities and conditions. health helpline, a non-emergency Active Norfolk As well as helping facebook.com/NorfolksLivingWell email and text service, and an T: 01603 732 333 individuals, we also Heron online forum. support professionals www.activenorfolk.org @NflksLivingWell and community groups to www.heron.nhs.uk improve the health of the people they work with. This If you require this information ® might be signposting, training, in an alternative format, please promotional materials or telephone 0344 800 8029 and advice and guidance. we will do our best to provide it. 34 www.carersmatternorfolk.org.uk Advice Line: 0800 083 1148. Mon-Fri 8am-8pm / Sat 4pm-8pm / Sun 8am-12pm 35 *Calls to 03 numbers should cost no more than geographic 01 or 02 calls, and may be part of inclusive minutes subject to your provider and your call package. We’re open from 9am
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