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March 2018 www.bercow10yearson.com Bercow: Ten Years On An independent review of provision for children and young people with speech, language and communication needs in England.
2 BERCOW: TEN YEARS ON FOREWORD Contents Foreword 3 Foreword 4 Introduction 6 The children and young people Chairing the Review of Services for Children reforms in a generation for children and young people with special and Young People (0–19) with Speech, Language educational needs in 2014. 8 Background and Communication Needs (SLCN) 10 years ago It is in the context of these was the most stimulating project of my changes that I was delighted 10 Communication is crucial parliamentary career up to that point. to learn of the intention of I CAN, the children’s communication charity, in partnership with the 15 A strategy for system change Given the vital importance of In the years following the Royal College of Speech and communication to a child’s life report’s publication, a number chances, the chance to make a of our recommendations were Language Therapists (RCSLT), 19 An accessible and equitable service for all families difference was a privilege I was implemented, including: to undertake an independent honoured to accept. review of provision for children the creation of the and young people with SLCN 24 Support that makes an impact During the review we identified Communication Council; in 2018. five key themes – issues that the post of Communication 30 Early identification and intervention are essential needed to be addressed for Champion, which was filled The 10th anniversary of the real change and improvement by Jean Gross CBE; original report provides an ideal to happen: opportunity to look again at a National Year of Speech, 38 Conclusion Language and Communication provision for children and young Communication is crucial people with communication in 2011; and Early identification and difficulties, and ensure their needs 40 Recommendations in full intervention are essential the Better Communication are placed at the heart of local and Research Programme, A continuum of services national policy, where they belong. 46 References a programme of research to designed around the family enhance the evidence base It is my hope that this report will H O W TO R E A D T H I S R E P O RT is needed and inform delivery of better act as a call to action to all those Joint working is critical outcomes for children and A summary of recommendations are involved in supporting children included at the end of each chapter. The current system is young people with SLCN. and young people, to come characterised by high together and do what is needed Recommendations in full can be variability and a lack of equity There have also been many to make a difference to the lives found at the end of the report. important developments since The final report which we of those for whom communication the publication of the report that The Bercow: Ten Years On website published in 2008, focused on is more difficult. have significantly impacted on contains further calls to action practical proposals to improve services for children and young RT HON. JOHN BERCOW MP and practical steps that everyone services, together with measures people with SLCN, such as changes can take. which sought to embed speech, within the commissioning and The full report can be downloaded language and communication provider landscape, and the from www.bercow10yearson.com in wider policy frameworks for Children and Families Act, which the future. ushered in the biggest education
4 BERCOW: TEN YEARS ON INTRODUCTION Time for change What this report shows prioritised. This is the case in decisions Introduction about planning, commissioning and A lot has changed in the 10 years Speech, language and communication funding services, and there is often no since The Bercow Review of are critical to children and young joined-up approach across education Services for Children and Young people’s development, but a lack and health. So, service models are People with Speech, Language of awareness and priority has led to far less effective and the workforce and Communication Needs in 2008. national and local strategies that do is not sufficiently equipped to have Some of this change has been for not have the speech and language of the necessary positive impact on the better, but sadly far from all of it. children and young people at their children and young people. Their heart. Nor do they recognise the needs are too frequently unidentified The most fundamental life skill for children is Without a shift in approach, children numbers of children and young people and unsupported. the ability to communicate. It directly impacts and young people will continue to with SLCN. There is a lack of clear leave school without basic language But it can be different, and we will show on their ability to learn, to develop friendships and literacy skills. We will continue leadership and limited understanding of the need to work across and between outstanding examples of what can be and on their life chances. As a nation, we have having disproportionate numbers achieved, as well as recommendations the health and education systems. yet to grasp the significance of this and as of young people with SLCN who are which seek to secure this good practice a result, hundreds of thousands of children not in education, employment or As a result, the SLCN of children for all. training, who need mental health and young people are not sufficiently and their families are suffering needlessly. support or who are in contact within This report aims to help change this situation. the youth justice system. Children and young people with lifelong More than 1.4 million children and young communication needs will not get the support and adjustments they Key changes since 2008 people in the UK have speech, language and communication needs (SLCN). Language require. As a result, children and POSITIVE young people with the potential disorder alone is one of the most common More evidence about to do well will struggle to make SLCN through the disorders of childhood,1 affecting nearly 10%2 an active contribution to society Better Communication of children and young people everywhere as adults. Research Programme. throughout their lives. In areas of social We cannot afford, socially or THE CHANGING Consistent government economically, to continue with LANDSCAPE disadvantage this number can rise to 50%3,4 funding for workforce the status quo. development in SLCN. Reforms and of all children and young people, including reorganisation NEGATIVE those with delayed language as well as national service A of the NHS. Austerity and resulting specification for children with identified SLCN. Alternative and Academies and free cuts to services. Augmentative schools – increased Loss of senior and Poor understanding of and insufficient Communication (AAC). autonomy for schools. specialist speech and resourcing for SLCN mean too many children I ncreased recognition eforms to support for R language therapy posts. and young people receive inadequate, of SLCN in the children with special Removal of speaking justice system. education needs and and listening from the ineffective and inequitable support, impacting MORE THAN 1.4M disabilities (SEND). National Curriculum. Language and on their educational outcomes, their communication as one Significant changes in Removal of a judgement employability and their mental health. of the three prime areas the use of technology. CHILDREN of the Early Years of communication from the Ofsted framework. with speech, language and Foundation Stage We must improve the outcomes No assessment in curriculum. for these children and young people. communication needs (SLCN) spoken language after age five within the curriculum.
6 BERCOW: TEN YEARS ON THE CHILDREN AND YOUNG PEOPLE The children and young people More than 10% of children and young people have long-term speech, language The impact and communication needs (SLCN) which We have more evidence than ever before create barriers to communication or learning demonstrating the direct impact of SLCN in everyday life: on children’s life chances. ∙ 7.6% have developmental E D U C AT I O N A L AT TA I N M E N T language disorder.5 Just 26% of young children with SLCN made ∙ 2 .3% have language disorders associated expected academic progress in the Early with another condition such as autism Years Foundation Stage9 compared with or hearing impairment.6 69% of all children. ∙ SLCN also include conditions such as speech Just 15% of pupils with identified SLCN difficulties, stammering and many others. achieved the expected standard in reading, Children living in areas of social disadvantage writing and mathematics at the end of their are at much higher risk, with around primary school years10 compared with 61% 50% of children starting school with delayed of all pupils. language and other identified SLCN.7,8 Only 20.3% of pupils with SLCN gained grade 4/C or above in English and maths at GCSE, compared with 63.9% of all pupils.11 SOCIAL, EMOTIONAL A N D M E N TA L H E A LT H 81% of children with emotional and behavioural disorders have unidentified language difficulties.12 Young people referred to mental health Developmental services are three times more likely to language disorder: have SLCN than those who have not A condition been referred.13 where children have problems LIFE CHANCES understanding Children with poor vocabulary skills are and/or using spoken twice as likely to be unemployed when language. There is they reach adulthood.14 no obvious reason for these difficulties 60% of young offenders have low – no hearing problem language skills.15 or physical disability explains them.
8 BERCOW: TEN YEARS ON BACKGROUND Background Bercow: Ten Years On We consulted with more than 2,500 people follows in the footsteps of between January and November 2017 its predecessor The Bercow Report16, investigating the Surveys and Submissions Oral evidence sessions services and experiences of Main survey of The impact of SLCN: what practitioners and others happens if needs are not children and young people identified or supported Parents and carers of with speech, language and children with SLCN Support for children communication needs Children and young people aged 0-2 (SLCN) and their families. Commissioners – health, Commissioning of support local authority and schools for children and young This extensive review has heard people with SLCN Employers from more than 2,500 people Low-incidence, high-need 75 written evidence The resulting report presents a Our analysis of the evidence across England; more than conditions: deafness, submissions picture of the current landscape collected identified five key themes contributed to the original Bercow selective mutism, cleft lip for children and young people with which provide the structure for review. We collected views from and palate, brain injury SLCN with a focus on solutions, this report: parents and carers, children and and stammering and presents examples of effective practitioners. We also spoke to The links between Communication is crucial, practice. Further information employers, commissioners and language and social yet awareness of children is available on the Bercow: other local leaders. Whilst informed disadvantage and young people’s speech, Ten Years On website: by a rich body of recent academic language and communication www.bercow10yearson.com studies and reports, the focus of is not sufficient. the review is on the new evidence Digging deeper The report and website include: Systemic change is needed from the front line; from local – speech, language and practice and from the experiences recommendations to communication must form of children and their families. Focus groups with children and young people government and local leaders a core part of national and In-depth review in three local authority areas to ensure change is sustainable local plans. and embedded; Review of relevant research and policy reports Services must be equitable. bold calls to action for those Currently there is far too much involved in supporting children variation in the support children and young people; and and young people receive for signposts to helpful information their SLCN. The review benefited from a for practitioners, children and decision-making panel of key Support must make a difference young people, and parents and influencers, chaired by Jean Gross and be based on the evidence carers to respond to the calls CBE, guiding and supporting the of what works. to action. process. It was further supported Children and young people’s by an advisory group of experts: needs must be identified practitioners, researchers and early and then supported decision-makers. appropriately.
10 BERCOW: TEN YEARS ON COMMUNICATION IS CRUCIAL them when they need it, and parents and carers and mental health problems, and involvement regularly encounter professionals whom they in the justice system. Communication felt did not know enough to effectively support them and their children. T H E S O C I A L I M PA C T Readily available information is essential but Lack of awareness is an issue not just for is crucial parents and carers reported low priority given individual families, but for society as a whole. to speech, language and communication in Half of children and young people living in children’s services. There is no clear message deprived areas may have SLCN.17,18 Children and for parents and carers about speech, language young people are at high risk, with a stark social and communication in the way that there is for gradient in the quality of language they hear,19 a good diet or exercise. Yet spoken language is impacting on educational outcomes20 and vital for our children’s cognitive development health inequalities. In 2010 The Marmot Review Speech, language and communication What needs to happen and mental health, just as diet and exercise are reported that children from disadvantaged skills are crucial to every person: for brain We need everyone to understand speech, crucial for physical health. backgrounds were more likely to begin primary language and communication needs (SLCN) school with lower language and literacy skills development in the early years and our Where information sharing is working well than their peers.21 better. Think of the difference that wider public attachment to others, for expressing ourselves understanding of autism, mental health and services are using innovative methods such as social media, video clips and other technology More recently, reports have found and understanding others, for thinking and dementia have made in those areas. Only presenting information to parents and carers a link between: learning, for social interaction and emotional through having greater awareness of SLCN, and in accessible ways. social disadvantage and school their impact on children and young people’s life wellbeing, in school, as part of society and chances, will we raise the profile of SLCN and T H E I N D I V I D U A L I M PA C T readiness22; and in the workplace. Yet despite their centrality, speech, language and communication ensure these needs are prioritised. Our consultation with children and young development and health.23 the importance of these skills continues The evidence people highlighted the crucial nature of spoken to be widely underestimated. language, with children commenting that their Our evidence shows a lack of awareness difficulties made everything more challenging, and information about speech, language both inside and outside of school. and communication in general and more specifically about SLCN. There is both a social In school, the sheer amount of language can be Our research has shown and economic impact of not providing support overwhelming, especially if teaching staff are very little change in to children with these needs. unclear on how best to support language parents and carers’ in the classroom. views in the last 10 years, L A C K O F A W A R E N E SS The children and young people we talked to with 78% reporting A N D I N F O R M AT I O N information was either also recognise the impact of SLCN on their own Since the Bercow review in 2008 there has been not easily available or wellbeing and how a lack of understanding in some progress in awareness of the crucial role not available at all; in the adults around them can make the situation of speech, language and communication. But 2008 the figure was 77%. much worse. the momentum created by the initial review has not been maintained. There is still insufficient Children with SLCN told us: public awareness and understanding among “It makes everything hard” i decision-makers and professionals about Language is crucial: the importance of speech, language and “Talk too many words and my head can’t The most important communication, particularly beyond the do it really like BOOM!” factor in reaching the early years of life. “It isn’t good when they shout if we don’t expected levels in English understand, 'cause people might get “With greater public awareness comes and maths at age 11 greater pressure on funders to provide a little bit sad” was children’s language skills at age five; more an appropriate level of service for this Information from our oral evidence sessions important than poverty population” Professional Association described a situation of compounding risks: or parental education. Save the Children (2016) Although there is more high‑quality information children who enter school with SLCN are at higher risk of literacy difficulties, which in “It makes everything hard” available for practitioners and parents and The Lost Boys carers, our surveys told us it is still not reaching turn increases the likelihood of behavioural
12 BERCOW: TEN YEARS ON COMMUNICATION IS CRUCIAL “Poor communication and ineffective Now is the time to ensure plans such acquisition of early language are as apprenticeships and vocational skills associated with behavioural problems, programmes take account of the need to in turn linked to worse outcomes, support young people’s speech, language including worse health, throughout life” and communication. UCL Institute of Health Equity24 T H E D I F F E R E N C E T H AT C A N “Children’s language development should BE MADE be viewed as a public health wellbeing We heard examples of excellent local initiatives indicator, rather than just as an individual recognising the crucial role of communication or ‘clinical’ concern. Child language is and prioritising language to tackle social similar to obesity and other risk factors disadvantage in the early years. (such as mental health and diet) in terms of its impact on children’s overall wellbeing” Early Intervention Foundation25 The Department for Education’s social mobility action plan26 recognises a gap between the early language skills of children from disadvantaged backgrounds and those from more advantaged areas. Given the Government’s vision for a country in which it is your talent and hard work that matter, rather than where you were born or who your family are,27 we need greater recognition of the importance of speech, language and communication to the social mobility agenda across Government. T H E E CO N O M I C I M PA C T The lack of awareness of the importance of spoken language also has an economic impact. Communication skills are highly regarded in GOOD PRACTICE EXAMPLE “It isn’t good when the workplace, but employers experience Warwickshire Time to Talk challenges in recruiting staff with adequate prioritises speech, language and skills across all levels, from entry level communication. They have expanded they shout if we through to graduate entrants.28 and contracted as funding changed, Communication difficulties at all levels in the developing traded services and thinking creatively. They collect data don’t understand, workplace can impact on problem solving, effective practice and decision-making.29 each year, evidencing impact. They Loss of production through the lack of soft train champions, some with level 3 qualifications – 98% of settings 'cause people might skills, including communication, has been estimated at £8.4 billion a year by 2020.30 now have a champion. They spread Raising awareness of and improving the speech, the word locally with leaflets, multi media campaigns, films and growing get a little bit sad” language and communication skills of children and young people needs to be recognised social media networks. Their as a solution to increasing employability promotional week is in its fifth year. and productivity across Government.
14 BERCOW: TEN YEARS ON COMMUNICATION IS CRUCIAL A STRATEGY FOR SYSTEM CHANGE A strategy for system change Speech, language and communication are Our evidence clearly demonstrates the lack of a strategic approach foundation life skills. Children’s communication to supporting children with SLCN: “Quality interaction In this chapter we have highlighted the is everyone’s business. However, speech, language 95% of respondents to our survey impact that lack of awareness of children and communication needs (SLCN) rarely feature in felt that central Government’s at every point makes and young people’s communication can have. national policies. The result is an absence of integrated contribution to raising standards the difference.” Our recommendations will raise awareness system‑wide approaches to supporting children and and improving outcomes for children and young people with SPEECH AND LANGUAGE THERAPIST and put speech, language and communication young people with SLCN, both locally and nationally. SLCN is either not clear or in need of strengthening. centre stage in public policy. Without a clear and unified The evidence It doesn't have to be this way. Recommendations message from the highest levels In our oral evidence session we in both education and health, Our evidence shows a lack heard about a national strategic 1.1 Public Health England should develop clear messages support will continue to be of leadership and a lack of a approach to addressing speech, and information for parents and carers regarding speech, inconsistent and insufficient. cohesive approach for children language and communication language and communication and promote these Many children and young people and young people at a national development in Scotland. directly to public services. will miss out on the support they level, impacting on the priority need, and the impact will be costly, given to SLCN at a local level. In In response to an amendment 1.2 The Department for Education should strengthen the places with strong and committed debate in the Scottish Parliament both to the economy and society. place of communication and language in its strategy local leaders, who drive shared in February 2016, Scottish to improve social mobility. What needs responsibility and buy in, children and young people with SLCN Government committed to a to happen 1.3 Local authorities should ensure that evidence from this Communication Summit held GOOD PRACTICE EXAMPLE are better supported. We need jointly with the RCSLT. At the event, report is included in their contribution to tackling health We need a national strategy to ensure this good practice is cross sector leaders gathered to Language is used to tackle social inequalities: in their published Joint Health & Wellbeing for children and young people replicated nationwide. discuss the importance of children disadvantage in children’s centres Strategy and in their contribution to Integrated Care in the Kirkby area of Knowsley, an Systems. In their inspections, regulators should check to ensure their needs are and young people's speech, prioritised across government; N AT I O N A L S T R AT E G Y language and communication area of high need. They focus on to see that this evidence is reflected. A N D P O L I CY their community through the local within that strategy, we need the development and agree how to children’s centre, with prevention, 1.4 The Department for Education should ensure that importance of communication to Providing early support to children work together to improve this. As communication skills, specifically those identified as be recognised and consequently and young people can reduce a result of the summit, Scotland’s early identification and appropriate needed for the workplace, are appropriately recognised integrated into all plans for the likelihood of severe problems Deputy First Minister and Cabinet support to get children ready for in the criteria for the Functional Skills qualifications. children and young people. later in life, which could cost Secretary for Education and school. Workforce development an estimated £16.6bn a year.31 Skills requested an Action Plan and production along with parents 1.5 The Education and Skills Funding Agency should revise At a local level, we need strong Yet children are not sufficiently for systemic change and growth and carers are key, alongside their apprenticeship funding rules for training providers leadership to ensure that speech, prioritised by government, as of Scotland’s speech, language working with charities such as I CAN. and employers, to include training for communication language and communication is shown by the lack of a cross- and communication assets. Following the introduction of the skills development in the list of items that can be funded. integral to local plans and that governmental strategy for new pathway, 72% of children now integrated systems are put in place See page 40 for the recommendations in full. Further calls children and young people. meet expectations. to support children and young to action and practical steps that everyone can take can be found at www.bercow10yearson.com people with SLCN.
16 BERCOW: TEN YEARS ON A STRATEGY FOR SYSTEM CHANGE The absence of children and young people is notable in health policy: the Royal College of Paediatrics and Child Health (RCPCH) have reported that child health is suffering due to a disjointed approach from central Government in England.32 53% of survey respondents did not feel that the way children learn in schools supports Where children are included in health policies, they their spoken language development. rarely mention SLCN, more frequently focusing on issues such as obesity33 and tooth decay.34 While the government’s commitment to prioritising children Children and young people with SLCN who took part and young people’s mental health is welcomed, in our focus groups commented on the particular we are concerned that speech, language and challenges of their educational experiences, including communication is not recognised as a risk factor.35,36 working in silence and the focus on writing. Beyond the early years, education policy puts very “Working in silence, that is bad. Because the little emphasis on spoken language. Since the teacher is telling us to be quick when we are publication of the original Bercow Review in 2008, trying to ask questions. It doesn’t help at all” GOOD PRACTICE EXAMPLE there is no longer a distinct ‘speaking and listening’ Child with SLCN Stoke Speaks Out is a multi-agency strand to the National Curriculum in schools, and initiative to tackle the high incidence spoken language has been removed from the grading “[What I find difficult is]... lots of writing, because of delayed language in Stoke-on-Trent. of GCSEs in English and English language, sending a it’s really boring and really, really tricky” With strong local leadership, this city‑wide signal to schools that spoken language is not a priority. Child with SLCN strategy offered training and support for all practitioners working with children under seven and their families. The initiative resulted in huge improvements T H E N E E D F O R A N I N T E G R AT E D A P P R O A C H T H E I M P O R TA N C E O F L E A D E R S H I P in children’s early language, with an 18% reduction in the number of children Unclear lines of responsibility and variation in the Of the 44 sustainability and transformation plans In our review we heard repeatedly that restructuring of with delayed language at school entry. extent to which speech, language and communication (STPs) published in 2016, only three mention children’s NHS speech and language therapy services over recent A return‑on-investment analysis of Stoke is included in local plans are concerning. Our survey speech, language and communication. years has resulted in the downgrading or removal of Speaks Out, conducted by the New found that 42% of respondents feel it is not clear who senior posts, meaning there are fewer speech and Economics Foundation, has demonstrated has overall responsibility for speech, language and Parents, carers and practitioners alike are too often language therapists working at a strategic level with frustrated by the inefficiencies caused by the lack the contribution that the programme communication in their area. the ability to influence decision-makers. The same is makes to improved school readiness of an integrated system. true for educational leadership for children’s SLCN. We for children at age five, and improved Strongly heard in our evidence of many local authority advisory educational attainment and prevention Strongly “I was leading on any health issue and was Agree Disagree services being reduced or disbanded. 7% spending half my day trying to sort things out of offending amongst young people in 10% with people saying, this isn’t mine, we’re not “ ...[we] have seen a reduction in senior posts and the long-term. responsible for that... that made us think, so specialist knowledge of speech, language we’ve just got to do this in a more joined-up way. and communication/SLCN has gone, both in And it saves time” Head of Commissioning education and speech and language therapy In their first year of local area SEND inspections, It is clear who services” Professional Association Ofsted and CQC also found that, “in the most effective Agree has overall Disagree Many people told us that the joint Ofsted and CQC 48 35 % responsibility % local area special educational needs and disabilities local areas, strong strategic leadership had led Yet a strong theme emerging from the review has been for speech, (SEND) inspections have the potential to be a positive to established joint working between education, language and the importance of local leadership. In our evidence driver towards a more integrated approach. Of the first health and care services... [In areas of significant communication the areas with more strategic, well-developed and 16 areas where inspectors had significant concerns concern] leaders were unable to secure much needed impactful support were led by strong local leaders about the local area, 11 of the inspection reports joint working, leading to poor collaboration and who recognise the importance of speech, language identify strategic planning, joint commissioning commissioning between professionals from education, and communication. or leadership as areas of significant weakness. health and care.”37
18 BERCOW: TEN YEARS ON A STRATEGY FOR SYSTEM CHANGE AN ACCESSIBLE AND EQUITABLE SERVICE An accessible and equitable service for all families In this chapter we have shown that children and young people with SLCN rarely feature in either national or local plans. Our recommendations call for a Our evidence shows a system of fractured national strategy for children and young THE COMMISSIONING LANDSCAPE services and high levels of inequity for people, with a recognition of speech, Since 2008 the commissioning landscape children and young people. The postcode language and communication at its has changed rapidly, becoming more and lottery described by families 10 years ago heart. The strategy must be underpinned more complex. The Health and Social Care Act (2012) established clinical remains: the support you get depends on by strong leadership in order to deliver commissioning groups (CCGs) as the where you live or where you go to school. the change that is needed. primary commissioners of the majority of health services, able to commission from a The variation in availability of services to support multiplicity of providers. The responsibility Recommendations children and young people with speech, language and for commissioning specialist services sits communication needs (SLCN) is unacceptable. With N AT I O N A L ST R AT E G Y A N D P O L I CY T H E I M P O RTA N C E O F L E A D E R S H I P with NHS England, while public health decisions about children made in local areas, and no moved to the remit of local authorities. clear steer from government, there is wide variability 2.1 The Department for Education and the 2.5 Government should establish a system leadership Meanwhile, education funding has across England. Department of Health should use the findings group to drive forward the recommendations of increasingly been devolved to schools, who and recommendations of this review as the driver the report, and the tangible actions arising. Where there has been a push from government is have also now entered the playing field to develop a new cross-governmental strategy towards outcomes-based joint commissioning. 2.6 Government should ensure that existing and future as commissioners of support for children for children, including a joint statement about However this is still the exception rather than the rule. leadership boards include parents and carers and with SLCN. the importance of children’s speech, language and communication. an expert in speech, language and communication Health and Wellbeing Boards were intended We have found examples of excellent joint and SLCN to inform strategic decisions. to bring all partners together to improve commissioning, but more commonly we have heard 2.2 Ofsted should review the extent to which the the health and wellbeing of their local about services that are commissioned in a way that teaching and monitoring of spoken language is 2.7 School leaders should ensure that the importance of spoken language is reflected in population, with the potential to play a key cannot meet local needs, driven by unhelpful targets. taken into account in its framework for inspection role in joint commissioning. The Children Commissioners themselves are too often forced to when next revised in 2019. their schools’ special educational needs (SEN) information report. and Families Act (2014) also required local focus on the short term, rather than planning based 2.3 Government should commission Ofsted and authorities and partners to make “joint on longer term impacts and costs. the CQC to continue their inspections of local 2.8 NHS England, NHS Improvement, Public Health commissioning arrangements” to provide areas and SEND beyond the current initial five England and Health Education England should for children with special education needs year cycle. make use of the evidence from this review and disabilities (SEND). regarding the impact of effective leadership on 2.4 The Department for Education and the improving service commissioning and provision, Department of Health should strengthen the to demonstrably inform their work developing place of speech, language and communication leadership in the allied health professions. in its proposals to transform children and young See page 40 for the recommendations in full. Further calls people’s mental health provision. to action and practical steps that everyone can take can be found at www.bercow10yearson.com
20 BERCOW: TEN YEARS ON AN ACCESSIBLE AND EQUITABLE SERVICE What needs to happen A number of factors compound this situation. Reduced levels of public funding mean that commissioners and Within a local area, we need systems in place to leaders of children’s services have limited resources, ensure support is planned and funded so that it reduced capacity, and competition for limited funds. meets children and young people’s SLCN regardless of where they live. Local areas and schools should be “Money and resources will always be an issue and aware of how many children and young people have never more so perhaps than now. Inevitably this SLCN in their community, and use this knowledge to puts a strain on relationship between service commission support accordingly. To do this we need providers, schools and families” Assistant commissioners to understand SLCN. Director of Children’s Services Commissioning should be based on what makes a “...I was given the devastating news just before difference for children and young people, both in the Easter that speech and language therapy short and long-term. We need more collaboration in our area has been outsourced and that they and for agencies across local areas to jointly take are no longer funding children in junior school responsibility for ensuring support is available for and above!” Parent children and young people with SLCN, whatever their age or level of need. The formation of integrated care systems, while controversial, may enable closer collaboration The evidence between NHS organisations, local authorities and Our evidence shows an unacceptable level of variation others, who have the potential to address these issues. We heard from commissioners that one of the biggest “True needs-led joint commissioning across in the support available to children and young people barriers is that there is no widely accepted definition disciplines would allow the holistic needs The increase in the number of schools commissioning with SLCN, as a result of commissioning which is not of what joint commissioning means, and for schools in of children and families to be addressed speech and language support presents both based on an analysis of local need. particular commissioning is a relatively new concept. in the most efficient and effective way” opportunities and challenges. Some schools are forming networks to share resources; for example Our evidence also found that many commissioners do Speech and language therapy service CO M M I SS I O N I N G a partnership made up of 10 schools in Brighton, not have sufficient understanding of speech, language Repeatedly joint commissioning was highlighted as most of whom have a speech and language and communication, particularly for low-incidence, one of the most promising solutions to providing champion. The network provides a safe place for high-need conditions where they are unlikely to Excellent Good equitable and accessible support. Where it is happening, leadership and knowledge are key. schools to discuss how they can use their funds have detailed knowledge: conditions like selective 4 % 25% effectively, also providing a vehicle for sharing mutism, hearing impairment and stammering. Given The commissioning landscape is complex, and disseminating ideas. their competing priorities, increasing commissioners’ characterised by a huge variety of commissioners understanding is crucial, with strong leaders in local However, it can also lead to variation in the support and providers, with a lack of clarity about who is services who can work with and help to inform their that is available so that this depends not just on Nearly 40% of responsible for providing what. Our evidence provided commissioning decisions. participants felt where you live, but where you go to school. confirmation that on-the-ground joint commissioning commissioners' Commissioning should be based on a robust analysis understanding of is not easy. “Commissioning by schools varies very much from of the needs of the local population in order to ensure speech, language head to head and their priorities – some heads the right support is available. Yet our evidence shows and communication Very often joint commissioning arrangements are required significant see very little value of speech, language and that in many areas this is just not happening. Local patchy; in an RCSLT survey, speech and language improvement therapists reported varied and inconsistent levels communication and feel other curricular areas data systems are not joined up across education, of joint commissioning.38 This issue is not limited far more important. Thus, very big discrepancies health and local authorities making it very difficult between similar schools...” Professional In need of to speech and language therapy.39 to collate an accurate picture of the populations’ significant Association needs.40 For example, information collected on improvement Satisfactory “Current commissioning and funding arrangements are not conducive to joint children at the two-and-a-half-year health visitor check is not shared, and is in a different format and 38 % 33% working and collaboration. This needs system to the data early years practitioners collect in to be commissioner-led” Practitioner nurseries and schools.
22 BERCOW: TEN YEARS ON AN ACCESSIBLE AND EQUITABLE SERVICE A CC E SS I B I L I T Y O F S P E C I A L I ST There are particular challenges in accessing support SPEECH AND LANGUAGE SUPPORT for older children and young people – just 3% of G O O D P RA CT I C E G O O D P RA C T I C E The result of this fragmented commissioning is people who responded to our survey felt resources EXAMPLE EXAMPLE that many parents and carers find services such as for children and young people’s speech, language Worcestershire promotes One Service, One Solution. Based on Greater Manchester speech and language therapy are difficult to access.41 and communication are used to provide support a thorough needs analysis, the Local Authority and NHS jointly Heath and Social Too many children are not getting the support they for young people aged 16-25. commission core speech and language therapy services using Care Partnership is need. Parents and carers shared stories of being Overall, our review paints a picture of specialist The Balanced SystemTM framework with a clearly defined role part of the first wave let down by the system – experiencing insufficient services that are unable to meet the needs of children for speech and language therapists at each level. Schools and of integrated care support, irregular appointments and support being and young people with SLCN and their families. Many settings, each with a named speech and language therapist, can systems. As part of indiscriminately withdrawn. For many, the support professionals are equally frustrated about being put then commission additional activities as top ups. Evidence-based their five year plan they needed was not available. in the untenable position of being asked to practice programmes are well embedded into an SLCN pathway, meaning to improve health in a way that is not in the best interests of children there are clear routes for early identification, information and social care, they The Local Area SEND inspections: one year on report and young people. and resources. have committed to from Ofsted and the Care Quality Commission found delivering integrated that access to therapy services was weak in half of the National datasets exist; we know enough about As a result: commissioning and local areas inspected, making it worse than access to prevalence to calculate local need. We now have Children at risk of SLCN in targeted early years provision across mental health services, which was poor in more than high-quality guidance, tools and resources to support settings have decreased on average by 20%. all early years a third of local areas. commissioners to use the available data so they can services, including The evidence we heard through our review described commission in an informed way. We need to ensure Children are identified earlier: 84% of health visitor a focus on speech, a situation that is unacceptable. this reaches the people responsible for planning referrals are now made under the age of three, communication and funding support, and to spread the good compared to 35% in 2010. and language. Many parents and carers shared negative experiences practice that already exists. for themselves and their child, describing services as poor, appalling or awful, dreadful and frustrating. Children and young people also told us that the G O O D P RA CT I C E E XA M P L E In this chapter we have outlined the and the Care Quality Commission should train support they needed was not available. all inspectors to challenge local areas. Commissioning for children needing factors which contribute to the high “…after this experience I do not wish any parent Augmentative and Alternative variability of support across areas in 3.4 Ofsted should consider children and young people’s to go through this EVER. No child deserves such Communication (AAC) – Liverpool SLCN in its future research on SEND, through England. We need to ensure that planning looking at provision and joint commissioning treatment” Parent Liverpool City Council and the NHS and funding services for children’s SLCN of specialist therapies, and support. “I should have speech therapy, but it never Liverpool Clinical Commissioning Group collaborate on commissioning for children is based on knowledge of what is needed 3.5 NHS England and the Department for Education happens” Child with SLCN with AAC needs (for example children in an area, and that accountability should provide a clear definition of joint “I am in special college in my special school I got requiring communication aids). They measures are in place to make sure commissioning and fund a programme of training no help at all only when went to independent work together at the interface between for local joint commissioners on commissioning specialised commissioning, through this happens everywhere. for SLCN. special college I got help it cost lot of money to go tribunal to get it” Young person with SLCN regional centres and local NHS England Recommendations 3.6 Sustainability and Transformation Partnerships support, alongside a special resource and Integrated Care Systems will provide joined- in a primary school. 3.1 Public Health England should use its Fingertips up commissioning between local government The joint commissioning approach helps tool to provide local areas with data on estimated and the NHS. clarify services for children with AAC needs incidence of SLCN in their local population and the known prevalence of SLCN (based on data from The provision of integrated commissioning and takes the higher cost challenges away two-year review). for SLCN should be: from the local authority. Working together on commissioning has meant more clarity included in these arrangements as one 3.2 Public Health England should work with the for commissioners and service providers of the tests in any accreditation regime; Department for Education to investigate the as well as for children and their families. supported through any national development Just 15% Outcomes for children are positive and are shared with a steering group, who addition of data from the Early Years Foundation Stage Profile at age five. work; and of survey respondents felt speech prioritised as a means for reducing are responsible for the governance, 3.3 Local area SEND reviews should take account of health inequalities. and language therapy was available and funding is administered through the the evidence from this review for effective joint See page 40 for the recommendations in full. Further calls as required. primary school, which eases the process. commissioning of support for SLCN, and Ofsted to action and practical steps that everyone can take can be found at www.bercow10yearson.com
24 BERCOW: TEN YEARS ON S U P P O RT T H AT M A K E S A N I M PACT Support that makes an impact Investing in support that does not work is a waste database for interventions to support SLCN, endorsed by the of public resources and a risk to children’s life chances. Royal College of Speech and We need to make sure that services are designed around Language Therapists (RCSLT). what is going to have the greatest impact for children There is an expansion of evidence both in terms of academic and young people. research and in organisations producing evidenced papers to Currently, this does not happen. progress. We need effective and support the issue. We also have When resources are stretched, impactful models of support; increasing evidence on the cost service design is often driven these should be shared as a effectiveness of interventions.44 by factors other than evidence strong business case with local However, the focus is largely about what works. Until we take commissioners, so they know what on single interventions or a more evidence-based approach ‘good’ looks like. programmes. One area where with longer term thinking, this The evidence evidence is still required is around avoidable situation will persist. effective service models, including Until we plan support using Although we know much more within schools. available evidence based on about what works to make the the outcomes we want for our A raft of local and national data biggest impact for children and children; until we use data to across health and education has young people’s speech, language capture those outcomes, we are the potential to show the impact and communication, people told making decisions about what of intervention, but in our review us that this evidence is not being services are needed completely people questioned whether used to plan services. in the dark. the right data was collected. THE EVIDENCE BASE Particularly in health contexts, What needs Since the original Bercow review performance metrics often focus to happen in 2008, our evidence base has on processes and activities such as grown. The Better Communication reduced waiting times or number In a survey of NHS Systems need to be in place Research Programme42 provided of children seen. While possibly children’s speech and to ensure that decisions about rich data and strong evidence on desirable in themselves, these do language therapy support for speech, language and children and young people with not say anything about the impact services, the vast communication needs (SLCN) are SLCN in terms of prevalence,43 on children. In fact, beyond the majority said their made on the basis of what we impact and interventions. It also age of five, there is no statutory commissioner measured know will achieve the greatest worked with The Communication requirement to report on progress the performance of their impact. This means having the Trust to develop the What Works in children’s speech, language service on outputs – for right indicators for benchmarking and communication. example, the number of children seen – compared to around a third who were measured on the impact of their service.
26 BERCOW: TEN YEARS ON S U P P O RT T H AT M A K E S A N I M PACT A SS E SS I N G A N D R E P O RT I N G O N S P E E C H , L A N G U A G E A N D CO M M U N I C AT I O N EVIDENCE FROM OUR CHILDREN A N D YO U N G P E O P L E F O CU S G R O U P Age 0-2 2½ 4-5 4-5 5-6 6-7 10-11 15-16 Children and young people themselves are a critical evidence source. In our review, they Measure Health Integrated two From 2019: Early Years Phonics Key Key GCSE described the help that worked best for them, visitor year check Reception Foundation screening Stage 1 Stage 2 reinforcing the need for a knowledgeable checks baseline Stage Profile check tests tests as part of Ages and (EYFSP) and skilled workforce. We heard that children Stages Healthy Questionnaire and young people prefer support in school Child by people who know how to help. Programme (ASQ) Is speech, Not always Yes Yes Yes No No No No language and communication included? From age five Continual monitoring of progress in the curriculum No requirement to measure or report on spoken language There are now many practical tools People told us of examples where available to monitor progress in data and local evaluations were GOOD PRACTICE children’s spoken language, but used to make a case for services. EXAMPLE without an imperative to report on It can be done. A common progress, the risk is that these will thread running through many Nottinghamshire not be used. Our survey evidence of the best practice examples Children’s Services found just this. The drive in Ofsted was a determination to design employ an evaluation to look at impact is encouraging; approaches based on evidence; lead, skilled in research, however, it is critical that to capture impact and use it to who supports the whole inspectors ask questions about inform practice and maintain team to be involved progress in speech, language and improve services. in evaluation. They Many parents and carers also expressed strong and communication. have communicated views about what makes the greatest impact “We must collect consistent their evaluation of core for their children: data and be able to analyse programmes in one single ‘Year of Evaluation’ Speech and language therapists training and it in a way that makes that document. Evidence working closely with nursery and school staff moral business and evaluation case for the work that we’re is used to inform Communication supportive schools, In a sample of 42 Ofsted improvements to services “I wish I could doing.” Service Manager knowledgeable staff reports from primary and to communicate and secondary schools have more help These service evaluations can a strong case for Schools and early years settings giving advice across inner city, rural be a powerful influencing tool. continued investment. and information to parents areas and London boroughs, no school Classroom approaches to involve children: at school, so reported assessing or visual support, recasting adult language, giving demonstrations I can be like everyone else.” tracking progress in spoken language. Supporting communication at break time or between lessons CHILD WITH SLCN
28 BERCOW: TEN YEARS ON S U P P O RT T H AT M A K E S A N I M PACT T H E E V I D E N C E I S N OT U S E D In our evidence, we heard from services that were having to scale back, rationing support in ways that In this chapter, we have highlighted the Recommendations On the ground, many practitioners responding to our are not based on evidence of what works. We heard fact that, although we now have a rich MAKING SURE WE HAVE surveys saw data collected but not used. Likewise, knowledge of what works is not effectively made of specialist services that have been: bank of evidence, this is not used to THE RIGHT EVIDENCE use of. More than 17,000 people are registered on cut by approach, supporting only children with make the best, most impactful use of 4.1 The Education Endowment Foundation should the What Works database; more than half of school the highest need or reducing training; diminishing resources. We need to ensure make a 5-10 year commitment to work closely leaders make use of the Educational Endowment with language experts to design and fund a Foundation toolkit; many more speech and cut due to children not making progress in pre- that we mobilise the evidence we have so school-based SLCN evaluation programme, in determined episodes of care, taking no account language therapists have access to resources to of the complex nature of some children and young that it reaches commissioners and drives order to develop and evaluate innovative models, support evidence-based practice through the RCSLT. models of support. We need to ensure our and to mobilise the evidence already available. people’s SLCN; However, this is not enough, we are only scratching the surface. There are still many more professionals cut by age, with fewer services as children get older: children and young people benefit from MAKING SURE WE HAVE THE in one example, only very basic drop-in services what we know works. RIGHT INDICATORS AND METRICS who do not make use of these resources. Critically, were offered to children over the age of five. the evidence is not reaching people it needs to reach: 4.2 In their next review and update of inspector those responsible for commissioning. The research The situation is exacerbated by the loss of clinical training, Ofsted should ensure a focus on is absolutely clear,45 for specific interventions and specialism and professional leadership from the children’s SLCN. programmes, we know what works; yet this is not speech and language therapy profession. In an RCSLT 4.3 NHS England and commissioners should work being implemented. survey of NHS children’s speech and language therapy “Can we have something closely with providers and service users to identify services, more than two thirds said they had seen like NICE guidance for Greater awareness of effective and cost-effective what needs to be measured as an indicator of a reduction in the number of specialist speech commissioners and providers interventions needs to be provided for those success and to support providers in being able and language therapy roles within their service to follow around speech, responsible for commissioning and delivery to collect and benchmark this information. in the last 10 years. language and communication of services.” Voluntary organisation services, so it is absolutely ENSURING WE USE THE EVIDENCE TO People told us there needed to be a more consistent Parents and carers, as well, would like their view approach to the way that children with SLCN are clear how they should be PLAN SERVICES AND INFORM PRACTICE of what makes a difference to be taken into account. supported. Through our evidence we have identified delivered based on the 4.4 C QC and Ofsted, in their Local Area SEND the key features of impactful practice, but more evidence base and informed inspections, should judge whether support for professional opinion?” children and young people’s SLCN is commissioned 77 is needed. We need to draw these together into 29 % % of practitioners recognised guidance and ensure they are used S PE E C H AN D LAN G UAG E on the basis of outcomes not outputs. of parents said by commissioners. T H E RAPY S E RV IC E M A N AG E R satisfactory said satisfactory 4.5 NHS England should continue to support or better or better providers to collect data on the quality and the outcomes of intervention. “…Now children who 4.6 The Department of Health and the Department Although 77% of practitioners felt would have been seen in for Education should work together on guidance to support a consistent approach to the parental involvement in planning was the past are rejected as development of evidence-based integrated not high needs enough. satisfactory or better, care pathways for children and young people only 29% of parents with SLCN. felt the same They’re given strategies 4.7 The Department for Education should continue and discharged.” to fund the sharing of evidence through tools such as What Works. P R I M A RY S P E C I A L E D U C AT I O N A L See page 40 for the recommendations in full. Further calls N E E D S CO - O R D I N ATO R to action and practical steps that everyone can take can be found at www.bercow10yearson.com
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