AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
Autism Summer 2020 • Volume 17 • Number3 A PUBLICATION OF AUTISM ONTARIO MATTERS BigStock.com EDUCATION IN UNUSUAL TIMES
table OF CONTENTS What’s Inside SUMMER 2020 Board of Directors Susan Boehnke, Tiziana Bontempo, Dr. Barry Bruce, Janet Culliton (Past President/ancien pr ésidente), Julia Frei, Nancy Marchese, David Moloney (Secretary/secr étaire), Kim Moore (Vice President/vice-présidente), Susan Morris (President/ pr é sidente), Ken Rober tson (Treasurer/tr é sorier), Kim Seabrook Local Chapters To find contact information for your local Autism Ontario chapter, visit www.autismontario.com. Education in Unusual Times by Marg Spoelstra, Executive Director Education remains the number 1 concern of the five top issues raised through Autism Ontario’s 2018 survey. We’re focusing and acting on all five matters, but education has taken on a focus in ways we could never have imagined in these pandemic times. As I am writing, this topic has been galvanized into action by media, parents, educa- tors, students, unions and Ontario leaders as plans are being discussed and implemented and as anxieties mount about remaining safe while still learning in a variety of educational settings. This summer we made a decision to place our province-wide education parent survey on hold in favour of focusing on parents’ views and experiences about students on the autism Autismontario spectrum returning to school in fall 2020. About 2,700 parents/caregivers responded and 1179 King Street West, Suite 004 Toronto, ON M6K 3C5 about 2,400 of those were able to be incorporated into the results and recommendations. Phone: 416-246-9592 Although this information is on our website and we have been in direct communication with Fax: 416-246-9417 the Ministry of Education about the survey results, we wanted to share them with you as mail@autismontario.com the content of our late summer edition of Autism Matters. Providing the information in both English and French means that this is a larger publication than a typical Autism Matters, but OUR VISION: Best Life, Better World, Making Autism Matter! Our Mission: Creating a supportive and inclusive Ontario these are surely unusual times! for Autism By the time you receive this issue, Autism Ontario will also have released the COVID-19 Autism Matters© 2020 has been developed by Autism Ontario. Back-to-School Meeting Transition Checklist for Parents and Educators. We hope this type of The editing team of Autism Matters strives to include a range of views about ASD and its impact on people.These views may or resource will be of use to parents and educators in planning for the transition needs of indi- may not reflect the views of Autism Ontario. No commercial involvement of any kind has been solicited or accepted in the vidual students on the autism spectrum. The goal is finding ways to return to school safely, development of the content of Autism Matters. Advertising does with the least amount of disruption and, hopefully, the most success that leads to the best not influence editorial decisions or content. The appearance of advertising in Autism Matters is neither a guarantee nor an possible learning environment for all students. endorsement by Autism Ontario of the product, service, or company or the claims made for the product in such advertising. A special banner will indicate to readers of Autism Matters adver- tising features of the product, service, or company they provide. Prenez connaissance des résultats du sondage en français à la page 23. Autism Matters is published four times per year. Autism Matters welcomes contributions from its readers. Send your articles, reviews, letters, comments, announcements, etc., to Michael Cnudde, Autism Matters Editor. For advertising rates and inquiries contact GEPM Group Inc., info@gepmgroup.com. Notice of Annual General Meeting Autism Ontario is a registered charitable non-profit organization (#11924 8789 RR0001). The Autism Ontario Annual General Meeting which will be held virtually on Saturday, Editing, design and printing services, GEPM Group Inc. September 26 from 9 am to 10:30 am. www.gepmgroup.com
Readiness foR the safe and successful RetuRn to school Findings From the 2020 Autism ontArio educAtion survey Autism OntAriO AutismMATTERS SPRING 2020 3 1
MISSION VISION CREATING A SUPPORTIVE AND INCLUSIVE ONTARIO FOR AUTISM ENDS BEST LIFE, BETTER WORLD, MAKING AUTISM MATTER BECAUSE AUTISM ONTARIO EXISTS: Individuals and families in their communities are equitably and seamlessly supported across their life course. Individuals, families and communities have meaningful: Supports, information and connections. Information/knowledge is created, curated and mobilized that is: Trustworthy, timely and relevant. COLLABORATION We believe in the power of working side by side with individuals, families and communities to make informed choices about autism. ACCOUNTABILITY We hold ourselves and others responsible to achieve successful outcomes through high standards of integrity and fiscal responsibility. OUR RESPECT We value equity, diversity and inclusion, and we listen to understand. VALUES EVIDENCE INFORMED We use and create knowledge to guide our decisions and work. 4 Readiness for the Safe and Successful Return to School
Contents eXeCUtIVe sUMMARY 6 4 IntRoDUCtIon 9 7 Who PARtICIPAteD? 10 8 I. sPRIng CoVID-19 sChool ClosURe 12 10 Overall Satisfaction 10 12 Positive Aspects 12 10 Distressing or Stressful Aspects 13 11 Access and Support for Remote Learning 14 12 Child Engagement With Online Learning 15 13 Impact of the School Closure on Child Wellbeing 16 14 II. RetURn to sChool In the FAll 17 15 Education Planning Meetings 17 15 Reopening Scenarios 18 16 Concerns 19 17 Supporting a Successful Return to School 21 19 autism Autismontario OntAriO 53
eXeCUtIVe sUMMARY In its 2020 survey, Readiness for the Safe and Successful Return to School, Autism Ontario gathered information from parents or caregivers of Ontario children and youth on the autism spectrum in the education system regarding: • Their experiences of the COVID-19 school closure earlier this spring, and • Their concerns and perspectives for the return to school in the context of COVID-19 this fall. The base survey consisted of 27 questions (if completing for one child). Caregivers responded to a core set of 19 questions for each specific child with autism in the education system, and could repeat these questions for up to three children. The bilingual survey was available online for the week of July 6-13. 2,413 caregivers responded, completing questions for a total of 2,610 children—with 183 completing questions for a second child, and 22 completing questions for a third child. 4.1% of respondents indicated they speak French most often at home. Proportions of visible minority and Indigenous groups were close to those of the larger Ontario population. eXPeRIenCe oF the sPRIng CoVID-19 sChool ClosURe On average, 27% of caregivers were satisfied or very satisfied, while 45% were dissatisfied or very dissatisfied, overall with the educational experience during 45% the spring school closure. Caregivers’ level of satisfaction varied significantly, however, with school board setting—it tended to be higher for French Catholic Dissatisfied or and private school settings compared to English Catholic or public schools. very dissatisfied with the Most distressing or stressful to caregivers was the extra work caring for educational the child at home (46%), and lost social, developmental, and academic experience opportunities for the child (45%). Regarding major impacts of the spring during the spring school closure school closure on their child’s physical or mental wellbeing, 48% of caregivers described losses to their child’s social functioning, while 30% described set- Many cited backs to development, and 21% reported child mental health challenges. losses to their Most caregivers (86%) felt their child had sufficient access to technology to child’s social functioning and support online learning during the spring school closure. Northern Ontario set-backs to respondents, however, were over eight times as likely as Toronto Area development respondents to report that Internet bandwidth is a technological barrier to online learning in the spring. 46 Readiness reAdiness for fOr the Safe sAfe and And Successful successful Return return to tO School schOOl
60% A majority of caregivers (60%) felt their child was insufficiently engaged in online learning, Caregivers were less likely to report that children in earlier Felt their child grades (grade 4 and below) were sufficiently engaged than in higher grades, was insufficiently with the exception of grade 12. engaged in online learning PlAnnIng FoR the RetURn to sChool In the FAll When asked about what aspects of the spring school closure caregivers thought should be retained for the coming school year, 41% of caregivers felt nothing Attending school should be retained, while 23% favoured the flexibility of learning at home or daily is clearly at school. Caregivers suggested there is need for flexibility in participating the most popular in education-based meetings, with 29% indicating they should be offered first choice face-to-face. Reasons for preferring face-to-face meetings included better of reopening communication, privacy concerns, greater likelihood meetings will occur, greater scenarios adherence to regulations, or technology barriers to meeting online. Caregivers need Attending school daily was clearly the most popular first choice for reopening, flexibility in while preferences for alternative scenarios were variable. Attending school for participating in blocks of weeks was a less preferred option. Choices were influenced by caregivers education-based concerns for COVID-19 safety, the need for routine, consistency, and predictability meetings for their child with autism with respect to scheduling, and the need for all children in the household to have the same schedule to minimize family stress. Among possible concerns about their child’s physical return to school, FOR THE RETURN: negotiating social interactions was a high concern to the most caregivers. When Parent concerns asked about their greatest concern about the return to school, 46% mentioned include adherence their child’s adherence to COVID-19 safety rules, and 28% mentioned their to COVID 19 safety child managing the transition to school including mental health and social rules & managing situations. As reported by caregivers, 32% of children expressed anxiety about the transition the possibility of physically returning to school this September. Children’s back; and anxieties related to COVID-19-related risks or restrictions, or returning to Children’s school after the prolonged absence. anxieties are related to COVID The most commonly endorsed need for a successful transition back to school was risks, restrictions increased school-based supports, followed by an individualized transition plan. and returning Some caregivers mentioned the need to be clearly informed before the return after a long to school to be able to prepare and support their child. A number of parents absence highlighted how COVID-19 has exacerbated the already acute need to enhance internal supports, and allow external supports for learning, skill development, behaviour and mental health, as students transition back to school. autism Autismontario OntAriO 75
KeY tAKe-AWAYs AnD ReCoMMenDAtIons The closure » The spring school closure increased caregivers’ already high workloads and stress related to caring for their child and managing resulted in worrisome their education, and resulted in worrisome losses to social losses to their development and academic progress. children’s social development and academic » Technology-related barriers including limited Internet bandwidth are substantially higher in Northern Ontario—this needs to be progress accommodated in plans to support remote learning. Internet » There is a need for flexibility in how parents are allowed to participate in education-based meetings, to accommodate their preferences and bandwidth limitations needs for meeting face-to-face versus remotely. are highest in Northern Ontario » Addressing COVID-19 safety will be important for addressing both caregiver and child anxieties about returning to school. Parents and » Successful transitioning back to school for children with autism will require increased school-based supports and services, and children have anxieties about individualized transition plans for each child. how COVID-19 safety will be » Reopening scenarios should be designed with the unique and varying needs of families of children with autism in mind—such as the need addressed for all children in the household to have the same schedule to minimize family stress. Successful transitioning requires » For many children, plans will need to promote routine, consistency, and predictability with respect to scheduling. increased school- based supports » COVID-19 has exacerbated the already acute needs within the education system to enhance internal supports, and allow external & individualized transition plans supports into schools for learning, skill development, behaviour and for every child mental health. 8 Readiness for the Safe and Successful Return to School
IntRoDUCtIon Autism Ontario values the perspectives of all stakeholders in the autism community on a wide variety of issues. In our 2018 province-wide survey, completed by families and adults on the spectrum, education was identified as a top priority among five key areas requiring greater advocacy focus in Ontario. For this reason, Autism Ontario decided to gather the perspectives of caregivers on education-related matters in its 2020 province-wide survey. Surveys in future years will address other priority areas and the perspectives of the relevant groups. With the extraordinary changes brought by the COVID-19 pandemic, Autism Ontario adjusted the focus and length of what was originally planned as a more comprehensive survey on education. The purpose of this survey, entitled Readiness for the Safe and Successful Return to School was to gather the information from parents or caregivers of Ontario children and youth on the autism spectrum in the education system about two things: • Their experiences of the COVID-19 school closure earlier this spring, and • Their concerns and perspectives regarding the return to school in the context of COVID-19 this fall. Autism Ontario developed the survey with input from partners and stakeholders. The base survey was 27 questions long (if completing for one child). Caregivers were asked to respond to a core set of 19 questions with reference to one specific child in the education system. If they had multiple children on the spectrum, respondents had the option to complete these questions for up to three children. The survey was available online only, in English or French, for one week from July 6-13. Autism Ontario distributed it as an openly available link through the organization’s channels, and with the help of numerous partner organizations. Incomplete or invalid surveys were excluded prior to analysis. Since not all respondents completed all questions, the number of responses is provided for most questions. Acknowledgments Autism Ontario is grateful first and foremost to the caregivers who took the time to complete this survey. Autism Ontario also acknowledges those who contributed to survey development, data analysis, design, and writing of the report1: Cathy White, Stephen Gentles, Suzanne Murphy, Michael Cnudde, Jessica Bethel, Layne Verbeek, Vanessa Coens, Erin Nightingale, Ishmeet Kaur, Aqdas Malik, Laura Webb, Andrea Armstrong, Carrie White, Estefania Ramirez-Tello, Margaret Spoelstra. 1 Please cite as follows: Gentles SJ, White C, Murphy S, Cnudde M, Bethel J, Spoelstra M. Readiness for the safe and successful return to school: Findings from the 2020 Autism Ontario education survey [Report]. Toronto, ON: Autism Ontario; July, 2020. autism Autismontario OntAriO 97
Who PARtICIPAteD? Figure 1: Respondents by Region NORTH 7.3% 175 EASTERN 28.1% 677 CENTRAL 36.3% 877 TORONTO 14% WESTERN 338 11.3% 272 TOTAL RESPONSES: 2,413 UNREPORTED 3.1% (74) » 2,413 caregivers with Ontario children and youth on the autism spectrum in the education system responded to the survey, completing most or all questions. » Respondents completed questions for a total of 2,610 children—with 183 completing questions for a second child, and 22 completing questions for a third child. Of these, 64 children were in a private school setting. “More than 20,000 students identified with ASD are currently enrolled in Ontario’s publicly funded school system.”1 We estimate the respondents to this survey represent approximately 10% of the complete population. While this is a good reach for any survey of caregivers in Ontario’s autism community, some groups may have been under-represented. For example, only people with reliable Internet access would have completed this survey. » of4.1%Francophone of respondents indicated they speak French most often at home. This is close to the proportion Ontarians (4.7%). 2 » 18% are single caregivers. 1 https://news.ontario.ca/edu/en/2017/10/ontario-launching-pilot-program-to-support-students-with-autism-in-schools.htm 2 Profile of the Francophone population in Ontario – 2016, https://www.ontario.ca/page/profile-francophone-population-ontario- 2016#:~:text=Ontario%20has%20more%20than%20622,000,increase%20of%2010,915%20since%202011. 810 Readiness reAdiness for fOr the the Safe sAfe and And Successful successful Return return to tO School schOOl
Figure 2: Caregiver Gender Figure 3: Child Gender Prefer not to Say 1.3% Prefer not to Say 1.4%, Other 0.3% Other 0.4% Male 11.8% Female 22.7% Female 86.6% Male 75.5% Figure 4: Indigenous or Visible Minority Status: Respondents Southeast Asian 0.8% Prefer not to Say 6.1% West Asian 0.7%, Other 2.6% Korean 0.4% Japanese 0.2% Indigenous 2.3% Arab 2.5% Latin American 2.6% Chin ese 3.4% Filipino 3.4% White 64.9% .5% Black 3 an h Asi t Sou % 6.5 Figure 5: Indigenous or Visible Minority Status: All Ontario1 Latin American 1.5% Arab 1.6% West Asian 1.2% Filipino 2.4% Southeast Asian 1.0% Indigenous 2.7% Korean 0.7% Bl Japanese 0.2% ac k Ch 4.7 ine % se 5.7 % South Asian White 70.7% 8.7% 1 Census Profile, Ontario, 2016. Autismontario autism OntAriO 9 11
I. sPRIng CoVID-19 sChool ClosURe oVeRAll sAtIsFACtIon » Caregivers’ overall level of satisfaction with the educational experience during the spring school closure varied significantly with school board setting. The level of satisfaction tended to be higher for French Catholic and private school settings compared to English Catholic or public school settings. » Caregivers’ overall level of satisfaction did not vary significantly with grade level (i.e., Junior Kindergarten to Grade 12); nor did it vary significantly with educational placement (i.e., regular class [n=1550], or special education class [n=729]). Figure 6 Dissatisfied or Very Neither Satisfied Satisfied or Very Not Dissatisfied nor Dissatisfied Satisfied Applicable Stratified by % Diff % Diff % Diff School Board % of from % of from % of from % of Setting n row Expected n row Expected n row Expected n row Total English Catholic 284 43.6% -2% 176 27.0% 12% 162 24.9% -7% 29 4.5% 651 English Public 659 45.5% 2% 357 24.7% 2% 371 25.6% -5% 60 4.1% 1,447 French Catholic 44 36.1% -21% 23 18.9% -24% 52 42.6% 55% 3 2.5% 122 French Public 28 49.1% 9% 8 14.0% -43% 19 33.3% 23% 2 3.5% 57 Private School 28 46.7% 5% 3 5.0% -79% 26 43.3% 62% 3 5.0% 60 1,043 44.6% 567 24.3% 630 27.0% 97 2,337 Chi Square (df)=37.61 (8), p
It gave me a chance to I cannot think of one positive thing. It was absolutely participate in his learning and financially devastating, my son has been completely realize how much he knows. I frustrated and has become even more of a danger to had no idea. We worked very himself, my daughter and myself. Sleep patterns are successfully as he enjoys worse than ever. learning, math, typing and writing. It was always a positive L’anxiété de mon enfant a été réduit puisqu’il ne experience as I seen him smiling participait pas à aucun cours en ligne. [My child’s anxiety the whole time. Very proud was reduced because he didn’t participate in any online of his learning as he gained courses.] confidence. DIstRessIng oR stRessFUl AsPeCts Regarding the most distressing or stressful aspects of the shift to home learning during the spring school closure, caregivers’ comments related to the following (n=2,302): Extra work caring for the child at home (including lack of supports, managing time) 46.4% Lost opportunities for the child (social, daily structure, & academics) 45.5% Online learning 11.4% Managing change to the child’s mental health 10.1% Impact on caregiver’s employment or work 9.6% The lack of socializing for my son Mon enfant avait été dit par un membre du personnel had a huge impact on his mental de son école que les travaux en ligne ne comptaient pas health. He already suffers from envers son bulletin qu’ils se baseront sur la note du 13 anxiety and depression. He ended mars. Donc, il a refusé carrément de faire ses tâches up spending a week in the hospital scolaires en ligne. Beaucoup de stress entre parent et in early May. The doctors said that enfant! Covid played a huge part in this. [My child was told by school personnel from his school that online tasks did not count on the report card, that it It was difficult dealing with work was based on marks on March 13th. So, he categorically and school at the same time, refused to do his online school tasks. Lots of stress especially with meltdowns. between the parent and the child!] autism Autismontario OntAriO 13 11
ACCess AnD sUPPoRt FoR ReMote leARnIng » Most caregivers (86.2% of 2384 responders) felt their child had sufficient access to technology to support online learning during the spring school closure. » Northern Ontario respondents, however, were over 8 times as likely as Toronto Area respondents to report that Internet bandwidth was a technological barrier to online learning in the spring. Percentage of Respondents Within each Region Reporting Internet Bandwidth as a Technological Barrier to Online Learning Central Ontario (n=877) 2.5% Eastern Ontario (n=677) 3.4% Toronto Area (n=338) 1.2% Western Ontario (n=272) 2.9% Northern Ontario (n=175) 9.7% This finding highlights the importance of not relying on online methods as the sole means of outreach in Northern Ontario. This applies to provision of educational supports and services, and to assessing needs such as through surveys. Autism Ontario plans to supplement its province-wide online surveys with focus groups or interviews of Northern Ontario residents in the future. Caregivers found non-online forms of remote support very useful: » 24.4% of caregivers’ children received non-online remote forms of learning support from their school, such as books or worksheets, to support their remote learning. Some caregivers specified the types of materials received: books (including library books, textbooks), paper resources (including worksheets, workbooks), and other equipment or materials (PECS boards, OT equipment, activity packs, crafts, visual schedules, etc.). Materials were sometimes personally delivered. A few caregivers noted how their child’s teacher reacted quickly and with foresight, sending materials home at the beginning of the extended March Break. 14 12 Readiness reAdiness for fOr the the Safe sAfe and And Successful successful Return return to tO School schOOl
ChIlD engAgeMent WIth onlIne leARnIng » Overall, 36% of caregivers felt their child was sufficiently engaged in online learning during the spring school closure, while 60% of caregivers felt their child was insufficiently engaged. » Caregivers’ impressions of their child’s engagement in online learning varied significantly with grade level: Caregivers were less likely to report that children in earlier grades (grade 4 and below) were sufficiently engaged compared with children in higher grades (with the exception of grade 12). Engagement in online learning was less relevant for Junior Kindergarten. Figure 7: Child Engagement Yes No Not Applicable % Diff % Diff Stratified by Grade from from % of Level n % of row Expected n % of row Expected n row Totals Junior Kindergarten 19 16.7% -31% 55 48.2% 18% 40 35.1% 114 Senior Kindergarten 47 28.7% -19% 109 66.5% 11% 8 4.9% 164 Grade 1 62 29.1% -17% 139 65.3% 10% 12 5.6% 213 Grade 2 70 32.4% -11% 142 65.7% 7% 4 1.9% 216 Grade 3 67 36.0% -3% 119 64.0% 2% 0 0.0% 186 Grade 4 64 36.0% 0% 108 60.7% 0% 6 3.4% 178 Grade 5 81 40.7% 10% 116 58.3% -6% 2 1.0% 199 Grade 6 60 35.5% -3% 107 63.3% 2% 2 1.2% 169 Grade 7 72 40.2% 10% 104 58.1% -6% 3 1.7% 179 Grade 8 63 38.2% 5% 98 59.4% -3% 4 2.4% 165 Grade 9 62 41.3% 12% 87 58.0% -7% 1 0.7% 150 Grade 10 59 43.7% 20% 73 54.1% -12% 3 2.2% 135 Grade 11 55 47.0% 30% 59 50.4% -18% 3 2.6% 117 Grade 12 44 32.8% -8% 85 63.4% 5% 5 3.7% 134 Graduated in 2020 10 55.6% 49% 8 44.4% -29% 0 0.0% 18 835 35.7% 1,409 60.3% 93 4% 2,337 Chi Square (df)=28.91 (14), p=0.011. % Difference from Expected: Larger numbers (either positive or negative) indicate larger deviations above or below what would be expected (i.e., column total x row total / grand total) for that cell. Information about ability levels of children within grade levels was not collected. Caregivers cited the following barriers to a child’s sufficient engagement in online learning (n=892): Child lacks interest, motivation, or attention 39.6% Work exceeds child’s ability or developmental readiness 28.0% Caregiver lacks capacity to mediate online learning 16.5% No online learning provided 10.3% Technology problems 5.6% A number of caregivers also appreciated the work their child’s teacher put into online learning. autism Autismontario OntAriO 15 13
EVERYDAY his teacher sent 2 YouTube videos that he personally taught a lesson on. He sent emails, worksheets, With 4 kids in the family, assignments, etc. The teacher was amazing and totally Internet could be slow and dedicated. sometimes we had to share devices. Also, he had to spend time setting up devices for his Il n’est peu lire ni écrire, l’internet qui ne pas suffisant, younger siblings. (Honestly, oui nous avons l’appareil fournis l’école. [He can’t read or he is much better at tech than write, internet was not sufficient, yes we had a device from me so a life saver.) school.] IMPACt oF the sChool ClosURe on ChIlD WellbeIng Regarding major impacts of the spring school closure on their child’s physical or mental wellbeing, caregivers’ comments related to the following (n=2281): Decreased social functioning or opportunities 47.5% Set-backs or disruption to development 29.5% Mental health challenges 21.1% Decreased physical health or activity 17.2% Lost supports or services 5.6% Improved physical or mental wellbeing (including “happier”) 8.7% There was no major impact 5.0% My son found it extremely difficult Stims and tics exploded, he was anxious and sad a to deal with the uncertainties […] lot. He originally assumed they were strike days and For him uncertainty causes extreme when we were able to get him to understand it was anxiety and stress and he never sadness. His friends are his EA’s. His sleep is terrible knew if all of a sudden he’d be told for the first time in 5 years. Scripts and trigger words he’s going back to school tomorrow, are on the rise and are overtaking what he has for next week, or not until September. “normal” speech. He was in a constant state of stress and moderate anxiety about getting Elle est trop bien à la fin... le retour à l’école sera sick and/or going back to school and difficile. [She was very well at the end...the return to getting sick there. school will be difficult.] 16 14 Readiness reAdiness for fOr the the Safe sAfe and And Successful successful Return return to tO School schOOl
II. RetURn to sChool In the FAll When asked about what aspects of the spring school closure caregivers thought should be retained for the coming school year, they suggested the following (n=1571): Flexibility to learn at home and at school 23.3% Online supports 17.2% Exceptional support from school staff 15.5% Improved communication between home and school 12.3% Option to learn from home 11.5% Increased parent involvement 9.8% Nothing should be retained 41.1% He did not have 1:1, Nous avons prouvé en travaillant avec lui que lorsque des or any extra support stratégies gagnantes sont utilisées, il est capable de faire des at school. He greatly apprentissages; j’aimerais que l’accompagnant(e) de mon fils benefited from apprenne et utilise ces stratégies afin qu’il connaisse autant de individualized learning succès à l’école. [We proved, by working with him, that when the at home. This must be right strategies are used, he is capable of learning. I would like available for him to be that my son’s support person learn and use these strategies so successful at school. that he can experience as much success at school.] eDUCAtIon PlAnnIng MeetIngs Parents suggested there is need for flexibility with respect to education-based meetings (i.e., fact-to-face versus online). » 29% of respondents (n=2287) felt that education-based meetings, such as Identification, Placement, and Review Committee (IPRC) or Individual Education Plan (IEP) meetings, should be offered face- to-face in the fall. Reasons for preferring face-to-face meetings included better communication, privacy concerns, greater likelihood meetings will occur, greater adherence to regulations, or technology barriers to meeting online. Elles devraient avoir lieu en personne, par contre, I think it should be at the parent’s si ce n’est pas possible, elles devraient être tenues discretion. Some may feel comforFigure en ligne. Donc elles ne devraient pas être annulées doing online meetings, while others à cause de la covid. [They should be in person, but worry about privacy or struggle with if this not possible, they should be online. So, they communicating effectively remotely. should not be cancelled because of COVID.] Autismontario autism OntAriO 15 17
ReoPenIng sCenARIos » While attending school daily was the most popular first choice reopening scenario among caregivers, preferences for alternative scenarios were variable; although attending school for blocks of weeks was a less preferred option. Figure 8: Caregivers’ Ranking of Their Top Five Preferred Choices 77% 1st Choice 80 2nd Choice 3rd Choice 70 4th Choice 5th Choice 60 37.7% 38.1% 38.4% 50 37.2% 40 36% 32.3% 33.6% 30 20 10 0 DAILY, ALTERNATE CONSECUTIVE On For BLOCKS OF Attend REMOTE Other or similar to DAYS, DAYS, ALTERNATE WEEKS, alternating EVERYDAY AT-HOME previous year’s 2-3 days per 2-3 days per WEEKS with blocks remote FOR HALF A learning only placement week week learning (e.g. 3 wks DAY on, 3 wks home) Of 103 caregivers who left specific comments: » Half noted COVID-19 safety as an important consideration in their choice—for example, doubting their child could be kept safe, or preferring to keep their child home until a vaccine was found. » Awithnumber of caregivers stressed the need for routine, consistency, and predictability for their child autism with respect to scheduling. » Inschedule addition, caregivers highlighted the need for all children in the household to have the same to minimize family stress related to coordinating childcare and employment obligations. De plus, j’ai répondu selon ce qui serait le mieux pour lui, ça ne veut pas dire que c’est le scénario qui est le plus facile pour nous, considérant que ça implique encore une gestion travail/école très compliquée. [Furthermore, I responded based on what is best for him, this does not mean this is the easiest scenario for us, as it involves work/school management, which is very complicated.] 16 18 Readiness reAdiness for fOr the Safe sAfe and And Successful successful Return return to tO School schOOl
ConCeRns Attending school » Caregivers reported varying levels of concerns about different outcomes of their child physically returning to school. Negotiating social interactions was of high concern to the most caregivers, while transportation availability was of no concern of most caregivers. Figure 9: Caregivers’ Level of Concern Regarding Their Child Physically Attending School Not at All 50 46.3% 45% Very Mildly Mildly 39.2% Somewhat 40 35.2% 35% Very 32% 27% 30 20 10 0 Risks to this RISKS TO Availability of Child Child BEING Child Child child from OTHER TRANSPORT- ADJUSTING BEHIND or negotiating experiencing CONTRACT- FAMILY ATION to TO THE having to SOCIAL anxiety with ING COVID-19 members or school TRANSITION catch up INTERACTIONS EDUCATORS members back to school academically WEARING FACE life COVERINGS Caregivers’ descriptions of their biggest concerns about the return to school related to (n=2,086): Child’s adherence to COVID-19 safety expectations and restrictions 46.5% Child managing the transition to school (including mental health, social situations or safety) 28.2% Health risk to child or family member 22.3% Development-related challenges 18.8% Need for extra support or resources 10.9% Adequate planning for positive learning environment 5.8% Impact on the family (stress, parents’ work, childcare needs) 6.7% Had no concerns 2.6% For part time schooling I ‘m He will regress for lack of routine and consistency of concerned over his being a school schedule. We’d have to take a work leave of exposed to school children and absence to care for our children. then another group of kids in a daycare. Also the extreme He has a compromised immune system and an underlying expenses for daycare if it’s part heart condition, so we’re very worried about him catching time or home schooling. the virus. His health is the biggest concern. autism Autismontario OntAriO 19 17
Child’s Ability to observe Rules » Regarding rules intended to reduce COVID-19 transmission, caregivers were more likely to be highly concerned about their child’s ability to wear a face covering, observe physical distancing, and observe restrictions to areas or equipment. Figure 10: Caregivers’ Level of Concern Regarding Their Child’s Ability to Observe Rules Intended to Reduce COVID-19 Transmission 49% Not at All 50 45% Very Mildly Mildly 40 35% 34.9% Somewhat 31.6% Very 30 20 10 0 SCREENING HANDWASHING Wearing a PHYSICAL RESTRICTIONS MEASURES /Sanitizing FACE COVERING DISTANCING to some areas, (taking several times a or shield rules rooms, equipment, temperature) day materials or toys Child Anxieties About Returning to school » Aspossibility reported by caregivers (n=2,288), 32.4% of children expressed some form of anxiety about the of physically returning to school this September. Of 385 explanations for a child’s anxiety, 61.8% (238) were related to COVID-19 risks or restrictions, while 42.6% (164) were related to the child’s transition back to school after the prolonged absence. 20 18 Readiness reAdiness for fOr the the Safe sAfe and And Successful successful Return return to tO School schOOl
sUPPoRtIng A sUCCessFUl RetURn to sChool The most commonly endorsed top need for a successful transition back to school was increased school- based supports and services, followed by an individualized transition plan. Figure 11: Top Needs for a Successful Transition Back to School 25 23.3% 20 19% 15 16.1% 13.4% 10 9.7% 9.4% 5 5% 4.2% 0 ALLOW Develop an INCREASED GRADUAL SOCIAL VIRTUAL VISIT TO OTHER individualized SCHOOL- COMMUNITY INCREASE IN STORIES VIDEO TOUR SCHOOL TRANSITION BASED PROVIDERS TIME of new school PRIOR PLAN SUPPORTS (e.g. Outside spent at (if transition- to attending and services Therapist) to school ing) in September for child accompany student in school for a transition phase Among 69 suggestions for supporting a successful transition back to school, 14 caregivers mentioned the need to be clearly informed before the return to school to be able to prepare and support their child. Some suggested transition planning had already occurred through online meetings, some of which allowed the parent and child to meet new staff or plan dates for school visits. A number of parents highlighted how COVID-19 has exacerbated the already acute need to enhance internal supports, and allow external supports for learning, skill development, behaviour and mental health, as students transition back to school. autism Autismontario OntAriO 21 19
L’éducation en période inhabituelle par Marg Spoelstra, Directrice générale L’éducation demeure en tête des cinq principaux enjeux soulevés dans le sondage 2018 d’Autisme Ontario. Nous nous concentrons et nous agissons sur les cinq dossiers, mais en cette période de pandémie l’éducation a pris une place particulière que nous n’aurions jamais pu imaginer. Au moment où j’écris ces lignes, cet enjeu a été propulsé à l’avant-scène par les médias, les parents, les éducateurs, les élèves, les syndicats et les dirigeants de l’Ontario, pendant que sont discutés et élaborés des plans et que grimpe l’inquiétude sur la manière de demeurer en sécurité tout en poursuivant l’apprentissage dans divers contextes d’enseignement. Cet été, nous avons décidé de mettre en pause notre sondage provincial auprès des parents sur l’éducation, pour nous concentrer sur leurs points de vue et leurs expériences concernant le retour à l’école des élèves autistes à l’automne 2020. Le sondage a été rempli par quelque 2 700 parents et aidants, dont environ 2 400 ont pu contribuer aux résultats et aux recommandations. Bien que cette information se trouve sur notre site Web et que nous soyons en communication directe avec le ministère de l’Éducation au sujet des résultats du sondage, nous souhaitions vous en faire part dans l’édition de fin d’été d’Autism Matters. Les résultats vous étant communiqués en anglais et en français, ce numéro d’Autism Matters s’avère plus volumineux qu’à l’habitude, mais nous vivons une période inhabituelle! Quand vous recevrez ce numéro, Autisme Ontario aura également publié le document Réunion sur la transition vers la rentrée scolaire en lien avec la COVID-19—Liste de contrôle (Pour les parents et les éducateurs), qui, nous le souhaitons, aidera les parents et les éducateurs à planifier les besoins de transition des élèves autistes. L’objectif est de trouver des moyens d’assurer une rentrée scolaire sécuritaire avec un minimum de perturbation et, espérons-le, un maximum de succès qui mènera au meilleur environnement d’apprentissage possible pour tous les élèves. Avis d’assemblée générale annuelle L’assemblée générale annuelle d’Autisme Ontario se tiendra en mode virtuel le samedi 26 septembre, de 9 h à 10 h 30. 22 AutismMATTERS SPRING 2020
PRÉPARATION À UNE RENTRÉE SCOLAIRE RÉUSSIE ET SÉCURITAIRE CONSTATS DU SONDAGE 2020 D’AUTISME ONTARIO SUR L’ÉDUCATION AutismE SPRING 2020 OntAriO AutismMATTERS 23 1
MISSION BÂTIR UN ONTARIO PLUS SOLIDAIRE ET INCLUSIF POUR LES PERSONNES AUTISTES VISION MAXIMISER L’ÉPANOUISSEMENT, AMÉLIORER LE MONDE, FAIRE PLACE À L’AUTISME! FINALITÉS GRÂCE À L’EXISTENCE D’AUTISME ONTARIO : Les individus et les familles bénéficient dans leur collectivité d’un soutien fluide et équitable tout au long de leur parcours de vie. Les individus, les familles et les collectivités ont des soutiens, de l’information et des liens significatifs. Il y a création, organisation et mobilisation d’une information/d’un savoir digne de confiance, opportun et pertinent. COLLABORATION FINALITÉS Nous croyons au pouvoir d’une étroite collaboration avec les individus, les familles et les communautés, permettant de faire des choix éclairés sur l’autisme. ACTIONS DE RESPONSABILISATION Nous nous tenons responsables, et nous tenons autrui responsable, de l’atteinte de résultats favorables par le respect de normes élevées d’intégrité et de responsabilité financière. NOS RESPECT Nous valorisons l’équité, la diversité et l’inclusion, et nous pratiquons l’écoute pour comprendre. VALEURS ÉCLAIRÉES PAR DES PREUVES Nous utilisons le savoir et nous créons du savoir pour orienter nos décisions et nos actions. 24 AutismMATTERS SPRING 2020
Table des MaTIÈRes sOMMaIRe 26 4 INTROdUCTION 29 7 QUI a PaRTICIPÉ? 30 8 I. FeRMeTURe PRINTaNIÈRe des ÉCOles IMPUTable À la COVId-19 32 10 Satisfaction globale 32 10 Aspects positifs 32 10 Aspects perturbants ou stressants 33 11 Accès et soutien pour l’apprentissage à distance 34 12 Participation des enfants à l’apprentissage en ligne 34 12 Impact de la fermeture des écoles sur le bien-être des enfants 36 14 II. la ReNTRÉe sCOlaIRe de l’aUTOMNe 37 15 Rencontres éducatives 37 15 Scénarios de réouverture 38 16 Préoccupations 39 17 Favoriser une rentrée scolaire réussie 41 19 autismE AutismEontario OntAriO 253
sOMMaIRe Dans son sondage de 2020 Préparation à une rentrée scolaire réussie et sécuritaire, Autisme Ontario a consulté les parents ou aidants naturels d’enfants et d’adolescents autistes ontariens inscrits dans le système scolaire de la province, sur les sujets suivants : • Leurs expériences vécues lors de la fermeture des écoles causée par la COVID-19 au printemps dernier; • Leurs préoccupations et leurs opinions en vue de la rentrée scolaire de l’automne, dans le contexte de la COVID-19. Le cœur du sondage comprenait 27 questions (s’il était rempli pour un enfant). Les aidants devaient répondre à un tronc commun de 19 questions pour chaque enfant autiste scolarisé, et pouvaient répéter le processus pour trois enfants au maximum. Ce sondage bilingue était disponible en ligne durant la semaine du 6 au 13 juillet. Le sondage a été rempli par 2 413 aidants pour un total de 2 610 enfants; 183 aidants ont rempli le questionnaire pour un deuxième enfant, et 22 pour un troisième. Pour 4,1 % des répondants, le français était la langue le plus souvent parlée à la maison. Les proportions de minorités visibles et de groupes autochtones s’approchaient de celles de l’ensemble de la population ontarienne. eXPÉRIeNCe de la FeRMeTURe des ÉCOles aU PRINTeMPs dUe À la COVId-19 En moyenne, 27 % des aidants se sont dits globalement satisfaits ou très satisfaits, et 45 % insatisfaits ou très insatisfaits, de l’expérience éducative vécue durant la 45% fermeture des écoles ce printemps. Cependant, le niveau de satisfaction des aidants variait considérablement selon le type de conseil scolaire; il était généralement Insatisfaits ou plus élevé pour les écoles catholiques françaises et les écoles privées que pour les très insatisfaits écoles catholiques ou publiques anglaises. de l’expérience éducative vécue Pour les aidants, l’aspect le plus perturbant ou stressant de la fermeture a résidé durant la fermeture dans le travail supplémentaire qu’ils ont dû effectuer pour s’occuper de l’enfant à des écoles au la maison (46 %) et dans la perte d’occasions sur le plan social, développemental printemps et scolaire pour l’enfant (45 %). En ce qui concerne les principales conséquences de la fermeture sur le bien-être physique ou mental de l’enfant, 48 % ont Beaucoup ont fait mentionné une altération du fonctionnement social de l’enfant, 30 % une état d’une altération régression dans le développement et 21 % des problèmes de santé mentale. du fonctionnement social de leur La plupart des aidants (86 %) estimaient que durant la période de fermeture, leur enfant et d’une enfant disposait d’un accès suffisant à la technologie pour soutenir l’apprentissage régression dans le en ligne. Cependant, les répondants du Nord de l’Ontario étaient huit fois développement plus susceptibles que leurs vis-à-vis torontois d’estimer que la bande passante Internet a constitué un obstacle technologique à l’apprentissage en ligne. 426 PRÉPARATIONÀA unE PrÉPArAtiOn UNE RENTRÉE rEntrÉE SCOLAIRE sCOLAirEREUSSIE rÉussiEET EtSÉCURITAIRE sÉCuritAirE
60% Selon une majorité d’aidants (60 %), leur enfant n’a pas suffisamment participé à l’apprentissage en ligne, une opinion qui s’appliquait davantage aux élèves des Estimaient que premiers niveaux (4e année et moins) qu’à ceux des niveaux supérieurs, sauf pour leur enfant a la 12e année. insuffisamment participé à l’apprentissage en PlaNIFICaTION de la ReNTRÉe sCOlaIRe ligne aUTOMNale Quand on leur demandait quels aspects de la fermeture printanière des écoles mériteraient d’être conservés pour l’année scolaire à venir, 41 % des aidants ont répondu que rien ne méritait d’être conservé, et 23 % ont cité la latitude d’apprendre à la maison ou à l’école. Des aidants ont souligné la nécessité d’une souplesse dans la participation aux réunions éducatives, 29 % étant d’avis Aller à l’école qu’elles devraient avoir lieu en personne, pour les raisons suivantes : meilleure tous les jours est communication, questions de confidentialité, meilleure probabilité de tenue des manifestement le rencontres, meilleur respect des règles, ou obstacles technologiques aux rencontres premier choix le plus populaire parmi virtuelles. les scénarios de Aller à l’école tous les jours était clairement le premier choix le plus populaire pour réouverture la réouverture, mais les avis divergeaient quant aux autres scénarios. La fréquentation Les aidants ont besoin scolaire par blocs de semaines était une option moins prisée. Les choix des aidants de souplesse dans étaient influencés par leurs préoccupations relatives à la sécurité COVID-19, au besoin la participation aux de routine, de cohérence et de prévisibilité dans l’horaire scolaire et à l’importance rencontres éducatives d’uniformiser l’horaire de tous les enfants du ménage pour atténuer le stress familial. Parmi les possibles inquiétudes entourant la fréquentation physique de l’école par POUR LA RENTRÉE : leur enfant, la plupart des aidants se préoccupaient grandement de la négociation LES PARENTS SE des interactions sociales. Leurs principales inquiétudes à ce chapitre étaient le PRÉOccUPENT respect par l’enfant des règles de sécurité COVID-19 (46 %) et la gestion de la NOTAmmENT dU transition à l’école par l’enfant (28 %), y compris les problèmes de santé mentale et RESPEcT dES RègLES les situations sociales. Selon les aidants, 32 % des enfants ont exprimé de l’anxiété dE SÉcURITÉ cOVId-19 quant à l’éventualité d’une rentrée scolaire physique en septembre, une anxiété ET dE LA gESTION dE motivée par les risques ou les restrictions entourant la COVID-19 ou par un retour LA TRANSITION à l’école après une longue absence. LES mOTIFS Pour ce qui est de réussir la transition de retour à l’école, le facteur de réussite d’ANxIÉTÉ dES le plus souvent cité était l’accroissement des soutiens en milieu scolaire, suivi de ENFANTS PORTENT l’élaboration d’un plan de transition personnalisé. Certains aidants ont mentionné SUR LES RISqUES la nécessité d’être clairement informés avant la rentrée pour pouvoir bien préparer ET RESTRIcTIONS et appuyer l’enfant. Un certain nombre de parents ont souligné à quel point la ENTOURANT LA COVID-19 a exacerbé la nécessité déjà criante de bonifier les soutiens internes cOVId-19 ET SUR LE et d’autoriser le recours aux soutiens externes pour favoriser l’apprentissage, le RETOUR APRèS UNE développement des compétences, le comportement et la santé mentale durant la LONgUE ABSENcE période de transition. AutismEontario autismE OntAriO 275
PRINCIPales leÇONs TIRÉes eT ReCOMMaNdaTIONs La fermeture a entraîné des régressions » Lalourde fermeture printanière des écoles a accru la charge de travail déjà des aidants et le stress qu’ils ressentent en prenant soin de inquiétantes dans le leur enfant et en veillant à son éducation, et elle s’est traduite par des développement social et le cheminement régressions inquiétantes dans le développement social et le cheminement scolaire des enfants scolaire des enfants. » Les obstacles d’ordre technologique, dont une faible bande passante Internet, sont nettement supérieurs dans le Nord de l’Ontario. Les plans de Les restrictions de soutien au téléapprentissage doivent en tenir compte. bande passante sont le plus marquées dans le Nord de l’Ontario » Ildesfautparents faire preuve de souplesse dans les modalités de participation aux rencontres éducatives, pour tenir compte de leurs préférences et de leurs besoins quant au mode présentiel ou virtuel. La sécurité » Illessera important de prendre en compte la sécurité COVID-19 pour calmer inquiétudes des aidants et des enfants entourant le retour à l’école. cOVId-19 est un motif d’anxiété chez les parents et » Ladesréussite de la transition de retour à l’école passe par l’accroissement soutiens et des services en milieu scolaire et l’établissement de plans les enfants de transition personnalisés pour chaque enfant. » Les scénarios de réouverture doivent prendre en compte les besoins particuliers et variés des familles d’enfants autistes, comme la nécessité La réussite de d’uniformiser l’horaire de tous les enfants du ménage pour atténuer le la transition implique un stress familial. accroissement des soutiens scolaires » Pour de nombreux enfants, les plans devront favoriser la routine, la cohérence et la prévisibilité dans les horaires. et l’élaboration de plans de transition personnalisés » Lales pandémie de COVID-19 a exacerbé la nécessité déjà criante de bonifier soutiens internes et d’autoriser le recours aux soutiens externes pour chaque pour favoriser l’apprentissage, le développement des compétences, le enfant comportement et la santé mentale. 28 PRÉPARATION A UNE RENTRÉE SCOLAIRE REUSSIE ET SÉCURITAIRE
INTRODUCTION Autisme Ontario accorde une grande importance aux points de vue exprimés sur divers sujets par toutes les parties prenantes de la communauté de l’autisme. Dans notre sondage provincial 2018 mené auprès d’adultes autistes et de familles d’enfants autistes, l’éducation figurait en tête des cinq grandes priorités sur lesquelles il conviendrait de cibler davantage l’action revendicatrice en Ontario. Pour cette raison, Autisme Ontario a décidé, pour l’édition 2020 du sondage provincial, de consulter les aidants naturels sur les questions relatives à l’éducation. Les sondages des prochaines années porteront sur les autres thèmes prioritaires et les points de vue des groupes concernés. En raison des extraordinaires perturbations entraînées par la pandémie de COVID-19, Autisme Ontario a rajusté le point de mire et la longueur de ce qui s’annonçait initialement comme une enquête plus approfondie sur l’éducation. Ce sondage, intitulé Préparation à une rentrée scolaire réussie et sécuritaire, visait à consulter les parents ou les aidants des enfants et des adolescents autistes ontariens qui fréquentent le système scolaire sur deux choses : • L’expérience vécue durant la fermeture printanière des écoles attribuable à la pandémie de COVID-19; • Leurs préoccupations et leurs opinions entourant la rentrée scolaire de l’automne, dans le contexte de la COVID-19 Autisme Ontario a conçu le sondage avec l’apport des partenaires et des parties prenantes. Le cœur du sondage comprenait 27 questions (s’il était rempli pour un enfant). Les aidants étaient priés de répondre à un tronc commun de 19 questions pour chaque enfant autiste scolarisé, et ils pouvaient répéter le processus pour trois enfants au maximum s’ils s’occupaient de plus d’un enfant. Le sondage pouvait être rempli exclusivement en ligne, en français ou en anglais, pendant la semaine du 6 au 13 juillet. Autisme Ontario a diffusé le sondage sous forme de lien librement accessible, par l’entremise de ses voies de communication et avec l’aide de nombreuses organisations partenaires. Les questionnaires incomplets ou invalides ont été exclus avant l’analyse des réponses. Puisqu’une partie des répondants n’ont pas répondu à toutes les questions, le nombre de réponses données est indiqué pour la plupart des questions. Remerciements Autisme Ontario remercie d’abord et avant tout les aidants qui ont pris le temps de répondre à ce sondage. Nous souhaitons également reconnaître la contribution de toutes les personnes qui ont participé à l’élaboration du sondage, à l’analyse des données ainsi qu’à la conception et à la rédaction du rapport1 : Cathy White, Stephen Gentles, Suzanne Murphy, Michael Cnudde, Jessica Bethel, Layne Verbeek, Vanessa Coens, Erin Nightingale, Ishmeet Kaur, Aqdas Malik, Laura Webb, Andrea Armstrong, Carrie White, Estefania Ramirez-Tello et Margaret Spoelstra. 1 Citer comme suit : Gentles SJ, White C, Murphy S, Cnudde M, Bethel J et Spoelstra M. Préparation à une rentrée scolaire réussie et sécuritaire : Constats du sondage 2020 d’Autisme Ontario sur l’éducation [Rapport]. Toronto (Ont.) : Autisme Ontario; juillet 2020. AutismE OntAriO autismE ontario 297
You can also read