AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario

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AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
Autism
 Summer 2020 • Volume 17 • Number3
 A PUBLICATION OF AUTISM ONTARIO     MATTERS

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EDUCATION IN UNUSUAL TIMES
AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
table OF CONTENTS

                                                                     What’s Inside                                   SUMMER 2020

                   Board of Directors
Susan Boehnke, Tiziana Bontempo, Dr. Barry Bruce, Janet
Culliton (Past President/ancien pr ésidente), Julia Frei, Nancy
Marchese, David Moloney (Secretary/secr étaire), Kim Moore
(Vice President/vice-présidente), Susan Morris (President/
pr é sidente), Ken Rober tson (Treasurer/tr é sorier), Kim
Seabrook

                      Local Chapters
To find contact information for your local Autism Ontario
chapter, visit www.autismontario.com.
                                                                     Education in Unusual Times
                                                                     by Marg Spoelstra, Executive Director

                                                                     Education remains the number 1 concern of the five top issues raised
                                                                     through Autism Ontario’s 2018 survey. We’re focusing and acting on all five matters, but
                                                                     education has taken on a focus in ways we could never have imagined in these pandemic
                                                                     times. As I am writing, this topic has been galvanized into action by media, parents, educa-
                                                                     tors, students, unions and Ontario leaders as plans are being discussed and implemented
                                                                     and as anxieties mount about remaining safe while still learning in a variety of educational
                                                                     settings.
                                                                        This summer we made a decision to place our province-wide education parent survey on
                                                                     hold in favour of focusing on parents’ views and experiences about students on the autism
                  Autismontario                                      spectrum returning to school in fall 2020. About 2,700 parents/caregivers responded and
          1179 King Street West, Suite 004
             Toronto, ON M6K 3C5                                     about 2,400 of those were able to be incorporated into the results and recommendations.
               Phone: 416-246-9592                                   Although this information is on our website and we have been in direct communication with
                Fax: 416-246-9417                                    the Ministry of Education about the survey results, we wanted to share them with you as
             mail@autismontario.com
                                                                     the content of our late summer edition of Autism Matters. Providing the information in both
                                                                     English and French means that this is a larger publication than a typical Autism Matters, but
OUR VISION: Best Life, Better World, Making Autism Matter!
Our Mission: Creating a supportive and inclusive Ontario             these are surely unusual times!
for Autism                                                              By the time you receive this issue, Autism Ontario will also have released the COVID-19
Autism Matters© 2020 has been developed by Autism Ontario.           Back-to-School Meeting Transition Checklist for Parents and Educators. We hope this type of
The editing team of Autism Matters strives to include a range of
views about ASD and its impact on people.These views may or          resource will be of use to parents and educators in planning for the transition needs of indi-
may not reflect the views of Autism Ontario. No commercial
involvement of any kind has been solicited or accepted in the        vidual students on the autism spectrum. The goal is finding ways to return to school safely,
development of the content of Autism Matters. Advertising does       with the least amount of disruption and, hopefully, the most success that leads to the best
not influence editorial decisions or content. The appearance
of advertising in Autism Matters is neither a guarantee nor an       possible learning environment for all students. 
endorsement by Autism Ontario of the product, service, or
company or the claims made for the product in such advertising.
A special banner will indicate to readers of Autism Matters adver-
tising features of the product, service, or company they provide.    Prenez connaissance des résultats du sondage en français à la page 23.
Autism Matters is published four times per year. Autism Matters
welcomes contributions from its readers. Send your articles,
reviews, letters, comments, announcements, etc., to Michael
Cnudde, Autism Matters Editor. For advertising rates and inquiries
contact GEPM Group Inc., info@gepmgroup.com.
                                                                                              Notice of Annual General Meeting
Autism Ontario is a registered charitable non-profit organization
(#11924 8789 RR0001).
                                                                        The Autism Ontario Annual General Meeting which will be held virtually on Saturday,
Editing, design and printing services, GEPM Group Inc.                  September 26 from 9 am to 10:30 am.
www.gepmgroup.com
AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
Readiness foR
the safe and
successful
RetuRn to
school

Findings
From the 2020
Autism ontArio
educAtion
survey

                 Autism OntAriO
                        AutismMATTERS
                 SPRING 2020            3   1
AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
MISSION
                                                                           VISION
    CREATING A SUPPORTIVE AND INCLUSIVE ONTARIO FOR AUTISM

                ENDS
                                              BEST LIFE, BETTER WORLD, MAKING AUTISM MATTER

                 BECAUSE AUTISM ONTARIO
                 EXISTS:

                 Individuals and families in their
                 communities are equitably and
                 seamlessly supported across
                 their life course.

                 Individuals, families and
                 communities have meaningful:
                 Supports, information and
                 connections.

                 Information/knowledge is
                 created, curated and mobilized
                 that is: Trustworthy, timely
                 and relevant.
                                         COLLABORATION
                                         We believe in the power of working side by side with individuals,
                                         families and communities to make informed choices about autism.

                                         ACCOUNTABILITY
                                         We hold ourselves and others responsible to achieve successful
                                         outcomes through high standards of integrity and fiscal responsibility.

                                                                               OUR
                                         RESPECT
                                         We value equity, diversity and inclusion,
                                         and we listen to understand.

                                                                             VALUES
                                         EVIDENCE INFORMED
                                         We use and create knowledge to
                                         guide our decisions and work.

4   Readiness for the Safe and Successful Return to School
AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
Contents
eXeCUtIVe sUMMARY                                              6
                                                               4

IntRoDUCtIon                                                   9
                                                               7

Who PARtICIPAteD?                                             10
                                                               8

I. sPRIng CoVID-19 sChool ClosURe                             12
                                                               10
Overall Satisfaction                                           10
                                                              12
Positive Aspects                                              12
                                                               10
Distressing or Stressful Aspects                              13
                                                               11
Access and Support for Remote Learning                        14
                                                               12
Child Engagement With Online Learning                         15
                                                               13
Impact of the School Closure on Child Wellbeing               16
                                                               14

II. RetURn to sChool In the FAll                              17
                                                               15
Education Planning Meetings                                   17
                                                               15
Reopening Scenarios                                           18
                                                               16
Concerns                                                      19
                                                               17
Supporting a Successful Return to School                      21
                                                               19

                                                  autism
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AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
eXeCUtIVe sUMMARY

     In its 2020 survey, Readiness for the Safe and Successful Return to School, Autism Ontario gathered
     information from parents or caregivers of Ontario children and youth on the autism spectrum in the
     education system regarding:

     • Their experiences of the COVID-19 school closure earlier this spring, and
     • Their concerns and perspectives for the return to school in the context of COVID-19 this fall.

     The base survey consisted of 27 questions (if completing for one child). Caregivers responded to a core
     set of 19 questions for each specific child with autism in the education system, and could repeat these
     questions for up to three children. The bilingual survey was available online for the week of July 6-13.

     2,413 caregivers responded, completing questions for a total of 2,610 children—with 183 completing
     questions for a second child, and 22 completing questions for a third child. 4.1% of respondents indicated
     they speak French most often at home. Proportions of visible minority and Indigenous groups were close
     to those of the larger Ontario population.

                                 eXPeRIenCe oF the sPRIng CoVID-19 sChool
                                 ClosURe
                                 On average, 27% of caregivers were satisfied or very satisfied, while 45% were
                                 dissatisfied or very dissatisfied, overall with the educational experience during
     45%                         the spring school closure. Caregivers’ level of satisfaction varied significantly,
                                 however, with school board setting—it tended to be higher for French Catholic
     Dissatisfied or
                                 and private school settings compared to English Catholic or public schools.
     very dissatisfied
     with the
                                 Most distressing or stressful to caregivers was the extra work caring for
     educational
                                 the child at home (46%), and lost social, developmental, and academic
     experience
                                 opportunities for the child (45%). Regarding major impacts of the spring
     during the spring
     school closure              school closure on their child’s physical or mental wellbeing, 48% of caregivers
                                 described losses to their child’s social functioning, while 30% described set-
     Many cited                  backs to development, and 21% reported child mental health challenges.
     losses to their
                                 Most caregivers (86%) felt their child had sufficient access to technology to
     child’s social
     functioning and             support online learning during the spring school closure. Northern Ontario
     set-backs to                respondents, however, were over eight times as likely as Toronto Area
     development                 respondents to report that Internet bandwidth is a technological barrier to
                                 online learning in the spring.

46     Readiness
       reAdiness for
                 fOr the Safe
                         sAfe and
                              And Successful
                                  successful Return
                                             return to
                                                    tO School
                                                       schOOl
AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
60%                   A majority of caregivers (60%) felt their child was insufficiently engaged in
                      online learning, Caregivers were less likely to report that children in earlier
Felt their child
                      grades (grade 4 and below) were sufficiently engaged than in higher grades,
was insufficiently
                      with the exception of grade 12.
engaged in online
learning

                      PlAnnIng FoR the RetURn to sChool In
                      the FAll

                      When asked about what aspects of the spring school closure caregivers thought
                      should be retained for the coming school year, 41% of caregivers felt nothing
Attending school      should be retained, while 23% favoured the flexibility of learning at home or
daily is clearly      at school. Caregivers suggested there is need for flexibility in participating
the most popular
                      in education-based meetings, with 29% indicating they should be offered
first choice
                      face-to-face. Reasons for preferring face-to-face meetings included better
of reopening
                      communication, privacy concerns, greater likelihood meetings will occur, greater
scenarios
                      adherence to regulations, or technology barriers to meeting online.

Caregivers need       Attending school daily was clearly the most popular first choice for reopening,
flexibility in        while preferences for alternative scenarios were variable. Attending school for
participating in      blocks of weeks was a less preferred option. Choices were influenced by caregivers
education-based       concerns for COVID-19 safety, the need for routine, consistency, and predictability
meetings              for their child with autism with respect to scheduling, and the need for all children
                      in the household to have the same schedule to minimize family stress.

                      Among possible concerns about their child’s physical return to school,
FOR THE RETURN:
                      negotiating social interactions was a high concern to the most caregivers. When
Parent concerns       asked about their greatest concern about the return to school, 46% mentioned
include adherence     their child’s adherence to COVID-19 safety rules, and 28% mentioned their
to COVID 19 safety    child managing the transition to school including mental health and social
rules & managing
                      situations. As reported by caregivers, 32% of children expressed anxiety about
the transition
                      the possibility of physically returning to school this September. Children’s
back; and
                      anxieties related to COVID-19-related risks or restrictions, or returning to
Children’s            school after the prolonged absence.
anxieties are
related to COVID      The most commonly endorsed need for a successful transition back to school was
risks, restrictions   increased school-based supports, followed by an individualized transition plan.
and returning         Some caregivers mentioned the need to be clearly informed before the return
after a long          to school to be able to prepare and support their child. A number of parents
absence               highlighted how COVID-19 has exacerbated the already acute need to enhance
                      internal supports, and allow external supports for learning, skill development,
                      behaviour and mental health, as students transition back to school.

                                                                                autism
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AutismMATTERS - EDUCATION IN UNUSUAL TIMES - Summer 2020 Volume 17 Number3 - Autism Ontario
KeY tAKe-AWAYs AnD ReCoMMenDAtIons

    The closure         » The spring school closure increased caregivers’ already high
                          workloads and stress related to caring for their child and managing
    resulted in
    worrisome              their education, and resulted in worrisome losses to social
    losses to their        development and academic progress.
    children’s social
    development
    and academic
                        » Technology-related  barriers including limited Internet bandwidth
                          are substantially higher in Northern Ontario—this needs to be
    progress               accommodated in plans to support remote learning.

    Internet            » There is a need for flexibility in how parents are allowed to participate
                          in education-based meetings, to accommodate their preferences and
    bandwidth
    limitations            needs for meeting face-to-face versus remotely.
    are highest in
    Northern Ontario    » Addressing COVID-19 safety will be important for addressing both
                          caregiver and child anxieties about returning to school.

    Parents and         » Successful  transitioning back to school for children with autism
                          will require increased school-based supports and services, and
    children have
    anxieties about        individualized transition plans for each child.
    how COVID-19
    safety will be      » Reopening  scenarios should be designed with the unique and varying
                          needs of families of children with autism in mind—such as the need
    addressed
                           for all children in the household to have the same schedule to minimize
                           family stress.
    Successful
    transitioning
    requires
                        » For many children, plans will need to promote routine, consistency,
                          and predictability with respect to scheduling.
    increased school-
    based supports      » COVID-19 has exacerbated the already acute needs within the
                          education system to enhance internal supports, and allow external
    & individualized
    transition plans       supports into schools for learning, skill development, behaviour and
    for every child        mental health.

8     Readiness for the Safe and Successful Return to School
IntRoDUCtIon
Autism Ontario values the perspectives of all stakeholders in the autism community on a wide variety of
issues. In our 2018 province-wide survey, completed by families and adults on the spectrum, education
was identified as a top priority among five key areas requiring greater advocacy focus in Ontario. For
this reason, Autism Ontario decided to gather the perspectives of caregivers on education-related
matters in its 2020 province-wide survey. Surveys in future years will address other priority areas and
the perspectives of the relevant groups. With the extraordinary changes brought by the COVID-19
pandemic, Autism Ontario adjusted the focus and length of what was originally planned as a more
comprehensive survey on education.

The purpose of this survey, entitled Readiness for the Safe and Successful Return to School was to gather
the information from parents or caregivers of Ontario children and youth on the autism spectrum
in the education system about two things:
• Their experiences of the COVID-19 school closure earlier this spring, and

• Their concerns and perspectives regarding the return to school in the context of COVID-19
  this fall.
Autism Ontario developed the survey with input from partners and stakeholders. The base survey was
27 questions long (if completing for one child). Caregivers were asked to respond to a core set of 19
questions with reference to one specific child in the education system. If they had multiple children on
the spectrum, respondents had the option to complete these questions for up to three children.

The survey was available online only, in English or French, for one week from July 6-13. Autism Ontario
distributed it as an openly available link through the organization’s channels, and with the help of
numerous partner organizations. Incomplete or invalid surveys were excluded prior to analysis. Since not
all respondents completed all questions, the number of responses is provided for most questions.

Acknowledgments
Autism Ontario is grateful first and foremost to the caregivers who took the time to complete this survey. Autism
Ontario also acknowledges those who contributed to survey development, data analysis, design, and writing of the
report1: Cathy White, Stephen Gentles, Suzanne Murphy, Michael Cnudde, Jessica Bethel, Layne Verbeek, Vanessa
Coens, Erin Nightingale, Ishmeet Kaur, Aqdas Malik, Laura Webb, Andrea Armstrong, Carrie White, Estefania
Ramirez-Tello, Margaret Spoelstra.

1   Please cite as follows: Gentles SJ, White C, Murphy S, Cnudde M, Bethel J, Spoelstra M. Readiness for the safe and successful return to
    school: Findings from the 2020 Autism Ontario education survey [Report]. Toronto, ON: Autism Ontario; July, 2020.

                                                                                                          autism
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Who PARtICIPAteD?
      Figure 1: Respondents by Region

                                                   NORTH
                                                    7.3%
                                                       175
                                                                             EASTERN
                                                                               28.1%
                                                                                677

                                               CENTRAL
                                                36.3%
                                                 877         TORONTO
                                                               14%
                                   WESTERN                     338
                                     11.3%
                                      272

                                                                             TOTAL RESPONSES: 2,413
                                                                             UNREPORTED 3.1% (74)

      » 2,413 caregivers with Ontario children and youth on the autism spectrum in the education
        system responded to the survey, completing most or all questions.

      » Respondents   completed questions for a total of 2,610 children—with 183 completing questions
        for a second child, and 22 completing questions for a third child. Of these, 64 children were in a
          private school setting.

      “More than 20,000 students identified with ASD are currently enrolled in Ontario’s publicly funded
      school system.”1 We estimate the respondents to this survey represent approximately 10% of the
      complete population.

      While this is a good reach for any survey of caregivers in Ontario’s autism community, some groups
      may have been under-represented. For example, only people with reliable Internet access would have
      completed this survey.

      » of4.1%Francophone
                 of respondents indicated they speak French most often at home. This is close to the proportion
                           Ontarians (4.7%).
                                                                                                                                         2

      » 18% are single caregivers.
      1   https://news.ontario.ca/edu/en/2017/10/ontario-launching-pilot-program-to-support-students-with-autism-in-schools.htm
      2   Profile of the Francophone population in Ontario – 2016, https://www.ontario.ca/page/profile-francophone-population-ontario-
          2016#:~:text=Ontario%20has%20more%20than%20622,000,increase%20of%2010,915%20since%202011.

810       Readiness
          reAdiness for
                    fOr the
                        the Safe
                            sAfe and
                                 And Successful
                                     successful Return
                                                return to
                                                       tO School
                                                          schOOl
Figure 2: Caregiver Gender                                    Figure 3: Child Gender
Prefer not to Say 1.3%                                         Prefer not to Say 1.4%,
           Other 0.3%                                                      Other 0.4%

               Male
               11.8%                                                         Female
                                                                              22.7%

              Female 86.6%                                                     Male 75.5%

Figure 4: Indigenous or Visible Minority Status: Respondents

      Southeast Asian 0.8%                          Prefer not to Say 6.1%
          West Asian 0.7%,                          Other 2.6%
              Korean 0.4%
            Japanese 0.2%
    Indigenous 2.3%
          Arab 2.5%
Latin American 2.6%

                           Chin
                                ese
                                      3.4%
                          Filipino 3.4%
                                                         White 64.9%
                                    .5%
                          Black 3
                                          an
                                    h Asi
                                  t
                              Sou
                                   %
                               6.5

Figure 5: Indigenous or Visible Minority Status: All Ontario1

                                                                               Latin American 1.5%
                  Arab 1.6%                                                    West Asian 1.2%
               Filipino 2.4%                                                   Southeast Asian 1.0%
           Indigenous 2.7%                                                     Korean 0.7%
                                Bl                                             Japanese 0.2%
                                  ac
                                      k
                           Ch             4.7
                              ine               %
                                     se
                                          5.7
                                             %
                          South Asian                  White 70.7%
                          8.7%

1   Census Profile, Ontario, 2016.

                                                                                                      Autismontario
                                                                                                      autism OntAriO    9
                                                                                                                       11
I. sPRIng CoVID-19 sChool ClosURe

     oVeRAll sAtIsFACtIon

     » Caregivers’ overall level of satisfaction with the educational experience during the spring school
       closure varied significantly with school board setting. The level of satisfaction tended to be higher for
          French Catholic and private school settings compared to English Catholic or public school settings.

     » Caregivers’ overall level of satisfaction did not vary significantly with grade level (i.e., Junior
       Kindergarten to Grade 12); nor did it vary significantly with educational placement (i.e., regular class
          [n=1550], or special education class [n=729]).

     Figure 6
                               Dissatisfied or Very                 Neither Satisfied              Satisfied or Very             Not
                                   Dissatisfied                     nor Dissatisfied                   Satisfied              Applicable

      Stratified by                              % Diff                          % Diff                         % Diff
      School Board                     % of       from                  % of      from                % of       from                 % of
      Setting                 n        row      Expected        n       row     Expected      n       row      Expected        n      row       Total
      English Catholic       284      43.6%        -2%        176      27.0%      12%        162     24.9%        -7%         29      4.5%        651
      English Public         659      45.5%         2%        357      24.7%       2%        371     25.6%        -5%         60      4.1%      1,447
      French Catholic         44      36.1%        -21%        23      18.9%      -24%        52     42.6%        55%          3      2.5%        122
      French Public           28      49.1%         9%          8      14.0%      -43%        19     33.3%        23%          2      3.5%            57
      Private School          28      46.7%         5%          3      5.0%       -79%        26     43.3%        62%          3      5.0%            60
                            1,043    44.6%                    567      24.3%                 630     27.0%                    97                2,337

     Chi Square (df)=37.61 (8), p
It gave me a chance to                     I cannot think of one positive thing. It was absolutely
 participate in his learning and            financially devastating, my son has been completely
 realize how much he knows. I               frustrated and has become even more of a danger to
 had no idea. We worked very                himself, my daughter and myself. Sleep patterns are
 successfully as he enjoys                  worse than ever.
 learning, math, typing and
 writing. It was always a positive
                                            L’anxiété de mon enfant a été réduit puisqu’il ne
 experience as I seen him smiling
                                            participait pas à aucun cours en ligne. [My child’s anxiety
 the whole time. Very proud
                                            was reduced because he didn’t participate in any online
 of his learning as he gained
                                            courses.]
 confidence.

DIstRessIng oR stRessFUl AsPeCts
Regarding the most distressing or stressful aspects of the shift to home learning during the spring school
closure, caregivers’ comments related to the following (n=2,302):

                   Extra work caring for the child at home (including
                   lack of supports, managing time)                                           46.4%
                   Lost opportunities for the child (social, daily
                   structure, & academics)                                                    45.5%
                   Online learning                                                            11.4%
                   Managing change to the child’s mental health                               10.1%
                   Impact on caregiver’s employment or work                                    9.6%

 The lack of socializing for my son           Mon enfant avait été dit par un membre du personnel
 had a huge impact on his mental              de son école que les travaux en ligne ne comptaient pas
 health. He already suffers from              envers son bulletin qu’ils se baseront sur la note du 13
 anxiety and depression. He ended             mars. Donc, il a refusé carrément de faire ses tâches
 up spending a week in the hospital           scolaires en ligne. Beaucoup de stress entre parent et
 in early May. The doctors said that          enfant!
 Covid played a huge part in this.            [My child was told by school personnel from his school
                                              that online tasks did not count on the report card, that it
 It was difficult dealing with work           was based on marks on March 13th. So, he categorically
 and school at the same time,                 refused to do his online school tasks. Lots of stress
 especially with meltdowns.                   between the parent and the child!]

                                                                                  autism
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                                                                                                             11
ACCess AnD sUPPoRt FoR ReMote leARnIng
     » Most caregivers (86.2% of 2384 responders) felt their child had sufficient access to technology to
       support online learning during the spring school closure.

     » Northern  Ontario respondents, however, were over 8 times as likely as Toronto Area respondents to
       report that Internet bandwidth was a technological barrier to online learning in the spring.

     Percentage of Respondents Within each Region Reporting Internet Bandwidth as a
     Technological Barrier to Online Learning

                          Central Ontario (n=877)                    2.5%
                          Eastern Ontario (n=677)                    3.4%
                          Toronto Area (n=338)                       1.2%
                          Western Ontario (n=272)                    2.9%
                          Northern Ontario (n=175)                   9.7%

     This finding highlights the importance of not relying on online methods as the sole means of outreach in
     Northern Ontario. This applies to provision of educational supports and services, and to assessing needs
     such as through surveys. Autism Ontario plans to supplement its province-wide online surveys with focus
     groups or interviews of Northern Ontario residents in the future.

     Caregivers found non-online forms of remote support very useful:

     » 24.4%  of caregivers’ children received non-online remote forms of learning support from their
       school, such as books or worksheets, to support their remote learning.

     Some caregivers specified the types of materials received: books (including library books, textbooks),
     paper resources (including worksheets, workbooks), and other equipment or materials (PECS boards, OT
     equipment, activity packs, crafts, visual schedules, etc.). Materials were sometimes personally delivered. A
     few caregivers noted how their child’s teacher reacted quickly and with foresight, sending materials home
     at the beginning of the extended March Break.

14
12     Readiness
       reAdiness for
                 fOr the
                     the Safe
                         sAfe and
                              And Successful
                                  successful Return
                                             return to
                                                    tO School
                                                       schOOl
ChIlD engAgeMent WIth onlIne leARnIng
» Overall, 36% of caregivers felt their child was sufficiently engaged in online learning during the
  spring school closure, while 60% of caregivers felt their child was insufficiently engaged.

» Caregivers’  impressions of their child’s engagement in online learning varied significantly with
  grade level: Caregivers were less likely to report that children in earlier grades (grade 4 and below)
     were sufficiently engaged compared with children in higher grades (with the exception of grade 12).
     Engagement in online learning was less relevant for Junior Kindergarten.

Figure 7: Child Engagement

                                                  Yes                                        No                       Not Applicable

                                                           % Diff                                      % Diff
 Stratified by Grade                                        from                                        from                      % of
 Level                              n      % of row       Expected           n       % of row         Expected           n        row         Totals
 Junior Kindergarten               19       16.7%            -31%            55        48.2%             18%            40       35.1%         114
 Senior Kindergarten               47       28.7%            -19%           109        66.5%             11%             8        4.9%         164
 Grade 1                           62       29.1%            -17%           139        65.3%             10%            12        5.6%         213
 Grade 2                           70       32.4%            -11%           142        65.7%             7%              4        1.9%         216
 Grade 3                           67       36.0%             -3%           119        64.0%             2%              0        0.0%         186
 Grade 4                           64       36.0%             0%            108        60.7%             0%              6        3.4%         178
 Grade 5                           81       40.7%            10%            116        58.3%             -6%             2        1.0%         199
 Grade 6                           60       35.5%             -3%           107        63.3%             2%              2        1.2%         169
 Grade 7                           72       40.2%            10%            104        58.1%             -6%             3        1.7%         179
 Grade 8                           63       38.2%             5%             98        59.4%             -3%             4        2.4%         165
 Grade 9                           62       41.3%            12%             87        58.0%             -7%             1        0.7%         150
 Grade 10                          59       43.7%            20%             73        54.1%            -12%             3        2.2%         135
 Grade 11                          55       47.0%            30%             59        50.4%            -18%             3        2.6%         117
 Grade 12                          44       32.8%             -8%            85        63.4%             5%              5        3.7%         134
 Graduated in 2020                 10       55.6%            49%             8         44.4%            -29%             0        0.0%          18
                                  835       35.7%                          1,409      60.3%                             93         4%          2,337

Chi Square (df)=28.91 (14), p=0.011. % Difference from Expected: Larger numbers (either positive or negative) indicate larger deviations above
or below what would be expected (i.e., column total x row total / grand total) for that cell. Information about ability levels of children within grade
levels was not collected.

Caregivers cited the following barriers to a child’s sufficient engagement in online learning (n=892):

                                    Child lacks interest, motivation, or attention                                                   39.6%
                                    Work exceeds child’s ability or developmental readiness                                          28.0%
                                    Caregiver lacks capacity to mediate online learning                                              16.5%
                                    No online learning provided                                                                      10.3%
                                    Technology problems                                                                              5.6%

A number of caregivers also appreciated the work their child’s teacher put into online learning.

                                                                                                                     autism
                                                                                                                      Autismontario
                                                                                                                             OntAriO                      15
                                                                                                                                                          13
EVERYDAY his teacher sent 2 YouTube videos that he
      personally taught a lesson on. He sent emails, worksheets,              With 4 kids in the family,
      assignments, etc. The teacher was amazing and totally                   Internet could be slow and
      dedicated.                                                              sometimes we had to share
                                                                              devices. Also, he had to spend
                                                                              time setting up devices for his
      Il n’est peu lire ni écrire, l’internet qui ne pas suffisant,
                                                                              younger siblings. (Honestly,
      oui nous avons l’appareil fournis l’école. [He can’t read or
                                                                              he is much better at tech than
      write, internet was not sufficient, yes we had a device from
                                                                              me so a life saver.)
      school.]

     IMPACt oF the sChool ClosURe on ChIlD WellbeIng
     Regarding major impacts of the spring school closure on their child’s physical or mental wellbeing,
     caregivers’ comments related to the following (n=2281):

                          Decreased social functioning or opportunities                               47.5%
                          Set-backs or disruption to development                                      29.5%
                          Mental health challenges                                                    21.1%
                          Decreased physical health or activity                                       17.2%
                          Lost supports or services                                                    5.6%
                          Improved physical or mental wellbeing (including “happier”)                  8.7%
                          There was no major impact                                                    5.0%

     My son found it extremely difficult           Stims and tics exploded, he was anxious and sad a
     to deal with the uncertainties […]            lot. He originally assumed they were strike days and
     For him uncertainty causes extreme            when we were able to get him to understand it was
     anxiety and stress and he never               sadness. His friends are his EA’s. His sleep is terrible
     knew if all of a sudden he’d be told          for the first time in 5 years. Scripts and trigger words
     he’s going back to school tomorrow,           are on the rise and are overtaking what he has for
     next week, or not until September.            “normal” speech.
     He was in a constant state of stress
     and moderate anxiety about getting             Elle est trop bien à la fin... le retour à l’école sera
     sick and/or going back to school and           difficile. [She was very well at the end...the return to
     getting sick there.                            school will be difficult.]

16
14     Readiness
       reAdiness for
                 fOr the
                     the Safe
                         sAfe and
                              And Successful
                                  successful Return
                                             return to
                                                    tO School
                                                       schOOl
II. RetURn to sChool In the FAll
When asked about what aspects of the spring school closure caregivers thought should be retained for the
coming school year, they suggested the following (n=1571):

Flexibility to learn at home and at school                                   23.3%
Online supports                                                              17.2%
Exceptional support from school staff                                        15.5%
Improved communication between home and school                               12.3%
Option to learn from home                                                    11.5%
Increased parent involvement                                                 9.8%
Nothing should be retained                                                   41.1%

 He did not have 1:1,              Nous avons prouvé en travaillant avec lui que lorsque des
 or any extra support              stratégies gagnantes sont utilisées, il est capable de faire des
 at school. He greatly             apprentissages; j’aimerais que l’accompagnant(e) de mon fils
 benefited from                    apprenne et utilise ces stratégies afin qu’il connaisse autant de
 individualized learning           succès à l’école. [We proved, by working with him, that when the
 at home. This must be             right strategies are used, he is capable of learning. I would like
 available for him to be           that my son’s support person learn and use these strategies so
 successful at school.             that he can experience as much success at school.]

eDUCAtIon PlAnnIng MeetIngs
Parents suggested there is need for flexibility with respect to education-based meetings (i.e., fact-to-face
versus online).

» 29%  of respondents (n=2287) felt that education-based meetings, such as Identification, Placement,
  and Review Committee (IPRC) or Individual Education Plan (IEP) meetings, should be offered face-
   to-face in the fall.
Reasons for preferring face-to-face meetings included better communication, privacy concerns, greater
likelihood meetings will occur, greater adherence to regulations, or technology barriers to meeting online.

 Elles devraient avoir lieu en personne, par contre,
                                                               I think it should be at the parent’s
 si ce n’est pas possible, elles devraient être tenues
                                                               discretion. Some may feel comforFigure
 en ligne. Donc elles ne devraient pas être annulées
                                                               doing online meetings, while others
 à cause de la covid. [They should be in person, but
                                                               worry about privacy or struggle with
 if this not possible, they should be online. So, they
                                                               communicating effectively remotely.
 should not be cancelled because of COVID.]

                                                                                      Autismontario
                                                                                     autism  OntAriO           15
                                                                                                               17
ReoPenIng sCenARIos

     » While  attending school daily was the most popular first choice reopening scenario among caregivers,
       preferences for alternative scenarios were variable; although attending school for blocks of weeks was
          a less preferred option.

     Figure 8: Caregivers’ Ranking of Their Top Five Preferred Choices

           77%                                                                                                               1st Choice
     80                                                                                                                      2nd Choice
                                                                                                                             3rd Choice
     70                                                                                                                      4th Choice
                                                                                                                             5th Choice
     60
                                                                                    37.7%                           38.1% 38.4%
     50
                                                                                               37.2%
     40                                         36%
                               32.3%                            33.6%
     30
     20
     10
      0
              DAILY,        ALTERNATE      CONSECUTIVE         On         For BLOCKS OF           Attend      REMOTE         Other
           or similar to       DAYS,           DAYS,       ALTERNATE    WEEKS, alternating      EVERYDAY      AT-HOME
          previous year’s   2-3 days per    2-3 days per     WEEKS      with blocks remote     FOR HALF A   learning only
            placement           week            week                    learning (e.g. 3 wks       DAY
                                                                          on, 3 wks home)

     Of 103 caregivers who left specific comments:

     » Half  noted COVID-19 safety as an important consideration in their choice—for example, doubting
       their child could be kept safe, or preferring to keep their child home until a vaccine was found.

     » Awithnumber of caregivers stressed the need for routine, consistency, and predictability for their child
              autism with respect to scheduling.

     » Inschedule
            addition, caregivers highlighted the need for all children in the household to have the same
                   to minimize family stress related to coordinating childcare and employment obligations.

      De plus, j’ai répondu selon ce qui serait le mieux pour lui, ça ne veut pas dire que c’est le scénario
      qui est le plus facile pour nous, considérant que ça implique encore une gestion travail/école très
      compliquée. [Furthermore, I responded based on what is best for him, this does not mean this is
      the easiest scenario for us, as it involves work/school management, which is very complicated.]

16
18        Readiness
          reAdiness for
                    fOr the Safe
                            sAfe and
                                 And Successful
                                     successful Return
                                                return to
                                                       tO School
                                                          schOOl
ConCeRns
Attending school
» Caregivers reported varying levels of concerns about different outcomes of their child physically
  returning to school. Negotiating social interactions was of high concern to the most caregivers, while
   transportation availability was of no concern of most caregivers.

Figure 9: Caregivers’ Level of Concern Regarding Their Child Physically Attending School

                                                                                                                  Not at All
   50                                 46.3%
                                                                                                 45%              Very Mildly
                                                                                                                  Mildly
                                                                   39.2%                                          Somewhat
   40                           35.2%                                              35%
                                                                                                                  Very
                  32%
                                                                                                                  27%
   30

   20

   10

    0
         Risks to this    RISKS TO      Availability of       Child        Child BEING        Child           Child
          child from       OTHER        TRANSPORT-         ADJUSTING        BEHIND or       negotiating    experiencing
         CONTRACT-         FAMILY         ATION to           TO THE          having to       SOCIAL        anxiety with
        ING COVID-19     members or        school         TRANSITION         catch up     INTERACTIONS     EDUCATORS
                          members                         back to school   academically                   WEARING FACE
                                                                life                                       COVERINGS

Caregivers’ descriptions of their biggest concerns about the return to school related to (n=2,086):

                          Child’s adherence to COVID-19 safety expectations and restrictions                          46.5%
                          Child managing the transition to school (including mental health,
                          social situations or safety)                                                                28.2%
                          Health risk to child or family member                                                       22.3%
                          Development-related challenges                                                              18.8%
                          Need for extra support or resources                                                         10.9%
                          Adequate planning for positive learning environment                                           5.8%
                          Impact on the family (stress, parents’ work, childcare needs)                                6.7%
                          Had no concerns                                                                               2.6%

 For part time schooling I ‘m                        He will regress for lack of routine and consistency of
 concerned over his being                            a school schedule. We’d have to take a work leave of
 exposed to school children and                      absence to care for our children.
 then another group of kids in
 a daycare. Also the extreme                         He has a compromised immune system and an underlying
 expenses for daycare if it’s part                   heart condition, so we’re very worried about him catching
 time or home schooling.                             the virus. His health is the biggest concern.

                                                                                                   autism
                                                                                                    Autismontario
                                                                                                           OntAriO              19
                                                                                                                                17
Child’s Ability to observe Rules

     » Regarding rules intended to reduce COVID-19 transmission, caregivers were more likely to be highly
       concerned about their child’s ability to wear a face covering, observe physical distancing, and observe
          restrictions to areas or equipment.

     Figure 10: Caregivers’ Level of Concern Regarding Their Child’s Ability to Observe Rules
     Intended to Reduce COVID-19 Transmission
                                                        49%                                          Not at All
     50                                                                45%                           Very Mildly
                                                                                                     Mildly
     40    35%                                                                         34.9%         Somewhat
                            31.6%
                                                                                                     Very
     30
     20
     10
      0
           SCREENING       HANDWASHING             Wearing a     PHYSICAL      RESTRICTIONS
           MEASURES           /Sanitizing       FACE COVERING   DISTANCING     to some areas,
             (taking        several times a        or shield        rules    rooms, equipment,
          temperature)           day                                          materials or toys

     Child Anxieties About Returning to school

     » Aspossibility
            reported by caregivers (n=2,288), 32.4% of children expressed some form of anxiety about the
                     of physically returning to school this September.

     Of 385 explanations for a child’s anxiety, 61.8% (238) were related to COVID-19 risks or restrictions,
     while 42.6% (164) were related to the child’s transition back to school after the prolonged absence.

20
18     Readiness
       reAdiness for
                 fOr the
                     the Safe
                         sAfe and
                              And Successful
                                  successful Return
                                             return to
                                                    tO School
                                                       schOOl
sUPPoRtIng A sUCCessFUl RetURn to sChool
The most commonly endorsed top need for a successful transition back to school was increased school-
based supports and services, followed by an individualized transition plan.

Figure 11: Top Needs for a Successful Transition Back to School

  25
                          23.3%
  20
           19%
  15                                                                                        16.1%
                                       13.4%
  10
                                                     9.7%          9.4%
   5                                                                            5%                         4.2%
   0                                      ALLOW
         Develop an     INCREASED                     GRADUAL     SOCIAL       VIRTUAL         VISIT TO    OTHER
       individualized     SCHOOL- COMMUNITY INCREASE IN           STORIES   VIDEO TOUR         SCHOOL
        TRANSITION          BASED      PROVIDERS         TIME               of new school       PRIOR
           PLAN          SUPPORTS (e.g. Outside        spent at             (if transition- to attending
                        and services Therapist) to      school                    ing)      in September
                           for child    accompany
                                         student in
                                        school for a
                                     transition phase

Among 69 suggestions for supporting a successful transition back to school, 14 caregivers mentioned
the need to be clearly informed before the return to school to be able to prepare and support their child.
Some suggested transition planning had already occurred through online meetings, some of which
allowed the parent and child to meet new staff or plan dates for school visits. A number of parents
highlighted how COVID-19 has exacerbated the already acute need to enhance internal supports, and
allow external supports for learning, skill development, behaviour and mental health, as students
transition back to school.

                                                                                         autism
                                                                                          Autismontario
                                                                                                 OntAriO           21
                                                                                                                   19
L’éducation en période
                                 inhabituelle
                                  par Marg Spoelstra, Directrice générale

                                 L’éducation demeure en tête des cinq principaux enjeux soulevés dans le
                                 sondage 2018 d’Autisme Ontario. Nous nous concentrons et nous agissons sur les cinq
                                 dossiers, mais en cette période de pandémie l’éducation a pris une place particulière que
                                 nous n’aurions jamais pu imaginer. Au moment où j’écris ces lignes, cet enjeu a été propulsé
                                 à l’avant-scène par les médias, les parents, les éducateurs, les élèves, les syndicats et les
                                 dirigeants de l’Ontario, pendant que sont discutés et élaborés des plans et que grimpe
                                 l’inquiétude sur la manière de demeurer en sécurité tout en poursuivant l’apprentissage dans
                                 divers contextes d’enseignement.
                                     Cet été, nous avons décidé de mettre en pause notre sondage provincial auprès des
                                 parents sur l’éducation, pour nous concentrer sur leurs points de vue et leurs expériences
                                 concernant le retour à l’école des élèves autistes à l’automne 2020. Le sondage a été rempli
                                 par quelque 2 700 parents et aidants, dont environ 2 400 ont pu contribuer aux résultats et
                                 aux recommandations. Bien que cette information se trouve sur notre site Web et que nous
                                 soyons en communication directe avec le ministère de l’Éducation au sujet des résultats du
                                 sondage, nous souhaitions vous en faire part dans l’édition de fin d’été d’Autism Matters.
                                 Les résultats vous étant communiqués en anglais et en français, ce numéro d’Autism Matters
                                 s’avère plus volumineux qu’à l’habitude, mais nous vivons une période inhabituelle!
                                     Quand vous recevrez ce numéro, Autisme Ontario aura également publié le document
                                 Réunion sur la transition vers la rentrée scolaire en lien avec la COVID-19—Liste de contrôle
                                 (Pour les parents et les éducateurs), qui, nous le souhaitons, aidera les parents et les éducateurs
                                 à planifier les besoins de transition des élèves autistes. L’objectif est de trouver des moyens
                                 d’assurer une rentrée scolaire sécuritaire avec un minimum de perturbation et, espérons-le,
                                 un maximum de succès qui mènera au meilleur environnement d’apprentissage possible
                                 pour tous les élèves. 

                                                           Avis d’assemblée générale annuelle

                                     L’assemblée générale annuelle d’Autisme Ontario se tiendra en mode virtuel le
                                     samedi 26 septembre, de 9 h à 10 h 30.

22 AutismMATTERS   SPRING 2020
PRÉPARATION
À UNE RENTRÉE
SCOLAIRE RÉUSSIE
ET SÉCURITAIRE

CONSTATS DU
SONDAGE 2020
D’AUTISME ONTARIO
SUR L’ÉDUCATION

                    AutismE
                      SPRING 2020
                                  OntAriO
                                   AutismMATTERS   23   1
MISSION
     BÂTIR UN ONTARIO PLUS SOLIDAIRE ET INCLUSIF POUR
     LES PERSONNES AUTISTES
                                                                                        VISION
                                                       MAXIMISER L’ÉPANOUISSEMENT, AMÉLIORER LE MONDE,
                                                       FAIRE PLACE À L’AUTISME!

                   FINALITÉS
                   GRÂCE À L’EXISTENCE D’AUTISME
                   ONTARIO :

                   Les individus et les familles
                   bénéficient dans leur collectivité
                   d’un soutien fluide et équitable tout
                   au long de leur parcours de vie.

                   Les individus, les familles et les
                   collectivités ont des soutiens, de
                   l’information et des liens significatifs.

                   Il y a création, organisation et
                   mobilisation d’une information/d’un
                   savoir digne de confiance, opportun
                   et pertinent.

                                                COLLABORATION

FINALITÉS
                                                Nous croyons au pouvoir d’une étroite collaboration avec les individus, les
                                                familles et les communautés, permettant de faire des choix éclairés sur
                                                l’autisme.
                                                ACTIONS DE RESPONSABILISATION
                                                Nous nous tenons responsables, et nous tenons autrui responsable, de
                                                l’atteinte de résultats favorables par le respect de normes élevées
                                                d’intégrité et de responsabilité financière.

                                                                                       NOS
                                                RESPECT
                                                Nous valorisons l’équité, la diversité et l’inclusion,
                                                et nous pratiquons l’écoute pour comprendre.

                                                                                   VALEURS
                                               ÉCLAIRÉES PAR DES PREUVES
                                               Nous utilisons le savoir et nous
                                               créons du savoir pour orienter
                                               nos décisions et nos actions.

24 AutismMATTERS    SPRING 2020
Table des MaTIÈRes
sOMMaIRe                                                                       26
                                                                               4

INTROdUCTION                                                                   29
                                                                               7

QUI a PaRTICIPÉ?                                                               30
                                                                               8

I. FeRMeTURe PRINTaNIÈRe des ÉCOles IMPUTable À la COVId-19                    32
                                                                               10
Satisfaction globale                                                           32
                                                                               10
Aspects positifs                                                               32
                                                                               10
Aspects perturbants ou stressants                                              33
                                                                               11
Accès et soutien pour l’apprentissage à distance                               34
                                                                               12
Participation des enfants à l’apprentissage en ligne                           34
                                                                               12
Impact de la fermeture des écoles sur le bien-être des enfants                 36
                                                                               14

II. la ReNTRÉe sCOlaIRe de l’aUTOMNe                                           37
                                                                               15
Rencontres éducatives                                                          37
                                                                               15
Scénarios de réouverture                                                       38
                                                                               16
Préoccupations                                                                 39
                                                                               17
Favoriser une rentrée scolaire réussie                                         41
                                                                               19

                                                                 autismE
                                                                  AutismEontario
                                                                          OntAriO   253
sOMMaIRe
      Dans son sondage de 2020 Préparation à une rentrée scolaire réussie et sécuritaire, Autisme Ontario a
      consulté les parents ou aidants naturels d’enfants et d’adolescents autistes ontariens inscrits dans le système
      scolaire de la province, sur les sujets suivants :
      •   Leurs expériences vécues lors de la fermeture des écoles causée par la COVID-19 au printemps dernier;
      •   Leurs préoccupations et leurs opinions en vue de la rentrée scolaire de l’automne, dans le contexte de la
          COVID-19.

      Le cœur du sondage comprenait 27 questions (s’il était rempli pour un enfant). Les aidants devaient répondre
      à un tronc commun de 19 questions pour chaque enfant autiste scolarisé, et pouvaient répéter le processus
      pour trois enfants au maximum. Ce sondage bilingue était disponible en ligne durant la semaine du 6 au 13
      juillet.

      Le sondage a été rempli par 2 413 aidants pour un total de 2 610 enfants; 183 aidants ont rempli le
      questionnaire pour un deuxième enfant, et 22 pour un troisième. Pour 4,1 % des répondants, le français était
      la langue le plus souvent parlée à la maison. Les proportions de minorités visibles et de groupes autochtones
      s’approchaient de celles de l’ensemble de la population ontarienne.

                                   eXPÉRIeNCe de la FeRMeTURe des ÉCOles aU
                                   PRINTeMPs dUe À la COVId-19
                                   En moyenne, 27 % des aidants se sont dits globalement satisfaits ou très satisfaits,
                                   et 45 % insatisfaits ou très insatisfaits, de l’expérience éducative vécue durant la

      45%                          fermeture des écoles ce printemps. Cependant, le niveau de satisfaction des aidants
                                   variait considérablement selon le type de conseil scolaire; il était généralement
      Insatisfaits ou              plus élevé pour les écoles catholiques françaises et les écoles privées que pour les
      très insatisfaits            écoles catholiques ou publiques anglaises.
      de l’expérience
      éducative vécue              Pour les aidants, l’aspect le plus perturbant ou stressant de la fermeture a résidé
      durant la fermeture          dans le travail supplémentaire qu’ils ont dû effectuer pour s’occuper de l’enfant à
      des écoles au                la maison (46 %) et dans la perte d’occasions sur le plan social, développemental
      printemps
                                   et scolaire pour l’enfant (45 %). En ce qui concerne les principales conséquences
                                   de la fermeture sur le bien-être physique ou mental de l’enfant, 48 % ont
      Beaucoup ont fait            mentionné une altération du fonctionnement social de l’enfant, 30 % une
      état d’une altération        régression dans le développement et 21 % des problèmes de santé mentale.
      du fonctionnement
      social de leur               La plupart des aidants (86 %) estimaient que durant la période de fermeture, leur
      enfant et d’une              enfant disposait d’un accès suffisant à la technologie pour soutenir l’apprentissage
      régression dans le           en ligne. Cependant, les répondants du Nord de l’Ontario étaient huit fois
      développement                plus susceptibles que leurs vis-à-vis torontois d’estimer que la bande passante
                                   Internet a constitué un obstacle technologique à l’apprentissage en ligne.

426        PRÉPARATIONÀA unE
          PrÉPArAtiOn    UNE RENTRÉE
                             rEntrÉE SCOLAIRE
                                     sCOLAirEREUSSIE
                                              rÉussiEET
                                                      EtSÉCURITAIRE
                                                         sÉCuritAirE
60%                      Selon une majorité d’aidants (60 %), leur enfant n’a pas suffisamment participé
                         à l’apprentissage en ligne, une opinion qui s’appliquait davantage aux élèves des
Estimaient que
                         premiers niveaux (4e année et moins) qu’à ceux des niveaux supérieurs, sauf pour
leur enfant a
                         la 12e année.
insuffisamment
participé à
l’apprentissage en       PlaNIFICaTION de la ReNTRÉe sCOlaIRe
ligne                    aUTOMNale
                         Quand on leur demandait quels aspects de la fermeture printanière des écoles
                         mériteraient d’être conservés pour l’année scolaire à venir, 41 % des aidants
                         ont répondu que rien ne méritait d’être conservé, et 23 % ont cité la latitude
                         d’apprendre à la maison ou à l’école. Des aidants ont souligné la nécessité d’une
                         souplesse dans la participation aux réunions éducatives, 29 % étant d’avis
Aller à l’école
                         qu’elles devraient avoir lieu en personne, pour les raisons suivantes : meilleure
tous les jours est
                         communication, questions de confidentialité, meilleure probabilité de tenue des
manifestement le
                         rencontres, meilleur respect des règles, ou obstacles technologiques aux rencontres
premier choix le plus
populaire parmi          virtuelles.
les scénarios de
                         Aller à l’école tous les jours était clairement le premier choix le plus populaire pour
réouverture
                         la réouverture, mais les avis divergeaient quant aux autres scénarios. La fréquentation
Les aidants ont besoin   scolaire par blocs de semaines était une option moins prisée. Les choix des aidants
de souplesse dans        étaient influencés par leurs préoccupations relatives à la sécurité COVID-19, au besoin
la participation aux     de routine, de cohérence et de prévisibilité dans l’horaire scolaire et à l’importance
rencontres éducatives
                         d’uniformiser l’horaire de tous les enfants du ménage pour atténuer le stress familial.

                         Parmi les possibles inquiétudes entourant la fréquentation physique de l’école par
POUR LA RENTRÉE :        leur enfant, la plupart des aidants se préoccupaient grandement de la négociation
LES PARENTS SE           des interactions sociales. Leurs principales inquiétudes à ce chapitre étaient le
PRÉOccUPENT              respect par l’enfant des règles de sécurité COVID-19 (46 %) et la gestion de la
NOTAmmENT dU             transition à l’école par l’enfant (28 %), y compris les problèmes de santé mentale et
RESPEcT dES RègLES       les situations sociales. Selon les aidants, 32 % des enfants ont exprimé de l’anxiété
dE SÉcURITÉ cOVId-19     quant à l’éventualité d’une rentrée scolaire physique en septembre, une anxiété
ET dE LA gESTION dE      motivée par les risques ou les restrictions entourant la COVID-19 ou par un retour
LA TRANSITION            à l’école après une longue absence.
LES mOTIFS
                         Pour ce qui est de réussir la transition de retour à l’école, le facteur de réussite
d’ANxIÉTÉ dES            le plus souvent cité était l’accroissement des soutiens en milieu scolaire, suivi de
ENFANTS PORTENT          l’élaboration d’un plan de transition personnalisé. Certains aidants ont mentionné
SUR LES RISqUES          la nécessité d’être clairement informés avant la rentrée pour pouvoir bien préparer
ET RESTRIcTIONS          et appuyer l’enfant. Un certain nombre de parents ont souligné à quel point la
ENTOURANT LA             COVID-19 a exacerbé la nécessité déjà criante de bonifier les soutiens internes
cOVId-19 ET SUR LE       et d’autoriser le recours aux soutiens externes pour favoriser l’apprentissage, le
RETOUR APRèS UNE         développement des compétences, le comportement et la santé mentale durant la
LONgUE ABSENcE           période de transition.

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PRINCIPales leÇONs TIRÉes eT
                              ReCOMMaNdaTIONs
     La fermeture
     a entraîné des
     régressions
                              » Lalourde
                                     fermeture printanière des écoles a accru la charge de travail déjà
                                         des aidants et le stress qu’ils ressentent en prenant soin de
     inquiétantes dans le
                                 leur enfant et en veillant à son éducation, et elle s’est traduite par des
     développement social
     et le cheminement           régressions inquiétantes dans le développement social et le cheminement
     scolaire des enfants        scolaire des enfants.

                              » Les obstacles d’ordre technologique, dont une faible bande passante
                                Internet, sont nettement supérieurs dans le Nord de l’Ontario. Les plans de
     Les restrictions de         soutien au téléapprentissage doivent en tenir compte.
     bande passante sont le
     plus marquées dans le
     Nord de l’Ontario
                              » Ildesfautparents
                                           faire preuve de souplesse dans les modalités de participation
                                                 aux rencontres éducatives, pour tenir compte de leurs
                                 préférences et de leurs besoins quant au mode présentiel ou virtuel.

     La sécurité              » Illessera important de prendre en compte la sécurité COVID-19 pour calmer
                                      inquiétudes des aidants et des enfants entourant le retour à l’école.
     cOVId-19 est un
     motif d’anxiété
     chez les parents et
                              » Ladesréussite de la transition de retour à l’école passe par l’accroissement
                                      soutiens et des services en milieu scolaire et l’établissement de plans
     les enfants
                                 de transition personnalisés pour chaque enfant.

                              » Les scénarios de réouverture doivent prendre en compte les besoins
                                particuliers et variés des familles d’enfants autistes, comme la nécessité
     La réussite de
                                 d’uniformiser l’horaire de tous les enfants du ménage pour atténuer le
     la transition
     implique un                 stress familial.
     accroissement des
     soutiens scolaires       » Pour de nombreux enfants, les plans devront favoriser la routine, la
                                cohérence et la prévisibilité dans les horaires.
     et l’élaboration de
     plans de transition
     personnalisés
                              » Lales pandémie   de COVID-19 a exacerbé la nécessité déjà criante de bonifier
                                      soutiens internes et d’autoriser le recours aux soutiens externes
     pour chaque
                                 pour favoriser l’apprentissage, le développement des compétences, le
     enfant
                                 comportement et la santé mentale.

28      PRÉPARATION A UNE RENTRÉE SCOLAIRE REUSSIE ET SÉCURITAIRE
INTRODUCTION
Autisme Ontario accorde une grande importance aux points de vue exprimés sur divers sujets par toutes les
parties prenantes de la communauté de l’autisme. Dans notre sondage provincial 2018 mené auprès d’adultes
autistes et de familles d’enfants autistes, l’éducation figurait en tête des cinq grandes priorités sur lesquelles
il conviendrait de cibler davantage l’action revendicatrice en Ontario. Pour cette raison, Autisme Ontario a
décidé, pour l’édition 2020 du sondage provincial, de consulter les aidants naturels sur les questions relatives
à l’éducation. Les sondages des prochaines années porteront sur les autres thèmes prioritaires et les points
de vue des groupes concernés. En raison des extraordinaires perturbations entraînées par la pandémie de
COVID-19, Autisme Ontario a rajusté le point de mire et la longueur de ce qui s’annonçait initialement
comme une enquête plus approfondie sur l’éducation.

Ce sondage, intitulé Préparation à une rentrée scolaire réussie et sécuritaire, visait à consulter les parents
ou les aidants des enfants et des adolescents autistes ontariens qui fréquentent le système scolaire sur deux
choses :
•   L’expérience vécue durant la fermeture printanière des écoles attribuable à la pandémie de COVID-19;

•   Leurs préoccupations et leurs opinions entourant la rentrée scolaire de l’automne, dans le contexte de la
    COVID-19
Autisme Ontario a conçu le sondage avec l’apport des partenaires et des parties prenantes. Le cœur du
sondage comprenait 27 questions (s’il était rempli pour un enfant). Les aidants étaient priés de répondre à un
tronc commun de 19 questions pour chaque enfant autiste scolarisé, et ils pouvaient répéter le processus pour
trois enfants au maximum s’ils s’occupaient de plus d’un enfant.

Le sondage pouvait être rempli exclusivement en ligne, en français ou en anglais, pendant la semaine du 6 au
13 juillet. Autisme Ontario a diffusé le sondage sous forme de lien librement accessible, par l’entremise de ses
voies de communication et avec l’aide de nombreuses organisations partenaires. Les questionnaires incomplets
ou invalides ont été exclus avant l’analyse des réponses. Puisqu’une partie des répondants n’ont pas répondu à
toutes les questions, le nombre de réponses données est indiqué pour la plupart des questions.

Remerciements
Autisme Ontario remercie d’abord et avant tout les aidants qui ont pris le temps de répondre à ce sondage. Nous
souhaitons également reconnaître la contribution de toutes les personnes qui ont participé à l’élaboration du sondage, à
l’analyse des données ainsi qu’à la conception et à la rédaction du rapport1 : Cathy White, Stephen Gentles, Suzanne
Murphy, Michael Cnudde, Jessica Bethel, Layne Verbeek, Vanessa Coens, Erin Nightingale, Ishmeet Kaur, Aqdas Malik,
Laura Webb, Andrea Armstrong, Carrie White, Estefania Ramirez-Tello et Margaret Spoelstra.

1   Citer comme suit : Gentles SJ, White C, Murphy S, Cnudde M, Bethel J et Spoelstra M. Préparation à une rentrée scolaire réussie et
    sécuritaire : Constats du sondage 2020 d’Autisme Ontario sur l’éducation [Rapport]. Toronto (Ont.) : Autisme Ontario; juillet 2020.

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