The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
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Volume 29 Print Post Approved Number 3 PP 100008088 December 2020 ISSN 1329-959X IN THIS ISSUE: The Magic Bag PAGE 31 What’s in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16
New year, new garments 6 Your allowance is From 1st January 2021, your support garment 6 support pants or 3 belts or a combination 6 OR 33 allowance starts afresh. per calendar year (1 support belt = 2 support pants) SUPPORT PANTS BELTS Up to 50% of ostomates RATING 3. may develop a Did you know? MODERATE A hole in Support parastomal hernia!1 Garments is not After surgery Men’s Support Pants Diamond Plus Boxers recommended by Wear during light exercise Don’t lose the battle clinicians2,3 Prevent or support a small bulge of the bulge! 2x 2x colours colours Reduce your risk of developing a hernia Diamond Plus Briefs Diamond Plus by wearing a support Support Waistband garment and following the practical advice RATING 4. provided in the Omnigon INTERMEDIATE Support Garments Guide. Wear during daily activities (housework, shopping, golfing) Support a more developed hernia Support Briefs IsoFlex for Her Support Belt Your Guide t & management Contact prevention, suppor Parastomal hernia us today to grab a FREE RATING 5. copy! FIRM s Lorraine Andrew Therapy Post Grad Cert Stomal RGON, ADN, BN, Care Solutions 6/5/20 10:52 am 2x Garment Guide AU V2.indd 1 colours 8951OMN Support Wear during active work or sports Support a more developed hernia References: ¹Colorectal Disease ª 2018 The Association of Coloproctology of Great Britain and Ireland. 20 (Suppl. 2), 5–19. ²Thompson JM. A summary on parastomal hernias, February 2009. ³Thompson MJ. Parastomal hernia: incidence, Total Control KoolKnit prevention and treatment strategies, British Journal of Nursing, 2008 (STOMA CARE SUPPLEMENT); 17 (2), 16-20 Support Belt Support Belt AU 1800 819 274 info@omnigon.com.au Care Solutions NZ 0800 440 027 www.omnigon.com.au 2 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 3
President’s lockdowns, COVID safe plans and social distancing has forced there may be financial penalties on the association through the rejection of message associations to change the way they interact with their members. All the claim. associations are run by a small group of staff or volunteers or a combination It has been of the two and for any of these people to be incapacitated due to COVID appreciated that could have dire consequences for the continued supply of ostomy products most members to members. It has been appreciated have accepted that most members have accepted these changes in the knowledge that these changes they have been implemented for the benefit of staff, volunteers and all members of the association. These changes have also required Moving into the new year your associations to make changes to their association will be wanting to confirm membership, ordering and claims your personal details, which will now management software. For many include your Medicare or DVA card associations this will bring them onto and date of birth, are up to date. ACSA’s Stoma Appliance Since the inception of the Stoma Management System (SAMS). Three Appliance Scheme the SAS associations are already on SAMS entitlement number you were issued and for the last 12 months ACSA had with when registered to the scheme been working on a gradual migration By David Munro was all the association required to of the remaining associations onto the identify the SAS recipient when software. This migration has now T his certainly has not been a normal year and will go down as one to remember, although not for the making a claim. Government has imposed changes to the information changed to a sprint with the Government expecting all associations right reasons. The COVID-19 associations must provide to support to provide their claims in the new pandemic has had a profound effect each claim for payment which has format beginning in the new year. on the way we live, work and play and now been expanded to include the Whilst an associations existing it is likely that life will not return to SAS participants Medicare Card or software does many of the same what it once was for some time. It DVA Entitlement Card, their name and functions of SAMS, moving to this has been no different for your stoma date of birth. If this information is not association. The introduction of provided as part of the claim record, Continued page 6 No-sting Alcohol-free Long lasting 4 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 5
Continued from page 4 that the decision was made to cancel general meeting. The last two years Editor: Rebecca Herbener IN THIS ISSUE Presidents message, by David Munro 4 new software will require associations the conference in May because of the as president of ACSA have been a Foundation Editor: Barbara Callcott Update on the Department of Health’s review to change some of their processes uncertainty of what the situation challenging time for me and the rest of of the Stoma Appliance Scheme, by David Munro 6 Correspondence/Contributions to: and procedures. This may have a would be in October. Time has the executive. The Government is Email: journal@australianstoma.com.au Your Say, Letters to the editor 8 minor impact on the processing of proven this to be the right decision. showing more interest in the operation Post to: The editor, Ostomy Australia Congratulations Gerry Barry – 50 years as QSA President, orders as staff and volunteers By the time you are reading this we of the scheme and the associations PO Box 267 Gosnells WA 6990 by Kylie McGrory 11 become comfortable with the new will have recently held our annual than ever before and this has placed These contact details apply only to matters ANZ ConvaTec Scholarships for Stomal Therapy Nurses announced 14 software so please be mindful of this general meeting as a video considerable pressure on the ACSA directly associated with Ostomy Australia. Email conference. This I am sure will be a Executive. I would like to thank the or Word documents are preferred, please include Nutrition for ostomates - Vitamin D – an excuse for ostomates when placing your order. to enjoy some sunshine!, by Margaret Allan 16 new experience for all delegates. members of the Executive and the pictures if possible. Usually the pages of this issue of ‘OH SH*T!!! I HAVE CANCER’, by Sabrina Rojas 20 The 2021 stoma associations committees of the 21 Stoma Published by: the journal would include reports from conference is to be held in beautiful Associations for the support you have Australian Council of Stoma Associations Inc. What clothing should I wear with a stoma? by Nandani, STN QLD 23 another successful ACSA Conference Brisbane and we are hoping that given me during this time. Website: www.australianstoma.com.au Celebrating 60 Years with a Stoma, by Geoff Rhodes 24 however due to COVID and the Email: feedback@australianstoma.com.au restrictions placed on travel between association delegates will once again Lastly, I would like to wish everyone My new life, The Gutless Wonder 26 states association delegates were be able to meet and discuss the a very healthy and peaceful Christmas Patron: Kylie’s desk, Assisting your Association with new reporting matters impacting them and their season. May 2021 be so much better His Excellency General the Honourable David unable to enjoy the delights of Hobart requirements, by Kylie McGrory 27 members. than this year. Hurley AC DSC (Retd) Governor-General of the this year. The Tasmanian Ostomy Commonwealth of Australia Hollywood’s First Ostomy, by R. S. Elvey, United Ostomy Association always put on a superb This is my last president’s message Associations of America 28 Executive Members: event and it was with some trepidation as I am stepping down at the annual Phobias 29 David Munro – President PO Box 370, Chermside South, QLD 4032 The Magic Bag, by Luke Escombe 31 Email: acsapres@australianstoma.com.au Rosanne meets Fred by Rosanne McKenna 33 Allen Nash – Vice-president Stomal Therapy Nurse - What’s in your cupboard? Update on the Department of Health’s 5/7-29 Bridge Rd, Stanmore NSW 2048 Email: acsavp@australianstoma.com.au by Monica Stankiewicz 34 Our last soirée by Barbara Pitt 36 review of the Stoma Appliance Scheme Robert Barsing — Treasurer PO Box 1254, Harvey Bay, QLD 4655 National Directory of Ostomy Associations 38 By David Munro Email: acsatreas@australianstoma.com.au National Directory of Ostomy Support Groups 39 Rosemary Quick — Secretary Directory of Stoma Appliance Scheme Product Suppliers 40 I PO Box 2427, Salisbury Downs, SA 5108 n July the Australian Department of assistance over the phone during and products and support they need and Email: acsasec@australianstoma.com.au Index to Advertisers: Health released an outcomes after office hours. There was also an that many found the Stoma Appliance Printing and Graphic design by: Ainscorp 10, 30 summary document for the acknowledgement of the good work Scheme Schedule long and difficult to Graphic Print Group consultation process they undertook in undertaken by volunteers within our navigate. Considering there is now Coloplast 17, 29, 35 Graphic House, 10–14 Kingston Avenue, late 2019. There were over 2000 stoma associations. Pleasingly it was some 3,830 products listed in the Richmond, SA 5033 ConvaTec 15 submissions received to the also expressed by many respondents Schedule this is not surprising. Phone: (08) 8443 8011 Dansac 22, 37 consultation with 92% of respondents that they consider it important that Most respondents were generally Hollister 5, 19 On the cover: The Magic Bag, by Luke identifying as ostomates. Responses associations are run by those with, or satisfied with access to the scheme Escombe. Read his story on page 31. Medline 4 were received from across Australia, with an understanding of, lived and products they receive with many with just over 70% of respondents Advertising enquiries to: The Editor Omnigon 2, 3, 12, 21, 26 experience of having a stoma and how noting that if the Scheme was not coming from New South Wales and Advertising & copy deadlines: Sutherland Medical 25 this gave them the added security of available, they would not be able to Western Australia. Of the ostomates afford the costs of the products. Not Issue Deadline 3M 9 personal privacy given the sensitive who responded just over half identified April 1st February nature of stoma issues for individuals. surprisingly the impact of out of pocket The ACSA Journal Ostomy Australia was established in 1992 through the inaugural August 1st June as living in a capital city. Considering costs, like annual membership fees sponsorship of ConvaTec Australia. The journal is published three times per year and is The consultation also highlighted the December 1st October available free to every member of an Australian Ostomy Association. the difficulties associations had in and postal charges, were of concern. telling ostomates about the role STN’s have and that access to STNs and further product education The Department is committed to consultation this is an excellent would assist in managing waste and working with ACSA and other Scheme Editorial: Contributions are welcome but authors must include their names and addresses. Full names Publication of an advertisement in Ostomy Australia does not constitute an endorsement of any response. may be published unless you request otherwise. Contributions should be sent as Word or PDF documents. products mentioned therein by the journal, ACSA, any stoma association, or any government department overuse of products. Many ostomates stakeholders to ensure the viability of Contributions may be edited in accordance with standard editorial practice. By submitting an article, connected with the Stoma Appliance Scheme. It was gratifying that most the scheme into the future. • including photographs or writing a letter to us, you are taken to have consented to its publication in Readers are strongly advised to obtain appropriate professional advice before using any products advertised. reported that they had not seen an both online and physical forms unless otherwise requested. We preserve past records of all previous respondents provided positive journals, including any reader-submitted copy (which may include the use of digital or cloud-based Privacy: The Australian Council of Stoma Associations Inc. has no control over the use of personal feedback in relation to their stoma STN since their surgery or that they storage securely hosted in Australia or overseas) in accordance with our Privacy Policy which may be particulars that ostomates provide to companies in response to advertisements contained in Ostomy viewed at http://www.australianstoma.com.au Australia. Unless the advertiser states otherwise, a company may use your name and address to contact association and the additional support had concerns their GP was not fully you about its products or services. While due care is taken to ensure the accuracy of published material, the Australian Council of Stoma services offered including monthly aware of how to care for ostomates. Associations (ACSA) accepts no responsibility for any information contained in contributions and specifically If readers do not wish to be contacted further, they are advised to tell the company this. Most companies disclaims liability for contributors’ claims or opinions. Readers are strongly advised to seek appropriate have said they will comply with such requests. This advice should be taken into account when responding meetings with other ostomates, Stomal Most respondents agree that the advice before acting on any medical, pharmaceutical or health-related information in this publication. to company promotions. Therapy Nurse (STN) clinics and Stoma Appliance Scheme provides the An electronic copy of this journal is available at www.australianstoma.com.au Complaints: Consumers who are concerned about the way in which stoma appliances are advertised Advertising: Advertisements are published in the form submitted by advertisers. The publisher does are entitled to lodge a complaint with the Therapeutic Goods Administration. Such complaints should be not check the veracity of claims made in advertisements and accepts no responsibility for their content. addressed to the TGA Complaints Resolution Panel, PO Box 764, North Sydney, NSW 2059. 6 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 7
Your say Dear Editor, I’ve just received the August copy of Ostomy Australia and really enjoy reading how other ostomates manage and deal Not all barrier with the highs and lows of living with their best friend. Get more confidence and more peace of mind so you can get on with life. Caring Letters to the editor My best friend is named Thor (for obvious reasons!) and for an ostomy can be a challenge – but it celebrated his first birthday here in hospital on 23rd August. It’s been a great first year and the best thing that could have films are created doesn’t mean you have to miss out on life. 3M™ Cavilon™ No Sting Barrier Film helps equal. happened to address my various problems. protect the tender skin around your stoma, Dear Editor, for improved comfort and pouch adhesion. The habit of naming our various add-ons always intrigues me Available on the Australian Stoma Appliance I was diagnosed at 50 years of age with bowel cancer, and I would love to hear what other people have come up with to Scheme in a convenient pump spray bottle. over the years since, I have had many colonoscopies, I’m make their friend feel part of the family! sure others that have had cancer of the bowel or follow up Thank you for a really interesting and informative magazine; Choose Cavilon No Sting Barrier Film. surgeries have also had multiple colonoscopies like I have. I look forward to the next issue in due course. Procedures related to the bowel usually require bowel Carol Bouwens, SA 3M Code: 3346 cleansing i.e. a bowel prep beforehand, the utilities that we use from day to day are too small or are often non-drainable, after SAS Code: 3544M consuming litres of the bowel prep solution, the quantities Volume: 28 mL expelled are far too great. Dear Editor, Allowance: 1/month My question to my fellow ostomates is how do we manage? In response to the question posed by Gary about stoma How can we make it better? There appears to be no generalised guards (August 2020 edition), it is true that as far as I’m kit available from the supply companies, my association does aware there are no producers in Australia. provide a kit however I think it could be improved. I did order one from somewhere in outback NSW at one stage, While I understand we are often different in our requirements, but it was obviously a scam and I lost my money. surely our companies, ASCA the AASTN and our associations Try it for yourself and I have sourced a reasonably inexpensive design from a experience the difference, visit can come up with a universal kit with directions. Often our doctors refer us for this procedure without the involvement of a delightful Irishman that accommodates all sizes of stoma and 3M.com.au/ostomy * Please note that samples will be the 1 mL size. stomal nurse. types of bag. I have included his website - Stoma Protector to request a free sample. Always read the instructions for use. Do not use on infected areas of skin. (https://www.stomaprotector.com/stoma-protector-design/). The If symptoms persist, talk to your health professional. Even with advice and suitable appliances we are left to carry price is a very reasonable but I believe the prices are either in US out the bowel prep alone and in private, having suitable 3M Australia Pty Limited 3M and Cavilon are trademarks dollars or euros. Delivery cost is next to nothing. 3M.com.au/ostomy ABN 90 000 100 096 of 3M Company. © 3M 2019 instructions would greatly assist. Phone 1300 363 878 All rights reserved Ostomates living in rural and remote areas don’t always have I hope this helps Gary! access to a stomal nurse. Even in a major city alone this can be Dr Lachlan Mairs BVSc PhD, NSW a very testing procedure. I suggest if you have experienced difficulties please speak up, it’s the only way we can expect changes. It’s demoralising and stressful if things go wrong. Surely I’m not Dear Editor, the only one that’s had problems, and I guess many of us are too After reading the letter from lady nearly 80 with leakage embarrassed to complain. problems (April 2020 edition) I think I may have a solution and I intend to speak up, hoping that it’s not just me, I think that have sent photos of a contraption my husband fashioned for things could be a whole lot easier and less stressful. himself when having similar trouble. David Paterson, QLD Rae Carrick Dear Editor, I read with interest an article by Margaret Allan titled ‘The Importance of Zinc’ (August 2020 edition). It dealt with nutrition for ostomates and the importance of Zinc in the diet. As a result of many bouts of chemotherapy etc to cure bowel cancer, my husband’s skin was left dry and scaly especially on his arms, with patches of hair turning white. He also suffered from bruising from taking blood thinners. His surgeon recommended using zinc cream (Sudo Crem) on the affected areas. The results were amazing. His surgeon had his patients use it on their ulcers and it worked where nothing else did. Ostomy Australia does not endorse the contents of readers’ letters nor do we Sudo Crem is available on the Stoma Appliance Scheme vouch for the accuracy of any claims made in those letters. Readers should Code 9821 not rely on any such claims in the absence of medical advice and should consult their treating doctors prior to embarking on any course of treatment. I thought that this was worth mentioning in the hope that it might help someone. Write to us: send your letters to the Editor PO BOX 267, As always, thanks for a great and informative Journal. Gosnells WA 6990 or email: journal@australianstoma.com.au Jan Driscoll, NSW 8 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 9
CONFIDENCE ® Congratulations Gerry Barry NATURAL ADVANCE – 50 years as QSA President By Kylie McGrory During Gerry’s first 14 years as QSA to provide the effective distribution of President, the association’s ostomy appliances under the Stoma membership numbers increased Appliance Scheme. The first paid WITH EXTRACTS OF steadily and so it was agreed in 1984 employee of QSA was appointed that ALOE VERA that the association should move into its year and Gerry developed the present own rooms. Under Gerry’s guidance operational concept of allowing the and vision, the association purchased manager and staff to take responsibility its first property: a two storey house for all operational matters, while situated on Newmarket Road, Windsor providing strategic direction and on the Brisbane’s north side. The house high-level decision making both was named ‘Grayson House’ after the personally and through the Executive association’s first secretary and Committee and Board. Celebrating matriarch, Mrs Grayson. For the rest of In 1998 with membership numbers 50 years at the decade and into the next, the the anniversary still increasing consistently, it became (COVID safe association happily operated from the very obvious that the association had of course) ground floor of the house while the grown too large to continue to work upstairs floor was rented to tenants to from the ground floor of Grayson provide an additional revenue stream to T his year Queensland Stoma House. So Gerry, with the support of help support the operations of the the Committee, commenced searching Association Ltd reached an association. for a warehouse that would provide incredible milestone, celebrating the 50th anniversary of Gerry Barry as its Since 1960, QSA had operated additional space and goods handling President and Chairperson. successfully as a wholly volunteer facilities. The committee eventually organisation. In the early 1990’s settled on Unit 4/10 Valente Close Gerry was first introduced to ostomy however as Stoma Appliance Scheme Chermside as an appropriate site Adheres faster, in 1967 when, at age 29, he had surgery arrangements became increasingly because of its size (more than double to remove his bowel and to have a complex, Gerry foresaw that the Newmarket space), its central stoma created as a result of ulcerative Queensland Stoma Association’s future location and its proximity to the Prince colitis. As soon as he was discharged relied upon its ability to attract and Charles and Holy Spirit Northside from hospital, he joined Queensland retain skilled staff to support its Hospitals. Like Grayson House, the new stronger, longer Stoma Association, then known as QT volunteer workforce. So, in 1992 Gerry warehouse was double story and so the * Australia (Queensland Division), which was a very small peer support group of was instrumental in changing QSA from ground floor space was custom a 100% volunteer organisation to one only about 70 members. Because of his using a small number of paid employees Continued page 13 background as a qualified accountant and university lecturer he was quickly recruited to the QSA Committee and in The unique features of the Thinner and more flexible 1970, at 32 years of age he was elected Confidence® Natural Advance Stronger and faster adhesion as Association President. In the early hydrocolloid can help Easier removal, with reduced residue days, the association was based in a prevent leakage and sore skin: Closed, drainable and urostomy room at the home of its then Secretary, bags are available Mrs Veronica Grayson, and there was only a very limited range of about ten appliances and other pharmaceuticals, For free samples call Toll Free 1300 784 737 (NZ 0800 100 146) all of which had to be purchased by or visit www.ainscorp.com.au members. As legend has it, Gerry had agreed to act only temporarily as President following a request by then President Harold Hayden to take 12 months leave. 50 years later, Gerry is still waiting for Harold to return … and is Gerry with wife Yvonne at yet to find anyone else to fall for the Government House after receiving same trick he did! his Member of the Order of Australia ® Registered trade mark of Salts Healthcare Ltd. © Salts Healthcare Ltd 2020. Products and trade marks of Salts Healthcare Ltd are protected by UK and foreign patents, registered designs and trade marks. *Than previous Salts Healthcare hydrocolloids. 10 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 11
Associations commenced, it was provided leadership for the association obvious that the distribution framework as it navigated its way from having just was under scrutiny by the Department 70 members operating out of a small of Health. Gerry recognised the threat to room in 1970 to the great association it QSA and agreed that it was time for the has become in 2020 with over 4,000 association to reconsider its legal members and its own spacious m to Perf sfor structure and to adopt one which would n orm premises and property investments. He T ra provide an enhanced level of assurance acknowledges that he has been able to to government that the associations continue with his role as QSA President governance and capability was and Board Chairman for so many years consistent with what could reasonably eakin because of the assistance and support be expected from an organisation of dedicated and competent committee dealing with taxpayer funds. Together, Cohesive® members over the years, and through Gerry and QSA Manager, Kylie the support of an outstanding team of McGrory, worked to convert the legal staff and volunteers. Most importantly, seals structure of the association from an Fr o m gel Gerry’s achievements at QSA could not Incorporated Association to a Company Continued from page 11 have been possible without the support Limited by Guarantee, giving it access iv e and understanding of his very patient to a wider range of government and ab outfitted for QSA operations and the wife Yvonne and his four children Mark, or ct commercial benefits. The change in be te mezzanine floor developed so that it s pro structure also provided the impetus for Paul, Kevin and Cathy who have stood nt s e 1 t o could be rented for additional income al the decision to register QSA as an NDIS with him and encouraged his efforts (after quite a bit of arm twisting by over the past five decades. provider and in 2020, QSA became the Gerry). first Australian Stoma Association to be The members of Queensland Stoma By 2013, QSA membership had NDIS registered. Also in 2020, at the Association Ltd as direct recipients of reached 2,400 and was again bursting height of the COVID-19 pandemic, Gerry’s efforts and commitment over at its seams. It was a complete stroke of Gerry single handedly lobbied the the past 50 years are very fortunate to luck then that in that same year, Unit Queensland Government for financial have had and to continue to have such 1/10 Valente Close which was in the support to assist the QLD Stoma an incredible man at their helm. • same complex and which had nearly Associations with the additional costs of double the capacity of Unit 4 became Now I have confidence to get on with my life operating during a pandemic and available for sale. Despite the relatively successfully secured a grant which was high price tag of Unit 1, Gerry was of shared with all six Queensland ostomy the view that the extra space would be Need to invaluable for meeting the future needs associations. prevent eakin Cohesive® seals transform into a gel to of QSA and so recommended that the Gerry was also involved in ostomy embarrassing give the best protection against leaks. QSA committee take advantage of the activities at the national and international opportunity and negotiate to purchase level. He was ACSA President from leaks? the property. The committee accepted 1997 to 2010 and from 1994 to 2004 he As eakin Cohesive® seals absorb moisture Gerry’s recommendation and the new represented Australia at the International Ostomy Association and was a member they transform into a protective gel, which warehouse was purchased and of the IOA World Executive. safeguards against skin damage. redeveloped. In August 2014, QSA moved into Unit 1/10 Valente Close While Gerry is the first to admit that it which remains its home today. Gerry, has not always been smooth sailing eakin Cohesive® seals Transform to Perform. following his approach of using property during his 50 year tenure with QSA, it is to provide an additional revenue stream, clear that he has always had the vision convinced the Committee (and a and the determination to make a somewhat unenthusiastic manager) to difference to the wellbeing and quality of eakin Cohesive® seals absorb output up to 4x retain Unit 4 as a rental proposition. life of ostomates, not just in more than other seal on the market1. Although it did take 12 months to find a Queensland, but also throughout tenant for the ground floor space, Gerry Australia and internationally. This vision Absorbency matters most for preventing skin backed his judgment and this space is and determination was officially damage and stopping leaks. now leased to a long term tenant who, recognised when Gerry was invested as with the original tenant from the Unit 4 a Member of the Order of Australia (AM) mezzanine, is providing a substantial for his work with ostomy associations in If you would like more information or wish to try a free sample of the ongoing income source for QSA outside Queensland and nationally at a eakin Cohesive® Seals, please contact our Customer Service team today of its Scheme activities. ceremony at Government House on Gerry receiving the In 2019, 44 years after the Stoma 3 September 2008. painting as a gift after 25 years as AU 1800 819 274 info@omnigon.com.au Appliance Scheme product distribution Gerry’s success with QSA over the president in 1995 NZ 0800 440 027 www.omnigon.com.au through the Australian Stoma years can best be seen from the way he Reference: 1. McGroggan G, Haughey S, McDowell K. An absorbent, enzyme-inhibiting 12 | Ostomy Australia December 2020 seal reduces peristomal skin complications. Gastrointestinal Nursing 2018; 16(1):42-49. Ostomy Australia December 2020 | 13
ANZ ConvaTec Scholarships for Stomal Therapy Nurses announced C onvaTec ANZ is delighted to announce that three nurses have coordinate evidence-based care in the highly specialised area of stomal NEW Soft convexity... for when been awarded scholarships to take the therapy nursing. extra comfort is needed Graduate Certificate in Stomal Therapy ‘This is a very challenging area and Nursing, which commenced in July ConvaTec is delighted by the 2020. collaboration between the nursing As part of a collaboration between organisations to provide Vivian, Linda The Australian College of Nursing and Rochelle with the opportunity to (ACN), the Australian Association of progress their careers in Stomal Stomal Therapy Nurses (AASTN) and Therapy nursing’, explained Karen The New Zealand Nurses Organisation O’Connor, General Manager of (NZNO), the scholarships, provided by ConvaTec Australia and New Zealand. ConvaTec, will help support the nurses ‘The calibre of applicants was very to progress their careers in what is a high and we’d like to thank everyone dynamic and very demanding area. who applied. It was a hard decision for This year’s recipients, chosen by the the independent selection committee to nursing organisations’ committee, are make but we are sure that the three Vivian Nguyen who works within NSW recipients will really value and embrace Health; Linda (Ching Yi) Chen from The Therapy and Wound Management. the knowledge and leadership skills that Wesley Hospital, Qld; and Rochelle Inspired by her colleagues, she’s Pryce from Capital and Coast District enthusiastic about progressing her Health Board, NZ. career in Stomal Therapy Nursing. In New Zealand, Stomal Therapy Nurse, Rochelle Pryce, values her ability to deliver and co-ordinate evidence- based care for her patients, whilst staying abreast of new innovations that continue to shape the future of ostomy patient care. Each of the nurses has a clinical background and the completion of the Graduate Certificate in Stomal Therapy Introducing Nursing will provide them with the skills and expertise necessary to deliver and Convex the scholarships, ALL BODIES ARE DIFFERENT. Esteem®+ Soft Convex combines this course brings’. flexibility with a shallow convexity, and is designed to conform provided by ‘The scholarships are part of well to the body and be comfortable to wear. ConvaTec, will help ConvaTec’s commitment to improving Flexible Convexity: conforms to the body and helps improve the pouch stomal therapy care - valued at just over seal by minimising leaks Vivian Nguyen is a Wound and support the nurses $12,000 each, they bring an enormous saving to nurses’ keen to advance their Easy-View Window: for accurate positioning and observation Stoma Clinical Nurse Specialist who’s passionate about her work within the to progress their career. Filter: designed to help minimise odours and ballooning NSW public health system supporting careers in what is a ‘By supporting this specialist Safe Seal Clipless Closure: designed to make emptying and cleaning easy* highly vulnerable patients with complex education and pioneering trusted care needs, throughout the state. dynamic and very medical solutions, ConvaTec seeks to Linda Chen has been nursing for demanding area. help those with stomas to live the life For Customer Care and to order your FREE samples, call: more than ten years and recently they want’, she concluded. • Freecall 1800 335 276 (Australia) 0800 441 763 (New Zealand) became a Clinical Nurse in Stomal or email connection.au@convatec.com connection.nz@convatec.com Australia www.convatec.com.au New Zealand www.convatec.co.nz 14 | Ostomy Australia December 2020 *Drainable options only. ® /TM indicates trademarks of ConvaTec Inc. ©2020 ConvaTec Inc. AP-021235-AU May 2020 O576 Ostomy Australia August 2020 | 15
Vit amin D – an excus e Nutrition for Ostomates for ostomates to enjoy “After using Brava® Protective s ome s uns hine! Seal I have not experienced Free By Margaret Allan any leakage - everything Sample from the sun shining on a cholesterol is more secure.” Margaret advises both ostomates and the public on diet and health- precursor in the skin. This creates a Sean, 52 related matters. She is the director pre-vitamin molecule, which works its of the consultancy Nutrition For way slowly into the body. The pre- Ostomates. To contact her or read vitamin molecule must then become more nutrition articles supporting the health of ostomates, go to activated, which occurs through the www.nutritionforostomates.com.au action of the liver and kidneys. Skin exposure to sunlight accounts for more than 80% of the vitamin D in Brava Protective Seal T here has been a lot of focus on vitamin D in recent years, and with the body, but the skin exposure must occur when the sun is directly overhead. Proven to significantly reduce leakage good reason. It is a vitamin that provides many health benefits to Short periods of sun exposure are more effective at raising vitamin D levels than Vitamin D has many valuable functions in the body, and its effects are compared to other seals on the market 1 humans, yet it is estimated that more long periods. It should also be noted widespread. Vitamin D receptors have than 30% of Australian adults have that a Sun Protection Factor (SPF) of 8 been found in cardiac tissue, muscle Brava Protective Seal delivers a 50% reduction in leakage under the seal after 24 hours1 inadequate vitamin D status. or higher reduces vitamin D synthesis tissue, the pancreas, the brain, the skin Brava Part of the reason for this is that the significantly. Vitamin D stores from and throughout the immune system. Protective Seal Seal A Seal B Seal C Seal D Seal E Seal F Extra-wide number of foods naturally containing summer synthesis alone are not The nervous system and reproductive 0% now significant amounts of vitamin D is generally sufficient to meet winter organs are also target tissues of 1% available 2% limited. It is primarily found in animal needs, and many people become vitamin D. 3% 5.5% 6.6% 7.8% 8.2% 8.5% 10.5% 11.1 % % leakage area foods, such as fatty fish (salmon, vitamin D deficient during the winter The primary function of vitamin D is 4% 5% herring, mackerel, sardines), eggs, months. Interestingly, the sun imposes to raise blood concentrations of 6% 7% butter, cheese, liver, meat and milk. no risk of vitamin D toxicity, as important bone minerals such as 8% However, these foods only provide small prolonged exposure to sunlight calcium and phosphorous. However, 9% 10% amounts. Most adults are likely to obtain degrades the cholesterol precursor in vitamin D has also been shown to 11% only 5-10% of their vitamin D the skin, preventing its conversion to the 12% requirements from food, and a vegan active vitamin. Continued page 18 diet cannot meet vitamin D needs. A better fit means greater confidence The good news is that humans are Creating a tight seal between your stoma and baseplate is key to preventing leakage and protecting against skin issues. not totally reliant on food sources to Brava Protective Seal moulds into skin dips, creases and folds to improve appliance fit by sealing the gap between your obtain vitamin D, as we have the stoma and baseplate, for a more secure fit. Brava Protective Seal is easy to shape, stays firmly in place, comes easily capacity to synthesise the nutrient and cleanly away, leaving minimal residue behind. ourselves. This is very beneficial for As stomas and bodies come in various shapes and sizes, we’ve added two extra-wide seal sizes to the range. ostomates. The absorption of adequate An extra-wide seal may be a good fit if: amounts of nutrients is an issue for • you have an irregular stoma shape • your surrounding skin area is moist many ostomates, and so a nutrient that • your baseplate adhesive breaks down • your surrounding skin area has scarring is not dependent on food sources or or deep creases and folds • you require a greater area of coverage intestinal absorption to maintain adequate status is positive. The other reason for inadequate vitamin D status in Australia is the To receive your free samples, contact Coloplast today successful public health campaigns coloplast.to/AU-TryBrava 1800 531 823 recommending that Australians avoid too much sun exposure to reduce their skin cancer risk. The synthesis of 1. TM7064 Leakage test. Coloplast. Data on file. Data from 2019. VV-0283280 vitamin D depends on ultraviolet rays Continued page 20 Coloplast Pty Ltd, PO Box 240, Mount Waverley, VIC 3149 Australia www.coloplast.com.au The Coloplast logo is a registered trademark of Coloplast A/S. ©2020-09 OST711. All rights reserved Coloplast A/S 16 | Ostomy Australia December 2020 Ostomy Australia August 2020 | 17
Continued from page 16 Another factor that can lead to the incidence and severity of these deficiency of the vitamin is obesity, as illnesses. maintain muscle strength, having a the vitamin becomes trapped in the fat It’s important for ostomates to ensure particularly positive effect on skeletal cells and is therefore not available to that their vitamin D status is adequate to muscle, and to enhance the immune the body. be supportive of good general health, system’s response to both bacterial and Infants who are breast fed by vitamin especially if the reason for becoming an viral agents. D-deficient mothers are also at risk of ostomate is cancer or Crohn’s disease. Some people are at greater risk of deficiency themselves. In the case of a urostomy, poor developing a vitamin D deficiency than Deficiency symptoms for vitamin D immunity and repeated urinary tract others. include muscle aches and weakness, infections can be an issue, and this may People with malabsorption issues are pain in the lower back, pelvis and legs, be reflective of low vitamin D levels. at risk of deficiency, which can be the case for many ileostomates. Vitamin D is a fat-soluble vitamin and therefore and disorders of calcium metabolism such as osteoporosis and osteoarthritis. Adequate sun exposure is a critical step in the synthesis of vitamin D. The A Sense of Observational studies have also Cancer Council has developed requires a fat-functioning digestive guidelines on how much sun exposure Security Means system to be absorbed from food. This indicated a correlation between low is appropriate in different regions of includes adequate production of bile vitamin D status and: neurological Australia. The trick is to get enough sun from the liver and digestive enzymes issues such as schizophrenia; mental exposure at the right time of day to from the pancreas. Any diseases or health conditions such as depression; synthesise sufficient vitamin D, but not issues that affect the ability of these organs to perform their functions will respiratory illnesses such as asthma; diseases of the cardiovascular system enough to increase the risk of skin cancer. Everything affect absorption of vitamin D from Generally, in Australia, the food, including those with chronic recommendation is for moderately kidney failure. fair-skinned people to walk with arms The elderly, sick, debilitated exposed for 6–7 minutes mid- and disabled with lack of morning or mid-afternoon in access to sunshine are summer, and with as much bare especially vulnerable, as skin exposed as feasible for well as those who are in 7–40 minutes (depending on good health but spend latitude) at noon in winter, Adapt barrier extenders little time outdoors. on most days. This is We know a sense of security and leakage prevention are top Elderly people in considered likely to be particular do not priorities for you. helpful in maintaining always habitually adequate vitamin D levels consume foods Adapt barrier extenders offer an additional layer of protection in the body. containing vitamin D, However, if vitamin D for those concerned about lifting around the edges of their skin such as fatty fish and status is compromised by barrier. A thin and flexible hydrocolloid formulation conforms milk, and tend to have any of the issues discussed inadequate exposure to easily to body contours. above, then supplementation direct sunlight to synthesise may be required, and during the vitamin. With advancing Three convenient shapes make it easy to create a custom winter it may be essential. Care age they are also less efficient at frame around the skin barrier. The end result is enhanced needs to be taken in choosing a synthesising vitamin D when they Three strips create a custom supplement to ensure its appropriate security, when it matters most. are exposed to the sun because their frame around your skin barrier. and able to be fully absorbed by your skin, liver and kidneys lose their intestinal tract after stomal surgery. capacity to make and activate the Code Monthly Allowance SAS Code (for example high blood pressure and If you need assistance in this regard, vitamin. A Tasmanian study revealed stroke); infectious diseases such as please contact me to schedule a 79402 60 per month 80141Y that 85% of people aged 60 years were urinary tract infections. consultation. vitamin D deficient. Vitamin D also reduces expression of In these warmer months enjoy the Another group of people at risk of autoimmune conditions such as Multiple summer sun to synthesise some To order your FREE SAMPLE vitamin D deficiency are those with dark valuable vitamin D. Just do so safely skin, as the pigments in dark skin Sclerosis, Crohn’s disease, Rheumatoid and appropriately. Moderation is contact Customer Care on: reduce vitamin D synthesis. It can take Arthritis, and Type 1 Diabetes, and demonstrates an inverse relationship the key! 1800 880 851 up to six times longer for a person with Wishing you good health and happy dark skin to produce the same amount with cancers of the breast, prostate, www.hollister.com.au days, of vitamin D as a person with colon and skin. Therefore, a higher lighter skin. vitamin D status is thought to reduce Margaret • Prior to use, be sure to read the instructions for use for information regarding Intended Use, Contraindications, Warnings, Precautions, and Instructions for Use. The Hollister logo, Adapt, and “Healthy skin. Positive out- comes.” are trademarks of Hollister Incorporated. © 2020 Hollister Incorporated. AUH143. October 2020. 18 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 19
‘OH SH*T!!! I HAVE CANCER’ By Sabrina Rojas B efore I was diagnosed with bowel cancer in November 2019, I had always had issues with my bowels. They are my angels. Unfortunately, my marriage ended In early February I was rushed to emergency room in the wee hours of the morning with a severe bowel the stigma often associated with having a stoma bag. You can buy my book www.222mindset.com.au/my-book tumultuously in 2011, but I was lucky in My book will show you how I mastered Some of my earliest memories are of my love in my late 30’s and I married my obstruction. I needed a second surgery the power of gratitude and the power of You can book me for mum taking me to a paediatrician to amazing husband John. We live in the and it was touch and go. It was much clarity, igniting the warrior within to be able Keynote Address and Half Day help with my severe constipation. I can beautiful Hunter Valley in New South too soon from my last surgery. to conquer ANYTHING life throws at you, Sessions remember being forced to eat very Wales, Australia. I am lucky to be alive today. I decided resulting in living a life that you are in love with every day. You can contact me grainy, fibrous gunk that almost always that if I survived this ordeal, I would In November 2019, I was diagnosed E: sabrina@222mindset.com.au made me throw up. write a book and share my experiences This is a snippet of some feedback I with bowel cancer and my entire world W: www.222mindest.com.au Throughout my teen years, I had to help as many others as possible. By received about my book and it brought imploded in a split second. I could not opening myself up and showing this tears of joy to my eyes: P: +61 411 056 123 bouts of severe cramping but when the believe that at the age of 44 I faced the vulnerable part of my life on my social pain passed, I was fine. It wasn’t until I very grim and too real possibility ‘What is striking about Sabrina’s life You can connect was 19 that I was diagnosed with media platforms and blog, I discovered story is her essence, courage, resilience, with me online of dying. a world full of other ostomates, cancer determination, gratitude for life and Crohn’s disease. Instagram: www.instagram.com/ survivors and IBD warriors that were all passion to be able to influence and make Crohn’s is one of those diseases that sabrinarojas_222mindset ready to support me on my journey a difference in people’s lives. Sabrina is a has no cure and management by way of Facebook: www.facebook. as well. true inspiration and through her sassiness, drugs, lifestyle and surgery (a subtotal com/222mindset I truly am blessed. spirit and warrior like bravery she reminds colectomy at the age of 22) is what I’ve YouTube: https://www.youtube. us all that we too have a warrior within us. endured, like many others, every day com/channel/UCMh7wLrQDtF_ We can achieve anything we want in life as since. About my book vmhbOJRaX1A/ long as we have the right mindset.’ Before my surgery, my My book “OH SH*T!!!…I HAVE gastroenterologist explained that due to CANCER” takes you through my life scarring from my surgery, I should try journey and my message will hopefully and have children as soon as possible inspire you. I share the good, the bad as I might not get that chance when I was older. and the ugly with tears, cheekiness and laughter with powerful life lessons and messages throughout. Looking for a comfortable leak free fit? I was already married, I had married the year before at the age of 21 and as I do not hold back with explicit details Aurum® Profile stoma pouches about living life with a stoma bag. I soon as I recovered from surgery, we demonstrate how to have body tried to fall pregnant. I was fortunate to confidence for women and men living with be blessed with two beautiful children, a stoma bag and I am proud to normalise my son Jordan and daughter Chelsea. Designed for lumps and In the months following my diagnosis I endured an unimaginable amount of pain, despair, grief and anguish all leading up to the life changing surgery that would completely remove my bumps, rolls and scars, colon, rectum and anus; and hopefully all the cancer cells. This was booked in creases and dips. for 13 January 2020, and so I had about five weeks to absorb my new reality and overcome the fear of being forced to live CONTACT US TODAY FOR A FREE out the rest of my days with a permanent ileostomy. I was terrified of SAMPLE THAT CONFORMS TO having a stoma bag attached to my stomach. YOUR CURVES COMFORTABLY I recovered from the surgery well and decided to name my stoma Stella. I was handling Stella with a positive attitude, some laughter and a truly gracious mindset for still being alive. Care Solutions AU 1800 819 274 info@omnigon.com.au NZ 0800 440 027 www.omnigon.com.au 20 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 21
What clothing should I wear with a stoma? By Nandani, STN QLD Stoma Skin Soul Feeling comfortable in your own skin Lauren, Stoma Advocate H aving a stoma should not stop you from wearing your usual clothing. Initially you may feel more comfortable in loose fitting clothing due to the swelling in your abdomen after • men may prefer shirts that sit out over their pants or shorts. A patterned business shirt may be more distracting than a solid colour, and darker colours often more camouflaging your surgery. It is normal to feel anxious and many ostomates • there are some companies who specialise in clothing for often feel self-conscious thinking others will see their pouch. people with a stoma. Some even have an internal pocket to The following tips may be useful in helping you become more allow the pouch to sit comfortably without restriction. comfortable in everyday clothes and reduce the outline of your pouch under clothing. INTIMATE APPAREL OR LINGERIE • Use of a lacy or skin coloured bandeau or band can be CLOTHING CHOICES used over the pouch • clothing can be fitted but not too tight as this will restrict the • There are companies who specialise in lingerie or flow of the output and could cause leakage undergarments for men and women who have a stoma. • pants, trousers, skirts or underwear should either sit below Here are a couple of websites that may help with choices: the pouch or completely over the pouch. High waisted www.knightwear.com.au and www.ostomateactive.com.au pants, jeans or skirts are great. Ladies may find full briefs but an internet search will deliver you a lot more options. NovaLife TRE ostomy barriers are designed more comfortable, and men often feel the boxer style underwear gives more freedom for the pouch SWIMWEAR Wear what you will feel comfortable in. Patterned materials to help keep your skin naturally healthy • try not to have clothing pressing on the pouch as it will are often more camouflaging and ruching or draped fabrics reduce the amount the pouch can hold and could cause a also provide more freedom across the abdomen. leak more easily • For women, a one piece or high waisted bikini may be an • Stay in place, yet easy to remove • use of a belly band, tube top, bandeau or a maternity type option band over the pouch can help to provide some support and • For men, a rashie or swim shirt with board shorts may be a • Help absorb stoma output and perspiration to protect your skin reduce the outline of the pouch under clothing good option • a singlet under clothing can also help to conceal, keeping • Help protect the skin from digestive enzymes by maintaining There are also various pouch covers available online. things flatter against the abdomen the right pH level of the skin • use of patterns, pleats, layers, ruched or bunched up BELTS Flat • Soft Convex • Convex • 2 Piece clothing can help to distract the eye from the pouch under • Avoid the belt buckle sitting directly near the stoma. It may your clothing cause damage to the stoma. Position the buckle slightly off For more information about NovaLife TRE skin barriers • layering your clothing can also help distract attention from centre away from the location of the stoma and to order a free sample, please call Customer Care the abdomen, and allow for looser fitting garments as the • Suspenders or braces could also be an option. top layer And, always remember that you can still enjoy life to the full on 1800 880 851 or visit www.dansac.com.au • ladies may find flowing dressings are often very with a stoma. comfortable, especially in the warmer summer months. Fabrics that do not make you sweaty are also more Source: https://omnigonconnect.com.au/advice/what- Prior to use, be sure to read the Instructions for Use for information regarding Intended Use, Contraindications, Warnings, Precautions, and Instructions. comfortable in warmer weather clothing-should-i-wear-with-a-stoma/ The Dansac logo, NovaLife, and TRE are trademarks of Dansac A/S. ©2020 Dansac A/S. DAN045. August 2020. 22 | Ostomy Australia December 2020 Ostomy Australia December 2020 | 23
Celebrating 60 Years with a Stoma By Geoff Rhodes NEW YEAR, R eaders might wonder at the title of this article. What could computer system and spent an interesting year coming to NEW BRAND, A Worldwide brand now in NEW GARMENTS there be to celebrate about living with a stoma for 60 grips with this new-fangled technology. years. Well, in my case, everything. About 10 years ago I wrote a piece for the journal entitled In 1980 I was looking for a different challenge as my opportunities in the Board in Sydney were limited and we had Australia ‘A Lucky Life’. Now 10 years on I’d like to expand on that just had our daughter in July 1979 and were building our first article and my philosophy of ‘I like birthdays because they sure house on the northern outskirts of Sydney. In 1980 I took a beat the alternative’. transfer to Department of Defence in an internal consulting I was nine years old when my specialist informed my area as they were looking for someone with IT experience. parents and me that an ileostomy was the only course of This was the start of a very exciting and challenging five years. Claim your new year support garment allowance from the 1st January 2021 treatment left for my rapidly deteriorating ulcerative colitis. My area was tasked by the Royal Australian Air Force (RAAF) Surgery was performed on 2 December 1959 (my mother’s to investigate how computers could modernise their birthday) and I spent Christmas 1959 in RPA hospital operational command and control. I was the junior member of recovering. Surgery was successful and dad and I went about exploring the wonderful world of the primitive appliances then our team working in conjunction with RAAF officers based at Operational Command in Glenbrook. WE’RE HERE TO Your are eligible to claim up to 6 Breathable pants or 3 Shield belts, or mix and match with a combination of both. available. We quickly worked out that my skin was allergic to the rubber appliances predominant at the time. We however This project took me around Australia, usually in the back of a Hercules transport aircraft gathering information on how the SUPPORT YOU (1 Shield belt = 2 Breathable pants) discovered through the local stoma association (now ONL) that one of the members made flanges (base plates) from a plastic various element of the RAAF operated. Whilst I was engaged material and using these in combination with Skin Bond on this the senior member of the team was promoted to Our Customer Service team can help find the most suitable garment for you. Cement, a belt and plastic bags held in place with a rubber Canberra and I took his place. Also, around this time the Royal ring, we had a workable appliance. Australian Navy became aware of the project and asked us to I returned to my local primary school in 1960 and enjoyed do a similar project for them. This saw me and my Navy 6 3 being able to do a whole lot of things including Cubs and teammate hitch a ride on a Hercules aircraft to Hawaii to look soccer that had previously been impossible. The nickname at US Navy systems. Two days in the back of a Hercules with ‘stinky’ was not endearing but at least I could actively play with an overnight at Kwajalein in the Marshall Islands proved a the kids who thought up that moniker. challenging exercise in stoma management but all worked I changed schools in 1961. This provided the opportunity to out well. Contact your meet new kids and experience new things including school In 1983 the Falkland War had concluded and the Royal Air association today for camps. Dad came along to help the teacher manage the class and me to manage my stoma. Force in the UK had developed a system that contributed your allowance significantly to the British victory. Our RAAF team applied to go I did OK at high school and ended up being accepted into to the UK on a fact-finding mission. The RAAF would not the medical faculty at Sydney university. After three years the authorise the cost of civil transport so my RAAF colleague faculty and I reached a mutual decision that my future career arranged for us to hitch a ride on another Hercules going to lay elsewhere. However, the next chapter of my life was UK via the USA which would allow us to spend four days with starting as Carol and I discovered our first child was on the way. I took on a series of jobs to pay the bills and in July 1972 the RA. The return journey took 21 days but was an incredible Breathable Range Shield Belt Or call our elder son was born. experience. By the middle of 1985 I had completed the work for RAAF Moderate Support Firm Support 1300 664 027 This gave me incentive to seek a more stable career and in and the Navy and was looking for opportunities outside the July 1973 I joined the Commonwealth Public Service. The medical for permanent employment proved challenging but I public service. I took a role with a Defence company in July was accepted into the Provident Fund but not the full 1985 but the position was in Canberra so the family moved to Superannuation Scheme. I worked in the Public Service Cooma where we had friends and relatives. I began a two- and-a-half-year commute from Cooma to Canberra but the 1300 664 027 For more information visit Board’s Sydney Office in areas ranging from recruitment to Mon - Fri 9am to 5pm, sutherlandmedical.com.au organisation and methods and picked up a diploma in average travel time each way was less than my commute time in Sydney. excluding Bank Holiday Organisational Psychology along the way. In 1979 I asked to work in the area of the Board managing the new personnel Continued page 26 24 | Ostomy Australia December 2020 Sutherland Medical, Unit 2, 195 Chesterville Road, Moorabbin VIC 3189 Ostomy Australia December 2020 | 25
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