STATE OF HEALTH AND CARE - THE NHS LONG TERM PLAN AFTER COVID-19 - Parth Patel, Chris Thomas and Harry Quilter-Pinner - IPPR
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Institute for Public Policy Research STATE OF HEALTH AND CARE THE NHS LONG TERM PLAN AFTER COVID–19 Parth Patel, Chris Thomas and Harry Quilter-Pinner March 2021
ABOUT IPPR IPPR, the Institute for Public Policy Research, is the UK’s leading progressive think tank. We are an independent charitable organisation with our main offices in London. IPPR North, IPPR’s dedicated think tank for the North of England, operates out of offices in Manchester and Newcastle, and IPPR Scotland, our dedicated think tank for Scotland, is based in Edinburgh. Our purpose is to conduct and promote research into, and the education of the public in, the economic, social and political sciences, science and technology, the voluntary sector and social enterprise, public services, and industry and commerce. IPPR 14 Buckingham Street London WC2N 6DF T: +44 (0)20 7470 6100 E: info@ippr.org www.ippr.org Registered charity no: 800065 (England and Wales), SC046557 (Scotland) This paper was first published in March 2021. © IPPR 2021 The contents and opinions expressed in this paper are those of the authors only. The progressive policy think tank
CONTENTS Summary...........................................................................................................................3 1. The NHS Long Term Plan, Covid-19 and the future ............................................6 2. The pandemic has derailed progress....................................................................9 2.1 Cancer......................................................................................................................9 2.2 Mental health...................................................................................................... 13 2.3 Cardiovascular disease....................................................................................18 2.4 Multimorbidity....................................................................................................24 3. How to build back better?.....................................................................................29 3.1 Ensure a sustainable workforce .....................................................................31 3.2 Resource the NHS to deliver and sustain transformation......................34 3.3 Empower integration from the bottom up..................................................36 3.4 Upgrade the digital NHS..................................................................................39 3.5 Fund and reform social care.......................................................................... 40 3.6 Level up the nation’s health...........................................................................42 4. Conclusions...............................................................................................................43 References.....................................................................................................................47 Appendix ....................................................................................................................... 54 Description of the NHS pandemic funding settlement financial model....54 Description of the polling sample.......................................................................54 IPPR | State of the health and care The NHS Long Term Plan after Covid-19 1
ABOUT THE AUTHORS Dr Parth Patel is a research fellow at IPPR. Chris Thomas is a senior research fellow at IPPR. Harry Quilter-Pinner is director of research and engagement at IPPR. ABOUT THIS REPORT This report contributes to IPPR’s charitable purpose of reducing the impact of illness and disease. ACKNOWLEDGEMENTS This paper forms part of IPPR’s Better Health and Care Programme, which builds on the Lord Darzi Review – IPPR’s ground-breaking independent review of health and care. The authors would like to thank the founding sponsors of the programme - Gilead, AbbVie, GSK, AstraZeneca, CF and Siemens Healthineers – and in particular the research partners for this report – AbbVie and Janssen. We would also like to thank Bristol Myers Squibb who supported the cardiovascular disease research in this report. Finally, we would like to thank CF for the analytics that made this report possible – without them, this work would not be possible. Download This document is available to download as a free PDF and in other formats at: https://www.ippr.org/research/publications/state-of-health-and-care Citation If you are using this document in your own writing, our preferred citation is: Patel P, Thomas C and Quilter-Pinner H (2021) State of health and care: The NHS Long Term Plan after Covid-19, IPPR. https://www.ippr.org/research/publications/state-of-health-and-care Permission to share This document is published under a creative commons licence: Attribution-NonCommercial-NoDerivs 2.0 UK http://creativecommons.org/licenses/by-nc-nd/2.0/uk/ For commercial use, please contact info@ippr.org 2 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
SUMMARY After a decade of austerity, The NHS Long Term Plan was meant to be a turning point for healthcare. The 10-year plan, published in early 2019, looked to break with a decade of declining performance and growing financial pressure. It came with a funding settlement amounting to an additional £20.5 billion for day-to-day NHS spending by 2023/24. And it outlined ‘ambitious but realistic’ reform plans – based on improving prevention, driving integration and universalising best practise – to ‘give everyone the best start in life; deliver world-class care for major health problems, such as cancer and heart disease, and help people age well’. However, those plans have been severely disrupted by the coronavirus pandemic. Covid-19 was declared a public health emergency by the World Health Organisation just days before the first anniversary of The NHS Long Term Plan. As a result, before implementation could really begin in earnest, the NHS was thrust into a significant crisis. It has spent the past year contending with overwhelmed acute sites, severe strain on its workforce, and the highest excess mortality since the second world war. In order to manage these new pressures, the NHS has rationed access to non-urgent care and patients themselves have often refrained from seeking urgent support. Our new analysis shows the scale of the damage done by the pandemic across several major health conditions. The impact of Covid-19 is a significant backward step for people with cancer, mental illness, cardiovascular disease and multiple long term conditions. TABLE S1 The impact of the pandemic on The NHS Long Term Plan’s key targets in cancer, mental health, cardiovascular disease and multimorbidity care Major health The NHS Long Term Pandemic disruption condition Plan target Fall from 44 to 41% of cancers diagnosed 75% of cancers diagnosed while while still highly curable, leading to 4,500 Cancer still highly curable (by 2028) avoidable cancer deaths attributable to the pandemic Access reduced and over 1.8m new referrals 2m more people accessing Mental illness expected by 2024, cancelling out planned mental health services (by 2024) gains on ‘parity of esteem’ Highest cardiovascular mortality in a decade, Prevent 150,000 heart attacks, Cardiovascular with a further 12,000 avoidable heart attacks strokes and vascular dementia disease and strokes expected by 2025 if missed cases (by 2029) treatment initiations are not made up for Integrate and personalise care by Over 31m fewer GP appointments than Multimorbidity expanding primary care (by 2024) expected since the pandemic began Source: IPPR analysis This large-scale disruption is far from the start The NHS Long Term Plan intended. IPPR | State of the health and care The NHS Long Term Plan after Covid-19 3
There is an urgent need to recapture the trajectory of The NHS Long Term Plan. As we emerge from the worst of the Covid-19 pandemic, the NHS undoubtedly needs to address the growing backlog of care. But Covid-19 should not become an excuse for low ambition. Despite the rhetoric around the NHS, it is outperformed in terms of healthcare outcomes by most comparable countries. World-class healthcare must remain the overall goal. The government must turn ‘build back better’ from rhetoric to reality. This will require bolder health policy and an eye for innovation. ‘Building back better’ requires important shifts in the government’s approach to health policy. First, we need bold action that restarts progress in health. It is time to fast-track ambitions to deliver a sustainable workforce, a functioning social care system and a stronger approach to health inequalities. Second, we need to harness the opportunities created by the pandemic. Our analysis shows how diffusion of digital care, more intelligent regulation and new ways of working together have led to improvements. We recommend a package of six ambitious changes to ‘build back better’. These policies are designed to do three things. First, they intend to ensure the pandemic does not cause lasting damage to healthcare services for future generations. Second, they look to bring in areas – like social care and public health – that are not covered in The NHS Long Term Plan, but which Covid-19 has harshly reminded us are integral to healthcare. Third, they look to capture the innovations that occurred during the pandemic. Together, our recommendations form a £12 billion blueprint to ‘build back better’ health and care. Ensure a sustainable workforce: The pandemic has demonstrated that we can do little in health without our workforce. But even before Covid-19, workforce shortages were considered the key threat to delivery of The NHS Long Term Plan. We recommend a new deal to catalyse recruitment and retention – including a pay rise, a new wellbeing offer, and improved training and progression. Fund the NHS to deliver and sustain transformation: The funding settlement for The NHS Long Term Plan did not account for a pandemic. Enabling the transformation to a world-class service means avoiding a trade-off with the pandemic care backlog. Our estimates suggest the NHS needs an additional £2.2 billion per year until 2025/26 to meet the elective care backlog and rise in mental illness. No longer can the NHS be expected to fund increasing services out of efficiency savings that come at the expense of resilience, sustainability and transformation. Empower integration from the bottom up: Integrated care has been an ambition in health policy for decades. But it has been stunted by a centralised command-and- control approach that has not aimed to foster a collaborative culture and permit local determination. We recommend a shift to bottom-up integration – through system- focussed regulation, reformed financial incentives and permissive legislation. Upgrade the digital NHS: Digital care has been a revelation of the pandemic. To harness its benefits, problems around inequalities in access and quality of care will need to be addressed. That means providing internet access as a basic public service, understanding patient preferences and investing in the NHS’s digital infrastructure. Fund and reform social care: The NHS is at its best when social care is at its best. That requires bold reform – including free personal care for everyone aged 65 and over, improving the quality of social care, better pay for care workers, and immigration rules that do not lead to catastrophic shortages. Level up the nation’s health: Finally, we need to reduce healthcare need wherever possible, through better public health and reduced health inequalities. Health must form a key part of the government’s post-pandemic ‘levelling up’ agenda. To achieve this, we recommend a public health cabinet committee to co-ordinate policy functions across Whitehall, and greater devolution of funding and powers to local government to tackle on the primary determinants of health. 4 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
TABLE S2 Summary of the investment required to ‘build back better’ health and care Policy Additional expenditure (£bn) 5% NHS staff pay rise (excluding consultants and senior managers) 1.4 NHS pandemic funding settlement 2.2 (until 2026) Capital investment 1.4 Internet access reimbursement 0.3 Living wage guarantee for care workers 1 Free personal care for ≥65 years 5 Restore public health grant 1 Total 12.3 Source: IPPR analysis IPPR | State of the health and care The NHS Long Term Plan after Covid-19 5
1. THE NHS LONG TERM PLAN, COVID-19 AND THE FUTURE The NHS is the closest thing the English people have to a religion Nigel Lawson, former chancellor Public pride in the NHS binds the health service to politics. It means bold manifesto pledges for tomorrow’s NHS are a feature of every election in recent history. Rarely are they met. This was especially true of the last decade. David Cameron’s government committed to deliver GP access 12 hours a day, seven days a week, and routine diagnostic imaging and hospital outpatient clinics at the weekend (Cameron 2015). This has not transpired, and his promise to ‘cut the deficit, not the NHS’ was fallacious. The NHS Long Term Plan is only the second time a vision for the NHS has been set out by the NHS – not politicians.1 It is a 10-year plan to improve quality of care and health outcomes in the context of an ageing population and widening health inequalities. It involves a set of targets, structural reforms and a funding deal worth £20.5 billion by 2023/24. 1 The first was The Five Year Forward View (2014) 6 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
THE NHS LONG TERM PLAN The NHS Long Term Plan, published in 2019, sets out a widely supported route-map to meet modern health challenges (relating to demographic and epidemiological changes), improve outcomes and achieve financial sustainability. It includes an extensive list of targets across several clinical areas. Key targets are: Major health Target Significance Timeline condition 75% of cancers diagnosed Cancer Improve cancer survival 2028 while still highly curable 2m more people accessing Improve access to mental Mental illness 2024 mental health services health care Prevent 150,000 heart Cardiovascular Improve cardiovascular attacks, strokes and vascular 2029 disease mortality dementia cases Integrate and personalise care Improve patient experience Multimorbidity 2024 by expanding primary care and outcomes It set out to deliver these targets by driving integration between services, shifting care into the community and adopting a range of new models of care. Key to this are integrated care systems (ICS), which are geographically defined partnerships that bring together providers and commissioners of health and care services (including NHS bodies, local government, voluntary and independent sector organisations). Accompanying The NHS Long Term Plan is a funding settlement amounting to an additional £20.5 billion for day-to-day NHS spending by 2023/24. This funding settlement is in line with IPPR’s funding ask in the Lord Darzi Review (Darzi 2018). It is the largest increase in NHS funding since the period between 2004/5 and 2009/10, after which funding stagnated due to austerity. The funding settlement does not cover workforce training or capital spend. Historically however, the challenge has not been setting out the plan for reform but delivering it. Previous reform agendas have also aimed to integrate care and improve outcomes, often relying on investment and structural reforms to achieve this (table 1.1). Some of these have delivered improvements but many have fallen short – and the UK still lags behind comparable countries in terms of the quality of care (Papanicolas et al 2019). Examples such as devo-health in Greater Manchester demonstrate that it is possible to drive improvement in England. Universalising this best practice is the challenge. This is what The NHS Long Term Plan aims to do. TABLE 1.1 Timeline of major NHS reforms and plans Reform Developed by Year NHS and Community Care Act Thatcher government 1990 The NHS Plan Blair government 2000 Health and Social Care Act 2012 Cameron government 2012 Five Year Forward View NHS England 2014 The NHS Long Term Plan NHS England 2019 Source: IPPR analysis IPPR | State of the health and care The NHS Long Term Plan after Covid-19 7
The Covid-19 pandemic has made an already difficult proposition harder. Waiting lists have ballooned, diagnoses missed, and treatments have been cancelled – and the full impacts of the second wave are yet to play out. This is partly due to the severity and extent of the UK’s Covid-19 epidemic. But it is also a result of austerity and efficiency drives that undermined the healthcare system’s resilience (Thomas 2020). The lack of spare capacity meant coping with Covid-19 has been at the expense of other health priorities. Recovering, and addressing the care backlog are urgent, but it would be a mistake to let the short term distract us once again. Recovery alone is not enough. The NHS has among the lowest number of doctors and nurses per capita, and lower rates of survival from cancer, heart attacks and strokes than most comparable countries (Papanicolas et al 2019). When it emerges from the Covid-19 crisis, we should make this a moment of progress for the NHS, not a regression to the mean. To not just recover, but to ‘build back better’. In this context, this report sets out to answer two questions: 1. What has been the effect of the Covid-19 pandemic on key targets in The NHS Long Term Plan? 2. What is required to ‘build back better’ health and care? We analyse the disruption – and innovation – that has arisen from the pandemic across the four leading causes of death and disability in the UK: cancer, mental health, cardiovascular disease, and multimorbidity. Each of these are central tenets of The NHS Long Term Plan, clinical priorities after the pandemic, and key to Conservative party manifesto pledges. Where possible, we model the impacts the pandemic has had on delivering The NHS Long Term Plan’s key targets for each health condition, and indicate where efforts should be focussed moving forwards. Although clinical priorities can change, the structures and policies that determine our ability to deliver them do not. To answer the second question, we examine the key policy areas that will determine the NHS’s ability to both recover from Covid-19 and deliver the targets set out in The NHS Long Term Plan. For each policy area, we have interrogated options and made recommendations we believe will create the conditions to ‘build back better’ health and care. In our conclusions, we discuss which of the policy priorities are most urgent. RESEARCH METHODS This report has been informed by: 1. descriptive and predictive statistical analyses using data from multiple sources including NHS Digital, Hospital Episode Statistics, Office for National Statistics and Public Health England 2. polling 172 senior NHS and local government officials (director and executive level) 3. over 50 semi-structured interviews and a policy roundtable with leading stakeholders across the NHS, government and the voluntary and independent sector 4. literature reviews of major research published on the impact of Covid-19 on health and care services. 8 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
2. THE PANDEMIC HAS DERAILED PROGRESS 2.1 CANCER Recent decades have seen significant efforts to improve cancer outcomes in England. This has included the creation of a national cancer action team and specialist cancer centres and alliances. These initiatives, alongside better population health and new diagnostics and treatment, have contributed to improvements in 1- and 5-year survival rates (Arnold et al 2019). However, the UK still lags behind its international competitors. For example, the International Cancer Benchmarking Partnership finds that the UK has the lowest 1-year survival rates for stomach, colon, rectal and lung cancer of the seven comparable countries in the partnership (ibid). Worse population health and late diagnosis are consistently identified as key factors for underperformance in England. The NHS Long Term Plan sets out ambitious aims to address these weaknesses through better prevention and earlier diagnosis (NHS 2019). It builds on previous reform plans, including The NHS Cancer Plan in 2000 and the Five Year Forward View in 2014, to improve cancer outcomes in England. In particular, The NHS Long Term Plan commits to widening screening programmes, earlier cancer diagnoses and accelerating access to treatment. Specifically, it aims to increase the proportion of cancers diagnosed while still highly curable (at stage 1 or 2) from around 44 per cent to 75 per cent by 2028. The overarching objective of this activity is to continue – if not increase – the rate at which 1- and 5-year survival rates for all major cancers are improving. Cancelled cancer care These targets have been severely disrupted by Covid-19 across the clinical pathway – from prevention to treatment (figure 2.1). IPPR | State of the health and care The NHS Long Term Plan after Covid-19 9
FIGURE 2.1 Disruptions to cancer services in 2020 due to the Covid-19 pandemic Screening Referrals Emergency presentation Presentation Stopped or 32% drop 36% drop in severely delayed in ‘2WW’ A&E attendances CT MRI Endoscopy Diagnosis 18% drop 40% drop 61% drop in CT in MRI in endoscopy Chemotherapy Radiotherapy Surgery Treatment 31% drop in 14% drop in 29–40% drop in attendances procedures operations 30% of cancer clinical trials disrupted Source: CF analysis During the first wave of the Covid-19 pandemic, breast, bowel and cervical cancer screening programmes were all paused. This could have resulted in over 3 million people missing their screening appointments (Cancer Research UK 2020). While screening has restarted and stayed open during the second wave, it is not yet back to full capacity and is facing a large backlog. Likewise, volumes of suspected cancer referrals through the urgent two-week wait pathway, which accounts for nearly half of all cancer diagnoses, dropped significantly during the first Covid-19 peak and recovered slowly. There were 280,000 fewer two-week wait referrals than expected in 2020, which could mean 14,000 missed cancer diagnoses last year.2 The good news is, as of December 2020 (latest data at time of writing), two-week wait referrals had recovered to normal levels for most cancers (figure 2.2). Suspected lung cancer referrals, however, remain 29 per cent below expected levels, perhaps reflecting the overlap in symptom profile with Covid-19. The full impact of the second wave of coronavirus on cancer referrals is not yet clear, although it is likely they will be far less affected than during the first wave. The recovery in diagnostics – particularly MRI and endoscopy – has been slower. Both are near 20 per cent below their 2019 levels, likely in part reflecting productivity losses due to new infection control procedures (figure 2.2). 2 Based on 5.3 per cent of referrals leading to a cancer diagnosed (Sud et al 2020) 10 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
FIGURE 2.2 Change in service levels in 2020 by month, compared to 2019 levels 20% 0% -20% -40% GP appointments -60% 2ww MRI -80% CT Endoscopy -100% er t r ne r ly il ch ay us be be r Ju b Ap Ju ar M g to m m Au M te Oc ve p No Se Source: CF analysis of NHS Digital 2021a Meanwhile, treatments (such as chemotherapy and surgery) were cancelled for thousands of patients during the first wave of Covid-19. This started to recover in the second half of 2020, until the severity of the second wave caused cancellations in 2021 once again. The full extent of these cancellations is yet to be revealed. Falling further down international rankings Delays in referral lead to delays in diagnosis. Delays in diagnosis lead to delays in treatment, and delays in treatment lead to premature deaths. Put simply: early diagnosis and treatment can make the difference between life and death (Cancer Research UK 2017). We have analysed the potential impact of late diagnosis on cancer outcomes for patients impacted by the disruption in services during the pandemic. We have focussed on three leading causes of cancer death: lung, colorectal and breast cancers. Across each we have assumed that the pandemic’s disruption between April and August 2020 led to diagnosis occurring one stage later than would otherwise have been the case. Our modelling finds that the number of cancers diagnosed in 2020 while they are still highly curable (stage 1 and 2) has fallen from 44 per cent to 41 per cent as a result of the pandemic’s disruptions to cancer services. It means we are travelling in the opposite direction to the early diagnosis target set out in The NHS Long Term Plan (figure 2.3). IPPR | State of the health and care The NHS Long Term Plan after Covid-19 11
FIGURE 2.3 Number of cancers diagnosed while still curable is dropping Anticipated distribution of cancer diagnoses in 2020, via stages, compared to 2017 and the 2028 target in The NHS Long Term Plan 80% 75% 2017 56% 59% 60% 44% 2020 41% anticipated 40% 25% 2028 target 20% 0% Stages 1–2 Stages 3–4 Source: CF analysis, NCRAS 2017 This will mean worse outcomes for people living with cancer in the coming years. Our modelling finds this stage shift in diagnosis will lead to an extra 4,500 cancer deaths this year. These are the result of disruptions in the first wave of the Covid-19 pandemic. At the time of writing, relevant data on the second wave was not available, but many regions are reporting cancelled cancer care. The impact on five-year survival rates is also significant. It is equivalent to a loss in progress of two, six and eight years respectively in lung, breast and colorectal cancer (figure 2.4). To put that in context, these cancer survival outcomes are comparable to those seen in South Africa, Turkey and Lithuania (before the pandemic). They are a substantial set-back to The NHS Long Term Plan’s objectives. FIGURE 2.4 The pandemic has reversed improvements in cancer survival Five-year survival over time and anticipated for 2020, by cancer type, in England Lung 14.2% 15.2% 15.3% 16.2% 12.4% 13.0% 13.5% 8.9% 10.4% 11.0% 7.4% 7.6% 8.0% 8.3% 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015 2020* 2016 2017 Breast 83.6% 82.8% 83.1% 84.1% 85.6% 85.0% 85.0% 85.3% 85.0% 78.1% 78.8% 79.6% 80.1% 80.7% 2005 2006 2007 2008 2009 2010 2011 2020* 2012 2013 2014 2015 2016 2017 Colorectal 51.5% 52.5% 53.5% 54.7% 55.5% 57.9% 58.3% 59.6% 59.6% 59.4% 59.0% 59.1% 58.4% 50.8% 2005 2006 2007 2008 2009 2020* 2010 2011 2012 2013 2014 2015 2016 2017 Source: CF analysis, ONS 2019a 12 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
However, worse outcomes are not inevitable. There has been innovation during the pandemic that could be a basis for building back better cancer care. In particular, Covid-19 has accelerated the shift to providing more care in the community and at home. Community diagnostic and treatment hubs have been set up to provide cancer care away from hospitals dealing with Covid-19. Many patients have been trained to self-administer treatment such as chemotherapy at home, and remote monitoring and digital consultations ensure clinicians can continue to provide coronavirus-safe care to cancer patients. Recovery and beyond The difference between a decade of lost progress, and catching up with international standards, is decisive policy. As previously recommended by IPPR (Quilter-Pinner 2020b), the greater provision of out-of-hospital cancer care should be maintained, and community diagnostic capacity expanded significantly further as recommended in Sir Mike Richards’ review of diagnostic capacity in the NHS (Richards 2020). It will both help tackle the backlog and deliver The NHS Long Term Plan’s earlier cancer diagnoses target. Cancelled cancer surgeries are one of the most urgent parts of the backlog to recover, given the clinical consequences of further delays. The most deprived regions of England experienced the greatest cancellations (Propper, Stockton and Stoye 2020); they must now experience the greatest recovery. Otherwise, regional health inequalities will entrench further. This builds the case for additional backlog funding, capital investment (such as more MRI, CT, endoscopy and radiotherapy equipment) and workforce expansion. Policy relating to funding and workforce is discussed further in chapter 3. 2.2 MENTAL HEALTH Mental health disorders are the leading cause of disability in working age adults (Vos et al 2020).3 This has profound impacts on the economy – mental illness accounts for at least £70 billion in lost output (Layard 2015). More importantly however, mental health is the single biggest factor influencing whether people are satisfied with their life (Layard et al 2014). Yet only around one in three people with mental health problems receive treatment (APMS 2016). Although this figure is trending upwards, it is some distance from ‘parity of esteem’ – a principle enshrined in law which states that mental health should be considered just as important as physical health, with equal care access and quality standards. Successive governments have made achieving ‘parity of esteem’ a key objective; most recently it was reiterated in the latest Conservative party manifesto. Rightly, The NHS Long Term Plan prioritised mental health. Building on the Five Year Forward View (NHS 2014), it looks to make progress on achieving ‘parity of esteem’. Accompanied by ringfenced mental health funding worth an additional £2.3 billion a year by 2023/24, The NHS Long Term Plan commits to providing mental health services to an additional 2 million people (including 345,000 more children and young people). In particular, it aims to expand drug and alcohol services, increase access to psychological therapies, and improve quality of care for those with severe mental illnesses (including joining up mental and physical health care). 3 including substance abuse disorders as mental health problems IPPR | State of the health and care The NHS Long Term Plan after Covid-19 13
A pandemic of mental health disease Social isolation, bereavement and job insecurity are fertile soil for mental illness. The pandemic has led to increases in both the risk factors that predispose people to mental illness, and to observable mental illness rates more directly. The starkest effects are in the mental health of children, likely related to school closures. The NHS Long Term Plan hopes to prevent 50,000 alcohol-related admissions to hospital in the next five years. This will be more difficult given the sustained increase in the number of people drinking alcohol at risky levels since the start of the pandemic (figure 2.5). This comes at a time when alcohol-related hospital admissions and drug-related deaths are already at record levels (NHS Digital 2020c; ONS 2020d). Loneliness, unsurprisingly, has been persistently high during the pandemic (ONS 2020a). Stress levels are also high across the population, but highest among families with children, people from minority ethnic backgrounds, and those with low incomes (Covid-19 Social Study 2021). As job support schemes come to an end and unemployment rises (particularly youth unemployment), we can expect further rises mental illness (Thern et al 2017). FIGURE 2.5 The number of people drinking at risky levels has increased during the pandemic Percentage of people drinking alcohol at risky levels: June 2018 to October 2020 25 20 15 10 5 0 18 18 18 8 19 19 19 19 19 9 20 ne 0 20 0 0 01 01 2 02 02 20 20 20 20 20 20 20 ce r 20 20 20 20 r2 Fe er 2 Oc t 2 r2 ry ril ne st er ne t ry ril be us e s be gu ua b gu b b Ap ua Ap Ju Ju Ju g to m to m to Au Au br Au br ce Oc Oc Fe De De Source: IPPR analysis of Alcohol Toolkit Study 2020 More directly, the mental health of adults in the UK has, on average, worsened by almost 10 per cent – and by 22.5 per cent for young adults and 13.3 per cent for women (figure 2.6).4 4 Based on the GHQ-12 survey, a validated, widely used screening instrument to detect common psychological disorders such as anxiety and depression 14 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
FIGURE 2.6 Adult mental illness rates have increased during the pandemic, particularly in women and young adults Population GHQ-12 (screening tool to identify common mental disorders) mean scores over time 16 Women 14 Men 16–24 12 55–69 10 Overall 8 6 4 2 0 9 6 5 7 8 0 /1 /1 /1 /1 /1 02 16 14 18 17 15 2 20 20 20 20 20 ril Ap Source: Pierce et al 2020 Children’s mental health has declined most sharply during the pandemic, with large rises in both common and severe mental illness rates (figures 2.7 and 2.8). This is likely attributable to school closures. Children with mental health problems are more likely to live in households that have fallen behind on their bills, are less likely to have a desk or reliable internet to study at home, and are more likely to have a parent or guardian who cannot work from home (NHS Digital 2020b). The doubling in the number of referrals for eating disorders, which have the highest mortality rate of any psychiatric disorder, is particularly worrying (figure 2.8). It has pushed waiting list lengths to a five-year high. Overall, it has been forecast that over 1.8 million new referrals to mental health services will occur in the next three years as a result of the first wave of the coronavirus pandemic (The Strategy Unit 2020). Although sufficient data is not available at the time of writing to understand the effects of the second wave on population mental health, it is very likely to sustain and amplify the trends described. IPPR | State of the health and care The NHS Long Term Plan after Covid-19 15
FIGURE 2.7 Children’s mental health has declined sharply during the pandemic Percentage of children with a probable mental disorder in 2017 and July 2020, 5–10-year-olds and 11–16-year-olds 20 15 2017 10 2020 5 0 5–10-year-olds 11–16-year-olds Source: IPPR analysis of NHS Digital 2020b FIGURE 2.8 Referrals for childhood eating disorders have doubled Number of completed urgent treatment pathways for childhood eating disorders over time 700 LTP target 100% 90% 600 80% 500 70% 400 60% 50% 300 40% 200 30% 20% 100 10% 0 0% 20 7 20 7 20 7 20 7 Q2 /18 Q3 /18 Q4 7/18 20 8 Q2 /19 20 9 20 9 20 9 20 0 20 0 20 0 20 0 20 1 2 /1 /1 Q4 6/1 /1 Q2 0/2 Q3 8/1 /2 Q4 8/1 Q1 7/1 /1 Q2 9/2 Q3 9/2 Q4 9/2 /2 16 16 16 17 17 18 18 19 21 1 1 1 2 1 1 1 1 1 20 20 20 20 20 Q1 Q1 Q2 Q3 Q1 Q1 Total number of completed pathways Per cent seen within one week Source: IPPR analysis of NHS England 2020a Rising demand, falling supply Demand far outstripped supply in mental health care well before the pandemic. The NHS Long Term Plan sought to rebalance this. But the rise in incidence of mental illness outlined above has been matched by a fall in supply, stifling all progress towards ‘parity of esteem’. This has set the NHS back several years in terms of progress. 16 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
Between March and August 2020, 235,000 fewer people were referred for psychological therapies compared to the same period in 2019 (NHS Digital 2021c). Even before the pandemic, the NHS was already off its trajectory to ensure 1.9 million adults are accessing psychological treatment by 2023/24; this will dent progress further. The good news is that quality of psychological care appears to have been maintained, with over 50 per cent of people recovering after therapy (The NHS Long Term Plan target). The volume of referrals to psychological therapies has been recovering in the second half of 2020, although remains below normal levels. At the time of writing, it is not clear if the second wave of the pandemic has affected this rate of recovery. Services for people with severe mental illnesses (SMI) such as schizophrenia and bipolar disorder have been disrupted particularly severely. Those with severe mental illness die 10 to 20 years earlier than the average person, and this gap is widening (Hayes et al 2017). Most of this premature mortality is driven by physical illness, particularly cardiovascular diseases. Recognising this, The NHS Long Term Plan aims to scale up physical health checks for patients with SMIs to 390,000 checks a year by 2023/24. By September 2020, the NHS fell to below a third of this target (figure 2.9). FIGURE 2.9 Health checks for people with severe mental illnesses have fallen far below the NHS target Number of people with SMI in England who received a physical health check in the past year, by region 180,000 160,000 140,000 South West South East 120,000 North West 100,000 80,000 North East and Yorkshire 60,000 Midlands 40,000 London 20,000 East of England 0 20 20 20 19 9 19 01 20 20 20 20 20 r2 r r ch ne ne be be be ar Ju Ju em m em M ce pt pt De Se Se Source: IPPR analysis of NHS England 2020b However, there are pockets of progress to build on. In early March 2020, just under half of all mental health trusts had a 24/7 mental health crisis support telephone line (NHSEI 2020a). A month later, all did – achieving a goal of The NHS Long Term Plan a year early. Providing more care digitally is a broad ambition of The NHS Long Term Plan and Covid-19 has forced many trusts to accelerate their capacity to do this (NHSEI 2020b). Tribunal courts for Mental Health Act appeals have also continued virtually, ensuring the rights of those with severe illnesses are upheld as IPPR | State of the health and care The NHS Long Term Plan after Covid-19 17
best as possible. An important shift to harness in health and care is the increasing role and recognition of community assets – local support networks and mutual aid groups set up during the Covid-19 pandemic reveal the critical role community can play in care (Public Health England 2020c). Expanding mental health care services The health and care leaders we polled most often identified the rise in mental health problems as the most important challenge to tackle in the context of the Covid-19 pandemic (figure 3.2). If The NHS Long Term Plan’s targets for the number of people accessing mental health care is not revised upwards, hundreds of thousands of people will fall into despair and a generation of young people will be left scarred by the pandemic. The mental health of children and young people must become a central focus for the post-pandemic NHS and any update to The NHS Long Term Plan must reflect this. Much more than the £500 million announced in the 2020 comprehensive spending review will be required to adequately expand mental health capacity; The Strategy Unit have estimated £3–4 billion is needed (The Strategy Unit 2020). But extra funding is of limited value without the workforce to deliver care. A survey conducted by the British Medical Association (BMA) just before the pandemic began found 63 per cent of mental health staff worked in a setting with rota gaps, and 69 per cent of these said such gaps occurred either most or all of the time (BMA 2020). The pandemic will have worsened this. Solutions to the workforce crisis are urgent. Policy relating to funding and workforce is discussed further in chapter 3. 2.3 CARDIOVASCULAR DISEASE In recent decades, falling rates of smoking and significant advances in treatment have resulted in improving cardiovascular disease outcomes (Bhatnagar et al 2016).5 However, despite being largely preventable, cardiovascular disease is still the leading cause of death in the UK (Vos et al 2020). This distribution of deaths is highly unequal: people living in Blackburn are twice as likely to die from cardiovascular disease than those who live in Chelsea (Bhatnagar et al 2015). The risk of death after a heart attack is higher in the UK compared to the average for OECD countries. This mortality rate gap between the UK and the OECD average has been growing since 2011 (OECD 2020a). Worryingly, mortality figures from 2019 showed an increase in cardiovascular disease deaths among people under 75 – the first such rise in half a century (British Heart Foundation 2019). Given the scale of cardiovascular diseases, these reversed trends will accelerate life expectancy falls occurring in deprived parts of the UK (Hiam et al 2020) – including in so- called ‘red-wall’ seats. The Conservative party has pledged to increase healthy life expectancy by five years by 2035.6 The NHS Long Term Plan regards cardiovascular disease as ‘the single biggest area where the NHS can save lives over the next 10 years,’ and explicitly aims to ‘prevent up to 150,000 heart attacks, strokes and dementia cases over the next 10 years’. It proposes to achieve this through three key improvements: by increasing access to prevention services to reduce rates of smoking, alcohol consumption and obesity; by detecting cardiovascular disease risk factors – such as high blood pressure, abnormal cholesterol and abnormal heart rhythms – earlier; and by spreading best practice treatment including specialist hyper-acute stroke care and rehabilitative intervention across the NHS. 5 Cardiovascular disease is a general term for conditions affecting the heart and blood vessels, such as heart attacks and strokes 6 Healthy life expectancy is defined as the number of years a person can expect to live in good health or free from limiting illness or disability 18 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
The pandemic has side-lined prevention The pandemic has had significant impacts on cardiovascular disease, with disruptions to prevention, diagnosis and treatment (figure 2.10). FIGURE 2.10 Disruptions to cardiovascular care services in 2020 due to the Covid-19 pandemic GP Health checks 42% drop in 97% drop in-person Referrals 42% drop in CVD referrals Elective pathway Elective imaging Emergency admissions Non-elective pathway 53% drop in 41–44% drop admissions Elective procedures Emergency procedures 19–45% drop 12–17% drop Rehabilitation 36% fall in cardiac rehab Source: CF analysis The pandemic has had a mixed effect on behavioural risk factors for cardiovascular disease. As described in the mental health section of this report, high-risk alcohol consumption has increased. An estimated 15 per cent of people also report purchasing more processed food, a dietary risk factor for cardiovascular disease, than usual (Food Standards Agency 2020). However, over one in three adults report doing more physical exercise than usual (Savanta ComRes 2020), and there has been a rise in the number of people attempting to quit smoking (Smoking Toolkit Study 2020). Primary care is at the heart of the NHS’s plans for earlier detection of cardiovascular disease, but almost 80 million fewer in-person GP appointments took place between March and December 2020 compared to the previous year (NHS Digital 2020a). The incredible rise in telephone GP appointments mitigated the reduced access to care this would otherwise have caused, but rushing the shift to remote care comes with a warning about quality. For example, information usually gained through clinical IPPR | State of the health and care The NHS Long Term Plan after Covid-19 19
examination – which is especially important to identify cardiovascular disease risk factors such as high blood pressure and abnormal heart rhythms – is lost. Meanwhile, the NHS Health Check, a check-up programme offered to people aged 40 to 74 years to spot cardiovascular disease and risk factors, have seen even greater declines: a 97 percent fall between April and June 2020 compared to the same period in the previous year (Public Health England 2020b). Subsequent falls in referrals to specialist services and diagnostic imaging have been enormous and unequal. Referrals to cardiovascular disease and diabetes specialists fell dramatically in the first wave of coronavirus to 16 and 22 per cent of expected levels respectively – and though these referrals are recovering, they remain a quarter below expected volumes (figure 2.11). Compared to the year before, 280,000 fewer outpatient echocardiograms (key to diagnosing long-term heart conditions) were performed between March and November 2020. Many regions with high levels of coronary heart disease mortality have experienced some of the steepest falls in echocardiograms performed (figure 2.12). This means the backlog of cardiovascular disease referrals and diagnostics is very large and unequally distributed. FIGURE 2.11 Referrals to cardiovascular and diabetes specialists have been slow to recover Weekly percentage of cardiovascular disease and diabetic medicine referrals relative to pre-Covid levels 120 CVD Diabetic medicine 100 80 60 Christmas Summer 40 holidays 20 0 9 19 9 20 20 20 20 20 20 20 20 0 20 0 0 01 01 02 02 02 20 20 20 20 20 20 20 20 20 20 r2 r2 r2 r2 r2 r y ry ch ril ay ne ly st r be be be be be be be ar Ju gu ua Ap ar M Ju to m m nu em to m m Au M br ve ce ve ce Oc Oc Ja pt Fe De No De No Se Source: CF analysis of NHS Digital 2021a 20 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
FIGURE 2.12 Reduction in echocardiograms has entrenched regional inequalities in heart disease Change in echocardiogram activity and death rate by region Source: CF analysis of HES 2020 and PHE 2021 Both emergency and elective cardiovascular disease procedures and operations have been disrupted by the pandemic. During the first wave, the fall in emergency procedures performed for heart attacks and strokes corresponds to the reduction in patient presentation to emergency services. Although the health service was pre-occupied with Covid-19 cases, quality standards of emergency stroke and heart attack care was largely maintained (SSNAP 2020; Wu et al 2020). Cancelled elective procedures during the first wave of the pandemic has led to a long list of patients at high risk of heart attack and stroke while they wait (table 2.1). Disruptions during the second wave of Covid-19 means that most of these patients are still waiting, and this list is likely to be growing. TABLE 2.1 Falls in elective cardiovascular disease procedures and operations during the first wave of Covid-19 compared to the same period the year before Procedure/operation Significance Impact of Covid-19 Elective percutaneous coronary Heart attack prevention (cardiac 25% reduction interventions (PCI) reperfusion) Heart attack prevention (cardiac Coronary artery bypass grafts (CABG) 45% reduction reperfusion) Stroke prevention (cerebral Carotid endarterectomy 31% reduction reperfusion) Cardiac pacemaker and/or Cardiac arrest prevention 19% reduction defibrillator implant procedures Source: CF analysis of NHS Digital 2020d IPPR | State of the health and care The NHS Long Term Plan after Covid-19 21
A fatal disruption There were over 5,600 more deaths than expected from cardiovascular diseases last year (Public Health England 2020a), bringing cardiovascular mortality to the highest level seen in a decade (figure 2.13). The majority of these excess deaths are attributable to healthcare disruption caused by the pandemic.7 FIGURE 2.13 Cardiovascular mortality is at the highest level seen in a decade Deaths from cardiovascular disease in England per year (thousands) 200 178.8 180 171.9 163.6 159.5 157.9 160 150.0 148.5 142.9 139.0 140.4 139.8 137.1 141.1 136.9 137.5 136.3 133.3 140 120 100 80 60 40 20 0 2004 2005 2006 2007 2008 2009 2010 2020*2011 2012 2013 2014 2015 2016 2017 2018 2019 Source: CF analysis of PHE 2021, British Heart Foundation 2020 *2020 levels are calculated as a five-year rolling average that includes excess cardiovascular disease deaths observed during the pandemic This may only turn out to be the thin end of the wedge. Cardiovascular diseases are long-term conditions, and most of the disturbance during the pandemic has been to early detection and secondary prevention. That means the biggest impacts are yet to unfold. Our analysis finds 470,000 fewer new prescriptions (people commenced on a medication for the first time) of preventative cardiovascular drugs such as antihypertensives, statins, anticoagulants and oral antidiabetics between March and October 2020 compared to the previous year (figure 2.14).8 If these people are not found, diagnosed and commenced on treatment, we estimate an additional 12,000 heart attacks and strokes will occur in the next five years. The higher levels of electronic prescribing however, a positive shift, has ensured patients receiving repeat prescriptions have been able to access their regular medications without disruption. 7 A minority will be directly attributable to Covid-19 pathology 8 There has been a reduction in new initiations of statins, antihypertensives, beta blockers, anticoagulants and oral diabetes drugs totalling 470,000 prescriptions. As some patients may have been commenced on multiple medications at the same time, the total number of patients missed may be lower than this. Based on CF analysis of LPD, IQVIA Ltd, incorporating data derived from THIN, a Cegedim database, Oct 2020 22 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
FIGURE 2.14 Opportunities to prevent heart attacks and strokes have been missed Number of patients initiated on preventative cardiovascular disease drugs for the first time 140 -30% 120 100 80 -30% -16% 60 40 -20% 20 0 Diabetes drugs Blood pressure and Statins Anticoagulants** heart failure drugs* Monthly average March–October 2019 Monthly average March–October 2020 Source: CF analysis of LPD, IQVIA Ltd, incorporating data derived from THIN, a Cegedim database, Oct 2020 *Includes beta blockers, calcium channel blockers, ACE inhibitors and diuretics **Warfarin and novel oral anticoagulants Additionally, we estimate the fall in echocardiograms (figure 2.12) means at least 23,000 missed heart failure diagnoses last year – a major setback to The NHS Long Term Plan’s goals to improve heart failure diagnosis and outcomes. Less than half of all people diagnosed with heart failure are alive five years later – a worse survival rate than most cancers – and early diagnosis is crucial to allow timely initiation of treatment (Taylor et al 2019). If missed cardiovascular disease diagnoses, treatment initiations and elective procedures are not made up for, preventable cardiovascular disease deaths will continue to rise. A sustained reversal to cardiovascular mortality trends is a significant setback, not just to The NHS Long Term Plan, but to a number of Conservative party manifesto pledges. Preventing more pandemic heart attacks Finding the almost half a million missed patients and tackling the backlog of elective cardiovascular disease care is an urgent priority. Increasing the community care capacity in the most deprived regions of the country will help achieve this. But if we want to avoid the pandemic causing lasting damage to health, addressing the care backlog alone is not enough. We need a radical rethink of our approach to health inequalities and prevention. Initiatives such as CVDPrevent, a new primary care audit to improve cardiovascular care quality, are helpful. But action outside of the NHS is required, too. Building on the prime minister’s obesity drive, the government should improve the sequencing and co-ordination of wider policy functions to ‘level up’ health across the country – and deliver their manifesto pledge to increase life expectancy. A more holistic digital health strategy is required too. The rapid shift to remote care comes with a warning about quality. Many patients do not have the medical training or self-monitoring equipment to clinically examine themselves. Vital clinical information therefore likely to be lost in the digital consultation and quality of care compromised. Indeed, the fall in cardiovascular medication initiation is steeper than the fall in the total number of GP appointments, implying digital consultations are leading to suboptimal treatment. Overcoming this will need investment in IPPR | State of the health and care The NHS Long Term Plan after Covid-19 23
remote monitoring training and equipment, but perhaps most importantly, ensuring patients and clinicians retain choice over the mode of consultation (in-person, telephone, video, etc). Policy relating to digital care and public health is discussed further in chapter 3. 2.4 MULTIMORBIDITY Our ageing population is driving rising levels of multimorbidity. More than a quarter of adults in England have two or more long-term health conditions (Cassell et al 2018), and one in three people admitted to hospital have over five underlying health conditions (Stafford et al 2018). The distribution is very unequal; those in the most deprived regions are more likely to become multimorbid – and do so 10–15 years earlier and with more functional limitations (Barnett et al 2012; Dugravot et al 2020). Multimorbidity also concentrates in several minority ethnic populations (Watkinson, Sutton and Turner 2021). By 2035, one in six people will be living with over four long-term conditions (Kingston et al 2018). Our health and care system is not set up to handle this epidemiological shift. Care for most diseases is siloed into specialist pathways. And although patients do not separate their care needs into health and social, the system does. As a result of these divisions, the health and care system often struggles to see and support the patient as a whole (Taskforce on Multiple Conditions 2018). Meeting these modern challenges requires integration of care: the NHS’s main goal for many years now, and one that has proved difficult to achieve. The NHS Long Term Plan is the latest attempt. There are two broad aims: to better join up care around the individual; and to keep people and patients out of hospitals. This should, in theory, vastly improve both the quality of care for patients and the financial sustainability of the NHS. Primary care networks (PCNs) are The NHS Long Term Plan’s main vehicle to deliver integrated care to patients, pulling together local GP practices to work together and with community, mental health, social care, pharmacy, hospital and voluntary services in their local area. Although multimorbidity isn’t explicitly discussed in The NHS Long Term Plan, it is the focus of a key follow-up document titled ‘Universal Personalised Care’ (NHS England 2019). Outside of the NHS, an underfunded and undervalued social care system has been one of the most significant barriers to integrating care. While official NHS documentation is light on social care services, chief executive Simon Stevens has been clear on the urgent need to reform and better resource social care for health system sustainability (BBC News 2020). This government has pledged a cross-party solution to social care (with work supposed to have commenced in its first 100 days in power), building on multiple previous manifesto commitments. A government white paper on health and social care reform published on 11 February 2021 provided minimal further information beyond stating proposals for social care will come ‘later this year’ (DHSC 2021a). Patients with multiple long-term conditions have experienced Covid-19’s impacts on primary care, social care and integrated care. Primary care In primary care there has been great disruption and remarkable innovation. The almost five million people in England with over four health conditions usually see their GP once a month (Stafford et al 2018). They have suffered disproportionately from the over 31 million fewer GP appointments that occurred between March and December 2020 (compared to the same period in 2019). Most of these were non- urgent appointments, booked two or more days in advance, which are more likely to be for patients with long-term conditions (figure 2.15). 24 IPPR | State of the health and care The NHS Long Term Plan after Covid-19
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