STATE ELECTION PLATFORM - Solutions to balancing WA's mental health system 2020 - Prevent Support Heal
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Acknowledge country The Western Australian Association for Mental Health acknowledges Aboriginal and Torres Strait Islander people as the Traditional Custodians of this land and its waters. We pay our deep respect to Elders past, present and future, and extend this to all Aboriginal and Torres Strait Islander people. Mural by Sally Gamble Shifting our thinking of mental health service delivery in Western Australia Prevent Support Heal is a community of people with mental health challenges, our families, friends, and the services that support them. Together we have created a powerful voice to call on the Government to balance the Western Australian mental health system so that it gives dignity and respect to every person seeking help. We are asking for alternatives and a range of mental health options from a system that understands that when a person receives the support they need, their ability to lead a contributing life is vastly nurtured, along with their wellbeing and the wellbeing of their family and friends. Page 2
The people’s voice What we are calling for is nothing new. What we need is a new style of leadership from our State Government to implement the plan towards a balanced mental health system with more investment and awareness towards mental health community supports and prevention programs. Unfortunately, people with mental health challenges are ending up in hospital when they don’t need to be there. WA’s mental health system is badly in need of balancing. While continued investment is needed to maintain responsive and appropriate acute services, we simultaneously and urgently need to increase investment in prevention and community support. This will balance our system and prevent mental health issues from escalating, by making it easy to access the right support, at the right time, in the right place, from the right people. Without funding going to the right places our mental health system “That understanding, gentle encouragement, non-judgmental won’t be able to cope. space I found in community support led me personally to a sense of belonging. I think a sense of belonging is something people or Ninety per cent of mental health systems forget about when it comes to improving people quality funding is spent on inpatient of life, and mental health.” hospital services and community treatment, leaving just 1 per cent for prevention and 5 per cent for community support. The State Government’s own 10-year mental health plan, Better Choices. Better Lives. Western Australian Mental Health, Alcohol and Other Drug Services Plan 2015–2025, states funding for prevention and community support should increase from $50 million to more than $334 million, annually by 2025. This funding will deliver prevention programs to increase awareness, reduce stigma and encourage early intervention. It will also provide more resources for community services to support recovery near a person’s home, rather than in expensive hospitals. This Plan clearly states that with the right amount of community support in our system, people will be able to find support before they become more unwell and cycle back to emergency departments (EDs) and hospital beds as the only option available. The scale and type of the investment requires significant collaboration and leadership. The government, the mental health sector, people with lived experience and the wider community can all work together if we are to shift to a better, balanced system. The people of WA have an expectation that mental health services will be available when and where they need it. We have a better way. This report outlines the hopes, desires and real solutions from people with lived experience who have mental health challenges. These are their voices.
Danielle’s Story Within five minutes of meeting my peer worker at the community mental health service, I knew that recovery was not only possible, it was inevitable. I found myself in hospital following an incorrectly medicated suicide attempt. A mere 5 days earlier I had visited my GP with concern about my mental health. I just needed someone to talk to, but it was pathologized and I was prescribed unnecessary medication which had catastrophic results. While I am grateful to the hospital for looking after my immediate physical safety, my mental and emotional health, and life going forward, were not appropriately addressed. I was discharged – scared and confused. The next day I found a brochure for a mental health community service facility in my bag. I called this service every morning for the next several days, until I took myself back to the hospital because I wasn’t sure what to do, or where to go. Following this second hospital admission, I was ‘fast-tracked’ into that facility. This was where my healing began. The program was a recovery orientated and person-centered practice, that incorporated the holistic approach and acknowledged the impact of the social determinants of health and wellbeing. The biggest learning was there is nothing wrong with me for experiencing normal human emotions in response to adverse life events. The support workers held hope for me while I found it for myself. Page 4
The optimal mix The Government should fund mental health services in line with the Better Choices. Better Lives: Western Australian Mental Health, Alcohol and Other Drug Services Plan 2015-2025 (The Plan), which outlines the optimal mix to deliver an efficient and effective mental health system. Prevention Prevention Prevention 3% Community 1% Community 6% Support Support 8% 5% Hospital Hospital Community Hospital Beds Beds Support Beds 47% 29% 22% 42% Community Treatment 43% Community Community Treatment Beds Community 43% 9% Treatment Community Community Beds 34% Beds 4% 4% Baseline Latest Optimal (2012-2013) (2017-2018) (2025) *Office of Auditor General - Access to State-Managed Adult Mental Health Services 2019 The best service mix for the best outcomes would see: • 29 per cent of the mental health spending on hospital beds. This has ballooned to 47 per cent under this Government. • Government investment in prevention of 6 per cent. However, the Auditor General last year revealed this has dropped to just 1 per cent • 22 per cent of mental health spending on community support. This is down to 5 per cent of spending. Campaign 2021 election commitments The Prevent Support Heal campaign seeks 2021 election commitments from all political parties to increase investment in prevention and staged growth in innovative approaches to community support over 5 years, in line with The Plan targets: • An increase in prevention spend from 1 per cent to 5 per cent of total mental health spend • An increase in investment to increase community support by five-fold The Plan says we need to invest $334 million in community support and prevention per year by 2025 to balance the system. The initiatives set out in this paper provide investment options to achieve that increase. They are labelled ‘Quick Impact’ – those initiatives expected to deliver significant benefits within two years, and ‘Balance the System’ – those that require further scoping and development or may require a longer implementation timeline before significant benefits can be seen.
Prevent Support Heal and COVID-19 – Now more than ever In a COVID-19 recovery environment, the need to balance a sustainable and effective mental health system is more important than ever. The pandemic tested the limits of WA’s already over-stretched mental health system as demand for non-clinical community support and prevention services increased because people reached out for help. Even people who had never accessed a service before were calling a locally based service, because they were told to stay away from hospital unless necessary. The economic impacts of COVID-19 mean the mental health crisis is not over. National modelling predicts a 10 per cent increase in ED presentations, a 12 per cent increase in hospitalisation for self-harm, and a 14 per cent increase in the national suicide rate. The WA State Government has an opportunity to take a whole of government approach that can align prevention and mental health support with the COVID-19 social and economic recovery - a Mental Health in All Policies approach - that also creates jobs. COVID-19 Recovery through mental health jobs People who are unemployed or living on very low incomes have higher rates of mental health challenges. Investing in mental health through prevention and employment and support pathways is the best way to mitigate the mental health impacts of COVID-19. The recovery focus however has been on the recovery of male dominated ‘hard hat and high vis’ sectors. A focus on other areas, like mental health and community support, would support at risk groups. Research shows that 79 per cent of new care jobs would be taken by women, increasing the employment rate for women by 3.7 per cent and decreasing the gender gap by 2.6 per cent. Investment in youth peer workforce development and training will also create jobs pathways for young people. Mental health investment will help us to build back better because we are investing in our greatest asset – people - enhancing their mental health and productivity. It will reboot our economy through jobs creation, enable social recovery through building community resilience, reduce hospital costs to create a more sustainable health system and support regional community resilience and health. Seven jobs are created for every $1 million invested in mental health community support (based on service provider data), compared to around 0.2 jobs for women and 1 job for men for every $1 million dollars spent on construction. Page 6
Emily’s Story I lost two of my three jobs because due to the impacts of COVID-19. After the contract of my third job ended, I knew instantly I would have a very difficult time looking for a way to keep up my finances living out of home as moving back with my parents wasn’t really an option for me. Additionally, I was not eligible for JobKeeper and my Centrelink application is still ‘processing’ despite several calls and months waiting. My experience was overall very difficult, I applied for an average of three jobs or paid opportunities a week both within and outside my field of study or experience – anything I was remotely qualified for. I kept myself afloat through savings and odd freelance jobs. I have very recently managed to secure an event photography job but it is not enough to live off as the hours are very irregular. I also managed to secure one months rent under the Rent Relief Scheme which has been a great weight off my shoulders. The job search has had a very detrimental impact on my mental health, mainly the draining labor of writing applications and pinning all my hopes on getting it. While I am luckier than some and have some savings to fall back on, I am not earning enough to live on and the constant underscore of worry is quite burdensome. I think what would have helped me a system to help me with the Centrelink application as that was the most challenging application for me to complete. In addition to that I think a system that is a mix of JobSeeker and the Rent Relief Grant which is a short- term no obligations payment to ease the burden while you apply for jobs or wait for more regular government benefits.
Aboriginal Mental Health and Wellbeing Aboriginal people experience higher rates of suicide and mental health challenges than the rest of the WA population and Aboriginal people are consistently identified as a priority group for prevention, support and treatment. Specific prevention and community support or social and emotional wellbeing programs are urgently needed, and mainstream services must be strengthened to provide culturally secure services. ayne’s Story I am a Ballardong Noongar man who originates from Northam WA. Throughout my late 20s I had experienced a low point and was living a life affected by alcohol and drugs. I hit rock bottom and became suicidal. I decided to change my life and so my journey to help other people in particular Aboriginal men began. I studied Mental Health and Counselling with Marr Morrditj and soon after I was offered a position at Palmerston Association. I attended a meeting in Armadale organized by highly respected Aboriginal Elder Aunty Liz Hayden to discuss the recent suicides that had occurred within the community. Soon after the Waakal Moort Kaadajiny (WMK) Festival was born. Suicide amongst the Aboriginal Community is a major concern and a constant battle for families. The festival is a platform to raise awareness for suicide prevention and encourage community members to engage with services to better their overall health needs. Suicide prevention and social and emotional well-being is important because without these we are losing our Aboriginal People, our culture is dying, and we are becoming helpless. Having lived experience with suicide ideation meant that I can understand the despair a person in a similar situation is feeling and why the festival and the elements that created it were so important. Our community is struggling and crying out for support, we need services and health workers in the industry to start working collaboratively to raise awareness and encourage community members to seek support. The festival saw 44 health services come together in one place which meant community members could access programs in a culturally appropriate and non-judgmental environment and services could have the exposure they wouldn’t otherwise have had. With the continuation of the festival yearly it will mean that organisations can deliver new programs and services to community members, build clientele and focus on lowering the numbers of suicide and suicidal ideation. With consistent community events such as the festival it is a start to bridge the gap between community members and services and begin the healing of our people encouraging social and emotional wellbeing to grow in a positive way. Page 8
Election asks 1. Invest in Aboriginal Community-Controlled Health Services (ACCHS) Social and Emotional Wellbeing (SEWB) programs, developed and led by Aboriginal people and their communities, across all regions of the state. ACCHS are best placed to work with their communities to identify, and respond to, their own health and SEWB needs. ACCHS should be funded to develop and provide SEWB programs that are high quality, community-based, and with an early intervention, prevention and recovery focus as part of state investment in community support and prevention. Strengthening the capacity of the ACCHS sector is also a key priority under the National Agreement on Closing the Gap signed by the WA Govern- ment in July 2020. 2. Local grants fund to support culturally based wellbeing and suicide prevention programs. Supporting the efforts of Aboriginal Elders and local communities in supporting children, young people and community members through cultural and SEWB activities like art workshops, community events and camps on Country. Cultural learning programs promote the sharing of cultural knowledge and support the development of Aboriginal youth to be leaders of the future. The small grants program will be available to unincorporated groups for costs such as food, fuel and activities. 3. Improve the continuous cultural competency of mainstream mental health and alcohol and other drug services through investing in free sector development and training pro- grams to support the development of workers skills, and culturally secure programs in mainstream community mental health organisations. 4 FTE Aboriginal mental health lead positions to be located within existing sector development programs and available state-wide. Looking Forward, Moving Forward Elders in Residence, Uncle Charlie and Aunty Helen Kickett.
Suicide Prevention Suicide is a key issue for the health and wellbeing of WA communities and a key issue of inequity for Aboriginal and Torres Strait islander people in WA. The Kimberley region in WA has one of the highest suicide rates in the world, with previous estimates of two deaths by suicide each month of Aboriginal people in this region. The WA government must commit to genuine long-term, sustained and sufficient funding for suicide prevention initiatives in our State, with a focus on priority groups, and achieving equity for all. WA had: • the highest rate of suicides of Aboriginal and Torres Strait Islander peoples in the country (2014-2018) • the second highest rate of suicides in the country for children aged 5-17 years (2014-2018) • the third highest rate of suicides compared to the rest of Australia in 2018 Elections asks: 1. Announce increased and five-year funding for the regional Aboriginal Suicide Prevention Plans in the first 100 days of government. With continuing and increased commitments to Aboriginal leadership and community led responses across metropolitan, regional and remote areas, and funding on a needs basis to support a sustained decrease in suicide for Aboriginal people. 2. Fully funded comprehensive state suicide prevention strategy, and youth suicide prevention strategy, all released within the first year. Integrated with other initiatives, actions must encompass a spectrum of interventions with focus on higher risk groups including children and young people, rural and remote, and LGBTIQA+ communities. Initiatives detailed in the strategies should utilise a range of approaches including place based models, community capacity building, and development of suicide prevention models for groups of people at high risk. Page 10
Leah’s story It was five years in June since my husband Clint took his own life. Many people talk about the ripple effect after a loved one’s suicide, and those ripples have now affected my two children so much I have presented to hospital emergency numerous times for both of them and myself. Twelve months after Clint’s death, I checked myself into a private mental health hospital. When we abseiled down the QV1 fundraising for Lifeline and having our community involved it felt good. It felt we were able to really talk about what I had gone through, was going through. I was able to be honest about the kids and people were listening and then relaying their stories. There was a connection with them because of what we had experienced and talking with our peers. Some people actually sought me out to chat because they needed to get something off their chest. Others because they needed to know the kids and I are okay. If my gorgeous husband knew there was a place to go or call, like Lifeline, I’m not sure if Lifeline was on his radar, he could still be here. I managed to find my feet again. I met someone new and am living in a community that supports me as I continues to seek support for myself and my children. I want someone to talk to, who doesn’t judge me, who gets it, someone who has gone through the same thing.
Prevention and Promotion Good mental health means preventing the development of Estimated return on investment: mental health challenges before they even begin. This means $9 for every $1 spent on prevention reducing risk factors for mental health distress and enhancing protective factors. Mental health promotion involves creating healthy living conditions and environments that support mental health and allow people to adopt and maintain lifestyles that support their mental health. Mental health prevention and promotion make good sense for people, and for government. We know that mental health prevention offers excellent return on investment (ROI) – investing $1 in mental health prevention can generate a ROI of $3 to $9 or even more, with good evidence for ROI activities that focus on children, young people, schools, workplaces and the social determinants of health such as homelessness. More investment in prevention is needed to ensure the best mental health outcomes for WA communities. The WA government already has a number of plans at their fingertips which set out the best balance of investment in prevention activities, and types of program and initiatives to focus on. Now is the time to commit to those plans, to invest in prevention and to make change happen. • Increase prevention initiatives for mental health issues, with a focus on primary (population wide) prevention, with targeted strategies for vulnerable groups. Abbey’s story When I was just six years old, I lost my dad to suicide. It was an incredibly difficult time for my mum, my younger sister, who was four at the time, and myself. As a child, I couldn’t understand why my dad wasn’t coming home anymore. Due to losing dad, we became involved in LifelineWA, volunteering at events and meeting others who have also lost loved ones to suicide. I managed to cope quite okay with the loss of dad. I was a good student who worked very hard. I was heavily involved in all aspects of school and had many friends from different groups. However, at the end of year 10 things started to go downhill. The river cruise was coming up and girls were all talking about dieting and dress sizes and not eating so they would look good in their dresses. I had always been self conscious about my body growing up. I started to restrict my intake, initially by cutting out the ‘bad foods’ and wanting to be healthier, however within a few months the weight started to drop off. I felt happy, or so I thought. I began to feel anxious and started to withdraw from people. At the start of year 11, mum took me to PMH emergency department where I was admitted and diagnosed with anorexia nervosa. Over the next 8 months I had 3 admissions to PMH where I was also diagnosed with depression and anxiety. I missed a great deal of school and my friendships were weakening. I was in a very dark place. Mum had me admitted to Perth Clinic as I started to feel very unsafe. Through Lifeline Page 12
Election asks: 1. Commitment to sustained and long-term investment in prevention, as per the Better Choices. Better Lives. Western Australian Mental Health, Alcohol and Other Drug Services Plan 2015–2025. - Increase investment in prevention to 5 per cent of the mental health budget: starting at $35 m a year and increasing to $77 million per year over 4 years. In the 1st 100 days 2. Announce and fund a targeted project to map and evaluate existing prevention initiatives and inform priorities for future investment. - This will maximize the value of existing MHC and broader prevention expenditure. - This should include existing community and school based, workplace and other prevention and promo- tion settings, and define how mental health treatment and support contribute to reducing the incidence and severity of distress for people already accessing mental health services - as this is of primary impor- tance to mental health consumers. 3. Develop and release a fully costed and funded implementation plan for the Western Australian Mental Health Promotion, Mental Illness, Alcohol and Other Drug Prevention Plan 2018-2025 (Prevention and Promotion Plan). - This should include a comprehensive and complimentary range of mental health strategies and activi- ties, including specific strategies and action plans targeted at priority groups including Aboriginal peoples, early years, children, young people and LGBTIQA+ communities. Years 2 - 4 4. Develop and implement a Local Prevention and Promotion Grant Fund. - This should include a central innovation and evaluation mechanism to support evidence based ap- proaches. - This initiative should be delivered in years 2- 4 of government. - Focus areas will include: building community and organisational capacity, community wide and targeted strategies, and enabling local governments to address mental health in their Public Health Plans. - Suggested eligibility: local groups, not for profits and local governments. WA, mum met Ashlee Harrison who had set up an organisation, zero2hero, for children and teenagers to learn positive mental health practices. My mum, my sister and I attended the first In Your Head Youth Mental Health forum which was amazing. Fast forward to April 2017 and I was on Camp Hero! I was extremely anxious as my eating disorder was still very much there. It was such an empowering and inspiring experience. There was no judgement whatsoever, only understanding, support and acceptance. I learnt skills I can use for life, skills that I’ve since shared with others. I came home confident, optimistic and hopeful, something I hadn’t felt for a long time. I also gained a whole new family, some of which I am still close to three years later. Since then, I’ve still had my struggles, but I have learnt how to deal with them in much healthier ways. I did the cape2cape in 2019 which helped me further develop the skills I learnt from camp and was one of the best experiences I’ve had. I am at the best place I’ve been since I can remember, and I credit that to my support systems which include zero2hero. I would not be where I am or who I am without them.
Community supports “Currently, community supports are Community supports work with people to secure a job, form available to only 20% of the people relationships, build fulfilling lives, develop skills and interests, who need them.” prevent hospital admissions and issues escalating to crisis point, while promoting healing and keeping people living well in their own homes. They are often provided by peers, who walk alongside people “There doesn’t seem to be much and provide a living example of hope and recovery. support out there. And what is out there, you are either not unwell Community supports are non-clinical supports that advance enough, too unwell, or unwell in the people’s personal recovery, rights and opportunities. They are wrong way.” empowering, offer hope and include people’s social context – -Community supports survey participant trauma, income, community connection, culture or housing – not just a focus on symptoms. They include peer support, personal recovery programs, groups, family and carer support, housing and employment programs. Carli’s story Reaching out to the community mental health organisation Grow changed my life. It was also the catalyst for facing my own self stigma and ultimately set me on a course of self-determination. I was a member of Grow for a number of years and they gave me an employment opportunity which really changed my life. I got to a point where I really accepted myself and I actually liked who I was even though I wouldn’t wish my experience on anyone, I think it has made me a better person. I’m more accepting of other people, less judgemental and I got to a stage where I wanted to share my life with someone. My leadership and openness to my recovery resulted in my appointment as a WA Consumer Representative on the National Register for Mental Health Australia and I worked for Richmond Wellbeing and the WA Association for Mental Health. That really opened up my world because then I had a network of peers who were willing to share their knowledge and expertise with me. I wanted to have employment opportunities, just like anybody, I wanted the same access and not to be judged for my past experiences. Page 14
Kerry Hawkins – WAAMH President My husband is a smart bloke – he’s accomplished, he has 4 Masters degrees, he’s working on a PhD. When we met, he had a well-established career, but of course, he had a back story of tremendous abuse and neglect as a child. That all caught up with him once he started having a family. His distress really overwhelmed him, but he remains to this day still the same beautiful, generous, funny, intelligent and accomplished man that I married. And it’s just a tragedy that our mental health services at this point aren’t equipped to help people keep a grip on their life – the things that matter – family, home, friends. We overuse the word heroically, but this is a man who is used to hearing voices all day every day and still chooses to stay alive and stay with us. So, he is my hero. The fact that he manages to fight through all of these messages that he’s hearing and chooses to stay as a writer and a loving dad is just beyond comprehension. One of the fundamental shifts that we have to make is that we have to stop looking to try and fix people and their brains and it has to start in their social context – understanding what’s happened to them and what’s happening for them now. It has to be based around keeping people engaged with their lives, making sure that they can stay in work, working with the whole family so that the impact on the whole family is understood. Making sure that people’s relationships are intact, making sure their home and safety around their home is intact. The shift is really from trying to look inside someone’s brain and sort that out and looking at their life in complete context, including their past histories of trauma and providing the right resources and supports for people that are addressed more at fixing what’s going on for them rather than what’s going on inside their brain. It would be a fundamental shift in approach. Psych wards are great for stabilising people and there is absolutely no question that there is a role for clinical services. Medication saved my husband’s life. The public health hospitals have saved his life on more than one occasion. But they don’t reconnect people with their life. And that’s what matters to people.
Elections asks: The 1st 100 days 1. Conduct a needs analysis and expand individual advocacy services. “I’ve needed help accessing disability The Plan states that advocacy should be available for payments, housing etc the help I needed all consumers, family members and carers. Conduct was the applications and advocacy.” a review of existing programs and analysis of needs for vulnerable groups and specific issues, and ex- pand general advocacy services to enable statewide access. 2. Integrated community treatment and community support to enhance community management and reduce ED presentations and hospital admissions. Non-government organisations (NGOs) will work in tandem with community treatment teams to provide seamless community recovery pathways, hold people during distress, and offer case management and support coordination. Targeted to the 10% of consumers who use 90% of hospital bed and half of ED services to support them to manage well in the community, reducing admissions as well as costs to the overall mental health system - with savings expected in the first year. Years 2 - 4 3. Expand personal recovery programs and innovative community support options, with a costed plan to fill service gaps released by the end of the first year, for investment in years 2- 4. Current investment in community support is patchy, with regional areas and some groups of people in high need. Expansion of community supports and personal recovery programs is urgent. This is especially so for groups most in need - children and young people, people with multiple unmet needs and high acuity, and Aboriginal people - and to fill regional, rural and remote service gaps. Enabling people to access early inter- vention and adequate support services will support them to live well in the community and reduce acute service demand. Innovative developments such as Recovery Colleges should be expanded to extend access across the state. “Turned away because of the wait list or being out of area. Told my circumstances were too complex or not complex enough…” Page 16
Claire’s Story My most recent mental health admission was at the beginning of 2017, and after presenting to an emergency department in a very vulnerable state, was admitted to Perth Clinic. The short time I spent in this emergency department was extremely traumatising, and the weeks to follow would be some of my worst. At the time, and post my inpatient admission at the Clinic, I had no idea about the Community Mental Health services available to support me. I had always assumed that because I was ‘high functioning’ – I could hold down a job, was able to study, and had a good family and friends support network, that I wouldn’t be eligible for these services, as they were for people who were more unwell than me. It took me a good two years to get back on my feet after my 5 weeks as an inpatient, and I wonder now, if I had adequate supports through Community Mental Health Services, would it have taken me this long? Looking back now, it makes me think that these types of services could have been helping me throughout my entire teenage and young adult life, had I known about them, and requested access. I began to understand the significant impact community mental health services organisations could have on the lives of those with mental health issues when I started working for one, purely by chance through an internship as part of my university studies. The organisation I worked for gave people, just like me, hope, a sense of belonging, and supported their recovery.
Young people Prevention, early intervention and integrated support pathways for young people’s recovery are the best ways to improve the health and wellbeing of our population and save long term costs. There are alarming gaps and growing demand despite increased investment. Wholesale system redesign is urgently needed to increase existing mental health and alcohol and other drug (AOD) services, build new ones to meet need, and reduce fragmentation. The Young People’s Priority Framework - to be released by end 2020 - must address these issues (not just tinker around the edges), and be genuinely co-designed with young people of all ages and diversities. In YACWA’s COVID-19 Youth Survey 88% of respondents were concerned about their mental health. 78% of young people were fearful for the global economy and job market, linking these concerns to a decline in their wellbeing. “We do not want services: …that say that they’re inclusive without hiring any of those people on staff …that don’t know how to book or offer interpreters …that force people into models of recovery that are white-centric, ableist, cis/heteronormative” (Youth Focus Group) Page 18
Elections asks: Implement the Young People Priority Framework: 1. Release a funded Implementation Plan for the forthcoming Young People Priority Framework within the first 100 days to include priority investments in a planned pathway of integrated supports across: - Youth prevention and promotion programs and a whole of government approach to the social determi- nants of mental health, including housing and unemployment - Innovative non-clinical recovery community support options including peer workers, that are linked to expanded clinical supports across the state - Supported accommodation options and safe places to stay - Youth specific crisis options offering alternatives to current crisis pathways - Peer led parent support, information and capacity building programs. Key gaps include young people not well served by existing options, supports and services for young people aged 12 – 14 and 14 – 17, and young people in acute distress. New initiatives should: - Prioritise existing gaps by location, age and diversity - Integrate and partner with existing youth/mental health services to leverage strengths and smooth path- “Reflect youth help seeking behaviour by ways being available outside 9 – 5 hours, with - Grow and develop peer-based services and supports, later hours and 24/7 support for older and connect young people to relationships and the com- young people.” munity - Be based on active cultural competency, and respon- sive to the needs of diverse young people across race, class, gender, sexuality, and migrant or refugee status. 2. Resource a specialist youth mental health development team to run a 4-year partnership program to strengthen the mental health expertise of existing specialist youth services, and support public and NGO mental health services to build their youth expertise. The program would support workforce development and growth including youth peer workers and leaders. It would deliver state-wide training, tailored consul- tancy support and sector events; develop lived experience leadership and tools and frameworks; and tackle integration across the system. “Some young people need the ability to leave violent and unsafe homes quickly and easily” (Youth Focus Group)
Children The mental health of children is an area of high need in WA. Demand for mental health services for children and young people is increasing, and many children are not accessing the services they need. Mental health in childhood can have a significant impact on short- and long-term wellbeing. Childhood is a key time for intervention in mental health to ensure positive future outcomes. Prevention, early intervention, appropriate access to treatment and a focus on equity and vulnerable groups is vital to ensure the ongoing mental wellbeing of WA children. The government has access to a range of existing reports and plans which identify key priority actions to support the mental health and wellbeing of children in WA, including The Plan, the Prevention and Promotion Plan, suicide prevention inquiries and reports from the Commissioner for Children and Young People. • A recent report from the Commissioner for Children and Yong People has identified little or in some cases no progress towards improving mental health service coordination and delivery for children and young people, or that their mental health is any better than it was almost a decade ago “Prevention and support with mental ill health has to start with children and families and not waiting until they are teenagers.” Our Call The Prevent Support Heal campaign calls for increased focus on the mental health of children, from infancy to adolescence and young adulthood. Efficient, sustainable, and balanced investment across a full range of services based on need and appropriate consultation and co-design with stakeholders is urgently required. The campaign also supports calls for the development of a whole-of-government Child Wellbeing Strategy for WA, with a priority on targeted, early intervention approaches for vulnerable WA children, young people and their families, including mental health and well-being initiatives. Key facts: • We need 4.2 times as much community treatment for babies, children and adolescents as we have now • There are bigger qaps in northern and remote areas, as well as southern country areas “For infants there’s a lot of focus on the parent/child relationship, parenting supports and families at risk. The Under 12s group are very limited in supports they can access.” (service consultation) Page 20
Rural and Remote There is a mental health services gap in rural and remote areas, and lack of access to mental health services is a key driver of poor outcomes. Our mental health system is not efficiently responding to the needs of rural and remote communities: • Rates of suicide and emergency admissions for mental illness increase with remoteness. • We need 33 times as much community support in regional, rural and remote areas as we have now. “There are few or no support groups in rural areas, and particularly for young people … It’s not just a gap in services; it’s a dangerous abyss.” Telehealth and online access are often assumed to be a rural health panacea, but rural and remote communities have lower levels of digital literacy, internet use and access, and poorer connectivity and broadband bandwidth. A combination of telehealth and face-to-face delivery is needed for the best outcomes. Consumers, family members and service providers across WA are calling for investment in local, place based community connect- ed prevention and support options. Election asks Year 1 1. Expand personal recovery programs with a costed plan to fill service gaps in rural and remote areas re- leased by the end of the first year, for investment in years 2- 4. Expansion of personal recovery programs, locally based family and carer support, regional supported ac- commodation services, supports for children and young people, and for people with multiple unmet needs. Current investment in community support is patchy, with regional areas and some groups of people in high need. Programs will drive COVID-19 recovery by building regional jobs for a local workforce including the devel- opment of local peer workers and youth and female employment pathways. Place-based options will build community resilience and the capacity of local people and local organisations. Preferred provider procure- ment to existing local services and community resource centres/neighbourhood centres will maximise regional benefits. “There are no cmh supports available in our town, the nearest major town with these services is more than an hour by road away with no public transport. All the services are in major cities or towns, it’s easy to ignore tiny towns like mine. The bigger ‘business’ agencies get most of the funding, leaving little or nothing for small grass roots organisations like small family/neighbourhood centres.” Year 2 2. Establish Rural and Remote Neighborhood Centres with early intervention and recovery capability. “Face to face meetings are essential, I felt very alone and Build mental health supports into place-based neighbourhood isolated having to rely on virtual centres where everyone is welcome to drop in and socially connect connections.” in a welcoming space, and through shared activities. A focus on practical support is offered as needed before emotional needs are addressed, opportunities to heal on Country for Aboriginal people, and one on one recovery support. Skilled, locally trained staff and peer workers, and in some areas Aboriginal Health Workers, are needed.
IPS “… all good to offer the support but without ability to engage with an Investing in integrated mental health and employment employment provider, we will, for the pathways is the best way to mitigate the mental health rest of our lives, live in extreme poverty.” impacts of COVID-19. Individual Placement and Support (IPS) pairs specialist vocational workers with mental health services to support people with mental health challenges to successfully get a job in the open competitive jobs market. International evidence shows that IPS is the most effective program in the world for assisting people with mental health challenges into the workforce. It is person-centred, fostering hope and promoting social inclusion. IPS can be used both to complement mental health prevention and early intervention with young people, and as a key component for recovery with adults with enduring mental health challenges. • Nearly 60 per cent of young people not in employment, education or training had already experienced more than one mental health problem in childhood or adolescence, compared to around 35 per cent of young people who were engaged. • Where the IPS program has been implemented and successfully managed, employment outcomes for people with a lived experience of mental illness have been as high as 54 percent compared to traditional employment methods of just 24 per cent. • The IPS trial linked to Headspace supported 48 per cent of young people involved to successfully enter education or gain employment: 512 gained jobs and 136 young people entered education. Jesse’s Story Jesse is a 19-year-old young man who has been a participant of the headspace Broome Individual Placement and Support (IPS) trial since 2018. Diagnosed as being on the ASD spectrum, experiencing bullying, social isolation and a lack of academic success Jesse found himself disengaged from his Year 11 classes at school. Jesse was introduced to IPS at headspace by a friend who also accessed the service. Working with his Vocational Specialist to meet with local employers, Jesse finally landed a role in a busy tavern, unfortunately he was let go after a few weeks. This set back provided an opportunity to focus on his strengths, gain a deeper insight into himself and what he wanted out of employment and how he saw his place in the community. Jesse volunteered and became involved in the setup of a headspace group “System Restore” that focused on inclusiveness for those that are socially isolated and have an interest in gaming. Jesse became a leading voice in the direction of the group and by being around people with similar circumstances to his own was able to form a strong social connection in a safe environment. With the group focused on vocational skills each week, and members sharing their employment experiences, Jesse’s desire to obtain meaningful paid employment was reignited. The change in focus for Jesse was increasingly noticeable to others around him. Jesse got a job at a local cleaning company where he has successfully worked for more than 6 months. Jesse continues to receive regular support from his headspace GP, intensive and individualised follow along support from his IPS Vocational Specialist and his disability employment service case manager. He has a supportive employer who has taken time to mentor him in life skills and train him in the various parts of the business. Jesse’s next goal is to obtain his driver’s licence. Page 22
Election asks: IPS Adult 1. Integrate employment specialists into community mental health treatment teams and community sup- port centres using the evidence based Individual Placement and Support model. This will support people with significant mental distress to access real jobs, as a key mental health and COVID-19 recovery strat- egy. Services should be located in towns and cities with high rates of unemployment and mental distress, across each of east, north and south metropolitan and Kimberley, Pilbara, Goldfields, Midwest, South West, Wheatbelt and Great Southern. “The employment sector needs improving or service to help engage. For example I really need/ want to work but my disability job network provider is not equipped to help me.” IPS Youth 2. Mitigate the impacts of COVID-19 by supporting young people into education, training and employ- ment – all protective factors for mental health - through 5 pilots Youth IPS employment programs that integrate 2 dedicated employment workers into specialist youth services. Utilising the most effective and evidence-based employment program in the world - Individual Placement and Support - the pilots would place a vocational specialist into existing specialist youth services, link with COVID employment and training initiatives, focus on skills development and financial skills, and have strong links to youth mental health services. Targeting areas with historically high levels of youth unemployment, high suicide rates and significant gaps in community mental health support including Peel, South Metro, East Kimberley and Bunbury. The IPS trial linked to Headspace supported 48 per cent of young people involved to successfully enter ed- ucation or employment. The pilots would complement a Federally funded initiative in three headspace trial sites in WA by embedding the same model in specialist youth services in communities with persistently high rates of youth unemployment. This will reduce their medium to long term risks of mental health issues and reduce future demands on State funded service systems including mental health and housing.
Peer Options Peer support has been part of the mental health care system of Western countries for decades and is widely recognised as an important component of recovery-oriented models of mental health care. The options outlined in this section were developed during a codesign and consultation process with almost 200 consumers and carers – many of whom asked for peer-only services to be one of the options what is avail- able. These models will advance government commitment and consumer and family access to peer work and peer-led options focused on hope, recovery, empowerment and belonging. Sue’s Story My son was identified as a vulnerable kid at the age of 4 and was diagnosed with schizophrenia at the age of 16. Despite all the protective factors he had in his life, he was still stricken with this debilitating and tormenting illness. Not only did his illness affect him so gravely, it had huge impacts on our family and our two older daughters. It is fortunate that we were such a close-knit family, or I believe we may have disintegrated. Our son had those critically important years stolen from him which has led to a high level of grief within our family. I want the best for my son. I want him to feel loved and respected, content in his life, maintain a level of good health, make a contribution to society through meaningful activity, have a caring and supportive network of friends and family, know the joy of attaining his dreams, complete his education and find useful employment. In other words, I want him to feel respected, included and worthwhile as a human being. For most of us, many of these hopes are realised on some level throughout life. For my son, he experiences none of those aspirations apart from knowing that I am here for him and his sisters try their best to support and care for him. His father passed away suddenly so he no longer has his loving support. I am constantly amazed by the fact that he has the courage to get out of bed each morning to face another day of indescribable loneliness, rejection and utter despair. He has attempted suicide more than twice and has talked about wanting to just go to sleep and never wake up for such a long time. His tenacity and courage help me to keep fighting and supporting him. So how has my son stayed alive? Is he healing through prevention and support? I would have to answer no. I believe the critical factor missing in this is the importance of people who are informed, educated but who truly care. We must have a person-centred approach. My husband always said to me, ‘our son would not be alive if not for me standing side by side with my son’. I am an educated and tenacious person who, following my son’s diagnosis, began the challenging journey of searching out organisations that could support both my son and my family. It was a difficult area to navigate through and there are many well-intentioned carers, parents, loved ones and workers who do not have the ability for a number of reasons to provide the necessary support. It may be due to distance from resources, time due to their caring role, energy and mental strength to continue the battle on a daily basis, misinformation, the lack of understanding of mental health issues, fear, stigma that still exists within our communities. We need champions in this area who are skilled through lived experience and education to stand beside teachers from early childhood, through adolescence and into adulthood and across the life span to provide encouragement and mentoring to those people courageous enough to work with people such as my son. Page 24
Election asks: 1. Peer Led Crisis and Recovery Centres for people with high acuity and multiple unmet needs, including co-occurring AOD A peer-led service that offers various ways to access help and connect with others – including a safe space for drop in, appointments for more structured recovery support, warm line, 24/7 crisis responses, broker- age and outreach. A safe space with specialist peer workers accessible to people otherwise excluded from or not accessing services, with locations prioritised on areas with the greatest levels of distress and gaps in support. “My mental health issues do not stop at the end of the traditional working day. Weekends and evenings are the times I feel most isolated and at risk, it would be good to have more supports and services operating in these times.” 2. Peer Family and Carer Recovery Centres with warm line A centre-based, drop in space to engage informally with peers, plus a structured peer mentoring program and warm line. Within these relationships, family members and carers can access supports to support their loved one and for their own recovery and explore other support options including using the capacity within their existing networks. Mental health and co-occurring AOD inclusive. Locations prioritised on areas with the greatest levels of distress and gaps in support. 3. Establish a peer warm line: a calm place to talk with a trained peer without needing to be in crisis. Acces- sible 24/7, 365 days a year - people can acccess by phone, text or messaging apps. This service pre-empts crises developing through access to peer support, and links to other support options, if needed. A warm line is distinct from a crisis line or helpline as it’s not about providing information and you do not need to be in crisis to call. A warm line is about somebody calling to have a conversation. The person receiving the call is trained to listen and not to give advice. The idea is for people to connect with another person at any time of the day or night and be treated with respect in a non judgemental manner. In the US there are about 100 warm lines in operation; many of them are run by peers and have been immensely successful in preventing mental health crises. In Canterbury, New Zealand a warm line resulted in the number of admissions to their Emergency Department and the number of visits to GP’s reduced considerably. To be effective the warmline needs to operate 24/7 every day of the year. Such a service would reduce the demand on our crisis lines and permit those who really are in crisis to get through.
Howard’s Story I lost my mother to cancer when I was twelve years old. This proved to have a significant effect on my life. When I first started work, I discovered alcohol and for a number of years that seemed to fix everything. Eventually I was able to put the top on the bottle. About ten years after that that I was training to be a psychotherapist and realized that I was not well myself. A visit to my GP resulted in my first lot of happy pills. The pattern over the next fifteen years was a period of depression followed by a period of being OK. It never occurred to me over this period to seek out help from community groups. I was aware of GROW but felt that it was too structured for me. I did not know other groups existed. In December 2017 I ended up in Graylands hospital which in some ways was the major turning point for me. I found among some of the staff and particularly one of the peer support workers a measure of support which I had not experienced previously. I admit that I came out of there feeling worse than when I went in but once the medication settled down it was OK. I was told to get community support which I went on to do. Secondly the psychologist suggested that I get more structure in my life. The third lesson was to do whatever it took not to return to Graylands. One Sunday afternoon I was feeling down and made about six phone calls to Beyond Blue and the others. I was unable to speak with a single person. That got me thinking about setting up a service myself. I have since learnt that such a service is called a “Warm Line”. A place where one can simply have a chat, where the caller is heard and listened to. It would have made a difference to me on that Sunday afternoon. I rang my sister in the finish. A service such as this is sorely needed in WA and would fulfill a vital role in preventing escalation of mental health issues. Today I have much to be grateful for. I no longer need medication. I have four adult children who I enjoy mutually supportive relationships with. I volunteer with several organizations and belong to a few community support groups. Above all I am privileged to have a network of friends who I can call when needed for support. I once thought that life was hopeless, now I have HOPE. Page 26
Supported accommodation Safe, affordable housing and mental wellbeing are intrinsically connected – in order to be well, people need a safe place to call home. Homelessness and a gap in supported accommodation services are key issues impact- ing the mental health system in WA. A 2019 snapshot found that 27%, or 178 people, in a mental health hospital bed had no clinical need to be there - they could be discharged if there was community accommodation or community support available to help. Elections asks: Year 1 Increase investment in supported accommodation, across the pathway from high to low support needs. Services need to include both community support and community bed-based service streams. 1. Supported accommodation pathways across the continuum from high needs settings to lower needs accommodation services with a balance of staffed residential services, transitional support and long term individualised packages, based on the development work and models of service developed by the MHC in 2019 and a Housing First approach. In addition to the MHC focus cohorts of youth, adult and forensic, additional services are urgently required for people with high acuity and multiple unmet needs, rural and remote areas, and Aboriginal people. Providing housing with linked community mental health support can save the WA hospital system $84,000 per person per year through preventing acute mental health admission – the saving would be achieved in the first year. Year 2 2. Commission tenancy support services for people in public and private rental to sustain their tenancy, as a foundation for recovery. Year 3 3. Offer peer led supported accommodation options through developing peer led safe spaces to enable ac- cess to peer led supported accommodation options as part of the suite of available services. Peer-led Safe Spaces provide an alternative to hospital through a peer-led, non-judgemental environment where people can be safe. Residential and social components focus on independent living and building relationships, meaningful connections and links to other services. Example: Piri Pono, New Zealand.
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