ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
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2020 ROADMAP TO CANCER CONTROL FOR MANITOBA Setting priorities, working together and achieving the best results
Vision A world free of cancer. Mission To reduce and, where possible, eliminate the burden of cancer on the people of Manitoba through exemplary programs of prevention, diagnosis, treatment, rehabilitation, continuing care, research and education. These are the Vision and Mission statements of CancerCare Manitoba, which work towards cancer control for Manitoba. What is Cancer Control? Cancer Control aims to reduce the impact of cancer by reducing the incidence, morbidity and mortality of cancer and to improve the quality of life of cancer patients in a defined population, through the systematic implementation of evidence-based strategies for prevention, screening, early detection, diagnosis, treatment, supportive care, follow-up care, palliation and end-of-life care.1 Pembina Valley, Manitoba
TABLE OF CONTENTS Vision, Mission, and Definition of Cancer Control 2 The Road to Cancer Control for Manitoba 5 Research and Innovation 7 Patient Perspectives on Clinical Trials 8 The Cancer Landscape 11 Patient- and Community-Centred Care 13 Developing the Roadmap to Cancer Control 14 Roadmap at a Glance - Priorities and Objectives 16 Priority 1: Promote Cancer Prevention and Screening 19 Priority 2: Deliver Timely Access to Quality Cancer Care Closer to Home 27 Priority 3: Provide Evidence-Based, High-Quality Cancer Services 33 Priority 4: Improve Patient Experience Throughout the Cancer Continuum 39 Priority 5: Ensure Sustainability of Cancer Services 45 Priority 6: Improve First Nations, Métis, and Inuit Cancer Control and Outcomes 51 A Framework for High-Quality Cancer Surgery for Manitoba 54 Next Steps for the Roadmap to Cancer Control 55 Acknowledgments 56 Abbreviations 57 References 58 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 3
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The Roadmap to Cancer Control for Manitoba Setting priorities, working together and achieving the best results Cancer affects us all profoundly; it impacts be challenged to keep up with the demand us physically, emotionally, socially and for cancer services. Thus, for a cancer control economically. At times, the disease seems to program to be successful, it needs to also be unyielding. The number of individuals with address measures for sustainability. cancer continues to rise globally. A recent Canadian cancer statistic (2018) reports that The priorities call for innovative solutions to nearly 1 in 2 Canadians will develop cancer in improve efficiencies and effectiveness in the their lifetime.2,3 The good news is that more healthcare system which, in turn, will allow Canadians are surviving their cancer and living us to honour our collective commitment well with the disease. Despite this good news, and deliver the very best cancer care to our cancer still takes people’s lives prematurely diverse community. and places an enormous burden on patients and their families - individuals and caregivers In Manitoba, with the healthcare transformation whom we know and love. Cancer leaves no that introduced the Manitoba Clinical and one untouched. Preventive Services Plan (MCPSP), we are well- positioned to work together as one healthcare CancerCare Manitoba is responsible for system to set priorities and provide care to all planning and leading a provincial cancer Manitobans to achieve the best results. The control program in Manitoba that includes Roadmap to Cancer Control for Manitoba is prevention, diagnosis, treatment and presented to the healthcare system and all supportive care, as well as research and Manitobans at this time of opportunity such education in cancer and blood disorders. It that it will bring the best results one could is only through a comprehensive approach aspire to see for cancer control. The Roadmap that the very best care and support can be will inform the MCPSP related to cancer service provided. provision in Manitoba. Successful implementation of a well- Successful implementation of the cancer planned, robust and comprehensive cancer control priorities is largely dependent on control program which involves the whole the commitment and collaboration of many: healthcare system will determine the cancer government, healthcare systems, universities, outcomes and health of the population in healthcare workers, volunteers and individual Manitoba. Manitobans. It is our privilege as CancerCare Manitoba and its Board of Directors to provide To achieve the goal of cancer control, we are leadership to create the Roadmap to Cancer honoured to present the Roadmap to Cancer Control for Manitoba. Join us as we work to Control for Manitoba. Six priorities for cancer achieve a world without cancer. control have been identified in consultation with key stakeholders. These priorities are patient- and community-centred and research- and innovation-driven. The priorities and corresponding objectives call for the best evidence-based, high-quality and equitable care for all Manitobans; regardless of age, race, culture, disability, gender, religion, or location in the province. Dr. Sri Navaratnam, Mr. Jeoff Chipman, Chair, There is a growing concern that with the President and CEO, Board of Directors, CancerCare Manitoba CancerCare Manitoba increasing number of people living with cancer Professor, Department and the availability of advanced treatments of Internal Medicine, and technologies, our healthcare system will University of Manitoba 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 5
Research and Innovation New knowledge improves cancer control Embedding research into all aspects of Taking discoveries from bench-to- cancer control is an essential component of bedside, and back again, is the goal of a CancerCare Manitoba’s mission to reduce the comprehensive research program that impact of cancer on our population through directly benefits patients. prevention, early detection and a personalized approach to cancer treatment. This integrated research culture attracts the best clinical and research talent from Over many decades, CancerCare Manitoba across the world and allows us to ask has built an integrated research ecosystem in specific questions about the needs of our partnership with the University of Manitoba, local community. In particular, research and and healthcare partners across the province. innovation projects at CancerCare Manitoba This vision is based on the establishment address the needs of Indigenous and of the Manitoba Institute of Cell Biology in vulnerable populations with new approaches 1969 by Dr. Lyonel Israels. A critical part of to prevention, education and patient this Institute model was the co-location of navigation. basic science and translational research with clinicians and patients. In 2015, this approach The Research Institute takes a comprehensive culminated in the formation of the Research approach to cancer research by integrating Institute in Oncology and Hematology, ideas, projects and data from across the which now includes laboratory and clinical cancer journey. This platform is built on researchers from across the spectrum of Manitoba’s longstanding leadership in data cancer and blood disorders. The Research capture and analysis at a population level, Institute is the only provincial organization as well as rich data resources that provide a dedicated exclusively to improving cancer real-time window into system performance, control in Manitoba through research and patient outcomes, psychosocial oncology innovation. Coordination of cancer research and screening. For this reason, research in across the province is a priority so that all health services innovation is a major priority Manitobans will have the opportunity to for building a sustainable, cost-effective and participate in, and benefit from, research evidence-based approach to cancer care in discoveries. This is made possible due to the community. the CancerCare Manitoba Foundation which, through the support of Manitobans, is able Research is foundational to providing the to generously fund research carried out at best evidence-based, high-quality cancer CancerCare Manitoba. care to Manitobans and contributes to cancer control in the province. Research is critical to improving patient care because it identifies new and CancerCare Manitoba is committed to innovative treatments as well as bringing continuing and strengthening this research. the advantageous impacts of clinical trials Without local research, there is no cancer conducted here in Manitoba. Research control. improves patient care and outcomes. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 7
Patient Perspectives on Clinical Trials “I was extremely fortunate to have an oncologist who had his pulse on the clinical trials offered at CCMB. I owe my extended life to him and the clinical trials group for offering this immunotherapy.” - Laura, Clinical Trial Patient “I feel very fortunate to have been a study patient. I am so blessed to be okay after all these years and I’m grateful for CCMB’s research and clinical trials.” - Peggy, Clinical Trial Patient “The clinical trial nurses had every answer I needed, leaving me with no fear of the treatment for this already life-changing experience.” - Matthew, Clinical Trial Patient 8 PRESENTED BY CANCERCARE MANITOBA
Cancer patient, Matthew, meets with clinical trial nurse, Shauna 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA
The Global Context 1 6 IN DEATHS IS DUE TO CANCER GLOBALLY4 The National Context 1 2 IN CANADIANS WILL DEVELOP CANCER IN THEIR LIFETIME2,3 1 4 IN CANADIANS WILL DIE OF CANCER2,3 The Manitoba Context By 2035 10,000 new cancer cases will be diagnosed EVERY YEAR in Manitoba5 To learn more about cancer in Manitoba visit https://www.cancercare.mb.ca/export/sites/default/About- Us/.galleries/files/corporate-publications/System-Performance-Report.pdf or https://tinyurl.com/y4ox3e38 10 PRESENTED BY CANCERCARE MANITOBA
The Cancer Landscape Cancer is the leading cause of death in Canada The Global Context Cancer is a leading cause of death in the healthcare systems, individuals living with world, with an estimated 9.6 million deaths in cancer, communities and cancer agencies to 2018.4 Around the world, governments and find equitable and sustainable solutions to the healthcare systems are exploring strategies cancer burden. Nationally, the major strategic for cancer control as the number of people focuses are on cancer prevention, high-quality with cancer continues to rise. Consistently, care and equitable care for all.7 the cancer control strategies at the forefront are prevention and sustainability of cancer The Manitoba Context services. The World Health Organization’s (WHO) Report on Cancer 2020 identifies the In Manitoba, the picture is very similar. “serious health problem” of cancer globally, CancerCare Manitoba’s 2019 Manitoba Cancer regardless of the wealth or social status of System Performance Report highlights the a nation or individual. The WHO report also growing number of new cancer cases annually. presents a positive message of achieving In 2016, a total of 6,481 Manitobans received cancer control through strategic, high-impact a new cancer diagnosis.5 The number of new investments along the cancer continuum by cancer cases is expected to continue to rise. government, healthcare providers, partner By 2035, over 10,000 new cancer cases are organizations, and individuals working jointly projected to be diagnosed in Manitoba every towards the goal.4 year (an increase of over 50% from 2016).5 Currently, cancer kills over 2,700 Manitobans The Cancer Moonshot Task Force, under the every year.5 Despite these numbers, direction of the US Administration, began Manitobans with cancer are living longer lives a mission to “end cancer as we know it” in due to the availability of new treatments and 2016.6 The strategies ‘shoot for the moon’ with technologies. The five-year survival rate has goals of achieving scientific breakthroughs, improved from 53% (1997-1999) to 62% (2014- leveraging data, and accelerating new 2016).5 therapies. They also focus on the very important groundwork goals of Prevention and Cancer control in Manitoba is impacted by Early Diagnosis and Improving Patient Access the demographics of the population as well and Care. as the remoteness of the north and access to care in that region. The cancer mortality rate The National Context for 2014-2016 in the Northern Region was 263 per 100,000 people compared to the Manitoba Closer to home, cancer remains the leading average of 207 per 100,000 people.5 cause of death, responsible for over 25% of all deaths in Canada.3 More than 600 Canadians In our province, we have the opportunity are diagnosed with cancer every single for the healthcare system to work together day and nearly 230 Canadians will die from to identify cancer control challenges and cancer each day in 2020.2 The 2019-2029 priorities that are unique to Manitoba. Canadian Strategy for Cancer Control, led by the Canadian Partnership Against Cancer Our focuses are on cancer prevention, (CPAC), recognizes the burden of cancer in equitable and culturally-responsive care for Canada with the increase in numbers of people all, care closer to home whenever possible, with cancer due to the growing and aging and sustainability of these services. Indeed, population. It supports a national strategy for these are in keeping with national and global cancer control achieved through collaborations strategies. and networks of all levels of government, 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 11
Manitoba’s Diverse Population POPULATION 5.6%9 NORTHERN REGION OF MANITOBA POPULATION 1,372,708 8 26.0%10 RURAL POPULATION 74.0%10 URBAN POPULATION 18.0% 17.5% 15.6% 9.4% 11 12 12 13 Indigenous Visible Population over Population population minorities age 65 living at low income level
Patient- and Community-Centred Care: The Best Care for Manitobans Responding to the unique needs of the patient Patient- and community-centered care emotional, physical, and social needs of focuses on delivering care that is responsive the patient must be addressed; caring for to the unique needs and preferences of the ‘whole’ person. individual patients and their families, which are also influenced by the communities they This patient-centred approach can only be live in or belong to. It is organized around the applied with an understanding of the whole health needs and expectations of patients person to adequately support their cancer and the community rather than being disease- journey. centric. A patient’s cancer journey can be long; Manitoba has a population of over 1.3 families and communities become vital million people (2019) with approximately support systems for them. Individuals can 74% of residents living in Winnipeg and often receive treatment, follow-up care, other smaller population centres.10 A small support and palliative care services in their percentage (5.6%) of Manitoba’s residents own communities, thereby allowing them live in the Northern Region of the province to remain close to home and their support which comprises 67% of the province’s systems. This dimension of community is landmass.14 Our province is richly diverse in important in planning cancer services to bring culture, ethnicity, geography, socioeconomic the best care to the people of Manitoba. status, age, and gender. Manitoba’s Diverse Population (page 12) highlights some of the Cancer control aims to reduce the impact population’s variations important to planning of cancer through strategies focused on the for cancer services. entire cancer continuum – from prevention, screening and early detection, diagnosis, Unless these components are recognized treatment, and through to survivorship or and factored into health planning, end-of-life care. Robust cancer prevention and along with the acknowledgement of the early detection programs require intervention challenges of racism and cultural safety, at the population level, best achieved one cannot provide equitable care, which through engagement with communities which is key to bringing optimal health outcomes may be geographic or culturally focused. and improved patient experience to all Understanding the challenges of communities Manitobans. and developing strong partnerships with them will help to advance the health of the Cancer is a leading cause of death and cancer community and cancer control priorities. care is a significant part of our healthcare system. Therefore, incorporating patient- and Patient- and community-centred care is community-centred care for this disease essential for a successful healthcare system. has a positive impact on the overall health It brings better outcomes and improved outcomes of the province. Furthermore, patient experience. Evidence also indicates receiving a cancer diagnosis can have a it costs less to the healthcare system.4 Given profound impact on an individual, effectively the demands of cancer on individuals and influencing every aspect of their lives, making the healthcare system, the patient- and patient- and community-centred care pivotal community-centred approach to care must be in providing the best care possible. amplified in the planning and implementation of cancer control priorities. This will bring the For cancer treatment to be most effective best cancer outcomes as well as result in the and for a positive patient experience, the enhanced sustainability of health services. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 13
Developing the Roadmap to Cancer Control Everyone plays a part - from community leaders, patients, educators to healthcare providers Preface Environmental Scan The Manitoba Cancer Plan 2016-2021 outlined An environmental scan of internal and external strategic priorities primarily for CancerCare cancer reports was completed as a first step Manitoba (CCMB) to direct their operations to the development of the Roadmap. The key and provide services to Manitobans. The reports reviewed were: Roadmap to Cancer Control for Manitoba provides a provincial approach to cancer • The CCMB Annual Progress Reports 15 control and will serve to guide all healthcare which provide an update on the progress leaders in every region regarding cancer of the Manitoba Cancer Plan. services provision. The Roadmap’s priorities • The 2019 Manitoba Cancer System and objectives were identified following wide Performance Report 5 which presents stakeholder engagement and consultation valuable contextual information, outlining at various levels, under the leadership of measures from across the continuum of CCMB. These are the cancer control priorities cancer. Outcomes such as incidence, for Manitoba that will inform the healthcare survival, mortality and patient experience system as it achieves better cancer outcomes are compared across Manitoba’s regional for Manitobans. The priorities can only be health authorities. gained through partnerships with healthcare • The 2019 report, Cancer Surgery Quality leaders and organizations throughout the in Manitoba 16 which compiles quality province. Together we can make significant indicators for breast, colorectal, lung, strides in cancer control for all Manitobans. ovarian and prostate cancer surgeries. • The 2019-2029 Canadian Strategy for Why is this Roadmap Unique? Cancer Control 7 and the WHO Report On Cancer 20204. These reports informed and With health transformation in Manitoba, shaped the development of the Roadmap. Shared Health has led the Manitoba Clinical and Preventive Services Plan (MCPSP) for Based on the provincial, national and global all diseases including cancer. For this plan data and reports, we were well-positioned to to be successful, a strong understanding of evaluate the present status, issues and future the disease and identification of the disease priorities for cancer control in Manitoba. control priorities is required. Therefore, CCMB, with provincial and national engagement, produced the Roadmap, which will be a foundational piece to inform the MCPSP and the Annual Strategic and Operational Plans of each region and service delivery organization “One of the most profound in relation to cancer services. moments was hearing the stories of patients - sharing their truth to set the tone and remind us why we were all there.” - Visioning Session Participant 14 PRESENTED BY CANCERCARE MANITOBA
Roadmap Development Environmental The process of creating the Roadmap to Cancer Control for Manitoba began in Scan early 2019. Following the environmental scan as a preliminary step, stakeholder engagement was facilitated through information sessions including a Visioning Session with key stakeholders from across the province. Staff Engagement Visioning Session Priority Framework and Document Development Patients, health leaders, government and the University of Manitoba Using feedback from the Visioning participated in the Session, as well Session, six main priorities were as representatives from CPAC, synthesized, each with specific Visioning Session First Nations, Métis and Inuit objectives. The resulting priority health leaders, Manitoba Regional framework was shared with the Health Authorities, and cancer CCMB Board and Health Senior surgery experts. Focus areas for Leadership Council. The Roadmap presentation and discussion were development process involved Priority cancer surgery, inpatient oncology content experts, the CCMB Executive Framework care, and First Nations, Métis and Team, the Patient Advisory Group, Inuit cancer control. The involvement and approval by the CCMB Board of of all participants facilitated the Directors. identification of provincial priorities for cancer control. CCMB Board and HSLC* Roadmap Development CCMB Board and Patient Advisory Group Final Roadmap Submitted to MHSAL** Health and Cancer Leaders at the Visioning Session *Health Senior Leadership Council **Manitoba Health, Seniors and Active Living 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 15
Roadmap at a Glance Priorities and Objectives Priority 1 Priority 2 Priority 3 Promote cancer Deliver timely access Provide evidence- prevention and to quality cancer care based, high-quality screening closer to home cancer services Objectives: Objectives: Objectives: 1. Increase the number 1. Enable early stage 1. Enhance access to of non-smokers in diagnosis and timely precision medicine Manitoba diagnosis of cancer 2. Optimize 2. Promote proven 2. Increase engagement multidisciplinary practices to reduce of primary care care through high- cancer risk in Manitoba providers and performing cancer navigators throughout disease site groups 3. Increase uptake of the cancer control cancer screening by continuum including 3. Increase compliance Manitobans palliative care with cancer surgical standards throughout 4. Adopt best practices 3. Develop a coordinated Manitoba for cancer screening in and integrated Manitoba provincial model 4. Increase concordance for inpatient cancer with systemic treatment services standards throughout Manitoba 16 PRESENTED BY CANCERCARE MANITOBA
Priority 4 Priority 5 Priority 6 Improve patient Ensure sustainability of Improve First Nations, experience throughout cancer services Métis, and Inuit cancer the cancer continuum control and outcomes Objectives: Objectives: Objectives: 1. Provide increased level 1. Implement innovative 1. Ensure culturally- of emotional support for models of cancer care responsive equitable patients cancer care 2. Integrate digital 2. Improve patient solutions to improve 2. Provide safe and quality engagement and information flow among cancer care in their own access to information healthcare providers communities 3. Support patients in 3. Ensure appropriate 3. Support Peoples- navigating the cancer workforce and specific, self-determined system infrastructure planning cancer care to meet future needs The colours in this publication reflect the Manitoba provincial flag. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 17
Priority 1 Promote Cancer Prevention and Screening Cancer control includes all activities aimed at When cancer cannot be prevented through reducing the burden of cancer in a population, risk reduction, it needs to be diagnosed early. ranging from prevention and screening to Screening programs aim to find cancer before diagnosis, treatment, survivorship supports, symptoms arise when cancer treatment is and in some cases, palliation or end-of-life minimized and outcomes are best – including care. The elements at the front end of the an increased possibility of a cure. Currently, cancer control continuum, notably prevention Manitobans participate in screening programs (risk reduction) and screening, are essential where there is strong scientific evidence for cancer control; they reduce the number supporting the use of a good test that can of people who develop cancer and, where find cancer reliably in asymptomatic people prevention is not possible, find cancer early – breast, cervical and colorectal cancers. New when it is easiest to treat and outcomes are tests and targets (specific cancers) continue best. to be studied; Manitoba needs to be ready for implementation of significant advances in early In the past, cancer prevention and screening detection for appropriate cancer control. programs were often considered ‘nice to have’ from a healthy population perspective, but it Many risk factors for cancer are also is now recognized that they also contribute risk factors for other chronic diseases. to the sustainability of the healthcare system. Therefore, a cancer prevention program in Specifically, investment in prevention and Manitoba can and should be integrated with screening strategies contribute to future broader provincial and national programs decreases in the number and acuity of cancer for the greatest impact. patients. This is particularly important in an era where the population is aging and Provincial and federal governments, health growing, two major drivers of cancer rates. authorities, communities, public health Risk reduction is the only driver that can be agencies, and occupational health groups, all modified to limit the projected increase in have important roles in promoting cancer risk cancer rates. reduction including research, education, policy development and community outreach. Research has indicated that at least 40% of cancers can be prevented by reducing This Cancer Control Priority calls for action to risks such as eliminating exposure to optimize these efforts throughout communities carcinogens, promoting a healthy lifestyle in Manitoba. and getting vaccinated.17 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 19
Priority 1 Promote Cancer Prevention and Screening Objective 1 Increase the number of non-smokers in Manitoba Smoking accounts for approximately 30%18 In addition to relatively high overall smoking of cancer deaths in Canada and is linked rates in Manitoba, recent data show that to cardiovascular and respiratory diseases smoking rates are higher in the Northern among other health conditions. Efforts to assist Region of the province compared to other individuals to quit smoking or to never begin health regions in Manitoba.5 Expansion of smoking are important aspects of disease smoking cessation programs, especially in prevention for Manitobans. northern and rural Manitoba must be a priority. All care providers play an important role in In Manitoba, the percentage of people promoting a non-smoking lifestyle to patients, who identified themselves as current daily including referral to available programs to smokers in 2015/16 was nearly 19%. This assist efforts to quit smoking. was higher than the Canadian average.5,19 Moving forward, provincial and national Smoking is responsible for approximately stakeholders must continue to work together 85% of new lung cancers in Canada and can to reduce the number of smokers in cause cancers of the mouth, throat, larynx Canada. This will be achieved by increasing and esophagus, among others.20 Within five collaborations with public health organizations years of ceasing to smoke, a person’s risk for and provincial and federal governments to developing certain types of cancer is reduced increase awareness of the risks of smoking by half compared to a person who smokes.21 and implement smoking cessation programs. The effectiveness of many cancer treatments is improved for patients who quit smoking. “It was a big comfort knowing that someone cared and worked with me to help me quit smoking when I wasn’t able to before.” - Smoking Cessation Program Participant 20 PRESENTED BY CANCERCARE MANITOBA
EIGHT WAYS TO REDUCE CANCER RISK Maintain a healthy Live smoke free body weight Move more Be sun safe Eat well Limit alcohol Get vaccinated Get screened for HPV (Human papillomavirus) 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 21
Priority 1 Promote Cancer Prevention and Screening Objective 2 Promote proven practices to reduce cancer risk in Manitoba By practicing a healthy lifestyle and Manitoba, 24% of homes have higher than participating in cancer reduction programs, recommended levels of radon, compared to Manitobans can lower the risk of cancer in 11% throughout Canada.22,23 their lifetime. Recent Canadian research has shown that approximately 40% of cancers can Fortunately, residences can be tested for be prevented by changing modifiable lifestyle radon gas and mitigation strategies are and health behaviours.17 available if amounts are detected which exceed recommended levels. Making healthy choices such as quitting smoking, increasing physical activity, The time is right in Manitoba, as we work eating a healthy diet, maintaining a together towards broad health-system healthy weight, consuming safer levels of changes, to also work collectively as a alcohol and practicing sun safety are all healthcare system towards the prevention important steps individuals can take to of cancer and chronic diseases. These reduce not only their risk of cancer, but prevention strategies will inform the MCPSP many other chronic diseases as well. related to cancer service delivery. Promoting risk reduction for cancer will also Through extensive consultation with all help prevent other chronic illnesses such as provincial stakeholders, a comprehensive cardiovascular disease and diabetes. provincial prevention strategy will be developed that includes public messaging Certain environmental factors have also been related to key cancer risk factors and linked to increased cancer risk. associated recommendations. Of note is radon, a naturally occurring radioactive gas which is the leading cause of lung cancer among non-smokers. In Northern Health Region Community Cancer Program Staff on World Cancer Day 22 PRESENTED BY CANCERCARE MANITOBA
Objective 3 Increase uptake of cancer screening by Manitobans Significant progress has been made in recent jurisdictions in Canada, is currently falling short years to improve access to cancer screening of meeting Canadian screening targets set for for many Manitobans, yet some populations breast, cervical and colorectal cancers. remain under-screened, for example in the Northern Region and in new immigrant Strengthening existing screening strategies populations, where the adoption of screening will reduce the incidence and mortality practices is lower for various reasons. of cancer and ultimately improve health outcomes for Manitobans. These strategies The Mobile Mammography Clinic, a must include education, awareness and program of CancerCare Manitoba, provides access as all are vital to improving screening the opportunity for many individuals to rates. participate in screening, particularly those residing in northern Manitoba. Future initiatives to improve screening rates include the implementation of self-sampling This past winter, the mobile mammography to increase cervical cancer screening access, clinic travelled on a flatbed truck on ice roads and the distribution of fecal tests centrally to the communities of Oxford House First within the province for colorectal screening. Nation and St. Theresa Point First Nation. Although Manitoba has made significant strides in cancer screening efforts, more can be done to optimize the availability of screening, especially in the Northern Region. When screening is not performed, cancer is often detected at a later stage when it is more difficult to treat. Manitoba, like other Mobile Mammography Clinic visiting Northern Manitoba 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 23
Priority 1 Promote Cancer Prevention and Screening Objective 4 Adopt best practices for cancer screening in Manitoba We know that cancer screening plays a critical Lung cancer screening for high-risk individuals role in finding certain cancers earlier, often is another advancement in screening to be before symptoms occur, and can save lives. In considered for adoption in the province. Manitoba, we have strong screening programs Research has shown that low-dose CT for breast, cervical and colorectal cancers. In scanning for individuals at high risk can reduce recent years, cancer screening technologies lung cancer deaths by as much as 20% and as have advanced significantly. We are committed a result, current Canadian recommendations to adopt and implement the best evidence- are that high-risk individuals should be based screening methods for Manitobans. screened.24,25 Provincial adoption of Fecal Immunochemical Test (FIT) and high-risk HPV primary testing for cervical cancer screening are two examples of advanced screening technologies for Manitoba. Eligible individuals throughout Manitoba are currently mailed a Fecal Occult Blood Test (FOBT) kit 24 PRESENTED BY CANCERCARE MANITOBA
“As a mom, I try to teach my kids as much as I can about being safe and caring for their bodies. By giving them the HPV vaccine now, I am giving them an added layer of protection and reducing their risk of cancer.” - Manitoba parent of a Grade 6 student 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 25
Dr. Cornie Woelk, family physician in oncology, with clinical staff at Boundary Trails Health Centre, Southern Health-Santé Sud
Priority 2 Deliver Timely Access to Quality Cancer Care Closer to Home Accessing quality care within an appropriate approximately 9,000 hospital discharges per time frame is essential for optimal cancer year in Manitoba related to cancer care26 treatment and outcomes for Manitobans for diagnosis, treatment, surgery, treatment with cancer. Cancer services need to be complications and pain management. The equitable and accessible to all Manitobans in priority to provide timely access to quality a timely manner regardless of location, race, cancer care applies as well to inpatient care of background or socioeconomic status. cancer patients. The healthcare system needs to aspire to This Cancer Control Priority calls for action provide quality cancer services closer to to deliver timely access to quality cancer home whenever possible, bringing quality care closer to home in both the outpatient to patients and patients to quality. and inpatient settings, through increased engagement of primary care providers and Cancer patients receive care in an outpatient navigators throughout Manitoba. setting for diagnosis, multidisciplinary consultation and assessment, and treatment including systemic chemotherapy, radiation, and day surgery. Regardless, there are “The Community Cancer Program (CCP) has been a blessing for me and my family and has given us relief from stress and anxiety. The comfort inherent in a familiar CCP contributes to treatment success that cannot be overstated.” - Cancer Patient, Selkirk CCP “CancerCare Manitoba represents a shining example of how a provincial cancer agency, in a challengingly sparse geography outside of its capital, can systematically advance quality, performance, and innovation over time with collaborative models of primary care in remote and rural communities.” - Dr. Terry Sullivan, National Cancer Leader, CPAC 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 27
Priority 2 Deliver Timely Access to Quality Cancer Care Closer to Home Objective 1 Enable early stage diagnosis and timely diagnosis of cancer The cancer system in Manitoba seeks Timely diagnosis requires the entire to diagnose cancer early in its disease provincial healthcare system to work progression whenever possible and to together as efficiently and seamlessly as diagnose cancer in a timely manner. Early possible. stage diagnosis of cancer is one of the most effective measures for cancer control. Public Provincial partners will continue to work awareness and accessibility to primary care together to improve access and streamline providers is an important determinant of communications, procedures and services cancer diagnosis at an early stage. for timely diagnoses. Identifying and better understanding the existing gaps An early cancer diagnosis can be achieved in from the presentation of symptoms to a two ways: through screening of asymptomatic cancer diagnosis is important in facilitating patients as presented in Priority 1, and through appropriate care. Rapid Diagnostic Clinics and effective and efficient processes for timely Virtual Diagnostic Clinics will further facilitate diagnosis when symptoms appear. timely diagnoses and treatment and assist in ensuring timely diagnoses throughout the In most instances, a cancer diagnosis is made province. once an individual presents with symptoms to their primary care provider or emergency department. Some patients may also present with greater disease complexity leading to a disjointed diagnostic pathway with possible lengthy delays. It is critical at these care points to determine a diagnosis in a timely manner. Integral to the process is the testing and procedures carried out by various healthcare partners for the diagnosis to be made. 28 PRESENTED BY CANCERCARE MANITOBA
Cancer Diagnosis by Stage in Manitoba The percent of late-stage diagnoses (stage IV) by cancer site, 2016.5 Survival rates are frequently lower for individuals with cancer diagnosed at a later stage. Early cancer diagnoses may result in better outcomes for many cancers. Stage I Stage II Stage III Stage IV Unknown Breast (female only) 6.6% Lung 47.1% Colon aa 20.3% Rectum bb 18.9% Prostate 17.3% Non-Hodgkin Lymphoma 41.8% Corpus uteri 5.8% Melanoma of the skin 2.5% Kidney 18.3% Oral c c 40.8% Pancreas 45.8% Bladder 18.0% Thyroid 10.6% Stomach 29.6% Ovary 20.2% Esophagus 35.3% Liver 16.1% d Sarcoma d 21.6% Cervix uteri 6.8% 0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100% Notes: a excluding rectum; b includes rectosigmoid; c oral cancer (buccal cavity and pharynx; includes: lip, tongue, salivary gland, mouth, nasopharynx, oropharynx, and other unspecified cases); d soft tissue (including the heart). Staging data shown for cancer sites with more than 40 cases in 2016. Cancer sites are ordered from the most cases to least (with the exception of rectum and colon which are included near the top as combined they are the third most common cancer). For more information regarding data presented in this figure, please refer to the Manitoba Cancer System Performance Report, 2019.5 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 29
Priority 2 Deliver Timely Access to Quality Cancer Care Closer to Home Objective 2 Increase engagement of primary care providers and navigators throughout the cancer control continuum including palliative care Cancer control aims to reduce the incidence, throughout the cancer journey to ensure morbidity and mortality of cancer across the efficient and effective coordination of care continuum of care- from prevention, diagnosis and elimination of gaps. These services can and treatment to supportive and end-of-life be successfully facilitated by navigators in the care. Primary care providers are the only system. healthcare providers engaged in the patient’s care throughout the cancer continuum. Cancer Navigation Services are available Therefore, a robust network of primary care in every health region and consist of nurse providers and navigators is of paramount navigators and psychosocial oncology importance to facilitate early diagnosis, timely clinicians who provide valuable support to referral and treatment and to improve patient patients. experience and outcomes. Continuous investment and education for Primary care providers with a focused practice primary care providers and navigators are in oncology are a vital and expanding part essential for high-quality cancer care. of cancer care in Canada. Family Physicians in Oncology (FPOs) and other primary care Access to palliative care in a timely manner providers have been providing care in and availability of optimal pain and symptom Manitoba for many years. The Department management for cancer patients is an of Primary Care Oncology at CancerCare important component to improve the quality Manitoba and the University of Manitoba of life and achieve better cancer control. provide oncology education to primary care Provincial stakeholders will continue to work providers to support and enhance their together in addressing the recommendations expertise and knowledge to provide care to identified through the MCPSP related to patients with suspected or confirmed cancer palliative care. As many patients who receive diagnoses. palliative care have cancer, Palliative Care Programs, CancerCare Manitoba and Regional The diagnosis and treatment of cancer often Health Authorities must work together to involve many specialists; coordination of continue to share information and improve these specialist services is imperative for safe access to palliative care services throughout and timely care. Communication between the province. patients and healthcare providers is integral “I want to let you know how much I have appreciated your Navigation Team over the past few weeks. Knowing we had a resource to call in case anything came up was invaluable. Especially given I do not live in Winnipeg, being able to check in with your office gave me a lot of peace of mind.” - Cancer Patient 30 PRESENTED BY CANCERCARE MANITOBA
Objective 3 Develop a coordinated and integrated provincial model for inpatient cancer services Hospitalized cancer patients receive care by An important focus moving forward will be a specialized team trained in oncology care. the development of a provincial model for With the growing number of new and complex inpatient cancer services, to build on and cancer treatments and unique side-effects, improve the existing model of oncology the need for specialized oncology care is inpatient care in Manitoba. An inpatient increasing. Delays in optimal care, fragmented oncology unit will improve efficiencies, care and longer stays in hospital can result safety and patient experience. Additionally, when coordinated oncology inpatient services transitions to other programs such as are not in place. palliative care will occur more efficiently and effectively. One important aspect of this In Canada, most provinces have a dedicated provincial inpatient unit will be the presence oncology inpatient unit as a recognized of a Virtual Cancer Care Unit to provide timely standard of care. A dedicated inpatient communication and expert advice by oncology oncology unit for Manitoba would serve the specialists to care providers throughout the province well in delivering timely access to province. specialized cancer care. Working together with provincial partners, A dedicated oncology inpatient unit an oncology inpatient unit will be carefully would complement the principles of the planned and implemented to provide better Manitoba Clinical and Preventive Services cancer control, disease outcome, quality of Plan: to reduce time to treatment, improve care and sustainability within the Manitoba outcomes, shorten hospital length of stay, healthcare system. and reduce costs. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 31
Treatment planning for state-of-the-art radiation therapy at CancerCare Manitoba
Priority 3 Provide Evidence- Based, High-Quality Cancer Services To achieve the best patient outcomes and The multidisciplinary team consisting of cancer control for the province, cancer specialists from various disciplines is at the services must be of high quality and evidence- core of bringing the best cancer care to based. There is a significant investment patients. Therefore, the high performing team in cancer research provincially, nationally is central to providing evidence-based, high- and globally that continues to bring new quality care that will bring the best cancer advances. Research and innovation bring outcomes for Manitoba. new and emerging treatments and advanced technology to clinical practice resulting in This Cancer Control Priority calls for action evidence-based, high-quality cancer care for to incorporate new and emerging treatments patients. delivered by high performing multidisciplinary healthcare teams. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 33
Priority 3 Provide Evidence-Based, High-Quality Cancer Services Objective 1 Enhance access to precision medicine Precision medicine in the context of cancer Precision medicine is also applied in the use of refers to the prevention, diagnosis and a patient’s genetic and molecular information treatment of cancer using highly precise to more accurately prevent, diagnose and and personalized methodologies. These treat cancers. This tailored approach to cancer methods are applied predominantly in the care considers the specific molecular makeup areas of radiation treatment and the use of a of an individual or distinct groups of people patient’s genetic and molecular information to and their cancer to inform clinical decisions determine targeted drug treatments. and treatment. These targeted therapies are patient-specific and therefore are often Precision medicine is at the core of radiation better tolerated by patients than standard treatment, which precisely targets cancer chemotherapy. A person’s genetic information cells and saves healthy normal tissue. With may also be used to detect an increased innovations and technological improvements, risk for cancer development, for example in radiation oncology is advancing towards ultra- individuals with Lynch Syndrome. precision personalized radiation therapies. These therapies have the potential to kill The use of genetic and molecular testing cancer cells through very high doses of to inform clinical decisions is the new radiation with fewer treatments compared to standard of care for many cancers. conventional therapies. CancerCare Manitoba is working with These advancements in radiation provincial and national partners to explore technology allow for ultra-precision and strategies to support the existing high volume personalized care, with the ability to target of genetic and molecular testing required and cancer cells within 1 mm accuracy and the anticipated increase as new therapies minimize treatment side-effects. become available. Preparing a patient for radiation treatment, Western Manitoba Cancer Centre, Prairie Mountain Health Region 34 PRESENTED BY CANCERCARE MANITOBA
Objective 2 Optimize multidisciplinary care through high-performing cancer disease site groups A multidisciplinary approach to care, where Performance determinants of specialist teams work together to determine multidisciplinary disease site teams: the best course of treatment for every cancer patient, is essential to providing evidence- • Training and continuous education based, high-quality cancer care. Once the • Incorporating research and innovation care plan is formulated, if care can be safely into clinical practice provided within the patient’s community, the • Adherence to best evidence-based plan and information are provided to the local practice care team. Specialist teams and local teams • Prompt access to many clinical trials work together to ensure ongoing, safe and • Continued monitoring of quality metrics optimal care. and disease outcomes Integral to multidisciplinary care are disease site groups (DSGs), comprised of healthcare professionals from diverse disciplines and areas of expertise focused on a particular cancer site. There are disease site groups for all common cancers, for example, breast or thoracic, consisting of a total of 16 groups. High performing disease site groups deliver high-quality care. The new Calypso radiation machine targets cancer cells using highly precise technology. CCMB is the first Canadian cancer centre to have this equipment. 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 35
Priority 3 Provide Evidence-Based, High-Quality Cancer Services Objective 3 Increase compliance with cancer surgical standards throughout Manitoba Surgery plays a key role in the diagnosis The implementation of cancer surgery and treatment of cancer. The most common standards improves cancer outcomes. A form of curative cancer treatment is surgery. cancer surgery framework and plan developed Approximately 50% of cancer patients by cancer surgery experts in Manitoba, will in Manitoba require surgery and more complement the Roadmap to Cancer Control than 5,000 cancer related operations are for Manitoba and provide further guidance and performed provincially each year.16,5 Therefore, standards for cancer surgery. access to high-quality cancer surgery throughout the province is vital for cancer The collaboration of all provincial partners for control. the continued improvement and organization of cancer surgery delivery for all Manitobans is Due to the large volume of cancer surgeries strengthened through the MCPSP. performed across the province at various health centres, variations may occur in surgical practice patterns and outcomes. A comprehensive and cohesive approach is needed to meet the expected increase in cancer surgery volume while maintaining high quality and sustainable care. Dr. Pamela Hebbard (R), surgical oncologist Dr. Elizabeth Thompson, cancer surgery lead, with Pam (L), oncology nurse at CCMB Southern Health-Santé Sud 36 PRESENTED BY CANCERCARE MANITOBA
Objective 4 Increase concordance with systemic treatment standards throughout Manitoba Chemotherapy, a type of systemic therapy, is In this environment of many complex a cornerstone of cancer treatment and can treatment regimens, new pharmacy be provided in the outpatient and inpatient regulations, and oral chemotherapy drugs, setting in community sites throughout there is a need for the development of and Manitoba, guided by CancerCare Manitoba. adherence to provincial standards for systemic treatment. A Provincial Systemic Therapy Providing systemic treatment in many Program, currently in development, will communities is one of the ways in which address this need and will ensure the quality quality cancer care is brought closer to and safe provision of chemotherapy across home for patients. Due to the large number the province to meet provincial and national of community sites providing systemic quality standards. The Provincial Systemic therapy to cancer patients, care must be Therapy Program for Manitoba will also ensure accessible, well organized, and connected a more cohesive, coordinated and integrated with the specialty teams at CancerCare approach to enhance communication and Manitoba. participation of all provincial regions involved with the planning and safe delivery of systemic Chemotherapy treatments continue to therapy for the province. advance, leading to more complex therapies. The process of chemotherapy drug mixture within the province is being impacted by new pharmacy standards to improve the quality and safety of drug preparations, set by the National Association of Pharmacy Regulatory Authorities (NAPRA).27 New pharmacy standards (NAPRA) improve the quality and safety of drug preparations 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 37
“It has been so affirming and uplifting to hear people’s experiences and strategies for walking my cancer journey.” - Cancer Support Group Participant 38
Priority 4 Improve Patient Experience Throughout the Cancer Continuum Patient experience is what the process of and stressful time for many patients and receiving care feels like for the patients their families. This impact places a significant and their families. It is the accumulation of emotional burden on individuals. Providing experiences through the interactions that emotional support to patients throughout patients have with the healthcare system, the cancer journey assists them in managing including their care from doctors, nurses, the cancer journey more successfully and healthcare staff and healthcare facilities.28 achieving an overall improved outcome. Navigating the cancer system can prove The patient experience includes aspects of challenging and often requires assistance to healthcare delivery that are highly valued best understand all of the cancer services by patients including timely appointments, and options available. Also imperative access to information and good for patients and their families is access to communication with healthcare providers.28 reliable information to better understand their diagnosis. Engaging patients in their care and The patient experience is also influenced by treatment empowers them and improves their a patient’s expectations of the healthcare experience. system.28 Effective and compassionate communication in all interactions with This Cancer Control Priority calls for action patients is key to providing a positive patient to enhance the support available to patients experience. to improve their experience throughout the cancer journey. A patient’s experience is a key element of patient-centred care. Priorities and objectives developed through the lens of patient- centred care and good patient experience are foundational for a successful cancer control program in Manitoba. Patients who have a “I was able to talk, express, laugh and positive cancer experience often have better cry with others who ‘get it’.” outcomes, leading to overall improved cancer control. - Cancer Support Group Participant Receiving a cancer diagnosis often comes with little to no warning, resulting in a difficult 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 39
Priority 4 Improve Patient Experience Throughout the Cancer Continuum Objective 1 Provide increased level of emotional support for patients In addition to facing physical changes with rehabilitation initiatives. Access to support illness, many emotional challenges may be programming throughout the province is experienced as a result of a cancer diagnosis. variable. Providing emotional support for patients and families is vital throughout the continuum An area of focus moving forward will be to of care from suspicion and diagnosis to increase the availability of support services treatment and survivorship or end-of-life care. throughout the province, especially in rural and remote areas. One of the ways in which Patients who are provided with emotional this can be done is through the increased use support can manage the cancer journey of digital tools such as video conferencing with more success, have an improved platforms. Provincial partners will continue patient experience and achieve an overall to work together to address the gaps in improved outcome. emotional support for cancer patients and their families. Examples of emotional supports and programming available for Manitoba cancer patients and families are individual and family counselling, support groups and cancer 40 PRESENTED BY CANCERCARE MANITOBA
Objective 2 Improve patient engagement and access to information Patient engagement is a key component of direction to patients on where and how to the patient experience and the patient- and access the most up-to-date, accurate and community-centred care the healthcare easy to understand cancer information can system aims to provide to Manitobans. be of great benefit. Healthcare providers Throughout the cancer continuum, healthcare and navigators play important roles in providers need to engage with the patient and assisting patients’ increase in understanding their families to understand the whole person of available information. Being equipped and their unique needs. with the right information enhances patient engagement with the healthcare team and Patients and their families are empowered further empowers patients to make informed when they are engaged in their care and decisions. provided with information; as a result, they are better equipped to make informed Accurate and accessible information is crucial decisions about their cancer care. for a positive patient experience during the cancer journey - from diagnosis to treatment Through this engagement the patient and, if needed, end-of-life care. experience and the cancer outcome are improved. Access to reliable and accurate information is critical for patients and their families to understand their cancer journey. Providing The Patient and Family Resource Centre at CancerCare Manitoba provides cancer information to patients 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA 41
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