ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results

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ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
2020

    ROADMAP TO
CANCER CONTROL
  FOR MANITOBA
   Setting priorities, working together
        and achieving the best results
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
Vision
A world free of cancer.

Mission
To reduce and, where possible, eliminate the burden of cancer on the people
of Manitoba through exemplary programs of prevention, diagnosis, treatment,
rehabilitation, continuing care, research and education.

These are the Vision and Mission statements of CancerCare Manitoba, which work
towards cancer control for Manitoba.

What is Cancer Control?
Cancer Control aims to reduce the impact of cancer by reducing the incidence,
morbidity and mortality of cancer and to improve the quality of life of cancer patients
in a defined population, through the systematic implementation of evidence-based
strategies for prevention, screening, early detection, diagnosis, treatment, supportive
care, follow-up care, palliation and end-of-life care.1

Pembina Valley, Manitoba
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
TABLE OF CONTENTS

Vision, Mission, and Definition of Cancer Control                                2

The Road to Cancer Control for Manitoba                                          5

Research and Innovation                                                          7

Patient Perspectives on Clinical Trials                                          8

The Cancer Landscape                                                            11

Patient- and Community-Centred Care                                             13

Developing the Roadmap to Cancer Control                                        14

Roadmap at a Glance - Priorities and Objectives                                 16

Priority 1: Promote Cancer Prevention and Screening                             19

Priority 2: Deliver Timely Access to Quality Cancer Care
            Closer to Home                                                      27

Priority 3: Provide Evidence-Based, High-Quality Cancer
            Services                                                            33

Priority 4: Improve Patient Experience Throughout the
            Cancer Continuum                                                    39

Priority 5: Ensure Sustainability of Cancer Services                            45

Priority 6: Improve First Nations, Métis, and Inuit Cancer
            Control and Outcomes                                                51

A Framework for High-Quality Cancer Surgery
for Manitoba                                                                    54

Next Steps for the Roadmap to Cancer Control                                    55

Acknowledgments                                                                 56

Abbreviations                                                                   57

References                                                                      58

                            2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   3
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
Families
Young    andiscommunities
       Drea                 are vitalfor
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                                         cancer. See herfor cancer
                                                          story     patients.
                                                                at cancercarefdn.mb.ca/dreas-story/
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
The Roadmap to Cancer Control for Manitoba
Setting priorities, working together and achieving the best results

Cancer affects us all profoundly; it impacts      be challenged to keep up with the demand
us physically, emotionally, socially and          for cancer services. Thus, for a cancer control
economically. At times, the disease seems to      program to be successful, it needs to also
be unyielding. The number of individuals with     address measures for sustainability.
cancer continues to rise globally. A recent
Canadian cancer statistic (2018) reports that     The priorities call for innovative solutions to
nearly 1 in 2 Canadians will develop cancer in    improve efficiencies and effectiveness in the
their lifetime.2,3 The good news is that more     healthcare system which, in turn, will allow
Canadians are surviving their cancer and living   us to honour our collective commitment
well with the disease. Despite this good news,    and deliver the very best cancer care to our
cancer still takes people’s lives prematurely     diverse community.
and places an enormous burden on patients
and their families - individuals and caregivers   In Manitoba, with the healthcare transformation
whom we know and love. Cancer leaves no           that introduced the Manitoba Clinical and
one untouched.                                    Preventive Services Plan (MCPSP), we are well-
                                                  positioned to work together as one healthcare
CancerCare Manitoba is responsible for            system to set priorities and provide care to all
planning and leading a provincial cancer          Manitobans to achieve the best results. The
control program in Manitoba that includes         Roadmap to Cancer Control for Manitoba is
prevention, diagnosis, treatment and              presented to the healthcare system and all
supportive care, as well as research and          Manitobans at this time of opportunity such
education in cancer and blood disorders. It       that it will bring the best results one could
is only through a comprehensive approach          aspire to see for cancer control. The Roadmap
that the very best care and support can be        will inform the MCPSP related to cancer service
provided.                                         provision in Manitoba.

Successful implementation of a well-              Successful implementation of the cancer
planned, robust and comprehensive cancer          control priorities is largely dependent on
control program which involves the whole          the commitment and collaboration of many:
healthcare system will determine the cancer       government, healthcare systems, universities,
outcomes and health of the population in          healthcare workers, volunteers and individual
Manitoba.                                         Manitobans. It is our privilege as CancerCare
                                                  Manitoba and its Board of Directors to provide
To achieve the goal of cancer control, we are     leadership to create the Roadmap to Cancer
honoured to present the Roadmap to Cancer         Control for Manitoba. Join us as we work to
Control for Manitoba. Six priorities for cancer   achieve a world without cancer.
control have been identified in consultation
with key stakeholders. These priorities are
patient- and community-centred and research-
and innovation-driven. The priorities and
corresponding objectives call for the best
evidence-based, high-quality and equitable
care for all Manitobans; regardless of age,
race, culture, disability, gender, religion, or
location in the province.
                                                  Dr. Sri Navaratnam,              Mr. Jeoff Chipman, Chair,
There is a growing concern that with the          President and CEO,               Board of Directors,
                                                  CancerCare Manitoba              CancerCare Manitoba
increasing number of people living with cancer
                                                  Professor, Department
and the availability of advanced treatments       of Internal Medicine,
and technologies, our healthcare system will      University of Manitoba

                                                                     2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   5
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
PhD Graduate, Research Institute in Oncology and Hematology, CancerCare Manitoba
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
Research and Innovation
New knowledge improves cancer control

Embedding research into all aspects of            Taking discoveries from bench-to-
cancer control is an essential component of       bedside, and back again, is the goal of a
CancerCare Manitoba’s mission to reduce the       comprehensive research program that
impact of cancer on our population through        directly benefits patients.
prevention, early detection and a personalized
approach to cancer treatment.                     This integrated research culture attracts
                                                  the best clinical and research talent from
Over many decades, CancerCare Manitoba            across the world and allows us to ask
has built an integrated research ecosystem in     specific questions about the needs of our
partnership with the University of Manitoba,      local community. In particular, research and
and healthcare partners across the province.      innovation projects at CancerCare Manitoba
This vision is based on the establishment         address the needs of Indigenous and
of the Manitoba Institute of Cell Biology in      vulnerable populations with new approaches
1969 by Dr. Lyonel Israels. A critical part of    to prevention, education and patient
this Institute model was the co-location of       navigation.
basic science and translational research with
clinicians and patients. In 2015, this approach   The Research Institute takes a comprehensive
culminated in the formation of the Research       approach to cancer research by integrating
Institute in Oncology and Hematology,             ideas, projects and data from across the
which now includes laboratory and clinical        cancer journey. This platform is built on
researchers from across the spectrum of           Manitoba’s longstanding leadership in data
cancer and blood disorders. The Research          capture and analysis at a population level,
Institute is the only provincial organization     as well as rich data resources that provide a
dedicated exclusively to improving cancer         real-time window into system performance,
control in Manitoba through research and          patient outcomes, psychosocial oncology
innovation. Coordination of cancer research       and screening. For this reason, research in
across the province is a priority so that all     health services innovation is a major priority
Manitobans will have the opportunity to           for building a sustainable, cost-effective and
participate in, and benefit from, research        evidence-based approach to cancer care in
discoveries. This is made possible due to         the community.
the CancerCare Manitoba Foundation which,
through the support of Manitobans, is able        Research is foundational to providing the
to generously fund research carried out at        best evidence-based, high-quality cancer
CancerCare Manitoba.                              care to Manitobans and contributes to
                                                  cancer control in the province.
Research is critical to improving patient
care because it identifies new and                CancerCare Manitoba is committed to
innovative treatments as well as bringing         continuing and strengthening this research.
the advantageous impacts of clinical trials       Without local research, there is no cancer
conducted here in Manitoba. Research              control.
improves patient care and outcomes.

                                                               2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   7
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
Patient Perspectives on Clinical Trials

           “I was extremely fortunate to have an oncologist who had his pulse
           on the clinical trials offered at CCMB. I owe my extended life to him
           and the clinical trials group for offering this immunotherapy.”
           - Laura, Clinical Trial Patient

           “I feel very fortunate to have been a study patient. I am so blessed to
           be okay after all these years and I’m grateful for CCMB’s research and
           clinical trials.”
           - Peggy, Clinical Trial Patient

           “The clinical trial nurses had every answer I needed, leaving me with
           no fear of the treatment for this already life-changing experience.”
           - Matthew, Clinical Trial Patient

8   PRESENTED BY CANCERCARE MANITOBA
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
Cancer patient, Matthew, meets with clinical trial nurse, Shauna

                                                           2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA
ROADMAP TO CANCER CONTROL FOR MANITOBA - 2020 Setting priorities, working together and achieving the best results
The Global Context

                                                                                        1 6    IN

                                                                                            DEATHS
                                                                                            IS DUE TO
                                                                                           CANCER
                                                                                           GLOBALLY4

       The National Context

                                                                                        1 2    IN

                                                                                        CANADIANS
                                                                                        WILL DEVELOP
                                                                                         CANCER IN
                                                                                       THEIR LIFETIME2,3

                                                                                        1 4    IN

                                                                                        CANADIANS
                                                                                          WILL DIE OF
                                                                                          CANCER2,3

       The Manitoba Context

                         By 2035        10,000       new cancer cases
                          will be diagnosed EVERY YEAR in Manitoba5

       To learn more about cancer in Manitoba visit https://www.cancercare.mb.ca/export/sites/default/About-
       Us/.galleries/files/corporate-publications/System-Performance-Report.pdf or https://tinyurl.com/y4ox3e38

10   PRESENTED BY CANCERCARE MANITOBA
The Cancer Landscape
Cancer is the leading cause of death in Canada
The Global Context

Cancer is a leading cause of death in the         healthcare systems, individuals living with
world, with an estimated 9.6 million deaths in    cancer, communities and cancer agencies to
2018.4 Around the world, governments and          find equitable and sustainable solutions to the
healthcare systems are exploring strategies       cancer burden. Nationally, the major strategic
for cancer control as the number of people        focuses are on cancer prevention, high-quality
with cancer continues to rise. Consistently,      care and equitable care for all.7
the cancer control strategies at the forefront
are prevention and sustainability of cancer       The Manitoba Context
services. The World Health Organization’s
(WHO) Report on Cancer 2020 identifies the        In Manitoba, the picture is very similar.
“serious health problem” of cancer globally,      CancerCare Manitoba’s 2019 Manitoba Cancer
regardless of the wealth or social status of      System Performance Report highlights the
a nation or individual. The WHO report also       growing number of new cancer cases annually.
presents a positive message of achieving          In 2016, a total of 6,481 Manitobans received
cancer control through strategic, high-impact     a new cancer diagnosis.5 The number of new
investments along the cancer continuum by         cancer cases is expected to continue to rise.
government, healthcare providers, partner         By 2035, over 10,000 new cancer cases are
organizations, and individuals working jointly    projected to be diagnosed in Manitoba every
towards the goal.4                                year (an increase of over 50% from 2016).5
                                                  Currently, cancer kills over 2,700 Manitobans
The Cancer Moonshot Task Force, under the         every year.5 Despite these numbers,
direction of the US Administration, began         Manitobans with cancer are living longer lives
a mission to “end cancer as we know it” in        due to the availability of new treatments and
2016.6 The strategies ‘shoot for the moon’ with   technologies. The five-year survival rate has
goals of achieving scientific breakthroughs,      improved from 53% (1997-1999) to 62% (2014-
leveraging data, and accelerating new             2016).5
therapies. They also focus on the very
important groundwork goals of Prevention and      Cancer control in Manitoba is impacted by
Early Diagnosis and Improving Patient Access      the demographics of the population as well
and Care.                                         as the remoteness of the north and access to
                                                  care in that region. The cancer mortality rate
The National Context                              for 2014-2016 in the Northern Region was 263
                                                  per 100,000 people compared to the Manitoba
Closer to home, cancer remains the leading        average of 207 per 100,000 people.5
cause of death, responsible for over 25% of all
deaths in Canada.3 More than 600 Canadians        In our province, we have the opportunity
are diagnosed with cancer every single            for the healthcare system to work together
day and nearly 230 Canadians will die from        to identify cancer control challenges and
cancer each day in 2020.2 The 2019-2029           priorities that are unique to Manitoba.
Canadian Strategy for Cancer Control, led
by the Canadian Partnership Against Cancer        Our focuses are on cancer prevention,
(CPAC), recognizes the burden of cancer in        equitable and culturally-responsive care for
Canada with the increase in numbers of people     all, care closer to home whenever possible,
with cancer due to the growing and aging          and sustainability of these services. Indeed,
population. It supports a national strategy for   these are in keeping with national and global
cancer control achieved through collaborations    strategies.
and networks of all levels of government,
                                                                2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   11
Manitoba’s Diverse Population

POPULATION                                        5.6%9
                                                              NORTHERN
                                                              REGION
OF MANITOBA                                                   POPULATION

1,372,708
                   8

                                                       26.0%10   RURAL
                                                                 POPULATION

                                             74.0%10    URBAN
                                                        POPULATION

18.0% 17.5% 15.6% 9.4%
              11                12                       12                       13

 Indigenous         Visible          Population over               Population
 population        minorities           age 65                    living at low
                                                                 income level
Patient- and Community-Centred Care:
The Best Care for Manitobans
Responding to the unique needs of the patient
Patient- and community-centered care               emotional, physical, and social needs of
focuses on delivering care that is responsive      the patient must be addressed; caring for
to the unique needs and preferences of             the ‘whole’ person.
individual patients and their families, which
are also influenced by the communities they        This patient-centred approach can only be
live in or belong to. It is organized around the   applied with an understanding of the whole
health needs and expectations of patients          person to adequately support their cancer
and the community rather than being disease-       journey.
centric.
                                                   A patient’s cancer journey can be long;
Manitoba has a population of over 1.3              families and communities become vital
million people (2019) with approximately           support systems for them. Individuals can
74% of residents living in Winnipeg and            often receive treatment, follow-up care,
other smaller population centres.10 A small        support and palliative care services in their
percentage (5.6%) of Manitoba’s residents          own communities, thereby allowing them
live in the Northern Region of the province        to remain close to home and their support
which comprises 67% of the province’s              systems. This dimension of community is
landmass.14 Our province is richly diverse in      important in planning cancer services to bring
culture, ethnicity, geography, socioeconomic       the best care to the people of Manitoba.
status, age, and gender. Manitoba’s Diverse
Population (page 12) highlights some of the        Cancer control aims to reduce the impact
population’s variations important to planning      of cancer through strategies focused on the
for cancer services.                               entire cancer continuum – from prevention,
                                                   screening and early detection, diagnosis,
Unless these components are recognized             treatment, and through to survivorship or
and factored into health planning,                 end-of-life care. Robust cancer prevention and
along with the acknowledgement of the              early detection programs require intervention
challenges of racism and cultural safety,          at the population level, best achieved
one cannot provide equitable care, which           through engagement with communities which
is key to bringing optimal health outcomes         may be geographic or culturally focused.
and improved patient experience to all             Understanding the challenges of communities
Manitobans.                                        and developing strong partnerships with
                                                   them will help to advance the health of the
Cancer is a leading cause of death and cancer      community and cancer control priorities.
care is a significant part of our healthcare
system. Therefore, incorporating patient- and      Patient- and community-centred care is
community-centred care for this disease            essential for a successful healthcare system.
has a positive impact on the overall health        It brings better outcomes and improved
outcomes of the province. Furthermore,             patient experience. Evidence also indicates
receiving a cancer diagnosis can have a            it costs less to the healthcare system.4 Given
profound impact on an individual, effectively      the demands of cancer on individuals and
influencing every aspect of their lives, making    the healthcare system, the patient- and
patient- and community-centred care pivotal        community-centred approach to care must be
in providing the best care possible.               amplified in the planning and implementation
                                                   of cancer control priorities. This will bring the
For cancer treatment to be most effective          best cancer outcomes as well as result in the
and for a positive patient experience, the         enhanced sustainability of health services.
                                                                 2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   13
Developing the Roadmap to Cancer Control
     Everyone plays a part - from community leaders, patients, educators
     to healthcare providers
     Preface                                            Environmental Scan
     The Manitoba Cancer Plan 2016-2021 outlined        An environmental scan of internal and external
     strategic priorities primarily for CancerCare      cancer reports was completed as a first step
     Manitoba (CCMB) to direct their operations         to the development of the Roadmap. The key
     and provide services to Manitobans. The            reports reviewed were:
     Roadmap to Cancer Control for Manitoba
     provides a provincial approach to cancer            • The CCMB Annual Progress Reports 15
     control and will serve to guide all healthcare        which provide an update on the progress
     leaders in every region regarding cancer              of the Manitoba Cancer Plan.
     services provision. The Roadmap’s priorities        • The 2019 Manitoba Cancer System
     and objectives were identified following wide         Performance Report 5 which presents
     stakeholder engagement and consultation               valuable contextual information, outlining
     at various levels, under the leadership of            measures from across the continuum of
     CCMB. These are the cancer control priorities         cancer. Outcomes such as incidence,
     for Manitoba that will inform the healthcare          survival, mortality and patient experience
     system as it achieves better cancer outcomes          are compared across Manitoba’s regional
     for Manitobans. The priorities can only be            health authorities.
     gained through partnerships with healthcare         • The 2019 report, Cancer Surgery Quality
     leaders and organizations throughout the              in Manitoba 16 which compiles quality
     province. Together we can make significant            indicators for breast, colorectal, lung,
     strides in cancer control for all Manitobans.         ovarian and prostate cancer surgeries.
                                                         • The 2019-2029 Canadian Strategy for
     Why is this Roadmap Unique?                           Cancer Control 7 and the WHO Report On
                                                           Cancer 20204. These reports informed and
     With health transformation in Manitoba,               shaped the development of the Roadmap.
     Shared Health has led the Manitoba Clinical
     and Preventive Services Plan (MCPSP) for           Based on the provincial, national and global
     all diseases including cancer. For this plan       data and reports, we were well-positioned to
     to be successful, a strong understanding of        evaluate the present status, issues and future
     the disease and identification of the disease      priorities for cancer control in Manitoba.
     control priorities is required. Therefore, CCMB,
     with provincial and national engagement,
     produced the Roadmap, which will be a
     foundational piece to inform the MCPSP and
     the Annual Strategic and Operational Plans of
     each region and service delivery organization           “One of the most profound
     in relation to cancer services.
                                                             moments was hearing the stories
                                                             of patients - sharing their truth to
                                                             set the tone and remind us why
                                                             we were all there.”
                                                             - Visioning Session Participant

14   PRESENTED BY CANCERCARE MANITOBA
Roadmap Development
  Environmental                   The process of creating the Roadmap to Cancer Control for Manitoba began in
       Scan                       early 2019. Following the environmental scan as a preliminary step, stakeholder
                                  engagement was facilitated through information sessions including a Visioning
                                  Session with key stakeholders from across the province.

      Staff
   Engagement
                                  Visioning Session                          Priority Framework and
                                                                             Document Development
                                  Patients, health leaders, government
                                  and the University of Manitoba             Using feedback from the Visioning
                                  participated in the Session, as well       Session, six main priorities were
                                  as representatives from CPAC,              synthesized, each with specific
     Visioning
     Session
                                  First Nations, Métis and Inuit             objectives. The resulting priority
                                  health leaders, Manitoba Regional          framework was shared with the
                                  Health Authorities, and cancer             CCMB Board and Health Senior
                                  surgery experts. Focus areas for           Leadership Council. The Roadmap
                                  presentation and discussion were           development process involved
      Priority                    cancer surgery, inpatient oncology         content experts, the CCMB Executive
    Framework                     care, and First Nations, Métis and         Team, the Patient Advisory Group,
                                  Inuit cancer control. The involvement      and approval by the CCMB Board of
                                  of all participants facilitated the        Directors.
                                  identification of provincial priorities
                                  for cancer control.
   CCMB Board
    and HSLC*

    Roadmap
   Development

CCMB Board and
Patient Advisory
     Group

  Final Roadmap
   Submitted to
     MHSAL**

                                    Health and Cancer Leaders at the Visioning Session
*Health Senior Leadership Council
**Manitoba Health, Seniors and Active Living

                                                                                  2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   15
Roadmap at a Glance
     Priorities and Objectives

     Priority 1                         Priority 2                 Priority 3
     Promote cancer                     Deliver timely access      Provide evidence-
     prevention and                     to quality cancer care     based, high-quality
     screening                          closer to home             cancer services

     Objectives:                        Objectives:                Objectives:

     1. Increase the number             1. Enable early stage      1. Enhance access to
        of non-smokers in                  diagnosis and timely       precision medicine
        Manitoba                           diagnosis of cancer
                                                                   2. Optimize
     2. Promote proven                  2. Increase engagement        multidisciplinary
        practices to reduce                of primary care            care through high-
        cancer risk in Manitoba            providers and              performing cancer
                                           navigators throughout      disease site groups
     3. Increase uptake of                 the cancer control
        cancer screening by                continuum including     3. Increase compliance
        Manitobans                         palliative care            with cancer surgical
                                                                      standards throughout
     4. Adopt best practices            3. Develop a coordinated      Manitoba
        for cancer screening in            and integrated
        Manitoba                           provincial model        4. Increase concordance
                                           for inpatient cancer       with systemic treatment
                                           services                   standards throughout
                                                                      Manitoba

16   PRESENTED BY CANCERCARE MANITOBA
Priority 4                                   Priority 5                                           Priority 6
Improve patient                              Ensure sustainability of                             Improve First Nations,
experience throughout                        cancer services                                      Métis, and Inuit cancer
the cancer continuum                                                                              control and outcomes

Objectives:                                  Objectives:                                          Objectives:

1. Provide increased level                   1. Implement innovative                              1. Ensure culturally-
   of emotional support for                     models of cancer care                                responsive equitable
   patients                                                                                          cancer care
                                             2. Integrate digital
2. Improve patient                              solutions to improve                              2. Provide safe and quality
   engagement and                               information flow among                               cancer care in their own
   access to information                        healthcare providers                                 communities

3. Support patients in                       3. Ensure appropriate                                3. Support Peoples-
   navigating the cancer                        workforce and                                        specific, self-determined
   system                                       infrastructure planning                              cancer care
                                                to meet future needs

            The colours in this publication reflect the Manitoba provincial flag.

                                                                                    2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   17
Priority 1
                              Promote Cancer
                              Prevention and
                              Screening
Cancer control includes all activities aimed at   When cancer cannot be prevented through
reducing the burden of cancer in a population,    risk reduction, it needs to be diagnosed early.
ranging from prevention and screening to          Screening programs aim to find cancer before
diagnosis, treatment, survivorship supports,      symptoms arise when cancer treatment is
and in some cases, palliation or end-of-life      minimized and outcomes are best – including
care. The elements at the front end of the        an increased possibility of a cure. Currently,
cancer control continuum, notably prevention      Manitobans participate in screening programs
(risk reduction) and screening, are essential     where there is strong scientific evidence
for cancer control; they reduce the number        supporting the use of a good test that can
of people who develop cancer and, where           find cancer reliably in asymptomatic people
prevention is not possible, find cancer early     – breast, cervical and colorectal cancers. New
when it is easiest to treat and outcomes are      tests and targets (specific cancers) continue
best.                                             to be studied; Manitoba needs to be ready for
                                                  implementation of significant advances in early
In the past, cancer prevention and screening      detection for appropriate cancer control.
programs were often considered ‘nice to have’
from a healthy population perspective, but it     Many risk factors for cancer are also
is now recognized that they also contribute       risk factors for other chronic diseases.
to the sustainability of the healthcare system.   Therefore, a cancer prevention program in
Specifically, investment in prevention and        Manitoba can and should be integrated with
screening strategies contribute to future         broader provincial and national programs
decreases in the number and acuity of cancer      for the greatest impact.
patients. This is particularly important in
an era where the population is aging and          Provincial and federal governments, health
growing, two major drivers of cancer rates.       authorities, communities, public health
Risk reduction is the only driver that can be     agencies, and occupational health groups, all
modified to limit the projected increase in       have important roles in promoting cancer risk
cancer rates.                                     reduction including research, education, policy
                                                  development and community outreach.
Research has indicated that at least 40%
of cancers can be prevented by reducing           This Cancer Control Priority calls for action to
risks such as eliminating exposure to             optimize these efforts throughout communities
carcinogens, promoting a healthy lifestyle        in Manitoba.
and getting vaccinated.17

                                                               2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   19
Priority 1 Promote Cancer Prevention and Screening

     Objective 1
     Increase the number of non-smokers in Manitoba
     Smoking accounts for approximately 30%18             In addition to relatively high overall smoking
     of cancer deaths in Canada and is linked             rates in Manitoba, recent data show that
     to cardiovascular and respiratory diseases           smoking rates are higher in the Northern
     among other health conditions. Efforts to assist     Region of the province compared to other
     individuals to quit smoking or to never begin        health regions in Manitoba.5 Expansion of
     smoking are important aspects of disease             smoking cessation programs, especially in
     prevention for Manitobans.                           northern and rural Manitoba must be a priority.
                                                          All care providers play an important role in
     In Manitoba, the percentage of people                promoting a non-smoking lifestyle to patients,
     who identified themselves as current daily           including referral to available programs to
     smokers in 2015/16 was nearly 19%. This              assist efforts to quit smoking.
     was higher than the Canadian average.5,19
                                                          Moving forward, provincial and national
     Smoking is responsible for approximately             stakeholders must continue to work together
     85% of new lung cancers in Canada and can            to reduce the number of smokers in
     cause cancers of the mouth, throat, larynx           Canada. This will be achieved by increasing
     and esophagus, among others.20 Within five           collaborations with public health organizations
     years of ceasing to smoke, a person’s risk for       and provincial and federal governments to
     developing certain types of cancer is reduced        increase awareness of the risks of smoking
     by half compared to a person who smokes.21           and implement smoking cessation programs.
     The effectiveness of many cancer treatments
     is improved for patients who quit smoking.

            “It was a big comfort knowing that someone cared and worked with me to help
            me quit smoking when I wasn’t able to before.”
            - Smoking Cessation Program Participant

20   PRESENTED BY CANCERCARE MANITOBA
EIGHT WAYS TO
REDUCE CANCER RISK

                                         Maintain a healthy
     Live smoke free
                                         body weight

     Move more                           Be sun safe

     Eat well                            Limit alcohol

                                         Get vaccinated
     Get screened                        for HPV
                                         (Human papillomavirus)

                       2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   21
Priority 1 Promote Cancer Prevention and Screening

     Objective 2
     Promote proven practices to reduce cancer risk in Manitoba
     By practicing a healthy lifestyle and                Manitoba, 24% of homes have higher than
     participating in cancer reduction programs,          recommended levels of radon, compared to
     Manitobans can lower the risk of cancer in           11% throughout Canada.22,23
     their lifetime. Recent Canadian research has
     shown that approximately 40% of cancers can          Fortunately, residences can be tested for
     be prevented by changing modifiable lifestyle        radon gas and mitigation strategies are
     and health behaviours.17                             available if amounts are detected which
                                                          exceed recommended levels.
     Making healthy choices such as quitting
     smoking, increasing physical activity,               The time is right in Manitoba, as we work
     eating a healthy diet, maintaining a                 together towards broad health-system
     healthy weight, consuming safer levels of            changes, to also work collectively as a
     alcohol and practicing sun safety are all            healthcare system towards the prevention
     important steps individuals can take to              of cancer and chronic diseases. These
     reduce not only their risk of cancer, but            prevention strategies will inform the MCPSP
     many other chronic diseases as well.                 related to cancer service delivery.

     Promoting risk reduction for cancer will also        Through extensive consultation with all
     help prevent other chronic illnesses such as         provincial stakeholders, a comprehensive
     cardiovascular disease and diabetes.                 provincial prevention strategy will be
                                                          developed that includes public messaging
     Certain environmental factors have also been         related to key cancer risk factors and
     linked to increased cancer risk.                     associated recommendations.

     Of note is radon, a naturally occurring
     radioactive gas which is the leading cause
     of lung cancer among non-smokers. In

     Northern Health Region Community Cancer Program Staff on World Cancer Day

22   PRESENTED BY CANCERCARE MANITOBA
Objective 3
Increase uptake of cancer screening by Manitobans
Significant progress has been made in recent       jurisdictions in Canada, is currently falling short
years to improve access to cancer screening        of meeting Canadian screening targets set for
for many Manitobans, yet some populations          breast, cervical and colorectal cancers.
remain under-screened, for example in
the Northern Region and in new immigrant           Strengthening existing screening strategies
populations, where the adoption of screening       will reduce the incidence and mortality
practices is lower for various reasons.            of cancer and ultimately improve health
                                                   outcomes for Manitobans. These strategies
The Mobile Mammography Clinic, a                   must include education, awareness and
program of CancerCare Manitoba, provides           access as all are vital to improving screening
the opportunity for many individuals to            rates.
participate in screening, particularly those
residing in northern Manitoba.                     Future initiatives to improve screening rates
                                                   include the implementation of self-sampling
This past winter, the mobile mammography           to increase cervical cancer screening access,
clinic travelled on a flatbed truck on ice roads   and the distribution of fecal tests centrally
to the communities of Oxford House First           within the province for colorectal screening.
Nation and St. Theresa Point First Nation.

Although Manitoba has made significant
strides in cancer screening efforts, more
can be done to optimize the availability of
screening, especially in the Northern Region.
When screening is not performed, cancer
is often detected at a later stage when it is
more difficult to treat. Manitoba, like other

Mobile Mammography Clinic visiting Northern Manitoba

                                                                  2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   23
Priority 1 Promote Cancer Prevention and Screening

     Objective 4
     Adopt best practices for cancer screening in Manitoba
     We know that cancer screening plays a critical        Lung cancer screening for high-risk individuals
     role in finding certain cancers earlier, often        is another advancement in screening to be
     before symptoms occur, and can save lives. In         considered for adoption in the province.
     Manitoba, we have strong screening programs           Research has shown that low-dose CT
     for breast, cervical and colorectal cancers. In       scanning for individuals at high risk can reduce
     recent years, cancer screening technologies           lung cancer deaths by as much as 20% and as
     have advanced significantly. We are committed         a result, current Canadian recommendations
     to adopt and implement the best evidence-             are that high-risk individuals should be
     based screening methods for Manitobans.               screened.24,25

     Provincial adoption of Fecal
     Immunochemical Test (FIT) and high-risk
     HPV primary testing for cervical cancer
     screening are two examples of advanced
     screening technologies for Manitoba.

     Eligible individuals throughout Manitoba are currently mailed a Fecal Occult Blood Test (FOBT) kit

24   PRESENTED BY CANCERCARE MANITOBA
“As a mom, I try to teach my kids as much as I can about being safe and caring
for their bodies. By giving them the HPV vaccine now, I am giving them an
added layer of protection and reducing their risk of cancer.”
- Manitoba parent of a Grade 6 student

                                                   2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   25
Dr. Cornie Woelk, family physician in oncology, with clinical staff at Boundary Trails Health Centre,
Southern Health-Santé Sud
Priority 2
                              Deliver Timely Access
                              to Quality Cancer Care
                              Closer to Home
Accessing quality care within an appropriate              approximately 9,000 hospital discharges per
time frame is essential for optimal cancer                year in Manitoba related to cancer care26
treatment and outcomes for Manitobans                     for diagnosis, treatment, surgery, treatment
with cancer. Cancer services need to be                   complications and pain management. The
equitable and accessible to all Manitobans in             priority to provide timely access to quality
a timely manner regardless of location, race,             cancer care applies as well to inpatient care of
background or socioeconomic status.                       cancer patients.

The healthcare system needs to aspire to                  This Cancer Control Priority calls for action
provide quality cancer services closer to                 to deliver timely access to quality cancer
home whenever possible, bringing quality                  care closer to home in both the outpatient
to patients and patients to quality.                      and inpatient settings, through increased
                                                          engagement of primary care providers and
Cancer patients receive care in an outpatient             navigators throughout Manitoba.
setting for diagnosis, multidisciplinary
consultation and assessment, and treatment
including systemic chemotherapy, radiation,
and day surgery. Regardless, there are

     “The Community Cancer Program (CCP) has been a blessing for me and my
     family and has given us relief from stress and anxiety. The comfort inherent in a
     familiar CCP contributes to treatment success that cannot be overstated.”
     - Cancer Patient, Selkirk CCP

     “CancerCare Manitoba represents a shining example of how a provincial
     cancer agency, in a challengingly sparse geography outside of its capital, can
     systematically advance quality, performance, and innovation over time with
     collaborative models of primary care in remote and rural communities.”
     - Dr. Terry Sullivan, National Cancer Leader, CPAC

                                                                        2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   27
Priority 2 Deliver Timely Access to Quality Cancer Care Closer to Home

     Objective 1
     Enable early stage diagnosis and timely diagnosis of cancer

     The cancer system in Manitoba seeks                   Timely diagnosis requires the entire
     to diagnose cancer early in its disease               provincial healthcare system to work
     progression whenever possible and to                  together as efficiently and seamlessly as
     diagnose cancer in a timely manner. Early             possible.
     stage diagnosis of cancer is one of the most
     effective measures for cancer control. Public         Provincial partners will continue to work
     awareness and accessibility to primary care           together to improve access and streamline
     providers is an important determinant of              communications, procedures and services
     cancer diagnosis at an early stage.                   for timely diagnoses. Identifying and
                                                           better understanding the existing gaps
     An early cancer diagnosis can be achieved in          from the presentation of symptoms to a
     two ways: through screening of asymptomatic           cancer diagnosis is important in facilitating
     patients as presented in Priority 1, and through      appropriate care. Rapid Diagnostic Clinics and
     effective and efficient processes for timely          Virtual Diagnostic Clinics will further facilitate
     diagnosis when symptoms appear.                       timely diagnoses and treatment and assist
                                                           in ensuring timely diagnoses throughout the
     In most instances, a cancer diagnosis is made         province.
     once an individual presents with symptoms
     to their primary care provider or emergency
     department. Some patients may also present
     with greater disease complexity leading to a
     disjointed diagnostic pathway with possible
     lengthy delays. It is critical at these care points
     to determine a diagnosis in a timely manner.
     Integral to the process is the testing and
     procedures carried out by various healthcare
     partners for the diagnosis to be made.

28   PRESENTED BY CANCERCARE MANITOBA
Cancer Diagnosis by Stage in Manitoba

The percent of late-stage diagnoses (stage IV) by cancer site, 2016.5

Survival rates are frequently lower for individuals with cancer diagnosed at a later stage. Early
cancer diagnoses may result in better outcomes for many cancers.

                                  Stage I         Stage II         Stage III      Stage IV             Unknown

     Breast (female only)                                                                                         6.6%

                    Lung                                                                       47.1%

                Colon aa                                                                                20.3%

              Rectum bb                                                                                   18.9%

                Prostate                                                                                   17.3%

 Non-Hodgkin Lymphoma                                                                         41.8%

             Corpus uteri                                                                                        5.8%

    Melanoma of the skin                                                                                           2.5%

                  Kidney                                                                                 18.3%

                  Oral c c                                                                    40.8%

                Pancreas                                                                 45.8%

                 Bladder                                                                                18.0%

                 Thyroid                                                                                       10.6%

                Stomach                                                                29.6%

                   Ovary                                                                                 20.2%

              Esophagus                                                          35.3%

                    Liver                                                                16.1%
                       d
             Sarcoma d                                                                                 21.6%

             Cervix uteri                                                                                      6.8%

                             0%    10%      20%      30%     40%        50%    60%      70%       80%      90%         100%

Notes: a excluding rectum; b includes rectosigmoid; c oral cancer (buccal cavity and pharynx; includes: lip, tongue,
salivary gland, mouth, nasopharynx, oropharynx, and other unspecified cases); d soft tissue (including the heart).
Staging data shown for cancer sites with more than 40 cases in 2016. Cancer sites are ordered from the most cases
to least (with the exception of rectum and colon which are included near the top as combined they are the third most
common cancer). For more information regarding data presented in this figure, please refer to the Manitoba Cancer
System Performance Report, 2019.5

                                                                               2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   29
Priority 2 Deliver Timely Access to Quality Cancer Care Closer to Home

     Objective 2
     Increase engagement of primary care providers and
     navigators throughout the cancer control continuum including
     palliative care
     Cancer control aims to reduce the incidence,         throughout the cancer journey to ensure
     morbidity and mortality of cancer across the         efficient and effective coordination of care
     continuum of care- from prevention, diagnosis        and elimination of gaps. These services can
     and treatment to supportive and end-of-life          be successfully facilitated by navigators in the
     care. Primary care providers are the only            system.
     healthcare providers engaged in the patient’s
     care throughout the cancer continuum.                Cancer Navigation Services are available
     Therefore, a robust network of primary care          in every health region and consist of nurse
     providers and navigators is of paramount             navigators and psychosocial oncology
     importance to facilitate early diagnosis, timely     clinicians who provide valuable support to
     referral and treatment and to improve patient        patients.
     experience and outcomes.
                                                          Continuous investment and education for
     Primary care providers with a focused practice       primary care providers and navigators are
     in oncology are a vital and expanding part           essential for high-quality cancer care.
     of cancer care in Canada. Family Physicians
     in Oncology (FPOs) and other primary care            Access to palliative care in a timely manner
     providers have been providing care in                and availability of optimal pain and symptom
     Manitoba for many years. The Department              management for cancer patients is an
     of Primary Care Oncology at CancerCare               important component to improve the quality
     Manitoba and the University of Manitoba              of life and achieve better cancer control.
     provide oncology education to primary care           Provincial stakeholders will continue to work
     providers to support and enhance their               together in addressing the recommendations
     expertise and knowledge to provide care to           identified through the MCPSP related to
     patients with suspected or confirmed cancer          palliative care. As many patients who receive
     diagnoses.                                           palliative care have cancer, Palliative Care
                                                          Programs, CancerCare Manitoba and Regional
     The diagnosis and treatment of cancer often          Health Authorities must work together to
     involve many specialists; coordination of            continue to share information and improve
     these specialist services is imperative for safe     access to palliative care services throughout
     and timely care. Communication between               the province.
     patients and healthcare providers is integral

             “I want to let you know how much I have appreciated your Navigation Team
             over the past few weeks. Knowing we had a resource to call in case anything
             came up was invaluable. Especially given I do not live in Winnipeg, being able
             to check in with your office gave me a lot of peace of mind.”
             - Cancer Patient

30   PRESENTED BY CANCERCARE MANITOBA
Objective 3
Develop a coordinated and integrated provincial model for
inpatient cancer services

Hospitalized cancer patients receive care by     An important focus moving forward will be
a specialized team trained in oncology care.     the development of a provincial model for
With the growing number of new and complex       inpatient cancer services, to build on and
cancer treatments and unique side-effects,       improve the existing model of oncology
the need for specialized oncology care is        inpatient care in Manitoba. An inpatient
increasing. Delays in optimal care, fragmented   oncology unit will improve efficiencies,
care and longer stays in hospital can result     safety and patient experience. Additionally,
when coordinated oncology inpatient services     transitions to other programs such as
are not in place.                                palliative care will occur more efficiently
                                                 and effectively. One important aspect of this
In Canada, most provinces have a dedicated       provincial inpatient unit will be the presence
oncology inpatient unit as a recognized          of a Virtual Cancer Care Unit to provide timely
standard of care. A dedicated inpatient          communication and expert advice by oncology
oncology unit for Manitoba would serve the       specialists to care providers throughout the
province well in delivering timely access to     province.
specialized cancer care.
                                                 Working together with provincial partners,
A dedicated oncology inpatient unit              an oncology inpatient unit will be carefully
would complement the principles of the           planned and implemented to provide better
Manitoba Clinical and Preventive Services        cancer control, disease outcome, quality of
Plan: to reduce time to treatment, improve       care and sustainability within the Manitoba
outcomes, shorten hospital length of stay,       healthcare system.
and reduce costs.

                                                              2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   31
Treatment planning for state-of-the-art radiation therapy at CancerCare Manitoba
Priority 3
                              Provide Evidence-
                              Based, High-Quality
                              Cancer Services
To achieve the best patient outcomes and         The multidisciplinary team consisting of
cancer control for the province, cancer          specialists from various disciplines is at the
services must be of high quality and evidence-   core of bringing the best cancer care to
based. There is a significant investment         patients. Therefore, the high performing team
in cancer research provincially, nationally      is central to providing evidence-based, high-
and globally that continues to bring new         quality care that will bring the best cancer
advances. Research and innovation bring          outcomes for Manitoba.
new and emerging treatments and advanced
technology to clinical practice resulting in     This Cancer Control Priority calls for action
evidence-based, high-quality cancer care for     to incorporate new and emerging treatments
patients.                                        delivered by high performing multidisciplinary
                                                 healthcare teams.

                                                               2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   33
Priority 3 Provide Evidence-Based, High-Quality Cancer Services

     Objective 1
     Enhance access to precision medicine

     Precision medicine in the context of cancer         Precision medicine is also applied in the use of
     refers to the prevention, diagnosis and             a patient’s genetic and molecular information
     treatment of cancer using highly precise            to more accurately prevent, diagnose and
     and personalized methodologies. These               treat cancers. This tailored approach to cancer
     methods are applied predominantly in the            care considers the specific molecular makeup
     areas of radiation treatment and the use of a       of an individual or distinct groups of people
     patient’s genetic and molecular information to      and their cancer to inform clinical decisions
     determine targeted drug treatments.                 and treatment. These targeted therapies
                                                         are patient-specific and therefore are often
     Precision medicine is at the core of radiation      better tolerated by patients than standard
     treatment, which precisely targets cancer           chemotherapy. A person’s genetic information
     cells and saves healthy normal tissue. With         may also be used to detect an increased
     innovations and technological improvements,         risk for cancer development, for example in
     radiation oncology is advancing towards ultra-      individuals with Lynch Syndrome.
     precision personalized radiation therapies.
     These therapies have the potential to kill          The use of genetic and molecular testing
     cancer cells through very high doses of             to inform clinical decisions is the new
     radiation with fewer treatments compared to         standard of care for many cancers.
     conventional therapies.
                                                         CancerCare Manitoba is working with
     These advancements in radiation                     provincial and national partners to explore
     technology allow for ultra-precision and            strategies to support the existing high volume
     personalized care, with the ability to target       of genetic and molecular testing required and
     cancer cells within 1 mm accuracy and               the anticipated increase as new therapies
     minimize treatment side-effects.                    become available.

     Preparing a patient for radiation treatment, Western Manitoba Cancer Centre, Prairie Mountain
     Health Region

34   PRESENTED BY CANCERCARE MANITOBA
Objective 2
Optimize multidisciplinary care through high-performing
cancer disease site groups
A multidisciplinary approach to care, where         Performance determinants of
specialist teams work together to determine         multidisciplinary disease site teams:
the best course of treatment for every cancer
patient, is essential to providing evidence-        •   Training and continuous education
based, high-quality cancer care. Once the           •   Incorporating research and innovation
care plan is formulated, if care can be safely          into clinical practice
provided within the patient’s community, the        •   Adherence to best evidence-based
plan and information are provided to the local          practice
care team. Specialist teams and local teams         •   Prompt access to many clinical trials
work together to ensure ongoing, safe and           •   Continued monitoring of quality metrics
optimal care.                                           and disease outcomes

Integral to multidisciplinary care are disease
site groups (DSGs), comprised of healthcare
professionals from diverse disciplines and
areas of expertise focused on a particular
cancer site. There are disease site groups
for all common cancers, for example, breast
or thoracic, consisting of a total of 16 groups.
High performing disease site groups deliver
high-quality care.

The new Calypso radiation machine targets cancer cells using highly precise technology.
CCMB is the first Canadian cancer centre to have this equipment.

                                                                   2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   35
Priority 3 Provide Evidence-Based, High-Quality Cancer Services

     Objective 3
     Increase compliance with cancer surgical standards
     throughout Manitoba
     Surgery plays a key role in the diagnosis            The implementation of cancer surgery
     and treatment of cancer. The most common             standards improves cancer outcomes. A
     form of curative cancer treatment is surgery.        cancer surgery framework and plan developed
     Approximately 50% of cancer patients                 by cancer surgery experts in Manitoba, will
     in Manitoba require surgery and more                 complement the Roadmap to Cancer Control
     than 5,000 cancer related operations are             for Manitoba and provide further guidance and
     performed provincially each year.16,5 Therefore,     standards for cancer surgery.
     access to high-quality cancer surgery
     throughout the province is vital for cancer          The collaboration of all provincial partners for
     control.                                             the continued improvement and organization
                                                          of cancer surgery delivery for all Manitobans is
     Due to the large volume of cancer surgeries          strengthened through the MCPSP.
     performed across the province at various
     health centres, variations may occur in surgical
     practice patterns and outcomes.

     A comprehensive and cohesive approach
     is needed to meet the expected increase in
     cancer surgery volume while maintaining
     high quality and sustainable care.

     Dr. Pamela Hebbard (R), surgical oncologist             Dr. Elizabeth Thompson, cancer surgery lead,
     with Pam (L), oncology nurse at CCMB                    Southern Health-Santé Sud

36   PRESENTED BY CANCERCARE MANITOBA
Objective 4
Increase concordance with systemic treatment standards
throughout Manitoba
Chemotherapy, a type of systemic therapy, is      In this environment of many complex
a cornerstone of cancer treatment and can         treatment regimens, new pharmacy
be provided in the outpatient and inpatient       regulations, and oral chemotherapy drugs,
setting in community sites throughout             there is a need for the development of and
Manitoba, guided by CancerCare Manitoba.          adherence to provincial standards for systemic
                                                  treatment. A Provincial Systemic Therapy
Providing systemic treatment in many              Program, currently in development, will
communities is one of the ways in which           address this need and will ensure the quality
quality cancer care is brought closer to          and safe provision of chemotherapy across
home for patients. Due to the large number        the province to meet provincial and national
of community sites providing systemic             quality standards. The Provincial Systemic
therapy to cancer patients, care must be          Therapy Program for Manitoba will also ensure
accessible, well organized, and connected         a more cohesive, coordinated and integrated
with the specialty teams at CancerCare            approach to enhance communication and
Manitoba.                                         participation of all provincial regions involved
                                                  with the planning and safe delivery of systemic
Chemotherapy treatments continue to               therapy for the province.
advance, leading to more complex therapies.
The process of chemotherapy drug mixture
within the province is being impacted by new
pharmacy standards to improve the quality
and safety of drug preparations, set by the
National Association of Pharmacy Regulatory
Authorities (NAPRA).27

New pharmacy standards (NAPRA) improve the quality and safety of drug preparations

                                                                2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   37
“It has been so affirming and uplifting to hear people’s experiences and
     strategies for walking my cancer journey.”
     - Cancer Support Group Participant

38
Priority 4
                                 Improve Patient
                                 Experience
                                 Throughout the
                                 Cancer Continuum
Patient experience is what the process of             and stressful time for many patients and
receiving care feels like for the patients            their families. This impact places a significant
and their families. It is the accumulation of         emotional burden on individuals. Providing
experiences through the interactions that             emotional support to patients throughout
patients have with the healthcare system,             the cancer journey assists them in managing
including their care from doctors, nurses,            the cancer journey more successfully and
healthcare staff and healthcare facilities.28         achieving an overall improved outcome.
                                                      Navigating the cancer system can prove
The patient experience includes aspects of            challenging and often requires assistance to
healthcare delivery that are highly valued            best understand all of the cancer services
by patients including timely appointments,            and options available. Also imperative
access to information and good                        for patients and their families is access to
communication with healthcare providers.28            reliable information to better understand their
                                                      diagnosis. Engaging patients in their care and
The patient experience is also influenced by          treatment empowers them and improves their
a patient’s expectations of the healthcare            experience.
system.28 Effective and compassionate
communication in all interactions with                This Cancer Control Priority calls for action
patients is key to providing a positive patient       to enhance the support available to patients
experience.                                           to improve their experience throughout the
                                                      cancer journey.
A patient’s experience is a key element of
patient-centred care. Priorities and objectives
developed through the lens of patient-
centred care and good patient experience are
foundational for a successful cancer control
program in Manitoba. Patients who have a                    “I was able to talk, express, laugh and
positive cancer experience often have better                cry with others who ‘get it’.”
outcomes, leading to overall improved cancer
control.                                                    - Cancer Support Group Participant
Receiving a cancer diagnosis often comes
with little to no warning, resulting in a difficult
                                                                    2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   39
Priority 4 Improve Patient Experience Throughout the Cancer Continuum

     Objective 1
     Provide increased level of emotional support for patients
     In addition to facing physical changes with        rehabilitation initiatives. Access to support
     illness, many emotional challenges may be          programming throughout the province is
     experienced as a result of a cancer diagnosis.     variable.
     Providing emotional support for patients and
     families is vital throughout the continuum         An area of focus moving forward will be to
     of care from suspicion and diagnosis to            increase the availability of support services
     treatment and survivorship or end-of-life care.    throughout the province, especially in rural
                                                        and remote areas. One of the ways in which
     Patients who are provided with emotional           this can be done is through the increased use
     support can manage the cancer journey              of digital tools such as video conferencing
     with more success, have an improved                platforms. Provincial partners will continue
     patient experience and achieve an overall          to work together to address the gaps in
     improved outcome.                                  emotional support for cancer patients and
                                                        their families.
     Examples of emotional supports and
     programming available for Manitoba cancer
     patients and families are individual and family
     counselling, support groups and cancer

40   PRESENTED BY CANCERCARE MANITOBA
Objective 2
Improve patient engagement and access to information
Patient engagement is a key component of           direction to patients on where and how to
the patient experience and the patient- and        access the most up-to-date, accurate and
community-centred care the healthcare              easy to understand cancer information can
system aims to provide to Manitobans.              be of great benefit. Healthcare providers
Throughout the cancer continuum, healthcare        and navigators play important roles in
providers need to engage with the patient and      assisting patients’ increase in understanding
their families to understand the whole person      of available information. Being equipped
and their unique needs.                            with the right information enhances patient
                                                   engagement with the healthcare team and
Patients and their families are empowered          further empowers patients to make informed
when they are engaged in their care and            decisions.
provided with information; as a result,
they are better equipped to make informed          Accurate and accessible information is crucial
decisions about their cancer care.                 for a positive patient experience during the
                                                   cancer journey - from diagnosis to treatment
Through this engagement the patient                and, if needed, end-of-life care.
experience and the cancer outcome are
improved.

Access to reliable and accurate information
is critical for patients and their families to
understand their cancer journey. Providing

The Patient and Family Resource Centre at CancerCare Manitoba provides cancer information
to patients

                                                                2020 | ROADMAP TO CANCER CONTROL FOR MANITOBA   41
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