QEF Clinical Spotlight Cabin Crew to Support Worker - Achieving goals for life Spring/Summer 2021 - Queen ...
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Spring/Summer 2021 Achieving goals for life qef.org.uk QEF Clinical Spotlight Cabin Crew to Support Worker
Welcome to the Spring 2021 issue of Happening Contents 3 Message from Karen Deacon Published by: Queen Elizabeth’s Foundation for Disabled People, Leatherhead Court, Woodlands 4 Update on the Edward Road, Leatherhead, Surrey KT22 0BN. Tel: 01372 Guinness Appeal 841100 www.qef.org.uk 6 Clinical Spotlight on hidden Registered charity No 251051 disabilities arising from Front cover photo: Ally at QEF’s Independent acquired brain injury Living Services 8 Getting through lockdown / At QEF we work together to deliver QEF Christmas Appeal caring and creative solutions for people 9 Thank you! with disabilities of all ages, enabling them 10 From cabin crew to QEF to live life to the full. support worker Christmas wreath kit preparations! 11 MERU moves 12 QEF events calendar Follow QEF: @QEFDP @QEF1 @QEFDP Follow MERU: @MERU.org @MERUcharity Follow The Grange: @thegrange2016 or visit: thegrangekent.co.uk Your feedback JillnBill Campbell Brilliant such a wonderful idea for families well done Woodlands Park Hotel We were so happy to help both Mary Newell George Dean the patients and the staff in It looks safe and what joy this Respect to you All. Thank you anyway that we can! will bring to families. 2 QEF Happening
A year of reflection... acquired brain injury or COVID related neurological event. We have expanded the number of NHS Trusts and CCG’s we work with across the South of England, supporting more people than ever before, despite the challenges of the pandemic. The new Clinical Spotlight on page 6 & 7 with Clinical Psychologist Dr. Holly Hurn gives an insight into some of the challenges clients face during and after their time at QEF. IT HAS BEEN AN EXCEPTIONALLY BUSY Teams in our residential services FEW MONTHS for some areas of QEF, at Dorincourt and The Grange have Edward Guinness Appeal whilst other services have had to provided fantastic care and support for patron Tamzin Outhwaite close again in line with Government residents and their families, especially restrictions. The pandemic continues over what could have been a rather to keep us all on our toes and we are difficult Christmas period. We have committed to supporting everyone also welcomed new staff, some have that relies on our expertise. Your support taken up a new career in caring whilst is crucial to allow us to do this. furloughed from their regular jobs – you Early 2021 saw MERU move into our can read more about this on page 10. Mobility Centre, bringing everyone The Care and Rehabilitation Centre closer together and Bugzi loans and has been key to enabling us to expand assessments can now take place from our capacity and support more the same location, read more on people. In February we announced page 11. TV star Tamzin Outhwaite as patron of Our retail shops closed from the 21 our Edward Guinness Appeal which is December in line with Government committed to raising £2.7m towards guidance. Having been here before, this fantastic centre. This appeal will our loyal teams of staff and volunteers help QEF fully fund the CRC sooner, are doing everything possible to so we can grow and expand out vital reopen shops safely. services, as well as fund developments Enrichment activities at The Grange In contrast, our teams in the Care that directly support clients every day. and Rehabilitation Centre (CRC) You can find out more about this have been working at capacity to important appeal and how you can support people following a stroke, get involved on page 4 & 5. Finally, I would like to thank each and every person and organisation “The pandemic who has supported QEF over continues to the last 6 months. Financially, it continues to be a very challenging keep us all on time, so your support has never our toes and we been more important. Thanks to you support we are looking forward are committed to Spring and Summer with positivity and enthusiasm for the lives we will to supporting be able to improve together. everyone that relies Karen Deacon New career opportunities on our expertise” QEF Chief Executive qef.org.uk 3
QEF at the forefront of neuro rehabilitation and care Q ueen Elizabeth’s continue to challenge the boundaries the follow up support and outreach Foundation for Disabled of neuro rehabilitation, positioning QEF programmes. People was founded 85 at the forefront and enabling us to help Support for the appeal to date has years ago, and part of the NHS post-COVID. been overwhelming and it was an our mission is to continue enabling In November 2019, Edward Guinness incredible achievement to hit the first people with neuro disabilities to CVO, a former trustee and supporter year target. Thank you to everyone who achieve maximum independence. of QEF for over 40 years, launched The supported the appeal so far, and thank To put QEF at the forefront of Edward Guinness Appeal. you to everyone who can support us in rehabilitation, we invested in a state- The three-year appeal was launched the future. of-the-art centre of rehabilitation and to raise £2.7m to complete, equip and We are confident that with the help of care, to support clients and enable fully fund the CRC sooner, so we can our supporters, trusts and foundations, them to live their lives to the fullest grow and expand our services. companies, community groups and and fulfil their life goals. The funds will support exciting through a programme of exciting events In July 2020, mid-pandemic, the developments that directly support – we will reach the target by the end of Care and Rehabilitation Centre (CRC) clients every day, such as additional 2022 – please help us get there if you opened. This £15m Centre represents a lifts, making the grounds more can. We must also remind ourselves of major milestone for QEF, and a strong accessible, funding the provision of the amazing achievements that go on foundation for future growth. It enables accessible technology, increasing inside the CRC, the people we care for our specialist multi-disciplinary team to the provision of client activities and and the staff that make it happen. The CRC provides expert neuro rehabilitation and care 4 QEF Happening
Case Study: Marcus How to support - Neuro rehabilitation, There are many ways to get involved and support The post stroke during the Edward Guinness Appeal, to pandemic help fully fund the incredible In August 2020, Marcus was on a Care and Rehabilitation walk with his wife when he had a Centre and help more people stroke. He was in hospital for 10 days, like Marcus. and then came to the new Care and Rehabilitation Centre at QEF. Donate: Marcus says: “Because of the Every gift is greatly Marcus with pandemic, I had to be in isolation Physiotherapist Katy appreciated and you can in my room for two weeks when contribute to the Appeal by I first got to QEF. My room was simply visiting www.qef.org. spacious and there were lots of green views which really uk/guinness-appeal or please helped. I had to learn how to walk again and how to use my left hand. I did lots use the donation form on the of occupational therapy to try and keep this part of my body alive. My physio back page, ticking The Edward sessions started within 2 weeks of being at QEF while I was still in isolation. I even Guinness Appeal option. started to walk 5 or 6 steps and that was a real red-letter day for me, working with Katy and the other physios. Events and community: Once home, I continued with my physio and occupational therapy for the We have a range of exciting next six weeks. My biggest achievement at QEF is being able to walk again and events throughout 2021, do my best with what energies I have in my hand and foot. QEF is a warm- please take a look at the hearted place, not forbidding in any way, and a compelling place to be.” events calendar on the back page for more information. If you are considering hosting your own event to raise vital How the CRC has changed the face of funds for the Appeal please contact events@qef.org.uk neuro rehabilitation we are here to support you. The CRC has created opportunities to increase the number of people we can support, reaching more clients with more varied neurological Unique gifts: conditions and care requirements than ever before. We are also offering naming and recognition OUR 5 DISTINCT CLIENT PATHWAYS Slow stream neuro rehabilitation - opportunities, if you would INCLUDE: following an acquired brain injury to like to discuss this in more rebuild key life skills. detail please contact Marisa Long term care for complex Goldsborough, Head of neurological illness - for people Respite / long term neurological Philanthropy on needing nursing care for long term support - for conditions such as 01372 841120. complex needs. Duchenne Muscular Dystrophy. Share our story: Intense neuro rehabilitation after Don’t forget you can always a stroke or acquired brain injury Our future growth depends share our story through social - clients come directly from hospital on the success of the CRC media and by word of mouth to begin their rehabilitation straight and expanding the number of to help us reach our goal! away, as well as community and people and conditions we can private referrals. support. The increasing need Together we can make for our services means we need a real difference to the Intense neuro rehabilitation - money to fund these growing lives of those affected by following surgery, Guillain-Barre client pathways and to help a brain injury through The Syndrome or incomplete spinal us provide the best possible Edward Guinness Appeal – injury. support for our clients. thank you! qef.org.uk 5
INTRODUCING THE NEW QEF SPOTLIGHT QEF Clinical Spotlight… Dr. Holly Hurn: Highlighting the hidden disabilities people can face after an acquired brain injury Q Dr. Holly Hurn EF’s Clinical Psychologist, talks about the hidden disabilities that can result from an acquired brain injury (ABI) and how important it is that there is greater awareness to A brain injury can hugely affect support people trying to cope after how we process the world around such a traumatic life event. QEF us, someone may be able to walk provide expert neuro rehabilitation and talk with no obvious outward at our Care and Rehabilitation disability, but an ABI can cause Enabling people to Centre (CRC), enabling people with hidden disabilities that families and rebuild their lives an ABI following a stroke, brain injury friends may not be expecting. At QEF or other neurological condition to the Psychology team work closely rebuild their lives and maximise their alongside Occupational Therapists, independence. We view each person as an Physiotherapists and Speech and “My primary role as Clinical individual and seek to understand Language Therapists to enable Psychologist at QEF’s CRC is to support their values, what drives them and people start to understand and our clients who have had a stroke, what makes them who they are. adjust to their injuries and rebuild their ABI or other neurological condition We then try to support our clients to core life skills and independence to better understand their diagnosis reconnect with those values – as as much as possible. A number of and regain their confidence and in most cases, regardless of what areas of the brain may be affected sense of self. Loss of identity can be else an injury might rob us of, it can by an ABI or stroke. It is very common a significant part of a neurological seldom take away one’s core values. for someone to feel high levels of injury – often people find themselves Re-connecting with one’s values can fatigue. Clients have often reported dependent on somebody else for the guide someone forwards through a to me that they fear others will first time since childhood. They are period of uncertainty and draw on view them as ‘lazy’ as they don’t fearful for the future and their self- the strength they have to get them understand how an injury such as this confidence crashes. through this difficult event in their life. can drain one’s energy so readily. WORKING TOGETHER “A brain injury can hugely affect how They may also experience reduced attention span and reduced we process the world around us” processing speed which could 6 QEF Happening
“COVID-19 can cause neurological events such as strokes and seizures, this can mean that more people are living with a series of challenges that can make everyday life difficult” make something seemingly simple, be hard for friends and loved ones like following a tv programme very to understand what is going on, as challenging. Similarly working memory they might observe and be on the is often affected which can impact receiving end of these emotional on someone’s ability to follow a changes and not know how best to Proving care and conversation and retain the content. support their loved one. support These can all be very subtle changes Managing stress is also important, but can make a ‘normal’ day as stress itself can slow down and exhausting. impact on cognitive processing, memory and attention which creates to prepare and support the client REBUILDING LIVES a vicious cycle. Practicing skills and their immediate support network An ABI or stroke can also affect our such as relaxation or engaging in to facilitate a smooth transition back emotions, personality and behaviour. regular gentle exercise and getting into the home. We work very hard It is common for people to find they good sleep can all help with this. As with families, as well as our clients, to suddenly experience a change in Psychologists at QEF, we aim to give support them and help them try and their emotions – becoming tearful our clients a good understanding understand a little bit more about what much more easily, possibly laughing of how the factors I’ve mentioned their loved one might be experiencing, inappropriately at things or feeling might apply to them and then give what that person may find challenging much more irritable and easy to snap them tips and strategies to cope and how they can best support them than they did previously. Others find with their difficulties. We often involve – as well as helping them to deal with they become ‘emotionally numb’ family members in the therapy where their own shock and grief for the life and struggle to feel anything. It can appropriate, in order to do our best they shared before. QEF Audience with… series Q EF has hosted a series of virtual events since December 2020 with expert guest speakers and QEF specialists, discussing the latest developments in neuro rehabilitation therapies and how COVID-19 has impacted the delivery of holistic, client-centred therapy and care. They provide a platform to showcase the expertise at the CRC, alongside guest speakers talking about the latest developments in neuro rehabilitation. To register your interest, please email: . edward.guinnessappeal@qef.org.uk qef.org.uk 7
Getting through lockdown What The Grange (2016) Ltd have been doing to make sure their residents have enriched, fulfilled and happy lives. By Sarah Edwards, Managing Director, The Grange (2016) Ltd culture that we have created within that were then gifted to friends and our services and the enthusiasm of our family and took part in Zumba sessions. staff and their dedication to person It’s never a dull day at The Grange!” centred support. You can follow The Grange and We have encouraged staff to share all their activities on Facebook: their own passions with the people facebook.com/thegrange2016 or visit we support. These activities give our their website: thegrangekent.co.uk residents an opportunity to learn something new and be shown by someone who truly enjoys it themselves. Brewing their first ale With a strong focus on wellbeing and in preparation for our mindfulness W ith the challenges of project, individuals have enjoyed COVID-19, it has been more meditation sessions, and in a world of important than ever to uncertainty, these sessions have help embrace our creativity in delivering reduce stress and anxiety. The residents support. As the Managing Director have also enjoyed learning how to brew at The Grange, I am proud of the their first ale, learnt how to make soap Soap making QEF Christmas Appeal Regular gifts A regular gift by Direct Debit T hank you to those can help QEF plan ahead with that supported our confidence, knowing your support Christmas appeal. is right there supporting us. Sign An incredible £67,000 has up is quick and easy: been raised to help support Online: qef.org.uk/DD people like Michael and Or call: 01372 841151 continue to deliver expert services to those with a disability or brain injury at our Care and Rehabilitation QEF Lottery Centre (CRC). The Christmas Be in with the chance of winning appeal also invited people £25,000 each week by playing to send a message of QEF’s Weekly Lottery. Just £1 a support on the back of a week and you’ll receive a unique paperchain, that helped 6-digit lottery number and entered decorate the new CRC in the weekly draw. To play or find over the Christmas period. out more visit: qef.org.uk/lottery Micheal was one of the Thank you to all those who first to benefit at the CRC Good luck! supported this appeal. 8 QEF Happening
THANK YOU To all our Wreath Making incredible QEF’s virtual Christmas wreath making event was a huge success with over 200 supporters from across the country supporters taking part and raising an incredible £16,000. Participants received kits filled with everything needed to create a beautiful wreath and followed an online tutorial, led by QEF volunteer Philippa Beck and Becky from Floral Explosion. QEF would also like to thank sponsors Toyota and Berkley Homes. Rotary Club Christmas at QEF of Banstead Legacies Thank you to our corporate supporters, Leaving a gift in your Thank you to our friends at the Rotary Tony Gee, specialist consulting engineers Will is a wonderful way to make a positive Club of Banstead who supported and Unilever who donated Christmas gifts difference beyond your QEF throughout the pandemic with to our residents and staff at our services. lifetime. We have teamed donations totalling £450. If you have a As well as the gifts, we also received a up with The Goodwill connection to a club, please consider £2,700 donation from Partnership to offer an supporting QEF with your fundraising Tony Gee and £5,000 easy and affordable Will and community activities. Get in donation from Unilever writing service for our touch to see how we can assist you. towards the Care and supporters for just £130 Rehabilitation Centre. for a single Will. If you Thank you, Tony Gee would like to receive a and Unilever. free Gift in Will’s Guide, please get in touch today. Cycling for MERU Email: legacy@qef.org. uk Call: 01372 841151 In January, Berkeley Homes challenged its colleagues to Or visit: qef.org.uk/ cycle 388 miles (the distance between all Berkley Homes’ legacies sites) on a static bike in just five days. Over £7,200 was raised, smashing their original £5,000 target to fund a Bugzi powered children’s wheelchair. Plus Berkeley Homes Foundation match funded £5,000. Thank you to everyone at Berkley Homes and the Berkeley Homes Foundation for your support! Thank you to each and every person and organisation who has supported QEF, your generosity has allowed us to continue providing expert care and support to children and adults with a disability. Thank you. Join the team On Sunday 3 October 2021 the Virgin Money London Marathon returns to the streets of London. QEF has a limited number of in-person race day places available, with a fundraising target of £1,995. Each QEF runner will be supported throughout their marathon journey as well as on the day from our QEF Cheer Squad! Get in touch today to register your interest. qef.org.uk 9
Cabin crew turned support worker at ILS Ally working as cabin crew pre-pandemic psychology routes and become a themselves or doing the ironing and I support worker for QEF. just watch and keep them company “In March 2020 after being - others might need more support for furloughed from BA, I decided to apply which I am on hand. as a support worker for QEF and now I I always assume people have work with residents at Dorincourt - QEF’s capacity to understand what I’m saying Independent Living Service (ILS) and I and talk to people in that manner, love it! it’s really important not to make As a bank worker I can organise my assumptions and patronise anyone. shifts to suit my life. Originally, I was Even people who are non-verbal have doing five mornings a week, but soon ways to have conversations with you, Never a dull day at Dorincourt realised I was missing all the quality free- you just need to get to know each time and activities the residents have in person as an individual. A lly has always been interested the afternoons. So now I work two long It’s really surprised me just how much in human behaviour and days and a short day and I don’t miss I connected with the residents and staff studied psychology at the fun afternoons. and how easy and fun it is. Everyone University then Mastered in cognitive The residents have different skills and has their own character! That’s why I neuroscience. Ally started her career abilities, so for those that are more able love working at Dorincourt” as cabin crew with British Airways, and practising their independence skills, If you are interested in working for but alongside many others, Ally I spend time chatting and observing to QEF, visit our vacancies page: www. was furloughed in March 2020 so make sure they are doing things safely; qef.org.uk/vacancies, or register your she decided to get back to her they might be cooking their meals by interest by emailing hr@qef.org.uk. What’s been happening at Dorincourt? To celebrate Valentine’s Day residents Residents thoroughly enjoyed their Two amazing Christmas cakes were enjoyed decorating ‘love’ themed cocktail evening. Such a creative brought in by one of the parents of doughnuts, a great way to celebrate, and fun night organised by the care a resident at Dorincourt – they were and everyone had a great time! and activity staff. Cheers everyone! thoroughly enjoyed! Thank you. 10 QEF Happening
QEF Mobility Services and MERU under one roof MERU designing & building assistive equipment WE ’ VE MOVED MERU on Case study: Jude You may remember 2-year-old the move! Jude, just before March last year his family were on the waiting list for a MERU Bugzi - a small, powered wheelchair for young I n January 2021, during the third lockdown, MERU children. But before Jude could packed up their Bugzi’s, Flexzi’s and all their adapted have his mobility assessment toys and moved to join QEF Mobility Services in both MERU and QEF Mobility Carshalton, Surrey to be under one roof. Services had to close due to MERU’s relocation was only made possible thanks to a the pandemic putting all Bugzi assessments on hold, Trust who covered all relocation costs and funded a new including Jude’s. production tool for Flexzi, one of MERU’s most popular But in October 2020, it was finally Jude’s turn to products. Also, thank you to DWG Scaffolding Ltd for moving visit QEF’s Mobility Services and complete his Bugzi our precious lathe, which has been with us since the charity assessment. He even took it home the very same day, begun in 1973. allowing him to engage more with the world around him and give him more independent movement. Bugzi’s are available to hire, free of charge to families, Mobility Equipment but MERU are reliant on fundraising to cover the costs, Hire from VASD which are £5,000 for a Bugzi or £6,300 for a Bugzi with QEF’s partner charity, VASD (Voluntary a ventilation tray adaption. As of March 2021, there are Association for Surrey Disabled) offers over 37 children on the waiting list. assessments and the purchase To find out more visit: qef.org.uk/MERU. or hire of mobility equipment to meet specific needs. Including scooters and various wheelchair options, plus a wide range of daily living aids to help make life a little easier. Based at QEF’s head QEF Mobility Services office in Leatherhead, the friendly staff at VASD will help QEF Mobility Services are one of the UK’s top 3 providers identify the best equipment option for your needs. of mobility advice and support for people with disabilities and age-related impairments. They provide a wide Accessible Holidays range of services focused on helping people of all ages VASD also offer a fully accessible holiday home for hire in become mobile and independent. For more information Elmer Sands, near Bognor Regis in West Sussex. Contact about the service: Web: qef.org.uk/mobility VASD to find out more. Phone: 0208 770 1151 Email: mobility@qef.org.uk Call: 01372 841148 Email: info@vasd.org.uk Visit us: 1 Metcalfe Avenue, Carshalton, Surrey SM5 4AW qef.org.uk 11
QEF Events Calendar From adrenaline-packed challenge events to lunches, dinners, and craft activities, QEF has something for everyone. Find an event that suits you and enjoy! Wednesday 4 August 2021 October 2021 QUEEN’S TEA EGA GOLF DAY ONGOING EVENTS In your garden or home Join us at our inaugural Edward Celebrate the birthday of our Late Guinness Appeal Golf Day. THE DINING CLUB Parton Queen Elizabeth, The Queen Our Dining Club offers all you need to Mother at our virtual tea party, where Sunday 3 October 2021 host a fundraising dining experience guests can have a cream tea VIRGIN MONEY LONDON MARATHON for you and your friends. delivered to their door. Join over 100,000 runners, in what is set to be the world’s largest June to October 2021 Thursday 21 October 2021 Marathon ever! SKYDIVING LADIES AUTUMN LUNCH Jump out of a plane for QEF! We’ve Epsom Downs Racecourse Thursday 25 November 2021 teamed up with Skyline Events to bring Our Ladies Autumn Lunch is an iconic THE 56TH GUINNESS & OYSTER you this adrenaline-packed experience. event, which has now been running LUNCHEON for over 20 years. The day consists of a Held in the beautiful surroundings Weekends July to October 2021 wonderful Christmas Shopping Fair, a of Mansion House, the extremely THE 3 PEAKS CHALLENGE 2 course lunch and a special celebrity popular Guinness & Oyster Climb three of the highest mountains guest speaker. Luncheon is a City event spanning across the UK in one weekend – push over 55 years. yourself to your limits with QEF and Each year over 500 guests attend Maximum Adventure. this relaxed, stand up luncheon to support QEF. For more information or to Wednesday 1 December 2021 register for an event: QEF CHRISTMAS WREATH MAKING W: qef.org.uk/events Have the spirit of Christmas E: events@qef.org.uk delivered to your door through our T: 01372 841171 virtual wreath making kit and tutorial. I would like my gift to go towards QEF and their life changing work I would like my gift to go towards the Edward Guinness Appeal Please accept my gift of: £15 £25 £35 or my choice: £ Please make your cheque payable to QEF OR Please charge my: Visa Mastercard Maestro CAF/Charity card Your gift could be worth 25% more! Card No. Security Code: I want to Gift Aid any donations made in the last four years and Start Date: Expiry Date: Issue No (Maestro only): any I make in the future to QEF. I am a UK taxpayer and Name: Address: understand if I pay less Income Tax and/or Capital Gains Tax than the Postcode: amount of Gift Aid claimed on all I’m happy to receive emails at: and calls on: my donations in that year it is my responsibility to pay any difference. Please complete and return this form to: Gift Aid is reclaimed by QEF from Freepost RTCJ-SRJB-XRKK, QEF, Leatherhead Court, Woodlands Road, Leatherhead, KT22 0BN. the tax you pay for the current If you prefer, telephone 01372 841151 or go to qef.org.uk/donate year. Please notify QEF if you want to cancel this Your support is vital and we really want to stay in touch based on our legitimate interest in declaration, change your name or communicating with you, but please tick this box if you do not want to receive this information address or no longer pay sufficient by post. QEF will never pass your details onto anyone else. All donations will go towards QEF tax on your income and/or capital PLEASE gains. and their life changing work, unless specified above. REMEMBER TO We will keep your details safe and you can change your preferences at any time. INCLUDE YOUR No, I am NOT a taxpayer. For full details of what information we hold and how we protect your data please visit: NAME AND www.qef.org.uk/about-us/privacy-policy or call 01372 841132. Date: ____ /____ /____ ADDRESS QEF, Leatherhead Court, Woodlands Road, Leatherhead, Surrey KT22 0BN 01372 841132 appeals@qef.org.uk Registered charity No. 251051 Ref: H-S-21
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