Personal digital health hubs for multiple conditions
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
Policy &Policy practice & practice Personal digital health hubs for multiple conditions Mellick J Chehade,a Lalit Yadav,a Asangi Jayatilaka,b Tiffany K Gillc & Edward Palmerd Abstract Multimorbidity is the presence of more than one chronic disease condition in an individual. Health-related, socioeconomic, cultural and environmental factors, as well as patient behaviour, all influence the outcomes of multimorbidity. Addressing these complex and often interacting biopsychosocial factors therefore requires a shift in treatment from a physical damage model towards person-centred integrated care with increased patient agency. Education influences behaviour and can be used to empower patients and their carers with greater agency, thus allowing greater responsibility for and control over the management of patient care. In this paper we reflect on our own learning as a community of health practitioners from different disciplines. Recognizing the increasing importance of patient agency in driving the evolution of health care, we describe the concept of a web-based personal digital health hub for integrated patient care. Informed by collaboration between patient, health and education communities, we share our early experience in the implementation of a health hub around a cohort of patients with hip fractures. We also describe a vision for future health care based on the co-creation of digital health hubs centred on patients’ and carers’ needs. The health hub could allow important advances and efficiencies to be achieved in workforce practice and education; patient and carer engagement in self-care; and the collection of patient-reported health data required for ongoing research and improvements in health care. Introduction Community-driven progress Multimorbidity is the presence of more than one chronic As best practice in health care and the learning process within disease condition in an individual. By viewing multimorbid- medicine has evolved, so have community attitudes towards ity as a person-centred concept we acknowledge that the health care. Historically, progress in medicine has been shaped impact of a condition is influenced not only by health-related primarily by the health workforce driving continuous improve- characteristics but also by socioeconomic, cultural and envi- ments in health care. However, there is now recognition that ronmental factors, as well as patient behaviour.1–3 Addressing greater access to health information has allowed the involve- these complex and often interacting biopsychosocial factors ment of patients and their carers (both formal and informal) therefore requires a shift in treatment for multimorbidities to be considered as part of a community of practice, which from a physical damage model towards person-centred inte- is also influencing ways of delivering health-care services.5 grated care with increased patient agency. Such a model allows Moreover, increasing access to digital technology could result patients to have greater responsibility for and control over the in further patient and community empowerment and influence management of their care. the balance between vertical (institutional) and horizontal Complex models of care that involve multiple health and (community) governance systems. This synergy between social care disciplines are increasingly being developed. A trial patient desires, digital technology and health-care expertise of integrated person-centred care for multimorbidity found could provide innovative solutions and change the direction that patients expressed overall satisfaction with care services in which health care evolves.5,7 although they did not gain significant improvements to their quality of life.4 Similarly, there is increasing evidence around the value of innovations in digital health applications and in Patient education the health workforce to improve efficiencies and quality of The World Health Organization (WHO) Global strategy on care, as driven by the needs of the local context. However, the human resources for health: workforce 2030 report clearly driving forces for scaling-up these initiatives will be politi- outlines the challenge to providing universal health coverage cal and economic and involve health-care professionals and with a projected deficit of 18 million health-care workers.7 A patient advocates.5,6 In this paper we examine our own learn- contribution to addressing the deficit could be through train- ing through our combined perspectives as a community of ing a workforce for a defined scope of practice, supported practitioners from different disciplines. Further, we highlight by technology-assisted service delivery to better engage and the importance of patient agency in driving the evolution of empower patients and their communities. The workforce health services that are empowered by improved, digitally could help facilitate the collection and use of the immense enabled strategies for patient education. amount of data (so-called big data) that can be captured from patients and could be involved in applying emerging artificial intelligence solutions to health care.1,6,7 Recently WHO introduced digital health as a broad term to encompass a Discipline of Orthopaedics & Trauma, University of Adelaide, Level 5G 584, Royal Adelaide Hospital, Port Road Adelaide, South Australia, Australia 5000. b School of Computer Science, University of Adelaide, Adelaide, Australia. c Adelaide Medical School, University of Adelaide, Adelaide, Australia. d School of Education, Faculty of Arts, University of Adelaide, Adelaide, Australia. Correspondence to Mellick J Chehade (email: mellick.chehade@adelaide.edu.au). (Submitted: 16 December 2019 – Revised version received: 8 May 2020 – Accepted: 11 May 2020 – Published online: 2 June 2020 ) Bull World Health Organ 2020;98:569–575 | doi: http://dx.doi.org/10.2471/BLT.19.249136 569
Policy & practice Personal digital health hubs Mellick J Chehade et al. health services provided electronically have readily become accessible and in- edge into successful health outcomes, a (eHealth), including mobile health tech- expensive, reducing the need for expen- co-designed and integrated approach to nology solutions (mHealth), as well as sive doctor visits and laboratory-based patient education is needed, with a con- emerging areas, such as the advanced investigations.12 However, access to such sistent and shared understanding among use of computing sciences to manage big technologies is not universal for patients all care providers.17 The same arguments data, genomics and artificial intelligence or health-care providers. Research can that have led to increasing the agency of systems.8,9 A major challenge now is how identify the technologies and processes students in education can be applied to to process digitally collected data and that are most feasible for supporting ef- patient agency in health care. interpret it in a meaningful way.2,9 For fective implementation of digital health health practitioners and patients alike, solutions. Applying evidence-based the amount of health information from guidelines is therefore important for Personal digital health hub sources, such as friends and family, mitigating potential digital divides. 5 A personal digital health hub can the internet, medical journals, health There is likely to be a strong emphasis specifically collate and interpret use- pamphlets and specialists can be over- on the use of widely used technologies, ful health information, facilitating the whelming and lead to confusion rather such as mobile phones where patients integration of data from different health than clarity. Differing levels of health and health-care workers are likely to services and other personalized digital literacy already affect patients’ ability have greater access to the technology.13 data sources. This personalized hub is to understand health information and Applying best-practice guidelines at potentially a powerful tool, empowering to make informed decisions about their the inception of a new system will en- patients to take greater control of their health. Differences in ability to access sure coherence between traditionally health goals. The major limiting factor, and use technology, the so-called digital established care practice and emerging, however, is that current applications are divide, create further inequities in access digitally enabled models of care.5,9 not connected to mainstream health to health information.1 The success of some of these soft- services and are not linked to the profes- While electronic health records ware applications in actually changing sional networks of family practitioners allow communication and data man- patients’ behaviour11,14 should come as or specialists. In contrast, processes agement among health-care providers, no surprise if the principles and theo- that are specifically designed around these types of records were not designed ries on which they are based are clearly the individual can link patients into a with the primary goal of engagement understood.15,16 Information is provided more extensive network of specialists, with patients. Some software applica- to users in a format that is easily under- general practitioners and community tions on mobile devices are designed to stood and meaningful in the context of carers. This holistic approach is impor- collect data for use by health profession- users’ goals. The knowledge gained can tant for the development of a strongly als, such as patient-reported outcome be applied to solve users’ problems and integrated team approach that is more measures. Yet the information flow usu- the success of that application is assessed responsive to the needs of patients and ally offers limited, if any, effective ways with immediate and specific feedback to communities. Models of care need to be to involve patients in their own care. the user. Based on this feedback the us- further redesigned by deploying digital Overall, there has been a rapid increase ers are able to make the necessary chang- health solutions that will allow delivery in the availability of mHealth applica- es required to further their individual of high-quality and patient-centred tions,10 by a variety of vendors includ- goals and the cycle repeats. The theory information to strengthen and integrate ing health agencies, fitness advocates is related to fundamental approaches to care closer to the community setting. and software companies.11 These health education, where the process of learning There are existing eHealth applications applications are primarily designed to can bring about behavioural change. used to enable the implementation of support patients or consumers12 in the Most clinicians involved in faculty and models of care in patients with arthritis18 domain of general lifestyle and wellness, student training are well aware of the and skeletal fragility.19,20 The applications such as applications on mobile phones principles. Yet how often are these prin- streamline system-level referrals, build or wearable devices that monitor activity ciples applied as part of clinical practice? workforce management capacity and levels or heart rate. However, there are Unfortunately, simply providing infor- support patients in managing pain or also developments in the use of eHealth mation and awareness is not the same performing exercises at home.21 services to support the management of as providing education. Awareness and Collection of selected data linked specific diseases (such as rheumatoid understanding of important informa- to patient-reported outcome measures arthritis, diabetes, anxiety and mood tion do not automatically improve an would contribute to big data reposi- disorders) in conjunction with specialist individual’s capability and translate into tories, such as outcome registries and services.1,12 For example, there are now positive behavioural change.1 Patients, could be used for health research. The applications for patients with diabetes, particularly those with chronic condi- data might be used for validation of which can be synced to small monitor- tions, often do not adhere to treatment artificial intelligence-based predictive ing devices inserted subcutaneously to guidelines, such as prescribed medica- algorithms and decision-support tools monitor glucose levels continuously. tions, lifestyle changes, rehabilitation and could inform improvements in the This technique allows controlled insulin and exercise programmes. Given the design of these tools.1,5,17 Blockchain delivery in wearable automated pumps many circumstances where patients technology, which provides a transpar- while providing critical feedback to both mis-hear, misremember or misunder- ent, unalterable record of a transac- patients and their carers to inform nec- stand information and advice from their tion, offers a verifiable, permanent and essary medication, dietary and lifestyle health professional, there will often be attack-resistant method for recording adjustments. Some of these applications adherence issues. To translate knowl- health data. By increasing the security 570 Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136
Policy & practice Mellick J Chehade et al. Personal digital health hubs and patient trust in the quality and use could be integrated, providing a more system should ideally remain completely of the data, a personal health hub can holistic approach to care with improved separate from control by data brokers create opportunities to transform health health outcomes and health-system with commercial and political interests. care and place the patient at the centre of efficiencies.1 The technologies used to secure data the health-care network.5 With these in- Adaptable software solutions to would support this to some extent, but novations, we envisage role shifts among create a digital hub already exist in the the use of open-source software and the health-care workers, in which diagnostic form of learning management systems local political environment will likely be and prescriptive roles give way to more that are widely used in the education influential. supportive, collaborative, nurturing and sector.5 Many of these systems are based motivational skills to empower patients. on open-source software, which would Collectively, these technological in- facilitate their future adaptation and Early experiences novations are expected to drive major implementation in low- and middle- Our concept of a digital health hub has changes in the composition, scope of income economies. The roles of course evolved since 2012 when we established practice and training (based on required administrators, teachers, students and a telephone-based remote follow-up and capabilities) of the workforce, allowing observers can be substituted by health- virtual clinic service for hip fracture pa- more efficient use of resources to deliver care providers, liaison officers, patients tients. With 500–600 patients annually, the right care, at the right time, in the and family or carer supporters. These the Royal Adelaide Hospital is one of the right place, by the right person with the platforms have design features that busiest hip fracture centres in Australia. right resources.5 provide services, such as secure inter- In this cohort, we considered all patients In the absence of a strong sense of net access for users; content manage- as remote, even those living locally, due need and urgency, and to manage resis- ment; monitoring of the volume and to the logistics of travel and support re- tance to change in well entrenched care frequency of communication exchanges quired to attend a hospital-based clinic. practices, this approach will need to be between participants; progress track- To address the challenges and introduced in stages. Depending on the ing of assigned tasks; and assessment insights that emerged from the vir- organizational model used within differ- of users’ engagement through data on tual clinic we designed a digital patient ent health-care settings, implementa- time spent online and on specific pages health hub using a transdisciplinary tion could be initiated either through or tasks. Patient-reported outcome approach in this specialist orthogeriatric empowered specialty groups or from measures can be readily collected to setting.17 Input was provided from clini- within primary care. With linkages to monitor individual outcomes, as well cal disciplines (geriatrics, orthopaedics, the patient and community services es- as contribute de-identified data to emergency medicine, anaesthesiology, tablished, new systems could be further large health research databases. Plug- rehabilitation medicine, general prac- optimized around a variety of chronic ins allow the data and functionality of tice, nursing, allied health and phar- disease models of care. Eventually the existing or new mobile applications macy); non-clinical disciplines (health systems could transition into a patient- to be integrated into the hub software economics, computer science, higher controlled and government-supported and accessed through both web and education, mathematics, architecture system, linked to the mainstream suite application-based interfaces. A com- and demography); and patient and con- of public and private health services. munity of learners can be created to sumer groups. We used a collaborative The personal digital health hub could support the education of health-care and co-design approach to translate our connect with other wellness providers, workers and patients alike.1,23 knowledge and experience into success- such as nutritionists, physical therapists, Clearly, there are many challenges ful health outcomes. psychologists and social workers; and a to be addressed. Governments would The digital health hub was designed myriad of suitable, commercially avail- need to invest in this approach through to improve education, service integra- able mHealth applications. Patients, both policy and funding, but the poten- tion, data exchange and engagement of whether living independently or under a tial gains extend well beyond the health all stakeholders including patients and care arrangement, could have their own sector to actual improved national health-care providers.17 We structured customized health hub with the ability productivity.6 Cloud access (the ability the web-based platform to provide in- to share relevant and selected categories to access files stored on internet serv- formation related to health issues under of information with health-care provid- ers), information storage and security four key sections: (i) current concerns ers and community or social support using emerging blockchain technology (for example, a hip fracture); (ii) es- networks. The shared platform could would need to be addressed. However, sential wellness (nutrition, exercise, also function as a virtual workplace for there are policies and procedures within sleep and mind); (iii) community health vocational training, allowing a mutually existing health and governance struc- (hygiene, contagious diseases); and transforming process of learning (both tures that can address issues, such as (iv) past health. The digital hub was thus cognitive and sociocultural), through patient confidentiality and ownership designed to support a lifelong approach participatory practice 22 of patients, of data, and could be adapted and to healthy ageing through lifestyle ap- carers, health-care practitioners and implemented effectively. As a contained proaches, while addressing injuries or students alike. system the digital health hub could also illnesses as they arise. Preliminary back- The personal digital health hub ensure that the data mined remains ground research of this elderly patient would be specifically built around fully transparent, patient-controlled and cohort and their carers confirmed that patients. All stakeholders would have used solely for the purpose of analysing they had significant capacity to access a role to play in supporting the in- and influencing health behaviour and digital health solutions through the dividual’s health literacy. Care goals enhancing health-care outcomes. The support of networks of carers.9 Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136 571
Policy & practice Personal digital health hubs Mellick J Chehade et al. As we develop this new model of eoconference or face-to-face appoint- community health workforce capac- care, nurses or other health-care workers ments, as required. Patient engagement ity;26 improving health education and with defined competencies in ortho- is tracked using multiple metrics, which lifestyle behaviours;27 and supporting geriatrics, would be further trained to are monitored and captured, such as self-management of noncommunicable fulfil the additional roles of a fracture time spent in specific areas of the health diseases.28 Some digital health interven- liaison coordinator, an online educator hub, communication exchanges and tions that were focused on capacity- and a facilitator of behavioural change. tasks completed. Feedback of patient building or training of community Patients and carers will be engaged from progress will be primarily digital, with health workers were not informed by the time of admission and provided telephone follow-up as required, and the theories in education and, ironically, with instructions and secure access via include information used to both inform lacked an understanding of what counts the digital hub to resources designed immediate clinical management and as learning.29 We expect that a system to provide a clearer understanding of provide patient-related outcome mea- built on best-evidence education prin- the complete course of hip fracture. A sures for audit and research purposes. ciples would be more likely to succeed. liaison officer coordinating the informa- We believe that important progress tion exchange and engagement through towards a more patient-centred and the digital hub will be the first point integrated health-care system can be Future directions of digital contact, while the patient or made through the collective wisdom We envisage a world where person-cen- designated carer retains control of access of health-care providers from multiple tred, integrated health care is provided rights for additional carers and observ- disciplines in partnership with patients. holistically; the patient is an active and ers. The liaison role will be further sup- Nevertheless, this new model of care and health-literate partner; and health-care ported by decision-support protocols the digital health hub, while showing workers act as life coaches, competent in with oversight by, and ready access to, great promise in this challenging cohort the principles of online education and orthopaedic and geriatrician specialists. of older patients with a hip fracture, are behaviour modification. Multimorbidity We expect that a wide range of still in a development phase. Further will be managed more efficiently in the quality, evidence-based educational refinements of the digital health hub community, aided by digital personal resources will be adopted, adapted or will be informed by the iterative de- health hubs linked to best-practice con- developed in partnership with patient velopment process, gained from user tent most relevant to the context. 1,17 ■ and consumer groups and delivered feedback and analysis, before wider through the online learning platform. implementation and evaluation in the Acknowledgements The resources will be made available in specialist setting. This will be followed MJC is also a chief investigator with a variety of suitable digital formats to by application of the model to manage the Centre for Research Excellence in address individual educational needs conditions involving other specialty Frailty and Healthy Ageing, University around understanding of the injury, areas and ultimately by adaptation for of Adelaide, Adelaide, Australia. management and support options use in a community-based primary- (including surgery, anaesthesia, pain, care setting. Funding: The digital Health Hub project is thromboprophylaxis, discharge medi- supported by National Health and Medi- cations, nutrition, exercise and post- cal Research Council funding for the operative mobilization, sleep, wound Other settings Centre for Research Excellence in Frailty care, falls risk assessment, osteoporosis, For low- and middle-income countries, and Healthy Ageing. The virtual hip frac- sarcopenia, frailty, cognition, advance the use of open-source software and ture clinic was established by author MJC directives and community services). mobile phone technologies may provide with support from institutional grants These educational resources are simi- the greatest opportunity to support from Stryker Australia. LY is supported larly used to inform the associated universal health coverage through con- through Commonwealth Government community health-care professionals textualizing a personal digital health of Australia Research Training Program and students engaged with the patient hub. Mobile phone penetration is high Scholarship. Development of the virtual in the digital health hub. in many low- and middle-income coun- fracture liaison service was supported by A calendar, with functionality for tries and mHealth is already recognized a grant from Amgen Australia. Amgen several reminder options, will be used as promising to provide patient-centred and Stryker were not involved in any to schedule and manage follow-up tasks, care in some of these countries.24 Emerg- content developed. including progress feedback, appoint- ing evidence reflects digital health being ments and community-based investiga- used in these settings to strengthen Competing interests: None declared. tions. Further communications can be primary health-care systems25 by tar- via email, text message, telephone, vid- geting service delivery and increasing ملخص مراكز الصحة الرقمية الشخصية للحاالت املرضية املتعددة إن التعامل مع هذه العوامل البيولوجية النفسية.تعدد األمراض تعدد األمراض هو وجود أكثر من حالة مرضية مزمنة واحدة لدى ً تتطلب حتو، واملتداخلة غالب ًا،االجتامعية املعقدة ال يف العالج والعوامل الثقافية، تؤثر العوامل االجتامعية االقتصادية.الفرد من نموذج الرضر اجلسدي إىل الرعاية املتكاملة التي تركز عىل عىل نتائج، وكذلك سلوك املريض، املرتبطة بالصحة،والبيئية 572 Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136
Policy & practice Mellick J Chehade et al. Personal digital health hubs فإننا نشارك جتربتنا املبكرة يف تنفيذ مركز صحي حول،والتعليم معتمكني أكرب للمريض للمشاركة وحتمل املسؤولية،الشخص كام نصف أيض ًا.جمموعة من املرىض الذين يعانون من كسور الورك ويمكن استخدامه لتمكني، يؤثر التعليم عىل السلوك.يف العالج رؤية للرعاية الصحية املستقبلية استنا ًدا إىل اإلنشاء املشرتك ملراكز وبالتايل،املرىض ومقدمي الرعاية هلم من خالل ومشاركة أكرب .الصحة الرقمية التي تركز عىل احتياجات املرىض ومقدمي الرعاية والتحكم،السامح بمزيد من املسؤولية جتاه إدارة رعاية املرىض يمكن أن يسمح املركز الصحي بتحقيق تطورات وكفاءات هامة يف نركز يف هذه الورقة عىل تعلمنا كمجتمع من املامرسني.فيها ممارسة القوى العاملة والتعليم؛ ومشاركة املريض ومقدم الرعاية يف ظل إدراك األمهية املتزايدة.الصحيني من خمتلف التخصصات ،يف الرعاية الذاتية؛ ومجع البيانات الصحية التي قدمها املريض فإننا نصف مركز،لتمكني املريض يف دفع تطور الرعاية الصحية .واملطلوبة للبحث والتحسينات املستمرة يف الرعاية الصحية الصحة الرقمية الشخيص عىل شبكة اإلنرتنت للرعاية املتكاملة وبنا ًء عىل التعاون بني جمتمعات املرىض والصحة.للمرىض 摘要 针对多重病症的个人数字医疗中枢 多重病症是指一个人患有一种以上的慢性疾病。与健 的作用日益重要,因此我们描述了一个基于网络的个 康有关的因素,社会经济、文化和环境方面的因素以 人数字医疗中枢的概念,用于整合患者护理。通过患 及患者行为都会影响多重病症患者的治疗结果。因此, 者、卫生和教育团体之间的合作互通,我们围绕一批 若要解决这些复杂且经常相互作用的生物心理社会因 髋部骨折患者分享了我们在医疗中枢实施方面的早期 素,需要将治疗从物理性损伤模式转换为以患者为中 体验。我们还基于共建以患者和护理人员需求为中心 心的综合护理,并提高患者在其中所发挥的作用。教 的数字医疗中枢,表达了对未来医疗卫生事业的美好 育影响行为并且可以用来为患者及其照顾者赋权,让 愿景。医疗中枢可以在人员实践和教育方面实现重要 他们发挥更大的作用,从而对患者护理的管理工作承 进展和效率提升 ;可以让患者和照顾者参与自我护理 ; 担更大的责任和管控力度。在本文中,作为一支汇聚 可以收集患者自述的医疗数据,所收集的数据用于医 不同学科从业人员的团队,我们反思了我们总结的经 疗护理事业的长期研究和提升。 验。我们意识到患者在推动医疗护理改革方面所发挥 Résumé Centres de santé numériques et personnalisés pour pathologies multiples La multimorbidité est la présence de plus d'une maladie chronique chez de santé, et imaginons un concept de centre de santé numérique et un individu. L'aboutissement de la multimorbidité est influencé par des personnalisé via site Web pour la prise en charge intégrée des patients. facteurs sanitaires, socio-économiques, culturels et environnementaux. Grâce à la collaboration entre patients, professionnels de la santé et Aborder ces facteurs biopsychosociaux complexes et souvent structures pédagogiques, nous partageons nos premières expériences interdépendants requiert donc un changement de traitement, qui en matière de mise en œuvre d'un centre de santé regroupant des consiste à s'éloigner d'un modèle axé sur les dommages physiques patients présentant des fractures de la hanche. Nous dévoilons pour se rapprocher d'un modèle de soins intégré et centré sur la également notre vision d'avenir pour les soins de santé, qui repose sur personne, allié à une meilleure implication du patient. L'éducation a la cocréation de centres de santé numériques adaptés aussi bien aux un impact sur le comportement et peut être utilisée pour renforcer la besoins des patients qu'à ceux des soignants. Ce concept pourrait faire capacité d'agir des patients et de leurs soignants, ce qui permettra de progresser l'enseignement et la pratique pour les professionnels du conférer plus de responsabilités et un meilleur contrôle de la gestion secteur, mais aussi améliorer leur efficacité; favoriser la participation des des soins aux patients. Dans ce document, nous réfléchissons à notre patients et soignants dans les soins auto-administrés; et enfin, permettre propre apprentissage en tant que communauté de professionnels de la la collecte des données fournies par les patients, et nécessaires à la santé issus de différentes disciplines. Nous reconnaissons l'importance poursuite des recherches et améliorations dans le domaine des soins croissante de l'implication du patient pour stimuler l'évolution des soins de santé. Резюме Персональные цифровые центры здоровья в случае нескольких хронических заболеваний Мультиморбидность это наличие у одного человека нескольких пациентов и ухаживающих за ними лиц, предоставляя им больше хронических заболеваний. Исход мультиморбидности зависит от ответственности и контроля за процессом лечения и ухода. факторов, связанных со здоровьем, социально-экономических, В этой статье авторы рассматривают процесс собственного культурных и экологических факторов, а также поведения обучения как сообщества практикующих специалистов из пациента. Таким образом, решение вопросов относительно разных дисциплин. Признавая растущую важность свободы этих сложных и часто взаимосвязанных биопсихосоциальных воли пациентов как движущей силы эволюции здравоохранения, факторов, требует перехода в лечении от модели физического авторы описывают концепцию сетевого персонального повреждения к комплексному медицинскому обслуживанию, цифрового центра здоровья для комплексного подхода к ориентированному на человека и предоставляющему большую лечению пациентов. Опираясь на опыт сотрудничества между свободу действий пациенту. Обучение влияет на поведение пациентами и сообществами здравоохранения и образования, и может использоваться для расширения возможностей авторы делятся первоначальным опытом в части создания центра Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136 573
Policy & practice Personal digital health hubs Mellick J Chehade et al. здоровья для контингента пациентов с переломами шейки сфере практической деятельности и обучения медицинских бедра. В статье также описана концепция здравоохранения работников, вовлечения пациентов и ухаживающих за ними будущего, основанная на совместном создании цифровых лиц в процесс самопомощи, а также сбора предоставляемых центров здоровья, сосредоточенных вокруг потребностей самим пациентом данных о его здоровье, которые необходимы пациентов и лиц, осуществляющих уход. Центр здоровья может для текущих исследований и совершенствования системы позволить добиться значительных успехов и эффективности в здравоохранения. Resumen Centros de salud virtuales personalizados para múltiples afecciones La multimorbilidad es la presencia de más de una enfermedad paciente, al reconocer la creciente relevancia de la participación y la crónica en un individuo. Los factores medioambientales, culturales, acción del paciente en el proceso de evolución de la atención médica. socioeconómicos y los relacionados con la salud, así como el Gracias a la colaboración entre las comunidades de pacientes, de comportamiento de los pacientes, influyen en los resultados de la salud y de educación, compartimos nuestra experiencia inicial sobre multimorbilidad. Por lo tanto, se requiere un cambio en el tratamiento el establecimiento de un centro de salud en torno a una cohorte de desde el modelo de daño físico hacia una atención integrada y pacientes con fracturas de cadera. Asimismo, describimos una visión centrada en el individuo con una mayor participación del paciente de la futura atención médica basada en la creación conjunta de centros para abordar estos factores biopsicosociales complejos y a menudo de salud virtuales que se centran en las necesidades de los pacientes interactivos. La educación influye en el comportamiento y se puede y de los cuidadores. El centro de salud permitiría alcanzar importantes utilizar para que los pacientes y sus cuidadores tengan más capacidad avances y mejoras en la práctica y la educación de la fuerza de trabajo; de acción, lo que permite una mayor responsabilidad y control sobre en el compromiso de los pacientes y los cuidadores con el autocuidado la gestión de la atención al paciente. En este documento reflexionamos de la salud; y en la recopilación de los datos sobre la salud que los sobre nuestro propio aprendizaje como comunidad de profesionales pacientes comunican y que se requieren para la investigación y las de la salud de diferentes disciplinas. Se describe el concepto de un mejoras continuas en la atención médica. centro de salud virtual personalizado para la atención integrada del References 1. Chehade MJ, Gill TK, Kopansky-Giles D, Schuwirth L, Karnon J, McLiesh 11. McKay FH, Wright A, Shill J, Stephens H, Uccellini M. Using health and P, et al. Building multidisciplinary health workforce capacity to support well-being apps for behavior change: a systematic search and rating of the implementation of integrated, people-centred Models of Care for apps. JMIR Mhealth Uhealth. 2019 07 4;7(7):e11926. doi: http://dx.doi.org/ musculoskeletal health. Best Pract Res Clin Rheumatol. 2016 06;30(3):559– 10.2196/11926 PMID: 31274112 84. doi: http://dx.doi.org/10.1016/j.berh.2016.09.005 PMID: 27886946 12. Payne HE, Lister C, West JH, Bernhardt JM. Behavioral functionality of 2. Multimorbidity: a priority for global health research. London: Academy mobile apps in health interventions: a systematic review of the literature. of Medical Sciences; 2018; Available from: https://acmedsci.ac.uk/file JMIR Mhealth Uhealth. 2015 02 26;3(1):e20. doi: http://dx.doi.org/10.2196/ -download/82222577 [cited 2019 Nov 21]. mhealth.3335 PMID: 25803705 3. Caneiro JP, O’Sullivan PB, Roos EM, Smith AJ, Choong P, Dowsey M, et al. 13. Smartphone users worldwide 2016–2021 [internet]. Hamburg: Statista; Three steps to changing the narrative about knee osteoarthritis care: a call 2020. Available from: https://www.statista.com/statistics/330695/number to action. Br J Sports Med. 2020 Mar;54(5):256–8. doi: http://dx.doi.org/10 -of-smartphone-users-worldwide/ [cited 2020 May 22] .1136/bjsports-2019-101328 PMID: 31484634 14. Free C, Phillips G, Galli L, Watson L, Felix L, Edwards P, et al. The effectiveness 4. Cook R, Lamont T, Taft R; NIHR Dissemination Centre. Patient centred of mobile-health technology-based health behaviour change or disease care for multimorbidity improves patient experience, but quality of life is management interventions for health care consumers: a systematic review. unchanged. BMJ. 2019 03 15;364:k4439. doi: http://dx.doi.org/10.1136/bmj PLoS Med. 2013;10(1):e1001362. doi: http://dx.doi.org/10.1371/journal .k4439 PMID: 30877128 .pmed.1001362 PMID: 23349621 5. Chehade MJ, Yadav L, Kopansky-Giles D, Merolli M, Palmer E, Jayatilaka A, 15. Aromatario O, Van Hoye A, Vuillemin A, Foucaut A-M, Crozet C, Pommier J, et al. Innovations to improve access to musculoskeletal care. Best Pract Res et al. How do mobile health applications support behaviour changes? A Clin Rheumatol. 2020 (forthcoming). scoping review of mobile health applications relating to physical activity 6. Britnell M. Human: solving the global workforce crisis in healthcare. Oxford: and eating behaviours. Public Health. 2019 Oct;175:8–18. doi: http://dx.doi Oxford Scholarship Online; 2019. doi: http://dx.doi.org/10.1093/oso/ .org/10.1016/j.puhe.2019.06.011 PMID: 31374453 9780198836520.001.0001 16. Antezana G, Venning A, Blake V, Smith D, Winsall M, Orlowski S, et al. An 7. Global strategy on human resources for health: workforce 2030. Geneva: evaluation of behaviour change techniques in health and lifestyle mobile World Health Organization; 2016. Available from: https://apps.who.int/iris/ applications. Health Informatics J. 2020 Mar;26(1):104–13. doi: http://dx.doi bitstream/handle/10665/250368/9789241511131-eng.pdf?sequence=1 .org/10.1177/1460458218813726 PMID: 30501364 [cited 2019 Dec 3] 17. Yadav L, Gill TK, Taylor A, Jasper U, De Young J, Visvanathan R, et al. 8. Recommendations on digital interventions for health system strengthening. Cocreation of a digital patient health hub to enhance education and Geneva: World Health Organization; 2019. Available from: https://www.who person-centred integrated care post hip fracture: a mixed-methods study .int/reproductivehealth/publications/digital-interventions-health-system protocol. BMJ Open. 2019 12 18;9(12):e033128. doi: http://dx.doi.org/10 -strengthening/en/[cited 2019 Dec 3]. .1136/bmjopen-2019-033128 PMID: 31857315 9. Yadav L, Haldar A, Jasper U, Taylor A, Visvanathan R, Chehade M, et al. 18. Inflammatory arthritis model of care. Perth: Department of Health Western Utilising digital health technology to support patient-healthcare provider Australia Office; 2009. communication in fragility fracture recovery: systematic review and meta- 19. Jaglal SB, Hawker G, Cameron C, Canavan J, Beaton D, Bogoch E, et al.; analysis. Int J Environ Res Public Health. 2019 10 22;16(20):4047. doi: http:// Osteoporosis Research, Monitoring and Evaluation Working Group. The dx.doi.org/10.3390/ijerph16204047 PMID: 31652597 Ontario Osteoporosis Strategy: implementation of a population-based 10. Whiteman H. Health apps: do they more harm than good? [internet]. osteoporosis action plan in Canada. Osteoporos Int. 2010 Jun;21(6):903–8. Medical News Today. 2014 Sep 26. Available from: https://www doi: http://dx.doi.org/10.1007/s00198-010-1206-5 PMID: 20309525 .medicalnewstoday.com/articles/283117#No-need-for-medical-input-when 20. Osteoporosis model of care. Perth: Department of Health Western Australia -developing-health-app [cited 2020 May 20]. Office; 2011. 574 Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136
Policy & practice Mellick J Chehade et al. Personal digital health hubs 21. Slater H, Dear BF, Merolli MA, Li LC, Briggs AM. Use of eHealth technologies 26. Peiris D, Praveen D, Mogulluru K, Ameer MA, Raghu A, Li Q, et al. to enable the implementation of musculoskeletal Models of Care: Evidence SMARThealth India: A stepped-wedge, cluster randomised controlled trial and practice. Best Pract Res Clin Rheumatol. 2016 06;30(3):483–502. doi: of a community health worker managed mobile health intervention for http://dx.doi.org/10.1016/j.berh.2016.08.006 PMID: 27886943 people assessed at high cardiovascular disease risk in rural India. PLoS One. 22. Billett S. Workplace participatory practices: conceptualising workplaces 2019 03 26;14(3):e0213708. doi: http://dx.doi.org/10.1371/journal.pone as learning environments. J Workplace Learn. 2004 Sep;16(6):312–24. doi: .0213708 PMID: 30913216 http://dx.doi.org/10.1108/13665620410550295 27. Smith R, Menon J, Rajeev JG, Feinberg L, Kumar RK, Banerjee A. Potential for 23. Wenger E. Communities of practice and social learning systems: the the use of mHealth in the management of cardiovascular disease in Kerala: career of a concept. In: Blackmore C, editor. Social learning systems and a qualitative study. BMJ Open. 2015 11 17;5(11):e009367. doi: http://dx.doi communities of practice. London: Springer; 2010. doi: http://dx.doi.org/10 .org/10.1136/bmjopen-2015-009367 PMID: 26576813 .1007/978-1-84996-133-2_11 28. Ramachandran N, Srinivasan M, Thekkur P, Johnson P, Chinnakali P, Naik BN. 24. Hearn J, Ssinabulya I, Schwartz JI, Akiteng AR, Ross HJ, Cafazzo JA. Self- Mobile phone usage and willingness to receive health-related information management of non-communicable diseases in low- and middle-income among patients attending a chronic disease clinic in rural Puducherry, India. countries: A scoping review. PLoS One. 2019 07 3;14(7):e0219141. doi: J Diabetes Sci Technol. 2015 08 6;9(6):1350–1. doi: http://dx.doi.org/10 http://dx.doi.org/10.1371/journal.pone.0219141 PMID: 31269070 .1177/1932296815599005 PMID: 26251372 25. Bassi A, John O, Praveen D, Maulik PK, Panda R, Jha V. Current status and 29. Winters N, Langer L, Geniets A. Scoping review assessing the evidence used future directions of mHealth interventions for health system strengthening to support the adoption of mobile health (mHealth) technologies for the in India: systematic review. JMIR Mhealth Uhealth. 2018 10 26;6(10):e11440. education and training of community health workers (CHWs) in low- doi: http://dx.doi.org/10.2196/11440 PMID: 30368435 income and middle-income countries. BMJ Open. 2018 07 30;8(7):e019827. doi: http://dx.doi.org/10.1136/bmjopen-2017-019827 PMID: 30061430 Bull World Health Organ 2020;98:569–575| doi: http://dx.doi.org/10.2471/BLT.19.249136 575
You can also read