OSTOMY AUTUMN 2019 NSW LTD - Ostomy NSW
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INSIDE CONTENTS President: Tom Flood Focus on volunteers 4-6 Telephone: 02 4333 4727 Regional Meetings 6-7 From the office 11 Vice President: News 9 - 11 Stephen Grange The results are in: Bladder Cancer research 14 Hernias and you 16 - 17 Treasurer: Tracy Black My stoma story 18 - 20 Ostomingle – a new support group 20 Director: Ian Denney From the clinic 22 - 23 Director: Greg Doyle Director: Perry Johnstone TO CONTRIBUTE ARTICLES/FEEDBACK Director: Michael Rochford Email to the editor (Manager) at info@ostomynsw.org.au Director: Helen Richards DEADLINES Winter edition 6th May 2019 Manager: Stephen Lardner Spring edition 5th August 2019 Summer edition 4th November 2019 YOUR ONL TEAM: Autumn Edition 5th February 2020 Operation Supervisor: Colleen PHONE: 02 9542 1300 ORDERS: WE ARE UNABLE TO ACCEPT PHONE ORDERS Warehouse Supervisor: Please email orders to: orders@ostomynsw.org.au Steve Please fax orders to: 02 9542 1400 Please post orders to: PO Box 3068, The team: Kirrawee NSW 2232 Angie, Aye Aye, Belinda, Bev, Carol-Anne, Cheryl, Frank, PICKING UP ORDERS: COUNTER HOURS OF OPERATION Kim, Luke, Matt, Rhys. We are open four days a week PLUS OUR DEDICATED Monday to Thursday 9:00 am to 2:00 pm VOLUNTEERS (Please place orders 48-72hrs before desired pick-up) Express Counter - Unit 6, 555 Princes Hwy, Kirrawee Warehouse Counter - Unit 6, 18 Monro Ave, Kirrawee www.ostomynsw.org.au DISCLAIMER PAYMENTS Advertisements in this Newsletter are Payments can be paid by bank transfer (EFT) to: published as submitted by advertis- ers. The publisher has not checked the Account Name: ONL veracity of the advertisements and ac- BSB: 112879 (St George Bank) cepts no responsibility for their content. The publisher specifically disclaims all Account Number: 45 664 3389 responsibility and liability for any mate- Reference: Your Member Number and Surname rial contained in this Newsletter and in particular any material that may breach any confidentiality or privacy or may be POSTAGE RATES regarded as defamatory. Such liability will be assumed by the relevant author Standard NSW $13; Interstate $16 of the material. The reader is strongly ad- Express NSW $20; Interstate $30 vised to first obtain appropriate medical Holiday/double orders NSW $18; Interstate $24 advice from an STN or GP before trialling any products advertised in this publica- Holiday/double Express NSW $25; Interstate $35. tion. No advertisement published in this Newsletter shall be taken to constitute an endorsement of products contained OSTOMY NSW LTD STN CLINIC – Janet Forsyth in that advertisement, either by the Edi- Please phone 02 9542 1300 for appointment Second Tuesday tor, this association, or any government department connected with the Stoma of each month. Unit 6, 18 Monro Ave Kirrawee Appliance Scheme. AUTUMN 2019 3
NEWS MY STOMA STORY BY MARGARET I am 77 years of age, widowed, have I returned to bowling not long after two children and five grandchildren. that and am still enjoying the game. I was diagnosed with a bowel tumour I can now travel on public transport in 1996 and had it successfully re- and visit shopping centres without moved with a temporary colostomy, looking for the nearest toilet facilities, followed up with chemotherapy and which is wonderful. radiation therapy for several months. In January last year on a Saturday I then had a re-join and back to nor- morning I awoke not feeling too well mality!! I have been carefully moni- and felt some abdominal pain and tored ever since by wonderful sur- swelling. I started vomiting and geons and staff who keep me sane thought it was “something I ate”! I and healthy. just relaxed all day in my lounge re- I joined the local bowling club for cliner chair and had a cup of tea, recreation and got terribly addicted which didn’t stay down too long ei- to the game, met lots of lovely ladies ther. I just assumed I would feel bet- (and gentlemen) and am still trying to ter the next day – but I wasn’t. My play the “perfect game”. daughter phoned me as usual on the Six years ago I started to lose weight Sunday and I told her I wasn’t feeling and frequented the bathroom more all that well and she offered to come often than usual. I visited my GP who over. I said no – I’ll just “sleep it off”. referred me back to my colo-rectal The next morning she arrived early surgeon and urologist for further and had one look at me then called endoscopies. After further discus- the ambulance and I found myself in sions re my future health options, I the emergency department of the lo- participated in a couple of treatment cal hospital. Needless to say, I was in trials. These did not help relieve my trouble both from my daughter and symptoms and after a short time it ambulance officers for not doing this was back to discussions with the spe- sooner!! cialists. I was admitted overnight with pa- Later that year I had another opera- thology and CT tests taken and with tion with a permanent colostomy this fluid intake monitoring as I was very time. I was in hospital for approxi- dehydrated and nauseous. I came mately three weeks, where I gained home the next day with no official di- weight and slowly progressed back to agnosis as I had recovered enough to my “normal” self. It took about three enjoy a light breakfast and the pain months to slowly get back on my feet was gone after about 24-hour bed with the help the superb medical spe- rest. cialists and their staff, together with a So back to my specialists with fur- beautiful stomal therapist who treat- ther endoscopies, which showed ed me like a best friend. nothing out of the norm. I got back 4 AUTUMN 2019
NEWS to my old self without any further hiccups. Then six months later, the same symptoms again. This time, my daughter phoned my specialist im- mediately, who referred me straight into hospital, where I had further CT and pathology done. My abdomen was very painful and swollen and I had no stoma output whatsoever, with vomiting as before. I was de- hydrated again and put on a fluid drip with painkillers and antibiotics. I was diagnosed with probable block- age due to adhesions from previous surgeries over the years. Bed rest and plenty of fluids was required and after two days I came home again feeling back to normal. I have re- mained symptom-free ever since. I always read the Ostomy NSW Newsletter and in the Spring 2018 edition, I was surprised to read in “Hello from the Clinic” page by Sr Ja- net Forsyth, CNC Stomal therapist, the article about Stoma Blockage. I thought she was writing about me as the symptoms were exactly what I had experienced. All I can say is having had the symptoms twice, I commend this as a “must read” one for all Ostomates and thank her for the article. I have been a volunteer at Ostomy NSW Kirrawee for nearly five years and thoroughly enjoy my day with the pleasant and efficient staff each week. Caption: Margaret with ONL Manager Stephen Lardner AUTUMN 2019 5
NEWS FOCUS ON VOLUNTEERS – MARGARET’S STORY FOOTNOTE… Margaret is a member of our asso- professionals and lawyers prior to retir- ciation having joined ONL in December ing in 1996. Margaret’s contribution to 2013. She volunteers her time every our not-for-profit charity is exceptional; Monday to assist our team and provide we enjoy her company and her work is support for our members. Margaret at a high standard. works from early in the morning from In May 2018 we had the great pleasure 9am (getting up at 6am to be on time) of nominating her for a Hughes Commu- and works until well into the afternoon, nity Award. In November we learnt that leaving around 4pm. While she is work- Margaret was successful with her award, ing she answers the phone, responding which was presented by the local Feder- to member enquiries and serves our al Member for Hughes, the honourable members at our counter. She enters Craig Kelly MP. The ceremony was held your orders into our mainframe system at Woronora RSL in December 2018. and completes other administration Margaret is one of our twenty-eight tasks. These include filing, printing or- volunteers who provide service to our ders, sending mailouts and folding raffle members to give back some valuable tickets. time and assistance. Research shows Margaret is a great character to have volunteers live happier and healthier around. Her personality is bright and in- lives. So, enjoy your volunteering and all fectious and her mannerism when deal- the benefits that come with it! (Source: ing with members is very professional. Volunteering Australia). Thank you vol- This is a reflection on the roles she had unteers for helping make Ostomy NSW when in paid employment. Margaret has the business we are and helping make worked for large corporates, medical Australia the happiest place on earth! REGIONAL INFORMATION MEETINGS 2019 BANKSTOWN AREA – NEW!! Dates: Wednesday 6 March 2019 Time: 10:00-12:00 – morning tea Address: Revesby Workers Club, 2B Brett St, Revesby NSW 2212, Ph 02 9772 2100 Access: Close to public transport and lots of free parking About: A stoma support group hosted by Bankstown Hospital STNs for you and your family - everyone welcome. RSVP: Please RSVP for catering purposes to your Bankstown Hospital STN or Clare Jacobs on 0400 921 901 or aucldo@coloplast.com for further information. St George area Dates: Tuesday 19th March, Tues 16th April, Tues 21st May, Tues 18th June (3rd Tuesday of every month) Time: 10:00-12:00 – morning tea Address: Ramsgate RSL (meet in front foyer) Cnr Ramsgate Rd & Chuter Ave Sans Souci NSW Access: Close to public transport and free parking About: Everyone welcome – please RSVP for catering purposes to your STN or Clare Jacobs on 0400 921 901. 6 AUTUMN 2019
REGIONAL INFORMATION MEETINGS 2019 SHOALHAVEN SUPPORT GROUP Dates: Wednesday 8th May, Wed 26th June (Ulladulla), Wed 7th August, Wed 6th November Time: 2pm Address: Nowra Community Health Centre, 5 - 7 Lawrence avenue Nowra. About: The STN is Brenda Christiansen. Ph. 02 44246300 e. brenda.christiansen@health.nsw.gov.au Nepean Education Stoma Support Group Dates: 22 February 2019 10 May 2019 26 July 2019 27 September 2019 29 November 2019 Time: 2-3:30pm – afternoon tea Address: 63 Derby St, Penrith (University of Sydney Medical School) Access: The building is opposite Nepean Hospital’s Emergency Department. Enter via the side path to the Clinical School’s Outpatient waiting room. Please wait until 2:00 pm when you will be directed to the meeting room. Car Parking: Either on the street or in the multi-story car park on Somerset Street, Kingswood (free for pensioners for the first 3 hours) About: Family and friends are most welcome. Any enquiries please contact Naomi Houston on 4734 1245 GOULBURN COMMUNITY STOMA SERVICE Dates: First Wednesday of each month Time: 9am to 3pm Address: Goulburn Base Hospital. 130 Goldsmith street, Goulburn, NSW 2580. Enter via the emergency dept and ask at reception for the stoma clinic. About: The STN is Kelly Taylor RN STN m. 0402 250 475 e. kelly@communitystomaservive.com Kelly will provide individual consultations by appointment. SOUTH WEST SYDNEY STOMA SUPPORT GROUP Dates: Thursday 18th April, Thurs 20th June, Thurs 22nd August, Thurs 17th October, Thurs 12th December Time: 1pm to 3pm Address: Contact: Camden Hospital, Heritage Auditorium. 61 Menangle Road Camden. Erin or Lu on (02) 8738 4308 LIVERPOOL AREA SUPPORT GROUP – NEW!! Dates: Thursday 28th March, Thur 30th May, Thur 18th July, Thur 26th Sept, Thur 28th Nov. Time: 1Pm To 3Pm Address: Cabra Vale Diggers Club, 1 Bartley St Canley Vale 2166 Contact: Erin Or Lu On (02) 8738 4308
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NEWS OSTOMY AUSTRALIA MANAGING EDITOR Do you have a desire to support your aging the national distribution of the fellow ONL members by ensuring that journal to 21 associations, three times the national journal continues to meet a year. As presently structured, the po- our needs for information and connec- sition encompasses editorial, advertis- tion? Do you have experience in jour- ing and administrative functions. nalism, publishing or public relation? The position is honorary, but attracts Or maybe you have a background in an honorarium of $1500 per issue. administration, teaching, project man- ACSA also provides a mobile telephone agement or IT? service and reimburses the editor for The Australian Council of Stoma Asso- relevant expenses. ciations invites expressions of interest If this sounds like you, there is detailed for the position of Managing Editor of information about the role on the ACSA Ostomy Australia, ACSAs’ national jour- website at: nal. http://australianstoma.com.au (See the The role involves producing and man- link from the home page) AUTUMN 2019 9
NEWS IT’S NEARLY ANNUAL FEE TIME Annual membership fees for the 2019- by ostomy associations to contribute to 2020 financial year are due by 30th the cost of running the organisation. June 2019 and prior to your July order ONL also has a per-order charge to being dispatched. cover the actual cost of postage of or- As ostomates, we are lucky to have our ders. See inside the front cover of this stoma appliances fully subsidised by journal for the current rates. the Australian Government. The val- As charitable organisations we have ue of our supplies can be worth hun- tight resources so it’s critical that we dreds of dollars each month for a typi- receive any revenue that is due to us. cal member. This subsidisation is only You can help us by paying your annual possible because the supplies are dis- fee before July. You can also check your tributed by member organisations like account balance on your packing slip Ostomy NSW in each state. that comes with your order. If it is low While the supplies are fully subsidised, or in the negative, please make a pay- the Australian Stoma Appliance Scheme ment as soon as possible. You can find requires each member to pay a very out how to make a payment inside the small annual access fee that is retained front cover. Visiting the ONL office by car or foot If you are coming to the office to pick up your supplies or attend the STN clinic we recommend that you enter from the rear door at Unit 6, 18 Monro Ave for the next few months. Currently there is major road work occurring on the Princes Highway and it is causing some access challenges for both car and pe- destrian access. Car access into the driveway is problematic and there is cur- rently no footpath access for the entire block on Princes Hwy and pedestrians are detoured to Monro Ave. Here’s how to find us: • Turn off the highway at Oak Rd and turn right into Monro Ave or • Turn off the highway into Waratah St and drive one block then turn left at the roundabout into Bath St and right into Monro Ave (Bunnings is on your right) • No 18 is about half way along, with a sign at the gate where Ostomy NSW is listed. We are at the top of the drive in the blue building next door to an au- tomotive business. • There is some limited 10-minute parking outside our back door. Easter closures Please note Easter Trading Days: Friday 19th April – Closed Monday 22nd April – Closed Thursday 25th April – Closed Friday 26th April – Closed We only open for two days during the week after Easter Sunday. Please be prepared and order early in April. AUTUMN 2019 11
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NEWS THE RESULTS ARE IN – BLADDER CANCER AUSTRALIA SURVEY 2018 In the Winter 2018 edition of Os- in the study. The most common tomy journal we let you know about symptoms they reported at the time an opportunity to participate in the of diagnosis were blood in the urine PEEK Bladder Cancer Australia Sur- followed by problems emptying or vey 2018 frequent emptying of the bladder. Patient Experience, Expectations The most common treatments that and Knowledge (PEEK) is a research participants had after diagnosis program developed by the Interna- were surgery, BCG treatment and tional Centre for Community-Driven chemotherapy. Participants rated Research (CCDR). The aim of PEEK is their quality of life after treatment to conduct patient experience stud- in the range of distressing or a little ies across different disease using a distressing. Participants appreci- protocol that will allow for compari- ated professionalism and compas- sons over time (both quantitative sion in their care. There was a fo- and qualitative components). cus on the information needs of CCDR thanks each and every per- people going through diagnosis and son that participated in the Bladder treatment and a desire for readily Cancer survey. The results are now available, understandable, compre- available and if you would like to see hensive information that can help them you will find them on the Cen- people prepare for their treatment tre for Community-driven Research and beyond. website at this location: CCDR is now conducting a PEEK survey on Crohn’s disease and ul- www.cc-dr.org/au/peek/ cerative colitis and again invites af- complete/2018aublc/ fected members of ONL to partici- pate. For details see the invitation In short, there were 50 participants to participate in this journal. 14 AUTUMN 2019
NEWS AUSTRALIAN CROHN’S DISEASE & ULCERATIVE COLITIS PATIENT VOICE INITIATIVE If you are currently or have previously This is a study to help us understand been treated for Crohn’s disease or ul- the experience of people diagnosed cerative colitis you are invited to take with these conditions and what they part in a research study. would like to see from future treatment, The Centre for Community-Driven Re- care and support. The study involves an search is a non-profit organisation con- online questionnaire and telephone in- ducting the Australian Crohn’s Disease terview with one of our lovely nurses. & Ulcerative Colitis Patient Voice Initia- This will be the first study of its kind in tive. Australia. TO REGISTER OR FOR MORE INFORMATION Online www.cc-dr.org/au/peek/recruiting Email administration@cc-dr.org Phone (02) 8294 6760 AUTUMN 2019 15
HEALTH HERNIAS AND YOU End stoma Hernia Carmen George, STN, Omnigon You may be at more risk. Earlier this month I was shown a quote In acknowledging that anyone with a from J Byron-Gathright a well-known stoma is at risk of getting a parastomal North American Colo-proctologist. He is hernia some are more prone than oth- quoted as saying ers. For example, anyone who has had a “It doesn’t matter if God himself made hernia before, anywhere, is at higher risk. your ostomy, if you have it for long If you are over 70, obese, doing minimal enough you have 100% risk of a para- activity then you are at much more risk stomal hernia” (1996). of developing a parastomal hernia than if Who can get one? you are 45 years old do regular exercise Certainly anyone with a stoma is at risk and are within a healthy weight range for of developing a parastomal hernia. This height. is technically speaking an ’incisional her- Even the reason you have had your sto- nia’. Incisional because to create the ma created can put you at higher risk. So stoma a surgical incision/cut is involved, if your surgery was emergency and you even if the main part of the surgery is have a large stoma you are at more risk done by key-hole (laparoscopic) surgery. than if you had keyhole surgery and an The actual creation of the stoma involves ileostomy. making openings through all the layers Further if you already have a breathing of the abdominal wall thereby creating disorder or are a smoker you also go into an area of weakness. The hernia itself the higher risk group. is formed by loops of bowel protruding Most parastomal hernias develop in the through that weakness and forming the first 12 months after surgery so these bulge alongside or around the stoma. first months are the risky time. 16 AUTUMN 2019
HEALTH Prevention is better than cure your stoma surgery. It’s recommend- As discussed, anyone with a stoma ed to keep them up and incorporate is at some risk of developing a para- them into a life-long daily routine. stomal hernia. Ideally you should Start all abdominal exercises by ly- have been warned that this is one of ing with your head on a pillow, knees the possible complications of having bent and feet flat on your bed or the stoma surgery. Surgery that results floor. in a stoma is often lifesaving or life enabling surgery so the probability of 1. Abdominal exercise a hernia developing down the track Gently place your hands on your might not have had any impact on the lower tummy. Breathe in through decision to have a stoma. your nose and as you breathe out, Being fit for surgery is also not often gently pull your tummy button an option in emergency situations. down towards your spine. Feel the There is evidence now to show that muscles tighten, try to hold for a an early intervention program with count of 3 and then relax. Breathe advice on exercise and the wear- in and out normally. ing of support garments reduces the incidence of parastomal hernia. 2. Pelvic tilting This same study found that develop- Place your hands in the hollow of ing a parastomal hernia reduced the your back. Tighten your tummy quality of life for people with a stoma. muscles (as for exercise 1), flatten your lower back onto your hands, Prevention and management and tilt your bottom. Breathe nor- strategies mally. Hold for 3 seconds and re- Seek advice on what exercises are lease gently. good for you to do and do them Loose excess weight if you can 3. Knee rolling Wear an appropriate sized support Tighten your tummy muscles (as garment or belt for general support for exercise 1) and gently lower and especially when doing exercise both knees to one side as far as Give up smoking is comfortable. Bring them back Source: North J. to the middle and relax. Repeat to the other side. This exercise Early Intervention, parastomal has the added benefit of releasing hernia and quality of life: a trapped wind. research study. Aim to do these exercises three times British Journal of Nursing, 2014 (Sto- a day with five repetitions each. In- ma supplement) Vol 23, No 5 crease the repetitions as you feel able. Abdominal exercises for hernia prevention Source: Oxford Radcliffes Hospitals You may have been taught these ex- 2013 ercises while you were in hospital for AUTUMN 2019 17
NEWS OSTOMINGLE- SUPPORTING SYDNEY’S YOUNGER OSTOMATES Renee Constantin become extremely cathartic and emo- As we go through life’s ups and downs tionally freeing. The feed also gave me a we all need support, from heartbreak to way of giving back to the online ostomy chronic illness, everyone needs a shoul- community, who had welcomed me with der to cry on and an ear to turn to for open arms, judgment free and ready to guidance and understanding. help during the months of preparation I first experienced IBD symptoms while I leading up to my surgery. But ultimately, I was studying for my HSC exams. My stub- still felt alone and physically disconnected bornness and determination to succeed from other ostomates. meant that I struggled quietly through In 2016, I unfortunately had a small bloody stools and stomach pains until I bowel obstruction that resulted in emer- could no longer gency surgeries, hide the daily sepsis, a tempo- painkillers and rary jejunostomy, heat packs. The a ton of infections next six years and TPN that are a blur of meant another lengthy hospital wonderful hospi- stays, handfuls of tal stay from April medication, trial to August. During procedures and those months in infusions pep- hospital I had the pered with a few chance to meet wonderful mo- a lady who was ments of (semi) newly diagnosed remission where I with colon can- traveled and lived my life like a normal uni cer. As she lay in the bed next to mine, student. Half way through 2015 however, my parents and I overhead her receive the conversation of creating an ileostomy the news from her doctor that depend- became real and I began preparing for a ing on what they found during her sur- surgery that would turn my life around. gery, she may wake up with a stoma bag. At the end of 2015, as a young newly She was devastated and petrified, and wed, just back from my honeymoon, my began to audibly cry as soon as the doc- life as an ostomate began and following tors had walked away. My mother went the advice of my stoma therapy nurse, I over, opened our dividing curtain, and sat started an Instagram account (@pouch_ on the bed of this complete stranger and by_pouch) as a sort of journal, to help hugged her for what felt like hours before chronicle the ups and downs of my osto- introducing her to me. my journey. It ended up being one of my For the next few days as she waited for greatest sources of strength, as writing her surgery, she picked my brain on ev- down and exploring my experiences has erything stoma related, she tried on one 18 AUTUMN 2019
Did you know? 3 out of 10 people with a stoma will develop a hernia. Australian Stoma Appliance Scheme Entitlement 6 OR 3 Support Pants Support Belts OR a combination (1 support belt = 2 support pants) Call 1800 819 274 for your FREE Support Garment Guide and measuring tape 0463 - 19 AU 1800 819 274 info@omnigon.com.au www.omnigon.com.au
NEWS of my spare bags, learnt all the tips and based ostomy support group aimed at tricks I had once asked about and had young ostomates. Aptly named Ostomin- picked up along the way and mentally gle, the group gives ostomates a chance prepared herself for waking up with a sto- to meet in familiar and comfortable set- ma. The two weeks that we spent as bed tings, just as they would any other group buddies was incredible for us both. Two of friends, and mingle. March 2nd marks complete strangers joined by a shared the first meeting following a similar meet- experience, leaning on each other, learn- up of Sydney based ostomates in Novem- ing from one another and ultimately giv- ber of last year at Bondi Beach. Meeting ing support in a way that only another this wonderful group of young women ostomate could give. drove home the need for a group such Since then, the desire to physically reach as Ostomingle as many of the established out to the ostomy community has grown support groups focus on much younger and this dream has finally become a real- or older ostomates, and I am thrilled to ity in 2019, with the formation of a Sydney finally bring my dream to fruition. 20 AUTUMN 2019
A Sense of Security Means Everything Adapt barrier extenders At Hollister Ostomy Care, we know a sense of security and leakage prevention are top priorities for you. Our Adapt barrier extenders offer an additional layer of protection for those concerned about lifting around the edges of their skin barrier. With a thin and flexible hydrocolloid formulation, Adapt barrier extenders conform easily to body contours. Three strips create a custom frame around Three convenient shapes make it easy to create your skin barrier. a custom frame around the skin barrier. The end result is enhanced security, when it matters most. Code Monthly Allowance SAS Code 79402 60 per month 80141Y Order a FREE sample today Call 1800 880 851 www.hollister.com.au The Hollister logo and Adapt are trademarks of Hollister Incorporated. © 2019 Hollister Incorporated. AUH143.
HEALTH He ll o Fr o m T h e C li n ic . You may to peristomal skin care Skin Care ur skin will have concerns that yo s that ca n to urine or There are several thing become irritated due your stoma. faeces, or from having a pouch- affect management of mon ones all the time. Some of the more com ing system on the skin ight loss at gives being weight gain or we Finding the product th a period of stoma and herniation. Over you the best fit for your reduce in important time your stoma may and abdomen is most ange in th e l leakages size thus requiring a ch to prevent any potentia your pouch. that may irritate the sk in. size of the opening in necessary to Sometimes it may be Your Stomal Therapy Nurse will of po uc h yo u are change th e typ e with the best ob lem s ca n be advise and assist you wearing. Many pr e osto- ino r ad jus t- ch oic e and teach you to us alleviated with some m my products correctly to decrease m an ag em en t or ments to stom a tion. A big the chance of skin irrita skin care. with a stoma proportion of people olve the e some type Stomas essentially inv are likely to experienc anently e time and maintenance of a perm of skin problem at som in and there- often are unable to identify if in open breach of the sk pert skin . Some- fore the site requires ex fact they have a problem in managing k pinker, care. The crucial skill times your skin may loo at the point redder or darker immediately after the skin comes mainly ging as it but this of cleansing and chan removing your pouch in integ rit y few min- is at this point that sk should fade away in a nd your rsists or be- is at risk. The skin arou utes. If the redness pe tomal skin a reaction to stoma, also called peris comes itchy it may be e the skin stoma pouch should look and feel lik the adhesive on your domen. As you may be on the rest of your ab or other products that evention visit to your with most situations, pr using on your skin. A en it comes is better than cure wh 22 AUTUMN 2019
NEWS not unu- is re qu ire d to remain aware that it is Stomal Th er ap ist m e more us e. Be ge nt le re - sual for people to beco determine the ca onths m th e sk in de hy drated in the winter m moving your pouch fro than it is in summer. In winter you ca re fu lly pr es s to avoid skin tea rs; l thirst ad he siv e of ten lose the body’s natura e the skin away from th g response and don’t drink as often wh ils t ge nt ly pu llin d to be with one hand as you should. You also ten m th e sk in the adhesive away fro e rugged up in all yo ur winter gear ha nd . Re m ov ing th with the othe r t living, working tto m us ua lly wh ils pouch from top to bo and playing in prevent any works best and helps heated envi- spills on the skin. ronments. You ca re ar e Ke ep Basic rules of skin still sweat d th at m ea ns th e few - it simple! an and lose th e sk in th e er products used on body fluid th e sk in wi th wa rm better. Wash even when th an d dr y we ll water and a soft clo it’s cold a ne w po uc h. It is before apply ing outside, so t yo ur po uc h ok to shower withou drink up an y pe op le th is is the on and for m and keep an ing pe ri- preferred option. Cle st well! wi th ba by wi pe s is be stomal skin Good wishes to ed as th ey ca n lea ve a resi- ! avoid m ay im pa ir th e all, see you at the clinic due build up th at adhesive quality of yo ur pouch. Phone 95421300 Remover wipes or skin barrier films for an appointment. N JP ou ld on ly be us ed sp aringly and Janet Forsyth RN MAC sh needed. Most CNC Stomaltherapy only if they are really daily use of people do not require these products. inder to P.S. Just a friendly rem r and the all that the cold weathe ching so flu season are approa ections and don’t forget your flu inj AUTUMN 2019 23
Healthy skin for healthy confidence. Simon, colostomy since 2010 Dansac Accessories – Helping to support skin health Sometimes the skin around your stoma needs a little extra help or protection. Dansac offers a variety of accessories designed to help make everyday life comfortable and deliver the confidence and reassurance you deserve. Dansac TRE seal Dansac X-tra Strips Formulated to provide a secure, flexible seal to A skin friendly natural solution for those seeking protect the skin from stoma fluid, while maintaining an extra sense of security for the outside edge of the pH balance of naturally healthy skin. the skin barrier. Contact us today to order your FREE SAMPLE. Call 1800 880 851 or visit dansac.com.au Dedicated to Stoma Care The Dansac logo, Dansac X-tra, and TRE are trademarks of Dansac A/S. ©2019 Dansac A/S. Prior to use, be sure to read the Instructions for Use for information regarding Intended Use, Contraindications, Warnings, Precautions, and Instructions. DAN008.
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