NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT 2019 - Pain Australia

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NATIONAL STRATEGIC
 ACTION PLAN FOR
PAIN MANAGEMENT
        2019
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Management
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          The National Strategic Action Plan for Pain Management 2019 was developed by
         Painaustralia with funding from the Australian Government Department of Health.
CONTENTS

ABOUT THE PLAN                                      1

ACKNOWLEDGEMENTS                                    2

HOW PAIN IS DEFINED                                 3

WHY ACTION IS NEEDED – AUSTRALIA’S PAIN BURDEN      4

WHAT WE WANT TO ACHIEVE: VISION 2021                8

PARTNERSHIPS AND ENABLERS                           10

INTERDISCIPLINARY PAIN MANAGEMENT                   11

KEY GOALS AND ACTIONS 2018-2021 – THE ACTION PLAN   12

REFERENCES                                          24
ABOUT THE PLAN

     For many people, pain is a temporary discomfort            the National Pain Strategy in 2010 to provide a
     associated with injury, illness or post-surgery.           blueprint for best practice pain management.
     However, when pain becomes chronic (persistent
     or recurrent for 3 months of longer), it has a deep        The Action Plan also leverages and builds on key
     impact on quality of life as people living with pain       activities taking place at a state and territory level
     become excluded from community, work or                    and through primary health networks (PHNs)
     education.                                                 that have increased community awareness of
                                                                pain management, integrated services, provided
     With at least one in five Australians living               education and training for health practitioners and
     experiencing chronic pain today, it is an escalating       invested in pain services. The Action Plan also seeks
     health issue and carries a significant economic            to foster innovation in service design and delivery.
     burden in lost productivity and health costs.
     Addressing pain is in the interests of all Australians.    National leadership and action on pain is critical
                                                                to ensure Australians live healthier lives through
     Yet many people living with pain cannot get access         effective prevention and coordinated management
     to best practice pain management, often due to             of chronic conditions: the leading cause of illness,
     cost, location or low awareness of treatment               disability and death in Australia. The Action
     options, and medication is playing an increasing           Plan aligns to the goals of the National Strategic
     role. To date, pain has not been a national health         Framework for Chronic Conditions published
     policy priority, despite its significant impact on         by Australian Health Ministers Advisory Council
     people’s lives.                                            (AHMAC) in 2017 and will underpin Australia’s
                                                                obligations as a member state of the World Health
     The Australian Government announced support                Organisation and its efforts through the Global
     for the development of the first ever National             Action Plan for Prevention and Control of Non-
     Strategic Action Plan for Pain Management (the             Communicable Diseases 2013-2020.
     Action Plan) in May 2018. The Action Plan sets out
     the key priority actions to improve access to, and         The Action Plan comes at a critical time: pain
     knowledge of best practice pain management, in             management finds itself at the intersection of key
     the next three years.                                      global public health challenges of the 21st century
                                                                including the safe and effective use of medications
     Painaustralia, the national peak body working to           and the urgent need to stem the rise of chronic
     improve the quality of life for people living with pain,   conditions.
     has consulted widely with consumers and consumer
     groups, clinicians, allied health practitioners, key       The Action Plan will provide a key step towards
     health groups, researchers, experts and the whole          a national and holistic policy framework that will
     community to understand what people think the              support consumers, health practitioners and the
     key priorities are for the Action Plan.                    wider community to improve the quality of life for
                                                                people living with pain, their families and carers
     These consultations have confirmed the need                and minimise its impact.
     for action and nationally coordinated policy
     setting. Greater awareness of pain and pain
     management, more timely access to consumer-
     centred interdisciplinary services and research
     to underpin greater knowledge of pain as well as
     new treatments have emerged as key priorities, as
     has harnessing leaps in research, clinical evidence
     and technology.

     The Action Plan builds on the strong foundation and
     advocacy of Australia’s pain sector which developed

                                                                   1
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
ACKNOWLEDGEMENTS
  Painaustralia wishes to acknowledge the support of Hon Greg Hunt
  MP, Minister for Health and the Department of Health in funding and
  supporting the development of this Action Plan.

  We also acknowledge the many organisations and individuals that have
  contributed to the development of this Action Plan, including:

  >> ACT Pain Support
  >> Arthritis Australia
  >> Australian Pain Association
  >> Australian Pain Management Association
  >> Australian Pain Society
  >> Australian Rheumatology Association
  >> Australian Pharmaceutical Society
  >> Australian Physiotherapists Association
  >> Brain Foundation
  >> Carers Australia
  >> Chronic Pain Australia
  >> Consumers Health Forum
  >> Department of Health, Australian Government
  >> Faculty of Pain Medicine, Australian and New Zealand College of
     Anaesthetists
  >> MS Australia
  >> National Rural Health Alliance
  >> Pain Revolution
  >> Palliative Care Australia
  >> Parkinson’s Australia
  >> Primary Health Networks
  >> Royal Australian College of General Practice
  >> Royal Australasian College of Physicians
  >> Royal Australasian College of Psychiatrists
  >> Scriptwise
  >> State and Territory Departments of Health

  We also wish to thank the all the consumers and consumer groups that
  participated in the CHF-led consumer roundtable held in September
  2018 and participated in our online survey July-August 2018.

                                                             2
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
HOW IS
                                                          Pain is complex and has many contributors

     PAIN
                                                          While acute pain is often a normal part of life, it is also
                                                          important to deepen the understanding of chronic
                                                          pain, given its significant impact.

                                                          The National Pain Strategy documents the evidence-
                                                          base for the ‘bio-psycho-social’ model of pain
                                                          assessment and management. This model
                                                          recognises three overlapping components: physical,

     DEFINED?
                                                          psychological and environmental, and notes that to
                                                          assess a person suffering from pain, it is important
                                                          to assess the contribution of factors in these three
                                                          areas to the pain experience of each patient.

     Five categories of pain (National Pain Strategy):    Different types of pain:
     >> Acute pain, defined as a normal and time-         Nociceptive pain is caused by damage to body
        limited response to trauma or other ‘noxious’     tissue and usually described as a sharp, aching, or
        experience, including pain related to medical     throbbing pain and can be caused by a range of
        procedures and acute medical conditions.          conditions or factors including injury, surgery, arthritis,
        Acute pain can also arise from physiological      osteoporosis or musculoskeletal conditions.
        causes such as childbirth. If poorly managed,
        it can lead to more serious health issues,
        including chronic pain.                           Neuropathic pain is a type of pain that occurs
                                                          following damage to the nervous system itself. The
     >> Pain that is progressing towards chronic          sensations associated with this type of pain are
        pain, but this progression may be prevented       described as burning or shooting pains. The skin can
        (‘subacute’ pain). For example, acute wound       be numb, tingling or extremely sensitive.
        pain may progress to chronic wound-associated
        pain.
     >> Recurrent pain, e.g. migraine
                                                          Nociplastic pain is essentially pain related to
                                                          increased nervous system sensitisation rather than
     >> Chronic (or persistent) non-cancer pain that      tissue or nerve injury despite no clear evidence of
        persists for longer than 3 months                 actual or threatened tissue damage.
     >> Cancer-related pain

     Many health conditions can contribute to the development and maintenance of chronic pain:

     •   Back and leg pain (lower back pain is the leading cause of disability worldwide );
     •   Complex Regional Pain Syndrome (CPRS);
     •   Chronic widespread pain (‘Fibromyalgia’)
     •   Pelvic pain, including endometriosis;
     •   Migraine and headache;
     •   Sciatica;
     •   Orofacial pain;
     •   Neuropathic (nerve) pain; and
     •   Musculoskeletal conditions - conditions of the bones, joints, muscles and connective tissues, includ-
         ing arthritis, osteoarthritis, osteoporosis and gout.
     Injury is also a leading contributor to chronic pain, and pain can follow surgery. The ePPOC program that
     benchmarks Australian and New Zealand pain services found in almost 40% of pain cases an injury at
     work, home or school or another place was the triggering event, in 10.3% it was a motor vehicle crash
     and surgery accounted for 10.5% of pain cases. 17% of pain cases had no known cause (from the patient
     perspective), 10% was due to illness and 12% had other causes.

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NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
WHY ACTION IS NEEDED -
AUSTRALIA’S PAIN BURDEN
     Millions of Australians live with pain
     One in five Australian adults are estimated to live with chronic pain (daily pain for more than
     three months, experienced in the last three months)1. This is consistent with global burden
     of disease data, which show that lower back pain was the leading cause of disability globally
     in 2017.2 Four million Australians currently live with arthritis, and this is projected to rise to
     5.4 million by 2030.3

     Some pain conditions are more prevalent in rural communities, with people outside the major
     cities reported to be 23% more likely to have back pain, rising to 30% for residents aged 55
     to 64.4

     Chronic pain is even more common among Australians aged over 65, with one in three living
     with chronic pain.5 Up to 80 percent of residents of aged cared facilities are living with persistent
     pain, which is often under-treated or poorly managed.6

     Between 25 to 35% of children and adolescents experience chronic pain.7

     The pain burden is growing
     Chronic pain affects more than 3.24 million Australians. Painaustralia’s report, The Cost of
     Pain in Australia by Deloitte Access Economics, provides the most comprehensive analysis of
     the financial impact of chronic pain in Australia to date and it found more than 68% of people
     living with chronic pain are of working age. Without action, the prevalence of chronic pain
     will increase to 5.23 million Australians (16.9%) by 2050.8

     By 2032, it is projected that the number of cases of arthritis and other musculoskeletal conditions
     will increase by 43% to 8.7 million and affect over 30.2% of the population. Osteoarthritis is
     projected to affect three million people (up from 1.9 million), back problems to affect 3.8 million
     people (up from 2.9 million) and osteoporosis to affect 1.2 million people (up from 0.8 million).9

     Pain is closely associated with other health conditions, mental
     health and disability
     Comorbidity (the occurrence of two or more diseases in a person at one time) is very common
     among people living with pain conditions like arthritis and back pain.

     For those who experience chronic pain, the pain can be debilitating and have an adverse
     effect on work, sleep, and relationships. Individuals with chronic pain may also commonly
     experience comorbidities such as depression, sleep disturbance and fatigue.

     These comorbidities often contribute to worse health, societal and financial outcomes – for
     example, major depression in patients with chronic pain is associated with reduced functioning,
     poorer treatment response, and increased health care costs.

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NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
Chronic pain and mental health problems, particularly depression, commonly occur
          together. Major depression in patients with chronic pain is associated with reduced functioning,
          poorer treatment response and increased health care costs. High rates of generalised anxiety
          disorder, post traumatic stress disorder and substance misuse are also reported in people with
          chronic pain. Moreover, suicide is reported to be two to three times higher in those suffering
          chronic pain compared to the general population, and it is associated with depression.10 This
          may be due to opioid related deaths, but there is a lack of research in this area.

          In 2018 the top three chronic disease combinations were: depression or anxiety (44.6%),
          osteoarthritis and degenerative arthritis (29.3%) and high blood pressure (25.1%).11

          Chronic pain and mental health problems, particularly depression, commonly occur together.12
          In Australia and New Zealand, 40.5% of pain patients captured in ePPOC data in 2016 reported
          also suffering depression and/or anxiety.13

          Pain carries a significant economic cost
          The Cost of Pain report has pulled data out of the health, aging and disability sectors, to reveal
          the staggering cost of chronic pain to taxpayers. In 2018, this figure was $139.3 billion. This was
          on top of the fact that last year alone, Australians paid $2.7 billion in out of pocket expenses
          to manage their pain, with costs to the health system in excess of $12 billion.14

          There were estimated to be 9.9 million missed workdays due to chronic pain each year in
          Australia in 2006.15

          Chronic pain is estimated to be Australia’s third most costly health condition in terms of health
          expenditure, noting musculoskeletal conditions are the second most costly, and injuries the
          fourth (both carry a strong association with chronic pain).16

          Chronic pain is a leading cause of economic and social exclusion
          Pain deeply impacts on people’s ability to participate in work, education or the community.
          Globally, the median period that a person lives with chronic pain is seven years.17

          Back pain and arthritis are two of the most common health conditions that cause premature
          retirement for people between the ages of 45 and 64, accounting for about 40% of cases.18, 19

          Most patients included in 2016 ePPOC data stated that their pain affected the number of
          hours they were able to work or study (92%) and the type of work they were able to do (95%).
          19% of episodes involved a compensation claim and 34% were unemployed due to their pain
          condition.20

          The daily challenges of chronic pain include decreased enjoyment of normal activities, loss
          of function and relationship difficulties.21

          As chronic pain is largely invisible, those living with pain report feeling stigmatised by co-
          workers, friends, family, and the medical profession.22

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NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
People can’t access pain services
     Up to 80% of people living with chronic pain are missing out on treatment that could improve
     their health, quality of life and workforce participation23 including access to pain specialists and
     one-stop pain clinics that offer interdisciplinary care, but also services at the primary care level.

     Most public and private pain clinics that offer interdisciplinary care in one physical location are
     predominately located in the major capital cities.24 Specialist Pain Medicine Physicians (SPMPs)
     are concentrated in the major cities of NSW, South Australia, Victoria, Western Australia and
     Queensland. There is no pain specialist in the NT.
     There are only seven paediatric pain clinics in Australia, with none in Tasmania, the ACT or
     the NT.

     The physiotherapy workforce, integral to interdisciplinary pain management, is also not evenly
     distributed and there is a shortage in rural and remote areas.25

     There is low awareness of pain and its treatment options
     Awareness of pain and pain management is also low among health practitioners and consumers.
     For example, clinicians’ beliefs and practice behaviours relating to lower back pain were found
     to be discordant with contemporary evidence on the most effective treatments.26

     Challenging beliefs about pain and its treatment is critical to build resilience in consumers
     and producing more effective health outcomes. Explaining the neuroscience of pain has been
     shown to improve pain and movement, and reduce fear avoidance.27

     Over the last 20 years between 1996 and 2016, research aimed at understanding pain has
     attracted $133 million. In comparison, between 2012 and 2017, cardiovascular disease has
     received $687 million of research funding.28

     There is a reliance on pain medications
     A 30% increase in opioid prescribing occurred between 2009 and 2014.29

     The Australian Commission on Safety and Quality in Health Care revealed opioid medications
     were being prescribed in some regional areas at 10 times the rate of other areas and they
     recommend action on pain and opioid management in rural areas.30

     Rising numbers of Australians are dying from accidentally overdosing on a prescription drug.
     The rate of opioid induced deaths almost doubled in 10 years, from 3.8 to 6.6 deaths per
     100,000 Australians between 2007 and 2016 and more than three-quarters of all drug deaths
     involved pharmaceutical opioids. There is growing interest in ensuring the safe and effective
     use of medications.

     Specific and significant recent changes were made to address these issues, including the
     upscheduling of codeine and the decision to progress real time prescription monitoring.
     However, there is more that can be done to address over-reliance on pain medications and
     its negative consequences.

                                                                     6
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
WHAT CONSUMERS TOLD US

“   ‘There have been some small improvements (since 2010)-
    however there are still lengthy delays in accessing pain services’

    ‘People with chronic pain just wish to live a life free of pain, or
    lessened pain. Education needs to be improved in this area,
    instead of the constant stigma across all of the community’

    ‘I want to become a productive member of my community again.
    I hate living under the poverty line. And I hate having no self-
    esteem because I don’t feel I contribute’

    ‘We need public awareness campaigns...not all pain is not
    treatable and curable… people need to be empowered and
    trusted to manage their own pain’

     ‘Our voices need to be heard, we are not being listened to by
    decision-makers, but we need more support to tell our stories –
    resources will help us’

    ‘Carers, especially young carers of people living with pain need to
    be better supported and heard so they can continue to care’
WHAT WE WANT TO ACHIEVE
         – VISION FOR 2021
OVERARCHING GOAL: Improved quality of life for people living with pain
and the pain burden for individuals and the community is minimised

 KEY GOALS                  OBJECTIVES

 GOAL 1:
 People living with pain
                            >> Pain is understood as key public policy priority by decision-makers.
                            >> Pain is included in other key national health and economic strategies,
                               policies, plans and frameworks, particularly chronic conditions
 are recognised as a           frameworks, being brought forward by governments or health and
 national and public           medical groups.
 health priority
                            >> Future pain policy is underpinned by frameworks that ensure actions
                               are evaluated and that pain is included in future priority setting.

 GOAL 2:
 Consumers, their
                            >> Consumers will have confidence and knowledge to seek out best practice
                               advice and treatment and to be active participants in their remedial
                               journey, which will build resilience in managing chronic pain.
 carers and the wider       >> Consumers will be supported by the community and by the economic
 community are                 and regulatory environment, and stigma will be reduced.
 more empowered
                            >> Community understanding of chronic pain, the safe and effective use
 knowledgeable
                               of pain medications and best practice management including active
 and supported to
                               non-pharmacological management is enhanced.
 understand and
 manage pain                >> Accessible and user-friendly information and support programs are
                               available to all consumers, carers and families, regardless of background
                               and location.

 GOAL 3:
 Health practitioners
                            >> All health practitioners and carers are trained in pain management to
                               improve conceptualisation of pain and underpin care plans and practices.
                            >> Systems and guidelines are established that ensure pain is adequately
 are well-informed and         managed across health and care systems.
 skilled on best practice
 evidence-based care
 and are supported to
 deliver this care

                                                                       8
         NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 4:
      People living with pain
                                    >> Patient-centred interdisciplinary assessment and pain care and support
                                       services that takes into the account the health and wellbeing of the
                                       whole person is offered in all locations and made available through
      have timely access               delivery and funding models at the primary care level wherever possible
      to consumer-centred           >> Opportunities for communication between health practitioners and
      best practice pain               patients about pain assessment and care plans are possible
      management including
                                    >> Technology is harnessed to expand access to multiple services including
      self-management, early
                                       primary care services and pain specialists.
      intervention strategies and
      interdisciplinary care and    >> Through targeted interventions, specific population groups are not
      support                          excluded from best practice services or information about pain
                                       management.
                                    >> The reliance on prescribing pain medications for chronic pain is
                                       minimised.

      GOAL 5:
      Outcomes in pain
                                    >> All pain services can participate in independent evaluation.
                                    >> Pain services are patient-centred and offer best practice care that keeps
                                       pace with innovation and the latest clinical evidence base.
      management are                >> Quality use of medicines is evaluated and benchmarked across the
      improved and evaluated           health system.
      on an ongoing basis to        >> Pharmacological and non-pharmacological pain management
      ensure consumer-centred          interventions are better understood.
      pain services are provided    >> The role of primary and tertiary level health services in pain management
      that are best practice and       are each understood.
      keep pace with innovation

      GOAL 6:
      Knowledge of pain
                                    >> Pain research at a national level through a network of pain research
                                       specialists.
                                    >> Identification of gaps in knowledge and practice in achieving the Action
      flourishes and is                Plan goals
      communicated to               >> Translation and dissemination of research into practice and policy
      health practitioners and      >> Research findings are communicated to the community.
      consumers through a
      national research strategy

      GOAL 7:
      Chronic pain is minimised
                                    >> Best practice acute and sub-acute diagnostic and treatment strategies
                                       are understood and provided across health settings.
                                    >> Pain policy is linked to chronic disease frameworks.
      through prevention            >> Greater support is provided to people returning to work following an
      and early intervention           injury, surgery or diagnosis of a pain condition.
      strategies

      GOAL 8:
      People living with pain are
                                    >> Greater support is provided to people returning to work following an
                                       injury, surgery or diagnosis of a pain condition.

      supported to participate in
      work and community

                                                              9
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
PARTNERSHIPS AND ENABLERS
The delivery of this Action Plan will require commitment and priority setting at all levels of government
and by key partners including not-for profit organisations, researchers, the private sector, individuals and
communities.

Real improvements in awareness of pain management will require whole-of-community engagement,
while the improvement in access to interdisciplinary services will require strong partnerships between
governments, health practitioners, primary health networks and consumers.

In 2010, Australia was the first country in the world to develop a national framework for pain, as 200
delegates gathered to develop a National Pain Strategy which provides a blueprint for the treatment
and management of acute, chronic and cancer pain. Pain medicine is an independent medical speciality;
the importance of interdisciplinary care is recognised; and our education and research programs are
internationally recognised. We must harness the opportunity of our collective local knowledge and expertise,
and implement effective initiatives that are evidence based, reflect current national guidelines, and align
with key national health initiatives such as MyHealth Record.

                                                                                Figure 1: KEY PARTNERSHIPS
                                                                                AND PARTICIPANTS TO DELIVER
                                                                                ACTION PLAN

                                         Knowledgable
                                         communities
                    Empowered
                   and supported                               Skilled health
                     carers and                                practitioners
                      families

         Capable                                                               Active health
       community                                                               professional
         support                                                                bodies and
          groups                                                                 colleges

                                   Empowered
                                   consumers                                      Priority
          Active                                                                setting and
     advocacy and                                                              actions led by
      influence by                                                              goverments
       peak group                                                                   with
                                                                                consumers

                    Supportive                                    Integrated
                    workplaces                                     Priimary
                   and insurance                                    Health
                     systems              Coordinated              Networks
                                          research and
                                           knowledge
                                              base

                                                                        10
      NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
INTERDISCIPLINARY
    PAIN MANAGEMENT
     There is a growing consensus and research base that
     supports the importance of coordinated interdisciplinary               Prescribing Wellness: Comprehensive
     management strategies to address pain. This approach                   pain management outside specialist
     is endorsed in the 2010 National Pain Strategy and by the              services (Holliday, Hayes, Jones, Harris
     International Association for the Study of Pain. This requires         and Nicholas, 2018)
     coordinated interdisciplinary assessment and management
     involving, at a minimum, physical, psychological, and social/          Physical – Establishing safe, consistent
     environmental risk factors in each patient.31                          patterns of movement can calm nervous
                                                                            system arousal and reduce central
     This is known as the biopsychosocial (or more recently                 sensitisation. This can be facilitated by
     sociopsychobiomedical) prism from which to view a complex              negotiating measurable, achievable
     health issue like pain from different angles. Treatment is not         treatment goals that reflect meaningful
     ‘one-size-fits-all’ but needs to be person-specific.                   and enjoyable activities, not just pain
                                                                            relief.
     A multidisciplinary team is likely to include a physician,
     clinical psychologist or psychiatrist, physiotherapist or other        Psychological – It is important to explore
     allied health professional such as occupational therapist,             any cognitive, behavioural and affective
     pharmacist and may include a dietician and social worker               factors contributing to pain, to recognise
     or counsellor.32 Nurses are also an important part of the              and modify unhelpful conditions.
     multidisciplinary team. A critical step in the development of
     an effective pain management plan is face-to-face discussion           Social engagement – People typically feel
     by consumers and team members on the relative importance               safe when socially well connected and
     of factors identified by them in the patient, and ongoing              under threat when isolated. Meaningful
     communication between team members and patients on                     positive engagement at work or home is
     the progress of the pain management strategy.                          crucial for pain recovery.
     Interdisciplinary pain management can be provided in                   Nutrition – Obesity is frequently
     specialist pain clinics. However, the National Pain Strategy           associated with chronic pain. Simple
     recommends that in most cases, people living with pain                 nutritional interventions for pain are
     can be best supported in primary care, with only a small               recommended.
     proportion requiring tertiary care.33

     Evidence to support the importance of interdisciplinary
     approaches is growing. Patient outcomes of 60 pain services
     in Australia and New Zealand that apply interdisciplinary
     approaches are showing significant reductions in medication                         Specialist Pain Medicine
     use and 75% of patients improved mental health or reduced                         Physicians accessible across
     interference in the quality of life caused by their pain.34                               pain sector

                                                                                           Funding models that
            Empowered consumers and
                                                                                         underpin affordable and
                    carers
                                                                                        coordinated health services

              Integrated care including                 Interdisciplinary
                                                       pain management                     Education, training
              electronic health systems
                                                                                          and support for health
                                                                                              professionals
             Telehealth to link specialist
                      services
                                                   Figure 2: ENABLERS FOR
                                                   INTERDISIPLINARY PAIN
                                                   MANAGEMENT

                                                                   11
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS
   2018-2021 – THE KEY PRIORITIES

                              Establish a National Pain Leadership Group

                              COAG Health Ministers to endorse the Action Plan

                              Community awareness campaign

                              Interactive national website and app to provide a ‘one stop
                              shop’ for information and resources

                              Include pain management in accreditation standards for
                              health providers

          THE                 Establish a National Institute of Pain Research
  FOLLOWING
     ACTIONS                  Provide an overarching education strategy for health
    EMERGED                   practitioners

   AS THE KEY
                              Map and review pain services by location and needs analysis
   PRIORITIES
  DURING THE                  Recognise pain as a complex condition in its own right for
CONSULTATION                  the purposes of MBS rebates

     PROCESS
                              Determine a single validated asessment and monitoring tool
                              for chronic pain

                          These high priority actions have been guided by principles of
                          assessment including ensuring they:

                          •   Have the greatest positive impact for consumers
                          •   Will be the most effective investment of efforts and resources
                          •   Ensure consumers and carers are given a strong voice
                          •   Are evidence based and meet principles of best practice pain
                              management
                          •   Can be widely supported and endorsed
                          •   Deliver on the goals of the National Pain Strategy or meet a
                              newly identified goal
                          •   Meet unmet need
                          •   Have the support of key enablers

                                                             12
   NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS

     2018-2021
     BETTER COORDINATION AND LEADERSHIP

     GOAL 1
                                          People living with pain are recognised as a national and public health
                                          priority

         ACTION ITEMS (how this will be achieved):                CONTEXT

     1.1 The formation and development of a National             Pain remains one of the most misunderstood and
            Pain Leadership Group (NPLG) to inform,              neglected health issues, despite at least one in five
            support and lead and govern advice provided          Australians living with chronic pain. Pain has significant
            to the Minister for Health and COAG Health           social and economic impacts and costs.
            Ministers on the delivery and ongoing evaluation
            of the Action Plan and the national adoption and     To date, pain has not been a key consideration in
            delivery of the 2010 National Pain Strategy as the   national health policy strategies and frameworks.
            key overarching document. It will:                   For example, the Aboriginal and Torres Strait Islander
                                                                 Health Plan 2013-2023 or the Fifth National Mental
     •     identify partnerships, frameworks and resources       Health Plan are silent on pain, yet it is a key priority to
           to deliver the National Action Plan and realise the   address chronic conditions as outlined in the National
           goals of the 2010 National Pain Strategy over the     Strategic Framework or Chronic Conditions that has
           longer term;                                          been agreed by Australian Health Ministers in 2017.

     •     inform future responses to contemporary               A focus on pain by the Australian Government
           challenges facing the pain sector and consumers       will underpin efforts to reduce the burden of non-
           living with pain; and                                 communicable disease through the World Health
                                                                 Organisation Global Action Plan to Prevent and
     •     be underpinned and directly informed by a             Control Non-Communicable Dieses 2013-2020. Pain
           Consumer Reference Group that recognises              treatment is regarded a human right by the World
           consumers as key partners and involves                Medical Association.35
           representatives from across Australia and reflects
           a consumer-led strategy.                              Pain is a critical consideration to ensure Australians
                                                                 live healthier lives through effective prevention and
     1.2 COAG Health Ministers to endorse the Action             coordinated management of chronic conditions:
            Plan to lead and govern the delivery of the goals
                                                                 the leading cause of illness, disability and death in
            of the 2010 National Pain Strategy.
                                                                 Australia. Strategic and ongoing national action is
                                                                 required to recognise the complexity and ubiquity of
     1.3 Supporting Painaustralia as the national peak           pain in our community and reduce its impact.
            pain advocacy body to advocate to decision-
            makers and raise awareness across the
            community to improve quality of life for people
            living with pain, their carers and families and
            to minimise the social and economic burden of
            pain on individuals and the community, as well
            as convene the NPLG to deliver constructive,
            unified advice.

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NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 2
                                     Consumers, their carers and the wider community are more
                                     empowered, knowledgeable and supported to understand and
                                     manage pain

    ACTION ITEMS (how this will be achieved):                   direction and guidance on emerging treatments,
                                                                such as medicinal cannabis for chronic pain that
2.1 Fund and implement a community awareness                    disseminates recent TGA guidance and better
       campaign on pain and pain management                     meets consumer expectations. Such guidance
       treatment and support options with materials             must be evidence-based, and further research
       and messages developed in partnership with               is needed to improve the evidence base for
       consumers, health professionals and community            some emerging treatments, including the use of
       groups.                                                  medicinal cannabis for chronic non-cancer pain.

       It will include:
                                                            2.2 Development and dissemination of a consumer
                                                                 handbook and smartphone application for
•     Vertically integrated communication strategies             people living with chronic pain or those who have
      that ensure accessible and diverse communication           received a recent diagnosis of a pain condition. It
      through various media platforms including TV,              will provide a definitive and best practice guide
      radio, social media, print media and clinic-based          for people with chronic pain to improve health
      media to share messages and reach out to a wide            literacy, questions to ask health providers, where
      community audience.                                        to get help and self-management strategies. It will
                                                                 support them to navigate health pathways on their
•     Specific strategies to communicate to Aboriginal           remedial journey to be active participants in their
      and Torres Strait Islander Australians, Culturally         healthcare. It will be available as a smartphone
      and Linguistically Diverse (CALD) Australians and          app in plain English, multiple languages and in
      people accessing community and residential aged            electronic and print form. It will be provided at
      care services.                                             point of care and through other channels.

•     Specific messaging and resources to be developed
      on ‘living with pain’– a complex message but
                                                            2.3 Interactive and comprehensive national website
                                                                 and app for easy access to the website for
      powerful opportunity to build resilience for people
                                                                 consumers, carers and health practitioners – a ‘one
      managing pain as a chronic condition.
                                                                 stop shop’ providing a gateway for best practice
                                                                 evidence-based pain education and information in
•     Storybooks, consumer vignettes and videos will be
                                                                 Australia.
      used to enhance understanding of the consumer
      lived experience.
                                                                 It will harness and support a wide array of emerging
•     Care pathway summaries and guidance documents              online tools and resources including:
      improve understanding by consumers and health         •   Information about pain and best practice treatment
      practitioners of ‘pain across the lifespan’.              options.

•     Materials to guide and raise awareness of the         •   Up to date information about where to seek help.
      role of carers, including young carers of people
      with chronic pain, that taps into existing carer      •   Self-check tools to help consumers screen for risk
      resources, but are pain-specific.                         factors.

•     Targeted communication strategies to highlight        •   Real life stories from consumers about how they
      the latest evidence and guidelines for specific           manage their pain and remain engaged in life and work.
      conditions e.g. lower back pain.
                                                            •   Information for health professionals, courses and
•     Targeted communication strategy on the quality            training opportunities and a community of practice.
      use of medicines with a pain focus to provide clear
                                                            •   An online forum to connect consumers, carers and
                                                                other people affected by pain, administered by trained
                                                                moderators.

                                                            •   A directory of courses on pain management for health
                                                                practitioners.

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           NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
2.4 Develop or collate existing national standardised
          patient information and guidance into a               2.10 Develop a peer to peer support network,
          document for distribution on discharge from                   facilitated by trained and accredited
          hospital on safe and effective use of pain                    providers. Peer supporters are identified
          medications, and on non-pharmacological                       and trained to support other people living
          management of pain, required to be delivered                  with pain, particularly those who have recently
          by hospital standards.                                        had a chronic pain condition diagnosis. A trial
                                                                        of this initiative could be developed in a local
     2.5 Provide consumers with access to effective                     community with an existing peer to peer
          resources that enable them to communicate                     network for wider adoption.
          and navigate their pain experience between
          health providers, workplaces, carers or family        2.11 Partnerships between pain groups to coordinate
          to reduce stigma, the need to repeat their story              a funded national Pain Champion Advocacy
          and better self-manage pain. Examples include                 Network that includes a network of speakers
          ‘PainTrain’ and pain diaries. These tools also                that can inspire action across communities
          support health providers to better coordinate                 and develop resources to support consumer
          care.                                                         advocacy such as a self-advocacy kit.

     2.6 Development of an education program and                 CONTEXT
          resources for schools, including building on the
          findings of the Hunter New England Population         There is low awareness of pain and its treatment
          Health Children Initiative which is currently         options in the community.
          conducting consultations to define the best
          approach for integrating pain education in the        People living with pain commonly report stigma and
          school setting.                                       misunderstanding of their condition in the community,
                                                                workplace and by health practitioners.
     2.7 Explore the feasibility of expanded activities for
                                                                Increasing community understanding of best practice
          the ‘Brain Bus’ children’s education program.
                                                                pain treatments will more effectively align professional
          ‘The Brain Bus’ provides an opportunity for
                                                                and consumer conversations on pain management.
          school age children to learn about pain and the
                                                                Changing common beliefs about pain and its treatment
          science behind it, through an interactive program
                                                                is also critical to achieve better outcomes from pain
          that draws on the principles of neuroscience
                                                                management.
          with the use of illusions and virtual reality. The
          program ignites interest in science while laying
                                                                Consumers need greater confidence to seek out
          the foundations to help children understand their
                                                                best practice treatment and be active participants in
          own pain experiences, promoting prevention and
                                                                their remedial journey as well as building resilience
          early intervention of chronic pain in our future
                                                                in managing chronic pain.
          generations.
                                                                Currently there are a range of overlapping resources
     2.8 National information and support telephone             and websites in place which consumers can access
          line that is resourced by accredited and trained      to support them in their pain management. The
          staff and volunteers. This could draw on existing     development of a national website and resource
          models operated nationally such as the Butterfly      suite should be cognisant of these existing resources,
          Foundation, Lifeline and National Health Direct       and seek to curate existing material and provide
          phone services.                                       a single portal to enable sharing of and access to
                                                                evidence-based information and resources, rather
     2.9 Small   grants for community pain support              than duplicating existing information and resources.
          groups that are not-for-profit, charity groups
          providing essential support services for people       It will be important that consumer-focused initiatives
          with chronic pain, their family and carers, linking   are inclusive of the needs of specific groups including
          them to activities, events, discussion forums         Aboriginal and Torres Strait Islander peoples, people
          and support networks. A small grants program          from culturally and linguistically diverse backgrounds,
          would enable these organisations to increase          people from rural and remote areas, older Australians,
          their capacity on the ground. This could be           people with dementia, children and young people,
          coordinated by Painaustralia.                         and other relevant groups.

                                                                   15
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS

2018-2021
BETTER CARE

GOAL 3
                                    Health practitioners are well-informed on best practice evidence-
                                    based assessment and care and supported to deliver this care

 ACTION ITEMS (how this will be achieved):                 3.4 Review of existing decision plan support
                                                               systems available, including medical software
3.1 Develop an overarching education strategy                  that is readily available, dose calculators,
    to promote evidence-based pain management                  treatment protocols and plans, tapering or
    education across health practitioner disciplines,          stopping opioid treatments, advice for health
    through undergraduate, postgraduate and                    practitioners and online tools.
    continuing education. This should include,
    among other things, standardisation among              3.5 Expand training opportunities for health
    universities in their teaching curricula with              practitioners in pain management – licencing
    regard to pain management; and a focus on                  for an expanded number of health practitioners
    value based healthcare. The development of                 to complete training such as the Faculty of Pain
    this strategy should also take into account the            Medicine Better Pain Management Program, or
    National Registration and Accreditation System             greater access for more practitioners to have
    review recommendations; and self-regulated                 access to selected modules of relevance. Provide
    allied health professionals should be among the            short courses to expand general knowledge in
    health practitioner disciplines engaged in the             primary care.
    education strategy.
                                                           3.6 Develop    a six-month workplace-based
3.2 Develop a broad national approach to assessment            certificate in clinical pain medicine for GPs
    and monitoring, involving an integrated suite of           or other interested health professionals to
    validated assessment and monitoring tools                  complete.
    for chronic pain use by GPs, practice nurses
    etc. across Australia, that combines existing
    best practice assessment techniques and the            3.7 Creation  of a public database of health
    sociopsychobiomedical approach. This includes              practitioners who have completed pain
    consideration of assessment and monitoring                 management training courses (on interactive
    tools for priority population groups, e.g. CALD,           website).
    Indigenous Australians, children and young
    people.                                                3.8 MBS item for pain education by medical, nursing
                                                               or allied health practitioners, like the diabetes
3.3 Develop national clinical guidelines on pain and           educator model which is already funded under
    support for health providers to provide best               the MBS.
    practice pain management as outlined in the
    National Pain Strategy. Available in accessible        3.9 MBS item for GPs with specialist qualification
    format through a handbook, smartphone                      in pain medicine as a fellow of the FPM.
    application and other communication strategies,
    for provision to all health services and health
    practitioners in Australia. This will include models
    of care and pain assessment.

                                                                            16
         NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
3.10 Specific materials and engagement activities           CONTEXT
           to provide prescribers with guidance on
           the quality use of medications. This can             Pain remains one of the most misunderstood and
           be developed between professional bodies,            neglected health issues, despite at least one in five
           peak groups and the Chief Medical Officer. This      Australians living with chronic pain. Pain has significant
           includes ensuring existing guidance is being         social and economic impacts and costs.
           provided, identification of the barriers to uptake
           of guidance and provision of engagement              To date, pain has not been a key consideration in
           activities such as webinars and workshops in         national health policy strategies and frameworks.
           place.                                               For example, the Aboriginal and Torres Strait Islander
                                                                Health Plan 2013-2023 or the Fifth National Mental
                                                                Health Plan are silent on pain, yet it clearly as a key
     3.11 Develop    a ‘train the trainer’ model for            priority to address chronic conditions as outlined in the
           Residential Aged Care providers and                  National Strategic Framework or Chronic Conditions
           distribution and dissemination of the                that has been agreed by Australian Health Ministers
           existing guidance and management strategy            in 2017.
           documents.
                                                                A focus on pain by the Australian Government
     3.12 Adopt    the guideline for treatment of               will underpin efforts to reduce the burden of non-
           persistent pain in children, as per the WHO          communicable disease through the World Health
           Global Action Plan for the Prevention and            Organisation Global Action Plan to Prevent and
           Control of Non-Communicable Diseases 2013-           Control Non-Communicable Dieses 2013-2020. Pain
           2020.                                                treatment is regarded a human right by the World
                                                                Medical Association.

                                                                Pain is a critical consideration to ensure Australians
                                                                live healthier lives through effective prevention and
                                                                coordinated management of chronic conditions:
                                                                the leading cause of illness, disability and death in
                                                                Australia. Strategic and ongoing national action is
                                                                required to recognise the complexity and ubiquity of
                                                                pain in our community and reduce its impact.

                                                                   17
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 4
                                      People living with pain have timely access to consumer-centred
                                      best practice pain management including self-management, early
                                      intervention strategies and interdisciplinary care and support

    ACTION ITEMS (how this will be achieved):                     coordination of services between general practice
                                                                  and allied health and referral pathways. Some
4.1 Map and review pain services by location in                   PHNs are also undertaking activities to address
       collaboration with States and Territories, Primary         the needs of people with persistent pain in their
       Health Networks and consumers to identify areas            communities through expert education programs
       of most need and those with limited services. This         and individual case management, indicating
       will capture areas with waiting times of 18 months         potential for PHNs more broadly to play a key
       and over, and lack of capacity in specific regions         role in this area.
       to meet demand. This mapping will include a
       specific focus on paediatric pain services.            4.5 Expand and offer a telehealth pain services
                                                                  program to regional Australia as part of the
       This will inform:                                          telehealth program. Also expanded Medicare
                                                                  item 2820 to support telehealth variations
•     Future investments by State and Territory
                                                                  like pain education and involvement of
      Governments in interdisciplinary community-
                                                                  multidisciplinary teams.
      based pain services in areas of most need.

•     Investments by all governments in telehealth,           4.6 Extend access to Medicare Item 132 to all
      health practitioner training and other initiatives.         specialist pain medicine specialists (SPMPs)
                                                                  – currently only available to FRACP or FAFRM
•     Investments in services for specific groups                 qualified specialists.
      including such as children and young people.

4.2 Recognise pain as a complex condition in                  4.7 Allow Specialist Pain Management Physicians
                                                                  to generate and extend interdisciplinary care
       its own right for the purposes of Medicare-
                                                                  plans through Medicare and eliminate the risk of
       supported pain management plan – with
                                                                  non-referral for a Chronic Disease Management
       access to 10 individual services and 10 group
                                                                  Plan that could significantly improve consumer
       services per calendar year based on clinical
                                                                  outcomes.
       discretion (a similar level of support as the Better
       Access Mental Health Care program) including
       case conference attendant by a multidisciplinary       4.8 The national rollout of information portals
       team, seven telehealth services as part of the             that support clinicians to assess and manage
       overall plan and specific supports like mental             patient care through primary, secondary
       health services and allied health services.                and community care. Examples include
                                                                  ‘HealthPathways’ which are available to varying
                                                                  degrees across PHNs. This will underpin efforts
4.3 Provide an MBS item for chronic pain group                    to develop ‘care maps’ and models of care that
       programs that are similar to those provided for
                                                                  support interdisciplinary pain management in
       mental health.
                                                                  all PHNs so all members of a health care team
                                                                  whether they are in primary or secondary settings
4.4 Review existing models of ‘mini pain programs’                can work effectively together in the care and
       that can be extended in regional and/or rural              management of an individual, and referral to
       communities to provide coordinated care                    tertiary settings where needed.
       packages and increase capacity of health
       practitioners. Existing models include the Pain
       Revolution Local Pain Educator (LPE) model and
       other models in South Australia and Western
       Australia that embed capacity in regional and
       rural communities in pain management and
       education. This involves health practitioners
       enrolling in pain courses and then becoming
       pain educators and mentors once training is
       complete (‘train the trainer’), as well as improving

                                                                               18
           NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
4.9    Develop best practice ‘models of care’ to           Most pain specialists and pain services are in
            provide pathways for pain management in all         metropolitan areas and to date, access to telehealth
            communities, even those without pain services,      has been limited. The geographical variation in opioid
            and in settings where new models for pain           prescribing highlights the reliance on these treatments
            management are required including palliative        in regional areas in lieu of alternative treatment options
            care, residential aged care, and referrals to       that are not available. Fifty per cent of Australians do
            addiction specialists. These will be developed      not have private health insurance and cannot access
            by a Working Group of experts that reports          private services and other treatments, and access to
            to the National Pain Leadership Group and           public services is limited.
            will include examples where State or Territory
            governments or PHNs have:                           There are significant barriers to accessing coordinated
                                                                pain management at the primary care level, and it
     •    Developed ‘care maps’ to support interdisciplinary    is unacceptable that people with chronic pain are
          pain management for all members of a health           required to have another chronic condition to access
          care team and tools such as ‘HealthPathways’.         a Medicare GP Management Plan.

     •    Embedded self-management and empowerment              Without action, the translation of interdisciplinary
          strategies for consumers in their model of care.      chronic pain assessment and care into time-poor
                                                                primary care settings will remain out of reach. Yet
                                                                embedding this in primary care is vital to improve
     4.10 Establishment of clinical pain liaison roles          health outcomes for people living with pain.
            that utilises the skills of GPs, nurses or allied
            health practitioners to identify chronic pain       In ensuring access to best practice pain management
            early in primary care, support education of         services, it will be important to consider the needs
            local practitioners and smooth transitions and      of specific groups including Aboriginal and Torres
            communications across services. For example,        Strait Islander peoples, people from culturally and
            NSW is currently rolling out a program of           linguistically diverse backgrounds, people from rural
            this nature – the roles are flexibly employed       and remote areas, older Australians, people with
            depending on community need e.g. indigenous         dementia, children and young people, and other
            health, age care. The roles are jointly governed    relevant groups.
            by Local Health Districts and PHNs.
                                                                It will also be critical that access to best practice pain
         CONTEXT                                                management across a range of settings is considered,
                                                                including hospitals (noting opioid stewardship by
     Many Australians with pain cannot access best practice     hospitals is an issue that requires specific focus),
     pain management due to:                                    residential aged care facilities, and prisons.
     •    cost

     •    location

     •    limited consumer knowledge and confidence

     •    lack of appropriately skilled health professionals

     •    failure to prioritise pain and pain management
          in health information and services for specific
          population groups

     •    failure of health funding and systems to support
          access to coordinated multiple services.

                                                                   19
NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS

2018-2021
BETTER IMPLEMENTATION

GOAL 5
                                  Outcomes in pain management are improved and evaluated on an
                                  ongoing basis to ensure consumer-centred pain services are provided
                                  that are best practice and keep pace with innovation

 ACTION ITEMS (how this will be achieved):                CONTEXT

5.1 Include pain assessment, reassessment and            Pain medicine is an evolving medical speciality, and
    management principles in accreditation standards     since the 2010 National Pain Strategy, some progress
    for hospitals, residential aged care facilities      has been made in some areas of pain management
    and community regulated by the Australian            and service delivery.
    Commission on Safety and Quality in Health
    Care (ACSQHC).                                       The Australasian benchmarking system Electronic
                                                         Persistent Pain Outcomes Collaboration (ePPOC) is
                                                         providing a vital insight into pain services, but not
5.2 Secure the future funding of the Electronic          all services participate due to funding contracts.
    Persistent Pain Outcomes Collaboration               Consumer engagement in the design and delivery of
    (ePPOC). This includes developing a model            services also requires further development.
    for outcomes measurement developed at the
    primary care level and ensuring all public pain      Initiatives to evaluate and improve outcomes in pain
    services can be funded to participate.               management should be inclusive of specific groups
                                                         including Aboriginal and Torres Strait Islander peoples,
5.3 Embed consumer perspectives in service               people from culturally and linguistically diverse
    design and quality improvement at the service        backgrounds, people from rural and remote areas,
    level, such as the Stanford ‘CHOIR’ Pain model.      older Australians, people with dementia, children and
                                                         young people, and other relevant groups.
5.4 Evaluation of the effectiveness of existing          Addressing the needs of people with cognitive
    patient resources for pain management                impairment, including dementia, is particularly
    with a view to making them widely available          important. More than sixty per cent of the people
    in the Australian context e.g. pain diaries, self-   living with dementia who are referred to the Australian
    management strategies.                               Government-funded Severe Behaviour Response
                                                         Teams have unidentified undiagnosed pain. People
5.5 Strengthen     requirements for pain                 with cognitive impairment are often unable to say
    management within aged care funding and              they are in pain or identify the site of pain. Their pain
    accreditation systems                                may be expressed through changes in behaviour,
                                                         such as confusion, distress, restlessness, irritability or
                                                         aggression. Appropriate pain management may reduce
                                                         the inappropriate use of antipsychotic medication.
                                                         Hospital and aged care staff in particular should have
                                                         the clinical skills in pain assessment and management
                                                         for people with cognitive impairment. The knowledge
                                                         and experience of families and carers in managing a
                                                         person’s pain should also be sought.

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        NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
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