NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT 2019 - Pain Australia
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NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT 2019
© Commonwealth of Australia as represented • include a reference to this publication by the Department of Health 2019 and where, practicable, the relevant page National Strategic Action Plan for Pain numbers; Management Creative Commons Licence • make it clear that you have permission to use the material under the Creative This publication is licensed under the Creative Commons Attribution 4.0 International Commons Attribution 4.0 International Public Public License; License available from https://creativecommons. org/licenses/by/4.0/legalcode (“Licence”). You • make it clear whether or not you have must read and understand the Licence before changed the material used from this using any material from this publication. publication; Restrictions • include a copyright notice in relation to the material used. In the case of no change to The Licence may not give you all the permissions the material, the words “© Commonwealth necessary for your intended use. For example, of Australia (Department of Health) 2019” other rights (such as publicity, privacy and moral may be used. In the case where the material rights) may limit how you use the material found has been changed or adapted, the words: in this publication. “Based on Commonwealth of Australia (Department of Health) material” may be The Licence does not cover, and there is no used; and permission given for, use of any of the following material found in this publication: • do not suggest that the Department of Health endorses you or your use of the • the Commonwealth Coat of Arms. (by way material. of information, the terms under which the Coat of Arms may be used can be found Enquiries on the Department of Prime Minister and Cabinet website http://www.dpmc.gov.au/ Enquiries regarding any other use of this government/commonwealth-coat-arms); publication should be addressed to the Branch Manager, Communication Branch, Department • any logos and trademarks; of Health, GPO Box 9848, Canberra ACT 2601, or via e-mail to copyright@health.gov.au • any photographs and images; “Important: This transmission is intended only • any signatures; and for the use of the addressee and may contain confidential or legally privileged information. • any material belonging to third parties. If you are not the intended recipient, you are notified that any use or dissemination of this Attribution communication is strictly prohibited. If you receive this transmission in error please notify Without limiting your obligations under the the author immediately and delete all copies of Licence, the Department of Health requests this transmission.” that you attribute this publication in your work. Any reasonable form of words may be used provided that you: The National Strategic Action Plan for Pain Management 2019 was developed by Painaustralia with funding from the Australian Government Department of Health.
CONTENTS ABOUT THE PLAN 1 ACKNOWLEDGEMENTS 2 HOW PAIN IS DEFINED 3 WHY ACTION IS NEEDED – AUSTRALIA’S PAIN BURDEN 4 WHAT WE WANT TO ACHIEVE: VISION 2021 8 PARTNERSHIPS AND ENABLERS 10 INTERDISCIPLINARY PAIN MANAGEMENT 11 KEY GOALS AND ACTIONS 2018-2021 – THE ACTION PLAN 12 REFERENCES 24
ABOUT THE PLAN For many people, pain is a temporary discomfort the National Pain Strategy in 2010 to provide a associated with injury, illness or post-surgery. blueprint for best practice pain management. However, when pain becomes chronic (persistent or recurrent for 3 months of longer), it has a deep The Action Plan also leverages and builds on key impact on quality of life as people living with pain activities taking place at a state and territory level become excluded from community, work or and through primary health networks (PHNs) education. that have increased community awareness of pain management, integrated services, provided With at least one in five Australians living education and training for health practitioners and experiencing chronic pain today, it is an escalating invested in pain services. The Action Plan also seeks health issue and carries a significant economic to foster innovation in service design and delivery. burden in lost productivity and health costs. Addressing pain is in the interests of all Australians. National leadership and action on pain is critical to ensure Australians live healthier lives through Yet many people living with pain cannot get access effective prevention and coordinated management to best practice pain management, often due to of chronic conditions: the leading cause of illness, cost, location or low awareness of treatment disability and death in Australia. The Action options, and medication is playing an increasing Plan aligns to the goals of the National Strategic role. To date, pain has not been a national health Framework for Chronic Conditions published policy priority, despite its significant impact on by Australian Health Ministers Advisory Council people’s lives. (AHMAC) in 2017 and will underpin Australia’s obligations as a member state of the World Health The Australian Government announced support Organisation and its efforts through the Global for the development of the first ever National Action Plan for Prevention and Control of Non- Strategic Action Plan for Pain Management (the Communicable Diseases 2013-2020. Action Plan) in May 2018. The Action Plan sets out the key priority actions to improve access to, and The Action Plan comes at a critical time: pain knowledge of best practice pain management, in management finds itself at the intersection of key the next three years. global public health challenges of the 21st century including the safe and effective use of medications Painaustralia, the national peak body working to and the urgent need to stem the rise of chronic improve the quality of life for people living with pain, conditions. has consulted widely with consumers and consumer groups, clinicians, allied health practitioners, key The Action Plan will provide a key step towards health groups, researchers, experts and the whole a national and holistic policy framework that will community to understand what people think the support consumers, health practitioners and the key priorities are for the Action Plan. wider community to improve the quality of life for people living with pain, their families and carers These consultations have confirmed the need and minimise its impact. for action and nationally coordinated policy setting. Greater awareness of pain and pain management, more timely access to consumer- centred interdisciplinary services and research to underpin greater knowledge of pain as well as new treatments have emerged as key priorities, as has harnessing leaps in research, clinical evidence and technology. The Action Plan builds on the strong foundation and advocacy of Australia’s pain sector which developed 1 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
ACKNOWLEDGEMENTS Painaustralia wishes to acknowledge the support of Hon Greg Hunt MP, Minister for Health and the Department of Health in funding and supporting the development of this Action Plan. We also acknowledge the many organisations and individuals that have contributed to the development of this Action Plan, including: >> ACT Pain Support >> Arthritis Australia >> Australian Pain Association >> Australian Pain Management Association >> Australian Pain Society >> Australian Rheumatology Association >> Australian Pharmaceutical Society >> Australian Physiotherapists Association >> Brain Foundation >> Carers Australia >> Chronic Pain Australia >> Consumers Health Forum >> Department of Health, Australian Government >> Faculty of Pain Medicine, Australian and New Zealand College of Anaesthetists >> MS Australia >> National Rural Health Alliance >> Pain Revolution >> Palliative Care Australia >> Parkinson’s Australia >> Primary Health Networks >> Royal Australian College of General Practice >> Royal Australasian College of Physicians >> Royal Australasian College of Psychiatrists >> Scriptwise >> State and Territory Departments of Health We also wish to thank the all the consumers and consumer groups that participated in the CHF-led consumer roundtable held in September 2018 and participated in our online survey July-August 2018. 2 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
HOW IS Pain is complex and has many contributors PAIN While acute pain is often a normal part of life, it is also important to deepen the understanding of chronic pain, given its significant impact. The National Pain Strategy documents the evidence- base for the ‘bio-psycho-social’ model of pain assessment and management. This model recognises three overlapping components: physical, DEFINED? psychological and environmental, and notes that to assess a person suffering from pain, it is important to assess the contribution of factors in these three areas to the pain experience of each patient. Five categories of pain (National Pain Strategy): Different types of pain: >> Acute pain, defined as a normal and time- Nociceptive pain is caused by damage to body limited response to trauma or other ‘noxious’ tissue and usually described as a sharp, aching, or experience, including pain related to medical throbbing pain and can be caused by a range of procedures and acute medical conditions. conditions or factors including injury, surgery, arthritis, Acute pain can also arise from physiological osteoporosis or musculoskeletal conditions. causes such as childbirth. If poorly managed, it can lead to more serious health issues, including chronic pain. Neuropathic pain is a type of pain that occurs following damage to the nervous system itself. The >> Pain that is progressing towards chronic sensations associated with this type of pain are pain, but this progression may be prevented described as burning or shooting pains. The skin can (‘subacute’ pain). For example, acute wound be numb, tingling or extremely sensitive. pain may progress to chronic wound-associated pain. >> Recurrent pain, e.g. migraine Nociplastic pain is essentially pain related to increased nervous system sensitisation rather than >> Chronic (or persistent) non-cancer pain that tissue or nerve injury despite no clear evidence of persists for longer than 3 months actual or threatened tissue damage. >> Cancer-related pain Many health conditions can contribute to the development and maintenance of chronic pain: • Back and leg pain (lower back pain is the leading cause of disability worldwide ); • Complex Regional Pain Syndrome (CPRS); • Chronic widespread pain (‘Fibromyalgia’) • Pelvic pain, including endometriosis; • Migraine and headache; • Sciatica; • Orofacial pain; • Neuropathic (nerve) pain; and • Musculoskeletal conditions - conditions of the bones, joints, muscles and connective tissues, includ- ing arthritis, osteoarthritis, osteoporosis and gout. Injury is also a leading contributor to chronic pain, and pain can follow surgery. The ePPOC program that benchmarks Australian and New Zealand pain services found in almost 40% of pain cases an injury at work, home or school or another place was the triggering event, in 10.3% it was a motor vehicle crash and surgery accounted for 10.5% of pain cases. 17% of pain cases had no known cause (from the patient perspective), 10% was due to illness and 12% had other causes. 3 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
WHY ACTION IS NEEDED - AUSTRALIA’S PAIN BURDEN Millions of Australians live with pain One in five Australian adults are estimated to live with chronic pain (daily pain for more than three months, experienced in the last three months)1. This is consistent with global burden of disease data, which show that lower back pain was the leading cause of disability globally in 2017.2 Four million Australians currently live with arthritis, and this is projected to rise to 5.4 million by 2030.3 Some pain conditions are more prevalent in rural communities, with people outside the major cities reported to be 23% more likely to have back pain, rising to 30% for residents aged 55 to 64.4 Chronic pain is even more common among Australians aged over 65, with one in three living with chronic pain.5 Up to 80 percent of residents of aged cared facilities are living with persistent pain, which is often under-treated or poorly managed.6 Between 25 to 35% of children and adolescents experience chronic pain.7 The pain burden is growing Chronic pain affects more than 3.24 million Australians. Painaustralia’s report, The Cost of Pain in Australia by Deloitte Access Economics, provides the most comprehensive analysis of the financial impact of chronic pain in Australia to date and it found more than 68% of people living with chronic pain are of working age. Without action, the prevalence of chronic pain will increase to 5.23 million Australians (16.9%) by 2050.8 By 2032, it is projected that the number of cases of arthritis and other musculoskeletal conditions will increase by 43% to 8.7 million and affect over 30.2% of the population. Osteoarthritis is projected to affect three million people (up from 1.9 million), back problems to affect 3.8 million people (up from 2.9 million) and osteoporosis to affect 1.2 million people (up from 0.8 million).9 Pain is closely associated with other health conditions, mental health and disability Comorbidity (the occurrence of two or more diseases in a person at one time) is very common among people living with pain conditions like arthritis and back pain. For those who experience chronic pain, the pain can be debilitating and have an adverse effect on work, sleep, and relationships. Individuals with chronic pain may also commonly experience comorbidities such as depression, sleep disturbance and fatigue. These comorbidities often contribute to worse health, societal and financial outcomes – for example, major depression in patients with chronic pain is associated with reduced functioning, poorer treatment response, and increased health care costs. 4 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
Chronic pain and mental health problems, particularly depression, commonly occur together. Major depression in patients with chronic pain is associated with reduced functioning, poorer treatment response and increased health care costs. High rates of generalised anxiety disorder, post traumatic stress disorder and substance misuse are also reported in people with chronic pain. Moreover, suicide is reported to be two to three times higher in those suffering chronic pain compared to the general population, and it is associated with depression.10 This may be due to opioid related deaths, but there is a lack of research in this area. In 2018 the top three chronic disease combinations were: depression or anxiety (44.6%), osteoarthritis and degenerative arthritis (29.3%) and high blood pressure (25.1%).11 Chronic pain and mental health problems, particularly depression, commonly occur together.12 In Australia and New Zealand, 40.5% of pain patients captured in ePPOC data in 2016 reported also suffering depression and/or anxiety.13 Pain carries a significant economic cost The Cost of Pain report has pulled data out of the health, aging and disability sectors, to reveal the staggering cost of chronic pain to taxpayers. In 2018, this figure was $139.3 billion. This was on top of the fact that last year alone, Australians paid $2.7 billion in out of pocket expenses to manage their pain, with costs to the health system in excess of $12 billion.14 There were estimated to be 9.9 million missed workdays due to chronic pain each year in Australia in 2006.15 Chronic pain is estimated to be Australia’s third most costly health condition in terms of health expenditure, noting musculoskeletal conditions are the second most costly, and injuries the fourth (both carry a strong association with chronic pain).16 Chronic pain is a leading cause of economic and social exclusion Pain deeply impacts on people’s ability to participate in work, education or the community. Globally, the median period that a person lives with chronic pain is seven years.17 Back pain and arthritis are two of the most common health conditions that cause premature retirement for people between the ages of 45 and 64, accounting for about 40% of cases.18, 19 Most patients included in 2016 ePPOC data stated that their pain affected the number of hours they were able to work or study (92%) and the type of work they were able to do (95%). 19% of episodes involved a compensation claim and 34% were unemployed due to their pain condition.20 The daily challenges of chronic pain include decreased enjoyment of normal activities, loss of function and relationship difficulties.21 As chronic pain is largely invisible, those living with pain report feeling stigmatised by co- workers, friends, family, and the medical profession.22 5 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
People can’t access pain services Up to 80% of people living with chronic pain are missing out on treatment that could improve their health, quality of life and workforce participation23 including access to pain specialists and one-stop pain clinics that offer interdisciplinary care, but also services at the primary care level. Most public and private pain clinics that offer interdisciplinary care in one physical location are predominately located in the major capital cities.24 Specialist Pain Medicine Physicians (SPMPs) are concentrated in the major cities of NSW, South Australia, Victoria, Western Australia and Queensland. There is no pain specialist in the NT. There are only seven paediatric pain clinics in Australia, with none in Tasmania, the ACT or the NT. The physiotherapy workforce, integral to interdisciplinary pain management, is also not evenly distributed and there is a shortage in rural and remote areas.25 There is low awareness of pain and its treatment options Awareness of pain and pain management is also low among health practitioners and consumers. For example, clinicians’ beliefs and practice behaviours relating to lower back pain were found to be discordant with contemporary evidence on the most effective treatments.26 Challenging beliefs about pain and its treatment is critical to build resilience in consumers and producing more effective health outcomes. Explaining the neuroscience of pain has been shown to improve pain and movement, and reduce fear avoidance.27 Over the last 20 years between 1996 and 2016, research aimed at understanding pain has attracted $133 million. In comparison, between 2012 and 2017, cardiovascular disease has received $687 million of research funding.28 There is a reliance on pain medications A 30% increase in opioid prescribing occurred between 2009 and 2014.29 The Australian Commission on Safety and Quality in Health Care revealed opioid medications were being prescribed in some regional areas at 10 times the rate of other areas and they recommend action on pain and opioid management in rural areas.30 Rising numbers of Australians are dying from accidentally overdosing on a prescription drug. The rate of opioid induced deaths almost doubled in 10 years, from 3.8 to 6.6 deaths per 100,000 Australians between 2007 and 2016 and more than three-quarters of all drug deaths involved pharmaceutical opioids. There is growing interest in ensuring the safe and effective use of medications. Specific and significant recent changes were made to address these issues, including the upscheduling of codeine and the decision to progress real time prescription monitoring. However, there is more that can be done to address over-reliance on pain medications and its negative consequences. 6 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
WHAT CONSUMERS TOLD US “ ‘There have been some small improvements (since 2010)- however there are still lengthy delays in accessing pain services’ ‘People with chronic pain just wish to live a life free of pain, or lessened pain. Education needs to be improved in this area, instead of the constant stigma across all of the community’ ‘I want to become a productive member of my community again. I hate living under the poverty line. And I hate having no self- esteem because I don’t feel I contribute’ ‘We need public awareness campaigns...not all pain is not treatable and curable… people need to be empowered and trusted to manage their own pain’ ‘Our voices need to be heard, we are not being listened to by decision-makers, but we need more support to tell our stories – resources will help us’ ‘Carers, especially young carers of people living with pain need to be better supported and heard so they can continue to care’
WHAT WE WANT TO ACHIEVE – VISION FOR 2021 OVERARCHING GOAL: Improved quality of life for people living with pain and the pain burden for individuals and the community is minimised KEY GOALS OBJECTIVES GOAL 1: People living with pain >> Pain is understood as key public policy priority by decision-makers. >> Pain is included in other key national health and economic strategies, policies, plans and frameworks, particularly chronic conditions are recognised as a frameworks, being brought forward by governments or health and national and public medical groups. health priority >> Future pain policy is underpinned by frameworks that ensure actions are evaluated and that pain is included in future priority setting. GOAL 2: Consumers, their >> Consumers will have confidence and knowledge to seek out best practice advice and treatment and to be active participants in their remedial journey, which will build resilience in managing chronic pain. carers and the wider >> Consumers will be supported by the community and by the economic community are and regulatory environment, and stigma will be reduced. more empowered >> Community understanding of chronic pain, the safe and effective use knowledgeable of pain medications and best practice management including active and supported to non-pharmacological management is enhanced. understand and manage pain >> Accessible and user-friendly information and support programs are available to all consumers, carers and families, regardless of background and location. GOAL 3: Health practitioners >> All health practitioners and carers are trained in pain management to improve conceptualisation of pain and underpin care plans and practices. >> Systems and guidelines are established that ensure pain is adequately are well-informed and managed across health and care systems. skilled on best practice evidence-based care and are supported to deliver this care 8 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 4: People living with pain >> Patient-centred interdisciplinary assessment and pain care and support services that takes into the account the health and wellbeing of the whole person is offered in all locations and made available through have timely access delivery and funding models at the primary care level wherever possible to consumer-centred >> Opportunities for communication between health practitioners and best practice pain patients about pain assessment and care plans are possible management including >> Technology is harnessed to expand access to multiple services including self-management, early primary care services and pain specialists. intervention strategies and interdisciplinary care and >> Through targeted interventions, specific population groups are not support excluded from best practice services or information about pain management. >> The reliance on prescribing pain medications for chronic pain is minimised. GOAL 5: Outcomes in pain >> All pain services can participate in independent evaluation. >> Pain services are patient-centred and offer best practice care that keeps pace with innovation and the latest clinical evidence base. management are >> Quality use of medicines is evaluated and benchmarked across the improved and evaluated health system. on an ongoing basis to >> Pharmacological and non-pharmacological pain management ensure consumer-centred interventions are better understood. pain services are provided >> The role of primary and tertiary level health services in pain management that are best practice and are each understood. keep pace with innovation GOAL 6: Knowledge of pain >> Pain research at a national level through a network of pain research specialists. >> Identification of gaps in knowledge and practice in achieving the Action flourishes and is Plan goals communicated to >> Translation and dissemination of research into practice and policy health practitioners and >> Research findings are communicated to the community. consumers through a national research strategy GOAL 7: Chronic pain is minimised >> Best practice acute and sub-acute diagnostic and treatment strategies are understood and provided across health settings. >> Pain policy is linked to chronic disease frameworks. through prevention >> Greater support is provided to people returning to work following an and early intervention injury, surgery or diagnosis of a pain condition. strategies GOAL 8: People living with pain are >> Greater support is provided to people returning to work following an injury, surgery or diagnosis of a pain condition. supported to participate in work and community 9 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
PARTNERSHIPS AND ENABLERS The delivery of this Action Plan will require commitment and priority setting at all levels of government and by key partners including not-for profit organisations, researchers, the private sector, individuals and communities. Real improvements in awareness of pain management will require whole-of-community engagement, while the improvement in access to interdisciplinary services will require strong partnerships between governments, health practitioners, primary health networks and consumers. In 2010, Australia was the first country in the world to develop a national framework for pain, as 200 delegates gathered to develop a National Pain Strategy which provides a blueprint for the treatment and management of acute, chronic and cancer pain. Pain medicine is an independent medical speciality; the importance of interdisciplinary care is recognised; and our education and research programs are internationally recognised. We must harness the opportunity of our collective local knowledge and expertise, and implement effective initiatives that are evidence based, reflect current national guidelines, and align with key national health initiatives such as MyHealth Record. Figure 1: KEY PARTNERSHIPS AND PARTICIPANTS TO DELIVER ACTION PLAN Knowledgable communities Empowered and supported Skilled health carers and practitioners families Capable Active health community professional support bodies and groups colleges Empowered consumers Priority Active setting and advocacy and actions led by influence by goverments peak group with consumers Supportive Integrated workplaces Priimary and insurance Health systems Coordinated Networks research and knowledge base 10 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
INTERDISCIPLINARY PAIN MANAGEMENT There is a growing consensus and research base that supports the importance of coordinated interdisciplinary Prescribing Wellness: Comprehensive management strategies to address pain. This approach pain management outside specialist is endorsed in the 2010 National Pain Strategy and by the services (Holliday, Hayes, Jones, Harris International Association for the Study of Pain. This requires and Nicholas, 2018) coordinated interdisciplinary assessment and management involving, at a minimum, physical, psychological, and social/ Physical – Establishing safe, consistent environmental risk factors in each patient.31 patterns of movement can calm nervous system arousal and reduce central This is known as the biopsychosocial (or more recently sensitisation. This can be facilitated by sociopsychobiomedical) prism from which to view a complex negotiating measurable, achievable health issue like pain from different angles. Treatment is not treatment goals that reflect meaningful ‘one-size-fits-all’ but needs to be person-specific. and enjoyable activities, not just pain relief. A multidisciplinary team is likely to include a physician, clinical psychologist or psychiatrist, physiotherapist or other Psychological – It is important to explore allied health professional such as occupational therapist, any cognitive, behavioural and affective pharmacist and may include a dietician and social worker factors contributing to pain, to recognise or counsellor.32 Nurses are also an important part of the and modify unhelpful conditions. multidisciplinary team. A critical step in the development of an effective pain management plan is face-to-face discussion Social engagement – People typically feel by consumers and team members on the relative importance safe when socially well connected and of factors identified by them in the patient, and ongoing under threat when isolated. Meaningful communication between team members and patients on positive engagement at work or home is the progress of the pain management strategy. crucial for pain recovery. Interdisciplinary pain management can be provided in Nutrition – Obesity is frequently specialist pain clinics. However, the National Pain Strategy associated with chronic pain. Simple recommends that in most cases, people living with pain nutritional interventions for pain are can be best supported in primary care, with only a small recommended. proportion requiring tertiary care.33 Evidence to support the importance of interdisciplinary approaches is growing. Patient outcomes of 60 pain services in Australia and New Zealand that apply interdisciplinary approaches are showing significant reductions in medication Specialist Pain Medicine use and 75% of patients improved mental health or reduced Physicians accessible across interference in the quality of life caused by their pain.34 pain sector Funding models that Empowered consumers and underpin affordable and carers coordinated health services Integrated care including Interdisciplinary pain management Education, training electronic health systems and support for health professionals Telehealth to link specialist services Figure 2: ENABLERS FOR INTERDISIPLINARY PAIN MANAGEMENT 11 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS 2018-2021 – THE KEY PRIORITIES Establish a National Pain Leadership Group COAG Health Ministers to endorse the Action Plan Community awareness campaign Interactive national website and app to provide a ‘one stop shop’ for information and resources Include pain management in accreditation standards for health providers THE Establish a National Institute of Pain Research FOLLOWING ACTIONS Provide an overarching education strategy for health EMERGED practitioners AS THE KEY Map and review pain services by location and needs analysis PRIORITIES DURING THE Recognise pain as a complex condition in its own right for CONSULTATION the purposes of MBS rebates PROCESS Determine a single validated asessment and monitoring tool for chronic pain These high priority actions have been guided by principles of assessment including ensuring they: • Have the greatest positive impact for consumers • Will be the most effective investment of efforts and resources • Ensure consumers and carers are given a strong voice • Are evidence based and meet principles of best practice pain management • Can be widely supported and endorsed • Deliver on the goals of the National Pain Strategy or meet a newly identified goal • Meet unmet need • Have the support of key enablers 12 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS 2018-2021 BETTER COORDINATION AND LEADERSHIP GOAL 1 People living with pain are recognised as a national and public health priority ACTION ITEMS (how this will be achieved): CONTEXT 1.1 The formation and development of a National Pain remains one of the most misunderstood and Pain Leadership Group (NPLG) to inform, neglected health issues, despite at least one in five support and lead and govern advice provided Australians living with chronic pain. Pain has significant to the Minister for Health and COAG Health social and economic impacts and costs. Ministers on the delivery and ongoing evaluation of the Action Plan and the national adoption and To date, pain has not been a key consideration in delivery of the 2010 National Pain Strategy as the national health policy strategies and frameworks. key overarching document. It will: For example, the Aboriginal and Torres Strait Islander Health Plan 2013-2023 or the Fifth National Mental • identify partnerships, frameworks and resources Health Plan are silent on pain, yet it is a key priority to to deliver the National Action Plan and realise the address chronic conditions as outlined in the National goals of the 2010 National Pain Strategy over the Strategic Framework or Chronic Conditions that has longer term; been agreed by Australian Health Ministers in 2017. • inform future responses to contemporary A focus on pain by the Australian Government challenges facing the pain sector and consumers will underpin efforts to reduce the burden of non- living with pain; and communicable disease through the World Health Organisation Global Action Plan to Prevent and • be underpinned and directly informed by a Control Non-Communicable Dieses 2013-2020. Pain Consumer Reference Group that recognises treatment is regarded a human right by the World consumers as key partners and involves Medical Association.35 representatives from across Australia and reflects a consumer-led strategy. Pain is a critical consideration to ensure Australians live healthier lives through effective prevention and 1.2 COAG Health Ministers to endorse the Action coordinated management of chronic conditions: Plan to lead and govern the delivery of the goals the leading cause of illness, disability and death in of the 2010 National Pain Strategy. Australia. Strategic and ongoing national action is required to recognise the complexity and ubiquity of 1.3 Supporting Painaustralia as the national peak pain in our community and reduce its impact. pain advocacy body to advocate to decision- makers and raise awareness across the community to improve quality of life for people living with pain, their carers and families and to minimise the social and economic burden of pain on individuals and the community, as well as convene the NPLG to deliver constructive, unified advice. 13 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 2 Consumers, their carers and the wider community are more empowered, knowledgeable and supported to understand and manage pain ACTION ITEMS (how this will be achieved): direction and guidance on emerging treatments, such as medicinal cannabis for chronic pain that 2.1 Fund and implement a community awareness disseminates recent TGA guidance and better campaign on pain and pain management meets consumer expectations. Such guidance treatment and support options with materials must be evidence-based, and further research and messages developed in partnership with is needed to improve the evidence base for consumers, health professionals and community some emerging treatments, including the use of groups. medicinal cannabis for chronic non-cancer pain. It will include: 2.2 Development and dissemination of a consumer handbook and smartphone application for • Vertically integrated communication strategies people living with chronic pain or those who have that ensure accessible and diverse communication received a recent diagnosis of a pain condition. It through various media platforms including TV, will provide a definitive and best practice guide radio, social media, print media and clinic-based for people with chronic pain to improve health media to share messages and reach out to a wide literacy, questions to ask health providers, where community audience. to get help and self-management strategies. It will support them to navigate health pathways on their • Specific strategies to communicate to Aboriginal remedial journey to be active participants in their and Torres Strait Islander Australians, Culturally healthcare. It will be available as a smartphone and Linguistically Diverse (CALD) Australians and app in plain English, multiple languages and in people accessing community and residential aged electronic and print form. It will be provided at care services. point of care and through other channels. • Specific messaging and resources to be developed on ‘living with pain’– a complex message but 2.3 Interactive and comprehensive national website and app for easy access to the website for powerful opportunity to build resilience for people consumers, carers and health practitioners – a ‘one managing pain as a chronic condition. stop shop’ providing a gateway for best practice evidence-based pain education and information in • Storybooks, consumer vignettes and videos will be Australia. used to enhance understanding of the consumer lived experience. It will harness and support a wide array of emerging • Care pathway summaries and guidance documents online tools and resources including: improve understanding by consumers and health • Information about pain and best practice treatment practitioners of ‘pain across the lifespan’. options. • Materials to guide and raise awareness of the • Up to date information about where to seek help. role of carers, including young carers of people with chronic pain, that taps into existing carer • Self-check tools to help consumers screen for risk resources, but are pain-specific. factors. • Targeted communication strategies to highlight • Real life stories from consumers about how they the latest evidence and guidelines for specific manage their pain and remain engaged in life and work. conditions e.g. lower back pain. • Information for health professionals, courses and • Targeted communication strategy on the quality training opportunities and a community of practice. use of medicines with a pain focus to provide clear • An online forum to connect consumers, carers and other people affected by pain, administered by trained moderators. • A directory of courses on pain management for health practitioners. 14 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
2.4 Develop or collate existing national standardised patient information and guidance into a 2.10 Develop a peer to peer support network, document for distribution on discharge from facilitated by trained and accredited hospital on safe and effective use of pain providers. Peer supporters are identified medications, and on non-pharmacological and trained to support other people living management of pain, required to be delivered with pain, particularly those who have recently by hospital standards. had a chronic pain condition diagnosis. A trial of this initiative could be developed in a local 2.5 Provide consumers with access to effective community with an existing peer to peer resources that enable them to communicate network for wider adoption. and navigate their pain experience between health providers, workplaces, carers or family 2.11 Partnerships between pain groups to coordinate to reduce stigma, the need to repeat their story a funded national Pain Champion Advocacy and better self-manage pain. Examples include Network that includes a network of speakers ‘PainTrain’ and pain diaries. These tools also that can inspire action across communities support health providers to better coordinate and develop resources to support consumer care. advocacy such as a self-advocacy kit. 2.6 Development of an education program and CONTEXT resources for schools, including building on the findings of the Hunter New England Population There is low awareness of pain and its treatment Health Children Initiative which is currently options in the community. conducting consultations to define the best approach for integrating pain education in the People living with pain commonly report stigma and school setting. misunderstanding of their condition in the community, workplace and by health practitioners. 2.7 Explore the feasibility of expanded activities for Increasing community understanding of best practice the ‘Brain Bus’ children’s education program. pain treatments will more effectively align professional ‘The Brain Bus’ provides an opportunity for and consumer conversations on pain management. school age children to learn about pain and the Changing common beliefs about pain and its treatment science behind it, through an interactive program is also critical to achieve better outcomes from pain that draws on the principles of neuroscience management. with the use of illusions and virtual reality. The program ignites interest in science while laying Consumers need greater confidence to seek out the foundations to help children understand their best practice treatment and be active participants in own pain experiences, promoting prevention and their remedial journey as well as building resilience early intervention of chronic pain in our future in managing chronic pain. generations. Currently there are a range of overlapping resources 2.8 National information and support telephone and websites in place which consumers can access line that is resourced by accredited and trained to support them in their pain management. The staff and volunteers. This could draw on existing development of a national website and resource models operated nationally such as the Butterfly suite should be cognisant of these existing resources, Foundation, Lifeline and National Health Direct and seek to curate existing material and provide phone services. a single portal to enable sharing of and access to evidence-based information and resources, rather 2.9 Small grants for community pain support than duplicating existing information and resources. groups that are not-for-profit, charity groups providing essential support services for people It will be important that consumer-focused initiatives with chronic pain, their family and carers, linking are inclusive of the needs of specific groups including them to activities, events, discussion forums Aboriginal and Torres Strait Islander peoples, people and support networks. A small grants program from culturally and linguistically diverse backgrounds, would enable these organisations to increase people from rural and remote areas, older Australians, their capacity on the ground. This could be people with dementia, children and young people, coordinated by Painaustralia. and other relevant groups. 15 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS 2018-2021 BETTER CARE GOAL 3 Health practitioners are well-informed on best practice evidence- based assessment and care and supported to deliver this care ACTION ITEMS (how this will be achieved): 3.4 Review of existing decision plan support systems available, including medical software 3.1 Develop an overarching education strategy that is readily available, dose calculators, to promote evidence-based pain management treatment protocols and plans, tapering or education across health practitioner disciplines, stopping opioid treatments, advice for health through undergraduate, postgraduate and practitioners and online tools. continuing education. This should include, among other things, standardisation among 3.5 Expand training opportunities for health universities in their teaching curricula with practitioners in pain management – licencing regard to pain management; and a focus on for an expanded number of health practitioners value based healthcare. The development of to complete training such as the Faculty of Pain this strategy should also take into account the Medicine Better Pain Management Program, or National Registration and Accreditation System greater access for more practitioners to have review recommendations; and self-regulated access to selected modules of relevance. Provide allied health professionals should be among the short courses to expand general knowledge in health practitioner disciplines engaged in the primary care. education strategy. 3.6 Develop a six-month workplace-based 3.2 Develop a broad national approach to assessment certificate in clinical pain medicine for GPs and monitoring, involving an integrated suite of or other interested health professionals to validated assessment and monitoring tools complete. for chronic pain use by GPs, practice nurses etc. across Australia, that combines existing best practice assessment techniques and the 3.7 Creation of a public database of health sociopsychobiomedical approach. This includes practitioners who have completed pain consideration of assessment and monitoring management training courses (on interactive tools for priority population groups, e.g. CALD, website). Indigenous Australians, children and young people. 3.8 MBS item for pain education by medical, nursing or allied health practitioners, like the diabetes 3.3 Develop national clinical guidelines on pain and educator model which is already funded under support for health providers to provide best the MBS. practice pain management as outlined in the National Pain Strategy. Available in accessible 3.9 MBS item for GPs with specialist qualification format through a handbook, smartphone in pain medicine as a fellow of the FPM. application and other communication strategies, for provision to all health services and health practitioners in Australia. This will include models of care and pain assessment. 16 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
3.10 Specific materials and engagement activities CONTEXT to provide prescribers with guidance on the quality use of medications. This can Pain remains one of the most misunderstood and be developed between professional bodies, neglected health issues, despite at least one in five peak groups and the Chief Medical Officer. This Australians living with chronic pain. Pain has significant includes ensuring existing guidance is being social and economic impacts and costs. provided, identification of the barriers to uptake of guidance and provision of engagement To date, pain has not been a key consideration in activities such as webinars and workshops in national health policy strategies and frameworks. place. For example, the Aboriginal and Torres Strait Islander Health Plan 2013-2023 or the Fifth National Mental Health Plan are silent on pain, yet it clearly as a key 3.11 Develop a ‘train the trainer’ model for priority to address chronic conditions as outlined in the Residential Aged Care providers and National Strategic Framework or Chronic Conditions distribution and dissemination of the that has been agreed by Australian Health Ministers existing guidance and management strategy in 2017. documents. A focus on pain by the Australian Government 3.12 Adopt the guideline for treatment of will underpin efforts to reduce the burden of non- persistent pain in children, as per the WHO communicable disease through the World Health Global Action Plan for the Prevention and Organisation Global Action Plan to Prevent and Control of Non-Communicable Diseases 2013- Control Non-Communicable Dieses 2013-2020. Pain 2020. treatment is regarded a human right by the World Medical Association. Pain is a critical consideration to ensure Australians live healthier lives through effective prevention and coordinated management of chronic conditions: the leading cause of illness, disability and death in Australia. Strategic and ongoing national action is required to recognise the complexity and ubiquity of pain in our community and reduce its impact. 17 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
GOAL 4 People living with pain have timely access to consumer-centred best practice pain management including self-management, early intervention strategies and interdisciplinary care and support ACTION ITEMS (how this will be achieved): coordination of services between general practice and allied health and referral pathways. Some 4.1 Map and review pain services by location in PHNs are also undertaking activities to address collaboration with States and Territories, Primary the needs of people with persistent pain in their Health Networks and consumers to identify areas communities through expert education programs of most need and those with limited services. This and individual case management, indicating will capture areas with waiting times of 18 months potential for PHNs more broadly to play a key and over, and lack of capacity in specific regions role in this area. to meet demand. This mapping will include a specific focus on paediatric pain services. 4.5 Expand and offer a telehealth pain services program to regional Australia as part of the This will inform: telehealth program. Also expanded Medicare item 2820 to support telehealth variations • Future investments by State and Territory like pain education and involvement of Governments in interdisciplinary community- multidisciplinary teams. based pain services in areas of most need. • Investments by all governments in telehealth, 4.6 Extend access to Medicare Item 132 to all health practitioner training and other initiatives. specialist pain medicine specialists (SPMPs) – currently only available to FRACP or FAFRM • Investments in services for specific groups qualified specialists. including such as children and young people. 4.2 Recognise pain as a complex condition in 4.7 Allow Specialist Pain Management Physicians to generate and extend interdisciplinary care its own right for the purposes of Medicare- plans through Medicare and eliminate the risk of supported pain management plan – with non-referral for a Chronic Disease Management access to 10 individual services and 10 group Plan that could significantly improve consumer services per calendar year based on clinical outcomes. discretion (a similar level of support as the Better Access Mental Health Care program) including case conference attendant by a multidisciplinary 4.8 The national rollout of information portals team, seven telehealth services as part of the that support clinicians to assess and manage overall plan and specific supports like mental patient care through primary, secondary health services and allied health services. and community care. Examples include ‘HealthPathways’ which are available to varying degrees across PHNs. This will underpin efforts 4.3 Provide an MBS item for chronic pain group to develop ‘care maps’ and models of care that programs that are similar to those provided for support interdisciplinary pain management in mental health. all PHNs so all members of a health care team whether they are in primary or secondary settings 4.4 Review existing models of ‘mini pain programs’ can work effectively together in the care and that can be extended in regional and/or rural management of an individual, and referral to communities to provide coordinated care tertiary settings where needed. packages and increase capacity of health practitioners. Existing models include the Pain Revolution Local Pain Educator (LPE) model and other models in South Australia and Western Australia that embed capacity in regional and rural communities in pain management and education. This involves health practitioners enrolling in pain courses and then becoming pain educators and mentors once training is complete (‘train the trainer’), as well as improving 18 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
4.9 Develop best practice ‘models of care’ to Most pain specialists and pain services are in provide pathways for pain management in all metropolitan areas and to date, access to telehealth communities, even those without pain services, has been limited. The geographical variation in opioid and in settings where new models for pain prescribing highlights the reliance on these treatments management are required including palliative in regional areas in lieu of alternative treatment options care, residential aged care, and referrals to that are not available. Fifty per cent of Australians do addiction specialists. These will be developed not have private health insurance and cannot access by a Working Group of experts that reports private services and other treatments, and access to to the National Pain Leadership Group and public services is limited. will include examples where State or Territory governments or PHNs have: There are significant barriers to accessing coordinated pain management at the primary care level, and it • Developed ‘care maps’ to support interdisciplinary is unacceptable that people with chronic pain are pain management for all members of a health required to have another chronic condition to access care team and tools such as ‘HealthPathways’. a Medicare GP Management Plan. • Embedded self-management and empowerment Without action, the translation of interdisciplinary strategies for consumers in their model of care. chronic pain assessment and care into time-poor primary care settings will remain out of reach. Yet embedding this in primary care is vital to improve 4.10 Establishment of clinical pain liaison roles health outcomes for people living with pain. that utilises the skills of GPs, nurses or allied health practitioners to identify chronic pain In ensuring access to best practice pain management early in primary care, support education of services, it will be important to consider the needs local practitioners and smooth transitions and of specific groups including Aboriginal and Torres communications across services. For example, Strait Islander peoples, people from culturally and NSW is currently rolling out a program of linguistically diverse backgrounds, people from rural this nature – the roles are flexibly employed and remote areas, older Australians, people with depending on community need e.g. indigenous dementia, children and young people, and other health, age care. The roles are jointly governed relevant groups. by Local Health Districts and PHNs. It will also be critical that access to best practice pain CONTEXT management across a range of settings is considered, including hospitals (noting opioid stewardship by Many Australians with pain cannot access best practice hospitals is an issue that requires specific focus), pain management due to: residential aged care facilities, and prisons. • cost • location • limited consumer knowledge and confidence • lack of appropriately skilled health professionals • failure to prioritise pain and pain management in health information and services for specific population groups • failure of health funding and systems to support access to coordinated multiple services. 19 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
KEY GOALS AND ACTIONS 2018-2021 BETTER IMPLEMENTATION GOAL 5 Outcomes in pain management are improved and evaluated on an ongoing basis to ensure consumer-centred pain services are provided that are best practice and keep pace with innovation ACTION ITEMS (how this will be achieved): CONTEXT 5.1 Include pain assessment, reassessment and Pain medicine is an evolving medical speciality, and management principles in accreditation standards since the 2010 National Pain Strategy, some progress for hospitals, residential aged care facilities has been made in some areas of pain management and community regulated by the Australian and service delivery. Commission on Safety and Quality in Health Care (ACSQHC). The Australasian benchmarking system Electronic Persistent Pain Outcomes Collaboration (ePPOC) is providing a vital insight into pain services, but not 5.2 Secure the future funding of the Electronic all services participate due to funding contracts. Persistent Pain Outcomes Collaboration Consumer engagement in the design and delivery of (ePPOC). This includes developing a model services also requires further development. for outcomes measurement developed at the primary care level and ensuring all public pain Initiatives to evaluate and improve outcomes in pain services can be funded to participate. management should be inclusive of specific groups including Aboriginal and Torres Strait Islander peoples, 5.3 Embed consumer perspectives in service people from culturally and linguistically diverse design and quality improvement at the service backgrounds, people from rural and remote areas, level, such as the Stanford ‘CHOIR’ Pain model. older Australians, people with dementia, children and young people, and other relevant groups. 5.4 Evaluation of the effectiveness of existing Addressing the needs of people with cognitive patient resources for pain management impairment, including dementia, is particularly with a view to making them widely available important. More than sixty per cent of the people in the Australian context e.g. pain diaries, self- living with dementia who are referred to the Australian management strategies. Government-funded Severe Behaviour Response Teams have unidentified undiagnosed pain. People 5.5 Strengthen requirements for pain with cognitive impairment are often unable to say management within aged care funding and they are in pain or identify the site of pain. Their pain accreditation systems may be expressed through changes in behaviour, such as confusion, distress, restlessness, irritability or aggression. Appropriate pain management may reduce the inappropriate use of antipsychotic medication. Hospital and aged care staff in particular should have the clinical skills in pain assessment and management for people with cognitive impairment. The knowledge and experience of families and carers in managing a person’s pain should also be sought. 20 NATIONAL STRATEGIC ACTION PLAN FOR PAIN MANAGEMENT
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