Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST

 
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Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Moving Upstream To Address SDOH
and Health Equity At a Policy Level

    April 6, 2021 1:00PM-2:30PM EST

                                                    Bethany Hamilton, JD
               Co-Director, National Center for Medical Legal Partnerships

                                                             April 6, 2021
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Housekeeping

       •   By default, everyone joins on mute

       •   Type questions into the Chat Box

       •   This session will be recorded

       •   Email aprildaniels@gwu.edu for help.
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Acknowledgements

  This project is supported by the Health Resources and Services
  Administration (HRSA) of the U.S. Department of Health and Human
  Services (HHS) as part of an award totaling $625,000 with 0 percent
  financed with non-governmental sources. The contents are those of
  the author(s) and do not necessarily represent the official views of,
  nor an endorsement by HRSA, HHS, or the U.S. Government. For
  more information, please visit HRSA.gov.
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Health Center MLP Toolkit:

   Information and resources to start, strengthen,
   and sustain a medical-legal partnership
   (MLP).

   Can be used by health centers new to
   MLP and those actively providing legal
   services.

   Much of the guidance and resources will
   be applicable to teams in other health care
   settings.
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Today’s Learning Objectives

 Participants will learn more about:

 • How MLPs are well-poised to identify opportunities to advance health policy solutions for entire
   communities

 • Examples of the types of policies that result in persistent health inequities and widening gaps in
   access to justice

 • Opportunities for MLPs to engage in policy-driven initiatives that leverage myriad disciplines and
   stakeholders in bold efforts to remove systemic barriers and amplify the impact of legal
   interventions
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
MLPs embed lawyers as members of the
health care team, creating:
•   Healthier patients

•   A stronger health center workforce

•   Improved health equity
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
FROM PATIENTS-TO-POLICY
The MLP at Erie Health Center built a multi-state coalition that got HUD to update its public housing lead
regulations. Now, they are working to pass a federal bill that will require lead inspections of all federally assisted
housing units before families move in.                                                 Available at: medical-legalpartnership.org/resources
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
FROM PATIENTS-TO-POLICY
Whitman-Walker Health’s MLP helped prevent platinum insurance plans
that were widely used by patients with chronic illnesses from being
eliminated in the D.C. Marketplace, ensuring thousands of patients
maintained access to care.
                                                                      Available at: medical-legalpartnership.org/resources
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
$154 can buy 48-60 days of formula
FROM PATIENTS-TO-POLICY

Cincinnati Children’s MLP worked
with the agency that administers
food benefits in the county to
eliminate administrative barriers
to women enrolling newborns in
benefits. Hundreds of newborns
now get benefits months earlier
than before, which means an
average of $154 more per family
for child nutrition.

       Available at: medical-legalpartnership.org/resources
Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
Moving Upstream To
    Address SDOH
and Health Equity At A
     Policy Level

     PANELISTS
Ann C. Mangiameli
                                   Attorney at Law
Managing Attorney, Health, Education & Law Project
                             Legal Aid of Nebraska
            amangiameli@legalaidofnebraska.org
Home and Community–Based Waiver Services for
Aged Persons, Adults, or Children (480 NAC 5–000)
The criteria for waiver services eligibility are described in 480 NAC 5–000.

To be eligible for support through the “Aged and Disabled Waiver”
program, a potential client must meet three general requirements:

1. Have care needs equal to those of Medicaid-funded residents in
   Nursing Facilities;

2. Be eligible for Medicaid; and

3. Work with the services coordinator to develop an outcome-based, cost
   effective service plan.
   480 Neb. Admin. Code, Ch. 5, § 001.A.
How The Problem Began…..

Merie B. ex rel. Brayden O. v. State
“Children who had profound disabilities requiring constant supervision
were not eligible for waiver services if they had no immediate medical
treatment necessity and could walk, transfer, see, and hear. ” Merie B.
ex rel. Brayden O. v. State, 863 N.W.2d 171, 186 (Neb. 2015)

“DHHS …….arbitrarily placed a far greater burden on disabled children
than similarly situated disabled aged persons and adults. ” Merie B. ex
rel. Brayden O. v. State, 863 N.W.2d 171, 186 (Neb. 2015)
Action taken by Legal Aid of Nebraska’s Health,
Education & Law Project (HELP)
1. Families being denied Medicaid waiver services were identified and
   referred by HELP’s Medical Legal Partnership with Children’s Hospital
   and Medical Center.

2. HELP successfully appealed five Medicaid waiver denial cases.

3. Additionally, HELP strategized with other advocacy groups to
   publicize the affect of the regulation changes on children with severe
   disabilities.
Results:

Given the concerns that had been raised by parents, state lawmakers and
advocacy groups, the state hired a consultant to study the new standards
and the tool used to measure children’s level of disability.

New, less restrictive, regulations were enacted by DHHS effective
December 2020

See 471 NAC 43
Population Health Advocacy via
     Amicus Curiae Brief
          Tuesday, April 6, 2021
Keegan Warren-Clem, JD, LLM
             Adjunct Professor | The University of Texas at Austin
                 School of Law and McCombs School of Business
Director | TLSC Medical-Legal Partnerships (formerly Austin MLP)
                                  kwarren-clem@law.utexas.edu
ARGUMENT

I.   Qualifying Individuals Already Face Substantial Administrative Obstacles to
     Accessing Medicaid Benefits for Which They Are Eligible
      A. Medicaid’s Target Population Is Particularly Ill-Equipped to Navigate Complex and
         Ongoing Administrative Requirements
      B. The Medicaid Application Process Presents Multiple Obstacles to Accessing Care
      C. The Appeals Process Presents Another Set of Administrative Obstacles to Coverage
      D. Once Applicants Qualify for Medicaid, They Must Continue Clearing Administrative
         Hurdles to Maintain Benefits

II. The Life Experiences of Medicaid Patients and The MLP Clinicians and
    Attorneys Who Assist Them Illustrate How Administrative Hurdles Impede
    Access to Coverage

III. Work Programs’ Reporting Requirements Add Administrative Obstacles to
     Coverage That May Disqualify Otherwise-Eligible, Working Recipients And
     Undermine Holistic Efforts To Ameliorate Health Disparities
Amicus Tips for MLP Organizational Partners
Restrictions                                          Resources
Medical                                               • Brennan Ctr. for Justice, “The Restriction
• No known categorical prohibition on                   Barring LSC-Funded Lawyers from Bringing
  participation in the filing of an amicus brief        Class Actions” (Sept. 26, 2003),
                                                        https://www.brennancenter.org/our-
                                                        work/research-reports/fact-sheet-restriction-
                                                        barring-lsc-funded-lawyers-bringing-class-
Legal                                                   actions
• No categorical prohibition on participation in      • Permissibility of Using LSC Funds to File an
  the filing of an amicus brief in a litigated case     Amicus Curiae Brief (Mar. 5, 2010), available
  without representing a client                         at
• Recorded as a “matter” and not a “case                https://www.lsc.gov/sites/default/files/LSC/ls
                                                        cgov4/AO_2010_001.pdf
• But may not undertake an amicus curiae class
  action                                              • LSC Act § 1006(d)(5)
• Always consider state requirements                  • 45 CFR § 1617.2(b)(1)
DISCUSSION WITH
ANN AND KEEGAN
The
Access to
Justice
Gap and
The Utah
Sandbox
Rebecca Sandefur, PhD
James Teufel, MPH, PhD
April 6, 2021
                     23
MLP version   • Legal organizations establish formal
                agreements with medicine
   1.0        • Acceptance that lawyers can supplement
                medicine

              • Payment for attorney services through
MLP version     insurance or federal health programs
              • Lawyers an integral part of the medical team
   2.0        • Increasing demand for reactive legal services
                as health services

              • Policy and regulatory reform for health AND
MLP version     legal

   3.0        • Legal services are health services
              • Increasing supply of proactive legal services
>Number of Attorneys in the U.S.                                                  More Attorneys
                                                                                  Fewer Specializing in Public Service
1,600,000                                                                         I.   Public defender or legal aid
                                                                                       attorneys remained 1% of all
1,400,000
                                                                                       attorneys (ABA Lawyer Statistical Reports)
1,200,000
                                                                                  II. Estimates of legal aid
1,000,000
                                                                                      attorneys has also remained
 800,000                                                                              similar across time (5000-
                                                                                      7000 attorneys)
 600,000                                                                                 Less than 1%
                                                                                         Twice as likely to be female
 400,000

 200,000                                                                          III. Attorneys have increased by
                                                                                       about 60%, but the number of
       0
                                                                                       public service attorneys has
            1993
                   1996
                          1999
                                 2002
                                        2005
                                               2008
                                                      2011
                                                             2014
                                                                    2017
                                                                           2020

                                                                                       not shifted much, if at all
Inflation Adjusted LSC Funding ($)                                                  Inflation Adjusted Funding ($)
LSC Funding Dropping or Stagnating                                                  Non-LSC Legal Aid & Pet Costumes
700,000,000                                                                         900,000,000
                                                                                    800,000,000
600,000,000
                                                                                    700,000,000
500,000,000                                                                         600,000,000
                                                                                    500,000,000
400,000,000
                                                                                    400,000,000
300,000,000                                                                         300,000,000
                                                                                    200,000,000
200,000,000
                                                                                    100,000,000
100,000,000                                                                                  0
                                                                                                    2012          2019
         0                                                                                    LSC
              1993
                     1996
                            1999
                                   2002
                                          2005
                                                 2008
                                                        2011
                                                               2014
                                                                      2017
                                                                             2020

                                                                                              Non-LSC
                                                                                              Halloween Pet Costumes
Nationally, 2018 estimates supported that…
I. Majority in U.S. experience                                                          25,000,000

   at least one justice problem                                                         20,000,000       19,500,000

   in last two years                                                                                              18,000,000

II. Large portions of life                                                              15,000,000                        13,500,000

   dealing with justice issues
     I. Adults can expect to spend                                                      10,000,000

         two-fifths of the rest of their                                                                                          4,700,000
                                                                                         5,000,000
         lives experiencing justice
         issues
                                                                                                0
    II. Young adults (age 18-34)                                                                         2019 U.S. WJP Population Poll
        I. A fifth (21%) of remaining                                                                         (Hardships count)
            life will include justice-                                                               Health
            linked hardships                                                                         Income, Employment, Housing
                                                                                                     Relationships
Sources: Calculations from the World Justice Project and US Census Data; Sandefur and
Teufel , UC Irvine Law Review, 2021                                                                  Alcohol, Drugs
Accessing Justice in Utah
 Each Year                   16                15

                             14
• Small
                             12
  businesses=1,061,446
  justice issues unserved    10

• Low Income                  8

  households=944,854          6

  justice issues unserved     4                                       3

  • Legal aid assistance=     2                            2

    64,080 problems
                              0
• Middle class households=        Minimum Within Context "Business As Usual"
                                      Multipliers to Bridge the Justice Gap
  409,290 unserved issues         Low Income        Middle Class   Small Business
Most Civil Justice Issues
                                                              Do Not Make It to Legal Services
                                                                                 What courts and
                                                                                 lawyers see
Real people with real legal problems
                       Civil justice problems of the public

                                                                                              USA: 14 to 24% of
                                                                                              people’s
                                                                                              actual justice
                                                                                              problems

                                                                                  What courts
                                                                                  and lawyers
                                                                                  don’t see
                                                                                              USA: 76 to 86% of
                                                                                              people’s
                                                                                              actual justice
                                                                                              problems
Enabling Innovation in Legal Services
  in Utah

• Re-Imaging Regulation                • Sandbox
  • Rule 5.4 “prohibits a lawyer or     • Supreme Court Authorized
    law firm from sharing legal           Legal Service Innovation
    fees with a nonlawyer or              • Ownership, fee sharing, non-
    forming a partnership with a            lawyers (human and computer)
    nonlawyer if any of the               • Alternative Business Structures
    activities of the partnership
    consist of the practice of law.”   • Data-Driven Regulation
                                        • Positive Risk (opportunity)
• Re-Imaging Legal Services             • Negative Risk (harm)
  • Advice to representation
                                          • Results, Rights, Payments
  • Ownership and fees
Research consistently demonstrates that specialized
non-lawyer providers preforms as well or better than
traditional attorneys in providing legal services.
Learning from the United Kingdom:

           Solicitors

Nonlawyer advisors

                        0%        20%          40%          60%          80%          100%
         Below Threshold Compentence             Competent to Good          Excellent
Areas of practice: benefits, housing, debt, personal injury, immigration, employment, other civil
Utah Office of Legal Services Innovation’s “Sandbox”
A policy tool through which new models or services can be offered and
tested to assess marketability and impact and inform future policy-
making.

                    Office Recommends     Court Authorizes or
                                           Denies Applying      Entity Collects and
Entity Applies to    to Utah Supreme
                                                Entity           Submits Periodic
   the Office        Court along with     Recommendation (in     Data to the Office
                    Risk Categorization       whole or part)

 Licensed Legal                                                 Office Monitors and
                      Utah Supreme
 Services Entity                          Entity Applies to      Responds to Risk
                     Court Authorizes
Ongoing Reporting                         Exit the Sandbox         (harm or data
                      or Denies Exit
  to the Office                                                        quality)
If legal service inequities are health inequities, we need to
    better resolve legal services deserts (Statz and Termuhlen, 2020)

I. No state currently meets
   the original LSC vision of              2020 ABA Profile of the Legal Service Profession

   2 lawyers for every
   10,000 people
Re-Imagine Systems to Overcome
Structural Chasms in Legal Services

• The United States ranks 109th out of 128
  countries in access to and affordability
  of civil justice, between Honduras and
  Bangladesh.

• The United States also ranks 115th out of
  128 countries in discrimination in the
  civil justice system (rank below India)
 World Justice Project, 2020 Rule of Law Index
Contact

•Rebecca Sandefur, PhD
 • Arizona State University

•James Teufel, MPH, PhD
 • Utah Office of Legal Services Innovation,
   an Office of the Utah Supreme Court
 • Moravian College
World Justice Project, 2020 Rule of Law Index
Lots of problems of people
  Few legal services for people

• 1970s                       • Driving Demand
  • 50%-- lawyers for large     • Translating justiciable events
    organizations                 into legal needs or cases
  • 50%-- lawyers for small   • Driving Supply
    business or people
                                • Increasing legal services to
• Today                           better assist people
  • >90%-- lawyers for large    • Restructuring legal service
    organizations                 delivery systems
  •
DISCUSSION WITH
REBECCA AND JAMES
QUESTIONS AND
  ANSWERS
Housing as a Key Social Determinant of Population
Health and Health Equity

                           HRSA 2019-2020 Health Equity
                           Report: Special Feature on Housing
                           and Health Inequalities

                           Source: U.S. Department of Health and Human Services, Health Resources and Services
                           Administration, Office of Health Equity. Health Equity Report 2019-2020: Special
                           Feature on Housing and Health Inequalities. 2020. Rockville, Maryland.
Thank You

Don’t forget to complete the survey!
Contact Information

Bethany Hamilton, JD
bhamilton1@gwu.edu

    www.medical-legalpartnership.org
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