Moving Upstream To Address SDOH and Health Equity At a Policy Level - April 6, 2021 1:00PM-2:30PM EST
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Moving Upstream To Address SDOH and Health Equity At a Policy Level April 6, 2021 1:00PM-2:30PM EST Bethany Hamilton, JD Co-Director, National Center for Medical Legal Partnerships April 6, 2021
Housekeeping • By default, everyone joins on mute • Type questions into the Chat Box • This session will be recorded • Email aprildaniels@gwu.edu for help.
Acknowledgements This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $625,000 with 0 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.
Health Center MLP Toolkit: Information and resources to start, strengthen, and sustain a medical-legal partnership (MLP). Can be used by health centers new to MLP and those actively providing legal services. Much of the guidance and resources will be applicable to teams in other health care settings.
Today’s Learning Objectives Participants will learn more about: • How MLPs are well-poised to identify opportunities to advance health policy solutions for entire communities • Examples of the types of policies that result in persistent health inequities and widening gaps in access to justice • Opportunities for MLPs to engage in policy-driven initiatives that leverage myriad disciplines and stakeholders in bold efforts to remove systemic barriers and amplify the impact of legal interventions
MLPs embed lawyers as members of the health care team, creating: • Healthier patients • A stronger health center workforce • Improved health equity
FROM PATIENTS-TO-POLICY The MLP at Erie Health Center built a multi-state coalition that got HUD to update its public housing lead regulations. Now, they are working to pass a federal bill that will require lead inspections of all federally assisted housing units before families move in. Available at: medical-legalpartnership.org/resources
FROM PATIENTS-TO-POLICY Whitman-Walker Health’s MLP helped prevent platinum insurance plans that were widely used by patients with chronic illnesses from being eliminated in the D.C. Marketplace, ensuring thousands of patients maintained access to care. Available at: medical-legalpartnership.org/resources
$154 can buy 48-60 days of formula FROM PATIENTS-TO-POLICY Cincinnati Children’s MLP worked with the agency that administers food benefits in the county to eliminate administrative barriers to women enrolling newborns in benefits. Hundreds of newborns now get benefits months earlier than before, which means an average of $154 more per family for child nutrition. Available at: medical-legalpartnership.org/resources
Ann C. Mangiameli Attorney at Law Managing Attorney, Health, Education & Law Project Legal Aid of Nebraska amangiameli@legalaidofnebraska.org
Home and Community–Based Waiver Services for Aged Persons, Adults, or Children (480 NAC 5–000) The criteria for waiver services eligibility are described in 480 NAC 5–000. To be eligible for support through the “Aged and Disabled Waiver” program, a potential client must meet three general requirements: 1. Have care needs equal to those of Medicaid-funded residents in Nursing Facilities; 2. Be eligible for Medicaid; and 3. Work with the services coordinator to develop an outcome-based, cost effective service plan. 480 Neb. Admin. Code, Ch. 5, § 001.A.
How The Problem Began….. Merie B. ex rel. Brayden O. v. State “Children who had profound disabilities requiring constant supervision were not eligible for waiver services if they had no immediate medical treatment necessity and could walk, transfer, see, and hear. ” Merie B. ex rel. Brayden O. v. State, 863 N.W.2d 171, 186 (Neb. 2015) “DHHS …….arbitrarily placed a far greater burden on disabled children than similarly situated disabled aged persons and adults. ” Merie B. ex rel. Brayden O. v. State, 863 N.W.2d 171, 186 (Neb. 2015)
Action taken by Legal Aid of Nebraska’s Health, Education & Law Project (HELP) 1. Families being denied Medicaid waiver services were identified and referred by HELP’s Medical Legal Partnership with Children’s Hospital and Medical Center. 2. HELP successfully appealed five Medicaid waiver denial cases. 3. Additionally, HELP strategized with other advocacy groups to publicize the affect of the regulation changes on children with severe disabilities.
Results: Given the concerns that had been raised by parents, state lawmakers and advocacy groups, the state hired a consultant to study the new standards and the tool used to measure children’s level of disability. New, less restrictive, regulations were enacted by DHHS effective December 2020 See 471 NAC 43
Population Health Advocacy via Amicus Curiae Brief Tuesday, April 6, 2021
Keegan Warren-Clem, JD, LLM Adjunct Professor | The University of Texas at Austin School of Law and McCombs School of Business Director | TLSC Medical-Legal Partnerships (formerly Austin MLP) kwarren-clem@law.utexas.edu
ARGUMENT I. Qualifying Individuals Already Face Substantial Administrative Obstacles to Accessing Medicaid Benefits for Which They Are Eligible A. Medicaid’s Target Population Is Particularly Ill-Equipped to Navigate Complex and Ongoing Administrative Requirements B. The Medicaid Application Process Presents Multiple Obstacles to Accessing Care C. The Appeals Process Presents Another Set of Administrative Obstacles to Coverage D. Once Applicants Qualify for Medicaid, They Must Continue Clearing Administrative Hurdles to Maintain Benefits II. The Life Experiences of Medicaid Patients and The MLP Clinicians and Attorneys Who Assist Them Illustrate How Administrative Hurdles Impede Access to Coverage III. Work Programs’ Reporting Requirements Add Administrative Obstacles to Coverage That May Disqualify Otherwise-Eligible, Working Recipients And Undermine Holistic Efforts To Ameliorate Health Disparities
Amicus Tips for MLP Organizational Partners Restrictions Resources Medical • Brennan Ctr. for Justice, “The Restriction • No known categorical prohibition on Barring LSC-Funded Lawyers from Bringing participation in the filing of an amicus brief Class Actions” (Sept. 26, 2003), https://www.brennancenter.org/our- work/research-reports/fact-sheet-restriction- barring-lsc-funded-lawyers-bringing-class- Legal actions • No categorical prohibition on participation in • Permissibility of Using LSC Funds to File an the filing of an amicus brief in a litigated case Amicus Curiae Brief (Mar. 5, 2010), available without representing a client at • Recorded as a “matter” and not a “case https://www.lsc.gov/sites/default/files/LSC/ls cgov4/AO_2010_001.pdf • But may not undertake an amicus curiae class action • LSC Act § 1006(d)(5) • Always consider state requirements • 45 CFR § 1617.2(b)(1)
DISCUSSION WITH ANN AND KEEGAN
The Access to Justice Gap and The Utah Sandbox Rebecca Sandefur, PhD James Teufel, MPH, PhD April 6, 2021 23
MLP version • Legal organizations establish formal agreements with medicine 1.0 • Acceptance that lawyers can supplement medicine • Payment for attorney services through MLP version insurance or federal health programs • Lawyers an integral part of the medical team 2.0 • Increasing demand for reactive legal services as health services • Policy and regulatory reform for health AND MLP version legal 3.0 • Legal services are health services • Increasing supply of proactive legal services
>Number of Attorneys in the U.S. More Attorneys Fewer Specializing in Public Service 1,600,000 I. Public defender or legal aid attorneys remained 1% of all 1,400,000 attorneys (ABA Lawyer Statistical Reports) 1,200,000 II. Estimates of legal aid 1,000,000 attorneys has also remained 800,000 similar across time (5000- 7000 attorneys) 600,000 Less than 1% Twice as likely to be female 400,000 200,000 III. Attorneys have increased by about 60%, but the number of 0 public service attorneys has 1993 1996 1999 2002 2005 2008 2011 2014 2017 2020 not shifted much, if at all
Inflation Adjusted LSC Funding ($) Inflation Adjusted Funding ($) LSC Funding Dropping or Stagnating Non-LSC Legal Aid & Pet Costumes 700,000,000 900,000,000 800,000,000 600,000,000 700,000,000 500,000,000 600,000,000 500,000,000 400,000,000 400,000,000 300,000,000 300,000,000 200,000,000 200,000,000 100,000,000 100,000,000 0 2012 2019 0 LSC 1993 1996 1999 2002 2005 2008 2011 2014 2017 2020 Non-LSC Halloween Pet Costumes
Nationally, 2018 estimates supported that… I. Majority in U.S. experience 25,000,000 at least one justice problem 20,000,000 19,500,000 in last two years 18,000,000 II. Large portions of life 15,000,000 13,500,000 dealing with justice issues I. Adults can expect to spend 10,000,000 two-fifths of the rest of their 4,700,000 5,000,000 lives experiencing justice issues 0 II. Young adults (age 18-34) 2019 U.S. WJP Population Poll I. A fifth (21%) of remaining (Hardships count) life will include justice- Health linked hardships Income, Employment, Housing Relationships Sources: Calculations from the World Justice Project and US Census Data; Sandefur and Teufel , UC Irvine Law Review, 2021 Alcohol, Drugs
Accessing Justice in Utah Each Year 16 15 14 • Small 12 businesses=1,061,446 justice issues unserved 10 • Low Income 8 households=944,854 6 justice issues unserved 4 3 • Legal aid assistance= 2 2 64,080 problems 0 • Middle class households= Minimum Within Context "Business As Usual" Multipliers to Bridge the Justice Gap 409,290 unserved issues Low Income Middle Class Small Business
Most Civil Justice Issues Do Not Make It to Legal Services What courts and lawyers see Real people with real legal problems Civil justice problems of the public USA: 14 to 24% of people’s actual justice problems What courts and lawyers don’t see USA: 76 to 86% of people’s actual justice problems
Enabling Innovation in Legal Services in Utah • Re-Imaging Regulation • Sandbox • Rule 5.4 “prohibits a lawyer or • Supreme Court Authorized law firm from sharing legal Legal Service Innovation fees with a nonlawyer or • Ownership, fee sharing, non- forming a partnership with a lawyers (human and computer) nonlawyer if any of the • Alternative Business Structures activities of the partnership consist of the practice of law.” • Data-Driven Regulation • Positive Risk (opportunity) • Re-Imaging Legal Services • Negative Risk (harm) • Advice to representation • Results, Rights, Payments • Ownership and fees
Research consistently demonstrates that specialized non-lawyer providers preforms as well or better than traditional attorneys in providing legal services. Learning from the United Kingdom: Solicitors Nonlawyer advisors 0% 20% 40% 60% 80% 100% Below Threshold Compentence Competent to Good Excellent Areas of practice: benefits, housing, debt, personal injury, immigration, employment, other civil
Utah Office of Legal Services Innovation’s “Sandbox” A policy tool through which new models or services can be offered and tested to assess marketability and impact and inform future policy- making. Office Recommends Court Authorizes or Denies Applying Entity Collects and Entity Applies to to Utah Supreme Entity Submits Periodic the Office Court along with Recommendation (in Data to the Office Risk Categorization whole or part) Licensed Legal Office Monitors and Utah Supreme Services Entity Entity Applies to Responds to Risk Court Authorizes Ongoing Reporting Exit the Sandbox (harm or data or Denies Exit to the Office quality)
If legal service inequities are health inequities, we need to better resolve legal services deserts (Statz and Termuhlen, 2020) I. No state currently meets the original LSC vision of 2020 ABA Profile of the Legal Service Profession 2 lawyers for every 10,000 people
Re-Imagine Systems to Overcome Structural Chasms in Legal Services • The United States ranks 109th out of 128 countries in access to and affordability of civil justice, between Honduras and Bangladesh. • The United States also ranks 115th out of 128 countries in discrimination in the civil justice system (rank below India) World Justice Project, 2020 Rule of Law Index
Contact •Rebecca Sandefur, PhD • Arizona State University •James Teufel, MPH, PhD • Utah Office of Legal Services Innovation, an Office of the Utah Supreme Court • Moravian College World Justice Project, 2020 Rule of Law Index
Lots of problems of people Few legal services for people • 1970s • Driving Demand • 50%-- lawyers for large • Translating justiciable events organizations into legal needs or cases • 50%-- lawyers for small • Driving Supply business or people • Increasing legal services to • Today better assist people • >90%-- lawyers for large • Restructuring legal service organizations delivery systems •
DISCUSSION WITH REBECCA AND JAMES
QUESTIONS AND ANSWERS
Housing as a Key Social Determinant of Population Health and Health Equity HRSA 2019-2020 Health Equity Report: Special Feature on Housing and Health Inequalities Source: U.S. Department of Health and Human Services, Health Resources and Services Administration, Office of Health Equity. Health Equity Report 2019-2020: Special Feature on Housing and Health Inequalities. 2020. Rockville, Maryland.
Thank You Don’t forget to complete the survey!
Contact Information Bethany Hamilton, JD bhamilton1@gwu.edu www.medical-legalpartnership.org
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