Let's Connect - Cancer Society NZ
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Let’s Connect... ... with the Cancer Society and its services 3rd Quarter 2018 Our mission: Improving community well-being by reducing the incidence and impact of cancer. This year I will celebrate 2 significant milestones- I’m turning 40 and I will be 5 years cancer free! In January 2013, I developed a UTI was left of my urinary system. (urinary tract infection). I had been I woke up breathing just 3 breathes getting them on and off for about a a minute with a bowel that refused year and I felt that the multiple courses to work and felt like I was truly going of antibiotics my GP had been putting to die. I spent a month and a half in me on weren’t working. I sought the hospital and with my ovaries gone I advice of a specialist, who prescribed a was thrown into instant menopause- 3-month course of stronger antibiotics, the combination of hot flushes, tears the way we look externally, certainly in a hope to destroy any residual bugs. and learning how to pee again was a doesn’t define us. This was done after I had a bladder nightmare. scan, which came back clear of anything Cancer in so many ways has been a suspicious. A month later, my neobladder still blessing...It has motivated me to take wasn’t working. I was readmitted into care of my body, and never take it for About 2 months into that course I hospital several times requiring blood granted. My sister and I started our noticed a tiny blood clot in my urine. transfusions and antibiotics. I endured 6 business, ‘Show Pony’ and I have a blog- I was sent directly to hospital and months of complete incontinence and carriewarrie.wordpress.com through cutting a very long and emotional story rocked adult nappies for that time. which I hope to be able to reach out to short- our lives were flipped and I was anyone else having to face a change in diagnosed with aggressive, muscle Finally, feeling like I was at rock bottom the body they walk round in. invasive bladder cancer. I went back to see one of my amazing specialists. My body has developed I see cancer now as my guru, it reminds Bladder cancer is known as being a ‘vesico/vaginal’ fistula (in layman’s me daily how fragile our wee worlds are the cancer of overweight, smoking, terms- my amazing body had created a and how precious our time here is. 60years+ males and at 34 years old and tunnel from my stomach cavity to the healthy- I just didn’t fit the bill. My Right from the get go, The Cancer outside world to drain the urine that cancer (or Mr. Stinky cancer as he is not Society were there to support us. They would otherwise have pooled inside me so fondly known as round here) just checked in with us weekly to see if we and made me septic!) didn’t seem to get that memo. needed anything- information, food, So, back to the operating theatre for transport, help of any kind, nothing was Two tumours were found growing me… It was discovered, to the horror ever a problem. Their generosity made into the muscle wall of my bladder. of my surgeons that my naughty our journey so much more bearable. They were aggressive, so an aggressive neobladder had magically ‘disappeared’. approach was necessary. I underwent Being diagnosed with cancer is a very Bladder transplants aren’t yet viable and 3 months of chemotherapy to try isolating, horrific thing and dealing with so I woke up in recovery to a permanent to stabilize the cancer and to attack the wonderful people at the Cancer medical device (‘urostomy’) adhered to any microscopic cells that may have Society helped us to make sense of that the outside of my stomach. metastasized. crazy scary time of our lives. The thought of this outcome, at the After the chemo with my hair falling The statistics are real - 60 people every beginning of it all was my biggest out in clumps, school drop offs and day in New Zealand will be diagnosed nightmare but it turns out that death midnight searches on the internet with cancer and none of us are immune. definitely beats that hands down! for any new options out there, I had a Please, please, please, give generously massive ‘radical cystectomy surgery’ I am grateful every day for my bag. on Daffodil Day. and ‘radical hysterectomy’ to remove Don’t get me wrong- I HATE it but the by entire diseased bladder, my ovaries, alternative was never an option for me. uterus, cervix, the top of my vagina, We have three young, impressionable parts of my bowel and lymph nodes to children, so I WILL rock a bikini despite my heart. A small part of my bowel was the new body I have been left with and then turned into a new urinary reservoir hopefully that will instil in them the (called a neobladder), which the amazing surgeons re-plumbed to what value of a healthy body confidence- that FRIDAY 31 AUGUST
INTERNATIONAL RECOGNITION During the year, the Cancer Society in New Zealand, and contributes was delighted to learn that Helen internationally as the Vice Chair Morrin, Curator of the Cancer Society of a Science Policy Committee Tissue Bank, had received international focused on emerging global policies recognition with the ISBER Special and regulations that affect tissue Services Award 2018. banking and human Cancer Society The Cancer Society specimen research. Selwyn Centre Tissue Bank at Christchurch Hospital is This committee is part of the The Division’s Strategic Plan clearly our very own initiative International Society acknowledges the need to expand for the Biological for supporting cancer our regional presence so that we and Environmental research and has been are visible, reliable and located in Repositories (ISBER) the leading cancer the community where we are most with members from needed. The Selwyn District has bank in New Zealand. 43 countries. ISBER been identified as a key growth area More than 11,000 recently presented requiring a Cancer Society presence patients have donated Helen with its Special and, after a comprehensive search their samples since Service Award for of the district, our new centre has it opened (1996) and members who opened in Rolleston. over 9,700 samples of have demonstrated blood and tissue have The new centre will complement the been used in numerous studies. Studies exceptional leadership to further the work already undertaken by Cancer can range from skin, kidney, prostate, mission and goals of the society and Society volunteers throughout the significant, long-standing contributions gynaecological and breast cancers to area. to the society. rare pancreatic tumours. They range The Selwyn Centre is on the corner from looking at what bacteria and Helen considers this recognition to be of Tennyson and Kidman Streets, other microbes are present in bowel a joint award with the Canterbury West Rolleston. The centre is open Monday cancers, to sample collection for the first Coast Division of the Cancer Society, to Friday between 9am and 4pm and clinical trial to assess whether high dose due to their ongoing financial support, visitors are welcome anytime. vitamin C administered to patients with which has allowed her to participate in Cancer Society Selwyn Centre bowel cancer produces changes in the this international society and serve on 6B Kidman Street tumour tissue. their committees. Rolleston 7614 Helen Morrin has curated the Cancer Ph 03 925 9708 Society Tissue Bank for more than selwyn.centre@cancercwc.org.nz 18 years and shares her experience and knowledge with other banks Tranz Alpine Scooter Safari Not for the faint hearted, The Scooter of 250 scooters take part with this years’ Safari is an endurance ride, coast to coast, ride raising a staggering $330,000. In the 6 Christchurch to Hokitika, a journey of over biennial rides since it’s inception, the Scooter 250kms to raise funds for the New Zealand Safari has raised over $1.1 Million for the Cancer Society’s Canterbury/West Coast Cancer Society. These funds help to to ensure Division. that the Cancer Society’s free services are available and accessible in our community. Created in 2009, the event has snowballed in popularity and has fast become a bucket The success of the Scooter Safari is due to list event for young and old. A capped total the commitment and superb organisational are dotted and the t’s crossed to ensure that skills of Jayne and Mike Rattray, who we can’t the riders and participants have received all thank enough. They make sure that all the i’s the information and instructions in the lead- up to the event, are motivated to fundraise and have an enjoyable and memorable experience on the day. Our special thanks are extended to the everyone who is involved with the event including the riders and all their supporters, the sponsors and volunteers. This event could not have happened without your support. If you are keen to know more about the Scooter Safari, please visit www.scootersafari.co.nz Photo credit: Lloyd Greenfield, Katipo Media
Harcourts Cancer Society Ball The 29th annual Cancer Society ball people come for the right reasons. Bags produced was held on a cold wintery night in Our special thanks goes to with love June. The fundraising on the evening Harcourts, and all of our sponsors from the silent auction, the live whose support ensures the event Children from ten Selwyn schools auction and golden ticket collectively can take place, the businesses and have been busy decorating bags raised $167,000.00. people who generously donate for the Oncology Department Chief Executive, Elizabeth auction items, the people who at Christchurch Hospital. The Chesterman, says the ball offers purchase tickets and generously bags are used by patients to store a wonderful and glamorous bid in the auction. This wonderful their belongings whilst having opportunity for our caring community support ensures the event is treatment and we know that to come together and contribute for successful and continues to be a they will simply love the bright the greater good of people in need. special occasion on Canterbury’s designs that the children have It’s lovely to be at an event where social calendar. created. At times treatment can be very hard but we hope that the bags and the children’s messages HEAD AND N will bring a smile to all those in the Oncology Department. HEAD AND NECK C ANCERS KNOW THE SI ECK GNS: • A lump in yo World Head and Neck Cancer Day these groups ur neck • A change in takes place every year on the 27th that support • A growth in your voice Garden Tour your mouth of July. The Cancer Society alongside our journey • Difficulty sw allowing the Head and Neck Service at the through Cancer • A sore that do on your lip, ea es not heal CDHB, have been working together to Treatment and r or face Cancer Society volunteers in the promote awareness of the early signs recovery.” If any of these signs pe 3 or more weekrsist for Selwyn District are busy organising of head and neck cancer. As part of the Dave Please see yo s. ur G. a fundraising garden tour in immediately. P awareness campaign the Cancer Society conjunction with the Lincoln Rotary I want to thank Call the Canc Amberley volunteers have painstakingly Helpline on 08er Society Club. Ten gardens will be open to you for another 00 226 237 sewn hundreds of head and neck visit in Broadfields and Prebbleton wonderful cancer ribbons. on Sunday 21 October. Refreshments meeting, we are incredibly lucky will also be available for purchase Pene Clifford, coordinator of the Cancer to have the Cancer Society organising during the day. Society Christchurch head and neck and promoting our Head and Neck cancer support group says people find wellness group, as well as the support from Tickets are $25.00 per person and great benefit in the group. Christchurch Hospital ENT department. are available for purchase from Many patients in New Zealand are isolated the Cancer Society Selwyn Centre “Julie and I would like to express our and on their own with some centres in Rolleston, the Cancer Society gratitude for the head and neck cancer having no or limited meetings. Other Head Centre in Christchurch, or Harcourts group meetings that the Cancer Society and Neck groups are in awe of the topics Four Seasons Reality Ltd. Hornby, run. We have found them extremely and speakers organised for us. I think helpful on my journey in recovering from Rolleston and Lincoln it’s important for me to pass on the high tonsil cancer. The Cooking class run each For further information please email regard Christchurch is held within with our year has been especially helpful, as I have selwyn.centre@cancercwc.org.nz Head and Neck cancer community. swallowing issues due to my Radiation or phone 03 925 9708 Cosette Treatment. All the different subjects and people that have been involved in these If you would like more information Sunday 21 October 2018 meetings have been inspirational and about this group, please contact the Time: 10 – 4pm really informative making my recovery all Cancer Society Christchurch Centre or Tickets $25.00 that better. We feel very fortunate to have email groups@cancercwc.org.nz
With special We were saddened to hear this week of the passing of a longstanding and respected Cancer Society Greymouth volunteer, Joy McGirr. Up until her death at the age of thanks to ... 96, Joy was an active Cancer Society volunteer giving more than 30 years’ service to the Cancer Society • Z’s Good in Hood promotion with supporting local patients and families with a cancer donations from Z Geraldine - $1480.00; diagnosis. Z Curletts Rd Christchurch - $1360.00 and Z Tinwald - $1100.00 West Coast Centre Manager, Jenny Kenning says, • Cust School for their mufti day One of the activities Joy never missed was Daffodil Day. donation of $251.70 Most recently she has been in charge of the Birch when we • The people who have recently shaved bunched the corporate flowers at the Centre – she kept a very close their hair, raising donations for the eye on how much Birch went into each bunch!! We’ll miss her this year. Cancer Society; Nigel Doake $848.45; Brody Pinnell $267.75, Fran Cowie $424.51 and Meg Jones $1500.00 • The Christchurch Home Brewers GOLFING SUCCESS Association for their donation of The Cancer Society Malvern Group were delighted to $405.00 which was raised at their be the recipients of the fundraising from the Annual JaseComp event Malvern Lions Golf Tournament. Elaine Guy, Chairperson • The Drury Theatre Organ Charitable Cancer Society Malvern Group was delighted to receive Trust for their fundraising donation of a cheque for $19,000.00 which she said will go a long $1000.00 raised from 2 concerts earlier way in supporting people in their growing community. this year Cancer Society volunteers had the task of providing • The team at Statistics New Zealand morning and afternoon tea for the 160 players and for their donation of $516.90 Elaine Guy, Cancer Society supporters, along with sourcing 120 prizes for the raffles. • Krystie Woodyear-Smith who organised Malvern Group and Tony Mitchell, Elaine acknowledged the hard work and efforts of all the a “Turn May Grey” event, raising $220.00 President Malvern Lions volunteers and the incredible success of the event. • The team at Code Blue who raised $1500.00 at their recent national conference • The volunteers at Mike Pero’s Heartfelt thanks Motorcycle Gallery for their fundraising We recently received a special thank Sandy has recently returned to Scotland of $1000.00 which was raised at a bbq at you all the way from Scotland! and has sent back his special thanks and the gallery along with a donation from immense gratitude for all the Cancer the Mike Pero Foundation Sandy a lovely Scotsman recently spent Society did for him when he was in New • The Student Event Team at ARA who a prolonged period in the Oncology Zealand. He especially wanted to say raised donations of $630.00 from a Ward at Christchurch Hospital unable thank you to the special volunteers who bake sale in memory of a student to return home to Scotland. Social came into his life, and added that he was • The Christchurch Greyhound Racing workers at Christchurch Hospital so touched that one of the volunteers Club who auctioned a Crusaders Rugby contacted the Cancer Society to ask if a went to the airport to wave him off when Jersey, the proceeds of $650.00 were volunteer could pop in and visit Sandy he left for Scotland. donated to the Cancer Society and if possible take him out for a drive. • A Recycled Success DIARY DATES An extremely successful Recycled 11 August Quiz Night – Greymouth phone 03 768 9557 Runway event was held in the Christchurch Centre in June, raising 31 August Daffodil Day www.daffodilday.org.nz $6100.00. The centre was transformed 14 September Art Auction – Regent Theatre, Greymouth 03 768 9557 into a pop-up shop where pre-loved 21 October Ellesmere Garden Tour for further information treasures were available for purchase. phone 03 925 9708 Our thanks to our special models, 24 November Jump for Cancer everyone who donated items and the 9 March 2019 Relay For Life Timaru enthusiastic shoppers! Plans are now 16 March 2019 Relay For Life Selwyn underway for a 2019 event. 16 March 2019 Relay For Life Greymouth Cancer Information Service Freephone 0800 CANCER 0800 226 237 www.cancernz.org.nz Cancer Society Centre South Canterbury Centre West Coast Centre Mid Canterbury Centre Selwyn Centre 97 Fitzgerald Avenue 32 Memorial Avenue 98 High Street 122 Kermode Street 6B Kidman Street PO Box 13450 PO Box 682 PO Box 81 PO Box 296 PO Box 25 Christchurch 8141 Timaru 7940 Greymouth 7840 Ashburton 7740 Rolleston 7643 T: 03 379 5835 T: 03 688 0124 T: 03 768 9557 T: 03 307 7691 T: 03 925 9708 F: 03 377 2804 F: 03 684 6314 F: 03 768 9587 E: midcanty@cancercwc.org.nz E: selwyn.centre@cancercwc.org.nz E: contact@cancercwc.org.nz E: timaru@cancercwc.org.nz E:westcoast@cancercwc.org.nz Charities Commission: CC 10981
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