Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...

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Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
Insights to understand residents thoughts and
          experiences of Test, Trace, Isolate

What helps, what gets in the way of being able to self-
                       isolate?

            London Borough of Newham
             University of East London
                 1 February 2021
Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
Case Examples

I spoke to a gentlemen on Tuesday he is a family of    Spoke to couple (60 & 62) who mentioned that
8, he has just started a new job and is on probation   they need help with rent payment as the
and so is not entitled to sick pay. He made an         husband is self-employed and they have never
application for £500 isolation payment and was         claimed any benefit before so do not know what
informed he wasn’t entitled to it. I gave him other    to do. The wife is feeling really distressed about
options by contacting Micro grants and Money           it. I advised about applying for Council tax
works, he was so pleased as he can’t afford not to     reduction and gave her the link from the
have any income coming in for the next couple of       handbook about help with rent.
weeks. He was really please and thanked me for all
my assistance.                                         Case was trying to access the £500 support, but
                                                       the team who authorise the payment are telling
                                                       her as the track and trace haven’t completed
Spoke to a gentleman who had COVID. He has no          something on the system to show that she has
recourse to public funds, has 3 kids and was really    engaged with them (I imagine her CTAS is not
worried about how his family will feed themselves      showing as complete) she could not obtain the
during isolation. I gave him the COVID-19 help line    grant. We managed to find her in our system,
number and referred him to Newham Food Alliance        complete CTAS with her and give her the 8
and for an emergency micro grant.                      character number required to re-apply for the
                                                       grant which was successful.
Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
Test, Trace, Isolate insights

Research objectives

1.   To understand residents’ thoughts and experiences of the COVID-19 test,
     trace, and isolate journey: what helps, what gets in the way

2.   To use this knowledge to identify practical steps that can be taken at a local
     level and, where required, at a national policy level to enable residents to
     engage with test, trace, isolate

This research was routed in our everyday experience of developing locally the
test, trace, isolate support system

The focus of this presentation is to share residents thoughts and experiences of
what helps, what gets in the way of being able to isolate if they have COVID-19 or
are a contact of someone with COVID-19
Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
About Newham
•     The population of Newham is relatively young, highly diverse, often substantially deprived
      with a high degree of mobility
•     Weekly earnings (median) are lower for residents in Newham than London
       • Newham’s Household Panel Survey established that (pre-pandemic), 27% of
           employees in the borough are paid under the national statutory minimum wage,
           which was approx. 36,000 residents in 2018
•     The borough’s residents have great ethnic diversity and residents from many different
      ethnic groups make up ≈70% of the overall population of Newham
                  Ethnicity in Newham                        Gross median weekly pay - 2020
           Source: GLA Population Projections                       Source: NOMIS
                          2021                        800
    100%                                              600
     80%                                             £ 400
     60%
                                                      200
     40%
                                                        0
     20%
                                                               Full Time Workers    Part Time Workers
      0%
             Asian   White   Black   Mixed   Other                   Newham        London
Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
Research methods
                                Survey
Focus Groups
• Total of 3 focus groups (25   • 129 surveys completed
  participants including some   • Mix of close-ended and open ended
  repeat)
                                  questions
• Participants were Newham
  Health Champions              • Dec 2020 – survey was completed by
                                  residents via various dissemination routes
• Themes from focus groups
  helped inform survey            including VCFS organisations, LBN social
  questions                       media, Health Champions
                                • Dec/Jan 2021 – survey was completed by
                                  residents who telephoned Newham’s COVID-
                                  19 Helpline
Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
Overview of survey responses:
demographics
          Responses by ethnicity             • Total of 129 residents responded to the
      compared to Newham population            survey.
50%                                          • Around two-thirds of the participants were
40%                                            female (61%).
30%                                          • Three-quarters of the participants were
20%                                            between 19 and 60 years old, and 16%
10%                                            were over 60.
0%                                           • People of White ethnicity were over-
      Asian Black White Mixed Other Prefer     represented (36% of participants compared
                                    not to     to 28% of Newham population).
                                     say
                                             • People of Asian ethnicity were under-
        Responses   Newhampopulation           represented at 28% compared to 45% of
                                               Newham population.
Overview of Focus groups:
demographics

          Focus Group Participants
                                              • A total of 25 Newham residents
35%
                                                participated in the focus groups.
30%
25%                                           • Just over half (56%) of the participants
20%                                             were female.
15%   30.8%
              23.1%
10%                                           • Over half of the participants identified
                      15.4%   15.4%   15.4%
5%                                              as Black British / Black African (54%), a
0%                                              third were White (31%), and 15% were
                                                British Bangladeshi.
Insights from the Focus Groups
What helps/what gets in the way of being able to
isolate if they have COVID-19, or are a contact of
              someone with COVID-19
Focus Groups - What gets in the
way of being able to isolate?
When asked for their thoughts and experiences of what gets in the way of being able to
isolate if they have COVID-19, or are a contact of someone with COVID-19 the main
themes mentioned by Newham residents (in 3 focus groups) included:

Focus group themes: what gets in the way of being able to                No. of times
isolate?                                                                 mentioned

Lack of support (in many contexts including from employers, need 15
of food deliveries, financial fears, fear of losing employment)
Mental wellbeing impacts of isolation/the virus itself                   12

Fear of break-up of families incl. how to cope, and the logistical       8
implications of isolation on living arrangements (e.g. space
needed to isolate within households)
Focus Groups - What helps/ what gets in the
way of being able to isolate?
 Unravelling the themes – what residents said

 Lack of support: Financial worries and fear of loosing employment
     • “I think the self-employed particularly… if you're on a low income, then
       you don’t turn up for work, you’re the first on the list to be sacked”

     • “If the person had income like a month to a thousand or two thousand
       pound and if he leaves the job because of self-isolating all those things
       and I don't think so, 500 pound will be enough for him. I think it's very
       little amount to survive, you know.”

     • “I think a really big thing is money, frankly, if you know, you have no
       savings and you're relying on your income and you're employed, not
       retired, so you don't have a pension, you have very little option but to go
       out there and earn the money”
Focus Groups - What helps/ what gets in the
way of being able to isolate?
Unravelling the themes – what residents said

Lack of support: Need for help with food deliveries etc.
     • “Daily shopping such as bread and milk, letters that need posting, items
       needed from the pharmacy, getting the dog to the vets”

     • “ We were not ill but we had help from friends and our fridge has never
       been so full”

Lack of support from employers: Speaking about the reaction of their employer when their
child needed to isolate as a close contact and developed mild symptoms:

“I said, any chance I can get 14 days leave or like self-isolation. They said no, as long
as you don't have any symptoms and said, I can't lie to them if I don't develop any
symptoms. I can't lie that I developed symptoms since I didn't have anything….
Focus Groups - What helps/ what gets in the
way of being able to isolate?

Cont. Unravelling the themes – what residents said

Impact of isolation and the virus itself on mental wellbeing

     • “When her isolation period was finished, she felt that she needed to stay in
       isolation because her neighbours….let other people know that she had the
       virus and she felt embarrassed…. she really is struggling with getting
       back outside.”

     • “When she was in self-isolation, my child, because she's still little, so she
       was in the in her room and she was very upset because we didn't give her
       any chance to see us, because she was restricted… So she felt very upset in
       that room… me and my wife cried…”
Focus Groups – Implications for
getting tested
 During the conversations with focus group participants the themes which emerged
 around what gets in the way of being able to isolate also plays a role in deterring people
 from getting tested. For example, fear of loosing employment and not being able to
 afford to isolate deters people from getting tested.

 As one resident commented:

 “And I was telling him….have you or got any symptoms of COVID? And they say to
 me, Oh yeah, I got I think I got it. And I said why you not calling NHS for any
 testing. And he said, no, I don't want to because in case I'm positive what I have
 to self-isolate. And also I couldn't do that because I am under no [recourse] to
 public fund and I don't get any benefits. So if I lose my job I have how can I
 survive? How my family can survive…”
Insights from the Survey
What helps/what gets in the way of being able to
isolate if they have COVID-19, or are a contact of
              someone with COVID-19
What would help residents to
 isolate?
           What would help people to better self-isolate                      • Three-quarters (76%) of people
                     because of COVID-19?                                       responded said a guarantee that they
                             n=129
100%                                                                            would not lose their job would make
                                                                                them more likely to isolate.
80%      76%      73%
                                                                              • Support with shopping was also
60%                                                                             selected by three-quarters (73%) of
                            44%       43%                                       respondents.
                                               40%
40%                                                     33%
                                                                                  • 57 people (44%) mentioned that
20%                                                                                 better financial support would help
                                                                 2%         1%      them isolate, 43% mentioned
 0%
       Guarantee Someone Better      Childcare Someone Shorter   Other   N/A-Don't  childcare, 40% would like someone to
       they wont to help     money    support to talk to time              know
       lose their with                         about my                             talk to
          job     shopping                      worries
                 and all the
                    other
                                                                              • A third of respondents felt a shorter
                   things                                                       isolation time would help them
“Guarantee they won’t lose their job”

       Proportions within socioeconomic status                             Who was most concerned about this?
                       groups
100%                                                                       • 86% of young people (19-30 yrs.
                       83%                                     86%
                                                                             old) who responded selected
 80%      72%                       75%
                                                                             guarantee they won’t lose their job,
                                                   62%
 60%
                                                                             which was highest among all
                                                                             working age groups.
 40%
                                                                           • 83% of respondents who identified
 20%                                                                         as Full time self employed and 72%
                                                                             of Full time, employed selected
 0%
        Full time,   Full time,    Part time,     Retired, Prefer not to
                                                                             this.
        Employed        Self      Furloughed     Student,       say
                     employed                   Homemaker
“Someone to help with shopping
  and all other things that need doing”
  Who was most concerned about this?
  • Nearly all residents aged 61 and over who responded to the survey selected help with
    shopping and all other things. However, all age groups rated this highly.

  • Shopping and help with other things that need doing was raised as an issue by around
    three quarters of respondents regardless of household size.
                   Percentage age bands                             Percentage within household size groups
      (showing number concerned out of all respondents)              (showing number concerned out of all
                               75%                                              respondents)
Prefer not to say                                            100%
                             (n=6/8)
             71+            80% (n=4/5)                       80%
                                                              60%
           61-70            94% (n=15/16)                                 78%            67%            75%
                                                              40%
                              67%                             20%       n=42/55        n=39/58        n=12/16
           41-60
                           (n=36/54)
                              69%                              0%
           19-40
                           (n=29/42)
                               75%                                   1 or 2 people   3 to 5 people    6 or more
        Under 18                                                                                       people
                             (n=3/4)
                    0%   20%    40%    60%     80%    100%                           Household size
What gets in the way of being able
to isolate
        What do you think gets in the way of people                                                                                                                                                                                                                •   69 people (54%) who responded said
       being able to isolate (stay at home) if they have
                                                                                                                                                                                                                                                                       “can’t get sick pay/£500 support
         COVID-19 or are a contact of someone with
100%                      COVID-19?                                                                                                                                                                                                                                    payment” gets in the way of being able
                             n=129                                                                                                                                                                                                                                     to isolate
80%     71%
             60%
                   54% 50%
                                                                                                                                                                                                                                                                   •   Half of respondents said that caring
60%
                              43% 43% 43%                                                                                                                                                                                                                              responsibilities gets in the way of being
40%                                           33% 29%                                                                                                                                                                                                                  able to self isolate
20%                                                                                                                                                                                                                           13%
                                                                                                                                                                                                                                                           4%
                                                                                                                                                                                                                                                                   •   For 55 respondents (43%) the stress of
 0%                                                                                                                                                                                                                                                                    isolating got in the way of being able to
                                                                                Child care or other…

                                                                                                                                                Sick pay /£500 not…

                                                                                                                                                                      Scared of people finding…

                                                                                                                                                                                                  It's too long 10 days or…

                                                                                                                                                                                                                              10 days is OK, 14 days is…
         Scared of losing job

                                                                                                       It's too stressful
                                                     Can't get sick pay /£500

                                                                                                                                                                                                                                                           Other
                                Need to earn money

                                                                                                                            Don't feel unwell

                                                                                                                                                                                                                                                                       isolate
                                                                                                                                                                                                                                                                   •   43% felt not feeling unwell could
                                                                                                                                                                                                                                                                       prevent people from isolating
                                                                                                                                                                                                                                                                   •   A third of people said they were scared
                                                                                                                                                                                                                                                                       of others finding out, and 29% found
                                                                                                                                                                                                                                                                       the isolation period too long
“Can’t get sick pay/£500 support
payment”
Who was most concerned about this?
• “Not being able to get sick pay or the £500 support payment” was selected as a barrier to
  isolating by over half of working age residents (19-60 years old).
•     Around half of all residents, regardless of employment status selected “Can’t get sick
      pay/£500 support payment” as barrier to isolating.
                                                                             Percentage within age bands
      Proportions within socioeconomic status groups                    (showing number out of all respondents)
70%
                    58.30%                          57.10%      100%
60%     55.60%
                                          50.00%
50%                                                             80%
                               41.70%
40%                                                             60%
30%
                                                                40%                            67%         63%
20%                                                                                  52%    (n=14/21)     (n=5/8)
10%                                                             20%      25%      (n=50/96)
 0%                                                              0%    (n=1/4)
       Full time,   Full time, Part time, Retired, Prefer not
       Employed        Self    Furloughed Student,   to say
                                                                       Under 18    19-60        61+     Prefer not
                    employed             Homemaker                                                        to say
“Childcare and other caring
responsibilities”
         Percentage within household size groups
          (showing number concerned out of all                             Who was most concerned about this?
                     respondents)
  100%                                                                     •   Childcare was identified as a barrier by
   80%                                                                         all age groups. This was true for nearly
   60%
                                                       75%
                                                                               half of respondents.
   40%
                49%                45%              (n=12/16)
   20%       (n=27/55)          (n=26/58)
                                                                           •   Three quarters of residents with
    0%                                                                         households of 6 or more people
             1 or 2 people      3 to 5 people     6 or more people
                                                                               selected this option as a barrier to
      Proportions within socioeconomic status groups
                                                                               isolation.
80%
                                                 61.80%
60%                  54.20%                                   50.00%       •   Over half of Full time, self employed
40%                               33.30%                                       and nearly two thirds of residents who
      22.20%
20%                                                                            identified as retired, student or
0%
                                                                               homemaker selected childcare and
      Full time,   Full time, Self Part time,     Retired, Prefer not to       other caring responsibilities as a barrier
      Employed       employed Furloughed         Student,       say
                                                Homemaker                      to isolating.
Conclusions

This rapid assessment set out to understand what helps and what gets in the way
of residents being able to isolate.

We carried out a survey of 129 residents and 25 health champions took part in
focus groups. The main conclusions were as follows:

1.   Residents were most concerned about loss of job and financial security.

2.   Isolation is impacting the mental well being of Newham residents.

3.   There is a tension between isolating and meeting everyday needs (e.g.
     shopping, caring responsibilities etc.).

4.   Reluctance to get tested is linked to concerns over the impact on earnings and
     job security of isolating.
Next steps

Action is needed at both national and local levels:

• Job security needs to be improved and all residents should expect to have the
  living wage.

• The national support payment to isolate should be in line with the Furlough
  scheme (i.e. 80% of salary or £500 whichever is the higher amount). A narrow
  conversation about eligibility of the support payment is insufficient.

• A locally run Self Isolation Support Service would ensure that all positive cases
  receive regular welfare calls to give advice and link to support (incl. mental
  health support services, Newham Food Alliance, Befriending Service etc.).

Similar insights could be gathered across the country to improve the scale and
validity of the findings.
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