Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self-isolate? ...
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Insights to understand residents thoughts and experiences of Test, Trace, Isolate What helps, what gets in the way of being able to self- isolate? London Borough of Newham University of East London 1 February 2021
Case Examples I spoke to a gentlemen on Tuesday he is a family of Spoke to couple (60 & 62) who mentioned that 8, he has just started a new job and is on probation they need help with rent payment as the and so is not entitled to sick pay. He made an husband is self-employed and they have never application for £500 isolation payment and was claimed any benefit before so do not know what informed he wasn’t entitled to it. I gave him other to do. The wife is feeling really distressed about options by contacting Micro grants and Money it. I advised about applying for Council tax works, he was so pleased as he can’t afford not to reduction and gave her the link from the have any income coming in for the next couple of handbook about help with rent. weeks. He was really please and thanked me for all my assistance. Case was trying to access the £500 support, but the team who authorise the payment are telling her as the track and trace haven’t completed Spoke to a gentleman who had COVID. He has no something on the system to show that she has recourse to public funds, has 3 kids and was really engaged with them (I imagine her CTAS is not worried about how his family will feed themselves showing as complete) she could not obtain the during isolation. I gave him the COVID-19 help line grant. We managed to find her in our system, number and referred him to Newham Food Alliance complete CTAS with her and give her the 8 and for an emergency micro grant. character number required to re-apply for the grant which was successful.
Test, Trace, Isolate insights Research objectives 1. To understand residents’ thoughts and experiences of the COVID-19 test, trace, and isolate journey: what helps, what gets in the way 2. To use this knowledge to identify practical steps that can be taken at a local level and, where required, at a national policy level to enable residents to engage with test, trace, isolate This research was routed in our everyday experience of developing locally the test, trace, isolate support system The focus of this presentation is to share residents thoughts and experiences of what helps, what gets in the way of being able to isolate if they have COVID-19 or are a contact of someone with COVID-19
About Newham • The population of Newham is relatively young, highly diverse, often substantially deprived with a high degree of mobility • Weekly earnings (median) are lower for residents in Newham than London • Newham’s Household Panel Survey established that (pre-pandemic), 27% of employees in the borough are paid under the national statutory minimum wage, which was approx. 36,000 residents in 2018 • The borough’s residents have great ethnic diversity and residents from many different ethnic groups make up ≈70% of the overall population of Newham Ethnicity in Newham Gross median weekly pay - 2020 Source: GLA Population Projections Source: NOMIS 2021 800 100% 600 80% £ 400 60% 200 40% 0 20% Full Time Workers Part Time Workers 0% Asian White Black Mixed Other Newham London
Research methods Survey Focus Groups • Total of 3 focus groups (25 • 129 surveys completed participants including some • Mix of close-ended and open ended repeat) questions • Participants were Newham Health Champions • Dec 2020 – survey was completed by residents via various dissemination routes • Themes from focus groups helped inform survey including VCFS organisations, LBN social questions media, Health Champions • Dec/Jan 2021 – survey was completed by residents who telephoned Newham’s COVID- 19 Helpline
Overview of survey responses: demographics Responses by ethnicity • Total of 129 residents responded to the compared to Newham population survey. 50% • Around two-thirds of the participants were 40% female (61%). 30% • Three-quarters of the participants were 20% between 19 and 60 years old, and 16% 10% were over 60. 0% • People of White ethnicity were over- Asian Black White Mixed Other Prefer represented (36% of participants compared not to to 28% of Newham population). say • People of Asian ethnicity were under- Responses Newhampopulation represented at 28% compared to 45% of Newham population.
Overview of Focus groups: demographics Focus Group Participants • A total of 25 Newham residents 35% participated in the focus groups. 30% 25% • Just over half (56%) of the participants 20% were female. 15% 30.8% 23.1% 10% • Over half of the participants identified 15.4% 15.4% 15.4% 5% as Black British / Black African (54%), a 0% third were White (31%), and 15% were British Bangladeshi.
Insights from the Focus Groups What helps/what gets in the way of being able to isolate if they have COVID-19, or are a contact of someone with COVID-19
Focus Groups - What gets in the way of being able to isolate? When asked for their thoughts and experiences of what gets in the way of being able to isolate if they have COVID-19, or are a contact of someone with COVID-19 the main themes mentioned by Newham residents (in 3 focus groups) included: Focus group themes: what gets in the way of being able to No. of times isolate? mentioned Lack of support (in many contexts including from employers, need 15 of food deliveries, financial fears, fear of losing employment) Mental wellbeing impacts of isolation/the virus itself 12 Fear of break-up of families incl. how to cope, and the logistical 8 implications of isolation on living arrangements (e.g. space needed to isolate within households)
Focus Groups - What helps/ what gets in the way of being able to isolate? Unravelling the themes – what residents said Lack of support: Financial worries and fear of loosing employment • “I think the self-employed particularly… if you're on a low income, then you don’t turn up for work, you’re the first on the list to be sacked” • “If the person had income like a month to a thousand or two thousand pound and if he leaves the job because of self-isolating all those things and I don't think so, 500 pound will be enough for him. I think it's very little amount to survive, you know.” • “I think a really big thing is money, frankly, if you know, you have no savings and you're relying on your income and you're employed, not retired, so you don't have a pension, you have very little option but to go out there and earn the money”
Focus Groups - What helps/ what gets in the way of being able to isolate? Unravelling the themes – what residents said Lack of support: Need for help with food deliveries etc. • “Daily shopping such as bread and milk, letters that need posting, items needed from the pharmacy, getting the dog to the vets” • “ We were not ill but we had help from friends and our fridge has never been so full” Lack of support from employers: Speaking about the reaction of their employer when their child needed to isolate as a close contact and developed mild symptoms: “I said, any chance I can get 14 days leave or like self-isolation. They said no, as long as you don't have any symptoms and said, I can't lie to them if I don't develop any symptoms. I can't lie that I developed symptoms since I didn't have anything….
Focus Groups - What helps/ what gets in the way of being able to isolate? Cont. Unravelling the themes – what residents said Impact of isolation and the virus itself on mental wellbeing • “When her isolation period was finished, she felt that she needed to stay in isolation because her neighbours….let other people know that she had the virus and she felt embarrassed…. she really is struggling with getting back outside.” • “When she was in self-isolation, my child, because she's still little, so she was in the in her room and she was very upset because we didn't give her any chance to see us, because she was restricted… So she felt very upset in that room… me and my wife cried…”
Focus Groups – Implications for getting tested During the conversations with focus group participants the themes which emerged around what gets in the way of being able to isolate also plays a role in deterring people from getting tested. For example, fear of loosing employment and not being able to afford to isolate deters people from getting tested. As one resident commented: “And I was telling him….have you or got any symptoms of COVID? And they say to me, Oh yeah, I got I think I got it. And I said why you not calling NHS for any testing. And he said, no, I don't want to because in case I'm positive what I have to self-isolate. And also I couldn't do that because I am under no [recourse] to public fund and I don't get any benefits. So if I lose my job I have how can I survive? How my family can survive…”
Insights from the Survey What helps/what gets in the way of being able to isolate if they have COVID-19, or are a contact of someone with COVID-19
What would help residents to isolate? What would help people to better self-isolate • Three-quarters (76%) of people because of COVID-19? responded said a guarantee that they n=129 100% would not lose their job would make them more likely to isolate. 80% 76% 73% • Support with shopping was also 60% selected by three-quarters (73%) of 44% 43% respondents. 40% 40% 33% • 57 people (44%) mentioned that 20% better financial support would help 2% 1% them isolate, 43% mentioned 0% Guarantee Someone Better Childcare Someone Shorter Other N/A-Don't childcare, 40% would like someone to they wont to help money support to talk to time know lose their with about my talk to job shopping worries and all the other • A third of respondents felt a shorter things isolation time would help them
“Guarantee they won’t lose their job” Proportions within socioeconomic status Who was most concerned about this? groups 100% • 86% of young people (19-30 yrs. 83% 86% old) who responded selected 80% 72% 75% guarantee they won’t lose their job, 62% 60% which was highest among all working age groups. 40% • 83% of respondents who identified 20% as Full time self employed and 72% of Full time, employed selected 0% Full time, Full time, Part time, Retired, Prefer not to this. Employed Self Furloughed Student, say employed Homemaker
“Someone to help with shopping and all other things that need doing” Who was most concerned about this? • Nearly all residents aged 61 and over who responded to the survey selected help with shopping and all other things. However, all age groups rated this highly. • Shopping and help with other things that need doing was raised as an issue by around three quarters of respondents regardless of household size. Percentage age bands Percentage within household size groups (showing number concerned out of all respondents) (showing number concerned out of all 75% respondents) Prefer not to say 100% (n=6/8) 71+ 80% (n=4/5) 80% 60% 61-70 94% (n=15/16) 78% 67% 75% 40% 67% 20% n=42/55 n=39/58 n=12/16 41-60 (n=36/54) 69% 0% 19-40 (n=29/42) 75% 1 or 2 people 3 to 5 people 6 or more Under 18 people (n=3/4) 0% 20% 40% 60% 80% 100% Household size
What gets in the way of being able to isolate What do you think gets in the way of people • 69 people (54%) who responded said being able to isolate (stay at home) if they have “can’t get sick pay/£500 support COVID-19 or are a contact of someone with 100% COVID-19? payment” gets in the way of being able n=129 to isolate 80% 71% 60% 54% 50% • Half of respondents said that caring 60% 43% 43% 43% responsibilities gets in the way of being 40% 33% 29% able to self isolate 20% 13% 4% • For 55 respondents (43%) the stress of 0% isolating got in the way of being able to Child care or other… Sick pay /£500 not… Scared of people finding… It's too long 10 days or… 10 days is OK, 14 days is… Scared of losing job It's too stressful Can't get sick pay /£500 Other Need to earn money Don't feel unwell isolate • 43% felt not feeling unwell could prevent people from isolating • A third of people said they were scared of others finding out, and 29% found the isolation period too long
“Can’t get sick pay/£500 support payment” Who was most concerned about this? • “Not being able to get sick pay or the £500 support payment” was selected as a barrier to isolating by over half of working age residents (19-60 years old). • Around half of all residents, regardless of employment status selected “Can’t get sick pay/£500 support payment” as barrier to isolating. Percentage within age bands Proportions within socioeconomic status groups (showing number out of all respondents) 70% 58.30% 57.10% 100% 60% 55.60% 50.00% 50% 80% 41.70% 40% 60% 30% 40% 67% 63% 20% 52% (n=14/21) (n=5/8) 10% 20% 25% (n=50/96) 0% 0% (n=1/4) Full time, Full time, Part time, Retired, Prefer not Employed Self Furloughed Student, to say Under 18 19-60 61+ Prefer not employed Homemaker to say
“Childcare and other caring responsibilities” Percentage within household size groups (showing number concerned out of all Who was most concerned about this? respondents) 100% • Childcare was identified as a barrier by 80% all age groups. This was true for nearly 60% 75% half of respondents. 40% 49% 45% (n=12/16) 20% (n=27/55) (n=26/58) • Three quarters of residents with 0% households of 6 or more people 1 or 2 people 3 to 5 people 6 or more people selected this option as a barrier to Proportions within socioeconomic status groups isolation. 80% 61.80% 60% 54.20% 50.00% • Over half of Full time, self employed 40% 33.30% and nearly two thirds of residents who 22.20% 20% identified as retired, student or 0% homemaker selected childcare and Full time, Full time, Self Part time, Retired, Prefer not to other caring responsibilities as a barrier Employed employed Furloughed Student, say Homemaker to isolating.
Conclusions This rapid assessment set out to understand what helps and what gets in the way of residents being able to isolate. We carried out a survey of 129 residents and 25 health champions took part in focus groups. The main conclusions were as follows: 1. Residents were most concerned about loss of job and financial security. 2. Isolation is impacting the mental well being of Newham residents. 3. There is a tension between isolating and meeting everyday needs (e.g. shopping, caring responsibilities etc.). 4. Reluctance to get tested is linked to concerns over the impact on earnings and job security of isolating.
Next steps Action is needed at both national and local levels: • Job security needs to be improved and all residents should expect to have the living wage. • The national support payment to isolate should be in line with the Furlough scheme (i.e. 80% of salary or £500 whichever is the higher amount). A narrow conversation about eligibility of the support payment is insufficient. • A locally run Self Isolation Support Service would ensure that all positive cases receive regular welfare calls to give advice and link to support (incl. mental health support services, Newham Food Alliance, Befriending Service etc.). Similar insights could be gathered across the country to improve the scale and validity of the findings.
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