Evaluation of the efficacy of a South African psychosocial framework for the rehabilitation of torture survivors
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34 SCIENTIFIC ARTICLE Evaluation of the efficacy of a South African psychosocial framework for the rehabilitation of torture survivors Dominique Dix-Peek*, Merle Werbeloff** Abstract Key issues box: Introduction: To address the consequences • When treating torture survivors of past torture experiences as well as current in developing countries, it is traumas and daily stressors, the Centre for essential to consider the inherent the Study of Violence and Reconciliation stressors and daily traumas in these (CSVR) developed a contextually environments. appropriate psychosocial framework for • To assist with the psychosocial the rehabilitation of individuals who have impacts due to torture, an evidence- been affected by torture. Method: To test based, contextually appropriate the efficacy of this framework, a quasi- psychosocial rehabilitation experimental study was conducted with framework has been developed by torture survivor clients of the CSVR who the Centre for the Study of Violence met the 1985 United Nations Convention and Reconciliation. Against Torture (UNCAT) definition. A • Following a 3-month intervention comparison group of clients (n=38) was based on this psychosocial initially included on a waiting list and framework, torture survivors’ thereafter received treatment, whilst the anxiety and functioning improve, treatment group of clients (n=44) entered despite harsh contextual realities. straight into treatment. Results: Baseline • However, ethical complexities t-test comparisons conducted on 13 and high levels of participant outcome indicators revealed significantly attrition during longer therapeutic better initial psychological health and intervention present challenges functioning of clients in the treatment group T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 to experimental endeavours than those in the comparison group, with designed to test the efficacy of the moderately large differences on PTSD, rehabilitation framework. trauma and anxiety, and strong difference in depression scores. Three-month follow-up comparisons using the conservative Wilcoxon test revealed significantly greater *) Centre for the Study of Violence and Reconcilia- improvement on the functioning and anxiety tion (CSVR), South Africa indicators of the treatment group relative **) Wits School of Governance, University of the to the waiting-list comparison group (odds Witwatersrand, South Africa Correspondence to: ddixpeek@csvr.org.za ratios = 2.49 and 2.61 respectively). After a
35 SCIENTIFIC ARTICLE further three months, when treatment was presents this framework and describes a based on the CSVR framework for both quantitative study designed to examine groups, fewer than half the respondents the effectiveness of its use for torture remained in the study (n=20 in the rehabilitation.1 treatment group; n=16 in the comparison group), and the Wilcoxon repeated measures Torture and its consequences test results on changes since baseline were Torture is a gross human rights violation counter-intuitive: for these remaining clients, that distresses the individual, family, there were now more significant outcome community and society at large. Despite improvements for the comparison group a number of international conventions than for the treatment group. However, prohibiting torture and cruel, inhuman and the relative odds ratios for the groups degrading treatment (CIDT), torture is were not significant for these indicators. still practised in more than 140 countries Furthermore, the clients who dropped out internationally, and still widely practised in from the treatment group had shown overall Africa where it has been criminalised in only improvement in their psychological health 10 countries (Amnesty International, 2014). and functioning in the initial three months Sub-Saharan Africa hosts the largest number of the study, whereas those who dropped of refugees internationally, with South out from the comparison group had shown Africa receiving most of the asylum seekers improvements on fewer indicators. Thus, in Africa (McColl et al., 2010; UNHCR, the research findings on the efficacy of the 2015). Many of these people are likely to framework are inconclusive. Discussion: have been tortured in their country of origin We suggest that this inconclusiveness can or in transit (McColl et al., 2010). Within be explained by the severe challenges South Africa, current victims of torture and ethical complexities of psychosocial include youth in conflict with the law, non- research on vulnerable groups. The study nationals, and people who are in the wrong highlights the serious problem of attrition place at the wrong time (Bantjes, Langa, & of participants in the treatment programme Jensen, 2012; Langa, 2013). which affected the overall study, and which The consequences of torture may be may explain findings that at first appear categorised broadly as physical, psychological counter-intuitive. and social. The physical consequences may be complicated by the psychological Introduction consequences (Quiroga & Jaranson, Continuing traumas, daily stressors and 2005). Similarly, torture-related mental T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 trauma reactions from past traumas are health problems can cause physical and characteristic of torture survivors in social problems which impact on both the South Africa. Consequently, in 2013, personal and social functioning of survivors the Centre for the Study of Violence and Reconciliation (CSVR) based in Johannesburg, designed a contextually appropriate, evidence-based psychosocial 1 While the intervention was named a “model”, framework for guiding the long-term due to the multi-modal nature of the document, it was felt to be more representative to call it a rehabilitation of individual survivors of multi-modal framework for the rehabilitation of torture (Bandeira et al., 2013). This paper torture survivors.
36 SCIENTIFIC ARTICLE (Baird, Williams, Hearn, & Amris, 2016). Although the South African Constitution The physical sequelae of torture include (Republic of South Africa, 1996) and the pain - often chronic, disability and medical Refugee Act (Republic of South Africa, conditions (Harlacher, Nordin, & Polatin, 1998) provide basic civil and political 2016; Jørgensen, Auning-Hansen, & Elklit, rights such as free basic healthcare, 2017; Patel, Kellezi, & Williams, 2014). access to education and employment to The psychological consequences refugees and asylum seekers regardless of torture are often viewed in terms of of nationality and legal status, in reality posttraumatic stress disorder (PTSD) these constitutional rights may be denied and major depressive disorder (MDD) (Bandeira, 2013; Higson-Smith, 2013; (Harlacher et al., 2016; Higson-Smith, Langa, 2013; Patel et al., 2014; Quiroga 2013). Lesser acknowledged psychological & Jaranson, 2005). Refugees and asylum consequences include cognitive impairment, seekers experience high levels of crime decreased functioning, sleep disturbances, and violence, xenophobia and exploitation memory problems, attentional deficits and (Bandeira, Higson-Smith, Bantjes, & Polatin, anger. Co-morbid psychiatric conditions 2010; Higson-Smith, 2013; Langa, 2013; include depression, suicide, psychosis and Mohamed, Dix-Peek, & Kater, 2016), and substance abuse (Bandeira, 2013; Quiroga, the South African asylum-seeking process 2017; Quiroga & Jaranson, 2005). has been associated with inconvenience, The social consequences of torture cost and distress (Higson-Smith & Bro, impact on the social wellbeing of the 2010; Langa, 2013). Continuing traumas survivor. These effects include the loss of threaten the survival of many refugees and “employment, status, family and identity” asylum seekers through ongoing threats (Higson-Smith, 2013, p.165), separation from the police, government officials and from loved ones (Higson-Smith, 2013; community members, and through domestic Quiroga & Jaranson, 2005), the loss of violence, sexual violence and xenophobia functioning and safety, and loss of cultural (Higson-Smith, 2013; Mohamed et al., and community connections (Higson- 2016). Such traumas “may influence the Smith, 2013). way that survivors respond or adapt to their precarious circumstances, but it is the Living in contexts of continuing threat circumstances themselves that produce and and daily stress maintain the client’s psychological state” Vulnerability to mental health challenges (Higson-Smith, 2013, p. 166). Fear, anger has been linked to pre-migratory exposure and distress, emotional collapse, helplessness T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 to war trauma and torture, the migration and hopelessness (Bandeira, 2013; Kaminer process itself, and the post-migratory & Eagle, 2010) are associated with daily stressors of host countries which include stressors of documentation problems, poverty and inadequate housing, and concerns over the health and schooling of difficulties with asylum procedures family members, accommodation problems, (Bogic, Njoku, & Priebe, 2015; Buhmann, unemployment, poverty, loss of social and Mortensen, Nordentoft, Ryberg, & material support, ostracism and lack of Ekstrøm, 2015; Jaranson & Quiroga, security (Bandeira et al., 2010; Higson- 2011; Jørgensen et al., 2017; Stammel et Smith, Mulder, & Masitha, 2007; Miller & al., 2017). Rasmussen, 2010).
37 SCIENTIFIC ARTICLE Research on treatment approaches for and educational groups (Phaneth, Panha, torture survivors Sopheap, Harlacher, & Polatin, 2014). There are few scientific research studies Furthermore, the literature reviewed indicates on the treatment of torture survivors as a strong prevalence of European and North clinicians are inclined to prioritise direct American studies on the rehabilitation of services to clients over research processes. torture survivors, with few outcome studies Ethical concerns of differential treatment based in Africa. There is clear need for of clients in control trials (Jaranson & scientific/ experimental research in this area Quiroga, 2011; Stammel et al., 2017), the of work in an African context. expense of scarce resources of rehabilitation programmes (Bandeira, 2013), and The CSVR multi-modal framework for generalisability of study results (Pérez-sales, the psychosocial rehabilitation of Witcombe, & Otero Oyague, 2017) are individual survivors of torture among the challenges of outcome studies. Given the dire contextual realities in which The few experimental or quasi- many torture survivors live, research on experimental designs on torture survivors the effectiveness of treatment frameworks are usually affected by small sample sizes, needs to include psychological and social the lack of control groups (Jaranson & health as consequences of torture (Patel, Quiroga, 2011) and instruments with Kellezi, & Williams, 2014) in addition to the limited validity and reliability often focused usual consequences of PTSD and MDD only on improvement in PTSD and MDD (Bandeira, 2013; Higson-Smith, 2013). (Jaranson & Quiroga, 2011). Meta-analyses Accordingly, the Centre for the Study of randomised control trials illustrate of Violence and Reconciliation (CSVR) improvements of generally small effect developed a multi-modal guiding framework sizes in PTSD and depression when using for the rehabilitation of individual torture Cognitive Behavioural Therapy (CBT) survivors that takes into account their lived and Narrative Exposure Therapy (NET), realities of continuing traumas and ongoing with moderate improvement on follow-up daily stressors (Bandeira et al., 2013). (Patel et al., 2014). However, exceptional The development of the multi-modal experimental studies do exist, with substantial CSVR model, hereafter referred to as the improvements found using the Common CSVR framework, was based on a literature Elements Treatment Approach, compared search, analysis of intervention process notes to the less effective Cognitive Processing of CSVR clinical staff, and a Delphi process Therapy (Weiss et al., 2015). Quasi- for expert consensus on the most severe T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 experimental and outcome research on the impacts of torture and the most appropriate rehabilitation of torture survivors provides methods of torture intervention in a South further support for CBT (Halvorsen & African context. There was consultation Stenmark, 2010; Neuner et al., 2010) and between the research and clinical teams NET (Dibaj, Overaas Halvorsen, Edward on the categorisation of the impacts, their Ottesen Kennair, & Inge Stenmark, 2017; assessment and the most appropriate Hansen, Hansen-Nord, Smier, Engelkes- intervention approaches. As a result, the Heby, & Modvig, 2017), culturally tailored CSVR framework comprises the 18 most health promotion intervention (Berkson, severe impacts of torture (14 after grouping Tor, Mollica, Lavelle, & Cosenza, 2014) the impacts) in contexts such as those found
38 SCIENTIFIC ARTICLE in South Africa, and the most appropriate Given the reality of unsafe intervention strategies associated with each circumstances, it may be appropriate that (Table A - 1, numbered alphabetically per clients’ reactions include paranoia and area). Aspects of trauma-focused CBT hypervigilance. The clinical approach (TFCBT), NET, dialectical behavioural outlined in the framework uses reality therapy, supportive therapy, problem solving testing, dealing with perceived threats, and solution-focused therapy underpin safety planning, skills development therapeutic interventions in the framework, and symptom management to assist with an emphasis on empowerment. As such, clients to reduce repeated victimisation the framework is considered to be multi- and increase their skills to ensure their modal and informed by mutiple theories. continued safety. Many centres adopt a multi-disciplinary, • Continuing traumas while dealing with multi-modal, or “common-sense” approach past traumas and torture experiences: to psychosocial interventions (Pérez-sales The framework provides guidelines et al., 2017) in which the therapist chooses on how clinicians may help clients from different modalities according to understand their reactions to past the needs of the torture survivors. These traumas and how these reactions relate approaches provide a more meaningful to their responses to the ongoing traumas personalisation of the survivors’ needs, that may affect them. which together with a clear therapeutic • Managing relationships with service relationship and culturally tailored goals, providers, family members and may be more appropriate than a rigid community members: “one-size-fits-all” therapeutic model. The framework provides guidelines While there are several multi-modal on how clinicians may assist clients to treatment approaches for assisting torture deal with their emotional reactions to survivors (Drozdek, 2015; Stammel et al., traumas, and to build the social capital 2017), the CSVR framework offers clearly necessary to maintain relationships and articulated therapeutic guidance relevant obtain services, for example, medical and to South African and developing contexts. legal assistance or documentation from For example, it provides clear outlines the Department of Home Affairs. for the role of clinicians in attending to the therapeutic needs of clients, and for Research design the “core business” of the CSVR clinical The design of the current research is team, both essential therapeutic elements described as quasi-experimental. It T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 for maintaining therapeutic boundaries, comprises two groups of participants, empowering clients and increasing their both groups observed over six months resilience. Although it is assumed that what but differentiated according to when their the client brings to therapy will be the participants approached the Centre, when focus of the session, the CSVR framework they commenced treatment with the CSVR provides guidelines on how to assist clients framework, and the duration of treatment when certain needs arise, for example: based on the CSVR framework (Figure 1). • Lack of safety, repeated victimisation The ‘treatment’ group comprised clients and high levels of violence in a South who came for counselling between July 2014 African context: and December 2015 and were treated based
39 SCIENTIFIC ARTICLE on the CSVR framework for six months. The for the comparison group. Secondly, it was ‘comparison’ group comprised clients who hypothesised that there would be greater came for counselling at the Centre between improvement in the psychological and January and June 2014 and were placed on functioning measurements from T1 to T3 for a 3-month ‘Waiting list’ condition before the treatment group than for the comparison commencing three months of treatment group, as the treatment group received based on the CSVR framework. treatment based on the CSVR framework Psychological wellbeing and functioning for six months, while the comparison group were measured three times: participants received this treatment for three months in the treatment group were measured only following the 3-month waiting list before the start of the CSVR intervention condition. treatment (T1), three months after the start of CSVR framework treatment (T2), and Methods after a further three months of the CSVR Procedure framework treatment (T3); participants in The treatment group received treatment the comparison group were measured before based on the CSVR framework for six the start of a 3-month waiting period (T1), months; the comparison group received an at the end of the 3-month waiting period initial 3-month waiting condition before (T2), and then three months after the start receiving treatment based on the CSVR of the CSVR framework treatment (T3) (see framework for three months. Figure 1). In the 3-month waiting condition, a Written informed consent was obtained clear waiting list management took place. A from all participants. Ethical clearance trained trauma professional phoned clients was provided by an internal CSVR ethics in the comparison group every two weeks committee as well as by external experts in to check that they still wanted to come the violence and/or torture field, including a for counselling, and to refer clients for lecturer at a Johannesburg-based university medical, legal and humanitarian assistance and two partners working at international if necessary. This condition compared with NGOs providing services to survivors of clients who went straight into treatment torture. This approach to ethical clearance using the CSVR framework (see The was necessary as there is no overarching CSVR multi-modal framework for the national ethics body in South Africa, and psychosocial rehabilitation of individual CSVR is not affiliated with a university. survivors of torture, on page 37). Emergency cases in both groups (clients T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 Hypotheses experiencing psychosis, who were suicidal As the treatment group received specialised or other emergencies) were contained counselling for the first three months and referred for psychiatric assistance at a and the comparison group received less local hospital, or for medication from the specialised communication (as part of the consultant psychiatrist at the CSVR. waiting list protocol) for their first three Baseline measures were carried out months, it was hypothesised that there using the same instrument at the start of the would be greater improvement in the CSVR treatment condition of the treatment psychological and functioning measurements group, and at the start of the waiting time from T1 to T2 for the treatment group than condition of the comparison group (T1). A
40 SCIENTIFIC ARTICLE second set of measures was carried out three i.e. six months after commencement of the months after commencement of the CSVR CSVR condition of the treatment group, and condition of the treatment group, and three three months after commencement of the months after the start of the waiting time CSVR condition of the comparison group condition of the comparison group (T2). A (T3) - see Figure 1. third set of measures was carried out three Every two weeks, clinicians participated months after the second set of measures, in supervision sessions which focused T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 Figure 1: Study procedure
41 SCIENTIFIC ARTICLE both on fidelity to the framework as well (waiting list) baseline (T1), were included in as guidance with therapeutic concerns. the waiting list group, and had also Supervisors ensured that clinicians followed completed a treatment baseline (T2). At T3, the framework and concurrently documented 16 participants from this group remained, which aspects of the framework were utilised having completed the waiting list baseline, using a fidelity checklist. Any difficulties with treatment baseline and 3-month follow-up the implementation of the framework were assessment, and these 16 were included in discussed with the researchers and indicated the follow-up study (Figure 1). in the fidelity checklist. Assessment measures: The assessment tools used for all clients at T1, T2 and T3 Participants included the Harvard Trauma All participants were selected according Questionnaire (HTQ) measuring to the 1985 UNCAT definition of torture posttraumatic stress disorder (PTSD), (United Nations General Assembly, 1985) clients’ self-perception of functioning and and were over 18 years old. No substantial overall trauma (Harvard Program in historical events were noted for the 6-month Refugee Trauma, 1992), the Hospital period that separated the groups. Anxiety and Depression Scale (HADS) Participants in the treatment group: The measuring anxiety and depression participants in the treatment group were (Zigmond & Snaith, 1983), the De Jong selected from clients who approached the Gierveld Loneliness Scale measuring CSVR between 1 July 2014 and 30 December clients’ emotional loneliness and social 2015. Over this period, 197 clients were loneliness (de Jong Gierveld & Van Tilburg, screened, and 24 clients excluded based on the 2006), the number of areas of pain in the UN torture definition, and a further 129 body,2 and management of aspects of clients excluded due to incomplete T1 or T2 functioning.3 Reliability measures are outcome measures. Thus 44 clients had presented in Table A - 2.4 completed both their baseline assessment and a All assessments were administered by three-month follow-up and were included in trained psychologists or social workers. the treatment group. Of this group, 20 Translation through interpretation was completed their six-month follow-up and were included in the follow-up study (Figure 1). Participants in the comparison group: The 2 The total number of areas of pain was based on participants in the comparison group were the areas of pain in the body pointed out or indi- selected from clients who approached the cated verbally. T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 3 For management of aspects of functioning, four CSVR from January to June 2014. Over this Likert-type scaled questions were adapted from period, 87 clients were screened, 66 of whom the International Classification of Pain and met the inclusion criteria for the waiting list Disability (ICF) (WHO, 2001): Family-related group, with 21 excluded as they had not stressors, External stressors (excluding family- related stressors), Managing situations that made experienced torture according to the UN the client angry, and Psychological or emotional torture definition. A further 28 clients were functioning. Scale responses ranged from manag- then excluded as they had not completed a ing very poorly, to managing very well. follow-up assessment, leaving 38 clients as 4 As Cronbach’s coefficient α is correlated with the number of items in the scale, average inter-item participants in the comparison group. These correlations are also presented as their values are 38 clients had completed a comparison independent of scale length (Table A - 2).
42 SCIENTIFIC ARTICLE provided to clients in the main languages of Finally, post hoc analyses were used clients who come to the clinic. These include to examine the effects of the higher than French, Swahili, Amharic, Somali and expected attrition rate of respondents of the Lingala. All interpreters were trained on the two groups who dropped out of the study assessment tools. after T2, i.e. during the 3-month counselling Analysis methods: Initially the baseline period between T2 and T3. This comparison (T1) psychological and functioning was deemed necessary to examine whether measurement means of the treatment and a systematic bias may have been added to comparison groups were compared using the data at T3, should the participants who t tests and Cohen’s d effect sizes, and left the comparison group after T2 differ categorical variables compared via the Chi from the participants who left the treatment square test. Thereafter the mean changes group after T2. Such a situation would bias of the two groups were compared for the the samples and the results of the T1-T3 first three months (T1 to T2) and then comparison relevant to the second hypothesis. for the six month period (T1 to T3) via This analysis was a simple examination of mixed analysis of variance (ANOVA).5 In the demographics, as well as of the direction both cases, the ANOVA interaction effects of the mean differences for each scale from were examined for evidence of a significant T1 to T2 for the participants in each group differential pattern in the mean scores across who dropped out after T2. No other post hoc the time periods depending on the group, analyses on the results are presented. and partial eta-squared effect sizes were used as measures of the strength of differences. Results Where necessary, the Scheffé post hoc test Table 1 shows details of the participant was used to locate significant differences characteristics for both groups. between means. In view of the multiple Approximately half of the participants were violations of the assumptions of the mixed male, fewer than 10% were South Africans, ANOVA analyses, the conservative non- and the dominant groups were from Congo parametric Wilcoxon signed-ranks test was (DRC), Ethiopia and Somalia. Over half used on the separate groups. In addition, the were living with a partner, spouse, family odds ratio was used to indicate effect sizes member or friend, approximately 80% were for the individual groups, and for assessing either asylum seekers or refugees, and fewer the odds of improvement in the treatment than half of the participants of each group group relative to the comparison group.6 had experienced torture within the past year in each group (a third of the comparison T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 versus 39% of the treatment group). Before 5 Ideally, mixed multivariate Analyses of Variance the torture, 5% or fewer were unemployed (MANOVA) would be computed on the compo- whereas approximately three-quarters or nents of the scales to detect multivariate response more were unemployed at the start of the patterns, while controlling the family-wise Type 1 study. The ages of the participants ranged error rate with greater power to detect differences. However, the sample sizes were small, and in all from 18 to 72 years, with mean age in the instances, assumption violations of the multivari- mid-thirties (M=36.20 years, SD=10.35 ate analyses mitigated against the MANOVA tests. years for the treatment group, and M=34.82 6 This exploratory approach was undertaken whilst years, SD=8.68 years for the comparison recognising that the family-wise Type 1 error in- creases with multiple statistical tests. group). The treatment group had a higher
43 SCIENTIFIC ARTICLE Table 1: Demographics of treatment and comparison groups Treatment Comparison Demographics group (n=44) group (n=38) n % n % p^ Gender Female 22 50% 16 42% 0.47 Male 22 50% 22 58% Nationality Burundi 2 5% 1 3% 0.98 Congolese (DRC) 15 34% 13 34% Eritrean 0 0% 4 11% Ethiopian 8 18% 13 34% Somali 12 27% 3 8% South African 1 2% 3 8% Zimbabwean 2 5% 0 0% Other * 4 9% 1 3% Marital status Currently married 24 55% 8 21% 0.01 Divorced/separated 3 7% 4 11% Never married 13 30% 18 47% Widowed 4 9% 7 18% Missing 0 0% 1 3% Currently living Living alone/strangers/shelter 14 32% 7 19% 0.14 Living with family/ children 16 36% 5 13% Living with friends 7 16% 10 26% Living with spouse/ partner 4 9% 4 11% Other 0 0% 4 11% Missing 3 7% 8 21% Legal SA status Asylum seeker/ refugee 37 84% 30 79% 0.78 Citizen 2 5% 3 8% Undocumented 4 9% 1 3% Missing 1 2% 4 11% Pre-torture employment Minor/ student 5 11% 5 13% 0.83 Unskilled labour/ semi-skilled 22 50% 21 56% T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 Skilled/ professional 14 32% 10 26% Unemployed 2 5% 1 3% Missing 1 2% 1 3% Current employment Minor/ student 0 0% 2 5% 0.39 Unskilled labour/ semi-skilled 8 18% 3 8% Skilled/ professional 3 7% 2 6% Unemployed 32 73% 31 82% Missing 1 2% 0 0%
44 SCIENTIFIC ARTICLE Treatment Comparison Demographics group (n=44) group (n=38) n % n % p^ Education No schooling 4 9% 1 3%
45 SCIENTIFIC ARTICLE Table 2: Trauma types experienced by respondents of the comparison and treatment groups Treatment group Comparison group Odds ratio: Treatment/ (n=44) (n=38) Comparison OR Fisher exact n % n % test (p) Torture/ CIDT 44 100% 38 100% - - Witness to trauma 31 70% 30 79% 0.64 0.27 Assault 25 57% 28 74% 0.47 0.09 Bereavement/ traumatic bereavement 16 36% 21 55% 0.46 0.07 Armed robbery 18 41% 18 47% 0.77 0.36 Xenophobia 12 27% 17 45% 0.46 0.08 Mugging 5 11% 13 34% 0.25 0.02 War 15 34% 13 34% 0.99 0.59 Hostage/ kidnapping/ abduction 9 20% 8 21% 0.96 0.58 Rape/ attempted rape/ sodomy 14 32% 6 16% 2.49 0.08 Motor vehicle accident 2 5% 5 13% 0.31 0.16 Hijacking 5 11% 5 13% 0.85 0.53 Relationship/ domestic violence 2 5% 5 13% 0.31 0.16 that three of the four initial coping or Comparison of the changes in the psychological managing scores of the treatment group and functioning measures across the first three are significantly better than those of the months (T1 to T2) for each group: Based on comparison group, and the PTSD, trauma, the direction of the differences between each anxiety and depression scores are lower of the T1-T2 pairwise means for the (α=.05). The effect sizes of these differences treatment and the comparison groups are moderately large (Cohen’s d with considered separately, all 13 of the pairwise magnitude at least .5), with the exception differences of the treatment group are in the of the strong difference in depression scores ideal direction of improved psychological of the two groups (t(79)=3.36, p
46 SCIENTIFIC ARTICLE assumption violations for the T1 or T2 scores 2.61 for anxiety means that the clients in of 7 of the 13 ANOVA comparisons, the the treatment group reduced their anxiety T1-T2 comparisons of the separate groups 2.61 times more than the clients in the were re-examined using the conservative comparison group did. non-parametric Wilcoxon signed-ranks test There thus appears to be partial support with Z score conversion for large sample for the expectation of greater improvement sizes and asymptotic significance, and the in psychological health and functioning odds ratio (OR) used to indicate effect size from T1 to T2 for the treatment group (Table 3). relative to the comparison group. We The Wilcoxon results of the treatment therefore conclude, conservatively, that group show seven significance changes there is insufficient statistical evidence (emotional and total loneliness, external for overall support of the first hypothesis stressors, functioning, trauma, anxiety and of the research and we instead discuss areas of pain), all with odds ratios greater the significant T1-T2 differences on the than 1 (Table 3). By contrast, there are two individual indicators, specifically differences significant T1-T2 differences (depression on the indicators of functioning and anxiety. and areas of pain) in the comparison Comparison of the changes in the group. For the treatment group, the odds of psychological and functioning measures across improvement relative to non-improvement the three time periods (T1-T3) for each group: are greater (odds > 1) for 9 of the indicators The comparisons from T1 to T3 are based of psychological health and functioning, on substantially reduced sample sizes owing compared to 5 indicators for the comparison to attrition of participants in the two groups group. Furthermore, ratios of the odds after the second set of measures. Under half for the treatment group relative to the the respondents remained after T2 (45% or comparison group computed per indicator 20 of the 44 participants in the treatment variable show OR values greater than 1 group, and 42% or 16 of the 38 participants for most indicators (emotional and total in the comparison group). loneliness, the coping indicators of external Based on the mixed ANOVA tests, there stressors and psychological difficulties, the is no evidence of significant interaction HTQ scales of PTSD, functioning and effects that would show a difference in the trauma, the HADS anxiety scale, and areas changes of scores over time depending on of pain - Table 3). Thus, for these indicators, the group, and the magnitude of all effect members in the treatment group improved sizes, as measured by partial eta squared their psychological health and functioning values, are negligible to weak. However, T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 from T1-T2 more than members in the significant main effects across time, in the comparison group did. However, based on direction of increased psychological health the Fisher Exact Probability test (1-tailed, and functioning, were found for coping α=.05), the odds ratios are only significant with anger, the HTQ, the HADS, as well as for the HTQ functioning scale and for the for number of areas of pain. In particular, HADS anxiety scale. The OR value of 2.49 based on post hoc Scheffé comparisons, for functioning means that the clients in the measures of self-perception of functioning, treatment group improved their functioning depression and number of areas of pain 2.49 times more than the clients in the improved significantly from one time to the comparison group did; the OR value of next. As for the T1-T2 comparisons, the
47 SCIENTIFIC ARTICLE Table 3: Wilcoxon signed-rank test and odds ratio effect sizes for T1-T2 repeated measures for treatment and comparison groups Odds ratio: Treatment group Comparison group Treatment/ (n=44) (n=38) Comparison Indicators Fisher Odds Odds exact Z p^ Z p^ OR ^^ ^^ test (p) Connection to Emotional 2.06 0.04 * 1.32 0.10 0.92 1.06 1.25 0.40 others loneliness Social loneliness 0.98 0.33 1.16 0.13 0.89 1.24 0.94 0.53 Total loneliness 2.11 0.03 * 1.29 0.03 0.98 1.09 1.18 0.44 Coping or Angry situation 1.43 0.15 0.83 0.49 0.63 0.84 0.98 0.58 managing Family related 0.59 0.56 0.67 1.59 0.11 0.87 0.77 0.38 stressors External stressors 2.06 0.04 * 1.06 0.07 0.94 0.69 1.54 0.23 Psychological 1.34 0.18 0.97 0.58 0.56 0.79 1.23 0.42 difficulties Harvard PTSD 1.70 0.09 1.21 0.27 0.79 1.10 1.10 0.52 trauma questionnaire Functioning 2.57 0.01 * 1.71 0.39 0.69 0.68 2.49 0.04 * Trauma 2.28 0.02 * 1.56 0.02 0.99 0.79 1.97 0.10 Hospital Anxiety 2.83 0.01 ** 1.56 0.48 0.63 0.60 2.61 0.04 * anxiety and depression Depression 0.99 0.32 0.87 3.17 0.01 ** 1.79 0.49 0.10 scale Pain Number of areas 2.44 0.01 * 1.23 2.26 0.02 * 0.94 1.31 0.36 of pain T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 * p < .05; ** p < .01 ^ denotes the asymptotic significance value (2-tailed) for Wilcoxon Z for large samples ^^ tied changes were randomly distributed in equal proportions to positive and negative changes, rendering the odds ratio more conservative than the Z score T1-T3 comparisons were re-examined using psychological health and functioning, the conservative non-parametric Wilcoxon exceptions being social loneliness and signed-ranks test on the separate groups, coping with external stressors. However, owing to violations of ANOVA assumptions. counter-intuitively, the results of the For both groups, most of the outcome Wilcoxon signed-ranks tests on the T1-T3 means changed in the direction of improved comparisons computed on the separate
48 SCIENTIFIC ARTICLE groups revealed more significant T1-T3 In Table 4, the means for each scale improvements for the comparison group are presented for those members of the than for the treatment group. For the treatment group and the comparison group comparison group, 7 of the 13 outcome who left the programme after the second set measures improved significantly from T1 of measures.9 The outcome measures with to T3 (α=.05), (coping with anger, the T1-T2 changes in the direction of improved HTQ measures of PTSD, functioning and psychological health and functioning are trauma, the HADS measures of anxiety and indicated with a tick ().10 depression, and areas of pain), compared to The members of the treatment group only 1 of the 13 outcome measures (areas of who left the programme after T2 had pain) for the treatment group. Nevertheless, improved their mean scores on all 13 none of the odds ratios computed via measures at T2. By contrast, the members the ratio of odds for the treatment and of the comparison group who left the comparison groups per indicator variable programme after T2 had improved their are significant based on the Fisher mean scores on fewer than half (6 out of 13) Exact Probability test (α=.05). Thus, of the measures (social and total loneliness, although there are more significant T1-T3 family related stressors, psychological improvements in the comparison group difficulties, depression and areas of pain), than in the treatment group, the magnitude a significant difference in percentages of these improvements is not sufficient to (p=.002). Thus, participants in the treatment render the odds of the improvements in group who left the programme at T2 had the comparison group significantly greater improved their overall psychological health than the odds of the improvements in the and functioning, whereas the participants treatment group. in the comparison group who left the However, the counter-intuitive Wilcoxon programme at T2 had not shown this test results on the T1-T3 comparisons, overall level of improvement. After T2, whatever their magnitude, need to be the treatment group appears to have been addressed. A possible explanation is weakened by the loss of members who presented in a post hoc set of comparisons had improved health after three months, using a basic analysis of attrition after T2. while the comparison group had not lost Comparison of participants in each group overall improvers. This differential pattern who dropped out after T2: Based on the of attrition between the groups may explain Chi square test for between-group the counter-intuitive findings of greater comparisons, there is no evidence of improvement from T1-T3 of the remaining T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 significant differences in the demographic members of the comparison group characteristics of participants who compared to the remaining members of the dropped out of the treatment group after treatment group. T2 versus those who dropped out of the comparison group after T2. However, comparison of the T1-T2 changes in the 9 As tests of significance are reserved for a future psychological health and functioning in-depth article on attrition, this analysis does measures of these two groups suggests not indicate significance or effect size. 10 In each comparison, the direction of the means is that there may be a differential pattern of based on the difference in the pairwise means of attrition between the groups. individuals.
49 SCIENTIFIC ARTICLE Table 4: Mean scores from T1-T2 of participants who left the comparison and treatment groups after T2 Participants who left after T2: those who left from those who left from the treatment group the comparison (n=24) group (n=22) Indicators Mean T1-T2 Mean T1-T2 T1 2.83 ü 2.48 Emotional loneliness T2 2.52 2.50 Connection to T1 2.87 ü 2.52 ü Social loneliness T2 2.75 2.32 others T1 5.70 ü 5.00 ü Total loneliness T2 5.17 4.82 T1 2.61 ü 2.14 Angry situation T2 2.67 2.00 T1 2.23 ü 1.60 ü Family related stressors T2 2.43 2.21 Coping or managing T1 1.87 ü 1.90 External stressors T2 2.33 1.86 T1 2.35 ü 2.10 ü Psychological difficulties T2 2.74 2.24 T1 2.54 ü 2.76 PTSD T2 2.33 2.91 Harvard T1 2.48 ü 2.60 trauma Functioning T2 2.25 2.82 questionnaire T1 2.50 ü 2.67 T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 Trauma T2 2.28 2.83 T1 1.71 ü 1.86 Hospital Anxiety T2 1.31 1.89 anxiety and depression T1 1.57 ü 1.89 ü scale Depression T2 1.28 1.63 T1 1.96 ü 3.23 ü Pain Areas of pain T2 1.83 2.32
50 SCIENTIFIC ARTICLE Discussion assumptions required for parametric The research was designed to test the statistical analyses. Attrition created a efficacy of the CSVR psychosocial further problematic effect in our study as intervention framework using a sample of the treatment group clients who dropped torture survivors, almost all of whom were out of the study after T2 showed greater asylum seekers, refugees and undocumented overall improvement in their psychological persons in a South African environment health and coping from T1 to T2 than the filled with daily stressors and continuing comparison group clients who dropped traumas. These individuals were found to out of the study after T2. This differential have clinical baseline scores on PTSD, attrition effect may have biased the longer- depression, anxiety and low levels of term comparison of the mean scores functioning, which may be explained, at from T1 to T3 (the second hypothesis of least in part, by their history of torture the study), creating paradoxical results. which severely impacts psychological and Thus, our main finding pertaining to the psychiatric wellbeing (Bandeira et al., 2010; hypotheses on the efficacy of the CSVR Higson-Smith, 2013; McColl et al., 2010; framework is that we have not found Patel et al., 2014; Quiroga & Jaranson, sufficient evidence to warrant the efficacy 2005). The CSVR framework is designed of the framework, owing mainly to several to address the complexity of the past severe challenges inherent in research of this traumas exacerbated by contextual realities nature. It may be fairer to conclude that of a hostile South African environment the research results on the efficacy of the (Bandeira, 2013; Bandeira et al., 2013). framework are inconclusive. However, there are several interesting Efficacy of the CSVR framework results in the research. Firstly, improvement The assessment of the efficacy of the CSVR in the psychological wellbeing and framework was based on the expectation functioning of the clients of both groups of a long-term differential effect when an from T1 to T3 occurred despite the context initial three-month waiting list condition of the lack of safety and continuing daily was included, compared to when clients traumas of the torture survivor clients. entered straight into treatment. The findings This result is consistent with the CSVR of the research did not provide clear support framework’s prioritisation of empowerment, for the hypotheses of greater improvement problem solving and trauma-related therapy. in the psychological health and coping Secondly, after three months of treatment indicators of the CSVR treatment group under the CSVR framework, there are T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 than the waiting list comparison group. indications of clients’ improved connection However, the results are complex and less to others. This result is encouraging within than clear. the inherent mistrust, isolation and fear The data gathered reflect the challenges as consequences of torture (Quiroga of attempting rigorous quasi-experimental & Jaranson, 2005). Building trusting quantitative research in the context of relationships after a torture experience torture, using established measurement should be viewed as a long-term therapeutic scales that were found to have lower than goal (as per the approach of the CSVR), desirable reliability for our sample, and as torture often results in the annihilation data that do not meet all the stringent of interpersonal trust (Bandeira, 2013;
51 SCIENTIFIC ARTICLE Bandeira et al., 2013). Further research is CSVR treatment framework for the two warranted on the prioritisation of a family groups, we found that the psychological and group model or framework in the South health and functioning of members of the African context to mitigate the isolation felt treatment group was somewhat better than by the torture survivor, and the best way to that of the comparison group at baseline reintegrate the torture survivor into trusting testing. The groups also differed on marital familial, group and community relationships. status and education levels. Thirdly, after three months in therapy, In addition to these baseline differences clients appear to deal better with their past between the groups, the nature of the traumas and torture experiences in the comparison group condition, i.e. the context of unsafe situations, specifically in waiting list protocol, was not a true placebo terms of increased functioning and reduced comparison as it offered a level of support anxiety levels. to clients in the comparison group. The We move now to discuss the main comparison group clients received support in challenges of scientific research on trauma, telephone calls every second week, referrals based on the lessons of this study. offered for legal, medical or humanitarian aid, and assistance offered if they were psychotic, Challenges of research on trauma rehabilitation suicidal or required other emergency It is essential to conduct thorough research assistance. After three months of receiving on the outcomes of torture rehabilitation this level of support, these waiting list clients programmes that could improve the quality may well have felt somewhat better on a of the services and care to torture survivors, psychological and functioning level than they contribute to professional development in had at baseline. Indeed, the results of the the field, and empower torture survivors comparison group clients showed significant (Jaranson & Quiroga, 2011). Although improvement in their depression scores. quantitative studies involving the principles However, despite the possible confounding of randomised experimental design, sound effect of the waiting list condition, it is sampling techniques, objective measures and an ethical necessity in the context of the rigid statistical analysis are scientific ideals, vulnerability of torture survivors. such criteria are, in reality, unattainable High levels of overall attrition are in the complex and challenging world of expected in this population due to the torture rehabilitation with its thorny ethical transient nature of tortured refugees in considerations and limitations. Ethical South Africa who often need to move compliance precludes randomised control to find employment or accommodation, T O RTU R E Vol u m e 2 8 , N um be r 1, 2 01 8 group designs; instead, researchers of torture or due to safety concerns. Furthermore, attempting scientific studies are restricted to many refugees and asylum seekers use the quasi-experimental or outcome designs with CSVR for introduction to legal, medical compromised internal validity. or humanitarian aid, and then terminate We present the consequences of these contact with the centre. Although previous research design restrictions in our research. CSVR reports indicate an attrition rate of Although there was no apparent reason 21-44% of clients annually (Dix-Peek, 2012a, for the groups to differ at baseline, and no 2012b), the current research indicates a outstanding historical events occurring in much higher rate (75% or 129 of 173 clients the time interval between the start of the in the treatment group, and 42% or 28 of
52 SCIENTIFIC ARTICLE 66 clients in the comparison group).11 The who improved their health may be evidence high rate of attrition from screening to T1, of the preliminary success of the CSVR referred to here as overall attrition, for both framework, although the sustainability of the groups, but particularly for the treatment improvement is unknown. group, is a clear limitation of the current The topic of attrition is planned as part research. Contextual challenges of staffing of a future journal article. changes within CSVR may have contributed to clients not completing their baseline T1 or Conclusion follow-up T2 assessments and the consequent The CSVR psychosocial framework for the stark overall attrition for the treatment rehabilitation of torture survivors provides a group. CSVR has attempted to mitigate the set of therapeutic guidelines in the context high overall attrition through ensuring that of daily stressors, continuing traumas, clients receive transport money to and from past torture and trauma events. It is also a the office, conducting drop-out reports for framework designed for developing country a better understanding of why clients stop settings where survivors live with lack of coming for counselling, providing ongoing safety and extreme socio-economic concerns. training with CSVR clinicians and monitoring Thus evidence-based research on the and evaluation staff, and ensuring adherence efficacy of this framework is essential as a to the monitoring and evaluation system. first step towards investigating its legitimacy The high rate of attrition of clients after as “best practice” for torture survivors in the initial three months of the programme developing countries. However, conducting is also of great concern for the CSVR such research is often not prioritised due rehabilitation endeavours as over half of to scarce financial and human resources, the clients left the study after T2 (55% of practitioners who may not recognise the the treatment group members and 58% need to prioritise outcome research over the of the comparison group members). A “core” therapeutic and psychosocial work rudimentary post hoc attrition analysis of the (Bandeira, 2013; Montgomery & Patel, means of the outcome measures suggests 2011), attrition and small samples sizes, that different patterns of attrition in the limited academic and research expertise, comparison and treatment groups may and ethical concerns (Jaranson & Quiroga, explain the counter-intuitive results from 2011). Our study has aimed to contribute to T1-T3. The comparison group clients who a detailed understanding of the intricacies left the programme at T2 showed limited and challenges of undertaking psychosocial improvement in their psychological health research in the torture field. It highlights T O RTU R E Vo lu m e 2 8 , Nu m be r 1 , 2 0 1 8 and functioning, while the treatment group the serious problem of attrition and offers clients who left the programme at T2 several lessons for future studies. showed improvement on all indicators. While attrition of participants was not planned, References losing participants from the treatment group Amnesty International. (2014). Torture in 2014: 30 years of broken promises. Baird, E., Williams, A. C. de C., Hearn, L., & Amris, K. (2016). Interventions for treating persistent pain in survivors of torture. Cochrane 11 These numbers exclude clients who were ex- Database of Systematic Reviews, (1). http://doi. cluded as they were not tortured according to the org/10.1002/14651858.CD012051 UNCAT definition of torture.
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