Evaluating the impact of befriending for pregnant asylum-seeking and refugee women
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RESEARCH Evaluating the impact of befriending for pregnant asylum- seeking and refugee women There is a general public perception in the UK Abstract that asylum seekers are often bogus and come to Pregnant asylum-seeking and refugee women are a particularly the country to abuse the welfare system (Mulvey, vulnerable group in society, who may be possibly living alone 2010). This perception is reinforced through in poverty in inappropriate accommodation (Dunne, 2007) and negative media reporting (Greenslade, 2005) experiencing hostile attitudes (Hynes and Sale, 2010). They may have and has resulted in widespread hostility and poor physical and mental health, placing them at an increased risk discrimination, and even incidences of violence of poor pregnancy outcomes (National Institute for Health and Care against asylum seekers (Hynes and Sales, 2010). Excellence (NICE), 2010). Despite this, they are less likely to attend This has led to the marginalisation of asylum- for timely maternity care. This article discusses the evaluation to seeking women in the UK and their resulting date of an ongoing befriending project located in Northern England, social isolation (Squire and James, 2009). targeting pregnant asylum-seeking and refugee women and helping It is argued that the asylum system in the UK to address difficulties that they may face. Volunteer befrienders, who is male dominated with the aim of deterring themselves are asylum-seeking and refugee mothers, receive training ‘bogus’ asylum seekers and does not consider to provide support and guidance to clients. Preliminary data suggest the needs of women seeking asylum (Dunne, that befriending has advantages for both client and volunteer: clients 2007; Aspinall and Watters, 2010). Women can appear to develop a trusting relationship with their befriender which claim asylum for the same reasons as men, but facilitates self-confidence and helps overcome social isolation; and often have different reasons such as being the the volunteers feel that they are undertaking a worthwhile role and victims of human trafficking, forced prostitution often move onto paid employment. Befriending may be a useful or slavery (Dumper, 2005). They may also have resource for midwives and ultimately improve pregnancy outcomes experienced gender-specific violence including for asylum-seeking and refugee women. rape, female genital mutilation, forced abortion or domestic abuse (Reed, 2003; Ukoko, 2007). A Despite this, on arrival in the UK, women asylum sylum is the protection given to a person seekers are often detained with men in initial who is fleeing their home country in assessment centres (Dunne, 2007). They may be fear of violence and persecution, while dispersed into mixed sex accommodation, where a refugee has had their asylum claim accepted they feel unsafe living with asylum-seeking men and has been granted leave to remain in the UK (Dumper, 2002). In addition, women may have (UK Border Agency, 2011). The typical asylum had to take on the unfamiliar role as head of seeker is perceived as young and male with household or may have left their children behind women being dependent on a head of household in their native country (Refugee Council, 2009). (Dunne, 2007; Gedalof, 2007). In reality, this They are less likely to speak English than men, is not always the case: almost half of women further increasing their social isolation (Seu, seeking asylum are unsupported (Refugee 2003; Reed, 2003). Council, 2009). These women are often pregnant Rose McCarthy Health needs on arrival in the UK due to a lack of available Co-ordinator Health Befriending contraception or as a consequence of rape Pregnant asylum-seeking and refugee women Network Project; (Refugee Council, 2009; Squire and James, often have poor physical health due to the Maternity Lead 2009). Many women originate from countries in poverty and deprivation experienced in their City of Sanctuary conflict where ‘war rape’ has become endemic, home country, which continues as they journey Movement such as Rwanda where up to 50 000 women have to the UK and after their arrival (Aspinall © 2013 MA Healthcare Ltd been systematically raped (Refugee Council, and Watters, 2010). Evidence suggests that Melanie Haith-Cooper Lecturer in Midwifery 2009). Some women are raped on their journey African women in particular are likely to be University of Bradford to the UK and many raped after arrival (Refugee malnourished, with conditions including iron Council, 2009). deficiency anaemia, tuberculosis, malaria, HIV/ 404 British Journal of Midwifery • June 2013 • Vol 21, No 6
RESEARCH REFUGEE COUNCIL AIDs and other sexually transmitted infections. Asylum-seeking and refugee women may also experience psychological disorders including post-traumatic stress disorder as a consequence of the persecution and violence that they have witnessed in their home country (Burnett and Fassil, 2004). In addition, women who are pregnant as a result of rape have to cope with the impact of carrying a child that is a consequence of violence. It may be culturally inappropriate to discuss the issue of rape and a woman may have been shunned by her husband, family and community. She may feel ashamed and unclean (Burnett and Fassil, 2004). The process of asylum, living in poverty, social isolation, loneliness and the uncertainty around the future have been found to lead to further deterioration of asylum-seeking and refugee women’s physical and mental health (Bollini et al, 2009; Reynolds and White, 2010). In turn, poor health increases the risks of The befriending role includes listening to and supporting asylum-seeking and asylum-seeking and refugee women having a refugee women pregnancy ending in a poor clinical outcome including late miscarriage, stillbirth and addition to their physical midwifery needs being neonatal death (National Institute for Health met, they require referral to specialist social and Care Excellence (NICE), 2010), as well as and psychological support services. However, in being at an increased risk of maternal mortality. reality, midwives are not always able to assess Asylum-seeking and refugee women account for these needs due to women not attending for 14% of maternal deaths in the UK, despite only care or midwives not perceiving the importance, comprising 0.5% of the population (Centre for or having time to address the woman’s holistic Maternal and Child Enquiries (CMACE), 2011). needs (Briscoe and Lavender, 2009; Reynolds This is partly due to language barriers but also and White, 2010). Consequently, asylum-seeking because these women have little understanding and refugee women have often reported poor of when and how to access maternity services in experiences of maternity care including poor the UK so do not attend for timely antenatal care attitudes, rudeness and racism (McLeish, 2005; (Burnett and Fassil, 2004; CMACE, 2011). Gaudion and Allotey, 2008; Waugh, 2010). When pregnant asylum-seeking women come to the end of the asylum process and fail to Befriending achieve refugee status, they are put in an even Recent government policy (Department of more vulnerable situation as they can be charged Health (DH), 2010) has focused on strengthening for maternity care which, in turn, can deter them the contribution of the third sector to society, from attending (Dumper, 2005). In addition, suggesting that this will be essential in providing failed asylum seekers receive no welfare benefits sustainable health care. Part of this vision up until the 32nd week of pregnancy and may be involves the development and promotion of destitute with nowhere to live. This will impact volunteering as a means of reducing inequalities on their ability to attend for maternity care and and improving health outcomes for vulnerable their health in pregnancy, particularly having groups. One form of volunteering is to become a a nutritious diet, which will influence both befriender for a person in a vulnerable situation. maternal and fetal outcomes (Ukoko, 2007). Befriending is the process of developing These women are also likely to be living in and maintaining a supportive, non-judgmental stressful circumstances and in order to receive relationship between two individuals over a some form of income, may be forced into period of time. This is a formal process, initiated © 2013 MA Healthcare Ltd prostitution (Refugee Action, 2006). and monitored by an external agency (Dean and When considering the circumstances in Goodlad, 1998). There are examples of effective which pregnant asylum-seeking and refugee befriending programmes in other areas of health women find themselves, it is argued that in care including the older person (Lester et al, British Journal of Midwifery • June 2013 • Vol 21, No 6 405
RESEARCH 2012), breastfeeding support for South Asian seeking and refugee women understand their families (Douglas, 2012) and people with mental entitlements to and access maternity care in health problems (Mitchell and Pistrang, 2011). England in a timely manner, and to help asylum- In the context of pregnant asylum-seeking and seeking and refugee women connect better refugee women, it was proposed that befriending to the local community, experiencing less could be a useful intervention in addressing social isolation. some of the difficulties that women face while After undergoing a successful application and living in the UK. interview process, English-speaking women, who are mainly asylum-seeking and refugee mothers, Refugee Council voluntary health undergo four half-day training sessions (Table 1) befriending network to prepare them to act as befrienders for other In 2011, the Refugee Council received funding pregnant women in the same situation. Unless a from the Health and Social Care Volunteering client requests otherwise, the befriender is then Fund. This was to undertake a 3-year project matched as closely as possible with a client who to establish a health befriending network for has a similar cultural background and speaks asylum seekers and refugees living in four areas the same language. Support is provided to the of England. In all the areas, pregnant women are client from early pregnancy up until 2 months befriended as part of this project, but in Leeds postnatally, but excluding the birth. There is an a specific maternity befriending programme expectation that the befriender will commit to has been developed. The objectives of this meeting with her clients for up to 3 hours a week. programme are to ensure that pregnant asylum- However, in reality, many befrienders spent more time with their clients. The befriending Table 1. Examples from the befriending training programme role includes listening and supporting asylum- seeking and refugee women, signposting them ll Debriefing the befriender’s own experiences of seeking asylum and to appropriate services including those to meet accessing maternity services and coping with stress should difficult health and social care needs, and accompanying memories be triggered them to appointments where required. The ll The role of the befriender and the importance of confidentiality, project co-ordinator provides information and developing boundaries and understanding the limitations of her role supervision for the befrienders with monthly ll Effective listening and empowerment skills. Enabling clients to peer support group meetings and individual build on their coping strategies to speak on their own behalf, debriefing sessions. Befrienders also receive without the befriender becoming a barrier between the client support from their peers. and health professional ll An overview of the asylum system in England and the work of voluntary Preliminary findings and statutory health and social care services and community groups. There is an ongoing process of monitoring and How to signpost clients and other people within the befriender’s evaluating the effectiveness of the programme community to these services through audit and generating qualitative data. ll A comparison between the maternity care offered to clients in their With the assurance of confidentiality and home country and the UK, and problems that may be experienced anonymity where requested, both befrienders accessing health and maternity services and clients consent to engage in activities ll Increasing understanding around issues such as female genital to generate qualitative data, clients through mutilation, the role of doulas and specialist midwives, HIV, evaluation questionnaires, usually completed bereavement and mental health support, risk management, child over the phone by independent interpreters. protection and domestic abuse. Understanding how to refer women to The befrienders participate in focus group and appropriate services individual interviews conducted by the project co-ordinator. Data are analysed and emerging themes approved with the project co-ordinator’s Table 2. Preliminary audit findings line manager. Activity Target per Total for first Preliminary audit findings, covering year of project 15 months September 2011 to December 2012, have been Number of volunteers recruited 20 51 analysed (Table 2). As the data shows, the number of volunteers and clients engaging with © 2013 MA Healthcare Ltd Number of clients matched with volunteers 60 83 the project far exceeds the targets set; 51 women Number of clients signposted to refugee 120 525 (against a target of 20), who spoke a total of community organisations more than 30 different languages, volunteered Number of clients signposted to health services 120 1636 as a befriender. They have been matched with 406 British Journal of Midwifery • June 2013 • Vol 21, No 6
RESEARCH 83 clients to befriend, most of whom were advice. She continued to take her medication pregnant (the target was 60). Some clients throughout pregnancy and her baby was found already had children and some have subsequently not to be infected with HIV become pregnant. One client suggested that the befriender has The clients have been referred to the project helped her to cope with her social isolation. She by midwives, children’s centres and refugee was the only woman that she had spoken Arabic community organisations. They have been with since arriving in England, and remarked helped to access a wide range of health services that ‘she took me out of my loneliness corner’. including maternity care, dentists, mental Some cases suggest that when the client forms health services and HIV support. They have been a trusting relationship with the befriender, they introduced to resources such as drop-in centres, reveal difficulties which may have otherwise charity shops and supermarkets, and helped to remained hidden. This has included experience find clothing for themselves and their baby. They of domestic abuse where clients could be have also been accompanied to appointments signposted to appropriate support agencies. One such as housing advice and solicitors. As the client was encouraged to return to the hospital befriender training does not include being an she had just been discharged from when she interpreter, they do not offer such a service revealed that her partner had been kicking her in professional contexts. Therefore health caesarean section wound. Another client had services should continue to use interpreters experienced domestic abuse and left her partner. where required. However, she was being pressurised by her local Preliminary qualitative findings suggest that community to return to him but also advised by befriending appears to be valuable for the clients social services that if she did return, her children in different ways. Clients appear to be developing would be removed. The client felt that the the ability to speak out in some contexts as the befriender offering unbiased emotional support following cases suggest. helped her through her difficulties: Case studies ‘Having someone to talk to at a A befriender recalled her experience of taking children’s centre where I felt safe made a destitute client to an antenatal class which all the difference. She saved me.’ [Client] was being held in a local children’s centre. Her baby was both large and breech and she was Achievements beyond the project frightened about having a caesarean section Already, the project appears to have surpassed birth with no place to live. Here, through her its initial aims. During the monthly support learning, the client developed confidence in her meetings, the volunteers began to discuss ability to give birth naturally and was determined how they could move beyond the programme to have a normal birth. The befriender built on to facilitate more asylum-seeking and refugee this confidence, when she accompanied her to women to access antenatal care and improve a consultant appointment. She encouraged the maternity services for these women. They now client to explain to the doctor that she wanted actively seek out other women and encourage a normal birth, who to the client’s amazement, them to sign up as clients. In addition, a number agreed. The baby subsequently turned to a of befrienders represent the Refugee Council on cephalic presentation and she gave birth on all different forums including the local Maternity fours, to a 10lb baby. She said to her befriender ‘I Services Liaison Committee and the regional can do anything now’. Health Innovation and Education Cluster. They In addition, the following case suggests that have become involved in the education of both befriending could impact on maternal and pre-registration and qualified midwives and fetal outcome. A pregnant client who was HIV supervisors of midwives, and have presented at positive was not taking her medication because national conferences. They have been invited to she believed she had been cured. She asked her participate in the Local Supervisory Authority befriender, who was also HIV positive, to attend audit of maternity services and also in the patient a consultant appointment with her as she felt public involvement agenda of local universities; she had established a trusting relationship with sitting on committees and interviewing and © 2013 MA Healthcare Ltd her. The consultant advised the client of the assessing health-care students. Preliminary importance of taking her medication but she did evaluation suggests that the volunteers themselves not believe him. She did, however, believe the are benefiting from the project, developing their befriender, when she reinforced the consultant’s self-confidence: British Journal of Midwifery • June 2013 • Vol 21, No 6 407
RESEARCH ‘I used to think I was nothing, now I Working with a befriender could facilitate the think I’m something and when I wear midwife to increase her understanding around my Refugee Council badge I feel like a asylum seeking; the woman’s reasons for leaving professional.’ [Befriender] her home country, the asylum process and the difficulties that she may have living in the In addition, following working as a befriender, UK. The midwife could become more aware some women have secured paid employment in of the role of charities and other voluntary the voluntary sector and in schools. sector organisations in the local area and how to refer women to appropriate services. As the Implications for midwifery services befriender and asylum-seeking and refugee Contemporary midwifery practice frequently woman may share the same cultural background, involves working in stressful environments with the befriender could be a valuable asset for the increasing staff shortages and the threat of more midwife when addressing the woman’s cultural efficiency savings (Bird, 2012; O’Sullivan and needs. However, this partnership must not Dromey, 2012). At the same time, midwives are undermine the midwife and asylum-seeking and expected to provide individualised, woman- refugee woman’s relationship or the woman’s centered care, encompassing the cultural, social opportunity to make informed choices. and psychological factors which inf luence childbirth (Nursing and Midwifery Council Conclusion (NMC), 2009). Pregnant asylum-seeking and Increasingly, midwifery practice appears to refugee women often have complex health and involve working in an environment with limited social care needs which midwives may have resources. Asylum-seeking and refugee women difficulty in meeting due to limited resources, often have complex care needs, which midwives but also due to poor attitudes and a lack of need to meet. Working with befrienders has understanding of their needs (Briscoe and the potential to benefit midwives in terms of Lavender, 2009; Reynolds and White, 2010). time and cost savings. If, for example, women The preliminary findings from this project are encouraged by their befriender to attend suggest that befriending may become a valuable for regular and timely antenatal care, then service for pregnant asylum-seeking and refugee pregnancy complications could be prevented women living in the UK. However, it could also or detected and managed early. In addition, become a useful resource for midwives working befrienders offer a valuable educational resource with asylum-seeking and refugee women. At for midwives. the booking interview, as a midwife assesses a Asylum-seeking and refugee women appear woman’s holistic needs, she could refer a woman to benefit from having a befriender with the to a befriending project as a way to address some development of a trusting relationship with of these needs. a woman who has been in a similar situation. The befriender speaks the same language and understands the client’s social and cultural Key points background and the difficulties clients may be ll Pregnant asylum-seeking and refugee women living in the UK facing becoming a mother. In addition, there are particularly vulnerable, often being socially isolated with poor appear to be benefits for the volunteer. As well underlying physical and mental health as making a valuable contribution to society, ll Asylum seekers are at a disproportionately increased risk of having a befriending increases knowledge about asylum- pregnancy ending in a poor clinical outcome, including maternal death related issues and also can build self-esteem and ll Asylum-seeking and refugee women often have little understanding self-confidence. In this project, many women of maternity care provision in the UK and consequently don’t access who have been befriended are now themselves timely antenatal care training to become a volunteer. One woman ll Current government policy focuses on increasing the contribution of stated that she didn’t want other woman to suffer volunteers to help reduce inequalities and improve health outcomes for as she had suffered. vulnerable groups Although this article presents preliminary ll The Refugee Council is training women as volunteer befrienders to findings from a project, limited to one area in support pregnant asylum-seeking and refugee women England, it suggests that befriending may be a © 2013 MA Healthcare Ltd ll The number of volunteers and clients engaging with the project so way forward in meeting the health and social far has exceeded the targets set for the first year with the project care needs of pregnant asylum-seeking and appearing to be beneficial for both clients and volunteers refugee women. There are other similar projects being developed around the country which 408 British Journal of Midwifery • June 2013 • Vol 21, No 6
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