Evaluating the impact of befriending for pregnant asylum-seeking and refugee women

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Evaluating the impact of befriending for pregnant asylum-seeking and refugee women
RESEARCH

Evaluating the impact of
befriending for pregnant asylum-
seeking and refugee women
                                                                                   There is a general public perception in the UK
 Abstract                                                                       that asylum seekers are often bogus and come to
 Pregnant asylum-seeking and refugee women are a particularly                   the country to abuse the welfare system (Mulvey,
 vulnerable group in society, who may be possibly living alone                  2010). This perception is reinforced through
 in poverty in inappropriate accommodation (Dunne, 2007) and                    negative media reporting (Greenslade, 2005)
 experiencing hostile attitudes (Hynes and Sale, 2010). They may have           and has resulted in widespread hostility and
 poor physical and mental health, placing them at an increased risk             discrimination, and even incidences of violence
 of poor pregnancy outcomes (National Institute for Health and Care             against asylum seekers (Hynes and Sales, 2010).
 Excellence (NICE), 2010). Despite this, they are less likely to attend         This has led to the marginalisation of asylum-
 for timely maternity care. This article discusses the evaluation to            seeking women in the UK and their resulting
 date of an ongoing befriending project located in Northern England,            social isolation (Squire and James, 2009).
 targeting pregnant asylum-seeking and refugee women and helping                   It is argued that the asylum system in the UK
 to address difficulties that they may face. Volunteer befrienders, who         is male dominated with the aim of deterring
 themselves are asylum-seeking and refugee mothers, receive training            ‘bogus’ asylum seekers and does not consider
 to provide support and guidance to clients. Preliminary data suggest           the needs of women seeking asylum (Dunne,
 that befriending has advantages for both client and volunteer: clients         2007; Aspinall and Watters, 2010). Women can
 appear to develop a trusting relationship with their befriender which          claim asylum for the same reasons as men, but
 facilitates self-confidence and helps overcome social isolation; and           often have different reasons such as being the
 the volunteers feel that they are undertaking a worthwhile role and            victims of human trafficking, forced prostitution
 often move onto paid employment. Befriending may be a useful                   or slavery (Dumper, 2005). They may also have
 resource for midwives and ultimately improve pregnancy outcomes                experienced gender-specific violence including
 for asylum-seeking and refugee women.                                          rape, female genital mutilation, forced abortion
                                                                                or domestic abuse (Reed, 2003; Ukoko, 2007).

                            A
                                                                                Despite this, on arrival in the UK, women asylum
                                    sylum is the protection given to a person   seekers are often detained with men in initial
                                    who is fleeing their home country in        assessment centres (Dunne, 2007). They may be
                                    fear of violence and persecution, while     dispersed into mixed sex accommodation, where
                            a refugee has had their asylum claim accepted       they feel unsafe living with asylum-seeking men
                            and has been granted leave to remain in the UK      (Dumper, 2002). In addition, women may have
                            (UK Border Agency, 2011). The typical asylum        had to take on the unfamiliar role as head of
                            seeker is perceived as young and male with          household or may have left their children behind
                            women being dependent on a head of household        in their native country (Refugee Council, 2009).
                            (Dunne, 2007; Gedalof, 2007). In reality, this      They are less likely to speak English than men,
                            is not always the case: almost half of women        further increasing their social isolation (Seu,
                            seeking asylum are unsupported (Refugee             2003; Reed, 2003).
                            Council, 2009). These women are often pregnant
 Rose McCarthy                                                                  Health needs
                            on arrival in the UK due to a lack of available
 Co-ordinator
 Health Befriending         contraception or as a consequence of rape           Pregnant asylum-seeking and refugee women
 Network Project;           (Refugee Council, 2009; Squire and James,           often have poor physical health due to the
 Maternity Lead             2009). Many women originate from countries in       poverty and deprivation experienced in their
 City of Sanctuary          conflict where ‘war rape’ has become endemic,       home country, which continues as they journey
 Movement                   such as Rwanda where up to 50 000 women have        to the UK and after their arrival (Aspinall
                                                                                                                                                  © 2013 MA Healthcare Ltd

                            been systematically raped (Refugee Council,         and Watters, 2010). Evidence suggests that
 Melanie Haith-Cooper
 Lecturer in Midwifery      2009). Some women are raped on their journey        African women in particular are likely to be
 University of Bradford     to the UK and many raped after arrival (Refugee     malnourished, with conditions including iron
                            Council, 2009).                                     deficiency anaemia, tuberculosis, malaria, HIV/

404                                                                                     British Journal of Midwifery • June 2013 • Vol 21, No 6
RESEARCH

                                                                                                                                                               REFUGEE COUNCIL
                           AIDs and other sexually transmitted infections.
                           Asylum-seeking and refugee women may also
                           experience psychological disorders including
                           post-traumatic stress disorder as a consequence
                           of the persecution and violence that they have
                           witnessed in their home country (Burnett and
                           Fassil, 2004). In addition, women who are
                           pregnant as a result of rape have to cope with the
                           impact of carrying a child that is a consequence
                           of violence. It may be culturally inappropriate
                           to discuss the issue of rape and a woman may
                           have been shunned by her husband, family and
                           community. She may feel ashamed and unclean
                           (Burnett and Fassil, 2004).
                              The process of asylum, living in poverty,
                           social isolation, loneliness and the uncertainty
                           around the future have been found to lead
                           to further deterioration of asylum-seeking and
                           refugee women’s physical and mental health
                           (Bollini et al, 2009; Reynolds and White, 2010).
                           In turn, poor health increases the risks of               The befriending role includes listening to and supporting asylum-seeking and
                           asylum-seeking and refugee women having a                 refugee women
                           pregnancy ending in a poor clinical outcome
                           including late miscarriage, stillbirth and                addition to their physical midwifery needs being
                           neonatal death (National Institute for Health             met, they require referral to specialist social
                           and Care Excellence (NICE), 2010), as well as             and psychological support services. However, in
                           being at an increased risk of maternal mortality.         reality, midwives are not always able to assess
                           Asylum-seeking and refugee women account for              these needs due to women not attending for
                           14% of maternal deaths in the UK, despite only            care or midwives not perceiving the importance,
                           comprising 0.5% of the population (Centre for             or having time to address the woman’s holistic
                           Maternal and Child Enquiries (CMACE), 2011).              needs (Briscoe and Lavender, 2009; Reynolds
                           This is partly due to language barriers but also          and White, 2010). Consequently, asylum-seeking
                           because these women have little understanding             and refugee women have often reported poor
                           of when and how to access maternity services in           experiences of maternity care including poor
                           the UK so do not attend for timely antenatal care         attitudes, rudeness and racism (McLeish, 2005;
                           (Burnett and Fassil, 2004; CMACE, 2011).                  Gaudion and Allotey, 2008; Waugh, 2010).
                              When pregnant asylum-seeking women come
                           to the end of the asylum process and fail to              Befriending
                           achieve refugee status, they are put in an even           Recent government policy (Department of
                           more vulnerable situation as they can be charged          Health (DH), 2010) has focused on strengthening
                           for maternity care which, in turn, can deter them         the contribution of the third sector to society,
                           from attending (Dumper, 2005). In addition,               suggesting that this will be essential in providing
                           failed asylum seekers receive no welfare benefits         sustainable health care. Part of this vision
                           up until the 32nd week of pregnancy and may be            involves the development and promotion of
                           destitute with nowhere to live. This will impact          volunteering as a means of reducing inequalities
                           on their ability to attend for maternity care and         and improving health outcomes for vulnerable
                           their health in pregnancy, particularly having            groups. One form of volunteering is to become a
                           a nutritious diet, which will influence both              befriender for a person in a vulnerable situation.
                           maternal and fetal outcomes (Ukoko, 2007).                   Befriending is the process of developing
                           These women are also likely to be living in               and maintaining a supportive, non-judgmental
                           stressful circumstances and in order to receive           relationship between two individuals over a
                           some form of income, may be forced into                   period of time. This is a formal process, initiated
© 2013 MA Healthcare Ltd

                           prostitution (Refugee Action, 2006).                      and monitored by an external agency (Dean and
                              When considering the circumstances in                  Goodlad, 1998). There are examples of effective
                           which pregnant asylum-seeking and refugee                 befriending programmes in other areas of health
                           women find themselves, it is argued that in               care including the older person (Lester et al,

                           British Journal of Midwifery • June 2013 • Vol 21, No 6                                                                            405
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                              2012), breastfeeding support for South Asian       seeking and refugee women understand their
                              families (Douglas, 2012) and people with mental    entitlements to and access maternity care in
                              health problems (Mitchell and Pistrang, 2011).     England in a timely manner, and to help asylum-
                              In the context of pregnant asylum-seeking and      seeking and refugee women connect better
                              refugee women, it was proposed that befriending    to the local community, experiencing less
                              could be a useful intervention in addressing       social isolation.
                              some of the difficulties that women face while        After undergoing a successful application and
                              living in the UK.                                  interview process, English-speaking women, who
                                                                                 are mainly asylum-seeking and refugee mothers,
                              Refugee Council voluntary health                   undergo four half-day training sessions (Table 1)
                              befriending network                                to prepare them to act as befrienders for other
                              In 2011, the Refugee Council received funding      pregnant women in the same situation. Unless a
                              from the Health and Social Care Volunteering       client requests otherwise, the befriender is then
                              Fund. This was to undertake a 3-year project       matched as closely as possible with a client who
                              to establish a health befriending network for      has a similar cultural background and speaks
                              asylum seekers and refugees living in four areas   the same language. Support is provided to the
                              of England. In all the areas, pregnant women are   client from early pregnancy up until 2 months
                              befriended as part of this project, but in Leeds   postnatally, but excluding the birth. There is an
                              a specific maternity befriending programme         expectation that the befriender will commit to
                              has been developed. The objectives of this         meeting with her clients for up to 3 hours a week.
                              programme are to ensure that pregnant asylum-      However, in reality, many befrienders spent
                                                                                 more time with their clients. The befriending
Table 1. Examples from the befriending training programme                        role includes listening and supporting asylum-
                                                                                 seeking and refugee women, signposting them
ll Debriefing the befriender’s own experiences of seeking asylum and             to appropriate services including those to meet
   accessing maternity services and coping with stress should difficult          health and social care needs, and accompanying
   memories be triggered                                                         them to appointments where required. The
ll The role of the befriender and the importance of confidentiality,             project co-ordinator provides information and
   developing boundaries and understanding the limitations of her role           supervision for the befrienders with monthly
ll Effective listening and empowerment skills. Enabling clients to               peer support group meetings and individual
   build on their coping strategies to speak on their own behalf,                debriefing sessions. Befrienders also receive
   without the befriender becoming a barrier between the client                  support from their peers.
   and health professional
ll An overview of the asylum system in England and the work of voluntary         Preliminary findings
   and statutory health and social care services and community groups.           There is an ongoing process of monitoring and
   How to signpost clients and other people within the befriender’s              evaluating the effectiveness of the programme
   community to these services                                                   through audit and generating qualitative data.
ll A comparison between the maternity care offered to clients in their           With the assurance of confidentiality and
   home country and the UK, and problems that may be experienced                 anonymity where requested, both befrienders
   accessing health and maternity services                                       and clients consent to engage in activities
ll Increasing understanding around issues such as female genital                 to generate qualitative data, clients through
   mutilation, the role of doulas and specialist midwives, HIV,                  evaluation questionnaires, usually completed
   bereavement and mental health support, risk management, child                 over the phone by independent interpreters.
   protection and domestic abuse. Understanding how to refer women to            The befrienders participate in focus group and
   appropriate services                                                          individual interviews conducted by the project
                                                                                 co-ordinator. Data are analysed and emerging
                                                                                 themes approved with the project co-ordinator’s
Table 2. Preliminary audit findings
                                                                                 line manager.
Activity                                       Target per      Total for first      Preliminary audit findings, covering
                                               year of project 15 months         September 2011 to December 2012, have been
Number of volunteers recruited                 20               51               analysed (Table 2). As the data shows, the
                                                                                 number of volunteers and clients engaging with
                                                                                                                                                   © 2013 MA Healthcare Ltd

Number of clients matched with volunteers      60               83
                                                                                 the project far exceeds the targets set; 51 women
Number of clients signposted to refugee        120              525
                                                                                 (against a target of 20), who spoke a total of
community organisations
                                                                                 more than 30 different languages, volunteered
Number of clients signposted to health services 120             1636             as a befriender. They have been matched with

406                                                                                      British Journal of Midwifery • June 2013 • Vol 21, No 6
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                           83 clients to befriend, most of whom were                 advice. She continued to take her medication
                           pregnant (the target was 60). Some clients                throughout pregnancy and her baby was found
                           already had children and some have subsequently           not to be infected with HIV
                           become pregnant.                                             One client suggested that the befriender has
                              The clients have been referred to the project          helped her to cope with her social isolation. She
                           by midwives, children’s centres and refugee               was the only woman that she had spoken Arabic
                           community organisations. They have been                   with since arriving in England, and remarked
                           helped to access a wide range of health services          that ‘she took me out of my loneliness corner’.
                           including maternity care, dentists, mental                   Some cases suggest that when the client forms
                           health services and HIV support. They have been           a trusting relationship with the befriender, they
                           introduced to resources such as drop-in centres,          reveal difficulties which may have otherwise
                           charity shops and supermarkets, and helped to             remained hidden. This has included experience
                           find clothing for themselves and their baby. They         of domestic abuse where clients could be
                           have also been accompanied to appointments                signposted to appropriate support agencies. One
                           such as housing advice and solicitors. As the             client was encouraged to return to the hospital
                           befriender training does not include being an             she had just been discharged from when she
                           interpreter, they do not offer such a service             revealed that her partner had been kicking her
                           in professional contexts. Therefore health                caesarean section wound. Another client had
                           services should continue to use interpreters              experienced domestic abuse and left her partner.
                           where required.                                           However, she was being pressurised by her local
                              Preliminary qualitative findings suggest that          community to return to him but also advised by
                           befriending appears to be valuable for the clients        social services that if she did return, her children
                           in different ways. Clients appear to be developing        would be removed. The client felt that the
                           the ability to speak out in some contexts as the          befriender offering unbiased emotional support
                           following cases suggest.                                  helped her through her difficulties:

                           Case studies                                                ‘Having someone to talk to at a
                           A befriender recalled her experience of taking              children’s centre where I felt safe made
                           a destitute client to an antenatal class which              all the difference. She saved me.’ [Client]
                           was being held in a local children’s centre. Her
                           baby was both large and breech and she was                Achievements beyond the project
                           frightened about having a caesarean section               Already, the project appears to have surpassed
                           birth with no place to live. Here, through her            its initial aims. During the monthly support
                           learning, the client developed confidence in her          meetings, the volunteers began to discuss
                           ability to give birth naturally and was determined        how they could move beyond the programme
                           to have a normal birth. The befriender built on           to facilitate more asylum-seeking and refugee
                           this confidence, when she accompanied her to              women to access antenatal care and improve
                           a consultant appointment. She encouraged the              maternity services for these women. They now
                           client to explain to the doctor that she wanted           actively seek out other women and encourage
                           a normal birth, who to the client’s amazement,            them to sign up as clients. In addition, a number
                           agreed. The baby subsequently turned to a                 of befrienders represent the Refugee Council on
                           cephalic presentation and she gave birth on all           different forums including the local Maternity
                           fours, to a 10lb baby. She said to her befriender ‘I      Services Liaison Committee and the regional
                           can do anything now’.                                     Health Innovation and Education Cluster. They
                              In addition, the following case suggests that          have become involved in the education of both
                           befriending could impact on maternal and                  pre-registration and qualified midwives and
                           fetal outcome. A pregnant client who was HIV              supervisors of midwives, and have presented at
                           positive was not taking her medication because            national conferences. They have been invited to
                           she believed she had been cured. She asked her            participate in the Local Supervisory Authority
                           befriender, who was also HIV positive, to attend          audit of maternity services and also in the patient
                           a consultant appointment with her as she felt             public involvement agenda of local universities;
                           she had established a trusting relationship with          sitting on committees and interviewing and
© 2013 MA Healthcare Ltd

                           her. The consultant advised the client of the             assessing health-care students. Preliminary
                           importance of taking her medication but she did           evaluation suggests that the volunteers themselves
                           not believe him. She did, however, believe the            are benefiting from the project, developing their
                           befriender, when she reinforced the consultant’s          self-confidence:

                           British Journal of Midwifery • June 2013 • Vol 21, No 6                                                                407
RESEARCH

                                ‘I used to think I was nothing, now I                Working with a befriender could facilitate the
                                think I’m something and when I wear               midwife to increase her understanding around
                                my Refugee Council badge I feel like a            asylum seeking; the woman’s reasons for leaving
                                professional.’ [Befriender]                       her home country, the asylum process and the
                                                                                  difficulties that she may have living in the
                                In addition, following working as a befriender,   UK. The midwife could become more aware
                             some women have secured paid employment in           of the role of charities and other voluntary
                             the voluntary sector and in schools.                 sector organisations in the local area and how
                                                                                  to refer women to appropriate services. As the
                             Implications for midwifery services                  befriender and asylum-seeking and refugee
                             Contemporary midwifery practice frequently           woman may share the same cultural background,
                             involves working in stressful environments with      the befriender could be a valuable asset for the
                             increasing staff shortages and the threat of more    midwife when addressing the woman’s cultural
                             efficiency savings (Bird, 2012; O’Sullivan and       needs. However, this partnership must not
                             Dromey, 2012). At the same time, midwives are        undermine the midwife and asylum-seeking and
                             expected to provide individualised, woman-           refugee woman’s relationship or the woman’s
                             centered care, encompassing the cultural, social     opportunity to make informed choices.
                             and psychological factors which inf luence
                             childbirth (Nursing and Midwifery Council            Conclusion
                             (NMC), 2009). Pregnant asylum-seeking and            Increasingly, midwifery practice appears to
                             refugee women often have complex health and          involve working in an environment with limited
                             social care needs which midwives may have            resources. Asylum-seeking and refugee women
                             difficulty in meeting due to limited resources,      often have complex care needs, which midwives
                             but also due to poor attitudes and a lack of         need to meet. Working with befrienders has
                             understanding of their needs (Briscoe and            the potential to benefit midwives in terms of
                             Lavender, 2009; Reynolds and White, 2010).           time and cost savings. If, for example, women
                                The preliminary findings from this project        are encouraged by their befriender to attend
                             suggest that befriending may become a valuable       for regular and timely antenatal care, then
                             service for pregnant asylum-seeking and refugee      pregnancy complications could be prevented
                             women living in the UK. However, it could also       or detected and managed early. In addition,
                             become a useful resource for midwives working        befrienders offer a valuable educational resource
                             with asylum-seeking and refugee women. At            for midwives.
                             the booking interview, as a midwife assesses a          Asylum-seeking and refugee women appear
                             woman’s holistic needs, she could refer a woman      to benefit from having a befriender with the
                             to a befriending project as a way to address some    development of a trusting relationship with
                             of these needs.                                      a woman who has been in a similar situation.
                                                                                  The befriender speaks the same language and
                                                                                  understands the client’s social and cultural
 Key points                                                                       background and the difficulties clients may be
 ll Pregnant asylum-seeking and refugee women living in the UK                    facing becoming a mother. In addition, there
    are particularly vulnerable, often being socially isolated with poor          appear to be benefits for the volunteer. As well
    underlying physical and mental health                                         as making a valuable contribution to society,
 ll Asylum seekers are at a disproportionately increased risk of having a         befriending increases knowledge about asylum-
    pregnancy ending in a poor clinical outcome, including maternal death         related issues and also can build self-esteem and
 ll Asylum-seeking and refugee women often have little understanding              self-confidence. In this project, many women
    of maternity care provision in the UK and consequently don’t access           who have been befriended are now themselves
    timely antenatal care                                                         training to become a volunteer. One woman
 ll Current government policy focuses on increasing the contribution of           stated that she didn’t want other woman to suffer
    volunteers to help reduce inequalities and improve health outcomes for        as she had suffered.
    vulnerable groups                                                                Although this article presents preliminary
 ll The Refugee Council is training women as volunteer befrienders to             findings from a project, limited to one area in
    support pregnant asylum-seeking and refugee women                             England, it suggests that befriending may be a
                                                                                                                                                    © 2013 MA Healthcare Ltd

 ll The number of volunteers and clients engaging with the project so             way forward in meeting the health and social
    far has exceeded the targets set for the first year with the project          care needs of pregnant asylum-seeking and
    appearing to be beneficial for both clients and volunteers                    refugee women. There are other similar projects
                                                                                  being developed around the country which

408                                                                                       British Journal of Midwifery • June 2013 • Vol 21, No 6
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                                                                                               Research, Brunel University, Uxbridge
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