DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
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DiabetesVoice GLOBAL PERSPECTIVES ON DIABETES Volume 65 - Issue 1 - April 2018 IDF and Lions Club International: Working together to tackle diabetes
Learn. Learn. Discover. Discover. Connect. Connect. www.idf.org/hyderabad2018 www.idf.org/hyderabad2018 #IDF2018 #IDF2018 Introducing Introducing thethe newnew IDF IDF Diabetes Diabetes Complications Complications andand FootFoot Congress Congress 2018! 2018! I 25-27 25-27 October, October, Hyderabad, Hyderabad, India India 2 IDF isIDF launching is launching a newaseries new series of liveofeducational live educational eventsevents to tackle to tackle the issues the issues aroundaround diabetes diabetes complications. complications. I The first Theoffirst these of these biennial biennial events events will have will a have focus a focus on theondiabetic the diabetic foot. The foot.aim Theofaim theofcongress the congress is to provide is to provide T participants participants with the withlatest the latest research, research, treatments treatments and tools and tools to limit to and limittreat and treat diabetes diabetes complications. complications. p The ultimate The ultimate goal is goal to improve is to improve outcomes outcomes and quality and quality of lifeoffor life people for people with diabetes. with diabetes. T Who Who should should attend: attend: - Primary - Primary care Physicians care Physicians - Cardiologists - Cardiologists CALL CALL FORFOR - - - Endocrinologists - Endocrinologists Orthopaedists - Orthopaedists - - Nephrologists - Nephrologists Ophthalmologists - Ophthalmologists ABSTRACTS ABSTRACTS - - - Podiatrists - Podiatrists - Nurses - Nurses - - General - General surgeons surgeons - Educators - Educators - - Vascular - Vascular surgeons surgeons - Physiotherapists - Physiotherapists Abstract Abstract submission submission deadline: deadline: - 31 May 31 May 20182018 at 23:59 at 23:59 GMTGMT The IDF TheDiabetes IDF Diabetes Complications Complications and Foot and Foot Congress Congress 2018 2018 T welcomes welcomes original original abstracts abstracts on subjects on subjects relevant relevant to theto the w following following 7 streams: 7 streams: f • Foot• -Foot Peripheral - Peripheral Arterial Arterial Disease Disease • Foot• -Foot Ulcers - Ulcers and Infection and Infection • Foot• -Foot Diabetic - Diabetic Peripheral Peripheral Neuropathy Neuropathy and and Charcot Charcot Scan to Scan view to view • Cardiovascular • Cardiovascular Risk Factors Risk Factors • Coronary • Coronary HeartHeart Disease Disease and Heart and Heart Failure Failure • Diabetes • Diabetes and Kidney and Kidney Disease Disease Abstract Abstract submission submission is only is only possible possible onlineonline at at • Diabetic • Diabetic Eye Disease Eye Disease www.idf.org/hyderabad2018 www.idf.org/hyderabad2018 Organising Organising Committee Committee ChairChair Dr Shaukat Dr Shaukat Sadikot Sadikot Questions Questions aboutabout abstracts: abstracts: Programme Programme ChairChair Dr Ammar Dr Ammar Ibrahim Ibrahim programme@idf.org programme@idf.org ChairChair National National Advisory Advisory Committee Committee Dr Banshi Dr Banshi SabooSaboo
DIABETES VIEWS 4 International Diabetes Federation The Global Voice of Diabetes Promoting diabetes care, prevention and a cure worldwide Nam H. Cho 4 Editor-in-Chief: Douglas Villarroel NEWS IN BRIEF 6 Editor: Elizabeth Snouffer Editorial Coordinator: Lorenzo Piemonte IDF REGIONAL NEWS 16 All correspondence should be addressed to: diabetesvoice@idf.org OPINION EDITORIAL 21 Diabetes Voice is available online at: www.diabetesvoice.org Insulin: Concierge Medication or Human Right? Joyce Lee 21 © International Diabetes Federation, 2018 - All rights reserved. No part of this publication may be reproduced or T H E G L O B A L C A M PA I G N 24 transmitted in any form or by any means without the written prior permission of the International Diabetes Federation (IDF). Lions Club and International Diabetes Federation come Requests to reproduce or translate IDF publications should be together to tackle diabetes addressed to communications@idf.org. Elizabeth Snouffer 24 The material in this document is for information purposes only. IDF and CVD: Getting to the heart of the matter IDF makes no representation or warrantires about the accuracy Suvi Karuranga, Anne Wiebe Ohlrogge, Sameer Pathan and Els and reliability of any content in the document. Any opinions Sung 27 expressed are those of their authors, and do not necessarily Jack’s Story: «I never thought I had a heart problem» 30 represent the views of IDF. IDF shall not be liable for any loss or damage in connection with your use of this document. Through Evaluating the cardiovascular risk in a doctor’s office this document, you may link to third-party websites, which are Douglas Villarroel 31 not under IDF’s control. The inclusion of such links does not imply a recommendation or endorsement by IDF of any material, IDF Congress News - Past and Future 32 information, products and services advertised on third-party A look back at the IDF Congress 2017, Abu Dhabi, UAE websites, and IDF disclaims any liability with regard to your access Douglas Villarroel 32 of such linked websites and use of any products or services advertised there. While some information in Diabetes Voice is Looking ahead to Hyderabad, India: about medical issues, it is not medical advice and should not be Urgency for diabetes awarness and education construed as such. Ammar Ibrahim 33 H E A LT H D E L I V E R Y 34 Health for all: Universal health coverage essential for all people with diabetes Interview with Dr Svetlana Axelrod, WHO Assistant Director- General for Noncommunicable Diseases and Mental Health 34 21 25
DIABETES VIEWS DIABETES VIEWS THE GLOBAL DIABETES VIEWS VOICE OF DIABETES NEWS IN BRIEF IDF REGIONAL NEWS Professor Nam H. Cho Welcome to the first 2018 issue of many IDF initiatives in place to give President, International Diabetes Diabetes Voice. The publication made people with a connection to diabetes Federation 2018-19 its first appearance as a newsletter in access to important information and 1954, reporting on the activities of networks. This reflects IDF’s core IDF and relevant breakthroughs in mission by giving voice to people living medical science. For several decades, with, at risk of or connected to diabetes the printed bulletin was sent by who would otherwise not be heard. It post to healthcare professionals is our job to hear and understand the and researchers keen to engage and collective voices of diabetes. Listening OPINION EDITORIAL share diabetes-related information to what’s happening locally at grass- worldwide. Later, Diabetes Voice roots level helps IDF and its members was distributed as a magazine to IDF define and advance the best possible members worldwide. policies for diabetes prevention and care, and helps us protect the rights Times have moved on but, despite of people living with diabetes. being over 60, Diabetes Voice hasn’t retired. It continues to be a key WE ARE A GLOBAL NETWORK GLOBAL CAMPAIGN IDF communication channel. Over As the world’s largest civil society time our community has grown organisation serving to advance considerably. Today as a digital diabetes care, prevention and a platform, Diabetes Voice, is one of cure, IDF’s strength depends on HEALTH DELIVERY 4 DiabetesVoice April 2018 Volume 65 Issue 1
DIABETES VIEWS unity, teamwork and collaboration. mission – our unified voice – will be action. The work conducted under For nearly 70 years, IDF volunteers, strengthened by concentrating efforts each stream will be informed by partners and a variety of collaborative towards the following three areas: scientific evidence and the priorities stakeholders have worked tirelessly to defined by our Board in open dialogue support our vision of a world free of £ £ Strengthening our partnerships with key stakeholders. diabetes. We are not there yet. £ £ Bringing about positive change PRESENCE For the 2018-2019 term, our efforts through IDF programmes As the primary global advocate will be directed towards driving for diabetes, we are informed and critical action in diabetes care and £ £ Increasing our global presence supported by both our status as the prevention. We will continue to study global reference for epidemiological and report on global diabetes trends. PARTNERSHIPS data on diabetes, and the evidence We will improve care by providing Shared values and commitment and policies developed to execute IDF high quality evidence-based education provide the foundation for strategic programmes. In the months ahead, on diabetes and its complications. partnerships. We must, however, we will engage with international We will empower people living with make sure that the voice of those bodies, leading political platforms diabetes to play a central role in their we represent is heard. Over the next and national governments in order own care. Above all, we will make sure two years we will be devoting time to effect tangible, beneficial and long- our commitment to success results in and energy to strengthening the IDF term change for people with diabetes. lasting change that benefits the global Member network globally, nationally diabetes community. and locally. We will look to collaborate Our objective is clear: to outline more closely with global organisations specific actions that will support With a force of more than 240 national who share our concern. We will people with diabetes and implement diabetes representative organizations strengthen and broaden our corporate measures to slow or halt the global in 170 countries, our broad global partnerships and we will strengthen diabetes epidemic. network allows us to achieve our our regional networks. goals and deliver deep-rooted plans In closing, I would like to acknowledge and initiatives that have the power POLICY AND PROGRAMMES and thank the members of the IDF to change lives and can benefit local IDF’s mission is achieved through the Board of Directors, the General communities. Together we can make development of high-quality global Assembly and all 2017 IDF congress a difference for estimated 425 million programmes that drive policy agendas participants for the resounding people currently living with diabetes at local, national and regional levels. success of the IDF Congress 2017 in and the many more at risk. Based on a life-course approach, IDF Abu Dhabi, UAE. Our exchange of programmes for 2018-2019 are divided ideas and strategies was an integral A THREE-PRONGED APPROACH into six main work streams: Diabetes step towards shaping IDF priorities While the world can often be prevention; Diabetes education: for the years ahead. perceived as silent or ignoring the Patient engagement; Access to care; global diabetes crisis, IDFs vision and Epidemiology; and Humanitarian April 2018 Volume 65 Issue 1 DiabetesVoice 5
NEWS IN BRIEF NEWS IN BRIEF World Diabetes Day DIABETES VIEWS 2018-19 to focus on the family NEWS IN BRIEF The International Diabetes Federation has announced that the theme for World Diabetes Day 2018 and 2019 is The Family and Diabetes. A two-year timeframe has been prevent the complications of diabetes and support be accessible to all people IDF REGIONAL NEWS chosen to best align the World and achieve healthy outcomes. All with diabetes and their families to Diabetes Day campaign to the current families are potentially affected by reduce the emotional impact of the IDF strategic plan and facilitate diabetes and so awareness of the signs, disease that can result in a negative planning, development, promotion symptoms and risk factors of diabetes quality of life. and participation. are vital to help detect it early. IDF will begin releasing campaign Materials and actions that IDF will Diabetes can drive families into messages, materials and promotional develop over the two years of the poverty. Managing diabetes effectively actions for World Diabetes Day campaign will aim to raise awareness requires daily treatment, regular 2018-19 in April to help the diabetes OPINION EDITORIAL of the impact that diabetes has on the monitoring, a healthy diet and and wider community prepare for family and support network of those lifestyle and ongoing education. In awareness activities throughout the affected; and promote the role of many countries, the cost of insulin month of November. the family in the management, care, injection and daily monitoring alone prevention and education of diabetes. can consume half of a family’s average disposable income, and regular and Over 425 million people are affordable access to essential diabetes currently living with diabetes. Most medicines are out of reach for too GLOBAL CAMPAIGN of these cases are type 2 diabetes, many. Improving access to affordable which is largely preventable through diabetes medicines and care is regular physical activity, a healthy and therefore urgent to avoid increased balanced diet, and the promotion of costs for the individual and family, healthy living environments. Families which impact on health outcomes. have a key role to play in addressing the modifiable risk factors for type Less than 1 in 4 family members 2 diabetes and must be provided have access to diabetes education HEALTH DELIVERY with the education, resources and programmes. Family support in environments to live a healthy lifestyle. diabetes care has been shown to have a substantial effect in improving health MORE INFORMATION: 1 in 2 people currently living with outcomes for people with diabetes. It www.worlddiabetesday.org diabetes is undiagnosed. Early is therefore important that ongoing diagnosis and treatment are key to diabetes self-management education 6 DiabetesVoice April 2018 Volume 65 Issue 1
NEWS IN BRIEF The Global Diabetes Education Gateway The IDF School of Diabetes is accredited by the European Accreditation Council for Continuing Medical Education (EACCME)* www.idfdiabeteschool.org HTTPS://WWW.IDFDIABETESCHOOL.ORG/ Certified Online Courses HTTPS://WWW.IDFDIABETESCHOOL.ORG/CERTIFICATECOURSE Short Courses HTTPS://WWW.IDFDIABETESCHOOL.ORG/SHORTCOURSE The IDF School of Diabetes features three Short courses provide opportunities to study specialised tailor-made certified courses for health professionals. topics in a broad range of diabetes and its complications in addition to that available through the IDF Certified Diabetes Educators Online Courses Credits: Course fees: 11 European CME Low Income country: 50€ Prevention of type 2 diabetes Others: 75€ Credits: Course fees: 1 European CME Free Primary Care Physicians /General Practitioners Diabetic Retinopathy Credits: Course fees: 8 European CME Low Income country: 100€ Credits: Course fees: Others: 150€ 1 European CME Free Specialists Diabetes and Cardiovascular disease Credits: Course fees: Credits: Course fees: 13 European CME Low Income country: 200€ 1 European CME Free Others: 300€ Benef its of Learner Latest evidence-based clinical recommendations REGISTER HTTPS://WWW.IDFDIABETESCHOOL.ORG/ACCOUNT/REGISTER Continued professional development and learning NOW! Assessment & Awards CME from the European Union of Medical Specialists IDF Certificate and EACCME Be part of global multidisciplinary community of diabetes professionals *Through an agreement between the European Union of Medical Specialists (UEMS) and the American Medical Association (AMA), physicians may convert EACCME credits to an equivalent number of AMA PRA Category 1 CreditsTM. Information on the process to convert EACCME An initiative of credit to AMA credit can be found at www.ama-assn.org/go/internationalcme. April 2018 Volume 65 Issue 1 DiabetesVoice 7
NEWS IN BRIEF Controversy: New ACP DIABETES VIEWS guidelines call for higher HbA1c targets NEWS IN BRIEF New guidelines developed by the American College of pulmonary disease or congestive heart failure) Physicians (ACP) recommend that people with type 2 because the harms outweigh the benefits in this diabetes should be treated to achieve an HbA1c between population. 7 and 8 percent instead of the previous 6.5 to 7 percent IDF REGIONAL NEWS benchmark. The development of the Guidelines, according to the authors, was prompted by a fundamental shift in diabetes Published in March 2018 in the journal Annals of Internal management, and the anticipation of treatment decisions Medicine, the Guidelines state: for type 2 diabetes “based more on cardiovascular risk than achievement of specific HbA1c targets.” The authors GUIDANCE STATEMENT 1: argue for higher general targets because previous evidence Clinicians should personalize goals for glycemic showed “less benefit” of the tighter range compared to control in patients with type 2 diabetes on the “potential harm” of low blood glucose or hypoglycemia. OPINION EDITORIAL basis of a discussion of benefits and harms of Authors propose that benefits of the higher target include: pharmacotherapy, patients’ preferences, patients’ cost-savings to the patient, less burden on the elderly (self- general health and life expectancy, treatment management) and reducing the threat of hypoglycemia. burden, and costs of care. Those not in favor of the new Guidelines argue how the GUIDANCE STATEMENT 2: higher target range may encourage complacency among Clinicians should aim to achieve an HbA1c level doctors whose patients’ blood glucose isn’t well controlled between 7% and 8% in most patients with type 2 leading to futher complications and earlier mortality. GLOBAL CAMPAIGN diabetes. GUIDANCE STATEMENT 3: Clinicians should consider de-intensifying pharmacologic therapy in patients with type 2 diabetes who achieve HbA1c levels less than 6.5%. GUIDANCE STATEMENT 4: Clinicians should treat patients with type 2 diabetes HEALTH DELIVERY to minimize symptoms related to hyperglycemia and avoid targeting an HbA1c level in patients with a life expectancy less than 10 years due to advanced age (80 years or older), residence in a nursing home, or chronic conditions (such as dementia, cancer, end- stage kidney disease, or severe chronic obstructive 8 DiabetesVoice April 2018 Volume 65 Issue 1
NEWS IN BRIEF Impact of diagnosis age and risk for CVD mortality A new study suggests the younger National Diabetes Services Scheme «Evidence is accumulating,» the you are when diagnosed with type and access to data on mortality causes authors write, «to suggest that earlier 2 diabetes, the higher your odds of was made available. onset of type 2 diabetes is associated cardiovascular mortality. Published with an increased risk of complications in the journal Diabetologia, the study On average, during the study period, and comorbidities compared with later found associations between the age people received their diagnosis at the onset, and that the development and at which a person is diagnosed with age of 59, and a total of 115,363 deaths progression of complications might be diabetes and their risk of heart disease, were recorded. The authors found how more aggressive in those with earlier stroke, and cancer-related mortality. an earlier diagnosis of type 2 diabetes onset. As such, increased clinical equating to a longer duration of attention is imperative for individuals It is very well established that the age disease was associated with a higher with earlier-onset type 2 diabetes.» at which someone is diagnosed with risk of all-cause mortality, primarily diabetes is linked to a progression driven by cardiovascular disease in cardiometabolic risk factors. (CVD) mortality. The younger the age at the time of diagnosis, the more likely people Findings suggest that diagnosis 10 MORE INFORMATION: are to be obese, have higher levels years earlier amounted to a 20 to https://link.springer.com/ of «bad» cholesterol, and experience 30 percent higher risk of all-cause article/10.1007/s00125-018- faster deterioration of their blood mortality, and a 60 percent higher risk 4544-z glucose control. of dying of heart disease. The results were just as strong for both men and Researchers from the Baker Heart women. and Diabetes Institute in Melbourne, Australia, set out to investigate the link between the age of a diabetes diagnosis and the risk of heart disease, stroke, and cancer death. Researchers examined data on 743,709 people from Australia who were diagnosed with type 2 diabetes between 1997 and 2011. Participants were registered with Australia’s April 2018 Volume 65 Issue 1 DiabetesVoice 9
NEWS IN BRIEF EADSG Congress and Scientific DIABETES VIEWS Session on Prevention of Diabetes and its Complications The 4th East Africa Diabetes Study progression of complications in people The EADSG Scientific Congresses are NEWS IN BRIEF Group (EADSG) Congress and Annual with diabetes. a comprehensive, multidisciplinary Meeting 2018 took place from March forum with a stellar faculty of leaders 12th-14th at the Kigali Convention Speaking at the opening ceremony, in diabetes and other NCDs that Center in Kigali, Rwanda. The the Minister of State in charge of connect the scientific community conference was organised by the East Public Health and Primary Health and accelerate life science discovery. Africa Diabetes Group (EADSG) in Care, Dr Patrick Ndimubanzi, told They bring together more than 300 collaboration with Rwanda’s Ministry the audience, “The Government of key stakeholders and leaders to discuss of Health. Rwanda is committed to fighting ambitions, priorities and actions for IDF REGIONAL NEWS non-communicable diseases (NCDs) change in diabetes and NCDs within The 2018 congress entitled ‘Prevention and mitigating their impact so as the East Africa Region. of Diabetes and its complications’ to empower our population to live highlighted the importance of the as healthy and prosperous lives as MORE INFORMATION: prevention of diabetes and treating possible,” he said. http://eadsg.org/ diabetes, including how to stop the OPINION EDITORIAL Kuwait shuts doors to people with diabetes, high BP GLOBAL CAMPAIGN Recent News sources report that Kuwait decision which dates back to 2001. leaving the country, as per international will no longer offer residency permits to laws including: Aids, Herpes, Hepatitis expatriates who are suffering from a list The Under-secretary also explained that B and G, Malaria, Leprosy, Syphilis, of 22 diseases, including cancer, diabetes, the main aims behind the decision are to Tuberculosis, and Gonorrhea. high blood pressure and numerous other reduce the costs of expatriate healthcare non-infectious diseases. on the country’s government and ensure According to Arabic language paper, Al HEALTH DELIVERY that foreigners arriving in the Gulf state Watan, sources say the most recent move is According to a statement from the Assistant are fit to work. set to be criticized by international human Under-secretary for General Health Affairs rights organizations because it is unusual in the country’s Ministry of Health, Majida Before the implementation of this most to ban people from entering countries Al Qattan, confirmed the news, stating recent expat ban, Kuwait barred people if the illnesses they suffer from are not that it comes in line with a GCC council with infectious diseases from entering or infectious. 10 DiabetesVoice April 2018 Volume 65 Issue 1
NEWS IN BRIEF Global costs of diabetes will rise substantially by 2030 Researchers from the University of in individuals aged 20–79 years using Göettingen in Germany found the epidemiological and demographic global costs of diabetes will increase data, and recent GDP forecasts for substantially by 2030, according to a 180 countries. Three scenarios were «The global costs of diabetes and study published online in Diabetes Care. assumed: prevalence and mortality 1) its consequences are large and will increased only with urbanization and substantially increase by 2030. Even if Christian Bommer and his colleagues population aging (baseline scenario), 2) countries meet international targets, sought to forecast the full global costs of increased in line with previous trends the global economic burden will not diabetes in adults through the year 2030 (past trends scenario), and 3) achieved decrease,» the authors write. «Policy and predict the economic consequences global targets (target scenario). makers need to take urgent action of diabetes even if global targets under to prepare health and social security the Sustainable Development Goals Researchers estimate that the absolute systems to mitigate the effects of (SDG) and World Health Organization global economic burden will increase diabetes.» Global Action Plan for the Prevention from US $1.3 trillion in 2015 to $2.2 and Control of Noncommunicable trillion in the baseline scenario, $2.5 MORE INFORMATION: Diseases 2013–2020 are met. trillion in the past trends scenario, and http://care.diabetesjournals.org/ $2.1 trillion in the target scenario. The content/early/2018/02/20/dc17- The researchers modelled the absolute increase in costs as a share of global 1962 and gross domestic product (GDP)- GDP would grow from 1.8% in 2015 to relative economic burden of diabetes a maximum of 2.2%. Diabetes discrimination is wrong April 2018 Volume 65 Issue 1 DiabetesVoice 11
NEWS IN BRIEF 5 types of diabetes DIABETES VIEWS versus 2 NEWS IN BRIEF IDF REGIONAL NEWS Researchers in Scandinavia have result in a halting the progression of CLUSTER 4: proposed classifying diabetes as five complications. For example, cluster Called «mild obesity-related diabetes,» types of disease, rather than two types, 3 (most resistant to insulin) had the occurs in people who have a milder according to a new study. highest risk of diabetic kidney disease form of the disease, without as many and cluster 2 (insulin deficient) had the metabolic problems as those in cluster In the new study, published in The highest risk of retinopathy. 3, and they tend to be obese. Lancet Diabetes & Endocrinology, OPINION EDITORIAL researchers found that diabetes CLUSTER 1: CLUSTER 5: patients in Sweden and Finland fell Called «severe autoimmune diabetes,» Called «mild age-related diabetes,» into five clusters. One of the clusters is similar to type 1 diabetes. People this form was similar to cluster 4, but was similar to type 1 diabetes, while in this cluster were relatively young the people were older at their age of the other four clusters were «subtypes» when they were diagnosed, and not diagnosis. This was the most common of type 2. Three of the clusters were overweight. An autoimmune disease form of diabetes, affecting about 40 considered severe forms of the disease, prevented people in this cluster from percent of people in the study. while two clusters were considered producing inulin. GLOBAL CAMPAIGN mild forms. Recognizing subtypes of diabetes, as CLUSTER 2: the new study suggests, might change Study researchers believe a new Called «severe insulin-deficient the way doctors treat, prescribe classification system could provide a way diabetes,» is similar to cluster 1 — people and prevent the progression of to “individualise treatment regimens were relatively young at diagnosis and complications in diabetes. and identify individuals with increased were not overweight. They were also not risk of complications at diagnosis.” producing much insulin. But, crucially, their immune system was not the cause HEALTH DELIVERY The study yielded five replicable of their disease. MORE INFORMATION: clusters of patients with diabetes, http://www.thelancet.com/ which had significantly different CLUSTER 3: journals/landia/article/ patient characteristics and risk of Called «severe insulin-resistant diabetes,» PIIS2213-8587(18)30051-2/ diabetic complications. Classifying occurs in people who are overweight and fulltext?elsca1=tlpr into the following clusters below could have high insulin resistance. 12 DiabetesVoice April 2018 Volume 65 Issue 1
NEWS IN BRIEF Smoking increases risk of diabetes Researchers from the University of Oxford, UK, the Chinese The researchers found that, compared with people who have Academy of Medical Sciences and Peking University have never smoked, regular smokers have a 15-30 percent higher examined the association of smoking and smoking cessation risk of developing diabetes, after taking account of the with the risk of diabetes in a large, nationwide study of effects of age, socioeconomic status, alcohol consumption, 500,000 adults from 10 areas (five urban and five rural) of physical activity and adiposity. The study also showed a China. clear dose-response relationship with amount smoked and the earlier a person started smoking. The study included only people with no history of diabetes at the baseline, whose health status was monitored for nine Among urban men, smokers had an adjusted HR of 1·18 years through death and hospital admission records. During for diabetes. HRs increased with younger age at first this time over 13,500 participants developed new-onset type smoking regularly (1·12, 1·20, and 1·27 at ≥25 years, 20–24 2 diabetes. years, and
NEWS IN BRIEF IDF Board DIABETES VIEWS of Directors 2018-19 NEWS IN BRIEF The International Diabetes Federation, the largest global voluntary health organisation advocating improved diabetes awareness, education and care, is pleased to present the members of its Board of Directors for 2018-2019. IDF REGIONAL NEWS Prof. Nam H. Cho PRESIDENT Republic of Korea OPINION EDITORIAL Prof. Andrew Boulton PRESIDENT-ELECT United Kingdom GLOBAL CAMPAIGN Ms. Sharon Fraser VICE-PRESIDENT STRATEGIC GOVERNANCE Belize HEALTH DELIVERY 14 DiabetesVoice April 2018 Volume 65 Issue 1
NEWS IN BRIEF REGIONAL CHAIRS Africa: Dr. Naby Baldé, Guinea VICE-PRESIDENTS: Prof. Stephen Colagiuri Australia Europe: Prof. Şehnaz Karadeniz, Turkey Prof. Angus Forbes United Kingdom Middle East and North Africa: Prof. Abdul Basit, Pakistan Mr. Serge Langlois Canada North America and Caribbean: Ms. Glynis Alonzo-Beaton, Guyana Mr. Fredrik Löndahl Sweden South and Central America: Dr. Balduino Tschiedel, Brazil Ms. Zobida Ragbirsingh Trinidad and Tobago South East Asia: Dr. Ali Siyan, Maldives Prof. Eugène Sobngwi Cameroon Western Pacific: Prof. Linong Ji, China April 2018 Volume 65 Issue 1 DiabetesVoice 15
REGIONAL NEWS IDF REGIONAL NEWS IDF EUROPE Improving the lives of people DIABETES VIEWS with diabetes and those at risk in the IDF European Region NEWS IN BRIEF Sehnaz Karadeniz IDF European (EU) Region is a Forum’. Young people are the Through our IMPACT Diabetes Pledge, wonderful example of unity-in-diversity future of the IDF Member Associations we want to strengthen our network IDF REGIONAL NEWS -different cultures, healthcare systems, and all seven regions and they have of European Parliamentarians, to different levels of resources. There are an immense capacity with their out- make our voice heard more strongly, a multitude of unique experiences from of-the-box thinking. We need more to prioritise diabetes on the political country to country where we can learn youth involvement from the Member agenda, and to motivate the decision- from each other and adapt to our own Associations and from the European makers to do follow-up of the political culture where appropriate. Region of the YLD program to commitments made. flourish this program. I want to take However, the increasing numbers this opportunity to thank to the Board We very much hope that in this term show that the EU is facing a diabetes Members: Kyle Jacques Rose, Cristina we will keep on building on the past OPINION EDITORIAL pandemic similar to the rest of the Petrut, Iryna Vlasenko and Elisabeth achievements of IDF Europe together world, despite the favourable outcomes Dupont from our Regional Office for with our Member Associations in our of scientific studies to prevent diabetes their guidance and coordination, and region. and its burden. to all the youth advocates who are currently participating. In our recent publication ‘Integrating Diabetes Evidence into Practice: When it comes to “improving the challenges and opportunities to bridge lives of people with diabetes and those GLOBAL CAMPAIGN the gaps’, we mapped the challenges at risk in our region” as the vision of and the opportunities to bridge the 2018-19 by the IDF Europe Board, gaps between the available scientific we must concentrate, with all means, evidence and the real life practices at the implementation of the political different levels across Europe, including commitments as declared by several the healthcare system level, healthcare political institutions. professional level and at the level of people living with diabetes. HEALTH DELIVERY Şehnaz Karadeniz Our region has the highest number is the Chair of the of children and adolescents with IDF European Region type 1 diabetes in the world. We have also started the YOURAH program, ‘IDF’s Europe Youth Advocate 16 DiabetesVoice April 2018 Volume 65 Issue 1
IDF REGIONAL NEWS IDF MIDDLE EAST AND NORTH AFRICA Road map for better diabetes care Abdul Basit, Erum Ghafoor The IDF Middle East and North For the new term, the activities calendar as an IDF Center of Education and IDF America (MENA) region is a diverse developed in the MENA region Center of Excellence in diabetes care and unique territory with great ethical specifically targets preventive measures to meet the urgent need. The network and cultural differences and socio- including launching of diabetes mobile of 100 mini-clinics led by trained economic extremes. Approximately units by Bahrain Diabetes Society and diabetes educators is a commendable 38.7 million adults are living with Diabetes Palestine; and campaigns for diabetes education initiative by Sudan. diabetes and almost half (49.1%) of the prevention of blindness by Sudan. Additionally, the Qatar Diabetes them are unaware of their condition.1 Saudi Diabetes & Endocrine Association Association offers a structured training The prevalence of diabetes is on a rapid is aiming to initiate Sweet Smile Clubs program for school nurses across the upsurge in the MENA region. for children with type 1 diabetes country along with the Al-Bawasil-camp and mass screening campaigns as a for children with type 1 diabetes. Al- Several countries of this region have preventive measure. Shurooq Diabetes Camp for Children implemented high-impact prevention is organized by the Bahrain Diabetes approaches to reduce diabetes and its The MENA region is currently in need Society annually. Additional activities complications. A major preventive of a substantial number of trained include continuous education on healthy initiative is the National Diabetes and healthcare providers. Pakistan has cooking techniques, guidelines for safe Diabetic Foot Program in Pakistan earned the recognition of nomination fasting during Ramadan and training where 115 diabetes clinics have been established and the rate of amputation has been halved.2 Similarly, Footwear for every Diabetic (FED) is another ingenuity by which ten risk assessment clinics have been established countrywide, providing low-cost footwear for people with diabetes thereby reducing ulcer rates. Recently, In Mansoura, Egypt, an IDF MENA Diabetic Foot Workshop was conducted with trainees from Afghanistan, Pakistan, Lebanon, Sudan, Jordan, and Egypt. April 2018 Volume 65 Issue 1 DiabetesVoice 17
IDF REGIONAL NEWS programs for safe traveling, including registered more 500 type 1 children and References pilgrimage, are some of the education provides free services in Jerusalem and 1. International Diabetes Federation initiatives of the region. Gaza. Another major initiative is a joint DIABETES VIEWS (IDF), Atlas 8th edition 2017. Available project of World Diabetes Foundation from: https://w w w.idf.org/our- It is extremely worrisome that amongst (WDF) and IDF-MENA region for network/regions-members/middle- east-and-north-africa/welcome.html the highest prevalent countries with providing diabetes care services and free (last assessed on March 24, 2018) diabetes worldwide, five countries insulin to Syrian refugees in Lebanon. 2. Basit A, Nawaz A. Preventing diabetes belong to the IDF MENA region. There In the future, the Diabetes and Disaster related amputations in a developing is an urgent demand for epidemiological stream for the IDF World Congress country – steps in the right direction. Diabetes Voice 2013; 58: 36-39. initiatives to address such an alarming would benefit by addressing strategies 3. Basit A, Khan A, Khan RA. BRIGHT state. Recently, Pakistan has conducted not only for natural calamities but also Guidelines on Self-Monitoring of NEWS IN BRIEF the 2nd National Diabetes Survey for manmade emergencies and disasters. Blood Glucose. Pak J Med Science of Pakistan (NDSP) 2016-17 which 2014; 30(5):1150-1155. https://www. ncbi. n l m . n i h . gov / pmc / ar t i cl e s / revealed that 26% of the population Continuous medical education through PMC4163252/ over the age of 20 has type 2 diabetes. regular meetings and conferences Some of our member associations have is another important area which is already taken up the task to replicate it getting recognized in the MENA region. in their countries. Furthermore, Diabetes Registry of IDF REGIONAL NEWS Pakistan (DRoP) is another promising Advocacy is another prerogative aim initiative in collaboration with the of IDF-MENA to support people with Ministry of Health. The presentation diabetes and stop the diabetes epidemic of MENA region guidelines for the which is strengthened through launching management of type 2 diabetes is and implementation of effective advocacy another strong step towards better campaigns amongst MENA countries. care. Pakistan has also developed the Furthermore, influencing international BRIGHT guidelines3 to provide low cost bodies, political platforms, community and effective strategies for improving OPINION EDITORIAL leaders, and national governments is self-management of blood glucose. required to implement practical, real time and long-term measures. Other In summary, the IDF MENA region outstanding plans for the coming term is aiming to achieve a resilient global include: launching the Dia-Ambassador presence by promoting advocacy not program in Iran; mass campaigns for safe only for people with diabetes but also fasting during Ramadan and decreasing for those who are at risk, emphasizing the use of tobacco in Morocco and Iraq; empowerment for people with diabetes GLOBAL CAMPAIGN and online education courses for people and strengthening the International with diabetes in Sudan and Pakistan. recognition of IDF and diabetes. We Provision of regional advocacy strategies believe these measures will go a long are major goals. way in achieving better diabetes care and prevention. More than half of the MENA region consists of resource constrained Abdul Basit countries. The access to basic diabetes is Chair of the IDF-MENA Region, Director of the Baqai Institute of Diabetology & HEALTH DELIVERY care and the crisis of insulin is a Endocrinology (BIDE), Professor of Medicine at Baqai Medical University (BMU) and Joint Secretary, Diabetic Association of Pakistan (DAP). common issue. Insulin My Life (IML) project in Pakistan has already provided Erum Ghafoor is a Consultant Diabetes Educator at the Baqai Institute of Diabetology & Endocrinology, more than 20,000 free insulin vials to Expert Trainer for Conversation Map Tools in Pakistan and over 1,900 children with type 1 diabetes. Joint Secretary of the National Association of Diabetes Educators of Pakistan. Likewise, Diabetes Palestine has 18 DiabetesVoice April 2018 Volume 65 Issue 1
IDF REGIONAL NEWS IDF NORTH AMERICA AND CARIBBEAN EDUCATION! EDUCATION! EDUCATION! The key to diabetes management Glynis Alonzo-Beaton Education is the driving force to Young Leaders of Diabetes (YLD) £ £ The President of NAC, Glynis achieve proper management of living with type 1 diabetes in Beaton, will be a guest speaker in diabetes. Holistic education for Belize. Given this tragic loss, Atlanta, Georgia (USA) on “How patient understanding is so critical for the association took on the need Diabetes Works”. The rest of the success and for improving outcomes to prioritize care for people year is packed with YLD Awareness for people with diabetes that advocates with type 1 diabetes, especially outreaches and Exhibitions. and medical professionals must provide with professional counselling. diabetes education for people at all Beginning in April, Belize is ££ T h e A m e r i c a n D i a b e t e s levels, including patients with low working with the World Diabetes Association is hosting their Annual levels of literacy. We need to help Federation on a new project Scientific Sessions in Orlando, people with diabetes understand their entitled “Belize National Diabetes Florida from June 22-26, 2018 condition fully and be motivated to Self-Care Programme”. and representatives from the NAC take care of themselves willingly. The Region will attend. North American and Caribbean (NAC) £ £ For Guyana, 2017 was a stellar year. Region is prioritizing education and The YLDs led many programs and Despite our recent challenges in the has developed their diabetes education collaborated with the Ministry of NAC region, we are happy to say we all programs to suit all education levels. Public Health on lay training for have one common ground on which we “non-medical personnel” and helped will be emphasizing diabetes education What follows are association activity strengthen the Guyana Education as a key focus for our communities this examples from the NAC region: Department on behalf of the NCD year. Commission, the Management £ £ St. Kitts and Nevis started 2018 Board and the Guyana Diabetic with blood glucose screening, Association. The association testing and providing diabetes collaborated with the Ministry of education in local schools. Public Health and the Georgetown Lectures have been organized for Public Hospital Corporation to medical personnel and the general provide CME for four credits on public, and are ongoing. They will Kidney Disease and Women. This Glynis Alonzo-Beaton continue this trend with increased year we will watch Guyana unfold is the Chair of the education during the year. an exciting cricket competition for IDF North America and Caribbean (NAC) region the third consecutive year for boys £ £ The year started with a sad note (under 17) with YLD hosting the on the loss of one of the IDFs education sessions and testing. April 2018 Volume 65 Issue 1 DiabetesVoice 19
IDF REGIONAL NEWS IDF SOUTH AND CENTRAL AMERICA Brazilian government DIABETES VIEWS to provide analog insulin for type 1 diabetes NEWS IN BRIEF Vanessa Pirolo and Balduino Tschiedel After social media outcry, the Brazilian £ £ People who perform self- for 20 minutes but was asked to leave Ministry of Health is discussing final monitoring blood glucose tests a for the final discussion according to IDF REGIONAL NEWS steps with the National Committee minimum of three times a day. the National Committee for Health for Health Technology (Committee) Technology protocol procedure. to make rapid-acting analog insulin £ £ People who have had severe ADJ was not given access to the final available for people with type 1 diabetes hypoglycemia over the last three discussions. in the Brazilian Public Health System months, and/or who have had (SUS). repeated and/or nocturnal non- Other issues which need defining are: severe hypoglycemia. type and size of the insulin pen and The Secretary of Science, Technology determining reusability; and place of and Strategic Inputs from the Ministry The Committee also highlighted how dispensing (primary care offices or OPINION EDITORIAL of Health signed the incorporation on people with type 1 diabetes who qualify specialized care). Advocacy leadership February 22, 2017. It is critical for the must also have access to at least 100 test is closely monitoring each step and health of people with type 1 diabetes to blood glucose strips for testing per believes that newer, faster insulin and have accessibility to more efficacious month, and for pregnant women, 150 technology will benefit the Brazilian analog insulins and the delay of almost to 200 test strips in order to achieve best population by decreasing the number one year is unacceptable. self-monitoring practices and safety. of diabetes complications and hospital stays due to the lack of access. Advocates, people with diabetes, The Juvenile Diabetes Association GLOBAL CAMPAIGN Committee members and government Brazil (ADJ) was invited to attend the Update: The bidding procedure to representatives expect that the change disclosure of the meeting protocol purchase the rapid-acting insulin took in insulin benefits for people with type place on April 2nd and at the time of 1 diabetes will take effect by July 2018. publication, ADJ has not been informed Under discussion are the determining of the results. criteria for patient qualification. Draft recommendations include: Vanessa Pirolo is a journalist, Advocacy Coordinator for HEALTH DELIVERY £ £ People who have used regular ADJ Diabetes Brazil and a member of the board of the IDF South and Central insulin for at least three months. America (SACA) region. £ £ People who are under the care of Balduino Tschiedel is Chair of the IDF South and Central an endocrinologist and are seen at America Region. least twice a year. 20 DiabetesVoice April 2018 Volume 65 Issue 1 Vanessa Pirolo
OPINION OPINION EDITORIAL GUEST EDITORIAL Insulin: Concierge Medication or Human Right? Joyce Lee, MD, MPH this means that they need at least three for long acting insulin. These costs are vials of insulin a month, which costs increasingly being passed onto patients nearly $1400– tragically higher than and their families as the number of the cost of their rent or a mortgage. individuals on high deductible health The high cost of insulin doesn’t include plans or who are uninsured grows. all of the additional supplies they need for self-monitoring, including blood This crisis in insulin pricing is taking glucose testing strips (as high as $1 per a human toll. Families are now using strip), sensors for continuous glucose crowdfunding sites like GoFundMe to monitoring ($350 a month), glucagon fundraise to pay for their insulin. And ($280), visits to a healthcare provider there are too many stories in the news and more. about patients, who when faced with There is a growing recognition that we a $1300 insulin bill at the pharmacy, are reaching a crisis in the US diabetes must ration their insulin and suffer community with regard to the price of HAS INSULIN ALWAYS BEEN THIS EXPENSIVE? catastrophic consequences, including insulin. If you search for “insulins” on an increased risk of complications and GoodRx.com you will see a huge range The answer is no. There are clinicians even death. of prices for different types of insulin. and patients who can remember when The insulins that I have traditionally a vial of insulin used to cost $20, and used for my patients with type 1 diabetes studies have shown that the costs of WHY IS INSULIN SO EXPENSIVE? include short acting analog insulins like insulin have increased dramatically Humalog ($549) or Novolog ($551), over the last few decades. For example, Here are just a few of the contributing and long acting insulins like Lantus studies using Medicaid data have factors: ($274), Levemir ($436), and the new shown that annual payments for a generic/“follow-on” long acting insulins patient requiring 40 units of insulin £ £ The US government lacks like Basaglar ($234). a day increased from $771 in 2001 to negotiating power with regard to $2852 in 2014 (a 370% increase) for drug pricing, and therefore pays Because some of my patients with rapid acting insulin, and from $891 in more for insulin than any other diabetes use more than 100 units a day, 2001 to $2848 in 2014 (a 320% increase) country, leading to a prescription April 2018 Volume 65 Issue 1 DiabetesVoice 21
OPINION EDITORIAL drug market that prices “primarily 1. They blame the “complicated“ net prices of Lantus over the on the basis of what the market will healthcare system: cumulative period of the last five bear.” years actually went down,» she DIABETES VIEWS “There are no quick and easy said.” £ £ Companies that want to make answers, because the system is generic insulin, may lack the complex and complicated,” Lilly 3. The pharmacy benefit managers and manufacturing capabilities and a spokesman, Gregory Kueterman insurers blame the pharmaceutical supply chain for producing insulin. said. “Even just simply lowering companies. prices, while that seems like £ £ The use of “evergreening” by an easy answer, it wouldn’t “Rebates don’t raise drug prices, pharmaceutical companies, in necessarily lower the prices of the drug makers raise drug prices.” NEWS IN BRIEF which they make very minor high-deductible plan. They’d have tweaks in a drug to extend the life to keep paying till they hit that of a drug patent, through minor deductible.” The public has been outraged by a modifications in the drug itself but number of different prescription even more commonly now though 2. The pharmaceutical companies drug pricing scandals in the news, updates to drug delivery devices blame the pharmaceutical benefit including the mark-up of Epipen prices rather than the drug itself. managers and insurers. When the 3 by CEO Heather Bresch of Mylan IDF REGIONAL NEWS manufacturers of insulin in the US Pharmaceuticals, or the 5000% price £ £ The use of patent infringement were asked about pricing of insulin: increase for Daraprim orchestrated lawsuits by pharmaceutical by now convicted ex CEO of Turing companies, who file them to “Sanofi, Lilly and Novo Nordisk Pharmaceuticals Martin Shrkeli. The prevent or delay entry of generic/ all highlighted discounts they increases in insulin price may not have follow-on competitors for up provide, and also pointed the been as dramatic and have occurred to years. For example, a lawsuit finger at health insurers.” more gradually over a longer period of against the follow-on to Lantus time, but do the companies involved in called Basaglar resulted in a “Ashleigh Koss, a spokeswoman the pricing of insulin deserve any less OPINION EDITORIAL 30-month delay in approval, during for Sanofi, told Business Insider negative attention? Scientists Frederick which the company could charge that Lantus had not had a price Banting, Charles Best, and James Collip more for Lantus before it went off increase since November 2014 who discovered and established the patent. in the US. «In fact, because first patent for insulin, sold it for $1 to of aggressive discounting and £ £ The rise of the pharmacy benefit rebates to insurance plans, PBMs, manager, which is an entity and government programs, the that negotiates rebates with GLOBAL CAMPAIGN pharmaceutical companies, taking a proportion of the drug cost as profit without any sort of price transparency. £ £ And let’s not forget, that very important factor called greed. HEALTH DELIVERY Not surprisingly, the major players with the ability to change the pricing (pharmaceutical companies, pharmacy benefit managers, and insurers) put the blame on anyone except themselves. 22 DiabetesVoice April 2018 Volume 65 Issue 1
OPINION EDITORIAL ensure the discovery could be accessed £ £ The Juvenile Diabetes Research Everyone in the diabetes community by all individuals with diabetes. They Foundation has developed a Type needs to speak up and advocate would be outraged if they could see 1 diabetes Health Insurance Guide for our patients on this critically how difficult it is for people to afford to help patients navigate health important issue. As the advocate and insulin today. insurance issues. endocrinologist Dr Irl Hirsch said in his publication, Insulin in America: A Insulin has tragically become a £ £ The American Diabetes Association Right or a Privilege? concierge medicine, available only to has asked politicians to examine those who are well off and have good the supply chain for insulin and “But to those who detest the thought insurance, when it should be a right. As have asked for transparency of of having our government involved in James Elliott, advocate and individual pricing. the distribution of insulin, I would say with type 1 diabetes said, “We’re locked that I detest more the pain, suffering, into paying whatever insulin companies £ £ Finally, politicians themselves have cost, and potential death from diabetic decide. It’s like paying for oxygen and begun to advocate. US Senator ketoacidosis resulting from patients’ having three companies decide what Bernie Sanders and Congressman inability to afford insulin.” the price should be.” Elijah Cummings have asked the Justice Department and Federal In response to the crisis there have been Trade Commission to investigate a number of developments: anticompetitive conduct and made accusations of price collusion £ £ The patient community has begun among the companies, as there the important advocacy on this have been suspicious increases in topic, organizing protests at Eli insulin prices among brands in lock Lilly, and planning protests at the step (i.e. a 16.1% increase in Lantus other insulin companies. followed by a 16.1% increase in Levemir the next day; or an 11.9% £ £ Type 1 International is a global increase in Lantus, followed by diabetes advocacy organization an 11.9% increase in Levemir). working to improve sustainable It’s possible that governmental access to insulin, supplies, care and intervention may be the only way treatment for everyone with type 1 to address this crisis. diabetes. £ £ The Diabetes Patient Advocacy Coalition has started the Affordable Insulin Project, offering tools, Joyce Lee resources, and data for patients, MD, MPH, is the Robert P. Kelch, MD Research Professor of Pediatrics at the caregivers, employers, and University of Michigan Medical School healthcare professionals to support and Professor at the Medical School and increasing affordable access to at the University of Michigan School of Public Health. insulin. Her research agenda focuses on the overarching areas of type 1 and type 2 diabetes, and obesity, and her current work includes focus on the creation of learning health systems using the methods of clinical informatics, quality improvement, and patient-centered participatory design. For more information, visit her website: http://www.doctorasdesigner.com April 2018 Volume 65 Issue 1 DiabetesVoice 23
THE GLOBAL CAMPAIGN THE GLOBAL CAMPAIGN Lions Clubs International and DIABETES VIEWS International Diabetes Federation come together to tackle diabetes Elizabeth Snouffer NEWS IN BRIEF On Saturday, March 24, 2018, Lions came together to help prevent diabetes LCI’s 40th annual Lions Day with the Clubs International (LCI) and the and improve the quality of life for those United Nations (UN) commemorated International Diabetes Federation living with diabetes worldwide. their long-standing relationship as a (IDF) signed a Memorandum of consultative NGO to the UN which Understanding (MoU), on the occasion LCI is the world’s largest service club began in 1945. The theme for the IDF REGIONAL NEWS of Lions Day at the UN, to establish a organization, with 48,000 clubs and event “Working Together Globally to cooperative alliance in the global fight over 1.4 million members serving in Combat Diabetes” was attended by against diabetes. The two organizations 200 countries or geographic areas. Lions members, Leos—young leaders OPINION EDITORIAL GLOBAL CAMPAIGN HEALTH DELIVERY 24 DiabetesVoice April 2018 Volume 65 Issue 1
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