DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes

Page created by Jerome Young
 
CONTINUE READING
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
DiabetesVoice
GLOBAL PERSPECTIVES ON DIABETES           Volume 65 - Issue 1 - April 2018

                                   IDF and Lions Club
                                        International:
                                  Working together to
                                      tackle diabetes
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
Learn.
                                                              Learn.
                                                                 Discover.
                                                                     Discover.
                                                                           Connect.
                                                                               Connect.

                                                            www.idf.org/hyderabad2018
                                                                www.idf.org/hyderabad2018
                                                                     #IDF2018
                                                                          #IDF2018

Introducing
    Introducing
             thethe
                 newnew
                     IDF IDF
                         Diabetes
                             Diabetes
                                   Complications
                                      Complications
                                                 andand
                                                     FootFoot
                                                          Congress
                                                              Congress
                                                                   2018!
                                                                       2018!                                                             I
25-27
    25-27
       October,
          October,
                Hyderabad,
                   Hyderabad,
                            India
                               India                                                                                                     2
IDF isIDF
       launching
          is launching
                   a newaseries
                            new series
                                   of liveofeducational
                                             live educational
                                                          eventsevents
                                                                  to tackle
                                                                          to tackle
                                                                               the issues
                                                                                     the issues
                                                                                            aroundaround
                                                                                                      diabetes
                                                                                                            diabetes
                                                                                                                complications.
                                                                                                                      complications.     I
The first
      Theoffirst
             these
                of these
                    biennial
                           biennial
                                events
                                     events
                                        will have
                                               will a
                                                    have
                                                      focus
                                                          a focus
                                                             on theondiabetic
                                                                       the diabetic
                                                                                 foot. The
                                                                                        foot.aim
                                                                                              Theofaim
                                                                                                     theofcongress
                                                                                                           the congress
                                                                                                                   is to provide
                                                                                                                         is to provide   T
participants
      participants
               with the
                     withlatest
                           the latest
                                 research,
                                        research,
                                             treatments
                                                    treatments
                                                           and tools
                                                                 and tools
                                                                       to limit
                                                                              to and
                                                                                  limittreat
                                                                                         and treat
                                                                                              diabetes
                                                                                                    diabetes
                                                                                                        complications.
                                                                                                              complications.             p
The ultimate
      The ultimate
               goal is
                     goal
                       to improve
                            is to improve
                                      outcomes
                                             outcomes
                                                   and quality
                                                         and quality
                                                                of lifeoffor
                                                                           life
                                                                              people
                                                                                for people
                                                                                       with diabetes.
                                                                                              with diabetes.                             T

             Who Who
                 should
                     should
                        attend:
                             attend:

-   Primary
       - Primary
            care Physicians
                 care Physicians          -   Cardiologists
                                                 - Cardiologists
                                                                                                          CALL
                                                                                                            CALL
                                                                                                               FORFOR                    -
-
-
    Endocrinologists
       - Endocrinologists
    Orthopaedists
       - Orthopaedists
                                          -
                                          -
                                              Nephrologists
                                                 - Nephrologists
                                              Ophthalmologists
                                                 - Ophthalmologists
                                                                                                          ABSTRACTS
                                                                                                            ABSTRACTS                    -
                                                                                                                                         -
-   Podiatrists
       - Podiatrists                      -   Nurses
                                                 - Nurses                                                                                -
-   General
       - General
            surgeons
                 surgeons                 -   Educators
                                                 - Educators                                                                             -
-   Vascular
       - Vascular
             surgeons
                  surgeons                -   Physiotherapists
                                                 - Physiotherapists                       Abstract
                                                                                              Abstract
                                                                                                   submission
                                                                                                       submission
                                                                                                               deadline:
                                                                                                                   deadline:             -
                                                                                            31 May
                                                                                                31 May
                                                                                                    20182018
                                                                                                         at 23:59
                                                                                                             at 23:59
                                                                                                                  GMTGMT
The IDF
     TheDiabetes
          IDF Diabetes
                    Complications
                         Complications
                                   and Foot
                                        and Foot
                                             Congress
                                                  Congress
                                                       2018 2018                                                                         T
welcomes
     welcomes
            original
                  original
                      abstracts
                           abstracts
                                on subjects
                                     on subjects
                                            relevant
                                                 relevant
                                                     to theto the                                                                        w
following
     following
           7 streams:
                 7 streams:                                                                                                              f

                     • Foot• -Foot
                               Peripheral
                                   - Peripheral
                                           Arterial
                                                 Arterial
                                                    Disease
                                                          Disease
                     • Foot• -Foot
                               Ulcers
                                   - Ulcers
                                      and Infection
                                            and Infection
                     • Foot• -Foot
                               Diabetic
                                   - Diabetic
                                        Peripheral
                                              Peripheral
                                                     Neuropathy
                                                           Neuropathy
                                                                  and and
                       Charcot
                            Charcot                                                                       Scan to
                                                                                                                Scan
                                                                                                                  view
                                                                                                                     to view
                     • Cardiovascular
                           • Cardiovascular
                                       Risk Factors
                                             Risk Factors
                     • Coronary
                           • Coronary
                                 HeartHeart
                                       Disease
                                             Disease
                                                and Heart
                                                      and Heart
                                                           Failure
                                                                 Failure
                     • Diabetes
                           • Diabetes
                                 and Kidney
                                      and Kidney
                                             Disease
                                                   Disease                                      Abstract
                                                                                                     Abstract
                                                                                                         submission
                                                                                                              submission
                                                                                                                     is only
                                                                                                                           is only
                                                                                                    possible
                                                                                                          possible
                                                                                                              onlineonline
                                                                                                                     at    at
                     • Diabetic
                           • Diabetic
                                Eye Disease
                                      Eye Disease
                                                                                           www.idf.org/hyderabad2018
                                                                                              www.idf.org/hyderabad2018
              Organising
                  Organising
                         Committee
                             Committee
                                   ChairChair
              Dr Shaukat
                   Dr Shaukat
                         Sadikot
                              Sadikot
                                                                                                 Questions
                                                                                                     Questions
                                                                                                           aboutabout
                                                                                                                 abstracts:
                                                                                                                      abstracts:
              Programme
                  Programme
                        ChairChair
              Dr Ammar
                   Dr Ammar
                        Ibrahim
                             Ibrahim                                                               programme@idf.org
                                                                                                       programme@idf.org
              ChairChair
                    National
                         National
                             Advisory
                                  Advisory
                                      Committee
                                           Committee
              Dr Banshi
                   Dr Banshi
                        SabooSaboo
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
DIABETES VIEWS                                                      4
                                                                        International Diabetes Federation
The Global Voice of Diabetes                                            Promoting diabetes care, prevention and a cure worldwide
Nam H. Cho                                                          4
                                                                        Editor-in-Chief: Douglas Villarroel
NEWS IN BRIEF                                                       6   Editor: Elizabeth Snouffer
                                                                        Editorial Coordinator: Lorenzo Piemonte

IDF REGIONAL NEWS                                                  16   All correspondence should be addressed to:
                                                                        diabetesvoice@idf.org
OPINION EDITORIAL                                                  21
                                                                        Diabetes Voice is available online at:
                                                                        www.diabetesvoice.org
Insulin: Concierge Medication or Human Right?
Joyce Lee                                                          21
                                                                        © International Diabetes Federation, 2018 - All rights
                                                                        reserved. No part of this publication may be reproduced or
T H E G L O B A L C A M PA I G N                                   24   transmitted in any form or by any means without the written
                                                                        prior permission of the International Diabetes Federation (IDF).
Lions Club and International Diabetes Federation come                   Requests to reproduce or translate IDF publications should be
together to tackle diabetes                                             addressed to communications@idf.org.
Elizabeth Snouffer                                                 24
                                                                        The material in this document is for information purposes only.
IDF and CVD: Getting to the heart of the matter                         IDF makes no representation or warrantires about the accuracy
Suvi Karuranga, Anne Wiebe Ohlrogge, Sameer Pathan and Els              and reliability of any content in the document. Any opinions
Sung                                                               27   expressed are those of their authors, and do not necessarily
   Jack’s Story: «I never thought I had a heart problem»          30   represent the views of IDF. IDF shall not be liable for any loss or
                                                                        damage in connection with your use of this document. Through
   Evaluating the cardiovascular risk in a doctor’s office             this document, you may link to third-party websites, which are
     Douglas Villarroel                                            31   not under IDF’s control. The inclusion of such links does not
                                                                        imply a recommendation or endorsement by IDF of any material,
IDF Congress News - Past and Future                                32   information, products and services advertised on third-party
   A look back at the IDF Congress 2017, Abu Dhabi, UAE                websites, and IDF disclaims any liability with regard to your access
     Douglas Villarroel                                            32   of such linked websites and use of any products or services
                                                                        advertised there. While some information in Diabetes Voice is
   Looking ahead to Hyderabad, India:                                  about medical issues, it is not medical advice and should not be
    Urgency for diabetes awarness and education                         construed as such.
     Ammar Ibrahim                                                 33

H E A LT H D E L I V E R Y                                         34

Health for all: Universal health coverage essential for all
people with diabetes
Interview with Dr Svetlana Axelrod, WHO Assistant Director-
General for Noncommunicable Diseases and Mental Health             34

                                                              21                                                                           25
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
DIABETES VIEWS

                     DIABETES VIEWS

                              THE GLOBAL
DIABETES VIEWS

                              VOICE OF
                              DIABETES
NEWS IN BRIEF
IDF REGIONAL NEWS

                              Professor Nam H. Cho                Welcome to the first 2018 issue of        many IDF initiatives in place to give
                              President, International Diabetes   Diabetes Voice. The publication made      people with a connection to diabetes
                              Federation 2018-19                  its first appearance as a newsletter in   access to important information and
                                                                  1954, reporting on the activities of      networks. This reflects IDF’s core
                                                                  IDF and relevant breakthroughs in         mission by giving voice to people living
                                                                  medical science. For several decades,     with, at risk of or connected to diabetes
                                                                  the printed bulletin was sent by          who would otherwise not be heard. It
                                                                  post to healthcare professionals          is our job to hear and understand the
                                                                  and researchers keen to engage and        collective voices of diabetes. Listening
OPINION EDITORIAL

                                                                  share diabetes-related information        to what’s happening locally at grass-
                                                                  worldwide. Later, Diabetes Voice          roots level helps IDF and its members
                                                                  was distributed as a magazine to IDF      define and advance the best possible
                                                                  members worldwide.                        policies for diabetes prevention and
                                                                                                            care, and helps us protect the rights
                                                                  Times have moved on but, despite          of people living with diabetes.
                                                                  being over 60, Diabetes Voice hasn’t
                                                                  retired. It continues to be a key         WE ARE A GLOBAL NETWORK
GLOBAL CAMPAIGN

                                                                  IDF communication channel. Over           As the world’s largest civil society
                                                                  time our community has grown              organisation serving to advance
                                                                  considerably. Today as a digital          diabetes care, prevention and a
                                                                  platform, Diabetes Voice, is one of       cure, IDF’s strength depends on
HEALTH DELIVERY

                    4 DiabetesVoice                                                                                                April 2018  Volume 65  Issue 1
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
DIABETES VIEWS

unity, teamwork and collaboration.         mission – our unified voice – will be      action. The work conducted under
For nearly 70 years, IDF volunteers,       strengthened by concentrating efforts      each stream will be informed by
partners and a variety of collaborative    towards the following three areas:         scientific evidence and the priorities
stakeholders have worked tirelessly to                                                defined by our Board in open dialogue
support our vision of a world free of      £ £ Strengthening our partnerships         with key stakeholders.
diabetes. We are not there yet.
                                           £ £ Bringing about positive change         PRESENCE
For the 2018-2019 term, our efforts            through IDF programmes                 As the primary global advocate
will be directed towards driving                                                      for diabetes, we are informed and
critical action in diabetes care and       £ £ Increasing our global presence         supported by both our status as the
prevention. We will continue to study                                                 global reference for epidemiological
and report on global diabetes trends.      PARTNERSHIPS                               data on diabetes, and the evidence
We will improve care by providing          Shared values and commitment               and policies developed to execute IDF
high quality evidence-based education      provide the foundation for strategic       programmes. In the months ahead,
on diabetes and its complications.         partnerships. We must, however,            we will engage with international
We will empower people living with         make sure that the voice of those          bodies, leading political platforms
diabetes to play a central role in their   we represent is heard. Over the next       and national governments in order
own care. Above all, we will make sure     two years we will be devoting time         to effect tangible, beneficial and long-
our commitment to success results in       and energy to strengthening the IDF        term change for people with diabetes.
lasting change that benefits the global    Member network globally, nationally
diabetes community.                        and locally. We will look to collaborate   Our objective is clear: to outline
                                           more closely with global organisations     specific actions that will support
With a force of more than 240 national     who share our concern. We will             people with diabetes and implement
diabetes representative organizations      strengthen and broaden our corporate       measures to slow or halt the global
in 170 countries, our broad global         partnerships and we will strengthen        diabetes epidemic.
network allows us to achieve our           our regional networks.
goals and deliver deep-rooted plans                                                   In closing, I would like to acknowledge
and initiatives that have the power        POLICY AND PROGRAMMES                      and thank the members of the IDF
to change lives and can benefit local      IDF’s mission is achieved through the      Board of Directors, the General
communities. Together we can make          development of high-quality global         Assembly and all 2017 IDF congress
a difference for estimated 425 million     programmes that drive policy agendas       participants for the resounding
people currently living with diabetes      at local, national and regional levels.    success of the IDF Congress 2017 in
and the many more at risk.                 Based on a life-course approach, IDF       Abu Dhabi, UAE. Our exchange of
                                           programmes for 2018-2019 are divided       ideas and strategies was an integral
A THREE-PRONGED APPROACH                   into six main work streams: Diabetes       step towards shaping IDF priorities
While the world can often be               prevention; Diabetes education:            for the years ahead.
perceived as silent or ignoring the        Patient engagement; Access to care;
global diabetes crisis, IDFs vision and    Epidemiology; and Humanitarian

April 2018  Volume 65  Issue 1                                                                                        DiabetesVoice   5
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
NEWS IN BRIEF

                     NEWS IN BRIEF

                              World Diabetes Day
DIABETES VIEWS

                              2018-19 to focus on
                              the family
NEWS IN BRIEF

                              The International Diabetes Federation has announced that the theme for World Diabetes Day 2018 and 2019 is
                              The Family and Diabetes.

                              A two-year timeframe has been               prevent the complications of diabetes     and support be accessible to all people
IDF REGIONAL NEWS

                              chosen to best align the World              and achieve healthy outcomes. All         with diabetes and their families to
                              Diabetes Day campaign to the current        families are potentially affected by      reduce the emotional impact of the
                              IDF strategic plan and facilitate           diabetes and so awareness of the signs,   disease that can result in a negative
                              planning, development, promotion            symptoms and risk factors of diabetes     quality of life.
                              and participation.                          are vital to help detect it early.
                                                                                                                    IDF will begin releasing campaign
                              Materials and actions that IDF will         Diabetes can drive families into          messages, materials and promotional
                              develop over the two years of the           poverty. Managing diabetes effectively    actions for World Diabetes Day
                              campaign will aim to raise awareness        requires daily treatment, regular         2018-19 in April to help the diabetes
OPINION EDITORIAL

                              of the impact that diabetes has on the      monitoring, a healthy diet and            and wider community prepare for
                              family and support network of those         lifestyle and ongoing education. In       awareness activities throughout the
                              affected; and promote the role of           many countries, the cost of insulin       month of November.
                              the family in the management, care,         injection and daily monitoring alone
                              prevention and education of diabetes.       can consume half of a family’s average
                                                                          disposable income, and regular and
                              Over 425 million people are                 affordable access to essential diabetes
                              currently living with diabetes. Most        medicines are out of reach for too
GLOBAL CAMPAIGN

                              of these cases are type 2 diabetes,         many. Improving access to affordable
                              which is largely preventable through        diabetes medicines and care is
                              regular physical activity, a healthy and    therefore urgent to avoid increased
                              balanced diet, and the promotion of         costs for the individual and family,
                              healthy living environments. Families       which impact on health outcomes.
                              have a key role to play in addressing
                              the modifiable risk factors for type        Less than 1 in 4 family members
                              2 diabetes and must be provided             have access to diabetes education
HEALTH DELIVERY

                              with the education, resources and           programmes. Family support in
                              environments to live a healthy lifestyle.   diabetes care has been shown to have a
                                                                          substantial effect in improving health         MORE INFORMATION:
                              1 in 2 people currently living with         outcomes for people with diabetes. It          www.worlddiabetesday.org
                              diabetes is undiagnosed. Early              is therefore important that ongoing
                              diagnosis and treatment are key to          diabetes self-management education

                    6 DiabetesVoice                                                                                                       April 2018  Volume 65  Issue 1
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
NEWS IN BRIEF

                                                                                              The Global Diabetes
                                                                                              Education Gateway
                                                                                               The IDF School of Diabetes is accredited by the European
                                                                                           Accreditation Council for Continuing Medical Education (EACCME)*

                                                                                      www.idfdiabeteschool.org
                                                                                         HTTPS://WWW.IDFDIABETESCHOOL.ORG/

Certified           Online Courses
 HTTPS://WWW.IDFDIABETESCHOOL.ORG/CERTIFICATECOURSE                                                      Short Courses
                                                                                        HTTPS://WWW.IDFDIABETESCHOOL.ORG/SHORTCOURSE

The IDF School of Diabetes features three                                                Short courses provide opportunities to study specialised
tailor-made certified courses for health professionals.                                   topics in a broad range of diabetes and its complications
                                                                                         in addition to that available through the IDF Certified
         Diabetes Educators                                                              Online Courses
          Credits:                Course fees:
          11 European CME         Low Income country: 50€                                              Prevention of type 2 diabetes
                                  Others: 75€
                                                                                                         Credits:            Course fees:
                                                                                                         1 European CME      Free
         Primary Care Physicians
         /General Practitioners
                                                                                                       Diabetic Retinopathy
          Credits:                Course fees:
          8 European CME          Low Income country: 100€                                               Credits:            Course fees:
                                  Others: 150€                                                           1 European CME      Free

         Specialists                                                                                   Diabetes and Cardiovascular disease
          Credits:                Course fees:                                                           Credits:            Course fees:
          13 European CME         Low Income country: 200€                                               1 European CME      Free
                                  Others: 300€

                  Benef its of Learner
          Latest evidence-based clinical recommendations            REGISTER
                                                    HTTPS://WWW.IDFDIABETESCHOOL.ORG/ACCOUNT/REGISTER
          Continued professional development and learning               NOW!                                          Assessment & Awards
         CME from the European Union of Medical Specialists
                                                                                              IDF Certificate and EACCME
           Be part of global multidisciplinary community of
                         diabetes professionals

                *Through an agreement between the European Union of Medical Specialists (UEMS) and the
                American Medical Association (AMA), physicians may convert EACCME credits to an equivalent
                number of AMA PRA Category 1 CreditsTM. Information on the process to convert EACCME          An initiative of
                credit to AMA credit can be found at www.ama-assn.org/go/internationalcme.
        April 2018  Volume 65  Issue 1                                                                                                            DiabetesVoice   7
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
NEWS IN BRIEF

                              Controversy: New ACP
DIABETES VIEWS

                              guidelines call for higher
                              HbA1c targets
NEWS IN BRIEF

                              New guidelines developed by the American College of                    pulmonary disease or congestive heart failure)
                              Physicians (ACP) recommend that people with type 2                     because the harms outweigh the benefits in this
                              diabetes should be treated to achieve an HbA1c between                 population.
                              7 and 8 percent instead of the previous 6.5 to 7 percent
IDF REGIONAL NEWS

                              benchmark.                                                      The development of the Guidelines, according to the
                                                                                              authors, was prompted by a fundamental shift in diabetes
                              Published in March 2018 in the journal Annals of Internal       management, and the anticipation of treatment decisions
                              Medicine, the Guidelines state:                                 for type 2 diabetes “based more on cardiovascular risk
                                                                                              than achievement of specific HbA1c targets.” The authors
                              GUIDANCE STATEMENT 1:                                           argue for higher general targets because previous evidence
                                     Clinicians should personalize goals for glycemic         showed “less benefit” of the tighter range compared to
                                     control in patients with type 2 diabetes on the          “potential harm” of low blood glucose or hypoglycemia.
OPINION EDITORIAL

                                     basis of a discussion of benefits and harms of           Authors propose that benefits of the higher target include:
                                     pharmacotherapy, patients’ preferences, patients’        cost-savings to the patient, less burden on the elderly (self-
                                     general health and life expectancy, treatment            management) and reducing the threat of hypoglycemia.
                                     burden, and costs of care.
                                                                                              Those not in favor of the new Guidelines argue how the
                              GUIDANCE STATEMENT 2:                                           higher target range may encourage complacency among
                                     Clinicians should aim to achieve an HbA1c level          doctors whose patients’ blood glucose isn’t well controlled
                                     between 7% and 8% in most patients with type 2           leading to futher complications and earlier mortality.
GLOBAL CAMPAIGN

                                     diabetes.

                              GUIDANCE STATEMENT 3:
                                     Clinicians should consider de-intensifying
                                     pharmacologic therapy in patients with type 2
                                     diabetes who achieve HbA1c levels less than 6.5%.

                              GUIDANCE STATEMENT 4:
                                     Clinicians should treat patients with type 2 diabetes
HEALTH DELIVERY

                                     to minimize symptoms related to hyperglycemia and
                                     avoid targeting an HbA1c level in patients with a life
                                     expectancy less than 10 years due to advanced age
                                     (80 years or older), residence in a nursing home, or
                                     chronic conditions (such as dementia, cancer, end-
                                     stage kidney disease, or severe chronic obstructive

                    8 DiabetesVoice                                                                                                       April 2018  Volume 65  Issue 1
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
NEWS IN BRIEF

Impact of diagnosis
age and risk for CVD
mortality

A new study suggests the younger             National Diabetes Services Scheme          «Evidence is accumulating,» the
you are when diagnosed with type             and access to data on mortality causes     authors write, «to suggest that earlier
2 diabetes, the higher your odds of          was made available.                        onset of type 2 diabetes is associated
cardiovascular mortality. Published                                                     with an increased risk of complications
in the journal Diabetologia, the study       On average, during the study period,       and comorbidities compared with later
found associations between the age           people received their diagnosis at the     onset, and that the development and
at which a person is diagnosed with          age of 59, and a total of 115,363 deaths   progression of complications might be
diabetes and their risk of heart disease,    were recorded. The authors found how       more aggressive in those with earlier
stroke, and cancer-related mortality.        an earlier diagnosis of type 2 diabetes    onset. As such, increased clinical
                                             equating to a longer duration of           attention is imperative for individuals
It is very well established that the age     disease was associated with a higher       with earlier-onset type 2 diabetes.»
at which someone is diagnosed with           risk of all-cause mortality, primarily
diabetes is linked to a progression          driven by cardiovascular disease
in cardiometabolic risk factors.             (CVD) mortality.
The younger the age at the time of
diagnosis, the more likely people            Findings suggest that diagnosis 10
                                                                                             MORE INFORMATION:
are to be obese, have higher levels          years earlier amounted to a 20 to
                                                                                             https://link.springer.com/
of «bad» cholesterol, and experience         30 percent higher risk of all-cause
                                                                                            article/10.1007/s00125-018-
faster deterioration of their blood          mortality, and a 60 percent higher risk
                                                                                                        4544-z
glucose control.                             of dying of heart disease. The results
                                             were just as strong for both men and
Researchers from the Baker Heart             women.
and Diabetes Institute in Melbourne,
Australia, set out to investigate the link
between the age of a diabetes diagnosis
and the risk of heart disease, stroke,
and cancer death.

Researchers examined data on
743,709 people from Australia who
were diagnosed with type 2 diabetes
between 1997 and 2011. Participants
were registered with Australia’s

April 2018  Volume 65  Issue 1                                                                                         DiabetesVoice   9
DiabetesVoice - IDF and Lions Club International: Working together to tackle diabetes
NEWS IN BRIEF

                              EADSG Congress and Scientific
DIABETES VIEWS

                              Session on Prevention of Diabetes
                              and its Complications
                              The 4th East Africa Diabetes Study            progression of complications in people       The EADSG Scientific Congresses are
NEWS IN BRIEF

                              Group (EADSG) Congress and Annual             with diabetes.                               a comprehensive, multidisciplinary
                              Meeting 2018 took place from March                                                         forum with a stellar faculty of leaders
                              12th-14th at the Kigali Convention            Speaking at the opening ceremony,            in diabetes and other NCDs that
                              Center in Kigali, Rwanda. The                 the Minister of State in charge of           connect the scientific community
                              conference was organised by the East          Public Health and Primary Health             and accelerate life science discovery.
                              Africa Diabetes Group (EADSG) in              Care, Dr Patrick Ndimubanzi, told            They bring together more than 300
                              collaboration with Rwanda’s Ministry          the audience, “The Government of             key stakeholders and leaders to discuss
                              of Health.                                    Rwanda is committed to fighting              ambitions, priorities and actions for
IDF REGIONAL NEWS

                                                                            non-communicable diseases (NCDs)             change in diabetes and NCDs within
                              The 2018 congress entitled ‘Prevention        and mitigating their impact so as            the East Africa Region.
                              of Diabetes and its complications’            to empower our population to live
                              highlighted the importance of the             as healthy and prosperous lives as                 MORE INFORMATION:
                              prevention of diabetes and treating           possible,” he said.                                  http://eadsg.org/
                              diabetes, including how to stop the
OPINION EDITORIAL

                              Kuwait shuts doors to people with
                              diabetes, high BP
GLOBAL CAMPAIGN

                              Recent News sources report that Kuwait        decision which dates back to 2001.           leaving the country, as per international
                              will no longer offer residency permits to                                                  laws including: Aids, Herpes, Hepatitis
                              expatriates who are suffering from a list     The Under-secretary also explained that      B and G, Malaria, Leprosy, Syphilis,
                              of 22 diseases, including cancer, diabetes,   the main aims behind the decision are to     Tuberculosis, and Gonorrhea.
                              high blood pressure and numerous other        reduce the costs of expatriate healthcare
                              non-infectious diseases.                      on the country’s government and ensure       According to Arabic language paper, Al
HEALTH DELIVERY

                                                                            that foreigners arriving in the Gulf state   Watan, sources say the most recent move is
                              According to a statement from the Assistant   are fit to work.                             set to be criticized by international human
                              Under-secretary for General Health Affairs                                                 rights organizations because it is unusual
                              in the country’s Ministry of Health, Majida   Before the implementation of this most       to ban people from entering countries
                              Al Qattan, confirmed the news, stating        recent expat ban, Kuwait barred people       if the illnesses they suffer from are not
                              that it comes in line with a GCC council      with infectious diseases from entering or    infectious.

                    10 DiabetesVoice                                                                                                             April 2018  Volume 65  Issue 1
NEWS IN BRIEF

Global costs of diabetes will rise
substantially by 2030
Researchers from the University of            in individuals aged 20–79 years using
Göettingen in Germany found the               epidemiological and demographic
global costs of diabetes will increase        data, and recent GDP forecasts for
substantially by 2030, according to a         180 countries. Three scenarios were         «The global costs of diabetes and
study published online in Diabetes Care.      assumed: prevalence and mortality 1)        its consequences are large and will
                                              increased only with urbanization and        substantially increase by 2030. Even if
Christian Bommer and his colleagues           population aging (baseline scenario), 2)    countries meet international targets,
sought to forecast the full global costs of   increased in line with previous trends      the global economic burden will not
diabetes in adults through the year 2030      (past trends scenario), and 3) achieved     decrease,» the authors write. «Policy
and predict the economic consequences         global targets (target scenario).           makers need to take urgent action
of diabetes even if global targets under                                                  to prepare health and social security
the Sustainable Development Goals             Researchers estimate that the absolute      systems to mitigate the effects of
(SDG) and World Health Organization           global economic burden will increase        diabetes.»
Global Action Plan for the Prevention         from US $1.3 trillion in 2015 to $2.2
and Control of Noncommunicable                trillion in the baseline scenario, $2.5
                                                                                               MORE INFORMATION:
Diseases 2013–2020 are met.                   trillion in the past trends scenario, and
                                                                                            http://care.diabetesjournals.org/
                                              $2.1 trillion in the target scenario. The
                                                                                            content/early/2018/02/20/dc17-
The researchers modelled the absolute         increase in costs as a share of global
                                                                                                           1962
and gross domestic product (GDP)-             GDP would grow from 1.8% in 2015 to
relative economic burden of diabetes          a maximum of 2.2%.

Diabetes
discrimination
is wrong

April 2018  Volume 65  Issue 1                                                                                           DiabetesVoice 11
NEWS IN BRIEF

                              5 types of diabetes
DIABETES VIEWS

                              versus 2
NEWS IN BRIEF
IDF REGIONAL NEWS

                              Researchers in Scandinavia have             result in a halting the progression of        CLUSTER 4:
                              proposed classifying diabetes as five       complications. For example, cluster           Called «mild obesity-related diabetes,»
                              types of disease, rather than two types,    3 (most resistant to insulin) had the         occurs in people who have a milder
                              according to a new study.                   highest risk of diabetic kidney disease       form of the disease, without as many
                                                                          and cluster 2 (insulin deficient) had the     metabolic problems as those in cluster
                              In the new study, published in The          highest risk of retinopathy.                  3, and they tend to be obese.
                              Lancet Diabetes & Endocrinology,
OPINION EDITORIAL

                              researchers found that diabetes             CLUSTER 1:                                    CLUSTER 5:
                              patients in Sweden and Finland fell         Called «severe autoimmune diabetes,»          Called «mild age-related diabetes,»
                              into five clusters. One of the clusters     is similar to type 1 diabetes. People         this form was similar to cluster 4, but
                              was similar to type 1 diabetes, while       in this cluster were relatively young         the people were older at their age of
                              the other four clusters were «subtypes»     when they were diagnosed, and not             diagnosis. This was the most common
                              of type 2. Three of the clusters were       overweight. An autoimmune disease             form of diabetes, affecting about 40
                              considered severe forms of the disease,     prevented people in this cluster from         percent of people in the study.
                              while two clusters were considered          producing inulin.
GLOBAL CAMPAIGN

                              mild forms.                                                                               Recognizing subtypes of diabetes, as
                                                                          CLUSTER 2:                                    the new study suggests, might change
                              Study researchers believe a new             Called «severe insulin-deficient              the way doctors treat, prescribe
                              classification system could provide a way   diabetes,» is similar to cluster 1 — people   and prevent the progression of
                              to “individualise treatment regimens        were relatively young at diagnosis and        complications in diabetes.
                              and identify individuals with increased     were not overweight. They were also not
                              risk of complications at diagnosis.”        producing much insulin. But, crucially,
                                                                          their immune system was not the cause
HEALTH DELIVERY

                              The study yielded five replicable           of their disease.                                   MORE INFORMATION:
                              clusters of patients with diabetes,                                                            http://www.thelancet.com/
                              which had significantly different           CLUSTER 3:                                           journals/landia/article/
                              patient characteristics and risk of         Called «severe insulin-resistant diabetes,»        PIIS2213-8587(18)30051-2/
                              diabetic complications. Classifying         occurs in people who are overweight and                fulltext?elsca1=tlpr
                              into the following clusters below could     have high insulin resistance.

                    12 DiabetesVoice                                                                                                          April 2018  Volume 65  Issue 1
NEWS IN BRIEF

Smoking increases risk
of diabetes
Researchers from the University of Oxford, UK, the Chinese    The researchers found that, compared with people who have
Academy of Medical Sciences and Peking University have        never smoked, regular smokers have a 15-30 percent higher
examined the association of smoking and smoking cessation     risk of developing diabetes, after taking account of the
with the risk of diabetes in a large, nationwide study of     effects of age, socioeconomic status, alcohol consumption,
500,000 adults from 10 areas (five urban and five rural) of   physical activity and adiposity. The study also showed a
China.                                                        clear dose-response relationship with amount smoked and
                                                              the earlier a person started smoking.
The study included only people with no history of diabetes
at the baseline, whose health status was monitored for nine   Among urban men, smokers had an adjusted HR of 1·18
years through death and hospital admission records. During    for diabetes. HRs increased with younger age at first
this time over 13,500 participants developed new-onset type   smoking regularly (1·12, 1·20, and 1·27 at ≥25 years, 20–24
2 diabetes.                                                   years, and
NEWS IN BRIEF

                              IDF Board
DIABETES VIEWS

                              of Directors
                              2018-19
NEWS IN BRIEF

                              The International Diabetes Federation, the largest global voluntary health organisation advocating improved diabetes
                              awareness, education and care, is pleased to present the members of its Board of Directors for 2018-2019.
IDF REGIONAL NEWS

                                                                                                             Prof. Nam H. Cho
                                                          PRESIDENT
                                                                                                             Republic of Korea
OPINION EDITORIAL

                                                                                                             Prof. Andrew Boulton
                                                     PRESIDENT-ELECT
                                                                                                             United Kingdom
GLOBAL CAMPAIGN

                                                                                                             Ms. Sharon Fraser
                                 VICE-PRESIDENT STRATEGIC GOVERNANCE
                                                                                                             Belize
HEALTH DELIVERY

                    14 DiabetesVoice                                                                                              April 2018  Volume 65  Issue 1
NEWS IN BRIEF

                                                          REGIONAL CHAIRS

                                                          Africa:
                                                          Dr. Naby Baldé, Guinea
                                       VICE-PRESIDENTS:

                           Prof. Stephen Colagiuri
                                         Australia

                                                          Europe:
                                                          Prof. Şehnaz Karadeniz, Turkey

                                    Prof. Angus Forbes
                                      United Kingdom

                                                          Middle East and North Africa:
                                                          Prof. Abdul Basit, Pakistan

                                    Mr. Serge Langlois
                                               Canada

                                                          North America and Caribbean:
                                                          Ms. Glynis Alonzo-Beaton, Guyana

                                   Mr. Fredrik Löndahl
                                                Sweden

                                                          South and Central America:
                                                          Dr. Balduino Tschiedel, Brazil

                          Ms. Zobida Ragbirsingh
                            Trinidad and Tobago

                                                          South East Asia:
                                                          Dr. Ali Siyan, Maldives

                              Prof. Eugène Sobngwi
                                         Cameroon

                                                          Western Pacific:
                                                          Prof. Linong Ji, China

April 2018  Volume 65  Issue 1                                                           DiabetesVoice 15
REGIONAL NEWS

                      IDF REGIONAL NEWS

                              IDF EUROPE

                              Improving the lives of people
DIABETES VIEWS

                              with diabetes and those at risk in
                              the IDF European Region
NEWS IN BRIEF

                              Sehnaz Karadeniz

                              IDF European (EU) Region is a               Forum’. Young people are the              Through our IMPACT Diabetes Pledge,
                              wonderful example of unity-in-diversity     future of the IDF Member Associations     we want to strengthen our network
IDF REGIONAL NEWS

                              -different cultures, healthcare systems,    and all seven regions and they have       of European Parliamentarians, to
                              different levels of resources. There are    an immense capacity with their out-       make our voice heard more strongly,
                              a multitude of unique experiences from      of-the-box thinking. We need more         to prioritise diabetes on the political
                              country to country where we can learn       youth involvement from the Member         agenda, and to motivate the decision-
                              from each other and adapt to our own        Associations and from the European        makers to do follow-up of the political
                              culture where appropriate.                  Region of the YLD program to              commitments made.
                                                                          flourish this program. I want to take
                              However, the increasing numbers             this opportunity to thank to the Board    We very much hope that in this term
                              show that the EU is facing a diabetes       Members: Kyle Jacques Rose, Cristina      we will keep on building on the past
OPINION EDITORIAL

                              pandemic similar to the rest of the         Petrut, Iryna Vlasenko and Elisabeth      achievements of IDF Europe together
                              world, despite the favourable outcomes      Dupont from our Regional Office for       with our Member Associations in our
                              of scientific studies to prevent diabetes   their guidance and coordination, and      region.
                              and its burden.                             to all the youth advocates who are
                                                                          currently participating.
                              In our recent publication ‘Integrating
                              Diabetes Evidence into Practice:            When it comes to “improving the
                              challenges and opportunities to bridge      lives of people with diabetes and those
GLOBAL CAMPAIGN

                              the gaps’, we mapped the challenges         at risk in our region” as the vision of
                              and the opportunities to bridge the         2018-19 by the IDF Europe Board,
                              gaps between the available scientific       we must concentrate, with all means,
                              evidence and the real life practices at     the implementation of the political
                              different levels across Europe, including   commitments as declared by several
                              the healthcare system level, healthcare     political institutions.
                              professional level and at the level of
                              people living with diabetes.
HEALTH DELIVERY

                                                                                                                               Şehnaz Karadeniz
                              Our region has the highest number
                                                                                                                                is the Chair of the
                              of children and adolescents with                                                                IDF European Region
                              type 1 diabetes in the world. We have
                              also started the YOURAH program,
                              ‘IDF’s Europe Youth Advocate

                    16 DiabetesVoice                                                                                                       April 2018  Volume 65  Issue 1
IDF REGIONAL NEWS

IDF MIDDLE EAST AND NORTH AFRICA

Road map for
better diabetes care
Abdul Basit, Erum Ghafoor

The IDF Middle East and North              For the new term, the activities calendar   as an IDF Center of Education and IDF
America (MENA) region is a diverse         developed in the MENA region                Center of Excellence in diabetes care
and unique territory with great ethical    specifically targets preventive measures    to meet the urgent need. The network
and cultural differences and socio-        including launching of diabetes mobile      of 100 mini-clinics led by trained
economic extremes. Approximately           units by Bahrain Diabetes Society and       diabetes educators is a commendable
38.7 million adults are living with        Diabetes Palestine; and campaigns for       diabetes education initiative by Sudan.
diabetes and almost half (49.1%) of        the prevention of blindness by Sudan.       Additionally, the Qatar Diabetes
them are unaware of their condition.1      Saudi Diabetes & Endocrine Association      Association offers a structured training
The prevalence of diabetes is on a rapid   is aiming to initiate Sweet Smile Clubs     program for school nurses across the
upsurge in the MENA region.                for children with type 1 diabetes           country along with the Al-Bawasil-camp
                                           and mass screening campaigns as a           for children with type 1 diabetes. Al-
Several countries of this region have      preventive measure.                         Shurooq Diabetes Camp for Children
implemented high-impact prevention                                                     is organized by the Bahrain Diabetes
approaches to reduce diabetes and its      The MENA region is currently in need        Society annually. Additional activities
complications. A major preventive          of a substantial number of trained          include continuous education on healthy
initiative is the National Diabetes and    healthcare providers. Pakistan has          cooking techniques, guidelines for safe
Diabetic Foot Program in Pakistan          earned the recognition of nomination        fasting during Ramadan and training
where 115 diabetes clinics have been
established and the rate of amputation
has been halved.2 Similarly, Footwear
for every Diabetic (FED) is another
ingenuity by which ten risk assessment
clinics have been established
countrywide, providing low-cost
footwear for people with diabetes
thereby reducing ulcer rates. Recently,
In Mansoura, Egypt, an IDF MENA
Diabetic Foot Workshop was conducted
with trainees from Afghanistan,
Pakistan, Lebanon, Sudan, Jordan, and
Egypt.

April 2018  Volume 65  Issue 1                                                                                         DiabetesVoice 17
IDF REGIONAL NEWS

                              programs for safe traveling, including      registered more 500 type 1 children and          References
                              pilgrimage, are some of the education       provides free services in Jerusalem and
                                                                                                                           1. International Diabetes Federation
                              initiatives of the region.                  Gaza. Another major initiative is a joint
DIABETES VIEWS

                                                                                                                              (IDF), Atlas 8th edition 2017. Available
                                                                          project of World Diabetes Foundation                from: https://w w w.idf.org/our-
                              It is extremely worrisome that amongst      (WDF) and IDF-MENA region for                       network/regions-members/middle-
                                                                                                                              east-and-north-africa/welcome.html
                              the highest prevalent countries with        providing diabetes care services and free
                                                                                                                              (last assessed on March 24, 2018)
                              diabetes worldwide, five countries          insulin to Syrian refugees in Lebanon.           2. Basit A, Nawaz A. Preventing diabetes
                              belong to the IDF MENA region. There        In the future, the Diabetes and Disaster            related amputations in a developing
                              is an urgent demand for epidemiological     stream for the IDF World Congress                   country – steps in the right direction.
                                                                                                                              Diabetes Voice 2013; 58: 36-39.
                              initiatives to address such an alarming     would benefit by addressing strategies
                                                                                                                           3. Basit A, Khan A, Khan RA. BRIGHT
                              state. Recently, Pakistan has conducted     not only for natural calamities but also            Guidelines on Self-Monitoring of
NEWS IN BRIEF

                              the 2nd National Diabetes Survey            for manmade emergencies and disasters.              Blood Glucose. Pak J Med Science
                              of Pakistan (NDSP) 2016-17 which                                                                2014; 30(5):1150-1155. https://www.
                                                                                                                              ncbi. n l m . n i h . gov / pmc / ar t i cl e s /
                              revealed that 26% of the population         Continuous medical education through                PMC4163252/
                              over the age of 20 has type 2 diabetes.     regular meetings and conferences
                              Some of our member associations have        is another important area which is
                              already taken up the task to replicate it   getting recognized in the MENA region.
                              in their countries.                         Furthermore, Diabetes Registry of
IDF REGIONAL NEWS

                                                                          Pakistan (DRoP) is another promising
                              Advocacy is another prerogative aim         initiative in collaboration with the
                              of IDF-MENA to support people with          Ministry of Health. The presentation
                              diabetes and stop the diabetes epidemic     of MENA region guidelines for the
                              which is strengthened through launching     management of type 2 diabetes is
                              and implementation of effective advocacy    another strong step towards better
                              campaigns amongst MENA countries.           care. Pakistan has also developed the
                              Furthermore, influencing international      BRIGHT guidelines3 to provide low cost
                              bodies, political platforms, community      and effective strategies for improving
OPINION EDITORIAL

                              leaders, and national governments is        self-management of blood glucose.
                              required to implement practical, real
                              time and long-term measures. Other          In summary, the IDF MENA region
                              outstanding plans for the coming term       is aiming to achieve a resilient global
                              include: launching the Dia-Ambassador       presence by promoting advocacy not
                              program in Iran; mass campaigns for safe    only for people with diabetes but also
                              fasting during Ramadan and decreasing       for those who are at risk, emphasizing
                              the use of tobacco in Morocco and Iraq;     empowerment for people with diabetes
GLOBAL CAMPAIGN

                              and online education courses for people     and strengthening the International
                              with diabetes in Sudan and Pakistan.        recognition of IDF and diabetes. We
                              Provision of regional advocacy strategies   believe these measures will go a long
                              are major goals.                            way in achieving better diabetes care
                                                                          and prevention.
                              More than half of the MENA region
                              consists of resource constrained                                                       Abdul Basit
                              countries. The access to basic diabetes           is Chair of the IDF-MENA Region, Director of the Baqai Institute of Diabetology &
HEALTH DELIVERY

                              care and the crisis of insulin is a            Endocrinology (BIDE), Professor of Medicine at Baqai Medical University (BMU) and Joint
                                                                                                 Secretary, Diabetic Association of Pakistan (DAP).
                              common issue. Insulin My Life (IML)
                              project in Pakistan has already provided                                              Erum Ghafoor
                                                                              is a Consultant Diabetes Educator at the Baqai Institute of Diabetology & Endocrinology,
                              more than 20,000 free insulin vials to                         Expert Trainer for Conversation Map Tools in Pakistan and
                              over 1,900 children with type 1 diabetes.             Joint Secretary of the National Association of Diabetes Educators of Pakistan.
                              Likewise, Diabetes Palestine has

                    18 DiabetesVoice                                                                                                                    April 2018  Volume 65  Issue 1
IDF REGIONAL NEWS

IDF NORTH AMERICA AND CARIBBEAN

EDUCATION! EDUCATION!
EDUCATION! The key to diabetes
management
Glynis Alonzo-Beaton

Education is the driving force to             Young Leaders of Diabetes (YLD)         £ £ The President of NAC, Glynis
achieve proper management of                  living with type 1 diabetes in              Beaton, will be a guest speaker in
diabetes. Holistic education for              Belize. Given this tragic loss,             Atlanta, Georgia (USA) on “How
patient understanding is so critical for      the association took on the need            Diabetes Works”. The rest of the
success and for improving outcomes            to prioritize care for people               year is packed with YLD Awareness
for people with diabetes that advocates       with type 1 diabetes, especially            outreaches and Exhibitions.
and medical professionals must provide        with professional counselling.
diabetes education for people at all          Beginning in April, Belize is           ££ T h e A m e r i c a n D i a b e t e s
levels, including patients with low           working with the World Diabetes            Association is hosting their Annual
levels of literacy. We need to help           Federation on a new project                Scientific Sessions in Orlando,
people with diabetes understand their         entitled “Belize National Diabetes         Florida from June 22-26, 2018
condition fully and be motivated to           Self-Care Programme”.                      and representatives from the NAC
take care of themselves willingly. The                                                   Region will attend.
North American and Caribbean (NAC)         £ £ For Guyana, 2017 was a stellar year.
Region is prioritizing education and           The YLDs led many programs and         Despite our recent challenges in the
has developed their diabetes education         collaborated with the Ministry of      NAC region, we are happy to say we all
programs to suit all education levels.         Public Health on lay training for      have one common ground on which we
                                               “non-medical personnel” and helped     will be emphasizing diabetes education
What follows are association activity          strengthen the Guyana Education        as a key focus for our communities this
examples from the NAC region:                  Department on behalf of the NCD        year.
                                               Commission, the Management
£ £ St. Kitts and Nevis started 2018           Board and the Guyana Diabetic
    with blood glucose screening,              Association. The association
    testing and providing diabetes             collaborated with the Ministry of
    education in local schools.                Public Health and the Georgetown
    Lectures have been organized for           Public Hospital Corporation to
    medical personnel and the general          provide CME for four credits on
    public, and are ongoing. They will         Kidney Disease and Women. This                   Glynis Alonzo-Beaton
    continue this trend with increased         year we will watch Guyana unfold                   is the Chair of the
    education during the year.                 an exciting cricket competition for             IDF North America and
                                                                                               Caribbean (NAC) region
                                               the third consecutive year for boys
£ £ The year started with a sad note           (under 17) with YLD hosting the
    on the loss of one of the IDFs             education sessions and testing.

April 2018  Volume 65  Issue 1                                                                                        DiabetesVoice 19
IDF REGIONAL NEWS

                              IDF SOUTH AND CENTRAL AMERICA

                              Brazilian government
DIABETES VIEWS

                              to provide analog
                              insulin for type 1 diabetes
NEWS IN BRIEF

                              Vanessa Pirolo and Balduino Tschiedel

                              After social media outcry, the Brazilian    £ £ People who perform self-                  for 20 minutes but was asked to leave
                              Ministry of Health is discussing final          monitoring blood glucose tests a          for the final discussion according to
IDF REGIONAL NEWS

                              steps with the National Committee               minimum of three times a day.             the National Committee for Health
                              for Health Technology (Committee)                                                         Technology protocol procedure.
                              to make rapid-acting analog insulin         £ £ People who have had severe                ADJ was not given access to the final
                              available for people with type 1 diabetes       hypoglycemia over the last three          discussions.
                              in the Brazilian Public Health System           months, and/or who have had
                              (SUS).                                          repeated and/or nocturnal non-            Other issues which need defining are:
                                                                              severe hypoglycemia.                      type and size of the insulin pen and
                              The Secretary of Science, Technology                                                      determining reusability; and place of
                              and Strategic Inputs from the Ministry      The Committee also highlighted how            dispensing (primary care offices or
OPINION EDITORIAL

                              of Health signed the incorporation on       people with type 1 diabetes who qualify       specialized care). Advocacy leadership
                              February 22, 2017. It is critical for the   must also have access to at least 100 test    is closely monitoring each step and
                              health of people with type 1 diabetes to    blood glucose strips for testing per          believes that newer, faster insulin and
                              have accessibility to more efficacious      month, and for pregnant women, 150            technology will benefit the Brazilian
                              analog insulins and the delay of almost     to 200 test strips in order to achieve best   population by decreasing the number
                              one year is unacceptable.                   self-monitoring practices and safety.         of diabetes complications and hospital
                                                                                                                        stays due to the lack of access.
                              Advocates, people with diabetes,            The Juvenile Diabetes Association
GLOBAL CAMPAIGN

                              Committee members and government            Brazil (ADJ) was invited to attend the        Update: The bidding procedure to
                              representatives expect that the change      disclosure of the meeting protocol            purchase the rapid-acting insulin took
                              in insulin benefits for people with type                                                  place on April 2nd and at the time of
                              1 diabetes will take effect by July 2018.                                                 publication, ADJ has not been informed
                              Under discussion are the determining                                                      of the results.
                              criteria for patient qualification. Draft
                              recommendations include:
                                                                                                                                        Vanessa Pirolo
                                                                                                                          is a journalist, Advocacy Coordinator for
HEALTH DELIVERY

                              £ £ People who have used regular                                                              ADJ Diabetes Brazil and a member of
                                                                                                                           the board of the IDF South and Central
                                  insulin for at least three months.
                                                                                                                                   America (SACA) region.

                              £ £ People who are under the care of                                                                   Balduino Tschiedel
                                                                                                                            is Chair of the IDF South and Central
                                  an endocrinologist and are seen at                                                                   America Region.
                                  least twice a year.

                    20 DiabetesVoice                                                                                                              April 2018  Volume 65  Issue 1
                                                                          Vanessa Pirolo
OPINION

                                                                                                                              OPINION EDITORIAL

          GUEST EDITORIAL

          Insulin:
          Concierge Medication
          or Human Right?
          Joyce Lee, MD, MPH

                                                      this means that they need at least three    for long acting insulin. These costs are
                                                      vials of insulin a month, which costs       increasingly being passed onto patients
                                                      nearly $1400– tragically higher than        and their families as the number of
                                                      the cost of their rent or a mortgage.       individuals on high deductible health
                                                      The high cost of insulin doesn’t include    plans or who are uninsured grows.
                                                      all of the additional supplies they need
                                                      for self-monitoring, including blood        This crisis in insulin pricing is taking
                                                      glucose testing strips (as high as $1 per   a human toll. Families are now using
                                                      strip), sensors for continuous glucose      crowdfunding sites like GoFundMe to
                                                      monitoring ($350 a month), glucagon         fundraise to pay for their insulin. And
                                                      ($280), visits to a healthcare provider     there are too many stories in the news
                                                      and more.                                   about patients, who when faced with
          There is a growing recognition that we                                                  a $1300 insulin bill at the pharmacy,
          are reaching a crisis in the US diabetes                                                must ration their insulin and suffer
          community with regard to the price of       HAS INSULIN ALWAYS BEEN THIS EXPENSIVE?     catastrophic consequences, including
          insulin. If you search for “insulins” on                                                an increased risk of complications and
          GoodRx.com you will see a huge range        The answer is no. There are clinicians      even death.
          of prices for different types of insulin.   and patients who can remember when
          The insulins that I have traditionally      a vial of insulin used to cost $20, and
          used for my patients with type 1 diabetes   studies have shown that the costs of        WHY IS INSULIN SO EXPENSIVE?
          include short acting analog insulins like   insulin have increased dramatically
          Humalog ($549) or Novolog ($551),           over the last few decades. For example,     Here are just a few of the contributing
          and long acting insulins like Lantus        studies using Medicaid data have            factors:
          ($274), Levemir ($436), and the new         shown that annual payments for a
          generic/“follow-on” long acting insulins    patient requiring 40 units of insulin       £ £ The US government lacks
          like Basaglar ($234).                       a day increased from $771 in 2001 to            negotiating power with regard to
                                                      $2852 in 2014 (a 370% increase) for             drug pricing, and therefore pays
          Because some of my patients with            rapid acting insulin, and from $891 in          more for insulin than any other
          diabetes use more than 100 units a day,     2001 to $2848 in 2014 (a 320% increase)         country, leading to a prescription

          April 2018  Volume 65  Issue 1                                                                                          DiabetesVoice 21
OPINION EDITORIAL

                                  drug market that prices “primarily     1. They blame the “complicated“               net prices of Lantus over the
                                  on the basis of what the market will      healthcare system:                         cumulative period of the last five
                                  bear.”                                                                               years actually went down,» she
DIABETES VIEWS

                                                                            “There are no quick and easy               said.”
                              £ £ Companies that want to make               answers, because the system is
                                  generic insulin, may lack the             complex and complicated,” Lilly        3. The pharmacy benefit managers and
                                  manufacturing capabilities and a          spokesman, Gregory Kueterman              insurers blame the pharmaceutical
                                  supply chain for producing insulin.       said. “Even just simply lowering          companies.
                                                                            prices, while that seems like
                              £ £ The use of “evergreening” by              an easy answer, it wouldn’t                “Rebates don’t raise drug prices,
                                  pharmaceutical companies, in              necessarily lower the prices of the        drug makers raise drug prices.”
NEWS IN BRIEF

                                  which they make very minor                high-deductible plan. They’d have
                                  tweaks in a drug to extend the life       to keep paying till they hit that
                                  of a drug patent, through minor           deductible.”                           The public has been outraged by a
                                  modifications in the drug itself but                                             number of different prescription
                                  even more commonly now though          2. The pharmaceutical companies           drug pricing scandals in the news,
                                  updates to drug delivery devices          blame the pharmaceutical benefit       including the mark-up of Epipen prices
                                  rather than the drug itself.              managers and insurers. When the 3      by CEO Heather Bresch of Mylan
IDF REGIONAL NEWS

                                                                            manufacturers of insulin in the US     Pharmaceuticals, or the 5000% price
                              £ £ The use of patent infringement            were asked about pricing of insulin:   increase for Daraprim orchestrated
                                  lawsuits by pharmaceutical                                                       by now convicted ex CEO of Turing
                                  companies, who file them to               “Sanofi, Lilly and Novo Nordisk        Pharmaceuticals Martin Shrkeli. The
                                  prevent or delay entry of generic/        all highlighted discounts they         increases in insulin price may not have
                                  follow-on competitors for up              provide, and also pointed the          been as dramatic and have occurred
                                  to years. For example, a lawsuit          finger at health insurers.”            more gradually over a longer period of
                                  against the follow-on to Lantus                                                  time, but do the companies involved in
                                  called Basaglar resulted in a             “Ashleigh Koss, a spokeswoman          the pricing of insulin deserve any less
OPINION EDITORIAL

                                  30-month delay in approval, during        for Sanofi, told Business Insider      negative attention? Scientists Frederick
                                  which the company could charge            that Lantus had not had a price        Banting, Charles Best, and James Collip
                                  more for Lantus before it went off        increase since November 2014           who discovered and established the
                                  patent.                                   in the US. «In fact, because           first patent for insulin, sold it for $1 to
                                                                            of aggressive discounting and
                              £ £ The rise of the pharmacy benefit          rebates to insurance plans, PBMs,
                                  manager, which is an entity               and government programs, the
                                  that negotiates rebates with
GLOBAL CAMPAIGN

                                  pharmaceutical companies, taking
                                  a proportion of the drug cost as
                                  profit without any sort of price
                                  transparency.

                              £ £ And let’s not forget, that very
                                  important factor called greed.
HEALTH DELIVERY

                              Not surprisingly, the major players
                              with the ability to change the
                              pricing (pharmaceutical companies,
                              pharmacy benefit managers, and
                              insurers) put the blame on anyone
                              except themselves.

                    22 DiabetesVoice                                                                                                       April 2018  Volume 65  Issue 1
OPINION EDITORIAL

ensure the discovery could be accessed      £ £ The Juvenile Diabetes Research          Everyone in the diabetes community
by all individuals with diabetes. They          Foundation has developed a Type         needs to speak up and advocate
would be outraged if they could see             1 diabetes Health Insurance Guide       for our patients on this critically
how difficult it is for people to afford        to help patients navigate health        important issue. As the advocate and
insulin today.                                  insurance issues.                       endocrinologist Dr Irl Hirsch said in
                                                                                        his publication, Insulin in America: A
Insulin has tragically become a             £ £ The American Diabetes Association       Right or a Privilege?
concierge medicine, available only to           has asked politicians to examine
those who are well off and have good            the supply chain for insulin and        “But to those who detest the thought
insurance, when it should be a right. As        have asked for transparency of          of having our government involved in
James Elliott, advocate and individual          pricing.                                the distribution of insulin, I would say
with type 1 diabetes said, “We’re locked                                                that I detest more the pain, suffering,
into paying whatever insulin companies      £ £ Finally, politicians themselves have    cost, and potential death from diabetic
decide. It’s like paying for oxygen and         begun to advocate. US Senator           ketoacidosis resulting from patients’
having three companies decide what              Bernie Sanders and Congressman          inability to afford insulin.”
the price should be.”                           Elijah Cummings have asked the
                                                Justice Department and Federal
In response to the crisis there have been       Trade Commission to investigate
a number of developments:                       anticompetitive conduct and made
                                                accusations of price collusion
£ £ The patient community has begun             among the companies, as there
    the important advocacy on this              have been suspicious increases in
    topic, organizing protests at Eli           insulin prices among brands in lock
    Lilly, and planning protests at the         step (i.e. a 16.1% increase in Lantus
    other insulin companies.                    followed by a 16.1% increase in
                                                Levemir the next day; or an 11.9%
£ £ Type 1 International is a global            increase in Lantus, followed by
    diabetes advocacy organization              an 11.9% increase in Levemir).
    working to improve sustainable              It’s possible that governmental
    access to insulin, supplies, care and       intervention may be the only way
    treatment for everyone with type 1          to address this crisis.
    diabetes.

£ £ The Diabetes Patient Advocacy
    Coalition has started the Affordable
    Insulin Project, offering tools,                                                                       Joyce Lee
    resources, and data for patients,                                                       MD, MPH, is the Robert P. Kelch, MD
                                                                                            Research Professor of Pediatrics at the
    caregivers, employers, and
                                                                                            University of Michigan Medical School
    healthcare professionals to support                                                    and Professor at the Medical School and
    increasing affordable access to                                                        at the University of Michigan School of
                                                                                                        Public Health.
    insulin.
                                                                                            Her research agenda focuses on the
                                                                                           overarching areas of type 1 and type 2
                                                                                           diabetes, and obesity, and her current
                                                                                            work includes focus on the creation
                                                                                            of learning health systems using the
                                                                                           methods of clinical informatics, quality
                                                                                            improvement, and patient-centered
                                                                                               participatory design. For more
                                                                                                information, visit her website:
                                                                                             http://www.doctorasdesigner.com

April 2018  Volume 65  Issue 1                                                                                                DiabetesVoice 23
THE GLOBAL CAMPAIGN

                      THE GLOBAL CAMPAIGN

                              Lions Clubs International and
DIABETES VIEWS

                              International Diabetes Federation
                              come together to tackle diabetes
                              Elizabeth Snouffer
NEWS IN BRIEF

                              On Saturday, March 24, 2018, Lions         came together to help prevent diabetes      LCI’s 40th annual Lions Day with the
                              Clubs International (LCI) and the          and improve the quality of life for those   United Nations (UN) commemorated
                              International Diabetes Federation          living with diabetes worldwide.             their long-standing relationship as a
                              (IDF) signed a Memorandum of                                                           consultative NGO to the UN which
                              Understanding (MoU), on the occasion       LCI is the world’s largest service club     began in 1945. The theme for the
IDF REGIONAL NEWS

                              of Lions Day at the UN, to establish a     organization, with 48,000 clubs and         event “Working Together Globally to
                              cooperative alliance in the global fight   over 1.4 million members serving in         Combat Diabetes” was attended by
                              against diabetes. The two organizations    200 countries or geographic areas.          Lions members, Leos—young leaders
OPINION EDITORIAL
GLOBAL CAMPAIGN
HEALTH DELIVERY

                    24 DiabetesVoice                                                                                                      April 2018  Volume 65  Issue 1
You can also read