BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness

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BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
Contents

                                                     Foreword

                                                     Rationale

                                                    Framework

                                                     Awareness

                                                    Friendliness

Supported by

          Journey from Awareness to Inclusiveness
          BUSINESS TOOLKIT FOR A                    Inclusiveness

       DEMENTIA-INCLUSIVE SINGAPORE
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                             2            3                    BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                   CONTENTS
                                                                                                                                                                              Contents

             4 6 16 18 32 60
                  Foreword                    Rationale            3-stage                    Stage 1 –            Stage 2 –                        Stage 3 –
                                                                                                                                                                             Foreword

              As Singapore works          Why embark on this       framework                  awareness            friendliness                     inclusiveness
              towards a dementia-         journey?             Journey to dementia-       Knowledge of         Supporting customers with       Supporting Employees
                                                                                                                                                                             Rationale
              inclusive society,          • Prevalence         inclusiveness              dementia             dementia                        • Employees who are carers
              businesses play a huge      • Impact             • Awareness                • Myths and truths   • Employee training             • Employees with dementia
Contact us
              role in driving change in   • Experiences        • Friendliness             • Understanding      • Products and services         • Spotlight: Apex Harmony
 DEMENTIA     perception and attitude                          • Inclusiveness              dementia           • Enabling environment            Lodge
SINGAPORE     towards dementia.                                                           • Communication
    info@
 dementia
   .org.sg                                                                                                                                                                  Framework

                                                                                      6
                                                                                                                                                                             Awareness

                                                                                                                                                                            Friendliness

               4                                                                                                                                     32
                                                                                                                                                                            Inclusiveness
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS   4   5                               BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                   As Singapore works towards                      FOREWORD
                   a dementia-inclusive society,
                   businesses play a huge role in                                                                                                    Contents

                   driving change in perception and
                                                           If you are reading this, let me             this dementia journey. The entry
                   attitude towards dementia.              congratulate you and your organisation      point and pace of your journey are
                                                           on taking your first step towards           dependent on your organisation’s
                                                           building a dementia-inclusive society.      values, priorities, and resources. But
                                                           This first step represents your interest    that first step is the most crucial.         Foreword
                                                           in our dementia journey that we hope             The beauty of this toolkit is that
                                                           – through this dementia-inclusive           it is just as applicable to an individual
                                                           business toolkit – will become your         as a 1,000-strong organisation.
                                                           commitment in future.                       For example, individuals can
                                                               As Singapore works towards a            always start a dementia-inclusive
                                                           dementia-inclusive society, businesses      business initiative within his or her
                                                                                                                                                    Rationale
                                                           play a huge role in driving change          department, and on a department-
Contact us
                                                           in perception and attitude towards          level, a department-wide project
                                                           dementia. The condition not only            can be wrought with greater effect.
 DEMENTIA
SINGAPORE
                                                           impacts the daily lives of persons living   Finally, with senior leadership buy-in,
    info@                                                  with it, but also carers who may have       a whole-of-company approach can
 dementia
   .org.sg                                                 to sacrifice their careers – in whole       create a transformational impact on
                                                                                                                                                   Framework
                                                           or in part – in order to care for their     your organisation. We hope you will
                                                           loved ones.                                 find the case studies and tips useful.
                                                               Through this toolkit, we are                 Finally, I want to express my most
                                                           hoping that companies can be                grateful appreciation to our sponsor
                                                           acquainted with a three-stage               Musim Mas and everyone listed in
                                                           framework of Awareness (recognising         our Acknowledgements, and many
                                                                                                                                                    Awareness
                                                           the gravity of the issue); Friendliness     more, who have contributed to this
                                                           (starting to make dementia-friendly         toolkit. This would not have been
                                                           changes to its business environment);       possible without your generous
                                                           and Inclusiveness (rendering support        support, sharing and insights.
                                                           to staff with dementia or who are                Thank you.
                                                           carers to loved ones with dementia).                                                    Friendliness
                                                               As you flip through these pages,
                                                           do know that sweeping changes
                                                           need not be made overnight.                                        Jason Foo
                                                           Instead, we urge you to – at your                                           CEO
                                                           own comfort – consider how far              Dementia Singapore (Formerly known
                                                           your organisation wants to go on              as Alzheimer’s Disease Association)
                                                                                                                                                   Inclusiveness
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS        6    7           BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                                                                                     Contents

                                                                                                                                    Foreword

                                                                                                                                    Rationale

Contact us

 DEMENTIA
SINGAPORE
    info@
 dementia
   .org.sg                                                                                                                         Framework

                                                                                                                                    Awareness

                                                                                                                                   Friendliness

                                                       WHY EMBARK ON THIS JOURNEY?
                                                                     Prevalence • Impact • Experiences

                                                                                                                                   Inclusiveness
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JOURNEY FROM AWARENESS TO INCLUSIVENESS                                                         8   9                                      BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                    WHY EMBARK                                                                                   IMPACT OF DEMENTIA
                    ON THIS JOURNEY?                                                                             In a Singapore-wide survey2 on dementia in 2019, persons with dementia and
                                                                                                                 their carers experienced rejection, loneliness and shame, and felt incompetent.                                   Contents

                                   PREVALENCE OF DEMENTIA IN SINGAPORE

                                   In 2015, the Well-Being of the Singapore Elderly Study                                               Persons
                                   (WiSE1) by the Institute of Mental Health found that                                                 with                                           Carers
                                   one in 10 people aged 60 and above, and half of those                                                dementia                                                                                  Foreword
                                    aged 80 and above had dementia. Based on this, it is
                                     estimated that more than 100,000 people in Singapore
                                      may have dementia by 2030.
                                                                                                                 3 in 4 feel rejected and lonely                         Nearly 30% have been in
                                                                                                                                                                         embarrassing public situations while
                                                                                                                                                                         caring for persons with dementia
                                                                                                                                                                                                                                  Rationale
                                       60 and                                80 and
Contact us
                                       above                                 above
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                                                                                                                 56% feel they are treated as less                                          70%
    info@                                                                                                        competent due to their condition
 dementia
   .org.sg                                                                                                                                                                                                                       Framework

                                                                                                                                                                                            30%

                                                                                                                                                                                                                                  Awareness

                                                                                                                 1 in 2
                                                                                                                 feel ashamed of their condition
                                                                                                                                                                         More than 1 in 10 sense awkwardness
                                                                                                                                                                         around them on such occasions
                                                                                                                                                                                                                                 Friendliness

                                   1
                                    Subramaniam M. et al. (2015) Prevalence of Dementia in People Aged           2
                                                                                                                   Singapore-wide survey by Singapore Management University and ADA in 2019: 3 in 4 persons with dementia
                                   60 Years and Above: Results from the WiSE Study. Journal of Alzheimer’s       feel rejection and loneliness, national survey on dementia finds. https://dementia.org.sg/smu-ada-survey-2019
                                   Disease, vol. 45, no. 4, pp. 1127-1138                                                                                                                                                        Inclusiveness
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JOURNEY FROM AWARENESS TO INCLUSIVENESS                                                10   11                                  BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

             EXPERIENCES WITH DEMENTIA
                                                                                                                                                                   Food for thought
             Supermarket challenge                                                                       Inattentive care
             As an avid cook, Emily Ong frequents               The implementation of safe-              Steven Lau has moderate dementia.                   Persons with dementia and their
                                                                                                                                                                                                         Contents

             supermarkets. But frontotemporal               distancing measures to tackle the            His wife Wong Lai Quen, who is also                 carers have experienced negative
             dementia, which she was diagnosed              COVID-19 pandemic has made                   his carer, says hospital visits with him            encounters in hospitals. How can
             with at 51 years old, makes word-              matters worse for Emily.                     can be tricky.                                      hospitals and other healthcare
             finding a difficulty.                              “Take the queue markers at                    She recalls the time she had to                facilities, as places frequented by
                 “With my challenge in word-finding,        supermarkets as an example. I see            take their domestic helper to the                   persons with dementia and their
             going to the supermarket, even the one         them on the floor but my brain can’t         hospital for treatment. They took                   carers, improve the patient’s              Foreword
             familiar to me, is a struggle.                 even process something as simple             Steven along as they did not want                   experience?
                 “When I can’t find an item and can’t       and logical as standing on the marker        him to be home alone.
             recall its name or the words to describe       when queuing for the cashier.”                    The hospital attendant refused to
             the item, I can’t ask for help. If I were to                                                           let Steven in as the COVID-19
             approach people for help and start to                                                                       safe-entry restrictions
             hum and haw, they’d get frustrated.                                                                            allowed only one              doctors and nurses.”
                                                                                                                                                                                                        Rationale
                 “Most supermarket employees                                                                                  person to accompany             In another incident, Lai Quen took
Contact us
             don’t know how to assist persons                                                                                   each patient.             Steven to a specialist at a private
             with dementia.”                                                                                                         “I explained         hospital. She had written a note to the
 DEMENTIA
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                 Emily also at times forgets her                                                                                 that Steven had          doctor beforehand to explain Steven’s
    info@    bank card PIN when she tries to                                                                                     dementia but the         condition and facilitate the consultation.
 dementia
   .org.sg   pay for her shopping.                                                                                               attendant still              “I wrote that Steven was living
                                                                                                                                                                                                       Framework
                 “I either can’t remember all the                                                                                refused to let him in.   with dementia and that he could have
             numbers or their correct sequence.                                                                                     “I feel               trouble answering or responding to
                 “On one occasion, the queue                                                                                    that hospital             questions.
             was quite long, so the anxiety started                                                                             employees,                    “The doctor simply showed the
             to build up. I knew I was in trouble.                                                                             including doctors          note to my husband and proceeded
                 “When I struggled with the                                                                                and nurses, are not as         to ask him questions. I wasn’t
                                                                                                                                                                                                        Awareness
             NETS machine, the cashier shot me                                                                        understanding as I hope             consulted at all.
             a dirty look and asked: ‘Is this even                                                               they’d be when I tell them that              “I felt that we wasted the
             your own bank card?’”                                                                         my husband has dementia. They’d                appointment. We had paid for
                                                                                                         usually just give a cursory nod and              consultation but I doubt the doctor
                                                                                                         move on.                                         got to the root of Steven’s issue
                                                                                                              “I am still taken aback by this.            because he spoke to only Steven,             Friendliness
                                                                                                         I’d forgive insensitive behaviours in            whose answers were at times
                      Food for thought                                                                   malls – I don’t expect everyone to               incongruent.
                                                                                                         understand dementia – but I expect                   “I’m perplexed by hospital staff’s
                  How can supermarkets make shopping more conducive for                                  better from hospital staff, especially           indifference towards dementia.”
                  persons with dementia, especially if they are on their own?
                                                                                                                                                                                                       Inclusiveness
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              What’s for dinner?                                                                   Triggered without warning                                                               Contents

              Daniel Lim is a carer to his ageing       but persons with dementia have a           Anjang Rosli was diagnosed with                “Maybe he responded in that
              parents. His mother was diagnosed         different set of needs.”                   Lewy body dementia in 2014 at the          manner because he was busy and the
              with Stage 3 breast cancer in the              In an ideal setting, restaurant       age of 50.                                 place was uncomfortably hot. But it
              same year his father was diagnosed        staff can spot persons with dementia           He believes it’s best for persons      made me snap. I was triggered.
              with dementia.                            and assist accordingly. And a              with dementia to be upfront with               “I punched the employee and he
                  Daniel points out how                 pictorial menu might just do the           the condition – so they can avoid          fell. I thought nothing of my action.       Foreword
              common items are not created              trick. Unfortunately, this is still not    unpleasantness.                            I then said to the employee, ‘It’s
              with consideration to persons with        happening in most F&B settings.                “I once went to an eatery famous       okay, I don’t want to buy from you
              dementia. He cited a challenging dining        “Carers might not be able to          for its fried chicken. I was craving       anyway,’ and left.
              experience he had with his father.        articulate the support they need and       its spaghetti and had gone there by            “When I got home, my wife
                  “The menu was all text. Dad           restaurant staff might not be able         myself.                                    Sarimah saw the cuts on my hand and
              could read but he couldn’t associate      to identify the challenges faced by            “It was one of my bad days.            questioned me. She was worried. I
                                                                                                                                                                                          Rationale
              the words with the food. He could         diners with dementia and their carers.         “I called out to someone who was       told her what had happened.
Contact us
              not picture the food in his mind.         It’s quite a conundrum.”                   preparing the food but I was ignored.          “Sarimah took me to the eatery and
                  “We spent an hour trying to order                                                        I called out to the person again   apologised to the employee I assaulted,
 DEMENTIA
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              something as simple as noodles. I felt                                                          and was greeted with a curt     explaining my condition to him.
    info@     eyes on us, as if accusing us of taking                                                          reply: ‘Yes. What do you           “The employee gave me a big hug
 dementia
   .org.sg    up space and wasting time.                                                                         want?’                       and said: ‘Uncle, I understand. The
                                                                                                                                                                                         Framework
                  “I had not forewarned the                                                                                                   next time you’re here, look for me
              restaurant about Dad’s condition                                                                                                and I will attend to you personally.’”
              as I didn’t feel it’s my place to do
              so and I didn’t want Dad’s dignity
              compromised.
                  “I believe in empowering Dad
                                                                                                                                                                                          Awareness
              and I let him make decisions
              whenever possible.”
                                                                                                                                          Food for thought
                  Daniel stresses that                                                                                           Not all persons with dementia are comfortable
              he’s not asking for                                                                                                with disclosing their condition and their carers
              preferential treatment.                                                                                            feel they should respect that. But concealing the
                  “We are part of the                                                                                            condition makes it difficult for service providers      Friendliness
              community and can be                                                                                               to deliver a positive experience. To counter this,
              treated the same way                                                                                               businesses can learn to identify customers with
              as other people – albeit                                                                                           dementia and make accommodations in discretion.
              with more patience. We
              understand restaurant tables
              need a quick turnaround
                                                                                                                                                                                         Inclusiveness
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS   14   15                    BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                 IMPORTANCE OF BEING DEMENTIA-INCLUSIVE

                                                                 Dementia-inclusive businesses empower persons with dementia
                                                                 to be independent customers and employees, and give carers                              Contents

                                                                 greater peace of mind. Here are 3 reasons why businesses
                                                                 should embark on this journey:

                                                                 1    Growing need
                                                                     With the increasing prevalence of dementia, businesses
                                                                 may see a rise in the number of customers or employees with                            Foreword
                                                                 dementia. Becoming dementia-inclusive ensures that businesses
                                                                 are well-equipped to address this growing need.

                                                                 2      More socially savvy customers
                                                                        Customers are becoming increasingly socially savvy and
                                                                 demand that businesses be more socially responsible. Specific
                                                                                                                                                        Rationale
                                                                 to dementia, a survey by Singapore Management University
Contact us
                                                                 (SMU) and ADA in 2019 found that:
                                                                   • Nearly 8 in 10 people wanted to do more to improve the
 DEMENTIA
SINGAPORE
                                                                      lives of persons with dementia
    info@                                                          • 70% agreed that Singapore needed to provide more
 dementia
   .org.sg                                                            dementia-friendly amenities as customers wanted
                                                                                                                                                       Framework
                                                                      businesses to improve their social responsibility

                                                                 3      Enhanced reputation and equity
                                                                        Being dementia-inclusive, whether towards customers
                                                                 or employees, will enhance a brand’s reputation and equity.
                                                                 Research3 found that corporate social responsibility (CSR)
                                                                                                                                                        Awareness
                                                                 initiatives have positive impacts on brand reputation and equity.

                                                                 3
                                                                  Mahmood A., & Bashir J. (2020). How does corporate social responsibility transform
                                                                 brand reputation into brand equity? Economic and noneconomic perspectives of
                                                                 CSR. International Journal of Engineering Business Management.
                                                                                                                                                       Friendliness

                                                                                                                                                       Inclusiveness
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                         16        17                 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                                                                                                                  Contents

                                                                                                                                                                 Foreword

                                                                                            Stage 3: Inclusiveness                                               Rationale
                                                                                            To become dementia-inclusive,
Contact us
                                                                                            businesses take steps to
                                                           Stage 2: Friendliness            support not only customers,
 DEMENTIA
SINGAPORE
                                                           As businesses take action        but also employees impacted
    info@                                                  to become dementia-              by dementia. This includes
 dementia
   .org.sg                                                 friendly, they ensure the        hiring and retaining employees
                                                                                                                                                                Framework
                                                           physical facilities and          with dementia, and providing
                                                           infrastructure of their          support to employees who
                                                           store are adjusted to the        are carers to persons with
                        Stage 1: Awareness                 needs of customers with          dementia. A truly inclusive
                        At this stage, businesses          dementia, and employees          business leaves no one behind.
                        are just becoming aware of         are trained to support
                                                                                                                                                                 Awareness
                        dementia as an issue they need     and handle the needs of
                        to address. There is an interest   customers with dementia.
                        to learn more about dementia.

                                                                                                                                                                Friendliness

                                                                                       3-STAGE FRAMEWORK
                                                                                                Journey to dementia-inclusiveness

                                                                                                                                                                Inclusiveness
BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS       18             19                  BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                                                                                                      Contents

                                                                                                                                                     Foreword

                                                                                                                                                     Rationale

Contact us

 DEMENTIA
SINGAPORE
    info@
 dementia
   .org.sg                                                                                                                                          Framework

                                                                                                                                                     Awareness

                                                                                                                                                    Friendliness

                                                                          STAGE 1: AWARENESS
                                                       Myths and truths    •   Understanding dementia    •   Communication

                                                                                                                                                    Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                         20   21                               BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                    STAGE 1:                                                                      TYPES OF DEMENTIA
                                                                                                  Dementia is an umbrella term for a range of symptoms associated with cognitive
                    AWARENESS                                                                     impairment. There are several types of dementia, each with different symptoms
                                                                                                  and care needs, and the symptoms may overlap as the condition progresses.                     Contents

                                                                                                  Below are the more common types of dementia:
             The nationwide survey by SMU and ADA               WHAT YOU CAN DO
             in 2019 found stigmatic attitude to be                                               Alzheimer’s is the most common               psychiatric disorders like depression,
             worst among people with no connection              Here’s a checklist to help you    type of dementia with a very subtle          obsessive-compulsive disorder and
             to dementia, and 57% of the respondents            fulfil Stage 1                    and gradual onset. It is a progressive       schizophrenia have overlapping
             considered themselves unknowledgeable                                                condition where symptoms worsen              symptoms. There is no treatment or              Foreword
             about dementia.                                          Understand dementia         over time, impacting memory, thinking        cure, but medications and lifestyle
                Hence it is imperative that the journey                                           skills and eventually the ability to carry   changes can help to alleviate some of
             towards becoming dementia-inclusive begins               Learn dementia-inclusive    out daily self-care such as dressing or      the symptoms.
             with awareness.                                          communication               toileting.
                At this stage, businesses are just becoming                                                                                    Dementia with Lewy Bodies
             aware of dementia as an issue they need to               Organise talks about        Frontotemporal Dementia                      or Lewy Body Dementia                           Rationale
             address. There is an interest to learn more              dementia in-house and       (FTD) is often characterised by              (LBD) has symptoms such as
Contact us
             about dementia.                                          with business networks      marked personality changes and in            slowness, tremor, rigidity and visual
                                                                                                  some cases, language difficulties. Most      hallucinations. Other prominent
 DEMENTIA
SINGAPORE
                                                                                                  people impacted by FTD are younger,          symptoms include challenges with
    info@                                                                                         between 40-70 years. Due to the              attention, organisation, problem-solving
 dementia
   .org.sg                                                                                        symptoms, FTD may be mistaken for            and planning. Persons with LBD are
                                                                                                                                                                                              Framework
                   REGULAR AGEING                                 DEMENTIA                        Alzheimer’s and Parkinson’s disease or       also more susceptible to falls because
                                                                                                                                               of their increased rigidity, instability and
                                         Memory and concentration                                                                              slow gait. With these symptoms, LBD
             • May misplace items but can              • Misplaces items in odd places and                                                     has the features of Parkinson’s disease.
               retrace steps to recall the location      has difficulty recalling
             • May forget details of conversations     • Forgets recent conversations and                                                      Vascular Dementia is caused by                  Awareness
               but can recall eventually                 asks repetitive questions                                                             disease or injury to blood vessels in the
                                                                                                                                               brain, mostly strokes. Onset is normally
                                            Mood and behaviour                                                                                 abrupt although it can be gradual, and
             • May experience sadness or               • Rapid mood swings                                                                     symptoms depend on the location
               anxiety due to specific reasons         • May become depressed or                                                               and size of the stroke. Controlling risk
             • No significant personality changes         agitated when triggered                                                              factors such as high blood pressure,           Friendliness
             • Intact interpersonal social skills      • May avoid social activities                                                           diabetes mellitus, high cholesterol and
                                                                                                                                               smoking may slow progression and
                                         Language and expression                                                                               reduce the risk of stroke recurrence.
             • May struggle finding the right          • Difficulty in completing sentences
               words to express oneself                   and loss of the ability to initiate
                                                          conversations
                                                                                                                                                                                              Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                         22      23                         BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

               COMMON MYTHS SURROUNDING DEMENTIA

                                                                                                                                                                                        Contents

                 MYTH                           TRUTH                                                     MYTH                        TRUTH
               Persons with               They can understand what is happening around                Life isn’t worth living   Dementia is a life-changing diagnosis often
               dementia don’t             them. Although their verbal communication may               if you have dementia      associated with challenges and progressive
               understand what’s          become impaired as the dementia progresses, it is                                     decline. But there are ways to improve the quality
               happening around           important to try to communicate with them. This                                       of life for persons with dementia, as studies          Foreword
               them                       may be done by engaging them through the five                                         have found. It is heartening when persons with
                                          senses, such as using visual cues or touch. Persons                                   dementia still find meaning and joy in life.
                                          with dementia have the right to be included.

                                                                                                          MYTH                        TRUTH
                 MYTH                           TRUTH                                                                                                                                  Rationale
                                                                                                      You should correct        Persons with dementia make mistakes – they
Contact us
               Persons with               Declining memory and ability to articulate their            persons with              might call you by the wrong name or get names
               dementia are violent       thoughts and feelings can cause persons with dementia       dementia when they        mixed up when telling a story. Changes to
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               and aggressive             to vent their frustration through their behaviour.          stumble in their          their brain might impact their perception of
    info@                                 Making the environment as comfortable and calming as        speech                    reality and correcting their errors can create
 dementia
   .org.sg                                possible can avoid upsetting situations for persons with                              further confusion and cause depression. It is
                                                                                                                                                                                      Framework
                                          dementia and the people nearby.                                                       recommended that we show encouragement and
                                                                                                                                support by asking engaging questions to find out
                                                                                                                                what they are trying to express and understand
                 MYTH                           TRUTH                                                                           their point of view.

               Dementia is a              Dementia is a general term to describe a set of
                                                                                                                                                                                       Awareness
               mental illness             symptoms impacting the brain, leading to a decline in           MYTH                        TRUTH
                                          brain function due to physical changes in the brain.
                                          Symptoms can include loss of memory, language,              Early diagnosis of        Early diagnosis is crucial in determining
                                          problem-solving and other thinking abilities, which         dementia is unhelpful     appropriate treatment needs for persons with
                                          interferes with daily living. Mental illness, on the        since it’s not curable    dementia and to help them and their family plan
                                          other hand, refers to a wider range of mental health                                  for the future. A timely diagnosis also gives them    Friendliness
                                          conditions that impact mood, thought and behaviour.                                   the opportunity to learn about their condition,
                                          Although dementia impacts the overall mental health,                                  understand changes as they occur, to plan and
                                          it is not a mental illness.                                                           cope better with day-to-day challenges associated
                                                                                                                                with cognitive impairment.

                                                                                                                                                                                      Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                                  24   25                        BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

             THE ABCD OF DEMENTIA

             Dementia causes progressive decline
             in one’s cognitive abilities, impacting
             memory and other thinking skills.
                                                           on the rise. Besides memory, dementia can
                                                           impact judgment, language, planning and
                                                           behaviour, leading to increasing difficulties
                                                                                                                C      COGNITIVE DECLINE                                                      Contents

                 Although the risk of dementia             in coping with everyday activities such                  • Memory loss that can disrupt daily life and impact daily routine.
             increases with age, cases of younger          as driving, cooking, shopping, managing                    Often forgets recent information. May forget important dates or
             persons diagnosed with dementia is also       finances or holding down a job.                            events, and ask the same questions repeatedly.

                                                                                                                    • Misplacing or losing items and inability to recover them.              Foreword

                                                                                                                    • Difficulties in planning and thinking. May have difficulty in

                A
                                                                                                                      financial transactions – handling money, paying bills and following
                            ACTIVITIES                                                                                instructions. May also find it difficult to concentrate and take
                                                                                                                      much longer to perform a task.
                                                                                                                                                                                             Rationale
                          • Difficulty in performing familiar tasks a person used to do well,                       • Diminished judgment and social behaviour. May cease to know
Contact us
                            such as cooking and driving.                                                              what is appropriate or safe. For instance, using crude language or
                                                                                                                      making insensitive remarks, or touching a hot kettle.

                 B
 DEMENTIA
SINGAPORE
    info@                   BEHAVIOURAL CHANGES                                                                     • Problems with visual perception – may have difficulties identifying
 dementia
   .org.sg                                                                                                            objects in a familiar environment and judging distances or depths.
                                                                                                                                                                                            Framework
                                                                                                                      Activities like reading and driving may become increasingly
                          • Losing interest in hobbies or personal                                                    challenging.
                            activities, and avoiding social activities.
                                                                                                                    • Difficulties in communication or self-expression. May have
                          • Changes in mood, behaviour and                                                            challenges finding the right word or naming objects. May
                            personality. Rapid mood swings for                                                        also struggle to understand what others are saying and stop
                                                                                                                                                                                             Awareness
                            no reason, withdrawn from group                                                           conversing, with no idea on how to continue.
                            activities, becoming passive and
                            sleeping more than usual. Might appear

                                                                                                                D
                            insensitive towards others.
                                                                                                                       DISORIENTATION
                           Tip                                                                                                                                                              Friendliness

                  Not all persons living with dementia will experience all                                          • Confused about time and place. May mix up day and night, and
                  10 symptoms. Neither are they limited to just these                                                 read the time wrongly. For example, asking for lunch at night.
                  10 symptoms. Generally, be mindful and observant of                                                 May be unsure of whereabouts and feel frustrated in unfamiliar or
                  any progressive decline in cognitive abilities, impacting                                           noisy places.
                  one’s ability to cope with everyday activities.
                                                                                                                                                                                            Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                         26   27                             BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

             STAGES OF DEMENTIA                                                                   MODERATE
             MILD                                                                                 Common symptoms:
                                                                                                  • Needs regular reminders and prompts in daily tasks                                   Contents

             Common symptoms:                                                                     • Needs help in dressing, grooming, bathing and going to the toilet
             • Difficulty in planning and managing household affairs such as                      • Easily upset and frustrated
               cleaning and cooking                                                               • Difficulty with short- and long-term memory
             • Difficulty in planning and initiating activities                                   • Difficulty in expressing emotions and making needs known
             • May become socially withdrawn or experience changes in mood                        • Poor orientation of day, date or time
             • Forgetting recent events and asking repetitive questions                           • Gets lost outdoors, even in familiar places                                         Foreword
             • Can’t remember the right word or name and has difficulty recalling
             • Gets lost in unfamiliar places                                                     WHAT TO DO
                                                                                                  Coping strategies            Establish support           Medical care
             WHAT TO DO                                                                           • Establish routines to      • Consider wearing          • If symptoms worsen,
             Coping strategies            Establish support            Medical care                 help cope with failing       a tracking device           seek advice and
             • Create to-do lists         • Participate in group       • Consider appointing        memory, such as fixed        to inform family of         rehabilitation from
                                                                                                                                                                                        Rationale
               and write notes as           and physical activities      a Lasting Power of         times for shower and         whereabouts                 family doctor or
Contact us
               reminders                    as much as possible          Attorney and discuss       meals                      • Participate in regular      specialist
             • Have a physical            • Have a well-balanced         Advance Care Plans       • Make adjustments             activities to keep
 DEMENTIA
SINGAPORE
               calendar and clock           diet and get enough rest     with family and doctor     at home and in daily         active and socially
    info@      visible and accessible     • Make regular phone calls   • Continue to visit          activities, such as          engaged, such as
 dementia
   .org.sg     to help keep track of        to family and friends        the doctor for             installing grab bars in      attending a dementia
                                                                                                                                                                                       Framework
               time and date              • Maintain relations           consultation               bathrooms and toilets        day care centre
                                            with community             • Take medication as
                                          • Maintain a normal            prescribed
                                            routine

                                                                                                                                                                                        Awareness

             SEVERE
                                                                                                  WHAT TO DO                   • Create opportunities        home, depending on
             Common symptoms:                                                                     Establish support              for outings where           the situation
             • Problems with balance and coordination, resulting in instability and falls         • Get help to perform          possible and enjoy        • Maintain regular
             • Total dependence in dressing, grooming, showering and feeding                        daily activities such as     them                        medical consultations     Friendliness
             • Trouble eating and swallowing                                                        bathing, dressing and      • Get financial help from   • Look out for suitable
             • Loss of bladder and bowel control                                                    grooming                     family or guardian          therapy sessions
             • Becoming apathetic, passive or withdrawn                                           • Ensure the physical                                      for continued
             • No apparent awareness of past or present                                             living environment is      Medical care                  engagement, such
             • Unable to engage in meaningful conversation                                          pleasant and safe to       • Choose to live at           as music and art
                                                                                                    prevent falls                home or a nursing           therapies
                                                                                                                                                                                       Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                           28      29                         BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

               DEMENTIA-INCLUSIVE COMMUNICATION

               To build a supportive community for persons with dementia
               and their families, all it takes is patience and understanding.                                                                                                            Contents

               Remember to be KIND when interacting with persons                                        Remember the CARE approach when communicating                                    Foreword
               who show signs of dementia and need assistance.                                          with persons living with dementia.

                  K                                                                                     C
                             Keep a lookout                                                                    Clear and simple language
                             Familiarise yourself with the signs of dementia and keep a lookout                Be clear, simple and patient. Use short and simple sentences and
                             for people who display them.                                                      speak at a slower pace.
                                                                                                                                                                                         Rationale

                                                                                                       A
Contact us
                                                                                                               Acknowledge their concerns

                   I
 DEMENTIA                    Interact with patience                                                            Be attentive when listening and comfort them if they express
SINGAPORE
    info@                    Speak softly and slowly. Be friendly and patient when waiting for a               worries.
 dementia                    response. Give the reassurance that you are there to help.
   .org.sg                                                                                                                                                                              Framework

                                                                                                       R
                                                                                                               Respect and reassure
                             Note their needs and offer help

                 N
                                                                                                               Introduce yourself with a smile and give the assurance that you are
                             Guide them and check if they have some form of identification –
                                                                                                               there to help.
                             such as the CARA card, NRIC, EZ-link card, Passion card and Pioneer
                             Generation card – or if they can recall the contact details of their
                                                                                                                                                                                         Awareness
                             next-of-kin.

                                                                                                        E
                                                                                                               Engage for comfort and trust
                                                                                                               Smile and maintain eye contact. Use a friendly and encouraging
                              Dial for help                                                                    tone, giving them time to think and respond.

                 D
                              Call the next-of-kin where possible and keep chatting with the
                              person with dementia until help arrives. You can also take them to
                              the nearest Go-To-Point (GTP) for further assistance. As a last resort                                                                                    Friendliness
                              and in the event of an emergency, call the police at 999.

                                                                                                                                                                                        Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                 30   31                                    BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

              DEMENTIA-INCLUSIVE LANGUAGE                                                 When discussing dementia
              The words we use can have a                                                 PREFERRED                                           AVOID
              significant and lasting impact, so it                                       • Dementia                                          •    Demented                                      Contents

              is important to use the appropriate                                         • Alzheimer’s Disease and other                     •    Dementing illness
              words. This is not just for the benefit                                       forms of dementia                                 •    Affliction
              of persons living with dementia, but                                        • A type of dementia                                •    Senile
              also to change the mindset of the                                           • Symptoms of dementia
              community towards the condition.
                  The appropriate language should be                                                                                                                                            Foreword
              respectful, stigma-free, empowering,                                        When discussing behavioural and
              accurate and inclusive. Here’s a list of
                                                                                          psychological symptoms of dementia
              preferred words and phrases:
                                                                                          PREFERRED                                           AVOID
                                                                                          • Expressions of unmet need/s                       • Challenging behaviours
                                                                                          • Responsive behaviour/s                            • Difficult behaviours
                                                                                                                                                                                                Rationale
                                                                                          • Changed behaviour/s                               • Aggressor
Contact us    When talking about persons with dementia
 DEMENTIA
              PREFERRED                                  AVOID
SINGAPORE                                                                                 When discussing impacts of dementia
    info@     • Person/s with dementia                   •   Demented person
 dementia
   .org.sg    • Person/s living with dementia            •   Dementia patient             PREFERRED                                           AVOID
                                                                                                                                                                                               Framework
              • Person/s with a diagnosis of             •   Victim                       •    Disabling                                      •    Hopeless
                dementia                                 •   Sufferer                     •    Challenging                                    •    Unbearable
                                                                                          •    Life-changing                                  •    Devastating
                                                                                          •    Stressful                                      •    Tragic
              When talking about persons with
              dementia under the age of 65                                                                                                                                                      Awareness
                                                                                          When discussing dementia in medical
              PREFERRED                                  AVOID
                                                                                          context and research writings
              • Young onset of dementia                  • Early onset of dementia
              • Young-onset dementia                     • Pre-senile dementia            PREFERRED                                                AVOID
                                                                                          • Dementia as a condition                                • Disease (unless talking about a type of
                                                                                          • Person/s with a diagnosis of dementia                    dementia, such as Alzheimer’s disease)    Friendliness
                                                                                          • Participant (If in a research trial)                   • Illness
              When discussing caregiving
                                                                                                                                                   • Subject
              PREFERRED                                  AVOID                                                                                     • Case
              • Impact/effect of supporting              • Burden of caregiving
                (someone) with dementia                  • Carer burden
                                                                                          More can be found at https://dementia.org.sg/wordshurt
                                                                                                                                                                                               Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS          32               33                  BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                                                                                                           Contents

                                                                                                                                                          Foreword

                                                                                                                                                          Rationale

Contact us

 DEMENTIA
SINGAPORE
    info@
 dementia
   .org.sg                                                                                                                                               Framework

                                                                                                                                                          Awareness

                                                                                                                                                         Friendliness

                                                                      STAGE 2: FRIENDLINESS
                                                       Employee training   •   Products and services   •   Enabling environment

                                                                                                                                                         Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS           34   35   BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                    STAGE 2:                                                   Identifying customers with dementia
                                                                               Besides raising awareness about dementia,
                    FRIENDLINESS                                               being dementia-friendly means that your
                                                                               frontline staff is trained on how to identify      Contents

                                                                               and interact with persons with dementia.
             As businesses take action to be dementia-                             It is not always easy to identify a person
             friendly, staff are trained to support and                        with dementia, and not all persons living
             handle the needs of customers with                                with dementia are seniors. Some may appear
             dementia, and the physical facilities and                         confused and disoriented while others may
             infrastructure of the store are adjusted to the                   not show symptoms. Some may approach              Foreword
             needs of customers with dementia.                                 you when they need help while others may
                                                                               prefer to keep their condition private.
                                                                                   Here are some signs to help you identify
                                                                               customers who may have dementia:
             WHAT YOU CAN DO                                                   • They look confused and lost
             Here’s a checklist to help you
                                                                               • They may appear to require assistance           Rationale
             fulfil Stage 2
                                                                                  with self-service facilities or when
Contact us          Enable staff through                                          handling money
 DEMENTIA           dementia-related training                                  • Their speech may be hard to understand
SINGAPORE
    info@                                                                         or they may struggle to find the words to
 dementia           Display dementia-related                                      express themselves
   .org.sg
                    resources                                                                                                   Framework
                                                                               • They may not be able to understand what
                                                                                  you are saying
                    Provide customised
                    products and services                                      • They may forget to pay before leaving
                                                                                  your store
                    Provide dementia-enabling
                    physical environment                                                                                         Awareness

                                                                                                                                Friendliness

                                                                                                                                Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                                    36   37                                BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                          EMPLOYEE TRAINING

                          Online and classroom training is available for organisations and businesses that
                          want to increase their employees’ understanding of dementia and how to support
                          persons with dementia and their carers.                                                                                                                                                    Contents

                          Dementia Awareness Workshop                   Facilitate Meaningful Interaction                 *Dementia Awareness Foundation                *Preventing Dementia
                          by Dementia Singapore (Formerly known         With Persons With Dementia                        Level E-Learning                              by University of Tasmania under MOOC
                          as Alzheimer’s Disease Association)           by Dementia Singapore                             by Agency for Integrated Care                 Dementia is a major concern as the
                          This training aims to raise awareness         Participants will learn about the                 Delivered through an e-learning               world population ages. Is it possible to
                          and inform, teaching participants how to      challenges faced by persons with                  platform, this online training aims to        lower your risk of dementia, which is       Foreword
                          recognise and assist persons with dementia,   dementia and how to engage them                   raise awareness and inform, teaching          linked to advanced ageing and genetic
                          and tap community resources for support.      meaningfully through effective                    participants how to recognise and             risk factors? Research has shown that
                          (Call Dementia Singapore at 6377 0700 or      communication strategies based on a               assist persons with dementia, and tap         risk factors can be altered. Preventing
                          go to https://dementia.org.sg/academy)        person-centred approach.                          community resources for support.              Dementia MOOC studies dementia-
                                                                        (Call Dementia Singapore at 6377 0700 or          (Go to https://ccmhdcomms.github.io/          prevention, drawing on expertise from
                          Enabling EDIE™                                go to https://dementia.org.sg/academy)            dementiaawareness20)                          around the world. The online training is
                                                                                                                                                                                                                    Rationale
                          by Dementia Singapore                                                                                                                         suitable for everyone.
Contact us
                          The 3-hour training lets participants         *Interacting Effectively With Persons             *Understanding Dementia                       (Go to https://www.utas.edu.au/wicking/
                          walk in the shoes of persons with             With Dementia                                     by University of Tasmania under the           preventing-dementia)
 DEMENTIA
SINGAPORE
                          dementia via a Virtual Reality simulation     by Dementia Singapore in collaboration            Massive Open Online Courses (MOOC)
    info@                 and learn how to develop a support            with Social Service Institute (SSI)               The online training leverages the
 dementia
   .org.sg                plan in partnership with persons living       Delivered through an e-learning                   expertise of neuroscientists, clinicians      *These courses are complimentary.
                                                                                                                                                                                                                   Framework
                          with dementia and carers.                     platform, this online training aims to            and dementia-care professionals from
                          (Call Dementia Singapore at 6377 0700 or      equip social service professionals,               the Wicking Dementia Research and
                          go to https://dementia.org.sg/academy)        carers and volunteers with an                     Education Centre and beyond.
                                                                        understanding of working with                     Learn about the diseases that cause
                    Tip                                                 persons with dementia. Participants
                                                                        are introduced to different strategies
                                                                                                                          dementia, how it impacts a person and
                                                                                                                          how to provide the best quality care.
                                                                                                                                                                                                                    Awareness
             If your employees are 50 years old and above,              of communicating and engaging with                (Go to https://www.utas.edu.au/wicking/
             they may be able to tap on the National                    persons with dementia using the                   understanding-dementia)
             Silver Academy (NSA) subsidy for the                       person-centred approach.
             following workshops by Dementia Singapore:                 (Go to SSI Eldercare courses webpage at
             • Dementia Awareness Workshop                              https://www.ssi.gov.sg/training/eldercare)
             • Enabling EDIE™                                                                                                                                                                                      Friendliness
             • Facilitate Meaningful Interaction with
                 Persons with Dementia
                                                                                                                                    More training
                                                                                                                               Dementia Singapore offers customised training and consultation that can
             Check out the NSA website for more                                                                                be tailored to your organisational needs. For more information, go to
             information (https://www.nsa.org.sg)                                                                              https://dementia.org.sg/academy or send an email to academy@dementia.org.sg
                                                                                                                                                                                                                   Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                        38   39                              BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                                                      Interacting with
             TRAINING RESOURCES: VIDEOS                                                               persons with
                                                                                                      dementia in retail
             There are videos with tips and anecdotes by and for carers on how to support
             people with dementia, and how businesses from different sectors can support              https://youtu.be/                                                                  Contents

             customers and employees impacted by dementia.                                            PU0ePz1XYNY

               Building                                                                               Managing persons                                                                  Foreword
               dementia-inclusive                                                                     with dementia for
               communities                                                                            private-hire vehicle
                                                                                                      operators
               https://youtu.be/
               wIOYCoXsc78                                                                            https://youtu.be/
                                                                                                      vebPSS2SxTs
                                                                                                                                                                                        Rationale

Contact us

 DEMENTIA
SINGAPORE
    info@      Tips and personal                                                                      Managing persons
 dementia
   .org.sg     stories by and for                                                                     with dementia for                                                                Framework
               carers on how best                                                                     train operators
               to support persons
               with dementia                                                                          https://youtu.be/fz1iUIks-fU

               https://www.forgetusnot.sg/
               videos.html
                                                                                                                                                                                        Awareness

               Interacting with                                                                       Managing persons
               persons with                                                                           with dementia for
               dementia in F&B                                                                        bus operators                                                                    Friendliness

               https://youtu.be/                                                                      https://youtu.be/TLq7Of5s_
               vHUIdaoYdfg                                                                            PM

                                                                                                                                                                                       Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                    40   41                        BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

              PROVIDE CUSTOMISED PRODUCTS AND SERVICES                                       EXAMPLES OF CUSTOMISED SERVICES AND PRODUCTS

              Businesses in different sectors have different considerations when
              engaging customers impacted by dementia. The list on the facing                       Arts, culture and heritage                                                 Contents

              page includes some examples of dedicated services and customised                      Screening of classic films where singing and chatting while the
              products adopted by local and overseas businesses. The possibilities                  movie is playing are not frowned upon
              are limitless. What it takes is a little imagination and the passion to               (Dementia-friendly cinemas across the UK)
              serve your customers who are impacted by dementia.
                                                                                                    Financial Services
                                                                                                    Banking for customers living with dementia to retain access               Foreword
                                                                                                    to a bank account that has limited features and additional
                                                                                                    control by a legal designee (HSBC Hong Kong)

                                                                                                    Food and Beverage
                                                                                                    Menu with bright photos and catchy titles
                                                                                                    (Amazing Joe restaurant in Columbus Indiana US)
                                                                                                                                                                              Rationale

Contact us
                                                                                                    Healthcare
                                                                                                    Ward and counter staff trained to interact with patients with
 DEMENTIA
SINGAPORE
                                                                                                    dementia and provide continuity of care
    info@                                                                                           (Sector guide by ACT on Alzheimer’s)
 dementia
   .org.sg                                                                                                                                                                   Framework
                                                                                                    Retail
                                                                                                    Checkout managed by staff trained to ensure that the
                                                                                                    shopping experience is made easier for customers with
                                                                                                    dementia (Tesco, Chester UK)

                                                                                                    Sports, leisure and parks                                                 Awareness
                                                                                                    Therapeutic garden featuring plants specially selected for
                                                                                                    their ability to stimulate the senses and act as a signpost for
                                                                                                    those with dementia if they get confused
                                                                                                    (Hort Park by National Parks Board Singapore)

                                                                                                    Transport                                                                Friendliness
                                                                                                    Transport Assistance Cards – Cards that record details of the
                                                                                                    needs of the person with dementia so that the user can show the
                                                                                                    card privately to the driver or other travel staff to seek assistance
                                                                                                    (Individual transport operators and local authorities in the UK)

                                                                                                                                                                             Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                        42    43                        BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                   SINGAPORE                                                                           HONG KONG

                   Inclusive transport network                                                         HSBC accounts for persons with dementia
                   The 2040 Land Transport                 commuters with dementia and                 Persons with dementia may             dementia to manage their everyday       Contents

                   Masterplan unveiled in May 2019         disabilities.                               struggle with financial management    finances independently and helps
                   aimed to create a more inclusive           SMRT also studied selected bus           as it requires high-level cognitive   them retain some semblance of
                   transport network for Singapore,        interchanges and MRT stations to            functions. Some of them are even      control over their life and feel
                   motivating SMRT to step up its          ensure that the environment was             suspicious of banks.                  included.
                   efforts in enabling its staff to help   conducive for commuters with                   In response to this, HSBC             It also guards against financial
                   commuters with dementia and             dementia or disabilities, developing        Hong Kong rolled out the HSBC         mismanagement by customers with        Foreword
                   disabilities.                           Yishun Integrated Transport                 Basic Banking Account with            impaired cognitive capacity and
                      By 2020, SMRT Buses                  Hub and Woodlands Temp Bus                  Independence (BBAI) in May 2019       who struggle with understanding
                   employees had received training         Interchange into Go-To-Points               to give customers with dementia       bank documents, remembering
                   from ADA, Agency for Integrated         (recognised by AIC as a place               access to a bank account that has     PIN, and communicating with bank
                   Care (AIC), Guide Dogs Singapore        where members of the public can             limited features and additional       staff.
                   and Handicaps Welfare Association       take persons with dementia to for           control by legal designees.              HSBC HK also trained more
                                                                                                                                                                                    Rationale
                   on how to approach and help             assistance from trained staff).                The legal designees can top up     than 200 Dementia Friends
Contact us
                                                                                                       the accounts so that the account      Ambassadors. These ambassadors
                                                                                                       holders can still enjoy basic         have a better understanding of
 DEMENTIA
SINGAPORE
                                                                                                       banking features such as cash         the difficulties faced by persons
    info@                                                                                              withdrawal and paying with an         with dementia when using banking
 dementia
   .org.sg                                                                                             ATM card.                             services, and can offer useful
                                                                                                                                                                                   Framework
                                                                                                          This empowers customers with       advice.
                   TAIWAN

                   Dementia-friendly stores                                                            MALAYSIA
                   There have been efforts to promote      friendly stores. These stores
                   dementia-friendliness in stores in      subsequently collect payment from           Mall raises awareness on dementia                                            Awareness
                   Taiwan.                                 the customers’ carers.                      Atria Shopping Gallery in Petaling    ageing-related matters for carers
                      Staff at these stores understand        Persons with dementia may                Jaya became the first dementia-       of persons living with dementia,
                   the impact of dementia on the daily     also make repeated purchases of             friendly community mall in            senior citizens, and the general
                   functioning of their customers and      the same item. Dementia-friendly            Malaysia when it launched the         public.
                   make provisions to accommodate          stores allow the customers’                 Atria Community Corner in                 The mall also held weekly
                   them with a shopping experience         carers to return or exchange the            September 2017, in collaboration      exercises, games and activities,      Friendliness
                   as comfortable and dignified as         purchased item for other items.             with the Alzheimer’s Disease          as well as sing-along sessions
                   possible.                                  These efforts to support persons         Foundation Malaysia (ADFM).           for persons with dementia, their
                      For instance, persons with           with dementia and their carers                 The community corner helped        families and carers, and senior
                   dementia who struggle with making       allow persons with dementia to              raise awareness of dementia           citizens. Such activities served to
                   sense of prices do not have to make     continue leading active lives and           through educational talks on the      provide information and support to
                   payment for purchases at dementia-      interacting with their environments.        condition as well as health- and      the communities in the area.
                                                                                                                                                                                   Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS   44   45                                       BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

                                                                             Tips
                                                                  Help can come in two ways:
                                                                  1. Proactively reaching out to those who may need
                                                                     help by approaching them, and                                                                      Contents

                                                                  2. Having a prominent helpdesk to encourage persons
                                                                     with dementia or carers to approach for help.

                                                            CREATE A DEMENTIA-ENABLING ENVIRONMENT                                                                     Foreword

                                                            When the physical environment of your store is dementia-enabling, it gives
                                                            persons with dementia and their carers the confidence to visit your business. Even
                                                            minor adjustments, such as in lighting and signage, can go a long way in creating a
                                                            calming and supportive environment for customers with dementia. Here are some
                                                            key design principles4 to consider. Their relevance to some common areas in our
                                                                                                                                                                       Rationale
                                                            physical environment will be elaborated in the following pages.

                                                            1                                                         6
Contact us
                                                                  Design safety measures to be as                             Create an environment – indoor
 DEMENTIA
SINGAPORE
                                                                  discreet as possible                                        and outdoor – that is easy for
                                                                                                                              engagement and safe to navigate

                                                            2
    info@
 dementia
                                                                   Design the scale of the

                                                                                                                      7
   .org.sg                                                                                                                                                            Framework
                                                                   environment to maximise comfort                            Design components of the
                                                                   and security                                               environment to be as familiar as
                                                                                                                              possible

                                                            3      Make it easy for people to see
                                                                   where they are going
                                                                                                                      8        Offer people opportunities
                                                                                                                               to choose to be alone or with

                                                            4
                                                                                                                                                                       Awareness
                                                                    Minimise unhelpful stimuli                                 different numbers of people

                                                            5      Optimise helpful stimuli                           9        Provide access and connection to
                                                                                                                               and from local communities

                                                                                                                      10           Design to support a way of
                                                                                                                                   life that is easy to understand,
                                                                                                                                   manageable and meaningful
                                                                                                                                                                      Friendliness

                                                            4
                                                             Fleming R., Zeisel J., & Bennett K. (2020). Design dignity dementia: Dementia-related
                                                            design and the built environment. Vol. I and II. London: Alzheimer’s Disease International:
                                                            https://www.alzint.org/resource/world-alzheimer-report-2020                                               Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS                                          46    47                              BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE

             ENVIRONMENTAL AUDIT                                                                    Here are some common areas to focus on, where possible,
                                                                                                    when creating a dementia-enabling physical environment
             Assess your environment and identify areas to improve to make it dementia-
             enabling. This audit should cover the entire journey – from approaching your
             store premises to right through it, all the way to the exit.                                             Lighting                                                                Contents

                                                                                                         Persons with dementia need to see their surroundings to help them make
             Step 1
                                                                                                         sense of it and to make the most of their remaining abilities. Better lighting
             Put yourself in the shoes of a person with dementia or a carer taking a person
                                                                                                         helps avoid confusion and reduces the risk of falls.
             with dementia to your store premises. (Tip: Remember the symptoms a person
             with dementia may be experiencing, such as problems with visual perception,
                                                                                                         What you can do:
             forgetfulness and challenges in physical mobility.)                                                                                                                             Foreword
                                                                                                          1. Avoid using lights that cause glare, dark shadows or are highly reflective
             Step 2                                                                                       2. Ensure area is well lit and bright by having more light fittings rather than
             Define the purpose of the visit (e.g. medical appointment at a hospital, shopping               fewer brighter ones
             for groceries in a supermarket or borrowing books from a library).                           3. Ensure consistent lighting throughout your store and use natural
                                                                                                             daylight where possible
             Step 3                                                      Be inclusive                                                                                                        Rationale
             Identify the most likely route your customer with                                           Corresponding key design principles:
                                                                        As you build your
             dementia would take.
Contact us                                                              business to be dementia-          • Minimise unhelpful stimuli
 DEMENTIA                                                               friendly, invite persons          • Optimise helpful stimuli
             Step 4
SINGAPORE
                                                                        with dementia and their
    info@    Start the journey about 20 metres away from the
 dementia                                                               carers to be part of the
   .org.sg   entrance of your store. This allows you to assess the
                                                                        process. This ensures                                                                                               Framework
             visibility of your store and ease of getting to it, from
                                                                        that whatever you hope
             outside.
                                                                        to do will take their
                                                                        experiences into account.
             Step 5
             Bear in mind the key design principles when marking
             common areas of the environment, in and outside your store, to be improved.
                                                                                                                                                                                             Awareness

             Tips
               • Consider doing the environmental check at different times of the day,
                  especially if your business is conducted outdoors and depends on natural
                  light.
               • Check out the video “Shopping in their Shoes – becoming a dementia-                                                                                                        Friendliness
                  friendly retailer” by East England Co-op (https://www.youtube.com/
                  watch?v=nAIVM3Jc0sE)

             Additional resource
              • Six Principles of Dementia-Friendly Neighbourhood by Singapore University
                 of Technology and Design, Lee Kuan Yew Centre for Innovative Cities
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                                Walkways & flooring
                 Dementia changes how the brain processes visual information. This impact
                 is compounded by poor eyesight which often occurs in ageing. Persons with                                                                     Contents
                 dementia require an environment that is clear and safe.

                 Walkways
                  1. Provide a well-defined pathway that’s free of obstacles and
                     has clear and simple signage or landmarks
                     Tip: Landmarks such as a prominent                                                                                                       Foreword

                     landscape or a helpdesk can help in
                     wayfinding
                  2. Ensure that the path is wide enough
                     to let two wheelchairs pass side by
                     side
                                                                                                                                                              Rationale

Contact us
                 Flooring
 DEMENTIA
                 Ensure that floors are non-slip,
SINGAPORE        non-reflective and free of patterns
    info@
 dementia
   .org.sg                                                                                                                                                   Framework
                 Uneven surface levels
                 Mark clearly areas with uneven
                 floor levels, such as stairs, kerbs,
                 and small steps. Install non-
                 reflective and colour-contrasting
                 handrails at those points
                                                                                                                                                              Awareness
                 Tip: Where feasible, replace steps with
                 ramps so persons in wheelchair or with walking
                 aid can move with ease

                 Corresponding key design principles:
                  • Design safety measures to be as discreet 		                                                                                              Friendliness
                     as possible
                  • Make it easy for people to see where they are going
                  • Create an environment – indoor and outdoor
                     – that is easy for engagement and safe to navigate

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                               Noise levels & other external stimulations
                 As dementia progresses, the brain may struggle with processing different sounds,
                                                                                                                                                                  Contents
                 smells and sights. Support to minimise confusion and uncertainty can help persons
                 with dementia live well and independently.

                 What you can do:
                  1. Make an environment comfortable by being mindful of its size, sounds, sights
                     and smells
                     Tip: Large stores can consider creating small sections to limit the number                                                                  Foreword

                     of people to help persons with dementia feel more at ease, and
                     where possible, engage persons with dementia in a quiet and
                     private meeting area instead of an open meeting space
                  2. Reduce visual and aural clutter, such as unnecessary noise,
                     signs, posters, advertising and merchandise
                     Tip: Remove unnecessary standee or point-of-sale display                                                                                    Rationale

                     and consider replacing loud music with soothing and relaxing
Contact us
                     tunes
 DEMENTIA
SINGAPORE
                  3. Provide adequate visual cues at eye level to help them know
    info@            where they are and what they can do in your store
 dementia
   .org.sg
                     Tip: Help them recognise your business or store by
                                                                                                                                                                Framework
                     highlighting the entry or using distinctive finishes.
                     Remember that people with dementia feel most
                     comfortable in familiar surroundings

                 Corresponding key design principles:
                  • Design the scale of the environment to maximise comfort                                                                                      Awareness
                     and security
                  • Minimise unhelpful stimuli
                  • Optimise helpful stimuli
                  • Design components of the environment to be as familiar as possible
                                                                                                                                                                Friendliness

                                                                                                                                                                Inclusiveness
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                               Seating & resting areas
                                                                                                                                                Contents

                                                                   Persons with dementia need to be able to choose to be on their
                                                                   own or with others.

                                                                   What you can do:                                                            Foreword

                                                                    1. Ensure there are enough seats, especially in waiting areas
                                                                    2. Ensure the seats are sturdy, made of common materials,
                                                                       with appropriate height (e.g. not too low), complete with
                                                                       back and arm rests
                                                                    3. Colours of the seats should contrast with the floor and walls
                                                                                                                                               Rationale
                                                                       so that they are prominent
Contact us                                                          4. Seats should be obvious and do not look like part of decor
 DEMENTIA                                                           5. Public spaces are designed with opportunities for persons
SINGAPORE                                                              with dementia to participate in or observe activities of
    info@
 dementia                                                              interest
   .org.sg
                                                                    6. Set aside a space or room so that there is a choice for the            Framework

                                                                       person with dementia to withdraw from the larger areas and
                                                                       crowd to be on their own, or in a smaller place with fewer
                                                                       people

                                                                   Corresponding key design principles:
                                                                                                                                               Awareness
                                                                    • Create options for people to be alone or with different
                                                                       numbers of people
                                                                    • Design components of the environment to be as familiar as
                                                                       possible
                                                                    • Optimise helpful stimuli
                                                                                                                                              Friendliness

                                                                                                                                              Inclusiveness
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                                Toilets
                 Having enough well-designed toilets can help persons with dementia
                 maintain their independence and dignity in personal care.                                                                              Contents

                 What you can do:                                                                 8. Clearly label taps and soap dispensers
                  1. Have clear entrance and exit signs, use                                      9. Use non-reflective surfaces
                     common symbols and contrasting colours                                      10. Ensure there is adequate lighting in the
                     to differentiate between toilets for males                                      toilets                                           Foreword
                     and females
                                                                                                 11. Ensure contrast between fixtures and
                  2. Access to toilets should be prominent                                           fittings, doors and surroundings
                     from as many viewpoints as
                     possible                                                                    12. Have a user-activated alarm system in
                                                                                                     cubicles for emergency assistance. Ensure
                  3. Provide unisex disability toilets.                                              that the alarm system is clearly visible,
                     Avoid using the handicap sign to                                                easy to use and accessible to the user            Rationale
                     empower even persons with hidden
Contact us           disabilities to use them                                                   Corresponding key design principles:
 DEMENTIA
                  4. Disability toilets should be big                                            • Design components of the environment to
SINGAPORE            enough to accommodate a                                                        be as familiar as possible
    info@
 dementia            wheelchair
   .org.sg                                                                                       • Optimise helpful stimuli
                  5. Install grab rails in colours that                                                                                               Framework

                     contrast with the walls and floor
                  6. Toilet seat should be in a colour that
                     contrasts with the toilet bowl and
                     floor
                  7. Use common or automatic flush                                                                                                     Awareness
                     systems

                                                                                                                                                      Friendliness

                                                                                                                                                      Inclusiveness
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                                Signage
                 Good, enabling signage can benefit the well-being of persons
                 with dementia, guiding them to their destination or providing                                                                          Contents
                 them with cues to complete a task.

                 What you can do:
                  1. Ensure entrance, exit and helpdesk signs are clean, clear,
                     well-lit and easily identified, both near and from a distance
                  2. Ensure the glass doors are clearly marked                                                                                         Foreword
                  3. Provide clear and simple signage with appropriate
                     symbols and large font against contrasting background
                     (e.g. black text against a yellow background)
                  4. Use simple wording and sentence case instead of
                     everything in uppercase
                  5. Fix signs at eye level and key decision points – this is                                                                          Rationale

                     especially helpful for someone who is there for the first time
Contact us
                     Tip: Older people tend to lower their gaze, so it is
 DEMENTIA            recommended that your signage be placed slightly lower
SINGAPORE
    info@            than normal, at about 1.2-1.4 metres from the floor
 dementia
   .org.sg        6. Fix signs on doors – instead of adjacent walls – to
                                                                                                                                                      Framework
                     indicate where they lead to
                  7. Install recognisable images or cues to assist persons with
                     dementia to complete any task (e.g. how to operate the
                     tap and soap dispenser in the toilet)
                  8. Display posters on dementia to remind others to be kind
                     and offer help when needed                                                                                                        Awareness

                 Corresponding key design principles:
                  • Make it easy for people to see where they are going
                  • Optimise helpful stimuli
                  • Create an environment – indoor and outdoor – that is                                                                              Friendliness
                     easy for engagement and safe to navigate
                  • Design components of the environment to be as familiar
                     as possible

                                                                                                                                                      Inclusiveness
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