BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE - Journey from Awareness to Inclusiveness
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Contents Foreword Rationale Framework Awareness Friendliness Supported by Journey from Awareness to Inclusiveness BUSINESS TOOLKIT FOR A Inclusiveness DEMENTIA-INCLUSIVE SINGAPORE
JOURNEY FROM AWARENESS TO INCLUSIVENESS 2 3 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE CONTENTS Contents 4 6 16 18 32 60 Foreword Rationale 3-stage Stage 1 – Stage 2 – Stage 3 – Foreword As Singapore works Why embark on this framework awareness friendliness inclusiveness towards a dementia- journey? Journey to dementia- Knowledge of Supporting customers with Supporting Employees Rationale inclusive society, • Prevalence inclusiveness dementia dementia • Employees who are carers businesses play a huge • Impact • Awareness • Myths and truths • Employee training • Employees with dementia Contact us role in driving change in • Experiences • Friendliness • Understanding • Products and services • Spotlight: Apex Harmony DEMENTIA perception and attitude • Inclusiveness dementia • Enabling environment Lodge SINGAPORE towards dementia. • Communication info@ dementia .org.sg Framework 6 Awareness Friendliness 4 32 Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 4 5 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE As Singapore works towards FOREWORD a dementia-inclusive society, businesses play a huge role in Contents driving change in perception and If you are reading this, let me this dementia journey. The entry attitude towards dementia. congratulate you and your organisation point and pace of your journey are on taking your first step towards dependent on your organisation’s building a dementia-inclusive society. values, priorities, and resources. But This first step represents your interest that first step is the most crucial. Foreword in our dementia journey that we hope The beauty of this toolkit is that – through this dementia-inclusive it is just as applicable to an individual business toolkit – will become your as a 1,000-strong organisation. commitment in future. For example, individuals can As Singapore works towards a always start a dementia-inclusive dementia-inclusive society, businesses business initiative within his or her Rationale play a huge role in driving change department, and on a department- Contact us in perception and attitude towards level, a department-wide project dementia. The condition not only can be wrought with greater effect. DEMENTIA SINGAPORE impacts the daily lives of persons living Finally, with senior leadership buy-in, info@ with it, but also carers who may have a whole-of-company approach can dementia .org.sg to sacrifice their careers – in whole create a transformational impact on Framework or in part – in order to care for their your organisation. We hope you will loved ones. find the case studies and tips useful. Through this toolkit, we are Finally, I want to express my most hoping that companies can be grateful appreciation to our sponsor acquainted with a three-stage Musim Mas and everyone listed in framework of Awareness (recognising our Acknowledgements, and many Awareness the gravity of the issue); Friendliness more, who have contributed to this (starting to make dementia-friendly toolkit. This would not have been changes to its business environment); possible without your generous and Inclusiveness (rendering support support, sharing and insights. to staff with dementia or who are Thank you. carers to loved ones with dementia). Friendliness As you flip through these pages, do know that sweeping changes need not be made overnight. Jason Foo Instead, we urge you to – at your CEO own comfort – consider how far Dementia Singapore (Formerly known your organisation wants to go on as Alzheimer’s Disease Association) Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 6 7 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Contents Foreword Rationale Contact us DEMENTIA SINGAPORE info@ dementia .org.sg Framework Awareness Friendliness WHY EMBARK ON THIS JOURNEY? Prevalence • Impact • Experiences Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 8 9 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE WHY EMBARK IMPACT OF DEMENTIA ON THIS JOURNEY? In a Singapore-wide survey2 on dementia in 2019, persons with dementia and their carers experienced rejection, loneliness and shame, and felt incompetent. Contents PREVALENCE OF DEMENTIA IN SINGAPORE In 2015, the Well-Being of the Singapore Elderly Study Persons (WiSE1) by the Institute of Mental Health found that with Carers one in 10 people aged 60 and above, and half of those dementia Foreword aged 80 and above had dementia. Based on this, it is estimated that more than 100,000 people in Singapore may have dementia by 2030. 3 in 4 feel rejected and lonely Nearly 30% have been in embarrassing public situations while caring for persons with dementia Rationale 60 and 80 and Contact us above above DEMENTIA SINGAPORE 56% feel they are treated as less 70% info@ competent due to their condition dementia .org.sg Framework 30% Awareness 1 in 2 feel ashamed of their condition More than 1 in 10 sense awkwardness around them on such occasions Friendliness 1 Subramaniam M. et al. (2015) Prevalence of Dementia in People Aged 2 Singapore-wide survey by Singapore Management University and ADA in 2019: 3 in 4 persons with dementia 60 Years and Above: Results from the WiSE Study. Journal of Alzheimer’s feel rejection and loneliness, national survey on dementia finds. https://dementia.org.sg/smu-ada-survey-2019 Disease, vol. 45, no. 4, pp. 1127-1138 Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 10 11 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE EXPERIENCES WITH DEMENTIA Food for thought Supermarket challenge Inattentive care As an avid cook, Emily Ong frequents The implementation of safe- Steven Lau has moderate dementia. Persons with dementia and their Contents supermarkets. But frontotemporal distancing measures to tackle the His wife Wong Lai Quen, who is also carers have experienced negative dementia, which she was diagnosed COVID-19 pandemic has made his carer, says hospital visits with him encounters in hospitals. How can with at 51 years old, makes word- matters worse for Emily. can be tricky. hospitals and other healthcare finding a difficulty. “Take the queue markers at She recalls the time she had to facilities, as places frequented by “With my challenge in word-finding, supermarkets as an example. I see take their domestic helper to the persons with dementia and their going to the supermarket, even the one them on the floor but my brain can’t hospital for treatment. They took carers, improve the patient’s Foreword familiar to me, is a struggle. even process something as simple Steven along as they did not want experience? “When I can’t find an item and can’t and logical as standing on the marker him to be home alone. recall its name or the words to describe when queuing for the cashier.” The hospital attendant refused to the item, I can’t ask for help. If I were to let Steven in as the COVID-19 approach people for help and start to safe-entry restrictions hum and haw, they’d get frustrated. allowed only one doctors and nurses.” Rationale “Most supermarket employees person to accompany In another incident, Lai Quen took Contact us don’t know how to assist persons each patient. Steven to a specialist at a private with dementia.” “I explained hospital. She had written a note to the DEMENTIA SINGAPORE Emily also at times forgets her that Steven had doctor beforehand to explain Steven’s info@ bank card PIN when she tries to dementia but the condition and facilitate the consultation. dementia .org.sg pay for her shopping. attendant still “I wrote that Steven was living Framework “I either can’t remember all the refused to let him in. with dementia and that he could have numbers or their correct sequence. “I feel trouble answering or responding to “On one occasion, the queue that hospital questions. was quite long, so the anxiety started employees, “The doctor simply showed the to build up. I knew I was in trouble. including doctors note to my husband and proceeded “When I struggled with the and nurses, are not as to ask him questions. I wasn’t Awareness NETS machine, the cashier shot me understanding as I hope consulted at all. a dirty look and asked: ‘Is this even they’d be when I tell them that “I felt that we wasted the your own bank card?’” my husband has dementia. They’d appointment. We had paid for usually just give a cursory nod and consultation but I doubt the doctor move on. got to the root of Steven’s issue “I am still taken aback by this. because he spoke to only Steven, Friendliness I’d forgive insensitive behaviours in whose answers were at times Food for thought malls – I don’t expect everyone to incongruent. understand dementia – but I expect “I’m perplexed by hospital staff’s How can supermarkets make shopping more conducive for better from hospital staff, especially indifference towards dementia.” persons with dementia, especially if they are on their own? Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 12 13 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE What’s for dinner? Triggered without warning Contents Daniel Lim is a carer to his ageing but persons with dementia have a Anjang Rosli was diagnosed with “Maybe he responded in that parents. His mother was diagnosed different set of needs.” Lewy body dementia in 2014 at the manner because he was busy and the with Stage 3 breast cancer in the In an ideal setting, restaurant age of 50. place was uncomfortably hot. But it same year his father was diagnosed staff can spot persons with dementia He believes it’s best for persons made me snap. I was triggered. with dementia. and assist accordingly. And a with dementia to be upfront with “I punched the employee and he Daniel points out how pictorial menu might just do the the condition – so they can avoid fell. I thought nothing of my action. Foreword common items are not created trick. Unfortunately, this is still not unpleasantness. I then said to the employee, ‘It’s with consideration to persons with happening in most F&B settings. “I once went to an eatery famous okay, I don’t want to buy from you dementia. He cited a challenging dining “Carers might not be able to for its fried chicken. I was craving anyway,’ and left. experience he had with his father. articulate the support they need and its spaghetti and had gone there by “When I got home, my wife “The menu was all text. Dad restaurant staff might not be able myself. Sarimah saw the cuts on my hand and could read but he couldn’t associate to identify the challenges faced by “It was one of my bad days. questioned me. She was worried. I Rationale the words with the food. He could diners with dementia and their carers. “I called out to someone who was told her what had happened. Contact us not picture the food in his mind. It’s quite a conundrum.” preparing the food but I was ignored. “Sarimah took me to the eatery and “We spent an hour trying to order I called out to the person again apologised to the employee I assaulted, DEMENTIA SINGAPORE something as simple as noodles. I felt and was greeted with a curt explaining my condition to him. info@ eyes on us, as if accusing us of taking reply: ‘Yes. What do you “The employee gave me a big hug dementia .org.sg up space and wasting time. want?’ and said: ‘Uncle, I understand. The Framework “I had not forewarned the next time you’re here, look for me restaurant about Dad’s condition and I will attend to you personally.’” as I didn’t feel it’s my place to do so and I didn’t want Dad’s dignity compromised. “I believe in empowering Dad Awareness and I let him make decisions whenever possible.” Food for thought Daniel stresses that Not all persons with dementia are comfortable he’s not asking for with disclosing their condition and their carers preferential treatment. feel they should respect that. But concealing the “We are part of the condition makes it difficult for service providers Friendliness community and can be to deliver a positive experience. To counter this, treated the same way businesses can learn to identify customers with as other people – albeit dementia and make accommodations in discretion. with more patience. We understand restaurant tables need a quick turnaround Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 14 15 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE IMPORTANCE OF BEING DEMENTIA-INCLUSIVE Dementia-inclusive businesses empower persons with dementia to be independent customers and employees, and give carers Contents greater peace of mind. Here are 3 reasons why businesses should embark on this journey: 1 Growing need With the increasing prevalence of dementia, businesses may see a rise in the number of customers or employees with Foreword dementia. Becoming dementia-inclusive ensures that businesses are well-equipped to address this growing need. 2 More socially savvy customers Customers are becoming increasingly socially savvy and demand that businesses be more socially responsible. Specific Rationale to dementia, a survey by Singapore Management University Contact us (SMU) and ADA in 2019 found that: • Nearly 8 in 10 people wanted to do more to improve the DEMENTIA SINGAPORE lives of persons with dementia info@ • 70% agreed that Singapore needed to provide more dementia .org.sg dementia-friendly amenities as customers wanted Framework businesses to improve their social responsibility 3 Enhanced reputation and equity Being dementia-inclusive, whether towards customers or employees, will enhance a brand’s reputation and equity. Research3 found that corporate social responsibility (CSR) Awareness initiatives have positive impacts on brand reputation and equity. 3 Mahmood A., & Bashir J. (2020). How does corporate social responsibility transform brand reputation into brand equity? Economic and noneconomic perspectives of CSR. International Journal of Engineering Business Management. Friendliness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 16 17 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Contents Foreword Stage 3: Inclusiveness Rationale To become dementia-inclusive, Contact us businesses take steps to Stage 2: Friendliness support not only customers, DEMENTIA SINGAPORE As businesses take action but also employees impacted info@ to become dementia- by dementia. This includes dementia .org.sg friendly, they ensure the hiring and retaining employees Framework physical facilities and with dementia, and providing infrastructure of their support to employees who store are adjusted to the are carers to persons with Stage 1: Awareness needs of customers with dementia. A truly inclusive At this stage, businesses dementia, and employees business leaves no one behind. are just becoming aware of are trained to support Awareness dementia as an issue they need and handle the needs of to address. There is an interest customers with dementia. to learn more about dementia. Friendliness 3-STAGE FRAMEWORK Journey to dementia-inclusiveness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 18 19 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Contents Foreword Rationale Contact us DEMENTIA SINGAPORE info@ dementia .org.sg Framework Awareness Friendliness STAGE 1: AWARENESS Myths and truths • Understanding dementia • Communication Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 20 21 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE STAGE 1: TYPES OF DEMENTIA Dementia is an umbrella term for a range of symptoms associated with cognitive AWARENESS impairment. There are several types of dementia, each with different symptoms and care needs, and the symptoms may overlap as the condition progresses. Contents Below are the more common types of dementia: The nationwide survey by SMU and ADA WHAT YOU CAN DO in 2019 found stigmatic attitude to be Alzheimer’s is the most common psychiatric disorders like depression, worst among people with no connection Here’s a checklist to help you type of dementia with a very subtle obsessive-compulsive disorder and to dementia, and 57% of the respondents fulfil Stage 1 and gradual onset. It is a progressive schizophrenia have overlapping considered themselves unknowledgeable condition where symptoms worsen symptoms. There is no treatment or Foreword about dementia. Understand dementia over time, impacting memory, thinking cure, but medications and lifestyle Hence it is imperative that the journey skills and eventually the ability to carry changes can help to alleviate some of towards becoming dementia-inclusive begins Learn dementia-inclusive out daily self-care such as dressing or the symptoms. with awareness. communication toileting. At this stage, businesses are just becoming Dementia with Lewy Bodies aware of dementia as an issue they need to Organise talks about Frontotemporal Dementia or Lewy Body Dementia Rationale address. There is an interest to learn more dementia in-house and (FTD) is often characterised by (LBD) has symptoms such as Contact us about dementia. with business networks marked personality changes and in slowness, tremor, rigidity and visual some cases, language difficulties. Most hallucinations. Other prominent DEMENTIA SINGAPORE people impacted by FTD are younger, symptoms include challenges with info@ between 40-70 years. Due to the attention, organisation, problem-solving dementia .org.sg symptoms, FTD may be mistaken for and planning. Persons with LBD are Framework REGULAR AGEING DEMENTIA Alzheimer’s and Parkinson’s disease or also more susceptible to falls because of their increased rigidity, instability and Memory and concentration slow gait. With these symptoms, LBD • May misplace items but can • Misplaces items in odd places and has the features of Parkinson’s disease. retrace steps to recall the location has difficulty recalling • May forget details of conversations • Forgets recent conversations and Vascular Dementia is caused by Awareness but can recall eventually asks repetitive questions disease or injury to blood vessels in the brain, mostly strokes. Onset is normally Mood and behaviour abrupt although it can be gradual, and • May experience sadness or • Rapid mood swings symptoms depend on the location anxiety due to specific reasons • May become depressed or and size of the stroke. Controlling risk • No significant personality changes agitated when triggered factors such as high blood pressure, Friendliness • Intact interpersonal social skills • May avoid social activities diabetes mellitus, high cholesterol and smoking may slow progression and Language and expression reduce the risk of stroke recurrence. • May struggle finding the right • Difficulty in completing sentences words to express oneself and loss of the ability to initiate conversations Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 22 23 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE COMMON MYTHS SURROUNDING DEMENTIA Contents MYTH TRUTH MYTH TRUTH Persons with They can understand what is happening around Life isn’t worth living Dementia is a life-changing diagnosis often dementia don’t them. Although their verbal communication may if you have dementia associated with challenges and progressive understand what’s become impaired as the dementia progresses, it is decline. But there are ways to improve the quality happening around important to try to communicate with them. This of life for persons with dementia, as studies Foreword them may be done by engaging them through the five have found. It is heartening when persons with senses, such as using visual cues or touch. Persons dementia still find meaning and joy in life. with dementia have the right to be included. MYTH TRUTH MYTH TRUTH Rationale You should correct Persons with dementia make mistakes – they Contact us Persons with Declining memory and ability to articulate their persons with might call you by the wrong name or get names dementia are violent thoughts and feelings can cause persons with dementia dementia when they mixed up when telling a story. Changes to DEMENTIA SINGAPORE and aggressive to vent their frustration through their behaviour. stumble in their their brain might impact their perception of info@ Making the environment as comfortable and calming as speech reality and correcting their errors can create dementia .org.sg possible can avoid upsetting situations for persons with further confusion and cause depression. It is Framework dementia and the people nearby. recommended that we show encouragement and support by asking engaging questions to find out what they are trying to express and understand MYTH TRUTH their point of view. Dementia is a Dementia is a general term to describe a set of Awareness mental illness symptoms impacting the brain, leading to a decline in MYTH TRUTH brain function due to physical changes in the brain. Symptoms can include loss of memory, language, Early diagnosis of Early diagnosis is crucial in determining problem-solving and other thinking abilities, which dementia is unhelpful appropriate treatment needs for persons with interferes with daily living. Mental illness, on the since it’s not curable dementia and to help them and their family plan other hand, refers to a wider range of mental health for the future. A timely diagnosis also gives them Friendliness conditions that impact mood, thought and behaviour. the opportunity to learn about their condition, Although dementia impacts the overall mental health, understand changes as they occur, to plan and it is not a mental illness. cope better with day-to-day challenges associated with cognitive impairment. Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 24 25 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE THE ABCD OF DEMENTIA Dementia causes progressive decline in one’s cognitive abilities, impacting memory and other thinking skills. on the rise. Besides memory, dementia can impact judgment, language, planning and behaviour, leading to increasing difficulties C COGNITIVE DECLINE Contents Although the risk of dementia in coping with everyday activities such • Memory loss that can disrupt daily life and impact daily routine. increases with age, cases of younger as driving, cooking, shopping, managing Often forgets recent information. May forget important dates or persons diagnosed with dementia is also finances or holding down a job. events, and ask the same questions repeatedly. • Misplacing or losing items and inability to recover them. Foreword • Difficulties in planning and thinking. May have difficulty in A financial transactions – handling money, paying bills and following ACTIVITIES instructions. May also find it difficult to concentrate and take much longer to perform a task. Rationale • Difficulty in performing familiar tasks a person used to do well, • Diminished judgment and social behaviour. May cease to know Contact us such as cooking and driving. what is appropriate or safe. For instance, using crude language or making insensitive remarks, or touching a hot kettle. B DEMENTIA SINGAPORE info@ BEHAVIOURAL CHANGES • Problems with visual perception – may have difficulties identifying dementia .org.sg objects in a familiar environment and judging distances or depths. Framework Activities like reading and driving may become increasingly • Losing interest in hobbies or personal challenging. activities, and avoiding social activities. • Difficulties in communication or self-expression. May have • Changes in mood, behaviour and challenges finding the right word or naming objects. May personality. Rapid mood swings for also struggle to understand what others are saying and stop Awareness no reason, withdrawn from group conversing, with no idea on how to continue. activities, becoming passive and sleeping more than usual. Might appear D insensitive towards others. DISORIENTATION Tip Friendliness Not all persons living with dementia will experience all • Confused about time and place. May mix up day and night, and 10 symptoms. Neither are they limited to just these read the time wrongly. For example, asking for lunch at night. 10 symptoms. Generally, be mindful and observant of May be unsure of whereabouts and feel frustrated in unfamiliar or any progressive decline in cognitive abilities, impacting noisy places. one’s ability to cope with everyday activities. Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 26 27 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE STAGES OF DEMENTIA MODERATE MILD Common symptoms: • Needs regular reminders and prompts in daily tasks Contents Common symptoms: • Needs help in dressing, grooming, bathing and going to the toilet • Difficulty in planning and managing household affairs such as • Easily upset and frustrated cleaning and cooking • Difficulty with short- and long-term memory • Difficulty in planning and initiating activities • Difficulty in expressing emotions and making needs known • May become socially withdrawn or experience changes in mood • Poor orientation of day, date or time • Forgetting recent events and asking repetitive questions • Gets lost outdoors, even in familiar places Foreword • Can’t remember the right word or name and has difficulty recalling • Gets lost in unfamiliar places WHAT TO DO Coping strategies Establish support Medical care WHAT TO DO • Establish routines to • Consider wearing • If symptoms worsen, Coping strategies Establish support Medical care help cope with failing a tracking device seek advice and • Create to-do lists • Participate in group • Consider appointing memory, such as fixed to inform family of rehabilitation from Rationale and write notes as and physical activities a Lasting Power of times for shower and whereabouts family doctor or Contact us reminders as much as possible Attorney and discuss meals • Participate in regular specialist • Have a physical • Have a well-balanced Advance Care Plans • Make adjustments activities to keep DEMENTIA SINGAPORE calendar and clock diet and get enough rest with family and doctor at home and in daily active and socially info@ visible and accessible • Make regular phone calls • Continue to visit activities, such as engaged, such as dementia .org.sg to help keep track of to family and friends the doctor for installing grab bars in attending a dementia Framework time and date • Maintain relations consultation bathrooms and toilets day care centre with community • Take medication as • Maintain a normal prescribed routine Awareness SEVERE WHAT TO DO • Create opportunities home, depending on Common symptoms: Establish support for outings where the situation • Problems with balance and coordination, resulting in instability and falls • Get help to perform possible and enjoy • Maintain regular • Total dependence in dressing, grooming, showering and feeding daily activities such as them medical consultations Friendliness • Trouble eating and swallowing bathing, dressing and • Get financial help from • Look out for suitable • Loss of bladder and bowel control grooming family or guardian therapy sessions • Becoming apathetic, passive or withdrawn • Ensure the physical for continued • No apparent awareness of past or present living environment is Medical care engagement, such • Unable to engage in meaningful conversation pleasant and safe to • Choose to live at as music and art prevent falls home or a nursing therapies Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 28 29 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE DEMENTIA-INCLUSIVE COMMUNICATION To build a supportive community for persons with dementia and their families, all it takes is patience and understanding. Contents Remember to be KIND when interacting with persons Remember the CARE approach when communicating Foreword who show signs of dementia and need assistance. with persons living with dementia. K C Keep a lookout Clear and simple language Familiarise yourself with the signs of dementia and keep a lookout Be clear, simple and patient. Use short and simple sentences and for people who display them. speak at a slower pace. Rationale A Contact us Acknowledge their concerns I DEMENTIA Interact with patience Be attentive when listening and comfort them if they express SINGAPORE info@ Speak softly and slowly. Be friendly and patient when waiting for a worries. dementia response. Give the reassurance that you are there to help. .org.sg Framework R Respect and reassure Note their needs and offer help N Introduce yourself with a smile and give the assurance that you are Guide them and check if they have some form of identification – there to help. such as the CARA card, NRIC, EZ-link card, Passion card and Pioneer Generation card – or if they can recall the contact details of their Awareness next-of-kin. E Engage for comfort and trust Smile and maintain eye contact. Use a friendly and encouraging Dial for help tone, giving them time to think and respond. D Call the next-of-kin where possible and keep chatting with the person with dementia until help arrives. You can also take them to the nearest Go-To-Point (GTP) for further assistance. As a last resort Friendliness and in the event of an emergency, call the police at 999. Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 30 31 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE DEMENTIA-INCLUSIVE LANGUAGE When discussing dementia The words we use can have a PREFERRED AVOID significant and lasting impact, so it • Dementia • Demented Contents is important to use the appropriate • Alzheimer’s Disease and other • Dementing illness words. This is not just for the benefit forms of dementia • Affliction of persons living with dementia, but • A type of dementia • Senile also to change the mindset of the • Symptoms of dementia community towards the condition. The appropriate language should be Foreword respectful, stigma-free, empowering, When discussing behavioural and accurate and inclusive. Here’s a list of psychological symptoms of dementia preferred words and phrases: PREFERRED AVOID • Expressions of unmet need/s • Challenging behaviours • Responsive behaviour/s • Difficult behaviours Rationale • Changed behaviour/s • Aggressor Contact us When talking about persons with dementia DEMENTIA PREFERRED AVOID SINGAPORE When discussing impacts of dementia info@ • Person/s with dementia • Demented person dementia .org.sg • Person/s living with dementia • Dementia patient PREFERRED AVOID Framework • Person/s with a diagnosis of • Victim • Disabling • Hopeless dementia • Sufferer • Challenging • Unbearable • Life-changing • Devastating • Stressful • Tragic When talking about persons with dementia under the age of 65 Awareness When discussing dementia in medical PREFERRED AVOID context and research writings • Young onset of dementia • Early onset of dementia • Young-onset dementia • Pre-senile dementia PREFERRED AVOID • Dementia as a condition • Disease (unless talking about a type of • Person/s with a diagnosis of dementia dementia, such as Alzheimer’s disease) Friendliness • Participant (If in a research trial) • Illness When discussing caregiving • Subject PREFERRED AVOID • Case • Impact/effect of supporting • Burden of caregiving (someone) with dementia • Carer burden More can be found at https://dementia.org.sg/wordshurt Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 32 33 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Contents Foreword Rationale Contact us DEMENTIA SINGAPORE info@ dementia .org.sg Framework Awareness Friendliness STAGE 2: FRIENDLINESS Employee training • Products and services • Enabling environment Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 34 35 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE STAGE 2: Identifying customers with dementia Besides raising awareness about dementia, FRIENDLINESS being dementia-friendly means that your frontline staff is trained on how to identify Contents and interact with persons with dementia. As businesses take action to be dementia- It is not always easy to identify a person friendly, staff are trained to support and with dementia, and not all persons living handle the needs of customers with with dementia are seniors. Some may appear dementia, and the physical facilities and confused and disoriented while others may infrastructure of the store are adjusted to the not show symptoms. Some may approach Foreword needs of customers with dementia. you when they need help while others may prefer to keep their condition private. Here are some signs to help you identify customers who may have dementia: WHAT YOU CAN DO • They look confused and lost Here’s a checklist to help you • They may appear to require assistance Rationale fulfil Stage 2 with self-service facilities or when Contact us Enable staff through handling money DEMENTIA dementia-related training • Their speech may be hard to understand SINGAPORE info@ or they may struggle to find the words to dementia Display dementia-related express themselves .org.sg resources Framework • They may not be able to understand what you are saying Provide customised products and services • They may forget to pay before leaving your store Provide dementia-enabling physical environment Awareness Friendliness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 36 37 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE EMPLOYEE TRAINING Online and classroom training is available for organisations and businesses that want to increase their employees’ understanding of dementia and how to support persons with dementia and their carers. Contents Dementia Awareness Workshop Facilitate Meaningful Interaction *Dementia Awareness Foundation *Preventing Dementia by Dementia Singapore (Formerly known With Persons With Dementia Level E-Learning by University of Tasmania under MOOC as Alzheimer’s Disease Association) by Dementia Singapore by Agency for Integrated Care Dementia is a major concern as the This training aims to raise awareness Participants will learn about the Delivered through an e-learning world population ages. Is it possible to and inform, teaching participants how to challenges faced by persons with platform, this online training aims to lower your risk of dementia, which is Foreword recognise and assist persons with dementia, dementia and how to engage them raise awareness and inform, teaching linked to advanced ageing and genetic and tap community resources for support. meaningfully through effective participants how to recognise and risk factors? Research has shown that (Call Dementia Singapore at 6377 0700 or communication strategies based on a assist persons with dementia, and tap risk factors can be altered. Preventing go to https://dementia.org.sg/academy) person-centred approach. community resources for support. Dementia MOOC studies dementia- (Call Dementia Singapore at 6377 0700 or (Go to https://ccmhdcomms.github.io/ prevention, drawing on expertise from Enabling EDIE™ go to https://dementia.org.sg/academy) dementiaawareness20) around the world. The online training is Rationale by Dementia Singapore suitable for everyone. Contact us The 3-hour training lets participants *Interacting Effectively With Persons *Understanding Dementia (Go to https://www.utas.edu.au/wicking/ walk in the shoes of persons with With Dementia by University of Tasmania under the preventing-dementia) DEMENTIA SINGAPORE dementia via a Virtual Reality simulation by Dementia Singapore in collaboration Massive Open Online Courses (MOOC) info@ and learn how to develop a support with Social Service Institute (SSI) The online training leverages the dementia .org.sg plan in partnership with persons living Delivered through an e-learning expertise of neuroscientists, clinicians *These courses are complimentary. Framework with dementia and carers. platform, this online training aims to and dementia-care professionals from (Call Dementia Singapore at 6377 0700 or equip social service professionals, the Wicking Dementia Research and go to https://dementia.org.sg/academy) carers and volunteers with an Education Centre and beyond. understanding of working with Learn about the diseases that cause Tip persons with dementia. Participants are introduced to different strategies dementia, how it impacts a person and how to provide the best quality care. Awareness If your employees are 50 years old and above, of communicating and engaging with (Go to https://www.utas.edu.au/wicking/ they may be able to tap on the National persons with dementia using the understanding-dementia) Silver Academy (NSA) subsidy for the person-centred approach. following workshops by Dementia Singapore: (Go to SSI Eldercare courses webpage at • Dementia Awareness Workshop https://www.ssi.gov.sg/training/eldercare) • Enabling EDIE™ Friendliness • Facilitate Meaningful Interaction with Persons with Dementia More training Dementia Singapore offers customised training and consultation that can Check out the NSA website for more be tailored to your organisational needs. For more information, go to information (https://www.nsa.org.sg) https://dementia.org.sg/academy or send an email to academy@dementia.org.sg Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 38 39 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Interacting with TRAINING RESOURCES: VIDEOS persons with dementia in retail There are videos with tips and anecdotes by and for carers on how to support people with dementia, and how businesses from different sectors can support https://youtu.be/ Contents customers and employees impacted by dementia. PU0ePz1XYNY Building Managing persons Foreword dementia-inclusive with dementia for communities private-hire vehicle operators https://youtu.be/ wIOYCoXsc78 https://youtu.be/ vebPSS2SxTs Rationale Contact us DEMENTIA SINGAPORE info@ Tips and personal Managing persons dementia .org.sg stories by and for with dementia for Framework carers on how best train operators to support persons with dementia https://youtu.be/fz1iUIks-fU https://www.forgetusnot.sg/ videos.html Awareness Interacting with Managing persons persons with with dementia for dementia in F&B bus operators Friendliness https://youtu.be/ https://youtu.be/TLq7Of5s_ vHUIdaoYdfg PM Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 40 41 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE PROVIDE CUSTOMISED PRODUCTS AND SERVICES EXAMPLES OF CUSTOMISED SERVICES AND PRODUCTS Businesses in different sectors have different considerations when engaging customers impacted by dementia. The list on the facing Arts, culture and heritage Contents page includes some examples of dedicated services and customised Screening of classic films where singing and chatting while the products adopted by local and overseas businesses. The possibilities movie is playing are not frowned upon are limitless. What it takes is a little imagination and the passion to (Dementia-friendly cinemas across the UK) serve your customers who are impacted by dementia. Financial Services Banking for customers living with dementia to retain access Foreword to a bank account that has limited features and additional control by a legal designee (HSBC Hong Kong) Food and Beverage Menu with bright photos and catchy titles (Amazing Joe restaurant in Columbus Indiana US) Rationale Contact us Healthcare Ward and counter staff trained to interact with patients with DEMENTIA SINGAPORE dementia and provide continuity of care info@ (Sector guide by ACT on Alzheimer’s) dementia .org.sg Framework Retail Checkout managed by staff trained to ensure that the shopping experience is made easier for customers with dementia (Tesco, Chester UK) Sports, leisure and parks Awareness Therapeutic garden featuring plants specially selected for their ability to stimulate the senses and act as a signpost for those with dementia if they get confused (Hort Park by National Parks Board Singapore) Transport Friendliness Transport Assistance Cards – Cards that record details of the needs of the person with dementia so that the user can show the card privately to the driver or other travel staff to seek assistance (Individual transport operators and local authorities in the UK) Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 42 43 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE SINGAPORE HONG KONG Inclusive transport network HSBC accounts for persons with dementia The 2040 Land Transport commuters with dementia and Persons with dementia may dementia to manage their everyday Contents Masterplan unveiled in May 2019 disabilities. struggle with financial management finances independently and helps aimed to create a more inclusive SMRT also studied selected bus as it requires high-level cognitive them retain some semblance of transport network for Singapore, interchanges and MRT stations to functions. Some of them are even control over their life and feel motivating SMRT to step up its ensure that the environment was suspicious of banks. included. efforts in enabling its staff to help conducive for commuters with In response to this, HSBC It also guards against financial commuters with dementia and dementia or disabilities, developing Hong Kong rolled out the HSBC mismanagement by customers with Foreword disabilities. Yishun Integrated Transport Basic Banking Account with impaired cognitive capacity and By 2020, SMRT Buses Hub and Woodlands Temp Bus Independence (BBAI) in May 2019 who struggle with understanding employees had received training Interchange into Go-To-Points to give customers with dementia bank documents, remembering from ADA, Agency for Integrated (recognised by AIC as a place access to a bank account that has PIN, and communicating with bank Care (AIC), Guide Dogs Singapore where members of the public can limited features and additional staff. and Handicaps Welfare Association take persons with dementia to for control by legal designees. HSBC HK also trained more Rationale on how to approach and help assistance from trained staff). The legal designees can top up than 200 Dementia Friends Contact us the accounts so that the account Ambassadors. These ambassadors holders can still enjoy basic have a better understanding of DEMENTIA SINGAPORE banking features such as cash the difficulties faced by persons info@ withdrawal and paying with an with dementia when using banking dementia .org.sg ATM card. services, and can offer useful Framework This empowers customers with advice. TAIWAN Dementia-friendly stores MALAYSIA There have been efforts to promote friendly stores. These stores dementia-friendliness in stores in subsequently collect payment from Mall raises awareness on dementia Awareness Taiwan. the customers’ carers. Atria Shopping Gallery in Petaling ageing-related matters for carers Staff at these stores understand Persons with dementia may Jaya became the first dementia- of persons living with dementia, the impact of dementia on the daily also make repeated purchases of friendly community mall in senior citizens, and the general functioning of their customers and the same item. Dementia-friendly Malaysia when it launched the public. make provisions to accommodate stores allow the customers’ Atria Community Corner in The mall also held weekly them with a shopping experience carers to return or exchange the September 2017, in collaboration exercises, games and activities, Friendliness as comfortable and dignified as purchased item for other items. with the Alzheimer’s Disease as well as sing-along sessions possible. These efforts to support persons Foundation Malaysia (ADFM). for persons with dementia, their For instance, persons with with dementia and their carers The community corner helped families and carers, and senior dementia who struggle with making allow persons with dementia to raise awareness of dementia citizens. Such activities served to sense of prices do not have to make continue leading active lives and through educational talks on the provide information and support to payment for purchases at dementia- interacting with their environments. condition as well as health- and the communities in the area. Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 44 45 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Tips Help can come in two ways: 1. Proactively reaching out to those who may need help by approaching them, and Contents 2. Having a prominent helpdesk to encourage persons with dementia or carers to approach for help. CREATE A DEMENTIA-ENABLING ENVIRONMENT Foreword When the physical environment of your store is dementia-enabling, it gives persons with dementia and their carers the confidence to visit your business. Even minor adjustments, such as in lighting and signage, can go a long way in creating a calming and supportive environment for customers with dementia. Here are some key design principles4 to consider. Their relevance to some common areas in our Rationale physical environment will be elaborated in the following pages. 1 6 Contact us Design safety measures to be as Create an environment – indoor DEMENTIA SINGAPORE discreet as possible and outdoor – that is easy for engagement and safe to navigate 2 info@ dementia Design the scale of the 7 .org.sg Framework environment to maximise comfort Design components of the and security environment to be as familiar as possible 3 Make it easy for people to see where they are going 8 Offer people opportunities to choose to be alone or with 4 Awareness Minimise unhelpful stimuli different numbers of people 5 Optimise helpful stimuli 9 Provide access and connection to and from local communities 10 Design to support a way of life that is easy to understand, manageable and meaningful Friendliness 4 Fleming R., Zeisel J., & Bennett K. (2020). Design dignity dementia: Dementia-related design and the built environment. Vol. I and II. London: Alzheimer’s Disease International: https://www.alzint.org/resource/world-alzheimer-report-2020 Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 46 47 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE ENVIRONMENTAL AUDIT Here are some common areas to focus on, where possible, when creating a dementia-enabling physical environment Assess your environment and identify areas to improve to make it dementia- enabling. This audit should cover the entire journey – from approaching your store premises to right through it, all the way to the exit. Lighting Contents Persons with dementia need to see their surroundings to help them make Step 1 sense of it and to make the most of their remaining abilities. Better lighting Put yourself in the shoes of a person with dementia or a carer taking a person helps avoid confusion and reduces the risk of falls. with dementia to your store premises. (Tip: Remember the symptoms a person with dementia may be experiencing, such as problems with visual perception, What you can do: forgetfulness and challenges in physical mobility.) Foreword 1. Avoid using lights that cause glare, dark shadows or are highly reflective Step 2 2. Ensure area is well lit and bright by having more light fittings rather than Define the purpose of the visit (e.g. medical appointment at a hospital, shopping fewer brighter ones for groceries in a supermarket or borrowing books from a library). 3. Ensure consistent lighting throughout your store and use natural daylight where possible Step 3 Be inclusive Rationale Identify the most likely route your customer with Corresponding key design principles: As you build your dementia would take. Contact us business to be dementia- • Minimise unhelpful stimuli DEMENTIA friendly, invite persons • Optimise helpful stimuli Step 4 SINGAPORE with dementia and their info@ Start the journey about 20 metres away from the dementia carers to be part of the .org.sg entrance of your store. This allows you to assess the process. This ensures Framework visibility of your store and ease of getting to it, from that whatever you hope outside. to do will take their experiences into account. Step 5 Bear in mind the key design principles when marking common areas of the environment, in and outside your store, to be improved. Awareness Tips • Consider doing the environmental check at different times of the day, especially if your business is conducted outdoors and depends on natural light. • Check out the video “Shopping in their Shoes – becoming a dementia- Friendliness friendly retailer” by East England Co-op (https://www.youtube.com/ watch?v=nAIVM3Jc0sE) Additional resource • Six Principles of Dementia-Friendly Neighbourhood by Singapore University of Technology and Design, Lee Kuan Yew Centre for Innovative Cities Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 48 49 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Walkways & flooring Dementia changes how the brain processes visual information. This impact is compounded by poor eyesight which often occurs in ageing. Persons with Contents dementia require an environment that is clear and safe. Walkways 1. Provide a well-defined pathway that’s free of obstacles and has clear and simple signage or landmarks Tip: Landmarks such as a prominent Foreword landscape or a helpdesk can help in wayfinding 2. Ensure that the path is wide enough to let two wheelchairs pass side by side Rationale Contact us Flooring DEMENTIA Ensure that floors are non-slip, SINGAPORE non-reflective and free of patterns info@ dementia .org.sg Framework Uneven surface levels Mark clearly areas with uneven floor levels, such as stairs, kerbs, and small steps. Install non- reflective and colour-contrasting handrails at those points Awareness Tip: Where feasible, replace steps with ramps so persons in wheelchair or with walking aid can move with ease Corresponding key design principles: • Design safety measures to be as discreet Friendliness as possible • Make it easy for people to see where they are going • Create an environment – indoor and outdoor – that is easy for engagement and safe to navigate Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 50 51 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Noise levels & other external stimulations As dementia progresses, the brain may struggle with processing different sounds, Contents smells and sights. Support to minimise confusion and uncertainty can help persons with dementia live well and independently. What you can do: 1. Make an environment comfortable by being mindful of its size, sounds, sights and smells Tip: Large stores can consider creating small sections to limit the number Foreword of people to help persons with dementia feel more at ease, and where possible, engage persons with dementia in a quiet and private meeting area instead of an open meeting space 2. Reduce visual and aural clutter, such as unnecessary noise, signs, posters, advertising and merchandise Tip: Remove unnecessary standee or point-of-sale display Rationale and consider replacing loud music with soothing and relaxing Contact us tunes DEMENTIA SINGAPORE 3. Provide adequate visual cues at eye level to help them know info@ where they are and what they can do in your store dementia .org.sg Tip: Help them recognise your business or store by Framework highlighting the entry or using distinctive finishes. Remember that people with dementia feel most comfortable in familiar surroundings Corresponding key design principles: • Design the scale of the environment to maximise comfort Awareness and security • Minimise unhelpful stimuli • Optimise helpful stimuli • Design components of the environment to be as familiar as possible Friendliness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 52 53 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Seating & resting areas Contents Persons with dementia need to be able to choose to be on their own or with others. What you can do: Foreword 1. Ensure there are enough seats, especially in waiting areas 2. Ensure the seats are sturdy, made of common materials, with appropriate height (e.g. not too low), complete with back and arm rests 3. Colours of the seats should contrast with the floor and walls Rationale so that they are prominent Contact us 4. Seats should be obvious and do not look like part of decor DEMENTIA 5. Public spaces are designed with opportunities for persons SINGAPORE with dementia to participate in or observe activities of info@ dementia interest .org.sg 6. Set aside a space or room so that there is a choice for the Framework person with dementia to withdraw from the larger areas and crowd to be on their own, or in a smaller place with fewer people Corresponding key design principles: Awareness • Create options for people to be alone or with different numbers of people • Design components of the environment to be as familiar as possible • Optimise helpful stimuli Friendliness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 54 55 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Toilets Having enough well-designed toilets can help persons with dementia maintain their independence and dignity in personal care. Contents What you can do: 8. Clearly label taps and soap dispensers 1. Have clear entrance and exit signs, use 9. Use non-reflective surfaces common symbols and contrasting colours 10. Ensure there is adequate lighting in the to differentiate between toilets for males toilets Foreword and females 11. Ensure contrast between fixtures and 2. Access to toilets should be prominent fittings, doors and surroundings from as many viewpoints as possible 12. Have a user-activated alarm system in cubicles for emergency assistance. Ensure 3. Provide unisex disability toilets. that the alarm system is clearly visible, Avoid using the handicap sign to easy to use and accessible to the user Rationale empower even persons with hidden Contact us disabilities to use them Corresponding key design principles: DEMENTIA 4. Disability toilets should be big • Design components of the environment to SINGAPORE enough to accommodate a be as familiar as possible info@ dementia wheelchair .org.sg • Optimise helpful stimuli 5. Install grab rails in colours that Framework contrast with the walls and floor 6. Toilet seat should be in a colour that contrasts with the toilet bowl and floor 7. Use common or automatic flush Awareness systems Friendliness Inclusiveness
JOURNEY FROM AWARENESS TO INCLUSIVENESS 56 57 BUSINESS TOOLKIT FOR A DEMENTIA-INCLUSIVE SINGAPORE Signage Good, enabling signage can benefit the well-being of persons with dementia, guiding them to their destination or providing Contents them with cues to complete a task. What you can do: 1. Ensure entrance, exit and helpdesk signs are clean, clear, well-lit and easily identified, both near and from a distance 2. Ensure the glass doors are clearly marked Foreword 3. Provide clear and simple signage with appropriate symbols and large font against contrasting background (e.g. black text against a yellow background) 4. Use simple wording and sentence case instead of everything in uppercase 5. Fix signs at eye level and key decision points – this is Rationale especially helpful for someone who is there for the first time Contact us Tip: Older people tend to lower their gaze, so it is DEMENTIA recommended that your signage be placed slightly lower SINGAPORE info@ than normal, at about 1.2-1.4 metres from the floor dementia .org.sg 6. Fix signs on doors – instead of adjacent walls – to Framework indicate where they lead to 7. Install recognisable images or cues to assist persons with dementia to complete any task (e.g. how to operate the tap and soap dispenser in the toilet) 8. Display posters on dementia to remind others to be kind and offer help when needed Awareness Corresponding key design principles: • Make it easy for people to see where they are going • Optimise helpful stimuli • Create an environment – indoor and outdoor – that is Friendliness easy for engagement and safe to navigate • Design components of the environment to be as familiar as possible Inclusiveness
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