Addiction Strategic Plan - March 2016 - Erie St Clair LHIN
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Table of Contents INTRODUCTION 4 Addiction Strategic Plan Aims 5 Objectives 5 Report Format 5 1. Magnitude of the Problem 6 2. Provincial Landscape and Erie St. Clair IHSP 4 20 2.1. Ontario’s Mental Health and Addiction Leadership Advisory Council 22 2.2. Erie St. Clair LHIN Integrated Health Service Plan 4: Priorities 23 3. Engagement - Listening to Our People 24 3.1. Survey and Focus Group Findings 25 3.2. Overarching Themes 27 3.2.1. Access 27 3.2.2. Wait Times 28 3.2.3. Treatment Options 29 4. Current and Future State 30 4.1. Current State 30 4.1.1. Withdrawal Management Services 31 4.1.2. Addiction Assessment and Referral, and Counselling 32 4.1.3. Residential Problem Gambling Services (PGS) 34 4.1.4. Residential Treatment 35 4.1.5. Smoking Cessation Treatment in Addiction Agencies 37 4.1.6. Methadone Maintenance Treatment 38 4.2. Tiered Model of Care 39 4.3. Erie St. Clair Addiction Vision, Principles, and Core Services 40 4.4. Future State Discussion 41 2
5. Recommendations 44 5.1. Coordinated Access, Wait Times, and Enhanced Treatment 45 5.2. Alignment of the Addictions Strategy and Mental Health Framework 45 5.3. Special Population Group Recommendations 45 5.3.1. Youth/Emerging Adults 45 5.3.2. Complex Needs 46 5.3.3. Equity 46 5.4. Performance Reporting and Quality 47 5.5. Addictions and Primary Care 47 5.6. Methadone Maintenance Treatment and Harm Reduction 47 6. Next Steps 48 3
INTRODUCTION The Erie St. Clair Local Health Integration Network (ESC LHIN) has identified improving outcomes for people with mental health and addictions as a strategic priority in its Integrated Health Services Plans (IHSP) 3 and 4. As part of this direction, a mental health strategic plan was developed in 2012, followed by a multi-year implementation framework in 2013. During the mental health planning process, key stakeholders and the ESC LHIN determined that a similar planning approach would be required for the addiction sector. The rationale for not initially combining the two sectors relates to the overarching need to fully understand the complexity and different challenges of each population group, service structures, and funding distribution. In fiscal year 2014-2015, the ESC LHIN embarked on a comprehensive addiction plan for the region. Planning was guided by an Addiction Advisory Committee comprised of senior leaders from the hospital and community addiction sectors. Advisory members represent a broad range of services including:1 Residential and community-based withdrawal management Residential treatment – drug and alcohol dependency (adults and youth age 16+) Residential treatment – family members’ co-dependency Residential treatment and community-based counselling - problem gambling Community-based counselling – youth, individuals, and families Addiction assessment and referral Day programs Relapse prevention Recovery support/after care Concurrent disorders (mental illness and addictions) case management Residential and outreach for addicted pregnant women/new mothers Supportive housing Early on in the planning process, the ESC LHIN and its Addiction Advisory Committee members acknowledged that not all population groups, services, sectors, and/or treatment approaches such as prevention, primary care, and methadone maintenance are represented on the committee. In response, the members recommended gathering information through a 1 See Appendix 1: Erie St. Clair LHIN Addiction Advisory Committee Membership. 4
comprehensive and inclusive engagement process as well as a phased planning approach given the complexity of the review. Throughout the process, the Addiction Advisory Committee members provided invaluable insight, validation, and guidance. Addiction Strategic Plan Aims Creating a vision and guiding principles Improving access to ensure a seamless experience for the client Increasing treatment options, utilization, and program retention by matching client needs to services Reducing repeat emergency department visits within 30 days for substance misuse Reducing hospital admission and readmissions related to substance misuse Increasing coordination and integration between addiction and mental health sectors Decreasing wait times for addiction services Focusing on the client, including family members, to ensure positive experiences and clinical outcomes Objectives A community engagement process to inform system improvements Analysis of prevalence rates and projected future population needs Analysis of current addiction services including wait times, gaps, and capacity/resource pressures Adoption of a health-equity lens focusing on unique population needs, regional disparities, and challenges Development of a high-level service inventory Redesign of the addiction treatment system based on key findings from the current state analysis, engagement findings, and evidence-based models of care Recommendations and rationales for proposed system changes Report Format This Addictions Strategic Plan is divided into five main sections with further information provided in the appendices. Section One: Magnitude of the problem Section Two: Contextual alignment with provincial mental health and addiction foundational pillars and the ESC LHIN IHSP 4 priorities Section Three: Engagement themes and key findings Section Four: Selected addiction services, the future vision, and care model Section Five: Recommendations and next steps 5
1. Magnitude of the Problem The burden of addictions and mental illness in Ontario is conservatively estimated as being more than 1.5 times that of all cancers and more than seven times of all infectious diseases.2 The nine health conditions identified in the 2012 Opening Eyes, Opening Minds: The Ontario Burden of Mental Illness and Addictions Report contributed to a loss of more than 600,000 health-adjusted life years. Five of these conditions have the highest impact: depression, bipolar disorder, alcohol dependency, social phobia, and schizophrenia. Depression alone accounts for more than the combined burden of lung, colorectal, breast, and prostate cancers. Alcohol related disorders account for 88 per cent of all deaths caused by addictions. As well, prolonged use of alcohol is associated with a number of chronic long-term medical conditions including cirrhosis of the liver. Between 1991 and 2007, the number of prescriptions in Ontario for oxycodone drugs increased by almost 900 per cent. In 2012, Ontario had the highest rate of prescription narcotic use in Canada.3 Prescription narcotics are often over-prescribed and increasingly recognized as one of the primary forms of illicit drug use. The estimated social, economic, and health costs for Ontario resulting from untreated opioid use exceeds $1 billion annually, including costs associated with law enforcement and use of the criminal justice system, as well as lost productivity due to morbidity and premature mortality. The high burden of mental illness and addictions directly relates to the emergence of these conditions early in life, their prolonged duration, and relatively high prevalence. For example, the onset of mental illness and addictions typically coincide with adolescence. The Mental Health Commission of Canada defined this life stage as “emerging adults”, also referred to as “transitional aged youth” between the ages of 16 to 25. This period of life is characterized by significant intellectual, social, psychological, and neurological growth and development, as well as major transitions; e.g., school completion, entry into the labour force, and establishing long- term relationships. Disruption due to addiction during this critical developmental transition creates significant personal and social costs. Addictions and mental illness are chronic and recurrent, meaning people often experience repeated episodes over many decades. This is exacerbated when no treatment is provided. The Ministry of Health and Long Term Care (MOHLTC) found that nearly one-third of all Ontarians seeking addiction and mental health care reported their needs were unmet or partially met. It 2Opening Eyes, Opening Minds: The Ontario Burden of Mental Illness and Addictions Report. 2012, Institute of Clinical Evaluation Sciences, Public Health Ontario. 3 Ontario’s Narcotics Strategy. Available at: http://www.health.gov.on.ca/en/public/programs/drugs/ons. 6
also found that people with addiction and mental health conditions are typically high-users (top five per cent) of the health care system.4 The magnitude of the problem is illustrated best through the following statistics: One in five Ontarians will experience a mental illness or addiction issue in their lifetimes Three to five per cent of Ontarians have a very serious and complex addiction that they will have to cope with throughout their lives Three to five per cent of the population will have a problem with gambling. Problem gamblers tend to be in the 35–54 age range. The literature is showing that young men (between the ages of 18 and 24) are at the highest risk of developing problems gambling, yet they are not accessing services5 One in six Ontario high school students meet the criteria for problematic substance use. Within this cohort, only 1.2 per cent received treatment. This translates to 123,000 students not getting the help that they needed.6 The Ontario Student Drug Use and Health Survey found that one in six students in Grades 7 to 12, approximately 159,000 students, engaged in harmful drinking Concurrent disorders refer to individuals with a mental health diagnosis as well as a dependency on substances. Nearly four in 10 (37 per cent) of people with an alcohol abuse disorder and more than one-half (53 per cent) of those with a substance abuse disorder will have a mental health disorder at some point in their lives, with the proportions differing by disorder type in their lifetime: o 24 per cent of those with anxiety disorder will have a substance use disorder o 27 per cent of those with major depression will have a substance use disorder o 56 per cent of those with bipolar disorder will have a substance use disorder o 47 per cent of those with schizophrenia will have a substance use disorder The prevalence rate for having an eating disorder and substance use problems ranges from six per cent to 23 per cent, with bulimia nervosa having the highest rate In 2014, the MOHLTC identified the “combined” prevalence of mental health and addiction disorders in Ontario as 16 per cent. At the same time, the ESC region prevalence rate was 18.2 per cent, which translates to 118,667 people 4 Opening Eyes, Opening Minds: The Ontario Burden of Mental Illness and Addictions Report.. 2012, Institute of Clinical Evaluation Sciences, Public Health Ontario. 5“Strategic Options for Addictions, Mental Health and Problem Gambling.” 2009, MOHLTC. Mental Health and Addictions Unit, Health Policy and Standards Branch. 6 “2013 Ontario Student Drug Survey.” Centre for Addiction and Mental Health. 7
Unfortunately, prevalence data alone is not a good indicator of need because the numbers do not capture the acuity level associated with either addiction and/or the mental health conditions. However, there is sufficient evidence showing a high proportion of people have a co-existing mental health and addiction (MH&A) issue. The literature repeatedly stresses that, in the absence of a coordinated and integrated treatment system, people are falling between the cracks of the mental-health and addiction sectors. Health Canada suggests that having two separate care systems produces less than optimal outcomes for people with co-existing conditions, resulting in clients feeling stigmatized, facing the additional burden of dealing with two systems, telling and re-telling their stories, requiring additional transportation, and undergoing two separate treatment plans.7 Conversely, Dr. Brian Rush, a recognized leader in Ontario’s addiction system, raised warning flags about an uncritical approach to integrating MH&A services. Based on understanding help- seeking behavior exhibited by people with concurrent disorders, Rush suggests that the more important issue is not integration of addiction and mental health systems, rather, the integration of addictions and mental health treatment with primary care services is required. A more integrated system should be organized in a way that recognizes the two sectors as valid: many people served will only receive mental health oriented help (because that is all they need and want) and many will only receive addiction-oriented help (because that is all they need and want).8 Improving linkages between sectors is not restricted to MH&A. Other sectors such as primary care, child welfare, housing, social services, and justice are equally important when serving vulnerable population groups. One strategy to achieve positive, cross-sectorial outcomes is through enhancing clinical core competencies, ensuring front-line clinicians are trained as “concurrent-disordered capable.” Another tactic is to create cross-sectorial education, care pathways, and partnerships. For instance, a 2011 report on violence against women, mental health issues, and substance abuse found that one in three women experienced violence at some point in their adult lives. Furthermore, one-third of women accessing domestic violence services reported problematic substance use. An Ontario-based study concluded 40 per cent of mental health and 37 per cent of addiction service providers reported fair or poor competence levels when addressing client trauma and violence.9 In sum, the burden and impact of mental health conditions and addictions on the lives of individuals, family members, and society as a whole, directly and indirectly, is un- measurable. 7 The Time is Now: A Plan for Enhancing Community-based Mental Health and Addiction Services in the South West LHIN. Whaley and Company. 2011. 8 The Time is Now: A Plan for Enhancing Community-based Mental Health and Addiction Services in the South West LHIN. Whaley and Company. 2011. 9 Report on Violence against Women, Mental Health and Substance Use. Canadian Women’s Foundation. 2011 8
1.1. Addiction Sector Funding The Mental Health Commission of Canada estimates the annual cost of mental health and addictions to be at least $50 billion, representing 2.8 per cent of the gross domestic product (GDP). In fiscal year 2013-2014, total provincial funding for community MH&A sectors combined was $1 billion representing approximately two per cent of Ontario’s overall health care expenditures.10 A further analysis provided by the Mental Health and Addictions Leadership Advisory Council (2015 annual report) identified that nearly two-thirds of the $1 billion ($634.1 million) went to mental health treatment. Spending for addiction care was $129.6 million or 13 per cent, while problem gambling care was $11.7 million or 1.2 per cent.11 In fiscal year 2014-2015, the ESC LHIN proportion of community health care funds allocated to the addiction sector was $10.2 million or one per cent of its total budget. Figure 1 shows the ESC LHIN funding by sector. Figure 1: ESC LHIN Funding by Sectors, Base and One-Time, 2014-2015 Fiscal Year 10 MOHLTC Data Branch, January 2015. 11 Better Mental Health Means Better Health. 2015 Annual Report of Ontario’s Mental Health & Addictions Leadership Advisory Council. 9
Over the past three years, the ESC LHIN has increased addiction sector spending by 9.8 per cent. While program-level investments have begun, the addiction sector remains underfunded and is oftentimes referred to as the “poor cousin” of the health care system. At the federal level, the Mental Health Commission recommends increasing the proportion of health spending for mental health and addictions by nine per cent over 10 years.12 1.2. Prevalence Rates, Help Seeking, and Projected Population Needs This section examines various prevalence rates for specific substances, help seeking trends, and population projections of those in need of addiction treatment compared to actual utilization of services, and wait times in the ESC LHIN. Additional key indicators include: emergency department (ED) repeat visits, opioid-related ED visits, hospitalizations, and deaths. The 2012 Canadian Community Health Survey self-reported rate for heavy drinking among Erie St. Clair residents aged 12 and older in the past 12 months is 17.9 per cent compared to 16.9 per cent for Ontario as a whole. The definition of “heavy drinking” is five or more drinks on one occasion at least once a month in the past year. Table 1 shows higher drinking rates for Chatham-Kent males and Sarnia/Lambton females compared to Ontario. Table 1: Heavy Drinking Rates, ESC LHIN, Gender Comparison to Ontario, Ages 12+13 Windsor/Essex Chatham-Kent Sarnia/Lambton ESC Total Ontario Males Females Males Females Males Females Males Females Males Females 24.2% 9.6% 28.9% 9.6% 25.7% 15.0% 25.3% 10.7% 24.4% 9.4% Similar findings are reflected in the Centre for Addiction and Mental Health (2013) report: Drug Use among Ontario Students, 1977-2013 with 28.7 per cent of ESC students (Grade 9 – 12) reporting binge drinking in the past month compared to 25.4 per cent for the province overall. Alcohol use as a substance of choice has wide ranging implications with problematic behaviours such as inability to fulfill work/school obligations, difficulties with interpersonal relationships, drinking and driving, and other risk-taking activities leading to lower lifeexpectancy rates. The most cost-effective strategy in response to early-stage alcohol problems is a single session of advice from a primary care physician with follow-up from a nurse. The 2011-2012 Canadian Community Health Survey self-reported rate for smoking for individuals aged 12 and older in the past 12 months in ESC is 15.6% compared to Ontario at 14.4%.14 Table 2 shows that individuals in Chatham-Kent and Sarnia/Lambton have higher daily smoking rates compared to Ontario. 12 Changing Directions, Changing Lives: The Mental Health Strategy for Canada. Mental Health Commission of Canada. 2012. 13 Canadian Community Health Survey 2011/2012 Statistics Canada. 14 Canadian Community Health Survey, Statistics Canada, 2011/2012 10
Table 2: Smoking Rate, ESC LHIN, Gender Comparison to Ontario, Ages 12+ Windsor/Essex Chatham-Kent Sarnia/Lambton ESC Total Ontario Males Females Males Females Males Females Males Females Males Females 15.4% 9.3% 19.9% 21.9% 24.1% 18.9% 17.9% 13.4% 17.2% 11.7% Research has shown that individuals diagnosed with a substance use disorder or a psychiatric disorder are two - four times more likely to use tobacco than the general population. More addiction treatment clients will die from diseases related to tobacco use than from all other causes combined.15 Erie St. Clair student use of opioid pain relievers, was reported as 11.2 per cent, and cannabis, 25.7 per cent, slightly lower than Ontario, at 13.5 per cent and 29.2 per cent respectively. Anecdotal information indicates that both substances are commonly used and are a community concern. Cannabis use within the last year (including one-time use) in Ontario was 11.5 per cent of the population; in ESC LHIN, it was 9.3 per cent in 2011-2012. Cannabis use within the last year excluding one-time use, is 10.8 per cent provincially and 8.7 per cent in the ESC LHIN. Any illicit drug used ever (including one time cannabis) in Ontario is 40.8 per cent and 37.4 per cent in the ESC LHIN.16 1.3. Help Seeking Trends In the 2014-2015 fiscal year, 2,283 residents of ESC LHIN contacted ConnexOntario telephone help lines seeking assistance. The types of calls are grouped into three categories: 82 (3.6 per cent) problem gambling 888 (or 38.9 per cent) drug and alcohol 1,313 (or 57.5 per cent) seeking help for mental health concerns Figure 2 illustrates that the top three substances for which ESC LHIN residents were seeking addiction treatment remained relatively consistent over two fiscal years, led by alcohol and then cannabis, followed by prescription opioids.17 15 Lasser, K., et al. (2000, Nov). Smoking and Mental Illness: A Population-Based Prevalence Study. The Journal of the American Medical Association, 284 (20(, 2602-2610. 16 Canadian Community Health Survey, Statistics Canada, 2011/2012 17Drug and Alcohol Treatment Information System is a province-wide client-information system that receives reports from addiction agencies throughout Ontario. 11
Figure 2: Percentage of Addiction Clients, Fiscal Years 2013-2014 and 2014-2015, by Presenting Problem Substances Figure 3 shows just over half of all Erie St. Clair residents remained within our region for treatment. The remaining proportion are served throughout Ontario. Addiction providers and ConnexOntario validated this trend as long standing and not unsual given the sensitivity and stigma associated with seeking addiction treatment.18 Figure 3: Percentage of Erie St. Clair Residents Referred for Addiction Treatment to Other LHIN Locations, Fiscal Year 2014-2015 18ConnexOntario is a government funded provincial telephone hotline providing free and confidential health service information regarding drug, alcohol, problem gambling and mental health services available in each LHIN region throughout Ontario. 12
1.4. Projected Population in Need of Addiction Treatment in Erie St. Clair Region Predictive modelling is based on a prevalence rate that 13 per cent of a given population will have a substance use issue. Within the 13 per cent, it is assumed that 20 per cent of those require immediate treatment.19 Table 3 illustrates that in fiscal year 2013-2014, 16,094 people in the Erie St. Clair region would have benefited from addiction treatment. Table 3: Total Population by Geographical Area by Prevalence Rate and Predicted Need Addiction Population, Prevalence rate: Predicted Population in Area 2011 Census 13% of A = Need of Treatment (A) (B) (B x 20% = C) Windsor/Essex 388,785 50,542 10,108 Chatham-Kent 104,080 13,530 2,706 Sarnia/Lambton 126,190 16,405 3,280 Total Erie St. Clair 619,055 80,477 16,094 During this same time period, 8,042 individuals received addiction treatment. This translates to approximately one-half of all potential clients needing treatment actually received services. The literature shows similar outcomes—the World Health Organization estimates 50 per cent to 65 per cent of individuals requiring addiction or mental health services actually receive them. There are various reasons for unmet need in Erie St. Clair that are discussed in greater detail in the engagement section of this report. 1.5. Emergency Department Repeat (within 30 days) Visits for Substance Abuse Another method of assessing need is by examining ED repeat visits. Across the province, all 14 LHINs are measured and ranked by ED visits (within 30 days) for mental health conditions and substance use. While overlap among MH&A conditions is recognized, these indicators are interpreted as a measure of unmet needs as well as: 1) Lack of available treatment options 2) Lack of coordination/collaboration between hospitals and community providers 3) Cohort of treatment resistant and difficult to engage individuals Figure 4 illustrates that for ED repeat visits, ESC LHIN ranked eighth in the province in fiscal year 2014-2015. It is noteworthy that significant variances occur on a quarterly basis and by county as shown in the following Figures. 19 Centre for Addiction & Mental Health, B. Rush (1990). Urbanoski et al (2007) Wild et al (2014) 13
Figure 4: LHIN Ranking, Repeat ED Visits (within 30 days) for Substance Abuse, 2014-2015 Fiscal Year The Windsor area repeat ED visit volumes consistently are the highest in our region (Figure 5a). The ESC Transitional Stability Centre (TSC), designed to provide support for high ED users suffering from mental health or addiction issues, is anticipated to have a positive and long- lasting impact once the model is fully implemented. Figure 5a: Windsor/Essex ED Repeat Visits for Substance Abuse, 2011 – 2015 14
As shown in Figure 5b, ED repeat volumes vary significantly in the county and generally are quite low. Please note, visits less than 5 will appear as zero. Figure 5b: Leamington District Memorial Hospital ED Repeat Visits for Substance Abuse, 2011 – 2015 Improvements in ED (repeat) visits within 30 days for Chatham-Kent (Figure 6a) are attributed to: Vertical integration with Canadian Mental Health Association Lambton-Kent (2013-2014) and Chatham-Kent Community Health Centre (CHC) in 2015-2016 Flagging high MH&A ED users, signalling a clinical team wrap-around consult. From a primary care lens, high ED users with co-existing MH&A conditions without a family physician may be referred to Health Links Existing primary care practices in Chatham-Kent and Sarnia/Lambton are referring patients who present with substance use issues to the Rapid Assessment Intervention Treatment (RAIT) Team. This team is multi-discipinary and mobile, providing consulation in the client’s home within 72 hours. The RAIT team was funded by the ESC LHIN as a promising practice in 2014-2015. While the initatiave is still growing, data demonstates postive impacts overall on ED utilization as well as on fostering a shared-care relationship between primary care and MH&A health service providers 15
Figure 6a: Chatham-Kent ED Repeat Visits for Substance Abuse, 2011 – 2015 As shown in Figure 6b, ED visits and repeat visits are lower compared to Figure 6a, generating what appears to be a higher percentage of repeat visits. Expressed differently, a small cohort of individuals are responsible for driving the repeat visits at the Sydenham Campus. This indicates an opportunity for Health Links to positively impact this metric. Figure 6b: Chatham-Kent Health Alliance, Sydenham Site ED Repeat Visits for Substance Abuse, 2011 – 2015 16
Improvements in Sarnia/Lambton (Figure 9) are associated with the implementation of a community-based withdrawal management service (WMS). Prior to this investment, residents from Sarnia/Lambton in need of WMS had no choice but to access services located in Windsor or London. From a process perspective, a redesign of the addiction and mental health crisis response at the Bluewater Health ED is credited for lowering repeat visits for adults. Figure 7a: Sarnia/Lambton ED Repeat Visits for Substance Abuse, 2011 – 2015 As shown in Figure 7b, ED repeat volumes vary significantly in the county and generally are quite low. Please note, visits less than 5 will appear as zero. Figure 7b: Bluewater Health CEEH Site ED Repeat Visits for Substance Abuse, 2011 – 2015 17
1.6. Opioid Related ED Visits, Hospitalizations, and Deaths In February 2012, the MOHLTC discontinued the formula of the narcotic Oxycontin, changing it to Oxyneo. As a means of tracking geographic and system impact, the MOHLTC partnered with the 14 LHINs and public health units. Key findings related to ED visits and hospital admissions remained consistent with a slight increase beginning in the summer of 2012. Increases in “other” types of substance misuse such as fentanyl, hydro-morphine, and heroin were noted. During the summer of 2015, the three Public Health Units located in the ESC region analyzed the year-over-year rate of opioid-related ED visits, hospital admissions, and deaths over a 10- year time span. Key findings are presented below. 1.6.1. Windsor/Essex ED Visits and Hospitalizations Related to Opioid Use20 From 2003 to 2013, the rate of opioid-related ED visits increased steadily in Windsor/Essex as well as in Ontario as a whole. By 2013, Windsor/Essex males recorded nearly twice the number of visits (118.9 per 100,000) as Ontario males overall (67.2 per 100,000). For Windsor/Essex females, the rate was 74 per 100,000 compared to 52 per 100,000 for the entire provincial female population. The Windsor Essex County Health Unit conducted an age analysis showing in 2013 Windsor/Essex residents aged 20 – 44 had 199.6 ED visits per 100,000 people, almost double the 105.9 rate for Ontarians in this age cohort. The next age category, 45 – 64, also demonstrated higher usage in Windsor/Essex, 82.7 per 100,000, compared to 53.7 for Ontario A similar trend surfaced for Windsor/Essex residents admitted to hospital in 2013 for opioid- related conditions, with higher rates for the 45 – 64 age group, 21.8 per 100,000, compared to 14.5 for Ontario. Windsor/Essex females in 2013 had 50 per cent higher opioid-related ED rates at 18.7 compared to all Ontario females at 12.3 per 100,000. Windsor/Essex males were also higher opioid-related ED users than their provincial counterparts with 16.6 and 12.3 respectively 1.6.2. Sarnia/Lambton: ED Visits and Hospitalizations Related to Opioid Use21 In 2003 and 2004, there were fewer than 40 opioid-related ED visits in Sarnia/Lambton. By 2011 and 2013, Sarnia/Lambton residents aged 20 – 29 were three times more likely than their provincial counterparts to visit the ED for an opioid-related issue. Opioid-related ED visits by age group for Sarnia/Lambton are as follows: 20 – 29 (201); 30 – 39 (90); 40 – 49 20 Opioid Misuse in Windsor-Essex County. August 2015 Windsor-Essex County Health Unit Data source National Ambulatory Care Reporting System and Discharge Abstract Database. ICD 10 CA codes F110 - 119. 21Health Indicator Summary: Opioid Misuse. August 2015. Lambton Health Unit. Data source National Ambulatory Care Reporting System and Discharge Abstract Database. ICD 10 CA codes F110 – 119and T402 (poisoning by other opioids). 18
(72) and the very young, aged 10 – 19, (54). Sarnia/Lambton males were more likely than females to visit the ED with opioid-related conditions The average number of opioid-related hospital admissions among Sarnia/Lambton residents nearly tripled from seven per year between 2002 and 2009 to 19 annually between 2010 and 2013. Between 2011 and 2013, the rate of admission was slightly higher for Sarnia/Lambton at 15.2 per 100,000 versus 12 per 100,000 for Ontario 1.6.3. Chatham-Kent ED Visits and Hospitalizations Related to Opioid Use22 From 2004 to 2013, the rates of Chatham-Kent opioid-related ED visits more than doubled, from 59 to 138 per 100,000. Rates were higher among males than females. In 2013, males had an opioid-related ED visit rate nearly three times higher than their provincial counterparts. Analysis by age shows visits among 20 – 29 year olds accounted for nearly half of all Chatham-Kent opioid-related ED visits from 2012 to 2014, with 500 per 100,000. Rates were significantly higher for Chatham-Kent males and females aged 30 – 39 compared to Ontario. However, the number of admission rate for Chatham-Kent was surprisingly comparable to Ontario at 12 per 100,000. 1.6.4. Deaths Due to Acute Opioid Toxicity by County and Ontario23 Table 4 shows the number of deaths due to opioid toxicity in Windsor/Essex, Sarnia/Lambton, and Ontario. Chatham-Kent Public Health analysis did not include a year by year breakdown, and is therefore not included in the chart below. Table 4: Number of Opioid-Toxicity Deaths, Windsor/Essex, Sarnia/Lambton, and Ontario Region 2007 2008 2009 2010 2011 2012 2013 Total Windsor/ 15 14 19 20 30 28 33 159 Essex Sarnia/
Appendix 2 provides county specific, clinical profiles of high users of the ED for substance abuse. 2. Provincial Landscape and Erie St. Clair IHSP 4 In 2011, the provincial government announced a comprehensive 10-year MH&A strategy, focusing the first three years on children and youth. Years four through 10 will focus on adults and addictions. As a framework, all future MH&A funding must align with the following five pillar categories: 1. Promote Resiliency and Well-Being in Ontarians: Expand resiliency programs for at-risk youth, peer support populations, opioid initiatives 2. Ensure Early Identification and Intervention: Linkages with primary care, target youth, and concurrent disorders 3. Expand Housing, Employment Supports, and Diversion and Transitions From the Justice System: Examples include housing, police/crisis, social rehabilitation and safe beds 4. Right Service, Right Time, Right Place: Strengthen service enhancements. Invest in services for transitional-age youth, e.g. ACCESS Open Minds. Invest in local high-needs, complex population groups 5. Fund Based on Need and Quality: The MOHLTC and LHINs will develop and deliver a new funding model that links population needs, quality improvements, and integration to service delivery In 2015, the MOHLTC reviewed the 14 LHINs MH&A base investments for the past two fiscal years based on the above five pillar categories. The analysis revealed Pillar 4 as receiving the largest proportion (22 per cent) of allocations, specifically service delivery enhancements. It was followed by housing at 20 per cent and mobile crisis - police supports at 12 per cent. Comparatively, enhancing existing service capacity is consistent with the ESC LHIN MH&A investment approach for the past three years. As a sector, MH&A is underfunded—enhancing capacity has been a necessary priority for all LHINs. 20
Coupled with the above analysis, five areas were identified as “missed opportunities”: 1. MH&A promotion as a core service in the continuum 2. Supports for youth at risk 3. Workplace wellness 4. Literacy for MH&A 5. Population health approach, targeting groups most at risk; e.g., Indigenous people 24 The 14 LHINs met in the fall of 2015 to determine cross-LHIN opportunities with the greatest potential for advancing the five strategic pillars. Three objectives, listed below, surfaced with concrete actions and examples of current LHIN initiatives. For ESC, the Fast Access to Community Experts (FACE) initiative, RAIT Team, TSC, and transitional housing for women and children are cited. Table 5: Mental Health and Addiction Leadership Council Objectives OBJECTIVE 1 Ensure accessible and appropriate primary care for those experiencing MH&A conditions Actions: 1. Ensure that people with MH&A conditions can access a primary care provider 2. Support primary care providers in early identification and intervention 3. Integration of MH&A into primary care reform strategies Current LHIN Initiatives: MH&A primary care services and day programs, RAIT, Quick Response Treatment Programs, Early Psychosis Intervention Programs, MH&A Nurses in Schools, crisis withdrawal management/stabilization programs, community mobilization/connectivity tables OBJECTIVE 2 Ensure better coordinated, centralized, and integrated access points for MH&A services Actions: 1. Decrease wait times for MH&A assessment, counselling, and intervention 2. Ensure coordination for people who require services in multiple streams Current LHIN Initiatives: 24/7 coordinated access programs, telemedicine services, FACE, coordinated access points for supportive housing, integrated eating disorders program, after- care programs 24 Forthe purpose of succinctness, reference to Indigenous communities is intended to be inclusive of First Nations, Métis, Inuit, and urban populations. It is recognized that each group has a distinct culture, ceremonies, protocols, language, and community structures. The use of the term Indigenous for the above groups does not imply or denigrate the distinct characteristics, needs, or challenges of each group. Throughout the document, these terms are used interchangeably, including Aboriginal, as this is the wording used in the original source documents. 21
Objective 3 Ensure availability of supportive housing options for key populations Actions: 1. Increase volume of flexible services for people residing in supportive housing units Current LHIN Initiatives: TSC, Extraordinary Needs Program, rent supplement programs, transitional housing for women and children, high-support housing for complex groups/low barriers, Housing First Intensive Case Management Models Key enablers to support the three objectives include: Common basket of services Consistent data capture systems and tools Partnerships and inter-ministerial relationships In addition, measurements were reviewed, including identifying future potential metrics in partnership with Health Quality Ontario (HQO) and the Institute for Clinical Evaluative Sciences (ICES). Existing measures: MOHLTC-LHIN Performance Agreement: Repeat ED visits (within 30 days) for mental health and substance abuse conditions Historical: number of clients seen, units of service (visits) Future potential measures: Average number of days between referral application and initial assessment completed Average number of days between initial assessment completed and service initiation Doctor visit within seven days of hospital discharge for mental illness or an addiction (HQO) Readmission rates for mental illness or an addiction (HQO) Use of physical restraints in acute mental health care (HQO) Suicide rates (HQO) Perception of Care (client experience) Wait times 2.1. Ontario’s Mental Health and Addiction Leadership Advisory Council In November 2014, the MOHLTC Minister, Dr. Eric Hoskins, announced the creation of the Mental Health and Addictions Leadership Advisory Council supported by a secretariat. The Advisory Council’s five key deliverables include: 22
1. Strategic planning: System-level priority setting, problem identification, and work planning 2. Advice on Provincial investments: Government MH&A investments 3. Implementation of the Strategy: External oversight and accountability of key strategic initiatives 4. Tracking progress and public reporting: Annual progress reports (with ICES and HQO) 5. Advice on MH&A initiatives: Meaningful advice to government on MH&A issues/initiatives The Advisory Council is supported by five working groups: 1. Community Funding Reform 2. Youth Addiction 3. System Alignment and Capacity 4. Prevention, Promotion, and Early Intervention 5. Supportive Housing The Advisory Council’s 2015 Annual Report, Better Mental Health Means Better Health, states that, as a parallel process, the “Ministry of Health and Long-Term Care is working on a dedicated Aboriginal mental health and addictions engagement process with First Nations, urban Aboriginal, and Métis partners.”25 These engagements are intended to build on, support and create linkages with important work already underway across Ontario. By the end of 2016, Indigenous partners will have completed their locally designed engagement processes to identify where and how they can build on existing initiatives, what culturally appropriate services are needed, and what opportunities exist for enhanced cross-sector collaboration. The provincial landscape clearly demonstrates that people with MH&A are a priority. Nationally, Prime Minister Justin Trudeau named “emerging adults” as a priority population group. This commitment was solidified when he appointed himself Youth Minister. 2.2. Erie St. Clair LHIN Integrated Health Service Plan 4: Priorities In 2016, the ESC LHIN completed the IHSP 4. Coinciding with the IHSP development, the 14 LHIN Chief Executive Officers developed a foundational framework for improving the health care system. 25 Better Mental Health Means Better Health 2015. Annual Report of Ontario’s Mental Health & Addictions Leadership Advisory Council. 23
Table 6: LHIN CEO Overarching Pillars and ESC LHIN IHSP Priorities LHIN CEO Overarching Pillars Erie St. Clair LHIN IHSP: Priorities Transform the patient experience through a Better access to health care relentless focus on quality Build and foster integrated networks of care Better coordination of services Tackle health inequities by focusing on More support for people at home population health Drive innovative and sustainable service More focus on health promotion and illness delivery prevention More cost-effective care Over and over, across all LHINs, the themes of better access, coordination/integration, and measurable quality care and health equity are consistently echoed. 3. Engagement - Listening to Our People The purpose of the addiction engagement process was to gain a better understanding about needs, gaps, and barriers to accessing services, as well as tangible suggestions on how the system could be improved. Guiding questions included: 1. From your perspective, what is positive about addiction services in our region? 2. What are the gaps or issues, and how should these be addressed to improve services? 3. How well does the screening and assessment system work? 4. What would reduce wait times? 5. From your experience, what services are important to support family members? 6. Do you have any other advice to help improve the addiction system in the ESC LHIN? The engagement occurred over a one year period and included consultation with existing networks, committees, and leadership tables. Table 7 provides a high-level snap shot of engagement activities. 24
Table 7: Engagement Activities Snap Shot Approach Description Surveys 2,500 hard copies were distributed with a response rate of 455 or (hard copies and online) 18.2%. An additional 217 responses from the online survey made for a total of 672 or a 26.8% overall response rate. Focus Groups 250 individuals provided feedback through focus groups and And Interviews with interviews on: Subject Matter Experts Unique population groups’ barriers in accessing and receiving See Appendix 3 treatment; e.g., language, culture, distance/transportation Needs, gaps, and recommendations for improvement Numerous individuals with lived experience (clients and family members) stepped forward throughout the engagement process sharing their personal stories, struggles, and successes Health Service Provider 31 service providers from across the region: Addiction Planning Day Identified geographical gaps, needs and barriers See Appendix 4 Identified areas that are working well by county Confirmed key assumptions and rationales for system change Critically reviewed data collection methods and reporting Provided support for adopting a tiered model of care 3.1. Survey and Focus Group Findings The addiction survey was designed to gather and separate information by specific cohorts, including individuals who self-identified as someone with lived experience, family member, and service providers, and as Francophone or Indigenous. Due to the sensitive nature of addictions an electronic survey was posted on the ESC LHIN web site. Availability of the survey was communicated through addiction providers, the media, and the ESC LHIN Communications Team. More than 900 people provided feedback through surveys, focus groups, and key informant interviews. Table 8 highlights the demographics of the survey respondents. 25
Table 8: Survey Respondents Demographic Highlights Urban Rural Windsor/ Chatham- Sarnia/ Francophones Indigenous Essex Kent Lambton 59% 32% 33% 30% 33.% 45 individuals 65 individuals Note: Not all respondents answered these questions, therefore the totals do not equal 100% The survey respondents, urban/rural and by county percentage, align well with Erie St. Clair region population distribution. Unfortunately, the small sample size who self-identified as being Francophone or Indigenous cannot be deemed as representative of two unique population groups. Table 9 shows the age range of the survey respondents. Table 9: Age Range of Survey Respondents 24 and younger 25- 4 35-44 45-54 55-64 65 and older 66 180 153 134 88 32 Note: Due to incomplete fields, responses do not total 672. A significant number of respondents did not complete the age field resulting in the young and older adults sample size being very small. Table 10 shows the composition of survey respondents. Table 10: Composition of Survey Respondents Response Total = 508 Percentage Sought treatment 310 46.13 % Family member of a person with addiction 116 17.26 % Service provider 72 10.71 % Person seeking treatment 67 9.97 % Friend of a person with an addiction 36 5.36 % Note: Due to incomplete fields, responses do not total 672 Appendix 5 provides summaries from the survey. Table 11 shows the types of focus groups by number of participants. 26
Table 11: Focus Group Types Focus Groups Number of Participants N=250 Addiction Front Line Health Service Providers (LHIN wide) 31 Youth/Regional Children’s Centre 40 Harm-Reduction Providers and Methadone Clients 26 Alcoholics Anonymous (AA) 25 Family Members 33 Francophone (clients and family members) 17 Primary Care / Methadone Physicians / Psychiatrists 27 Police, Drug Court, Probation 10 Problem Gambling Providers 14 Ontario Works Addiction Providers, Affordable Housing Providers 27 and Clients 3.2. Overarching Themes The majority of feedback, regardless of methodology, came from people with lived experiences, service providers, and family members. Three overarching themes emerged: 1. Access into the addiction system is the single greatest challenge 2. Wait times are a barrier 3. Lack of treatment options result in significant gaps in the addiction continuum of care 3.2.1. Access Inability to navigate and access the addiction system is “Assessment and referral does the greatest issue. Lack of awareness among service not work, it is broken and providers, family physicians, psychiatrists, and the contributes to system general public about the existence of an entry point, bottlenecks, wait times and namely addiction assessment and referral services, unnecessary redundancy” – was overwhelmingly consistent throughout the region. Service provider The majority (46 per cent) of survey respondents with lived experience contacted a residential treatment program directly, followed by 33 per cent who approached their family doctor/nurse practitioner, and 23 per cent who went directly to hospital. Other responses included: police, employee assistance program, homeless shelter, Alcoholics Anonymous (AA), Narcotics Anonymous (NA), Detox, local Health Unit, ConnexOntario, Canadian Mental Health Association, methadone clinics, and family counsellors.26 26 Respondents were able to choose more than one option, therefore totals do not equal 100 per cent. 27
Across Ontario, addiction assessment and referral (A&R) originated as a standardized program that functions as the formal point of entry. A&R includes matching client needs to specific and available treatment services throughout Ontario. The literature stresses effective treatment outcomes are predicated on how well services are received and how reflective they are of individual client needs. From the service provider planning day, dissatisfaction was expressed with the time period between withdrawal management and being assessed and matched for treatment as a critical window of opportunity. “Persons coming out of Detox Coupled with access, the undercurrent theme of stigma should be given immediate was raised at every engagement. Public education, options – abstinence/ awareness, and prevention while not funded by the methadone / suboxone / LHINs, were expressed as critical components that go residential / community hand-in-hand with the front end of the system. Similarly, counselling” –Physician greater collaboration, coordination, and overall partnership across sectors were noted as tactical strategies to address stigma and promotion of an entry point into the addiction system. Transitions between service sectors are problematic with no clear pathways. Lack of transportation is another challenge, intertwined with access. This issue was particularly striking for Indigenous community members and rural residents who expressed being unable to attend peer support groups such as AA, Methadone Anonymous (MA), and NA. Similarly, lack of childcare restricted access for many women. As well, language and cultural challenges coincide with access barriers for various disadvantaged population groups. 3.2.2. Wait Times Wait times vary across services and the ESC LHIN. “Need more options with People waiting for treatment ranged from waiting for shorter wait times and assessment and referral, residential treatment, or answers. We were desperate. counselling in the community. Unacceptable wait times When an addict says they are and lack of options are intertwined. Repeatedly, willing to get help, being told dissatisfaction and urgency to fix the system were two months wait is verbalized throughout the engagement process. unacceptable” – Mother Overwhelmingly, people are frustrated with waiting for a There must be some connection between services....provide service for a condition that is life threatening. The lack bridge support, case of safety nets between service points was articulated management, or system well by Erie St. Clair addiction service providers. navigation” – Service provider 28
Examples of specialized addiction services not available in the Erie St. Clair region include those for: Males 16 and older prescribed methadone and requesting residential treatment Youth under the age of 16 seeking residential treatment (harm reduction or complete abstinence) Most individuals with complex neurobehavioural conditions such as fetal alcohol syndrome, acquired brain injury (ABI) and addictions, dual diagnosis27 and addictions, and/or borderline personality disorders High-risk, unstable polysubstance users who require medically supervised, Level 3 withdrawal management Wait times were not expressed as a barrier for individuals accessing methadone treatment. Consultation with physicians in Windsor/Essex specializing in addictions expressed that there are two systems and rarely are individuals referred from A&R. Conversely, in the other two communities within the Erie St. Clair region, methadone is included as a treatment option and communicated to clients by A&R providers. Clearly, a consistent approach throughout the Erie St. Clair region is needed with respect to A&R and drug replacement therapy. The engagement process illuminated that peer support such as AA, NA, MA, and Al-Anon do not have wait times and are underutilized as a viable treatment option that functions in partnership alongside the formal addiction service system. An example of the formal addiction treatment system and self-help coming together is the creation of Mothers on Methadone, a grass-roots group that was initiated by the Bluewater Methadone Clinic clients in partnership with Bluewater Health. Examples of other treatment services in Erie St. Clair with minimal to no wait times include counselling for problem gambling, residential treatment provided by Brentwood Recovery Home, after-care support groups provided by Westover Treatment Centre, and the two WMS. 3.2.3. Treatment Options Lack of treatment options such as community-based “MAKE IT EASIER, FASTER & counselling available in the evening, weekends, or in a MORE TREATMENT OPTIONS!” day-program structure was echoed throughout the engagement process. Family members, spouses, and children impacted by addictions require greater support and treatment options as part of the continuum of care. Service providers indicated that people are referred, by default, to Residential Treatment by employee assistance programs (EAP) or A&R because flexible, 27 Dual Diagnosis refers to an individual having a developmental disability and psychiatric condition. 29
community counselling supports are not available. Lack of treatment options was cited for each of the following population groups: Culturally appropriate healing services for Indigenous People Treatment for Francophones in French Lesbian, Gay, Bi-sexual, Transgendered, Two-Spirited, and Queer (LGBTTQ) Shift Workers and white collar professionals - after hours flexibility Parents who require child care, including pregnant women Chronic alcoholics who are homeless or living in a precarious environment: explore low barrier, housing first – guided alcohol consumption program Older adults with different life experiences and co-existing medical/health conditions Complex neurological clients, also frequently referred to as the “hard to service” “Better hours for counselling services – I couldn’t get to an Youth/adults requiring harm-reduction counselling appointment because of Newcomers (see Appendix 6) working 10 hours a day / six People with concurrent disorders (mental illness days a week. Evening services and addictions) are greatly needed.” – Person People with chronic pain and addictions (current with lived experience services model is consultation-based) Appendix 3 provides engagement themes, including qualitative feedback. 4. Current and Future State Section Four provides a brief summary of selected addiction services, capacity, resources, wait times, and funding. It concludes with guiding principles, a vision statement, identification of core addiction services and a proposed high-level future state model. 4.1. Current State The scope of currently funded addiction treatment services includes structured and unstructured interventions or clinical modalities. This section profiles the following selected services: Withdrawal management services (residential and community) Assessment and referral, and community-based counselling Problem gambling, residential Methadone maintenance treatment Residential treatment services Smoking Cessation Appendix 7 provides a descriptive service inventory. 30
4.1.1. Withdrawal Management Services Withdrawal Management Services (WMS) help individuals through an acute phase of detoxification from alcohol and/or other substances. Withdrawal management can occur in a residential bedded service or in a community based orientation. Community-based WMS provides support for individuals who remain in their home or in a day program structure. In the ESC LHIN, a city of Windsor site offers residential (bedded) WMS, which is provided on a 24/7 basis for males and females age 16+ with 27 dedicated WMS beds of which seven beds are used for observation. Medical supports for this service include an addiction medicine certified physician (methadone) and access to a psychiatrist. Community-based WMS is not currently available in Windsor/Essex or Chatham-Kent. In the future, bedded residential services will be available in Sarnia/Lambton through a LHIN directed initiative. Currently, Bluewater Health, in Sarnia/Lambton provides guided community-based, WMS in the client’s home and in a day- program format. The evidence of literature reviews observe that many people can successfully withdraw from alcohol and drugs at home, without going to a bedded centre if they have the right supports. Establishment of community-based WMS as an option for Windsor/Essex and Chatham-Kent residents should be explored further as a more cost-effective, client-centred, responsive treatment option. Table 12 shows the 2014-2015 fiscal year data for both WMS programs in ESC LHIN.28 Table 12: Withdrawal Management Data, Erie St. Clair LHIN, 2014-2015 Fiscal Year Provider Total # of unique FTEs LHIN Cost Per Wait individuals Funding Client time served Hôtel-Dieu Grace 1,673 13 $1,086,335 $649 none Healthcare (residential) Bluewater Health 226 7.2 $667,629 $2,954 none (community and day programs) In fiscal year 2014-2015, 1,899 individuals were served. Of note, it is not unusual for cohorts of the population to access bedded WMS frequently. Given this observation, a deeper clinical analysis should be undertaken to better understand if other treatment options could serve this population “Programs need to go from group more effectively. Detox to treatment with NO lag time”- Person with Lived Funding for both WMS programs represents 17 per Experience cent of the total ESC LHIN addiction allocations. (See Figure 12.) 28 All service data was extracted from the 2015-2016 CAPS submission. 31
Residents of Chatham-Kent access bedded WMS in Windsor or outside the Erie St. Clair region in London (Centre of Hope). Regional transportation to access WMS is provided by Westover Treatment Centre. In fiscal year 2014-2015, 53 people from the ESC region were transported to WMS by 61 volunteers (Westover Alumni and self-help program). People access this service by calling Westover’s 24/7 help-line. In fiscal year 2014-2015, 920 calls were received (838 anonymous and 82 self-identified). Of interest, it is observed that, the transportation/phone help- line service is reported as community WMS encounters. This observation is a good example of how easily data quality and reporting discrepancies can occur resulting in misinterpretation (The issue exists because there is no Ministry reporting category that accurately matches transportation to access MH&A services). 4.1.2. Addiction Assessment and Referral, and Counselling Assessment and Referral (A&R) is conducted using standardized tools that measure the severity of the addiction and link individuals to appropriate services based on need. Referrals for addiction counselling, residential services including MMT, are initiated through A&R. Referrals are not restricted by LHIN borders (as shown in Figure 3). Services accurately matched with client needs result in greater treatment completion rates and better post-treatment outcomes. The literature stresses that as a point of entry, assessment and referral is a critical component within a high functioning, comprehensive continuum of care. Provincially, a new assessment and short screening tool (known as GAINs) has been introduced as a mandatory requirement for A&R. In the Erie St. Clair region, A&R are co-located with the WMS site in Windsor. In Chatham-Kent and Sarnia/Lambton, however, A&R is part of the broader counselling team. Until recently, A&R was statistical captured and reported separately from counselling treatment. This means that the number of individuals receiving an assessment and referral are now combined with the number of people receiving counselling. This observation is problematic given that one-half (49 per cent) of all Erie St. Clair residents seeking addiction assistance are ultimately referred for treatment in other LHINs, as shown in Figure 3. From a system perspective, the statistical bundling of these two services negatively impacts reporting, accountability, and most importantly, the ability to monitor true treatment capacity, access and effectiveness. Table 13 compares A&R separately vs. A&R combined with counselling data from fiscal years 2013-2014 and 2014-2015 as an illustration. Table 13: Assessment, Referral, and Counselling, Fiscal Years 2013-2014 and 2014-2015 13-14 Assessment and Referral 14-15 (MIS Quarterly Reports A&R and Counselling) Facility FTEs Individuals Budget FTEs Individuals Actual Served ($) Served ($) HDGH 2 452 118,994 2.7 751 238,236 CKHA 2 687 160,000 5.32 554 530,686 BWH 4.3 965 607,076 4 304 476,122 32
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