2018 Reconnect and Remember - Sahir House
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HIV – the facts Over 90% of people accessing HIV care have acquired HIV through sexual transmission The proportion of people accessing HIV care who acquired HIV through heterosexual sex is approximately the same as the proportion of people who acquired HIV through sex between men There has been an increase in those aged 55 and over being diagnosed Two in five people accessing HIV care are now aged 50 or over A total of 93,385 people, including 356 children aged under 15, received HIV care in 2017 The number of people accessing specialist care for HIV has steadily grown over the last decade. From 2008 to 2017, the number of people accessing HIV care increased by 54% Living with HIV In 2014, UNAIDS established the global 90-90-90 targets: 90% of people living with HIV are diagnosed 90% of those diagnosed are on HIV treatment 90% of those receiving treatment are virally suppressed (undetectable) Source: www.nat.org.uk This World AIDS Day, Liverpool announced it was joining the international HIV Fast-Track Cities programme. The announcement by Mayor of Liverpool Joe Anderson outlined a commitment to accelerate and scale-up support for people living with HIV and those most at risk within the city. Liverpool represents the latest UK city to sign up the Fast-Track Cities programme, following in the footsteps of Brighton, London and Manchester. The programme encourages cities across the globe to meet key goals that will help to end the HIV epidemic. These include achieving the UNAIDS 90-90-90 targets, increasing the utilisation of combination HIV prevention services, eradicating stigma and discrimination of those affected by HIV and establishing a common, web-based platform to support the real-time monitoring of progress. Liverpool 2018 Fast Track City Status Launch with Dr Jose M Zuniga, President of IAPAC: Dr Miriam Taegtmeyer, Professor Khoo, Dr Mark Lawton, Dr Zuniga, Cllr Paul Brant, Dr Sandra Davies, Tessa Willow - Sahir House CEO 2
Sahir House Over the past 3 decades Sahir House have been providing care, support and assistance to people living with HIV and their families, as well as delivering HIV prevention, testing and outreach, and raising public awareness of HIV in Merseyside. World AIDS Day (WAD) World AIDS Day is 1st December each year and 2018 marked the 30th anniversary. The campaign is an opportunity for people worldwide to unite in the fight against HIV stigma, show their support for people living with HIV and to commemorate people who have died. While significant scientific advances have been made over the last 30 years, people living with HIV continue to face stigma and discrimination as a result of ignorance about the nature of the condition. National HIV Testing Week (NHIVTW) National HIV testing Week is the week of 17th November 2018. NHIVTW raises awareness of the importance of HIV testing, as well as increasing opportunities to test – be it in clinical settings, in primary care or through community-based rapid testing. The ultimate goal is to increase regular HIV testing. Globally, an estimated 34 million people have the virus. Despite the virus only being identified in 1984, more than 35 million people have died of HIV or AIDS, making it one of the most destructive pandemics in history. Point of care test (POC test) A point of care test is a rapid HIV test, so rather than sending a blood sample to a laboratory, the test and the results can be delivered in a community setting, without specialised laboratory equipment. The sample taken is usually a finger-prick of blood and results are given at the time of the test. Merseyside World AIDS Day Planning Group Sahir House coordinates the Merseyside WAD Planning Group consisting of local health and social care professionals. It works collaboratively to organise and deliver the range of campaign activities that help increase awareness, access to testing and reduce the stigma. 30 years of World AIDS Day campaigns 3
Reconnect and Remember Sahir House is a member of the UK AIDS Memorial Quilt Conservation Partnership that preserves, displays and exhibits the UK AIDS quilts. It is a piece of international social history that tells the stories of those lost in the early days of the HIV and AIDS epidemic and helps to raise the profile of the quilts, their importance in our history and to restore and conserve the quilts for generations to come. In response to requests from the HIV community, bereaved family and friends, Sahir House successfully secured the exhibition of the quilts in Liverpool and planned displays for public viewing. Sahir House was successful in gaining an Awards for All Lottery grant to fund a World AIDS Day Reconnect and Remember Project. The project’s aim was to bring together people affected by HIV and associated communities and exhibit a selection of quilt panels. For the third time in 20 years, the UK AIDS Memorial Quilt was on display to the public in Liverpool, to commemorate the lives of those lost to the AIDS epidemic. See film footage here. The project was launched in the Museum of Liverpool with the Lighthouse quilt displayed and a selection of local quilt panels. The event brought together past panel makers to reconnect and remember those lost to HIV and look at issues faced then and now. AFTER 82 Film Showing Following the launch, Sahir House held a special screening of the film ‘AFTER 82’ with over 100 people attending. The film looks back using first-hand personal accounts from people affected and organisations that were, and still are, there to provide support. What makes this documentary unique is that for many, this is the first time they have ever spoken publicly about what happened in the early days of HIV and AIDS. Attending this screening was special guest Jonathan Blake, actor, activist and HIV positive for 36 years. Jonathon Blake with the Homotopia commissioned quilt 4
Quilt Exhibitions During the World AIDS Day campaign, three quilt exhibitions included: Liverpool Cathedral, footfall of 2280 people. St Brides Church open to the general public as well as groups held in the church such as The British Red Cross, Foodbank, Refugee Women Connect, in total reaching over 200 people. St Georges Hall, Liverpool open to the general public reaching approximately 250 visitors. All venues were free and accessible to the public. Quilts display at Liverpool Cathedral Quilts display at St Brides Church 5
Sahir House WAD and NHIVTW activities and promotion across Merseyside 23 HIV information stalls at community events, including five in colleges which targeted 100’s of young people with HIV information and opportunities to test 26 World AIDS Day displays in a variety of venues across Merseyside 15 information sessions delivered to a wide range of audiences including six young people’s settings, reaching approx. 400 individuals – see appendices World AIDS Day information packs circulated widely via e-mail and available on Sahir House website 15 online published articles – see appendices Advert in Homotopia brochure 2 radio interviews – BBC Radio Merseyside and Liverpool Community Radio 2 newspaper articles – Liverpool Echo and Wirral Globe 3 TV features on Made in Liverpool (local TV channel) highlighting experiences of individuals living with HIV, support services available and HIV testing available from the Liverpool HIV Specialist Community Nursing Team 1000’s of red ribbons disseminated The University of Liverpool’s Active Lab lighting up the red ribbon 2 HIV testing pop up clinics at Sahir House, offering instant results delivered by partners Armistead Centre and Liverpool HIV Specialist Community Nurses World AIDS Day Vigil attended by approx. 250 See full list of venues of all community engagement activities - see appendices Annual WAD window display at News from Nowhere, Bold Street, Liverpool University of Liverpool’s Learning Lab World AIDS Day Red Ribbon Light Up 7
Social media Sahir House uses Twitter, Facebook and the website to promote information and campaigns regarding World AIDS Day and National HIV Testing Week. Sahir House Twitter In the 3-month period Sahir House posted 116 tweets and gained 68 new followers. Sahir House Facebook As with Twitter and the Sahir House website, the organisation’s Facebook page demonstrated a significant increase with a maximum reach of 3391 on December 1st, World AIDS Day. Sahir House website Traffic doubled during November as more information was uploaded and viewed in the lead up to December 1st. Sahir House saw a younger audience visiting the website, due to working in partnership with local colleges and universities as sexual health information was widely promoted to student groups. Liverpool City Council promoting Fast Track City Status Launch Support from Museum of Liverpool for Reconnect and Remember Quilts Launch and After 82 Film Screening 8
Radio Merseyside Ngunan Adamu supported Know Your Status HIV testing message Homotopia commissioned a new World AIDS Day quilt Sahir House HIV awareness and stigma reduction training Staff training provides the opportunity to explore the impact of HIV and update on current thinking. The training increases confidence to promote HIV information, educate the wider public and signpost to testing services. The training also challenges discrimination and highlights the important Undetectable equals Untransmittable campaign message. All training courses include a positive speaker, who talk about their diagnosis, U = U, discrimination, medication and adherence, disclosure and importance of confidentiality. HIV awareness and stigma reduction training courses 2 x HIV training courses in Knowsley – HIV in GP settings and stigma reduction training course 1 x HIV training course in Wirral 1 x HIV training courses in Liverpool 9
Community fundraising World AIDS Day is a great opportunity to raise funds while raising awareness of HIV. This year Sahir House worked in partnership with a range of local businesses and groups to expand the reach of the campaign and successfully raised over £3000. The businesses and groups utilised a range of multimedia platforms to engage the public in their fundraising endeavours. Wirral Ways to Recovery G - Bar Mersey Bears Lovelocks Café World AIDS Day Monologues Due to an unfortunate incident at the World AIDS Day Vigil 2018, resulting in cancellation of the event on the night, the 30 years of World AIDS Day Monologues event was hosted at The Unity Theatre in March 2019 as a way to celebrate and commemorate World AIDS Day. Feedback was very positive and the WAD Planning Group will develop this in future. Many thanks to Serena Cavanagh and team for planning and delivering an excellent alternative event attended by 150 people. Thanks and acknowledgements All members of the Merseyside WAD Planning Group All commissioners, funders and donors who sponsored WAD and NHIVTW Liverpool Cathedral, St Brides Church, St Georges Hall, Museum of Liverpool, Homotopia, The Unity Theatre Sahir House Positive Speakers 10
Sahir House Patrons Sahir House Volunteers Friends and supporters of Sahir House To everyone who wears their red ribbon with pride, thanks for your continued support “Thank you to all the staff and volunteers at Sahir House for putting on and co-ordinating so many amazing events throughout HIV testing week and WAD and in the lead up. Without the enduring commitment there the average person on the street would only be drip-fed information re: HIV and through your engagement lots more people across Merseyside know a lot more, where to access information and support and HIV testing has increased. We know this as fact as young people have accessed YPAS, listened to a Sahir House staff member and had a HIV test within the following 2 weeks so Thank You!” Youth Worker, YPAS If you would like further information and find out more ways to get involved, please contact: Serena Cavanagh Health Promotion Lead Sahir House info@sahir.uk.com 2nd Floor, 151 Dale Street, Liverpool, L2 2AH 0151 237 3989 www.sahir.org.uk @sahirhouse Report compiled with thanks by Serena Cavanagh for the Merseyside WAD Planning Group. 11
Merseyside World AIDS Day Planning Group – summaries of events The Armistead Centre A free and confidential support, information and sexual health promotion service for the lesbian, gay, bisexual and trans (LGBT) community. Support for street based sex workers is provided by Mersey Care across Liverpool. Events Target group Location Information sessions students Liverpool John Moores University students Liverpool Community Colleges (2 sites) students Liverpool Institute for Performing Arts Employees Barclays Call Centre, Wavertree General public Royal Liverpool University Hospital Trust Information point LGBT+ clients Armistead Centre drop in Social media During National HIV testing week BBC Radio Merseyside filmed a HIV testing session at the Armistead Centre to show how simple and quick the procedure is. The film featured on its Facebook page, attracting almost 2,000 views. https://www.merseycare.nhs.uk/our-services/physical-health-services/armistead/ Sefton Sexual Health Service Providing free and confidential sexual health, testing, treatment and contraception across Sefton. Events Target group Location Information stalls x 2 NHS staff Southport and Ormskirk Hospital Trust Student debate x 1 Staff and students Hugh Baird College The Great HIV Debate had a team of experts for students to ask questions including Sefton GU Consultant, HIV specialist nurse, Renaissance Outreach and Sahir House. The Hugh Baird Great Debate GYRO Liverpool Providing a safe, comfortable space where young people who identify as lesbian, gay, bisexual, trans, questioning their sexuality or their gender identity (LGBT+) can get to know other young people. Pop-up HIV and STI testing available for first time at YPAS-GYRO thanks to partnership working with The Armistead Centre. GYRO staff were encouraged by the development of the provision of HIV testing for young people. Several young people took up the testing. Information sessions x 2 12 – 25 years olds 45 Young Persons Advisory Service Delivered training Trainee teachers 90 Liverpool John Moores University Information point 12 – 25 years olds 60 Young Persons Advisory Service 12
“We have been working hard to destigmatise HIV in GYRO, we need it to be an open forum to discuss matters that are very close to the hearts of Queer people. We explore the socio-political history to stigma and discrimination, linking it in with effects on mental health. We want all people to consider HIV testing and not just gay cis-men. By getting advocates, young people and more experienced people living with HIV into the group to speak to young people it does more help than giving them reams of information to read. This experiential learning is key for our service user engagement who always remember guest speakers more than they remember what we say as just allies. I think visibility in most areas of LGBTQ+ identity is a keystone in challenging discrimination. We also believe that we need to make the discussion around HIV more intersectional and inclusive of asylum/refugee/female/non-European identities to give a realistic picture. Also, young people tell us that the only education they get on HIV is through our groups, clearly the stigma re: HIV still exists strongly in education environments, the irony is not lost on young queer people. “ Chris Porter - Support Services Team Lead, GYRO, YPAS Liverpool Specialist HIV Community Nursing Team Events Target group Location Information sessions x 2 Students Liverpool City College Arts Centre and Liverpool City College LEX HIV testing pop up clinics Students Liverpool City College Arts Centre and Liverpool x2 City College LEX Brook Providing wellbeing and sexual health support for young people in Liverpool and Wirral Events Target group Location Information stalls x 4 Young people Wirral Metropolitan College, Birkenhead 6th Form College, Forum Housing Information sessions Schools Wirral Wirral Ways to Recovery Providing drug and alcohol services to clients across Wirral. Wirral Ways to Recovery hosted a week of HIV testing amongst clients and promoted WAD events and activities. Wirral Ways to Recovery HIV Testing Week campaign 13
Appendix 1 Sahir House HIV awareness information sessions Audience Agency Borough Young people The Prince’s Trust Liverpool Health science students University of Liverpool Liverpool Service users Big Life Company (drug & alcohol recovery) Liverpool LGBT young people GYRO Mersey wide Branch members Liverpool Unison Liverpool Global Health conference delegates Liverpool School of Tropical Medicine n/a Global health students Liverpool School of Tropical Medicine n/a Students North Liverpool Academy Sefton Students Hugh Baird College Sefton Volunteers Sahir House volunteering course Mersey wide Registered Managers Network Network of residential care services Wirral 2 x sessions LGBT staff network Liverpool Home Office Spectrum staff network Mersey wide 2 x student sessions Liverpool Community College Liverpool 14
Appendix 2 Links to published online articles 1 https://www.lcvs.org.uk/world-aids-day-national-hiv-testing-week-on-merseyside/ 2 http://www.divamag.co.uk/Diva-Magazine/Events-Calendar/Homotopia-2018-supports-World- AIDS-Day-with-a-special-new-arts-commission/ 3 https://www.rlbuht.nhs.uk/news/liverpool-commits-to-beating-hiv/ 4 https://www.wirralglobe.co.uk/news/17229523.wirral-residents-urged-to-raise-awareness-of- national-hiv-testing-week/ 5 https://news.liverpool.ac.uk/2018/11/30/30th-world-aids-day-liverpool-commits-to-beating-hiv/ 6 https://www.theguideliverpool.com/world-aids-day-liverpool-commits-to-beating-hiv/ 7 https://news.liverpool.ac.uk/2018/11/30/30th-world-aids-day-liverpool-commits-to-beating-hiv/ 8 http://www.homotopia.net/festival-item/world-aids-day/#.XFMlkPZ2sb4 9 https://www.liverpoolecho.co.uk/news/liverpool-news/pauls-story-reality-living-hiv-15478299 10 https://www.broadwayworld.com/uk-regional/article/Homotopia-Supports-World-Aids-Day- Milestone-With-Special-Arts-Commission-20181114 11 https://cmnh.lstmed.ac.uk/news-events/news/world-aids-day-2018-know-your-status 12 http://jmu-journalism.org.uk/aids-day-event-cut-short-after-accident/ 13 https://www.youtube.com/watch?time_continue=51&v=EcxxL-26RGY 14 http://www.liverpoolcathedral.org.uk/114/section.aspx/108/the_uk_aids_memorial_quilt_trail_liv erpool 15
Appendix 3 World AIDS Day activities 1 Venue / Organisation Target audience Borough Service users - drug & alcohol Liverpool 2 Big Life Company, Quaker Meeting House recovery health day 3 GYRO – Young Persons Advisory Service LGBT young people support groups Mersey wide 4 Students – health and wellbeing Mersey wide Liverpool Community Colleges x 2 days 5 Sahir House volunteering course Volunteers Mersey wide 6 Wirral Metropolitan college Students Wirral 7 Arrowe Park Hospital foyer general public Wirral 8 Knowsley college health day students Knowlsey 9 St Helens college health day students St Helens 10 all staff and visitors to building over Mersey wide LCVS foyer, 151 Dale Street 4 days 11 Liverpool Mental Health Consortium event general public Mersey wide 12 Homotopia festival event LGBT community Mersey wide 13 North Liverpool Academy students Liverpool 14 Royal Liverpool Hospital foyer general public Liverpool 15 Armistead Centre LGBT service users Liverpool 16 Wirral Ways to Recover drug and alcohol Wirral 17 YMCA Birkenhead homeless male adults Wirral 18 Liverpool Echo general public Mersey wide 19 Radio Merseyside general public Mersey wide 20 Wirral Globe free weekly paper Wirral residents Wirral 21 Homotopia festival LGBT community Mersey wide 22 Liverpool Community Radio Local web based radio Liverpool 23 News from Nowhere general public Liverpool 24 The Guide Liverpool general public Mersey wide 25 Liverpool Cathedral general public Mersey wide 26 general public and groups using Mersey wide St Brides venue 27 Liverpool Museum x 2 general public Mersey wide 28 Merseybears fundraising event @ city centre Mersey wide venue gay men 29 James Monro public House LGBT community Liverpool 30 G Bar, City Centre night club general public Mersey wide 31 Sahir House Vigil – final Quilt exhibition general public Mersey wide 32 Fast Track City Status Launch at St Georges Sexual Health workers Liverpool Hall 33 Lovelocks coffee shop general public Liverpool 34 Outpost music venue general public Liverpool 35 News from Nowhere bookshop, 2 week general public Liverpool window display End of report - SC 16
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