Texas Governor's Committee on People with Disabilities - 2020-2021 Biennium Policy Recommendations 86th Legislative Session February 2019 for
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Texas Governor’s Committee on People with Disabilities 2020-2021 Biennium Policy Recommendations for the 86th Legislative Session February 2019
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Table of Contents About the Texas Governor’s Committee on People with Disabilities ..................... 7 Mission ..................................................................................................... 7 Key Services.............................................................................................. 7 Executive Summary ...................................................................................... 8 Summary Policy Recommendations for 2020-2021 Biennium ............................ 11 Description of the Committee’s Ten Policy Issue Areas .................................... 19 Goals, Purposes, Challenges and Policy Recommendations ............................... 24 Access ....................................................................................................... 25 Service Animal Issues and Proposed Solutions .......................................... 26 Accessible Voting .................................................................................. 28 Communications ......................................................................................... 29 Support Service Providers ...................................................................... 30 Implement Oversight for State EIR Accessibility Compliance ....................... 31 Expanding Recorded Book Library Services to Texans with Disabilities ......... 32 Restore Funding of Resource Specialist Program to Eliminate Communication Barriers for Texans who are Deaf or Hard of Hearing ................................. 32 Education .................................................................................................. 34 Equal Access to Digital Learning Materials and Curriculum .......................... 36 Emergency Management ............................................................................. 36 Disability Coordinator FTE at TxDPS TDEM ................................................ 37 Helping Texans with Disabilities Prepare for Disasters ................................ 38 Responding to Behavioral Health Needs in Disasters .................................. 38 Next Generation 911 ............................................................................. 40 Health ....................................................................................................... 41 Establish Requirements for Certified Medical Interpreters ........................... 42 Early Detection of Hearing Loss ............................................................... 43 Increasing Funding for the Deaf Blind Multiply Disabled Medicaid Waiver Interest List.......................................................................................... 44 Attracting and Retaining Personal Care Attendants Covered by State Medicaid Waiver Programs................................................................................... 45 Eligibility Processes for the Medically Dependent Children Program .............. 46
Funding Sustainability for Early Childhood Intervention Services ................. 49 Responsible Closure of the Austin State Supported Living Center ................ 50 Housing ..................................................................................................... 52 Affordable and Accessible Housing Best Practices ...................................... 52 Recreation ................................................................................................. 53 Inclusive Playgrounds ............................................................................ 54 Transportation ............................................................................................ 55 Accessible Parking ................................................................................. 55 Communication Impediment with Peace Officer Initiative ........................... 58 Veterans .................................................................................................... 59 Monitoring, Sharing, Publishing Veterans-Related Information .................... 60 Workforce .................................................................................................. 60 Supported Employment Follow Along Services for Individuals with Intellectual and Developmental Disabilities ............................................................... 61 Policy Solutions for Building a Stronger, More Inclusive State Workforce ...... 63 ENDNOTES: ............................................................................................... 66
Texas Governor’s Committee on People with Disabilities P.O. Box 12428 Austin, Texas 78711 512-463-5739 512-434-0102 (VP) www.gov.texas.gov/disabilities Committee Members Aaron W. Bangor, Ph.D., Chairman, Austin Marco Treviño, Vice Chair, Edinburg Ellen Bauman, Joshua Evelyn Cano, Pharr Andrew Cohen, Austin Elizabeth M. Dickey, Austin Archer S. Hadley, Austin Richard Martinez, San Antonio Linda Millstone, Austi n Dylan Rafaty, Plano Emma Faye Rudkin, Boerne Amy Scott, Austin Staff Members Ron Lucey, Executive Director Randi Turner, Accessibility and Disability Rights Coordinator Nancy Van Loan, Executive Assistant 5
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About the Texas Governor’s Committee on People with Disabilities The Texas Governor’s Committee on Employment of the Handicap was created by Governor Allan Shivers in September 1950. The committee was continued by Governor Dolph Briscoe in 1978 through Executive Order DB- 40. Executive orders by Governor William P. Clements in 1981 (WPC-14A) and 1987 (WPC 87-16) and Governor Mark White in 1983 (MW-10) continued the committee, with Executive Order MW-10 changing the name to Governor’s Committee for Disabled Persons. In 1991, the committee was statutorily created and named the Texas Governor’s Committee on People with Disabilities (GCPD). GCPD works toward a state where people with disabilities have the opportunity to enjoy full and equal access to lives of independence, productivity and self-determination. The Governor appoints 12 members to serve on GCPD, seven of whom must be people with disabilities. Representatives from six state agencies serve as ex-officio or advisory members. GCPD makes recommendations to the Governor and the Texas Legislature on disability issues; promotes compliance with disability-related laws; promotes a network of local committees doing similar work; and recognizes employers for hiring and retaining employees with disabilities and media professionals and students for positively depicting Texans with disabilities. GCPD members and staff also provide technical assistance, information and referral services to citizens on issues affecting Texans with disabilities. Members of GCPD work on issues related to access, communication, education, emergency management, health, housing, recreation, transportation, veterans and workforce. GCPD’s enabling law is outlined in the Human Resources Code, Chapter 115. Mission GCPD’s mission is to further opportunities for persons with disabilities to enjoy full and equal access to lives of independence, productivity and self- determination. Key Services GCPD recommends changes in disability policies and programs in the areas of accessibility, communication, education, emergency management, health, housing, recreation, transportation, veterans and workforce. GCPD also supports a network of committees on people with disabilities, issues awards to promote greater awareness, and promotes compliance with disability- related laws. 7
Executive Summary The Texas Governor’s Committee on People with Disabilities (GCPD) submits this report to the Governor and to the 86th Texas Legislature on recommended changes in state laws relating to people with disabilities. This report offers guidance to the Governor and legislators on issues and challenges facing Texans with disabilities and GCPD’s recommendations to best address these challenges. Within this report GCPD provides information on goals, purposes, challenges and recommendations for each targeted policy or program issue area. GCPD believes that each recommendation should be actionable and promote access and equity toward lives of independence and self-determination for Texans with disabilities. To that end, GCPD offers recommendations that strive to address issues in a coordinated and comprehensive manner, leverage relevant partnerships to effectively take advantage of all available resources, and implement strategies that maximize performance outcomes for people with disabilities. Policy input was gathered from public hearings at GCPD’s quarterly meetings, listening sessions with disability stakeholder groups, and past staff research directed by legislation requiring an interim study on accessible parking. GCPD’s policy recommendations are organized into 10 primary issue areas related to access, communications, education, emergency management, health, housing, recreation, transportation, veterans, and workforce. These policy recommendations, with the support of all committee members, focus on vital issues important to Texans with disabilities, including: • providing affordable, appropriate and accessible housing; • ensuring accessible, affordable, reliable and safe transportation; • adjusting the physical and recreational environment for inclusiveness and accessibility; • increasing work, volunteer and education opportunities; • ensuring access to key health and support services; and • fostering participation in civic, cultural and social activities. Based upon stakeholder input and the needs of Texans with disabilities, some issue areas do not require any proposed changes to state law during this biennium. GCPD’s most significant policy work is contained in the communications and transportation issue areas and are provided through two supplemental reports posted on GCPD’s website. 8
GCPD’s past accessible parking study to the 85th Texas Legislature, A Review of Accessible Parking for Persons with Disabilities in Texas, remains relevant, offering examples of best practices for accessible parking enforcement and education. Another leading focus for GCPD has been improving access to effective communications for Texans who are deaf or hard of hearing. Several policy proposals were developed and researched at the request of members of deaf advocacy organizations, including the Texas Association for the Deaf and the Deaf Grass Roots Movement. GCPD’s issue areas include recommendations to address unserved or underserved members of the deaf community, including Texans who are deafblind and newborn children who failed a newborn hearing screening and are at greater risk for a developmental delay in language development. GCPD’s recommendations were informed by the experience of Texans with disabilities during Hurricane Harvey. These recommendations include creating a disability coordinator position at the Texas Division of Emergency Management, support for a proposal to implement next generation 911 services for advanced communication access technology, including high quality voice text and video communication to help deaf Texans to communicate in American Sign Language with 911 emergency call centers, and a larger role for Health and Human Services in helping Texans with disabilities prepare for disasters. GCPD strongly endorses our state’s investment in the establishment and funding of a support service provider (SSP) program to assist Texans who are deafblind who have significant challenges and lack any public program to assist them in accessing their community. The Helen Keller National Center has identified an estimated 2,500 Texans who are deafblind. Deafblindness is a disability in which a person not only has deafness, with their hearing impaired severely enough so that most speech cannot be understood with amplification, but who also has legal blindness. Significant and unique adaptations are often required for individuals who are deafblind to maintain their independence. The use of a SSP is critical to help Texans who are deafblind lead more independent lives. SSPs are specially trained professionals who enable people who are deafblind and who communicate with American Sign Language to access their environments and make informed decisions. They can also provide individuals who are deafblind with visual and environmental information and communication accessibility. Common tasks performed by an SSP include helping a person who is deafblind go shopping at the grocery store, read their mail or help them participate in a public meeting. GCPD published A Report on Support Service Providers (SSPs) that proposes the establishment of a state SSP program to meet the critical needs of Texans who are deafblind. 9
GCPD strives to identify and support the greatest unmet needs of Texans with disabilities that are often overlooked due to the low incidents rates of a specific disability population. In doing so, we encourage the State of Texas to invest in programs that will make the greatest impact in improving the lives of Texans with disabilities. Respectfully submitted, Ron Lucey Executive Director 10
Summary Policy Recommendations for 2020-2021 Biennium The Texas Governor’s Committee on People with Disabilities (GCPD) offers the following recommendations for the 2020-2021 biennium and the Texas 86th Legislature. ACCESS 1. Designate the Governor’s Committee on People with Disabilities with lead coordination responsibility among state agencies for the annual distribution of service animal education materials to public facilities and businesses operating within the State of Texas. 2. Clarify the difference in state law between the terms service animal and assistance animal in the HRC Sec. 121.002. Remove “approved” from the term “approved trainer” in the HRC Sec. 121.003(i) as the U.S. Department of Justice has confirmed that individuals may train their own service animal under the Americans with Disabilities Act (ADA)1 and no state agency is designated to approve service animal training. 3. Ensure effective training of law enforcement regarding service or assistance animals and legitimacy. 4. Increase the penalty of fraudulent representation of service or assistance animals and include additional penalty options such as community service and taking a court-ordered disability public awareness class. 5. Designate a state agency to work in collaboration to create public awareness training/classes (i.e., Texas Workforce Commission-Vocational Rehabilitation Services, Governor’s Committee on People with Disabilities) and support a robust public education campaign regarding service and assistance animals. 6. Ensure all necessary parts of the voting process from beginning to end are accessible to voters with disabilities, including the absentee and early voting process. COMMUNICATIONS 1. Establish a support service provider (SSP) program that includes training for SSPs so that services are provided in a standard and consistent manner. 2. Establish a pay rate for SSP services paid for by the state with a graded scale of wages similar to that of the Interpreter I, II and III career path. 11
3. Establish a voucher program to pay for SSP services. 4. Establish the funding source for the SSP program, noting any inherent obligations that may be associated with the source of funds (e.g. general revenues, etc.). 5. Set an initial proposed budget of $5.808 million for the SSP program. 6. Determine the fee for service in rule to facilitate future changes. 7. Designate a state agency to administer the SSP program. 8. Provide oversight for compliance with Texas Government Code 2054, Subchapter M, pertaining to accessibility requirements for electronic and information resources at state agencies, as well as state colleges and universities. 9. Authorize an appropriation for the Texas State Library’s Talking Book Program to use for paid advertising so that the Program will be more widely known and be of more benefit to people whose disabilities impede or preclude the use of printed materials and physical books. 10. Restore the Texas Health and Human Services’ Office of Deaf and Hard of Hearing Services (ODHHS) funding levels to Pre-Sunset, Pre-HHSC merger, levels resulting in the restoration of contracted Resources Specialists from 17 specialists to the pre-sunset level of 34 specialists. EDUCATION 1. Support the establishment of a volunteer Accessible Digital Curriculum and Learning Materials Advisory Committee to Texas Education Agency consisting of accessibility and education subject matter experts. EMERGENCY MANAGEMENT 1. Reclassify a vacant full-time employee (FTE) position or create a new FTE position within the Texas Division of Emergency Management to serve as the disability coordinator to coordinate emergency management activities for people with disabilities. 2. Encourage all state health and human service agencies providing services to Texans with disabilities to discuss emergency preparedness and evacuation planning. 3. Recommend the development of a Rapid Response Behavioral Health (BH) Task Force composed of mental health professionals who are trained in applied behavioral analysis and mental health treatment protocols, including but not limited to developmental disabilities (such as the autism spectrum), mental illness, and certain neurological disorders. 12
a. Taskforce members will advise the state on emergency response and recovery protocols for disaster survivors with behavioral health disabilities and be available for deployment as needed to augment local resources. b. Members of the proposed Behavioral Health Task Force shall have a prior background check and receive the necessary support for rapid deployment during an emergency so they may meet the needs of individuals with disabilities through rapid assessment and recommendation/assignment to the most appropriate response and recovery services based on identified behavioral health needs. c. A registry of Behavioral Health Task Force members should be maintained by the Texas Health and Human Services Commission (HHSC), the state agency most capable in identifying and screening candidates for this registry while coordinating its efforts with the Texas Division of Emergency Management. d. The roles of the Behavioral Health Task Force should include the evaluation and recommendation of planning and training to ensure behavioral health needs are addressed at local and state levels, assessing and modifying shelter environments as needed, including creating blue room sensory areas for individuals on the autism spectrum with lower tolerance levels for the conditions within general population shelters; providing crisis intervention (immediate and short-term psychological care) during an emergency situation to restore equilibrium to the biopsychosocial functioning of the individuals with disabilities; and consulting and coordinating shelter management. 4. Support continued migration from an analog, voice-centric 911 generation emergency communications systems to a 21st century Next Generation, IP- based emergency services model that embraces a wide range of voice, video, and data applications. HEALTH 1. Establish requirements for certified medical interpreters that are similar to those for certified court interpreters. 2. Increase the number of care coordinators for the Texas Early Detection and Hearing Intervention (TEDHI) program. 3. Increase the number of slots available to be served by the Deaf Blind Multiply Disabled (DBMD) waiver, 100 per year for the next four years. 13
4. Support increased community attendant care wages and benefits at a level necessary to attract and retain personal care attendants covered by state Medicaid waiver programs while facilitating consumer-directed care. 5. To ensure that the information captured on the STAR-Kids Screening Assessment Instrument (SK-SAI) is both accurate and complete, the beneficiary and his or her parents or guardians should be involved in completing and reviewing the assessment instrument together with the managed care organizations before it is submitted to Texas Medicaid Healthcare Partnership. 6. HHSC should require Texas Medicaid Healthcare Partnership (TMHP) to issue non-form letter denials that (1) provide specific reasons for the denial, including reasons why the beneficiary does not need the level of nursing care that would be provided in a nursing facility and why the individual beneficiary no longer meets medical necessity for Medically Dependent Children Program (MDCP); and (2) include the “specific regulations that support, or the change in federal or state law, that requires the action.” GCPD will monitor the modified process to assess the overall impact on the level of denials and appeals for MDCP eligibility. 7. HHSC should issue ascertainable standards (i.e., written guidance) on the meaning of the medical necessity criteria and train Texas Medicaid Healthcare Partnership (TMHP) reviewers on these standards. 8. HHSC should instruct Texas Medicaid Healthcare Partnership (TMHP) to follow the guidance on parents and guardians in assessing medical necessity. 9. HHSC should release all information, subject to any restrictions under state and federal law (such as HIPAA) related to how the STAR-Kids Screening Assessment Instrument (SK-SAI) was tested for inter-rater reliability and validity, and all statistics for the denial rate on renewals. 10. Support HHSC’s exceptional item request of $70.4 million to fund Early Childhood Intervention (ECI) programs for the 2020-2021 biennium. 11. Approve the Sunset Advisory Commission’s past recommendation to close the Austin State Supported Living Center (SSLC) within five years (by August 31, 2024). a). Establish a closure commission to evaluate the closure of the Austin SSLC and decide if additional SSLCs should also be closed. b). Establish individualized plans with residents, transitioning as many as possible to the community, respecting their choice through person centered planning. c). In consultation with the General Land Office, reassess land values for SSLC property, determine the highest and best use of the 14
properties, up to and including the sale of the property. Proceeds from any sale of property, and/or associated property tax revenues should be dedicated to funding supports and services for Texans with intellectual and developmental disabilities; investing more in those currently on waivers and provide waivers for those on the interest list. HOUSING 1. Promote adoption of accessible, affordable and transit-oriented housing in Texas communities through sharing of information on local visitability ordinances and best practices for the development of accessible single family homes and duplexes. 2. Promote greater understanding of fair housing laws through education and work with the Texas Workforce Commission’s Civil Rights Division related to housing discrimination complaints. 3. GCPD will study strategies and “solutions that work” from other states or local communities that have expanded community-based housing options for people with disabilities and ensures long-term housing affordability. RECREATION 1. GCPD shall promote through education and outreach existing grant funding for the installation of “inclusive” playground equipment, whether by means of new construction or through retrofit of an existing playground, so that it is ADA accessible and usable by children with disabilities. TRANSPORTATION 1. Strengthen enforcement of accessible parking laws as follows: a. Strengthen language in Texas Transportation Code, Title 7. Vehicles and Traffic, Subtitle H. Parking, Towing, and Storage of Vehicles - Chapter 681, Privileged Parking, Section 681.010 – Enforcement so that it is unequivocal in its mandate for all individuals with enforcement responsibilities to enforce accessible parking laws (i.e., change “may” to “shall” or “must”). b. Bolster language in enforcement responsibilities as they apply to accessible parking on private property or areas of public accommodation. 15
c. Reconsider judicial discretion to discourage frequent dismissal of accessible parking citations. d. Consider mandatory towing for vehicles illegally parked in accessible parking spaces and have the violator bear the costs for towing in addition to any fines incurred. 2. Control accessible parking placard fraud and abuse through tighter laws and administrative remedies, such as: a. coordinating the Department of Motor Vehicles, county tax assessor collectors, and the Department of State Health Services cross-checking of current disability placard holder lists against the state registry for death records and cancelling any placard for an individual identified as deceased and explore tracking of parking placards by the Department of Motor Vehicles with a unique identifier (Texas driver license or state identification number); b. requiring the surrender of handicapped parking tags and placards at the time of the estate tax deadline by the individual inheriting the vehicle; and c. enforcing accessible parking placard fraud and abuse by establishing a task force for placard abuse enforcement or designating a state agency to assign resources to enforce current laws. 3. Develop statewide public awareness on accessible parking and its impact on Texans with disabilities through public awareness campaigns. 4. Change the language in the Transportation Code from “Handicapped Parking” to “Accessible Parking” to align with the spirit of Texas Government Code, Chapter 392, Person First Respectful Language Initiative. 5. Improve accessibility for visitors and residents within the Capitol Complex area by installing sheltered accessible drop-off stations within the Capitol Complex perimeter. 6. Amend Transportation Code § 681.011 Offenses; Presumption to permit alternative sentencing, which includes: a. required education classes on disability awareness and accessible parking with a reduced fine upon completion of said education; and b. community service/restitution requirements at a nonprofit organization that serves persons with disabilities or disabling diseases or any other community restitution that may sensitize the violator to the needs and obstacles faced by persons with disabilities. 7. Redefine the van accessible requirements in the Texas Accessibility Standards (TAS) for medical facilities to increase the number of van accessible spaces at these locations. 16
8. Update the TAS through legislation or rulemaking by: a. painting the International Symbol of Accessibility in an accessible parking space if the space is paved; and b. painting the words “No Parking” in access aisles if the space is paved. 9. Include on accessible parking signs regulatory language that informs of: a. fines and penalties (e.g. $550–$1,100 fine); and b. consequences of illegal parking in accessible parking spaces (Violators will be towed). 10. Consider expanded statutory authority in Human Resources Code, Title 7, Chapter 115.009 to grant additional authority to GCPD to: a. provide education, training and assistance to law enforcement agencies on accessible parking enforcement; and b. work with other state agencies to provide public education and awareness on accessible parking issues and compliance with accessible parking laws. 11. Implement periodic audits by the Texas State Auditor’s Office of the disabled parking placard program to determine if statutory changes by the Legislature or changes in administration by the DMV may be needed that will allow for better detection and deterrence of the misuse of disabled placards and plates. Such audits will provide an impartial assessment of the effectiveness of program processes and procedures in place as well as an analysis of program revenues derived from parking meter and/or parking lot revenues (either lost or collected) that can impact the budgets of those jurisdictions sampled during the audit (please refer to recent audit reports from Massachusetts, California, Seattle, and San Francisco). 12. Recommend policy or legislation to have the Texas Department of Motor Vehicles and the Texas Department of Public Safety include “communication impediment with a peace officer” data for those individuals who wish to voluntarily disclose a disability within the TLETS data system. When including such voluntarily disclosed disability data, designated agencies shall ensure that (1) all law enforcement officers are trained on this data and its intended use following TLETS implementation and (2) all disability-related information associated with the information stored in the TLETS data system shall remain confidential and storage and use of such data shall adhere to medical confidentiality laws as applicable. 17
VETERANS 1. GCPD will monitor legislation that affects veterans with disabilities, publish information on any changes to such laws, policies or state programs on GCPD’s key laws webpage, and share relevant information with stakeholders. WORKFORCE 1. Ensure that at the point an individual with a disability is moved from a sheltered workshop environment to integrated community-based employment, the integrated employment will be appropriately funded to provide the necessary long-term support, to include job coaching, to safeguard and allow for a successful integrated community employment outcome. 2. Implement recommended best practices to strengthen disability-related accessibility and employment practices that can lead to increased hiring and retention of employees with disabilities as follows: a. State agencies should actively recruit qualified job applicants with disabilities. b. State agencies should partner with Texas Workforce Commission’s Vocational Rehabilitation program if job retention services are needed. c. State agencies should have a written reasonable accommodation policy and procedure that includes the interactive process. d. State agencies should pay for employee job accommodations from a centralized agency job accommodation fund for their employees. e. All State agencies should designate a Title II ADA Coordinator and comply with notice requirements. f. State agencies should ensure they have a process in place for handling general disability-related complaints and disability discrimination complaints. g. Develop and share common training resources on disability awareness, etiquette and effective communications in state government. 18
Description of the Committee’s Ten Policy Issue Areas The Governor’s Committee on People with Disabilities (GCPD) structures its work into ten broad issue areas: access, communication, education, emergency management, health, housing, recreation, transportation, veterans, and workforce. A description for each issue area is provided where GCPD works to help citizens across the state access the programs and services they need or seek solutions for those problems that are identified. Access State and federal laws strive to guarantee that people with disabilities can access the same locations and services as the general population. GCPD monitors issues related to physical accessibility of facilities as well as programmatic accessibility of those entities that fall under Title II of the Americans with Disabilities Act (ADA), covering state and local governments, as well as entities covered under Title III of the ADA, which applies to commercial facilities and business enterprises known as public accommodations. GCPD also looks at important sub-issues in this area, such as accessible voting, accessible parking and service animals. Key state and federal agencies that GCPD partners with include the Texas Department of Licensing and Regulation and the U.S. Department of Justice. Communications Communication brings people together. Enabling easier and more efficient communications has benefits in the workplace, social settings, and everyday life. In Texas, it is estimated that 357,574 people or 2.3 percent of the adult population have some form of hearing difficulty.2 Add to this the number of children (ages infant–19) with hearing loss (1.4 per 1,000 babies screened; 5 per 1,000 children ages 3–17 years on parent-reported hearing loss; and 14.9 percent of children ages 6–19 years based on cross-sectional survey, in-person interview and audiometric testing), and the population of Texans with some form of hearing impairment becomes significant. Effective communication must be provided, as necessary, to people with disabilities. This may occur when a person with a disability is applying for a job, attending a public meeting, speaking with his or her doctor or receiving an emergency alert. For these reasons and more, accessible communication and the assistive technologies and services that make such communication possible are of vital importance and impact all of GCPD’s issue areas. Communication areas that GCPD looks at include, but are not limited to, accessibility of websites, e-learning tools, emergency notifications and monitoring of new and emerging assistive technology devices. GCPD is also dedicated to promoting “People First language” which emphasizes the dignity of each person by putting the person before the disability in descriptive 19
language. Key state and federal agencies that GCPD partners with are the Texas Department of Information Resources, the Federal Communications Commission and the U.S. Access Board. Education Students with disabilities can face educational challenges from the moment they begin preschool through the day they sit for a professional licensing examination. GCPD supports inclusion and accommodation of people with disabilities at all ages and levels of the educational process. GCPD’s work in this area covers services provided under the Individuals with Disabilities Education Act (IDEA), including the special education process as administered by the Texas Education Agency; anti-discrimination under Section 504 of the Rehabilitation Act of 1973; and accessible educational technologies. The key state and federal agencies that GCPD partners with are the Texas Education Agency and the U.S. Department of Education. Emergency Management According to the Federal Emergency Management Agency (FEMA), since 1953, Texas has experienced more presidentially declared disasters than any other state.3 Hazards faced by Texans over the years have ranged from severe rains and catastrophic flooding from hurricanes and tornadoes, to icy winter storms and deadly freezes, to extreme droughts and devastating wildfires. GCPD covers all aspects of emergency management for Texans with disabilities, including planning for natural, man-made and public health- related disasters. GCPD plays an instrumental role in the Texas Disability Task Force on Emergency Management, a functional needs and support services advisory committee at the Texas Division of Emergency Management (TDEM). This interdisciplinary committee of experts continually updates comprehensive guidance on meeting the needs of the whole community, including citizens with functional and access needs, during all phases of an emergency. The key state and federal agencies that GCPD partners with are TDEM, the Texas Department of Public Safety, the Texas Health and Human Services Commission (HHSC), the Texas Department of State Health Services (DSHS), Federal Emergency Management Agency (FEMA) and the U.S. Department of Homeland Security. Health GCPD is dedicated to promoting health and wellness among Texans with disabilities, including those who face barriers to quality healthcare, whether attitudinal, communication, physical, policy, programmatic, social, financial, or transportation barriers. According to the United Cerebral Palsy’s 2016 Case for Inclusion annual report, which tracks state community living standards for individuals with intellectual and developmental disabilities, Texas ranked Nos. 50/51 (including Washington DC) in overall rankings for 20
2015 and 2016.4 With a growth rate of a quarter million people each year through domestic migrations and immigration5 and the aging of the Baby Boomers, so that 5.9 million or 19.4 percent of the state’s total population will be over 64 years of age in 20306, the demand for health care services in Texas will only increase. GCPD provides analysis and guidance on access to the health care system, including health insurance, public benefit programs such as Medicaid and Medicare, and physical accessibility to medical facilities and on-site medical equipment. GCPD studies and proposes strategies addressing mental health issues of individuals with psychiatric disabilities and provides resources and information in this area. GCPD favors solutions that allow Texans to age-in-place gracefully in their own homes or with their families so that more time can be spent independently in a familiar environment with the support of family and the local community. The key state and federal agencies that GCPD partners with are the Health and Human Services Commission (HHSC), Department of State Health Services (DSHS), the Texas Workforce Commission’s (TWC) Vocational Rehabilitation Services, the Texas Department of Aging and Disability Services and the Centers for Medicaid and Medicare Services. Housing Historically, people with disabilities were segregated and isolated from society as they were diverted to live in state-operated institutions or group homes. With the de-institutionalization movement in the 1960s, the birth of the disability rights movement in the 1970s, and shifts toward integration in the 80s and 90s7, culminating with the Olmstead decision in 1999 finding that unjustified institutionalization may constitute discrimination against individuals with disabilities, requirements for accessible housing were legislated for people with disabilities. Today, affordable, accessible housing allows Texans with disabilities to live independently within their local communities. GCPD promotes the availability of accessible housing, whether these homes are within a multi-family housing complex or are single family dwellings that lawfully comply with the Fair Housing Act and local visitability ordinances. GCPD provides information on housing antidiscrimination laws, home modifications, financial assistance for housing and tax credits and exemptions. The key state and federal agencies that GCPD partners with are the Texas Department of Housing and Community Affairs, TWC’s Civil Rights Office and the U.S. Department of Housing and Urban Development. Recreation Recreation provides a positive impact on the physical, mental, and social health of all Texans. GCPD supports accessible recreational opportunities for Texans with disabilities and provides information on physical access to recreational facilities, including parks, sports arenas, as well as arts and entertainment venues. GCPD applauds the involvement of people with 21
disabilities in recreational pursuits ranging from individual and team sport competitions to the performing and visual arts. The key state and federal agencies GCPD partners with are the Texas Parks and Wildlife Department and the U.S. Access Board. Also, independent organizations contracted by the U.S. Department of the Interior, such as the National Park Service and the National Center on Accessibility, provide consultation on accessible recreational opportunities. Transportation People with disabilities are more active in their communities than ever before as entrepreneurs, small business owners, employees, job seekers, advocates, volunteers and more. Thus, a reliable source of accessible transportation is needed so they can maintain full productivity and participate in the wide range of activities waiting for them every day. GCPD examines a variety of transportation issues, from accessible parking and paratransit services needed on a daily basis to business or recreational travel by airplane and ship. Key state and federal agency partners are the Texas Department of Transportation (TxDOT), the Texas Department of Motor Vehicles (TxDMV), Texas Department of Public Safety (TxDPS), the Federal Highway Administration, the U.S. Department of Transportation, the Federal Transit Administration, the Aviation Consumer Protection Division of the U.S. Department of Transportation and US Department of Justice (DOJ). In 2016, GCPD also partnered with DPS and the nonprofit organization Aspergers 101 on promoting the state’s “Driving with Autism” initiative in support of transportation independence and public safety for drivers with autism. Veterans According to the latest data provided by the Bureau of Labor Statistics8, Texas is home to over 1.74 million veterans. In general, about 20 percent of veterans have a service-connected disability9. Therefore, many Texas veterans living within our local communities have disabilities and require disability-related services. GCPD looks at all aspects of veteran services, including housing, medical care, benefits determination, employment, and health. The 82nd Legislature created the Texas Coordinating Council for Veterans Services to improve the coordination of services for Texas veterans, service members and their families. The key state and federal agencies that partner with GCPD are TWC Veterans Services, the Texas Veterans Commission and the U.S. Department of Veterans Affairs. Workforce As it was eloquently expressed in the Developmental Disabilities Assistance and Bill of Rights Act of 200010: “Disability is a natural part of the human experience that does not diminish the right of individuals with disabilities to 22
live independently, exert control and choice over their own lives, and to fully participate in and contribute to their communities through full integration and inclusion in the economic, political, social, cultural, and educational mainstream of United States society.” Texans with disabilities represent a valuable and skilled labor market that is sometimes overlooked by employers. GCPD supports compliance with Title I of the ADA, which prohibits discrimination against applicants for employment or employees with disabilities by covered entities. GCPD also supports innovative approaches to integrating people with disabilities into the workforce by reasonable accommodations, assistive technologies and trainings on best practices for both employers and employees. The key state and federal agencies that partner with the Committee are the Texas Workforce Commission (TWC), the Equal Employment Opportunity Commission (EEOC) and the U.S. Department of Labor, particularly the Office of Disability Employment Policy (ODEP). 23
Goals, Purposes, Challenges and Policy Recommendations for Policy Issue Areas: Access Communications Education Emergency Management Health Housing Recreation Transportation Veterans Workforce 24
Access GOAL Enhance participation of people with disabilities in Texas life through increased access. PURPOSE Federal and state laws contain standards for designing, building and maintaining structures and facilities in a manner that maximizes accessibility for people with disabilities. Just as local building codes contain minimum acceptable levels of requirements for safety and public health, the Americans with Disabilities Act Accessibility Guidelines and the Texas Accessibility Standards contain minimum acceptable levels for architectural and facility access requirements for people with disabilities. CHALLENGES Individuals with disabilities still face important barriers to access. There remains a continuing need for increased awareness of architectural or physical accessibility requirements. It is easy to assume that older facilities and accessible elements may be exempt from accessibility requirements because they are “grandfathered in.” However, this is not necessarily the case. For example, under Title III of the ADA, existing facilities are considered to be discriminating against individuals with disabilities when such facilities fail to remove architectural barriers when it is “readily achievable” to do so.11 Limited resources for enforcement of accessibility compliance are also an issue. Many times compliance concerns are identified by a complaint. When a private citizen files a complaint against a facility through the Texas Department of Licensing and Regulation or the U.S. Department of Justice, the system may be slow and inefficient as staff for these entities are spread thin and may be unable to conduct timely or full-fledged investigations of complaints. 25
POLICY RECOMMENDATIONS Service Animal Issues and Proposed Solutions The public is accustomed to routinely encountering service animals in various public places. However, state and federal laws and regulations regarding service animals and assistance animals are often misunderstood by businesses and members of the public. For example, the terms service animal, assistance animal, emotional support animal and comfort animal are often used interchangeably. Confusion may result from the context and setting of a service animal encounter and raise questions as to which laws apply to that particular encounter. GCPD regularly receives questions from businesses and individuals concerning service animals, such as how to distinguish between a service animal, an assistance animal, and a pet, whether an individual may bring an emotional support animal into a restaurant, and when it is proper for a business to eject a service animal. Certification and licensing for service animals are not required by law and only two questions can be asked of the service dog owner. However, when a disability is not obvious, the person with a disability may be challenged with inappropriate questions and even be asked to leave an establishment. Furthermore, there are concerns of public skepticism toward service animals more generally due to the ease with which an individual can purchase on the Internet dog vests and other accessories identifying an animal as a service animal. “Service dog vests” is a top-searched term on Google. Websites, including eBay and Amazon, offer for sale certificates, badges, ID cards, vests, leashes, collars, dog tags and other accessories that can be used to indicate any given dog is a “service dog,” and “emotional support dog,” or a “seizure alert dog” with absolutely no proof of an animal’s training or abilities. There are also online “registries” that will certify a pet dog as a “service dog” or “therapy dog” or “emotional support animal.” When these instances of fraud occur, they make it more difficult for someone with a genuine need for a service animal who is accompanied by a trained service animal to be acknowledged as using a legitimate and lawful accommodation or policy modification within a public setting. There are about 55 million people with disabilities in the U.S., but only 20,000 service dogs are in use. Concern is rising among service animal handlers about the ease with which people can claim any dog is a service dog. To help address a lack of public awareness about the rights of individuals with service animals and applicable laws the Texas Legislature enacted House Bill 489 (83rd Regular Session). This bill established a requirement in Human Resources Code 121.008(b) to provide for mailings of educational materials on service animals once a year to public facilities and businesses. To ensure this mandate is fulfilled, responsibility was assigned to a 26
cooperative effort between “state agencies responsible for the rehabilitation of persons with disabilities”12 and “[t]he comptroller, the secretary of state, and other state agencies that regularly mail forms or information to significant numbers of public facilities and businesses operating within the state.” Questions arose during the 85th Legislative Session about service and assistance animals and the use or misuse of those animals. A clearer definition of these types of animals in Texas statute particularly as it relates to housing will help better address these questions. In the housing context, the U.S. Department of Housing and Urban Development (HUD) and various courts have affirmed that housing providers must, as a reasonable accommodation, modify or make exceptions to a “no pets” policy for persons with disabilities who require service or assistance animals.13 HUD has stated that an assistance animal is “an animal that works, provides assistance, or performs tasks for the benefit of a person with a disability, or provides emotional support that alleviates one or more identified symptoms or effects of a person’s disability.”14 An animal that does not qualify as a service animal under the ADA may still qualify as an assistance animal under the Fair Housing Act (FHA).15 The Fair Housing Act does not place a limitation on what type of animal can be an emotional support animal. Texas Human Resources Code, Chapter 121 creates confusion by using the terms “service animal” and “assistance animal” interchangeably but limits the animal to a canine as follows: Section 121.002(1) “’Assistance animal’ and ‘service animal’ mean a canine that is specifically trained or equipped to help a person with a disability.…” A clarification of current statute may reduce the number of questions on this issue. Recommendation 1.1: Designate the Governor’s Committee on People with Disabilities with lead coordination responsibility among state agencies for the annual distribution of service animal education materials to public facilities and businesses operating within the State of Texas. Recommendation 1.2: Clarify the difference in state law between the terms service animal and assistance animal in the HRC Sec. 121.002. Remove “approved” from the term “approved trainer” in the HRC Sec. 121.003(i) as the U.S. Department of Justice has confirmed that individuals may train their own service animal under the Americans with Disabilities Act (ADA)16 and no state agency is designated to approve service animal training. Recommendation 1.3: Ensure effective training of law enforcement regarding service or assistance animals and legitimacy. 27
Recommendation 1.4: Increase the penalty of fraudulent representation of service or assistance animals and include additional penalty options such as community service and taking a court-ordered disability public awareness class. Recommendation 1.5: Designate a state agency to work in collaboration to create public awareness training/classes (i.e., Texas Workforce Commission- Vocational Rehabilitation Services, Governor’s Committee on People with Disabilities) and support a robust public education campaign regarding service and assistance animals. Accessible Voting As in many areas of life, the use of technology in voting is increasingly more common. Compliance with accessibility standards in voting machine technologies has resulted in a secret ballot for voters with disabilities who had previously not enjoyed this valued right. Stakeholders from local jurisdictions describe barriers to independently casting a secret ballot using an inaccessible paper absentee ballot form. The market place of elections systems has responded to the need for accessible absentee ballot and provided solutions to address the need for accessibility at all phases of the elections process. Additionally, in a Report to the 85th Legislature on Section 105.004 of the Texas Election Code Relating to a Program Allowing Certain Military Voters on Active Duty Overseas to Cast a Ballot Electronically the Secretary of State’s Elections Division demonstrated in a pilot program that it is possible to allow voters to cast an absentee independent secret ballot in a secure manner using an information technology solution. These same solutions that benefit overseas members of the military may also benefit many Texas voters with disabilities who have a need to vote absentee. As technology expands into other voting-related practices, the Texas Election Code should be updated to require that all aspects of voting - voter registration, early voting, absentee voting and Election Day voting - be secure and accessible to people with disabilities. Current Texas statute at ELEC § 61.01217 requires each polling place in a political subdivision to have at least one voting station that meets the requirements for accessibility, unless the political subdivision qualifies for one of the carve outs set out in § 61.013. Although § 61.01318 provides a process to request a reasonable accommodation with the early voting clerk of a county or political subdivision at least 21 days in advance of an election, the statute could be strengthened by narrowing such carve outs to promote the ability of people with disabilities to vote independently and without assistance on the day of election or during early voting periods. Only a 28
change in statute that strengthens obligations of political subdivisions to fulfill their responsibilities for accessibility at all stages of the election process will ensure full independence for people with disabilities who choose to exercise their right to vote. Recommendation 1.6: Ensure all necessary parts of the voting process from beginning to end are accessible to voters with disabilities, including the absentee and early voting process. Communications GOAL Increase communication access and improve public awareness about people with disabilities. PURPOSE The U.S. Department of Justice has indicated that the Americans with Disabilities Act (ADA) requires state and local governments to seek to effectively communicate with people with disabilities, meaning that “whatever is written or spoken must be as clear and understandable to people with disabilities as it is for people who do not have disabilities.”19 For people who have disabilities that affect hearing, seeing, speaking, reading, writing or understanding, this may require different ways of communicating with them so they have equal access to the workplace, public accommodations, goods and services, and facilities. CHALLENGES Providing effective communications with people with differing impairments and limitations can present challenges as the method for communication must be formatted to meet the particular needs of the individual. Ensuring that these differences in communication needs do not hinder, but rather enrich, two-way communication is the key to creating a society accessible for all of its members. Increasingly, information and communication technologies are playing a vital role in mediating these communication needs. It is critical that advances in technology enhance access through consideration of unique disability needs rather than function as yet another barrier to people with disabilities. 29
POLICY RECOMMENDATIONS Support Service Providers Several deaf advocacy groups approached GCPD to express their concerns on not being able to independently access the community due to a lack of support services for Texans who are deafblind. In response to concerns raised by these constituents, GCPD researched and prepared a report on the status of support service providers (SSPs) in Texas. Issues on SSP services for the deafblind community can crossover between communication and health. In this report, SSP services are addressed as a communication issue. After an extensive review on this profession in Texas and across the country, GCPD prepared seven recommendations for establishing a program that funds SSP services in Texas. The full Support Service Provider report20 and discussion on each recommendation can be found on GCPD’s website. However, policy recommendations were extracted from the SSP report and are provided as follows: Recommendation 2.1: Establish a support service provider (SSP) program that includes training for SSPs so that services are provided in a standard and consistent manner. Recommendation 2.2: Establish a pay rate for support service provider (SSP) services paid for by the state with a graded scale of wages similar to that of the Interpreter I, II and III career path. Recommendation 2.3: Establish a voucher program to pay for support service provider (SSP) services. Recommendation 2.4: Establish the funding source for the support service provider (SSP) program, noting any inherent obligations that may be associated with the source of funds (e.g. general revenues, etc.). Recommendation 2.5: Set an initial proposed budget of $5.808 million for the support service provider (SSP) program. Recommendation 2.6: Determine the fee for service in rule to facilitate future changes. Recommendation 2.7: Designate a state agency to administer the support service provider (SSP) program. 30
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