SPRING 2022 - Alzheimer's Community Care
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SPRING 2022
Humble
BEGINNINGS
RO
BE A group of five caregivers and two concerned
R
“Never doubt citizens submitted a non-profit IRS application
T
in the name of Alzheimer’s Community Care
J.
that a small and received its IRS Determination letter as a
GO
viable non-profit in October 1996. Don Baxter,
RM
group of Trustee of the Baxter Foundation, built a building
AN, ESQ.
as a memorial to Mr. C. Kenneth Baxter, his
uncle, who had died from Alzheimer’s disease.
thoughtful, The mission of this memorial was to house an
Organization, namely Alzheimer’s Community
committed Care, Inc., to serve and care for Alzheimer’s
patients and their caregivers throughout
citizens can the duration of the disease process, within a
community-based setting. Don Baxter learned
of the affirmation of his dream from the non-
change the profit division of the IRS and sadly for the
community, he died in November 1996, never
M
world. Indeed, seeing his dream materialize. Somehow, we
A
believe he knows.
RY
it’s the only
M.
Validating this Organization’s humble
BAR
thing that beginnings, if you asked an audience in 1996 if
NES
they had heard of Alzheimer’s disease, 30% of
the people would raise their hands. If you asked
ever has.” them to spell Alzheimer’s, only 5% of them could
spell it. And if you asked the audience to define
- MARGARET MEAD the disease, they would say “someone who is
old and senile”. At that time, the Organization
offered 4 core services, which were:
4 Adult Day Health Care Centers (Boca
Raton, Delray Beach, West Palm Beach, and
Pahokee)
6 Family Nurse Consultants and 1 Supervisor
1 part time employee administering a
manually operated Bracelet Program
4 Support Groups
2 ALZHEIMER’S COMMUNITY CARE I SPRING 2022
The Organization’s service area was The work of our Advocacy Alzheimer’s Disease Initiative
Palm Beach and Martin Counties, Standing Committee and its efforts Advisory Council voted for this law
as then reflected in it’s name; initiated the following legislation: to become Florida’s model day care
Alzheimer’s Community Care of standard.
Palm Beach and Martin Counties, a. 2005-2010 – Florida’s Alzheimer’s
Inc. St. Lucie County was adopted Waiver Program, administered There are approximately 35 Staff
officially as a service area by the by Florida Agency of Health Care who lead the Finance Division, IT,
Board of Directors in 2001. Administration and Facilities as well as the Human
Resources Division, Volunteer
Two and a half decades have b. 2011 to present – The Advocacy Program, Statistical Data, Grants,
passed since the Organization’s of our caregivers, Board members Fundraising and Community Impact
beginnings. At this time, 110 full time and other concerned citizens Service.
care & operational professionals resulted in Florida’s Governor
serve the Organization, with core Rick Scott signing into law the The Organization’s workforce
services encompassing: statewide Florida Silver Alert and its distinguished volunteer
program, administered under the leadership are beginning to reach
12 Alzheimer’s Licensed auspices of the Florida Department greater heights because of their
Specialized Day Service Centers, of Law Enforcement. Its partners recognition of the work that needs
65 Staff, 1 Director and 1 Vice are the Florida Department to be done. One significant effort
President of Specialized Day of Transportation and Florida is advocating that “Cognition”
Service Centers Department of Elder Affairs. become the Sixth Vital Sign.
Another is to have the medical
3 Dedicated Office Locations
c. 2012 to present – Advocacy community as well as allied
(West Palm Beach/Headquarters,
efforts also resulted in Legislators health providers, institutions,
Delray Beach and Stuart)
passing the Specialized Alzheimer’s government, and private sectors
6 Family Nurse Consultants, Adult Services Day Care Act become Alzheimer’s-friendly and
1 Supervisor and 1 Vice President (License) with rules written and realize that 70% of our afflicted
of Family Services adopted by the Department of Elder patients and families live in the
3 ID Locator Service Assistants Affairs and administered through community and actively need
and a Director of the ID Locator the Florida Agency of Health Care and seek affordable specialized
Service. Administration. This Act was health care services and resources
signed into law by Governor Rick because “where there is help, there
1 Vice President of Education Scott on July 25, 2012. The Florida is hope.”
Services and 1 Quality Assurance
Coordinator
Sincerely,
1 Manager of the Live Alone Program
Advocacy Standing Committee,
led by the Chair of the Board of
Directors, 1 Administrator, the
President and CEO, 2.5 staff and Robert J. Gorman, Esq. Mary M. Barnes
an army of 25 volunteers. Chair of the Board of Directors President & CEO
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 3
contents BOARD OF
DIRECTORS
O F F I C E R S
5 Board, Committees & Advisory Council Robert J. Gorman, Esq.
Chair
Judith B. Rappaport
Immediate Past Chair
6 Through the Years A 25-Year Timeline
G. Mark Shalloway, Esq.
Vice-Chair
Randy K. Johnson, Sr.
8 25 Years in Review Defining Moments Treasurer
Deborah A. Diaz
Assistant Treasurer
9 Foundations & Grants Kevin P. Wrenne
Secretary
10 Board Members D I R E C T O R S
Why is our mission important to them? William Armstead
Clark D. Bennett
David Dangerfield
Eric Jablin
12 Advocacy Bonney A. Johnson, CTFA
Robert K. Rollins, Jr.,
CPCU, AAI
Peter A. Sachs, Esq.
Tenna Wiles
14 Specialized Adult Day Centers
P R E S I D E N T
& C E O
18 The Education Department’s Evolution Mary M. Barnes
L E A D E R S H I P
20 ID Locator Service Defines Safety and Security Karen L. Gilbert,
DNP MS RN CDP
VP of Education &
Quality Assurance
24 Events 25 Years of Photos Jackie Chong
VP of Specialized
Day Services
26 Core Services Joanne Taylor
VP of Family Services
Mike Valdes
VP of Finance
27 Locations Jessica Zehetmaier
VP of Human Resources
4 ALZHEIMER’S COMMUNITY CARE I SPRING 2022
2 0 2 1- 2 0 22
Board/Committees/Advisory Councils
FOUNDATION BOARD Audit Standing MAIN OFFICE
OF DIRECTORS Randy K. Johnson, Sr., Chair 800 Northpoint Parkway,
G. Mark Shalloway, Esq., Chair Deborah A. Diaz, CPA Suite 101-B
Judith B. Rappaport Walt Maxwell, CPA
West Palm Beach, FL 33407
Clark D. Bennett Kevin P. Wrenne
Mary M. Barnes, Staff
P: (561) 683-2700
Clement Brandenburg, Jr., CPA
Michael Valdes, Staff F: (561) 683-7600
Deborah A. Diaz
Bernard “Bud” Kroll
Mary M. Barnes, Staff Governance Standing 24-HOUR CRISIS LINE
G. Mark Shalloway, Esq., Chair
Michael Valdes, Staff
William Armstead
(800) 394-1771
Robert J. Gorman, Esq.
COMMITTEES Judith B. Rappaport
Executive Standing Mary M. Barnes, Staff
Robert J. Gorman, Esq., Chair ADVISORY COUNCILS
Advocacy Standing
G. Mark Shalloway, Esq., Vice Chair Greater Glades
Robert J. Gorman, Esq., Chair
Randy K. Johnson, Sr., Treasurer Mary M. Barnes, Chair
William Armstead
Kevin P. Wrenne, Secretary Dep. Christopher Beesley
Meghan Hoza
Judith B. Rappaport, Immediate Past Chair Karis Engle
Mary M. Barnes, Staff
Mary M. Barnes, Staff Willie A. Miller, II
HR Standing
Community Care Services Standing Martin County
Clark D. Bennett, Chair
Judith B. Rappaport, Chair Bonney A. Johnson, Chair
Bari Goldstein, Esq.
Debra McDonald Nancy Berling
Robert K. Rollins, Jr.
Nicholas Cocoves Larry Butcher
Mary M. Barnes, Staff
Mary M. Barnes, Staff William “Bill” Finch
Jessica Zehetmaier, Staff
Mary Jane McDonald, Staff Sue Shipper
Paula M. Menigoz, Staff 401K Standing Sue Riddell
Danielle Worley, Staff Clark D. Bennett, Chair Mary M. Barnes, Staff
Bernard “Bud” Kroll Erika Turke, RN, Staff
Mary M. Barnes, Staff Paige Cortes, Staff
Jessica Zehetmaier, Staff
St. Lucie County
Finance Standing Robert J. Gorman, Esq., Chair
Randy K. Johnson, Sr., Chair William Armstead
Clement Brandenburg, Jr., CPA Renard Brown
Deborah A. Diaz, CPA Evangeline Grissom Bruhn
Mary M. Barnes, Staff David E. Dangerfield
Michael Valdes, Staff Dep. Benjamin DeBlieck
Gusti Labatte-Deneau
Development Standing Carol Carson-Evans
Bonney A. Johnson, Chair Laura Gray
Judith B. Rappaport Allyson Stewart
Mary M. Barnes, Staff Pastor Cris Escher
Paige Cortes, Staff Mary M. Barnes, Staff
Nicole Byers, LPN, Staff
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 5
Through the Years...
25-YEAR TIMELINE FEBRUARY
MARCH AUGUST Alzheimer’s
Community
OCTOBER
The opening of the Specialized
The opening of the Care takes its
Alzheimer’s Specialized Alzheimer’s OCTOBER Alzheimer’s Care & Service Center
in Ft. Pierce, expanding our
first advocacy
Community Care & Service Center Alzheimer’s trip, to Florida’s
Care of in Lake Worth Community OCTOBER organization into St. Lucie County
State Capitol,
Palm Beach Care’s first Alzheimer’s in Tallahassee,
& Martin The inaugural Advisory Council Community Care SEPTEMBER for funding for
Counties is Alzheimer’s Educational is formed, in celebrates 10 First bracelet was placed through expanded services
established Conference is held Martin County years of service the Electronic Monitoring Program and resources
1996 1998 1999 2006 2008 2010
1997 2004 2007 2009
JULY
At the new Baxter Complex
in West Palm Beach, Florida,
JANUARY MARCH
The opening Alzheimer’s Community
the headquarters of Alzheimer’s of the Care, along with former
Community Care is established Specialized Supreme Court Justice
Alzheimer’s Sandra Day O’Connor, Speaker Newt
The operations of the Care & Gingrich, Senator Bob Kerrey, Maria
Specialized Alzheimer’s Care Service Shriver, Larry Butcher, Alzheimer’s
& Service Center open at the Center in Community Care Board of Directors
Baxter Building SEPTEMBER North Stuart Chair present the Alzheimer’s Study
The opening of Group Strategic Plan to the U.S. Senate
The first Alzheimer’s Family Nurse Consultant the Specialized Committee on Aging
office is established in West Palm Beach Alzheimer’s Care &
MAY
Service Center in
AUGUST Pahokee
The opening of the Specialized
The Alzheimer’s Community Care 24-Hour Alzheimer’s Care & Service
Crisis Line is established Center in Delray Beach
SEPTEMBER JULY
First publication of Alzheimer’s Community The opening of the Specialized
Care’s quarterly publication Alzheimer’s Care & Service Center in
Palm Beach Gardens
6 ALZHEIMER’S COMMUNITY CARE I SPRING 2022
AUGUST
Introduction of the
Therapeutic Robotic
Pets in our Day
Centers
Our 12th
JUNE Day Care
Gov. Rick Scott travels to JULY JUNE OCTOBER Center
West Palm Beach to sign Alzheimer’s With leadership from A grant is received from the opens
into law, the statewide Community Alzheimer’s Community Care, Community Foundation to at Grace
Silver Alert Program Plan, Care Lost on Foot, the next phase partner with the Council on Lutheran
for which Alzheimer’s establishes of the Silver Alert Program, Aging in the creation and Church in
Community Care plays a the Education is piloted in three Florida implementation of Martin Port St.
vital role in developing Department counties County HUGS Lucie
2011 2014 2016 2018 2021
2012 2013 2015 2020
APRIL APRIL JULY
With The opening of the Specialized The opening of
considerable Alzheimer’s Care & Service Center the Specialized
input from in West Lake Worth Alzheimer’s Care &
Alzheimer’s Service Center in Wellington
Community Care, the
JUNE We remained open
Specialized Alzheimer’s
Services Adult Day Care
Electronic Monitoring Program is DECEMBER throughout the COVID-19
renamed the ID Locator Bracelet Alzheimer’s pandemic
Act is signed into law by
Service Community Care
Gov. Rick Scott, after it is
is recognized as a
unanimously passed by the
Mutual of America
Senate Florida Legislature
DECEMBER Merit Award
Alzheimer’s Community Recipient
MAY Care achieves
The opening of the Accreditation from The Development of “Cognition:
Specialized Alzheimer’s Joint Commission, a The 6th Vital Sign”
Care & Service Center in respected authority in the health
Boca Raton care community
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 7
25 YEARS IN REVIEW
DEFINING MOMENTS
“We place Since 1996, Alzheimer’s Community Care has worked its way into the lives
and hearts of patients and families throughout Palm Beach, Martin and
a safety net St. Lucie Counties. There have been countless challenges but many more
around our victories throughout that 25-year time period. We are so grateful to share
the evolution of Alzheimer’s Community Care with you. It’s been a long
patients and exciting road that has brought us to where we are today. Between
and advocacy trips, our 12 day Specialized Adult Day Centers, the ID Locator
program and our ever-evolving Education program, we are always into
caregivers something new and exciting at Alzheimer’s Community Care. We are
every day.”TM the largest provider of community-based, dementia-specific services in
Florida and we invite you today and always to be a part of what we do.
8 ALZHEIMER’S COMMUNITY CARE I SPRING 2022
GRATEFUL FOR THE
S U P P O R T O F F O U N DAT I O N S
From its inception, Alzheimer’s There are foundations we have recognized in the
past and others that prefer not to be formally
Community Care has had the recognized. We appreciate the generous support
of each and every one of these Foundations. To
generous support of many be considered for funding, with so many worthy
causes in our communities, is an honor we take
Foundations. great pride in. Every day we strive to be the best
at what we do for our patients, their families, and
our supporters.
One cannot visit our Specialized Day Centers,
review our Home Study courses or walk our
So, when you think of Alzheimer’s Community
hallways without realizing the immense impact
Care, remember those that helped us get here.
the grants we’ve received over the past 25 years
have had on this Organization.
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 9
THE FOUNDERS OF
BY MARY M. BARNES, PRESIDENT AND CEO
“A group of deeply
committed caregivers
forged a unique
The Founders of Alzheimer’s Community • Generous and financially
and extraordinary
Care (Organization) strongly believed in supportive of the work and
the idea of establishing a community- mission of the Organization relationship to create
based 501(c)(3) organization for a dementia-specific
Alzheimer’s patients and their • Believed that “where there
caregivers which provided them with is help, there is hope,” and
agency that was
an environment explicitly planned for envisioned an Organization that comprehensive in scope
their safety and security, and health would be devoted to the welfare and care for serving
and well-being while preserving their and wellbeing of both caregivers
dignity throughout the duration of the and patients
those suffering with
disease process. Alzheimer’s disease and
• They were dreamers – “It is related disorders.”
These Founders were exceptionally difficult to say what is impossible,
diverse in their backgrounds, the dream of yesterday is the - G. Mark Shalloway, Board
professions, and personal lives, but all hope of today and the reality of Member (2006 Quote, 10 Year
were united with the following traits and tomorrow” - Robert H. Goddard , Anniversary Publication)
beliefs: Pioneer of Rocket Research.
10 ALZHEIMER’S COMMUNITY CARE I SPRING 2022These remarkable men, as the quote states, were a group of deeply committed caregivers
whose lives were impacted by Alzheimer’s disease and wanted to provide hope and help PAST FOUNDERS’
for those walking the same path as they had. Those men were: AWARD
RECIPIENTS:
James “Big Jim”
Gaston Jones, First President/Chair of the Board of Directors.
Gregory Fragakis,
Mr. Jones was the General Manager of Callery Judge Orange
Board Member
Groves in Loxahatchee and an Arthur Anderson-trained
Accountant. As his wife had died from Alzheimer’s disease,
John B. McCracken,
Mr. Jones understood the disease and gave back by serving on
Board Member
the Board until he passed in 2002.
Gene Pranzo, Trustee
of the Leo and Anne
Albert Foundation
Fred “Uncle Freddie” Kroll, Board
Member. Mr. Kroll worked in the
Dave Donten,
toy industry, and most notably had
Trustee of the Baxter
developed the game Trouble as well
Foundation
as bringing Hungry Hippos to the
forefront of best sellers for Hasbro.
Mary M. Barnes,
His wife had been diagnosed with
President and CEO
Alzheimer’s disease, which led him
to establish funding for the Betty
Kroll Specialized Day Services
Center, named in his wife’s honor.
HONORABLE
Mr. Kroll served on the Board until
MENTION:
he passed in 2003.
Gaston Jones
James Fragakis Gregory, the Board’s first Fred Kroll - Uncle
Treasurer. Mr. Gregory was Founder and Freddie’s Fun Factory
President of Executive Coffee Service, a
successful local enterprise. “Big Jim”, as he
was affectionally known to his friends, had
watched his father die from Alzheimer’s
disease. Throughout his life, he continued
his path of caregiving and assisting those
“The immortal
in need. Mr. Gregory served on the Board gifts that our
until he passed in 2015. founders gave
us are deeply
In honor and memory of our Founders the Organization, the Board of Directors imbedded
unanimously voted in October 2006 to establish the Founders’ Award, with the
within the
following purpose:
DNA of this
“The Founders’ Award is presented to an individual who has given extraordinary support to Organization”
Alzheimer’s Community Care and who embodies the founding vision of Alzheimer’s Community
Care. Our recipients demonstrated the true virtues of generosity, willingness, and wisdom. This – Mary M. Barnes
award is bestowed at the discretion of the Board of Directors.”
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 11BOA R D M E MB E RS
WE ASKED OUR BOARD MEMBERS:
Why is our mission important to
you? Why do you continue to
volunteer your time in support of
Alzheimer’s Community Care?
Here are their responses.
“I’ve always been a fan of non-profits that do “I have been involved with
all they can to protect our most vulnerable Alzheimer’s Community
population. The work done by Alzheimer’s Care since 2008. ACC
Community Care warms my heart.” played a pivotal role in
WIL L A R M S TE A D my life when I became the
caregiver for my parents. It
is a privilege to “give back” my time and
“As a communication specialist, I provided and talents to this Organization. ”
maintained the telephone communication DEBO RA H DI A Z
system for the staff and its first Day Centers.
This gave me a view of the Organization and
staff in their normal environment and when no
one was looking or putting on a show, but in “I am a Board member
its real world. The tender love and care I saw because I see Alzheimer’s
for the Alzheimer’s clients were amazing and Community Care doing
as if they were their own family members. I the work of angels here
knew this was something I wanted to be a part on earth, bringing peace
of. Later I was asked to be a Board member to individuals and families
and now serve as Treasurer with 21 years of dealing with the chaos of a disease that
volunteering with my family.” has no cure to date!”
R A N D Y JO H N S O N , TR E A S U RER P A SO R DA VI D DA NGERF IE LD
“It has been deeply gratifying to serve over “Until there is a cure,
20 years on the ACC Board. I find myself there is Alzheimer’s
even more passionate to fulfill our mission to Community Care.”
provide care until there are cure(s) not only for CL A RK D. BE NNE TT
our patients but especially for the caregivers
through community engagement. ‘’
M A R K S H A L L O W A Y , V IC E C H A I R
12 ALZHEIMER’S COMMUNITY CARE I SPRING 2022“Alzheimer’s Community Care delivers in “My law firm, Jones Foster, has
spite of the recent pandemic,” should be the been involved with Alzheimer’s
headline as all Day Centers safely remained Community Care for many
open during the pandemic. Such is the model years. My role on the Board of
of care for the Organization, but it goes even Directors is a part of my firm’s
further with the Organization’s commitment legacy, and I am proud to follow in
to the study, identification, care, and treatment of those the footsteps of my former partners, Tim Henry
dealing with cognitive impairment. I value and appreciate and before him, John McCracken. Alzheimer’s
the service Alzheimer’s Community Care brings to this Community Care is a vital institution within our
community and it is a pleasure to be a member of the community, and I am proud to be a part of such
Board of Directors.” a compassionate and devoted organization.”
R OBER T K . R OL L IN S , JR . C P C U , A A I P ETER A . SA CH S
“Working in “From my first “Taking care of a
the financial involvement loved one with
industry for over with Mary Alzheimer’s
33 years, I have Barnes and the can be
experienced original Board of overwhelming.
firsthand how Directors shortly The remarkable
Alzheimer’s disease impacts after ACC’s creation, I was and vital services that
my clients and their loved totally taken by the dedication Alzheimer’s Community Care
ones. Having this valuable to the mission and involvement provides to its patients and
resource in my community of the community partners families is truly life changing.
gives me comfort knowing that providing a loving family and As a Board member, I am
I can refer them to Alzheimer’s community-based alternative dedicated to help make
Community Care to provide to merely casting aside or sure that these services are
individuals and their caregivers warehousing some of our most available to all who need
with education, compassionate vulnerable citizens.” them now and in the future.”
care and hope.” B O B GO RMA N, CH A I R ERI C J A BL I N
BON NEY J OHNSO N
“The dedication and commitment to excellent “When I introduced
care and comfort not only for the patient, myself to Mary Barnes
but also the caregiver is only outdone by the over 20 years ago, I
immense need within the community. Truly said ‘My mother died of
dedicated to the care and service to those Alzheimer’s and I came to
affected by Alzheimer’s disease.” help.’ Mary took my arm,
KEVIN WR ENN E marched me into her office and hasn’t
let me go yet. Alzheimer’s Community
Care is the place of joy I wish I’d had for
“There is nothing that can prepare you for my mother; she would have blossomed
the loss of your mother to Alzheimer’s. I was here. After all these years, people still
blessed that Alzheimer’s Community Care say to me, ‘Alzheimer’s Community Care
was there every step of the way to support saved my life’. I am grateful to be a part
my mother and my family. I am committed to of this wonderful organization and the
advocating for and raising the awareness of the blessing we bring to our communities.”
incredible community-based services provided by ACC.” J U DI TH RA P P A P O RT
TENN A WI L ES
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 13ADVOCACY
BY DANIELLE WORLEY, DIRECTOR OF CASE MANAGEMENT
Staff and volunteers are divided
into groups of 3-4. A team leader
is designated to guide the group
around the Capitol and through
each legislative appointment.
Legislators are impacted by the
caregivers personal stories and will
usually share their own personal
experience with Alzheimer’s disease.
They often ask how they can have an
Alzheimer’s Community Care in their
Alzheimer’s Community take a three-day trip by bus to
district. Photos are taken with legislators
meet with legislators in the Capitol.
Care advocates participate in their offices along with their contact
On the way up to Tallahassee we all
in an effective, efficient, information for thank you letters that
share why we are on the trip and
are sent after we return.
and dynamic advocacy how Alzheimer’s Community Care
has positively impacted our lives.
campaign that educates and In one day at the Capitol, groups
motivates policy makers to may have as many as 50 scheduled
Prior to going to the Capitol, we
support services and provide appointments with legislators
meet with Mr. Ken Pruitt, former
and information is dropped off to
resources to benefit patients Florida State Representative, Senate
over one hundred. Our teams are
President and State Senator and
and families coping and all dressed in our matching teal
current President of the P5 Group.
living with a neurocognitive Alzheimer’s Community Care logo
We review what the advocates
shirts, now recognized by legislators
disorder. will be doing at the Capitol. Ken
who understand who we are and
Pruitt and the P5 group create the
why we are there.
Alzheimer’s Community Care information provided to legislators
staff, Board members, community and set the legislative appointments
for the advocates. Mr. Pruitt has During the day at the Capitol, all
volunteers and family caregivers advocates will come together to
that have received services from been instrumental in the success
of each trip and the overall agency meet in the Legislative chambers
Alzheimer’s Community Care, and speak with a legislator who is
accomplishments.
14 ALZHEIMER’S COMMUNITY CARE I SPRING 2022in support of our mission. In the
beginning years, we came to the
Capitol sharing about Alzheimer’s
disease and the need that was
there. On this year’s trip while in the
chamber, the legislator provided
facts and information regarding
the future trends for the rise of
Alzheimer’s disease cases and the
need to provide services for patients
and their families. We came to inspire
change and it was the legislator that
inspired us for that day’s advocacy.
Our family caregivers have attended
many advocacy trips over the years.
Caregivers that participate feel they
are giving back to an Organization
that has helped them. They are
making a difference for their
community on a local and state
level. They are bringing awareness
to the needs of their loved ones
who have a neurocognitive disorder.
They are honoring their loved one Overall, the advocacy campaign and
by sharing their personal story; this trips are magical! To see advocates
is their loved one’s legacy. Family devoting their time, sharing their
care givers immediately bond with Alzheimer’s Disease Initiative personal stories, and giving back to
other caregivers on the trip as they resources to cover patient costs an agency that has provided a crucial
identify with the struggles they have for Specialized Adult Day Services, service in their time of need is a true
been through, and friendships are to accomplish the signing of the priceless gift to their community and
created. Specialized Alzheimer’s Services Alzheimer’s Community Care. It is a
Adult Day Care Act and License, and gift that keeps on giving to the future
These Advocacy campaigns have to enact the statewide Silver Alert patient and caregiver who will need
helped to secure necessary Program. support, education, and care!
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 15SPECIALIZED ADULT DAY
CENTERS BY PAIGE CORTES, SENIOR DIRECTOR OF FUND DEVELOPMENT
When an organization broadens its reach with Day Centers
growing from 1 to 12 in a 25-year period, there are defining
moments that stand out in our minds.
Alzheimer’s Community Care got its name after a process. Mary M. Barnes, President and CEO,
brainstorming session with our founders. In that recalls it best: “We had our shovels ready at
meeting was Mr. Don Baxter who saw a true need the groundbreaking, and his voice echoed in
for an organization that would serve patients the background to remind us all why we were
and their families in our community. Mr. Baxter there.”
was an integral part of the beginning stages of
Alzheimer’s Community Care, so much so that he Our first Day Center opened in 1997 in what
donated the funds to construct the building where is appropriately named The Baxter Building.
our first Day Center and Headquarters found their The first lease was drafted that same year,
humble beginnings. Unfortunately, he never saw and our rent was $1 per year for 20 years.
the building in person, as he passed away shortly Our current lease, now in our 25th year, is $10
after finding out Alzheimer’s Community Care had per year. The Baxter Foundation truly values
received its nonprofit designation. His memory Alzheimer’s Community Care, and we are
remained, however, throughout the building forever grateful.
16 ALZHEIMER’S COMMUNITY CARE I SPRING 2022We provide a Dementia-
Specific Day Center
with dementia-specific
care and therapeutic
activities for the patients
in a safe and secure
setting, while providing
peace of mind and a
break in the day for the
family caregiver.
we own through donations. Being while providing peace of mind and
in an underserved community a break in the day for the family
has allowed us to contribute to caregiver.
the economy and provide services
for patients and their families. The Alzheimer’s Community Care’s
Our staff has grown tremendously community embraced our facility so Program Managers, Nurses, and staff
throughout that 25-year period as much that they remodeled the bank are dementia-care specialists with
we’ve continued to delve further in the downtown area to look like ongoing training in Alzheimer’s disease
into the community and expand our building. We are thrilled to own a and related neurocognitive disorders.
our services. We’ve moved our West piece of history in Pahokee and proud The Organization maintains a staff to
Palm Beach Day Center to a larger to serve those in need. patient ratio of 1-to-5 to ensure each
location, and what was once a day patient receives the individualized
center at The Baxter Building now Now, in 2022 we have 12 Day Centers care needed. Program Nurses
operates as office space for our that are a huge part of what we do monitor patient nutrition and
growing staff. here at Alzheimer’s Community Care. hydration, administer medications,
We provide a Dementia-Specific Day evaluate health status, respond
Fast forward to 2005, when we Center with dementia-specific care to medical needs and ensure that
opened our Pahokee location. To and therapeutic activities for the patients are involved in care to their
date, it is the only Day Center that patients in a safe and secure setting, maximum benefit every day.
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 17E D U CAT I ON
THE
EVOLUTION
OF ALZHEIMER’S COMMUNIT Y CARE’S
EDUCATION DEPARTMENT
BY DR. KAREN L. GILBERT, DNP MS RN CDP
Alzheimer’s Community Care’s Mission Statement expresses
our goal of “promoting and providing community-based,
family-centered care for patients and their caregivers living
with neurocognitive disorders, through the belief, where there
is help, there is hope.”
To this end, our Organization and businesses, with the goal of Alzheimer’s Adult Day Care providers,
provides a Model of Care inspiring a common-sense approach as well as programs approved for
that supports the caregiver to preventive brain health and Assisted Living Facilities and Nursing
and offers truly therapeutic innovative care for patients and Homes.
activities for patients in their caregivers.
our twelve Specialized Day Since 2014, the Education
Centers, where patients Alzheimer’s disease remains with Department has built upon this
engage cognitively, physically, neither cure nor any treatment that foundation, creating a program of
and socially throughout the reverses or modifies the disease. dementia-specific education for
day. However, we do know that caregivers rising health professionals: Nursing
can be provided with dementia- students (undergraduate and
Education has also been a specific education and guided and post-graduate), Medical Doctors
priority for the Organization, supported throughout the disease and Osteopathic Physicians in
beginning with the first Annual process. We also know that patients post-graduate residency training,
Education Conference in 1998, can enjoy full days of therapeutic Occupational Therapy, Social Work,
and continuing with a dedicated engagement that promote dignity and Health Administration students.
Education Department. and self-esteem and helps to lessen We serve on the Advisory Boards of
the impact of Alzheimer’s disease on Keiser University (West Palm Beach
The Education Department’s their activities of daily living. and St. Lucie Campuses), Palm
purpose is to provide Beach Atlantic University, and Palm
comprehensive dementia- Alzheimer’s Community Care is Beach State College, advocating for
specific education and training proud to be recognized by the dementia-specific course content to
on Alzheimer’s disease and Florida Department of Elder Affairs better prepare nursing students to
related disorders (ADRD) as a provider of Alzheimer’s Disease address the needs of patients with
for the community at large, and Related Disorders (ADRD), neurocognitive disorders.
healthcare professionals and Level 1 and Level 2, training. Our
health professions students, comprehensive curricula include Students receive our classroom
law enforcement personnel, training programs for Specialized education on ADRD, and
18 ALZHEIMER’S COMMUNITY CARE I SPRING 2022While science continues to struggle
to find a cure or disease-modifying
treatment, Alzheimer’s Community
Care’s Education Department
is dedicated and committed
to providing up to the minute
education on how to deliver the
most therapeutic, supportive care
for patients, and how to best help
family caregivers. This education
includes the many ways in which we
can proactively protect brain health
with a variety of healthy lifestyle
choices.
Our Education Department has
then have the opportunity to more than 1,500 law enforcement developed seventeen (17) home
participate in clinical rotations officers and personnel. study continuing education courses
in our Specialized Day Centers. for healthcare and social services
Students apply classroom learning In Florida, we are fortunate to have professionals, with additional
in our community-based settings, access to outstanding health care courses in development. Our Florida-
experiencing the ways in which providers in primary care, specialty approved home study courses
individualized, therapeutic care medicine, adult day services, assisted are accessed through our website
honors and preserves the dignity living, skilled nursing, home health, by professionals both within and
of patients while providing vital hospice, and hospitals. However, outside of Florida! Our home study
cognitive and physical engagement education on Alzheimer’s disease courses are generously sponsored
and socialization. and the related neurocognitive by the Addison Hines Charitable
disorders is not consistent among Trust.
At the same time, the Education these providers. There is no
Department is active in the standard curriculum in the nursing In 1758, Benjamin Franklin wrote,
community, providing presentations colleges. Florida Statutes have no “An investment in knowledge pays
for family caregivers, allied health requirement for any such training the best interest.” The education and
professionals, businesses, and law in our hospitals. Physicians, nurses, training presented by Alzheimer’s
enforcement as part of Sheriffs’ and other health professionals are Community Care’s Education
Offices Crisis Intervention Training. not required to have continuing Department is focused on helping
education on ADRD, though our patients and their caregivers realize
Since 2014, Alzheimer’s Community state is home to almost 600,000 improved quality of life, to inspire
Care’s Education Department has known patients who each have at all segments of the community to
provided education and training for least one caregiver who is often in recognize the needs of affected
more than 1,500 nursing students, need of education, resources, and families, and to promote strategies
physicians, and allied health and services so that they can continue to for protecting and preserving brain
social service professionals, and care for their loved one at home. health throughout adulthood.
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 19I D LO CATOR
ID LOCATOR SERVICE successful outcome. All elopements
have resulted in a safe return of the
D E F I N E S wandering patient.
SAFETY AND SECURITY Looking ahead, the ID Locator
Service is currently researching
potential options to advance
technology. The latest innovative
BY PAULA M. MENIGOZ, DIRECTOR OF ID LOCATOR SERVICE technology will be especially
helpful for early onset Alzheimer’s
patients who are still wanting to
Established in 2013, the ID Locator 2013 with SafetyNet, using a radio-
Service has become one of the frequency wearable tracking device,
Organization’s fastest growing and the ID Locator Service was born.
services. The service became
an integral part of Alzheimer’s Ensuring the safety and security of
Community Care to help families those with Alzheimer’s disease is one
ensure the safety of their loved ones of the Organization’s three pillars,
afflicted with Alzheimer’s disease or and has been a constant focus
other neurocognitive disorders. One throughout the past 25 years. The
of the characteristics of Alzheimer’s creation of the ID Locator Service
diseases is wandering and the ID strengthened that pillar of providing
Locator Service aids in providing safety and security. Not only has
safety tools that can assist in the this service had 100% successful
location of a patient who has walked recoveries of lost patients, but there
away from a supervised setting. have also been no injuries or loss of
life, both of which are the primary
In 2004, the Organization launched goal each time an event occurs. Each
the Law Enforcement Search wandering event is just as critical as
and Rescue Training Project in the very first one in 2013.
collaboration with the Palm Beach
County Association of Chiefs of This is why we do what we do!
Since inception, the ID Locator Service There is no cure for Alzheimer’s disease. 20% of patients
Police. This partnership grew as has served over 1,200 Alzheimer’s not found within 72 hours do not survive a wandering event.
a springboard for the further families with radio frequency and Like Millie, the disease process has affected her ability to
recognition of the needs in this medical identification bracelets. The understand her parents are no longer near by and cannot visit
them. This makes Millie at risk for wandering!
area. The Florida Silver Alert most recent years have seen a sharp
program addressed that issue. The increase in elopements coinciding
program was developed as a public with the COVID-19 pandemic. drive, for those living alone at
notification service to locate persons Due to isolation, quarantines and home, or for families believing
with a neurocognitive disorder who ensuing loneliness created by the it is still too early to address
have gone missing while driving or pandemic there have been a 30% the cognitive wellbeing of their
lost on foot. The Organization led increase in elopements. Through loved one. When life-impacting
the passing of the Florida Silver Alert routine phone calls to ensure the decisions are too heartbreaking
legislation which was signed into operation of provided technology, to make this approach will provide
law by then Governor Rick Scott on over 500 families were served this a compromise to keep patients
June 25, 2011. past year which is a comfort to safe. This critical component helps
caregiver’s that money cannot buy. bolster and maintain the dignity
From that time, Alzheimer’s The constant communication either and integrity for all involved, which
Community Care worked to create by phone, visits by the Team or by is the third pillar of Alzheimer’s
a more local, individualized system the Specialized Day Center staff is Community Care. Through this
to assist Law Enforcement in quickly what secures the process. When technology, the ID Locator Service
recovering patients who wander. there is an elopement event of is expected to grow exponentially
A partnership was developed in which all are unexpected, we have a in the coming years.
20 ALZHEIMER’S COMMUNITY CARE I SPRING 2022Creating a
better future
is easier than
you think.
Make a gift that lasts longer.
You can make a significant gift that will advance the work of Interested?
Alzheimer’s Community Care for generations to come. Contact the Development Team
phone: 561-683-2700:
Do it today with a legacy gift through your will. email: development@alzcare.org
Costs you nothing during your lifetime.
Preserves your savings and cash flow.
Can be changed or revoked as needed.
Allows you to be far more generous than you ever thought possible. Serving You Since 1996
A simple paragraph added to your will is all it takes. 800 Northpoint Parkway
Suite 101-B
Alzcare.org | 561-683-2700 West Palm Beach, FloridaAlzheimer’s Community Care promotes
“COGNITION:
The Sixth Vital Sign”
Establishing a measure of cognition as a routinely
assessed vital sign established a foundation for medical
principles for:
• Screening and early recognition of cognitive impairment
• Comprehensive evaluation
• Differential diagnosis
• Individualized and therapeutic care planning
For more information visit: www.alzcare.org/cognition
GET YOUR CEUs
with Alzheimer’s Community Care Today!
Alzheimer’s Community Care is proud to
offer both required and elective courses
consisting of original content prepared by
our Education Department.
WIDE VARIETY: Dementia-specific courses, and many
additional health-related courses
AFFORDABLE: $5.00 per CEU hour
FAST: Course materials sent via email by the next
business day
alzcare.org/CEUs
PROFESSIONAL: CEU’s uploaded immediately to CE
Broker upon successful completion of course and quiz
QUESTIONS: education@alzcare.org
(561) 683-2700 LICENSED: Alzheimer’s Community Care is an
approved Continuing Education Provider
(Request Education Department)
22 ALZHEIMER’S COMMUNITY CARE I SPRING 2022Treasure Coast Palm Beach
HARBOUR RIDGE | Oct. 13, 2022 THE COLONY | Nov. 10, 2022
R E G I S T E R T O D AY :
Tickets $125 | www.alzcare.org
561.683.2700 | www.alzcare.org
All proceeds benefit the services and resources provided by Alzheimer’s Community Care.
2 nd
Sponsorships Available Contact development@alzcare.org
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 23E V E N T S 25 YEARS OF PHOTOS 24 ALZHEIMER’S COMMUNITY CARE I SPRING 2022
E V E N T S
25 YEARS OF PHOTOS
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 25ALZHEIMER’S COMMUNITY CARE
Since 1996, Alzheimer’s Community Care has been providing services and hope to
Alzheimer’s patients and their family caregivers, allowing them to stay safely at home
and in the community. If you or someone you know is living with Alzheimer’s disease or
any other neurocognitive disorder, please contact us today. Hope is here.
Core Services
FAMILY NURSE CONSULTANTS
Providing licensed nurses to help families navigate the course of Alzheimer’s disease
and the related neurocognitive disorders.
SPECIALIZED ADULT DAY CENTERS
Providing Dementia-Specific Adult Day Services to patients at 12 locations
throughout Palm Beach, Martin and St. Lucie Counties.
ID LOCATOR SERVICES The ID Locator Service Department
offers several safety tools, including
a customized Medical ID Bracelet.
Providing ID Locator bracelets, education and resources
For more information, visit
to help mitigate the risk of wandering episodes in coor- www.alzcare.org/bracelets
dination with SafetyNet and Law Enforcement.
PROFESSIONAL & COMMUNITY EDUCATION
Providing disease-specific training and guidance to family and professional caregivers,
law enforcement, business leaders, and the community at large.
CASE MANAGEMENT
Assisting families in accessing services and financial resources to care for their loved ones
with Alzheimer’s disease.
24-HOUR CRISIS LINE
(800) 394-1771
Connecting families in crisis to a Family Nurse Consultant 24 hours a day, 365 days a year.
ADVOCACY
Advocating on behalf of Alzheimer’s patients and their family caregivers on the state and
local level to ensure the highest quality of care.
26 ALZHEIMER’S COMMUNITY CARE I SPRING 2022Locations & Services
1
Headquarters
COMING
7 800 Northpoint Pkwy., #101B
West Palm Beach, FL 33407
SOON
ST. LUCIE
2
3 ATLANTIC John B. McCracken
OCEAN Alzheimer’s Care & Service Center
Orthodox Zion Primitive
8 Baptist Church
4 2924 N. Australian Ave.
West Palm Beach, FL 33407
5
MARTIN Leo and Anne Albert
Alzheimer’s Care & Service Center
St. Michael Lutheran Church
9 1925 Birkdale Dr.
LAKE Wellington, FL 33414
OKEECHOBEE 15
6
Se Habla Español
7 West Lake Worth
8 10 3680 Lake Worth Rd.
Palm Springs, FL 33461
9
PALM 10 11
BEACH Our Savior Lutheran Church
11 1615 Lake Ave.
12 Lake Worth Beach, FL 33460
13
14 Betty Kroll Specialized
Alzheimer’s Care & Service Center
Seacrest Presbyterian Church
12 2703 N. Seacrest Blvd.
Delray Beach, FL 33444
(561) 683-2700 www.alzcare.org info@alzcare.org
South County Office
1 St. Peter Lutheran Church Prince of Peace Lutheran Church 13 4800 Linton Blvd.
2900 South Jenkins Rd.
Fort Pierce, FL 34981
4 2200 N.W. Federal Hwy.
Stuart, FL 34994
Delray Beach, FL 33445
Anne Ross Albert
Leo and Anne Albert Alzheimer’s Care & Service Center
Alzheimer’s Care & Service Center Treasure Coast Office 14 Advent Lutheran Church
2 St. Andrew Lutheran Church
295 N.W. Prima Vista Blvd.
5 1111 S.E. Federal Hwy., #116
Stuart, FL 34994
4680 North Dixie Hwy.
Boca Raton, FL 33431
Port St. Lucie, FL 34983
Nativity Lutheran Church Leo and Anne Albert
Leo and Anne Albert
Alzheimer’s Care & Service Center
6 4075 Holly Dr.
Alzheimer’s Care & Service Center
Pahokee
3 Grace Lutheran Church Palm Beach Gardens, FL 33410 15 470 Barack Obama Blvd.
555 SW Cashmere Blvd. Pahokee, FL 33476
Port St. Lucie, FL 34986
All locations are equipped with UV Air Sanitizers
Services Key Specialized Adult
Day Center
Family Nurse
Consultant
ID Locator
Services
Professional & 24-Hour Case
Community Education Crisis Line Advocacy
Management
SPRING 2022 I ALZHEIMER’S COMMUNITY CARE 27800 Northpoint Parkway, Suite 101-B West Palm Beach, Florida 33407
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