Small things making patients' lives better - Harbour Hospice
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March 2019 Small things making patients’ lives better When Dr Eugenia Romboli worked as a General The longer we have patients in our care, and the more Practitioner in Barcelona, she saw a lot of patients specialised we become, the more need we have for with symptoms that were not being resolved. medications and medical supplies such as dressings, Motivated by the wish to relieve people’s suffering, syringes and batteries for pain pumps. These items she specialised in palliative medicine and is now alone cost Hospice over $2,000 a week. Harbour Hospice’s Medical Leader. By helping Hospice buy essential medical Thanks to your ongoing generosity in helping to supplies, you can help patients in your local bridge the gap between health board funding and community to live every moment with dignity, the cost of providing palliative care, Harbour Hospice compassion and comfort. is well resourced with six doctors on staff. Please consider making a gift today so we can “We are very aware that we are not curing patients, continue giving our patients the best care possible. but the small things we do can help make life better,” Eugenia says. “We try to ease the journey for our Our doctors support patients in the North Shore patients so they can concentrate on their important inpatient unit, at home, and even in North Shore things.” Hospital, reinforcing the palliative care provided by the hospital’s doctors. Working as a tight-knit team, As medical treatments improve, patients are living our doctors ensure they all know what is going on longer with life-limiting illnesses and we are pleased with every patient, to ensure their patients’ care is as to say that many are seeking hospice care earlier. seamless and personal as possible. You are part of this caring North Shore community. Volunteer, donor, bequestor, staff member, brave story-teller. Thank you.
Harbour Hospice Jan Nichols wraparound care on the North Shore Caring for your growing July 2017 to June 2018 community at home Last year you supported Harbour Hospice to provide care and in Hospice to 711 patients in the North Shore community. 2018 was a monumental year which saw the creation of the Harbour Hospice Trust to serve the communities of North So far this year referral numbers Shore, Hibiscus Coast and Warkworth Wellsford. have increased by 9%. The merger of Hibiscus services with North Shore and Warkworth Wellsford has been an enormous undertaking and I want to thank you for your continued support as we have refined roles within the new organisation, introduced new services and moved shops. All while continuing our everyday mission of providing skilled and compassionate care to more and 711 more people in our local communities. Over the last six months, referrals to Harbour Hospice PAT I E N T S / FA M I L I E S supported have increased by close to 9%. This means, with your continued support, we are on track to care for more than 1200 people this year across the region. 21% One patient may receive care from several of our teams as we support their medical, practical, emotional, social and spiritual needs. Many of our patients are troubled by complex symptoms, 71% especially in the early stages of their diagnosis, and benefit enormously from the expertise of our doctors. I am very pleased that we are profiling our Medical Leader, Dr Eugenia Romboli, in this edition of Hospice Matters. Specialist palliative care doctors are becoming a rare breed and Cancer Diagnosis we are fortunate that those on our team are not only highly skilled, but are also deeply compassionate and committed to the Non-Cancer Diagnosis comfort and wellbeing of our patients. As Eugenia says, our doctors try to ease the journey for our patients so they can concentrate on the things that are 26% important to them. Thank you for your commitment to supporting the work of our 54% doctors and helping people in your community enjoy more moments free of pain and other troubling symptoms. 20% Yours sincerely Aged 65 years and under Aged 66-74 years Jan Nichols Aged 75 and over Chief Executive Your Hospice Matters Harbour Hospice 2
Continued from page 1 “We are there for patients with complex, specialty needs and we have patients very early in their diagnoses who can have quite a lot of symptoms,” Eugenia says. “We become their guide for what to do, and we help them understand what is happening and why the complications affect them.” Eugenia says the doctors must be flexible enough to change their day’s schedule so they can spend more time with a patient who is facing complications or needs emotional support. We are there A doctor may also arrange an urgent appointment for patients with an occupational therapist, dietician or other specialist to provide whatever treatment is most with complex, effective in managing symptoms such as pain, specialty needs. nausea and shortness of breath, seizures and difficulty with swallowing. Whatever therapy they advise, the doctors try to ensure that transitions between services are streamlined and that their primary care team is kept informed. “Sometimes our intervention is only for a moment, but if that means someone has a good week, then we’ve done our job,” Eugenia says. You bought new recliners! Last November we asked you to help us buy new Glenn asked for your help to buy 12 new recliners recliner armchairs for the North Shore inpatient to replace our worn-out armchairs, and your big- unit. hearted response amounted to more than $52,000 in donations. Thanks to you we can now start Our patient Glenn Griffin, who replacing the old, flaking armchairs with extra-wide, spent time in the unit so the soft and cosy recliners that are easy to get in and doctors and nurses could out of, and continue to be able to care for patients bring his pain under staying in the North Shore inpatient unit. control, told you how good it felt to get Glenn’s wife Debbie says Glenn was extremely out of bed and in a private and his willingness to share his story showed comfortable chair how keenly he wanted to repay the care and with no pressure compassion he received from Hospice. points. Sadly, Glenn passed “Glenn would have been over the moon to know away not long that people gave so much, and so proud that he after he and was able to help.” his family so Thank you for generously Thank you for caring and for giving many people like your big-hearted shared their Glenn and his family the comfort and relief of a soft, response! story. cosy armchair for years to come.
Staff at Rapid Labels love sharing the Harbour Hospice CEO Jan Nichols and the Christmas spirit with Hospice. Farmers team. Funds raised in Hibiscus Coast and North Shore will be used for hospice services in the community in Rapid Labels’ which they were given. culture of caring / Few of us would choose to spend Trees of Remembrance / Christmas Day in the Hospice Front UP / Every year you give to the Hospice Inpatient Unit rather than our own Trees of Remembrance and support home, but sometimes there is no The Front UP for Hospice challenge, people in your community for whom choice. That is why we are so grateful completed in November, brought out a life-limiting illness does not take a to the kind people at Rapid Labels, North Shore’s inner exhibitionists break for Christmas. who sponsor the annual Christmas to raise $39,000 for palliative care lunch for patients, families and staff services in your community. In 2018 you opened your hearts and in the North Shore IPU. gave $71,500 towards palliative care Harbour Hospice partnered with for Harbour Hospice patients in the Since 2004, the company has made Harcourts Cooper and Co to present North Shore community. a donation to Hospice in lieu of this fun, amazing-race styled event Christmas gifts to their clients and for the third year running. Front UP The teams at Farmers stores on the suppliers. Rapid Labels’ donations involves groups competing over North Shore inspired customers to over 15 years add up to tens of several months for the title of best give $49,000, either as donations thousands of dollars, but more fundraiser, followed by a day of crazy or by purchasing Hospice Christmas importantly, they have given our challenges in secret locations across Baubles. The full $10 of every bauble patients the priceless gift of knowing the North Shore. purchase went directly to the store’s their community cares. local hospice, ensuring funds stayed Many thanks to our brilliant event in your community. Operations manager at Rapid Labels, partners Harcourts Cooper & Co and Deb Hannon, says the staff are avid sponsors: Vodafone New Zealand, At Trees of Remembrance in other supporters of Hospice’s work and Smales Farm, Auckland Transport sites around the North Shore helping the community goes hand in (e-cars), Big Street Bikers, The Better community, shoppers donated over hand with the company culture. “We NZ Trust - Leading The Charge, $22,000. value the service Hospice offers, in More FM Auckland 91.8, Cube, Mitre particular the end of life care, and we 10 Mega Glenfield, Resene Colour We are deeply grateful to the believe it is important to support such Shop, Ecostore and Columbus Coffee volunteers who gave their valuable a great cause,” she says. Smales Farm. time to staff the trees; to the Farmers teams at Albany Home, Albany, NEW Entertainment Books out now / Glenfield and Takapuna (North Shore) and Silverdale (Hibiscus); and Enjoy 2-for-1 and up to 50% off offers, and deals for travel, hotel accommodation, to staff and management at Albany family activities and much more. Plus, 20% of proceeds from every membership Westfield, Countdown Barry’s Point, sold goes towards supporting Harbour Hospice patients and their families. Devonport Ferry Terminal, Glenfield For pre-orders visit www.entertainmentbook.co.nz/orderbooks/9647z5. Or from Mall, Milford Shopping Centre, 8th April, pay and collect your book at any of our 16 Harbour Hospice Shops. PAK’nSAVE Albany, Smales Farm and Visit www.harbourhospice.org.nz for shop locations. Takapuna Library. Your Hospice Matters Harbour Hospice 4
Trusts’ generosity keeps lights on Many thanks to the Charitable Trusts that play a vital Charitable Trust funded syringe drivers for effective role in helping meet the challenging funding shortfall pain management. we face every year. Many of these Trusts have been Four Winds Foundation helped our clinical team supporting Hospice for decades. train other health professionals to provide excellent palliative care in the community. Special thanks to the following featured Trust Constellation Communities Trust supported strong partnerships - The David Levene Foundation, Pub leadership for our nursing team. Charity Limited, The Lion Foundation and The Ara Lodge No. 348 Irish Constitution helped us Ted and Mollie Carr Endowment Trust & Estate of support patients who face financial hardship. Ernest Hyam Davis. Their continuing generosity North Shore Presbyterian Hospital Trust has aided the comfort of thousands of patients and supported spiritual care for patients and families. their families over the years. Milestone Foundation helped us provide nursing care in the North Shore Inpatient Unit. And thank you to our most recent grant funders: New Zealand Community Trust contributed to our Pub Charity Limited gave $200,000 and volunteer support services. The Lion Foundation gave $50,000, to fund Hasbro funded an ipad and toys for children who are essential operating costs. patients or part of the families in our care. Estate of Ernest Hyam Davis & Ted and Mollie Carr Charles Rupert Stead Trust paid for a laptop to keep Endowment Trust gave $30,000 to pay the lease on our educators connected. the Ellice Road Shop, so more shop income could go Dragon Community Trust and BlueSky Community directly towards patient care. Trust strengthened our support for Asian patients Lottery Community Fund supported our counselling and families, and for grieving families. services. A K Franks Charitable Trust funded dictaphones for North and South Trust and Maurice Paykel our life review volunteers. Amelie shows her gratitude with scrunchies Browns Bay schoolgirl Amelie Wells has given hair Amelie first offered the scrunchies to fellow students ties a new twist, making and selling fabric scrunchies at Bays School of Dance for a gold coin donation. to fundraise for her local hospice service. They proved so popular that she soon started charging two dollars each, and now sells them at In one school term, the 11-year-old’s sewing and Pinehurst School. At the last sale she had to resort to entrepreneurial skills raised over $600 for Harbour taking orders from eager shoppers. Hospice services in the North Shore community. Five years ago, when Amelie was six and her sister Tilly four, Hospice took care of their father and Amelie has always wanted to say thank you. “Hospice is a wonderful charity and they supported Amelie raised my family and looked after my Dad when he was over $600 sick,” says Amelie. “I have my own sewing machine for Harbour so decided to put my sewing skills to good use.” Hospice It’s a family affair as Tilly and Grandma Jane help with cutting, and Mum Sarah hand sews the scrunchies closed. Sarah says she also picks out the fabric for Amelie because “if she was let loose in the material shop she’d buy the whole store”.
Hospice Awareness Week May 2019 You can help us to help others by lending a hand to raise valuable funds and awareness for Harbour Hospice. Suzanne McFadden has been a regular Hospice Cuppa host and her gatherings have involved many of the women in her Whenuapai neighbourhood. About 60 attended Suzanne’s Whenuapai High Tea for Hospice; aged from 8 to 80, the guests included three 13-19th M A Y sets of grandmother, mother and daughter. A raffle and a fun quiz about women, beautiful food and great company, and a fantastic fundraising total of $1370 for Hospice definitely add up to a successful Cuppa! friends, family or colleagues together to enjoy a ‘comforting cuppa’. We have a fantastic FREE pack Here are a few ways you can show your support this we can send you to help with your fundraising. Awareness Week: - ‘Add a Dollar‘ at the checkout when shopping at - Spare a couple of hours to ‘shake a bucket’ for your your favourite local supermarket. local Hospice. We are aiming to have more collectors than ever before, so please keep an eye out for them To register your support or to receive your and give generously. free Hospice Cuppa pack contact Jenna Tuuta - Host a Hospice Cuppa. A great excuse to bring on 09 486 1688 today. Charity tournament on the Rolls Royce of golf courses The North Shore Golf Tournament has been a fixture Previously organised by enthusiastic golfers, notably on the local golf calendar for 20 years, and some Neil Crawford and the late Ross Finlayson, then by golfers have never missed a year. the Milford Rotary Club, the tournament is now run by Harbour Hospice. All proceeds support the care of This year the tournament will be held on Thursday people in the North Shore community who are living April 4 at the North Shore Golf Club in Albany, with a life-limiting illness. with teams of four teeing off at 12.30pm in either Stableford or Ambrose competition, therefore allowing Fundraising Coordinator Jenna Tuuta says the 27- the tournament to cater to golfers of all abilities. hole North Shore Golf Club is the ‘Rolls Royce’ of golf courses and Hospice is grateful for the use of such a stunning venue. With Kiwibank Business Banking as a major sponsor, award-winning 4th tournament organiser PaR n.z. managing the event and Golf Warehouse providing the prize table, there A P R I L is plenty to look forward to. Don’t miss out on this special day. Register your team now at www.parnz.co.nz/tournaments/ or, for more information, contact Nanette on 021 639 649 or nsevents@harbourhospice.org.nz Your Hospice Matters Harbour Hospice 6
A gift in your will provides Hospice care beyond your lifetime When Lesley Ingham updated her will last year, she included a gift to Harbour Hospice, knowing first-hand the impact her bequest could have. “We wouldn’t Lesley recently celebrated nine years working as have had the a fundraiser for Hospice, and says she is happy confidence to look knowing her future gift will help ensure the service is after Mum without available for her children and grandchildren. Hospice’s help.” Lesley says she saw the difference Hospice could make 14 years ago, when her mother, Pat, was dying they would approve of her of congestive heart failure. leaving a gift to Hospice, which gave such compassionate care to both their maternal “Mum was in hospital and she was moved into a and paternal grandmothers. private room, which she called the waiting room,” Lesley says. “She had such a strong faith that she Some people, like Lesley, make a Gift in Will because wasn’t afraid of dying, but she desperately wanted to they have been personally touched by Hospice be at home.” and they want to give back, others because they have seen the difference Hospice makes in their With support from Hospice, Pat was able to return community. to the comfort of her own home, with her family and familiar things around her. Contact us for more information, including the impact your gift could make. There is no obligation and all Lesley says: “We wouldn’t have had the confidence enquiries are treated in the strictest confidence. We to look after Mum without Hospice’s help. The nurses cannot provide legal or financial advice but we would came and went, and without any fuss they took care be happy to hear from you, answer questions and of the medical details so we could just be with Mum.” provide you with further information. Lesley says her four children and their families are Call Planned Giving Coordinator Jo Eve on the main beneficiaries of her will and she thinks 486 1688 or email jo.eve@harbourhospice.org.nz Tax deduction rewards your generosity Nobody understands the importance of time more by ensuring Hospice can continue providing than someone who is nearing the end of life. Time compassionate care; and it will benefit you by taking is also important if you are considering a donation advantage of available tax credits. to Harbour Hospice, as the end of the financial year is approaching and time is running out on tax As the need for palliative care increases in your deductible donations. community, we will help more and more people by providing respite care in the safe and welcoming As an individual you can claim a 33.33% tax credit environment of a Hospice Inpatient Unit – but we for all donations over $5 you make to an approved need your help to make this possible. donee such as Harbour Hospice*. A tax credit reduces the amount of tax you have to pay. Your * Please contact your tax advisor or accountant for donation today will benefit people in your community more information. Your Hospice Matters Harbour Hospice 7
The longer we have patients in our care, the more medical supplies we need to provide relief from troubling symptoms. Will you help us provide this relief? As doctors working in palliative care, we are very aware of the privilege of being with someone during this stage of their life and deeply grateful to you for giving so generously to support our work. Complex symptoms We are pleased that more patients are seeking care need costly medicines from Harbour Hospice earlier in their diagnosis, as and medical supplies. this means we can do more to help them manage Can you help us buy the symptoms, such as pain that prevents them from supplies we need to give sleeping, or shortness of breath that stops them our patients the best enjoying simple activities. care possible? However, the longer we have patients in our care, the more medicines and medical supplies we need to provide relief from these troubling symptoms. Essential items such as medications, dressings, Thank you for so generously supporting our work, syringes and batteries cost Harbour Hospice more than $2,000 a week. Will you help us buy the medications and supplies our patients need to give them relief from pain Dr Eugenia Romboli and other troubling symptoms? Harbour Hospice Medical Leader P.S. Last year North Shore Hospice was renamed, and is now called Harbour Hospice. However the same Hospice services still provide care and relief as before. Your gift today will directly benefit patients in your local community. Will you help us buy the medications and Please accept my donation of: supplies our patients need to give them relief $ from pain and other troubling symptoms? Post this form to: Harbour Hospice North Shore, PO Box 331129, Takapuna 0740 NS NEW0319 Name: I wish to make my payment by: Cheque (enclosed) Credit card (see below) Address: Charities Services #CC22413 Card no: Cardholder’s name: Card expiry date: Phone: Signature: Email: Other ways to donate: Phone: North Shore (09) 486 1688 Please send me information about: Online: Safely and securely at www.harbourhospice.org.nz Joining our Friends of Hospice Club through monthly giving Gifts $5 and over are tax deductible. Including Hospice in my Will Your Hospice Matters Harbour Hospice 8
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